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Author Topic: *UPDATE*  (Read 3031 times)

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Offline Belinda

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*UPDATE*
« on: October 07, 2004, 12:22:10 PM »
Guess what?

The severe pain Ive been in for the past month, all those dislocations, the lock ups, barely being able to walk.. IS ALL A FIGMENT OF MY IMAGINATION! ITS ALL IN MY HEAD!  :o  >:(  >:(

SERIOUSLY this cannot be true  ???.. They didnt do any test, didnt consider ligament,tissue,bone or cartlidge damage..They just decided its all in my head...  :'(  >:(

Id like some feed back on this..Had this happened to anyone else? I KNOW its not in my head. Its started from an injury. Maybe the injury was a figment of my imagination too??  ::)... Can anyone help me out here?
How do I prove to them it isnt in my head? They want me to see a social worker.

Offline wimple

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Re: *UPDATE*
« Reply #1 on: October 07, 2004, 01:17:07 PM »
Hi there,
My personal opinion is that there is no way that this can all be in your head, it looks like its time that your parents sought a second opinion from someone who specialises in knees ( I think you said before that you're 14?) My sister had similiar problems with her knees from about your age which ended in extensive surgery because the dislocations made the ligaments round the patella so loose that they didn't hold the knee cap in place anymore.  Who exactly has decided its all in your head? Is it possible for your parents to ask for tests to be done? Perhaps some of the younger members on the board might be able to help or parents who have kids with injuries, as to who would be able to assist you, as I'm not sure what you can request for yourself at your age. Sorry I can't provide anything concrete for you to do, but know that we're here to listen if nothing else! Hope you get some answers soon.

Offline Belinda

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Re: *UPDATE*
« Reply #2 on: October 07, 2004, 01:20:50 PM »
The only test they did was a blood test... The pediatrition decided it was all in my head. When we went to him last week he didnt even say what was wrong and told us to book into to this re-hab thingy. We went to GP today to see if we could have some test done for ligament damage ect...And thats when he told us what the specialist said, and we found out that the thing im booking into is actually a social worker!

Offline Holly

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Re: *UPDATE*
« Reply #3 on: October 07, 2004, 10:53:05 PM »
Dear Belinda:

As a 50-year-old mother of 3 grown children, I am appalled at your pediatrician's cavallier behavior in your case!  Can you get your parents to look at this website so they can see some of the postings from other people who were told "it's all in your head," only to find out years later that they had severe maltracking problems and ligament damage and required REPEATED SURGERIES to repair it?  A pediatrician is NOT capable of making a diagnosis of this type, and he should know enough to refer you to an orthopedist who specializes in knees - NOT TO A SOCIAL WORKER!!!  If the orthopedist specialist then doesn't find anything wrong AFTER DOING EXHAUSTIVE TESTING then that's a different thing.  But it's incredibly insulting and insensitive to assume that you're making this all up simply because HE lacks the expertise to recognize an orthopedic problem.  And it borders on negligence and malpractice to suggest that you ignore the medical implications of your knee problems.

Please ask your parents, who I hope understand and believe your pain, to log on with you to this website so that they can at least review some of the vast amounts of information available here.  It might at least give them some perspective on other possibilities before they accept this pediatrician's out-of-hand assumption that "it's all in your head."

Good luck, Belinda.

Holly
1998 run over by car;Rt knee lat menisc/med menisc tear, ACL/MCL tear, patella frx, tib frx, femur frx, 4 scopes repr menisc/repr lig/debride pat, open MCL rpr, dbl osteot3/04;MUA,lysis6/04;scope10/04

Offline Ron22

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Re: *UPDATE*
« Reply #4 on: October 07, 2004, 11:17:27 PM »
belinda..sounds like this doc got his diploma thru the mail..this does happen with knee pain..quite often if they cannot pinpoint a cause they simply fob it off to growing pains or referred pain syndrome..the puzzling thing here is what on earth is he basing his diagnosis on..at the very least a lat table exam measuring strenght/stabilty and range of motion shpuld be done...

i'd strongly urge an eval from a qualified ortho..

good luck

ronnie
Surgery #1 ACL/LR/Mdl Mesniscus
Surgery #2 Vascular Repair
Surgery#3 ACL/Ltl Mesniscus/MCL
Surgery#4 Vascular Repair
Surgery#5 Maquet/Bone Graft/Screw/LR/ACL
Arthritis/Knee/Hip
Necrosis/Hip
PFS/Chronomalacia
RSD
Vascular Issues
All on Right Leg

Offline dm

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Re: *UPDATE*
« Reply #5 on: October 08, 2004, 03:05:56 AM »
Perhaps you can get your parents to get you a disposable camera to carry with you all the time. when you have a dislocation, take pictures of the dislocation before you reduce it. Showing what it looks like when its gone funky and you can't bend the leg can help. Take video if someone has a camera that can, and you're home when it locks up, and to illustrate when you're having trouble walking. Having a parent in the picture or video also lends credence to the incidents.

It's hard to refute visible evidence. I'd also talk to your parents about changing doctors, if that one's such a jerk.
multiple arthroscopies 2/00,3/01,6/01,1/03, 12/07,10/10. chondromalacia, severe medial joint space narrowing following 3 partial menisectomies, chronic pain problems, kneecap problems, OCD lesion, failed mfx.

Offline Belinda

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Re: *UPDATE*
« Reply #6 on: October 08, 2004, 05:18:34 AM »
Quote
Perhaps you can get your parents to get you a disposable camera to carry with you all the time. when you have a dislocation, take pictures of the dislocation before you reduce it. Showing what it looks like when its gone funky and you can't bend the leg can help. Take video if someone has a camera that can, and you're home when it locks up, and to illustrate when you're having trouble walking.


Good Idea dm, thanks :). Well I have an interview with this doctor and social worker on Wednesday and the childrens hospital which I am very reluctant to go to.

When we went to the doctors yesterday to see if they could do more tests he said he got a letter from the specialist.. Thats when we found out what the specialist thought because he didnt tell us when we went he just said " Theres not a name for it" smiled sweetly and gave us this hospital number... We didnt even know what we were booking into! So we found out from the doctor. Who then said there was no test that they could do since it was all in my head.

I would love to go to an OS, but my parents are insisting me to do this stupid "pain management" thing at the hospital for two weeks, and I know it'll be a waste of time because it is from an injury and thats why we went to the doctors....*sigh*

Can anyone suggest parts of the site I should show my parents? (although they believe the doctor?)

Ok this is how the injury happened:

*** I was at pony club with my horse, doing a jumping round. She was quite new to jumping and unconfident and was abit of a spastic when it can to Oxes ( Two jumps squashed together) Anyway...She had refused the jump twice already, so the third time a gave her a bit of a smack with the crop, and she jumped too early.. Me knees were jarred pretty badly... As not being prepared for the take off I was not prepared for the landing, and since being threwn out of the saddle and not regained my balance I landed awkwardly, and heard a loud pop and felt something snap. ( Lef knee) Both knees  swelled up pretty quickly, but I kept riding. We went to the doctors, and I said how I had knee pain in the past ( and he put it down to that?? Even though I said it wasnt?) and he tested for RA, he then sent me to this specialist (who specialised in RA who then said it was all in my head) ***

ACL and Meniscus damage?
« Last Edit: October 08, 2004, 07:02:35 AM by Belinda »

Offline Teresa_S

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Re: *UPDATE*
« Reply #7 on: October 08, 2004, 05:45:02 AM »
Belinda, Three weeks ago, in the office of the OS, I told him, that there was something in my knee, that was getting stuck when it bent. HE LOOKED AT ME and said: THERE IS NOTHING IN YOUR KNEE>(I have been his patient for over 4 years)  He did order an xray, and came back into the room and showed me the BROKEN SCREW on the xray, that was and IS in my knee.I am also a nurse. SO show your parents what has happened to me, and look around on the site. There are several posts regarding physcians who did procedures on patients, and then ignored them when things go wrong. You aren't the first or won't be the last orthopedica  patient that somebody didn;t look for the cause,and just dismissed you with a diagnosis that focuses on mental rather than physical. MY OS told me I had RSD, which has been the common one for alot of patients who post here. BUT quickly backed off it when I asked about going to a neurologist to confirm it. Explain to your mom, what happened and what has subsequently developed, and ask why you can't see the OS to make sure. Teresa
On going instrumentation failure, chronic infection,
Arthroscopes Left 11 Right 2, MRSA, L TKR  ,  Revision, LR x5, Medial and lateral meniscus repair, Broken prosthesis
Osteochondral Fracture,untreated 6 mths. Revision new tkr 01-07 awaiting new hip and right knee
R TKR pending

Offline Janet

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Re: *UPDATE*
« Reply #8 on: October 08, 2004, 03:57:01 PM »
Belinda:

I have been this route, too. I had a major knee injury, and had three surgeries with two surgeons. When my OS (a knee specialist) couldn't figure out what else was wrong, she wanted me to see this other OS (an even more specialized knee surgeon). However, mine was a workers comp case, and they forced me to see a PM&R doctor (physical medicine and rehab). Now, he wasn't a knee surgeon, and had no special knowledge of knees. He was a nice guy, but had no idea what was going on.....so he said it was all in my head! I went through a six-week 'functional recovery' program that included a rehab psychologist. They all said I just had to accept that my knee was the way it was, that there really wasn't all that much wrong, that I was just used to favoring it but could use it if I wanted to. Anyway, jumping ahead....

Eventually, WC decided they wouldn't pay for any more treatments, so I was free to go out on my own. I finally saw the OS my other OS had recommended, and I had a huge mass of scar tissue in my knee! He removed it, and I have been improving. I KNEW something was wrong in my knee, but it wasn't something that easily shows on x-rays or MRIs, it took someone with special knowledge to diagnose what was wrong and fix it.

Don't give up. You definitely need to see a knee specialist. In the meantime, it won't hurt to see the social worker.

Janet
Torn quad tendon repair & VMO advancement 4/99, MUA with LOA 10/99, Patella baja and arthrofibrosis, LR & medial release & LOA 5/01, LOA & chondroplasty 6/03,TKR on 11/06, MUA 12/06. From perfect knees to a TKR in 7 years, all from a fall on a wet floor...and early undiagnosed scar tissue.

Offline RGrelsamer, MD

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Re: *UPDATE*
« Reply #9 on: October 08, 2004, 09:40:12 PM »
I would get another orthop evaluation.
Locking and giving way is not usually in someone's head. I would make sure it's not a hip, back, neurological condition if everything is coming back negative at the knee.
R Grelsamer MD
 www.KneeHipPain.com

Due to time and legal restrictions Dr. Grelsamer can respond just once to queries on the Bulletin Board. Thank you for your understanding.

Offline Holly

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Re: *UPDATE*
« Reply #10 on: October 09, 2004, 12:59:22 AM »
Dear Belinda:

Please note the response from Dr. Grelsamer.  This man is a HIGHLY RESPECTED ORTHOPEDIC SPECIALIST who has kindly consented to devote some of his time to this website.  If he felt your case was worthy of comment, and recommended that you get another orthopedic evaluation, I would hope that your parents would take this into consideration before agreeing with your  pediatrician's diagnosis that it's "all in your head."

Your parents can click onto his website (noted at the bottom of his post) to get further information about him so they'll know his credentials.  Hopefully, this will motivate them to pursue a second orthopedic evaluation - as recommended by the esteemed Dr. Grelsamer.  Believe me, Dr. Grelsamer reviews THOUSANDS of posts here on this site...and he felt it was important enough to respond to yours.  THAT MEANS SOMETHING.

Good luck, honey.  Hugs!

Holly
1998 run over by car;Rt knee lat menisc/med menisc tear, ACL/MCL tear, patella frx, tib frx, femur frx, 4 scopes repr menisc/repr lig/debride pat, open MCL rpr, dbl osteot3/04;MUA,lysis6/04;scope10/04

Offline Belinda

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Re: *UPDATE*
« Reply #11 on: October 09, 2004, 05:54:20 AM »
Thanks :) I myself tried to believe for the past couple of days its all in my head...I keep telling myself I'm making it up, but the pain is still there and so is everything else.. I messaged Dr. Grelsamer so hopefully that will go well.
Im planning on printing out the replys to this post and the "anyone with "its all in your head" replies to show that other people have been told this and hasnt been the case. ( Is this ok with everyone?)
My parents arent wanting to get a second opinion till after Wednesday to see if they think its all in my head...Have a feeling they will though. At the moment Im bandaging my right knee to try and stop the subluxations and giving way.. Should I be bandaging it in a certain way? At the moment Im just doing the figure of 8 over the patella.

Thanks for all your help everyone :)
« Last Edit: October 09, 2004, 05:56:00 AM by Belinda »

Offline heather k from wales

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Re: *UPDATE*
« Reply #12 on: October 09, 2004, 11:19:43 AM »
Belinda, I too had the 'its all in your head' stuff when my knee was locked with a bucket handle tear in the meniscus.  I was in excrutiating pain when my knee moved slightly and couldnt put any weight through my leg what so ever.  The 'hand' OS I was sent to was very rude and inpatient with me and I could hear her behind the curtain saying to her colleague 'there's nothing wrong, shes putting it on'  I was horrified as I knew what was wrong and.  Twice this happened to me, and both times I demanded to see an OS and both times I saw the knee OS I had urgent surgery!.
There are alot of very competent Dr's and OS's out there who are dedicated to helping the patients,  BUT sadly there are also quite a few very incompetent ones aswell.

Thinking of you, good luck,

Heather ;)
« Last Edit: October 09, 2004, 04:04:45 PM by heather_k »
91 Mangled Right knee on trials motorbike
94 Meniscus Repair
95 ACL/LCLrec,notchplasty,bone graft
01 90% Menisectomy
02 Scope
03 ACLrec,LAD
OA,osteophytes
04 Ch'plasty, ACLdeb,Suprapatella mbr ex, haematoma
04 Scope
March 06 Scaphoid op/bone graft
Nov 07 Thyroid Cancer ops x 2, radiation

Offline faith

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Re: *UPDATE*
« Reply #13 on: October 09, 2004, 01:10:38 PM »
Hi Belinda

After reading your posting I felt compelled to reply because I have been through EXACTLY the same.  I have had recurrent knee problems since I was 8 and because (coincidentally) they started around the same time that my parents divorced I was told that the pains were all in my head and a cry for attention!

I went on like this for 10 years before my Mum finally got a second opinion from a surgeon who immediately pinpointed the cause of the problem (my leg is twisted) and carried out the necessary surgery.

All I can say is - if you don't agree with the original doctor's diagnosis, there's nothing to stop you seeking a second opinion.

I wish you all the best in getting to the cause of the problem.  Sorting out knee problems can be a long process - you need the support of a consultant who knows what he's talking about!

love and hugs

Faith x
R knee arthroscopy 1991; tibial osteotomy 1992; metalwork removed 1993; arthroscopy and lateral release 2004; ossicle removal 2007; arthroscopic debridement 2010; PFJR 2012; scar tissue removal & debridement 2013

Offline Lori-Florida

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Re: *UPDATE*
« Reply #14 on: October 12, 2004, 11:59:33 PM »
Belinda, So have you been to any doctor that specializes in knees. The body and bones are a complex topic and I would suggest you make sure you go to an an Orthopedic doctor that specializes in the knees not just general Ortho. I wish you the best your so young to be having trouble and not get it resolved. Lori
Jan. 2003 Total Knee Replacement
May 2003 Knee infected and removed
May2003-April2004 Had no knee could not walk
April 2004 Revision and MRSA 5 more surgerys
July2004 still treating MRSA cant walk