KNEEtalk

DIARIES => Post op diaries (>300 posts) => Topic started by: MDJ on September 05, 2012, 10:34:47 PM

Title: Amputation after MRSA
Post by: MDJ on September 05, 2012, 10:34:47 PM
I suffered an open patellabreak a while ago. After my reconstruction of the patella I got diagnosed with severe MRSA. That lead to clean out surgery where patella had to be taken out. After weeks of cleaning outs and lots of antibiotics I looked forward to a reconstruction of the knee without patella with help of muscles and ligaments from me other knee. Once again MRSA took over. After 2 clean outs I faced 2 choices. Either continue clean out and severe loss o function in my knee or amputation above my knee.
I choose amputation above my knee. I had the surgery today. Surgery went well and I had the cut 2 inches over the end of femur.
I'm still having epidural so the pain is 0. I lost a lot of blood so they have given me some.
I feel pretty ok for the moment. My emotions are like a roller coaster so one second I cry and the other one I laugh.
I am 28 and don't have any real family to rely on. My mom is severe sick and don't recognize me. I have great friends surrounding me and a new boyfriend that is very understanding.
My goal is to continue with sports as much as I can and go for Paralympics in Brazil !
I know I have a long way to go. But I want to share my trip with you cause I know we aren't many out there. If you have any questions feel free ask me.
I work as DJ and musicproducer so I can still work from the hospital bed. I have my music equipment here.
Write more tomorrow when epidural will be taken out./Malin
Title: Re: Amputation after MRSA
Post by: MDJ on September 06, 2012, 01:39:19 AM
Awake in middle of night as so many other times during my journey. I'm using my time with contacts with other countries and producing music. Nights are the best in thinking. ;D
Title: Re: Amputation after MRSA
Post by: MyKnee2010 on September 06, 2012, 01:46:42 AM
Hi,

That is such a difficult choice to have to make. It must have taken an amazing amount of courage & determination to get better!! I hope your recuperation goes well & you are soon up & about starting down the road towards the Paralympics!

Please keep us posted on your progress!
Title: Re: Amputation after MRSA
Post by: MDJ on September 06, 2012, 01:56:33 AM
Hi !
Thanks for your kind words. In middle of night here almost 3AM. Yes, its was not easy and is an emotional rollercoaster still. But am convinced that I did right as I will have more opportunities in getting around propertly and do sports. I'm a sports girl playing differents ballsports and love to be out running.
I made my decision based on that.
I slipped and fell in a pool area when I was away working abroad. That was how my journey started.
Hope you are doing as well as you can yourself.
/Malin
Title: Re: Amputation after MRSA
Post by: MyKnee2010 on September 06, 2012, 02:17:05 AM
Hi,

Just curious - where are you located? - it's 9:15 pm in northeastern US where I am located.
Title: Re: Amputation after MRSA
Post by: MDJ on September 06, 2012, 02:23:26 AM
Sweden, but I had my injury over in US in Los Angeles.
Title: Re: Amputation after MRSA
Post by: MDJ on September 06, 2012, 08:56:43 AM
Day Two:
So had my surgery yesterday. Was supposed to get off epidural today, but as I have had a rough night and not been stabilized enough I am going to keep it until tomorrow. Hard to sleep and feeling nauseous. We are going to work some on my left leg today as I have had surgery on that one too. They are going to put me in CPM to get ROM back. I will also have to work on my muscles there as I have been bound to bed for long now.
On Monday I'm going to another hospital, but I will not go close to my home as I am going to stay with a friend during my rehab in Stockholm.
My emotions has been going up and down and I had a scarey dream about having the penalty in chopping my leg off cause of that I had been stealing. So real it felt. But I know that the meds are making a mess of my head./Malin
Title: Re: Amputation after MRSA
Post by: KartBoy on September 06, 2012, 10:45:53 AM
Hi Malin

You might not have close family but hopefully through this site you will realise just how much support you have. A very couragous decision which seems to me to also to have been the right one.

Work hard but also give yourself time and space to heal physically, psychologically and mentally.

Andrew
Title: Re: Amputation after MRSA
Post by: MDJ on September 06, 2012, 11:21:48 AM
Thanks Andrew. Hope I can contribute myself with something here. A friend of mine showed me this site. She is one of the longest who has been here on the site./Malin
Title: Re: Amputation after MRSA
Post by: NickiAnn on September 06, 2012, 01:23:48 PM
What a difficult decision you faced...  It sounds like you know that you did the right thing for your future health and well being.  It's fantastic that you have a career in the creative industry because, like you said, you can keep active with your music throughout your recovery.  You are also totally correct in thinking that the amputation doesn't need to stop your athletic pursuits.  I used to swim with a lovely young woman who had lost her leg in an auto accident.  She was a faster swimmer than me!

I just wanted to let you know that I read your story and my heart goes out to you.  Best wishes on your recovery.
Title: Re: Amputation after MRSA
Post by: Lottiefox on September 06, 2012, 01:34:46 PM
Malin

I am SO impressed with your determination and bravery. What a situation to find yourself in having to make such a brave choice. I am going to note down your name and expect to see you in Rio in 2016! Hope your recovery is as smooth as it can be, and as others have said this site is great for support and encouragement.

Take care and a bug hug from England

xx
Title: Re: Amputation after MRSA
Post by: Overdidit on September 06, 2012, 05:15:59 PM
I do hope you keep your positive spirit. . .YOU CAN DO IT. . . . . . .You can't pick your family but you CAN pick your friends. . . .They will help you.  This website will help you. . . .KEEP GOING . . .You are young and strong and you WILL DO SPORTS AGAIN . .. .
Title: Re: Amputation after MRSA
Post by: MDJ on September 06, 2012, 10:22:46 PM
Thanks to both of you ! ;D

Yes, I will do this and I have support also. My boyfriend is one of them. He is determined to go with me to Brazil in 4 years. :)

I met a guy today with same kind of amputation and was amazed that you couldn't almost tell that he missed one leg. I know it will be tough and I know that sometimes I will not be able wear my prothetis and be in need for crutches. He also said to me, get yourself a great wheelchair so you can rest yourself sometimes so I have already been looking into that. I have gotten purple crutches from one of my best friends already!
/Malin
Title: Re: Amputation after MRSA
Post by: Lottiefox on September 06, 2012, 10:41:57 PM
My Uncle had his leg amputated just above the knee at the age of 28 due to cancer (this was back in the 1940s). He had a young family and a career at a huge engineering company in the UK. He never ever let it stop him. He had a great career, two fabulous daughters and also took up shooting and was regional champ of his local club many times. He owned several HUGE dogs and was usually found walking them vast distances across the parks of the Midlands. He passed away two years ago but his leg never ever stopped him in his life. He also had a wonderful marriage of 62 years!  :D

Malin you are inspiring. I am guessing your friend is perhaps Nettan?  :)  You mentioned the RSD thing. I too have RSD in my foot. Life deals you some bum choices, but you make your own way with what you've got. Stay in touch and keep us updated. Hope things are settling for you and you're getting some sleep. Can I ask how much pain you're in? What protocol do they follow - are you able to be up at all and moving about or is it rest for a while? I just don't know and am genuinely interested. How long will you be in hospital?

Take care

xx
Title: Re: Amputation after MRSA
Post by: MDJ on September 06, 2012, 11:03:46 PM
Thanks for sharing !
Yes, Nettan is my friend. She is really inspiring. :)

I had the surgery Wednesday morning. So I'm still having epidural and this will stay with me until Tuesday. I leave for another city on Monday and they want me to rest as I have been really sick. So I well mostly be bedbound until then. I have a cartrip for 5 hours on Monday with ambulance.
I don't know how long hospital stay as I need to recover from all the rest also.
/Malin
Title: Re: Amputation after MRSA
Post by: Snowy on September 07, 2012, 05:16:17 AM
I hope you know that you are also very inspiring. For most of us, the choice you faced is our worst fear realized...and you not only made the decision, but are facing the future with optimism and ambitious but realistic goals. I'm looking forward to cheering you on all the way to Brazil. :)

Have you read the book A Test of Will, by Warren MacDonald? It's one of the most inspiring things I've ever read. Warren lost both his legs not far below the waist following a hiking accident, but he refused to let that stop him. He lives in the same city that I do, and swims in the local outdoor pool - and I can't even come close to keeping up with him.

I wish you all the best with the hospital moves, adjusting to your new situation, and whatever the future brings. You seem so positive, and nothing is more important than that - whatever you believe is possible will be possible. Take care, and know that we'll be thinking of you.

Title: Re: Amputation after MRSA
Post by: MDJ on September 07, 2012, 08:57:51 AM
Hi there!

I'm friend of Malin and she wanted me to update for her. She had an allergic reaction this night and her heart did stop for a while. She is doing ok and she is in her normal state. But they will do check ups on her today including ct for her brain and ultrasound on her heart.
This is a huge setback but we are optimistic and hope she didn't suffer any damages.
She will probably be back in a couple of days or so. I will keep you updated on her condition./Micciz
Title: Re: Amputation after MRSA
Post by: Xeplasma on September 07, 2012, 03:09:54 PM
Hang in there Malin. I pray you get over this set back very quickly. (thanks for update M). I'm sure she is in the thoughts and prayers of many on this board.

Title: Re: Amputation after MRSA
Post by: Lottiefox on September 07, 2012, 04:36:35 PM
malin

Sending much positive thought and vibes your way - sorry to read of your setback...Micciz thank you for updating........keep us posted

Lottie xx
Title: Re: Amputation after MRSA
Post by: MDJ on September 07, 2012, 06:24:50 PM
Hello again !
Update on Malin. CT scan of brain and ultrasound of heart is ok. She is having some problems with like reading, texting on cellphone and some other things that is logical for us. The docs say that is probably the brain which is set from start again and some skills will need more time.
She is in fairly good mood but a bit afraid that something new will be up. It's a trustthing I believe.
Thanks for positive thoughts and vibes. I read for her what you did write. She needs all support that she can get.
/Micciz
Title: Re: Amputation after MRSA
Post by: Lottiefox on September 07, 2012, 06:59:29 PM
Micciz

Thanks for the update - she must be feeling very scared. She is a fighter though and she will get through this. It sounds like she has a wonderful support in you too. Looking forward to when she feels up to typing us her updates again. In the meantime send her more hugs,

xx
Title: Re: Amputation after MRSA
Post by: Snowy on September 07, 2012, 08:36:50 PM
Poor Malin - that sounds very scary. Thank you so much for keeping us updated, and please let her know that we're thinking of her and wishing her strength.
Title: Re: Amputation after MRSA
Post by: Rknees4 on September 07, 2012, 08:58:47 PM
Malin
You hang in !!!!! :) we are all rooting for you and your recovery.
A big ((((hug)))) from Canada. :D :-*
Take Care,
Rk4
Title: Re: Amputation after MRSA
Post by: seerobinbike on September 07, 2012, 09:17:02 PM
Positive and healing thoughts coming your way from Massachusetts as well.  You hang in there Malin. 

Micciz...Thanks for the update.  As Snowy said, please let her know that we are rooting for her.

Hugs to both of you.

Robin  xxx
Title: Re: Amputation after MRSA
Post by: MyKnee2010 on September 07, 2012, 09:21:56 PM
Please tell Malin we are keeping her in our thoughts too! The first thing I did today when I got home was to check on her update.

We are all rooting for her here in northeastern US!!

Thank you Micciz for the updates!
Title: Re: Amputation after MRSA
Post by: Lottiefox on September 07, 2012, 09:53:14 PM
malin, my hubby isn't a "knee geek" but I just told him about you. He stopped surfing the boy's web and just said "wow. what a girl". Then went v quiet and said wow again. We're all rooting for you.  :D
Title: Re: Amputation after MRSA
Post by: MDJ on September 07, 2012, 10:20:57 PM
Thanks for all kind words. Malin is asleep now after lots of anxiety. She has lots of problems in trusting people and is afraid of never wake up again.
I will stick by her side. She has no family and I am her nearest. Somehow she needs to get over this and start fighting again.
I will tell her when she wake up about all kind words from you.
She was supposed to change hospital and city on Monday to come closer home, but they might have to do more testing on her. Though I will believe she will feel more safe to get out from this hospital and get to a city only 2 hours from home. So I will do what's in my power and see if she can be tranfered on Monday. The reason she is here is only that they have the best kneedoctors and now when her knee couldn't be saved, the other hospital are as competent as this one and her rehab will take place in that city too, cause she will live in my home during rehab.
So please keep her in your thoughts. She needs that.

/Micciz
Title: Re: Amputation after MRSA
Post by: silverghost on September 07, 2012, 10:52:50 PM
Hi /Micciz


I think all of the responses have summed up everyone's thoughts for Malin...Our hearts and minds are feeling for her right now and our prayers are with her.  I don't think I have heard such a brave decision in a long time and whilst it brings a tear to my eye hearing of her story, she really is an inspiration to everyone on this site even though I know she has had a setback.  This really has made me reassess my own injuries and surgeries and her comments will push many people with their rehab and recovery.

Thank you so much for keeping us up to date I know this is a difficult time for you also seeing her go through this.

Please take care.

SG
Title: Re: Amputation after MRSA
Post by: Snowy on September 07, 2012, 11:20:12 PM
Hello Micciz,

I would also like to add that I'm very glad that Malin has such a caring and supportive friend by her side to help her through this. No-one should have to go through something so huge and life-changing alone. I hope that knowing she has your support will help her get through this setback, and through her rehab and recovery.

Please tell her I am full of admiration for her courage and spirit.

K

Title: Re: Amputation after MRSA
Post by: MDJ on September 08, 2012, 07:22:06 AM
Today Malin woke up with a very bad temper and throwed me out of the room. She had tried to make music(she's a music producer) and her head is not working as it should after the heart stopped. But I will go buy her the favoritbreakfast of hers (even if she get breakfast in hospital) and get back to her.
She has been awake most of the night on her computer and on phone. I took the phone with me now so she can rest a bit hopefully.
But being in this mood is optimistic, make her fighting more. I'll update you later today./micciz
Title: Re: Amputation after MRSA
Post by: Snowy on September 09, 2012, 06:24:52 PM
Hang in there - I'm sure this period while she tries to recover from her heart stopping is very hard for both of you. Hopefully the confusion will ease a bit in the coming days. How is she doing today?
Title: Re: Amputation after MRSA
Post by: MDJ on September 09, 2012, 06:36:58 PM
It's me Malin back. I was out yesterday in a wheelchair I could lay in, in the sun some hours.
Today I have been seen the end of my amputation, scarey but ok. Also taken a shower and cut my hair.
Micciz bought china food with her today. Could eat and keep some!
Having some fever today but no infection signs!
Tomorrow they will check me some more and if I'm lucky I leave here for Stockholm on Tuesday.
I feel lucky to be alive and have such good friend in Micciz and a lovely boyfriend( we live in different cities).
I'm still on the epidural and will keep it until I am over in Stockholm, to keep pain controlled on the 5 hours ride.
Thanks everyone for the support, means the world to me!
/ all best Malin :)
Title: Re: Amputation after MRSA
Post by: silverghost on September 09, 2012, 09:17:21 PM
Hi Malin

Glad to hear you are up and about i'm sure its been a really worrying time for you...

Your friend was very good to stay by your side and communicate with everyone whilst you were suffering I'm glad you have someone close i'm sure it means a lot to you.

The next few months will be difficult for you and I myself cannot even imagine going through what you have. I wish you all the luck in the world and hope you keep in touch..

Take care

SG
Title: Re: Amputation after MRSA
Post by: MDJ on September 10, 2012, 07:29:38 AM
Monday morning and testing day!
Laying here drinking coffee and is nervous. If I can come to Stockholm that will mean that I'm closer to my mom and my friends.
So cross fingers for me. The night has been good and I have for first since surgery been sleeping really well.
I still have some fever, but they think it's with the trauma that I have been through.
I had a guy with same amputation like me visiting the other day, so am excited to get up and get my new leg and walk and also run.
I know it will take some time still...
Write later today an update about my tests./Malin
Title: Re: Amputation after MRSA
Post by: leitoeva on September 10, 2012, 11:25:02 AM
ive read everything, and have to say that youre very very brave malin. i am indeed inspired by you. lots of love from singapore.
Title: Re: Amputation after MRSA
Post by: veganbee on September 10, 2012, 12:10:49 PM
Hi Malin

What a very brave and courageous person you are! I've been following your posts and wanted to say how much I admire your strength in this difficult time - you're an inspiration.

Also sending lots of love and best wishes from London, hope to hear you get the news you're waiting for soon! It will make a difference to be that much closer to home I'm sure.

All the best

Bee
Title: Re: Amputation after MRSA
Post by: MyKnee2010 on September 10, 2012, 12:16:46 PM
Hi Malin,

I'm glad to hear you're on the road to recovery! Hopefully, the bad days are behind you & you can soon work on being up & getting stronger!

Best wishes going out to you!
Title: Re: Amputation after MRSA
Post by: MDJ on September 10, 2012, 01:15:38 PM
Am on my way to Stockholm. On my Iphone now. Bumpy but will be ok once there.All went quick.Thanks all. I just have to get through this cause I love to live/Malin
Title: Re: Amputation after MRSA
Post by: silverghost on September 10, 2012, 01:21:41 PM
Gosh Malin that was quick! have a safe journey!

I can tell your young! being able to use things like iphones... i've only just worked out the microwave!

good luck

SG
Title: Re: Amputation after MRSA
Post by: MDJ on September 10, 2012, 05:20:39 PM
IN STOCKHOLM !!!!!!! ;D ;D :) :)
Title: Re: Amputation after MRSA
Post by: veganbee on September 10, 2012, 05:25:15 PM
Hooray! Congratulations Malin  ;D
Title: Re: Amputation after MRSA
Post by: leitoeva on September 10, 2012, 06:57:07 PM
How are u feeling now Malin?
Title: Re: Amputation after MRSA
Post by: Snowy on September 10, 2012, 08:15:28 PM
Yay Malin! So glad you were ready to make the move and that you got through the journey successfully. Hope it wasn't too exhausting or painful, and that you settle into the new hospital well.
Title: Re: Amputation after MRSA
Post by: Lottiefox on September 10, 2012, 09:15:37 PM
Malin you are simply inspiring and fabulous and I am SO happy to read you've made the journey safely. Keep us posted when you can, but I bet you're glad that trip is behind is you.  ;D
Title: Re: Amputation after MRSA
Post by: MDJ on September 11, 2012, 12:17:15 AM
The trip took 5 hours and 20 minutes. As it was with ambulance it was a bit bumpy but they made it as comfortable as they could.
My friend Micciz went behind in her car so we talked a lot on phone. I also got some candy and soda after my wishes on the way.
I have been sleeping during the eve a lot so now I can't sleep.  :)

The upcoming plan this week is to increase the nerv pain meds more and then wean off the epidural. Also some other steps is to start exercise my left leg and arms to get stronger and first get up in wheelchair then on crutches.
As I had some surgery on my left leg also and have been bedridden for almost 2 months I have lost both weight and muscles.
So I need tó get up and be able fix myself.
Also my immunesystem and my MRSA must be checked and under control.
So it will be some more weeks in hospital, then to rehab place and then home to my friend.
I also need to move again as my apartment is not fit enough for me.
The most exciting is during all this I have met a person that means a lot to me. Now is time for us soon to meet in real life for the first time. He really impress me in his way to care and be there for me. Ok more tomorrow..am tired now./Mailin
Title: Re: Amputation after MRSA
Post by: MDJ on September 11, 2012, 04:07:30 PM
A bit down today after trying out wheelchairs and realize it's for me. I went from walking and running in middle of Summer on my working trip to LA and now I have lost one leg and need to use wheelchair partly. A lot to take in for the moment.
The nights are long. I spend them making music and in contact with my friends in other countries.
We have started weaning off the epidural. Will be nice to be able get up and use the bathroom. So far pain is controlled. Maybe I'm one of the lucky ones that won't feel that much pain after amputation. Something must be and go my way. Let's hope for that.
All I can do is wait and see and time will tell.
/Malin
Title: Re: Amputation after MRSA
Post by: Snowy on September 11, 2012, 05:02:30 PM
I'm sorry that today is hard. I'm sure there will be a lot of ups and downs as you adjust to this - it's a huge change in your life. Hopefully the wheelchair won't be for long; you will walk and run again.

Take good care of yourself. It sounds like you're doing all the right things, and making good progress. It's a hard, hard thing that you're going through, but you have great spirit and very good friends around you. I hope that tomorrow will be a better day.
Title: Re: Amputation after MRSA
Post by: Lottiefox on September 11, 2012, 10:14:52 PM
I think feeling down is pretty much normal! What a huge life change you're having to deal with. None of us can even start to actually understand how you're feeling but we do know how hard you're fighting. You won't be in a wheelchair for longer than is necessary. You'll run and be active again and inspire other people going through the same thing. I am very glad the pain seems to be controlled so far, all fingers crossed for that as you deserve a break in all of this.

What kind of music do you make? Would we know any of it? Music is a big healer and it is good you're able to keep that going even in these early days.

Big hugs, and hope the new hospital is treating you well!

Lottie x
Title: Re: Amputation after MRSA
Post by: MDJ on September 11, 2012, 11:31:49 PM
Am awake after some tough hours when pain went into roof. Felt like needles that someone twisted around. The anasthesia doc came as quick as he could, so now I have a numbed leg( the leg I don't have). Feel so much better, but also pretty much awake as they check on me all the time.
They believe it will get much better with time as you can feel a lot of other pains also and seems like mine is not firing that much...hmm wonder how the one which is actually firing is painwise...well don't want to know.

The music I make is clubmusic mostly electro house but also techno and some hardstyle. Yes and you have probably heard some of it on the lists already. I work under pseudo as I want a normal life also. In general write and produce for others. I can't sing!! But make music I can.
Lottie, I came to this hospital after my injury in US. I had surgery first in US, then all went to hell.
I know insurances will more then cover my injury thankfully!

My head is tired now.....
Title: Re: Amputation after MRSA
Post by: MDJ on September 12, 2012, 11:02:37 PM
I met a painteam today and also phys for my left leg. Been a long but good day. They are going to do serie of blocks and see if my pain improve.
My mom and aunt came also and visit. Very tired now but will try to update more tomorrow.
Title: Re: Amputation after MRSA
Post by: MDJ on September 13, 2012, 10:54:14 PM
Today had mom and aunt here for lunch. The rest of the day has been working on certain movements. I stood shortly on my left leg today( you need to be aware that I have been bedridden 2 months.). That was amazing to do. Have also had phys on my left leg, tried different movements also from bed to wheelchair, from wheelchair to toilet and so on. Still need assistance with my right stump, but will improve when I get more muscles and control over my body and over my pain. Have also had some friends here tonight that I hadn't seen since my before my accident. That was touching and hard. We cried together. They support me 100% and that feels good. So I was up in my wheelchair a bit too.
Pain is high again tonight and they have hooked up the painpump again. One step at a time, one hour at a time.../Malin
Title: Re: Amputation after MRSA
Post by: veganbee on September 14, 2012, 09:38:26 AM
I'm sure it was good to see your family and friends after quite a while without them. It must have been hard though. Sending lots of love, you are making amazing progress already.

Bee
Title: Re: Amputation after MRSA
Post by: MDJ on September 14, 2012, 07:32:52 PM
Thank you Bee!
I had some phys this morning, but due to pain we took it easy and focused more on relaxing techniques and worked some on my left leg.
Afterwards I got massage on some of my sore muscles. That felt really good.
In the afternoon I had a block once again and then went to the dermatologhist, I think that's the right name of docs who works with the skin.
She showed me how to take care of the stump and also looked how it was. Looks pretty ok but is very swollen. It was good to have the block before or they have had to put my under, cause though I had the block I felt a lot pain and had to have more painkillers after.
Now my friend is here, we have just had some pizza. We are going to finish a song that is almost ready then we're going to play TV games SSX Tricky!
Good to relax some this Friday. /Malin
Title: Re: Amputation after MRSA
Post by: MDJ on September 15, 2012, 07:32:17 PM
Am now 10 days out of my surgery that changed my life forever. I have my ups and downs every day. I'm thankful though to be alive.
Today has been one of the rougher days. I started the morning with throwing up and feeling real sick.
They think here that it's my body that is complaining about all meds and all trauma I have been through lately.
Since afternoon they have hooked up the painpump again. Pain is once again attacking me in like cycles, it comes and goes.
Not a good day... :(
Title: Re: Amputation after MRSA
Post by: Rknees4 on September 15, 2012, 10:09:44 PM
Malin,
Sounds like they are taking very good care of you and have a good idea as to the problem,,, hope the pain pump offers you better relief.
Hang in there. :)
Big ((((hug)))) from Canada. :-*
Rk4
Title: Re: Amputation after MRSA
Post by: MDJ on September 17, 2012, 01:40:15 PM
Pain keeps giving nothing but grief. So with no discussion they got me back on the epidural.
Today there's meetings about what to do with me and why my pain is so high.
I'm nervous and frightened.../Malin
Title: Re: Amputation after MRSA
Post by: Lottiefox on September 17, 2012, 02:11:16 PM
Oh Malin I am sorry that you're not getting any respite from the pain. It must feel horribly scary but it sounds like they are doing everything they can to make you comfortable and find out what is happening. You really deserve a break from all of this and to start getting your rehab back on track as I can imagine you;re frustrated as much as scared. Please let us know how the meetings go and how you are doing. We're all rooting for you, you're one brave brave lady.

Lottie xx
Title: Re: Amputation after MRSA
Post by: MDJ on September 17, 2012, 10:03:00 PM
Tomorrow they will have a closer look in why I'm in so much pain. An amputation of course gives you pain, but I shouldn't be this bad off.
So the epidural will stay in but they will stop the pump. Not happy to feel the pain, but they want to rule out some things.
The pump will come with me where I'm going and will also have anasthesia ready if I shut down totally.
I'm on some painmeds for nervpain and those I will keep of course.
The stump is not infected but very swollen and odd in weird colours and they say it shouldn't look like this.
So I will enjoy tonight and relax with music..I always feel good by music. Not only cause I make music, but also what else can make one so relaxed?

Thanks Lottie for the sweet words!

/Malin
Title: Re: Amputation after MRSA
Post by: Lottiefox on September 18, 2012, 08:47:35 AM
Good luck today Malin, I hope they can give you some answers. Music always cheers me too, I often think a world without music would be like someone took all the colour away.....it is so important. Makes you smile, makes you cry....do you listen to the same sort of music you make or have you got really broad tastes?

Will be wishing you all the best for today,

Lottie xx
Title: Re: Amputation after MRSA
Post by: veganbee on September 18, 2012, 08:54:00 AM
Best of luck Malin, I hope you get some answers today! It's brilliant you can use music to relax, in such a stressful situation it must be a relief to have something you can escape with.

All the best

Bee
Title: Re: Amputation after MRSA
Post by: MDJ on September 18, 2012, 06:53:41 PM
Thanks Lottie and Bee !

I will get another cocktail in the epidural that gives best painrelief but also makes me able move.
They will also add up the nervpain meds I'm already up.
Today stitches came out of the stump also..felt like a relief.
The testings before today was awful. I slept the whole afternoon.
Everything will start tomorrow or the day after. They want me to feel rested also before we start the process.
I hope I will get through this and pain will ease up.
The last resort they talk about is to operate in either morphine pump or electric stimulation in my spinal cord.
But that is hopefull not needed as it's not good for me to have something like that cause of the MRSA that I had.
I will keep you posted...need to rest now...Malin
Title: Re: Amputation after MRSA
Post by: Rknees4 on September 19, 2012, 04:11:22 AM
Malin,
Glad to hear the stitches have been removed. Sorry the testing was difficult. :(
Hang in there it is still early in the healing of your stump, and the work they did on the other leg.
Take Care and healing vibes coming your way. :D
Rk4
Title: Re: Amputation after MRSA
Post by: Lottiefox on September 19, 2012, 08:56:29 AM
Malin, I can imagine you're glad to have got the testing out of the way. sounds like your poor nerves are all mixed up with the events of the past few weeks. I hope they start to settle down and you can avoid needing an implant. Good news on the stitches coming out, must make things feel a bit easier and hopefully the leg will like not having them in as well and start to settle down. You're such a brave lady dealing with all of this; I know you might say that you have no choice but to deal with it but you're still showing an amazing determination and spirit. That will see you through! Hope the music is still lifting you and that you got some sleep and some rest too. Keep us posted and take care

Lottie xx
Title: Re: Amputation after MRSA
Post by: determined on September 19, 2012, 09:26:25 AM
Dear Malin,

what a brave young woman you are! You have me in tears here reading your story. You have such an incredibly strong spirit and character, I know you will deal with this. My son has paralysis on the front of his leg and foot drop due to a knee injury, and though it has been difficult he is dealing with it as best he can. This site has helped both of us, and I know it will help you hugely too. When a serious injury like yours happens, its hard to find people even among friends and family who can relate to your situation and how it affects you. Everyone here has a common ground, and its great to have that support. I wish you all the luck in the world from here on in, you really deserve it,

brave brave  girl

Determined
Title: Re: Amputation after MRSA
Post by: MDJ on September 20, 2012, 08:47:19 AM
Thank you Rk4, Lottie and Determined!

To get such support makes me wanna fight even more.
Yes, the testing was hard, but had to be done. The cocktail mix I get know works so much better.

I got a mentor yesterday, a guy that had same amputation after motorbike accident some years ago. We are the same age and he is in sports just like me. Now he is a runner and play wheelchairbasket. I will meet him once a week to help me with my rehab and get into sports. Happy to have met him.

I got my new wheelchair this morning and if I'm well enough I will get some hours from this place and go to Micciz place saturday eve. That is where I'm going to live during my rehab when I get out of hospital, so excited if I can get out from here and be normal for some hours!

I had a terrible headache last evening, but probably adjustment with meds and all what happened yesterday as I had lots of phys yesterday afternoon.

Another thing what's keeping me happy is a guy I have met through a dating site. We were supposed to meet first time this Summer( been in contact through phone and e-mail since May), but then my accident was up. But he is still by my side and waiting me out. Weird to say but I have feelings for this guy and I know he has the same. And he takes me just as I am. But I want to feel a bit stronger and a bit better before our first real meeting. So we talk almost every day and send text messages. Happy for him! It's a weird situation we are in, but both me and him feels good about everything, so cross fingers we will feel the same when we meet.

Determined, am very sorry to hear about your son. I hope and know he will have a bright future though. Am happy to hear he has your support. Please give him my best.

Today we will just work on having me up in the new wheelchair and some wheeling around. But that will be fun!/Malin
Title: Re: Amputation after MRSA
Post by: KartBoy on September 20, 2012, 07:31:21 PM
Hi Malin

Just brought myself up to date with your story and really want to thank you again for sharing it with us. Its giving me a great deal to think about as I consider my own options and the possibility of elective amputation if they can't find a way of reducing the pain from my knee.

Regards

Kartboy
Title: Re: Amputation after MRSA
Post by: tez27 on September 20, 2012, 08:43:44 PM
Malin I have just read through your thread and want to join in with everyone else to say how insperational you are, the way your dealing with everything you have been through is amazing, I hope you continue to feel better and better every day,
It sounds like your music really helps you through the dark times, I am so pleased you have that and your wonderful friends to keep you going.
Take care and (((hugs))) from Scotland 
Tez x
Title: Re: Amputation after MRSA
Post by: Lottiefox on September 20, 2012, 09:46:04 PM
Malin I hope you have managed to escape the hospital for a short while today!! I also hope the pain is being managed and you're getting some relief. Keep us posted, as you can tell, we are all behind you 100% and when you're a knee Geek you know you rock it!  ;D

With hugs

xxxx
Title: Re: Amputation after MRSA
Post by: MDJ on September 21, 2012, 08:38:13 AM
No problems Kartboy, if I can be helpful for anyone am happy for that. It's also a way for me to handle my situation to write off a bit about it.

Tez and Lottie, thank you !
Tez, music is my life and I'm a writer and producer. So without music I would be lost in all ways.

Was up in wheelchair and went by my own to buy some stuff in the shop at the hospital yesterday. We hooked up the pump on the wheelchair for my epidural so need no assistance when getting around. What a blessing!
Today woke up with a cold. No fun, but as my immune system is down cause of all meds, I know I probably will have to deal with lots for a while now.

We are going to be in the gym today and work on my left leg as I had ligaments taken out from there and been so long in bed. Hopefully I will stand in the barrels.
Tonight I will have some visitors. Am happy to have great friends around.
/Malin
Title: Re: Amputation after MRSA
Post by: Lottiefox on September 23, 2012, 10:47:38 PM
Malin

How has your weekend been? Good work on the independent shopping.  8)  Hope the cold isn't getting too great a grip on you. Let us know how things are going when you feel up to it.

Lottie xx
Title: Re: Amputation after MRSA
Post by: Snowy on September 24, 2012, 01:58:06 AM
Hi Malin! Glad to hear that things have been going better and you were able to do your own shopping.

How awesome that you met someone who's been willing to stand by you through all of this. I know too well from this board that even much less severe knee injuries and surgeries can put established relationships under strain, so it's wonderful to hear that he's being so supportive. I hope that you'll be feeling strong enough for a first meeting soon and that it turns out to be everything you both hope. :)

Take care and best of luck in the gym. One day at a time.
Title: Re: Amputation after MRSA
Post by: MDJ on September 24, 2012, 10:52:53 AM
Thanks Snowy and Lottie!

Weekend has been a bit slow cause of my cold, so stayed at hospital. But slowly getting better. Lost my voice cause of it, but back on track today.

I managed to stand for a while in the barrels friday. So this weekend though my cold I have been working in bed on my muscles in left leg.

Today did stand and took a few step with crutches with help by 3 people. Problem is though that I need to get rid of my epidural, but with the painlevels I have is not possible yet. But one step at a time and this is huge!!! :)

I get company this afternoon to plan my rehab and also to plan my future home. I recently moved. Actually I moved 1st of September with help from one city to another. But this apartment is not good for me now with the issues I have so we are looking for something else.
I know insurance will give me lots cause of the accident, so maybe going to look for a small house. It's hard to plan when I don't know when I get ot from here but at same time need to start somewhere.
With little help I know I will be able go look for a new home.

Ok, time to rest now./Malin
Title: Re: Amputation after MRSA
Post by: veganbee on September 24, 2012, 06:45:56 PM
Hi Malin

That sounds like it might be exciting, albeit difficult! If you can plan ahead and make sure when you go home it's appropriate and suitable for you I imagine it will be so amazing when you do get out of hospital!

Congratulations on your milestones, standing and taking a few steps on the crutches must have felt so good! I'm rooting for you Malin, keep up the amazingly good work!

Bee
Title: Re: Amputation after MRSA
Post by: MDJ on September 25, 2012, 05:07:24 PM

Thanks for the support Bee!

This afternoon I have gotten some worrysome high temperature again. They keep a closer look at me and have taken some bloodtests. I have some infection going on and is put on antibiotics once again. If I'm not getting better my epidural has to go. Not looking forward to that.
I don't know where my painlevels will end then.
Was to the gym this morning and did a lot of things. So cross fingers....... ./Malin
Title: Re: Amputation after MRSA
Post by: MDJ on September 27, 2012, 11:03:04 AM
Have had some rough days. My temperature went to high for my body to take in a rush so had cramps like a seizure.
They figured my epidural didn't make the situation better so it had to be taken out.
My temperature is still a bit high but controlled, thankfully just an infection and not MRSA again.
Just resting for the moment to let this pass. I'm on lots of painmeds and now and then pain is unbareable but seems like getting better by time.
I just want to get up on my feet and come home...and take the world.
When my accident happened I was in Los Angeles working with some of the best musicproducers and artists...just want to be back in my life and work with and for them. But am gonna beat this and be back and make my music./Malin
Title: Re: Amputation after MRSA
Post by: Lottiefox on September 27, 2012, 11:54:52 AM
Malin

You really deserve a break from all of this! Sorry you've had a rough few days. It must be scary, but you sound like things are slowly improving. I am glad the pain is bearable on the whole with the epidural out. I am sure you'll get back to your music. I am intrigued who you "are" in the music world and who you were working with! I like a lot of the trance/dance kind of DJs/music makers like Van Buuren, Tiesto, Dash Berlin, Deadmau5 and so on. Bit mainstream on the whole I guess but I keep exploring new genres and stuff. Music can lift you like nothing else. You're one tough cookie, hang on in there.

Lottie xx
Title: Re: Amputation after MRSA
Post by: MDJ on September 27, 2012, 10:16:56 PM
Let's say that's my world...you hit the spot a lot. :P
I'm the unknown in the known world you can say and I have some reasons for that.
I have done some music released but am on my way up.
I got my breakthrough with international contacts recently.

Working a bit right here right now..I have like ministudio here. :)

Pain is still unbareable at times, but trying to cope. Hoping for the turn around so I can get up more and come HOME!
/Malin
Title: Re: Amputation after MRSA
Post by: Lottiefox on September 28, 2012, 08:23:57 AM
Malin

I hope the pain improves today and over the weekend. What is the feedback from the docs this week? I am assuming you're still off the epidural? Glad the music was spot on - you're a talented gal! I have this aim to see Paul Van Dyk one day..not happened yet! I am also a huge fan of Van Buuren's ASOT station and podcasts, they fuel my exercise routines most days. When you're fighting fit again you should come to Global Gathering in the UK. It is 5 miles from me, we can hear it from our bedroom.  :P

Keeping fingers crossed for a good day for you.  8)

Take care

Lottie
Title: Re: Amputation after MRSA
Post by: MDJ on September 29, 2012, 08:31:17 AM
Thank you Lottie !
Maybe better up, find me there on stage in UK...nothing is impossible! :P Be sure you will be a special guest if so. ;)

I got a very nice surprise yesterday though my pain, though still having a temperature.
My best friend Micciz had together with doctors arranged for me to come to her place (that is where I'm gonna live soon during rehab).
So I got help into a dress and fix me up and transportation was arranged and meds with me and off I went to her over the evening.
2 of my other friends were there also. AMAZING !
That was just what I needed. I pay today with more pain and was hooked up to the painpump when I got back 1AM but I don't care.
It was worth all effort.
There is a life after my accident and all my surgeries and other problems and I'm gonna grab it!

We had a planning meeting yesterday morning and they are determined to get me out and up more, but I need to be careful as my immunesystem is so down. I think I can start like myself and life again. My mentor will from next week come twice a week and will also take me out on occasions and teach me how to manage as we have same injury. What comes to pain they have twisted around once again with the meds. Pain is still high and when I do things hard on me, but there's no turning back, they believe it will settle and become better by time. I just have to keep my faith and hope for better days.

This weekend I will just rest cause of the infection, am told to not do to much as I was out yesterday.
/Malin
Title: Re: Amputation after MRSA
Post by: Lottiefox on September 29, 2012, 09:29:36 AM
Malin, you had a girls night in with gossip and chilling and laughter! I bet that felt SO good to get out and escape and feel like your life is coming back. The pain sounds horrible, but as you say what else can you do but grab life by the neck and shake it and grab it! Hope things calm down with an easy day today and your infection is reducing. It wil be good to work with your mentor too, I bet he'll get a lot from you and your attitude too. You know, you have never moaned or complained on here once? That shows some kind of determination.

Have a good weekend,

Lottie xx

PS You're on for the special guest when you're back on stage!  :P
Title: Re: Amputation after MRSA
Post by: dm on October 01, 2012, 01:29:24 PM
It's incredible that you keep such a positive outlook and your goals firmly in mind with all that's happened to you. You're such a strong person, and an amazing example of what you can do in the face of an adverse situation when you put your mind to it.

People have choices - and you made the choice to not sit there and let it get you - and I wanted to tell you what an amazing person you are for that. I can imagine the ups and downs you go through in the dark of night when the pain is at it's worst... and yet you persevere with such an amazing outlook!

I've got a knee that leaves me in pain daily, that I cannot afford to take off work for several months to have a TKR done - which is all that's left that they can do for me. Like you - I just get on with living and do as much as I can every day, until I can't anymore. - I was under the house last weekend repairing a pipe leak in a sewer pipe because I knew the pipe could be patched, and I don't have a couple grand to replace the pipes - and the plumbing companies aren't allowed to patch pipes, only replace, for some reason, but I, as the homeowner, can patch it - stupid rules! I was able to stop the leak, but I pay the price for squeezing myself into a 16" high space and scooting 30 ft under the house one way....

Here's to hoping your pain levels get down enough that you can start spending more time out of the hospital!!
Title: Re: Amputation after MRSA
Post by: MDJ on October 02, 2012, 09:41:36 AM
Thanks Lottie and dm !

Wow dm I can see you there under the house. Hope it has settled a bit by now.

Had some rough days again with pain up in roof and there's not much that can be done about it. I need to get my infection under control as I still get a higher temperature in the evenings. Poke around and do any surgery on me now is dangerous.
So live day by day is what has to be now and build me up.
Today is training, a friend is coming and then a work mate. We are starting up a new music project.
Good to have some equipment here, but I miss some of my things though and of course a big fully studio..but that time will come again.

The docs say that I need time to strenghten myself. Today is hope for being up more at my crutches during training session. I also spend lots of times in bed with weights both for my left leg and for my arms. Just wish myself out from here sometimes.

I have a big goal and that is to be home in my own home for Christmas...it's not impossible...will work hard for that.
 ;D
/Malin
Title: Re: Amputation after MRSA
Post by: tez27 on October 02, 2012, 11:05:17 AM
Malin I will be sending you all the positive vibes there are between now and Christmas so that by then you will be home with all your studio equipment round about you and your making wonderful music full time again.
I hope they can get your infection and the pain under control really soon.
Take care Tez
Title: Re: Amputation after MRSA
Post by: MDJ on October 04, 2012, 12:50:51 PM
Thanks Tez !

So I had another seizure last night and fell to the floor luckily enough on my left side more sort of.
After a night at NICU and EEG, it's done and said. I have epilepsy.
Life hits very hard on me...just a bit to hard to handle and cope.
/Malin
Title: Re: Amputation after MRSA
Post by: MyKnee2010 on October 04, 2012, 05:27:17 PM
Malin,

You are an inspiration to so many of us on this list! Please hang in there & continue the good fight!

Maybe all this will end up in your songs someday? Maybe a book? It's definitely a story that needs to be told one way or another.

Sending many healing thoughts your way!!!

Phoebe

Title: Re: Amputation after MRSA
Post by: Lottiefox on October 04, 2012, 05:39:32 PM
Malin

Life is hitting you with way too much junk at the moment. I am sorry to read that you have epilepsy and that you had another seizure. This is all way way unfair on you but I know you'll fight through it all and I expect to be hearing you making music at festivals again in the future. What will they do for the epilepsy? It can pretty much be controlled now, and it might be because of all the trauma you've had and perhaps will go into remission? I don't know enough to really advise but you are in the right place for them to get it under control. I don't think there is anything else to say apart from hang in there, you're such a determined woman and you inspire loads of us on here. Big hugs from the UK

Lottie  {{{{hugs}}}} xx
Title: Re: Amputation after MRSA
Post by: MDJ on October 04, 2012, 10:03:02 PM
Thanks Phoebe and Lottie!

I had a scull fracture some years ago after an incident and that is what gives me the epilepsy. It's a long story that I can't take here.
Unfortunately has what I have been gone through now added up the symptoms. I have probably had partial complexed seizures before.
I am sat on meds now for the epilepsy and with some luck they will also help with my nervpain.
I ht the ground pretty hard yesterday so my left hand can't be used for the moment for crutches/wheelchair..but am not allowed to be up now anyways.

Somehow I will move on...../Malin
Title: Re: Amputation after MRSA
Post by: MDJ on October 09, 2012, 12:01:06 AM
Is just so very down and don't know what to do.......
Title: Re: Amputation after MRSA
Post by: MyKnee2010 on October 09, 2012, 02:38:30 AM
What's been happening the last few days? Have they been able to control your epilepsy? Is your pain any better?

You have many people on the list thinking of you & hoping your medical issues will soon be better!

Title: Re: Amputation after MRSA
Post by: Rknees4 on October 09, 2012, 03:44:54 AM
Hang in there Malin, :) :)
You will overcome all of these issues in time. :-*
Take Care,
We are all sending good healing vibes your way.(((HUG)))
Rk4
Title: Re: Amputation after MRSA
Post by: Snowy on October 09, 2012, 04:17:33 AM
I think all you can do is take one day at a time. With everything you've been through, some darker days are inevitable. There are a ton of challenges ahead and it's going to feel overwhelming sometimes. But do your best to hold onto that amazing determination, your strength, the friends and the boyfriend who are supporting you, and the comfort your music brings. You will get through this. There will be better days.

*hugs* Thinking of you and sending strength and good thoughts.
Title: Re: Amputation after MRSA
Post by: mdk on October 09, 2012, 06:59:41 AM
Just wanted to let you know I've been keeping a concerned eye on the thread, and I'm rooting for ya. Hang in there.
Title: Re: Amputation after MRSA
Post by: KartBoy on October 09, 2012, 09:02:30 PM
My thoughts are with you too, hang in there Malin and just take it one day at a time. I've got very good at distracting myself and just trying to be kind to myself. I try not to think of the pile of tablets I put out each night and just set realistic goals and celebrate the good bits of the day.

Kartboy
Title: Re: Amputation after MRSA
Post by: MDJ on October 09, 2012, 10:57:27 PM
Just want to thank you one for the sweet thoughts.
Am still very down but try pull life together.
There's so much that needs to be done and I think that combined with my long hospital stay has worn me out a bit.
My mentor came and took me out today. He is so good to me and show me what I can do.
I also freaked out a bit about the eventual man in my life, for him to face me as I am. It's not easy to think about that.
I think I'm a bit scared to meet the world.
I need a new home. I also have a passed in my life that makes my life more complicated. I wish I could tell here but I can't.
But I have since some years a new identity. And the passed in my life is kicking my butt once again.

Pain is some better. We have it controlled with the meds and add up with painpump in between when I need that.
My epilepsy has given me some smaller seizures but thankfully no grand mal.
I have been up shortly again on my crutches.

I just wish to move on in life and to find some peace and calm inside of me.
Once again..thanks. /Malin
Title: Re: Amputation after MRSA
Post by: silverghost on October 10, 2012, 07:04:32 PM
Hi Malin

As the other guys have said we are all keeping up with your amazing recovery and hard work!

Try not to think about the past, we all have skeletons in our closet and every once in a while they try to get out and show themselves.  It is not good to go backwards especially when you have been through what you have..

Keep them locked away for that rainy day when your writing your novel and your lifestory! It's bound to be a best seller well im sure you will have all us knee geeks queuing for a copy!

Take carex

SG
Title: Re: Amputation after MRSA
Post by: MDJ on October 12, 2012, 06:30:47 PM
Thanks SG !

Maybe one day IF I get famous for my music, I will start writing my life story!

Bad news is that I had another seizure last night a grand mal. So now I will be set on 24 hours EEG to see what is going on more closer.
It will give a hindsight to what kind of meds that will work best for me.
Good news is that I managed to jump on crutches 50 meters today= 54 yards !
I need to strenghten my left leg more. So will work hard on that.
Pain is also some better and I have been off the painpump most of the time now. Of course I'm set on ton of other meds, but at least that gives me the chance to come home soon.
I'm still looking for a new home and have done some bids on some apartments, so wait now for answers.
And the guy is still waiting for me....I hope be able see him soon. Is a bit nervous about that though. Yet he did say something beautiful, as I see you now when we meet is how I always will see you.

SG, I died almost some years ago and that is the old things that has come back after me. One person did me really bad then and he is out again!
I get counseling now for all and have meet some amazing people helping me.

/Malin
Title: Re: Amputation after MRSA
Post by: YogaGirl on October 12, 2012, 07:42:27 PM
Hey MDJ,

Just wanted to let you know that I, too, am thinking about you and wishing you good thoughts and a quick recovery. Your spirit is inspiring. Truly. And because you have such an amazing outlook on life I have no doubt that you will get through this, running, basketballing, DJing and whatever else you decide to do with yourself.

I'm also advocating that you write a book... you have an amazing life story and there's still so much more to live!

Good luck with the house hunting and the gentleman... Isn't it nice to have these regular world 'problems' to come back to?? Hope you're feeling good and the meds are being sorted out properly!
Title: Re: Amputation after MRSA
Post by: silverghost on October 12, 2012, 09:13:15 PM
Hi Malin

You really do sound such a sweet person and I am sorry that someone has wanted to hurt you so bad in the past.  There are some terrible people in this world but also some inspirational ones and then there are the majority of us in a middle sort of category.. I am sure everyone on here knows which category you are in and I am glad to hear you are having counselling with people who can meet and help you in your mind...

I am sorry you are having seizures still and they are having difficulty getting your meds right this can't be helping with your thoughts and feelings. I know its easy for me to say put the past aside as I am sure you have tried but you really do have more than enough to contend with without things from the past worrying you..

Keep believing in yourself Malin as we all do!

SG
Title: Re: Amputation after MRSA
Post by: MDJ on October 13, 2012, 09:49:51 AM
Thanks YogaGirl and SG !

YogaGirl, yes it's so nice with the things outside hospital. To see there is a life still to catch up with.

News on my front is that I have an 2 bedroom handicapsuited apartment downtown in my city from 1st of December! Very very happy!!

Today my mentor will pick me up for some adventure. I have no idea where we are going. It's very tricky still to get in and out of a car but I have just tried it once.
Pain has been higher during the night, but probably has to do with the walking yesterday.
Feels like I have a ton of meds to take every day. For pain, for tummy, for epielpsy, for allergies...oh well by time I am convinced a lot of them will go.
I feel much more positive then som days ago.
I also got confirmed that I will get some special made prostethics that a co-worker in UK will pay for. But for now I am still most in the wheelchair as I have to build myself up more.
/Malin
Title: Re: Amputation after MRSA
Post by: MDJ on October 14, 2012, 12:34:48 PM
Yesterday was good but hard on me.
My mentor picked me up and we went to my hometown, yes believe that or not.  ;DHe had planned everything behind me so all was arranged.
I got to see my new apartment and then we went to one of my dearest friends. She's in wheelchair so OK for me to get in there.
I rested some hours and we sat talking. Then she made dinner. After dinner we went back to Stockholm.
I had wanted to stay over night but pain was up in roof and I have IV meds that I need every evening.
The apartment is avesome!
So today just resting. Painpump is my best friend today.
But was well worth getting pain for!!!
/Malin
Title: Re: Amputation after MRSA
Post by: silverghost on October 14, 2012, 09:06:19 PM
Great to hear your new apartment is fab! Just in time for xmas hope youve decided where your tree will go on your visit!

I could do with borrowing your painpump!, if you don't mind, nothing like yours i'm sure but im going through a tough pain time myself at the moment and its only your story that's keeping me going and pushing through my own pain...

Take care Malin and have a good rest tonightx

SG
Title: Re: Amputation after MRSA
Post by: MDJ on October 15, 2012, 09:36:35 AM
Awww thanks SG !

Well, I have not come that far yet to plan for Christmas. There's a long road yet that I need to pass. But eventually that is going to happen too.

Today I have painmanagement team meeting, phys, psychologhist and then a coffee and work with one of my co-workers. Gonna make some music.
Wow, I will be ready for bed after that!! :o

SG, what is your doc saying regarding your pain ? Yes, wish I could send the painpump over cyberspace. ;D
/Malin
Title: Re: Amputation after MRSA
Post by: MDJ on October 16, 2012, 12:53:29 AM
So I'm set for EnMG, scintigrafi to rule out where my pain comes from. I have a hard time being up on crutches cause I get so much pain in my limb.
It could be either a neuroma(growth of nerve tissue), CRPS, a nervinjury or just my nervous system havocing around.
Good is that I don't have phantompains.
So now a lot of my phys is concentrated on my left leg cause I have been bedridden for so long.
I hope to get to know what is the cause soon and hopefully get a treatment to get this better so I can work on rehabbing.

I did some great music today in middle of all....gonna be something big I hope./Malin
Title: Re: Amputation after MRSA
Post by: Lottiefox on October 16, 2012, 03:26:27 PM
Malin

Good luck with the investigations. When will they do this? I am hoping you get an answer. I know that you have Nettan as a great friend who can help you with things like CRPS but I am hopeful your body is just in a state of trauma after everything that has happened. Once you know what it is, then you are right - you can get the right treatment. You really deserve some good news in all of this. I am glad you made some good music though, I look forward to hearing it! Excellent news on the new living place too and the trip out and about. I know it caused pain but it must have felt great to be out in the real world. I am having all fingers crossed for you that they find out what is going on.

Hugs

Lottie xx
Title: Re: Amputation after MRSA
Post by: MDJ on October 16, 2012, 05:57:18 PM
Thanks Lottie ! ;D Yes, Nettan does so much for me...without her I don't know what I would do. She knows all the practice stuff too that I need to fix with.

I will have the tests tomorrow, so am in for a looooong day. But I will be fine, I'm sure.
Today I have just been resting and working some.
I got good news today about insurance and happy to get to know that I will be just fine regarding money in future.
Pain has been tough since last night, but am fighting my very best to handle it.

Can't wait to start life again and fulltime with my music. 8)
/Malin
Title: Re: Amputation after MRSA
Post by: MDJ on October 17, 2012, 10:33:21 AM
Had another seizure and hit the floor bad early this morning. They have postponed some of my testings until tomorrow.
My left hip is in colors. Fortunately no breaks.
Am getting really tired of this..... :( ./Malin
Title: Re: Amputation after MRSA
Post by: YogaGirl on October 17, 2012, 02:11:28 PM
Sorry, Malin. As if you need any more stuff to worry about :(

At least the tests are only postponed for one day. That will be here in no time. Hopefully you can rest your hip and work on some more music til then.
Title: Re: Amputation after MRSA
Post by: MDJ on October 17, 2012, 07:37:09 PM
Did some of the testings today. It's almost confirmed that I got CRPS type 2 with nerv injury. Damn !!!
Title: Re: Amputation after MRSA
Post by: MDJ on October 18, 2012, 08:01:57 PM
Have had more tests done today on my limb. Tomorrow there will be a big meeting about what to do with several docs.
I'm glad to have this over and done. Just now want to deal with all and hopefully get pain under control as fast as possible.
I really don't know what today's testing did add, well let's see.
Next week I will have a 24 hour EEG to sort out my Epilepsy.
After all this I hope to be able go home soon.
 My goal is to be in my apartment when I get it 1st of December. I think that is possible.
Today been so tired and slept since after the tests until now.
I try to stay as upbeat as much as I can, but it's hard.
If all is right tomorrow, I will meet the gentleman in my life that has followed me and been in contact with me since before my injury.
A bit scarey but at same time something I have long for( and I know he has even more... ;))
Something in life is good and I know life will be better by time. Can't wait to start living my life again.  8) /Malin
Title: Re: Amputation after MRSA
Post by: Lottiefox on October 19, 2012, 07:47:30 AM
Malin

Just catching up - so sorry you had another seizure and hit the floor. Ouch. I hope the bruises are not too painful. So, the testing has indicated CRPS. That is a blow but if you know what you're fighting then you can make a plan. I have CRPS in my big toe, big toe joint and the other 3 toes alongside it. When bad it can spread into the front of my foot. Mine was from a fusion surgery last year when they damaged nerves - very hard not to damage nerves in the foot just as with your surgery but some peoples' bodies just seem to develop this CRPS type reaction. I am guessing that your friend Nettan is going to be a big help in helping you get the right treatment for this...as you know you've been diagnosed very early and that is a good indicator. It is hard to stay upbeat, but we are all rooting for you and you can get back to a busy active life even with all this rubbish you're dealing with. I am so happy you are getting to meet the gentleman who has been supporting you - I hope he realises what a special lady he's got in you and how lucky he is! Life will be good again.

Have a restful day with some smiles and happiness.

Big hugs xxxx
Title: Re: Amputation after MRSA
Post by: MDJ on October 19, 2012, 11:35:41 PM
From was going to be a good day, went to a disaster. I'm so sad and so worn out. The tears don't exist more.
I have MRSA bacterias on the end of my femurbone isolated in one lump eating inside of me. :(
This could start spreading if not taken care of.
Monday morning I have surgery once again...they say if I'm lucky it's only isolated in one lump meaning they could go from the side of my leg...if not they have to cut off more of the leg...and all is starting over again.
Here is a reason why I have pain, why I still have problems eating and why I still feel a lot under water.
Am crying again now....damn..... :'(
Title: Re: Amputation after MRSA
Post by: dm on October 20, 2012, 07:19:50 AM
Oh, man.... sorry to hear that they found more infection. I'll say a prayer for you that it's isolated and that they can catch it all in one go. I know it had to feel like someone sucker-punched you in the gut, to hear that news.

Hope like heck it's the last of it, that they can get it all, and stuff the spot full of some good antibiotics once they clean it out, and get those bad bugs gone for good!!

You just keep hanging in there.... one they get the last of it, then keep positive that your pain will resolve and you can make it home for christmas. focus on that, and keep being optimistic. You've been doing so well... now's not the time to give up. You've got a lot of people following your inspirational, courageous fight, and we're all rooting for you.

Hang in there, have a good cry, eat a box of chocolate if it helps, and keep on looking for that bright spot at the end of this long haul.... it's there!
Title: Re: Amputation after MRSA
Post by: Lottiefox on October 20, 2012, 09:18:38 AM
Oh Malin.  :(  Have a good cry. This is so unfair. I too am sending thoughts and prayers that they can remove the isolated lump of it. You are such a brave lady. I wish you could get a break in all of this and start the recovery road for real. All I can say is that we are all thinking of you on here. Monday will come, you will keep fighting. Focus on that Christmas goal and tell MRSA it isn't going to defeat you now. I recommend the chocolate treat if you can stomach them.  ;)

Take care and let us know how you are doing.

Big hugs xxxxx
Title: Re: Amputation after MRSA
Post by: MDJ on October 20, 2012, 04:50:19 PM
Thanks dm and Lottie!

It's indeed a emotional rollercoaster now. The worst is not how my leg will look, that I don't care about longer.
I am scared that this will continue and what if that happens. Am scared to loose myself. You know what I mean..but I can't make it in words.  :'(
I try to relax right now. As you understand I didn't meet the gentleman yesterday, but he stick by my side on phone by calling and text me.
I'm amazed that he does that, but probably he see something in me that I can't get grip around.
One co-worker came to me before with some beautiful things. So sweet!
The countdown is on...soon I know what I will be able do or not in future./Malin
Title: Re: Amputation after MRSA
Post by: JTB on October 21, 2012, 04:21:20 AM
Hi Malin,

I've been following your posts for some time now and even though your story is very moving, I have felt that I don't have much that is important to add, so have stayed silent. Partly because some folks here have said so many good and kind things to you.

I'm saddened and sorry and numbed to read about your recent turn of events and the best I can do is to think of you being well and at ease and healing and hoping that it all works out for the best. You are behaving world class inside a seemingly impossible set of circumstances.
Title: Re: Amputation after MRSA
Post by: KartBoy on October 21, 2012, 11:46:41 AM
Malin

Your having a rough time but try not to spend time thinking about worst outcomes. I am working with a pyschotherapist who taught me to examine each negative event in terms of what is the worst outcome, what is a probable scenario and what is most likely to happen. You have a load of doctors working very hard to get you well and very soon you should be in your own home again on a path to rebuilding your life, hang in there

Andrew
Title: Re: Amputation after MRSA
Post by: tez27 on October 21, 2012, 12:53:15 PM
Malin I am so sorry this has happened you must feel as if you just cant catch a break, but your such a strong lady you will work your way through this the way you have worked through everything else that life has thrown your way, with the help of your wonderful friends and your music, and this fantastic guy who seems to be sticking by you through everything.
Sending you healing thoughts and lots of (((hugs)))
Take care Tez
Title: Re: Amputation after MRSA
Post by: Rappy on October 21, 2012, 06:32:17 PM
Wow, God bless you. I will keep you in my prayers. Although I have not read all of your diary, I wanted you to know that I had a brother who lost his leg above the knee 40 years ago because of bone cancer. I can remember it like yesterday. It was the 'phantom pains' that caused him the most pain. I would highly recommend for you some meditation exercises. I know it sounds silly, but a strong mind can help you control some of the pain. He always told me it wasn't the pain from the brace or learning to walk that really hurt, that was specific pain and would end when what ever he was doing ended, but the phantom pains were something else all together.

My brother is now 48 and has terrible arthritis in his ankle and wrists from so many years on crutches. Swim, stretch, take your vitamins, etc,  do what ever you can to care of those parts you need to last you the longest. That is the one thing my brother wishes someone had mentioned to him.

Definitely take up sports again. My brother continued to ski for years. A lot of the ski shops and ski companies often donated their equipment, after all, they receive a number of ski's through shipping where one breaks and not the other. You might as well take advantage of this. He also said skiing as an amputee was easier then with 2 legs, so there you go, some optimism to give you a reason to try it. My brother also learned to ride motorcycles - dirt bikes. To this day he continues that hobby year round.

For work he started his own car mechanics shop and he specialized in certain race cars. Often he would drive cross country to buy something, tow it back to his place, then spend months fixing it. Once it was up and running he would race it at the local race tracks and eventually sell them.

But rest assured he has lived a full and healthy life. He has had many girlfriends and was even engaged once. No idea why that fell apart but he's unafraid to try something new and will often build a part to make his newest hobby available to him. I scuba dive, a hobby that would be healthy and inspiring for you. Not only is it beautiful, but the weightlessness will give you a freedom like no other.

Best of luck,
Rappy
Title: Re: Amputation after MRSA
Post by: Rappy on October 21, 2012, 07:06:21 PM
Geesh, I read some more of your diary including the most recent. You are in my prayers, stay positive, I know it's hard but you have to believe it will all work out. Venting in a diary is good but I still recommend you find someone to help teach you how to meditate. I know it sounds dumb, but it will give your mind a way to rest and relax during the day. It would be very helpful. Use your computer to find someone, ask around at the hospital or among friends, I am sure someone would be willing to volunteer to assist you. it's easier to learn with a partner but once you get the hang of it you can use it any time you want. It's better then nothing...

Wishing you nothing but luck, prayers, and future good health,

Rappy
Title: Re: Amputation after MRSA
Post by: MDJ on October 21, 2012, 09:48:25 PM
I am overhelmed by all good thoughts and greetings to me, thank you..mean so much for me now in this moment.
Today has been hectic with blood works, was given blood also, the usual shower and everything else around with emotions.
My heart feels broken inside and the head empty.
One thing is only working. I am making amazing music right here right now.
Last night without sleep made me to jump into something and today I have just signed a contract going solo in music with a producer in another country.
I'm stunned over getting this in middle of my fight. But this and all wonderful people around me is what keeps me going.
I need to beat this, I need to live...life has so much...somehow I must make it. :-\
/Malin

Title: Re: Amputation after MRSA
Post by: Lottiefox on October 21, 2012, 10:22:04 PM
Malin

I am sending you all my best wishes and thoughts for surgery tomorrow. I am so happy that even in the middle of this you're making wonderful music - music comes from our heart and soul and I bet what you're doing now is FAB. I look forward to hearing it at Global gathering with you up there then enjoying a beer. You will get your life back. We are all behind you on here - we may be far way and only know you through this forum but we all care. Kick this MRSA in the butt gal, you have so much to offer the world.

Let us know how things are when you can, we'll be thinking of you

Lottie xxx
Title: Re: Amputation after MRSA
Post by: MyKnee2010 on October 22, 2012, 12:16:29 AM
Hi Malin,

I just wanted to add my good wishes to you for your surgery tomorrow! Congratulations on the music deal!

We'll be thinking about you tomorrow & awaiting some (very hopefully) good news!

Title: Re: Amputation after MRSA
Post by: Lizn8r on October 22, 2012, 03:13:34 PM
Count me as another who has been following your struggle silently from the wings ... I am totally in awe of your strength and courage facing everything you have gone through.  You are one incredible person to deal with life-altering circumstances and not let them interfere with your lifelong dreams and ambitions.  Just a few words for you, my friend ...

YOU GO, GIRL!!!  BEAT THIS!!!
Title: Re: Amputation after MRSA
Post by: tez27 on October 22, 2012, 06:11:18 PM
I hope everything went ok for you today Mallin I have been thinking of you  and sending you loads of good positive healing thoughts.
Title: Re: Amputation after MRSA
Post by: Rknees4 on October 22, 2012, 06:32:18 PM
Malin,
You WILL make it.
Know that you are in everyones thoughts and prayers this day.
Rk4
Title: Re: Amputation after MRSA
Post by: MDJ on October 22, 2012, 08:12:24 PM
AM NO GOOD. THEY HAD TO TAKE MORE...GET BACK TO YOU WHEN ICAN. :'(
THANKS FOR ALL MESSAGES./MALIN
Title: Re: Amputation after MRSA
Post by: Lottiefox on October 22, 2012, 09:27:32 PM
Malin

Sending huge hugs. Thinking of you xxx
Title: Re: Amputation after MRSA
Post by: mdk on October 23, 2012, 12:00:39 AM
Hang in there!
Title: Re: Amputation after MRSA
Post by: YogaGirl on October 23, 2012, 01:30:14 PM
Malin,

Wishing you all the good thoughts I can find. I know life seems so down right now and this was a huge blow, but its like you said, who cares what your leg looks like... If this will be what gets the pain, its great. Hoping that this recovery goes loads better than the previous. You WILL beat this and you WILL live a full and exciting, amazing life.

Take good care and rest. Thinking about you!
Title: Re: Amputation after MRSA
Post by: Overdidit on October 23, 2012, 05:18:09 PM
Oh Malin, I wrote to you in the beginning but I've been quite busy planning a 7th knee surgery in 28 months.  I am sorry I lost touch.  Please, please keep your spirits up.  Keep talking to all of us.  We are here for you.  Keep writing your music, I am sure it is a release for you.  "When there are difficulties and you feel down, this is the time to visualize, think and expect the positive."
Title: Re: Amputation after MRSA
Post by: MDJ on October 23, 2012, 06:22:09 PM
THANKS FOR THE MESSAGES.
NOT FEELING WELL. VOMITING AND CAN'T KEEP MY TEMPERATURE. THEY SAY MY BODY IS SHOCKED.
GOT BLOOD TODAY AND HEATING BED TO KEEP ME WARM.
I LOST 8 CENTIMETER OF MY LEG. :'( /MALIN
Title: Re: Amputation after MRSA
Post by: Lottiefox on October 23, 2012, 09:08:32 PM
Malin

Your body must be going through one heck of a tough time. You are in good hands there and you are a fighter. Keep thinking of that new music deal you made the weekend just gone - even in amongst all this you're building for your future. You'll get there. With hugs

xxxxx
Title: Re: Amputation after MRSA
Post by: dm on October 24, 2012, 03:23:24 AM
I also add my prayers and good wishes for you that they got it all this time. Hoping that you're on the other side of it now, and that they're keeping on top of the vomiting for you. If they're not able to get a good grip on it for you, ask for some zofran if they've not tried that, it's worked wonders for my severe nausea from my migraines. A wonderful friend of mine from over there told me about it, and it's been a lifesaver, and it doesn't zonk you out - if you want to try and make some music...

Keep your chin up, and try and feel better, we're all rooting for you!!!

Zen hugs ....a virtual hug.... the hug I'd give you if I were there, but am not, and can't.... ( a line from a book by a favorite author of mine )

( You know the best thing about Zen hugs? .... guaranteed to not hurt!  ;D   )

Here's wishing you feel better quickly!!
Title: Re: Amputation after MRSA
Post by: Rknees4 on October 24, 2012, 06:16:03 AM
Malin,
Know we are all with you. :)
You can make it!!!
Big (((hug))) from Canada :-*
Rk4
Title: Re: Amputation after MRSA
Post by: MDJ on October 24, 2012, 09:13:58 AM
STOPPED VOMITING.HAVE A HIGH TEMPERATURE INSTEAD NOW.NIGHT WAS HARD.
THANK YOU FOR YOUR THOUGHTS.
I WILL WRITE WHEN I CAN. TOUGHER THIS TIME./MALIN
Title: Re: Amputation after MRSA
Post by: Overdidit on October 24, 2012, 02:53:51 PM
Thank GOD you have stopped vomiting.  Now let's get that temp back in order . . .Positive vibes your way  . . ...
Title: Re: Amputation after MRSA
Post by: JTB on October 24, 2012, 02:58:25 PM
Hi Malin,

You are so amazing and strong. My best thoughts are with you from the states.
Title: Re: Amputation after MRSA
Post by: MDJ on October 25, 2012, 10:19:52 AM
FIGHTING. TEMPERATURE IS HIGH.HAD CRAMPS LAST EVE.PROBLEMS KEEPING OXYGEN LEVEL SO GET OXYGEN.BLOOD TESTS YESTERDAY OK. NEW TESTS TODAY.
BODY IS A MESS. SO WORN OUT.
THANKS FOR CARING./MALIN
Title: Re: Amputation after MRSA
Post by: Lizn8r on October 25, 2012, 01:32:43 PM
Do NOT give up ... you can and will beat this.  You have a whole forum of people who cant wait to hear your music. 

Keep fighting, and know that we're fighting with you...
Title: Re: Amputation after MRSA
Post by: Lottiefox on October 25, 2012, 05:32:05 PM
Malin


Keep fighting. I want to see you up on that stage with your music lifting thousands. You can do this.

Big hugs

xxxxxx
Title: Re: Amputation after MRSA
Post by: Snowy on October 25, 2012, 11:07:51 PM
Oh Malin. I've been away with intermittent net access, so I'm just now catching up and I am so sorry that this has happened. You've shown so much spirit, so much fight, so much determination; the last thing that should have happened is a setback of this kind. I'm not surprised that your poor body is in shock; it's had to cope with so much over the last little while.

But I will also echo what others have said. Hang in there. Stay strong. Dream of your music, and the people who care about you, and do what you have to do to get through this. You have the strength and the spirit; we know that from seeing your response to previous challenges. I can't even imagine how you must feel right now, but know that we all have faith in you and are sending all our good thoughts your way and hoping that one day we can hear your music.

Love and positive thoughts from both this side of the world (I'm 5000 miles from home right now) and the other.
Title: Re: Amputation after MRSA
Post by: MDJ on October 26, 2012, 09:35:29 AM
STILL FIGHTING. HAVE SIGNS OF BACTERIA- >:( .THEY DON'T KNOW WHERE SO OFF EPIDURAL NOW. GIVEN PAINBLOCK.
STILL ON OXYGEN OFF AND ON.
GONNA BE LONG ROAD. I WISH IT WAS BETTER BY NOW...... /MALIN

THANKS FOR SUPPORT HELPS ME IN MY FIGHT
Title: Re: Amputation after MRSA
Post by: Rknees4 on October 26, 2012, 11:15:13 AM
Hi Malin,
Sending a motherly (((hug))) for the fight today.
Try and rest as much as you can.
Rk4
Title: Re: Amputation after MRSA
Post by: mdk on October 26, 2012, 04:12:01 PM
I wish I could punch your bacteria for you  :-[

You're gonna make it. GO MALIN!
Title: Re: Amputation after MRSA
Post by: YogaGirl on October 26, 2012, 07:16:58 PM
Malin,

Just wanted to say I'm thinking of you too. You're so amazingly strong, stay that way!!! We're all here supporting you, keep on keeping on!!
Title: Re: Amputation after MRSA
Post by: MDJ on October 27, 2012, 08:49:17 AM
STILL FIGHTING WITH TEMPERATURE, LOWERED A TINY BIT. BEEN AWAKE MOST OF NIGHT WITH PAIN ISSUES.
GOT HELP WITH SHOWER YESTERDAY. BLESSING!
TO WRITE THIS EVEN MAKE ME TIRED. BUT I WILL FIGHT. BACTERIA WON'T TAKE MALIN!

THANKS SO MUCH. MEANS THE WORLD TO ME./MALIN
Title: Re: Amputation after MRSA
Post by: sune on October 27, 2012, 01:16:42 PM
Hi Malin

I'm in Denmark, thinking of you. My heart goes out to you in your suffering and your battle. Continue to be strong, fight, you WILL beat this!!! Your temperature has gone down - hold on to that, you're winning!

Sune

Title: Re: Amputation after MRSA
Post by: Lottiefox on October 28, 2012, 06:10:54 PM
Malin

How are you? I bet the shower was wonderful even though it must have exhausted you. I am hoping that this bacteria is on the way out....you won't let it beat you. Keep fighting. I hope the pain is reducing and your temp is stabilising. We are all thinking of you. I met another KG member from 5000 miles away who has been visiting the UK. We spoke of you, so you are in our hearts and thoughts. I am listening to Swedish House Mafia at the moment and thinking of you up there on the stage at the festivals in years to come. You rock, you're so brave.  :)

Big hugs xxxx
Title: Re: Amputation after MRSA
Post by: MDJ on October 29, 2012, 10:18:55 AM
STILL SAME TEMPERATURE, AROUND 39.3 CELSIUS. PAIN WENT UP IN ROUGH LAST MORNING, CONTROLLED NOW AGAIN.
SHOWER WAS GREAT. HAD ANOTHER ONE YESTERDAY. DON'T HAVE TO SIT UP WHEN SHOWER.
WAS UP A BIT YESTERDAY AND TRIED SOME EATING. EXHAUSTED REST OF DAY.
THIS WILL TAKE TIME. AM NOW ISOLATED DUE TO MY BACTERIAS AND TO MY BAD IMMUNESYSTEM.
MY MENTOR IS ALLOWED COMING AS LONG AS HE IS HEALTHY. HE WAS HERE SATURDAY EVE. VERY NICE.
MY MOOD IS UP AND DOWN, BUT AM TRYING TO STAY COOL...BUT ITS HARD SO DAMN HARD. :'(

THANKS SUNE AND LOTTIE!

/MALIN
Title: Re: Amputation after MRSA
Post by: Snowy on October 29, 2012, 02:29:54 PM
I'm so sorry to hear about the increasing pain and the isolation. That must be very hard. I'm glad that your mentor is still able to visit, and that you can shower; I hope that these positive moments help you get through the day. Lottie and I met yesterday morning just before I flew home to Canada, and we were talking about you and your fight; we're both so very very impressed by your courage and your determination to stay positive through some very tough setbacks. Knee Geeks from all over the world are keeping you and your recovery in their thoughts.

Take care, rest and heal. Beat back those bacteria! Your strength is incredible. xxx
Title: Re: Amputation after MRSA
Post by: MDJ on October 29, 2012, 07:46:09 PM
TEMPERATURE IS GOING DOWN !!!!!! ;D

THANKS SNOWY! HOPE YOU HAD A GOOD MEETING.
Title: Re: Amputation after MRSA
Post by: Lottiefox on October 29, 2012, 09:13:18 PM
Malin,

That is really good news about your temperature! I hope you are feeling more comfortable. You are in our thoughts often!

Hugs xxx x
Title: Re: Amputation after MRSA
Post by: Snowy on October 29, 2012, 10:21:15 PM
That's great news! You're winning! Let's hope that this is the turnaround point and things keep getting better from here. :)

K xxxx

PS It was a great meeting! KG has been the source of some very wonderful friendships, Lottie not least among them. :)
Title: Re: Amputation after MRSA
Post by: Rknees4 on October 29, 2012, 11:05:02 PM
Malin,
That is excellent news. Here is a ((((hug)))) for better days ahead. :)
Rk4
Title: Re: Amputation after MRSA
Post by: mdk on October 30, 2012, 01:09:10 AM
Best thing I've heard all week. Great job, Malin! Keep it up!
Title: Re: Amputation after MRSA
Post by: tez27 on October 30, 2012, 03:16:58 AM
Malin I am so pleased your temp is going down, I hope the pain is under control too and your starting to feel more comfortable, you are such a strong person and an insperation to so many people all over the world.
Take care (((hugs)))
Tez
Title: Re: Amputation after MRSA
Post by: sune on October 30, 2012, 10:26:46 AM
Great news! Keep it going!!! :)
Sune
Title: Re: Amputation after MRSA
Post by: YogaGirl on October 30, 2012, 02:59:39 PM
Definitely the best news I've heard all week as well!!!!

Keep the spirits up, Malin! Being isolated must be very hard at times, but I'm soooo glad your mentor can come see you. You're doing great! Big big hug, keep it up!!
Title: Re: Amputation after MRSA
Post by: MDJ on October 30, 2012, 06:11:18 PM
FEELING DOWN. TEMPERATURE UP AGAIN.
NEW COCKTAIL ANTIBIOTICS. MY IMMUNESYSTEM WILL ALSO REQUIRE HELP AFTER THIS.
JUST SO SAD AND CRYING TODAY..... :'(  I JUST WANT TO BE ME AND GO HOME. >:(

THANKS FOR ALL WELL WISHES. :-*/MALIN
Title: Re: Amputation after MRSA
Post by: Snowy on October 30, 2012, 07:02:56 PM
I'm so sorry, Malin. I hope the new antibiotics give that extra boost that helps you beat down the bacteria. It must be incredibly hard to be in hospital for so long, especially when you don't know how long you're going to have to stay for. We're all thinking of you and wishing you strength to get through this low period. xxx
Title: Re: Amputation after MRSA
Post by: Lottiefox on October 30, 2012, 07:19:43 PM
Malin

I didn't want to read this news, I am sorry things are not so good today - you are in my thoughts. Just as Snowy said, we were talking about brave you are. Finding the strength to keep going in times like this is really tough. I cannot imagine how tired you must feel of it all. We are here and we want you to keep on fighting and get better. I have my place booked to see you up on that stage on day with music lifting the crowd. You can do it.

Being sad is pretty much allowed I think - wish we could all give you a big KG hug. Take a virtual hug from the hug and I hope you get some rest {{{{hugs}}}}

Lottie xxx
Title: Re: Amputation after MRSA
Post by: Rappy on October 31, 2012, 12:02:59 AM
I think at this point if you wanted to yell a few rude expletives or throw a couple of things across the room, your entitled. Do whatever makes you feel better. If I could bake you some home cooked chocolate chip cookies and bring you a DVD player with pick-me-up-happy movies like ET, Dumbo, Chariots of Fire, etc I would. Feel better and get a few hours of rest.
Rappy
Title: Re: Amputation after MRSA
Post by: MyKnee2010 on October 31, 2012, 01:24:50 AM
Hang in there Malin! It's tough but you are tougher! We're thinking of you & wishing you the best!

Maybe it would be fun for everyone to tell what general area of the world they are from - then you can see good wishes are coming from all over the world!

My best best wishes are coming to you from the northeastern US!
Title: Re: Amputation after MRSA
Post by: Snowy on October 31, 2012, 01:34:25 AM
And mine from Vancouver, Canada. :)
Title: Re: Amputation after MRSA
Post by: mdk on October 31, 2012, 02:56:31 AM
Texas-sized best wishes. Feel better!
Title: Re: Amputation after MRSA
Post by: JTB on October 31, 2012, 03:13:48 AM
Hope it's enough for you to know that there are people from all over the world, even California, that are following your story, admiring your class and fight, and who care and are pulling for you in the biggest way.
Title: Re: Amputation after MRSA
Post by: sune on October 31, 2012, 06:31:48 AM
Hoping and wishing you all the best from Denmark!
Sune
Title: Re: Amputation after MRSA
Post by: tez27 on October 31, 2012, 08:10:13 AM
Malin, lots of big Scottish {{{{hugs}}}}  are sent your way from me too
Tez xx
Title: Re: Amputation after MRSA
Post by: MDJ on October 31, 2012, 03:46:55 PM
 :-* :-* :-*
THANKS FOR ALL LOVELY SWEET THOUGHTS!

JUST BEEN ON ULTRASOUND FOR MY KIDNEYS. INFECTION AND MEDS HAVE TAKEN A TOOL ON THEM. THEY DON'T WORK AS THEY SHOULD. :-\
TEMPERATURE IS STILL OVER 39 C.
I AM FIGHTING ALL THAT I CAN. THANKS FOR FIGHTING WITH ME.
THE GENTLEMAN IS STILL ON MY SIDE WITH ME. :)/MALIN
Title: Re: Amputation after MRSA
Post by: Snowy on November 01, 2012, 12:56:29 AM
Oh no - I'm so sorry to hear the news about your kidneys. Do the doctors have any ideas as to how to improve their function? Or is it more important to keep you on this course of meds and deal with the kidney issues after?

We're all with you in spirit, pouring our strength and energy into your fight. Hang in there. The loyalty from the man in your life is no less than someone with your courage and determination deserves. xxx
Title: Re: Amputation after MRSA
Post by: MDJ on November 01, 2012, 04:37:57 PM
THANKS SNOWY!

THEY HAVE CHANGED MY MEDS A BIT. I FEEL SOMEHOW BETTER EVEN IF THE TEMPERATURE STILL IS HIGH AND I'M SO TIRED ALL THE TIME.
THEY HOPE THE KIDNEYS WILL IMPROVE IF INFECTION IS CONTROLLED AND WHEN THEY BUILD UPP MY IMMUNESYSTEM AGAIN.
I'M SO SCARED, THOUGH I KNOW I'M IN GOOD HANDS, JUST CAUSE I HAVE NO CONTROL MYSELF.
BEEN SLEEPING MOST OF THE DAY.
TIRED AGAIN. HARD TO DO ANY.
/MALIN
Title: Re: Amputation after MRSA
Post by: Rknees4 on November 01, 2012, 05:30:41 PM
Here is a (((HUG))) for todays fight Malin.
Just rest,, that is what your body is telling you to do. :-*
Rk4
Title: Re: Amputation after MRSA
Post by: Lottiefox on November 01, 2012, 05:48:44 PM
Malin

I am glad you're feeling a little brighter even if the temp is still not quite right. Keep fighting. It must be scary but we're cheering you on and you have a great team there with you from the sound of it. Rest when you need to, your body is fighting a big fight and I know it will start working with you sooner than later.......hope you're not in too much pain today.

Big hugs xxx
Title: Re: Amputation after MRSA
Post by: MDJ on November 02, 2012, 10:21:39 AM
Malin has had emergency surgery on her leg this night. She is doing ok for now. Please keep her in your thoughts.
I will see her this weekend./Nettan
Title: Re: Amputation after MRSA
Post by: Lizn8r on November 02, 2012, 11:01:17 AM
C'mon girl ... FIGHT!!  You can do this! 
Title: Re: Amputation after MRSA
Post by: Lottiefox on November 02, 2012, 11:40:55 AM
Yep, come on Malin you can beat this. We are all thinking of you and sending huge hugs and much love. Nettan, hug her from me.

Lottie x
Title: Re: Amputation after MRSA
Post by: YogaGirl on November 02, 2012, 12:30:34 PM
Hang in there Malin! We're all right by your side! Keep thinking positive thoughts! You WILL get through this!!
Title: Re: Amputation after MRSA
Post by: MDJ on November 02, 2012, 07:27:15 PM
MY KIDNEYS GAVE MY LEGS LOTS OF FLUID. THE STUMP SUTURES COULDNT TAKE THAT AND OPENED UP YESTERDAY LATE WITH A SPLASH OF BLOOD AND FLUID. THAT DID HURT. :-X HAD TO SHOWER AND ALL AND EM. SURGERY.
I HAVE DRAIN, NEW SUTURES AND SOMETHING TO KEEP BACTERIA AWAY. CHANGED ROOM FOR BETTER ISOLATED.
TONIGHT MY FRIENDS AT HOME FIXED FOR ME TO JOIN GIRLIE PARTY THROUGH SKYPE. :)
TOMORROW ONE FRIEND WILL VISIT.
HAVE TALKED WITH THE GENTLEMAN TODAY. :) SLEPT ALMOST ALL DAY. NOW I MUST REST. HAVE HELP TYPING THIS. /MALIN

THANKS FOR FIGHTING WITH ME.
Title: Re: Amputation after MRSA
Post by: Snowy on November 02, 2012, 07:44:51 PM
Oh Malin - I'm so sorry you had to go through the pain and another surgery, but really glad that you came through it and that they were able to get the leg closed up again. I'm also glad that you have the support of your Skype party friends, the man in your life, and Nettan - it's so important to have people to help you through the tough times, and you're certainly having more than your fair share of those right now.

Stay strong and keep fighting. You're in our thoughts today and every day. xxx
Title: Re: Amputation after MRSA
Post by: travelthomas on November 02, 2012, 09:21:19 PM
{hugs}

(http://i1105.photobucket.com/albums/h357/Associate111111/images.jpg)

I hope everything works out.

Day Two:
So had my surgery yesterday. Was supposed to get off epidural today, but as I have had a rough night and not been stabilized enough I am going to keep it until tomorrow. Hard to sleep and feeling nauseous. We are going to work some on my left leg today as I have had surgery on that one too. They are going to put me in CPM to get ROM back. I will also have to work on my muscles there as I have been bound to bed for long now.
On Monday I'm going to another hospital, but I will not go close to my home as I am going to stay with a friend during my rehab in Stockholm.
My emotions has been going up and down and I had a scarey dream about having the penalty in chopping my leg off cause of that I had been stealing. So real it felt. But I know that the meds are making a mess of my head./Malin

I had a couple of terrible nightmares after my first surgery, something about some dark character in a cave coming after me, and I had guilt about something I had done.

Note: I had to edit my post because someone sent me a personal message. I made the mistake of not quoting your dream about having your leg chopped off for stealing. {{}}

I write and record music for fun. I've been doing it all my life.

Here's a link to one of my songs: http://www.youtube.com/watch?v=DupnZ6-xbz4
Title: Re: Amputation after MRSA
Post by: Lottiefox on November 02, 2012, 10:23:30 PM
Malin

Me (and the kitties  ;)) are cheering you on through this latest experience - you are one strong gal to be dealing with this and I know you'll get through it all and be strong. I hope the Skype girlie chat was good fun and the gentleman continues to cheer you! I am sure seeing one of your bestest mates will be awesome this weekend. I am sending more hugs and warmest thoughts for a peaceful night in your new isolation bit - probably boring but good if it means you'll be at lower risk of any nasty things getting at you.

Be safe Malin, take care

Hugs xxx
Title: Re: Amputation after MRSA
Post by: The KNEEguru on November 03, 2012, 08:14:46 AM
What a distressing outcome this has been.

With regard to nightmares, people all respond differently to anaesthetic agents and nightmares are not unusual.

KNEEguru
Title: Re: Amputation after MRSA
Post by: MDJ on November 03, 2012, 03:01:27 PM
38 CELSIUS THIS MORNING. ATE SOME SOUP AND BREAD. SLEPT MOST OF THE DAY.
ONE OF MY BEST FRIEND, IF NOT THE BEST IS HERE NOW. :)
THERE MIGHT BE HOPE.

THANKS FOR THINKING OF ME./ MALIN
Title: Re: Amputation after MRSA
Post by: Lottiefox on November 03, 2012, 11:25:49 PM
Malin,

Hope is out there - and he won't be leaving your door just yet! Hang in there girl, you're doing great. Enjoy your best buddy being there, lots of girlie laughter please and some happiness.

Big hugs xxx

PS Coz I know you're a music buff I thought you might like one of our cats getting jiggy with the beats.  :P

Title: Re: Amputation after MRSA
Post by: MDJ on November 04, 2012, 12:14:30 PM
AWW THANKS LOTTIE. VERY CUTE!

37.7 CELSIUS THIS MORNING. SHOWERED. MALIN IS FEELING BETTER! I HAVE ATE SOME TOO.
JUST MY KIDNEYS,SWELLING AND PEE DEPARTMENT THAT DOESN'T WORK WITH ME, MORE AGAINST ME.
MY FRIEND IS STILL HERE WITH ME. :)
/MALIN
Title: Re: Amputation after MRSA
Post by: sune on November 04, 2012, 12:47:52 PM
Keep up the good progress and good spirit!
Wishing you the best!
Sune
Title: Re: Amputation after MRSA
Post by: Snowy on November 04, 2012, 04:41:35 PM
Yay Malin! So happy to hear about this positive progress after all the recent difficulties. I hope this helps boost your spirits - and that the improvements continue from here. It must be great to have your friend with you keeping you company; having support through tough times is so important.

Here's to many better days ahead!
Title: Re: Amputation after MRSA
Post by: travelthomas on November 04, 2012, 05:44:26 PM
Glad to hear the improvements. Sending healing thoughts, calming energy, and seeing you playing sports.

I had a close friend helping me with meditations, and we would work on seeing me snorkeling at one of my favorite spots in the Caribbean. It really helped with healing my bones up fast, and I'm out of my brace already. Like you I was on a roller coaster of emotions, and if you can, picture the nicest place you can think of, and relax there.
Title: Re: Amputation after MRSA
Post by: Brambledog on November 06, 2012, 06:05:48 PM
Oh Malin  :-\

I found your thread after looking at stuff on MRSA for a friend who was worried, and I've read the lot. Made me cry for you and all you've been through. You are the toughest person to be dealing with all this so cheerfully, and I will be following you closely now and cheering on every little bit of the good news I hope is coming your way.

I 'know' (in a KGs way ;D) a lot of the people following and supporting you here, and they're a cracking bunch. I add my hope and support to theirs... Keep fighting all the bad stuff you've been dealt, the pendulum will swing the other way and some good stuff finally get you.

So glad to hear that your temperature is coming down, you managed a shower, and are feeling a bit more human again. Food too! Whoop!!!! Keep that friend there a bit longer  8)

Music is so important, especially so when you are in a bit of a 'stuck' point in life ::) I'm so impressed that you create it and give so many people that bit of joy. Hope you can do so again soon...

I have CRPS in my knee following a very simple surgery, which has spread to my foot and thigh, and I have some days where I feel very down with pain and it's pals. Thanks for dealing with so much so bravely and making me feel as though actually, I'm a very lucky gal. Hope you know what I mean. Just got a wheelchair myself to help with getting about a bit more, am hoping you can get out and use yours before too much longer!

I'm willing the good times to get a move on and find you again Malin, keep fighting.

Brams  ;)
Title: Re: Amputation after MRSA
Post by: Lottiefox on November 06, 2012, 07:05:46 PM
Malin,

How are things going? Hope you're having a more comfortable week.........sending many hugs as always and purrs from the kitties!

Lottie x
Title: Re: Amputation after MRSA
Post by: MDJ on November 06, 2012, 08:32:51 PM
BEEN SLEEPING AND PRODUCING MUSIC TODAY. MY FRIEND VERY DEAR WENT HOME TODAY.
YESTERDAY TOUGH TIMES. MY KIDNEYS WORK 20% AND 75% ALSO DUE TO OLD ABUSE, THAT I CAN'T MENTION HERE.
PLANS NOW IS INFECTION UNDER CONTROL, ADD UPP MY IMMUNESYSTEM AND PRAY AND HOPE FOR THE BEST OUTCOME.
WILL BE HEADING TO MY CITY IF PROGRESSING IN ABOUT 3 WEEKS.
IS EATING SOME ALSO NOW AND LOTS OF NEW MEDS. AND THE GENTLEMAN WILL BE HERE THIS WEEKEND WITH ME!!

THANKS FOR CARING SO MUCH!/MALIN
Title: Re: Amputation after MRSA
Post by: Brambledog on November 06, 2012, 09:20:48 PM
Hi Malin,

It's sad that your friend had to go, but great that the Gentleman will be arriving to brighten your mood! Glad you can eat more, that'll help strengthen you and your poor battered body. Hope the new meds work for you.

As for old abuse, we've all done stupid stuff. The past is the past.

I don't think you'll be short on hopes and prayers coming your way  :)

Brams  ;)
Title: Re: Amputation after MRSA
Post by: MDJ on November 08, 2012, 01:10:08 PM
THANKS BRAMS !  THE ABUSE THOUGH IS NOT MY OWN, I WAS BEATEN BADLY SOME YEARS AGO.

HAVING A DOWN DAY. DON'T KNOW IF THIS IS MEDS OR THE SITUATION.
FEELS LIKE I SLEEP,TAKE MEDS AND FIGHT AND START ALL OVER AGAIN.
MY INFECTION ISN'T BEATEN YET. WONDER IF IT EVER WILL BE.
SORRY GUYS NO FUN FROM ME. :(
/MALIN
Title: Re: Amputation after MRSA
Post by: Brambledog on November 08, 2012, 01:36:03 PM
So sorry Malin! Totally got the wrong end of the stick on that one, don't feel you have to explain yourself at all. You are not just strong now, but so often before... :-\ It just isn't fair. I think we all have stuff we would wish to forget, bad stuff happens to good people. And I rather think you count as one of the good ones  :) A big (((hug))) from Brams for the past and the present.

Hope you can find a good spot in the day, even if only for a few minutes, it's rough when everything is so bleak. Know that everyone here is rooting for you, and we're here for you in kinship. Don't ever give up on yourself, because you don't deserve that. You are strong, even if today you don't feel it.... :)

Brams  ;)
Title: Re: Amputation after MRSA
Post by: Rknees4 on November 08, 2012, 08:42:43 PM
Malin,
Hang in there.
Rest is important. It helps heal the body and mind.
A big Motherly (((HUG))) :-*
Rk4
Title: Re: Amputation after MRSA
Post by: Lottiefox on November 08, 2012, 10:32:41 PM
Malin

I have been absent a little die to work travel - hang in there. Down days are to be expected plus you're probably missing your good friend being around. the infection won't beat you. You're a fighter and we are all behind you. Hope things pick up for you a little tomorrow. I am on holiday for a week from tomorrow with no internet but I'll be trying to check in via facebook if I can on my phone and see how you're doing via N.

Big hugs from me and the mogs who are all in the cattery holiday home - already miss them!

Take care

xxxx
Title: Re: Amputation after MRSA
Post by: MDJ on November 09, 2012, 03:41:27 PM
THANKS FOR THE SWEET MESSAGES. :) HAVE A GOOD HOLIDAY LOTTIE!

MY TEMPERATURE HAS GONE UP AGAIN AND MOST OF TIME I'M SLEEPING.
I HAD ONE FRIEND VISITING TODAY WITH HOMEMADE BUNS AND LEMONADE. THAT WAS NICE.
DON'T KNOW WHAT IS GOING ON WITH ME AND I DON'T LIKE TO FEEL LIKE THIS WITH NO ENERGY.
I'M FIGHTING BUT SEEMS LIKE I LOOSE EVERYTIME I HAVE WON SOME. :( >:(
/MALIN
Title: Re: Amputation after MRSA
Post by: Brambledog on November 09, 2012, 04:24:04 PM
Hi Malin,

Sorry your temp has gone up again....that's not what you wanted  :-\ and definitely not what we hoped to hear! Homemade buns and lemonade sounds lushly though, and a little while ago you wouldn't have been able to enjoy them, so that's still worth a small  :) (Hope you are still able to have the odd one or two...)

It must be so tiring to keep on fighting with this beast Malin. But it WILL tire and give up, and you have to try to keep strong for that time so you can overcome it. Energy is hard to find when you're so poorly, but your will burns bright within you and will keep you going - plus of course all your friends, your gentleman, the KneeGeeks, and everyone who knows and thinks of you (bet there are a fair few ;)). So although the fight is yours alone, you have an army behind you, willing you on.

Hope I talk a good psychobabble there  ;D but I hope you know what I mean, it's sincerely meant.

I told my husband and older daughter your story, and now they ask about you everyday.... My husband just got in from work, came into the kitchen and said "any word on Malin? How is she today?" - so you see you do inspire that special something in people who have never even met you but still care....hope that helps  8)

So don't you give up girl.

Hugs and smiles,

Brams  ;)

Title: Re: Amputation after MRSA
Post by: Snowy on November 09, 2012, 06:24:58 PM
I'm so sorry to hear that you're still battling the temperature and infection. It's not surprising your poor body has no energy right now - it's been fighting so hard for so long. I hope that the lemonade and buns and friend time gave you a boost, and that the prospect of your gentleman friend coming to visit on the weekend is making you feel brighter. Hold onto the wins, and let them give you strength to get through the harder times. I hope you're able to distract yourself with music and company today.

You're in our thoughts here in Vancouver. xxx
Title: Re: Amputation after MRSA
Post by: tez27 on November 09, 2012, 07:48:57 PM
Malin so sorry things are till so hard for you at the moment, you have come through so much already and I'm sure you will continue to fight and win against this horrible infection....you are such a strong person and I'm sure you will look back on this whole period and be so proud of yourself for getting through everything with such a positive attitude..
Take care Tez 
Title: Re: Amputation after MRSA
Post by: silverghost on November 11, 2012, 08:35:22 AM
Hi Malin

I really hope your having a better weekend and that your gentleman has come to visit to keep you company..

Keep fighting through this and my thoughts and prayers are always with you through thisxx

Big hugs from englandxx

SGx
Title: Re: Amputation after MRSA
Post by: MDJ on November 11, 2012, 06:52:23 PM
THANKS FOR YOU FIGHTING WITH ME!

STILL HAVE TEMPS OF 38-38,5.
MY MOM WAS HERE TODAY. WE CELEBRATED FATHER'S DAY. MY MENTOR WAS HERE YESTERDAY.
EATING SOME MORE NOW. SO THERE'S HOPE.
SO TIRED. TOOK ME AGES TO WRITE THIS. /MALIN
Title: Re: Amputation after MRSA
Post by: Brambledog on November 11, 2012, 10:26:47 PM
But you did it Malin  :) lovely to hear from you

Having a tremendously crappy day myself, knee and foot are terrible, lots of silly tears and pain at the moment and not sleepin well which never helps, does it?! Malin, am glad to see your post and that you have been able to spend some time with your mum and your mentor recently. Lifts your mood to see loved ones and chat like a real person  ;) Bet it still feels like a pretty rubbish part of your life tho.... ::) Keep eating and fighting like you are though, things are maybe getting a bit better at last.

Thanks for the  :) I needed that, take care of yourself and look forward to hearing from you again soon

Hugs and good thoughts,

Brams  ;)
Title: Re: Amputation after MRSA
Post by: MDJ on November 12, 2012, 05:02:31 PM
THANKS BRAMS! HOPE YOU FEEL BETTER TODAY :-* AND THANKS TO ALL WHO IS FOLLOWING ME!

TODAY NO TEMP LONGER. WELL THE ORDINARY OR I WOULDN'T WRITE WOULD I ?? ;)
BEEN OUT A BIT FOR A WALK IN THE WHEELCHAIR TODAY. ASSISTED AS I'M STILL WEAK.
WAS COLD BUT DRESSED WELL.
MET THE PROTHESIS MAN ALSO. I HAVE NOT DECIDED YET IF I WILL HAVE OR GO WITHOUT AS MY STUMP IS NOT THAT LONG.
LET'S SAY IT'S DUE TO MY MRSA COMPLICATED AND I TREASURE LIFE MORE THEN HAVING 2 LEGS.
TIME FOR A NAP./MALIN
Title: Re: Amputation after MRSA
Post by: Lottiefox on November 12, 2012, 05:57:20 PM
Malin,

Got some mobile broadband on husband's Vodafone dongle over in Portugal (ooer) so am checking in on you....good work on the temp, am glad you got out for some fresh air and met with the prosthesis man. I guess there is no rush to decide on it, am sure they'll give you the best advice. Life indeed is more precious than two legs. Keep fighting, am getting updates from N on you too so was glad to read you're having a better day!

Big hugs xxx
Title: Re: Amputation after MRSA
Post by: Brambledog on November 12, 2012, 11:39:44 PM
Hi Malin!

So good to hear you sounding so upbeat - that fresh air is quite a tonic isn't it? :) Really pleased to hear you got that temperature down - well done, that was a rough time there. Hope this means you've finally turned the corner... I'll keep everything crossed for you and look forward to some more good news soon  8)

I can't imagine trying to decide whether to wear a prosthesis or not, but if there's any risk of MRSA again I understand your dilemma would be huge. Whatever you decide, you will still be you, and your friends will just be glad to have you well again.

Hope the nap was refreshing  8) and you have another good day tomorrow.

Brams  ;)
Title: Re: Amputation after MRSA
Post by: Snowy on November 13, 2012, 05:02:56 PM
Yay! I'm so happy to hear that you're winning against the infection, and that you felt well enough to go out for a wheelchair excursion. It must have felt wonderful to be out and about. Hopefully this is just the start, and it will be onward and upward from here.

Hugs and good thoughts. xxxx
Title: Re: Amputation after MRSA
Post by: sune on November 13, 2012, 05:24:17 PM
Hey Malin,

 I too check in on you, every day more or less. Great to hear you are improving, wonderful news! Keep it coming!

Sune
Title: Re: Amputation after MRSA
Post by: MDJ on November 14, 2012, 11:23:26 AM
THANKS FOR BEING HERE WITH ME FIGHTING. :)

ONE DAY UP THE OTHER DAY DOWN.
YESTERDAY OUT FOR WALK AND COFFEE. BEEN UP SOME ON CRUTCHES WHEN TO TOILET. :)
THIS NIGHT, BIG SEIZURE. BUMPED LEFT FOREHEAD SO AM BLUEISH KIND OF THERE. LOOKS GROSS.
MY LEFT HIP IS ALSO BRUISED. ::)
TODAY HEADACHE AND TIRED. GOING TO REST ALL DAY LONG.
/MALIN
Title: Re: Amputation after MRSA
Post by: Brambledog on November 14, 2012, 05:52:21 PM
Hi Malin!

So sorry you've had another seizure that's bumped you about - doesn't seem fair at all  :-\ My sister has very bad epilepsy, and although the meds keep her more stable now, she still has a realy nasty one every now and then and really knocks herself about. It really shakes her up for a couple of days. Go easy on yourself, you're doing great, setbacks are going to happen, but you've got many more good days to come.... :)

Yesterday sounds good though, brilliant job on the crutches! I went into town on mine today with my mum, feeling very sore and CRPS-y, but it was lovely to have a natter and a coffee, even if I couldn't browse ::) Must have felt great to get up and out, even if only down the hall!

Not surprised you've got a headache if you've managed to end up with a blue forehead, bless your cotton socks ;), I hope your head and hip and any other bruises settle and you can sleep ok tonight. Tomorrow is another day...

You're doing so much better than you were a few weeks ago Malin. Hang on to that thought. You're going to get well, I really believe it.

(((hug))) for the bruised but brave  ;D

Brams  ;)
Title: Re: Amputation after MRSA
Post by: dm on November 15, 2012, 02:54:46 AM
I've been following your story too... so glad to hear that you're doing much better! If you keep bumping your noggin, maybe you ought to take to wearing one of those martial arts sparring helmets when you sleep, then you would have some padding so you won't end up black and blue! Ow... poor head. Hopefully not so much headache from the bump.

Crossing my fingers for you that with the temp sorted, then that means you've finally turned the corner and are on the way to a full recovery! Here's hoping they can get the seizures locked down so that you can stop trying to turn yourself colors while sleeping, and that they don't decide you need a bed jacket next to make sure you stay put while sleeping... (don't show them this so they don't get ideas!)

Here's to continued improvement, so you can get on to full out rehabbing and get to going home!
Title: Re: Amputation after MRSA
Post by: Overdidit on November 15, 2012, 04:18:10 PM
Hi Malin,

I've been following as well and boy you've been through enough at such a young age.  HOWEVER, that young spirit has pulled you through.  I'm so glad to hear that your temp is down . . . .now stop bumping your head!  Your are in my thoughts more than you can imagine.  Keep up the good spirits!
Title: Re: Amputation after MRSA
Post by: MDJ on November 16, 2012, 11:22:09 AM
YESTERDAY WAS A GOOD DAY. I MANAGED TO DRESS ALL MYSELF, TOOK TIME THOUGH. BEFORE I CALLED A FRIEND.
THEN I SNEAKED OUT TO THE NURSES AND SAID, I'M GOING OUT FOR WALK AND COFFEE. THEY STARED AT ME LIKE UFOS.
MY FRIEND MET ME BY THE ELEVATOR AND I WHEELED DOWN MYSELF.
THEN AFTER 2 LOVELY HOURS SHE TOOK ME BACK.
PAYING FOR IT TODAY. 38,5 IN CELSIUS.  ::) BUT WAS WELL WORTH IT. I FEEL ALIVE AGAIN AND I WILL BEAT ALL THIS STUPID. :)
TODAY IS REST AND REST AND REST..... :-X

THANKS FOR ALL NICE MESSAGES. MAKES ME SMILE AND FEEL GOOD IN HEART AND SOUL. :-*
/MALIN
Title: Re: Amputation after MRSA
Post by: Brambledog on November 16, 2012, 12:30:46 PM
Whoop!!

 ;D :D 8)

So happy for you Malin, must have felt great to be independent again! Love the 'call a friend then sneak out for a coffee'.....Made me smile....

And she's BACK!!

Take care today though (we want your temp down!) and rest before you try any more stunts.... ;) That 'alive again' feeling is something you've waited and fought hard for. Well done  :)

Brams  ;)
Title: Re: Amputation after MRSA
Post by: JTB on November 16, 2012, 03:33:17 PM
Here's to more good days for you ahead! Great to read that you're feeling better Malin, I'm very happy for you, it makes me smile.
Title: Re: Amputation after MRSA
Post by: MDJ on November 17, 2012, 12:48:24 PM
THANKS BRAMS AND JTB! :-*

SLEPT MOST OF YESTERDAY. THEN "VERY" AWAKE LAST NIGHT. SO WE DID MUSIC ME AND ONE GUY OVER THE POND.
I HAVE CONTRACT WITH THEM OVER THERE. TURNED OUT GREAT AND WE WILL CONTINUE TONIGHT. :)
MY TEMP IS AROUND 38 TODAY AND MY BLOOD TESTS AREN'T THE BEST. BUT I KEEP BEING POSITIVE. I CAN'T DO ANY BUT THAT. :-\
I HAVE CAUGHT A COLD BUT EXPECT MORE TO COME AS I NEED TO BUILD UP MY IMMUNESYSTEM AGAIN.
NOW CROSS FINGERS TO THEY WILL BE HAPPY WITH ME ENOUGH NEXT WEEK TO SEND ME TO MY CITY. I DOUBT THAT WILL HAPPEN..BUT I HOPE.
BEEN UP ON MY CRUTCHES AGAIN AS MUCH AS I CAN.
STILL BRUISING, BUT GETTING BETTER SINCE MY BUMP. /MALIN

"POSITIVE THOUGHTS MAKE POSITIVE LIVING LIFE IN ANY SITUATION"

Title: Re: Amputation after MRSA
Post by: Brambledog on November 17, 2012, 04:27:03 PM
Hi Malin!

You're a marvel. I'm so glad you could makes music with your friend  :) I hope it goes well again tonight! And 38 is better than 38.5.....only 1 degree off perfection... You'll get there again Malin, I'm sorry you've picked up a cold, but then rejoining the world is going to inevitably mean you pick up bugs! Will cross my fingers that it passes quickly and you keep this upward path.

And as for the city....well, you never know.... ;)

Take care of yourself,

Brams  ;)
Title: Re: Amputation after MRSA
Post by: travelthomas on November 17, 2012, 08:08:29 PM
"POSITIVE THOUGHTS MAKE POSITIVE LIVING LIFE IN ANY SITUATION"

This is so true. I write down, "I am healing excellent" everyday, and find things to look forward to, like planning a trip this spring. Your mind has a lot to do with healing, and it's important to program it everyday with healing thoughts, so it sends out healing messages to the whole body.
Title: Re: Amputation after MRSA
Post by: Lottiefox on November 18, 2012, 10:21:36 AM
Malin

I am so pleased you managed to escape for a while. It must have felt wonderful. I think the positive thinking message is an important one but it can be hard when setbacks keep happening. You have dealt with all of them with so much dignity and courage. I need to drop N a message today now I'm back off hols too. I am looking forward to hearing your music, must have been good to start making it again with your contact. You're clearly a talented and a tough cookie!  ;)

Hope the cold isn't bothering you too much and you're doing OK today. Cold but sunny here in the UK. Do you have snow yet?

Hugs,

xxx
Title: Re: Amputation after MRSA
Post by: Snowy on November 18, 2012, 06:18:33 PM
So glad to hear about your excursion, and how well you're doing with the crutching. Keep those positive thoughts in mind - even though it's hard when things aren't going so well, they really are the best thing you can do for yourself. Your strength and determination continues to be inspiring, and I hope very much that it will pay off with enough of an improvement for you to go back to your home city.

Thinking of you. xxx
Title: Re: Amputation after MRSA
Post by: MDJ on November 19, 2012, 11:29:46 AM
THANKS FOR SWEET MESSAGES! :-*

LOTTIE, NO SNOW YET BUT CHILLY. :-X

CONFERENCE TODAY ABOUT GETTING ME "HOME" OR NOT. CROSS ALL YOU HAVE INCLUDING TOES, COUNT ON THAT! :P
TEMPERATURE DUE TO BLADDER INFECTION. ON LOTS OF FLUID AND ANTIBIOTICS.
MAKES ME RUN TO BATHROOM ALL THE TIME.(I CONSIDER ME RUNNING ON CRUTCHES NOW :P)
WEEKEND WAS MUSIC, SLEEPING, VISITORS AND RUNNING!
WRITE MORE TONIGHT./MALIN
Title: Re: Amputation after MRSA
Post by: Brambledog on November 19, 2012, 01:47:49 PM
All is crossed here Malin!  ;D

You sound so much more upbeat, I really hope you get your wish and they conclude that a bit of 'home' atmosphere might be good for you... Ouch on the bladder infection, they're nasty enough whn everything else is fine, let alone when you're fighting a one-woman battle! At least you can 'run' :o yourself now, lol, that must feel good in tis own ironic, bitter-sweet way.... Hope it clears soon.

Hugs and good thoughts for the conference,

Brams  ;)
Title: Re: Amputation after MRSA
Post by: tez27 on November 19, 2012, 03:01:09 PM
Malin I'm sending you all the good luck in the world.... fingers toes and anything else I can get crossed are crossed for you that you get the result from the conference that you wish for...its also so good to hear you sound so much better, that pesky bladder infection will be sorted out soon, it doesns't stand a chance against SuperMalin..
Take care Tez
Title: Re: Amputation after MRSA
Post by: Lottiefox on November 20, 2012, 09:13:42 PM
The SuperMalin - I like that!! Malin, I hope you're doing OK this week. Been thinking about you. How did the conference go about the next stages? I hope you can escape soon, I know you'll be nearer your great friend then too.

Hope the infection is clearing, and you're making some music and enjoying some coffee time..

Big hugs xxx
Title: Re: Amputation after MRSA
Post by: MDJ on November 21, 2012, 01:29:24 AM
THANKS TO BE THERE FOR ME :-*

IT ALL WANT LITERALLY TO HELL. I CAN'T EXPLAIN ALL RIGHT NOW RIGHT HERE. BUT IT HAS BEEN 2 DAYS OF CRYING AND FEELING SO VERY DOWN. I'M COMING CLOSER TO MY HOME BUT NOT IN THE WAY I WANT TO BE. AND THE ONE I HAVE HOPED FOR MUST HAVE PEED IN THE PANTS OR SOMETHING. JUST ACTING VERY WEIRD AND ALMOST ACCUSING ME FOR BEING A VERY HEAVY MENTAL THING. BUT I DIDN'T PICK THAT PERSON TO FOLLOW ME. HE DID THAT BY HIMSELF. WHY OH WHY DID THIS HAVE TO HAPPEN NOW ? AND WHAT DID I DO WRONG ?
WHAT CAN I DO MORE THEN TO BE ME ? IT'S NOT MY FAULT THAT I AM IN THIS MESS.  :'( /MALIN
Title: Re: Amputation after MRSA
Post by: travelthomas on November 21, 2012, 03:19:57 AM
{Hugs}
Title: Re: Amputation after MRSA
Post by: Brambledog on November 21, 2012, 09:47:32 AM
Oh Malin, I'm so sorry.

(((((hugs Malin)))))

There will be a better day than this one, even if that seems hard to believe right now. Whatever has gone so wrong, it isn't your fault. Be nice to yourself and know that so many people are thinking of you right now and wishing you nothing but good...

Hoping for hopeful things,

Brams  ;)
Title: Re: Amputation after MRSA
Post by: MDJ on November 21, 2012, 06:59:51 PM
THANKS THOMAS AND BRAMS! :-*

AM VERY SORRY IF I UPSET SOME WITH MY MESSAGE YESTERDAY. BUT I DIDN'T GET ANY GOOD NEWS. MY BLOODTESTS IS NOT GOOD AT ALL AND THEY THINK IT'S FANTASTIC THOUGH THIS THAT I FEEL SO GOOD. WILL REQUIRE A VERY LONG HOSPITAL CARE STILL. :(

HE IS BACK IN MY LIFE AND FEEL SORRY. HE SAID HE WILL BE THERE NO MATTER. :) :)

TODAY TAKEN COFFEE WITH A FRIEND AND SOON NOW TONIGHT WILL BE MAKING MUSIC WITH ACROSS THE POND AGAIN!

THERE IS HOPE, BUT I HAVE A LONG ROAD TO GO. DON'T KNOW IF I WILL BE HOME FOR HOLIDAYS. THE NEAREST WEEKS WILL TELL.

THANKS EVERYONE WHO IS FOLLOWING MY THREAD. I FEEL THAT YOU ARE THERE EVEN IF YOU DON'T WRITE. :-*
/MALIN
Title: Re: Amputation after MRSA
Post by: Brambledog on November 21, 2012, 07:21:02 PM
Phew Malin!  8)

Don't apologise! I'm just really pleased that you have been able to sort things out.

Sorry you're faced with a longer hospital stay, that's definitely not what you wanted to hear. It's good that you are managing to stay so positive considering yur blood tests aren't as good as your docs hoped... ???

But concentrate on the positive things. He is there for you no matter what. You have friends and coffee and music across the pond - and things are still better than they were a few weeks ago!! Keep at it Malin, I still have faith that you'll beat that horrible set of bugs...

Just a thought - I know hospital food can be kind of eek, and even with the best of intentions I can imagine that your vitamins etc suffer a bit. Are you allowed any extra food? I know you have to be super careful, but would they let you have sealed pack fruit and veg snacks etc, salads and the like? I know by the time I got out after three days I was desperate for vitamins and the first food I had was steak, salad and fruit!

Still (((hugs))) Malin, you're doing good!

Brams  ;)
Title: Re: Amputation after MRSA
Post by: mdk on November 21, 2012, 08:12:05 PM
THANKS EVERYONE WHO IS FOLLOWING MY THREAD. I FEEL THAT YOU ARE THERE EVEN IF YOU DON'T WRITE. :-*


We are, I assure you. As always wishing you nothing but the best. You're going to make it!
Title: Re: Amputation after MRSA
Post by: Lottiefox on November 21, 2012, 10:12:43 PM
Malin

Been following all of your updates. Sorry about the blood tests, but I am glad you're feeling better despite what they tell you. Longer stay in hospital sucks but you will escape one day and live out your life. You never need to apologise to any of us on here. We all think you're such a strong, brave, funny and warm girl with so much to offer the world. Make some good music tonight!

Thinking of you,

Lottie xxx
Title: Re: Amputation after MRSA
Post by: Snowy on November 21, 2012, 11:15:36 PM
Never apologise. You endure so much with such grace. We support you and cheer for you on the good days, but we're also here for those times when things go badly and you just need to vent and get it all off your chest. None of this is your fault and you bear it so well; I know I wouldn't be half so strong nor so positive in your situation.

I'm glad that your guy came around, but sorry about the blood tests and what they mean for the length of your stay in hospital. I hope that tonight's music-making is a good distraction.

K x
Title: Re: Amputation after MRSA
Post by: MDJ on November 22, 2012, 03:17:28 PM
THANK YOU SO MUCH. BRING ME ALMOST IN TEARS TO THINK ABOUT HOW MANY SWEET PEOPLE YOU ARE THAT CARE FOR ME OUT THERE, EVEN YOU HAVE NEVER MET ME. :-*

LAST NIGHT WAS LATE MAKING MUSIC. SO MUCH FUN! :)
TODAY HAS BEEN WHEELCHAIR ALL DAY. MY KIDNEYS MAKES ME HAVE LOTS OF FLUID IN SOME BODYPARTS AND ESPECIALLY IN MY STUMP. >:(
SO GET SO MUCH PAIN WHEN UP, THEREFOR USING THE WHEELCHAIR. MY KIDNEYS ARE WORRYSOME. THEY SEEM TO WORK LESS DAY BY DAY. :-X
TO BE HONEST RIGHT NOW I LAY ALL MY FUTURE IN THE HANDS OF THE DOCS. I AM SO VERY FEED UP WITH BEING SICK AND INJURED, SO I JUST TRY TO NOT THINK SO MUCH ABOUT IT AT ALL. SCAREY TO FEEL LIKE THAT. (THE TEARS ARE FLOODING NOW...OH MY WHY IS IT SO HARD... :'()

WRITE MORE LATER...JUST CAN'T RIGHT NOW..../MALIN
Title: Re: Amputation after MRSA
Post by: Lottiefox on November 22, 2012, 04:47:20 PM
Malin

Wish I could give you a hug. You are so brave, hang in there. Those kidneys need to start behaving......I shall cast a lottie spell on them to buck up their ideas....

With hugs,

Xxxxx
Title: Re: Amputation after MRSA
Post by: Brambledog on November 22, 2012, 05:33:46 PM
(((((((Hugs Malin))))))

If we could take all this misery away and make everything work properly we would in a heartbeat. It's awful being powerless to help those you care about :-\

To be honest Malin, I can't believe how well you are dealing with all this. Of course you feel awful and tired and miserable sometimes. It's so unfair that you are having to deal with this crap every day.

Sometimes things go wrong to an extent we could never imagine, and that is when inner strength comes to the fore. I think nearly all of us would manage somehow, because the alternative is unthinkable. But you have such a positive and selfless attitude, and a determination to keep going even through the bleakest of times. Those things are what makes us all will you through every day of this, even though we've never met. We want you better  :)

Crying is good sometimes, it lets out some of the bad feelings so you can raise your chin and face another day. But try not to despair, everyone there and here wants you to get well. This is a setback, but things will improve again. This too will pass.

I send you a  :) and a (((hug))), hope they help a tiny bit.

Brams  ;)
Title: Re: Amputation after MRSA
Post by: MDJ on November 23, 2012, 12:03:05 PM
THANKS BRAMS AND LOTTIE! :-*

I'M FIGHTING ALL THAT I CAN AND I DO ALL I'M TOLD, YET THOSE KIDNEYS DOESN'T WANT TO DO THEIR WORK AS THEY SHOULD.
SO EXHAUSTED AND SO TIRED. WILL HAVE CLOSER CHECK UPS AND TESTS OM MONDAY. THEY WILL TELL IF I'M MOVING CLOSER TO HOME OR NOT.
WHAT KEEPS ME UP IS EVERYONE CHEERING FOR ME. I GOT A PHONECALL YESTERDAY FROM MY IDOL, A PERSON THAT I HAVE HAD AS ROLEMODEL ALL MY LIFE. THAT WAS SO UPLIFTING.  :)
I HAVE BEEN DOING HANDBIKING THE LATEST DAYS TO MUSIC. THAT FEELS SO GOOD IN MY BODY.
TIME FOR A SHOWER AND FRESH UP A BIT FOR FRIDAY. WILL HAVE SOME COMPANY TONIGHT.
IF ANYONE FEELS TO BE CLOSER IN CONTACT, IM ME AND MAYBE WE CAN CHAT OVER MESSENGER.
THANKS FOR BEING HERE FOR ME. MEANS TO MUCH. /MALIN
Title: Re: Amputation after MRSA
Post by: MyKnee2010 on November 23, 2012, 01:34:25 PM
Hi Malin,

I just wanted to say I'm another person cheering you on! I read your messages every day & am rooting for those kidneys to wake up & start doing their part in your recovery! I can only imagine what it's like to be in the hospital this long but know that someday you will be out & can start to live your life again! It's so great you can do your music in the hospital - something to connect you to your regular life.

I'll keep reading your messages & even if I don't post please know that we are sending you all the hope & well wishes we possibly can!

Phoebe

Title: Re: Amputation after MRSA
Post by: Brambledog on November 23, 2012, 02:43:14 PM
Hey Malin,

Wow that phone all must have felt amazing! Hope the endorphins and adrenalin gave you a little buzz...  8)

Those kidneys of yours are pesky things, they'd better sharpen their act up pretty darn quick or we'll have to have a word.... Even with that worry and everything else, you're sounding more upbeat and perky - good for you (I breathed a little sigh of relief!). Well done with the handbiking, aerobic exercise is good for the soul as well as the body, lol. Have a great shower and I hope you have a lovely evening :)

I'm off out tonight myself to a friends house for tea. Should be a bit mad getting both families together there - they are still decorating after having a big extension done!! Talk about suckers for punishment! We had them here a couple of times while the worst of the building work was on, and I cooked a massive stew - washed down with lots of vino and some chocs we had some good times. Will be a good evening - don't know what to wear though!! ;D

We'll keep cheering you on Malin, never doubt it. You deserve a break. Several in fact.

All fingers and toes will be crossed for your tests on Monday. Keep going girl, you're doing fab :)

Brams  ;)
Title: Re: Amputation after MRSA
Post by: dm on November 23, 2012, 05:21:55 PM
It's not you - it's them. People choose to do weird things - often at the oddest times. Just focus on yourself and what you need to do for you. You don't have the time, or energy, to worry about other people's dramas. They'll just have to grow up, be adults, and sort themselves out. You don't have the extra energy to focus on why others do what they do.

What matters right now is taking care of yourself, no matter what. It's frustrating as all heck when people around you act like total babies, but you can't control it, you can't fix it, and you can't make them do anything they don't want to - so don't spare the effort to try. Just tell them that this is how it is, and if they can't deal - to take a hike and to not come back until they get their head on straight!

You've got a lot of support out here, and other friends who do support you, so you can tell the whiners to go shove off - you don't have to put up with it, you just  can't take it right now.

Hoping you feel better soon, and get into a better head space - go play or make some music, and put the troublemaker out of your mind!
Title: Re: Amputation after MRSA
Post by: Snowy on November 23, 2012, 07:50:59 PM
Given the battle you're still fighting with your kidneys and the fluid build-up, I'm amazed (and awed) by how much you're doing. Handbiking, making music, seeing friends, fielding exciting phone calls - you're packing so much into your days in spite of your health issues. I really hope that all of your effort pays off and you'll get the news you've been waiting for on Monday. If it doesn't, the only reassurance is that you're in the right place for the doctors to give you the care that will eventually make you well enough to get home.

As always, sending support and thinking of you.
Title: Re: Amputation after MRSA
Post by: FMRCathelete on November 23, 2012, 11:33:44 PM
Malin,  I've just found your thread and my heart goes out to you.  I am so happy to see you had such a great moment with your idol.  I'm sure that meant the world to you and I hope the feeling can stay with you for a long while and help you through this.  I hope those kidneys get working soon so you can feel better.  Keep making music and keeping your soul happy.  Hugs to you-A
Title: Re: Amputation after MRSA
Post by: Rknees4 on November 23, 2012, 11:50:08 PM
Hang in there Malin.
Here is a hug for tomorrows fight.(((HUG))) :)
Rk4 :-*
Title: Re: Amputation after MRSA
Post by: MDJ on November 24, 2012, 01:42:36 PM
I'M OVERHELMED WITH ALL SWEET MESSAGES AND CHEERING FROM YOU. SO GRATEFUL TO HAVE YOUR SUPPORT. THANK YOU! :-*

SAD IS THAT I DON'T HAVE ANY GOOD NEWS EXCEPT FOR GOING TO A HOSPITAL NEARER HOME. MY KIDNEYS WORKS LESS AND LESS.
I AM VERY TIRED AND SLEEP MOST OF THE TIME. I JUST DON'T HAVE ANY ENERGY. EVEN IF THEY TRY EVERYTHING THE KIDNEYS DON'T WANT TO FUNCTION.
I NEVER THOUGHT AN SIMPLE ACCIDENT WITH SLIPPING COULD END THIS BAD OFF.
JUST HAVE TO FIGHT, THAT'S ALL I CAN DO. CRYING A LOT.
HAVE SOME SWEET FRIENDS HERE THIS WEEKEND. WE MAKE SOME MUSIC AND WHEN I GET TIRED THEY STAY WITH ME NEVERTHELESS AND IS HERE WHEN I WAKE UP./MALIN
Title: Re: Amputation after MRSA
Post by: Lottiefox on November 24, 2012, 01:54:24 PM
Malin

I am sorry your kidneys are not starting to work better. It must be good to have your friends with you and I am so happy you got to speak to one of your music idols. You're obviously a talented and a brave girl. Keep fighting. We are all cheering you on. Sleep when you need to and enjoy the times you're awake. Hang on in there

Lottie xx

PS the cats send their love too. xxx
Title: Re: Amputation after MRSA
Post by: Brambledog on November 24, 2012, 05:32:05 PM
Oh Malin, I'm so sorry they couldn't give you better news  :-\ You are having such a rough time, I will keep hoping that you get that break soon and can turn a bit of a corner again. Just know that we're all thinking of you and firmly believing in that strength you have to just keep going and keep hoping.... At least you can move a bit nearer home, that's one bit of good news at last.

(((((Hugs Malin)))))

I know you and N will have a good time tonight, even though things are not as cheery as we all hoped. Enjoy yourselves together and we will be with you somewhere in the room, laughing at you trying to decide who gets that last slice of pizza... ;D

Keep strong when you can, and leave the rest of the time to those that love you and want you well. Which is all of us. Never give up, we're behind you all the way through this horrible time.

Brams  ;)
Title: Re: Amputation after MRSA
Post by: MDJ on November 25, 2012, 11:44:18 AM
THANKS LOTTIE AND BRAMS! :-*

I HAVE HAD A GOOD WEEKEND WITH MY FRIEND. I LONG FOR TOMORROW TO KNOW FOR SURE THAT I WILL BE CLOSER TO HOME.
AM MOVING TO THE NEW APARTMENT IN MIDDLE OF WEEK ALSO. SO THERE'S SO MUCH.
I ALSO NEED TO MEET THE GENTLEMAN FINALLY. SO LOOK FORWARD TO THAT. HOPE HE LIKES ME AS I AM.
IT'S SO HARD TO LOOSE SO MUCH AS I HAVE DONE AND BE ABLE LOOK AT MYSELF AND LIKE ME.
EMOTIONS ARE ROLLING OVER ME NOW. I HAVE SOME TEMPERATURE, BUT THEY SAY NOTHING TO WORRY ABOUT.
I HOPE SO. EVERYTIME I FEEL DIFFERENT OR BAD IN SOME WAY, I FEEL SO SCARED. SCARED OF LOOSING MY BATTLE.
BUT WITH YOUR HELP I WILL WIN. I JUST HAVE TO. I HAVE SO MUCH WAITING FOR ME.

WITH MUCH LOVE/MALIN
Title: Re: Amputation after MRSA
Post by: Brambledog on November 25, 2012, 12:44:10 PM
You have indeed Malin :)

I'm not surprised your emotions are all over the place given everything that is happening to you... Try not to read too much into every change, your poor body is going through the wringer and every system in your body is having a tough old time  :-\

I have no idea what you look like, but when you see yourself in that mirror Malin, love and like yourself. We all do. Who gives a crap about the rest of it, I have a little mental image of you anyway (which I bet is laughably wrong, lol!) and you look fine to me  ;D We all have physical stuff about ourselves that we hate, but most of the time other people don't even notice the little things - they see the whole of the person that they know. You've lost your leg, but you haven't changed inside, and that's what matters most. Plus, I've seen some pretty cool stump covers and wheelchairs and crutches and the like. I can imagine you blinging things up nicely once you're feeling a bit better!

My teenage daughter is on the lookout for some stuff to bling mine up with, teal sparkly paint etc (she's very artistic and has done some fantastic drawings), and she's going to paint some wheel covers which I can't wait for!! I'm so lucky in that I only have to use mine if I'm doing any kind of distance or shopping and stuff, but I still want the thing to look good. I've also seen some crutch handle covers (I've had painful hands now I've started use mine again sometimes) called C9's. They are bright orange  :o but have really good reviews, designed by an engineer to prevent pain, blisters etc from crutch use. I thought of you when I saw the ad, but am highly tempted to get a pair.

I've got to go as my mum is on the phone! Have a good day Malin, will be thinking of you.

Brams  ;)
Title: Re: Amputation after MRSA
Post by: FMRCathelete on November 25, 2012, 05:07:26 PM
Malin, I so hope tomorrow brings you what you wish for.  You've been through so much and do deserve a world of good.  You are obviously a beautiful person and anyone who doesn't see that is not worthy of you.  I am so happy that you have such wonderful friends that continue to support you and stay at your side.  Your body has been through so much, try not to worry about things, esp if the doctors aren't worried, is normal for temperature changes with all your body has endured.  I am glad you let yourself sleep when you need to.  Please know there are so many people thinking of you and wishing that your kidneys come back good as ever and let you get back to life.  You are right, you have a world of opportunity waiting for you, just keep fighting & we'll keep cheering you on.  Big ((((hugs))))  Cheers-A
Title: Re: Amputation after MRSA
Post by: Lottiefox on November 25, 2012, 09:57:17 PM
I am glad you had some good times with your friend this weekend. PIzza is a good healer.  :-*  I hope also that tomorrow brings good news on moving to nearer to home and I am excited about you meeting the gentleman. How could he NOT adore you from the first time he sets eyes on you? Such a strong, funny, music making woman. You may have changed when you look in the mirror but your heart hasn't changed. You're still you, it is just that the visual bit is different. I know it must be so hard to deal with everything that is happening and I guess it is also really scary - I too would be crying plenty in your situation. We have to let the tears out. We won't let you lose the battle now, I still want to see you up on that stage making music.

Sleep well Malin, we're all thinking of you for tomorrow and good news

xxxx
Title: Re: Amputation after MRSA
Post by: travelthomas on November 25, 2012, 10:18:56 PM
{hugs} Marlin,

Avoid proteins and salts for your kidneys (I'm sure you've heard this already).

Write positive thoughts down daily. "I am healing wonderfully today."  ;D

Crying releases stress hormones, and it also rids the body of toxins, and according to some it also cleanses the soul.

Love your stump. I had a friend in college with four stumps (he was born that way because of a sleeping pill his mother took), and he was a very happy person, and the wildest driver in his vehicle with a joy stick. He went on to become an engineer for IBM. It's not the things that happen to us in our lives that make us suffer, it's how we react to them.

I'm having all kinds of fun in the stores in my wheel chair. I can really race around, and I'm looking forward to learning how to walk again, it's like a second childhood.  ;D

A quote from a friend's grandmother, "The events in our lives that make us cry are the one's most worth living, and hopefully the sad ones are few, and the joyful ones many."

Find the joy and focus on it, and no matter what, your life will be filled with joy.

Oh, and thank you for the tears, I cried a bit when you posted about your boyfriend acting grumpy. Matters of the heart do that to me, and I can always use a cleansing.

Title: Re: Amputation after MRSA
Post by: MDJ on November 26, 2012, 05:22:26 PM
VERY TIRED. DIDN'T WANT TO TELL BEFORE BUT ALL IS WELL NOW.
HAD A PICC LINE INSERTED. THEN I HAVE HAD SURGERY TODAY ALSO. I HAVE HAD A WOUND FOR A LONGER TIME ON THE BACKSIDE OF MY STUMP. IT WAS CLEARED FROM MRSA SINCE LONG BUT NOT HEALING. THEY TOOK SKIN FROM MY LEFT THIGH TO FIX THE OPEN WOUND.
WAS NERVOUS ALL SUNDAY! :-X
MUST SLEEP NOW....IF OK TOMORROW I HEAD NEARER HOME WEDNESDAY.

THANKS FOR THINKING OF ME. WILL READ IT TOMORRONW./MALIN
Title: Re: Amputation after MRSA
Post by: Brambledog on November 26, 2012, 05:39:25 PM
Hi Malin,

Wow, another surgery, you poor girl, I'm not surprised your emotions were all over the place.... Glad you are through it safely  :) Just a bit more healing to go now. Will have everything crossed for you to go closer to home on Wednesday, bet you can't wait...

Will be thinking of you. Husband sends his best as well  :)

Brams  ;)
Title: Re: Amputation after MRSA
Post by: Snowy on November 26, 2012, 05:39:38 PM
Thank goodness all went well! I hope that the PICC line helps with your treatment, and that the leg wound starts healing up now that it has new skin on it.

I'll be keeping my fingers very tightly crossed for good news about your hospital transfer. I know that getting closer to home must feel like such a huge milestone given how long you've been waiting.

Along with everyone else here, I'm sending you strength and determination and positive thoughts for the ongoing battle. With the exception of N we've never met you, but we've all grown to know your spirit through this thread and you can see from recent replies what tremendous respect and care we've developed for you. When you look in the mirror, focus not on what you've lost but on how much you still have to give the world and to look forward to in your own life. Think of how you've inspired people from all around the world to wish you well, cheer you on during the good times and send their love and support during the bad times.

Fingers crossed for good news soon. xxx
Title: Re: Amputation after MRSA
Post by: Brambledog on November 26, 2012, 05:43:44 PM
Hear hear. Well put Snowy.  :)
Title: Re: Amputation after MRSA
Post by: Lottiefox on November 26, 2012, 06:59:43 PM
Good news on coming through the surgery OK, no wonder you were spooked a little over the weekend. You've been through such a massive amount. I hope the graft helps the healing now and you can get some rest and plan your move.

With many big hugs as always, Snowy says it so well, I echo her thoughts.

xxxx
Title: Re: Amputation after MRSA
Post by: dm on November 27, 2012, 07:52:37 AM
Glad to hear that last little surgery tweak went well, and I too add in a "Yay" for getting to move to a hospital closer to home. Crossing my fingers for you that it happens on schedule.

Watch the diet - have lots of veggie on pizza and not so much meat to help watch the salt for your kidneys, as much as your friends may complain! I'm sure you're looking forward to the move to a hospital where more of your friends can visit, which can only help improve your mood!

Remember - it's not our "packaging" that defines who we are - its our heart, soul, and spirit - and you've certainly got a brilliant one - and if people are too dense to see that - then you don't need them cluttering up your life.

If you are open to the philosophies of different religions - some say that our bodies are just clothing for the spirit, and we borrow that clothing for the experiences we gain on this turn in the wheel of life - the soul learns from the experiences of the life lived and takes those experiences on to the next turning of the wheel - so - in a nutshell - as others have said - it's not the outside that matters, and here's just another reason why!

So... with a soul like yours - who has the strength to hold up to so much endured in this life - if someone can't look past the physical to see the "real" you... it is THEY who are nuts!  I'm rooting for you along with everyone else here - you keep on fighting - you're on the homestretch, you've almost got it licked!!! Keep on going lady, you're amazing!!! ;D :D
Title: Re: Amputation after MRSA
Post by: YogaGirl on November 27, 2012, 02:26:20 PM
Hey Malin, I've been absent online lately, but still thinking of you!

So glad the latest surgery went well and that there was no MRSA!!!! And, you get to move into the new apartment soon, thats amazing! Keep up the good fight, the music, the positive thoughts... You really are an inspiration for all of us.

Let us know how the move closer to home igoes, its almost here. Good luck!!
Title: Re: Amputation after MRSA
Post by: MDJ on November 27, 2012, 03:28:26 PM
LITTLE FROM ME.
THE NIGHT WAS HORRIBLE AS THE EPIDURAL DIDN'T WORK. THEY HAD TO RE-SET THE CATHETER TWICE. SO SPENT THE NIGHT AT ICU.
PAIN WAS SO HARD ON ME. SO I JUST CRIED STRAIGHT OUT AND THAT'S NOT COMMON FOR ME.
AFTER THAT I SLEPT SOOO GOOD BACK IN MY ROOM.
THIS AFTERNOON WITH LOTS OF HELP AND PLASTIC ALL OVER I HAVE GOTTEN MY HAIR FIXED AND A SHOWER( I LAY DOWN WHEN I SHOWER).
I FEEL SO GOOD NOW, EVEN PUT ON A SOFT BLACK DRESS. DAMN FORGOT MY HIGH HEELS. :)
SO EXHAUSTED NOW. BUT I HAVE A SMILE BACK!

THANKS FOR BEING THERE FOR ME, WRITING ME, I OWE YOU!
/MALIN

TIME FOR ZZZZZZZZZZZZZZZZZZZZZZZZZZZZZZZZZZZZZZZZZZZZZZZZZZZZZZZZZZZZ
Title: Re: Amputation after MRSA
Post by: Brambledog on November 27, 2012, 03:52:07 PM
Woohoo!!!!  ;D :D 8) Well done Malin for getting through the last 48 hours so well - must have been hard to say the least. I'm really pleased you're feeling so much better, and washing your hair, having a shower and putting on a nice soft black dress are fantastic things to do. They make you feel good  ;) Bet you look and feel fab now?!

A good cry is cathartic, washes away some of the bad stuff (I may have said that before, lol, but it's true) and leaves your soul fresh and ready to face the world again. You go get 'em girl!!

Hope you have a wonderful evening now, but go easy and no wild parties with dancing and alcohol....at least not just yet  ;) Keep those Jimmy Choos shiny though.

 :)  :)  :)

Am so happy for you. Can't wait to tell my J!

Take care of yourself now and sleep well. One step at a time, you'll get there.

Brams  ;)
Title: Re: Amputation after MRSA
Post by: Overdidit on November 27, 2012, 06:45:21 PM
Oh Malin that is great news!  It's the little things that makes you feel better isn't?  I am scheduled for the 8th knee surgery in 6 weeks and I am dreading it . ..Keep your spirits up .  You're doing great!
Title: Re: Amputation after MRSA
Post by: mdk on November 27, 2012, 09:58:24 PM
Sorry about the pain, but glad to hear you got some sleep afterwards. I know how much that's helped me just in the last few days, so I hope it's helping you too. Hang in there! Keep that smile for as long as you can, and always remember that it's coming back sooner than you think.
Title: Re: Amputation after MRSA
Post by: JTB on November 28, 2012, 02:34:11 AM
Hi Malin,

Have been regularly following your blog but mostly trying to stay out of the way so the wiser folks here can give you their good advice and support. You have been going through so much. What to say? You are behaving admirably.

I was severely injured in an accident a number of years ago and was off the charts with pain for several hours (no morphine) and afterward became intimate with pain, so I maybe know a little about what you're talking about and I maybe know a little about that sense of relief on the other side of that experience and about the importance of routine. I wish you ease. 

You are a fine, strong person. 
Title: Re: Amputation after MRSA
Post by: MDJ on November 28, 2012, 11:11:41 AM
YOU MAKES ME ALMOST CRY WITH ALL NICE WORDS. BUT IT'S GOOD TEARS. THE TEARS OF JOY. THE TEARS OF THAT SOMEONE CARES NO MATTER WE HAVEN'T MET. :-*

EVEN THOUGH I HAVE A BIG FIGHT A BIG BATTLE STILL FOR A LONG TIME I'M SMILING.
AFTER THE SURGERY I HAVE FELT GOOD. SPIRITS UP AND I SEE THAT I HAVE MORE ENERGY IN ME THEN I KNOW.

HE CALLED YESTERDAY AND WE HAD THE BEST TALK EVER. I KNOW HE WAITS FOR ME AND WE TAKE ALL AFTER HOW I FEEL.
TO HEAR THAT AND KNOW HE HAS INTEREST STILL IS VERY FLATTERING. 8)

I AM HANDBIKING TODAY. THAT IS THE PHYS I CAN DO RIGHT NOW. RIGHT STUMP IS IN A PACKAGE, LEFT THIGH IS IN PACKAGE, IS TILL HAVE THE EPIDURAL AND THEN THE PICC LINE. LOOKS CHARMING!!

ONE OF THE GREATEST ARTIST IN MY COUNTRY, ALSO DEAR FRIEND COMES TODAY. I HAVE ORDERED A SPECIAL CAKE.
NOT ALLOWED TO BE OUT NOW DUE TO INFECTION RISK AND I'M NOT GONNA PLAY WITH MY BODY.

NOW ALL EXHAUSTED AFTER WRITING. LUNCH THEN SLEEP..../MALIN
Title: Re: Amputation after MRSA
Post by: MDJ on November 28, 2012, 11:14:04 AM
OVERDITIT, GOOD LUCK WITH YOUR SURGERY! YOU CAN DO IT!/MALIN
Title: Re: Amputation after MRSA
Post by: Brambledog on November 28, 2012, 01:03:06 PM
Hi Malin!

Bless your Gentleman, he does lift your spirits  :) I'm so happy that you are feeling upbeat and still powering on....good for you. I've said all the gushy stuff before  ;D but I still think you're amazing. Keep going, if anyone can beat all this crap you've had chucked at you, it will be Malin. She's pretty awesome.

Excellent news on the handbiking, and The Visit of The Artist - hope the cake is lovely and goes down well... :)

Have a wonderful time Malin. I'm sure it'll be great, a visit is always nice!

Take care and keep it up,

Brams  ;)
Title: Re: Amputation after MRSA
Post by: YogaGirl on November 28, 2012, 01:39:24 PM
Cake, showers, handbiking, dresses and artists! Sounds like things are definitely improving for you, I'm so happy! Every day, one step at a time. Glad that you're spirits are up and you are getting to be a little more active! Keep it up!!
Title: Re: Amputation after MRSA
Post by: MDJ on November 29, 2012, 10:26:39 AM
THANKS BRAMS AND YOGAGIRL! :-*

I FELL ASLEEP EARLY YESTERDAY BUT WOKE UP AND HAVE BEEN VOMITING ALMOST ALL NIGHT. SO DECIDED TO SLEEP IN A BIT THIS MORNING.
THERE CAN BE DIFFERENT REASONS WHY I FELT SICK. ALL MEDS, MY KIDNEYS, EXHAUSTED. BUT IT'S BETTER NOW.
MY BLOODTESTS WAS A BIT BETTER YESTERDAY FOR THE FIRST TIME. MY DOC CAME SHINING LIKE A SUN!

TODAY IS PACKING ALL MY BELONGINGS! I HAVE SOME. MY FRIEND, YOU KNOW WHO SOME OF YOU, HER SON AND HIS FRIEND WILL COME PICK UP THE THINGS FOR ME AND DRIVE THEM DOWN TODAY. OF COURSE I PAY THEM WELL!

TODAY I WILL JUST REST FOR THE REST OF THE DAY. WELL TAKE A SHOWER AND WOUNDCARE. BUT THAT'S ALL.

WE HAVE SOME WHITE ON THE GROUND. KIND OF NICE. :)/MALIN
Title: Re: Amputation after MRSA
Post by: Brambledog on November 29, 2012, 11:17:28 AM
Hi Malin,

Sorry you've had such a rough night, hope the morning is being a bit kinder  :) Even with all that, you must be excited about finally getting out of there and moving closer to home and your special friend. The journey will probably be tiring, but a nice bit of wintry sunshine and blue skies, and seeing different things will get you through. You should be proud of yourself for getting this far after everything you've been through.

Whoop whoop and a little clumsy Brams dance on getting some better blood results  ;D Must have been lovely to see your doc beaming like that with something good to let you know, bet he enjoyed it!

Yes it does look pretty doesn't it? Nice here too this morning, if a bit cold......brrr....

Take care of yourself today. Wagons roll tomorrow!!!!!!

Hugs as ever,

Brams  ;)
Title: Re: Amputation after MRSA
Post by: MDJ on November 30, 2012, 07:29:19 PM
THANKS BRAMS! :-*

MOVED MORE HOME IN CITY NEAR HOME. DAY BEEN HARD. MY EPIDURAL STOPPED WORKING EARLY THIS MORNING.
THEY COULDN'T RESET IT AND DRUGGED ME DOWN. GOT PROBLEMS BREATHING AND VOMITING.
AFTER WORKING WITH ME I GOT BETTER. THEN 3 HOURS ON THE ROAD.
NOW FINALLY THE EPIDURAL IS BACK. I HAVE BEEN IN SO MUCH PAIN. :'(
...ZZZZZZZZZZZZZZZZZZZZZZZZZZZZZZZZZZZZZZZZZ/MALIN
Title: Re: Amputation after MRSA
Post by: Brambledog on November 30, 2012, 10:39:44 PM
Hi Malin!

And she has MOVED!!!! Yay!!!!! Well done, that was one tough day.... :-\ I'm so sorry you had so much trouble with your epidural and ended up having a nightmare with your breathing and your stomach poorly as well. Sleep sounds like a damn good idea for now....

I wish you a peaceful, cotton wool cloud wrapped night of cool and star-lit slumber. And that you wake refreshed and stronger.

So glad you have finally got there  :D Closer to your friend, closer to home, closer to where you want to be. Enjoy the new view and fresh surroundings  :)

Hugs and good thoughts x

Brams  ;)
Title: Re: Amputation after MRSA
Post by: MDJ on December 01, 2012, 02:44:03 PM
THANKS BRAMS! YOU ALWAYS PUT A SMILE ON MY FACE IN THE WAY YOU WRITE. :-*

HAVE SLEPT MANY HOURS. THEY DID GIVE ME MOST IVMEDS INSTEAD OF WAKING ME UP NOW AND THEN.
HAVE HAD EXTRA OXYGEN THE WHOLE NIGHT. FEEL MUCH BETTER NOW.

MY FRIEND WAS SUPPOSED TO SEE ME TODAY, BUT AM TO TIRED FOR THAT AND SHE'S NOT OK EITHER. AND I DO CARE FOR HER.
WATCHING A FUNNY MOVIE NOW AND WILL ORDER DELIVERED PIZZA TONIGHT. DON'T KNOW HOW MUCH I WILL EAT, BUT THAT'S WHAT I FEEL FOR.
TOMORROW WE WILL LOOK OVER MY WOUNDS AND I WILL ALSO SHOWER. BACK TO RESTING NOW./MALIN
Title: Re: Amputation after MRSA
Post by: Brambledog on December 01, 2012, 05:20:22 PM
Awww Malin... ;D That's made my day. Such a nice thing to say!

So glad you've had a decent sleep at last and are feeling so much brighter. Watching a funny movies with pizza is a great plan - when I'm feeling a bit down I always try to watch or listen to something funny, perks me up no end to have a good laugh! I'm sorry your friend can't be with you tonight, I know she's having a tough time herself. So nice that you have each other for support and encouragement when you're both going through the mill with your leg troubles... Friends are just about the most valuable thing you can have  :)

Hope it is all good news when your wounds are checked tomorrow, and that you enjoy that shower!

Have a good evening with your pizza night and don't let all your nurses eat it. That delicious smell just gets everywhere and all the patients will want some as well!

Take care of yourself. If you speak to your friend, give her my best and tell her I'm thinking of you both x

Brams  ;)
Title: Re: Amputation after MRSA
Post by: Snowy on December 01, 2012, 06:19:07 PM
I'm sorry to hear the journey was so tough on you, but really glad that you're closer to home and ready to begin the next phase of your recovery. Enjoy your pizza and a quiet night, and I'll be keeping my fingers crossed that all goes well tomorrow.

xxx
Title: Re: Amputation after MRSA
Post by: Lottiefox on December 01, 2012, 06:22:15 PM
I can echo Snowy in being glad to hear you've moved safely although the pain sounds pretty traumatic. I am glad they've got it under control and I hope you can enjoy a little of the pizza. Rest up, must be good to be nearer to your friend now. Been following how you've been doing so apologies for not posting, been a busy week. Hoping that the next week brings a little more pain respite and settling in to your new abode!

Take care Malin, am thinking of you,

Hugs xxxx
Title: Re: Amputation after MRSA
Post by: captainruss on December 01, 2012, 08:31:39 PM
Hi Malin,

My name is Russ and I am in St. Petersburg Florida.  I just found your post and have read a good portion of your epic struggle.  I have said a prayer for you and really find myself humbled by your courage!  I can take comfort in reading about you when I start feeling sorry for myself as you are a real inspiration!

I am condidering having my right leg amputated above the knee.  Doctors keep telling me that I should have the knee fused and live with it.  I know you had MRSA and were not left with much of a choice.  My problem is I have a choice.  I don't mean to trouble you with my small problems, but thank you for telling your story. 

I worry that I am wearing out my hip and lower back.  I have never had surgery on my hip, but it is so painful that I cannot lay on my right side at night because my hip hurts so much.  As for my back, I have had multiple spinal fusions L2-L5 and Cervical spinal surgery also.

I want you to know I am thinking about you and hope that getting closer to your home helps. 

Russ
Title: Re: Amputation after MRSA
Post by: newyorkcityknees on December 02, 2012, 02:24:07 AM
Dear Milan,  I just read all of your post's I am new to this site.  In my 68 years I had the pleasure of meeting many people and traveling around the world.  I play classical music and can relate to how music helps you.  In reading about your courage I am rivited to the computer.  I was a teacher by trade and I am taken to new heights by the beauty of your words and the way you face life.  I do not write music, just play what others write, but I have a close friend who lives in West Virginia that plays both hard rock and acoustic and writes his own work .  Before I posted this I called him and asked him to read your posts from start to finish.  He called me back and said he wants to write a song for just you.  He works weekends in a number of clubs in Washington D.C.  West Virginia and Maryland.  He will be coming to New York in about a week and should have the song ready, then he will write directly to you on this site if that is OK so he can get the song to you.  His name is Jay Powell, I am not sure of his web site, but he has a fantastic gift of reaching out and touching people with his music.  I am going out soon but when I get back home I will say a prayer for you and light a candle that will glow all night in my apartment window just for you.  I firmly believe that the light from that candle will find its way over the oceans, mountains and to your heart and if that light gives you a smile just for a few seconds it will be worth everything.  You have so much to give I can feel it in the simple yet powerful words that jump out to me on my computer.  Sleep well and know that in a few hours a candle will be glowing in my window five thousand miles away but its light will find its way to you.  Good music and good thoughts.
Title: Re: Amputation after MRSA
Post by: dm on December 02, 2012, 03:01:27 AM
Glad to hear you finally got moved closer to home! Yay! Now you can have more of your friends come see you and encourage you on the road to getting home!  :D :D

Bummer the trip over was rough and am glad they gave you enough meds to make you comfortable enough that you felt up to pizza and a movie the next day! That's a good sign...

You've been a huge inspiration to so many people with your story, have you considered creating a facebook page so you can update everyone with as much detail as you'd like, and maybe even share some of your music? I know you've got a huge list of fans who'd love to share with you! If you do have a FB page, and want to let us all in on it... do tell! You do know you can create a page that's not your personal FB page... so you can have a page dedicated to your "special journey" separate from your personal one. Just an idea for you for when you can't sleep in those long hours of the night... and have "musician's block" too....

Hope you continue to keep feeling better and better, and looking forward to hearing that you finally will get to meet your "Gentleman" friend! You've got everyone anticipating the announcement of the event like its the big secret on the daytime drama show! (we're all excited for you!!)
Title: Re: Amputation after MRSA
Post by: MDJ on December 02, 2012, 12:57:52 PM
THANKS EVERYONE OF YOU FOR WRITING TO ME AND BEING THERE WITH ME IN MY FIGHT. :-*
I WILL HAVE TO GO BACK LATER AND READ EVERYTHING CLOSER. MY HEAD IS NOT WORKING WITH ME NOW. SORRY FOR THAT.
JUST WANTED TO UPDATE YOU.

LONG MORNING FIXING WITH MY WOUNDS AND SHOWER. GOOD NEWS. THEY ALL LOOK AS THEY SHOULD AND THE DOCS ARE PLEASED WITH ME. :) :)
TO BE SO NEAR HOME IS FANTASTIC. ONE OF MY FRIENDS THAT I HAVEN'T MET SINCE BEFORE MY ACCIDENT,SHE WORKS AT THE HOSPITAL, CAME TO ME YESTERDAY. WE CRIED TOGETHER AND I GOT A BIT SAD, BUT IS BETTER NOW AGAIN. WAS GOOD TO SEE HER.
I'M STILL ON EPIDURAL AND WILL FOR SOME MORE DAYS. THEN AFTER THAT I WILL KNOW IF HELL BREAKS LOOSE OR NOT OF PAIN. :-\

TODAY MY FRIEND'S SON IS COMING WITH SOME OF MY THINGS. MUSIC EQUIPMENT ETC.  :) HE IS A SWEETIE! JUST 18 AND ALSO MAKE MUSIC. WE ARE PLANNING TO DO SOME TOGETHER IN THE NEARBY FUTURE.

NOW I'M TIRED. I GET BACK TO ANSWER YOUR QUESTIONS AND THOUGHTS LATER.
/MALIN
Title: Re: Amputation after MRSA
Post by: Brambledog on December 02, 2012, 02:23:29 PM
Hi Malin!

Wahey!!!!  ;D Fantastic news that all your wounds look as they should, you must have been so pleased! Also good that your epidural is doing its job better - will have everything crossed when they see how your body deals with the more free-range pain meds  ;)

Also fab that you have seen another friend there at the hospital, I can imagine that being very emotional for you both to see and talk about what has happened to you since you last saw each other, but cathartic too. It is always going to be a bit sad when friends initially see you after everything you've suffered, simply because they care about you so much, but once you are past that they will accept and love the new Malin just the same as the old  :)

Enjoy your music-making if you can get to do any later - bet it'll be nice just to have it there wth you though!!

Today has been a good day (as Julia Roberts said in Notting Hill) - lovely to see lots of  :) :)

Brams  ;)
Title: Re: Amputation after MRSA
Post by: JTB on December 02, 2012, 07:53:10 PM
Yeah Malin!

It's raining here in California and we have a fire going with the dogs laying close enough to warm their bellies, while I torment them with my bad guitar playing!
My point is, it's good to be home and playing music!
Title: Re: Amputation after MRSA
Post by: newyorkcityknees on December 02, 2012, 08:59:33 PM
It is a cool rainy day here in New York City, I spent last night praying for you.  I usually keep music on when I go to sleep,but I found I could not connect with prayers so I turned off my music.  I live in an apartment in Staten Island New York.  We were hit pretty hard by the hurricane, and so many people are without homes, without electric and lost all.  I wnted to do something other than watch the news, your story inspired me, so I got my new manual wheelchair and went four blocks to a community center where we sorted out toys for tot's so that as many children as possible will get Christmas presents.  I got some generic note cards and in several of the toy's I wraped I wrote on the cards, Pray for Milan, a girl far away who needs your prayers. I hope that on Christmas morning some of the children who get the presents that I wraped will show the cards to their parents and pray for you.  I am not religous, but I know there is a higher power looking out for you who only wants the best.  I will be calling my friend Jay this evening and will see hiow the song is doing he is writing for you.  I had a good day yesterday but today imy pain is off the nchart.  I too had major kidney problems from medications and was in hospital twelve days before the doctors got my kidneys working.  It really scares you and the poisen that builds up in yor body can play tricks on your mind, I remember some of the worst nightmares I had was when I was hospitalized when my kidneys stopped.  The doctors were able to get them started again without dylasis, the idea of bein literally tied to a machine every other day really scared me.
I recall reading a book in University, I was a Phylosophy and Religion major, and it delt with pain, chronic pain, and the author who I fogot by name said that when his pain went off the chart (he was badly burned) he though of those people he had wronged and sent the pain up to his creator as payment for those he hurt.  He said that in some way it gave meaning to his pain and he could get through even the worst day's.
I have not heard your music but I can tell by the crisp focused writing you do that there must be tremendous emotion and love of life in your music, and I am sure that the experience you are going through now will only make your creativity increase as you, unlike most people know what it is to truly fight for your life.  Rest well, sheep well and have good thoughts and you will come through these dark days and see the light as bright as the fresh snow outside your window.
Title: Re: Amputation after MRSA
Post by: Babsy_Boop on December 03, 2012, 06:01:00 AM
Malin - I have just read your posts and feel the need to tell you that I am also praying for you from Phoenix, AZ.  I also experienced a badly broken knee but not the complications that you have had; I am humbled by your determination and strength.  If you need encouragement, you say it and many return it for you as you are such an inspiration to one and all.  Please continue the good fight; I am praying that your labs, your recovery, and your kidneys get into line for you and start to make things easier.  I do understand about the chronic pain.  After reading through your notes, I realize that you are in a marathon and not just a sprint.  Try to be kind to yourself, keep comfortable to help with healing, and funny movies do help too!  I look forward to a time for you when you will look back at all of this from a better place; I know you will help many with your story.   B
Title: Re: Amputation after MRSA
Post by: captainruss on December 03, 2012, 03:37:12 PM
Malin,

I am not sure if you participate in the Christmas holiday as we do in the US, but I hope this holiday season is a happy one for you and very much a healthy one!

I tried to take my children (teenagers) on our first ever cruise as a family (actually my wife's and my first cruise in 22 years of marriage) last December, but due to one of my failed surgeries, I had to go in a wheel chair as I still had staples and was too weak to use a walker most of the time.  My point is traveling is so tough after surgery.

I am hoping to make it up to them.  It was supposed to be a five day cruise, but the ship was late returning for bad weather and so we only went for three days and one port, as the other stop was canceled.

I hope your travel goes well.  We are traveling 1250 miles to see my daughter's knee doctor after Christmas.  A long way to go for a doctor, but he is excellent.

What genre of music do you like to compose and play??

Russ
Title: Re: Amputation after MRSA
Post by: MDJ on December 03, 2012, 08:30:06 PM
THANKS SO MUCH FOR SUPPORT. :-*

OFF EPIDURAL IN SO MUCH PAIN. :'(

BRAMS, YOU ARE AMAZING! THANKS! :)
JTB, KEEP WORKING ON IT. WOULD BE NICE HEAR YOU.
RUSS, I MAKE ELECTRO HOUSE MAINLY. BUT I CAN DO OTHERS TOO. I LIKE TO DO SOFTER MUSIC TOO.
BABSY_BOOP, THANKS FOR YOUR KIND WORDS.
NEWYORKCITYKNEES, IF YOU WILL BE BACK. YOU REALLY DID HURT MY FRIEND. AND SHE IS RIGHT. I DON'T LIKE TO READ THINGS LIKE THAT. YOU DID HURT ME TOO. BE CAREFUL WITH OTHER PEOPLE PLEASE!

AM SO TIRED. SO MUCH PAINMEDS BUT WISH THEY COULD HELP MORE. BUT THE EPIDURAL IS NOT GOOD TO KEEP AFTER HAVING MRSA.

ZZZZZZZZZZZZZZZZZZ.../MALIN
Title: Re: Amputation after MRSA
Post by: Snowy on December 03, 2012, 09:57:17 PM
Oh Malin - I'm sorry that you're in such pain after having the epidural taken out. I hope that being closer to home and your friends brings some comfort while you adjust to the new pain medications, and that the pain levels improve once you've had a bit more time to get used to the changes.

I'm really glad to hear that your doctors are happy with how the wounds are progressing. I hope this means the MRSA is finally beaten and that you can focus on healing and getting out of hospital for good. How are the kidneys doing?

Thinking of you here in Vancouver, and as always sending you strength.
Title: Re: Amputation after MRSA
Post by: Lottiefox on December 03, 2012, 10:09:24 PM
Malin,

Been following, and getting updates. I am sorry you're having such pain without the epidural. It must be exhausting. Have all fingers crossed that it settles down soon and you can get back to making some music and enjoying pizza again. I bet it was wonderful to see your friend's son and get some music equipment. You're such a strong lady, we are all behind you on here and cheering you on.

Hope you get some rest and some respite from the pain tonight,

With hugs xxxx
Title: Re: Amputation after MRSA
Post by: Brambledog on December 03, 2012, 10:57:35 PM
Hi Malin,

Hang on in there girl. You are right about the epidural, they need to give your body a break from it if they can. I will cross everything and hope that your pain subsides as your system gets used to the new meds routine... Must be so so tough, but you can do it if anyone can  :-\

Now Malin the electro house music dude I can imagine  8) I have happily zoned out to that kind of music in my youth  ;D and more often than I probably should have as a mum, lol. Have you been able to try buzzing yourself through one of your tracks (or an imaginary one) as you lie there, and try to zone out of that pain for a couple of minutes and breathe into it. That's worked for me before, at least it's let me relax all those tensed up muscles for a moment and regroup...but then I've never had to deal with intense pain for as long as you are having to.... I'm there with you in spirit if you want company, offload to an imaginary Brams if it helps a bit..

I'll be thinking of you, and hoping that you (and that tired but resilient body of yours) gets through this tough time and out of it into a happier place very soon. Hold tight.

((((hug from Brams))))

Take care Malin x

Brams  ;)
Title: Re: Amputation after MRSA
Post by: MDJ on December 04, 2012, 02:15:15 AM
CAN'T SLEEP. TO MUCH PAIN. :(

TO WORN OUT FOR EVERYTHING RIGHT NOW.

SNOWY, ONE OF THE KIDNEYS IS COMPLETELY OUT. THE OTHER ONE WORKS TO 80%.

JUST ONE WISH FOR THE HOLIDAYS. TO FEEL BETTER. HEALTH IS EVERYTHING!
Title: Re: Amputation after MRSA
Post by: MyKnee2010 on December 04, 2012, 02:23:59 AM
Hi Malin,

I'm sorry to hear your pain level is so high! I wish there was some  way to help! Of course you have all our wishes & healing thoughts coming out to you! 

Phoebe
Title: Re: Amputation after MRSA
Post by: MDJ on December 04, 2012, 02:34:29 AM
I GOT ONLINE HERE CAUSE I KNOW MANY KNOWS HOW IT IS NOT TO BE ABLE SLEEP.
I TEXTED AND TALKED WITH MY FRIEND A BIT THAT LIVES NEAR HERE. SHE HAVE TO STAY AWAKE CAUSE OF ALL PAINMEDS.
SO SHE IS BAKING GINGER ALE COOKIES AT 3.30 AM!
Title: Re: Amputation after MRSA
Post by: MDJ on December 04, 2012, 02:36:23 AM
ANYONE WANT TO CHAT ?
Title: Re: Amputation after MRSA
Post by: kcknee on December 04, 2012, 02:36:44 AM
Hi Malin-
 
I haven't posted on your thread before, but am also out here in the US praying for you and hoping that your pain will ease up so you can recover and go home to your good friends. Keep fighting. These days will pass and you will have your happy life filled with music and friends back again.

Kristin
Title: Re: Amputation after MRSA
Post by: tez27 on December 04, 2012, 02:39:43 AM
Malin I am sending  pain killing vibes your way tonight, I'm sorry your in so much pain, I really hope it improves soon and you start to feel a bit better, good news on the move closer to home, that is at least a small step in the right direction.
You have so many people willing you to feel better and wishing along with you for better health this Christmas
Take care and keep strong
Tez xxx  
Title: Re: Amputation after MRSA
Post by: MDJ on December 04, 2012, 02:43:27 AM
HI PHOEBE, KRISTIN AND TEZ! THANK YOU! :)

YOU ARE TO A BIG HELP FOR ME. EVEN I HAVE FRIENDS HERE AMONG ME, YOU MORE UNDERSTAND. AND OF COURSE MY FRIEND NETTAN HERE DOES. :-*

IT'S NIGHT HERE ALMOST 4 AM, COLD AND SNOW.
Title: Re: Amputation after MRSA
Post by: MyKnee2010 on December 04, 2012, 03:38:51 AM
Hi Malin,

I don't know if you're still online but if so, I'll chat with you if you tell me how to IM.

Phoebe
Title: Re: Amputation after MRSA
Post by: emergRN on December 04, 2012, 04:48:44 AM
Hi Malin,

I haven't posted here before, but I too have been following your thread!  I just wanted to let you know that you are a very brave person, and your strength is mind blowing!  I really hope that your pain levels get under control very quickly, and that you can get some much needed relief!  Stay strong!  You have a lot of people rooting for you on KG!

W
Title: Re: Amputation after MRSA
Post by: Brambledog on December 04, 2012, 08:54:42 AM
Hi Malin,

How are you doing now? I really hope you got a little rest at some point last night. So sorry you are suffering so much with everything that's going on  ??? I actually slept last night on a fug of new meds plus old, first time for ages and of course ironically I feel wiped out. Madness. If I could send you a box of sleep and a bottle of no pain I would... :-\ I'm sending another cyber (((hug))) x

One of your kidneys not functioning must be scary news, but the other at 80% is pretty good, people can happily live with one if they need to - and your other kidney might rejoin the game again when it has less to fight against...poor things have had a lot of work to do lately  :-\

I can so imagine your friend Nettan making cookies in a sleepless night  :) and ginger ale ones sound lip-smackingly good... mmmm. You two gals are such fighters, you deserve better than this crap. I'm not religious myself, but I'm willing things to turn that corner toward healing and health - for both of you. Youre so roght, health is everything. May we all feel better this Christmas! Cold and snow at 4am sounds magical, like one of those kids films, as long as you're snug and warm of course  8) Hope you can see something out of your window there, it makes such a difference if you have something to watch, even if it's just sky... What's your view like? I hope it's nice.

Gosh I'm having to spend ages thinking and correcting this morning! If I just typed and didn't review this would be completely illegible drivel today...Instead of just drivel ::)

Malin, I hope today brings better news and less pain. I'll keep hoping that every day. Keep strong, you're doing amazingly well coping with this, I am filled with admiration.

Take care,

Brams  ;)
Title: Re: Amputation after MRSA
Post by: Lottiefox on December 04, 2012, 09:37:00 AM
Malin

I hope you managed to get some rest last night. No snow in the UK at least not here - Scotland have had some this week though. Sorry your pain is so high and you feel so exhausted. WE are all behind you. Hope you have a peaceful day and perhaps N will bring in some of her cookies? I wish I was nearer - ginger ale cookies sound goooooooood!

Big hug Malin, take care. xxx
Title: Re: Amputation after MRSA
Post by: MDJ on December 04, 2012, 12:55:39 PM
SNOWING! HOOKED UP ON PAIN PUMP. NOT DOING SO WELL. THEY WILL TRY GIVE ME A BLOCK THIS AFTERNOON.
PROBLEMS WITH PAINMEDS CAUSE OF KIDNEYS. SEEMS LIKE I'M ALLERGIC TO SOME MORE THEN I KNEW.

HI W! THANKS!
PHOEBE, I LOGGED  OFFCAUSE I DIDN'T UNDERSTAND HOW TO FIX THIS CHAT. IF YOU HAVE MAYBE WE CAN TALK OVER MESSENGER. IF SO IM/PM ME.
BRAMS. HI! HEARD YOU WRITE WITH N. COOL! IM/PM ME IF YOU WANT MY MAILADRESS. I CAN SEE THE WHOLE CITY FROM HERE! NICE NIGHTTIME.
LOTTIE, N IS NOT WELL AND WE GOT LOTS OF SNOW. WILL SEE HER LATER THIS WEEK.

TIRED NOW....ZZZZZZZZZZZZZZZZZZ/MALIN
Title: Re: Amputation after MRSA
Post by: Brambledog on December 04, 2012, 03:34:46 PM
Hi Malin,

Glad you've got a cool view out of the window, makes a difference, much better than starting at some grotty picture on a hospital wall!

Sorry you're still feeling rubbish with all the pain, I hope that pump starts to work, or that this block can give you some relief. Pain is so relentless, so tiring, and shreds all your thoughts and plans. I can't do anything but will you on, and hope that your doctors can get it under control quickly for you.

Keep hanging in there Malin x

Brams  ;)
Title: Re: Amputation after MRSA
Post by: Rknees4 on December 04, 2012, 04:39:37 PM
Malin,
Here is a (((hug))) for another day of fighting.
Know that we all care. :)
Rk4
Title: Re: Amputation after MRSA
Post by: MDJ on December 05, 2012, 02:36:48 AM
BRAMS AND RK4...HERE'S FOR YOU :-*

I GOT A PAINBLOCK AND TOGETHER WITH PAINPUMP PAIN IS FINALLY BETTER.
WIDE AWAKE EATING. AM HUNGRY. HAVEN'T EATEN FOR 2 DAYS ALMOST.
AM EATING RICEPORRIDGE WITH CINNAMON,SYRUP AND MILK AND WATCH THE SNOW FALLING DOWN OVER CITY.
WE HAVE GOTTEN LOTS AND ALL AROUND BEAUTIFUL CHRISTMAS LIGHTS.

IT'S BEEN 2 ROUGH DAYS AND EVEN IF YOU ARE HERE FIGHTING WITH ME, I CAN'T THANK YOU ENOUGH...DEEP DOWN THIS IS A LONELY FIGHT I NEED TO TAKE ON MY OWN WITH MYSELF, PAINFUL MEMORIES THAT COMES BACK FROM ANOTHER TIME YEARS AGO.

"I AM NOW AND FOREVER ME
NOONE ELSE CAN I EVER BE...."
/MALIN
Title: Re: Amputation after MRSA
Post by: Brambledog on December 05, 2012, 09:15:54 AM
Thanks Malin!  :D

I am so relieved for you that the pain is finally subsiding and you are feeling a bit more like yourself. Must have been a nightmare time. Phew! Your description sounds so cosy and snug, I can just imagine you smiling at last and eating something delicious, watching the snow fall and the Christmas lights.... 8)

Long may this last. Food will give that body of yours some energy and weapons to fight the battle for you to get well. Make sure you drink lots of fluids now to go with it....no beer though  ;)

And yes, oh yes. You are who you are. And that's pretty good :). What happens to your body doesn't affect that, but it hurts and makes you feel bad for a while. It will pass.

(((((((((BIG relieved hug!!!))))))))

Enjoy a better day - you deserved this!

Brams  ;)
Title: Re: Amputation after MRSA
Post by: Snowy on December 05, 2012, 03:21:25 PM
I'm so glad to hear that your pain is under control and your appetite is back. Enjoying food again is a really good sign.

Don't let the memories beat you down. You've been so strong through all of this - we've all seen that here on the thread. You had the strength to get through the bad time in the past, and you'll find the strength to win this fight too.

Hoping for you that getting the pain under control without the epidural marks a new phase in your recovery. Hopefully you'll be able to take a trip outside and see the snow in person soon.
Title: Re: Amputation after MRSA
Post by: Lottiefox on December 05, 2012, 04:50:03 PM
Malin

Glad to hear that you felt up to eating something - I am a big fan of porridge too. Good soul food. Hope the block and pump keep the pain at bay and it starts to settle back down again. You are such a fighter in all of this. I saw a pic that N posted of the snow and it looks significant! The UK has had a little today and of course everything grinds to a halt...schools close, trains stop.....all for about 2mm of flakes. We are useless with snow every time it happens!

Hope you have had a restful day,

Lottie xx
Title: Re: Amputation after MRSA
Post by: Nettan on December 06, 2012, 01:51:51 AM
Please keep Malin in your thoughts. She is not doing well today again and really is fighting./Nettan
Title: Re: Amputation after MRSA
Post by: Snowy on December 06, 2012, 02:42:41 AM
Oh no. Thank you so much for keeping us in the loop, but I'm really sad for Malin that things have taken a turn for the worse today. Please send her our love and let her know that we're keeping her in our thoughts. I hope that tomorrow will be a much better day for her.
Title: Re: Amputation after MRSA
Post by: JTB on December 06, 2012, 06:06:22 AM
Even though I don't post a lot, I'm always following your thread Malin and pulling for you and thinking good things about you. It saddens me to hear you're suffering (more) again.

"I AM NOW AND FOREVER ME
NOONE ELSE CAN I EVER BE...."               You said it best and it's true. You have so much fineness in you.
Title: Re: Amputation after MRSA
Post by: MDJ on December 06, 2012, 09:51:24 AM
NO GOOD DAY. JUST TALKED WITH NETTAN. SHE WILL UPDATE YOU WHEN I CAN'T.
SWELLING AND TEMPERATURE. NOT HAPPY :'(

MALIN
Title: Re: Amputation after MRSA
Post by: Lottiefox on December 06, 2012, 11:41:09 AM
Malin

So sorry to hear that you're struggling. Thinking of you and sending lots of healing thoughts to you.

{{{{Hugs}}}}

Lottie xx
Title: Re: Amputation after MRSA
Post by: silverghost on December 06, 2012, 01:42:44 PM
Keep fighting Malinx

A big hug from england to you.

SG
Title: Re: Amputation after MRSA
Post by: Overdidit on December 06, 2012, 05:26:56 PM
Keep Smiling Malin . . . .Keep fighting  .  .. .isn't the snow peaceful?  We are UNUSUALLY WARM here in the states.  I love watching the snow fall . . . . .I hope it snows a lot when I have my surgery .  . . I don't feel so bad being stuck in the CPM machine then.  I can then sit in the window and watch the kids play outside in it!  Keep up your spirits.  .Sending virtual hugs . . . . . :'(
Title: Re: Amputation after MRSA
Post by: Brambledog on December 06, 2012, 05:30:46 PM
Oh Malin  ???

Sorry the temperature is up again, and that awful swelling is back - just hang in there, and remember that you have many friends thinking of you and wishing you better times. I will be thinking of you and crossing my fingers that this is something your doctors can get under control quickly.

Take care Malin, and here is another Brams special ((((((HUG)))))) for you.

Come on life, give our Malin some peace from this now.

Brams  ;)
Title: Re: Amputation after MRSA
Post by: Snowy on December 06, 2012, 06:51:16 PM
Stay strong, Malin - it's been a tough period for you with the long journey and switching from the epidural to the pain pump. Keeping my fingers crossed that your docs get things under control and are able to bring your temperature and the swelling back down. I'm so very glad that you have Nettan there with you. Wishing you strength and better days very soon.

K
Title: Re: Amputation after MRSA
Post by: MDJ on December 07, 2012, 01:35:21 AM
THANKS FROM DEEP OF MY HEART. :-*

OVERDITIT,WENT SURGERY WELL ?

NEW INFECTION HERE. THIS TIME PNEUMONIA. SO VERY SENSITIVE NOW. GET EXTRA OXYGEN. FEELS GOOD.
SLEPT MOST OF THE DAY.
/MALIN
Title: Re: Amputation after MRSA
Post by: Snowy on December 07, 2012, 06:42:18 AM
Oh no, Malin - pneumonia? That seems so very unfair after all you've been through already. I'm so sorry that you're facing this new fight on top of all the other things that you've been battling. It sounds like you're in good medical hands and the docs are doing what they can to help you, and your body knows what it needs to heal: sleep is so important when you're fighting infection. Hang in there. Keep pushing back. Keep fighting. We're all with you in spirit and I just wish we could do more to help you through this.

K & J in Vancouver xxxx
Title: Re: Amputation after MRSA
Post by: Lottiefox on December 07, 2012, 10:20:39 AM
Malin

I am so sorry you have pneumonia set in. You must be exhausted by all of this and your body is doing the right thing in sleeping. I too wish we could do something more significant to help but know we're thinking of you all over the world. Keep fighting girl, you've got the strength to beat this.

With hugs and love from England xxxx
Title: Re: Amputation after MRSA
Post by: Brambledog on December 07, 2012, 11:13:31 AM
Oh Malin...

I'm so sorry, pneumonia is tiring to say the least, breathe in that oxygen and sleep as much as you can while your poor system heals. You have been through so much Malin, your whole body is exhausted, and rest and sleep are what you need. I want to grrr and shake my fist, but all I can do is tell you how much I wish you well again, and that I am thinking of you every hour of this. You don't feel strong at the moment, but every single person on this thread of yours is testament to how strong you are, and how much you mean to virtual strangers, let alone to your friends and family. You are precious to us Malin, hang in there while we all do our own versions of praying for you....

((((Careful Brams hug))))

Think of all those thoughts as a gossamer web cradling you while you sleep. Soft as snow falling, light as thistledown, strong as steel  :) and as hopeful as a candle flame in the dark...

Brams  ;)
Title: Re: Amputation after MRSA
Post by: MDJ on December 07, 2012, 12:00:13 PM
THANKS TO YOU ALL FROM ME :-*

BIT BETTER TODAY. BEEN SLEEPING TO LUNCH. WEIRD IS THAT THOSE WHO WORK HERE ARE ALLOWED WORKING WITH COLDS. I THINK I GOT MY COLD FROM THERE. >:(
BACK TO REST,SLEEP,MOVIES AND LISTEN TO MUSIC. A FRIEND PROMISED TO COME SHORTLY WITH SALAD TONIGHT, TUNA, LOVE THAT! :)
/MALIN
Title: Re: Amputation after MRSA
Post by: Brambledog on December 07, 2012, 02:07:46 PM
 ;D Good for you Malin!

So glad to hear you sounding a bit brighter and looking forward to a tuna salad  ;) I completely agree, nurses or doctors working with colds is madness, especially around someone who has already got quite enough to deal with already! Hope you feel less coldy soon and things even out a bit...

Have a lovely evening with your friend and I hope you both get some  :D in there along with the salad and movie!!

Brams  ;)
Title: Re: Amputation after MRSA
Post by: Snowy on December 08, 2012, 02:30:47 AM
Very glad to hear that you're doing better today. You'd think the hospital would take precautions with staff who obviously have colds, especially with patients who are known to have struggling immune systems. I really hope that you've turned the corner on this latest setback, and that things continue to improve from here.
Title: Re: Amputation after MRSA
Post by: MDJ on December 08, 2012, 12:46:10 PM
THANKS BRAMS AND SNOWY! :-*

WAS A GOOD EVE YESTERDAY BUT AM EXHAUSTED TODAY. STILL PROBLEMS BREATHING.
SEVERAL FRIENDS CAME AND WE DRANK ALCOHOLFREE MULLED AND SPICED WINE AND DID SOME ELECTRONIC CHRISTMAS MUSIC!
TODAY JUST SLEEPING AND BE, BUT TONIGHT SOMEONE SPECIAL WILL COME.../MALIN
Title: Re: Amputation after MRSA
Post by: Brambledog on December 08, 2012, 01:29:15 PM
Hi Malin, glad you had a lovely night yesterday, not surprised you're tired today considering everything going on  ::) but am so happy you have someone special coming tonight!! Soooo intrigued.... ;D

Will have all fingers and toes crossed that your evening is special. Have a good rest this afternoon so that you are on sparkly form later.

Good to hear you got some festive music-making done yesterday! Any sleigh-bells involved? ;)

Brams  ;)
Title: Re: Amputation after MRSA
Post by: Snowy on December 08, 2012, 05:44:16 PM
Electronic Christmas music sounds much more appealing than the regular kind. :)

I hope tonight is a very special night for you. You deserve it. :)

K
Title: Re: Amputation after MRSA
Post by: KartBoy on December 08, 2012, 10:09:19 PM
Good to hear you can have alternative forms of medication from time to time, at least you were exhausted for a good reason, I love Tuna salad too.

Title: Re: Amputation after MRSA
Post by: MDJ on December 09, 2012, 12:06:13 AM
THE EVENING WAS... :-* :-*
JUST NEED TO BEAT ALL MY s**t NOW!
IF YOU WANT TO KNOW MORE PM ME...YOU KNOW WHAT I MEAN!
/MALIN
Title: Re: Amputation after MRSA
Post by: Snowy on December 09, 2012, 01:47:59 AM
:) :) :) :) :) :)

So happy for you. :)
Title: Re: Amputation after MRSA
Post by: tez27 on December 09, 2012, 04:02:41 AM
Malin so so happy you have had a good day and things went well, I'm thinking maybe your gentelman friend had something to do with it all, you deserve to be happy and healthy and I predict that exactly what you shall be, if I had a magic wand I would make sure all your health problems would vanish overnight, but untill I find one just keep fighting the good fight exactly as you have been and before you know it you will indeed be healthy and happy.
Take care Tez xx
Title: Re: Amputation after MRSA
Post by: Brambledog on December 09, 2012, 11:40:36 AM
Whoop!!!!!! go Malin!!!!  ;D :o ;)

I am reading between the lines in that clear path you have made for us....and I am very happy for you and your special friend  :) You deserved this, and happiness is the best painkiller - a few endorphins buzzing around your system beat any painkiller that a hospital can dish out to you!

I am a-grinning now, lol. Very pleased for you. Oh yes.

Have a good day today. You've got every chance of beating this crap Malin. Especially when life is smiling at you and saying 'yes' for a change....

Excellent. I love it when a plan comes together.

Brams  ;)
Title: Re: Amputation after MRSA
Post by: TPF Survivor on December 10, 2012, 02:27:47 AM
Hello Malin,

My name is Candi (I live in Oregon) and I've been following your story since you began posting here. I'm been cheering you on from the sidelines and have mentioned your struggles to my family (they probably think I'm nuts). I just find you to be such an inspirational individual and when I dwell on my own TPF problems, I think of you and realize if you can do it, heck, we ALL can make it through! I'm wishing you the best and send warm thoughts your way every day!  ;)
Title: Re: Amputation after MRSA
Post by: MDJ on December 10, 2012, 02:33:48 AM
THANKS :-*

SHORT FROM ME. HAD MAJOR SETBACK AND WAS RUSHED TO THE BIGGER CITY LAST NIGHT. BETTER NOW. COULDN'T BREATHE. SWELLED MORE.
CHANGED MEDS AND PEE THE SWELLING OUT. NOW AM BETTER AND BACK CLOSER HOME SOON.
WILL BEAT THIS AND YOU HELP ME. HOPE YOU KNOW THAT. :)

/MALIN
Title: Re: Amputation after MRSA
Post by: dm on December 10, 2012, 04:16:56 AM
I've been following your story, hope you enjoyed that tuna salad even with your pneumonia.  Hoping you're feeling better by now!! So glad to hear that you're feeling well enough to have a visitor or two.

Cheering you on as well, watching for the day you post that you are getting to go home. :)

For now, I hope you insist they put big notices on your door that everyone who comes in must wash AND use hand sanitizer before coming in for ANY reason, and if anyone has a cough or sniffles... they MUST wear a mask, or KEEP OUT! If they haven't done so - ask them to do so today! With cold and flu season, it only makes sense, with them knowing that your immune system is weakened. One would have thought they would have done this already without asking them to!

Hope the oxygen tether isn't too inconvenient, and more importantly, helps you feel better.

Title: Re: Amputation after MRSA
Post by: Brambledog on December 10, 2012, 08:55:08 AM
Crumbs MDJ, so sorry you are still going through the wringer.... :-\

Glad the meds change seems to have worked quickly and you will be moving back closer to home again soon. Will keep on thinking of you and hoping for things to improve soon. Seems to me that once they can get your meds stabilised and working, then your system can start working properly again, and then that poor leg of yours can heal too so that you can get up and about. Now there's a thought.... :)

It will happen, keep believing in that Malin. I do  :)

Calming and healing and positive thoughts coming your way...... 8)

((((hugs))))

Brams  ;)

Title: Re: Amputation after MRSA
Post by: MDJ on December 10, 2012, 09:46:16 PM
BACK NEAR HOME! :)
WRITE MORE TOMORROW. EXHAUSTED./MALIN
Title: Re: Amputation after MRSA
Post by: Lottiefox on December 10, 2012, 10:15:19 PM
Really glad you have got nearer to home again! What a scary few days but also some wonderful times from the sound of things!  ;)  Happy for you!! I am guessing you've got some serious snow coming down this week from the forecasts?

Hang in there Malin, you've got so much to give the world! Thinking of you, rest up, get some good sleep

Big hugs xxxx

Title: Re: Amputation after MRSA
Post by: MDJ on December 11, 2012, 02:32:41 PM
THANKS LOTTIE! :-*

MY VERY BESTEST FRIEND IS HERE! SHE WAS GOING TO FIX SOME THINGS FOR HERSELF SO I THOUGHT GO ONLINE MEANWHILE.
BEEN UP A BIT. FEEL MUCH BETTER. NO HEAVY BREATHING, TEMPERATURE IS GONE.
MIGHT THIS GIRL HEAD HOME A LITTE FOR THE HOLIDAYS ?? THERE IS BIG CHANCE :)

HAPPY AND HAPPY TO HAVE MY GENTLEMAN! :) YOU ALL HERE MAKE A BIG DIFFERENCE FOR ME IN BEATING THIS. THANK YOU! :-*/MALIN
Title: Re: Amputation after MRSA
Post by: Brambledog on December 11, 2012, 04:00:05 PM
 :D ;D

Lovely to hear you so happy Malin!!  And I am very happy that your temperature is down. All good. :) Have a wonderful evening with your friend and your gentleman...may you all have lots of  :) and hopefully some  ;D!!

I think you WILL be closer to home for Christmas, you sound like a girl who can get there..... ;)

Hugs and happy thoughts for you and Nettan, you deserve them all.

Brams  ;)
Title: Re: Amputation after MRSA
Post by: MDJ on December 12, 2012, 01:17:17 AM
THANKS BRAMS ! :-*

AWAKE IN MIDDLE OF NIGHT, 2AM AND THINKING. SO MANY THOUGHTS RUNNING AROUND. I AM STARTING TO GET BACK TO BE MY OLD ME.
TEARS ARE COMING. THINK MUST BE HAPPY TEARS. I DON'T KNOW. EMOTIONAL CRAP!

JUST ONE WISH TO SANTA...I HAVE LOVE, I HAVE DEAR FRIENDS AND DEAR FAMILY...I JUST WANT TO BE HOME. :-\

I HOPE YOU ALL FEEL GOOD!/MALIN
Title: Re: Amputation after MRSA
Post by: Snowy on December 12, 2012, 06:42:37 AM
Whew, Malin! What a rollercoaster you've been on these past few days. I'm so sorry to hear of the setback, but so very happy that you're back closer to home now. Hopefully you'll be closer still very soon. Take comfort in your friends, the man in your life, and anything else that gives you strength. No-one deserves to be home for Christmas more than you. I hope that feeling more like yourself is a sign that things are finally coming together and improving for you. Take care, stay strong, and remember that no matter what happens, you're always you. :)
Title: Re: Amputation after MRSA
Post by: Lottiefox on December 12, 2012, 09:11:10 AM
Hi Malin!

I hope Santa can make your wish come true and you get to go home! So glad you are feeling like the old you. Remember our bodies are just our vessels, our hearts remain the same whatever changes the shells go through. Hope you have a good day and am sending all wishes that Santa can get you home for the holidays!

With hugs

Lottie xx
Title: Re: Amputation after MRSA
Post by: Brambledog on December 12, 2012, 09:58:13 AM
Ahhh Malin...  :)

If you are thinking such things, then I think your body IS returning to strength and you are indeed regaining your 'self' again. When you are really poorly, your mind doesn't want to think about those important things and shies away from thoughts of the future... With health comes a desire to look ahead, to plan and to dream.... :)

I'm very happy for you Malin. Now keep thinking positive but keep realistic as well - if for any reason you can't be home for Christmas, it would be no reflection on you nor a sign that you are not progressing well at last... You've been very ill, and everyone who's been worrying about you will be treating you like a day-old foal!  ;D

You have love and friends wherever you are. Remember that always. The rest is just geography...

I'll keep my fingers firmly crossed for your wish though!! Come on Santa!

Brams  ;)
Title: Re: Amputation after MRSA
Post by: MDJ on December 12, 2012, 01:47:09 PM
THANKS SNOWY,LOTTIE,BRAMS! :-*

WOUNDS LOOK GOOD,SWELLING IS LESS. SHOWERED..SO NICE! :)
PAIN STILL THERE BUT CONTROLLED, HOPEFULLY WILL SUBSIDE WITH TIME. KIDNEY WORKS BUT NOT PERFECT.

NOT ALLOWED DO SO MUCH YET. BUT SIT UP AS MUCH AS I CAN AND RUN TO THE LOO MILLION TIMES A DAY, THE MEDS.
RIGHT NOW USE WHEELCHAIR ALL THE TIME THOUGH. THEY HAVE SAID NO TO CRUTCHES.

SLEEPING A LOT. BUT TODAY I THINK I WILL DO SOME MUSIC TONIGHT. MY BODY,SOUL AND MIND IS CRAVING FOR THAT. ;)

STILL IN SO MUCH LOVE..... :)

TAKE CARE OUT THERE!/MALIN
Title: Re: Amputation after MRSA
Post by: Brambledog on December 12, 2012, 02:17:15 PM
Awwwww  :) :D ;D

Malin, you are sounding like a whole new woman! Good for you...

Take care and I look forward to hearing about your music tonight. I think it will be a good session! 8)

Enjoy.

Brams  ;)
Title: Re: Amputation after MRSA
Post by: mdk on December 13, 2012, 04:19:47 AM
Enjoy the wheelchair! It's been a lifesaver for me for the last several months -- hope it treats you well, and you can hop out as soon as possible.
Title: Re: Amputation after MRSA
Post by: Snowy on December 13, 2012, 05:38:28 AM
It really sounds as though you've reached a completely new point in your recovery. You sound so much happier. And a happy spirit has to be good for the body, too. :)

Good luck with your music session! I also imagine it will be a good one given how you're feeling at the moment. :)

Take care and may there be many more happy days to come. :)
Title: Re: Amputation after MRSA
Post by: dm on December 13, 2012, 05:57:46 AM
Glad to hear it sounds like you're feeling much better the last couple days!  :D

make some happy music!
Title: Re: Amputation after MRSA
Post by: MDJ on December 13, 2012, 02:32:32 PM
BRAMS,MDK,SNOWY AND DM THANKS! :-*

WOKE UP 7AM THIS MORNING TO LUCIA AND SANTA. 2 FRIENDS CAME SINGING AND BROUGHT LUCIA BREAKFAST, SAFFRON BUNNIES, GINGER ALE COOKIES AND HOT CHOCOLATE!  :) :)
THAT IS SWEET! LUCIA DAY HERE WITH LOTS OF SNOW, SUN SHINING AND -19C THIS MORNING!!!!

BEEN A BIT SAD SINCE YESTERDAY. I BELIEVE THE EMOTIONS AND MY SOUL STARTS TO REALIZE WHAT MY BODY IS OUT FOR. IT'S HARD TO DEAL WITH THAT WHEN YOU FIGHT FOR YOUR LIFE AND I GUESS NOW THAT COMES ON ME MORE AND MORE.
I WILL GET MORE HELP IN DEALING WITH THAT AND I DON'T SAY NO TO THAT. IT'S SCAREY TO FEEL THESE FEELINGS AND LOOK AT MYSELF MORE FROM DISTANCE.

TONIGHT MOM AND AUNT WILL COME. :) WE WILL SING SONGS TOGETHER.

BACK TO ZZZZZZZZZZZZZ A BIT./MALIN
Title: Re: Amputation after MRSA
Post by: Brambledog on December 13, 2012, 04:44:45 PM
Hey Malin,

Wow, Lucia day sounds wonderful - And the food sounds yummy!  :D I want some of that hot chocolate!!! I can't imagine how cold -19 is....we had -12 a couple of year's go and that was quite scary! All the pipes froze, we ran out of grit for the roads, schools closed as the boilers broke down, and food supplies became erratic, the military had to be drafted in to help.  :o Absolutely pathetic!!!! I'm sure that at -19 everything in your country still functions normally  8)

I'm glad you'll be getting some help to deal with the emotional fallout of everything you are going through. It must be incredibly tough, and I am filled with admiration for the way you are facing up to it all. Scary stuff. You are an intelligent woman though, and I know you'll get through this time and find your way back. (((hug)))

Have a lovely evening with your mum and aunt, and I hope the singing is lovely! Must be wonderful to make music together like that...  8)

You're getting there Malin, stay strong and we will continue to cheer you on from here  :)

Brams  ;)
Title: Re: Amputation after MRSA
Post by: Lottiefox on December 13, 2012, 09:12:11 PM
Hey Malin

So glad you had a good day with your friends and the wonderful food! Saffron bunnies, wow, not real ones I hope?! It will be adjusting to what has changed. You've battled so hard to get yourself this far, and it is a tough road ahead but YOU girl have the strength to do it. Look - you've fought through all of this stuff and are making music and falling in love too!! The world needs Malin in it. Cry when you need to, there is no weakness in tears - they just show we are human and we feel. Smile and laugh tonight and get some good sleep.

Rest plenty too, don't push too hard too soon. You are still healing!

Lottie lecture over. ;-)

Big hug xxx
Title: Re: Amputation after MRSA
Post by: MDJ on December 14, 2012, 10:42:25 AM
THANKS BRAMS AND LOTTIE!! :-*

LOTTIE, BUNS I MEAN. ;D

HAVING A DAY OF TESTS THEN BIG MEETING THIS AFTERNOON ABOUT HOME HEALTH CARE DURING HOLIDAYS. CROSS WHATEVER YOU HAVE TO CROSS, I NEED THAT ! :-\
STILL VERY EMOTIONAL. MY LOVE IS VERY HELPFUL AND SO IS MY FRIEND. JUST HAS TO TOUGH IT OUT AND REALIZE THAT THIS HAS HAPPENED BUT I'M STILL ALIVE. AND YOU CAN BE DAMN SURE THAT I WILL BE KICKING.(TEARS ARE FLOODING NOW... :'() I KNOW I WILL LIVE LIFE AND I WILL ENJOY IT AND I WILL CONQUER THE WORLD!!!!

NEED TO EAT SOME THEN A NAP./MALIN
Title: Re: Amputation after MRSA
Post by: Brambledog on December 14, 2012, 12:08:42 PM
Malin, I know you will. You have heart and soul and fire for everything...

Very proud of you girl. Now some day I want to hear some of your music from this time - it will be the best yet, born of suffering and hope and bravery of the best kind, that which can conquer worlds and burn the worst of demons into ashes....

((((happy hugs))))

Brams  ;)
Title: Re: Amputation after MRSA
Post by: MDJ on December 14, 2012, 04:13:45 PM
THANKS BRAMS! :-*

.....ARE YOU WAITING FOR THE NEWS FROM ME.....ARE YOU EXCITED TO HEAR THEM...ARE YOU READY.....

MALIN IS GOING HOME OVER CHRISTMAS NEXT SUNDAY!!!!!!! ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D

WITH HELP FROM FRIENDS AS ASSISTENTS AS I'M NOT ALLOWED TO STAY HOME ALONE...AND WITH HOME HEALTH CARE.

I LOVE MY FRIENDS ! AND I LOVE THE FACT TO SPEND IT WITH SOMEONE SPECIAL!!!

I KNOW I WILL BE BACK ON HOSPITAL AFTER AND IT WILL BE IN AND OUT....BUT I'M JUST CRYING NOW CAUSE I NEVER THOUGHT THIS WOULD HAPPEN......../MALIN

PS. I OWE YOU SO MUCH AND I HOPE THAT I WILL BE ABLE PAY YOU BACK FOR ALL ONGOING SUPPORT. I STILL NEED IT AND I HOPE YOU STILL WILL BE THERE FOR ME.
Title: Re: Amputation after MRSA
Post by: Lottiefox on December 14, 2012, 06:01:19 PM
Oh Malin!!! I have to say....

I AM SO HAPPY FOR YOU!!!
[/color][/size]

That is truly wonderful news, and to think you are now well enough to go home and spend Christmas with those you love is such a wonderful, amazing and inspiring thing. It has made my Friday night very happy. We will always be behind you and cheering you on. Who knows, one day perhaps we can see you making music in person and doing what you do best. The world needs more Malins, they are true non-quitters!

Anyway, if it wasn't raining here and I had more space I would light up the skies like this - celebrate! Enjoy your evening and I am soooooooooooooooo happy for you.  :D

Title: Re: Amputation after MRSA
Post by: Brambledog on December 14, 2012, 06:03:39 PM
Whoooohoooo!!!!!!

 ;D :D :) :D ;D :D :) :D ;D :D :) :D ;D

I am so happy for you Malin!!!!!! knew you could do it!!

I'm going nowhere Malin, you're stuck with me - I'm hooked  8)

You will have a wonderful Christmas, and you deserve every moment of happiness. Wish I could see your face when you get home.... :)

Happy smiles and ((((congratulations hugs)))))

Brams  ;)
Title: Re: Amputation after MRSA
Post by: tez27 on December 14, 2012, 11:00:44 PM
Oh Malin I am so happy for you that is the best news ever ;D ;D ;D ;D ;D ;D ;D
You are an inspiration to all of us with the way you have dealt with everything that has happened over the last wee while and I think if anyone deserves a happy ending then its you.
Take care Tez
Title: Re: Amputation after MRSA
Post by: Snowy on December 15, 2012, 04:48:23 AM
Malin, I'm SO happy for you! Reading this has completely made my night - after today's tragic news from Connecticut, it's so good to come online and read something positive and wonderful.

Don't forget to give yourself credit for this. You've worked so hard and fought for so long to make this happen. It's no less than you deserve.

I hope that spending time at home, celebrating the holidays with friends and loved ones, will be a huge boost for your overall recovery.

I'm smiling for you, and the happiness this news has brought you. :)
Title: Re: Amputation after MRSA
Post by: MyKnee2010 on December 15, 2012, 12:32:13 PM
Congratulations Malin!!!!!!!!!!!!!!!!!!!!!!!!!!! ;D ;D ;D ;D ;D

It's been a long hard journey but now the future will continue to look brighter & brighter!!!

Have a great holiday with your friends & of course, that special gentleman!!!

Phoebe
Title: Re: Amputation after MRSA
Post by: silverghost on December 15, 2012, 03:32:50 PM
Brilliant news Malin!!

Hope you have a wonderful xmas at home! I know you have a lot of hard work after xmas but eat, and be merry during the festive period!!

Take lots of carexx

SG
Title: Re: Amputation after MRSA
Post by: MDJ on December 15, 2012, 08:57:01 PM
ONCE AGAIN THANKS ! I CAN'T THANK YOU ENOUGH FOR BEING HERE FOR ME. :-*

I JUST AM THIS WEEKEND. NO VISITORS. I AM VERY CAREFUL IN NOT GETTING ANY KIND OF INFECTIONS NOW. I CAN'T AFFORD THAT.
WAS GOOD YESTERDAY WHEN I GOT RIDE OF THE MOST OF BANDAGE ON ME. I STILL HAVE TO WEAR AT MY STUMP BUT MY OTHER LEG IS NOW WITHOUT AFTER SURGERY. I FEEL THERE WILL BE AN END OF ALL AND I WILL BE BACK TO BE ME MORE.
I WILL NEVER BE THE SAME, BUT INSIDE I'M ALWAYS ME.
THE KIDNEY THAT WORKS IS STILL A BIT BORING AND DON'T WANT TO WORK AS IT SHOULD, BUT THEY SAY THAT MY BODY NEEDS TO SETTLE AND I HAVE TO GIVE IT TIME. SO OFF AND ON I STILL FEEL VERY SICK AND TIRED .
MY PAIN IS STILL HIGH BUT CAN BE CONTROLLED WITH THE MEDS I HAVE. I HAVE NOT BEEN ON THE PAIN PUMP FOR SOME DAYS NOW.
FOR TIMES WHEN I CAN'T STAND I HAVE SOME EXTRA MEDS INJECTED FOR FAST RELIEF.

THE BEST IS I'M SO IN LOVE. NEVER THOUGHT SOMETHING LIKE THAT COULD HAPPEN. :)

OH WELL BACK TO THE MOVIE AGAIN...LOOKING AT SOME SCAREY STUFF ABOUT A SERIAL KILLER.

HOPE YOU ALL STAY WELL OUT THERE !/MALIN
Title: Re: Amputation after MRSA
Post by: Brambledog on December 15, 2012, 10:31:19 PM
Awwww, Malin in love.....what a wonderful, crazy world it is  ;) Am very happy for you both!

Have a wonderful weekend and stay well. You're going to get better Malin, it's going to take a bit of time, but you've got so much better since all those endorphins coursing through your system - love is a wonder drug like no other the apothecaries have invented  :)

Brams  ;)
Title: Re: Amputation after MRSA
Post by: FMRCathelete on December 16, 2012, 12:57:47 AM
Malin -So happy for you-you deserve all the love in the world.  And extra thrilled to here you are going to spend Christmas as you have wished for.  Dreams do come true, so keep on making music and dreaming. 
Title: Re: Amputation after MRSA
Post by: Snowy on December 16, 2012, 01:08:05 AM
Being in love is the very best medicine. :)
Title: Re: Amputation after MRSA
Post by: MDJ on December 16, 2012, 12:43:07 PM
THANK YOU! :-*

BEEN SO VERY LOW SINCE YESTERDAY AND JUST CRYING. I DON'T KNOW WHAT TO DO TO MAKE THIS BETTER AND I DON'T KNOW WHY I AM LIKE THIS. SO DAMN HARD.... :'(
/MALIN
Title: Re: Amputation after MRSA
Post by: Brambledog on December 16, 2012, 02:28:25 PM
Hey Malin, be easy on yourself girl.... :-\

After a massive high like this, a low is to be expected...and a big cry is healing and cathartic and just what you need...Let it all out and breathe deep into it. You'll come out of this again and smile because it's who you are  ;)

Lots of ((((((hugs)))))) and  :) 8)

Stop trying so hard to be brave and strong. You are already brave and strong, but you're also human and it's hard to 'cope' when you feel truly rubbish. We all have these times, you've got to let go sometimes and just give it all up for a bit  :-\

All those good things are still there when you're ready  ;) You're going home soon, you have your love, you have good friends, and your body is slowly healing and coming back to you. You deserve them all...

Brams  ;)
Title: Re: Amputation after MRSA
Post by: Lottiefox on December 16, 2012, 10:35:56 PM
Oh Malin

Being sad and down must be pretty normal....have a good cry and then remember how far you've come and how far you will go in the future. So many people love you, this must be SO hard for you but everyone is behind you. Don't be hard on yourself for being sad and upset...but then smile and think of happy thoughts and how exciting some new things in your life are now. I predict 2013 will be a great year for you.

Hang in there girl, we all send a huge hug

xxx
Title: Re: Amputation after MRSA
Post by: FMRCathelete on December 17, 2012, 12:47:27 AM
(((((((Bear Hugs)))))))  I do hope you have had a good cry and are feeling a bit better.  You and your body have been through he-- and back & your emotions are going to be all over the place.  Can't really say it any better than Lottie & Brams.  Sometimes you do just have to give in to your emotions, let them loose and then move on.  You won't always be able to make it better, but you've come so far.  Take care of u and try to think of whats to come...
Title: Re: Amputation after MRSA
Post by: MDJ on December 17, 2012, 10:40:59 PM
THANKS! :-*

STILL VERY ROUGH EMOTIONAL AT ALL LEVELS. MANAGED BE UP MORE TODAY. I KNOW THAT I'M LUCKY TO BE ALIVE AND THAT SCARES ME A BIT THAT ALL HAS BEEN SO BAD. I KNOW I HAVE A BIG FIGHT STILL TO DO. BUT FOR NOW I CONCENTRATE ON WHAT IS FOR TODAY.
I HAVE COUNSELING AND WE HAVE STARTED SLOWLY TO GO BACK FROM BEGINNING, SO I CAN SEE WHAT HAPPENED STEP BY STEP AND DEAL WITH IT.
I'M ALSO WRITING A LOT OF NOTES AND THAT HELPS ME.
6 MORE DAYS AND I'M HOME. CAN'T WAIT!
HAVE FRIENDS HELPING ME TO MAKE HOME MORE HOLIDAY LIKE.

HAVE STARTED SLOWLY WITH SOM PHYS EVERY DAY. THAT FEELS SO GOOD!

TAKE CARE OUT THERE AND REMEMBER NOTHING IS TO MUCH TO CONQUER IN THE END, BUT SEE SO YOU HAVE SOMEONE TO SHARE IT WITH./MALIN

Title: Re: Amputation after MRSA
Post by: FMRCathelete on December 18, 2012, 12:35:56 AM
Malin- Yay to starting PT -it must feel so great to have that challenge, as difficult as it may be it is the road to recovery ;D  Writing can be very healing, & I'm glad you have found it helpful.  So the countdown has begun...I think going home will do so much for your spirits.  Sounds like you have some awesome friends and glad they are decorating for you.  Here's to a few more up days & then home!  -A
Title: Re: Amputation after MRSA
Post by: Snowy on December 18, 2012, 03:59:11 AM
Poor Malin - it does sound like an emotional rollercoaster at the moment. I think that's only to be expected, though. Finally getting to go home is wonderful, but it's also going to make you very aware how much has changed since you were last there and how different your life is now. There will almost certainly be huge ups and big downs to come in the next couple of weeks as you adjust to that. The important thing to hold onto is that the past is done: you're on a new road now, and on that road getting to go home for Christmas is a huge milestone that reflects how far you've come and how hard you've fought in the past while. I'm sure that starting PT is going to help, too - it'll speed your recovery along, and give you something physical to focus on to distract from the emotional challenges.

Hang in there. You'll be home very soon.
Title: Re: Amputation after MRSA
Post by: Brambledog on December 18, 2012, 08:56:56 AM
Malin, I agree with Snowy, I think going home is going to be tough for you in a whole new kind of way, because the Malin before all this will be there with you for a little while as an echo of the past, but you'll get through the holiday season and be able to see a new life ahead of you  :) It'll still be good, just different....

Thank goodness for friends bringing Christmas cheer and making things jolly! You'll have a wonderful time, just let the tears come if they need to, no one is going to expect you to suddenly be 100%.

I think the PT and counselling will be great, they will give your life some structure again and as you say, something to focus on and conquer.... For nothing shall defeat you!!

Am so glad you are going home Malin  ;D That will be a big big HUGE achievement!

Take care during these last few days in chokey....no over-doing it now.... ;)

Brams  ;)
Title: Re: Amputation after MRSA
Post by: MDJ on December 18, 2012, 10:58:21 PM
THANKS FOR THE ONGOING SUPPORT AND CHEER! :-*

IT'S STILL HARD ON ME, BUT SOME THINGS HAVE CLEARED FOR MY SOUL AND THAT FEELS SO GOOD. I CAN'T TELL MORE THEN THAT HAD WITH LOVE TO DO AND IT'S ALRIGHT AGAIN. I KNOW IT'S NOT EASY FOR ME BUT AT SAME TIME IT'S NOT EASY FOR EVERYONE THAT IS NEAR ME.
I BELIEVE TALKING AND HAVE AN OPEN MIND IS WHAT'S NEEDED.

MORE PHYS THIS MORNING AND ALSO LATER TODAY. A BIT SORE, NOT ONLY MUSCLE PAIN. GOT SOME MASSAGE HELP TOO, VERY RELAXING.
NOT UP ON CRUTCHES YET AGAIN, MUST BE STRONGER FIRST.
BEST NEWS TODAY WAS THAT MY BLOODTESTS ARE BETTER AND THEY HAVE NOW AFTER SOME PHONE CALLS AGREED TO LET MALIN GO HOME FRIDAY AND STAY HOME UNTIL AFTER NEW YEARS!!! ;D

SO IN 3 DAYS TIME I WILL UPDATE YOU FROM....HOME!!!

LISTENING RIGHT NOW TO A SONG THAT I SOON WILL RECORD IN STUDIO AND SING TOO....... 8)

/MALIN
Title: Re: Amputation after MRSA
Post by: Brambledog on December 18, 2012, 11:27:28 PM
Hi Malin,

That's amazing news, you must be so happy! Glad all is good on so many fronts for you... :) Now you really can enjoy Christmas and relax a bit - may those blood tests stay good so that you can be home for good!

Am having a crappy evening myself, pain is bad, but my kids are so excited about Christmas and we will be decorating the house in a couple more days - cant wait!

I'll keep everything crossed for you this week, and look forward to that first home post  ;D

Brams  ;)
Title: Re: Amputation after MRSA
Post by: MDJ on December 18, 2012, 11:41:55 PM
HOPE PAIN EASES BRAMS! HUGS TO YOU! :)
Title: Re: Amputation after MRSA
Post by: Brambledog on December 18, 2012, 11:47:06 PM
Thanks Malin! Here's one back at you...

((((hug)))

Have a peaceful night and hope tomorrow is full of good things  :)

Brams  ;)
Title: Re: Amputation after MRSA
Post by: MDJ on December 19, 2012, 11:25:23 PM
THANKS BRAMS! :-*

A LOT OF PHYSIO TODAY, BUT ALSO RESTING. CAN'T DO TO LONG SESSIONS AT A TIME.
PROGRESSING SLOWLY BUT IN RIGHT WAY.
PAIN BEEN A BIT HIGHER BUT TO BE EXPECTED WHEN START MOVING MORE. RIGHT NOW THEY CAN'T TELL ABOUT IF I WILL BE LIVING WITH CONSTANT PAIN OR NOT. A LOT IN MY BODY IS STILL RECOVERING.

FOR THE DAYS IN BETWEEN CHRISTMAS AND NEW YEARS STUDIO SESSIONS ARE BOOKED IN! WE'LL SEE WHAT MY BODY SAYS. BUT HOPEFULLY THIS IS A MILESTONE BACK TO WORKING. 8)

CAN'T TELL HOW HAPPY I AM RIGHT NOW. I KNOW THAT I NEED TO BE CAREFUL AND TAKE IT SLOW CAUSE MY BODY AND IMMUNESYSTEM IS WEAK STILL. BUT NOW I FEEL THAT I'M NOT AFRAID LONGER THAT I WON'T BEAT THIS AND LIVE. WAS AFRAID OF DYING FOR A LONG WHILE.
I KNOW I WAS BAD OUT. A LOT TO WORK WITH MY MIND TO MOVE ON.

JUST TOMORROW THEN I'M HEADING HOME...OR JUST TODAY CAUSE WE JUST GOT THURSDAY!! ;D
/MALIN
Title: Re: Amputation after MRSA
Post by: Brambledog on December 20, 2012, 09:02:05 AM
Malin, you're through that awful time and hopefully on the right road now - it must have been completely terrifying, I think everyone on this thread was scared for you as well at times....

The studio sessions sound like a brilliant plan for that weird bit between Christmas and New Year - just don't try and be superwoman and overdo things ok?! Bet the music will be amazing, you'll feel reborn. 8)

Physio seems to be going well, extra pain levels are to be expected as you say, mind you that's a tough truth to accept when your natural inclination is to not do the things that hurt! You are obviously going in the right direction with the right attitude, massive huge congratulations....it's going to be a rough road back but you are firmly pointing in the right direction.

Don't go near anyone with so much as a runny nose or sore throat though, ok? We want our new Malin safe and sound and making music..... ;D

Hugs and celebratory whoops!!!!!

Brams  ;)
Title: Re: Amputation after MRSA
Post by: Lottiefox on December 20, 2012, 06:31:39 PM
Hey Malin!!

Safe trip tomorow! I bet you can't wait to be home and with friends and out of hospital for a while. Good work on the music, I am looking forward to hearing some of it one day? Physio sounds good - slow and steady is the best way. Don't overdo things, you have come such a long way. I know you were scared of what might happen - we were all so concerned for you but look what you've done. Fought back and are going to be at home for Christmas. I am really pleased the blood tests are better too.

All is wet and dark here. The UK lost its cold spell and we now have more rain and floods happening again down in the south of the country. I am middle, and live on a hill! Many people are in danger of being flooded again though. Our weather is so messed up! I bet you still have lots of snow? I have the Xmas tree up now, and have just wrapped many presents so have a few left to do. It looks all twinkly in the lounge with the lights on. Last year we had a real tree which I love more but the youngest cat kept climbing it, pulling it apart...it smelt good to him! So we are back to a fake which still looks good.

Have a wonderful first day back at home and keep us updated!

Hugs xxxxx
Title: Re: Amputation after MRSA
Post by: MDJ on December 20, 2012, 08:16:06 PM
THANKS SO MUCH BRAMS AND LOTTIE! :-*

SO THE LAST EVENING IN HOSPITAL. TOMORROW I'M SLEEPING IN MY NEW BED IN MY NEW HOME. ;D
A FRIEND OF MINE IS MOVING IN WITH ME FOR A PERIOD AND TAKE HOLD ON HER STUDIES FOR SOME MONTHS TO HELP ME. :-*
OF COURSE SHE WILL GET PAID, NO DOUBT. :)

MIXED EMOTIONS TODAY. A BIT SCARED TO BE MORE UNCONTROLLED BUT AT SAME TIME THE HOSPITAL TEAM WILL COME EVERY DAY AND I CAN CALL AND THEY WILL COME TO ME IF SOMETHING IS UP. SO I FEEL SAFE.

PROMISE TO KEEP YOU UPDATED!  I LONG NOW.....!
I WILL BE BACK TO HOSPITAL THE 2ND OF JANUARY AND THEN PLANS WILL BE MADE ABOUT THE UPCOMING NEAREST PERIOD.
I KNOW I WILL BE GOING IN AND OUT FOR A WHILE IN HOSPITAL FOR REHAB, BUT I CAN SEE A FUTURE NOW FINALLY.

/MALIN
Title: Re: Amputation after MRSA
Post by: Brambledog on December 20, 2012, 08:44:58 PM
Hi Malin!

Am so excited for you that tomorrow you will be home at last! Remember that although things have changed forever, they will still be good, and your future will be fab because you will make it so... :) I have every faith in you...

It's amazing that the hospital are giving you so much support so that you can be home for Christmas, and of course your superb and wonderful friend, who I expected no less of.... :) It's testament to how far you've come and how much those around you want you well and happy...

Gosh I'm using a lot of .... in this message!  ;D Ah well, nothing if not consistent, me....

Lots of Christmas stuff done today, lots more to do tomorrow... Cake to be iced, more cranberry sauce to make, pickled red cabbage to make, choc Christmas log, turkey and leek pie....my kitchen is going to be a busy place tomorrow!!! What's even more fun is that my eldest daughter is busy grouting the kitchen tiles for me, so everything is madness!  ;D

Half the fun of Christmas is the silliness, laughter and craziness that it involves - as long as you can laugh you can get through anything...

I'll be thinking of you tomorrow Malin, and imagining your joy as you go through your front door again. Laughter and tears I think tomorrow, a bit of both, and a lot of smiles in between  :)

Happy Christmas to you, your lovely friend, and everyone who helps you to be where you want to be. May the season be kind to you, and the New Year ring in with lots of good cheer.

Take care of yourself and enjoy every good thing  :)

Brams  ;)
Title: Re: Amputation after MRSA
Post by: MDJ on December 21, 2012, 10:59:43 AM
THANKS BRAMS! :-*



AT HOME !!!!!!!!!!!!!!!!!!!!!!!!! ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D

LOOKS AMAZING HERE. MY FRIENDS HAS DONE A BEAUTIFUL JOB WITH MY NEW APARTMENT. :-*
THANKS EVERYONE WHO HAS BEEN CHEERING AT ME. YOU MADE A GOOD JOB HELPING ME HOME!

I HOPE EVERYONE IS DOING WELL OUT THERE. NAPPING TIME FOR ME!
/MALIN
Title: Re: Amputation after MRSA
Post by: Brambledog on December 21, 2012, 12:22:57 PM
 ;D ;D :) :) ;D ;D :D :D ;D ;D :) :) ;D ;D

Hooray!!!!!!! Malin is HOME at last!!!!!

Very happy for you, glad your apartment looks so good and you can enjoy life away from the hospital  8)

All crazy here, done too much already today and knees are killing me  ::) Off out tonight with friends for a Christmas meal, will be a good night...

Have fun  :D

Brams  ;)
Title: Re: Amputation after MRSA
Post by: MyKnee2010 on December 21, 2012, 01:57:04 PM
Yay!!!!!!!!!

I am sooooo happy for you!!!!!!!!!!!
Title: Re: Amputation after MRSA
Post by: silverghost on December 21, 2012, 03:44:45 PM
Excellent news! malinx

Enjoy settling into your new place glad you have a friend with you for company and help...

I hope you have a great music making xmas and don't think too much about going back into hospital in the new year, that can wait for a couple of weeks!

merry xmas malinx

SG
Title: Re: Amputation after MRSA
Post by: Lottiefox on December 21, 2012, 04:59:25 PM
Malin I am so pleased you are at home!! Have a wonderful time and enjoy your new space and your friends being around you. Christmas is way better for Malin being in it!  ;D

Title: Re: Amputation after MRSA
Post by: Snowy on December 21, 2012, 05:31:01 PM
Malin is home!!!! Such wonderful news!

This is a great Christmas gift after everything you've been through. Enjoy every moment!
Title: Re: Amputation after MRSA
Post by: tez27 on December 21, 2012, 06:21:55 PM
Malin I am so happy to hear your home at last ;D I hope you have a wonderful christmas with your friends.
Take care Tez
Title: Re: Amputation after MRSA
Post by: Rknees4 on December 22, 2012, 11:34:32 AM
Malin, :D
So very happy you are home even if it has lots of strings attached.
May your NewYear be filled with hope, love and good health. :-*
Take Care,.
Rk4
Title: Re: Amputation after MRSA
Post by: MDJ on December 22, 2012, 02:41:48 PM
THANKS TO EVERYONE! :-*

GOOD TO BE HOME. WE HAVE DONE LOTS OF FOOD TODAY BOTH FROM THE SWEDISH AND THE ENGLISH KITCHEN. I AM FROM UK FROM BEGINNING.
I DON'T KNOW IF I HAVE MENTION THAT BEFORE. :)

TOMORROW EVE THE TREE WILL COME UP AND BE DECORATED TOGETHER WITH MY BEST FRIEND OF COURSE AND SOMEONE ELSE.  :P

I HAVE BEEN IN MORE PAIN AND SO VERY TIRED, BUT LISTEN TO MY BODY AND DON'T DO MORE THEN I NEED TO.
I AM ALSO WITH HELP FROM MY FRIEND WHO LIVES WITH ME DOING SOME PHYS A COUPLE OF TIMES PER DAY.

IF YOU NOT GET ONLINE MORE DURING THE HOLIDAYS I WANT TO WISH YOU ALL A MERRY CHRISTMAS AND A HAPPY NEW YEAR!

/MALIN
Title: Re: Amputation after MRSA
Post by: Brambledog on December 22, 2012, 04:18:04 PM
Happy Christmas Malin!! I didn't realise you were from the UK back in the mists of time, lol. Hope you enjoy a lovely smorgasbord of delicious things....and good friends of course. No worries on that score.

Lots of treesomeness going on here, done the last of the painting of the bathroom, new cabinet going up in a bit, then all the junk from the hall back in there, and then decorating!!! The tree is going up at the moment  :D I love this time of the year! Knees are pretty rubbish today but am taking things sensibly with little breaks when I can, seems to be ok so far  ;)

Happy Christmas everyone!!!! May we all have a peaceful and pain-free (as possible  ;)) holiday, and a wonderful New Year....

"May your days be merry and bright....."  :)

Hugs to everyone that wants one.

Brams  ;)
Title: Re: Amputation after MRSA
Post by: captainruss on December 23, 2012, 08:00:57 PM
Malin,

I was curious.....you stated your injury was in LA (USA) but you are having surgery in Sweden?  Is that because they are more adept in Sweden?

I have had multiple TKR's and went from working 80 hours a week to not being able to walk.  In no way does my condition compare, but I am considering alternatives due to the fact no one will (OS) operate or provide an alternative to my condition.  The only option I am being given is to have the knee fused.  I am walking on what feels like a jagged knife and I am really struggling to put weight on my knee.

I recently viewed a display in the Atlanta Hartsfield Airport by the Ossur Company.  I believe they are out of Sweden.  They had what I would only describe as a motorized (knee and ankle) prosthesis.  I try to obtain information wherever possible.

I am humbled by your courage and spirit!  You give me courage to keep up the fight!!  That and my three teenagers who I struggle to keep up with.

I hope you are feeling better today.

Russ
Title: Re: Amputation after MRSA
Post by: dm on December 24, 2012, 01:32:11 AM
So glad to hear you made it home for the holidays! Take a rest from all the hospital bustle, and just enjoy the change of pace. Have some good holiday treats, enjoy just being YOU for a time, and do what YOU want, when you want! Heck, if you want to dress up your wheelchair by threading garland through the spokes and hang a string of battery powered lights along the frame, then do it and have fun with it!

Hope you have a good holiday, and enjoy getting to make those trips to the studio for some recordings!
Title: Re: Amputation after MRSA
Post by: esther-l on December 24, 2012, 03:49:37 AM
Russ -

If you are in the USA, and you are considering an elective above knee amputation, please look up the Amputee Coalition of America.  They have information. http://www.amputee-coalition.org/
Also, you can choose a prosthetist from the phone book, call them up and ask if they are certified to fit the microprocessor knees, and make an appointment to talk with them about being a possible future A/K amputee.

It is worth considering this link http://techlinkcenter.org/summaries/ideo . If you are outside the USA, your chances may be better for finding a prosthetist who might design and build something like that to get you walking.  For mobility without weight bearing, there is this type of scooter http://www.goodbyecrutches.com/products/seated-scooter/ .

Ossur is not the only manufacturer of the microprocessor controlled knees. There is also Otto Bock.  Not everyone benefits from those - some people do just fine on the hydraulic prosthetic knees.
Esther

Malin,
I have had multiple TKR's and went from working 80 hours a week to not being able to walk.  In no way does my condition compare, but I am considering alternatives due to the fact no one will (OS) operate or provide an alternative to my condition.  The only option I am being given is to have the knee fused.  I am walking on what feels like a jagged knife and I am really struggling to put weight on my knee.

I recently viewed a display in the Atlanta Hartsfield Airport by the Ossur Company.  I believe they are out of Sweden.  They had what I would only describe as a motorized (knee and ankle) prosthesis.  I try to obtain information wherever possible.
.........
Russ
Title: Re: Amputation after MRSA
Post by: esther-l on December 24, 2012, 03:51:04 AM
Yay!  I'm very happy for you that you get to be out of hospital for a few weeks!
Esther

THANKS SO MUCH BRAMS AND LOTTIE! :-*

SO THE LAST EVENING IN HOSPITAL. TOMORROW I'M SLEEPING IN MY NEW BED IN MY NEW HOME. ;D

Title: Re: Amputation after MRSA
Post by: Snowy on December 25, 2012, 03:39:03 AM
Merry Christmas, Malin - I hope you're having a wonderful time enjoying the holidays at home, with friends, where you belong. :)
Title: Re: Amputation after MRSA
Post by: carty on December 25, 2012, 01:39:46 PM
I followed your blog since you opened it, with wonder, shudder and amazement, Malin. I wish from my heart nice days in your new home. Marry chistmas and a funky new years eve. You were fighting so hard and I wish in will pay off the nex year, so that you do your own steps in 2013.
Greetings from Europe.
Title: Re: Amputation after MRSA
Post by: Brambledog on December 25, 2012, 05:06:36 PM
Just came on to wish Malin and her friends a wonderful Christmas. Hope you are all having a wonderful time together, with lots of good food, good wine (or the non-alcoholic equivalent ;)) and fabulous company....

Bet it's great to be home Malin 8)

Hugs to you and the special friend I know is with you today....thinking of you both today and through the next twelve days....

Brams  ;)
Title: Re: Amputation after MRSA
Post by: Lottiefox on December 25, 2012, 11:16:38 PM
Merry Christmas Malin, sorry it is a little late in the day, been out at in laws most of day...home now and with wonderful hubby and presents and a large wine! Hope you have had a relaxing and fun filled day with friends and loved ones.

Big hugs xxxx :-*
Title: Re: Amputation after MRSA
Post by: dm on December 27, 2012, 07:56:38 AM
I too wanted to chime back in and hope you're out having fun! Since there's no new posts from you yet, Malin, I sincerely hope you're out having too much fun to have time to get online, and will catch us up on the fun later! Cheers! Merry Christmas and Happy New Year! ;D 8)

Here's hoping you're having lots of fun, and as little issues as possible, so you can truly enjoy life for a change - you deserve it after all you've been through. You've had such an ordeal... time you got a break!

Wishing you much fun and better days going forward! {kg hugs}
Title: Re: Amputation after MRSA
Post by: silverghost on December 27, 2012, 04:05:32 PM
Hi Malin

Hope your christmas is going well! Just got back on here and had difficulty in finding you again your posts were moved and I can't see a 'new replies to your posts' tab that used to be there?!

Anyway let us know how things are going when you get a chance.

Lots of hugs and xmas wishes for you..

SG
Title: Re: Amputation after MRSA
Post by: MDJ on December 27, 2012, 11:17:57 PM
THANKS TO YOU ALL! :-*

SORRY FOR NOT WRITING EARLIER. THINGS AREN'T GOING MY WAY RIGHT NOW. CHRISTMAS WAS WONDERFUL. BUT PAIN AND MY MOOD IS JUST NO GOOD AND I DON'T KNOW HOW TO TURN IT AROUND. :'(
I HURT INSIDE OUT AND OUTSIDE IN... :(

SORRY, WRITE MORE ANOTHER DAY.

/MALIN
Title: Re: Amputation after MRSA
Post by: Brambledog on December 28, 2012, 10:20:25 AM
Hi Malin,

So sorry your pain is up again and you are feeling so low. Hang in there, you've done amazingly well to get where you are, and there were always (sadly) going to be some bad patches even once you were finally home. Things will improve again and you will find that  :)

Still thinking of you and wishing you well, and I know you'll get there Malin - this was never going to be quick though, and you are on a rocky patch on this hard road you are travelling for now....but we are here to cheer you on at every step forward, and catch you when you stumble. Just keep going as best you can.

You have to believe in yourself, because we do. This too will pass.

I'm glad you had such a good Christmas Malin. I suspect there will be many KGs who have 'overdone it' over the last few days (including me!) and are paying the price for a little while, but it's so hard not to when there's so much to do and so many people to see!! As long as we all enjoyed ourselves.... ;)

Take care of yourself.

Brams  ;)
Title: Re: Amputation after MRSA
Post by: MDJ on December 28, 2012, 11:04:05 AM
THANKS BRAMS! :-*

I STRUGGLE BUT DO MY BEST TO SOMEHOW GET AROUND THIS.
WILL BE IN THE STUDIO FOR THE REST OF THE DAY.
MY SADNESS TURNED OUT INTO NEW TUNES LAST NIGHT AND NEW LYRICS.
THEY SAY THAT MY VOICE IS BETTER THEN EVER IN EXPRESSING FEELINGS THROUGH THE MUSIC.
BEAR IN MIND THAT THIS WILL BE MY FIRST SOLO EVER AS I USUALLY WRITE AND PRODUCE.

ABOUT MY PAIN, I WILL GO TO STOCKHOLM AGAIN NEXT WEEK TO TRY FIND NEW SOLUTIONS FOR MY PAIN. RIGHT NOW I'M IN NEED OF MORE MEDS THEN BEFORE TO BE ABLE COPE WITH PAIN DURING THE EVES AND NIGHTS.

BACK TO MUSIC... 8)
/MALIN
Title: Re: Amputation after MRSA
Post by: Snowy on December 28, 2012, 04:02:48 PM
Quote
MY SADNESS TURNED OUT INTO NEW TUNES LAST NIGHT AND NEW LYRICS.

Good for you for being able to turn your current difficulties into something positive and creative. I think it's only natural to be on a bit of a rollercoaster at the moment - I think I said this before but although going home for Christmas and spending time with friends and loved ones is a wonderful thing, it's also going to bring home how much your life has changed since the last time you celebrated Christmas or got to spend time at home. It's also tough dealing with any kind of emotional adjustment when you're in constant pain.

Hold onto your music, the distance you've come to this point, and all of the roadblocks you've overcome to be where you are; hopefully these things will help you through the harder times. I really hope they're able to get your pain better controlled soon, too; it's so exhausting to try and manage pain and you'll have more energy to devote to your emotional wellbeing when you're not in so much physical discomfort.

Take care, and I hope the music continues to give you strength.
Title: Re: Amputation after MRSA
Post by: MDJ on December 29, 2012, 05:22:35 PM
tHANKS SNOWY! :-*

HAD TO GET IN YESTERDAY NIGHT FOR HELP WITH PAIN, BUT BETTER NOW AGAIN.
SO TONIGHT WE WILL BE IN THE STUDIO MAKING MORE MUSIC AND ME SINGING! :)

TRYING TO KEEP MY SPIRITS UP, YET I HAVE SO MUCH AROUND ME IT'S HARD. I FEEL LIKE I'M NOT GRATEFUL ENOUGH AS I HAVE GOTTEN A SECOND CHANCE IN LIFE TO LIVE. :-\
I KNOW I DON'T HAVE TO KEEP A HAPPY ATTITUDE TO OTHERS, BUT KINDA HARD WHEN THEY ARE SO NICE AND SWEET TO ME.
ANYONE WOULD SCREAM AND LAUGH OF JOY, IF THEY WERE IN MY SITUATION REGARDING MUSIC CONTRACT AND GREAT FRIENDS AND EVERYTHING ELSE, BUT I JUST CAN'T...WONDER IF I EVER WILL...OR IF I JUST SHOULD GIVE ALL UP AND FIND MYSELF AGAIN. BUT AT SAME TIME THIS IS ME AND MY LIFE AND HAS ALWAYS BEEN.

MY SCARS LOOK GREAT AND SWELLING IS GETTING BETTER. I HAVE STARTED TO GET UP ON CRUTCHES AGAIN JUST SHORTLY CAUSE MY STRENGHT IN MY BODY IS NOT THERE. BUT IT'S A START THOUGH.
HOPE TO BE ABLE WEAN OFF SOME MEDS WHEN I'M BACK TO HOSPITAL. ALL DEPENDS ON HOW MY KIDNEY IS DOING.

I HOPE YOU ALL ARE DOING WELL AND HAVE A GREAT WEEKEND..SOON WE HAVE 2013!
/MALIN
Title: Re: Amputation after MRSA
Post by: Brambledog on December 29, 2012, 06:59:24 PM
Hi Malin,

This sounds like all good news - apart from the pain of course  ::) I do hope they can get that properly under some sort of control soon for you, it is a wearing, horrible thing to have to endure all the time. Evenings and nights are always the worst...

I'm fantastically pleased to hear about your new contract and solo singing!! Wow!! Sounds like you are heading in a new direction all round. I'm sure some great material will come out of all this experience. You are unique, your story is unique and your music will be so so special because of that. Be very proud of what you're doing every time you get up and head out - it takes a lot of grit and determination  8)

Try not to feel you have to be grateful all the time just because you're alive after everything that's happened. It was a terrible time, but the fact that you're alive is something to smile and celebrate, not something to feel that you aren't aware of enough - there can't be a single person around you who feels you aren't thankful enough! If there is, then they should pipe down and smile with you. If pain is bad and you feel terrible, you feel terrible. Full stop. You cant help it, and you can't spend the rest of your life looking over your shoulder at this awful year and trying to just be thankful. Life isn't all great, even if you have seen the worst it can throw at you. Time to set your sights forward, like you are already doing, and just be yourself..... :) There will be plenty of good times, and some bad too....just as it is for the rest of us!!! We all laugh and cry and smile and complain and feel sorry for ourselves occasionally - that's life! As long as you're not doing too much of any of the crying or moaning bits, you're doing ok.

Keep at it Malin, it'll get better.....and I hope one day to be able to hear that voice of yours, it will send a shiver down my spine.

Take care of you and yours, and have a wonderful time with the music. Music is one of the best healers in life - along with friends, love, animals, chocolate and wine  ;) !!

(((hug)))

Brams  ;)

Title: Re: Amputation after MRSA
Post by: dm on December 30, 2012, 06:00:59 AM
Hi Malin,
Hope you're feeling a bit more cheery today. I agree with Bramble, it's perfectly normal to have your feelings go on a roller-coaster ride with all you've gone through. Don't worry too much about it - that's normal, and will settle with time.

So glad you've got some things you love and enjoy to focus on and look forward to that help you to get over the rough spots. Having those things to give you an "out" and something to get out of bed for, is a tremendous help. It's when you don't have those things, when you fall into the negative and stay there, that you have to remember that it's time to reach out for a hand up.

One of the things I have said of people with spirits like yours, is that when you need a hand... its asking for a hand up.... not a hand out. You aren't asking for a freebie.... you aren't that kind of person. You reach out, they pull you up out of the "hole" you're in, and you, with the tremendous spirit that you are, reach back and give the gift that is yourself, and help them in turn, because you can't not do so.... that's just who you are. You don't even have to try, it's just something that you do just by being the special person that you are.

I'm so glad you've gotten the chance to get back in the studio and work on your music, that's a gift you're getting to share with the world that is a gift that will last forever. :) Have pride in that accomplishment, that something that you've done will be heard by countless others and be cherished by many. That's such a wonderful achievement for one's life, to touch the lives of others through the gift of music. I can't carry a tune in a bucket... I only sing in the car alone.... or when a chorus will drown me out!

Now if you need me to fix your computer, or work on the car... or other "techie" stuff.... That's my area of expertise. 
Title: Re: Amputation after MRSA
Post by: Lottiefox on December 31, 2012, 09:39:25 AM
Hi Malin

Just checking in to see how you're doing....the other folks have said it all so well so I won't repeat but needless to say I am also here if you need a helping hand up.......your music is a true gift and so often the best music comes from times of real difficulty and pain in peoples' lives. Doesn't make the pain any easier to deal with but the music can be healing in its own way too. Pain does wear you down, it is hard to keep smiling when you hurt. Don't be afraid to say you're finding things hard - but you've come such a long way and will conquer the world...I have every faith!

What are you doing for New Year's Eve? I am sure you will be surrounded by those who love you.

Big hugs and take care

Lottie xxx
Title: Re: Amputation after MRSA
Post by: Brambledog on December 31, 2012, 12:16:07 PM
Happy New Year Malin!!!!

Hope you have a great evening with friends and family  ;D Special thoughts with you and your great friend as we all go hopefully and bravely into 2013 - let the door close on 2012 with a smile of relief, and I wish you a much nicer experience in the new year...

May 2013 bring us all laughter, happiness and relief from pain. We know there will be some heartache and pain, but let's have a darn sight less!

Cheers!!!!  :)  :D  :)

Brams  ;)
Title: Re: Amputation after MRSA
Post by: sune on December 31, 2012, 01:22:52 PM
Dear Malin.

Happy new year to you, and all the best wishes for 2013.
  :) :) :)
Sune
Title: Re: Amputation after MRSA
Post by: FMRCathelete on December 31, 2012, 05:37:28 PM
Happy New Year Malin.   I am hoping that 2013 is your year to find yourself again and leave the past in the dust.  Try not to expect too much from your emotions.  You are bound to have some rollercoaster rides, please just try to ride it through.  You have a lot to deal with still and you can't always feel how you think you should.  You will never be able to look at the world through the same eyes you did before this all happened, and yes, you do have a second chance, but you have been through he-- to get it and it's still hard going.  Channel it through your music and let it go there.  Hope you've got some of the pain under control and that the studio session went well.  And please let us know when we can have a listen ;)  Cheers -A
Title: Re: Amputation after MRSA
Post by: MDJ on January 01, 2013, 01:31:16 AM
HAPPY NEW YEARS! :)

HOPE YOU ALL FEEL GOOD.
I'M STRUGGLING BUT TRYING MY BEST. HAVEN'T FELT THAT GOOD AGAIN, BUT HOPEFULLY MY BODY WILL COPE WITH YET ANOTHER SET BACK.
BEEN TO MY BEST FRIEND TONIGHT AND SOMEONE ELSE IS ALSO WITH ME. 8)

THANKS FROM DEEP OF MY HEART TO ALL THAT HAS BEEN HERE FOR ME DURING MY BATTLES UNDER 2012.
LET'S MAKE 2013 TO THE BEST YEAR EVER FOR US ALL. :-*

/MALIN
Title: Re: Amputation after MRSA
Post by: Brambledog on January 01, 2013, 11:31:45 AM
Hear hear Malin!!

Here's to 2013 - a fresh start for us all, with new hope, new determination and renewed energy to fight the fight... :)

Keep at it Malin, you're going to get there - might take a bit of time, but you will. I'm glad you and your friend are together, true support is the best of gifts to have in life. Have a great day both of you (((hug)))

Brams  ;)
Title: Re: Amputation after MRSA
Post by: MDJ on January 04, 2013, 02:35:59 AM
BACK IN THE HOSPITAL.
WENT BACK EARLIER THEN I SHOULD, JUST BECAUSE I WAS RUNNING A HIGH FEVER AND MY BLOODTESTS WAS A BIT CRAPPY. I HAVE A NEW INFECTION. :(
ON HEAVIER ANTIBIOTICS AGAIN.
PLEASE KEEP ME IN YOUR THOUGHTS. NOT FEELING WELL AT ALL.

/MALIN
Title: Re: Amputation after MRSA
Post by: Snowy on January 04, 2013, 07:29:00 AM
Oh, poor Malin - not the best start to the new year. At least they figured out quickly that you had an infection and needed to go back in for more treatment. I really hope that you're able to beat this one back fast, and get home again as soon as possible.

Thinking of you and wishing you all the best, as always.
Title: Re: Amputation after MRSA
Post by: MyKnee2010 on January 04, 2013, 12:49:45 PM
Malin,

I'm so sorry you're not feeling well again! I had hopes that you were keeping very busy & happy making music with your friends! Get plenty of rest & remember if you can't sleep during the middle of the night I always enjoy chatting with you!

Keeping you in my thoughts!
Phoebe
Title: Re: Amputation after MRSA
Post by: Brambledog on January 04, 2013, 01:08:48 PM
Oh Malin  :(

I'm so sorry you have another infection and have had to go back into the hospital. You must be gutted after things were looking so much more positive. Just please don't lose heart - this is setback, a nasty one obviously, but you must keep hoping and trying to look forwards again....even if you feel like you've been kicked in the stomach. This rocky road obviously has a few nasty bumps in it  :-\

Sorry I haven't checked in earlier, but KGs obliterated me for a few days as part of their new look, so I haven't been able to log on at all! I have been thinking of you though, and will continue to do so no matter what. I will keep hoping and crossing my fingers that your infection is sorted quickly by the antibiotics, and you can start to feel a bit better again. Is this the same infection as before that wasn't quite gone, or a new one? Either way, I'll be hoping you can get over it soon.

Having a crappy few days myself after overdoing things at New Year cooking a big meal for parents and family. Pacing pacing pacing - easy to say, not easy to do - especially over the festive time when there is so much going on... Hey ho (ho ho, lol). Onwards and hopefully upwards.

Take care of yourself Malin. Lots of (((hugs)))

Brams  ;)
Title: Re: Amputation after MRSA
Post by: Lottiefox on January 04, 2013, 01:21:16 PM
Oh Malin I am sorry you're feeling so poorly again. Damn and blast to another infection, I hope this gets beaten back quickly and you start to feel better again. You're a fighter, remember...another blip is now what was planned but you'll get through this one too. Hang in there, me, the mogs and the hubby send all their love and are thinking of you every step of the way.

Big hugs

xxxxx
Title: Re: Amputation after MRSA
Post by: Snowy on January 06, 2013, 08:32:40 PM
How are you doing, Malin? We've been thinking of you and keeping our fingers tightly crossed that the new antibiotics are doing their job and kicking the latest infection to the curb. I hope the memory of spending the holidays at home with friends is helping you through this. It's a setback, but overall you've been making such progress recently. Stay strong and keep fighting.
Title: Re: Amputation after MRSA
Post by: MDJ on January 08, 2013, 01:19:48 AM
AM NOT OK. THE INFECTION IS MESSING WITH MY WHOLE BODY. FIGHTING.
VERY TIRED OF FIGHTING. :'(
I POST MORE WHEN I FEEL BETTER/MALIN
Title: Re: Amputation after MRSA
Post by: Brambledog on January 08, 2013, 01:36:14 PM
(((hugs poorly Malin)))

Hang in there Malin, I am thinking of you and so hope you are better soon. This is too unkind, I wish you were having an easier time of it... Never give up girl, you'll get through this.

All wishing you well from Bramble's household x

Brams  ;)
Title: Re: Amputation after MRSA
Post by: Lottiefox on January 09, 2013, 03:49:18 PM
Malin, I am thinking of you very often. Not near a wireless connection too often this week, but thinking of you and sending all my best to help you fight off this latest hurdle. It seems very unfair, hang in there - you're such a strong lady.  :)

Hoping Wednesday finds you improving and with a smile and a hug from those that love you.

Lottie xxx
Title: Re: Amputation after MRSA
Post by: Snowy on January 09, 2013, 07:10:11 PM
Poor Malin. I can't even begin to imagine how frustrating and exhausting this is after everything you've already been through. Hang in there, be as brave and strong as you can be - there will be better days ahead once you're through this new hurdle. I hope that by the time you read this the infection is under control, and you're starting to feel better.
Title: Re: Amputation after MRSA
Post by: TPF Survivor on January 09, 2013, 10:50:00 PM
Hi Malin,

I check your diary every day for any updates. We're all thinking of you and hope your latest bout will be the last. Just know that people you've never met are rooting for you and care!
Title: Re: Amputation after MRSA
Post by: dm on January 10, 2013, 04:17:26 AM
Hi Malin,
Sending you good wishes, hoping you're feeling a little better by now, even if you're not up to posting! Take care of you! Hang in there, you've fought too long and too hard to get where you are to give up now!!

We're all rooting for you!! :D ;D :)

Just wanted you to know you're being thought of, and good wishes sent your way.
Title: Re: Amputation after MRSA
Post by: FMRCathelete on January 10, 2013, 11:06:32 PM
Malin - So sorry to hear you are not well again.  I hope the antibiotics take effect very soon and kick this thing in the butt.  Please know my thoughts are with you!  I may not post everyday but I think of you everyday.  We are all pulling for you!  Big cyber hugs to you. -A
Title: Re: Amputation after MRSA
Post by: MDJ on January 11, 2013, 12:07:52 AM
HAVE HAD SOME REALLY BAD DAYS. NOT OVER YET. BUT HAVE SOME MORE ENERGY NOW.
MY BODY DID SHUT DOWN. SO BEEN TO ICU.
ISOLATED AGAIN.
ITS HARD VERY HARD. :(
I WILL TRY WRITE MORE TMRW...ZZZZZZZZZZZZZZZZ/MALIN
Title: Re: Amputation after MRSA
Post by: bolanbiker on January 11, 2013, 02:43:53 AM
Keep fighting and hang on to the music!  Best wishes.
Title: Re: Amputation after MRSA
Post by: dm on January 11, 2013, 03:58:21 AM
Sorry to hear of your detour on the road to recovery.... find the next turn and get back on track... you can do it!

You've had a taste of what you're fighting for... so focus on that, and don't give up!! You've worked too hard!!! Take heart from the successes each day, no matter how small.

I had a rough day today - for me - but I sat down and told myself, even though I had a hard time... others have it worse. I take stories like yours, and try to use them as inspiration to keep on truckin' when I'm having it rough. If you can... so can I.

Thanks for showing me that it is possible to look deep inside and find that 'something else' where it counts - even when you though you'd done gave it all -- look again, you'll be surprised at what you can accomplish with determination.  You're the ultimate example of this, and to say you've got courage is an understatement. 

Looking forward to hearing that you're able to go home again - real soon!
Title: Re: Amputation after MRSA
Post by: Brambledog on January 11, 2013, 08:57:56 AM
Hi there Malin,

I can't imagine how tough it is to be back in ICU with another bad infection after you had finally got out of hospital.... But you did it - and considering everything that had happened, that was pretty amazing. You WILL get out of there again Malin, keep believing that. Of course it's going to take a little while now after your infection, but you are proving every time that this thing is NOT going to beat you.

I'm so pleased you are able to post and are feeling even a teeny bit better. Your energy levels will improve and the world will look a little bit more kind and hopeful than it did yesterday. Baby steps again, but each one is an achieving you should be very proud of.

When I read your posts I have a song stuck in my head by a Celtic band of my youth (lol, rediscovered ten years ago!) called Capercaillie - the lyrics go '...but i know for certain, every time you fall, that you will rise again, above it all....and the day will come, for a dream to take you home...' it's a really hopeful song, and that's how I think of you. Keep believing in yourself, the determination of those caring for you, and the love of your friends and fmily who want you home and well again.

Will be thinking of you Malin. Hang in there - and I hope to hear some better news very soon.

(((Brams hugs Malin)))

Brams  ;)
Title: Re: Amputation after MRSA
Post by: Rknees4 on January 12, 2013, 08:02:28 AM
Hang in there Malin. :) You can do it..
We are all wishing you the best.
Here is a (((HUG))) for todays fight. :-*
Rk4
Title: Re: Amputation after MRSA
Post by: Lottiefox on January 12, 2013, 10:32:18 PM
Sending you many many hugs as always. So sorry you're having a rough time. Remember the good ones so recently and believe, nay KNOW that you'll rise again from this and enjoy more fun and music and happiness.  :)

We're all thinking of you,
 xxx
Title: Re: Amputation after MRSA
Post by: FMRCathelete on January 14, 2013, 01:35:15 AM
Just dropping in to let you know you are in my thoughts.  Trying my best to send some healing thoughts across the pond.  -A
Title: Re: Amputation after MRSA
Post by: MDJ on January 14, 2013, 08:21:10 AM
STILL FIGHTING MY INFECTION.
MY BODY IS SO USED TO ANTIBIOTICS SO IT WONT BEAT IT AS IT SHOULD.
I HAVE SOME MORE ENERGY NOW AND CAN EAT AGAIN.
BUT SLEEP MOST.
THANKS FOR ALL SWEET MESSAGES.
/MALIN
Title: Re: Amputation after MRSA
Post by: Brambledog on January 14, 2013, 08:48:38 AM
Hi Malin,

Glad you can eat now and are starting to feel a little better. Still thinking of you and hoping you can get past this very soon... Take care and know we're all rooting for you  :)

(((Hug))) You'll get there girl, never doubt it. Wish this was quicker for you though, you have been through the wringer.

Brams  ;)
Title: Re: Amputation after MRSA
Post by: ouch09 on January 15, 2013, 12:28:11 AM
Good to hear that you're feeling better.

Just like everyone else, I'm sending you good vibes to beat this thing !
Title: Re: Amputation after MRSA
Post by: Snowy on January 15, 2013, 03:31:31 AM
I'm so glad that you're getting your energy back - I really hope that's a sign that your body is winning this particular battle and the infection is on its way out. Poor Malin; you so deserve some smooth sailing after everything you've been through.
Title: Re: Amputation after MRSA
Post by: FMRCathelete on January 15, 2013, 10:43:55 PM
Happy to hear you are able to eat and feeling a wee bit better.  Sleep is good & helps your body rest and heal, so that is good to hear also.  Take care & let your mind sing!
Title: Re: Amputation after MRSA
Post by: Lottiefox on January 20, 2013, 05:11:18 PM
Malin

I hope the fact you're quiet means you're resting up...we are all thinking of you on here still. How are you doing? Keep fighting girl, you can beat this.

Hugs from a snowy UK< although way less than Sweden I am sure!

xxx
Title: Re: Amputation after MRSA
Post by: silverghost on January 21, 2013, 08:23:37 AM
Hi Malin

I really hope your ok and fighting hard.  You said were back in hospital so let us know how it is going there.  Thinking of you and hoping your getting through this.

P.S to all of you following the thread I contacted KneeGuru about how difficult it is to get around the site now and the notification side of things.. They advise that they are aware of everyone's problems and are looking at resolving this with introducing the old 'show new replies to posts'  i was and am finding the site really difficult to negotiate now and have to rely on my e-mails which i dont like to mingle with the site!

regards

SG
Title: Re: Amputation after MRSA
Post by: Brambledog on January 21, 2013, 08:48:04 AM
Hi Malin,

Have been thinking of you and hoping you are on the mend now. Will continue to do so, and am hoping for some better news very soon.

(((hugs)))

Brams  ;)
Title: Re: Amputation after MRSA
Post by: Snowy on January 23, 2013, 08:15:34 AM
Hey Malin,

Really hoping that the silence is due to good forward progress...as always, I'm thinking of you and hoping that life is finally dealing you some better hands. If you're still fighting, hang in there. We're all thinking of you and wishing you well.

K x
Title: Re: Amputation after MRSA
Post by: MDJ on January 24, 2013, 11:49:45 AM
STILL BACTERIAS AND CAN'T GET OFF ANTIBIOTICS. DEPRESSED AND FIGHTING.
I DON'T KNOW IF I EVER WILL BE OK AGAIN.
STILL IN HOSPITAL. I DON'T KNOW HOW MUCH MORE I CAN TAKE.
THERE ARE NEW PROBLEMS IN MY BODY EVERY OTHER DAY.
JUST WANT TO FLOAT AWAY SOMEWHERE ELSE...... :'(
/MALIN
Title: Re: Amputation after MRSA
Post by: Brambledog on January 24, 2013, 01:31:08 PM
Oh Malin, honey, I'm so sorry you are still dealing with so much... :-\ it's hugely unfair,I can't even begin to know how you feel, but I want you to know that I haven't given up on you and I will be here hoping for good news every single day...

Never give up on yourself. Your body is going through hell and there is little you can do about it except hang in there and try to keep going... Try to think of all the goodwill out here for you, so many who want you to pull through.

(((big Brams hugs)))

Somewhere in the room I am there in spirit, thinking of you and wishing you better. I wish I could do more.

Hang in there Malin. I'll keep hoping.

Love Brams x
Title: Re: Amputation after MRSA
Post by: JTB on January 24, 2013, 06:46:44 PM
Hi Malin,

I don't write much in your post, but I check in on you all the time and I'm sad to read you're still suffering so much. It does seem unfair, you've been through so much. Like Brams said, there are a lot of people here pulling for you to get through this and who are with you in spirit and with good thoughts, always.
Title: Re: Amputation after MRSA
Post by: FMRCathelete on January 24, 2013, 11:19:35 PM
Darling Malin, so sorry that you are still enduring this.  Of course you are depressed, but there is a light at the end of this tunnel.  You will get back to yourself & you will be ok.  You have more people wishing you well than you know. 

What I really want to say is CRAP!!!!  It's just not right that you are still going through this with the infection and all that does to you.  That body of yours needs to fight on though & beat this once & for all.  In the meantime, let your mind float wherever you like -the world is just a thought away.   ((((Big hugs to you)))) A
Title: Re: Amputation after MRSA
Post by: FMRCathelete on February 02, 2013, 10:18:40 PM
Malin where are you????  I do hope you are hanging in there.  Please have a friend post if you are too weak to let us know your.   I am hoping the silence means you are getting the rest you need to conquer those nasty infections once and for all.
Title: Re: Amputation after MRSA
Post by: Snowy on February 03, 2013, 03:59:48 AM
Likewise - I'm checking in daily and really really hoping that you're doing okay. Sending you positive thoughts and strength for whenever you need them.
Title: Re: Amputation after MRSA
Post by: Brambledog on February 03, 2013, 12:09:13 PM
Never forgotten you Malin, every day I look out of the window and hope you are ok. Hang in there xx

Brams  ;)
Title: Re: Amputation after MRSA
Post by: Lottiefox on February 03, 2013, 07:08:38 PM
I am going to echo all the sentiments....was chatting about you yesterday and hoping you are doing OK. I too think of you every day and hope you're fighting. Sending you a big hug and many positive vibes.

hang in there

xxx
Title: Re: Amputation after MRSA
Post by: MDJ on February 04, 2013, 09:32:11 AM
SORRY THAT I HAVEN'T UPDATED. HAVE HAD YET ANOTHER SURGERY TO CORRECT WHAT WAS LOOKING REALLY UGLY. BEEN STEADY GETTING BETTER BUT BEEN SO VERY DOWN, SO FORGIVE ME FOR NOT BEEN ONLINE. ONCE MY WOUND IS HEALED I WILL GO TO A REHAB CLINIC.
IT HAS BEEN SO TOUGH BUT NOW I CAN FINALLY SEE THAT I WILL GET MY LIFE BACK.
I HAVE BEEN DOING LOTS OF MUSIC MEANWHILE AND THAT HAS BEEN HELPFUL. ALSO MY VERY DEAR FRIEND HAS BEEN WITH ME AS MUCH AS SHE CAN. SHE IS ALSO FIGHTING AND HAS BEEN MOVING, SO WE WILL LIVE REAL CLOSE ONCE I GET HOME. SO HAPPY TO HAVE HER!!!
I COULD HAVE ASKED HER TO UPDATE YOU, BUT I WANT TO DO THAT MYSELF.
I HOPE YOU ALL ARE DOING WELL OUT THERE. AND DEEP THANKS FOR ALL THE EFFORTS YOU HAVE PUT UP FOR ME AND THAT YOU STILL WRITE HERE THOUGH I HAVEN'T BEEN BACK HERE. I'M AMAZED HOW MANY SWEET PEOPLE THERE IS OUT THERE THAT EVEN HAVEN'T MET ME. YET YOU ARE THERE. YOU HAVE NO IDEA HOW MUCH YOU MEAN FOR ME...TO THANK YOU, THANK YOU! :-* :-*
I WILL FROM NOW ON WRITE EVERY DAY HERE.
BY THE WAY I'M BACK UP ON MY CRUTCHES!!! NO WHEELCHAIR FOR ME!!

LOVE FROM MALIN 8)
Title: Re: Amputation after MRSA
Post by: Brambledog on February 04, 2013, 10:54:35 AM
 :D :) ;D :) 8)

Hi Malin!!!!! Wonderful to hear from you again, and soooooo HAPPY that you sound so positive - obviously there have been good things finally happening for you....at long last. Couldn't be more pleased!

Crutches must feel amazing after all you've been through, good for you girl, go and grab life by the scruff of the neck now and enjoy every little bit! Really pleased that you have been able to make music as well, sounds like Malin is back  ;)

Your friend is indeed wonderful, you are lucky to have each other for support and love when things are so difficult for you both. I'm sure the rehab clinic will be great when you get there, a really huge step forward to getting away from the doctors! And getting home, close to your friend, will be best of all. You both deserve some happy times.

You have given me my smile today  :) thank you. Big relieved hug from Brams here ((((hug)))) and lots of wishes for a speedy recovery from this surgery...

Brams  ;)
Title: Re: Amputation after MRSA
Post by: Lottiefox on February 04, 2013, 03:50:26 PM
Oh Malin

So good to hear from you! I am sorry you've needed another surgery but so glad you're fighting on and on your crutches too. Fabulous. You WILL get home and enjoy life again. I know it. I am looking forward to all the new music too. You write when you feel up to it, we are happy just knowing you're doing good and moving forwards. It is wonderful to see your post this afternoon.


Big hugs xxxx
Title: Re: Amputation after MRSA
Post by: FMRCathelete on February 05, 2013, 12:48:45 AM
 ;D :)Thank you Malin -I needed a good pick me up and knowing you are doing better & on crutches is just the medicine I needed ;D ;D  You must feel so much better being able to look people in the eye again, rather than looking up at everyone -YIPPEEEEE!!!!  I am so happy, you sound so much better.  Yay to the support of your friend -is priceless indeed.  It sounds like the surgery was necessary to get you healthier, so worth it I'm sure.  I take it the infection is under control or gone?  I'm just so thrilled to know your good and getting better.  Will have to call my Mom & let her know as I've told her about you & she asked a few days ago how you were doing.  I'm looking forward to one day hearing your music too.  Watch out Rehab Clinic, Malin is on her way!   ((((Big hugs))))
Title: Re: Amputation after MRSA
Post by: tez27 on February 05, 2013, 01:03:45 AM
Oh Malin its so good to hear from you I know I dont often post on here but I read your thread whenever I can and I was getting worried by your absence, its wonderful to hear you sounding so much better and so positive.... you my dear are a star and I wish you all the good things in life love, music and good health
Take care Tez
Title: Re: Amputation after MRSA
Post by: Snowy on February 05, 2013, 06:04:11 PM
This is great news, Malin! I'm so sorry the infection necessitated another surgery, but let's hope this was what was needed to get rid of it for good. I'm not surprised you were feeling down afterwards; that's a huge hurdle to face when you're just trying your best to move onwards and forwards with recovery. But I'm so very happy that now you're out the other side, feeling better and stronger, and preparing to crutch toward that rehab clinic for the next stage of your recovery.

It sounds like a new chapter is opening up - I hope that you're finally done with the big hurdles and all will go smoothly and well in the clinic. Sending you strength as always, and so much admiration for the spirit you bring to battles that most of us can't imagine.
Title: Re: Amputation after MRSA
Post by: FMRCathelete on February 07, 2013, 10:45:48 PM
Hey Malin!  Just checking in.  Hope PT going well and you are getting stronger every day.  My Mom is thrilled that you are doing better.

Cheers-A
Title: Re: Amputation after MRSA
Post by: ouch09 on February 12, 2013, 10:42:26 PM
I haven't been on knee geeks for a week, so I've just read your great news !

I'm so happy for you ! Good luck with the rehab, which will be fun after what you've been through.  8)
Title: Re: Amputation after MRSA
Post by: MDJ on February 18, 2013, 10:49:11 AM
AT THE REHAB NOW.  :)
WILL BE HERE FOR ANOTHER 3 WEEKS THEN HEAD HOME. STILL HAVING LOTS OF TROUBLES WITH PAIN AND BACTERIAS IN MY BODY. BUT WILL NOT BE BETTER BY STAYING IN HOSPITAL.
I HAVE TO BUILD MYSELF UP NOW AND CROSS FINGERS TO NOT GET ANY INFECTIONS SO MY BODY CAN START HEALING UP INSIDE OUT.
I DONīT USE WHEELCHAIR AT ALL, EVEN THOUGH I HAVE ONE.
THEY DON'T THINK I WILL BE ABLE HAVE ONE PROSTHETIC, BUT I DON'T CARE LONGER.
ITīS NOT IMPORTANT. IīM PROUD OF MYSELF ANYWAYS.
LOVE WENT TO HELL. HE COULDNīT TAKE IT WITH EVERYTHING. BUT THATīS HIS LOSS. I KNOW LOVE IS OUT THERE SOMEWHERE.  8)
I HOPE YOU ALL ARE DOING AS WELL AS YOU CAN. THANKS FOR THE ONGOING SUPPORT. FROM NOW ON I WILL TRY WRITE SOME WORDS HERE EVERY DAY.
ALL BEST!/MALIN  8)
Title: Re: Amputation after MRSA
Post by: tez27 on February 18, 2013, 03:13:43 PM
Its so good to hear from you Malin and well done you on getting to the rehab center, I pray you have seen the last of the infections and you are on the road to recovery.
I am so sorry the love didnt last but I guess its better to find out early in a relationship if someone can handle the s**t that gets thrown at us all from time to time, but there is someone special out there for you I am sure.
Take care Tez
Title: Re: Amputation after MRSA
Post by: Brambledog on February 18, 2013, 06:07:18 PM
Brilliant news Malin  :D

Wow, you really are zipping ahead now! It's great to hear you are finally out of that danged hospital, must be great to be able to focus on the rehab rather than being in bed feeling so awful. You should indeed be proud - well done.

Good for you girl. If he didn't appreciate you then he's a FOOL and no loss to you. As you say, someone will come along, the important thing now is you getting well, staying strong and wowing the world with whatever you do next  8). It'll come.

You made me smile  :) thanks! I needed that.

Brams  ;)
Title: Re: Amputation after MRSA
Post by: FMRCathelete on February 27, 2013, 08:45:45 PM
Malin- Great to hear you are in rehab & getting stronger.  Way to go on losing the wheels.  I wouldn't give up on prosthesis forever -the technology is changing all the time.  I agree, if he couldn't stay then it wasn't the right match for you.  There is a perfect match out there & better to know sooner that later if he's not the one.  Hope the healing continues and the hospital stays stay in the past.  Cheers-A
Title: Re: Amputation after MRSA
Post by: MDJ on February 28, 2013, 08:32:36 AM
A SUNNY BEAUTIFUL DAY AND I HAVE TAKEN THE DAY OFF FROM REHAB TO GO TO STOCKHOLM FOR A DAY OF WORK IN THE STUDIO.
I FEEL SO MUCH BETTER, THOUGH ON TONS OF MEDS AND HAVE TO BE CAREFUL AND STAY AWAY AS MUCH AS POSSIBLE FROM INFECTIONS.

NEXT STEP IS TO GO HOME AND BE HOME. HAVING ANOTHER WEEK IN REHAB THEN I'M OUT.
PAIN IS STARTING TO TURN AROUND TO THE BETTER TOO.

@A... NO PROSTHETIS AS MY STUMP IS TO SMALL TO HOLD IT. BUT I MANAGE REALLY WELL ON MY CRUTCHES AND FOR LONGER WALKS THEN I HAVE MY WHEELCHAIR.
I HAVE GOTTEN A BLACK ONE!

AND I'M DATING...YES YOU READ RIGHT. HE IS ALSO MUSICIAN.  :D

HOPE YOU ALL ARE STAYING WELL AND THAT WHATEVER YOU ARE IN TO THAT YOU ALWAYS FEEL THERE IS HOPE.
I KNOW THAT I'M NEVER GONNA BE WELL TOTALLY AGAIN, BUT THERE ARE TREATMENTS OUT THERE WHICH ARE CHANGING EVERY DAY TO THE BETTER.

LOVE FROM MALIN 8)
Title: Re: Amputation after MRSA
Post by: Brambledog on February 28, 2013, 08:59:42 AM
Hi Malin,

That's brilliant news all round! Only another week of rehab, then home.... Trip to Stockholm for music and fun.... Dating a musician  8).... And best of all I think, pain lessening! All fab, all well deserved. I'm really happy for you, that the nightmare time is over and hopefulness blossoms.

It's been sunny and beautiful here too the last day or two, so much better for the spirits lol. Enjoy your life now Malin, and squeeze every drop of fun out that you can. Thank you for the morning smile!

Wishing you all good things,

Brams  ;)
Title: Re: Amputation after MRSA
Post by: FMRCathelete on February 28, 2013, 06:40:02 PM
Great to hear the positive updates Malin!  Yay to the new musician in your life and your trip to Stockholm-hope it is lots of fun.  Sounds like some stylish wheels  ;)  Take care -Cheers, A
Title: Re: Amputation after MRSA
Post by: Snowy on March 02, 2013, 06:54:49 PM
It's so great to hear that things are so much better now. Back in the studio, a new man in your life, getting around without the wheelchair...it's amazing how much you've moved forward in such a short space of time (though I'm sure it felt like forever while it was happening.)

Your life may never be quite the same, but no-one could ever accuse you of not living it fully. Keep making the most of every moment, and I hope that you're given the all clear to go home very soon. 

:)
Title: Re: Amputation after MRSA
Post by: MDJ on March 03, 2013, 01:21:33 PM
HEY YOU ALL!

HAVE HAD A BIT ROUGH WEEKEND, BUT LUCKILY WHERE I AM THEY CAN GIVE PAINRELIEF WHEN NEEDED.
HOOKED UP PAIN PUMP OVER NIGHT AND NOW FEEL SO MUCH BETTER AGAIN.
IT'S SO EASY TO DO TO MUCH. I THINK I HAVE TO USE THE BREAKS SOMETIMES.
LIKE WHEN I'M IN THE GYM...SUPPOSED TO BE LESS THEN 45 MINUTES..BUT I OFTEN DOUBLE THAT.  ;D
THE STOCKHOLM TRIP WAS GREAT. FOR THE FUTURE I'M LOOKING AT GETTING A SMALL APARTMENT IN STOCKHOLM( I KNOW IT'S EXPENSIVE THERE...BUT LUCKILY INSURANCE HAVE PAID OFF A LOT).
THE UPCOMING LAST WEEK IN REHAB IS TO FOCUS ON GETTING FUNCTIONAL DAYS BASED ON WHAT I NEED IN WORKING MY BODY AND IN REST ALSO WE HAVE LOOKED AT WHAT TO EAT, WHAT BRINGS THE BEST HEALING TO MY BODY.
I'M STILL VERY PRONE TO INFECTIONS, SO I HAVE TO THINK OF WHERE I AM AND HOW I ACT. NO SICK PEOPLE AROUND ME.
I HOPE YOU ALL ARE DOING AS WELL AS YOU CAN. :-*
YOU SHOULD SEE MY ARM MUSCLES... :P

LOVE FROM MALIN
Title: Re: Amputation after MRSA
Post by: FMRCathelete on March 03, 2013, 05:50:58 PM
Hey Malin!  Yeah I bet you have some nice guns with all the work your doing.  Don't feel bad about using the chair at times -don't want to overuse the arms with crutches.  I know you'll find a balance that works for you.  Happy the pain is under control & that Stockholm was all you expected.  Go for it with the apartment -you only live once after all.   Hope this last week rushes by and you get a lot of useful exercises & info.  Diet plays such a huge role in recovery & wellness I am thrilled to hear they are incorporating that into your planning. 

Don't forget to rest!!!! ;)

Cheers-A
Title: Re: Amputation after MRSA
Post by: Brambledog on March 04, 2013, 09:47:14 AM
Hi Malin  :)

Great to hear your Stockholn visit went so well you are thinking of moving there! Must have been fab  ;) Sorry your pain went a bit awry for a while there, but good that they got it back under control quickly and you are still doing so well in rehab. I had to laugh at you sometimes doubling your gym time, I can sooooo see Malin doing that!! Just take it easy...little steps forward girl, not giant leaps lol.

Diet is key to everything I think, your body needs the right fuel to work properly. I try to eat healthily, but it's not easy with the kids sometimes!

Have you heard of Popeye?! I thought of him when you said about your arm muscles  ;) :D

Lovely to hear all the good news Malin, look forward to more next week when you get your wings back...

Brams  ;)
Title: Re: Amputation after MRSA
Post by: MDJ on March 14, 2013, 10:25:07 AM
Im Home now! ;D
Doing ok for the moment. The days consists of rehab, meds,music,meeting family and friends. But I start to like my life again. I have put up a smaller studio at home. I have also bought a new car that I will get in a couple of weeks. The apartment in Stockholm will be my second one, cause I have decided to live here now. Stockholm will be my second home.Love life is aldo great. He is the most sweetest one can have. I use my wheelchair more now when Im out.And that feels ok. My goals gor the future is a hope getting my painlevels down so maybe thrre in a couple of years csn be a little onw.
I have still bacterias in my body and that is the most scarey part as I get infections all the time. But there is hope.If all works out well I will go to LA in april and stay until June for rehab, Medical treatment and work. I hope that you all stay as well as you can. Thanks for all support that means so much for me. Love Malin 8)
Title: Re: Amputation after MRSA
Post by: MDJ on March 15, 2013, 12:00:02 AM
This Will be my very last post here. Seems like noone has än interest longer when One feel better, so Why write more... :(
Title: Re: Amputation after MRSA
Post by: Snowy on March 15, 2013, 01:56:56 AM
What do you mean, Malin? I just saw your post and was so happy to hear that you were doing better. You really deserve some lucky breaks after all the suffering you've been through. I'm delighted to hear that the new love has worked out so wonderfully, too. Having someone to support you makes so much difference.

Take care, and I hope you don't mean it about not posting any more. There are many people here who care about you greatly, and are sharing in your happiness at your current progress.
Title: Re: Amputation after MRSA
Post by: Lottiefox on March 15, 2013, 11:47:15 AM
Malin of course we are interested to hear that you're doing so well!! Please don't stop posting. I guess for all of us our lives get busy just as yours has and whilst we read we may not post. I know I have been delighted to read of how far you've come and that you're home and making progress. Apologies for not writing that down but many many of us are thrilled to bits to see you starting to return to your life and hobbies and things you love to do. Stay in touch with us, please!  :)
Title: Re: Amputation after MRSA
Post by: ouch09 on March 15, 2013, 09:47:00 PM
Malin,

I won't speak for others, but we all have busy lives which mean it's not always possible to read, let alone post on kneegeeks.

I know that everyone on here wants to hear about your rehab. Please don't think that because people don't reply that they're not reading your posts. In fact you can see the number of views on your thread, which is about 21,000 so you know that people are interested ! :)

I want to hear what exercises you do as part of your rehab, and I want to read about your successes (as well as the setbacks we all go through during rehab). It's the drama of life !
Title: Re: Amputation after MRSA
Post by: Brambledog on March 15, 2013, 11:43:35 PM
Hi Malin,

I haven't been on very often recently because there's been so little activity on most of KGs! So it's not just your thread Malin, and it doesn't mean we care any less because we don't reply for a few days.

Carry on taking care of yourself and making the most of your new life, you're doing a great job of making the best of things, and I admire you for getting through all that you did to get to this point.

So don't give up. No one's replied to my post-op diary for months lol, but I still update it every now and then because you never know when a new person might join KGs and maybe what you've written might help. We all join because we're looking for answers...

So keep going, let us know what happens every now and then, and we'll keep checking back every now and then to see if there's any news from you.

Keep smiling Malin  :) and keep posting when you can.

Brams  ;)
Title: Re: Amputation after MRSA
Post by: FMRCathelete on March 16, 2013, 03:34:18 PM
 :o  ??? Oh my Malin-please don't think no one cares about you now that you are doing better!!!!  It's been slow all over KG so I haven't checked in in almost a week, but I check your thread every time I'm on to see how you're doing.  I am so happy that you are doing better (minus those pesky bacteria).  I do so hope that you get to go to LA, I hear it's gorgeous and I'm sure the music scene is inspiring.  Also happy you have found a sweet man to share life with-sounds like you're pretty sure if there are thoughts of little ones.  I know you still have a long road of rehab in front of you & I do hope you update from time to time & let us know how great your doing.  Enjoy your friends and music and I'm happy that you are feeling better & liking life again.  ((((Hugs))))-A
Title: Re: Amputation after MRSA
Post by: Rknees4 on March 20, 2013, 03:49:05 AM
Malin,
We do still care but don't always write.
Continue to write if you feel like it.
Most of us get busy and don't always take the time to write but we do continue to read. :)
I am so glad to hear you are doing so much better. ;D
Take Care
Rk4
Title: Re: Amputation after MRSA
Post by: MDJ on March 23, 2013, 09:52:17 AM
Hi to you all and Thanks for all sweet messages. :)

Caught another severe infection giving me phneumonia and breathing problems. Slowly feeling better but back in hospital. You can say that I know these routines by now. But this is my life and what else can I do?
I hope you are doing as well as you can. I will continue writing now and then. You do lift me up...thanks. :-*

Love from Malin. 8)
Title: Re: Amputation after MRSA
Post by: MyKnee2010 on March 23, 2013, 02:43:21 PM
Hi Malin,

Sorry to hear you are back in the hospital! I'm glad you're feeling a bit better. I hope you get to go home soon & then stay out of the hospital for a very long time!!

Take care!
Phoebe
Title: Re: Amputation after MRSA
Post by: tez27 on March 23, 2013, 04:23:45 PM
Oh Malin sorry you have been hit by another infection I hope you feel better soon and get out of hospital before too long, your amazing the way you deal with everything and dont seem to let it get you down......sending lots of (((hugs)))) your way to help you feel better.
Take care Tez
Title: Re: Amputation after MRSA
Post by: Brambledog on March 23, 2013, 05:01:25 PM
Pesky infections  :P Take care of yourself Malin and get well soon... I bet like many of these things it doesn't matter how many times you have to do it, you never get used to it. Hopefully you'll be out pretty soon and back to life proper.

Brams  ;)
Title: Re: Amputation after MRSA
Post by: FMRCathelete on March 24, 2013, 03:14:37 PM
Malin- So sorry you are bag in the hospital  :(  But so very happy to hear from you ;D. I'm quite sure I would not be able to handle all you have been through & keep such a great perspective.  Hope they have you on the best antibiotics to get rid of the bacteria and that you continue to feel better.  As always, I wish you the best and hope you are released soon & back to your life.  Again, it is great to hear from you, though I wish it was due to a more positve event.  Take care girl! 
Cheers-A
Title: Re: Amputation after MRSA
Post by: Lottiefox on March 25, 2013, 07:49:24 PM
Malin I am sorry you're back in hospital. You are such a tough girl, keep on fighting this latest infection. You'll be back out and at home before too long I hope. Sending all love and best wishes for a speedy escape from the hospital and a return to better strength.

xxx  :)
Title: Re: Amputation after MRSA
Post by: Lottiefox on March 27, 2013, 01:07:14 PM
Hey Malin

How are you doing? Hope you're getting better and will be out of hospital soon and back home making music!

thinking of you

xxx ;D
Title: Re: Amputation after MRSA
Post by: MDJ on March 28, 2013, 12:50:21 PM
Hi!
Thanks for all sweet messages.  :-*

I'm at home but not doing well. I'm still on heavy antibiotics and still run fever now and then and I just feel drained.
They can't make any promises how my life will be, if there ever will be any good life without infections.
I have this s**t in my coming out now and then to make life miserable.
I'm not happy at all. My friend, some of you knows who, tries to be there for me...but she's also struggling and I don't want to be a burden. But you all know some friends are easier to be with and easier to talk with then others. She get it, the other even if they are sweet, they don't understand me at all. All I hear...oh you will be fine.
The trip to L.A. is just to forget.
 :( :( :(

Malin
Title: Re: Amputation after MRSA
Post by: MyKnee2010 on March 28, 2013, 01:45:12 PM
Malin,

So sorry to hear the bacterias are still making you feel bad! I hope the trip to LA does help give you something to look forward to & a break from all this.

Take one day at a time & know we are all wishing the best for you!! I wish there was more we could do. Feel free to PM me any time if you want to talk or rant.

Keeping you in our thoughts!
Phoebe
Title: Re: Amputation after MRSA
Post by: Lottiefox on March 28, 2013, 01:53:45 PM
Malin

I am sorry to read you're struggling. I am not going to say "don't worry it will all be fine". I think we all appreciate on here how serious things have got for you and how hard you are fighting to keep the infections away. Your body must be exhausted by it all. I wish I had a pill or magic wand to take away all the rubbish that has followed you since your very first op. It seems so darned unfair that complications keep setting in, but I will say you are a strong, tough woman and I think life will one day be happy for you and your health will settle down. I guess you know life won't ever be the same and that is a tough one. As you say, your good friend knows about living with constant **** and pain too so I can guess she is just great to have around for you. I know she cares about you very much. We do too, albeit from a distance.

Keep us posted. We are all behind you to get over this latest infection and to start feeling like Malin again.

With hugs xxxx
Title: Re: Amputation after MRSA
Post by: FMRCathelete on March 29, 2013, 10:08:32 PM
Malin,  I am happy that you are home, but so sorry that you are still not well.  Hang on to your friend who gets it, as you well know she is priceless.  Your friends who say you'll be fine truly just don't know how to deal with it or what to say- heart in right place, as you say.  I know you are blessed to be alive, but can't begin to truly understand all you have been through.  You inspire me with your strength and perseverance and make my measly pain easier to bear.  I hope you share your music with us someday as well.  Stay strong and know you are in my thoughts (& my Mom's as she asks how you are at least once a week).   

Hope you are feeling stronger soon.  ((((Hugs)))) A
Title: Re: Amputation after MRSA
Post by: MDJ on March 30, 2013, 12:11:48 PM
Thank you all for being here for Me. :-*

Feeling a bit better but though very weak. Most time is spent in sofa or in bed
And I dont have many visitors cause of infection and that Im so tired. But those I meet cheer Me up and makes Me determined that Im going to beat this too.
Doing Music still though and have a fantastic little studio at Home.
I know life Will be better just a matter of when...
Lots of love Malin 8)
Title: Re: Amputation after MRSA
Post by: ouch09 on March 31, 2013, 12:08:25 AM
Sorry to hear you got another infection. I hope it's not MRSA again ?

Anyway, glad to hear you're keeping up with the music. I'm a very very amateur musician, so I know how therapeutic music is. Do you compose your own pieces or play other people's compositions ?
Title: Re: Amputation after MRSA
Post by: Brambledog on March 31, 2013, 12:29:45 AM
Hi Malin, hang in there girl  :)

I'm not on the site much these days, sorry to hear your infection is being stubborn and leaving you so tired and miserable, you must feel so frustrated with it all. Just keep fighting and keep up with the music and your great friend, give her my best wishes too, I know you both have huge personal battles going on...

Life is not fair, but I hope you can turn that corner towards better health again very soon.

Brams  ;)
Title: Re: Amputation after MRSA
Post by: FMRCathelete on March 31, 2013, 06:34:39 PM
Hey Malin!  Perfect for you to have studio at home- I'm glad you have that outlet and it's not too much work to get there ;D  I am just curious -do they have you on IV antibiotics at home?  I have no doubt that you will get through this.  Stay strong, rest often & take care girl.  Cheers-A
Title: Re: Amputation after MRSA
Post by: tez27 on March 31, 2013, 08:44:18 PM
Hay Malin so so sorry your having another tough time, it feels like you just cant catch a break at all and my heart goes out to you, you have been through so much already and I know you'll come through this ok in time, your one of life's fighters that's for sure....sending healing feel better (((hugs))) your way.
Keep the music coming and take care
Tez   
Title: Re: Amputation after MRSA
Post by: FMRCathelete on April 03, 2013, 05:51:37 PM
Just checking in to see if you are feeling stronger.  Hope all is well and you are just busy with your music.  Cheers-A
Title: Re: Amputation after MRSA
Post by: Lottiefox on April 05, 2013, 07:25:13 PM
Hey Malin

How are you doing? Did you have a nice Easter? how is the music coming along? I hope you're fighting off the last infection and feeling better. Thinking of you!

Hugs xxxx
Title: Re: Amputation after MRSA
Post by: Snowy on April 05, 2013, 09:12:25 PM
Hi Malin,

You've been on quite the rollercoaster since my last check in. So sorry to hear about the latest infection - I really hope that at some point either your doctors or your body will figure out how to fight these off before they get such a hold on you. I hope that you've been able to stay at home rather than going back to the hospital. Having your own things around you is such a comfort, and it sounds like your music studio is a good distraction.

Really hoping that the most recent infection is cleared up (or at least on its way out) and that you're feeling better. Sending you good thoughts and strength from a rainy spring day on the west coast.
Title: Re: Amputation after MRSA
Post by: dm on April 06, 2013, 04:18:32 AM
Hey Malin,
I'm another of those "lurkers" who also read and follow to see how you've been. I've been kept really busy with my work, so I've not been able to post as much as I'd like, and I apologise for that. I've got a permanently wrecked knee, and I know that you're an inspiration to people like me - you never give up, even with all you've been through, and that's so incredible!

When I've had a bad day, and I'm in pain and miserable, I think of you, and think that if you can, so can I. I take a page from your book - find the things I like to do that I can do from my couch or bed when the knee's had enough, and do those, and when I can, get back at it.

You're a very, very special person, Malin, and through these pages here have touched so many lives. The never-ending courage you show with all you've been through is something that is just amazing. I hope those around you in your life every day realize how special you are! :) :D

I hope you're feeling better by now, and have been up to spending some time in your studio or getting out and about a bit for a change of scenery.

thank you for being you - a very special and talented person.
Keep hanging in there! :) :)
Title: Re: Amputation after MRSA
Post by: Rknees4 on April 06, 2013, 05:29:28 AM
Hi Malin
Was just thinking about you so I popped on to tell you so. :D
Here is a ((((hug)))) for todays fight. :-*
You are so very special to all of us who have read your story.
Take Care,
Never give up!!
Rk4
Title: Re: Amputation after MRSA
Post by: FMRCathelete on April 07, 2013, 02:42:04 PM
Hey Malin- Just stopping by to check in.  Thinking of you & hoping you are doing alright.  I am hoping you are busy with life and creating new music.  Cheers-A
Title: Re: Amputation after MRSA
Post by: Rknees4 on April 14, 2013, 04:44:01 AM
Hi Malin,
Still thinking about you, ??? hoping your infection has simmered down again allowing you to do the things you enjoy.. :)
Take Care,
Rk4
Title: Re: Amputation after MRSA
Post by: FMRCathelete on April 15, 2013, 12:51:02 AM
Hey Miss Malin-where are you?  Please post soon so we know you are ok.  I am hoping you are just too busy with life to say hi to your fellow KGer's.  Take care-A♠
Title: Re: Amputation after MRSA
Post by: Lottiefox on April 24, 2013, 05:31:25 PM
Hey Malin

How are things? Thinking of you and hope to see you update soon with some good news. Big hugs xxx
Title: Re: Amputation after MRSA
Post by: Snowy on April 26, 2013, 06:05:24 PM
Hoping things are going well for you and the infection has cleared up now. Sending you good thoughts and hoping we'll hear from you soon with an update.
Title: Re: Amputation after MRSA
Post by: Rknees4 on April 28, 2013, 09:12:19 AM
Thinking of you Malin at this very early hour. Hope all is going well. :)
Rk4
Title: Re: Amputation after MRSA
Post by: TPF Survivor on April 28, 2013, 09:46:04 PM
Hi Malin,

Wondering why you deleted your last message? I'm hoping things are better for you and all of us who continue to click on your diary love to hear your news, no matter good or bad (but hopefully good!). Thinking of you and wish you the best.

Candi
Title: Re: Amputation after MRSA
Post by: MDJ on May 07, 2013, 07:31:59 PM
Hi all lovely People.

I'm sorry that I haven't written for a very Long time. I am fighting infections and have done two more surgeries. It's a constant battle that I don't seem to win. I am home some Days and back to hospital again. Been like this all the time just cause of this stupid accident When I slipped by the pool. I haven't had much energy for anything. My love I have found stick with Me and so does my friends. Without I would be lost. Just Want to thank you for sticking by my side. Much love from Me to you for that. Somehow I need to get the lust and energy for Daily life back, but it's so hard so very hard. I try to get back to you soon again but if you don't hear any Then don't worry. If all would be lost....I let you know. Love Malin
Title: Re: Amputation after MRSA
Post by: Rknees4 on May 08, 2013, 12:08:39 AM
Malin ,
So very happy to hear from you. Sorry you are still fighting this awful infection.
You continue to be in my prayers as the days go by. :)
You hang in there and keep fighting. Here is a hug for another day of fighting from all of us.((((HUG))))
Take Care and know that we all do care for you and your struggle.
Rk4 ;)
Title: Re: Amputation after MRSA
Post by: Snowy on May 08, 2013, 07:02:54 AM
Malin!!! So happy to hear from you, though very sad that it's not better news. I am so very very glad that you have friends taking care of you, and that your new love is proving loyal and supportive. I'm really sorry that you've had to endure another two surgeries; that's so tough and unfair after everything you've been through.

Don't worry about your energy levels right now. You've had to fight so hard...it's no wonder you're drained from battling these infections and recovering from surgery. We all know how strong your spirit is and when your body is doing better, you'll be able to apply the energy that you're using to fight the infections toward other things.

Write when you can, and know that even when you don't update for a while we're all thinking of you, pulling for you, and wishing with all our hearts that you're just busy living life rather than having to endure these battles. You are such a strong, brave person - don't ever let go of that strength and bravery. It will get you to where you need to be in the end.

Hugs from Vancouver. xxxx
Title: Re: Amputation after MRSA
Post by: FMRCathelete on May 16, 2013, 11:10:51 PM
Malin it is so good to hear from you! ;D  For some reason you just popped into my mind while I was at work today.  I'm sorry you are still having such a battle.  It just plain stinks that what would seem like a little accident has had such long lasting and significant effects. 

Hang on to your love and friends-they are obviously true to you and it is wonderful that you have so much love and support in this fight.  You must feel exhausted and don't stress about that -no one could go what you have been through and do better than you seem to.  Stay strong!!!!

((((((((((((((HUGS))))))))))))))))) A
Title: Re: Amputation after MRSA
Post by: Brambledog on June 07, 2013, 09:36:09 AM
Hi Malin,

Sorry to hear you are still fighting with these horrible infections and surgeries, but good on you for keeping going through all this and still smiling...

I will keep hoping that there's an end to this for you, and that you can leave the hospital behind finally and enjoy your life again.

Brams  ;)
Title: Re: Amputation after MRSA
Post by: MDJ on June 10, 2013, 05:28:13 PM
Hi y'all!

Am Home jumping around in crutches and now and Then use my wheelchair instead. Making Music and feeling pretty ok. Finally my wounds are closed and starting to be Me again. Working together with ny Dear friend also as We live close. Love is Good. We dont live together but are often together.
I'm right now planning my trip over to USA, back where my year of hell started. But all hasn't been hell, lots of heaven too. Actually I'm Happy for what's been sort of. I have grown as person and also got to know amazing People. I also have the most wonderful friends stuck by my side from beginning. First it's time to celebrate my birthday. I wish I could have you all by my side. You have meant the world to Me When all has been the worst. I'm thankful to be alive. It could have been the opposite. So close it has been many Times.
Thank you from deep of my heart.   

Love Malin
Title: Re: Amputation after MRSA
Post by: Brambledog on June 10, 2013, 05:42:59 PM
Happy Birthday Malin!!!!

Wonderful to hear you so full of joy, and looking forward to good times ahead...  ;D Must feel amazing!

Hugs to you and your fab friend, I wish you both all the happiness there can be.

Have a great time  8)

Brams  ;)
Title: Re: Amputation after MRSA
Post by: kcknee on June 10, 2013, 08:00:09 PM
Malin-

It's great to read that your life is becoming so wonderful. You deserve the best after everything you have been through. Keep your true friends close and enjoy your music. I hope you have a great birthday.

Kristin
Title: Re: Amputation after MRSA
Post by: FMRCathelete on June 12, 2013, 12:19:20 AM
Happy Birthday Malin!!!!  And it is wonderful to hear you are doing so well.  Please enjoy every moment of your time is USA (my side of the pond.)  You are so blessed to have gotten through this, you must be destined for great things.  You truly know you have friends for life after an ordeal such as yours & finding you Love is like icing on the cake.  I hope to hear your music sometime -love all kinds.  My mom will be thrilled to hear you are doing well also -you truly do have people all over cheering for you ;D 

Have a safe & super fun trip & please drop in from time to time to let us know how you are.  Here's to good times from here on out -Cheers, A 
Title: Re: Amputation after MRSA
Post by: tez27 on June 12, 2013, 09:31:19 AM
Malin I cant tell you how good it was to hear from you and even more so because you sound so happy and well, I am so pleased ;D ;D
I hope you have a wonderful birthday and your trip to the States is a great adventure, you are one plucky, strong lady to have come through all you have with a smile on your face and still making the music you love
I hope from now on things just get better and better cos if anyone deserves a fantastic life its you...

Take care tez
Title: Re: Amputation after MRSA
Post by: MDJ on June 15, 2013, 05:57:15 PM
Hi you all!

Thanks for the sweet messages. I hope that you all are doing as well as you can and enjoy life where you are in the world.
Been a lot of working those last days and some new fun stuff on the go.
Also planned to be dj at some private parties. One is tonight. :)

I still live with to much pain and pain meds but I have found some techniques that are helpful for me.
I am happy to be back in life. I have scheduled my days with exercising, stretching, relaxing, massage 2 times a week. The rest of the time is working, enjoying friends and my small family.

I fly to USA the 1st of July and plan to stay for 2 months. If someone is close to L.A. and would like to meet up please write me a private message. It would be lovely to meet someone in real life. I will also be in London for 2 weeks in September.

Wish you all the very best and I do hope your knees stay nice over Summer.

Love Malin 8)

Title: Re: Amputation after MRSA
Post by: FMRCathelete on June 16, 2013, 02:43:20 PM
Malin it is just so good to hear that you are living life and enjoying it again.  I'm sorry that you still have so much pain, but happy you have some good coping strategies.  Your current schedule sounds very healthy for body, mind & spirit.  If I were close to LA I would love to meet you, but I am on east coast.  Maybe someday you'll be in NYC & hubby & I can come see & listen to your music.  Have a wonderful trip, be well & stay safe.  Have a great summer.  Cheers-A
Title: Re: Amputation after MRSA
Post by: MDJ on June 25, 2013, 08:07:32 PM
Only a couple of days until I'm leaving for USA on Saturday.
A bit nervous but excited. Pain and issues are there, but I think the flights will be ok. Well I hope that.
A lot of things to take with me and also a lot of paperwork. But now is just packing my belongings left. My friend's son will use my apartment when I'm away. A great young good looking guy. :)

A, I might take me to the east coast too. Depends on how we are working with the music. Be sure then I would like to meet you in person. Let's keep in touch.  ;)

I hope you all are doing as well as you can and enjoy Summer.
Love Malin. 8)
Title: Re: Amputation after MRSA
Post by: Lottiefox on June 25, 2013, 10:15:34 PM
Malin!

I missed your last update! I am so happy you are making plans and living life. I am sorry you have pain but hopefully in time things will calm down. I would dearly love to have a coffee with you in London. I am about 90 minutes away on the train so it is very easy for me. To meet you in real life would be amazing. I feel you have come so far and I would love to see how you are doing and talk music with you. I still believe I will see you up on that stage one day pumping out your music! Are you going to be working out in LA? I am sending you every huge best wish for a safe and fun packed trip. LA is lucky to get Malin back again.

Be safe Malin and stay in touch. You can always get me via your friend N on facebook, London would be simply amazing.

Hugs xxx
Title: Re: Amputation after MRSA
Post by: FMRCathelete on June 25, 2013, 11:32:59 PM
Malin- Just wishing you a safe & fun trip.  And yes-if you are going to make it to east coast send me a PM & if I can get there I will.  It would be great to meet you as you have been so inspiring to me & so many others.  I really hope this trip exceeds your expectations, you deserve a whole lot of great in your life.  Cheers-A
Title: Re: Amputation after MRSA
Post by: Snowy on June 26, 2013, 06:31:29 AM
Malin!!! So happy to hear you sounding so positive and trying new things, even if they're daunting. I'm a ways north of you in Canada, but if your trip brings you near Vancouver let me know - I would love to meet you in person and toast your remarkable journey. In the meantime, have a fantastic trip and here's to being full of life. :) You are an inspiration to us all.
Title: Re: Amputation after MRSA
Post by: MDJ on July 10, 2013, 11:41:59 PM
Hi all !
As usual thanks for the sweet messages. I'm over in L.A. now working my butt off on my solo career and some other collaborations. This is truly me.  8)
My leg gives me still lots of Daily issues, but I try to get around them in different ways.
I have also been back where my accident was. It was kind of hard and I cried so much but it had to be done. I will never get back to the former me again. But the new me is me anyways. There is no turning back. What happens in Life can't be undone. We can just move on and do the best of what we have and it doesn't have to be that bad.
You are a reason to my fight. You have helped me so much. My love is with me here LA. Fantastic to have him around me every day.:)
I get back again when I can. Hope you do the best of what you have. Remember that you are the only one who can decide how your day will be regardless if you are in severe pain or not.

Love Malin. 8)
Title: Re: Amputation after MRSA
Post by: dm on July 11, 2013, 01:55:42 PM
Wishing you a Happy Birthday! :D ;D

Glad you're feeling better too! Go celebrate many things and have the best time ever!

Nice to hear happy news!!!!
Title: Re: Amputation after MRSA
Post by: FMRCathelete on July 11, 2013, 11:48:30 PM
Hey Malin.  Great to hear you are feeling more like you ;D  It must have been very difficult to return to where this all began, but you are right, it did have to be done.  You have come full circle and it did not beat you!!!!!!  You and your man have a wonderful time.  I hope he knows he's a lucky guy ;)  Soak in all the sun & good times you can -you deserve them.  And you are right about choosing how our day is for yourself.  I have learned how to ride a motorcycle this spring & it is amazing -most free I've felt in years.  Knee still hurts, but I'm definitely happier despite it.  You have helped me more than you will ever know.  Thank you for being so strong & positive. 

Enjoy LA!  Can't wait to hear you.  Cheers-A
Title: Re: Amputation after MRSA
Post by: MDJ on August 24, 2013, 07:08:25 PM
Hello to you all!

This Summer has been insane crazy with Music, Music and more Music. Looks like the release will be somewhere in October. Can't wait really. This is my unreal Life a year ago coming into a Dream that is so unreal so I thought never I could Dream this at all. :D
My leg is as it is and so is my attacks infections that comes and goes. One hospital stay I have had over here for 3 Days but that's all.
I hope your Life is as good as it can be and that you Summer has been a sweet one so far.

All my love/ Malin.
Title: Re: Amputation after MRSA
Post by: tez27 on August 25, 2013, 08:55:01 PM
Malin its so good to hear from you, it sounds like you have had an excellent summer and its so good to hear you so upbeat about everything, I am so pleased your getting such joy from your life and your music after all you have been through you deserve only the best of things from now on.
Take care Tez
Title: Re: Amputation after MRSA
Post by: FMRCathelete on August 26, 2013, 01:51:20 PM
Malin-it's so great to hear from you ;D  More than that is that you are living your dreams.  May your bumps in the road continue to get smaller.  I'm sure hospital stay was a bit scary with all you've been through, but 3 days is nothing compared to past.  I hope they get a handle on the recurrent infections soon, you deserve a long time away from hospitals!  My summer has been the best in awhile -have put about 1100 miles on my motorcycle-love the feeling of freedom and am so grateful my husband pushed me to get my own.  I really can't wait to hear your creations and I don't even know what genre you are working on, please let us know where we might be able to listen.  Stay amazing!!!!  Cheers-A
Title: Re: Amputation after MRSA
Post by: Clarkey on August 27, 2013, 04:54:45 PM
Hi Malin,

Congratulations with the release of your album/single! It is always good to fulfill your goals and dreams in life as life too short and should enjoy what you are by doing in life doing something you know you are good at doing.

Hope your recovery continues to improve and have no more infections and setbacks and can enjoy the autumn doing what you are good at doing.

[email protected]
Title: Re: Amputation after MRSA
Post by: FMRCathelete on September 26, 2013, 10:46:44 PM
Hey Malin -How are you?  Hope all is going well with the upcoming album release and that you are feeling well.  I hope you are taking some time to bask in the CA sun!   Take care & hope to hear from you soon.  Cheers-A
Title: Re: Amputation after MRSA
Post by: MDJ on October 02, 2013, 11:00:37 AM
Back in hospital. Have fought a severe infection once again and starting to feel a bit better.
This is a neverending story. :(

/Malin
Title: Re: Amputation after MRSA
Post by: MyKnee2010 on October 02, 2013, 01:03:32 PM
Sorry to hear you are back in the hospital! I hope your recovery is speedy & that the joy you had creating your album helps to get you through this rough patch!

We are keeping you in our thoughts & wishing you only the best!!

Phoebe
Title: Re: Amputation after MRSA
Post by: kcknee on October 02, 2013, 05:36:34 PM
I'm so sorry to hear about the latest infection. I hope you are able to get out of the hospital soon and get back to your life.

Stay strong.

Kristin
Title: Re: Amputation after MRSA
Post by: FMRCathelete on October 02, 2013, 11:49:26 PM
Malin,  I'm so sorry to hear you've had to go through another hospital stay, but very happy you are starting to feel better.  I do hope the upcoming album release is giving you a great reason to smile.  Big hugs to you ((((())))) and know that you have lots of people thinking of you and wishing you well.  Take care-A
Title: Re: Amputation after MRSA
Post by: Snowy on October 03, 2013, 12:51:38 AM
I'm so sorry - that's a very tough setback when things have been going so well recently. I'm glad your fighting spirit saw you through and you're starting to feel better.

I hope that you're able to leave the hospital and get back to your music very soon.
Title: Re: Amputation after MRSA
Post by: MDJ on October 08, 2013, 10:37:08 PM
Thanks! :-*

I'm still in hospital and been very bad off. They do what they can. So very exhausted. I hope I can win this fight./Malin
Title: Re: Amputation after MRSA
Post by: FMRCathelete on October 09, 2013, 10:28:01 PM
Oh dear Malin!! :(  I will pray for you and I do so hope you are able to beat this.  You have inspired so many you deserve a great life, not more time being sick.  I hope they find the right mix of antibiotics to help you win this fight once & for all.  Please know that we are all pulling for you and I'm soooo sorry I'd didn't check in yesterday.  Stay strong & sleep all you need to.  Big hugs-A
Title: Re: Amputation after MRSA
Post by: Lottiefox on October 12, 2013, 10:06:49 PM
Malin

I am so sorry to read that you are struggling with infection again. I had seen your post a few weeks ago saying how much you were moving forwards but was alerted to your recent bout of infection by one of my friends on here. I just want to send you my love and best wishes for a speedy recovery. You have such determination in all of this and you will fight through again.li know Malin is stronger than the infections, sleep when you need to and remember how much we are all behind you.  Sending you big hugs

Lottie xxxx
Title: Re: Amputation after MRSA
Post by: Rknees4 on October 13, 2013, 10:19:25 PM
Hey Malin 
Just checking in hope you are starting to feel better so sorry to hear you are fighting the big bad bug some more.  Here is a hug for the fight this day and the difficult days to come..
 :-*(((((HUG)))))
Rk4
Title: Re: Amputation after MRSA
Post by: MyKnee2010 on October 14, 2013, 12:00:24 AM
Hey Malin!

Hope you are starting to feel better! You have beat this so many times in the past, I'm sure you can beat it again!

Thinking of you!
Phoebe
Title: Re: Amputation after MRSA
Post by: FMRCathelete on October 17, 2013, 11:23:52 PM
Hi Malin.  Just checking in & hoping you are feeling better.  Big Hugs (((((((()))))))) A
Title: Re: Amputation after MRSA
Post by: FMRCathelete on November 21, 2013, 11:03:27 PM
Malin, Just hoping you are ok and thinking about you.  Getting worried as it has been a long time & last post was worrisome. (((((((((((((((((((((((HUGS))))))))))))))))))))