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Offline allstardiva2005

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bad day
« on: November 02, 2004, 03:03:19 AM »
3 weeks ago, someone tripped me at school and since then my knee pain has steadily increased once again.

however, a week and a half ago, my insurance coverage for my physical therapy expired so i can't get any help from my therapist. i don't see my surgeon until december and i know if i was to see her earlier then that she would just say "give it time, just push through the pain."

i'm not allowed to use crutches b/c i'm supposed to push through the pain. i'm only allowed a maximum of 2 tyenol pills every 4 hrs. and they don't even touch the pain. i am required to work out 3 times a week which includes leg weights, bike for 6 minutes, elliptical @ 0 incline and resistance for 10 minutes, etc.

i'm a senior in high school and walking to class or up the stairs is really hard for me. i had to leave school after my 3rd class b/c i couldn't focus due to pain and just kept crying. none of my friends or family understand the pain (and i understand that), but its so hard when i don't have support of my family, friends, therapist, or surgeon and i'm in so much pain. i just feel helpless.

aside from ice, meds, and the use of crutches- is there anything else i could do to minimize pain?

thanks guys,
Christy
Medial Meniscus Repair- '00,03
Partial Meniscectomy- '03, '04
ACL Reconstruction- '02
Exploratory Scope- '05
Allograft ACL Revision & Neuroma Excision- '06
Hardware Removal & Bone Filing- '06
Scar Tissue Removel- '07

** Medial meniscus transplant is in the near future... **

Offline Ron22

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Re: bad day
« Reply #1 on: November 02, 2004, 03:09:55 AM »
christy..so sorry for your bad time..may sound dumb but i find beyond meds..sometimes a good movie or book helps..sometimes i just hobble outside and take some deep breaths.....let everything slow down..let my mind go...aromatic candles sometimes help..soothing music..calling friends for some mindless and pleasant chat...whatever it takes...anything that takes your mind off things...lately as my situation has gotten worse in alll ways..i spend some time helping a mate who is in a wheelchair......

sometimes that is the best diversion.....helping someone else

hope u get to feeling better...any way your reg doc can get u some pain meds so u can at least relax at nite?..soma is a good non narcotic muscle relaxer and really helps u chill...

take care of yourself...

hugs

ronnie
Surgery #1 ACL/LR/Mdl Mesniscus
Surgery #2 Vascular Repair
Surgery#3 ACL/Ltl Mesniscus/MCL
Surgery#4 Vascular Repair
Surgery#5 Maquet/Bone Graft/Screw/LR/ACL
Arthritis/Knee/Hip
Necrosis/Hip
PFS/Chronomalacia
RSD
Vascular Issues
All on Right Leg

Offline sweetheart0517

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Re: bad day
« Reply #2 on: November 08, 2004, 12:23:13 AM »
Hey im sorry to hear your going thru so much pain but i know how you feel....it's the worst thing when you know what you feel and others just can't understand. But always know that we will always be here for you at this site...it has been such a blessing to me and many others.....why don't you try to go to another ortho or if your school has a sports trainer go talk to him about your problem sometimes they can really help i know mine did.....as the above post said sometimes it really is a nice way to get your mind off things by enjoying some of the simple pleasure in life....as for working thru the pain you can only work thru so much....in my opinion you need to sit down and talk to your parents camly cause you know how parents put that shield up if you yell and just tell them whats going on....if you still can't get thru to them then i would call and make a apopintment yourself...if your a senior i am guessing you are or soon will be 18....i dont know if this helped any but i and everyone else is always here if you need us...good luck with everything!  :-*
Lateral release 1-12-2005
Pt for what feels like forever...

Offline Nettan

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Re: bad day
« Reply #3 on: November 08, 2004, 08:51:28 AM »
Hey !!

Looks like you need more help, you can't go on like this.
Why can't you sometimes when having really bad days use your crutches as support ?
Maybe you also should need new painkillers. If they don't touch the pain is time to do something about it.
As sweetheart0517 says you need to sit down with your parents and explain your situation. Maybe you're  not are a complaining person, maybe you hide your feelings so well that they don't see how you actually have it. You can't be able to function and work with your leg as long as you have this pain.
Maybe you should try see your doc earlier (with help by your parents) or try get a second opinion.
Sending you hugs and hope of a better tomorrow.
If you need any help please contact me.

Hugs nettan  ::)
Surgery 6 times left knee torn meniscus, RSDS,chondromalacia, nervdamage cause constant nervpain,chronic inflamm.
Spinaldamage wheeler 100%.
Right knee damaged aug-06, use brace surgery 4/9-07.LCL tear.

Offline allstardiva2005

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Re: bad day
« Reply #4 on: December 18, 2004, 08:54:04 PM »
thanks for your guys words of encouragement.

a lot has happened since i had a chance to come back here. my surgeon saw that my lcl is a bit loose, but she wanted her partner to look at it to see if he agreed. he didn't think the lcl was causing my pain, but that i might need a meniscus transplant. my surgeon a couple appts ago said that there was no way this was an option. so basically they don't know, and they're some of the best surgeons in michigan.

fortunately, i was able to switch insurance and on jan 4th i'm seeing dr. noyles in cinci- i hear he is an excellent knee surgeon and i'm hoping he'll possibly know whats going on. and if he can't figure it out, i start going to the pain management clinic on jan 19th.

i've also tried acupuncture and hypnosis. neither of which is really helping. and its just frustrating that surgeons just don't have any answers for me. they can tell me some problems i have with my knee, but can't give me a definite reason/solution to my pain:

- patellar tendonosis
- pes tendonitis
- somewhat loose lcl
- my acl slides, but has a good endpoint
- minor swelling in posterior part of knee

i've tried the following meds that don't work with lowering pain:

- tyenol
- tyenol for arthritis
- advil
- bextra
- netoprophin (i think thats what its called)

thanks again ron, nettan, and sweetheart0517- the last month especially has been really hard for me to deal with. i try to hang out w/ my friends and cheer on friends at their sporting events but it seems just about every outing ends with me leaving early and crying all the way home. i want to treasure and enjoy my senior year, but the pain is just too great. so thanks for your understanding and words of encouragement, its greatly appreciated.

xoxo- Christy
Medial Meniscus Repair- '00,03
Partial Meniscectomy- '03, '04
ACL Reconstruction- '02
Exploratory Scope- '05
Allograft ACL Revision & Neuroma Excision- '06
Hardware Removal & Bone Filing- '06
Scar Tissue Removel- '07

** Medial meniscus transplant is in the near future... **

Offline Ron22

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Re: bad day
« Reply #5 on: December 19, 2004, 12:12:28 AM »
hi christy..i feel u man..took me a long time to be able to watch my mates and realize i was done....however..the most impt thing is to allow yourself to feel bad....when u need to..nobody gets it unless they have this knee stuff...bottom line..only u and u alone know how much pain sadness or frustration u feel..everyone here is with u and we are here to support and help...

just do it a day or hr at a time.....and vent when u need to..beyond music and reading and books and working out..no more hoops or rugby of course but a good workout alows that nostalgic feeling of being sore and spent....pls hang in there sweetie..i've been trying to hook into the loving hugs of my nieces and their still innocent wonderment of xmas....call it vicarious joy if u will..i also try to count my blessings..i was spared from the horrors of 9-11 by a strange twist of fate and a last minute cancellation....i have friends, family and great sports memories..no one can take those away....

take care of yourself my friend and u can always im me here and let me know if u are really down and i can im u via the board a way to im me or e-mail me directly..

hang in there....

hugs

ronnie
Surgery #1 ACL/LR/Mdl Mesniscus
Surgery #2 Vascular Repair
Surgery#3 ACL/Ltl Mesniscus/MCL
Surgery#4 Vascular Repair
Surgery#5 Maquet/Bone Graft/Screw/LR/ACL
Arthritis/Knee/Hip
Necrosis/Hip
PFS/Chronomalacia
RSD
Vascular Issues
All on Right Leg

Offline Heather M.

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Re: bad day
« Reply #6 on: December 19, 2004, 12:17:14 AM »
Christy,

I'm seeing Dr. Noyes in Cincinnati on January 6th--here's to hoping he will be able to help both of us.

In the meantime, if you can't get help from your current OS and pain is getting in the way of your rehab, then something has to be done!  Is your GP skilled in treating chronic pain?  There may be a combination of medications and treatment and things like patellar taping and TENS that take your pain down to the next notch and enable you to work.  If you have constant, severe pain then sometimes the muscles around the knee will shut down and quit working properly--the body is trying to protect itself from the pain.  I got great relief from using taping or a TENS unit during my PT exercises--we were able to break the pain cycle and get results.  And simple things like lidocaine skin patches make some things like sitting in the car for long periods more bearable for me.  No one thing gets rid of all the pain, but together they keep it to a dull roar...;-)

Good luck with your appointment.

Heather
« Last Edit: December 19, 2004, 12:18:52 AM by hmaxwell »
Scope #1: LR, part. menisectomy w/cyst, chondroplasty
#2-#5: Lysis of adhesions/scar tissue, AIR, patellar tendon debridement, infections, MUA, insufflation
#6: IT band release / Z-Plasty, synovectomy, LOA/AIR, chondroplasty
2006 Arthrofibrosis, patella baja
http://www.flickr.com/photos/hmaxwell

Offline imnotpunk

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Re: bad day
« Reply #7 on: December 19, 2004, 05:45:12 AM »
Christy -

I'm so sorry to hear what you are going through. I wish I had seen this thread earlier!

Have you thought to contact your primary care doctor about your situation in terms of the pain? They should be able to prescribe a better pain reliever for you if your current OS is unwilling to do so. You may need something stronger than an anti-inflammatory (which btw, I don't trust ANY of them anymore now that Celebrex is said to cause heart problems as well!).

Your senior year should not be ruined because of your pain, and you need your doctor to understand this. Sometimes the pain is too bad to push through, and that's not your fault at all. Please don't ever feel like you're giving up or giving in to the pain; sometimes it really IS that bad!

Good luck with your upcming appointment, I sincerely hope they can find out what's wrong with your knee so it can be treated and you can go back to enjoying a pain-free life. Believe me, I know what it's like to be in the dark about your own body -- I went a year on a severely damaged knee without knowing because I was told by a bad OS that there was NOTHING wrong with it!

Please keep us updated!

Best wishes,
Patricia  :)
R knee:
08/03-meniscal repair, LR
01/04-MUA, LOA
03/04-MUA
08/04-patellar tendon reconstruct. w/hamstring, menisci repairs, lateral/medial releases
10/04-MUA, LOA, debride., marsupialization, lateral release
12/04-MUA, LOA, meniscectomy
L knee:
09/05-meniscectomy, chondroplasty, microfracture

Offline allstardiva2005

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Re: bad day
« Reply #8 on: December 19, 2004, 03:45:08 PM »
thank you guys again. the last two nights have been really bad and you're encouraging words really helped.

Heather- is GP your general practitioner? if so. he has completely abandoned me. with my old insurance, blue care network, we had to go through him to get referrals for every single appt (my knee & i see a retina specialist- so its a lot of referrals). anyways, early last week when we went to ask if Dr. Noyes was covered by our insurance, he told my mom that he no longer believe my knee was a problem (which he knows isn't true, but when a dr has to do a referral, they pay a good chunk of the bill) and he refused to send anymore referrals. fortunately, my mom was able to switch our insurance to blue cross blue shield (and since its $1200 a month for my family, i can no longer even try acupuncture or hypnosis), which covers pretty much any dr/surgeon in the country without needing a referral...

Heather & Patricia- about taking stronger medicine- the only medicine that helps me (that i know of) is vicodin. and since i've had it so much over the past 5 years, that doesn't even help as much. unfortunately, since it can be an addictive drug, my mom only lets me have it on my really really bad days. and i only have like 10 pills of that left. tyenol 3 makes me sick, i think its the codeine in that but i'm not sure. so is there an in between anti-inflammatory and vicodin that i don't know about?

thanks again to everyone who responded. this knee board is the best b/c just about everyone understands. i also found a knee buddy who's my age and a senior in high school w/ pretty bad problems too so we always complain about mr. knee to each other.

xoxo- Christy
Medial Meniscus Repair- '00,03
Partial Meniscectomy- '03, '04
ACL Reconstruction- '02
Exploratory Scope- '05
Allograft ACL Revision & Neuroma Excision- '06
Hardware Removal & Bone Filing- '06
Scar Tissue Removel- '07

** Medial meniscus transplant is in the near future... **

Offline imnotpunk

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Re: bad day
« Reply #9 on: December 19, 2004, 08:19:22 PM »
Christy -

Have you ever heard of the drug Ultracet? It's a combination of tramadol and acetaminophen. I too had a problem with certain pain killers because my tolerence was so high, so my newer OS tried the Ultracet. While it isn't as strong as a Percocet, it did work really great for me. I've since returned to the Percocet, but maybe you could look into trying Ultracet. What's even better about it is that, unlike drugs like Percocet and Vicodin which cannot be called into the pharmacy (because they are narcotics), Ultracet can just be called into the pharmacy by your doctor and will be ready to pick up in MINUTES!

Hope any of this helps!

Best wishes,
Patricia
R knee:
08/03-meniscal repair, LR
01/04-MUA, LOA
03/04-MUA
08/04-patellar tendon reconstruct. w/hamstring, menisci repairs, lateral/medial releases
10/04-MUA, LOA, debride., marsupialization, lateral release
12/04-MUA, LOA, meniscectomy
L knee:
09/05-meniscectomy, chondroplasty, microfracture

brattkids2

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Re: bad day
« Reply #10 on: December 19, 2004, 10:31:11 PM »
I tried ultracet too and It worked ok for a while. I am now on percocet. It tears up my stomach but I was given compazine for the nausea and it helps a ton. Mabey you could ask for anti-nausea medication to help too.

I have BCN and know all to well the frustrations with getting referrals. My primary care offices cringes when they see me coming. My knee has been going on for a year and I also see a gastro guy too. My kids have needed referrals too 6 yr old had tonsils out in November and 8 yr old is getting them out in Jan. I sometimes think the primary care office has a camera outside and runs when they see my car LOL
I hate BCN any way they make you try step therapy for almost everything!!!
Do you live in Michigan?

I hope going to a new OS you will get some fresh opinions and new treatment options. I am also going to a new OS in January. Dr. W here in Ann Arbor, Mi and those are my hopes too!!!

Hope you get some relief soon
Paulette

Offline allstardiva2005

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Re: bad day
« Reply #11 on: December 21, 2004, 06:28:06 PM »
Paulette- I do live in Michigan, I've seen Dr. Jurist & Dr. Gueller out of Beaumont and Dr. Kolowich and Dr. Lock out of Henry Ford...and they all got to a point where they didn't really know anymore. I see Dr. Noyes in Cinci on the 4th and if he doesn't know I'll go see Dr. W at U of M.

Good luck w/ your appt w/ Dr. W!

About the meds- my mom got a hold of the pain management clinic and I'm not allowed to take tyenol anymore b/c my liver is gonna die if I keep that up. He said vicodin was better for than tyenol in that aspect. However, my mom is gonna try and call around and find a doctor to prescribe a med like ultracet, in between the two. Only problem is my current surgeon, Patty, has the rest of the year off and she was supposed to call me back last week to tell me what she and Dr. Lock decided on for my knee. I hate unreliable surgeons...lol

- Christy
Medial Meniscus Repair- '00,03
Partial Meniscectomy- '03, '04
ACL Reconstruction- '02
Exploratory Scope- '05
Allograft ACL Revision & Neuroma Excision- '06
Hardware Removal & Bone Filing- '06
Scar Tissue Removel- '07

** Medial meniscus transplant is in the near future... **

brattkids2

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Re: bad day
« Reply #12 on: December 22, 2004, 01:28:31 AM »
Christy,

I sure hope you get some relief soon!! If you are having liver problems you may need to check as there is acetamenophen (tylenol) in vicodin. Just be sure this isnt causing you problems either!!

I hate when you cant get ahold of your doctor!! I know they are entitled to vacations too but they should have left you a number of someone to call why they are away. My current clinic has 6 doctors so when my OS is gone I can call any of the other 5 with questions. It helps alot!!!

I live in fowlerville now but I grew up in Roseville.

Good luck to you at your appointment with doctor Noyes. Please let me know how you do!!

Have a Great Christmas!!
Paulette

Offline Nettan

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Re: bad day
« Reply #13 on: December 22, 2004, 09:24:19 AM »
Hey Christy !!

I've followed the thread but not written back for long, sorry. I hope despite all this problems you are in that you will have a nice Christmas and a Happy new year with less pain or non. I really understand the problems you have with meds, i have nervpain and inflammation and need meds for that but can't use anything else then morphine cause I'm an allergic. I wish I weren't cause my life would have been better with those meds, but fact are fact. Hang in there don't give up, I'm sure better days will come.

hugs nettan  ::)
Surgery 6 times left knee torn meniscus, RSDS,chondromalacia, nervdamage cause constant nervpain,chronic inflamm.
Spinaldamage wheeler 100%.
Right knee damaged aug-06, use brace surgery 4/9-07.LCL tear.

Offline allstardiva2005

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Re: bad day
« Reply #14 on: January 05, 2005, 04:12:09 AM »
Heather M- if any knee surgeon can figure out your problems, Dr. Noyes can. I was really impressed with him and his team. They (residents/surgeon) went through my medical history for about an hour before coming into the examining room. He and a resident then examined my knee for at least 20 minutes and then we discussed his findings. He wasn't super friendly, but nice enough for me! And it comforted me that people with complex cases there at the office were getting answers.

So how did my appt go? Well I have some hope now.

list of problems with mr. knee:
1) Medial Meniscus- possible tear? or possibly not enough meniscus requiring a transplant? but he'll have to do a scope to figure those out.

2) Lateral Collateral Ligament - very loose. only functions partially.

3) Anterior Cruciate Ligament - very loose. only functions partially.

* For 2 & 3, if i was a college/pro athlete they'd have to perform surgery immediately. but since, my sport career is for sure over, we're gonna put that off for now. i will need to have reconstructions to repair both of those down the road however.

4) Possible articular cartilage damage.

5) Kneecap ligaments are really loose so my kneecap just slides around (a brace will fix this problem, no surgery needed for this)

6) Possible scar tissue around this one nerve potentially causing pain.

7) Unknown pain.


soo how do we go about fixing all of this? #2,3,5 will be dealt with later unless I need a meniscus transplant and then my joint needs to be more stable so possibly another ACL reconstruction, but I'm not sure about that. before my next appt with dr. noyes on the 25th, i'm having another MRI and bonescan. and on the 19th, i'm having a lumbar nerve block to rule out nerve damage (and he doesn't think thats likely). based on the results of those tests, the next step will be scheduling an exploratory scope to see if i have problems #1,4,6.


thanks everyone for your prayers and encouraging words!
- Christy
Medial Meniscus Repair- '00,03
Partial Meniscectomy- '03, '04
ACL Reconstruction- '02
Exploratory Scope- '05
Allograft ACL Revision & Neuroma Excision- '06
Hardware Removal & Bone Filing- '06
Scar Tissue Removel- '07

** Medial meniscus transplant is in the near future... **