Banner - Hide this banner





Author Topic: Stressing about my appointment  (Read 1308 times)

0 Members and 1 Guest are viewing this topic.

Offline Beauzer

  • SuperKNEEgeek
  • *****
  • Posts: 855
  • Liked: 0
  • I want to become the person my dog thinks I am
Stressing about my appointment
« on: October 18, 2004, 02:19:40 AM »
Hi,

Well, the day I've been waiting for is almost here.  Tomorrow is my OS 2nd opinion to see if I need to have a TKR or if there's anything else that can be done like a ligament re-reconstruction and UKR.

I'm not sure why, but I'm getting really stressed out about this appointment.  It's getting worse as the time draws nearer.  And I'm worrying about stupid stuff that I have no control over.  I'm afraid the new OS will think I'm a hypochondriac or not believe that the pain and instability is as bad as it is.  What if my MRI and operative reports don't get sent over to the office?

I worry about the time I'll need to be off work.  My hubby isn't working fulltime right now.  How will we make ends meet until I'm back on my feet?  I keep thinking that I should put this off until after the first of the year.  Everytime I think I'm nuts and it's not actually that bad, something happens.  My knee nearly dislocated last night just walking to bed without the brace on.

I worry that after dedicating the past 13 years of education to my profession, that I won't be able to do my job (not to mention paying back all those student loans).

I'm not sure if talking about all this has actually made me feel any better either.  I guess I just need to take a deep breath, try to concentrate on something else and quit whipping myself into a frenzy about something that hasn't happened yet.

Thanks for listening to my tirade,
Danielle
32 - R knee gone to hell
lat. meniscus 94
ACL, chondroplasty 98
Chondroplasty 99
Screw fell out into joint, med. meniscus, microfracture 99
MCL/med. capsule recon, med. meniscus 00
Chondroplasty 04
Chrondroplasty 1/05
OATS 4/05 for OCD lesion
AVN, MFC fracture 10/05

Offline Nettan

  • SuperKNEEgeek
  • *****
  • Posts: 13862
  • Liked: 7
  • Stronger then yesterday...thanks Sis...
Re: Stressing about my appointment
« Reply #1 on: October 18, 2004, 09:47:52 AM »
Hey Danielle !!

You have struggled for so long and come this far. Don't give it up now, you know if you put this in front of you, ok miracles can happen but though I believe you need taking care of the kneeissue right now.
I know that an appointment can be very stressfull and I also like you often worries when the time come for it. I'm sure you will be ok and that the papers will be there.
As you said take a deep breath and take it easy.
Sending you hugs and good luck !!

Nettan  ::)
Surgery 6 times left knee torn meniscus, RSDS,chondromalacia, nervdamage cause constant nervpain,chronic inflamm.
Spinaldamage wheeler 100%.
Right knee damaged aug-06, use brace surgery 4/9-07.LCL tear.

Offline Beth_T

  • SuperKNEEgeek
  • *****
  • Posts: 947
  • Liked: 0
  • Knees - who came up with the idea?
Re: Stressing about my appointment
« Reply #2 on: October 18, 2004, 08:46:36 PM »
Hi Danielle

Grab a note pad and write down all those questions and worries that are in your head.  (take the knee/health based q's to your OS appointment).

Your health is of the upmost important at the minute and Nettan is right, you can't give up now.

We're all here for you if you wanna vent  ;)

Hugs Beth
Had a not needed LR op due to a fall
Found out that nerve damage was causing the pain, acupuncture worked - all ok :)

Offline 6ocala

  • MICROgeek (<20 posts)
  • *
  • Posts: 16
  • Liked: 0
  • User's Text
Re: Stressing about my appointment
« Reply #3 on: October 18, 2004, 10:47:18 PM »
 ::)I agree with the others, do it now before 2005, that way , you already met you deductable for the year. I also am getting another opinion and may need another surgery after just going through one in late june, If I need to have this mess the OS did to me fixed, they need to do it before the new year, since i already paid numerious bills from xrays, MRI's (had 6 already) and surgery, Its so frustrating, but hang in there, my new friends on this site have been a big help for me, I hope all goes well for you.
Linda (6ocala)

Offline Beauzer

  • SuperKNEEgeek
  • *****
  • Posts: 855
  • Liked: 0
  • I want to become the person my dog thinks I am
Re: Stressing about my appointment
« Reply #4 on: October 19, 2004, 11:07:35 PM »
Well, I suppose I was stressing for a reason :P.

First off, the joint OS told me that from the x-rays and scope pictures that my arthritis isn't bad at all (barely early arthritis, she said)  Huh?  ???  I've been told by 2 OS (who have actually seen the inside of my knee) that there's no cartilage left on the medial femoral condyle at all.  She said there's no reason to do a UKR and I should just live with it (yeah, the pain at rest and not sleeping is a figment of my imagination, I guess).  She also said that I obviously didn't rehab very well because my quad is atrophied.  I tried to explain that it was fine (and so was I) until about 6 weeks ago when the pain and instability got really bad.  She did refer me to a sports specialist for evaluation of my MCL laxity.

Which brings me to the second part of this whole mess.  I won't mention any names as this individual is listed as one of the "great knee OS" on this very website, but I'm furious.  His receptionist asked me if I'd ever had surgery.  I told her I had 6 knee surgeries and very condescendingly she told me "oh right, well just send Dr. X all your operative reports and a letter saying why you think he should see you and if he agrees, he'll call and schedule a consultation"  I told her that I was referred by one of his own partners at the university and she said "too bad"  Oh, so I guess I have to interview for an appointment.

I can't wait to tell my OS about all this.  He is not known for his patience.  I guess I should tell my PT that obviously the 4 months of hard work didn't matter either.   >:( >:( >:(

Danielle
32 - R knee gone to hell
lat. meniscus 94
ACL, chondroplasty 98
Chondroplasty 99
Screw fell out into joint, med. meniscus, microfracture 99
MCL/med. capsule recon, med. meniscus 00
Chondroplasty 04
Chrondroplasty 1/05
OATS 4/05 for OCD lesion
AVN, MFC fracture 10/05

Offline Heather M.

  • SuperKNEEgeek
  • *****
  • Posts: 4007
  • Liked: 13
    • Check out my photography!
Re: Stressing about my appointment
« Reply #5 on: October 19, 2004, 11:39:12 PM »
Danielle,

I've had your appointment before.  My last one with a big name who does open realignments, TKR's, unispacer, etc.  He looked at the x-rays that took half an hour to get because my kneecap is sunk so low they kept trying to shoot from a different angle to show the diminished joint space...apparently, the space was so diminished that I have bone on bone contact.  I also have two grade II osteochondral lesions...it only goes to grade IV, folks.  That is about as bad as you can get in a 34 year old knee!!  Sure, it might not be too bad if I were 70 and sedentary, but I'm not.

And all this doctor kept saying was "I've seen much worse OA before.  This really isn't that bad in terms of cartilage damage."  I kept thinking, that's nice, but how does this help me?  The fact of the matter is that PAIN and level of disability is NOT DIRECTLY RELATED to the level of cartilage damage.  So maybe these doctors need to go back to med school for a refresher...?

Sorry you couldn't get more help.  I also had to 'interview' for my appointment with Dr. Steadman...only they were much nicer about it!!

Heather
Scope #1: LR, part. menisectomy w/cyst, chondroplasty
#2-#5: Lysis of adhesions/scar tissue, AIR, patellar tendon debridement, infections, MUA, insufflation
#6: IT band release / Z-Plasty, synovectomy, LOA/AIR, chondroplasty
2006 Arthrofibrosis, patella baja
http://www.flickr.com/photos/hmaxwell

Offline Janet

  • SuperKNEEgeek
  • *****
  • Posts: 3679
  • Liked: 2
Re: Stressing about my appointment
« Reply #6 on: October 21, 2004, 05:04:25 AM »
What a disappointment. And what a bunch of baloney! I once had a very smart doctor tell me that x-rays can't show pain. My feeling is that if the x-ray is horrible but there isn't pain, that's great. But if there is a lot of pain and the tests don't show why, they just haven't found the right test!

I also had to "interview" to see my current OS, even though I had a referral. It makes sense in a way. That way, you aren't wasting your time seeing someone who can't help you. Actually, the receptionist was really nice, took all kinds of info over the phone, told me exactly what they would need to see, explained the process, etc. Sorry you didn't have the same experience. But if it eventually gets you to see someone who can help, it will be worth it in the end! Hang in there!

Janet
Torn quad tendon repair & VMO advancement 4/99, MUA with LOA 10/99, Patella baja and arthrofibrosis, LR & medial release & LOA 5/01, LOA & chondroplasty 6/03,TKR on 11/06, MUA 12/06. From perfect knees to a TKR in 7 years, all from a fall on a wet floor...and early undiagnosed scar tissue.















support