The WAITING ROOM => GENERAL KNEE QUESTIONS and comments (good for new threads) => Topic started by: PepsiIsLife on August 28, 2018, 08:25:57 AM

Title: Multiple Knee Issues
Post by: PepsiIsLife on August 28, 2018, 08:25:57 AM
Hello. I'm totally new here, and really need some perspective and advice. I've experienced a popliteal cyst, on and off for about 15 years. When it was first diagnosed I opted to have it aspirated, and it did not come back until after about 5 years. About 3 months ago I was diagnosed with Osteochondritis Dissecans in the same knee. The MRI showed multiple lesions and loose bodies in the joint, and my doctor has scheduled me for surgery. It is by far the most miserable thing I've experienced. My knee catches and locks when I walk, I cannot fully extend it anymore, and nothing helps with the pain. The back and front of my knee are now painful to the touch and the swelling seems to never go down. However, ice causes the pain to get worse after about 5 minutes, and heat makes it feel even worse than that. Interestingly enough, I never had this problem as a child- like most people are when diagnosed, and I never suffered any severe injury. Shortly after the MRI I also began experiencing pain below my knee cap on my tibia, and now there is quite a large deformity which is also painful to the touch. (The doctor cleared me for Osgood-Schlatter disease, and said it is most likely an osteophyte.) I guess to sum it all up my concern is that to correct the three issues there would have to be at least two operations?? Or would they want to replace the joint? I am not really liking the idea of a total joint replacement, as I have Type 1 Diabetes and do not heal as well as others. All I know for sure is that the pain never goes away, nothing whatsoever helps, and I'm at my wits end
Title: Re: Multiple Knee Issues
Post by: The KNEEguru on September 05, 2018, 04:45:14 PM
Your knee is clearly needing help. Firstly regarding the popliteal cyst (also called Baker's cyst) - that  is usually related to increased pressure of joint fluid in the knee, such as you might get when the knee is disturbed with arthritis or similar. The OCD would be sufficient to lead to increased joint fluid pressure. The OCD would be the cause of the loose bodies, catching etc, so those several problems are likely to be related. I am not sure about the tibia problem.

If you are diabetic, a joint replacement is not a great idea, but you might be able to have a cartilage repair technique such as mosaicplasty.

This is a VERY incomplete list, but may lead you to finding a cartilage repair specialist -
Title: Re: Multiple Knee Issues
Post by: PepsiIsLife on October 01, 2018, 07:09:16 AM
Thank you for the feedback. Now that I've spoken (in depth) with the surgeon and he explained my situation, I have a better understanding of my problems and- just as you said- it tunes out all of them are related. He said that it is osteochondritis dissecans of the patella, which is somewhat rare and that it is in Stage IV with loose bodies. What it feels like is three or four different issues, or three or four different sites of different kinds of pain. But he explained to me, while pointing it all out on the films, that they all stem from the issue with my patella. Needless to say, I'm not thrilled but it certainly is better to know the details. He has prescribed PT for several weeks and then scheduled surgery for November. After reading about the different types of procedures, though, for OCD of the patella, I wold like to know which would be considered best for my particular case. (I realize that many docs may have many different answers to this same question!) I've read that arthoscopic treatment has not been as successful as arthrotomy, as the lesion is underneath the patella which is difficult to reach, but I certainly do not like the idea of arthotomy either.  Really, I'm just a big ball of frustration at this point. :(