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Author Topic: Dr. Noyes ?   & my arthrofibrosis story  (Read 8674 times)

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Offline suzuki

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Dr. Noyes ?   & my arthrofibrosis story
« on: October 31, 2004, 01:56:21 AM »
 I broek my leg 8 weeks ago and had trauma to the knee. My os plated my leg and immobilized my leg and knee..well of course fibrosis set in big time! I had no movement at all with my knee and still have little..I have worked hard the last week to get to 60 degrees..anyway I went to a "knee specialist" and was told to work through the scar tissue...come back in 3 weeks..try a cortisone shot ...then 3v more weeks mua...then we may try to fix my torn meniscus!  I have been reading this site gaining valuable information..I felt I understood this conditin better the he did!He gave me the typical protocol he learned in med school.....

Luckily Dr. Noyes is accepted by my insurance and only 5 hours away!!! I have an appointment in 2 weeks...has anyone seen him from here ? Wehn I called the hospitals insurance number { to see if I would be covered} the rep asked of my condition...I told her and she said  ..you need to see Dr. Noyes    she knew more than most of the os here in Pittsburgh!!!

I am hoping for the best! has anyone seen him ?

I have read that its important to catch it early..I hav e but in my case it is early but also very severe!!!   thoughts or suggestons    welcome.....thanks


R.C.


ps. Heather if you read this...ty for all the informative posts! ::) ::) ::)

Offline missmyknee

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Re: Dr. Noyes ?   & my arthrofibrosis story
« Reply #1 on: October 31, 2004, 02:42:13 AM »
Hey RC

Are you RC from mybrokenleg.com ?

If you are welcome to the knee forum and to answer your question.......you will be in great hands with Dr Noyes. I saw him in June and he was so nice as was his whole office. He spent 45 min talking and evaluating my knee. I was really impressed. He's doing my TKR. His partner Dr L. is great with athrofibrosis too.

Pam
4Fx Clsd red
IMrod fib plate
derotate osteotmy tibfib
AF
IPCS patbaja
DeLeeOsteotmy,LOA,LR Zplasty,bongrf,chondrplty
chondrplty,LOA,fatpad remvd
TKR
openLOA,neurectmy,ITB Zplasty,fabela
PLC recon,revison,LOA,synovec
MCL,revison LOA
openLOA,prox Zplasty
openLOA, 6 neuromas excised,synov
3 Fusions

Offline suzuki

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Re: Dr. Noyes ?   & my arthrofibrosis story
« Reply #2 on: October 31, 2004, 02:12:42 AM »
Yes Pam it is me! My broken leg has healed very well however my knee is in pretty bad shape! It looks as you and I just surf from board to board..lol  I am glad to hear good things from the Dr. ..thanks for your input!

                                               R.C.

Offline Heather M.

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Re: Dr. Noyes ?   & my arthrofibrosis story
« Reply #3 on: October 31, 2004, 03:11:57 AM »
R.C.,

You put a smile on my face after a very bad knee day, so thank.  Really.  I'm so glad that having people like me and so many others on the board repeat ad nauseum our stories of horror has perhaps been influential in helping people like you seek the help you need.

You are so very lucky that you are catching this early.  Yes, flexion of 60 indicates severe contracture, but you are getting it dealt with soon enough and by the right doctor--I have no doubt that you will be 'back to normal' long before I am!  I, too, will likely be seeking help from Dr. Noyes, as soon as I can get my work life together a bit more and arrange to have help around the house.  Likely in February or so.

Pam has been helpful in my decision to seek out CSM, along with Kim in Atlanta.  I think with Dr. Noyes or Lindenfeld, you are in great hands.

I guess I should apologize to the long-time kneegeeks who have read my story and my warnings so often they likely gag on them, but it's good to know that the information has been helpful to someone.  Misery loves company and all that  ::)

Keep us posted on your appointment, and good luck.  In them meantime, keep up the GENTLE and PASSIVE rehab work, and don't let your PT crank on your leg!

Heather
« Last Edit: October 31, 2004, 03:12:26 AM by hmaxwell »
Scope #1: LR, part. menisectomy w/cyst, chondroplasty
#2-#5: Lysis of adhesions/scar tissue, AIR, patellar tendon debridement, infections, MUA, insufflation
#6: IT band release / Z-Plasty, synovectomy, LOA/AIR, chondroplasty
2006 Arthrofibrosis, patella baja
http://www.flickr.com/photos/hmaxwell

Offline kdhfrank

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Re: Dr. Noyes ?   & my arthrofibrosis story
« Reply #4 on: November 01, 2004, 01:37:53 AM »
rc

you will be in great hands at CSM. i had my arthrofibrosis surgery this past june at CSM. i chose dr. noye's partner...dr.lindenfeld to do mine. dr. lindenfeld was consulted prior to my eight hour surgery here in atlanta to put my knee back together while addressing the scar tissue...massive amounts....entire joint capsule. i made the journey north to ohio to see if i could get some of my life back...i was stuck at 35 degrees flexion. i spent 2 weeks in ohio...they let me come home two weeks early because i was doing so well and i have a great PT here in atlanta who is an expert on arthrofibrosis rehab. while i am still in PT two days a week i am greatly improved from where i was. i am hanging around 110 to 120 degrees flexion. i literally had to relearn how to walk, go up and down steps...still struggling with going down...but at least i can sit on a toilet...something i had not been able to do in almost a year. if you end up choosing noyes or lindenfeld to do your surgery i can help you with some tips on cincinnati and where to stay. i was in the hospital for 4 days and in pt, and dr. lindenfelds office daily till i returned. Good luck at your appointment!!!! and send me a PM if you want any info on cincinnati.

kim from atlanta
L pat. dislocation, 1977;  run over by a car, L pat. dislocat., multiple burns & fxs, 1981; L knee scope, 8/03; L knee MUA, 10/03; L knee MUA & patellar tendon rupt; 6/22/04 lysis, debride, pat. baja!

Offline maxfactor

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Re: Dr. Noyes ?   & my arthrofibrosis story
« Reply #5 on: November 03, 2004, 01:09:49 AM »
Heather,

Just FYI, I've printed so many of your posts for my appt next Monday with the new O.S. HE might hate you, but I could never tire from your posts. They are so very helpful and informative. I don't find many people who have had patellectomies so I don't think I could help that many. I'm sure I speak for many when I say that you are truely a Godsend.

I saw my PM doc last Friday. He finally broke down and said he'd give me something better than Norco for break-through pain, but he didn't say what it would be. He told me when I renew my script on the 14th he would have it on the order. He said he wanted to think about a TENS unit as he wasn't sure it would help me. Said it cost a lot. I told him he didn't have to pay for it, but that I was sure my insurance would cover it.  I also broke down and asked about a handicap sticker. He said it would only be temporary and I told him to forget it. I wanted to tell him to shove it. It was hard enough to ask. I don't know the protocol for handicap plates so it's really my fault for going in uneducated. Anyway, I'll let you know about the new drug and my appt next Monday. If this doc isn't going to help me I'm going to United Health Care. That's my only other option. There are tons of doc's to choose from, and I can also go out of network if need be and pay more $$. Thanks again for all your help. Some day I'll be able to repay you.  Maybe I'll get a TKR before you do! Then I can give you the skinny:)

Jane
12 knee surgeries. bilateral patellectomy 22yrs ago. chronic pain, major narcotics. Still looking for help with pain. 42yrs old.

Offline Jennifer_G

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Re: Dr. Noyes ?   & my arthrofibrosis story
« Reply #6 on: November 10, 2004, 07:38:40 PM »
I live in Cincinnati and am switching to Dr. Noyes' practice.  He is as good as everyone talks about.  Lindenfeld and Galloway are great too!  If you have any questions about where in Cincinnati to go or anything about Noyes just ask!  
07/25/03--ACL recon with meniscus trimming
09/19/03--Manip with epidural, scope, and lateral release
02/06/04--Open Debridement, Manip, open release of intrapatellar fat pad, lateral release, Inpatient on Epidural
03/09/05--Open Anterior/Posterior Release, Scope, Inpatient on Epirdural

Offline kdhfrank

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Re: Dr. Noyes ?   & my arthrofibrosis story
« Reply #7 on: November 11, 2004, 01:41:22 AM »
Jen

hope all goes well with dr. noyes! dr. lindenfeld did my surgery and i drove all  the way from atlanta to see him. you are so lucky to live in a city with such a great orthro practice! you should have switched sooner!

kim from atlanta
L pat. dislocation, 1977;  run over by a car, L pat. dislocat., multiple burns & fxs, 1981; L knee scope, 8/03; L knee MUA, 10/03; L knee MUA & patellar tendon rupt; 6/22/04 lysis, debride, pat. baja!

Offline suzuki

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Re: Dr. Noyes ?   & my arthrofibrosis story
« Reply #8 on: November 13, 2004, 02:50:09 PM »
Well I had my appointment on Thursday and I was very impressed with Dr. Noyes, his staff, and rehab facility. I am scheduled for surgery Dec. 1st and I am excited and nervous. Dr. Noyes is a fellow motocross racer so we kinda connected. My knee is in  poor shape...torn mcl & acl my meniscus is floating somewhere in my knee and extreme arthrfibrosis! I worked hard with Dr. Noyes head p/t for 2 hours and made some progress. Still my best reading was only 65 degrees and 5 degrees.I felt rather calm the entire day there, for every question was answered...and this time there was confidence and experience backing it up!! I will be going through the exact procedure listed on the csm website. The p/t room was jammed..and many people had seen other" knee specialists" before getting proper treatment from Dr. Noyes! The same statement came through "I wish I had came first" Dr. Noyes came into therapy and spoke to each patient individually...regarding progress, pain, and the procedure each had done...his bedside manners were very impressive! I am very confident I have an excellent Dr. performing my surgery! The 4 1/2 hour drive home went by quickly as I reflected on my new "road to recovery." In the meantime I have new excercises, an electrotrotherapy device, and a knee bending machine {not cpm} on the way! I have alot of work to do before and after surgery, however I have never been afraid of hard work and am up for the challenge!!! I will be there for a week and will post everything when I return!Wish me luck!
Thanks for all the advice and support.......and ANYONE reading this, nervous or scared...I echo the advise {from my darling heather..winks} I was given and acted on......SEE A SPECIALIST....ONE WHOM HAS SEEN HUNDREDS OF CASES LIKE OURS!!!!!!
                                                                R.C.

I could use some suggestions on where to get some good grub in cinci...I have heard of a good rib place?
                                                               

Offline missmyknee

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Re: Dr. Noyes ?   & my arthrofibrosis story
« Reply #9 on: November 13, 2004, 08:44:05 PM »
Hey RC

I'm so glad your trip was so successful and informative. I told you that you would be in good hands with Dr Noyes. I'm still waiting for the surgery schedule to go past Jan 1. You need to message Kim/kdhfrank on where to stay etc. She gave me valuble info on where to stay ( resident inn) with discounted rates for Noyes patients. On their website they also have a list of Hotels that give discount info. We also found the North Kentucky side across the Ohio river to be good for eating.

Great news RC !!!

Pam
4Fx Clsd red
IMrod fib plate
derotate osteotmy tibfib
AF
IPCS patbaja
DeLeeOsteotmy,LOA,LR Zplasty,bongrf,chondrplty
chondrplty,LOA,fatpad remvd
TKR
openLOA,neurectmy,ITB Zplasty,fabela
PLC recon,revison,LOA,synovec
MCL,revison LOA
openLOA,prox Zplasty
openLOA, 6 neuromas excised,synov
3 Fusions

Offline Janet

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Re: Dr. Noyes ?   & my arthrofibrosis story
« Reply #10 on: November 13, 2004, 08:54:03 PM »
RC:

I am so happy for you! It is so amazing when you finally find a doctor who understands what you are saying and doesn't question it. It's the best feeling in the world. Good luck with your surgery!!

Janet

P.S. Montgomery Ribs are the best!
Torn quad tendon repair & VMO advancement 4/99, MUA with LOA 10/99, Patella baja and arthrofibrosis, LR & medial release & LOA 5/01, LOA & chondroplasty 6/03,TKR on 11/06, MUA 12/06. From perfect knees to a TKR in 7 years, all from a fall on a wet floor...and early undiagnosed scar tissue.

Offline Lauren

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Re: Dr. Noyes ?   & my arthrofibrosis story
« Reply #11 on: November 14, 2004, 05:20:55 AM »
Hello suzuki.
I have been going to Dr. Noyes for about2 years know . I like him pretty well. The preformed a proximal/distal realignment w/scope. the 8 weeks after Surgery he preformed a minipulation because of scartissue building up could only get to 85 degrees. Sa him thursday he said everthing looked good but wanted to get the  screws out and remove the scars because they are somwhat large.
mal-tracking, hypermobility, numbness, pain,  past dicoloring, subluxation, negative MRI,  surgery in may2003, PT2.5 years

Offline QBknee

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Re: Dr. Noyes ?   & my arthrofibrosis story
« Reply #12 on: November 17, 2004, 04:59:45 AM »
Well,

I have decided to go out and see Dr. Noyes as well!  My appt is set for Dec. 14.   I will fly into Columbus and drive the  1 1/2 hours to Cincinnati.  I hope he will recommend a scope and not a open incision surgery to remove any remaining scar tissue and releases.  My patella has very little movement and I have had two failed lateral releases.  I am 13 months post op from a Lysis of Adhesion, Lateral release procedure and 15 months post op - open incision bone graft, scar tissue removal.  I strongly feel with proper post op protocol  and one more clean up surgery, I can get back to normal activities and put the my knee issues to rest.  

Dan
5/90 - Microfracture, 11/02 - ACI harvesting scope, 09/03 - Bone graft-Scar Resection -10/27/03 - Manip w scope 2/2/05- Posterior Capsular Release, Anterior Interval Release/staph infection, 3/14/05 wash out scope 12/11/06- Scar resection, lat/med releases















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