KNEEtalk

DIARIES => Post op diaries (>300 posts) => Topic started by: oohheykate on April 11, 2011, 02:55:49 AM

Title: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on April 11, 2011, 02:55:49 AM
Iím starting my post-op diary a few days early. So as a few of you know, Iím having my fourth and hopefully final surgery on my left knee on Thursday, April 14th. Iím getting an MPFL reconstruction with an allograft and a scope. As of right now, my OS is not doing anything else. Iím supposed to be on crutches for 2 weeks and in an ROM brace for at least six. Iím going to be on Percocet at home and Tramadol during school and Iíll be getting sleeping pills for two weeks. My OS told me Iím getting a cryo-cuff, so Iím pretty excited for that. I start PT after my first post-op appointment. My OS expects me to be walking normally in 6-8 weeks and fully recovered in 3-4 months.


Back-story:
In November 2007, during a soccer game, my left knee started bothering me. It hurt to straighten it completely so I was to my PCP and after watching it for a month; I was referred to my first OS who diagnosed me with PFS. I was sent to PT after x-rays revealed nothing and given a J-brace. In February, I suffered my first subluxtion. I was in and out of PT for 9 months and I developed a flexion contraction from not straightening my leg. When my MRI showed nothing, my OS sent me to one of his colleagues who said I needed an exploratory scope. He thought I had an undetected meniscus tear.† I had the scope on 11/7/2008. OS #2 removed synovium and plica. I went back to PT for four or five months. By May, OS #2 was considering surgery again, this time a lateral release. He performed repeat x-rays which showed a lateral tilt. OS #2 told me that the LR was my best option and I had that on 7/2/2009. I started PT three weeks after and went on and off until November 2009. When I saw OS #2 in November, he told me that I should think about getting surgery again but get a second opinion. I saw OS #3 a week later and he agreed that I needed Medial Reefing after a tracking CT. I had that surgery on 12/10/2009 with OS# 2 because OS #3 didnít want to do it. I was NWB for a month and on crutches/in an immobilizer for two months. My quads wasted away but I was out of pain for 3-4 months. When I finished PT, my pain and instability had gradually started coming back. By July, it was worse than ever. I had my fourth MRI and full leg x-rays. But OS #2 was stumped and had no idea what to do. By the end of August, he told me to find a new OS. I went to see OS #4 in September and he told me that I had to live with the pain and sent me to pain management. I was NOT happy with that so I made an appointment to see OS #5 (my current OS) after PM. PM put me on Mobic which did nothing. I saw OS #5 and he is honestly the best thing that has ever happened to me. He is very understanding, comforting, and knows a lot about PF disorders. He suggested I start off with inserts for my shoes and then try Synvisc. Neither of those worked so after he ruled out other issues, I agreed to have an MPFL reconstruction because my instability is annoying and painful. My OS believes the MR ultimately failed because Iím hyper-mobile.


So Thursday is the BIG day. Iím only missing two days of school (hopefully) because next week is my Spring Break. Yay me!† Iím ready to get it over with, kinda nervous for the pain because my OS said itís going to be more painful than the MR and that was really painful. I mostly ready to get my left knee problems solved so I can play soccer again and then deal with my right knee.

___________________________________________________________________________________

This tread is never ending but I am happy to report that after five years of pain and instability, my left knee has been fixed! Although, I am not playing soccer due to other joints becoming unstable and being injured. I have achy pain in my knee but that is never going to go away because of how badly my kneecap tracked. My kneecap no longer subluxates and I don't have 8/10 pain on a daily basis. It's amazing! I never ever thought this day would come.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: TwoBadKneesUSA on April 11, 2011, 01:26:51 PM
Good luck kiddo.  Wanted to make sure I would find this when you update after surgery.  Thursday will come fast and be done and you will be on the healing side soon. 

Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: DaVinche14 on April 11, 2011, 01:42:06 PM
Wishing you well for the op. Hope you have a speedy rehab!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: CamillaLuise on April 11, 2011, 07:49:53 PM
Hi!

Good luck! And well done in hardy missing school, so much easier to be in pain when you have no homework to worry about!

I'm in surgery on the 15th! Will be starting a diary shortly..
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: Runner1993 on April 11, 2011, 10:42:29 PM
Good Luck! Hope it works. Glad you don't need a TTT, the bone pain wasn't too pleasant. Think positive and you'll be well on your way into recovery in no time!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: oohheykate on April 12, 2011, 02:38:58 AM
Thanks for the well wishes and luck everyone. I appreciate it!!


Good luck to you, Camilla.


I just found out today that I have a math test on Friday, so I have to take that Wednesday after school. I also have an English test on Thursday but my teacher won't have the test made up so I won't be able to take it until after Spring Break. These two days are stressful because all of my deadlines are pushed up. I have to finish my English paper by Wednesday, also even though the original due date is Friday. I haven't had this much work all year! I swear they planned this.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: LoosePatellas on April 12, 2011, 03:41:34 AM
Wishing you the best.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: smillie on April 13, 2011, 05:22:26 PM
Kate, they probably planned to have everything due before spring break because they know everyone will be totally checked out after spring break--especially the seniors!  ;D I know we always were...

Good luck with your surgery. I know the nerves are probably kicking in pretty good by now. Deep breaths, girl! You'll be waking up in that recovery room in no time.  :)
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: oohheykate on April 14, 2011, 02:59:53 AM
Thank you LoosePatellas and smillie!!

My surgery is scheduled for 8am tomorrow and I have to be there by 6am. When I planned my surgery, my OS said I'd be his last case of the day, but I'm his first. I'm kinda glad since I won't have to think about it all day.

I did have a breakdown today in English and cried three times, lol. But I think I'm okay with it now. I've never cried over any of my surgeries so I don't know what makes this one different.

I'll update as soon as I can.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: bball123 on April 14, 2011, 03:17:13 AM
Good luck tomorrow!! Just think of how good it will feel once you get the surgery part over with and you can move onto recovering.

Update us when you feel up to it!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: Runner1993 on April 14, 2011, 11:36:16 PM
Hope it went well today...fill us in whenever you can!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: TwoBadKneesUSA on April 15, 2011, 02:11:43 PM
Hope you are doing well today.  Take it easy and post when you can.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: oohheykate on April 16, 2011, 02:13:58 AM
End of post-op day one.

So surgery was yesterday and as far as we know, it's been a success! My OS called today to see how I was and told me that my knee cap doesn't move as far laterally anymore and the scope was clean. I've been in A LOT of pain. Mostly because Target ran out of percocet so I was taking my mom's since it's the same dosage but I read the label wrong and I was taking it every six hours instead of four then I finally got my prescription and found out that I can take two at a time! Hopefully, my pain will be under control now. My parents finally got me enough ice for my Breg Polar Care Cube. So I can actually feel it. In case anyone is wondering, I have the Breg full foam T Scope. I see my OS next Friday and I'm not allowed to take my bandages off till then.

I got to the hospital at about 6am and got checked-in. While I was waiting in the surgical waiting room, I feel asleep. They had recliners so I had to take full advantage. My OS and the rest of the OR staff came over to talk to me at about 8:20. He asked if I had any questions and when I told him no, he got this surprised look on his face and said "I thought for sure you'd have questions!" We went over my surgery again and then he signed my leg. I was taken back to the OR at about 8:30. My mom said my OS came out to talk to them at around 11:55, he said they were still bandaging my leg. So I was under for a longer time then my OS thought. I remember gagging on the breathing tube but then the nurses couldn't wake me up in the PACU. I ended up with an oxygen mask on for a few hours then just the nose oxygen. I was really sick from the anesthesia. I think I threw up at least 15 times yesterday. They gave me every anti-nausea medication they could and nothing worked. The nurse said they even emptied my stomach while I was under. My pain was really terrible when I woke up. I was given morphine but then I was told I wasn't allowed to have anything else unless I stayed awake. I started crying and the nurse gave me dilaudid. It still didn't do anything. Anyway, I was in the PACU until 6:30pm because I wasn't alert enough to leave.

I can't move my leg by myself like I can't even adjust it. I can't sit up yet :( It hurts really bad to get up to go to the bathroom. I feel like there's a lot of pressure on my knee cap when I get up. I hope my pain settles down soon. Or at least by April 26th so I can go back to school when Spring Break is over.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: oohheykate on April 16, 2011, 02:15:08 AM
And if anyone has questions, feel free to ask!

Also, my ankle is pretty achy but I'm assuming it's from swelling or something. I can't see my ankle at the moment.

Here's a picture of me before I went into the OR:
(http://i54.tinypic.com/fnu788.jpg)
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: Runner1993 on April 16, 2011, 02:27:13 AM
Hey Kate...I was waiting for your post to see how you were doing. Sorry about the pain....even though you know it's coming after surgery, it's hard to prepare yourself for it.

Maybe if I ask some questions it will take your mind off it  :)

I'm guessing the full-foam Breg is kind of a cross between hinged brace and immobilizer since they are made of foam? Is that how you would describe it?

Besides the scope scars, how many new incisions did he have to make? Was he able to use your old one?

Do you have stitches/staples? Ace wraps? Are you on antibiotics? Allowed to shower after a certain # of days?

Did you stay overnight?

So, you don't get to see your knee until next Friday?

Did he just have to do the MPFL recon? How was your cartilage?

Your surgery was over 3 hrs? Or was not all that time operating time? That seems long esp. since my TTT, LR, and MPFL was done in I think 2.5. Maybe your surgeon takes his time  ;)


Hopefully, my questions don't bug you, but occupy you instead! Rest up. Hope you enjoy the ice machine!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: oohheykate on April 16, 2011, 02:40:01 AM
Hey Runner!

You totally aren't bugging me.

The brace is just the T Scope (http://www.breg.com/knee-bracing/post-op/t-scope.html) with foam panels.

I think he may have used my old scope scars. Up till when I was on the OR table, he was still debating on whether or not he could use my old incision. If he used my old one, I'm going to have one more medially on my knee. If he didn't, I'll have another one about two inches more medially than my old one.

I think I have internal stitches. My OS told me a few weeks ago that's what he was going to use. I'm ace bandaged from my thigh to mid-foot. I'm on antibiotics 4 times a day for three days. And I'm not allowed to shower for a week.

No over night stay for me :(

Unfortunately not and the anticipation is killing me. I just want to see what it looks like.

I'm pretty sure he just did the recon. He said my scope was clean.

I really don't know why it took that long. He estimated an hour and a half. So it was twice as much as he guess. I'll be sure to ask on Friday.

The ice machine is wonderful now that I can feel it :)
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: TOMMAX on April 16, 2011, 03:53:07 AM
Kate, really happy to hear that you made it through the surgery and your surgeon feels everything went well. Youre super tough for having gone through all of that, you should be proud of yourself. The pain sounds pretty wicked, I cant even imagine. Hope the pain meds will be sufficient and take some of the edge off at least. Praying for you to have a speedy and successful recovery and looking forward to your future postings.

Best wishes.

Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: kasia_ny on April 16, 2011, 03:54:15 AM
Hi Kate,

I am sorry to read about the pain and your bad reaction to anesthesia. †I had the same thing - I was throwing up multiple times and they kept me in the recovery room from 9pm to 3am... six hours. †My procedure was also close to 4 hours - I had TTT and cartliage transplant. †

I had the same brace - it is a good one, very light and easy to manage - however, I hated it for the first couple of weeks. †Then I got used to it, and finally, happily ditched it about two weeks ago.

Take some rest now! And keep posting.

Hugs,
Kasia
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: Runner1993 on April 16, 2011, 06:49:55 PM
I have the Breg T-scope, too. Mine looks exactly like the one in the picture. What do you mean by foam panels? I don't know what they are lol.

After both of my surgeries, I have never been put on antibiotics to prevent infections.

Hope today was better!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: oohheykate on April 17, 2011, 02:29:12 AM
End of post-op day two.

Today was definitely better pain wise. I still can't move or lift my leg by myself but when either of my parents do, I don't cry anymore. I just take deep breaths! There feels like there's a lot of pressure on my knee cap when I get up. I don't have an appetite, at all. I thought I did. All I had to eat today was toast with jelly. I tried to eat a frozen spaghetti meal but it just made me really nauseated. I still feel pretty sick so I took another Zofran. I've been really sleepy all day. It was a struggle to stay awake when my friend came over to visit. It's pretty much been sleep for two hours, stay awake for two, then sleep again.

Thanks Tom and Kasia.

At the moment, my brace feels pretty heavy but I know it's not. It needs to be adjusted because it's sitting on my ankle, but I'll let my OS do that on Friday because I'm not walking around any time soon.

Here's my brace Runner:

(http://i53.tinypic.com/14npzdx.jpg)

I've only been on antibiotics for my surgeries that were open. And this is the first time I've been on pills. The last time I just had IV antibiotics while I stayed overnight. 
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: oohheykate on April 17, 2011, 03:25:18 AM
I've also been having some lateral pain. It feels like it would be where a scope hole be. I don't know why I would have lateral pain though.


Does anyone have any tips for not going through as much ice for the Polar Care Cube? I've gone through three bags today. It takes like half a bag of ice every time my parents change it. Thanks.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: KW on April 17, 2011, 03:31:05 AM
Does anyone have any tips for not going through as much ice for the Polar Care Cube? I've gone through three bags today. It takes like half a bag of ice every time my parents change it. Thanks.

Frozen water bottles....Figure out how many fit in the cooler.  Poor out a little water (water expands when frozen) and put in the freezer until solid. Use these instead of loose ice.  Keep a few sets in the freezer and rotate.  It works great and you will save a ton on ice.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: Runner1993 on April 17, 2011, 06:14:21 PM
Nice picture before your op! I took one before this time, too! The place I had my surgery done this time gave each person an individual type room (walls on all sides except the front) for their pre-op area, no curtains. It was nice. I think the place is new. In my picture, I'm wearing the hospital cap and gown (they let me keep my own socks on for surgery), blood pressure cuff, finger monitor, IV in my elbow, bandages on my arms from their previous IV tries, and heart monitors on...and yet I'm still smiling. My dad took one after when they were feeding me juice and crackers. I am doing a thumbs down lol.

Sorry I have no tips to offer on the ice machine all those KW's tip sounds great. Do you get to keep the ice machine forever?

Can you believe it's already been since Thursday since your surgery?

Swelling is going to cause pain and pressure in your whole knee.

Sleeping is always good :) I've been napping on and off this weekend, and I didn't even have surgery recently, just having a lazy weekend.

Your brace, in the picture, looks like this one: http://www.breg.com/knee-bracing/post-op/post-op.html

Is that it? If I didn't know, from the pic I would have guessed immobilizer since mine look like that with all that foam and no straps that buckle like my brace now. However, in the pic at the Breg website you can see the hinges. The foam might be better than having the straps dig in, but I wouldn't want the foam the whole time I had to wear the brace. No one can see if you are wearing pretty pants underneath!  ;)

Just a tip: be careful when putting pillows directly under your knee. Even though your brace is locked at 0, with the pillows, it's possible for your knee to be held in the slightest flexoin (a few degrees). Extension is more important in the first few weeks than flexion I believe.

Are you allowed to do ankle movements in the meantime? Pumps, circles? They help with swelling esp. if you have any in your ankle.

Keep on healing!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: oohheykate on April 18, 2011, 02:50:47 AM
End of post-op day three.

My pain was still about the same today. It just aches and pounds then when the meds start to wear off, I get sharp pains. I also get the sharp pains when I move my leg in any way. While off the couch today, I was putting a little bit of weight on my leg. It didn't really hurt but I was barely putting weight on it. I got to wash my hair today and it felt amazing. I hate the not showering for a week thing. I'm pretty much just taking one percocet every four hours, but in the morning and at night, I take two. Then sometimes, around my second or third dose of the day, I take two again.



Thanks for the great tip, KW  :)  My parents started using frozen water bottles today.



Runner,

You got to keep your socks on?! I'm jealous. Haha. They gave me shoe booties this time because socks apparently aren't sterile not even the hospital ones. I wanted to go barefoot but the nurse made me put them on. The nurse only had to try once to get my IV in but it was on the side of my wrist. I've never had one there. It was weird. I probably looked like I was already on the happy drugs because I was laughing the whole time I waited for my op.

I'm pretty sure the ice machine is mine forever!

The days have gone by pretty fast, unfortunately :( I say that because I know spring break is going to fly by.

I only took one nap today. I feel accomplished.

That does look like my brace. When I read the description, it says the brace is the t scope with the full foam so I guess it just has a separate page.

I'm glad I have the foam panels. I think it's more comfortable. I'm one of the weird people who actually liked immobilizers.

I wasn't told to do anything exercise wise, but I am doing ankle pumps and doing circles to keep my ankle from being stiff. 
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: KinnaMarie on April 18, 2011, 03:52:54 AM
Glad to hear you sound like you are doing pretty well!  I had a fulkerson osteotomy, lateral release, something done to my ligaments (not sure of the name), and removal of scar tissue in January.  Time truly does fly by...I can't believe it!  But like Runner mentioned, I can not stress enough about the importance of keeping your ankle moving.  Unfortunately I was afraid to move my ankle after surgery (because it hurt!) and now being almost 15 weeks post op I have absolutely no muscle in my ankle and I have trouble/can't really even move it.  So now in PT they aren't even focusing on my knee anymore and are constantly working on my ankle and I am in an ankle brace to attempt to keep it in place.  I was told the other day if I do not start wearing my ankle brace like I am suppose to, I will be in it forever!  So please make sure to keep your ankle moving!!!! 
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: oohheykate on April 19, 2011, 03:36:51 AM
Kinna,

Sorry to hear you're having ankle issues now :( But I adjusted my brace at 2am because it was digging into the back of my ankle since it was too far down. Now I can move my ankle freely and I'm moving it every hour even though it hurts my knee.


End of post-op day four.

Not much to update except I'm really bored! I'm actually wishing I had school but then I'd be in more pain. I just can't get off the couch so I'm so bored and I can't watch anything on the computer because it just makes me want to sleep. The kids at my mom's daycare have control of the tv also. I think I might try to sit in the recliner tomorrow and give my back a break. I miss sleeping on my stomach SO much. My pain is up and down. Sometimes the meds work and other times they don't. Right now, they don't. And I'm not taking my sleeping pills tonight because they're giving me super weird dreams. I forget what the dream I had this morning was about but it was weird. Haha.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: kasia_ny on April 19, 2011, 01:58:36 PM
Kate,

Hang in there! 
I rememeber that I had to adjust my brace in the first few days.  The way they adjusted it in the hospital resulted in it sliding down a few inches when I went to the bathroom - scared the heck out of me!  I had the Breg T-scope without the big foam pads.

I remember being bored out of my mind the first few days - it should get better soon!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: TwoBadKneesUSA on April 19, 2011, 02:21:19 PM
Kate,

Glad to see you are doing reasonably well.  The pain will probably be all over the place for a bit longer.  Keep up the ankle pumps. The brace looks hot to me, but I can hardly stand an ace wrap anymore.  The kneecap pressure sounds pretty normal (even though it does not feel too good).  Good luck Friday.  Are you remembering to elevate too?

MIlly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: oohheykate on April 19, 2011, 08:03:30 PM
Has anyone ever experienced their hinges coming unvelcroed from the rest of the brace? My one hinge keeps coming undone and I have to re-stick it.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: TOMMAX on April 20, 2011, 12:00:09 AM
Hey Kate, sorry to hear you are bored and in pain. I know what you mean when you refer to that aching/ pounding in the leg. It is an extremely intense/ excruciating sensation and I remember that feeling after my knee surgery. Pills dont take much of the edge off either which makes it tough to bare. I also remember the terrible blood rushes into the leg when getting up from laying down to use crutches. It stung like crazy, I would just grit my teeth and wait a minute til it kinda faded a bit. I hear you on the weird dreams as well. Its probably a combination of sleeping pills, opiates, and trauma to the body I think, thats just my take on it.

Did your surgeon end up taking any pics of your surgery btw? When is your next post-op appointment with your OS and when do you think youll start physio therapy? Also, will you be using a CPM machine at all to help regain ROM? Lastly, have you found the cryo-cuff to be benificial thus far?

Sending you healing vibes and lookin forward to hearing from you later.


Take care.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: oohheykate on April 20, 2011, 02:02:09 AM
Has anyone ever experienced their hinges coming unvelcroed from the rest of the brace? My one hinge keeps coming undone and I have to re-stick it.

Just gonna re-post that in case anyone has any suggestions. I am going to mention it to my OS because he'll probably want to readjust my brace.


Kaisa,

I wasn't as bored today! I watched Love and Other Drugs but the whole time I was begging for it to be over. I didn't really enjoy it. I did watch Little Fockers last night and that was pretty good. And I ended up adjusting my brace again so I can move my ankle even more now!


Milly,

I am constantly elevating! I love it. Haha. I was actually hoping for this kind of brace rather than the more open one. I'm one of those weird people who actually like immobilizers so this is quite like an immobilizer. The pounding/pressure is pretty much constantly there but gets worse when my meds start wearing off and it's not comfortable at all. But that all the pain I have most of the time. I don't really have the initial pain I came home with anymore.


Tom,

Yeah, the pills don't do anything for the pounding pain which sucks :( I don't have blood rushes though. I don't think I get up enough. Haha. But when I do, I get up very slowly because it hurts to engage my quads and lift my leg so my parents do that for me. I didn't have any weird dreams last night and I slept from 11pm till 11am after being up from 2-3:30am. It was well needed. I think he did take some pictures but my mom said as soon as he walked into the waiting room to talk to them after my op, he said, "Katelyn isn't going to be happy with me" because he forgot to take some :( But I'll take anything. I'll be disappointed if he didn't get a picture of my incisions open but that's life. My post-op is on Friday and I'm supposed to start PT after that but with my insurance only allowing me 2 months of PT, he said I might start off doing PT at home. No CPM for me. I don't have a cryo-cuff, I have a Breg Polar Care Cube which is similar but instead of a cuff on the end it's like a mat, I guess. It works pretty well if you have enough ice in it and it helps with the pounding pressure.


End of post-op day five.

Pain was about the same today. At times it was worse. I find it gets bad around 12-6pm. My meds don't seem to work around then. It's weird. I've been trying to put weight on my leg but it I can't put too much on it because I feel a pulling and deep bone pain. Maybe once my brace gets unlocked I'll be able to put more weight on it. Like the top of my post says, my lateral hinge came undone today at the top and bottom so I had to stick it back on and I'm sure my leg isn't straight anymore because my hip was sitting lower when i reattached it, if that makes sense. I tried to stand up and reattach it but my mom said my leg still didn't look straight. It could just be because of all the ace bandage I have on. We'll see about that on Friday. I'm really curious as to what kind of incision my OS made. He said if he was going to reopen my scar from the MR, he'd make it prettier and I told him not to because I like it. It was barely noticeable to begin with. Oh and I found out that one of the kids at my mom's daycare is deathly afraid of my knee brace. Poor kid doesn't know what to do with herself when I crutch by her. She bolts as fast as she can. It's the funniest thing.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: TOMMAX on April 20, 2011, 04:11:54 AM
Hey Kate, glad to hear you got a nice half day sleep. Quality sleep is always a good thing since it will help with recovery. Sorry to hear about the deep bone pain you are experiencing, Im guessing the screws are the reason you are feeling that way? Do you feel the deep bone pain in the femur and patella as well or just the femur? Im happy to hear youre not getting the blood rushes at least.

I googled the breg polar care cube and the cryo-cuff so I can see the diffence between the two now. Im glad that it is helping you a bit with the pounding pain.

Hopefully your OS got a picture of the incision, that would be cool to see. Do you know if your OS used bioscrews or metal screws for the MPFLr? Also, how many screws did he use and was it into the patella and femur or did he just use sutures for one end and screws for another? Do you know if youll have to get the hardware removed at a later date or is it gonna be in there for life? Sorry for all the questions but I find the details interesting, lol.

Anyway, take care and hope you continue to feel better. Keep us posted when you feel up to it. :)

-Tom
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: TwoBadKneesUSA on April 20, 2011, 02:14:42 PM
Glad you are doing a tad better pain wise.  I think the pressure/pounding is related to swelling and some of that may ease once the ace wrap is off.  I found I can't stand and ace on if there is any swelling as is seems to increase the pressure.

Does the brace have removeable hinges?  I wonder if it just needs adjusting.

Too bad that poor little one is afraid of the brace.  They can be a bit scary for some reason.  Of course you may just seem really different.  My nephew was afraid of me after I got contacts in high school,  I had to put my sun glasses on before he would recognize me.  It was funny.

Take care.

Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: oohheykate on April 21, 2011, 03:43:27 AM
First post-op visit (day six).

So last night around 11pm my pain got really bad to the point where I was crying for the first time since Saturday. My pain meds didn't work and I slept on and off until my next dose then again till my next dose. My mom called my OS this morning and he said to take a third percocet which made me sleep until 11. I still had the same amount of pain after being on my ice machine and doing nothing to my leg so he told me to come in a few days early for my post-op to check for infection. I don't have an infection!! He said my body is probably just tolerant to percocet after being on it so many times. So I'm on vicodin now. My incisions looks great. Whatever they used in the OR took my tan off my legs. I went booth tanning so my skin was actually tan. I look like I have vitiligo just on my knee. Haha. My OS said he was actually concerned when we called him because I'm "ingenious" and wouldn't make a big deal would of something little. He said I barely have any swelling and no bruising (although it looks like that in the pictures I took). I'm allowed to start passive ROM exercises. I start PT as soon as I can. I have to walk with the brace locked until I see him on May 16th and if I have good quad control, he'll unlock it.

My pain is a little better now. But it's back and fourth. I guess this is recovery.



Tom,

Yeah, I think the deep bone pain is from the screw. Unfortunately, he didn't get one of my incision but he did get one of my graft. I'll post that one tomorrow. I just have one screw my femur and it's a biocomposite screw so it won't have to be removed, it'll just absorb into my body, I guess? He drilled a hole through my patella and anchored it with sutures. The questions don't bother me one bit :)



Milly,

The pressure isn't as bad now that the cotton layer is gone and I can finally feel my polar care for more than 30 minutes. The hinges are removable but my OS wasn't concerned about it. Once his assistant put it back on my leg, it felt much better. That's too funny. Kids are the darnedest. She's still bolting away from me.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: oohheykate on April 21, 2011, 03:48:45 AM
(http://i54.tinypic.com/4ui3vr.jpg)

suturing up my leg in the OR.


(http://i53.tinypic.com/1zg944p.jpg)

(http://i52.tinypic.com/2eatl3o.jpg)

(http://i52.tinypic.com/opmd6d.jpg)


my knee looks bruised but it's really not. I think it's just the shadows and HDR image from my iPhone.


As you can see, I have three incisions and a scope hole. The biggest is my old incision then I have two that are about an inch. After he said everything was fine, he told me that he thought I came in early because I couldn't wait to see what my knee looked like. Haha.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: bball123 on April 21, 2011, 04:03:29 AM
Hey Kate!

Glad to know surgery went well and that you don't have an infection!  Hopefully the pain will get better soon, just think about how great life will be when your knee doesn't dislocate anymore! :) Enjoy the rest of spring break!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: oohheykate on April 21, 2011, 04:09:55 AM
Thanks bball!

I'm also glad it wasn't an infection. I don't want to have to deal with that kind of stuff. And yeah, I'll enjoy the rest of my time on the couch. Haha.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: TOMMAX on April 21, 2011, 12:08:00 PM
Kate, really sorry to hear that you are having such a rough time with the pain. I can totally empathize with you, I remember after my lateral release the type of crazy burning pain and pounding that just makes you want to crawl out of your skin. As the weeks past by I remember thinking: this is going too slow, will I ever be able to walk again, why the hell did I sign up for this? Its like your leg has been shot with a shotgun, ran over by a bus, and stampeded by an angry mob. Its gonna suck for awhile but its gonna get better. This is the toughest part but in a couple months it should be pretty tolerable. I hope the vicodin will be more helpful for you, proper pain meds are crucial. Maybe your doc would even bump you up to something more powerful if needed ie oxycontin? Just thinking out loud. No point being in unnecessary pain when they have a variety of drugs out there to take care of it. Just remember that.

Looks like your doc did a nice job with the incisions. Lookin really clean. The bruising dosent seem too bad either judging from the pics. My leg was black and blue after the LRR and I had crazy hemarthrosis. My GP commented that in over 25 yrs as a physician he had never seen a knee as swollen as mine before. It was that bad. Happy to hear that there is no infections for you either.


Thanks for claryfing the technical details of your operation for me. Good to hear he used a bioscrew at least, that way no hardware to remove after wards. Wow, he drilled a tunnel through the patella, that sounds just as scary as it sounds painful. Amazing that the body can go through all that and heal back to a normal state. Good ol mother nature at work. She just takes time to do her majic (alot of time).

Im prayin that youll be able to keep that pain under control for the mean time and hopefully youll manage to stay positive through these rough times.

Look forward to you feeling better.†
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: TwoBadKneesUSA on April 21, 2011, 01:24:05 PM
Percoset is usually for bone pain.  I find it does not work as well for soft tissue stuff.   Did the OS ok ibuprofen?  It may help with the inflammation.  Or are nsaids still out for you?  this is short i crunched my little finger in the back gate this am and of course it is my right hand.  so typing w/ one hand.  try more later.

milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: oohheykate on April 23, 2011, 03:12:46 AM
Post-op day eight.

So it's been over one week since my surgery and time does go by kinda fast. I can't believe that just last week I was still feeling the after effects of anesthesia.

Yesterday, my pain was better. I'm taking 2 vicodin at 12am and 6am, then at 12pm and 6pm, I take one. It's still not really doing much for my pain. At this point, I think my body is doing all the work. I'm afraid to stop them though. Haha. On Tuesday I'll be taking 2 vicodin at 12am, 1 at 6am, 1 tramadol at 12pm, then maybe 1 vicodin at 6pm. I think I'm going to transition to tramadol completely next monday. I'll have to ask my OS. I'm constantly walking on my leg now, no more lifting it when I walk. I think I'm putting most of my weight on it. It doesn't really hurt to walk on it except when it twists. I can't twist my leg at all without excruciating pain. I'm totally not looking forward to going back to school. I haven't been away from my polar care cube and I don't know how much pain I'm going to have without it. I want to take it to school :( It hurts where my graft is to sit up with my leg straight in front of me. But that's the only way I can sit because having my foot on the ground hurts even worse. Ugh. So enough with my complaining. I go for my PT evaluation on Friday. I wasn't able to switch places because I'm capped there. Stupid insurance. I'm not allowed to lift my leg/actively use my quads for a month. I'm pretty sure that's what my OS said. I'm not even allowed to let gravity bring my leg back as far as it will go. But anything to get my knee better. My back is taking a beating because I'm normally a stomach sleeper and since I have to constantly be in the brace, locked straight for the next 4 weeks (at least), I don't foresee it getting any better :(


I'm not allowed to take any kind of anti-inflammatory for at least 6 weeks as my OS believes it slows down graft healing.


Tom,

I'd honestly rather tough out the pain then be drugged up on pain meds. Vicodin is probably the strongest pain killer I'll take. I'm pretty tolerant to all of them. Even in the hospital with morphine and such, they couldn't control my pain.


Milly, I hope your finger feels better.


I think someone asked about my cartilage before? My OS told me on Wednesday that I have some fraying (I don't know if that's the word he used) on the medial side of my patella. 

I think I sound really down about recovery, but I promise I'm not :)
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: TOMMAX on April 24, 2011, 03:41:07 AM
Hey Kate, if you can handle things without stronger pain killers that is awesome. I wish you luck in transitioning to the tramacet. Tramacet is alot safer of a drug from what I understand as well and Im glad that it is working for you. Glad to hear that walking is more tolerable now, try to go easy on it though and try to avoid twisting it too much. ;)

I wouldnt worry about school too much, even if you have to take another week or 2 off it would be worth it so your leg heals up really good. Maybe they can asign you some homework so you can keep up with the class? I can imagine youre quite anxious to go back though since it isnt much fun just laying around at home all the time.

Stay positive and keep us posted. :)
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: CamillaLuise on April 24, 2011, 11:04:13 AM
Hey!
I can't believe it's been more than a week since your surgery!
I'm so sorry about your pain, how quickly does vicodin help you? At least time passes quick for you!

I'm also on some strong meds but the stronger ones will make leg heal slower, so I can't really take them!
For me, tv works best, as still in a bit of too much pain to read/write.

Question, how did you get the pictures on the forum?

Hope you are feeling better!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: Runner1993 on April 24, 2011, 09:41:05 PM
Sorry I haven't posted in on here in a while. Glad to hear things are getting better. Sorry about the pain mishap, but, hey, you got to see your knee earlier! A week after my surgery I was in the ER for the worst calf pain; I felt like a baby going, but it was getting worse, and they advised me to go.

My hinges can't come off. They are pretty much my brace in addition to the straps lol. How do your hinges come off? Do you mean the straps?

Yay for no brusing and minimal swelling, too bad about the tan. I went on vacation, and I didn't get tan at all!  :( My sister still has her cross country tan from the summer/fall! However, all the xc runners also have terrible sock tans lol.

Do you know if biocomposite screws dissolve or are they just made of plastic instead of a metal? I think my MPFL screw is biocomposite.

Nice pictures! Is the blue marker outlining your kneecap? Where are your incisions? I can't tell what side is medial and lateral. I'm guessing the one side with the larger incision is medial, but why do you have an incision on the lateral side of your knee? The incisions look pretty nice, if it wasn't for the steristrips, I wouldn't be able to see them from what I can tell. At least yours aren't all bloody like mine...my pt and parents advised me to wear my dressings when I wore shorts to cover them up so I wouldn't gross anybody out.

When my incision got infected (not my knee, it didn't spread), it was so nasty and annoying to deal with even at that level. Hoping you have no complications!

Are you going back to school tomorrow?

Good for you for putting weight on it!

Maybe you could still ice your knee at school during lunch or free periods with ice bags from the nurse. I did that a few times.

Congrats on being over a week post-op.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: oohheykate on April 25, 2011, 03:12:35 AM
I hope everyone who celebrates Easter enjoyed it :)

Post-op day ten.

I felt like complete crap today :( Ever since surgery, my GERD has been unrelenting in the morning. I am so happy my OS's resident gave me a prescription for Zofran but I don't want to keep taking it. I tried to hold off on taking it today but I just couldn't. I slept on and off until 4pm and ate a little bit of ham and corn but that was it. I don't think it's the pain killers. If anything, it's the fact that the pain killers are making me sleep and I'm not eating in the morning anymore. I woke up at noon to take my Vicodin but I don't remember if I did or not, haha. I felt really dizzy by 12:30 and I think I remember taking two pills but my pain was really bad. I didn't take anymore just in case I did take the Vicodin. I think I'm just going to stop taking the Vicodin and switch to the Tramadol completely because it's not doing anything for me. I'm going to have my mom call my OS tomorrow and ask if I can switch over. I hate to bother him again because he's so good about getting on the phone right away or calling me back. I know it's his job, but I feel like I call him a lot. My pain was up and down today. It was really bad this morning. And it hurts when I walk but I don't want to stop walking on it. It's just pain where the screw and hole is. My ice machine is working terribly today because it's so warm. Ever since the cotton got taken out from under my ace bandage, I've been able to feel the same set of frozen bottles for 4-5 hours, now they only last for like one.


Tom,

Missing anymore school is out of the question :( I have 16 absences now, mostly due to my GI problems but my school doesn't care so they'll put me in an after school attendance program and even withhold my grades. I don't know what's going to happen when I go back because I'm not supposed to get over 15 absences. They aren't very understanding.


Camilla,

I know, time flies when you're laying on the couch. Haha. The Vicodin really doesn't do much for me. My pain is the same 2 hours after taking it and when it's supposed to be wearing off after 6 hours. Most of the time, I'm on my iPhone or sleeping or being bothered by the kids at my mom's daycare. For the pictures, I just uploaded them to tinypic.com† and there's a code on there, I think it's the third one down, it says "for forums and boards, etc..", just copy and paste that into the reply. It already has the image codes in it.

Runner,

Haha, yeah, I was really excited to see my knee in between the bouts of pain and nausea. My calf keeps getting tight and cramp like. It's weird.

No, my hinge actually came off! Haha. They're only velcroed on in like four spots so they're really easy to take off.

I'm so upset about my tan. I really hope it doesn't affect my summer tan because it looks really bad right now. My knee is mostly red and white and I have big patches where skin is missing.

My screw is biocomposite.

Yeah, the marker is the outline of my kneecap. I have two incisions on the medial side and one on the lateral. I actually have no idea about the lateral incision but it's on my list of questions to ask when I go back! My incisions have always looked nice. I guess I'm lucky. I never bruise or swell either.

I don't go to school until Tuesday. My school decided last minute that our winter was "long and hard" so we deserved the day off. I think they planned for an extra show day and we never got it so we got it on spring break. Lucky us because all the public schools have to go back.

I'm just going to hope for the best, pain wise. I know my school is going to make a big deal about elevating though. My OS didn't write on my accommodations paper that I needed to elevate but that was because I was supposed to get my brace unlocked almost right away. It's impossible for me to sit in school with my foot on the floor and my leg straight. It just hurts too much so I have to keep it up. But it's a "fire hazard" apparently. Gosh, my school likes to be difficult.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: oohheykate on April 25, 2011, 03:32:21 AM
Question:

Are there restrictions on getting a tattoo after surgery? I'm planning on getting one on my left foot and I had surgery on my leg knee. My appointment is May 21st, five weeks after surgery.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: smmaguire22 on April 25, 2011, 08:46:08 AM
hey i'm 17 and had mpfl reconstruction a little over 2 weeks ago. it sucks ass mostly because i'm bored, and a teenage boy can only play so many video games. but honestly i haven't had any of the problems or pain you've had. i took oxycodone for a day and then stopped and was at school 3 days post op but yeah i guess everyone handles it differently. i can bend it about 60 degrees maybe a little more and can walk on it but its pretty shaky but i'm probably not supposed to do that but oh well. my leg is super atrophied and looks like crap cus its all shaved too hahaha but yeah sorry your recovery hasn't been as easy as mine. i cant say i have any tips really cus we are pretty much in the same boat.... but yeah just kinda try and spot yourself doing leg raises and bending a little and ice a panty load thats been pretty good for me. be careful in the shower... almost slipped like 9347503980 times but its still good haha good luck!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: laurenz on April 25, 2011, 05:05:29 PM
Question:

Are there restrictions on getting a tattoo after surgery? I'm planning on getting one on my left foot and I had surgery on my leg knee. My appointment is May 21st, five weeks after surgery.

Hi Kate. I'm not a doctor but I would assume getting a tattoo so soon after surgery puts you at risk for infection. I would hold off until you are healed. I have a full leg sleeve and both of my feet done so I'm not a tattoo prude. I just think you're body is going through enough right now. Plus the top of the foot tattoo has it's own challenges for walking. I'd say wait until you're back to normal with your walking before you get the foot tattoo. It obviously heals much quicker than a knee.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: KW on April 25, 2011, 08:23:18 PM
Question:

Are there restrictions on getting a tattoo after surgery? I'm planning on getting one on my left foot and I had surgery on my leg knee. My appointment is May 21st, five weeks after surgery.

Technically....No. If you think about it and use some commom sense then...Yes. If you have any (any at all) swelling in your foot it will alter the final image. The tattoo will look fine at first but as the swelling goes down the the image will distorte. Will u be able to sit with your foot/leg straight out in front of u for a extended period of time while gerting the tattoo?† You need to be really still.

Fyi - the foot is one of the most painful placed to get a tattoo.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: oohheykate on April 26, 2011, 03:03:27 AM
Post-op day eleven.

Today was the last day of spring break and I'm honestly not looking forward to going back to school. I have to make up two tests so I'll have to stay after school. But anyway, today was okay. My pain was a little high this morning but I slept it off. I only took one Vicodin at midnight and 6am when I usually take 2. I sat up for almost two hours doing my take home test that I left till the last minute (yay procrastination!) and my knee felt fine apart from the usual pain. Afterwards, I tried to see if I could walk without crutches and I walked from my kitchen to my couch! The next two times I got up, I didn't use my crutches but it started to hurt really bad. Is it weird that I think I can feel my screw? I can feel something in my femur and that's the only thing there. So I'm sticking with using my crutches for another few days in my house then maybe I can just use them in school. I've been sleeping until 11am or noon and tomorrow I have to start getting up at 6:45 again. It's the end of the world.



smmaguire22,

I completely understand about being bored. The games on my phone aren't fun anymore. But I'm glad your recovery is going great! It must be nice. Haha. My leg is also atrophied. I spent months and months working on my muscles only for them to waste away in a week :(  Right now, I'm only allowed to do passive ROM so no SLRs for me. And I have a shower stool so I don't slip, it's so great although weird to shower sitting down. Good luck with the rest of your recovery!


KW and Laurenz,

Thank you for the info! I was going to clear it with my OS before I went to get it anyway because I see him on May 16th. I never even thought about swelling, but I'm sure the tattoo artist would've. My foot is slightly swollen, to my surprise. It's actually more swollen than my knee. I'm prepared for the pain that tattooing the foot brings. Haha. Maybe I'll just get it on my right foot. We'll see.

Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: oohheykate on April 27, 2011, 12:38:18 AM
Post-op day twelve.

I survived school, barely :( I was doing pretty well until third block which starts at 11:25am. We sit on stools because it's a science class and I just could not get comfortable. I could tell my Vicodin was wearing off and I just wanted to get out of there and go to the nurse's office to take my Tramadol. I took the Tramadol at about 12:50pm. I was in a lot of pain all of lunch. I sat my foot down in the lunch line and twisted a little and my eyes welled up with tears because it hurt so bad. The screw site is so sore. I wasn't really walking on my leg at all, it just hurt too much. The pain kinda feels like it's between my tibia and femur but then it feels like it's where my screw is at. After lunch, I was ten times more comfortable in class. I have the same teacher as I do in third block so I had to sit on a stool again. I just hope I don't feel like that everyday in third block. I mentioned my school was going to make a big deal about me elevating and they did. Apparently, I am a fire hazard. But what I didn't expect was my counselor to pressure me to get off crutches, which is absolutely ridiculous. She walked into the meeting I was having and pointed out that my OS said I'd be off crutches in 1-2 weeks and that I'm already and week and a half post-op so I should be getting off of them. She's funny, I'll take my good ole time getting off the crutches, she's not a doctor. My OS also wrote that I needed help with my books meaning school bag, but to my counselor that doesn't mean school bag so I'm not allowed to have anyone help me. My school is such a joke. Anyway, I came right home after my first make-up test and hooked up to my ice machine. Man, that felt SO good. My knee started pounding around 5:30 so I took my Vicodin slightly early so I could control the pain. I'm feeling pretty good right now. I'm just not looking forward to school. I wish my pain would just let up. And at lunch, my friend had to lift my leg onto the bench for me. She's so sweet :)
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: TwoBadKneesUSA on April 27, 2011, 02:23:01 AM
Kate they should make reasonable accomidations for you.  Have the OS be very specific about what you need to have at school.  If someone needs to carry your bag have that in writing.  Also have the OS indicate that he will decide when you are able to go off the crutches not the counselor.  I don't see how you can be a fire hazard with your leg elevated.  You can be moved to the far back corner of the room so that everyone can get out first and your leg will not be in anyone's way.  I think they are full of crap.  You should also be able to go get your meds at the correct time and not have to wait too long.  Good luck and hope tomorrow is better.

Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: oohheykate on April 27, 2011, 02:41:19 AM
I totally agree Milly. I'm pretty sure my parents are going to get me a new note saying my school bag needs to be carried. And I'm not going to let them dictate when I get off crutches. It's my body, so I decide. My counselor just thinks she has control over everything when she doesn't. I made sure the desk I'm elevating my leg with isn't in anyone's way. Regardless, it's not a fire hazard. They are just trying to be difficult. Unfortunately, I did take my meds at the right time. It was six hours after my morning dose. It had just worn off. I'm hoping it lasts longer tomorrow. Maybe I'll take it later.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: laurenz on April 27, 2011, 03:12:52 AM
Kate you should be very proud of yourself for going back to school so fast. I didn't think you'd do it. After my surgery I worked from home for 3 weeks and even after that I had a REAL hard time getting back to work those first few days.

Learn from my mistake AND ELEVATE YOUR LEG. When I went back to work I thought it was a bother as well and I ended up with severe swelling. My doctor sent me to the emergency room for an emergency ultrasound to make sure I didn't have a bloodclot. I made sure to elevate my leg after that no matter how weird or inconvenient it was for others.

I honestly cannot believe your school would be so difficult to deal with. I agree with Milly. Get a note that's really specific and if your counselor is having an issue with it, go to your principal. That's total crap for them to jeopardize your health and healing process.

Keep up the hard work!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: TwoBadKneesUSA on April 27, 2011, 08:41:07 PM
Kate,

I'm glad you are not letting them try to bully you.  It is tough when the meds wear off before they are due again.  Ah well, all you can do is the best you can.  Glad you are elevating anyway.  I love teachers and staff that think they have more power than they do.  :P  Take care.

MIlly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: oohheykate on April 29, 2011, 01:44:42 AM
Post-op day fourteen.

Woohoo, it's officially two weeks since surgery! That's about all the happy news I have to post. Yesterday, I was doing great in school pain-wise until my second block. We needed to go outside and launch rockets for out project. We have parade grounds a little down the ways from our school. It's far enough away that it's the area where we evacuate for fires so it's far. My teacher made me crutch all the way out there just to be outside for ten minutes. It took me ten minutes to get there and then once I was done, it took me ten minutes to get back. I was in SO much pain by the time I was back in class, not to mention sweaty. My upper body is really sore because I wasn't really walking on my leg. It hurts to walk on it so much in school. I was in a lot of pain all of last night and this morning I couldn't even get dressed because the pain was so bad. I stayed home from school so I know my counselor is going to complain about that. I'm so angry with my school that I actually have to choose between controlling my pain or getting punished. I slept on and off until 12 then took another nap until 3. My pain is better now. I have my evaluation at PT tomorrow and I'm actually excited about that. I'm not too happy about my unshaven leg but there's nothing much I can do about it. I'll post about PT tomorrow.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: oohheykate on April 30, 2011, 04:28:41 AM
Post-op day fifteen.

School went pretty well today. We had a fire drill during advisory but they called all the elevator kids down to the lobby beforehand and we only had to go about 20 feet outside the school. There's like five of us on crutches. That's the most I've seen at one time. Every Friday, I get out at 1:30 so it was easier on my knee. I still can't really walk on my leg during school. Hopefully, that gets better because I really need to be off crutches soon.


I had my PT evaluation today, too! The PTs were excited to see me but sad that I had to have surgery again. The maintenance man was even happy to see me. You know youíve been to physical therapy a lot when after not being there for two years, the maintenance man walks in and immediately recognizes you. It's kinda sad. Haha. But we really couldn't do anything. I'm limited to the basics of short arc quads, patella mobs, e-stim, passive ROM, SLRs, and quad and hamstring sets. I attempted to do an SLR with my brace on and my leg didn't move on bit. My PROM is 50 degrees and that's with a lot of pain. And my extension is 0 degrees. My knee has gotten swollen from being in school and so has my foot and ankle. Even though I elevate as soon as I get home and I'm elevating at school, it's still swelling. We tried to do e-stim today but it wouldn't work. My quads wouldn't contract no matter where my PT put the electrodes. I'm going to do two days a week. I go on Thursday and Friday next week since Monday is booked and they only have two days with afternoon hours but the week after next I go Monday and Thursday.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: Runner1993 on April 30, 2011, 02:42:50 PM
Glad school is getting better! We had a fire-drill, too, but they don't tell us. I was on the second floor (the highest floor in my school lol). My friends surrounded me to protect me lol, and I went down one at a time (sorry kids behind me, it was real, well, we probably may not have made it all out). If it was real, I probably would have had enough adrenaline and fear to run down those stairs  ;)

Are you putting weight on your leg when you walk with crutches?

So, you did decide to start pt now? If my insurance worked like yours, I would go as much as I could in the 2-month period! Since I get 30 visits for the year, I usually got to pt 1 time a week (have gone 2 sometimes...like this past week and coming up week) so I can make my pt last farther into recovery. I even brought up the idea of when my pt starts running out, for me to go 1 time every 2 weeks so my pt could progress me, evaluate my progress, etc, but he didn't really seem to like that idea...I don't know why. Last time, I ran out..I was almost 4 months post-op (I started when I was over 1 month post-op), and that was it, there was nothing I could do, and I had to try and do the rest of recovery all by myself, which really sucked.

What are short arc quads? You always got to start with the basics...my first pt session include the evaluation, quad sets, ankle pumps, ankle circles, hamstring (push ankle down into table with leg straight), and squeezing a ball between my knees while they were straight (since I had the brace on). You have to walk before you jog, jog before you can run, and run before you can sprint.

Usually, the pt can get farther on PROM, so that's not bad that you can't do AROM.

My pt says the more you work the knee, the more it will act like a pump, and push the fluid out.

I did my first SLR the day before my 2 week mark, but everyone is different. It was tough, and it took a little while to get where I could do them without initiation or help from pt.

50* is not bad at all for 2 weeks. I wasn't allowed to bend past 30 for 3 weeks. Glad to hear extension is 0....keep it that way! It's so hard.

Hope things keep improving!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: oohheykate on May 03, 2011, 01:28:09 AM
Post-op day eighteen.

I didnít update all weekend because I didnít do anything. Haha. I just relaxed and tried to get my swelling down, which didnít go very well. I still have no ankle! School is getting a little better pain wise but it still hurts. I walked on my leg pretty much all day, unless I was in a rush, then I lifted it. I ran out of Vicodin yesterday so Iíve been taking my Percocet and it still isnít doing much. My OS called in a prescription for Tramadol so Iím switching over to that. Hopefully itíll work well enough. My school hasnít said anything about my absences yet and Iím hoping it stays that way. Iím making up my English test tomorrow then Iím all caught up!


Runner,

That was actually the first time I was every informed. Boy was I glad! Haha. I actually wouldíve been really angry if they didnít tell us because all that crutching makes my knee hurt worse. And when they donít tell us about the drills, I have to wait for all the floors above to clear before I can go down with the teachers who donít have class during that period.

Last week, I wasnít putting weight on my leg at school just because I couldnít concentrate on my walking and I twist my leg so that was really hurting. It would send a shooting pain all through my body. But today, I walked on it more than I lifted it.

My OS was going to wait to start me at PT but he decided it was be for me to start now as the only things I have to do later on are strengthening and I have exercise equipment at home.  I was actually going to go three times a week but they only have afternoon hours three days a week and one of the days doesnít work for me so I can only go twice.

Short arc quads are when you stick one of the cylinder things behind your knees and lift your leg. At least, thatís what I think they areÖ

My OS wants me to be at 90į by May 16th. I think I might be able to do it. Iím just not entirely sure Iíll be off crutches by then and I know he wonít be pleased about that.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: oohheykate on May 05, 2011, 03:44:53 AM
Post-op day twenty.

No news is bad news :( Last night, I landed myself in the Emergency Room due to how much pain I was in. The pain started around 5pm yesterday and it was just constant shooting and pounding pains. I cried four hours straight until my mom decided to call my OS's office and there was an emergency number provided. The on-call OS said to go to the ER to get it checked out. I was there from 9:30 till 1am. I had x-rays and bloodwork done. The x-rays put me in even more pain. She x-ray tech had me twisting my knee and bending it. The ER doc was concerned about infection because I have a red patch around my knee. Everything came back clear but he said to watch the redness. My OS isn't in until Friday but his assistant knows I was in the ER. I was given another script for Vicodin since it's the only thing that takes the edge off. The ER doc only gave me 12 pills. Hopefully, I don't get that kind of pain again. I don't know if my OS is going to want to see me early or not.

I was supposed to take 1-2 days off of school but since my school doesn't care about my well-being, I had to go back today. I went back as late as I could, so around 11:30. The ER doc gave me a note. I was in more pain than usual but it wasn't nearly as bad as yesterday. I've been icing and elevating and just trying to control the pain. I don't know how my knee is going to react to PT tomorrow.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: Lottiefox on May 05, 2011, 11:53:43 AM
Hi Kate

I don't post here usually but have been following the diary closely. You are a STAR dealing with school so soon after this op. I'm sorry that the pain got bad - just a suggestion with the red patch. Might be worth drawing around it so you can see it spreads. I only say this as I had foot surgery about 5 days after you - I had a sudden pain increase this week, couldn't put foot down, throbbing, stabbing, shooting, sensitive to touch. After it wouldn't settle with elevation etc I called my doc who saw me straight away and I have mild cellulitis as my wound had struggled the first few days as it was in a massive bandage and we had a heatwave in the UK so it just swelled up out of control and the bandage rubbed under the incision (its down the side of my foot so very delicate) and the healing thats happened obviously trapped some bacteria. At the 7 day check it wasn't infected but the extra running etc obviously set up a reaction.  I'm on anti biotics and after only 16 hours it feel sa bit better and I'm to see him again tomorrow - so watch the redness area carefully. Do you feel unwell at all? Fever? Tired?

Your school sounds like they need a kick up the rear end. A friend of mine over here had her son in a cast for 8 weeks after a broken ankle, and school were also equally unhelpful. Should make some of the teachers crutch around for a week and see how they cope.

Take care,

Lottie (also crutching and wanting to go back to full activity!) x
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: TwoBadKneesUSA on May 05, 2011, 01:21:03 PM
So sorry about all the pain Kate.  I will hope the redness is just inflammation from healing.  Keep an eye on it like Lottie said.  If it does not get better with ice and elevation, have it check out again right away.  I know with my last surgery the incision area and a ways around it was quite red and hot for a while, but there was a lot of healing going on.  It's too bad the school has to be so stuffy about things.  I went back too soon when I was in college and paid with lots of persistant swelling and pain, but paid a lot for classes and did not want to get dropped.  If it came to it does your school offer summer school at all?  If you had to catch up, that would be the way.  Take care and hope things get better.


Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: TOMMAX on May 06, 2011, 12:07:42 AM
Hey Kate, sorry to hear about the terrible pain you are having. It sucks that you have to be in school right now since your knee needs rest and it is probably too much for the knee to handle so early. Theres gotta be some kinda agreement your parents can make with your school in this situation. It is just ridiculous that they give the students at your school such a little amount of absent days. What if someone needed brain surgery and needed to be off school for months for example? It is just crazy for the school to give students such a small amount of absence days allowed and there should be some sort of exception to the rule that they put in place for situations such as yours. Anyway, sorry to rant, its just frustrating to hear the lack of compromise that your school has towards your situation. I hope that it can be resolved though. More improtatntly, I hope that your pain will improve and you wont have to suffer the way you are right now.

Wishing you the strength and courage to get through this.

Tom
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: oohheykate on May 06, 2011, 02:04:34 AM
Post-op day twenty one; three weeks.

Today was okay, pain wise. I was really uncomfortable in my third block class which is from 11:25am-12:50pm. My leg was just really achy. This morning, I did something to send a shooting pain through my leg and entire body. I just don't know why I'm having pain for so long after this surgery. I know this one was the biggest of all my surgeries, but I've never had pain last this long or be this bad. And I wasn't allowed to have PT today. I told my therapist that I was in the ER on Tuesday night and she said that I have to be re-evaluated by my OS before I can start PT. So hopefully, my OS will see me tomorrow because I have another PT appointment and I can't afford to miss it.



Lottie,

Thank you :) I was actually thinking of doing that. I'll do it tomorrow when I remove the ace bandages. I was surprised the ER doc didn't do that. I hope your foot is getting better. I just generally feel like crap. In the sense that I don't feel healthy, but I think that's due to all the medicine I take and my other medical issues. You are SO right about my school. They have no understanding at all. I think it's partly because they don't take anything thing that's wrong with me seriously. My counselor always seems to just brush everything off like I'm being over dramatic.



Milly,

I've been checking on it every time I take off my brace. It's weird, I don't know if I just didn't notice it or it just started happening, but my knee is always hot now. It was never hot before. My school just likes to annoy me. But I've talked to other kids and they've treated them the same way. So it's not just me that they're unaccommodating to. My school has summer school, but I'd have to pay because it's a charter and I'd have to go to another school. It's not even that I have to make up my work, I always make up my work and all my grades are high 90's, it's that I don't have enough hours apparently. And since my school is a charter school, they have to be strict about it. That's what they tell me.


Tom,

I'm sure if I needed months off school, then I could be home-schooled for a while, but I'm sure my school wouldn't appreciate that. Like I said above, apparently all students need a certain amount of hours in school and if we don't make that requirement we have to make it up somehow. I just wish they would act like they believe me.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: Runner1993 on May 06, 2011, 02:17:24 AM
Sorry you ended up having to go the ER; they are a pain in more one than one!

Redness and warmth could be signs of infection or just inflammation (increased blood flow). When my leg turned red after surgery, my pt would outline the redness for me and just have me watch it. My knee still turns warm, and if my physical therapist does any kind of massage or rubbing, it turns a lot redder and warmer than my other leg if he does the same thing to it.

When I went to the ER after my knee surgery, it was the day after I had pt. I went to the ER on a Friday, and then I went to physical therapy on Tuesday. I didn't tell him until I got there that I had been in the ER, but since I didn't have a blood clot or infection, I continued with pt with no further evaluation by my OS lol.

Is it possible for you to take time off of school if you get a tutor? When I had my surgery, the school nurse informed me if I needed extended time off the school had to provide me with a tutor. When my sister broke her femur, she had to stay out of school for like 2 months, and her tutor (a teacher from school) would come to our house.

If you have an appt tomorrow with OS, hope it goes well!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: TwoBadKneesUSA on May 06, 2011, 04:41:22 PM
Kate,

Hope the OS can figure this out for you.  I hope is it nothing more than inflammation not infection.  Also if a lot of soft tissue work is done sometimes the knee just gets pissy about it.  Mine did with my second LR.  I had so many problems after that one I just wanted to give up.  It did turn out ok once all the pain and suffering were over.  Got a good few years of relief out of it.

As for school the kids need so many contact hours (at least in Michigan).  I would think that a tutor or summer school would make those up for you.  I can understand not wanting to pay for summer school if you don't have too.  Charter schools may work differently though.  I am not familiar with how those run.  I guess it is good to know that they treat others problems the same (consistantcy is something I guess  :P).  Anyway hope things get better soon.

Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: oohheykate on May 07, 2011, 04:03:47 AM
Post-op day twenty two.

So I had a pretty good pain day today, as in, I had no pain all day until my Vicodin started to wear off! My OS was able to see me so I go out of school early (yay!) to see him. As soon as he walked in, he was like "What's the problem now?!" Oh he knows me so well. Haha. He said he thinks my pain on Tuesday night was muscle spasms, which, when I think about it, makes sense because every time I had the shooting pains, my leg would seize up. So I'm cleared to start PT and be tortured because my ROM is lacking. He went to bend my knee and he said, "Katelyn! What are you doing?" All I did was cringe and laugh. I only had 30 degrees flexion there. So he wasn't happy about that or that I'm still on crutches. I couldn't emphasize enough that I can walk without crutches, it just hurts too much to do so. He really wants me off crutches and I want to be off them too, but I simply cannot walk without them and most of the time, I can't walk on my leg at all. It's hard to explain the pain. It's not like a constant pain, but once I start walking on it, it hurts. Then if I twist my leg in the slightest, I get a shooting pain through out my body that brings tears to my eyes. I'm not a sissy when it comes to pain and this pain is terrible. I proved to him that I can walk without crutches by walking with him to the check out desk without the crutches, it was about 20 feet away and by the time I got to it, I had shooting pains. It even hurt to walk with my leg lifted up. When I got back from PT, I went to sit on the floor to put my ice pad on and ace bandage on and I burst into tears because I moved my leg the wrong way. All that from walking 20 feet. Ugh.

I see him again on June 1st. Until then, I'm locked straight. And now I'm going to be in the brace longer than expected. He also threatened me with an MUA if I don't have full ROM by then. He refilled my Vicodin too.

PT was pure torture. I did assisted SLRs, then side ways SLRs and SLRs on my stomach by myself. I also did quad sets and hamstring sets. Then I got stretched for ten minutes. I always wondered why people said they cried at PT and now I know. Oh my god, it hurt so bad. I was grabbing at anything I could and tears were running down my face the entire time. But my therapist got me to 62 degrees. Then I laid on my stomach while my knee was hanging off the table so I don't lose extension.


Runner,

I actually think the redness is from my skin coming off. For some reason, my skin is just coming off in patches.

I guess that's just the policy of my PT office. My therapist said I needed to be checked out by my OS in case I had an injury and it needed to be documented that it didn't happen at PT.

I don't know if I'd be able to take time off now, three weeks after surgery especially since my OS only said I needed a week off of school. It's not that I can't go to school regularly, it's that when I do need a day off, it's not possible for me to take it.


Milly,

At my school, we have Attendance Recovery. It's basically a detention. They make you sit after school for 80 minutes to make up your time. The amount of AR you get depends on the days you've missed. If I miss one more day of school, I get summer AR. That's, I think, four days of school the week after we get out for four hours. It's ridiculous because they don't provide you with work so I have nothing to do.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: bball123 on May 08, 2011, 01:57:00 AM
sorry to hear about the trip to the ER. i happen to know all about ER visits following surgery :( and they suck. a lot. hopefully you will feel well enough to make these last weeks of school and not have to do the attendance recovery thing! i can't even imagine what it would be like if my school wasn't accommodating.

hopefully PT will get easier with time. those first few visits are rough. are you doing any exercises at home? maybe that would help get you stronger and off crutches a little sooner so your OS can be proud of your progress!!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: oohheykate on May 09, 2011, 02:46:26 AM
Post-op day twenty four.

I haven't had that much pain this weekend! I actually went 13 hours today without pain meds. I had to take a percocet after my shower. The swelling in my ankle is way down. I can see the bones, again. I've been elevating ALL weekend so I know all my hardwork (lol) will go to waste once I go to school tomorrow. I walked all day today without crutches with minimal pain so I'm going to walk on with my foot down all day tomorrow.


bball,

I actually had an enjoyable experience aside from them making me wait three hours for pain medicine. I love hospitals. Haha. I figure, since my school doesn't really care about early dismissals, they say they do, but I've had about 15 each year and never get in trouble as long as I'm there until the end of second block, I can get out early if my pain is bad enough. I can go in late a few times but no more than four because than I'll get a detention. They'll excuse them if you have a doctor's note though. I'm going quad and hamstring sets, ankle pumps, patella mobilizations, passive ROM, and attempting to do SLRs. My OS just like to bust my chops. Haha.



Has anyone ever gotten a prescription from the pharmacy that didn't have the right doctor's name on it? The Vicodin my OS prescribed me has a different Ortho's name on it and I've never heard of him and he doesn't work with my OS. It's the right medicine. I'm just confused.


And I just remembered this quote from Grey's Anatomy from Meredith:
"Surgery is a trauma in and of itself, and once itís over, the real healing begins. Itís called recovery. Recovery is not a team sport. Itís a solitary distance run. Itís long. Itís exhausting. And itís lonely as hell.Ē
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: oohheykate on May 09, 2011, 03:14:40 AM
My legs compared to each other:

(http://i53.tinypic.com/10r6d84.jpg)


(http://i52.tinypic.com/2dlksud.jpg)


I promise my leg is NOT bruised. Whatever they used in the OR to clean my leg was blue and I can't scrub my knee because my skin is really sensitive right now and it's still sore.

(http://i56.tinypic.com/2dkacub.jpg)
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: Lottiefox on May 09, 2011, 11:08:34 AM
Hi Kate

Yay on the 13 hours without pain meds - great progress! Those pics show you've still got a LOT of post op swelling and stuff going on. I am not surprised it still hurts. I am really pleased to hear that the swelling is going down. I am about 5 days after you with the foot surgery and this morning is the first time I've woken up and seen a very little bit of definition in my big toe rather than a straight up and down inflated balloon! I've got loads of numbness though in it, one big area is totally dead which I suspect is either the nerve block reaction or the fact he lifted the nerve to do the work. Hopefully it'll come back slowly! I hear you on the tender skin - I only washed my whole foot properly at the weekend and it felt so good. My hubby told me I HAD to scrub it as he could smell it in the room after I'd left! Iodine, muck, blood...nice!

I hope your school treat you a bit more kindly this week and that PT brings some gains. That surgery quote is just awesome. I am going to steal it and put it on my facebook page if you don't mind. It made me smile this morning!

Keep us posted,

Lottie xx
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: TwoBadKneesUSA on May 09, 2011, 01:26:26 PM
I find the Attendance recovery thing weird, especially if they do not give you any class work to do.  If it really is making up contact hours, there should be some kind of educational contact.  Too weirdÖ.ah well you do what ya gotta do I suppose.  Good thing on the longer times without pain.  I think I understand the kind of pain you are talking about with walking and turning the leg.  The soft tissues do not like to be messed with and you are sort of pulling on them when you walk and rotate the leg. 

Iíve had the wrong doc on my meds before, but it was just because the pharmacy tech did not look closely enough at the forms and only read the top one which was from the GYN so all my meds had her name on it.  I thought it was funny.  It did have your name at the patient though?  If not, then definitely contact the pharmacy.  Otherwise, you may just want to have them note that the next time you are in to get meds they made a mistake. 

The leg looks pretty good.  Yeah all that disinfectant type stuff can turn your skin some weird colors!  I can never wait to scrub it off.  The PT will be tough especially if they are cranking on the knee for flex.  That can really hurt.  I always tried to time my PT with a dose of pain meds.  That way I could take one before PT and it would not be so bad and I could get through.  Sometimes made it tough after the knee got stirred up and had to wait for another dose though.  Sometimes you canít win!

Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: Runner1993 on May 10, 2011, 12:43:20 AM
Kate, are your feet naturally apart like that when you have your knees touching? Were you standing or sitting?

Once you get going to pt regularly, you will see more improvement and probably some more pain, but it's all part of the process. How do you do passive ROM on your own?

You sound so much like me at pt! My physical therapist was holding onto my arm the other day, and said "you have some guns there!" My reply? They are from death gripping everything!

62 degrees. Fabulous...see what a good session of pt can do lol. When do you go again?

I do the stomach extension thing, too. My pt puts a weight on my leg though. My heel on my bad leg was sticking up a ton higher than my right.

What does your OS say about the peeling skin? Is it a reaction to something?

Full Rom by June 1st? Oh boy, good thing I didn't have your OS. He would be putting me under right now!

Great quote. It's both mental and physical. In my protocol though, my surgeon has "educate and encourage the patient to become an active member of their healthcare team." So, remember, you are not at it alone - you have your pts, your OS, your family, your friends, and us kneeguru people!

I bet you are so eager to get that marker off your leg. I can't tell where/how big your incisions are with the markers so make sure to post another one whenever the marker comes off!

Maybe I'll post another of mine sometime since I haven't since I had my bloody steristrips! The scars are an annoying obvious purple.

How was school today?
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: oohheykate on May 10, 2011, 02:53:32 AM
Post-op day twenty five.

I was really uncomfortable ALL day today at school. My knee felt achy but it was a more intense ache? I can't really describe it. But third block, I couldn't sit still and the girl sitting next to me kept hitting my stool with her foot sending shocking pains through my leg every time it hit and she wouldn't stop. I moved my stool all the way over and she moved it back? I was like excuse me but I'm the one that needs that. I swear, some people are just inconsiderate. My pain settled down a little bit before I went to PT and as soon as I was able to sit with my legs straight in front of me, the pain dramatically decreased. I don't think I had any pain. Then the stretching started and so did the tears... My PT got me to 65 degrees today with A LOT of tears because she needed me to pass what I had last time. She also took note of the red spot worsening. She waited a until almost the end of my session to call my OS. He said isn't concerned about an infection this far post op. Then she talked to him about the MUA, my ROM, and me being on crutches still. I'm tired of hearing I need to be off crutches already. I know that! I don't want to be on crutches but the pain is preventing me from walking on my leg. It's either, I don't have pain or the pain is too much to walk on my leg. I was going to walk on my leg today but this morning I walked to the bathroom without crutches and the pain started all over again and lasted all day.


Lottie,

The swelling around my kneecap is so much, that I can't find the bottom of it, neither can my PT! Haha. My ankle didn't swell up that back either today. Yay for your swelling going down as well! Are you still in pain? I really wish I could scrub my knee because I hate having it two different colors but it's so tender :( Hopefully, that numbness goes away. I can't imagine having that on your foot.



Milly,

Last year, they said they were going to start giving out packets you had to complete during your AR but they never did. I don't think the state knows so they get away with it. My school hasn't said anything to me about missing days so I hope I'm not getting anymore days. And my name is on the Vicodin. I figured they just plugged some letters into the computer or something the person wasn't really paying attention to what she/he was doing.This is the first time my leg has turned a different color. I find it weird. Haha. It's hard to time my meds because I don't want to be in pain in school so I hate one at 7 then 1 so I can't take another one until seven again. The pain is only bad when I get stretched and only lasts a few minutes. Then I have a couple twinges here and there when I get home.


Runner,

I was sitting and my feet are like 5 inches apart when I stand and sit. I'm knock kneed. I hate it. I do PROM with one of those things that look like dog leashes. My PT gave me one. I totally freaked out today when I was getting stretched. I almost jumped off the table. I think I moved like six inches up from where I originally was when she pushed my knee once. I went today, then I go again Thursday. I'll go every Monday then alternate between Friday and Thursday. I have full extension so I don't need the weight but I had the weight when I had a flexion contracture and that was NOT fun. I didn't ask him about my skin because I didn't know it was that bad. I'll definitely ask him when I see him again. I've never had that happen before and I'm not allergic to anything. My whole leg is peeling. Oh, now I have to have full ROM by May 30th, we have to change my appointment to then because I can't go on Wednesdays. So three weeks. When I posted the quote, I was thinking the alone part didn't apply to me and others because of this site and my amazing OS and PTs but I took alone to mean people that don't really understand what you're going through. I actually don't mind the marker on my leg. With my last surgery, it was on my knee for two months. I just can't will myself to scrub my knee. I have three incisions. Two medially and one lateral. And I finally remembered to ask what the lateral incision was for and my OS said it was to pull the sutures through for the graft. School is school. We play this game in Envrio Sci called table races and I can't play because I obviously can't race so I have to be score keeper, LONGEST 80 minutes of my life.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: oohheykate on May 10, 2011, 02:58:23 AM
(http://i56.tinypic.com/25hq2xf.png)


Here you go Runner. I highlighted my incisions.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: TwoBadKneesUSA on May 10, 2011, 01:22:34 PM
Kate,

I would agree with you on trying to stay pain free durning school.  Sorry that girl was so rude, some people have no manners or compasion.  As far as wasing the knee, I never wanted to scrub right away either, but wanted the marks gone.  If you can soak in a tub, get a wash rag soapy and let it sit on the marks for a bit the every so gently try rubbing the marks off.  You'll probably have to wait for the steri strips to come off.  I always cheated those and once one got a tiny curl I'd pull it off.  Never had that many though!  It seems weird to expect you to be off crutches in less than 30 days, I mean really there was a lot of restructure going on in there.  Well different OS different protocol. 

Got a funny story about crutches for you:  When I had my second LR there was a 13yr old that had one just after me in my PT office.  She was walking after about a week and the PT would try to shame me about the fact that I was still on them about 4 weeks later.  So I just told her, hey everyone is different, I've also had complications and she is a lot younger than me.  I never let them rush me into doing what I was not ready for.

Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: oohheykate on May 12, 2011, 02:35:11 AM
Post-op day 27.

I've been walking on my leg more. I walked about 1/4 of the school day yesterday. It's not a lot but it's more than what I was doing. I tried SO hard to walk on it all day but it started to get really painful. After school, I walked to my kitchen without crutches but then I was stranded because the pain set in and I couldn't walk so I had to get my mom to bring me my crutches. Today was a little bit better. I walked on my leg for about 1/2 the school day on and off. I hope this means I'll be off them soon. My OS appointment is on May 31st. I have to be off of them by then. I'll be really upset and my OS won't be too happy.



Milly,

There's a few kids at my school with broken ankles and they're walking on they're walking on them now even though they're technically still NWB and I'm really jealous of them. But I'm not going to let anyone, not even my OS or PT, force me to get off crutches if it's still painful.



The redness on my leg has gotten much worse since Monday. I had a patch about 2 inches by 2 inches above my knee of redness and now it's spread. I should've outlined it then but I didn't. I've outlined it now and I'll see what my PT says about it tomorrow before calling my OS but he won't get back to me until Friday because he has surgery all day tomorrow.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: oohheykate on May 12, 2011, 02:37:43 AM
(http://i52.tinypic.com/2ypes5j.jpg)

My whole leg is hot especially the red spots and the red spots feel like bruises. I changed my ace bandage and that didn't help and I don't think it's from my knee brace rubbing because it originally started in a place where my knee brace didn't touch.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: Runner1993 on May 12, 2011, 03:22:24 AM
Hey Kate, definitely have someone check it out. I don't think it's too late to develop infection. I was about 3 weeks post-op when I got those pussy, red blisters (stitch abscesses). Good Luck.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: Lottiefox on May 12, 2011, 10:12:58 AM
Hi Kate

Good news on managing more walking off the crutches. Not so great on the spreading redness, as Runner says I would get it checked out as infection can set in even 3 weeks afterwards especially its been in your system for a while. Is the heat in the leg constant or is it improved with anything? (eg rest, elevation, ice, heat etc). Does the redness change through the day or just stay red and tender? The sensation of it feeling like a bruise does suggest it might be a bit infected but I'm no doc! Best to see what is going on though.

Hang in there, you're doing great and have a really positive attitude,

Hugs,

Lottie xxxx
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: oohheykate on May 13, 2011, 01:49:06 AM
Post-op day 28. Four weeks!

I walked pretty much all day on my leg with my crutches and it didn't hurt. And when I got to PT, I walked without them. I'm in pain now, but it's nothing that isn't manageable. I did my normal exercises at PT, but my therapist wouldn't do e-stim because of my rash. She had three people look at it and no one has any idea what it could possibly be. It's hot all the time and it's even really warm after icing. It's starting to hurt worse and the bottom redness spread up a little more. The top patch has gotten purple spots in it. My therapist was really concerned so she called my OS twice. But he doesn't seem to care? He doesn't want to see my leg. He said to take some benadryl because he thinks I'm having an allergic reaction to the pain meds. But I don't understand why it would only affect my knee. If it doesn't get better by Monday, but mom is going to call back and see if he'll see me. If not, we're going to go somewhere else because it needs to be looked at. It's just really bothering me that he made his diagnosis without seeing how my leg looks. It's even worse because since Monday, I just haven't felt right. Like I don't feel sick, I just don't feel normal.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: KW on May 13, 2011, 02:59:49 AM
Any chance you are icing too much?  Ice can damage the skin and cause a red warm rash much like what is in your picture.  Be sure you have adequate protection between your skin and the ice/cold source and I have always been told that the recommended time to ice is no longer then 20 min.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: kcknee on May 13, 2011, 03:55:25 AM
Kate-

I had sent you a private message yesterday when I saw your photos, but here is the link to when I burnt my leg with ice and described what it looked like. Your pictures looked almost identical to how my ice burns looked. I would get it checked out though, just to make sure it is not an infection especially if you do not feel right or are running a fever.

http://www.kneeguru.co.uk/KNEEtalk/index.php?topic=51610.0

Kristin
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: TwoBadKneesUSA on May 13, 2011, 01:45:05 PM
Kate,

If the OS won't see you, try to get to your GP.  You could have an ice burn alright.  That is what early frostbite looks like (had it in my feet once).  You would think it would be cold, but it burns!  Have them check for infection too though.  You are putting a towel between you and the ice pack right?  Make sure they do at PT too.  I had a PT that always wanted to plop the ice bag right on my leg. 

Great news on walking without crutches.  Slow and steady and it will get better every day.

Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: Lottiefox on May 13, 2011, 04:13:08 PM
Gosh yes, that does look like early frostbite - I too had it on my toes once! It was SO hot I didn't even think it was frostbite. As said, seeing your GP might be a good idea just to rule out infection. You're doing too well to let a missed infection bring you backwards.

Have a great weekend,

Lottie x :D
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: Runner1993 on May 16, 2011, 11:56:54 PM
Did you go to a doctor today for the redness, Kate? From what everyone else says, it sounds like ice burn is a possibility.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: Lottiefox on May 17, 2011, 01:08:45 PM
Hi Kate

How are things going? Did you get any news on what the redness is? Hope your pain is getting a little easier.

Hugs,

Lottie xx
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: oohheykate on May 19, 2011, 12:20:08 AM
Post-op day 34. I'm past the one month mark and I apologize for the lack of updates.

Over the past few days, my mom has been playing phone tag with both my OS and PCP. My OS doesn't want to see me until I see my PCP and I can only see my PCP tomorrow but I might not have a ride so I won't be able to go. When my mom spoke to my OS on Monday, he said he wanted to see me on Friday but if I don't see my PCP tomorrow, that obviously won't happen. After getting worse, the redness is finally starting to improve. It's still red and hot but better than it was. Since Friday, I've been walking at my house without crutches and I'm walking with my leg down all the time at school. I'm barely using my crutches. I just have them because I'm afraid my knee is going to start hurting really bad and I won't be able to walk on it. Like on Sunday, I couldn't walk on my leg at all no matter what. PT on Monday was okay. My PT called my OS to see what I was allowed to do because my brace isn't unlocked yet due to me being behind schedule. I'm allowed to have my brace off at PT, ride the bike (aka rock back and fourth on it) and do step ups. I got yelled at, a lot while doing step ups. I was just lifting myself with my arms and I kept turning in my hip and foot. Oops... And the worst part was PROM. I lost ten degrees of flexion so I'm at 55 degrees and that was with a lot of force. I felt so embarrassed because I started bawling my eyes out and basically screamed bloody murder into a pillow. I can't even explain how bad it hurt. I might not be able to make it to my PT appointment on Friday so it'll be even worse when I go back on Monday because I can't push myself as much as my PT does. She said my OS is likely to decide whether I need an MUA based on my AROM not my PROM, so that really sucks because I have about 20-30 degrees less AROM. My PT tried everything to get me to flex my knee more. She had me sit on a stool and scoot forward and I still barely got to 55 degrees, same thing happened with the bike.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: smillie on May 19, 2011, 12:38:04 AM
Kate, what do they have you doing at home on your own to help with flexion? Are you allowed to do anything? 
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: oohheykate on May 19, 2011, 12:48:08 AM
Smillie,

I can do heel slides, let gravity pull my leg down and my PT gave me one of those straps that looks like dog leashes to pull on my leg. I can only pull my leg to like 30 degrees before it gets painful then I'm not willingly to pull any more.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: Runner1993 on May 19, 2011, 01:18:35 AM
Unfortunately, I don't think it will get any easier unless you push yourself. Show now mercy on yourself, then reward yourself with an ice-cream or your favorite food...I always do that :)

Have you tried any massage or stretching to break up adhesions or tight muscles?

I think an appt. with your PCP will be good enough. A simple blood test could determine if it's an infection or not, but glad to hears it's better.

Your leg is going to be more sore when you start to walk more without crutches.

Once you get going to pt, the sessions should be getting better. Hopefully, soon, you will be able to go more consistently. I know my pt place writes down on the note to your doctor how many appts you missed, although who knows if the doctor reads all of it lol.

It seems to early for your doctor to decide MUA or not in the next few weeks esp since you haven't really gone to pt so much yet. I was at your pace or even worst I think and only my pt mentioned a MUA, not my doctor. I am very thankful my doctor lets me get my ROM at my own pace as my pt says you don't know pain until you have had a MUA.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: smillie on May 19, 2011, 03:00:50 AM
Kate, what I'm finding is that when I do the stretching--working on my ROM, the first time I pull my leg up, I don't get as far as I would hope, then I do it again and relax into it and get a little further, then the third time is better, and so on. So I do it for 5-10 minutes just letting my leg ease into the stretch and going a little bit further each time. Lots of deep breathing! Then if I do it again an hour or so later, I don't lose any ground and I may even gain some ground. If I only did it once or twice a day, I think I would be losing ground, but doing it consistently throughout the day, I can maintain my progress and don't lose anything. It does hurt to do it and I have to push myself, but it's very worth it in the end. You want to do it safely and within the parameters that you've been given by your OS and PT, but do it as much as you possibly can so you can avoid that MUA if at all possible.

And Runner is right--ask about how to massage adhesions. If you have some spots that feel "stuck" that are keeping you from bending further, sometimes you can massage those and loosen them up and get a few more degrees.

I know it's hard! I'll be thinking about you as I'm stretching too. :)
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: TwoBadKneesUSA on May 19, 2011, 03:49:23 PM
Are you allowed to soak in the tub at all?  Sometimes a warm bath soaking the knee for just a few minutes will help with ROM.  Don't soak too long or the heat will make it swell.  Gaining ROM can be quite painful, but you have to push it. Sometimes just the fear of pain can inhibit your ROM.  Try to do the ROM stuff after you get home and can take a pain pill, also ice the knee a bit while waiting for the meds to kick in.  It might just take the edge off enough to help.  I also used to work on ROM at work (not sure how well that would work at school and if you need to keep the brace locked), slide the foot under the chair while bending the knee and keep your backside down, don't cheat and use the hip.  The hardest part is try to stay calm and keep pushing through.  Let us know how you are doing.

Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: smillie on May 19, 2011, 04:00:47 PM
And if you can't soak in the tub, you can fill a tube sock with rice, tie a knot in the top to keep it all in. Then warm it in the microwave for 30 seconds-1 minute. Put it on your quads to help them loosen up a bit, then S T R E T C H.  And good point about feeling calm while you do it. I lay down and do slow, deep breathing trying to relax all of my muscles and while the stretch is happening, still breathing deeply and relaxing. Close your eyes, pretend to sleep and just let gravity make it bend.

Good luck, Kate!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: oohheykate on May 22, 2011, 05:55:01 AM
Post-op day 37.

I wasn't able to make it to my PCP or PT. I couldn't get a ride. But I'm going to make up for PT by going three days this week. I really hope I'm able to gain some ROM because I see my OS on the 31st. I'm officially off crutches ;D I'm down to 2-3 pain pills a day, mostly Tramadol. My right knee is really aching and begging for mercy. I went to a concert last night at the Hard Rock Cafe. I was able to sit down and prop my leg up on the stage. Yes, I was that close. Haha. It was amazing. One of the musicians performed an encore for my friends and I outside the Hard Rock. I love super small shows.... And I got my tattoo today! I wasn't able to get the whole thing because the tattoo artist said it wouldn't fit so I'm going to go back in a year or so and get the dream catcher on my right foot. I got "Live the dream and learn to chase it." It's from You're Making it Come Alive by My Favorite Highway. One of my favorite bands who, sadly, broke up last September. But those lyrics mean a lot to me.


(http://i52.tinypic.com/54vfig.jpg)
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: oohheykate on May 22, 2011, 06:06:23 AM
As for soaking in the tub, I think that's a no go right now. I pulled off my steri-stips which I don't think you're supposed to do but it's been five weeks so I took them off Thursday. I was wondering why my incisions were hard and that was because they were scabbed. I ended up pulling the scabs off and they were actually inside too so now all of my incisions are open except for part of the one the lateral side of my patella. I put a big bandaid over them.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: cgkrueger on May 22, 2011, 08:27:21 PM
Congrats on getting your tat - I heard the ones on top of your feet hurt the worst! You are a brave little chickie - glad you got to get out and enjoy some live music up close!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: TwoBadKneesUSA on May 23, 2011, 03:24:14 PM
Nice tatoo!  Well wait on the soak then until the scabs are back.  I have a heating pad that has an insert that you wet and put under the cover and it gives you moist heat that way.  That might help loosen things up a bit too.

The steri strips were probably just stuck in the scab.  After 5 weeks I doubt you needed them.

Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: oohheykate on May 24, 2011, 02:20:56 AM
Post-op day 39.

I wasn't able to make it to PT again today but I'm scheduled for Wednesday, Thursday, and Friday to make up for my missed day last week and today. I'm officially crutchless! I was expecting more pain today, but my knee barely hurt. I just had pain around 4:30 which is normal for me. That's been happening everyday. I'm seeing my PCP on Wednesday morning because the redness has gone away around my knee but it's turned purple. So I might as well get it checked out. I've been unlocking my brace more when I'm just sitting with my leg down. Before it was more comfortable to have it straight, but now it's better to have it bent although I can't bend it that much. I'll take what I can get. I have an ice pack that has clay in it that I can heat up so I'll use that to loosen my knee up. Every time I've been to PT before, I'd use heat for 10 minutes before starting exercises but now they're not giving me heat. I'm really hoping to gain ROM this week.


cgkrueger,

The tattoo hurt SO bad! I felt like my skin was getting ripped off. It took about 20 minutes. I'd rather have knee surgery again. Haha.


Milly,

Yeah, I knew I didn't need the steri-strips anymore and my OS would have probably pulled them off when I see him so I decided to take them off myself. The scabs were really stuck. It hurt.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: oohheykate on May 26, 2011, 01:41:46 AM
Post-op day 40.

I didn't have school today so I couldn't think of a better way to spend my day other than at the doctor's office and PT! My PCP has concluded that the redness which is now purple is bruising from having the brace too tight. I'm still skeptical about both my OS and PCP's diagnoses. Just as long as my leg doesn't fall off, I'm okay with it.

PT was torture, at least the stretching was and always will be. I was there for an hour and a half just because I got stretched for 30 minutes. I did step-ups, wall squats, calf raises, the total gym, SLRs, "rode" the bike, and quad sets. My PT had another therapist stretch me because he could "motivate" me better aka torture me more because he has muscles. But I actually preferred him stretching me because he did it gradually when my PT normally just forces my knee as far she can get it within like 5 minutes. He got me to 75 degrees!! I go tomorrow for another session of torture then on Friday I get my re-evaluation. I hope my OS sees my improvement. I know he's not going to be happy with my ROM because I'm supposed to have full ROM.

I haven't had to take a Vicodin since like last Monday. But when I got home from PT, my pain was really bad and my pain is still bad. It normally doesn't hurt after PT but I guess since I got stretched so much it caused all the pain.

I have eight days left until school is over! Woohoo. The seniors last day of classes is on Friday and two of my classes are mostly seniors. My environmental science class will have me and another junior in it when the seniors leave and my physics II class will have me and four other juniors. I'm curious as to what we're going to do.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: Lottiefox on May 26, 2011, 11:34:20 AM
Hi Kate

Been following your thread - your tattoo looks really good although the thought of anyone coming near my foot at the moment with a tattoo instrument made me feel slightly sick.... :P  I only have one tattoo, a small one at the base of my back that I had about 10 years ago and I still remember the pain and wanting to faint but I was leaning forwards and thought if I did faint I'd crash face first onto his tiled floor and knock my teeth out which would spoil the look..... :o

Has the purple/red stopped spreading? I guess it could be bruising as it does sit above and below the knee but I have never had red bruusing before! Keep an eye on it, it sounds like it isn't worsening so hopefully it will settle.

Good work on the PT session, sounds like torture but gradual stretching is always far better for me on any joint rather than trying to force it to full ROM. It allows the muscles to work more progressively. I hope your OS is pleased with your progress - remind me when the appointment is?

Keep up the hard work,

Hugs

Lottie x
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: TwoBadKneesUSA on May 26, 2011, 01:15:23 PM
Good news on the pain meds!  If you need one before bed on PT days, that should not be too big a deal.  The more gradual the streatching during a session the better.  Streaching the tight tissues and mobilizing any scar tissue (and everyone gets some) can be painful after.  Keep up the good work though.

Milly

PS.  Keep up with heal slides between PT days.  It will help your ROM.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: oohheykate on May 27, 2011, 03:03:15 AM
Post-op day 41.

I had physical torture, I mean therapy again today. I had to do step ups on the real steps because I don't lift myself with my leg, I lift myself with my arms because there are parallel bars by the step up thing. I told on myself. It was so difficult to do because my knee doesn't bend that much! I kept at 75 degrees while on the bike but when I was doing wall squats, I could only go to 55 degrees. My PT pushed me to 80 degrees and once again, I burst into tears and was begging for mercy. My AROM is only like 30 degrees :( I don't know why it's so bad. I walked on the treadmill for five minutes at 1 MPH. My knee gave out, a lot. But it'll get stronger. I'm kinda afraid to see my OS now because I think he's going to try and bend my knee while I'm in his office and well, everyone's going to think he's murdering me...


Lottie,

Thank you! There's a second part to the tattoo that's supposed to go on my right foot in a year or so but I'm second guessing getting it because it hurt so bad! The purple/red has stop spreading but it gets really light when I have my legs in front of me but as soon as I stand up or walk, it gets dark purple. Then when I got off the treadmill today, I had five or six red, raised circles that appeared out of nowhere.  I keep telling all the PTs that I'd rather have the MUA than struggle so much but they insist that it hurts much worse. I see my OS on Tuesday, the 31st.


Milly,

Honestly, neither the Vicodin nor the Percocet helps me at all. My PT wants me to take it before I go so the stretching doesn't hurt so much but I don't think it's going to do anything for me. It didn't take away any of my pain yesterday. I think my PT is under the impression that I don't do my exercises but I've been doing them, especially working my ROM. It's just so hard :(
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: TwoBadKneesUSA on May 27, 2011, 02:06:29 PM
Kate,
Can you take any Motrin at all?  I think there is a coated type out there.  If you can try taking that about 1.5 hours before PT, then take the Perc or Vicodin an hour before.  That way it has had time to really work.  The Motrin can help boost the Vicodin or Percs.  If you really canít take them donít worry.  Just a thought to try.  Sometimes getting ROM back is a bear.  I think it really happens when you canít bend the knee right from the start (canít remember if you had to stay immobile or not).  You need to use it or the knee gets used to staying straight.  You got less on the wall squats because your quads are still weak.  Keep at the heel slides at home.  You have to work to major discomfort each time.  Bend a little more every rep.   It is not easy and it makes you depressed, but keep at it.  There may be some scar tissue that is holding things up and stretching and breaking that up hurts like nothing else.  Also on pain meds, if you take them once the pain is sky high, it does not work as well (sad voice of experience here).  If at all possible take it before the pain gets unbearable.  Easier said than done I know.

Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: Lottiefox on May 30, 2011, 11:58:32 AM
Hi Kate

How are things going? How are the red/purple bits looking?! Just wanted to swing by and wish you luck for tomorrow with your OS. Make sure he knows you have been working in PT and explain about the pain etc. Get him to check those coloured bits too if they are still there. Do they actually hurt? Tender to touch? Did the red circles vanish? Gosh sorry, 20 questions. I just want to make sure he gives you proper explanations and investigations tomorrow. I see my foot doc on Thursday, at least he can't nag me about ROM as he screwed the joint together with two pins and two plates!

Keep us posted,

Lottie xx
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: Runner1993 on June 01, 2011, 01:35:08 AM
Hope your appt went well, and your OS can help you manage your pain and avoid further surgery!

Good luck at your appt, too, Lottiefox.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: oohheykate on June 01, 2011, 02:16:11 AM
Post-op day 46.

So I saw my OS today. He wasn't concerned about my leg changing colors. He says it's from my leg reacting to surgery. It goes back and fourth from being slightly discolored to being really purple when I stand. But he is really worried about my ROM. I need to have at least 100 degrees of flexion, no less by June 14th when I see him again. If not, I'm getting the MUA. I'm pretty sure he wants me to have 100 degrees actively, so that would mean gaining 50 degrees in two weeks when I haven't gained 20 degrees in four weeks. If he meant passively, I need to gain 30 degrees when I've only gained 10 since I've started PT. Ugh. I'm six and a half-ish weeks now, when I see him again, I'll be eight and a half-ish weeks post-op. He said scar tissue needs to be addressed within ten weeks so I'll be cutting it close. I did get my brace unlocked! My knee gives out a whole lot though. I have to really concentrate on my walking so that I can catch myself when my knee gives out. And he liked my tattoo, haha.


Today was also Move Up Day at my school so I officially became a senior.


Milly,

My OS said I wasn't allowed to take Motrin or anything like that for at least six weeks. But he hasn't said that I'm allowed to take them yet? I'll ask the next time I'm there. Boy do I know how badly scar tissue breaking up hurts. After being immobilized for two months with my last surgery, my old OS took my knee through full ROM right then and there, surprised the crap out of me and made me cry.


Lottie,

I got these random red spots that look like big mosquito bites at PT when nothing was on my leg, they've turned purple. The big patch of purple isn't getting any worse, but it's not better. My leg only looks really bad when I stand up and more blood is in it, I guess? And I don't mind the questions at all! Haha. Good luck with your appointment  :)
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: TwoBadKneesUSA on June 01, 2011, 03:02:59 AM
Hope the discoloring is nothing like the doc says.   Hope the ROM gets better.  I think it might now that the brace is unlocked.  You can gain a bunch at PT and loose it when  you wrap the knee up again.  Good luck.  Congrats on being a Senior.

I've got to get a picture, but got a new tatoo myself.  Will post a pic when I get one.

Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: oohheykate on June 05, 2011, 05:05:37 AM
Post-op day 50.

On Thursday and Friday, I had PT. I really do love going there, but getting stretched makes me rather be in school than there. On Thursday, my PT decided to stretch me on my side instead of my stomach because she said I can get more ROM that way. Yeah, I got more pain. I cried for ten minutes and couldn't even hear what my ROM measurement was. I was in so much pain that I didn't want to move. On Friday, it was packed. I hate that they book three people at once. I think I'm going to stick to the afternoons even though I'll be out of school because there's like two people there. Anyway, the doctor who saw me when I was in the ER was there again. And there was a big group discussion about texting while walking because I had mentioned my texting induced tendinitis. Anyway, yesterday, I didn't get stretched that much because I complained so much about it. I limped out of there smiling instead of crying. Since my brace has been unlocked, I have to concentrate on my walking. My knee gives out SO much. I don't trust it one bit. My OS said that once I feel comfortable, I can stop wearing it around my house then eventually wean out of it completely. He said that I could take it off completely in two weeks. I have a feeling that won't be happening. But if I get the MUA, I don't think I'll be allowed to wear the brace anymore. I only have one PT appointment next week. It's on Friday, the last day of school ;D I think my friend, who wants to be a PT, is accompanying me. My dad is going to clean my pool out this week, hopefully. I'd like to see if I can get more ROM in there. I'd help clean but I obviously can't because my knee doesn't bend that much. So I hope to gain some ROM on Friday because if not, my OS will be putting me on his schedule. He said he'd hate to do it to me, but he will if he has to.


Milly,

I'd love to see your tattoo. Post a picture if you get a chance :)
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: Lottiefox on June 05, 2011, 02:54:30 PM
Hi Kate

Glad to hear that your OS wasn't worried about the strange colours - keep an eye on it though. Hopefully it is dissipating now? I hope your ROM improves and you avoid the MUA, although it is better he is a on top of any issues now rather than find you're still restricted 6 months down the line. The PT sounds nasty, you're a brave girl so it must have been bad for you to cry for ten minutes. Keep up with the hard work. I will get a pic of my tattoo and post it up - you've got me thinkling of another one somewhere (oh goodness not my foot though!) once things have calmed. Thanks for the good wishes with my doc - my review was OK. I have had my big toe fused due to it being completely trashed with arthritis at the grand age of 42 - it was horribly painful and deforming. Unfortunately I was diagnosed with early RSD/CRPS 3 weeks post op, thats why I was worried about your colour change as I get strange changes too, but lots of other symptoms too. I'm under pain management and they are confident if I do aggressive PT, and take my nerve pain pills I can get on top of it. I am seeing improvements and just walking through the pain - have to basically use my foot as a foot. That included a session of air guitar last night to AC/DC  :P   I am scared as RSD is an unknown but I am determined to beat it. My review X-rays showed solid fusion, which is fab at 6 weeks, but I have a lot of work to do with my top big toe joint which has got very stiff in the 6 weeks and is where the RSD kind of set in (you can see the largest change in colour and swelling there). So much wiggling, stretching etc. Every day is a little better though, and I treat bad days with cake or loud music! I am now released to drive again (right foot) which has been brilliant (I love my car - it is a rocket), and go back to the gym. I also love the gym!

Keep us posted Kate, you're doing really well. I am crossing all fingers and toes (non fused ones) for a positive ROM increase,

Hugs xxx
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: oohheykate on June 06, 2011, 01:39:11 AM
Lottie,

The color comes and goes. My PT says it has to do with how much blood is in my legs because the purple is only really there and noticeable when I'm standing or have my leg resting on the floor. Other than that, it isn't really there. I hope it goes away completely. I'd hate to have to walk around like that during the summer. The pain I felt when I was getting stretched on Thursday is indescribable. I'm sure you've experienced it before. I was actually begging my PT to stop between my sobs. But she knows she isn't causing any damage so she won't stop. I'm sorry to hear about your RSD/CRPS diagnosis. But at least it was caught early! Hopefully, you and your docs can get it under control so it won't affect you for long. Glad to hear to have soild fusion six weeks out. I think cake or loud music can solve a lot of problems, haha :) You must be very happy to be able to drive again. I'm getting my permit this summer! My dad said once I get enough ROM to sit in the car. So I have something to look forward to. I hope your recovery gets better!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: oohheykate on June 06, 2011, 01:47:13 AM
Post-op day 51.

My legs compared to each other:

(http://i53.tinypic.com/2n8oqjk.jpg)


Top view:

(http://i54.tinypic.com/ac68w5.jpg)


Lateral incisions:

(http://i53.tinypic.com/1zbccpv.jpg)


Medial incision:

(http://i56.tinypic.com/i36kb9.jpg)


A new picture of my tattoo:

(http://i52.tinypic.com/20utzza.jpg)
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: Lottiefox on June 06, 2011, 06:55:07 PM
Hi Kate

Your tattoo looks great! The leg actually looks better than the last shots you posted - those incisions seem to be healing nicely. The swelling is obviously an issue and must impat on your ROM. You went back to school and did so much so shortly after your op, I am not surprised its swollen. Hopefully it will start to go down soon. My foot doc said that for the first six weeks in foot surgery the swelling increases because it is a foot and its been chopped. Then it starts to think "Oh I will start to reduce" but you start walking and doing more so it doesn't actually go down much for another six weeks or so - he said at 12 weeks I should start to see swelling actually go down and stay down. I have been lucky, as only my big toe and scar area are swollen - I can still fit in my normal trainers with the laces done loosely. I think this is a good sign for the RSD as often the whole foot becomes a huge red shiny balloon.......my foot also goes the worse colours when its down - the shower especially brings purples and all sorts but everyday it gets less which is a great sign. Today I have been in my beloved car, walked on the treadmill for 15 mins, cycled 5 miles on the spin bike, done lots of core work and balance and weights, been to the shops (the mall you'd call it?) for some coffee and then walked in the fields at the back of our house for 30 minutes tonight. I think that's enough for the foot rehab!

How is your ROM doing this week? You see your doc next week yes? I have all fingers crossed you can avoid the MUA. Knees are so frustrating. How is your other knee holding up with doing all the work? My knees have liked the rest from spinning for 6 weeks, but my muscles on the opped leg have dwindled, amazing how quickly they go when you don't walk as much. I shall try and get a pic of my tattoo now, my husband is home!

Take care Kate,

Lottie xx
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: TwoBadKneesUSA on June 06, 2011, 08:32:22 PM
Kate,

The leg looks much better now.  I think you will have swelling off and on for quite a while.  It does seem better now. 

(http://i195.photobucket.com/albums/z226/TwoBadKneesUSA/MyTatoo6-1-11a.jpg)

This should be a pic of my tatoo.  It is not quite done yet.

Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: Lottiefox on June 06, 2011, 09:43:38 PM
Goodness mine is SO small! I am a wimp!!!

Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: Runner1993 on June 10, 2011, 03:19:40 AM
What are the lines on your knee from? Are you wearing an ace-bandage too?

Your incisions look great! They are so slender!

How far is your brace unlocked?

Keep working at it. Why aren't you able to make it to pt more often? When did you first start? You only get 2 months, right?

Today was my official last day of classes. Now, I have 3 days of finals and a state exam. Then I am done with high school! :( and :) at the same time. lol.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: oohheykate on June 12, 2011, 03:04:44 AM
Post-op day 57.

Sorry I haven't been updating, but I didn't have much to write about. Anyway, yesterday I went to PT. Boy, was that fun. My PT called out so I had a therapist from a different campus who I never met. I thought he was going to be nice to me, but I was wrong. He was on my case about everything. I was getting lectured every chance he got for not walking correctly and not doing my exercises the right way. I ended up mocking him a lot and making faces behind his back like the child I am. If my friend wasn't there, I would've lost my mind. But now that I think about it, I wish that my PT was constantly telling me to do everything properly and not just talking to me the whole time. I'm disappointed in my ROM :( I'm at 80 degrees PROM and 60 degrees AROM. My OS wanted me to have 100 degrees by Tuesday which is two months post-op. Technically, I'm supposed to have full ROM and be walking normally by two months according to my doctor's protocol. None of that is happening. I can hear the MUA calling my name. I tried to get more ROM in my pool but it just wasn't happening. I'm going to Georgia from June 29th- July 9th to visit some family and the PT I saw on Friday said I might not be able to go if I have the MUA because I have to be in therapy everyday. I'm going regardless. Last Wednesday, I went to school without an ace bandage around my knee and it swelled to three times its normal size. It was crazy. And every time I stood, my knee turned purple and red. My other knee isn't doing as bad I though it would. It definitely hurts more than my operative knee. I never really noticed my right knee hurting before but that's because my left hurt so badly, but now that it doesn't hurt so much, my right hurts more. My operative knee only hurts at night and in the morning and when I keep it on the floor.


Nice tattoos Milly and Lottie!


Runner,

The deep lines are from my school pants. I wear my brace over my pants and that's how my leg looks afterward. But I do wear an ace bandage to keep my knee from swelling too much. My brace is unlocked from -10 to 120 degrees. I could only go to PT once this week because I was busy with end of school stuff. I was going to go three times next week but I have a doctor's appointments on Monday, Tuesday, and Wednesday so I could only go on Thursday and Friday. I started PT on April 29th and I have 60 days from there. I was finished school on the 8th. I can't believe it's summer and I'm a senior. I don't want to leave high school :(


I'll update again when I get back from my OS appointment.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: Lottiefox on June 12, 2011, 01:49:08 PM
Hi Kate

Boooo on the impending MUA, BUT if it is what your knee needs....then I guess what will be will be....let us know what your OS says. How rapidly would he be looking to do it after your appointment? If he could do it asap you could probably get your intensive PT in for a couple of weeks before your trip and then try and keep things going whilst you are away. It would be a shame to go through the MUA then not be able to maintain the gains if you're away. I know how you feel though, it is important to have a *life* outside of the joint traumas. Otherwise you'd go slowly insane. I think a nagging PT is sometimes better than one who chats. I had a lovely first PT for my knee who used to show me her chickens in the yard, chat about her family....but she did nothing good for my knee. My second one was much more focused on what I was doing wrong, showed me how to work on correcting it and got some good results. She is the one I called after my RSD diagnosis. My foot is doing well, still strange colours when it is down but I've walked 3km on the treadmill and biked 6 miles on the bike, and plenty of general getting around. I WILL beat the RSD out of it!!

Good luck with the OS, will be sending positive thoughts....

Lottie xx

Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: TwoBadKneesUSA on June 13, 2011, 01:54:06 PM
Sorry to hear about the possible MUA.  Hopefully it can be done and you can still go on your trip.  Like Lottie says, you still need a life.  So what are you plans for next fall, college or working? Now maybe you can concentrate on more home PT since you are not at school and busy with those activites.  Good luck and let us know what the doc says ok?

Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: oohheykate on June 15, 2011, 02:12:56 AM
60 days/two months post-op!

I saw my OS today and he confirmed that I need the MUA. It's going to be on Tuesday, June 21st. The surgery scheduler said it's definitely in the afternoon because my OS sees patients in the morning on Tuesdays then does surgeries Tuesday afternoon. She said I'd probably have to be there at 11am. My pre-op testing is on Thursday. I'm allowed to go to Georgia! He was going to do it next Thursday, the 23rd, but since I'm going away, he's doing it earlier. I'm excited to be able to bend my knee again. It's really frustrating when I'm walking around without my brace on and I can't bend it. I might have to have a scope to clean out the scar tissue, but my OS won't know until he tries to bend my knee. He said I'm at high risk for breaking my kneecap during the MUA since I had a hole drilled into it. I'm hoping everything goes well and that I only need the MUA! Surprisingly, I don't start PT again until a week after my MUA.



Lottie,

It sounds like you are doing wonderfully! You will definitely beat this RSD.



Milly,

After I graduate, I'm going right to college for pre-med! I want to be a Pediatric Orthopedic Surgeon.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: TwoBadKneesUSA on June 15, 2011, 06:31:01 PM
Good luck with the MUA.  Hope it all works out ok no complications.  Have you picked a college yet?

Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: Lottiefox on June 15, 2011, 07:28:23 PM
Hi Kate

Well, I guess you had kind of expected the MUA. Good luck next week. As you say, something needs to be done now to get some movement back. I hope no scope is necessary and its a simple procedure. You and I are definitely getting the award for "April surgery complications 2011"!! Good news that you can still go away, although I guess you'll have a PT program to try and do whilst you're on your trip? It is a balance between getting that leg working again and enjoyment.....I'm in the same place with the foot. I am doing well with my gym stuff, and walking about but when I slacken off my toe exercises everything stiffens and goes purple....and...the same old same old....so here I am wiggling as I type....

Keep us posted next week. I will be thinking of you on the 21st.

Take care

Lottie xx
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: Runner1993 on June 16, 2011, 09:16:45 PM
Hope it goes well. You'll probably surpass me in range of motion after! :) Actively, I'm measuring at 6-108, but it's slowly coming :)

Will you have to wear the brace after or use crutches? You should talk to others on here who have had it done.

Why don't you start pt right away? My surgeon wants patients to start the day after and that's just for the TTT/MPFL.  Will you be starting it on your own then since you will be on vacation? Will insurance give you more visits because doesn't yours run out this month?
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: oohheykate on June 18, 2011, 04:12:48 AM
Post-op day 63.

I had my pre-op yesterday. What a waste of time! Haha. I was at the hospital for four hours for nothing. They had all my information already and the answer to the questions they were going to ask because all it was in the computer from the last time. I didn't have to meet with the anesthesiologist or have blood taken because the MUA isn't as serious as the MPFLr. Needless to say, I was frustrated.

Today, I had PT. I couldn't go yesterday due to having my pre-op. My therapist wasn't too happy that I'm having it but she said if I need it, then I need it. She was also really surprised that I have to wait a week before going back so she wants me to double check with my OS about that, which I was already going to do. PT was pretty uneventful. I can feel my leg finally getting stronger. I can walk without constantly thinking my knee is going to give out. But that's with my brace off and I kinda walk with my leg locked because it bends even less when I walk. When I walk with my brace on, my knee gives out a lot more :( I couldn't do one of my exercises because I'm pretty sure I lost ROM. The best part was, I didn't get stretched. She let me off easy today because I'm having the MUA.

I've been having really bad left ankle pain at night. Sometimes I get it during the day but it's terrible at night. It hurts worse than my knee. My knee only hurts me at night now. Like as soon as I elevate it with ice, it hurts. It doesn't make sense and I hate it :( And my right knee is killing me all the time now. Ugh. /complaining.



Milly,

Thank you! My top choice is UPenn but that's a reach now with my SAT score (1610). Next on the list is Drexel, Temple, University of the Sciences, La Salle, then Ursinus. I'm retaking my SAT in October and hoping I get at least a 1700. My score is good enough to get in all the other schools. Plus, I'm ranked 8th in my class out of 250 kids and I have a 3.93 GPA. I'm praying that I get scholarships!


Lottie,

Haha, yeah. I'm just glad something is being done and that I don't have to struggle with it then wait too long. I'm hoping I'm in and out of the OR with no scope because I don't handle the anesthesia well even for just a simple scope :( I'm happy I still get to go away! I have pre-boarding, seats with extra leg room, and I'm planning on taking my Polar Care Cube, haha. I have to call the airline. I've seen people check boxes before and it's not that big. I'll be working the ROM while away. It's not too much of a vacation. I know I'm going to Savannah one day but other than that, I'm just hanging with family.


Runner,

Ah, maybe I'll pass you in a few weeks. I'm doing horribly with my AROM. I have to bring my crutches so I'm going to be on them for at least a few days. As for the brace, I'm wearing it there but if I just get the MUA, I'm not allowed to wear it afterward. If I get the scope, I have to wear it for a week then take it off because the scope will weaken my quads. I've been talking to someone who's had it done for a few weeks. I started talking to her when it was first brought up to me. I've read quite a few threads on here as well but no one starts PT a week later so it's not the same. I have no idea why I start PT a week after. I didn't talk to my OS. I forgot to ask so I called his office and one of the ladies at the front desk asked him then got back on the phone with me. I'm definitely going to ask on Tuesday and double check. I'll be doing my PT while I'm away. YES! I get two more months of PT and I'm really excited about it :)
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: Lottiefox on June 18, 2011, 10:09:21 PM
Kate,

Good luck for the 21st! Pre op sounds like a waste of time! Good job on checking on the PT - I am no expert but I thought you needed to start PT pretty soon after an MUA to get some gentle ROM going. Bad news on the ankle pain - do you think it is because you are walking strangely or does it feel like you've tweaked something? I know my ankle and knee on my opped foot side have been way sorer since the op because I am not using them properly. I wonder if at night you didn't ice the knee might not hurt as much? I know you still have swelling but perhaps the ice is just aggravating the small blood vessels and making things hurt? I just remember the strange colours you had and the suspicion it might be too much icing. I am actually finding that gentle warmth helps my foot now, rather than anything cold. I know I have an RSD diagnosis but sometimes too much cold just makes the vessels constrict and we feel pain.....might be worth trying....

I REALLY hope the MUA helps you move forwards. Being in pain and restricted becomes old very quickly. Stay strong!

Lottie xx
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: smillie on June 19, 2011, 04:51:37 AM
I'm glad you're going to ask about the PT afterward, Kate. Just for reference...when I had my MUA done (no scope, just closed manipulation) I had a CPM machine delivered to my house and I spent a lot of time in the CPM (even at night) plus I started PT within a day or two and went 5 days a week at first so we could be sure I maintained the bend he achieved in the OR and didn't scar down again. After a couple of weeks I went back to three times a week and did my home program the other days. It was really important to keep it moving and control the swelling because it wanted to go back to being stiff again. So be sure you know exactly what your OS and PT want you to do after your MUA and follow it to the letter. It's super important!

Good luck, Kate. I hope everything goes well and you can get all this behind you and really enjoy your senior year! :)
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: Runner1993 on June 20, 2011, 02:33:55 AM
Will you have a CPM, Kate?
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: TwoBadKneesUSA on June 20, 2011, 01:48:49 PM
In case I don't get back on for a few days, good luck tomorrow.  I hope everything works out great for you and the ROM sitcks.  I'll try to check back later this week, but will be busy.  My grandmother passed away and I am the only blood relative in town so I have to sign a bunch of stuff and take care of paperwork. Even though my SIL is her executor for healthcare and she has a conservatorship (someone who takes care of her money), I have to sign everything. 

Anyway best of luck and will be thinking of you.

Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: oohheykate on June 21, 2011, 04:00:52 AM
I have to be at the hospital by 10am tomorrow. It's not as bad as I thought it was going to be! But my OS sees patients until noon and it takes about 20 minutes to get to the hospital so I have no idea when my MUA actually is. Good thing my migraine medication keeps me from getting hungry.

As far as I know, I am not getting a CPM and PT is going to start next week. I am going to check once again tomorrow.

About my ankle: It keeps swelling then going back down. It hurts during the day but worse at night. I have this neoprene brace for it that I put on and it helped the swelling but not the pain. I'll ask my OS about it at my post-MUA visit.

I iced my knee earlier in the day Saturday and it didn't hurt until I elevated it so I don't know why that would make it hurt but it did.


Milly, I'm sorry for your loss :(


Thanks for all the well wishes and luck  :)  I'll update as soon as I can!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: Runner1993 on June 22, 2011, 05:44:11 PM
How did things go? Hopefully no broken kneecaps! Did you find out how much ROM he was able to get you in the OR? Keep moving it and icing it!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011
Post by: Lottiefox on June 22, 2011, 10:16:37 PM
Kate,

Been thinking of you! How did it go? I hope that knee is moving more freely and he got good ROM and your kneecap is intact!! Let us know how things went when you feel up to it and I know you'll work hard to keep that bend!

Lottie xx
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on June 23, 2011, 03:54:55 AM
Post-op day 68 from MPFLr; Post-op day 1 from LOA & MUA

I SURVIVED!† ;D

It actually wasn't that big of a deal. I got to the hospital before 10am and was checked in. Then I waited until 11:30 to get prepped. I had just gotten talking about how my OS was going to walk in around 1pm then he walked up to me. I think it was 12:05. Then he told me he called the hospital 15 minutes earlier to make sure my OR was ready. How sweet is he? We talked for about 15 minutes. I was supposed to start PT today. I don't know why his office staff said I start next week. They said they asked him. So my mom called the PT place while I was in recovery and the earliest they could see me was Monday. So I'm scheduled for everyday for the next two weeks. As you can see, I ended up with both the LOA and MUA because my OS didn't want to risk breaking my kneecap. My OS is one of the nicest people on the planet. Seriously. I am so happy I found him. Before I was given the anesthesia, we were talking about music because I decided I'm not going to Georgia due to one of my favorite bands playing a show while I'm away. He wanted to know who they were and basically everything about them, except no one knows who they are. He said he would've let me listen to them in the OR if he had their CD, so I'm going to make him a mixed CD with a few other people I mentioned to him since he focuses all his attention on Muse. Anyway! It took about 45 minutes and he got me through full ROM. Oh and before I went under he said if my knee bent with just a little help, he was going to wake me up and yell. Haha. When I woke up, I was in pain, but it wasn't all that bad. I mean, it sucked but I could deal. I was given three doses of Fentanyl. They covered me in blankets because I was shivering SO much. All you could see was my face. But I wasn't sick at all. That's the first time I've ever woken up from anesthesia not sick! I was cleared to go by 4:30. We went by Target to get my pain meds. That's when the real pain started. I think my mom was in there for 15-20 minutes and I was basically screaming my head off. Then when we got home, my mom had to lift my leg for me to lay on the couch and, I swear, it felt like my leg was getting ripped off. It was worse than my MPFLr. I took two Vicodin right away but by 9:30 the pain has subsided a lot. It hurt a little to get up but nothing I couldn't tolerate. So overall, I've only taken four Vicodin since getting home from the hospital. My OS called this morning to make sure I was bending my knee, I told him I would as soon as I was awake. He called me at like 10:30 and I was still sleeping. I see him again on Wednesday for my post-op. Until then, I have to keep my knee wrapped up and can't get it wet. So yay. I can take the huge wrapping off for PT. So just the cotton and ace bandage on my knee have to stay. I hate having the cotton underneath because basically blocks the coldness of the Polar Care. But I must follow the rules. I've been bending and it doesn't hurt, that much. My knee is slightly sore. But my quads and abs hurt like heck. I can't cough without being in pain. My other knee actually hurts more, which sucks. I can get to about 90 degrees. I would be able to get more without my ice pad but it's under all the ace bandage. And my quads have shut down completely. Hopefully, they come back soon!


(http://i56.tinypic.com/142hdg0.jpg)
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Lottiefox on June 23, 2011, 09:44:27 AM
You survived!! Yay!

Good to hear everything went well. When you say LOA as well as MUA I guess that means he scoped the knee too? (I'm a klutz with some phrases!). Great that he got full ROM, hopefully you'll be able to maintain this as the bandages come off and you start working in PT. That leg looks like a little mummified leg with all those wraps on! Perhaps best not to be travelling away - means you can focus on the rehab and really put your leg at the top of the list (along with bands and real life of course too..) Who are the band? I like Muse too, perhaps I am as old as your OS? ;-)

Really hope this op gets you back on track. I saw my pain doc yesterday who was really pleased with my progress with the foot. He did tell me off for going too hard on the activity at the gym and that I needed to pace my activity and gradually increase...whoops. That explains the flare up last weekend. I am finding that driving irritates the toes but I just have to suck it up, the foot needs to learn to do normal things again so get on with it footsie, deal with it, you're driving! He was pleased with swelling and general "look" of the foot. I need to stay on all my neuropathic pain meds for at least 2 months more then see him again. So, baby steps of progress.

Keep us posted and keep on bending!!

Hugs, Lottie xxx
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on June 24, 2011, 03:48:15 AM
Post-op day 69 from MPFLr; Post-op day 2 from LOA & MUA

I'm actually really surprised at how little pain I'm in. Like I have no pain, most of the time. It's so weird. I remember when I had my first knee surgery which was just a simple scope and I was on crutches for two weeks because of the pain. I don't know if my pain tolerance has gone up or what. I'm not complaining though! I would be able to walk without crutches if my quads didn't shut down completely. Even with the crutches, my knee gives out. My OS said I was allowed to wear my brace out so I don't hurt myself so if/when I do go out, I'll wear the brace. I've been using the crutches so I don't have to worry about taking the brace off to work my ROM. I think I got passed 90 degrees today with my flexion. I took my ice pad out of from under the ace bandage to see how far I could bend it and I'm pretty sure it got slightly passed 90! It was definitely more sore when trying to bend it today but it wasn't too bad. I'm only taking a Vicodin before I go to sleep. Honestly, the pain from my ankle bothers me more than anything else so I definitely have to talk to my OS about that. I've been sleeping with ice on my ankle and it helps it then but as soon as the ice gets warm, it hurts again. My other knee is hurting really badly too. I've only said something to my OS once about it bothering me and it was one of those, "oh by the way" things. I'm making sure I bend my knee plenty throughout the day but I'm also elevating with just a pillow under my ankle for a few hours to make sure I don't lose extension since I don't have the brace to keep my knee completely straight.


I'll be switching to new insurance (against my will) on July 15th. Thankfully, all of my current doctors take it. But I'm not too sure of their PT policy. The lady said my OS would submit paperwork saying how many sessions I need but according to their guidelines, a session is 15 minutes and not an hour. But it sounded like I wouldn't have a limit. Just as long as PT is "medically necessary" I go as long as I need. 


Lottie,

Yes, when I say LOA, I mean a scope to clean out the scar tissue. Haha, my leg does look mummified especially since there's cotton underneath the ace bandages too. The trip wasn't sounding too fun after a while especially since my quads have shut down so I would need crutches or my brace there. It would be too much and I wouldn't have fun. And I'd honestly rather do PT because I have fun there. The band I'm (hopefully) going to see is Caroline County. It's a side project for the guy I say last month Matthew McGinn. He's friends with one of my favorite bands (the one my tattoo lyric is from) and some of them are playing for him so I need to go. It's like a little reunion. Ah, my OS isn't old! Or at least I don't think he is because he's only 34. Glad your foot is doing well! I hope it learns to deal with driving again. Don't push yourself too much. I know it's hard sometimes.  ;)
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on June 26, 2011, 03:08:53 AM
Post-op day 71 from MPFLr; Post-op day 4 from LOA & MUA

I never know if I'm doing the math correctly when I write how many days post-op I am. Haha.

Anyway! I either spoke too soon or I jinxed myself because I'm in pain today :( I guess it was going to come sooner or later. I am able to walk without crutches if I don't walk like a normal person. I just lock my leg sorta bent, but it hurts today. I've been getting shooting pains all over my knee especially where the MPFL is and I haven't had that type of pain in a while. I only took a Vicodin when I woke up and I took it on an empty stomach. That was a horrible idea. My dad said I looked like a ghost by the time he got me cereal. I've been feeling sick all day, but not flu sick more of a "my digestive tract is rebelling against me" sick. My knee is super sore when I bend it now and it hurts to straighten it back out afterwards. I'm not looking forward to PT, well I kinda am just not the stretching. But I think they're all going to happy that I have around 90 degrees actively.

I'm kinda over knee surgery and not being able to do anything. This is why I get surgery doing the school year. And all I want to do is swim but I can't until, I think, July 5th.


(http://i51.tinypic.com/so8xol.jpg)
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on June 26, 2011, 03:31:59 AM
I just wanted to add that my ankle is killing me :(  I don't know what I'm going to do at PT if my therapist makes me do my one legged exercises. It hurts to walk on it now so I think that's partly why I'm still using the crutches. It hurts to put pressure on it like squeezing it so I'm definitely talking to my OS about it on Wednesday.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Lottiefox on June 26, 2011, 11:03:54 AM
Yuck. Sorry the pain has hit.  :(    Guess it was kind of inevitable.....hang in there. You're doing good, you've got better bend than before the MUA and although PT is going to hurt it will get you back a better knee and leg. I know what you mean about being over surgery and its after effects. All I want to do is forget I have a foot attached to my leg for a wee while! Although finally I appear to have a big toe shape returning, which is good progress from the fat up and down sausage it has been for 8 weeks! My wiggling of the top part of it is much better too actively and passively, so that should pump out some swelling....

Strange about your ankle. Do you think it is from walking weirdly on it or is a kind of deep down pain feeling? Keep an eye on it. When is PT starting? I love that mummified leg look you've got going on... :P

Take care,

Lottie xx
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: TwoBadKneesUSA on June 27, 2011, 04:02:30 PM
Good deal!  You got through it.  Thatís always a good thing.   ROM sounds pretty good, but not sure how good a judge I am.  Definitely have the ankle checked out.  Keep us posted.

Thanks for the sympathy wishes.

MIlly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on June 28, 2011, 04:36:37 AM
Post-op day 73 from MPFLr; Post-op day 6 from LOA & MUA

Iím just going to express my disdain for post MUA/LOA physical therapy. All I did was get stretched. Now, I understand gaining my ROM is important but my quads have disappeared, again. I canít walk without my knee giving out so I think throwing some quad exercises in there would be extremely beneficial but NO I got tortured the entire time.  I actually didnít cry so I guess thatís good but my PROM and AROM are not what I thought they were going to be. It took A LOT of stretching to get me back to where I was pre-surgery. So Iím currently at 70 degrees actively and 85 degrees passively. Our goal is to get 90 by the end of the week which I think I will get. Hopefully, I can get it tomorrow so I can tell my Ortho on Wednesday morning. Iím currently unable to walk on my knee because it hurts so badly. Itís more my quad area but my MPFL area hurts as well. This is the most Vicodin Iíve taken since my MPFL reconstruction and Iím not happy about it. Plus, my ankle is killing me. My PT wants me to stretch at home (obviously) but my knee hurts so bad that I canít even move. I'm really frustrated right now with how much pain I'm in. I know it's not going to be pleasant tomorrow in PT because my quads and knee hurt so much. I'll probably end up going in on crutches even though I'm not allowed to be on them. Also, my PT called my OS last Wednesday to see how surgery went and he told her I wasn't allowed to wear my brace even though he told me I could wear it out of the house to protect my knee which was the only thing I was doing! I swear, he loves getting me in trouble.


But, I got TWO, yes two, backwards revolutions on the bike by cheating a little with my hip.



Lottie,

I was at walking oddly at first, but my stride has evened out and it's definitely a deep down pain. I'm not-so mummified anymore. I just have an ace bandage around my knee now to cover the cotton which is completely blocking my Polar Care :( And my leg has a fake tan look to it from the betadine and I'm not allowed to wash it off. I kinda wish it was real.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: TwoBadKneesUSA on June 28, 2011, 02:31:04 PM
Kate,

I know the PT sucks, but the one thing you don't want to do right now is heat that knee up and make it swell too much.  Or you could be right back where you started.  Slow and easy is the way you need to go or the adhesions will come back with a vengence.  Tough and I know the quads are probably limp right now.  Did the PT say you could do the quad sets (not SLRs yet)?  Do as many as you are allowed to do.  They seem pointless, but they really do help.  As for the brace, wear it if the OS said you could and leave it in the car for PT.  You don't need to fall on your nose.  Patience has never been my strong point either, so I understand how you feel.

Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Lottiefox on June 28, 2011, 10:02:39 PM
Hi Kate

Just popping in to wish you luck for your OS visit and for gaining the 90 degrees. As Milly says, slow and steady HAS to be the plan here to prevent too much swelling and heat and the cycle continuing. You're making gains, stay patient and work with the PT guys as I know you trust them. Make sure you get that ankle checked out too.

Let us know how things go,

Hugs xxxx
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on July 01, 2011, 03:44:18 AM
Post-op day 76 from MPFLr; Post-op day 9 from LOA & MUA

Sorry I haven't updated, I've had a stomach virus for the last two days :( But I feel way better now. I did miss two days of PT though.


At PT on Tuesday, I warmed up on the bike then did heel sides before getting stretched. My therapist decided to try and prolong the stretching over a half hour instead of doing it in ten minutes. She would do two, 30 second holds each time then work with other people and come back. I got to 92 degrees! But I ended up crying multiple times so I don't know if that's the best strategy, we're still trying to work that out.

Yesterday I saw my OS for my post-op MUA. It didn't go as I thought it would. Haha. He walked in and immediately wanted to check my ROM which I proudly stated was 92 degrees after telling him that my therapists torture me. He said he told them to do that when he talked to them. Iím so glad he did that (sense my sarcasm). He was clearly not impressed with the 92 degrees and wanted me at almost full range by now. He then stretched me for 25 minutes while I laughed out of pain and asked him multiple times if he was trying to make me cry. He kept telling me to breathe. I donít know what he thought I was doing. Haha. At first, he was stretching me on my back, but that wasnít working so he did it while I was sitting up with my leg hanging over the table. He got a little more ROM out of me that way. Then he had me lay on my back again to cause me more pain. I eventually got to 105 degrees! He showed me the pictures to prove he got me through full range and said that he ďneeds to keep an eyeĒ on me so I have to see him again in two weeks. I told him he got me in trouble with my therapists because he told them I wasnít allowed to wear my brace but he told me I could. He was like ďI told you, you could wear it for one day, ONE DAY!Ē But then he asked me to hold my leg out and it shook like crazy so Iím allowed to wear it until my next appointment. He also said the only reason I wouldnít be able to play soccer by September is because of my quads and ROM so I have to get those back to normal. If not, I could hurt myself again. And he said my ankle is probably hurting me from limping but I'm going to ask him about it again on July 11th. Also, he said that if my ROM isnít normal by the 11th, heíll have to ďdo somethingĒ but he didnít go into detail and it kinda scared me. And heís always throwing me under the bus when he talks into his tape recorder. Apparently, I was only able to obtain 100 degrees with ďvigorousĒ bending. He said writing 100 in my chart was being gracious, WHATEVER.

So I see him on July 11th and he wants me at or close to 140 degrees. I don't know what this "something" is he whispered under his breath but all I can think about is him talking to me to keep me distracted then pushing on my knee really hard to bend it because he would totally do that. The whole time he was stretching me, I could feel it in my quads and a little near my MPFL but the pain is now in my quads. They are so tight and sore to the touch. Also, I'm going to have my therapist stretch me on my back. My OS got more ROM out of me with a lot less pain. I'm starting to think it has to do with who is stretching me. I totally trust my OS and know he would never hurt me so I can relax more but I'm so much more tense around my PTs when they stretch me because I know it's going to hurt. I tense up my quads before it even starts to hurt. My OS was doing it so gently yet somehow getting more flexion. I wish I could go to my OS to get stretched.


Random sidenote: My OS makes fun of me for liking "obscure" bands so I made him a mixed CD with a few of my favorite bands on there and he started playing it right away so everyone could hear and he even said he liked the first song. It made me very happy :)


Also, I emailed a soccer coach about playing for his team in September in hopes I'll be able to play if my quads and ROM are normal and I don't have pain. I'm just going to get a brace for my right knee if my OS allows me to because I really haven't told him to what extent it hurts me yet.


And here's the "evidence" that I got through full range:

(http://i53.tinypic.com/juy6ww.jpg)
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Lottiefox on July 01, 2011, 06:03:17 PM
Hi Kate

Sorry to hear about the tummy virus, hope you're all well now. Kind of mixed news I guess on the OS visit; good that he can stretch some more ROM but frustrating that he isn't happy with where you're at. Do you have a lot more swelling since the MUA and LOA? I don't much about regaining ROM but it seems to be a balance between gain with some discomfort but not pushing things so hard the knee just gets hot, angry and builds more scar tissue rapidly. Does your OS talk to your PTs about the plan he wants them to follow? I wonder what the something else is that he referred to?!! Scary! Hope you get some more progress over the next few days now the tummy is settled. I can imagine this is starting to feel pretty "old" now, as I know you're not far off my foot date and I am kind of sick of wiggling my top toe joint 100s of times a day, massaging a scar to desensitise it and having toes that go cold all the time - although things are massively improved and I even managed flip flops today! Woohooo!

Take care Kate, keep smiling and think of that car licence when you can bend more.  :P ;D

Lottie x
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on July 02, 2011, 02:55:30 AM
Wohoo 105! Your OS must have some sort of magic. I figured eventually either your pt or OS would bring up the fact that you had full ROM in the OR and rag on you about it. It is possible so you can get there Kate!

Have they ever massaged your quad at pt to break up lumps, and bumps, and adhesions? My pt have has done massages on my quads, IT band, hamstrings, and calves. It hurts like no other, but that's the thing, it's not suppose to hurt if your muscles were all tight and stuff. He tells me I have muscles fibrosis.  I would ask your pt about it. If they can't do it, maybe they could teach you. I would but I don't want to tell you wrong. To me, it seems like all he does is take a lotion type product, put it on his fingers, rub it over the muscle, then push firmly with his thumbs, and go in a vertical direction. You can feel them go over the knots in the muscle.

My OS is very laid back with ROM, probably because he is more concerned on me getting my extension. I don't have full ROM, and he doesn't rag on me when I'm there. I'm improving with ROM and he's happy with that :)

Kate, don't be disappointed if you can't play in Sept. That's only a few months away and you probably still have a lot of work to do. I am 5.5 months post-op. That's about where you would be if you started playing, and I am in no way ready to play soccer. I do want to join a club sport in college though when I am able, either soccer or basketball.

I think the easiest position for ROM for me is sitting on the edge of table, hardest is on my stomach. I only get 75 on my stomach.

Ask your pt if they have ever heard of PNF stretching. My OS recommended it to my pt for my ROM.

Quad sets. Quad sets. Quad sets. Eat, breathe, and sleep them :) Have you had muscle stim done since your surgery?
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on July 03, 2011, 04:20:28 AM
No update! Just replying. My life is boring outside of PT and seeing my Ortho as of right now. But I am allowed to swim again as of today ;D


Lottie,

I feel MUCH better now. I felt better by Thursday night. I'm the worst person to be around when I'm sick. My knee hasn't really swelled with the MUA/LOA. I think it's slightly more swollen than it was right before the surgery but it isn't so much to where it would dramatically affect my ROM. My OS talks to my PTs whenever they call him. My main PT called him the day after my surgery and he gave her all the guidelines to what my rehab is to be like now. I imagine he said "torture her and make it not fun." I honestly have NO idea what the "something" is he whispered is but I'm pretty terrified to go back and not have full ROM. Woohoo, on the flip-flops! I actually just started wearing them this summer. I don't know what I did without them. But yeah, doing repetitive exercises gets extremely boring.


Runner,

It's funny you say that my OS has some sort of magic but because my friend and I concluded that he's a wizard! Haha. Every PT has been on me since Monday that I don't have full ROM but I was under anesthesia and couldn't feel the pain. The PT I was working with last week was really bothering me because she kept saying that if I didn't gain full ROM, it would all be my fault. When it wouldn't because I do my stretches when I'm supposed to. I have pain so there is obviously something wrong. I've never seen anyone at my PT place get massaged, I'll definitely ask about it because I'll do anything to gain my ROM back. My OS is concerned about my graft healing tightly so that's why he's pushing ROM so much. I know I probably won't be able to play in September :( I hope I can play in the winter though. Do you get 75 actively or passively? On my stomach actively, I can only get 70. I was supposed to have stim but since I had all that skin stuff going on, they didn't want to do it just in case it made it worse and then I never got it. When I'm allowed to do things other than stretch, I'm going to ask for stim.

Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on July 03, 2011, 06:41:42 AM
(http://i54.tinypic.com/9is9le.jpg)
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on July 04, 2011, 03:27:09 AM
Post-op day 79 from MPFLr; Post-op day 12 from LOA & MUA

These last two days, I've been doing A LOT of standing and walking around. My dad is finishing up my room so we're putting everything together so I'm helping with that. My knee is super sore. Then we've been running around to like three different stores every day trying to pick up things that we forgot. I've been doing plenty of bending but my quads and knee are still tight. My ankle still hurts :( I keep turning my knee at night and when I wake up, I'm in so much pain. I really do move too much. Umm, I can't extend my leg all the way when I walk like my leg is locked in a slightly bent position. I'm gonna say it's about 30 degrees. I try to focus on walking normally but it just doesn't happen. My quads won't work normally so I'm going to have as my PTs to help me walk again.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Lottiefox on July 04, 2011, 09:25:05 AM
Hi Kate

Can you get the leg full extended when you're not walking? Remember you're only 12 days post MUA and LOA so take some rests too amongst all the running around! I am guessing the ankle is so sore because of the walking on the bent knee - I know when I was walking on the outer part of my foot at first after the op my ankle and Achilles area were super sore and painful. Can you wiggle it around and perhaps massage the tendon area? It may be cramping up when you're walking? Your leg doesn't look that much more swollen than before your MUA in that shot so hopefully you can start working up on that ROM this week - am crossing fingers that the pain isn't too bad and you carry on with the gains you made last week! How are you having your room done? We'll need pics of that too when it is done!

Take care and keep us posted

Lottie x
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on July 06, 2011, 03:03:13 PM
How is physical therapy going? Are you going 4-5 times a week still? Hope you are enjoying your summer!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on July 07, 2011, 03:10:09 AM
Post-op day 82 from MPFLr; Post-op day 15 from LOA & MUA

PT the last two days hasn't been the torture it used to be! Mostly because my therapists are taking a different approach to stretching me. I'm no longer getting stretched for like 20 minutes manually, instead I'm just doing a bunch of different exercises that help gain ROM and pushing myself almost to tears then they're just seeing how far they can push my knee before I want to crawl off the table. I'll take that over what happened all ,last week. Both yesterday and today, I warmed up on the bike, did wall slides, and used that dog strap thing to stretch. Just yesterday I used the leg extension machine to stretch my leg. My PT put a 20 lbs weight on it to pull my knee back and stretch it. I definitely felt the stretch. And today, I did combination quads & hamstring sets and practiced walking which was harder than I thought. My quads tense up when I try to bend my knee then they just completely shut down when I straighten it. It just feels so abnormal to walk like that. This is my last week (as of right now) going everyday. I see my OS on Monday and I guess he'll tell me what to do then when he finds out my ROM. My AROM is finally 90 degrees and my PROM is staying around 100-105 degrees. My leg is all swollen again, not just my knee and ankle, my calf is too. I don't know why :( My knee has been really painful as well around the MPFL. I can barely walk after stretching it. I have to wait a few minutes for it to calm down before attempting to take steps.

And I finally went swimming today. It felt SO good.


Lottie,

Yes, I can get full extension when I'm not walking and if I concentrate while standing still. My PT says it's because my quads are so weak. My ankle pain seems to be settling down until I'm at PT and I stretch with the strap because it goes around my ankle and pulls on it. I almost cried because of it today :( I'm tried of crying at PT! Ah, my room. I'm so excited for it. It should be done this weekend so I'll post pictures Monday night. My walls are like Shrek green, they were supposed to be lighter but I'll get used to it. Everything else is black and white and I have icicle lights around the border of my ceiling.



I hope everyone is having a good week :)
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on July 07, 2011, 04:18:30 PM
Have you had stim or massage yet? How does the leg extension machine stretch your leg?

Hope your quads get stronger! Poor quads have probably shut down from all they have had to go through this past years!

Icicle lights sound awesome, can't wait to see it.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on July 08, 2011, 03:03:31 AM
Post-op day 83 from MPFLr; Post-op day 16 from LOA & MUA

Did the same old, same old at PT today. While I'm doing my wall squats I keep getting a clicking that I can both feel and hear. I don't know if I mentioned it, but I can squat to 90 degrees now! My PT stretched me while I was sitting up today and I'm steady maintaining the 100-105 degrees. My OS is not going to be happy when I see him because he's the one who got me to 105 degrees. My PT said that if my OS walks into the room with his iPod, then I should be prepared for some serious pain. I have a feeling he will stretch me again. I know he won't let me leave without getting passed 105 degrees.


Runner,

No stim or massage yet :( My PTs are waiting for my OS to tell them I'm allowed to work on my quads again. He must have told them on the phone, when he talked to my main PT the day after surgery, that I'm only allowed to do ROM stuff. I'll see if I can explain how the leg extension machine stretches me. You know how you stick you leg behind the padded bar? My PT adjusted the angle on it and added a heavy weight so I wouldn't be able to push back, it was pushing towards me. So I was basically doing a backwards leg extension. I don't know if this makes sense. I didn't even know that I was able to get stretched on it! I swear, they make things up as they go along.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on July 09, 2011, 04:49:50 AM
Post-op day 84 from MPFLr; Post-op day 17 from LOA & MUA


I have some fabulous news :)


I can pedal backwards on the bike now!! Walk up the steps like a normal person!! (but not really because it's kinda modified) I got 112 degrees PROM!! And I'm out of the brace!! (against my will)

Now I can cover up my lack of ROM with good news when I see my OS on Monday. And my room is done except my cable doesn't work so I can't sleep in there. Comcast will be out on Sunday to fix it.

So overall, today has been wonderful.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on July 09, 2011, 05:25:29 AM
AWESOME! I think you have had your breakthrough! You're OS is going to be so proud of you... I bet you worked extra-hard to impress him : )

Good luck on Monday.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: cgkrueger on July 09, 2011, 09:44:22 PM
Yay, great news! That sounds like awesome progress - good for you! I am sure your OS will be very impressed.  ;D
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Lottiefox on July 10, 2011, 07:44:49 PM
Hi Kate

Been away for a long weekend and just catching up - yay on your news! Awesome. Well done you, that is the result of hard work. I am sure your OS will be pleased, and that progress will continue. And a new room to boot - the icicle lights sound cool. We will need pics of the knee and the room.

Good luck tomorrow, I'm so pleased for you. My foot also got good news from the orthopaedic side as my doc was pleased and discharged me as the fusion is solid and ROM is good in the remaining joints. I still have pain management to escape from in a few weeks but things are going the right way. First weekend away with travel on ferries, cars, and a PARTY! And all still good.  8)

Lottie xx
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: TwoBadKneesUSA on July 11, 2011, 01:17:57 PM
Hey Kate,

Great news!  Keep at it, it will get better. 


Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on July 12, 2011, 01:43:32 AM
Hope your appt went well today.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on July 12, 2011, 04:02:49 AM
Post-op day 87 from MPFLr; Post-op day 20 from LOA & MUA

My appointment went well. My OS was happy that I made improvements over the last two weeks and didn't lose any ROM. He wasn't too happy to hear that I didn't gain ROM but that's whatever. He stretched me again for like ten minutes and got me to 105 degrees which was torture. He says I guard way too much which I know but I only do so because it hurts a lot near my MPFL. He said that's from removing scar tissue there. I, apparently, had a lot there. He used the word arthrofibrosis. I've read about it on here before but I don't know if that's a general term for scar tissue build up or something more. He really doesn't want me taking Vicodin anymore so I'm trying to just take Tramadol. He said he won't give me anymore Vicodin, haha. I am allowed to take anti-inflammatories now. Once I find something that works, I can call him and he'll call a prescription in for me. He doesn't want me wearing an ace bandage around my knee anymore. It helps with the pain a little but I mostly wear it because my knee changes color as soon as I stand up and I don't want to freak people out. I see him again in 7 weeks (the day before school starts, so sad :( ). I think I'm going to be in PT until then and hopefully I gain full ROM by then. He said to me that if I was ďof age and drank or given a little anesthesiaĒ my knee would bend all the way, haha.


I broke down a few times today out of frustration (again). Of all people, I should know how long recovery takes. But it's summer and I just want to go out with my friends and be able to walk normally and bend my knee and do things without pain. I just think about all the things I can't do and it makes me sad. I have to stop doing that. Ugh.


And I kinda want to sleep on the couch again. Last night was my first night in my new room and I haven't slept on a bed in three months, I was SO uncomfortable. The only way my knee doesn't hurt is if it's completely straight so that means I have to sleep on my back. On the couch, it's a little easier to get comfortable. Every hour, I ended up waking up with my leg on it side and my knee slightly bent which caused so much pain. My OS doesn't know why it's hurts like that. I just hope it doesn't last because that's the only way I sleep :(


Oh and as soon as my OS walked in, he saw that I still had my steri strips on. I've been gradually trying to pull them off but couldn't. He jumped at the chance to cause me discomfort. He pulled them off really fast. I was trying to do that but wasn't able to.


Almost three months/three weeks post-op:

(http://i53.tinypic.com/2lazp5g.jpg)


My room:

(http://i53.tinypic.com/28ls606.jpg)

(http://i56.tinypic.com/5tyotk.jpg)
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on July 13, 2011, 01:06:39 AM
Yea, guarding is really hard to get over especially when they tell you to relax, then you just tense up more. My physical therapist threw the word arthrofibrosis at me to a few times (I think it was more threatening to get my knee bending). If you look at the world, it just means joint fibrosis so I'm guessing it just means scar tissue.

I didn't know you were still on prescription pain meds. Hope, your pain is better.

People won't care about your leg changing color! Some people skin does that naturally. I have the worst sunburn/tan right now. I wore bermuda shorts outside and the sun only shined on my thighs so only my knees are bright red. On my bad leg, the sunburn is really strange. It's blotchy and shows up on the lateral side of my knee, medial calf, and medial ankle, where all my pain is...strange.

7 Weeks? That is a lot different than the every 2 weeks you have been seeing him. I go back to my OS in a few short weeks.

My first post-op appt (nearly 2 weeks) they came in and took my steristrips off right away, but they had to peel of the plastic stuff taht was on top. I think they are called Tag-a-derms, but it looks like saran wrap on my knee. I was glad to get new steri-strips though because mine were soaked with blood.

Your knee actually looks pretty good! Your OS must have done a nice stitch job, another way he is great. My MPFL incision is so thick and purple. My TTT is thinner, but not as smooth, it has bumps.

My knee I think has a little less or about the same amount of swelling still as yours. I would post a picture, but the lighting always make my scars look even worse and weird.

Love the room, and I love the way you took the shots!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: KinnaMarie on July 13, 2011, 03:30:27 AM
Hey Kate~

Your knee looks amazing (as does your room!)  I decided to paint and redo my room as well about a week ago. :) 

I always got yelled at for "guarding" constantly...Still do.  I always say to my PT or OS that if they had everything done to their knee like I did that they would guard it too!  The only way to kind of stop me from guarding so much is when i'm sitting at the edge of the table and my OS is sitting and holding my foot and constantly telling me to relax and to stop fighting him.  Or if my PA comes in he just pretty much looks at me like i'm crazy and tells me to stop! 

Enjoy your 7 week break from your OS!  I was very excited because last week my OS was on vacation so I got a whole week break!  The week flew by...

Recovery sucks...especially with complications.  Trust me...i have cried numerous nights out of frustration.  Like you it is my summer and I have done nothing but see my OS weekly and, when I was allowed to go, went to PT.  I even wasn't allowed to go to a big music fest that is huge in the state I live in.  My OS refused to let me go.  I was not happy and it made me even more frustrated...he said I could blame him. haha :)  All my OS keeps telling me is i'm a tough girl...which makes me feel a little better and gives me hope that if I just suck it up and do what he tells me I will soon get through this.  My motto lately is just don't give up and smile! :) 

Best of luck in PT!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: TOMMAX on July 13, 2011, 03:42:51 AM
Hey Kate, your knee is looking great. It looks to me that the swelling is completly gone and the incesions have healed really well. Hope you continue to gain more rom and make progress with your physiotherapy and strengthing of the quads. Are you still walking with a limp? How are stairs, are you able to ascend and descend comfortably yet? How much long do you think til youll be able to play sports?

Nice job on your room btw, its looking sharp!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on July 13, 2011, 04:57:28 AM
Post-op day 87 from MPFLr; Post-op day 20 from LOA & MUA

I'm three weeks post-op from my LOA and MUA, It feels like it's been way longer than that though!

So I had PT today and I finally got to working on my quads again. It feel so good. I warmed up on the bike by pedaling backwards, walked on the treadmill, did wall squats, step-ups, and calf raises then I got stretched. My therapist kept yelling at me for guarding but then said she would probably do the same thing if she were in my position. She wasn't able to get me to 100 degrees. We made a deal to only stretch me sitting up from now on because I can tolerate that better. I go again on Thursday.


Runner,

I was off Vicodin for a month before the MUA. But I was still on prescription meds because I couldn't take anti-inflammatories. It was just Tramadol though. Then I went back on Vicodin, almost constantly, two weekends ago because my knee pain got really bad. My knee looks really bad though! It's terrible :(  He actually wanted to see me in two months but a week doesn't really make a difference and I wanted to go before I went back to school. As soon as he said two months, I was like "two months? are you sure?" And he said that he only needed to see me this often to monitor me for infection and complications. Plus, he's only three minutes from my house if anything comes up or I could just call him because he always gets on the phone. Ah, yes. My OS did a pretty good job stitching my knee. The biggest incision is a little wavy because it opened back up but it doesn't really matter to me. One of my new scope holes from the LOA got split open at PT from getting stretched so much. I noticed yesterday when my OS took the steri-strips off. I knew I felt it split during PT. I'm sure your knee doesn't look that bad! And thank you :) I took the pictures with my fish eye lens.


KinnaMarie,

I hope your renovations go well! That's exactly what I say to my OS and PT! And my OS says and does the same thing, haha. He'll hold my leg, massage my quad, then tell me to breathe so I relax more. It does help. I know my OS gets more ROM out of me because I trust him more. I was actually sad when my OS told me to come back in two months because I have so much fun while I'm there. He cracks me up with his comments about me before he walks into the exam room. I feel even worse about recovery because I feel like I'm disappointing both my OS and PTs. Good luck to you too!


TOMMAX,

I wish my swelling was gone, but I still can't see my kneecap. I have a terrible limp because my quads are so weak. I've been able to walk with my knee bending more but it's impossible for me to straighten my knee while walking because I lose all control. I can kind of walk up steps. It's definitely not close to being normal. I can't walk down them yet though. And I think it'll be at least another three months until I can play again. I barely have quads now and my OS wants my quads to match in order for me to be cleared to play and my right quad is really built up from playing soccer for eight years.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: TwoBadKneesUSA on July 14, 2011, 05:17:06 PM
Kate,

Sounds like you have forward progress though.  Arthofibrosis is just scar tissue.  Everyone gets some amount.  It's when it goes hog wild that is becomes a nightmare issue.  The quads will come back, it will just take some time.  Remember to keep working on the ROM.  One thing I did was take a ball (like a soccer ball or play ball) and roll it around on the floor with the op foot while sitting in a chair.  Try some of different sizes.  If you try it less like PT and more like something to do when bored I think you relax more.  It did help.  Don't worry about the break downs, we all have them, especially when things are taking so long to get back to normal. 

Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Lottiefox on July 14, 2011, 07:11:42 PM
Hi Kate

Your room looks fabulous - love the fish eye lens view too. Enjoy it - although I hope you start to get used to sleeping in a bed again soon!

It does sound like you're making progress and I am sure you'll keep working hard. As Milly said, AF is scar tissue and it is only when it goes bonkers that it is an issue. The PT you're doing to help your ROM should stop it building back up. I think finding things that don't feel like "PT" are really good for just pushing the process along. I had to work my top toe joint and I found that I'd sit and watch a film, put my foot down on the floor and make it do 50 top joint "bends" every time I reached for my beer! I must have done shed loads! Don't worry about your leg going a strange colour and people seeing it. My foot is still weird although not as bad as it was. I am really nervous about things like the showers at the gym as I know it looks different to the other one, but hey so be it. I find people don't actually notice it just in shoes or general life. Wear it like a badge of honour!  8)

Keep us posted, and enjoy that new room,

Lottie xx
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on July 15, 2011, 04:34:04 AM
Post-op day 90 from MPFLr; Post-op day 23 from LOA & MUA

I'm three months post-op today!! I've come a long way from where I was but I still have a long way to go.

Good news, I got to 117 PROM today ;D That was with two of my therapists holding my leg down, but I got it. My one therapist couldn't believe it so he read the goniometer three times. I'm still only getting about 95 degrees AROM, but it's increasing. I rode the bike for the full ten minutes today pedaling backwards. I also walked on the treadmill at 2.3 MPH with a -3 incline (would that be a decline?) to work my quads. And boy did it! My quads were so tight after that. I had my therapist raise the step up steps. I'm walking down the steps one after another now instead of one at a time. I'm going down kinda sideways but it's better than before. I doing pretty well at my long arc quads because my PT can't find a weight heavy enough for me to use. I ended up doing 60 of them today before feeling the burn. Ham string curls are pretty easy as well. It's the funniest thing though, I can't do a proper SLR. As soon as I lift my leg off the table, it bends slightly no matter how much I tense up my quads beforehand. I'm steadily making progress!!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: TwoBadKneesUSA on July 15, 2011, 03:58:23 PM
Kate,

Good news on the ROM!  It will get there actively eventually.  It sounds like your VMO is not playing nice with the other parts of the quad.  I had that too, it took quite a while for it to act right.  I would sit with my leg out straight and it would pop up a bit at the knee.  I could passively straighten it fine.  It just took extra work to get all the quads to play together.  Hope this gets better for you.

Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Lottiefox on July 16, 2011, 08:04:12 PM
Kate

Great news on the improvements. It will come along. As Milly says, sounds like the quads are in a pickle at the moment and not letting your leg and knee work in harmony. Keep up the hard work. Has sleeping got any easier for you? Any sign of that elusive kneecap?!

Have a good weekend,

Lottie xx
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on July 18, 2011, 01:34:25 AM
Post-op day 94 from MPFLr; Post-op day 27 from LOA & MUA

Not much to update! I don't have PT until Wednesday because I switched insurance as of Friday so everything had to be sent over to their review board. Hopefully everything comes back and they give me A LOT of PT. If not, when my units run out, my therapist said the company I'm with now is really good about giving out extra units.

Sleeping in my bed is almost impossible. I've been constantly exhausted since I've started sleeping in my room again. I can't seem to get comfortable. Last night, I started elevating again but that didn't help too much. It did stop me from moving as much so it helped with the pain, but not the nagging discomfort. I have sleeping pills left over from my last two surgeries so I'm going to see if taking one of them helps because I really need sleep. I'm really tempted to sleep on the couch again.

Still no kneecap. There's still a pocket of swelling over my knee. It's not that much, just enough to hide my kneecap though. It's definitely noticeable too.

I spoke to my OS on the phone on Friday because he loves when I call him, haha. He put me on 15mg of Mobic everyday. I told him that I got to 117 degrees and he said he was impressed! But then he laughed at me when I told him two of my therapists were holding me down. But progress is progress.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on July 18, 2011, 11:52:38 PM
A lot of pt would be awesome. I want more :(

What's the main difference between the couch and bed? I don't see anything wrong with sleeping on the couch as long as your patents don't mind.

It's going to take a while to see kneecap again...lol. It's been over 6 months since my surgery and I still have swelling. Under my kneecap, like the patella tendon area, it is all huge, but hard huge. It becomes more pronounced when bent.

What's Mobic? Pain medication?

Congrats on the 117...since you got there passive, it will come actively, too. Do you know how much ROM is required to ride a bike?

Long arc quads are very hard for me, but that's great he can't find a weight big enough for you, muscles mcgee.

Keep up the progress. Do you have any special plans for the summer?
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on July 19, 2011, 02:38:13 AM
Runner,

You didn't get approved for more PT? :(

I can sleep on my back better on the couch because I can sit up more. I have like six pillows on my bed and I still can't seem to get comfortable. Plus, I have too much room to move around even though I only have a twin bed. I end up causing myself more pain. The sleeping pill I took last night a 9pm didn't even make me sleepy. I had a pretty empty stomach too. I ended up staying awake until almost 4am and then woke up every hour until noon. I'm definitely sleeping on the couch tonight.

I feel like mine looks more swollen with my leg straight. Either way, everyone can tell it's swollen.

Mobic is an anti-inflammatory. I'm pretty sure it's like a prescription strength ibuprofen.

I do not know how much ROM is required to ride a bike. I do know that with the 95 I can get on my own is enough to ride the recumbent bike at PT backwards.

The only thing I can't do with the long arc quads is get my leg completely straight but I can't do that without a weight anyway. That's how weak my leg is.

No special plans. I'm just hanging out with my friends if they decide to come over my house. I'm having a pool party and I'm supposed to go down the shore for the first time in like eight years. Other than that, it's PT, doctor's appointments, and dreading going back to school.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on July 21, 2011, 01:57:00 AM
Post-op day 96 from MPFLr; Post-op day 29 from LOA & MUA

GREAT NEWS ;D† I got to 125 degrees passively today!! It was with barely any pain and I didn't have to have two of my therapists holding me down. I can get my operative knee to 120 degrees by pushing it with my "good" knee. I got to 100 degrees with the strap thing. I actually rode the recumbent bike normally today for the full ten minutes. I didn't even need to warm up my knee. I think I've broken up the remaining scar tissue with my awkward (and painful) sleeping positions. I did so many things today that I was at PT for 90 minutes. I used the stair master, forward and backward step-ups, did two types of squats, heel raises, SLRs (still can't completely straighten my leg), and the treadmill. I can't remember everything else.

My main therapist wants me to start jogging. When the therapist I worked with today told me this, I couldn't control my laughter. I can barely walk, let alone jog. I never object to the things they make me do there regardless of how much I hate the exercise, but I will not jog until I can walk properly.

I'm still not getting sleep. I've resorted to sleeping pills from Target. They must be stronger than the ones my OS prescribed because I actually got some sleep last night. I fell asleep for about three hours straight then woke up about every 1-2 hours in odd positions. I was very uncomfortable last night with my knee.

I'm taking Tylenol 8 hour along with Mobic. It's definitely helping with the nightly pain but my knee still hurts. I'm still having pain sitting around almost constantly and I can't find a comfortable position. This was what it was like before surgery but worse because I can't have my knee on its side.

I'm thinking about getting a script from my OS for the Breg PTO brace for my right (non-operative) knee. It's been bothering me more since starting PT and I notice how badly my kneecap tracks while riding the bike to the point where I hold it in place. I have the Bledsoe 20.50 for my right knee but I don't really like it and can't get full ROM while wearing it.

I think it was in my other thread that I mentioned my right hip popping every now and again, but now, about every ten minutes, I have to move in a bunch of different directions to crack it or I won't be able to sit properly due to the pain. Any ideas? At PT today, I stretched with the strap thing standing up so all of my weight was on my right leg but I couldn't even stand for the full ten minutes (I only lasted four minutes) because my hip hurt so much! My left is getting somewhat irritated too but nothing like the right.

I think that's it. If I think of anything else to update about, I'll add it in.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on July 21, 2011, 02:13:46 AM
That is great news!!! I call the ROM exercises where you use your other leg to do it "self torture." My physical therapist even started calling it that after I did.

I remember my pt appts being 90 minutes to 2 hours sometimes! Getting your money's worth I guess ; ) Where I went to pt, they don't have a stair master. They have the treadmill, weird bike/elliptical thing, then a stationary bike.

I did jog a few times while I was in pt. I did it for 10 seconds at a time at first, and I couldn't walk right either. My pt said the idea is to get you moving faster that way your knee doesn't have time to think or guard, but it hurt my patella tendon bad. After, I could barely walk because of severe ankle pain. I have't ran since. My doctor doesn't seem to want me running. He is still pushing biking and swimming and walking instead.

So sorry about the sleep. I sleep like a baby must be. Besides the first couple weeks post-op, I don't think I had an overly terrible time getting to sleep except for when I wake up in the night and my knee is hurting and I try to straighten it and it hurts more.

I have the Breg PTO brace. If you get it, get it in AirMesh...much more breathable!!! I hate riding the bike because of my right knee.

My right hip does it too especially when I get up from sitting and I can't really walk until I crack it which I do by leaning all my weight towards that side. I think it's from your altered gait.

Hope you are surviving the heat!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on July 21, 2011, 03:30:53 AM
Runner,


It definitely is self torture! I'll have to steal that term from you.

I didn't mind the 90 minutes before but now my sessions are measured in "units" from my insurance. Each unit is 15 minutes so I used six today. If I keep going like this, I'll only have seven left because they only gave me 48 units.

When I start picking up the pace, my limp gets a million times worse so there's no way I can jog. My body does the opposite. Plus, I already have bad ankle pain that I'm hoping will go away soon.

I had no problem sleeping after surgery or up until last week. I don't know what it is but my knee just hurts so much worse at night.

I'llk definitely get the AirMesh! I'm pretty sure my OS will give me a script for one without seeing me, but maybe not. I haven't really discussed my right knee with him. I mentioned it to him once.

The heat isn't bothering me at all :) I'm actually always cold because of the air conditioner. This is amazing tanning weather. I haven't been able to be in my pool as much as I'd like because of surgery but I'm finally going in more often.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on July 22, 2011, 03:24:48 AM
Post-op day 97 from MPFLr; Post-op day 30 from LOA & MUA

One month post-op MUA/LOA!!

I'm happy to report that I can walk up the stairs almost normally. I just have to give myself a little push because of how weak my quads are but no more sticking my foot all the way in the corner of the step. I'm still walking the down the steps sideways. I can squat passed 90 degrees but that's with popping that I can both hear and feel.

Sleep isn't getting any better. My knee pain is ridiculous at night. My knee hurts pretty bad in the morning about 7/10. I really hope this pain eventually goes away because I need this surgery to be successful. Tomorrow I have PT and I'm going to have my therapist tape my right (non-operative) knee before doing anything to help with the tracking. It hasn't worked that well in the past but it's better than nothing. The stronger my quads get on my right leg, the worse I feel the tracking get.

Wednesday, when I was at PT, my therapist measured around my knees to see how big they were. To her surprise (and mine) my left knee is actually smaller than my right despite all the swelling. That goes to show you how much muscle loss I have in my left knee or how much muscle I have in my right knee.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on July 23, 2011, 03:08:48 AM
Post-op day 98 from MPFLr; Post-op day 31 from LOA & MUA

There was plenty of pain involved at PT today, but no tears. I no longer cry there, just laugh through all the discomfort. My exercises today were:

† † Bike x10mins
† † Forward step-ups x30
† † Backward step-ups x30
† † Treadmill x10mins at 2.6 MPH
† † Heel raises x30
† † Hamstring curls x30 with 8lb weight
† † Long arc quads x50 with 6lb weight
† † Stairmaster x5mins
† † Stretching

I think that was it. My therapist wants to keep me under an hour so I can get as many PT sessions in as possible under my new insurance.

I JOGGED TODAY for like 30 seconds, but still I jogged and it hurt. Not only did it hurt my knee but my ankle and part of my tibia (because itís above my ankle) are killing me. My ankle is starting to bruise. Lol everyone started cheering, how embarrassing. Trust me when I say, I tried everything not to jog, even walking at like 3.5 MPH which was killing my knee. My therapist just kept increasing the speed until I had to run.

I got stretched to at least 125 degrees because my leg was hitting under the table so I can no longer get stretched sitting up which means I will no longer have 125 passively. I get way less PROM laying on my stomach and it causes more pain.

I asked my PT to tape my right (non-operative) knee today because it tracks horribly especially on the bike. I can feel my kneecap drag, itís disgusting. Anyway, sheís not allowed because Iím only there for my left knee. Of all people, she should know how bad my knees are and itís only tape!

I guess I really have to call my OS for the script for that brace on Monday now. I really don't want to though because I feel like I bother him too much. He always says "call me if you need anything" so I mean, I'm not calling him over stupid things. I just feel like I'm abusing his niceness. The people at the front desk even know my voice and I've only been going there since October.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on July 24, 2011, 02:14:53 AM
No update, just a complaint.

I'm really feeling the pain in my ankle today. I wrapped it as soon as I got home from PT yesterday and I wrapped it as soon as it started hurting today which was basically right away. I told my therapist this would happen and yet she forced me to run anyway. My knee is hurting more as well. Last night, I had muscle spasms. I had them a few times this past week.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Lottiefox on July 25, 2011, 06:20:47 PM
Hi Kate

Been reading about your progress but not had time to write a reply...great news on your increased ROM, and that you're coping with stairs more easily. Things are progressing! It sounds like the jogging was way too much too soon for you........if you've had scar tissue removed then you really need a gentle and progressive PT program that doesn't aggravate things too much and create more inflammation and more scar tissue. Jogging is a high impact thing, even done slowly and I can feel every step if I jog right through my kneecaps. (So I don't do it!). Weird about the ankle and bruising - how is the colour change on the knee doing? I just wonder if you've got some sort of nerve irritation/pain going on from your description of the pain being worse at night, not so bad with activity, and having some muscle spasms. I know that I had spasms in my leg and foot and the pain doc said they were probably due to nerve damage/misfiring rather than the RSD malfunction that was going on. Certainly my night time pain was dramatically reduced with a neuropathic pain killer rather than a tramadol type one. Before I started it I would say pain at night was 8/10 and pretty hideous, waking me up a lot. Now I sleep right through!  ;D   Clearly the increased impact work has also caused more pain, so I hope that some ice and rest is helping things settle. Might just be worth monitoring the spasms and pain pattern and asking your OS. Loads of nerves around the patella that could be a bit angry.

Take care, how is the new room bedding in? !

Lottie x
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on July 26, 2011, 03:34:12 AM
Lottie,

I'm really happy that my ROM finally decided to improve, I was tired of it being static. And stairs, I've kinda missed them except I tried to run down them...not a good idea. I think jogging was WAY too soon. My PT went back to my Ortho's MPFLr protocol but that doesn't take into account the fact that I'm like six weeks behind and had another surgery. The bruising didn't get as bad as I thought and has already gone away some. But it's weird, my ankle pain is worse at night but even worse when I sit in my computer chair with my foot on the floor. I have to have my foot on the wall and my ankle still hurts. My ankle really only hurts at night. Like during the day is achy but at night it's pain, if that makes sense. My leg still changes color every time I stand. I guess I should mention that it's been doing this since my third surgery. But it's never been this bad. My leg would only change color after standing for a long time (like two hours and if it was hot). Now my leg changes color almost as soon as I stand. And those muscle spasms are not fun at all. Last week, my leg was stuck on flexion. I'll definitely bring all this up with my OS. I'm sure he'll be happy to hear all this. He loves when I tell him about all my pains. I'm sleeping a little better after getting some actual sleep over the weekend! I'm not using ice when I sleep and while that makes my knee even more sore when I wake up, I'll take sleep over that. I've decided to ice while I'm on the computer before bed.



I have a little change of plans. I was originally supposed to see my OS on September 6th, seven weeks after my last visit but not anymore. I'm seeing him on August 16th now. I called his office asking him to write a script so I can get a knee brace for my right knee, but he wants to evaluate it first before giving me one. I knew this was going to happen, he can't go almost two months without seeing me!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on July 27, 2011, 01:46:44 AM
Post-op day 102 from MPFLr; Post-op day 35 from LOA & MUA

So physical therapy today was pretty great! I got a good work out. I was pretty sweaty by the end and I hate sweating there. I noticed when I got there that Iím barely limping anymore so YAY! Itís awesome not to limp anymore as Iíve been limping for the past three and a half years. Anyway, my exercises were:

    Bike x10 minutes
    Step-ups (8 inch step) x30 plus 8lb weight
    Step-ups backwards (8 inch step) x30 plus 8lb weight
    Stretching x5 minutes
    Ran up and down the steps x4
    Stairmaster x6 minutes on random
    Balanced on one foot and threw a ball at a trampoline x6 minutes
    Treadmill x11 minutes at 2.5 MPH with a -3 decline

My therapist decided not to torture me with ROM stretching today so she just measured me and Iím at 128 degrees on my back! Itís so close to my full ROM so itís pretty exciting!

My ankle only hurt while on the treadmill and while doing the balancing exercise. My right hip didnít really bother me all that much. It kinda only aches and hurts when I shift all my weight onto it. I donít know how to describe it. I have this weird stance because I donít like standing with any weight on my left leg.

And I actually was able to run up and down the steps there because their steps are shorter. It didnít even hurt too badly. I didnít feel the old pain on the inside of my kneecap instead I felt pain under my kneecap which might never go away because Iíve damaged it. But I could definitely tell my left leg was weaker while doing the steps.

Oh and apparently my therapist has some weird thing against toe socks. You know the socks that look like gloves. I told her I'm going to wear a pair on Thursday to freak her out and she said if I did that she could stretch me until I reached full flexion. How sweet of her!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on July 28, 2011, 10:58:20 PM
I fell behind on your updates...trying to catch up :)

My left knee, when last measured, was bigger at the measurement they do below the kneecap, at the kneecap, and slightly above it. Then, as soon as you go to my quad, it was smaller than my right, but gaining.

I have never had muscle spams...at least I don't' remember them. When my sister broke her leg, she had severe muscle spasms right after injury which pulled the broken bone up the side of the other piece if that makes sense. So, they were overlapping. The doctors had to put her in traction in the ER to straighten it. How are your spasms now?

I get really bad pain in the back of my heel/ankle when I wake up in the morning and get up from a chair and start walking. Other times, it's the bony ache on the medial side while walking. Is that where yours is?

Well, I hope your OS appt. goes well. You can't get away from him for too long ; )

That is exciting ROM news!!!!!

For my surgeon's TTT and MPFL reconstruction protocol, it ends at 16 weeks...well the outlines are for >16 weeks, but that is the last section and talks about what it takes to return to sport.

When do you go back to school? September?

Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on July 29, 2011, 01:35:35 AM
Post-op day 104 from MPFLr; Post-op day 37 from LOA & MUA


I had tons of fun at physical therapy today! I don't know what I'm going to do when I'm not there anymore.  My exercises today were:

    Bike x10 minutes
    Stool soccer x12 minutes
    Stairmaster x6 minutes on random at level 4 (I was dying)
    Treadmill x12 minutes at 2.8 MPH with a -3 decline
    Treadmill backward x5 minutes at 1.5 MPH
    Hamstring curls with yoga ball x30
    Stretching

My therapist was not lying when she said she would stretch me like crazy if I wore toe socks. Oh my god, it hurt so much but itís getting better or Iím getting used to the pain.

The stool soccer was SO MUCH FUN. It made me miss soccer that much more. We moved to the back of the clinic so we didnít kill anyone then I had to only use my left leg to get the ball and kick it. She ended up beating me because I wasnít paying attention. And I almost busted my butt three times because I was getting carried away and flipped the stool.

Walking on the treadmill backwards made me notice how tight my calves are! It was tiring. It also made the pain behind my kneecap become more pronounced. I was dying on the stairmaster. I hit the wrong level because I set it up myself. Iím usually on level one and it was on four. Holy crap, I couldnít feel my legs. I actually slowed it down to I donít know what but I was still tired and really sweaty. It said I went up 18 flights of steps in six minutes. Good news is, I didnít feel pain in my left (operative) knee while doing it.

My therapist didn't use the goniometer to measure my ROM today but she did say I was about five inches from my heel touching my butt. That's not too much, I guess.

I only have one day of PT next week because my main therapist is going on vacation and the one who is covering for her is only going to be there for two day and neither of those days works for me! So I'm working with another therapist who've I only worked with a few times but they all love me there.


Runner,

Haha sorry! I like to write a lot. My operative leg is the same way. My quad is sooo much smaller, it's ridiculous. Actually, my whole leg is smaller. I'm not getting as intense muscle spasms as I was but they're still there. My leg will randomly tense up to prepare for the pain. My ankle pain is on the lateral side like right behind the bump on your ankle and then it shoots up my tibia. It's not hurting me too much now, only when I stretch my foot out. My hip is what's bothering me more. Haha, I should've known there was something that would bring me to my OS sooner than my September appointment. I have to look at my protocol to see how far it goes. I have a copy of it somewhere. I think it's in my Ortho folder. Yeah, I have a folder containing all of my information. I'm sure you have some way to keep organized, right? Unfortunately, yes. I go back on September 6th for books and my roster then the 7th is my first last day as a high schooler.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on August 01, 2011, 12:25:14 AM
I went to donate blood on Friday because the Red Cross has been hounding me (seriously, they've called my house everyday since I donated in February) to do so, but I've been putting it off because of my surgeries. I finally made the appointment, got my fingers pricked twice, then I answered some questions. One of the questions was "Have you ever received a graft?" I answered it then the Red Cross lady came and asked more detailed questions about it and since it's from a cadaver I've been deferred from donating until April 15th 2012 :( I didn't know it was going to prevent me from donating. My OS is going to hear about this! I knew getting a cadaver graft would put me at a very low risk for contracting blood diseases but this upsets me. 
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on August 03, 2011, 01:43:09 AM
Post-op day 109 from MPFLr; Post-op day 42 from LOA & MUA

PT was killer today. I wanted to die by the end. I did so much, it was terrible. I didnít get any breaks either because I was the last patient there before lunch therefore I was being watched like a hawk. My exercises were:

    Bike x10 minutes
    Stairmaster x6 minutes on random
    Treadmill x5 minutes at 2.8 MPH increasing to 3.5 MPH
    Jogging for 30 seconds at 4 MPH
    Bosu ball squats x20
    Bosu ball step-ups x20
    Bosu ball step-ups backwards x20
    Ran up and down the steps x5
    Scootered back and fourth x6
    Walking lunges x10
    Hamstring curls x25 with 15lb weight
    Leg extensions x20 with 10lb weight
    Total gym x30 on level 8

The Bosu ball squats, lunges, and total gym were the most difficult things to do. Itís weird that my right (non-operative) leg gets more tired than my left even with exercises I canít over compensate on.

I got re-evaluated at PT today and my therapist was very impressed with my progress. He said we can start basing my therapy around returning to soccer as long as my OS approves. I never thought I'd improve this quickly when I think back to a month ago.

I don't know if I'm allowed to do it or not, but last Saturday, I had a pool party and jumped on my trampoline with a bunch of my friends. It probably wasn't the safest thing to do but my left knee didn't hurt during or after! I was amazed. I haven't experienced that in forever. My right knee did hurt though :(

I still have the pain under my kneecap with lunges, steps, and squats but I don't think that will ever go away.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: TwoBadKneesUSA on August 03, 2011, 04:08:05 PM
Sounds like a ton of work, but the leg is getting better.  That is a good thing.  The right sounds as if it may need some work down the road.  I would hold off as long as I could (if it were me).

Take care,

Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on August 04, 2011, 02:07:23 PM
Wow, that's great Kate! Sounds like the second surgery is what you needed to turn your recovery around! Is your pt place two stories for the stairs?

Let's hope your OS gives the o.k. to start more sport specific stuff!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on August 06, 2011, 01:50:09 AM
My left knee definitely feels better than it did before surgery. I guess my OS was right about my knee needing to settle down from the second surgery. I don't have that much pain through out the day. It hurts really bad when using the steps now that I'm using them normally. And my right knee is just horrible. I feel like when my left knee got worse after my third surgery, I just pushed how badly my right hurt out of my mind but now that my left is *hopefully* fixed, I'm realizing how bad it is again. My hip sucks too. I don't think I'm seventeen, at least my body isn't.

And Runner, my PT clinic is in a hospital so I just run up and down the steps that the staff uses. The hospital is like eight stories but I just use one set of steps.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on August 08, 2011, 01:44:13 AM
Post-op day 114 from MPFLr; Post-op day 47 from LOA & MUA

I hate think the worst, but around seven tonight my kneecap subluxed :( I was sitting and twisted my leg then bam that same old feeling I used to get. I'm hoping it was just due to muscle weakness because my knee has been feeling pretty great these last two weeks. I'll see what my PT says tomorrow.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: TwoBadKneesUSA on August 08, 2011, 05:15:55 PM
This was not the left was it?  Darn it!  Ask the PTs what they think.  Hopefully it was just a muscle imbalance thing they can work on. 

Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on August 09, 2011, 01:31:58 AM
Post-op day 115 from MPFLr; Post-op day 48 from LOA & MUA

I had a super easy day at PT today because my knee was sore from it subluxing last night. My exercises were:

    Bike x10minutes
    Treadmill backwards x7 minutes at 1.8 MPH
    Bosu ball step-ups x30
    Bosu ball step-ups backwards x30
    Bosu ball squats x20
    Stairmaster x6 minutes on random at level 1

My physical therapist thinks my hypermobility contributed to my kneecap subluxing last night because I'm extremely hypermobile pretty much every where but ultimately agreed that it probably and hopefully was muscle weakness because if it wasn't then this surgery didn't work. She didn't want me to do much because of the pain I had doing all the exercises when I normally have no pain so she decided to let me go home early after doing the easy exercises.

I'm definitely going to see what my OS says next Tuesday when I see him, even if I am going for my right knee. I don't know if he's going to exam my left but I'm sure he'll want to hear about this.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Laur03 on August 11, 2011, 11:41:43 PM
I'm so glad to hear that your leg is doing so much better!! The sublux again though must have been scary for you. I remember last time after the surgery on my left knee I got that sensation, and my OS at the time dismissed it as the muscle relaxing more than usual. Maybe that's it or the muscle just isn't back yet. I hope that it wasn't that the surgery failed. Good luck with the right knee, and keep up the good work on the left!!!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on August 12, 2011, 02:14:46 AM
Post-op day 117 from MPFLr; Post-op day 50 from LOA & MUA

Physical therapy wasnít even that difficult today. I think my therapist was just sad about leaving and I canít blame her. Sheís worked there for a long time and now her hours are being cut back. Iím so sad that I canít work with her anymore. Sheís the only one who pushes me even when I complain about hurting and she forces me to do things I donít want to do. Best physical therapist ever!

My exercises today were:

    Bike x10 minutes
    Bosu squats x20
    Stairmaster x7 minutes
    Treadmill x10 minutes at 2.5 MPH with -3 decline
    Lunges x20
    Wall slides x20 with 14lb weights holding for 10 seconds
    Leg extensions x40 with 15lb weight
    Hamstring curls x40 with 20lb weight

Iím going to PT again tomorrow since I wonít be able to see my therapist after this week. I thought Iíd let her torture me one last time... and she practically forced me to take the appointment. I'm bringing her cookies and a card :)



Thanks Lauren! I'm definitely happy that my left knee doesn't have its old pain. I do still have pain under my kneecap with a lot of things :( The sublux was horrible because it caught me completely off guard. It wasn't even that painful, it just wasn't expected. I haven't felt like my left knee has been unstable since so I think it may have been due to muscle weakness. I swear though, my right knee feels more unstable every week. It feels like it's going to sublux when I pivot just like the left used to.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on August 12, 2011, 06:26:58 PM
I am sure the episode was just a random event! Hopefully....if it keeps happening, then I would worry some more that the surgery was unsuccessful.

Why is she leaving? That's sad :( I have been with my physical therapist from the start so switching to a trainer at my college makes me upset...I don't want to have to establish my whole knee story with someone else again. Between switching doctors and surgeons, my pt is the only thing that has remained constant.

Great job on the leg extensions! I don't think I'll ever be able to do them again with my knee.

I'm ignoring my right until I figure out my left...I have been saying that the past 2 years lol. Poor right knee.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on August 13, 2011, 02:12:54 AM
Runner,

I'm sure the subluxation was random also! My knee has been feeling great besides the pain under my kneecap. I even ran today outside of PT! I chased my brother outside of the store. I'm sure with both looked like idiots because I still have perfected my stride due to weakness but I RAN. It only hurt under my kneecap once again. However, my right knee and hip didn't like it at all. Uhh this is all soooo frustrating. It's one thing after another :(

My PT is having her hours cut back :( I think she said she's working inpatient but I could be wrong. She said to me today that she hopes they give her the hours back soon or she's going somewhere else. I wanted to cry when she gave me a hug. To make it worse for her, today is her birthday. Physical therapists are a crucial part of rehabbing so it's hard to leave them. I'm working with someone who's worked with me from almost the beginning but it won't be the same.

Why can't you do the leg extensions? Too painful?

I really haven't been able to ignore my right per se. My mom told my old OS the day of my third surgery when my knee only started constantly hurting me a few weeks before that so he knew then I kinda hinted to my current OS that it bothered me so he wouldn't be surprised when I brought it up again. I just couldn't take riding the bike any more. It's the worst! I have to sit there and hold my kneecap in place as I ride.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on August 14, 2011, 01:46:19 AM
When you say pain under your kneecap...do you mean below it (distally) or behind the kneecap (posteriorly)?

Is your pt close to retirement age? My pt owns the clinic I go to so he'll be there with just as many hours as the clinic is open...although he can take week long vacations when he wants because he's the boss. My pt place just does outpatient...since it's located in a strip mall type thing lol. I guess the strip mall location is handy becasue you can park right in front of the pt place. I can buy magazines, get pizza, and a hearing aid all in the same parking lot lol.

Aww...hoped she enjoyed her gifts.

Leg extensions are very painful....they also make my kneecap feel icky. Hamstring curls are much better.

I just don't even want to think about doing anything with my right until my left is nearly 100% recovered. Although if I return to sports, I'll be very nervous I'll injure my right and have to start all over again.

I hardly ever ride the bike. I prefer swimming and doing stuff in the pool.

Sorry I have asked this in the past and forgot, but do you go back to school in Sept?
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on August 14, 2011, 07:00:49 AM
Runner,

I mean posteriorly. My OS said I have damage there, but I don't know how much.

Nope, my PT isn't anywhere close to retirement age. She's in her early 40's at the latest. I don't understand why they would cut her hours back and not the new girl's. Such is life.

She said she'd enjoy the cookies as long as I told her they were low fat and low cal, so I did. Haha.

I really don't have that much pain with leg extensions, like I said, just underneath my kneecap. But I guarantee you, if I were to do them with my right leg, they would hurt like heck and I'd get the icky sensation. That's the worst!

Wanting to return to sports is the only reason I want to get my right checked out. I want to see if I can get anything to for it so I can play soccer for my HS at least once.

I have to warm up on the bike every time I'm at PT...I don't think I'll ever like it.

Yeah :( I go back on September 6th for my books, roster, and locker then, on the 7th, it's my first full day.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on August 16, 2011, 06:54:30 PM
I have pain posteriorly too...I don't think you ever get away from that. I knew I had cartilage damage, but to hear I had partial thickness cartilage loss was like dang it.

My pt is in his 40s, too. I am sorry they cut her hours.

Did you ever get the PTO brace?

Have you told your pts how you absolutely hate the bike and how it makes your knees feel?

How often do you go to physical therapy now? Are you starting sport specific drills?
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on August 17, 2011, 02:08:13 AM
Post-op day 122 from MPFLr; Post-op day 55 from LOA & MUA

I missed updating at four months post-op, oh well. I saw my OS today about my OTHER knee. But while I was there he did look at my operative knee and was very pleased with my progress over the last month. He was excited to see that I can walk properly. Then when I bent my knee he said "WOW, THAT WAS AMAZING!" I didn't even realize I was bending my knee. He also said that he can "sleep better at night" knowing I'm progressing now. But when he went to examine/talk about my right knee he was like "...Iím not ready to go through all of this again." Overall, he just wants to see if it's overcompensation. Even though I don't think it will be because I've been through this before and I've already started experiencing subluxations. He's sending me to PT for my right so YAY. I'm actually excited that I get to be there longer. I can get my knee taped now and see if that works. Umm, ideally, I'd be weaning off Mobic now but he doesn't want me to since I'm doing so well in PT. I'll probably stop taking it in October. He thinks my operative kneecap slipped out of place last week because my VMO is weak. Glad we all agree on that one. Haha. He thinks itís funny to slip sarcastic remarks into conversation like ďMy goal is to get you back into your sportÖit just might take ten years.Ē In 2-3 months, I have to get a functional capacity evaluation to see if I can return to soccer if my knees and hip are okay. And, as of right now, he thinks the same thing is wrong with my hip as with my knee which is sorta frustrating. But weíll see. He basically said, Iíll be having pain the rest of my life because of how loose my ligaments are so thank you genetics for causing all of these problems.

I see him again on October 11th for re-evaluation of everything! I'm steadily falling apart.



Runner,

I guess I told my PTs like once or twice how much I despise the bike but it was so crucial to my initial rehab that I had to ride it so I'm just used to it. I'll see if the taping works, if not, I'll just refuse to ride it anymore.

My OS wants me to try PT and taping first before getting a brace so no Breg PTO yet.

I go to PT 2-3 times a week (mostly twice). And I have no idea if I'm starting sports specific drills. My OS signed off on the re-eval paper my PT sent to my visit with me and I think it said something about that on there (I couldn't really understand the handwriting). I'll find out tomorrow.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on August 17, 2011, 02:11:55 AM
(http://i53.tinypic.com/mrzna1.jpg)

(http://i52.tinypic.com/2gy4tmw.jpg)

(http://i56.tinypic.com/20fw6lv.jpg)
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on August 18, 2011, 01:43:39 AM
I know PT isn't always going to be fun and everything. I've been going there every year since seventh grade. But I'm starting to get really frustrated with my therapists not listening to me when I say I'm in pain. I don't know if it's because every other time I've been there for my other surgeries and pre-surgery, I've always been in pain, but I'm not in pain when I get there and for most of my exercises I'm not in pain or it's tolerable. However, I'm still being forced to run and my therapist upped it to three minutes today which doesn't sound like a lot but after the first minute, I started getting really bad pain in my left knee (my other knee and hip hurt too but I didn't say anything) so I started lifting myself off the treadmill by the sidebars and I got in trouble for it. My therapist was standing next to me the whole time and I was telling her the how badly my knee hurt but nope, I wasn't allowed to stop. Not fun.

Other than that, PT was okay. I miss my old therapist. I don't get to talk as much without her there. I have two more weeks left of PT on my operative knee but then I'm going for my other knee. I'm supposed to get my right knee evaluated on August 30th but I think they said since I'm already in PT, I can just get evaluated when I'm there for my other knee. 
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on August 18, 2011, 02:50:16 AM
Knee's looking good! Let's hope pt will work on your right...who knows, maybe it will be different than your left! Do you have a hitch-hikers thumb? Any weird things you can do because of the lax ligaments? lol...or is that only the really flexible people on tv?

Are you going to be able to make it until October? I bet you can't imagine what it would be like when you don't have to see your OS anymore.

I would at least ask your pt for less time running. Like run a minute, walk a minute. I bet if you called your OS, he would change the therapist's mind with one call.

My OS and pt are always calling each other. It's great that they keep contact even though they are far away from each other. I don't even know if they have ever met in person.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on August 18, 2011, 03:13:34 AM
Thanks Runner!

I hate to be pessimistic but I'm experiencing all the same symptoms that my left knee was. My OS says that my right knee isn't tight laterally so that's good! Hitch-hikers thumbs are the only things I don't have. I've looked up hypermobility tests online and get high scores on them when you aren't supposed to. Haha. I can do everything my OS asks me to do when he wants to test how hypermobile I am.

http://www.cks.nhs.uk/Media/50_-10071_100.png

My favorite is the one bending over and touching my palms to the floor and touching my thumb to my forearm. I can't hyperextend my left knee anymore and my right elbow doesn't even straighten all the way for some reason? I didn't know until I went to an OS last year and got tested for hypermobility and got asked if I've ever broken my arm (I haven't).

I actually don't know if I'll be able to make it to October! Haha. I've made it two months before with my old OS but I wasn't dealing with three joints at once. Hopefully...maybe. It's going to be a really sad day for me when I'm released from my OS for good. I'll definitely keep in touch with him because he's so great and I'll need advice for med school.

I'm definitely not running for that long on Friday. I just can't. I don't know if my OS would tell my PTs to stop the running. Haha. I told him about them forcing me to run and he laughed. I just don't want to seem like a baby about the whole thing. I'll see what happens on Friday and go from there. I really want my knee taped but I still can't get it treated. Ugh.

My PT and OS don't talk to each other constantly but if my PT calls his office, he'll get on the phone right away and then I get in trouble, lol. It's awesome that your PT and OS are in contact though!


My PT told me today that the FCE that I have to get in 2-3 months is like a four hour test and they don't give it there. So I have to take it with a stranger. Boo.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on August 19, 2011, 01:27:57 AM
So, what do you think you would need done on your right? MPFL?

Aw man, I have the hitch-hikers thumb and I can bend my fingers at the first knuckle without bending the second one, and I can pop the knuckles closest to the hand backwards....hard to explain.

Do you sprain or dislocate any other joints easily? There is a girl I went to pt with (who ended up having a MPFL reconstruction) whose knees were so lax, their natural position while standing was very hyperextended. My pt told her it wasn't good to stand like that lol.

If my hamstrings were more flexible, I think I could maybe reach the floor with palms lol.

Good luck with pt tomorrow.

I have never heard of the FCE. My old OS told me to return to sports I would need no swelling, no tenderness, no atrophy, be able to jump up and down on that leg alone 10 times, be able to do a single leg-squat, and some other basic sport skill tests.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on August 19, 2011, 02:27:42 AM
More than likely, just an MPFLr because my TG-TT offset on my right is 15mm so it's within normal limits.

I've always been jealous of people who can bend their fingers at the first knuckle or anyone who can do different things with their joints. My joints are lax and I just fall apart. Haha.

No, I've surprisingly never sprained or dislocated anything else. But my shoulders and ankles are really loose too. When I was in PT, after my third knee surgery, my therapist used to say things about my ankles and I tend to roll them a lot. My natural standing position with my right leg is hyperextended and it hurts now but I can't stop. I used to get in trouble for it at PT. They made me stand in front of a mirror so I could see how I was standing, lol. Now I know why I couldn't get "feel" the stretches I did for soccer while everyone else was complaining. Being hypermobile isn't fun.

Thanks for the luck, I'm going to need it. I have PT at 8:30 which requires me to get up at 7:30. I'm going to die. Plus, I was limping really bad today because of my hip :(

I think I've seen people do the FCE while I was at PT but I'm not entirely sure. I'm not looking forward to it. Haha. But my old OS told me I could return to sports even though I was still in pain and subluxing. So great. I was like "okay, whatever you say."
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Laur03 on August 20, 2011, 09:58:12 PM
Hey now- don't complain about PT at 830am... I have it at 730am.  ;) Sorry to hear about your hip. It sounds super painful and irritating. :( It stinks that your PT's hours got cut.  :( I always hated working with new PT's and it sounds like you do too. It just seems like they have no clue as to what they need to do with you or they push you too hard and make you go backwards. I also love how we both seem to get in trouble all the time at PT. Last week I got in trouble for putting my good leg behind my operative while they were stretching because it hurt too much. So of course naturally, they have to bust you for it. So how the one gal I work with stretches me, she swings me over the right side of the table, has one of the PTA's come in and sit right next to me on my left side (so I can't cheat and pick my hip up), then the PT stretches, and then another PTA comes in to keep my hip down and measure. Seriously the PTA that sits on my left side to push against me has left shoe prints on the wall. Don't get me wrong I'm not trying to be bad, it just hurts and when it hurts you want to protect it.

Kate- what was that picture link you posted- the one with all the different ways your joints move? The one with the person with straight legs bending over with their palms flat on the ground.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on August 21, 2011, 02:24:57 AM
7:30? Are you crazy? I'm dead going to PT at 10am. I miss my old PT soooo much  :'(  The thing about PT is that I need to be pushed because they know I don't like to do anything (probably because I complain a lot) but I only say I'm in pain when I'm actually in pain. It's really frustrating. Oh god, you sound exactly like me! I had two PTs getting my ROM. One was measuring while the other was holding down my hip. Not fun at all. I know what you mean, it's all subconscious. I always told my therapists that I wasn't guarding on purpose either.

That picture is of the beighton scale which measures hypermobility. You're not supposed to score high on it. And I get a seven!


PT sucked yesterday. I pretty much walked in there and told my therapist that I refused to run and it didn't even work. I still had to go on the treadmill and you guessed it...I had to run for five minutes this time! He always guilt trips me into doing it by saying "oh soccer players have to run." Well I'm not a soccer player right now. I'm healing from surgery and currently battling whatever the heck is going on with my other knee and hip so leave me alone. I had to walk at 3.5 MPH which is the worst because it forces me to complete my stride and hurts my hip even worse than he happily upped the speed to 4.7 and I had to run. He even asked me how I felt so I told him that my knees and hip hurt a lot. Still wasn't allowed to stop. I could feel my limp getting worse as I ran and I was just trying to breathe through all of the pain. I'm sooo tired of them not listening to me about my pain with running. Then he upped me on the Stairmaster from level one to five after running. I graciously turned it down when he walked away.

In no way am I trying to make my PTs out as mean people because, seriously, they are some of the nicest people on the planet and I love going there but there's a line between pushing people to get better and pushing them too hard to the point where they get worse. Ugh.

Anyway, I go back on Wednesday for my left then Thursday I have my evaluation for my right knee. So excited.



I actually went to the Franklin Institute today!! It's one of my favorite places. I think this was like my first "big" outing since surgery, maybe. I had a lot of fun. My left knee felt stiff and a little painful. My right knee and hip were really painful and just try to ruin my life, lol. And I'm going down the shore tomorrow until Tuesday (yay tanning!). I'm bringing plenty of Tylenol.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on August 24, 2011, 02:47:52 AM
Post-op day 129 from MPFLr; Post-op day 62 from LOA & MUA

So I'm two months post-op my LOA/MUA, but it feels like it was ages ago!

I was down the shore since Sunday night. I did A LOT of walking yesterday and it killed my legs. I ended up having to take a Percocet when I got home from the boardwalk. My left knee was and still is super stiff and my right leg, I just wanted to cut it off. I think my limp made the pain worse. But I still had fun. I really don't like the ocean but my cousins forced me to go in and it was freezing cold but it felt sooo good on my knees and hip like an ice bath. Then I went shopping today. And I felt the earthquake! But I didn't know it at the time. I just thought I was super dizzy and was going to pass out and was trying not to because I was in Coach and didn't want to embarrass myself.

I have pain and torture tomorrow so that should be pretty fun because I'm still sore from the past three days.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: TwoBadKneesUSA on August 24, 2011, 07:28:14 PM
Too funny!  Glad the earthquake was not a problem that-a-way.  Overdoing it will make it hurt anyway.  Glad you had fun.

Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on August 26, 2011, 01:30:37 AM
Post-op day 131 from MPFLr; Post-op day 64 from LOA & MUA

I got out of running at PT yesterday...finally. I don't know if my therapist actually had sympathy for my pain or if it was because I felt sick but I didn't have to run and it did make the rest of PT slightly better on my hip although lunges and the stairmaster still kill me.

My PT is almost run out for my left knee. I think I have two days left for it so when Iím finished, I will have been in PT for four months. My longest stint in PT! Iíve definitely made improvements from when I started because I couldnít even walk when I went! But I canít walk down stairs comfortably yet so I still need an elevator pass for school even though I swore I wouldnít have one senior year. I still have pain behind my kneecap with squating and stairs. It may go away as I get stronger but it may not because I have damage to the back of my kneecap. Overall, my kneecap is definitely more stable and I donít feel it maltrack anymore!

I went to get my evaluation on my right knee today at PT. Iíll be doing all the exercises Iím doing for my left knee on my right and while Iím there, I can† strengthen my left. The pain is constant, achy, and just plain annoying. I can feel my kneecap maltrack even though both my OS and therapist said they canít really feel it. I think itís pretty prominent especially on the bike and the tracking CT scan I had in November 2009 picked it up. My therapist said weíll definitely do the McConnell taping.

Even better news on the hip front, my other physical therapist thinks I might have actually done something to it other than ďovercompensationĒ because it hurts me all the time and the pain is interfering with all of my exercises. So I have an appointment with my OS on September 6th that was never cancelled that Iím probably going to end up changing to a hip appointment so I can get a full evaluation because, at the moment, the pain in my hip is worse than my knees combined. I never say anything is worse than my knee pain. I can't even sit in my car for more than ten minutes because my hip is flexed more than it's comfortable being at. I ended up crying in my car today because I couldn't sit in it any longer on the half hour ride to the doctor's office. It just hurts all the time. It's even keeping me up at night. I seriously cannot catch a break.


Happy news though! I got my permit today!!! ;D
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: TwoBadKneesUSA on August 26, 2011, 08:04:18 PM
Congrats on the permit.  So sorry about the hip.  I wonder if it shifted some with the compensation and you did say you have loose ligaments right?  I know when mine twists a bit, I just want someone to shoot me.  Can't sit, lay down. sleep or anything.  Makes me feel nauseous too.

Keep us posted on what the OS says about the other knee and hip ok?

Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on August 28, 2011, 02:20:40 AM
Thanks Milly!

This hurricane is ruining my driving time! I still haven't gotten a chance to get out yet. Haha.

I do have loose ligaments and I feel like my right hip is loose, so that is definitely contributing. My hip has been bothering me off and on since July 2010. But it would only hurt when I walked for over an hour so I think that was the overcompensation. This pain was like a sudden on-set type thing and it's constantly hurting.


I adore my OS (like I haven't said that before) but I feel like he won't take this seriously because of how long my left knee has hurt me and now my right knee so he will brush this off as just overcompensation. But I don't see how I would overcompensate towards the end of my recovery when I'm finally walking normally.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on August 30, 2011, 04:38:29 AM
I don't know if I'll have PT this week. My therapist wanted me to wait until my insurance approved PT for my right knee before I went back so I'm just waiting for him to call.

I don't mind if I don't have PT anyway because it's my last week of summer :(

And I officially changed my appointment with my OS to a hip appointment. So I see him next Tuesday, September 6th. I knew I couldn't go two months without seeing him.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on September 04, 2011, 12:45:48 AM
How is pt going for the right? It's good you can work both knees now. I alwaqys wondered if you needed a specific prescription to work your right or if your pt could just do it if you told them about it.

Isn't driving great!? Does it bother your right knee? It bothers mine at time, and it's not even my bad one.

Good luck at the appt. Has anyone ever done xrays or other images of your hip?

How did you fare the hurricane? My town was okay, but my county got hit really hard especially since we had a Dam on the verge of failing. Two towns in my county were completely underwater and when you drive through, all you see is stuff, wet, ruined, and dirty, outside on people's lawns. Pretty much every business suffered damage and is closed there.

Have a great senior year...it goes fast.

Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on September 04, 2011, 02:10:21 AM
I haven't started PT for my right knee yet, haha. It took almost a week for my insurance to approve it then my therapist didn't have any openings so I don't start until Thursday because that's the only day that worked with my schedule due to me starting school next week but after that I should start up with twice a week. But after Thursday, I'll be done with PT on my left. September 8th is the day my insurance extended PT until and I only have four units (15 minutes a piece) left. Oh, and you definitely need another prescription for PT where I go because my therapist said she couldn't even tape my knee without one...which I thought was ridiculous.

Driving is easier than I thought it would be! Haha. My dad says I'm not too great at turning but I've improved in the three times I've gone out. I haven't driven on any real streets yet, only on a pretty empty street. And it doesn't really bother my right knee because it's extended, but it kills my hip.

Thanks for the luck† :)† I had full leg x-rays that included my hips over a year ago, but that's it.

Man, sounds like your county didn't do very well† :-\† I slept like a baby through the hurricane, it's like it never happened. Nothing around me was damaged. I actually went downstairs the next morning and asked my dad if the hurricane hit us.

I'm kinda excited for school but I don't want to go back. I hate waking up early.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on September 07, 2011, 02:23:54 AM
Post-op day 143 from MPFLr; Post-op day 76 from LOA & MUA

I went to see my OS today for my right hip...yes I am falling apart! Haha. He said my hip examines normally. I'm not entirely sure what that means because I told him that I had pain with internal and external rotation along with flexion. He sent me for x-rays and I went and got them today. They looked normal to me. He also referred me to a rheumatologist because he's concerned about my multiple joint complaints. I don't really know if he's thinking about rheumatoid arthritis because I was tested for it when I was nine and the test came back negative. I think the rheumatologist will just end up telling me to go back to my OS but hey, I'm willing to try anything. My OS said if that happens will do more imaging tests. I see the rheumatologist on the 15th.


I attempted the stairs today at school and they killed me so I handed in my paper for an elevator pass. All of my classes on the the second and third floors so I should be fine once I'm actually in school. But I'm pretty concerned about my pain in my hip with just sitting in class. As soon as I say in the assembly today, I started having pain. But good news is, I don't have to be in school until 9:15! Yay for sleeping in.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: TwoBadKneesUSA on September 07, 2011, 03:52:36 PM
Not fair with the sleeping in!   ;D ;D  Too bad the x-rays are not showing anything.  I think rheumatologist works with more than just RA.  They can sometimes help with soft tissue problems.  But like you said, he may just send you back to the OS.  I would think much of the pain is related to the laxity problems than an RA problem.  Likely theywill do the blood work again just to be sure RA has not crept in.   Good luck and keep us posted.

Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on September 07, 2011, 09:15:48 PM
Well, sounds as if your OS was frustrating to hear nothing was wrong with your hip as far as he could tell. Maybe he meant that your ligaments, bones, stabilty, etc seemed normal based on examination. You know how you can tell if someone tore their ACL or had cartilage damage from hands-on tests? Also, it's good the x-rays didn't show that your hip was misaligned or something like that lol.

I think maybe the rheumatologist will be better to be able to step back and take a look at all joints as one system and see if there is an overlying problem. Trust me, they want to rule out everything...I was on meds for RSD once for my knee (Lyrica...which when I see commercials for it, it says fibromyalgia).

9:15...that's great! No matter what your class schedule, in my high school, everyone came at the same time. My earliest class now is 9 am Bio.

So, does it go in order of horribleness 1.) right hip 2.)right knee 3.)left knee ??
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on September 09, 2011, 03:30:28 AM
Post-op day 145 from MPFLr; Post-op day 78 from LOA & MUA

Finally had PT today after a two week break and we took it easy because now I'm in pain from school. Stools are NOT my friend. I only have three classes and two of them have stools. There's just no way I can get comfortable because if I put my feet on the ground, it hurts my hip too much and if I put my feet on the rungs, it hurts my knees. I just have to survive until next semester which is sometime in January. I get my re-evaluation on Tuesday for my left knee then I'm completely done with PT on it after almost five months! But I'm still going to work my right knee even though I don't think it'll work.


Thanks Milly! And we get to sleep in because we passed the state required test last year! The kids who didn't pass have to come in at regular time (7:50am) to take remediation classes then re-take the test because you have to pass it to get out of high school.


Runner,

It's kinda frustrating that my OS keeps telling me there's nothing wrong with my hip because it hurts A LOT. If I, eventually, end up getting an MRI and that shows nothing, I'll be really disappointed because something has to be causing this pain. It came on so suddenly.

Yeah, I think it's good to get another perspective on everything. It won't do any harm to see what the rheumatologist says. Hopefully, he/she will have some answers or will know where to send me.

Haha, yes. Pretty much in that order. But yesterday my left knee was worse than my right with pain because of school. I kept getting shocking pains that would stop me right then and there. Today, both my knees hurt the same amount. I was confusing the heck out of my PT when she was going over what hurt me.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: TwoBadKneesUSA on September 09, 2011, 02:53:21 PM
This kind of came to me while messing with my own trigger points.  Could there be a tight muscle in the back, hip, groin or quad area that may be causing the hip pain.  Sometimes with muscle imbalances it hurts where the problem is not, rather than where the problem really is.  I get trigger points in my IT band that make the knee ache, but they are way up my thigh.  Something to ask anyway.

Milly

PS:  Poo on stools, they are never made for shorter folks in any case.  They are never comfortable.  Too bad you cannot request a regular desk (we had the chairs with a writing surface, not a standard desk, in HS and they did not take up much room).
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on September 10, 2011, 03:35:26 AM
Hey Milly,

My physical therapist was actually thinking the same thing yesterday! She had me do a few stretches to try and stretch my hip out to see if that was the problem but I felt nothing. It happens a lot when I try to stretch any part of my body. I figure it's just part of the whole being lax thing. I literally cannot feel any stretch I try to do.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on September 14, 2011, 03:17:04 AM
Post-op day 152 from MPFLr; Post-op day 84 from LOA & MUA

Today was my last day of PT for my left knee! Bittersweet. I would rather be doing PT on my left than my right because I feel like my operative knee needs it more than my non-operative knee. Such is life. It was a pretty easy day. My therapist taped my right knee and it never did anything for my left but it actually makes my right feel a little better! I'm trying to keep it on as long as possible. As my therapist was taping my knee, I had to contract my quads and she seems to think my kneecap sits a little higher than it should. I haven't had x-rays on my right knee in forever...if I ever did. I might have had some done when both my knees hurt me when I was in seventh grade which was a long time ago. I picked up the report for my hip x-rays today and it said everything was normal...what a surprise. We'll see what the rheumatologist says on Thursday.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on September 15, 2011, 02:09:56 AM
Post-op day 153 from MPFLr; Post-op day 85 from LOA & MUA

FIVE MONTHS POST-OP!!!

I've come a long way from where I was five months ago. I cannot believe it. It feels like it was forever ago that I was stuck on my couch for three months not able to lift my leg by myself and in a bunch of pain. But I'm SO glad I had this surgery because my kneecap feels more stable than it's ever felt. I still have pain especially since starting school but it's definitely less painful than it was before. My knee doesn't feel completely normal, yet-- hopefully it'll get there. I still can't go down the stairs normally but my knee has been through so many surgeries in such a little amount of time that it didn't have time to recover so now I'm trying to regain muscle from ALL of my surgeries. It's getting there, slowly.

Now it's time to figure what's up with my other knee and hip!


(http://i52.tinypic.com/1zmzevn.jpg)
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on September 16, 2011, 03:47:30 AM
Post-op day 154 from MPFLr; Post-op day 86 from LOA & MUA

Went to the rheumatologist today. There really isn't much to say. I didn't really like her, at all. LOVED the resident that I saw before she came in and I wish he was the doctor. Seriously, he was so nice and smart! The doctor doesn't think I have anything like arthritis. I was told I have very clicky and lax joints especially my hips, knees, and ankles. She basically told me that my right knee and hip hurt because of inactivity and that I have to start being active to stop the pain, which makes no sense because when I am active my pain is worse. I told her just sitting there after the exam, my pain got worse so what is 'being active' going to do? And it's not like I sit on my butt all day. I started crying when she and the resident left the room and when they came back, she was wondering why I was upset. Lol. She's wants me to get bloodwork to double check for things and she's sending me to PT for my hip (not happy about it). I see her again in a month but I don't know why.

I'm so tired of being told there's nothing wrong with me when I'm in pain. There has to be an explanation for it. It's so so frustrating.

And I really don't want to do PT for my hip but if I don't, I won't be able to do anything else for my hip because PT is always the first step.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: TwoBadKneesUSA on September 16, 2011, 06:43:25 PM
Sending a hug your way kiddo.  I know first hand how hard it is to be blow off and told you're fine when there must be a reason for the pain.  It is frusterating to be sure.  Maybe the PT will help your hip some.  Yes we all know that things can get painful when you have been inactive, but you have been active with PT and using that leg/hip while the other was healing. So maybe some muscle pain and stiffness can be expected, but I don't think that sounds like what you have going on.  It's so hard when the bascially pat you on the head and send you on your way.  Hang in there and hopfully the blood work comes back clear.

Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on September 17, 2011, 04:09:28 AM
Thanks so much Milly† :)

I can always look to you and the others on here for support because you all have been through this before. I don't think doctors understand how frustrating it is when they just brush you off and tell you nothing is wrong. She basically told me that I was causing myself pain. I really wish there was a miracle cure out there somewhere.


(http://i54.tinypic.com/2m3gu85.png)

I had some really sweet swelling from school today. Quite painful as well.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on September 17, 2011, 03:20:10 PM
It really does stink when there is no explanation for your pain. I don't know what to say when the scans are negative and the exams are normal....it's a mystery diagnosis (have you seen that show?)

Can you do the pt for your knee and hip simultaneously?

Keep your head up!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Laur03 on September 17, 2011, 08:17:14 PM
The rheumetologist you saw sounds kinda mean. I hate when doctors brush you off, but hopefully the PT will help your hip. A good exercise (or so I'm told by PT) for hips is to do the "Clam." You put one of those exercise bands around your thighs, just above the knee and tie the ends together. Lie on the good side and with the bad, open your knees while keeping your ankles together. Another one is "hip hikes" where you stand on the stairs, with the good hip/leg staying on the stair, and you dangle the bad one and pull the dangle hip up towards your ribs. Those helped a lot with the knee strengthening and hip issues after my first knee surgery.

Your poor knee looks so swollen. :( Will your school still not let you put your leg up or go to the nurse's office to ice if you need to?
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on September 18, 2011, 01:34:38 AM
Runner,

Ah, Mystery Diagnosis is one of my favorite shows! Haha. I've seen every episode, twice. But I'm hoping my OS will let me get an MRI on my hip the next time I see him (October 11th). And I'm allowed to do PT for my hip and knee together once I get my evaluation and my insurance approves it. My eval is scheduled for the 28th but it'll be moved up because I'm already going there. I'll find out the new date on Tuesday.


Lauren,

Yeah, she wasn't very friendly. If I need to add a rheumatologist to my list of doctors, I'm going to find a new one. I've actually been doing the Clam and it's quite painful. Haha. And weird looking! I think it's the stairs at school that are making my knee swell. It feels okay in class but as soon as I'm on the stairs, it really hurts. My PCP gave me an elevator pass for three months. My OS won't release me for sports because of how weak my quads are. My leg still shakes when I go down the steps so I probably shouldn't be running up and down them but I don't want to be on the elevator but at the same time, I'm causing myself a lot of pain. I tried elevating my leg in my Anatomy class one day and my teacher took the stool away and she knows about my knee problems, lol. But I ice my knee and hip as soon as I get home. I do hate having PT right after school though. It makes it more painful and I'm honestly so tired of going. I've been there for almost six months.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Laur03 on September 18, 2011, 12:57:43 PM
The Clam is a strange exercise to look at or watch. The first time I did it at home, my family was the "what the heck are you doing?" I'm sorry it causes you so much pain though. Sounds like you need a real Dr. House, (without the attitude and pill popping of course). Is it possible you have arthritis in your hip? You can get it really young- I had the beginning stages in my left knee at 14 or 15, and now it's loads worse. Do you know if your hip has loose ligaments/ supporting tissues?  That could be the problem too.

Wow about the stairs. I can go up 3 normally, while holding on to walls and door frames, but not down. So your teacher took the extra stool away from you because you were using it to elevate? That's messed up. Maybe college professors are different and I had really nice HS teachers, but I know my OS and parents would've thrown a fit if that happened to me- legit my mom especially would have been calling the principal/dean non stop. PT does suck right after school, but if you can take pain medication a half hour or 45minutes before you might be okay. That helped me a lot. Or if you can find it (and tolerate the taste) take the liquid children's motrin or Tylenol right after school. Liquid meds get into your body quicker because your stomach doesn't have to break up the pill and make it liquid. Just don't do anything that the school can suspend you for with the meds. We were given a warning first because after the first surgery I had I took the vicodin to school with me and needed it during a class or something, anyways my couselor found out and called me down about it. She's told me that if they'd found it in a drug sweep, I'd be suspened and graduation would be on the line, but if I had a doctors note and had it in her office or the principals office everything would be okay.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on September 19, 2011, 02:18:29 AM
Lauren,

I really do need a real life Dr. House! But my x-rays of my hips came back completely normal. My Ortho and rheumatologist both said my hip has really loose ligaments-- which I kinda knew going into all of this because I was told I'm hypermobile years ago. I just don't know to what extent my ligaments are loose but if it's that noticeable, it has to be kinda bad?

I've complained on here before about how my school is really strict about elevating and all that stuff. They need notes for everything and I really don't feel like going through that because I'm not in a brace or anything 'noticeable' so it'd probably be an even bigger deal. I take Mobic every morning. It's an anti-inflammatory, but it's also supposed to help with pain. I don't really notice a difference and I ran out. I'll probably take a tylenol eight hour tomorrow morning. And there's no way I'd be able to take a narcotic in school, when I went back to school after surgery, I had to take Tramadol during school because of possible side effects even though I never have any. But I really don't like taking anything because nothing really works.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on September 23, 2011, 04:32:25 AM
When I worked with the ATC at my HS, he showed me the clam, but I would get a really sharp pain in my knee so he chose other exercises for me. If you find that you have pain under the kneecap with quad sets, try lying on your stomach and doing them like that. The ATC taught me that trick and it kind of lifts the kneecap out of the groove for less pressure. He would also push my kneecap and push underneath with his finger, finding really sore spots.

When is the big date for the hip eval? How is therapy going? What are you doing there these days?

Are you taking the elevator?

Hope they figure something out for you soon!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on September 25, 2011, 01:58:48 AM
Post-op day 163 from MPFLr; Post-op day 95 from LOA & MUA

Sorry about the lack of updates. I've been super busy with school, clubs, and NHS. Plus, I only had PT one day this week which was yesterday.

So I'm only working my right (non-operative) knee now which I'm not too happy about because my left knee really needs the PT. My leg still shakes like crazy when I walk down the steps at school, especially if I'm going slow. I don't really think my right knee needs PT. They're not even allowing me to do any exercises on my left while I'm there at PT unless it's an exercise that requires two legs which I think is really stupid. I don't really like my insurance, at all. I get my evaluation for my right hip on Wednesday. I'm honestly so tired of going to PT that I think about just stopping completely but my OS would not be happy about that. I know it's not going to work. Six months of PT is just too much, I just want to be done.

I'm still getting pain in my left knee, mostly from stairs. I think if my leg were stronger, it wouldn't hurt as much. I'm taking the stairs at school but I do have an elevator pass. I haven't used it yet even when my knees and hip hurt pretty bad.

I went on a college tour today. The campus was somewhat hilly but it was a lot of walking and I'm in pain from it.

I've only been able to go to PT one day a week for the past three weeks. My therapist isn't happy about it but I am. I'm just really busy with school work and NHS. Plus, I'm in three clubs and I'm working on volunteering at a children's hospital and that would take place after school so I don't know what would happen if/when I start that. I wouldn't be upset if I stopped PT.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: TwoBadKneesUSA on September 26, 2011, 03:05:29 PM
I understand how you feel, but try to get through the PT.  For some insurances you need to show you tried the conservative stuff before they will pay for a surgery.  Sad but true.  You may just have to do the left leg PT at home.  Do you have some ankle weights you can use?  Step ups help for stairs, use a book or step that is smaller than a normal step for a while to help gain some of the strength back.  Glad you are busy doing lots of things.  Just remember to listen to the body and don't kill it with over doing.


Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on September 28, 2011, 09:56:55 PM
Please give therapy a chance with your right knee...you never know, and if you do need surgery, at least your knee will be better going in. The stronger you go in, the stronger you will come out as my pt said. They have a lot of patients do pre-surgery pt.

I don't see why you can't work out more than one thing at once. I see people at my pt place, going for both knees.

How did the hip eval go? Tell your PT to make it fun again :)

My campus is very small, thank goodness! No hills either!

Now is a great time to find out how to balance anything because it comes a lot harder as a college student. If you can't make it to pt, make sure you are working out at home...get yourself some therabands, ankle weights, a medicine ball, etc.

When do you see your OS again?
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on September 29, 2011, 02:47:32 AM
Hey guys,

I'm going to stick to the PT but I'm not going to enjoy it, haha.

The hospital I go to PT at now takes a picture of you every time you go, prints it and puts it on a piece of paper that you have to wear. So inconvenient.

I had my hip eval today. It went okay, I guess. My therapist said I lost some external rotation which is weird because I'm hypermobile so it's really hard for me to lose ROM plus, external rotation REALLY hurts. He was doing a test with what he calls over pressure. So he was pushing down on my knee with my hip flexed then externally and internally rotating my hip. External rotation hurt so much...so he did it again. I don't know what any of that means though.

I'm going to ask my OS when I see him on October 11th if I could possibly have some type of EDS or something because I've been told numerous times that I'm really hypermobile so maybe this would explain everything?

Also, I've applied to three of my five colleges! And my knee makes for a great essay.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on October 01, 2011, 01:29:10 AM
Is the picture just to identify you? lol

What exactly is external rotation of the hip? How did you test it? He didn't explain what it meant or why he was performing that test?

It would be an answer, but I don't think there is much they do for that :/ but you probably know more than I do about it!

Great job on getting those applications done! Are you doing early action or early decision...or just regular admission? Do you have a top chocie or you waiting to hear what kind of aid they offer you? How your choices far from home?
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on October 01, 2011, 02:12:05 AM
Haha yeah, they take a picture and put where you're going on the paper. The first picture I took, I wasn't even looking and the last time I was there, the guy in front of me had a side profile! They're not even good pictures. I think they're just trying to make you late for appointments.

External rotation is like when you sit "Indian Style" (http://www.physioadvisor.com.au/assets/256/images/12985256%28400x400%29.jpg) but he put me through like extreme external rotation so my hip was going further than that.

Yeah there isn't anything they can do about EDS but it would be an explanation for everything. I went to an allergist today and the resident there even mentioned it to me because they go through your entire history and I told her I was hypermobile and everything else. She asked if I had been diagnosed with any type of syndrome.

Thanks ;D I have two more applications left and they're through the common app. I have it all filled out. I'm just waiting on the recommendations part then I'm done until the FAFSA. I'm applying for regular decision but I get all the perks of early action because I'm applying early. I have two top choices, Drexel and Temple. My best friend and I really want to go to Temple together and they have a good med program and she's going for PT. It really comes down to scholarships and financial aid though. All of the colleges I've applied to are within 15- 20 minutes of my house except for one which is 45 minutes away. But I would still live on campus.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on October 05, 2011, 11:22:47 PM
Good luck with your appt. next week. I might be calling my OS's office in the next week to make an appt. for next month. :/

I always had the idea of my pt having his patients fill out a form every now and then that says what they have accomplished and what they want to, but I never mentioned it lol.

Yes, an explanation would be better than nothing! If I remember right, there are different types of EDS?

Living on campus is fun. Even though it is more expensive, you will get more aid as it is factored into your cost of attendance. I'm currently set on becoming a PA, but all my friends and family encourage me to be a doctor. I'm not sure 100% yet.

Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on October 06, 2011, 03:06:37 AM
Post-op day 174 from MPFLr; Post-op day 106 from LOA & MUA

Today was the first day at PT I was able to work my hip. I only did a few things specifically for that like the clam, a side stepping exercise, and something else. I actually didn't do much for being there for an hour. I did squats on a Bosu ball which are too easy for me but my PT won't let me do them on anything else because my left leg still shakes. I did the total gym, a balancing exercise, and walked on the treadmill (and got yelled at for dragging my feet). My PT made me go up and down the steps like ten times so she could watch how I walked them because I do it weird. Then I rode the bike and freaked out because my left kneecap was clicking in and out but my PT said it's because I haven't ridden the bike in so long.

Also, my therapist freaked me out when she checked the tracking of my kneecaps and said she thought she felt a lateral tilt on my left kneecap but it was only the bone build up (?) I have from the stitches that hold my ligament in place. My heart dropped for a few seconds when she told me that.

I asked her about whether or not she thought I could have EDS type III or Hypermobility type and she said it could be a possibility. She's going to look into it and give me an opinion when I see her again on Wednesday. She said that I should get tested for Lyme disease, just in case.

I've been in a lot more pain these past few days with my hip. I've been taking tramadol at night just so I can sleep. And it's been really hard to get comfortable in my science class because of the stools. I really hope my OS has some answers when I see him.†

Thanks Runner! And I hope you get everything sorted with your college so you can do PT there.

I'm officially done applying to college! ;D
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on October 10, 2011, 12:41:19 AM
Post-op day 178 from MPFLr; Post-op day 110 from LOA & MUA

I went on another college tour today and survived! I didn't have to walk nearly as much as I did on the last tour and there was any hills. I adored the campus and I'm pretty sure this is the college I'm going to. I mean, they have free cable and air conditioning. What more do I need?

My hip seems to be bothering me the most out of everything and has been since it started hurting. I'll definitely be emphasizing that to my OS when I see him on Tuesday.

I'll update again after I see my OS.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on October 10, 2011, 05:46:48 PM
I think muscle is the hardest and longest part of recovery. It could take years to get it back to match the other leg. Usually though, I have heared it's like 85% of the other leg is when they will release you to sports.

Does your hip pain feel like it's tissue or bone?

Congrats on finishing the application process! Was it a large campus?

Good luck tomorrow.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on October 11, 2011, 02:07:40 AM
Muscle is definitely the hardest thing to gain back. My OS won't release me until I complete a Functional Capacity Evaluation but he won't let me get one until my leg stops shaking when I go down the steps because I'll fail the test.

My hip pain feels like a deep ache coming from the joint. It's definitely not from the muscles. But I sometimes get a tightening/spasming sensation over where it hurts from my muscles other than that, it's always from inside the joint.

The campus I went to yesterday was big but didn't seem that big. It's spread out through a few city blocks.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on October 12, 2011, 01:36:48 AM
Post-op day 180 from MPFLr; Post-op day 112 from LOA & MUA

Visit with my OS. Not happy to say the least. I adore my Ortho. Heís the only person that has been able to help me but he was a jerk today and for me to say that about himó it takes a lot. All he did was talk about my left (operative) knee and how great it was going. Yeah, awesome okay. Letís talk about how my right leg is falling apart. He didnít even examine or mention my right knee. I had to bring up my right hip and how badly itís hurting me.

I didnít even bring up EDS because he just didnít seem to be listening to anything. I really wanted to discuss it with him but I didnít feel like being shot down after being ignored the whole visit. I was in a terrible mood and if he were to say something, I probably would have cried.

I ended up getting told that Iím released for my left knee (what??). Even though Iím supposed to get a test on it before Iím allowed to play sports. I have no idea whatís going on with my right knee. I got a referral to my PCP for my right hip because I need to see a general surgeon because I could have an inguinal hernia, really though? I have none of the symptoms of that besides groin pain and I thought you could see/feel them? But I could also have a labrum tear, which I think is more likely but Iím not a doctor.

I donít even have an appointment to go back and see him. Iím just really pissed off about my whole appointment because he didnít acknowledge half the things I said. When he brought up the idea that I might have a labrum tear in my hip, he said that I would have a lot of pain with extreme flexion and right away, I was like ďI HAVE THATĒ and he just ignored me. Hereís to hoping he was having a terrible day.

I see my PCP and Rheumatologist next Thursday.



I just feel like I'm not being taken seriously because of how long my left knee hurt me. Ugh. This is so frustrating. I was in so much pain today because of my hip. I couldn't concentrate at all in class and as soon as I got home from school, I took a Vicodin. I haven't taken a Vicodin since a few weeks after my LOA/MUA so I think you all can assume how bad my pain was and it didn't even take it away. I'm tired of being passed off and told my pain is nothing.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on October 12, 2011, 03:31:47 AM
I'm sorry you had such a terrible visit and your hip isn't improving :/

What exactly was the appt. scheduled for? Left knee check-up? Right hip or knee eval?

I would bring EDS up with your rheumatologist and talk in detail with him/her about it. I feel like maybe they will consider it more. Sometimes orthopedics can focus too much on one joint without looking at the big picture.

You should see if your physical therapist can give you a functionability test. I wouldn't go out and play soccer or anything now, but maybe start some dribbling drills or shooting. However, just because your left knee is ready for this stuff, doesn't mean the rest of your body is!

Good luck with the general surgeon. Hope they can figure out the hip. If he/she can't, perhaps find an OS specialized in hip injuries. I know your OS may have been a great guy for your knee, but a hip is not the same as a knee.

Good luck and stay strong!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on October 13, 2011, 03:11:14 AM
Thanks Runner.

My appointment was a follow-up for my knees and hip. At least, that's what we discussed when I was last there.

Yeah, I'm definitely going to bring up the EDS with my rheumatologist. Hopefully, she'll be more open to it.

Lol, I'm definitely not in any shape to play soccer. I wouldn't even dribble a ball right know. My left knee still gives out if I stand with all my weight on that leg for more than five minutes. I need to get stronger which is why I don't understand why my OS released me to do whatever I want when he barely even asked me about it. He didn't even check my strength, only my ROM. I'm just hoping my OS was having an off day because he's never been like that any other time I've seen him.

I don't even know if I'm going to see the general surgeon. I think my PCP can see if I have a hernia so he wouldn't send me to the GS if I didn't have one.

My PT said that I definitely don't have a hernia so we'll see what happens. She also doesn't think I have a labrum tear. I'm perfectly fine according to her! Which would be awesome if I wasn't in so much pain. Apparently, if I had a labrum tear, I wouldn't be able to walk. She wants me to see if my rheumatologist will order an MRI arthogram.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Laur03 on October 14, 2011, 04:13:11 PM
Sorry to hear your appointment didn't go as planned. That sucks. Sometimes I feel like male doctors have a set agenda with patients and won't deviate from it, or sometimes they just seem cranky, like they're on their "man period."

From the way you describe the hip issue it doesn't sound like it's a hernia. A friend of mine had an inguinal hernia and she didn't have any symptoms that were associated with her hip. Maybe you have cartilage damage there?

Hope your appointment with the PCP and Rhuemetologist go better!

And congrats on finishing your college apps! Have you heard back from any yet?
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on October 15, 2011, 01:20:38 AM
Thanks Lauren :)

Definitely felt like my OS was PMSing when I saw him, haha. I just hope he isn't like that when I see him again on November 1st. I might move that appointment to a later date depending on what happens with my hip and all.

Yeah, my hip symptoms definitely don't sound like a hernia to me but my OS said the area I points to where it hurts could be a bunch of different things and he could send me to a few different doctors for it. I think an MRI could rule out a few of those things off the bat but we'll see.

Haven't heard back from anyone yet. I'm not expecting anything back until December, I think. Not too sure on that. I didn't apply for early decision or anything so for some of the colleges, I won't hear back until next year. Yikes.


SIX MONTHS POST-OP TODAY!!!

And got some awesome news-- my senior trip is to Universal ;D
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on October 15, 2011, 06:36:30 PM
Is there a hipgeeks forum you can join, Kate? lol

If you feel like your OS didn't say or do much during your appt, try getting the note from the appt. He just can't write nothing on it, and it's kind of like getting inside their heads to see what they were thinking. You might have to pay a small price for the medical records or at least at my local hospital you do, but since my mom is on staff there, we didn't have to.

It does seem like if there are so many things he thinks it could be or he doesn't know what it is, a MRI would be helpful. He might be hesitant to order one though because of insurance companies needing a really good reason to cover one. The first OS appt I had when I first hurt my knee...my mom pretty much had to request he order the MRI. He wasn't going to do one (probably because he was 90% sure I dislocated) and he said insurance companies don't like to deal out a bunch of MRIs. However, if I didn't have it, we wouldn't have known that I had injured my femur, too.

I think I heard back from my colleges in early December when I applied in Nov. I got both my letters on the same day, too.

Universal? Wow! How long is the trip? My senior trip was just a day trip. Enjoy.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on October 16, 2011, 04:16:39 AM
Hey Runner,

It's funny that you say that because there actually IS a forum. It's called hipchicks. I've been browsing it. I was going to post but you have to pay to be a member. It's not much but I don't want to ask my mom for the money.

Yeah, I guess I could get the note from my last appointment. Lol, I just feel weird asking for it. Plus, I'm there when he transcribes it.

True that insurance could be holding him back from ordering it but I had four MRIs when I first hurt my knee and three of them were in the same year so I think it would get approved. I mean, I tried ignoring the pain, I'm on an anti-inflammatory, and I'm in PT, yet I still have pain.

I hope I hear back from some of them in December. I know the one I applied to, I got a VIP app so I heat from them sooner.

YEAH! I'm so excited and so are my friends :) It's three days. We're going for Grad Bash. But we don't find out if we're going for sure until Friday because 100 of us have to hand in deposits. We weren't supposed to have a trip. None of the senior classes have had one for the past two years. But we've been such a good class apparently that we deserve this.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on October 20, 2011, 02:24:10 AM
Well, I was discharged from PT today for my right knee so I only need to go for my hip. I see my rheumatologist and PCP tomorrow. I'll update when I get back.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on October 21, 2011, 03:06:48 AM
What do you mean by  "discharged?"

Hope the appts were helpful!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Laur03 on October 21, 2011, 02:49:44 PM
Congrats on the discharge for your right knee! Does it feel better? Hope so.

Good luck with your appointments!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on October 22, 2011, 01:07:43 AM
Post-op day 190 from MPFLr; Post-op day 122 from LOA & MUA

So I saw my Rheumatologist and PCP yesterday. They both agreed that I need an MRI on my hip (finally) but neither of them gave me a script for it because they want to see which kind of MRI my OS wants me to get. I tried to tell my Rheumatologist that my OS was probably going to order an MRI arthrogram but she said she had no idea what that was. And both my doctors said I don't have a hernia (stating the obvious). My Rheumatologist doesn't think I have EDS. She said I'm just really really hypermobile.

I see my OS on November first to talk about my hip and right knee.

I've noticed some improvements over the last week with my left knee. It feels stronger with going down the steps! I'm not feeling as achy as I was even with the rainy weather. I still have to ice my knee every night and I'm not sure I'll ever get away from that because by the end of the day, my knee just kinda feels full and stiff and ice makes it feel SO much better. I'm not having as much pain. Maybe a few twinges here and there but overall, it's doing pretty well.

By discharged, I mean, I'm done with PT on my right knee. My physical therapists feel like I've made as much progress as I'm going to make there. I still have just as much pain, if not more, than when I started. They said that I've gained as much strength as I'm going to so there's no point in me being there. Oh well. I knew PT wasn't going to do anything for my knee. I'll see what my OS wants me to do when I see him.

And it's official, I'm going to Universal in April. I'm hoping I make some improvement with my right knee and hip because I'll be walking around the two parks one day from 10am-2am then the next day from 10am-8pm. Right now, I don't think I'd make it without a WHOLE bunch of pain. Fingers crossed.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on October 23, 2011, 12:14:03 AM
What kind of different MRIs are available? Still no answers from the docs...what a bummer!

I thought you didn't have another appt with him? But good luck!

Congrats on the left knee! Getting stronger day by day.

What do you think he'll do about the right?

Hope you do too so you can enjoy the trip. Definitely try and get this stuff sorted out by college!

Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on October 23, 2011, 01:34:37 AM
Hey Runner,

I think they're only two different MRIs which is why I was confused about why my Rheumatologist didn't know about the MRI arthrogram. She said she was going to order an MRI with contrast which is what an MRI arthrogram is. Ugh. I was just confused because she was confused so I wasn't going to explain it to her. My Rheum wants to see the synovium in my hip joint, if that makes sense? And something about arthritis. She also wants more bloodwork.

Lol I had an appointment with him that was supposed to be cancelled because I was going back and fourth for different things but then I followed up all at once so there was no need for the Nov 1st appointment but they kept it for me so I told them I'd come in and see him. My OS told me to see him if I was going no where with my hip after seeing my PCP.

I had NO idea what my OS is going to do/say about my right knee. Maybe we'll try a brace? Because that's why I originally went to him.

I definitely want to get all this sorted out by college. But my friend, who I'm planning on being roommates with, has volunteered to push me around campus in a wheelchair if need be. Haha. I hope that's never the case though.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on October 25, 2011, 02:15:20 AM
Oh okay! I think I knew that there were two different kinds. My doctor's secretary asked if I needed the arthrogram, but he said no because something being outside of the joint (maybe my screws?) Hope your doctor finally orders the MRI.

Luckily, I have never had blood drawn for anything related to my knee!

Good luck next week.

Any braces in mind you want to try?

Glad you have a good roomate....you may want to throw in the fact that she might have to carry your dirty laundry up and down the stairs for you : )
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on October 26, 2011, 12:49:06 AM
I'm sure my OS will order the MRI on Tuesday when I see him. I just wish I could get the MRI beforehand so that I could eliminate an appointment and waiting but I can't do anything about that.

I had blood work done for my knee pain when I was about nine then I had it at my pre-op for my MPFLr. But it doesn't really bother me.

I wanted to try the Breg PTO.

Actually, at the college we visited, the laundry room was on the second floor. Is that weird?
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: TwoBadKneesUSA on October 27, 2011, 05:54:20 PM
Kate,

I liked my Breg.  If that is they way you go, see if you can get an airmesh!  It is much cooler than neoprene.

Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on October 28, 2011, 11:50:13 PM
I second the last comment about getting the airmesh!

Good luck on Tuesday. What kind of things do they test for in the blood?

No, I don't think it's weird. Since my sister goes to a larger school, they have laundry machines on every other floor...it's not weird; it's convenient lol.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on October 29, 2011, 02:18:38 AM
Post-op day 197 from MPFLr; Post-op day 129 from LOA & MUA

Not really much to update about. I won't be having PT for three weeks by the next time I have an appointment because they're so busy and under staffed there. I don't understand it at all. They let my old therapist go then they let the therapist I was working with go to another campus because they're under staffed. They only have one day a week with afternoon hours now and it's fully booked. What am I supposed to do? I can't leave school to go to PT. I feel like I should have priority over the newer patients there because I've been there for six months and I've had the afternoon appointments for a while but it's first come first serve. I'm going to call my insurance and ask if I can go somewhere else but if they tell me I have to stay within those PT clinics, I won't be able to do it because the other one is too far as of right now with gas and everything. Ugh, this is so frustrating because I won't have a chance to see if PT works because all of my progress made will just wear off by the time I get back there. And yes, I'm doing the two home exercises they gave me.




I'll definitely go for the Airmesh. I've had enough with smelly neoprene braces.

I think my Rheum is testing for autoimmune markers she didn't test for the first time. BTW, my last blood test was completely normal. Even my liver function. I always say my liver is going to fail because of all the medicine I take, lol.


That makes sense. The school I was looking at is pretty big. Yay for walking up and down steps with laundry. They actually have an elevator too.

Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on October 29, 2011, 11:22:20 PM
What a bummer with physical therapy! Wish they would hire your old therapist back. And I can't believe they only gave you two exercises to do at home!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on November 02, 2011, 01:13:24 AM
Post-op day 200 from MPFLr; Post-op day 133 from LOA & MUA

So I saw my OS today for my right knee and hip follow up.

He told me to continue to do my at home exercise program for my right knee. I mean, I don't think that's going to make a difference if PT released me due to my muscles being as strong at they'll get but okay.

I ended up getting a script for an MRI Arthrogram for my hip. Can't wait to get that. I sense that my OS is frustrated with either my hip or me in general. I don't know. Maybe he should live in my body for the past four years and see how frustrated he gets because it hasn't been fun. I don't think he's entirely sure what's wrong with my hip because he said there could be so many things with the area I'm pointing to. It could be the hip but it could also be ovarian cysts or something like that. He said that I could have a labrum tear caused by FAI, just a labrum tear, or nothing.

I don't have the date for my arthrogram as of yet because my insurance didn't approve it today, hopefully I get the call tomorrow. But once I have the date, I have to call my OS office to schedule my appointment to see him again and my Rheum's office to see her again.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on November 03, 2011, 03:46:33 AM
Good luck with the MRI. I have a friend, who is an athlete, who gets ovarian cysts that have put her in the hospital several times. Let us know how everything goes.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: bball123 on November 04, 2011, 07:16:05 PM
hey kate,

i remember you getting synvisc and posting about it but i forget if you said it helped or not. i don't know if you have been keeping up with my diary but long story short it turns out i won't be getting surgery for a while so i was looking for some pain relief. so did you think it helped your pain... even the littlest bit?
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on November 05, 2011, 12:53:51 AM
Hey bball,

I've been reading your diary. I just didn't have anything to add to it because I've never experienced a TTT. Sorry about the news :( I hope one of the Orthos your OS recommended is able to help you or you find one that can. She sounds really great and it sucks that you can't work with her.

The Synvisc didn't really work for me but I don't have that much cartilage damage. I've read a few posts on here from people who say it's helped them for a little bit before they decided to do something. Synvisc is really for people with worse cartilage damage than I have and my real problem was instability. If you're able to get it approved by your insurance, you might as well try it because the shots really don't hurt. Good luck!!


My Ortho's office still hasn't gotten my approval for my MRI arthrogram yet. They said it could take up to a week to get it. Ugh, I hate waiting!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on November 05, 2011, 01:30:10 PM
Bball, I'm guessing you have also tried cortisone? I had that once...it helped maybe the slightest for me, but nothing I would have done again. It just really burned that day a lot. I'm not sure the exact degree of my cartilage loss, but I'm sure it's not as bad as yours. I know that MRI said in areas I have partial cartilage loss.

That stinks! I hate waiting, too, but, hey, at least you know where your orthopedic surgeon is, unlike me! lol.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: bball123 on November 05, 2011, 03:26:11 PM
i actually haven't tried cortisone. it was suggested by a PT who thought I had a plica in my knee.... but it turns out I didn't so I never tried cortisone. I will ask my OS about that as well as synvisc. I think I have found 2 good doctors in Boston that specialize in cartilage repair so my mom is going to call them on monday.

It definitely sucks waiting and I know you guys can relate to that. but it is true that I know where my OS is at unlike you runner :( that sucks. and sorry your hip has been hurting kate :( we definitely don't need more problems on top of our knee issues!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on November 06, 2011, 12:39:22 AM
Bball,

I'm not entirely sure but I've read that cortisone can soften cartilage more or weaken structures? I'm not entirely sure if this applied to knees too because I read that on a hip forum and people weren't able/recommended to get cortisone before surgery.


Runner,

I think I'd be lost if my OS's whereabouts were unknown. I don't know how you're keeping it together.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on November 08, 2011, 01:21:39 AM
So my mom called my Ortho's office today and they said my insurance denied authorization for the MRI arthrogram. Awesome.

I really do hate my new insurance. They question/deny everything I need. It's not like this is the first time I've gone to my OS for my hip. It's been hurting me since July, I've been in PT for two months, taken an anti-inflammatory, gotten x-rays and blood tests, and I saw other doctors to rule things out, I'm pretty sure this is my last option.

They said they were in the process of trying to get the denial reversed so I hope it works out or my insurance company is going to get an angry phone call.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on November 08, 2011, 08:16:09 PM
Yes, I have heard that cortisone can hae some negative effects. My pt didn't recommend it for a girl I went to school with, but for some reason, he told me to go ahead with it.

If I wasn't busy with college or was in the middle of recovery and needed to see him, I probably wouldn't have been composed lol.

Bummer, Kate! Keep appealing. Insurance companies are not fun to deal with.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on November 09, 2011, 01:35:06 AM
My MRI was approved! It's scheduled for Tuesday afternoon. I forgot to make my follow-up appointment with my OS so I'll call tomorrow morning. I hope they can squeeze me in next week because I'm really impatient.

In other news, I had to take public transportation to and from school for the first time ever today, ugh. I usually get driven to school but my dad had training for his job from 5-5 so it didn't work. Walking to the bus stop killed my hip. I made it to the corner of my street and I wanted to turn around and go home. I think it was partly due to me trying to keep up with my friend's pace.

I really hope my MRI shows what's wrong with my hip.

And I think I have PT on Friday.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: TwoBadKneesUSA on November 09, 2011, 01:38:21 PM
Kate,

Hope the MRI shows something for you.  I hate to be in so much pain but the scans look clear.  Had that for so long.....and I would not wish it on anyone.

Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: KinnaMarie on November 10, 2011, 01:40:07 AM
I too hope they find something and like Milly said, I would not wish this on anyone because I am still dealing with whatever is going on now.  Since August of 2010 I have had 7 MRI's with the last one being a week ago and with contrast.  My mom puts it best when she says you normally pray they find nothing wrong, but now it has gotten to the point where she is praying they just find what is wrong so they can fix it.  Like you probably are, I am just sick of dealing with what my OS says is an angry knee.  My OS also said to me the other day, I clearly know your fed up with me by now, and I simply said that i'm not fed up with him...just the situation.         
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on November 10, 2011, 02:17:21 AM
I think it's horrible that we have to actually hope something is wrong in order to get fixed/helped. Otherwise (in my experience) we're passed off like nothing is wrong and we're not really experiencing the pain we have. So frustrating. It's one of the worst things :(

Kinna,

I really hope your OS is able to figure out what's wrong or he's able to find someone who can help you! Everything you're going through with your knee sounds so terrible.


My follow up appointment with my OS is December 6th (five weeks after the MRI was ordered), NOT what I was expecting. When I left his office last week, one of the secretary's said to call and say I was coming in for a follow up from an MRI and they'd squeeze me in so I could get my results but apparently that's not happening. I just want to know what's wrong with my hip. I could barely walk today after coming home from school because the pain was so bad. I couldn't even complete my stride. Ugh.

My left knee is still getting sore especially from all the walking I've been doing the last two days. It feels great after I ice it but I'm pretty sure that's because it's numb. If I could ice it all day, I definitely would. It still needs a lot of strengthening but school is still killing me. My right knee has seen no improvements. I don't think it will.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on November 12, 2011, 04:12:35 AM
Post-op day 211 from MPFLr; Post-op day 143 from LOA & MUA

So I had PT today for the first time in like three weeks. I didn't really do much but my muscles are sore and my hip hurts. I'm just going for my hip now. I was only there for about 45 minutes. I don't think I'm going to be going back for another two weeks.

While I was riding the bike at PT, I could feel BOTH my kneecaps sliding in and out of place. I don't want to think the worst but I can't help it. My kneecap feels stable otherwise and the bike has never been my friend so I'm really trying not to think too much into it. My PT says it could just be from my knee not being used to being extended but I constantly keep my leg extended.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: TwoBadKneesUSA on November 14, 2011, 02:58:58 PM
Do they have an elliptical you can use instead?  If it is just for warm up, they should be able to use something else.  If it is for ROM I don't know.  Is the bike a standard one or a recumbant?  I found my knees liked the recumbant better.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on November 15, 2011, 12:51:34 AM
Yeah, I just use the recumbent bike to warm up on. It's slightly less painful for my hip than the treadmill would be. There is an elliptical but I don't know how my hip would do on that. I've only ever used the elliptical once the whole time I've gone to PT since 7th grade and hated it, lol. I've never really been able to ride the bike before my surgeries and up until like a month ago, my left knee was doing great on the bike and then all of the sudden I started noticing my kneecap hopping in and out again.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: TwoBadKneesUSA on November 15, 2011, 06:10:35 PM
Maybe they need to put the seat back a notch or two and see how that feels.  Keep the leg a bit straighter maybe?  Just having a rough time there eh?
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: KinnaMarie on November 16, 2011, 02:30:39 AM
Does the bike have handles on the side???  My PT's said I would cheat on the bike and always call me for lifting myself up slightly to help get my leg around, but it helped me go all the way around.  I would also lean to the side which also helped get it around...but I was still getting a slight bend!  Still didn't make them happy...  My thing was I was still getting movement and the blood flowing which I thought was the goal.  It was better than nothing like I am doing now. 

I have a few questions for you about your last surgery. Was it your decision to do it or did your doctor suggest it?  Did your knee feel like it was full of scar tissue and how swollen was it? Thanks!     
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on November 16, 2011, 03:08:35 AM
I'll definitely move the seat back next time I'm there, thanks for the suggestion Milly!


Kinna,

The bikes at the PT clinic do have handles but I don't hold on to them. I used to cheat with my hip, but not anymore. I think Milly is right with me just needing the seat pushed back a little more. Regarding surgery: my OS didn't suggest it, he was more like "you need this" and I didn't argue with him because I wasn't gaining flexion no matter how hard I tried and I was tired of crying at PT. †However, my OS ultimately let the decision up to me. My knee was still pretty swollen up to that point and always felt full. There's a picture on page eight of this diary of my knee a 51 days post-op (16 days before my MUA/LOA). It did feel like it had scar tissue in and overall, it was super stiff even after stretching.



I had my MRI Arthrogram today and it went really well!†It actually wasn't bad, at all. I had to wait like two hours to be taken back to get the contrast injected into my hip. Once I got back into the room, I had two new x-rays done. I have no idea why because I already had those x-rays but whatever. More radiation for me! I waited like 20 more minutes for the doctor to get done with another injection then he got started with mine. Lol there was five people in the room. I have no idea why because only two were doing anything. Soooo five people got to stare at half of my nether regions for twenty minutes. The radiologist was awesome though! He was explaining everything he was doing and told me what all the instruments were for. First, my skin was numbed. It didn't hurt at all. One of the doctors said "this is the worst part" and I told him I was used to needles then they all wanted to know why so I had to tell them about all my surgeries, lol. Then the radiologist stuck the needle in for the contrast. That one didn't hurt either, surprisingly. All I felt was pressure and it just felt really weird. I got 20cc of gadolinium injected. Then the needle was pulled out. That's it! I was sent off for my MRI after in a wheelchair, because I wasn't allowed to walk, and almost fell asleep. I love the sounds and vibrations of an MRI. They're so soothing. Haha. Overall, I was at the hospital for four and a half hours.†

And now, it hurts to walk. I can't even complete my stride so I'm walking with a peg leg. School is going to suck tomorrow.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: TwoBadKneesUSA on November 16, 2011, 04:13:13 PM
Well at least the MRI is done.  Too bad it is hurting.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on November 17, 2011, 07:27:05 PM
Now, it is the waiting game until you get the results. I read an interesting article in yesterday's NY Times. It was about hip impingement surgery and was on the front cover. If you have access to it, take a look.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on November 19, 2011, 01:48:14 AM
My hip has settled down a little bit but I've developed a limp now. I hope it goes away. But my left knee seems to be handling the compensation fine. It started bothering me a little bit in last block today but I elevated it and the pain went away a little. I haven't iced my knee in three days because I was using the Polar Care Cube on my hip but I'm going to use it on my knee tonight to get the swelling away.


Runner,

I read the article. You're right, it was interesting. It seems like the author thinks that FAI surgery is experimental.


Great news though-- I've heard back from three of the six colleges I applied to and I was accepted to all of them!!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on November 20, 2011, 04:48:19 PM
Congrats!!!!!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: TwoBadKneesUSA on November 21, 2011, 03:08:12 PM
Congrats!  Now comes the hard part, picking the one you will attend!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on November 22, 2011, 12:15:12 AM
Thanks Milly and Runner!

It won't be hard to decide if/when I'm accepted to my first choice school. I've been told by pretty much everyone that I will get in and after getting accepted into the first three, I can't see not getting to my first choice but who knows. I sure hope I get in because it would be considerably less money, about 18k a year compared to 42k (32k with the 10k scholarship I got) or 56k for the other two that I'd choose between.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: TwoBadKneesUSA on November 22, 2011, 06:03:43 PM
I hope your first choice comes through for you then!  Good luck!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on November 30, 2011, 11:53:28 PM
Saw that it's your birthday today! Happy Birthday! 17 or 18?
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: TwoBadKneesUSA on December 01, 2011, 02:17:03 PM
Happy belated birthday!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on December 02, 2011, 02:23:41 AM
Thank you Runner and Milly! I turned 18, so I'm officially an adult and can now sign all my consent forms.

Sorry I have been updating much. I really don't have that much to update. I see my OS on Tuesday to go over my MRI arthrogram results other than that everything has been pretty much the same. I haven't iced my left knee in forever! It feels good to be free from icing it every night. I went down to Virginia for a concert to celebrate my birthday last weekend and the standing and three hour car ride there and back killed my knees and hip. It took me a few days to recover but I'm back to the same old, normal me. I'm hoping my OS has a game plan on Tuesday. My left knee doesn't really hurt that much. I mean, it bothers me and it feels different and I can't lock/hyperextend it (I know I shouldn't but it's just habit). My right knee is pretty much the same and my hip hasn't changed either. I limp on and off because of my hip pain so I'll update again on Tuesday.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on December 06, 2011, 02:25:04 AM
Good luck tomorrow!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on December 07, 2011, 12:42:20 AM
Post-op day 236 from MPFLr; Post-op day 168 from LOA & MUA†

I really CANNOT believe it's been that long since my MPFLr. Some days it feels like it has been that long but when I think about it, it feels like it was just yesterday. Time really does fly.


Today was my last appointment for a little bit with my knee OS. I seriously owe him my life for having finally fixing my left knee. He has been a godsend.

Now let's get to the good/bad news-- the MRI showed a torn larbrum. And my OS thinks I more than likely have FAI because of my x-rays. He can't be 100% sure because he's not used to reading hip films/MRIs so he's sending me to his colleague who works with hips and is recommending a hip scope. It looks like ANOTHER surgery is in my not-so distant future. I see my hip OS on January 11th.

My knee OS told me to come and see him when I get my hip all figured out so I can get my right knee fixed and he wants to stay updated on my case.

I don't know if I should be upset by this or what, but I'm really not because for once, something is RIGHT there and I don't have to go searching. I think this is the quickest I've ever gotten diagnosed.

And I thought I was going to get away with not getting surgery senior year...
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: TwoBadKneesUSA on December 07, 2011, 04:10:35 PM
At least they know what is wrong and you don't have to chase all over to figure it out.  Hope it is a simple scope and they can take care of the hip so the other knee can get fixed.

Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on December 07, 2011, 09:52:56 PM
Good luck with the appt. in January. Glad your OS has the smarts to know that you need to see a hip specialist instead of thinking he's a can-do everything doctor.

My Aunt who has had a hip and a knee replacement said the hip was much easier (but those procedures are drastically different from anything you have ever had on your knee or will have on your hip) lol.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on December 08, 2011, 01:00:22 AM
Thanks for the support!

It's weird that the hip OS I'm seeing in January is the one I was supposed to see after the OS who did all my surgeries said he could do anything for me and the guy he recommend me to said the same thing. I just looked him up on my insurance's website but my dad didn't want to take me there because of where his office is located. My knee OS is like three minutes from my house, but alas, I am seeing him anyway.

I'm anxious for my appointment.

I'll still keep you guys updated, if you'd like.

Also, I'm completely done with PT as of now! That was a long seven months.

And AWESOME news-- I got accepted to my first choice school! Looks like I'm going to college.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: KinnaMarie on December 08, 2011, 02:42:38 AM
YaY on finally getting some answers, being done with PT, and getting into your first choice!!!!! 

Like we have said before, we both kind of wished they would find something so they can fix it, so it is great that you have found answers and are taking steps in the right direction.  Also like Runner said, it is good your OS has the "smarts" to sent you to someone he knows will be able to help you.  My OS has decided to send me out of state to find answers because he has reached the end of his rope.  At first I was mad that someone was giving up on me again and I emailed him saying I refuse to go where he wants to send me. But after I saw him again a week later he was clearly frustrated and even swearing....and I ended up walking out crying....but he gave me a reality check and said he can't do anything more but he will not give up and will stay with me till this is figured out.  Best of Luck to you with your January appointment!!!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: TwoBadKneesUSA on December 09, 2011, 03:26:41 PM
Congrats on the school acceptance.  As for the hip at least you are going to see someone who can help you.  Keep up posted please.

Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on December 11, 2011, 02:08:34 AM
Thanks guys! I'm so happy I got in.


Kinna,

I really hope you get this figured out! It's terrible that none of the doctors you have been to have any clue what it is. Good luck with the out of state doctor.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on December 15, 2011, 12:05:21 AM
EIGHT months post-op MPFLr; Post-op day 176 from LOA & MUA

Itís been a long eight months but I feel like just maybe I can finally say ďIím better.Ē Yeah, sure my knee still gets swollen and hurts if I do too much but Iím not constantly in pain and my kneecap is stable. My knee will never feel normal and, I think, Iím okay with that. My knee feels better than it has ever felt in the past four years. I just hope it lasts.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on December 15, 2011, 01:11:10 AM
Ahh don't say that! That means I'm 11 months post-op!!!  :o

Congrats on the school acceptance! Now, you have where all sorted out...now it's financial aid fun!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: TwoBadKneesUSA on December 20, 2011, 04:52:54 PM
Well it has been a long road has it not?  The sore and swelling may last a really long time.  Glad it's going so well for you!

Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on December 26, 2011, 01:47:15 AM
It really has, Milly! I hope it'll end before I go to college or at least get a little better.

I hope everyone is enjoying the holidays!

I thought I would share my new tattoo... I've become somewhat rebellious since turning 18, haha. I got my nose pierced three days after my birthday and got my second tattoo on Friday (the 23rd).

(http://i40.tinypic.com/24ng2v7.jpg)

It says 'Impervious' which means unaffected by. After all I've been through and still am going through, I've tried to remain positive and unaffected by all of it so there you go. Of course, this is just the shorten version, it has deeper meaning but, ya know.


My left knee pain is about the same. It comes and goes but it is so much better! However, my hip and right knee are not better, at all. My hip is so bad. I can't wait to get it fixed. I see my hip OS in 16 days!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: lisa424 on December 26, 2011, 04:45:53 AM
Love your tattoo!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on December 27, 2011, 02:37:34 AM
Thank you!!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on December 27, 2011, 05:01:33 PM
I hope you are able to get everything sorted out before college! I wish I did.

Nice tattoo! I'm 18, too, and have none and no piercings besides 2 in each ear.

Good luck at your appt in January. Haha I know it's early, but never too early for good luck wishes.



Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on December 28, 2011, 03:36:26 AM
Thanks Runner!

I think it's weird that I don't have my ears pierced but have two tattoos and a nose piercing...but I would never wear earrings so, haha.

I'm definitely hoping to get this sorted out before college. I'm seeing my knee OS after my hip is all figured out and healed (hopefully!) and I'll see what he wants to do.


Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: TwoBadKneesUSA on December 28, 2011, 03:16:17 PM
Like the tattoo.  I think I can gather most of the meaning.  Hope you can get things all sorted before college in the fall.

Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on January 05, 2012, 08:53:39 PM
I flipped back in your diary to see your apt is the 11th, but for some reason, I have Jan. 6th stuck in my memory. The 11th is still close though!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on January 06, 2012, 02:36:49 AM
Ugh, Runner! How I wish my appointment was sooner! I called them about two weeks before Christmas break and asked if he had anything during that week and the scheduler said the 11th was the soonest.

I'm kinda angry at my knee OS for not just telling me I had to see someone else for my hip over the phone. Instead, he made me wait three weeks just for him to walk into the room and tell me that. I could've gotten my appointment sooner >:(

I think I can get the world's most impatient person award.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: bball123 on January 10, 2012, 08:51:24 PM
good luck at your appointment tomorrow! i'll be hoping for good news for you!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on January 11, 2012, 11:50:54 PM
Thanks bball!


SoÖit didnít go as I was hoping or expected it to go and, at first, I was pretty pissed off and my doctor could tell but after explaining what was going on more and answering my questions and having time to think about everything, Iím more confident that this may work. Although, this is going to take MUCH longer than I wanted it to. I just want this whole hip ordeal to be over and done with. I wanted to start college off and not be that girl thatís hurt but it looks like thatís how itís going to be and Iím just going to have to accept that. Now onto what happenedó

Basically, I need to get a cortisone injection first to insure that fixing the tear and whatever else will alleviate my pain. So I have to wait a full three months to see what happens with the shot and whether it has taken away my pain or not. If it has, my Ortho said that thereís a good chance that surgery will work. His reasoning for all of this is that because Iím hypermobile, my hip joint has a chance of becoming unstable after surgery due to the traction used. Overall, there is 50/50 chance that this is/isnít going to work and the cortisone shot is supposed to better those odds.

He said that the cortisone will give me relief for my senior trip which is what I really wanted short-term. There is no way I could make it around the park with the way my hip is now. So, Iím waiting for the hospital to call me about my appointment to get the cortisone injection then Iíll make a follow-up during my spring break.

Iím also pretty sure he was trying to scare me by saying that if I had surgery, I would be non-weight bearing for two months. He was either making that up or his protocol is super conservative because Iíve read about people having hip scopes and they were not on crutches that long. And he knew all about me before he even walked into the room because my knee Ortho called him and talked about everything, haha.



So yeah...No surgery, if any, until summer. Which is good, I guess. But then this throws off my knee Ortho's plan to address my knee this summer. I'll visit him towards the end of April or beginning of May and see what his plan is. If it's surgery after reviewing my CT scan again or running more tests, that'll have to wait until winter break next year.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: TwoBadKneesUSA on January 12, 2012, 01:20:48 PM
Well sorry you did not get the news you were looking for.  The hip ortho may be thinking you need to be non weight bearing longer since you are hypermobile and maybe that would make things worse to put weight on it too soon? Hope the shot gives you some relief at least.  It is hard to have to go with a longer term plan when you want to go to school and just be better.

Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on January 12, 2012, 06:53:37 PM
Bummer that the appt. didn't go how you wanted it to :/

Good luck with the cortisone...I personally got no relief from it with my knee. Your hip will probably hurt more in the period immediately after the injection...at least my knee did, but they also drained it at the same time so. Hope you can get the appt. soon. Waiting stinks. Why couldn't he do it at the appt you had then?

My 30 y/o cousin just had hip surgery. Torn Labrum and bone shaving. It was a lot worse than the doctor initially thought. He said my cousin will need a replacement very soon. I'm wondering if it's genetic since my aunt has had both a hip and knee replacement.

Wow. NWB for 2 months! What hip is this again? Hopefully, the other knee can handle it, too. Maybe a wheelchair would have to do for a while.  I have actually never been told to be NWB...I have always had been allowed some degree of weight bearing and I have had both soft tissue and bone work done.

Hopefully, things fall into place for you. Yup, right now, I am that hurt girl at college, but people don't really notice too much unless you are hobbling around on crutches or in a gigantic leg brace. The janitors in my dorm though always think I hurt my foot or something...I just smile and say I'm ok : p

Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on January 13, 2012, 12:30:12 AM
Milly,

I was thinking the exact same thing about the hypermobility and needing to be NWB for longer. I'll definitely ask when I see him again.


Runner,

My OS said that I should get immediate relief regardless of if the cortisone is going to work because I'm getting something to numb the joint as well and that should last for at least six hours or so. But I have to wait for it because he doesn't do them, I guess? I know he isn't doing mine. I'm seeing a physical medicine doctor for it.

I was very surprised too and everyone I've talked to about it, can't believe that I would be NWB for two months for a torn labrum. It's my right hip so the knee I've had all the work done on would have to hold up for a while, which I think it would. I was NWB for a month after my medial reefing surgery and it wasn't that bad, to be honest.

I guess you're right about people not noticing too much unless you have some sort of aid. I know that I get questioned at my school sometimes about why I need the elevator...even after having three surgeries during the school year. So my limp isn't that noticeable.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on January 13, 2012, 03:18:29 AM
So after talking to someone who has had their labrum repaired after having a partial tear, like I have, it seems as though my hip OS was talking about repairing my labrum and not just removing the torn portion, hence, the NWB for two months since the labrum is like the meniscus of the hip, in that, it doesn't have much blood supply and takes a long time to heal once repaired.†
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: TwoBadKneesUSA on January 13, 2012, 04:47:44 PM
AH!  Sounds very much like the difference between a meniscus repair vs a trim.  I can see why he would want to try a repair at your age.  Now in my "old" age the doc would probably just trim it up and let the arthritis take over.  LOL  I don't know actually just making stuff up on that one.   Hope the shot gets you some relief.  Personally I have noticed a temp improvement with the numbing agent and more pain for few days before the cortizone kicked in.  Again personal experience with my back anyway.  It never did much for my knees.  I actually got flares the last two times we tried it for my knees, so I decided we would not be doing that any more.

Good luck and let us know how it goes.  Ok?

Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on January 14, 2012, 12:25:15 AM
Milly,

I think my hip OS is thinking about a repair also because the tear is just partial and not full. And I kinda expecting that after the numbing stuff wears off that I'll get more pain in my hip before it, hopefully, feels better. I'll definitely keep you guys updated.


I still don't have a date for my cortisone shot. My mom missed both phone calls yesterday, I don't know why. My dad called back today and the doctor that my OS referred me to doesn't take my insurance. I don't understand that because he works at the same hospital and they accept my insurance. Oh well. They're going to call back Monday with a referral to another doctor.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on January 16, 2012, 08:12:19 PM
Any progress in getting the cortisone shot? My orthopedic was the one who did mine so it's weird that yours won't do it. The physical medicine doctor maybe will use ultrasound to see it and get it to a more precise location? At least, that's what my physical medicine doctor was going to do with using an ultrasound to do a nerve block.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on January 17, 2012, 01:03:57 AM
No progress. I was told to call back today if I hadn't gotten a call back and I when I did, the people were out of the office for MLK day. Ugh. So I have to wait until tomorrow, hopefully.

But, I guess my hip OS doesn't do them because with any hip injection, to be safe, it needs to be done under ultrasound or fluoroscopy.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: DebraJean on January 17, 2012, 02:41:31 AM
Oh kate!! I'm so sorry your hips bothering you along with your rt knee!!  Here you have been helping me and your still dealing with LOTS of things.  Sending you good juju, vibes and everthing else to help you! Love your tat! I'm too chicken to get one.  Deb
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on January 17, 2012, 03:40:38 AM
Thanks, Deb ;D I appreciate it! I've been going through all of this for awhile, it'd be weird NOT to have something bothering me. And you'd be surprised, that tattoo didn't hurt one bit. Now my foot tattoo...that's a different story! Haha.

I hope your knee is continuing to improve!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: TwoBadKneesUSA on January 17, 2012, 03:15:11 PM
The hip joint is deep rather than close like a knee.  The will want to use the floroscope to make sure they get the meds where they need to go.  Hope it works out.  I have found medical insurance to be a bit odd.  The hospital may take your ins, but individual docs can choose not to take it.  Weird and frusterating.

Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on January 18, 2012, 02:06:16 AM
Yeah. I think this is going to be done under floroscope rather than ultrasound but I have no idea! The hospital called today to schedule me but they forgot that the doctor I was referred to doesn't take my insurance so I was told to call back later, which I did. I was told that "someone" in my Ortho's office will be doing the injection. It may be the doctor I was referred to and they'll just bill him through a different department. I'm supposed to get an appointment tomorrow. Fingers crossed!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on January 19, 2012, 01:13:04 AM
Good news! My cortisone shot is tomorrow morning at 7am. Bright and early. I can't think of a better way to start my day, haha. And I'm not allowed to go to school afterwards.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on January 19, 2012, 02:29:51 AM
Awesome! Good luck! Let us know what it's like!

I haven't seen a doctor for my knee in 5 months! The part of me that wants to stay with my current doctor is stronger than the one that wants me to get my knee fixed. What would you do, Kate, if your current knee OS left?

A girl I went to high school just had her ACL, MCL, and MPFL reconstructed yesterday along with a meniscus repair. Ouch!! If she gets better before I do, I'm going to be extremely disappointed.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on January 19, 2012, 02:40:44 AM
Thanks, Runner!

Hmm, that's a tough one. First off, I would be depressed because my current knee OS is awesome and the best OS I've had so I would probably cry...not even exaggerating. But, in the end, I would find a new OS because if you ignore knee problems, they just get worse (most of them time).

It's difficult to find an OS that you like who is also great at what they do but maybe you'll luck out again, if you decided to find a new one. Who knows?

Ouch is right! Do you know how she managed to tear all of that at once?
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on January 19, 2012, 02:52:11 AM
Did they tell you if it's going to be done under the fluoroscope? I can't believe your appt. is so early!

I just wish I knew if he was going to be practicing again soon! I'm afraid to get a new one because I feel like they won't understand my knee and will push me off since I don't have a torn ligament or anything serious like that.

Maybe I should just travel the several hundred miles to go see yours :p

Well, that was the third time she hurt her knee. First time, it was patella dislocation and MCL. Then the same thing a year later plus a minor ACL tear I guess since she never had surgery. She recovered really well from both. Then, I guess she did all of that on just a lay-up in basketball... must have landed wrong.

When is your trip again?
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on January 19, 2012, 03:17:01 AM
I have a feeling it is going to be done under fluroscope but I'm not entirely sure. All I know is that I have to be there at 6:30 to register which means I have to get up at 5am :( I usually wake up at 8!

It would be nice to have a definite answer. Maybe you could see someone else to see what their opinion is. You said you wouldn't do anything surgery wise until Spring break anyway, right? Maybe then you'll know for sure what your OS is doing and know where to go from there?

Haha! My OS is wonderful so maybe you should :)

Oh, man. That's rough! I hope she has an uneventful recovery.

I leave April 20th and come back on April 23rd. It's not that long but, hey, it's going to be a lot of fun! I see my hip OS again the week of my Spring break, we're aiming for April 4th. That way, if my cortisone shot has worn off, I can get another.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on January 20, 2012, 01:09:36 AM
I got my cortisone shot!

I got up at 5am because I was supposed to be at the hospital by 6:30ÖYeah, I was super early and radiology didnít open until 7:30 even though I had a 7am appointment so after I registered, I just sat there. But after that, it was all fun and games! Seriously, the nurses and nurse practitioners at the hospital were awesome. They were all making fun of the one NP for dyeing his hair orange. I couldnít stop laughing the whole time. Apparently, they take cortisone shots very seriously. I was prepped like I was having surgeryó no breakfast, blood pressure cuff and all. I was taken back to an OR because thatís where the fluroscope is. The doctor who did the injection is really good at his job. The only thing I could feel was the Lidocaine. I was surprised when I saw the contrast going into my joint on the screen because I didnít even feel the needle go in. I felt immediate relief. But, now that the Lidocaine has worn off, my hip is killing me. I do not want to move. I have a pretty sweet limp right now.

The doctor walked out of the room way ahead of me and told my mom that he would have been done twenty minutes sooner if we werenít socializing. The NP said that he admired how focused I am on my career/determined to become a doctor because he had no idea what he wanted to be when he was 18.

And I follow up with my hip Ortho on February 1st.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: DebraJean on January 20, 2012, 03:42:45 AM
Kate, hope the shot works for you.  I don't know much about hips but wishing you good luck!! Deb
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: TwoBadKneesUSA on January 20, 2012, 01:54:40 PM
At least you know where the pain was originating from.  It may take up to a week for the cortizone to really work.  I hope it does and gets you some relief for a while.

Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on January 20, 2012, 05:40:47 PM
Hope it helps!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on January 21, 2012, 01:54:36 AM
Thanks everyone!

My pain has settled down a lot from yesterday, thank god! I really did not want to move most of the day yesterday. But today, my hip is hurting on and off and some movements really hurt it but I'm not expecting the shot to take effect yet. Like you said Milly, it takes up to a week or even longer to start working.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: DebraJean on January 25, 2012, 05:18:01 PM
Hey Kate, how's the hip?? Hope the shot has kicked in and working for you. Deb
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on January 26, 2012, 02:11:39 AM
I think my pain is improving! I was actually able to sit on my computer chair for a little bit. Usually, Iím in pain the minute I sit down on it. School hasnít been that bad but I donít know if thatís because I donít have to sit on stools anymore. My hip is still cracking/popping though. It also still hurts when I lay in bed but it hasnít been hurting me too badly at night when Iím trying to sleep.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: TwoBadKneesUSA on January 26, 2012, 01:53:56 PM
Sounds promising!  If there is a tear in there, that may be the popping you are hearing.  Hope it gets better for you.

Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on January 26, 2012, 06:29:22 PM
Glad you are getting some pain relief finally!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on February 01, 2012, 02:09:54 AM
Good luck tomorrow!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on February 02, 2012, 01:47:18 AM
Thanks, Runner!

So, as you all know, I had a follow-up with my hip OS today after getting my cortisone shot. I left with the diagnosis of: multidirectional hip instability, hip impingement syndrome, and a torn labrum. I think my Ortho adds to the list every time Iím there. I seriously cannot catch a break. Like I need more instability in my life. And the best news is: I AM BACK IN PHYSICAL THERAPY. Can you tell how excited I am? I go back to my hip OS in two months. I have noticed a significant improvement in my hip since getting the cortisone. I can actually sleep through the night. I had no idea I was waking up because of the pain but I've been sleeping through the night since the pain has gotten better. Sitting in school is better, as well.

My operative knee has been holding up pretty well! It's awesome. My knee felt almost normal yesterday. I didn't even feel like anything was wrong with it until I touched it and noticed I couldn't feel me touching it. Then I was like, "oh yeah! I had five surgeries!" It's so weird knowing that maybe my knee will be almost normal. I have been getting more achy pain lately a lot of my joints because of the cold weather especially my right knee.

And I thought I'd share this with you guys. I had to write a boast about something for English and I wrote about being a master of crutches.

† † I, Katelyn, connoisseur of purple walking sticks

† † Have acquired a skill that many people do not need.

† † An ability so mastered that it comes natural to me.

† † Learning immediately after being under the knife for the first time.

† † Perfecting it after the four operations that followed.

† † I stealthily swim through the scholarís safe haven hallways.

† † People part, like the red sea,

† † When they observe me crutching.

† † Dipping, dodging, and ducking,

† † Vehemently avoiding an assail from those who ignore my presence.

† † Clicking and clacking constantly from class to class.

† † Hopping haphazardly up and down harsh steps.

† † Resolute to conquer the stairs,

† † No matter how arduous they may be.

† † Hours and hours of trekking wear me down.

† † But I must be strong and press on,

† † Until that final bell rings and I can go to my humble abode.

† † Lazy and lethargic, I never want to leave my throne again.

† † But then the day comes when I no longer need my crutches.

† † That is, until the next operation happens.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: TwoBadKneesUSA on February 02, 2012, 01:21:26 PM
Glad the hip is feeling better.  Hope they can help without surgery (if at all possible).  Like the poem.

Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on February 03, 2012, 02:30:12 AM
Thanks, Milly!

I've decided to get a second opinion about everything going on with my hip. After reading the office note from my hip OS, he wrote that I shouldn't expect any significant improvement in my symptoms (popping, clicking, pinching, and instability). I refuse to believe that none of those will get better so I'm calling another OS tomorrow.

I don't think I mentioned it-- My PT eval is on Wednesday for my hip.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: TwoBadKneesUSA on February 03, 2012, 03:15:22 PM
It may be that the tear will have to be addressed surgically, depending on where it is. I would think like a meniscus you know.  Maybe the doc is thinking the hypermobility may be a factor.  It cannot hurt to get another opinion though.  Good luck!

Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on February 03, 2012, 11:15:03 PM
Good luck with pt! Have you had the same pt all this time?

Nice poem; it's so true! I used to write a lot in high school. I was the editor for my school's literary magazine. I haven't done as much creative writing in college.

I would get a second opinion, too, even if he just agrees with the first guy. Why is he having you try pt and not surgery? Does he think therapy can help the labrum? Is it in a spot where it can heal on its own?

Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on February 04, 2012, 03:34:37 AM
Milly,

That's the thing though, my hip OS doesn't think the labral tear has anything to do with my pain and that it was there before and PT just flared it up. He really does not want to do surgery because of how hypermobile I am. The two times I've seen him, he's said that my hip moves way more than it should. It doesn't make sense that I would be diagnosed with hip impingement (FAI) and a labral tear, two things that can be fixed, that are very pain, and cause more instability yet my OS doesn't want to touch it.


Runner,

Thanks...I am not looking forward to going back. I've been going to the same place since I started PT in 7th grade.

I'm glad you can creatively write! I suck at it. It took me forever to write that. I'm better at writing things about things I can make up or things I can research.

Like I said to Milly, my OS is really hesitant to do surgery because of how hypermobile I am but I can't live with the pain if it can be fixed. PT can help reduce symptoms along with the cortisone shot by strengthening and that will help the instability also but the tear will never heal itself.



So I made an appointment with another OS. I had two in mind, one being one of the better hip surgeons in the country, neither take my insurance. Then, combining my insurance and where I've already been, it narrowed down the hospitals to one...my old OS who did the first three surgeries on my knee. I am so conflicted about this appointment. I mean, I'm happy that I can get a second opinion but I don't know how seriously I can take him after what I've been through with him. And plus, he's just a sports medicine doc so I would never let him operate on me if that time comes. Just so you guys know, it's really difficult to find a hip specialist.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on February 05, 2012, 12:48:52 AM
I forgot to mention that my appointment with the second opinion OS is on Feb. 21st.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on February 09, 2012, 02:33:36 AM
Good luck with your appt. It must be strange to be going back to your old OS!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on February 09, 2012, 02:58:04 AM
Runner,

It's definitely strange...I really don't want to see him. My mom is excited to go back and brag about my current knee OS, haha. I'm really nervous for my appointment.


I had my PT eval today for my hip. Same old, same old. I have to wait for my insurance to approve PT before I can schedule my visits. They were all happy to see me, I can't say the same... Not that I don't like them, I just don't want to be back! Sad news though, my cortisone shot is definitely wearing off. I got almost a month out of it. My hip OS said I should expect three. Haha.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on February 12, 2012, 03:57:49 AM
I had to go on a pilgrimage around the city today for my English project since we're reading The Canterbury Tales. Anyway, it was tons of fun except for the pain. I wish it would stop ruining everything. My hip pain was awful. It started even before I left my house. I probably shouldn't have worn boots but I wanted to look cute. I would've been in pain regardless. My knees hurt, too. I think my left (operative) knee mostly hurts because, whenever we would stop, I would stand with most of my weight on my left leg...which is weird because it used to be the opposite. I guess that my right hip/knee pain has gotten so bad that I can't do that anymore. I never noticed this until I saw all the pictures I took today and in every single one my right leg is bent and acting more like a kick stand.

Oh and my PT eval on Wednesday must've really worn the cortisone shot off because I have been in more pain since then. Dang. I was SO sore after it then, after the soreness wore off, it hurts to internally/externally rotate my leg again.

I guess it's time for icing and pain meds after my long day. I hope everyone is having a nice weekend!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on February 18, 2012, 01:58:39 AM
I've had PT for my hip for two days. Pain galore and new torture methods! My therapists are doing this thing called hip distraction where one of then pulls on my calf with all their body weight (today my therapist strapped herself to my leg with a belt) and it hurts! I guess the goal is to help the impingement but it just hurts my hip more and makes it feel like it's going to dislocate.

But my knee is holding up pretty well! It started to swell today because when I went to bend my knee, my skin hurt (from the nerve damage). My knee didn't hurt though so that's good. The only thing that bothers my knees is the bike. I don't think I'll ever be able to ride a bike.


(http://i39.tinypic.com/1zgvn0g.png)

10 months and 3 days post-op MPFLr.

7 months and 27 days   post-op MUA/LOA.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: TwoBadKneesUSA on February 20, 2012, 03:15:45 AM
Your knee looks as battered as mine!  Poor thing.  I had some hip PT before, I had IT band issues cause my pelvis was twisted.  Yeah no fun!

Take care.

Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on February 21, 2012, 01:42:49 AM
I don't mind the scars! It's just another story to tell. And you're right, hip PT is no fun. I plan on asking the hip OS I see tomorrow if it's necessary because my hip pain is just getting worse.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on February 22, 2012, 01:19:08 AM
Saw the OS today. As I mentioned, he did the first three surgeries on my knee and, of course, he was curious as to what was going on with it. We talked about my knee for a little bit and he examined fully then gave his approval after discussing with the resident how my knee OS technique for MPFLr is different than his. He thinks I should get surgery on my hip since the tear isn't going to heal itself and because of how much pain I'm in. He thinks I would benefit greatly from the surgery and doesn't understand why my hip OS won't do it because, according to him, the hypermobility doesn't play that much into this. However, he can't do the surgery because he's only done a few hip scopes. He said there's three Orthos in the city that do it. Two of them don't take my insurance and the other is my current hip OS. Lucky me! So I'm going to make another appointment with my hip OS to see what is plan is and if he won't do the surgery, I have no idea what I'm going to do. And, he ended up calling me around 5:30 to apologize for rushing me...I didn't even feel rushed. I thought that was really nice of him. He said that if I have any trouble finding a doctor or getting an appointment, he'd make some calls for me. Oh, and he said that surgeons probably don't want to touch me because of all of the complications I've had with my knee surgeries. Haha
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: TwoBadKneesUSA on February 22, 2012, 02:19:27 PM
I've found that quite often a doc wants you to have some PT before they do a surgery.  It may even have to do with insurance, some won't pay for surgery until all the conservative treatments have been tried.  It can't hurt to have the knee OS send a note over to the hip OS.  Hope they figure something out soon.

Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on February 23, 2012, 01:33:39 AM
I did PT for my hip from September to December and my hip only got worse. My hip OS didn't even want me in formal PT this time, I asked for it. At this point, I've done all the conservative treatments. But with my insurance, I could see them denying it because they deny everything else.


I called for an appointment to see my hip OS today and they gave me April 25th...as in, two months from now. Not acceptable. I am in so much pain. I can't sit or lay down on my pain. All I can do is lay on my stomach. He said to come back asap if my pain got worse and I don't think two months is asap.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on February 24, 2012, 01:29:57 AM
I got my appointment changed to March 7th...magically. I have no idea what's going to happen, but I am so happy that I don't have to wait two months.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on March 02, 2012, 11:35:55 PM
The main scar on your knee is like the exact location and shape (mine might be a tad wider and more purple) of my MPFL. I don't have the one over the condyle though. I have one that looks like the MPFL one, but longer right underneath my knee for the TTT. I should take a picture of mine sometime since I haven't in so long! All the pictures make my knee look weird though.

Doesn't it stink when there's some doctors who are nice, but not knowledgeable about what you need and then the ones who are don't seem to understand you? It's hard to find the right combination if you know what I mean! I had found one, and then...you know the rest :/

How are things? How's the college process going?

I'm on spring break, but instead of spending it someplace sunny and warm, I am stuck with several papers to do including ones on physician-assisted suicide and doctor-patient relationships.

Good luck at your appt. this coming week!

Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on March 03, 2012, 01:09:55 AM
You should post a picture! I'm always curious about other people's scars.

I REALLY lucked out with my current knee OS. I love him dearly. I feel terrible that you've lost contact with yours :( Are you doing PT now that you're on Spring Break? Or finding a new Ortho? I'm hoping my hip OS warms up to me... Although I read my insurance's out-of-network policy and they HAVE to cover one of the other Orthos that they currently do not if mine can't help me since there's only one in-network.

My left knee has been bothering me the last few days...it's a little odd because it rarely does besides a few twinges here and there. It's been stiff and swollen. My right knee has been the same. I'm seeing my knee OS on April 2nd to see what's up with it and the plan. My hip is back and fourth between bearable pain and "I have no idea what to do with myself" pain. It's crazy. I actually got this thing from Breg in the mail today for my ice machine. It will hold the ice pad on my hip instead of me trying to do weird things to get it to stay. I'm sad Breg doesn't have an ice pad specifically for the hip for the Polar Cube. They have them for other models.

I'm actually putting my deposit in within the next two weeks for college! So excited!!

Spring Break and you're doing papers?? You actually have to do work?! My school isn't allowed to give students work over break and deadlines have to be a day or two after break ends.

And I got my prom dress! No heels again this year.

(http://i40.tinypic.com/104m1x4.png)
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: TwoBadKneesUSA on March 03, 2012, 01:58:06 AM
Nice dress, very pretty!  Glad Breg at least sent something to help keep the ice pad in place.  I think most insurances will cover if there is no other provider of that type or that can do a specific procedure as in network.  Hope they can get things done before college in the fall.  Stating college is so exciting!

Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on March 04, 2012, 03:10:48 AM
Thanks, Milly! I love love love my dress!

I wish Breg would have sent that to me...I had to pay 35 dollars for it altogether. It's worth it though. The ice feels amazing on my hip.

I am praying that I get my hip fixed this summer. I can function pretty normally with my knee. It doesn't prevent me from walking all that much because I'm used to that pain. I just can't do anything considered active with it. However, my hip pinches and hurts like heck when I walk.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: TwoBadKneesUSA on March 06, 2012, 02:31:55 AM
Hope the hip gets taken care of this summer.  It is a drag to not be comfortable walking, sleeping or anything.  My back does the same thing to me.  The left knee is great, but the back keeps me from doing anything. 

Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on March 07, 2012, 03:43:20 AM
I agree with Milly in that I love your dress and that I hope you can get your hip sorted out this summer!

I am not doing PT over break. I was thinking about going in for an eval, but then I convinced myself to put it off and that my knee problems are minimal compared to how bad it could be. I need to stop talking to myself that way though. If I can't run and do the things I use to, then my knee is still a problem.

I go to the gym ever day at college if I can. I start with treadmill walking, then at least 10 minutes of stretching, then hip bridges, ab work outs, upper arm, etc. I can't use any of the leg machines though (there's hamstring curl, leg extension, leg press). Pretty sure I'd break a leg if I tried to leg press :p Since my school has a PT program, they email students to get participants for their research studies. The most recent one was about hamstring flexibility, but I'm pretty sure having 2 knee surgeries would automatically disqualify me.

I really do miss my OS. I don't know what he's doing and it confuses me on to why he told me he was joining this other practice if it's been nearly 5 months and he hasn't. I am writing a paper for my sociology of medicine class about doctor-patient relationships and we have to include our own experiences with our physicians and since my knee doc was the doctor I saw the most often I am writing about him. I laugh because one of the things mentioned in my textbook was how the Internet is changing the role of physicians and patients in the relationship. It talked about how support groups are forming for people with similar diseases and disabilities. Sound familiar?
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on March 07, 2012, 03:44:17 AM
Oh, and good luck with your appt. tomorrow!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on March 08, 2012, 01:28:22 AM
Thanks, Runner!

How bad is your knee compared to how is was before? I actually just started going to the gym, mostly to tan, but I did an upper body work out on Monday and I'm still feeling the after effects! I'm so out of shape. I want to tone up my arms for prom. I didn't dare touch the leg machines. I didn't want to hurt my hip. Does your school have a program where you can do PT there if you're injured or had surgery?

Hip Ortho--

I told my OS about how the cortisone shot lasted for about 3-4 weeks and ever since itís worn off, my pain has gotten worse. So he opened up the option of surgery. He said that since the cortisone worked for a few weeks, I can expect improvement from the hip scope. In the mean time, I have to do PT until I see him again in May to make the surgery final. Iím basically forming his schedule for the surgery because he only does hip scopes once a month and, well, Iím going to be that surgery. When I see him on May 23rd, Iíll fill out all my paper work for surgery and get the date...it'll be late June.

Iím not allowed to get anymore cortisone shots because they damage cartilage if you get too many in a short period of time and he said they arenít worth it for me since I didnít get that much relief. I got a prescription for Tramadol and I have Vicodin in case my pain gets really bad. Iím hoping this doesnít interfere too much with my senior trip (43 days!).

For the surgery, itíll be outpatientÖwhich sucks because hip scopes†are usually a lot longer than any other kind of scope (about 1.5-3 hours) and if Iím under for more than an hour, I get the worst side effects from anesthesia. Iíll be on crutches for at least six weeks (forgot to ask if I would be NWB or PWB) and in PT for 4-6 months depending on if my labrum is repaired or removed. Yay for PT while in college.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: DennisKnee on March 10, 2012, 09:54:56 AM
Kate,

Pleased to report that I've finally read through your entire post op diary so I'm up to speed. I have to admit that I'm exhausted from just reading through the trials and tribulations of that knee of yours and to add insult to injury, now your hip! Crazy!

1. I can't believe you guys can get painkillers from Target! TARGET! That's the coolest!

2. By the time you graduate from Med school, you'll be covered in tats at this rate. Lol! Be careful, they're addictive  ;)

3. How the hell do you tan at a gym? What the? Good on you for getting back there to start some upper body training though. Your dress is perfect to show off some lovely arms!

It's been a great read and a valuable insight into a few things that I may potentially encounter along the way. I look forward to the day when I'm running around, dancing with friends and training at the gym again......

Soon! Well, soonish  :)

Karen

Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on March 11, 2012, 04:22:46 AM
Kudos to you on getting through my diary, Karen!

If you don't mind me asking, where are you from? All of the Targets around me have pharmacies and now they're adding produce and vegetables so they're more of a supermarket.

Haha, I just might be covered in tattoos by the time I graduate! I am already planning my third tattoo. Although, they're all hidden, for the most part.

The gym I go to has tanning booths! It's way cheaper to go there because it comes with the membership. It's $20 a month to go to the gym and tan and workout as opposed to going to a tanning salon, which is like $60 a month. My dress is the only reason I'm toning up my arms! Haha.

I'm glad my diary has helped. When I started this, no one had one that went past a few months so now there's one on here that goes on for almost a year.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: DennisKnee on March 11, 2012, 04:54:32 AM
I live in Sydney, Australia so unless you're looking for clothes, homewares, books or computer games, then Target isn't for you!

The end of 2014 will see the use of tanning beds/booths outlawed over here - food for thought  ;)

Well, I've got a uniform to iron so I'd best go organize myself for my return to work tomorrow.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on March 12, 2012, 12:49:01 AM
Oh, Australia! How fun! You all are missing out because of your Targets. I go there at least three times a week, it's a problem.

You guy don't need tanning booths! Haha. I'm only tanning for prom. Usually, I'm pale as a ghost. The US started taxing tanning either last year or this year.

Have a good day/week at work!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on March 16, 2012, 11:16:08 PM
My knee is better than it was before surgery don't get me wrong, but it just isn't normal yet. It has the flexed gait when I walk and don't even think about loading it single-legged. I can't bend it all the way and it always has a puffed up look. It's not like fluid looking swelling, but just thicker and pudgier if that makes sense. I found my MRI report from August the other day. Just to refresh the only things it picked up were the partial cartilage loss, a chronic osteochondral injury of my inferior-medial patella, and multiple bands of decreased signal in my hoffa's fat pad. I think that is what my OS said was scarring, but there were no balls of scar tissue.

At my school, there's a program for people to earn their Doctoral degree in PT, but as far as I know, I don't think any colleges offer physical therapy to their students. The only health related resources for students are the wellness center for minor illnesses and athletic trainers. Athletic trainers, however, can only work with athletes.

Hopefully, your hip has a smoother road to recovery than your knee!

Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on March 17, 2012, 12:15:43 AM
Have you thought about getting it checked out by a different OS? Or are you trying to just forget about it for now?

I'll definitely have to ask my college (I put my deposit down on Monday!) if there's a program. If not, I'm not too far from where my OS is. I'm actually going to the college affiliated with the hospital both my hip and knee OS work at.

I'm hoping my hip recovery is better but, with me, it probably won't! The OS I saw for a second opinion said that I'm notoriously known for having complications.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on March 25, 2012, 12:36:55 AM
Post-op day 345 from MPFLr; Post-op day 277 from LOA & MUA

I don't know if I mentioned it but I got kicked out of PT for my hip. My hip OS wanted me in PT until I have surgery in late June but since I wasn't progressing, they told me not to go anymore. I'm never going back there again. I'm going to a different place for PT after I have my hip surgery.

Anyway, my left knee has been hurting me for the last two weeks  :(  I don't know why! The only thing I remember doing out of the ordinary is doing leg presses at the gym one day. But I only did sixty-- 30 with two legs, 30 with just my left. My knee didn't hurt initially and didn't hurt until days after so I have no idea if it was that or not? My knee was feeling awesome before all of this. Sometimes I even forgot that I had so many surgeries. I was soooo excited to see my knee OS on April 2nd and tell him all about how great my knee feels but now this has happened. It keeps getting swollen ALL the time. I always sit with my knee elevated and it still swells.

Does anyone have any ideas??


(http://i43.tinypic.com/105xvd1.jpg)

that's my knee after sitting with it up for a few hours.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: KinnaMarie on March 27, 2012, 03:25:40 AM
Hey Kate!

My knee (swelling wise) looks the same way!  Does your calf also swell?  Just to let you know that your not alone with getting kicked out of pt...... :) 
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on March 28, 2012, 02:06:50 AM
Hey Kinna,

I haven't noticed my calf swelling but I didn't really pay attention to it. I'll definitely look at my calf the next time my knee swells that much. And I'm pretty used to getting kicked out of PT! haha. This was the second time in three months that I've been kicked out for not progressing with my hip. Oh well...
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: yc_angel on March 28, 2012, 08:06:52 PM
I just got trough your journall....wow..is like all i can say...You are incredibly strong to go trough all that  ;D

On one of the pages i cant rely remember wich one...you talked about the beighton scale which measures hypermobility....I scored the highest on that...LOl i can do everything those pictures depict with both sides XD...i gues thats not good but hey nothing i can do about that ;)

Hope your get your Hip Surgery date soon :)

Xx

Angel
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on March 29, 2012, 12:44:01 AM
Angel,

There's really nothing you can do about hypermobility until a joint becomes unstable and it can be surgically fixed.

I get the date for my hip surgery on May 23rd.

Thanks for the kind words!


Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on April 02, 2012, 01:27:14 AM
I see my knee OS on Tuesday and I'm not necessarily looking forward to it. My left knee is still hurting but it's not like it used to. I used to have pain medially. Now the pain is posteriorly. I had pain on and off there while I was in PT last summer but now it's getting pretty aggravated and my kneecap (well both) are clicking. The clicking from my left is coming from the bottom of my kneecap which I find really odd. My right knee isn't any better.

I'm wondering if overcompensation could actually be the cause for my left knee hurting. For once, I want that to be my diagnosis but I don't know  :-\
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on April 02, 2012, 03:16:27 AM
I didn't realize you had an appt. for your knees...good luck!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on April 03, 2012, 12:17:17 AM
Surprise! My appointment was today!

I pretty much went there just to see what my Orthoís plan is for my right knee. When I last saw him, we both thought I was getting hip surgery right away so we weíre kinda planning on surgery this summer but that isnít happening anymore. And then my visit turned into a social hour, haha.

So I have a positive J-signÖwhat a surprise! I also have ďpossibleĒ patellar instability among other things. He prescribed a J-brace for me to wear for the next two months until I see him again on May 29th. We discussed possible surgical solutions, too. He said, if anything, the surgery would be imbrication/reefing. I immediately stopped him to remind him that MR was the third surgery I had on my left knee and it failed after three months because Iím hypermobile and heís the one that discovered that. He then said ďYouíre one of the scariest patients to take care ofÖbecause you know so much!Ē If it comes down to surgery, I would be extremely hesitant to agree to MR. He said he would do the surgery better than my old Ortho, so it would probably work. Apparently, my right kneecap isnít unstable enough to warrant an MPFLr but the reason I need that is because it doesnít use my own tissue. The only reason my kneecap is unstable is because my tissue stretched out on its own, nothing traumatic.

I asked about the swelling and pain in my left knee that Iíve had recently and he said that itís probably because I just jumped into doing leg presses at the gym so I just aggravated my knee. I can also expect achy days for the rest of my life because my kneecap tracked so badly for so long.

I was there for about twenty minutes just talking about college and everything. He even said he'd hire me after med school! Haha.


So that's pretty much it! I'll get my brace soon, hopefully. My awesome knee Ortho got an awesome PA. I'm never going to want to leave that office! And apparently, my knee and hip Ortho talk on the phone about me, haha.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: TwoBadKneesUSA on April 03, 2012, 12:28:31 AM
Hope the brace helps your knee.  Sure hope any surgery goes well for you.

Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: yc_angel on April 03, 2012, 08:02:13 AM
Lol wel its good they talk about you i gues... ;D

Glad to see your getting a brace to help your other knee...hope it feels better soon.

Now i had a question...but perhaps it doesnt aply to you but i have to ask anyways....Can you wear heels now a year PO? :-X
Perhaps its the dumbest question ever but i just wanted to know...lol since my i have a rather large collection going to waste this summer....so hopefully i can wear them next summer... ;D
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on April 04, 2012, 12:27:16 AM
Thanks, Milly!


Angel,

I can't wear heels at all, not even boots with one inch heels. They just throw my whole lower body off and they really aren't worth the extra pain. I guess if I didn't have a million other things wrong with my legs, I'd be able to wear heals with no problem but that isn't the case. I wore boots for the first time in Jan/Feb and, as soon as I put them on, my knees and hip hurt. I still wore them though! I walked around for five hours. I would've been in pain regardless so it didn't matter. Anyway, I'm not actually hurting myself if I wear heels...they just cause me more pain than I normally have. I'll be going to prom in flats! Don't let my experience with heels deter you though. Try your collection out when you feel ready/get the okay from your OS.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: yc_angel on April 04, 2012, 07:53:44 AM
Thanks....its not that i hate flats...i love them...but i also have a love for high heels ;)....So i will be asking my OS about this later on....i'm not going to jeapordise his work...if he says no then i gues i'll have to buy more lovely flats ;D..lol....Gosh i cant believe i'm having my surgery tomorrow afternoon....its like time flew by ...

Xx

Angel
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on April 05, 2012, 02:47:49 AM
As long as you're healed and all, I don't think you could mess up your OS' work unless you fell or something and that would be terrible!

Good luck tomorrow!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: DennisKnee on April 09, 2012, 01:59:44 PM
Hey Kate,

Long time, no chat! I'm a week out from my next op and immediately thought of you. Seems like things are progressing without too many disasters. Would that be a fair assessment?

Any new tattoos? You must be due for another one lol.
 
 :) Karen
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on April 10, 2012, 02:34:56 AM
Hey Karen!

I've been doing fairly well. I can't really complain about my knee. It gets achy but that's to be expected.

I am, in fact, planning my next tattoo but it's not getting on my body until after graduation! I'm so excited to get one. My best friend just got one on Saturday and it made me one my next one even more.

How are you? Is your surgery next week?


In other knee news, I got my J-brace today! I've never been excited to get a brace before but my right knee has been especially painful and mal-tracking terribly.

(http://i42.tinypic.com/rt2oia.png)
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: TwoBadKneesUSA on April 10, 2012, 04:13:10 PM
How's the brace helping?  Can't wait to see the next tat.  Post once you get it done.

Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on April 11, 2012, 02:23:36 AM
The brace seems to be helping with the pain and tracking. My knee definitely felt better today than it has the past week. We'll see what happens in the weeks to come. And I will most definitely post my new tattoo, once I get it done. I'll probably get it before I get my hip surgery because, once I get that, I'll have to wait a while because I'm getting it on my ribs!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: TwoBadKneesUSA on April 11, 2012, 07:34:10 PM
Glad the brace seems to be helping.  Can't wait to see the new tattoo.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on April 14, 2012, 09:04:03 PM
ONE YEAR post-op MPFLr!

Itís weird. It doesnít feel like itís been that long but, at the same time, it feels like itís been much longer than that. Maybe itís because I had to have a fifth surgery after my MPFLr and because I ended up hurting my hip in physical therapy and now I need to have surgery on thatÖitís just been a long road.

Itís okay though because my knee is better and Iím progressively getting better. One day, I'll be able to play soccer again. Hopefully, it'll be sooner rather than later.


(http://i41.tinypic.com/24vp5b6.png)
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: DennisKnee on April 16, 2012, 01:27:44 AM
Hi Kate! Sorry for the delayed response. I've been rather self-absorbed this past week and busy getting things sorted out at work before some time off.

Well, it's come around fast - I'm in for my op tomorrow. That's a great shot of your knee. I assume that my scar will end up looking something like that.

There's not much to report so I guess I should get off the sofa and help with some cleaning. From tomorrow I'll be taking time off from that too  ;) it was my evil plan all along.

Take care of yourself - knees and hips - and I'll let you know when I'm home from hospital. My surgeon told me 2-3 days so it should be before the weekend! I'll even get cracking on a post op diary.

:) Karen
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on April 16, 2012, 01:37:15 AM
Hey Karen,

Good luck with your surgery! I'm sure it'll go fine! I look forward to reading your post-op diary.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on April 20, 2012, 01:43:17 AM
Tomorrow I leave for my senior trip. We'll be in Florida for three days! I'm so excited. I'm hoping my pain doesn't get too bad. I'll post when I get back.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on April 24, 2012, 02:47:41 AM
Well, I survived my senior trip...barely. I had tons and tons of fun. I wouldn't change anything about it for the world. My friends are amazing and I love my school and class so much, half the guys even offered to carry me when I hurt my knee.

Yes, MY KNEE...left knee to be exact. I can't escape it. I was moving to a different section of a ride and stepped back to let people pass me. I failed to realize that there was a step behind me and half my foot teetered on the step causing my knee to hyperextend. So much pain. It eased up a little bit after we all went back to the hotel. I didn't think anything about it until we went back to the park. We got there at 7pm. I lasted about 2 hours and 90 minutes was spent waiting in line for a ride. I had to go back with my best friend to where our chaperones were to get pain medicine and sit. My knee ended up swelling to three times its size, I had muscle spasms, and I was physically shaking from the pain. I ended up crying for like three hours. When we left, the CEO of my school got me a wheelchair because I couldn't move my leg without a lot of pain. Yesterday, it was a little bit better but I still couldn't walk which meant I rode in a wheelchair all day. Woohoo...not. I hate riding in those. Today, my knee still hurts a lot. I don't have the ROM I had and I can't straighten it all the way. I had my mom call my OS while I was in Florida. I'm seeing him on May 2nd because he wants all the swelling to go down. In the meantime, I'm RICE-ing.

(http://i39.tinypic.com/ke8aw0.jpg)

Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: TwoBadKneesUSA on April 24, 2012, 07:47:02 PM
Well Crap!  At least you had a good time inspite of it.  Hope it's something easily taken care of.  Good luck and RICE, RICE,  RICE!!!

Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on April 25, 2012, 02:59:56 AM
I'm hoping it's nothing as well, Milly. We'll see what happens next week when I see my OS. I have no idea what he's thinking it may be. But as of right now, I can't walk down the steps because I can't weight bare and bend my leg at the same time. My knee feels super tight and it's painful to bend. Ugh, I seriously cannot win.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: TwoBadKneesUSA on April 25, 2012, 05:21:40 PM
(((((((HUGS!!!)))))))))))  Sorry kiddo, wish I could wave the magic wand and make it alright.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on May 03, 2012, 12:15:06 AM
Post-op day 384 days from MPFLr; Post-op day 316 from LOA & MUA.

I saw my knee OS today to see what is up with my knee since hurting it in Florida.

Öyeah. I didnít get the best news. My OS was not happy with how my knee felt with all the tests. When he was doing the Lachmanís and Anterior Drawer tests (for a torn ACL), my knee moved way more than it shouldíve. However, he doesnít know if this is my normal because of how loose my ligaments are. He kept comparing my left (operative and now injured knee) to my right knee and said that my left was moving more than the right, which is not good considering I have less mobility overall in my left knee from all of the surgeries Iíve had on it. I also have tenderness on the inside of my knee which concerned my OS for a possible medial meniscus tear. All of this combined with the fact that my knee has been giving out and swollen since ďthe incidentĒ is not okay. Along with all that, I canít straighten my knee because of pain and, most of the time, my knee wonít bend passed 90 degrees. And my knee swelled almost immediately after I hyperextended it.

Also, when he was doing those tests, I could feel my bones separating. There was a huge clunk every time he pulled on my knee. I swear to god, if I have a torn ACL or meniscus (again), I will be so angry >:(

So, Iím getting an MRI on Monday afternoon. I have an appointment to follow-up on May 29th (because they are the worst at giving appointments and follow the dumbest system ever). But Iíll be seen sooner if something is wrong. Regardless, Iíll be calling around next Friday to get the results if I donít hear from them first.

My OS told me I was killing him when I told him all these thingsÖSeriously, I canít help it. How does he think I feel?
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: TwoBadKneesUSA on May 03, 2012, 02:25:34 AM
Oh goodness!  I sure hope the OS can fix you up again.  Just not fair!!!!  You poor thing!  Tons on hugs to you.   :( :'(

Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on May 03, 2012, 03:06:22 AM
Thanks, Milly! I really appreciate it ;D

I really don't want a torn (partially torn) ACL or meniscus but, at the same time, I feel like there should be an explanation for this pain because my knee has never felt like this before.

I'll update again when I find out what's going on.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Lottiefox on May 03, 2012, 02:58:11 PM
Geeeeeeeeeeeee Kate!!

Just saw this as I know you had your MPFLr a week before my toe fusion last year! Happy Anniversary to the MPFL but I cannot believe that you've got another problem that might have happened. I am SO hoping it is just a bad sprain of something and the MRI doesn't show anything sinister. But as you say, if it has happened, then at least you have an explanation for the pain.

I am SO hoping things settle down for you,

Fingers crossed,

Lottie xx
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on May 04, 2012, 12:47:49 AM
Thanks, Lottie! It means a lot. How are you doing?

It definitely sucks that I might be dealing with another injury but what can I do? It's not like I was doing anything stupid. I couldn't have prevented this if I tried.


Here's a picture of my knee from about an hour ago:

(http://i48.tinypic.com/bwfmo.png)
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: TwoBadKneesUSA on May 04, 2012, 10:01:34 PM
Goodness that looks swollen alright.  Take care!  RICE ok!

Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on May 05, 2012, 02:50:29 AM
Milly, I am constantly RICE-ing when I'm home. My ice machine is my best friend, once again.


QUESTION!

Okay, so if you go way back in my post-op diary, you'll see that at some point my knee started getting red and hot after surgery. My knee is getting like that once again. It's so warm that I don't even need to touch my knee to feel it...if that makes sense. Like I can feel the heat radiating off of my skin and my school pants even get hot! From sitting in school, my knee and a little bit above it gets bright red. So my question is: Should I call my OS about this? Of course, this started happening on Thursday, the day after I saw him. I don't know if this is a big deal or not since it's kinda like what happened before.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: KinnaMarie on May 06, 2012, 02:13:36 AM
I don't think I am really answering your question, but i've had this problem too.  My OS's answer for everything is it's angry inside so that is why it is hot.  He thought it was an infection because it was hot, but he put me on on drug that would eliminate an infection but it didn't work.  So he just said everything is angry inside.  I also just really hurt my ankle last week and didn't think much of it till yesterday when it was still really swollen and my foot was starting to bruise.  Since my knee surgeries my muscles and nerves got messed up so my ankle always turns in and is just really weak.  While I was teaching I stepped on it as it was totally turned in and it made a weird noise.  So now my ankle is super hot, and like you said you can just feel it without even touching it.  I sent a picture of my ankle to my OS yesterday because I was thinking it would have been better for now.  Well I got a call this morning after he saw the picture and was concerned and said I had to come see him because it probably is broken.  They said by now I just have a really high tolerance for pain so I could be doing more damage by walking on it for a week and not calling sooner.  Oh well.   
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on May 06, 2012, 04:24:41 AM
Thanks, Kinna!

I was pretty much assuming that's what is going on because of what happened after surgery last time. Which has me really concerned that I actually might have torn something in my knee since my leg is reacting like this two weeks after the incident. My leg won't stop swelling like the entire thing not just my knee, it's all the way down to my foot. And like I already mentioned, my knee is pretty much hot and red all the time.

Sorry about your ankle. You cannot catch a break. I hope it doesn't give you any more problems and heals nicely. Good luck!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on May 08, 2012, 12:11:16 AM
I had my MRI done today. Nothing new. This was my fifth MRI on this knee since all of this began. The tech said the report would be done by tomorrow so I'll call my OS tomorrow after school and I'll probably know the results by Wednesday.

I'm so nervous!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on May 08, 2012, 11:09:59 PM
I just caught up, and all I can say is wow!! Fingers crossed for good results.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on May 09, 2012, 01:17:26 AM
I got my MRI results and thereís nothing wrong with my knee. Counting this, Iíve had five negative MRIs yet I know for a fact there is something wrong with my knee. I know there are cases where things donít show up on MRIs so maybe thatís what is happening here. Who knows. I just really want to know why my knee was doing amazing then, all of the sudden, it became constantly swollen, it clicks/pops, and I donít have full ROM. Itís good that I donít have something like an ACL tear like the tests indicated but, at the same time, I wish there was something that explained the pain.

I guess Iíll find out what my OS thinks on May 29th.

Question: Does anyone have a guess as to what the ďmetallic susceptibility artifactĒ is? The screw was biocomposite so I'm assuming it's not that. Maybe the permanent sutures? I'll definitely ask my OS when I see him.


(http://i50.tinypic.com/jzi7pt.png)
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: TwoBadKneesUSA on May 09, 2012, 02:43:22 PM
Well MRI can be wrong I had one that said I had a meniscus tear ,but once the doc got in, there was not one.  Just fibrillated kneecap.  So....hope the OS can get this figured out for you.

Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on May 10, 2012, 08:57:44 PM
That is such a bummer! That is very interesting about the metallic artifact...This may be a dumb question, but do all bio-composite screws dissolve?

I just pulled out my MRI write-up to see if I had any similar wording to mine. Here is the line that mentions the screw "there is thickening of the medical retinaculum adjacent to fixation screw in the medial patella." So, I am guessing my screw is still there and does not dissolve.

Was there any mention of your cartilage? How is your cartilage?

I am very surprised by your MRI...not even a sprain! Maybe you'll OS will look at the images and see something though. So, fingers crossed that he can figure it out for you.

Getting excited for college!? Start making those shopping lists ; )
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on May 11, 2012, 01:36:09 AM
Not a dumb question, at all. I was/still am under the impression that they dissolved and that's why OS used them. The screws go away so they don't cause irritation and don't have to be removed. That's what my OS told me. He said mine would be gone in six months. Maybe it doesn't go away completely? I'll definitely ask my doctor about this!

There was no mention of my cartilage. The picture I posted was the entire MRI. The last time my OS was in there, he said it was a little banged up but nothing too major.

Me too, Runner! I didn't expect nothing to show up with how my knee has been feeling. Since I got the results, I've been telling myself nothing is wrong so I'm trying to walk around normally but that isn't really working. It's weird that my knee moved so much during the exam. I could actually feel my bones separating.

*sigh* Not really...I mean, I'm excited to start a new chapter and all. I love the school I picked but I absolutely adore my high school and my teachers and classmates. I'm really going to miss it.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on May 20, 2012, 01:34:53 AM
Post-op day 401 from MPFLr; Post-op day 333 from LOA & MUA.

Yesterday was my senior prom. I had the time of my life. I honestly didn't expect it to be that fun but it was. I didn't want the night to end. This makes me not want to graduate even more. I love my class so much.

My left (operative) knee was pretty swollen the whole time, still is. It's pretty much swollen all the time now. I see my knee OS on May 29th to talk about it. The pain wasn't too bad though and I was focused on dancing the whole time. My right hip is super sore. It hurts to move it! I see my hip OS on Wednesday to schedule my hip surgery. My right knee held up pretty well. It hurt but, like I said, I wasn't letting anything stop me from having fun.

(http://i48.tinypic.com/121vbz6.jpg)
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: TwoBadKneesUSA on May 21, 2012, 05:54:29 PM
Glad you had such a good time at prom.  Lovely dresses you ladies are wearing!  Give the knees and hip a bit of a rest.

Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on May 21, 2012, 09:55:14 PM
I wasn't sure if there was a difference between biocomposite and biodegradable!. Haha how sad is it that I don't even know if I have the plastic screw in my knee anymore. Let me know if you ever get the answer!

I really enjoyed high school, too, even if most of my classmates were saying how they couldn't wait to get out of my town. My college is in a city, and my hometown is rural, so it was a big change. It was hard at first, but it really grew on me, and I really love my college, too.

Ditto everything Milly said! Good luck Wed. and on the 29th.

Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on May 22, 2012, 01:43:40 AM
Thank you, Milly and Runner!!

Haha. Runner, my OS told me I had a biocomposite screw and that it would dissolve. Do they make biodegradable screws?

A lot of my classmates say that too but then we have school events like prom or our senior trip then they don't want to graduate anymore. I haven't been wanting to graduate since sophomore year. And now everyone is counting down the days which makes it worse. I actually got my cap & gown and yearbook on Friday. It's so surreal.

I'll update again on Wednesday!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on May 23, 2012, 06:51:36 PM
My hip scope is scheduled for Friday, July 6th (43 days!). That's after my college orientation so it won't interfere with anything. As of right now, it's a labral repair but it could turn into a debridement depending on what my OS finds when he gets in there. Although, the tear doesn't look too bad on the MRI. I should be on crutches between 4-6 weeks, TTWB. But, I'm the queen of complications so who knows! I'll also be in a brace for the same amount of time. You guys thought ROM braces were bad. Look at this thing!

(http://i48.tinypic.com/m789ed.jpg)

I'll have to wear it 24/7 to prevent my hip from rolling and flexing which would re-tear my labrum.

All in all, it shouldn't be too bad. I've been through surgery plenty of times. It's just going to be weird having it on my hip instead of my knee. Speaking of, I hope it holds up and doesn't cause too much of a fuss while I'm on crutches and over compensating. It's been doing pretty well and been getting better since I hyperextended. Fingers crossed!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on May 24, 2012, 01:50:47 AM
Wow that brace is good looking! The only clothes that would cover that thing up is a dress, but I wouldn't advise that on crutches much! I don't know what to do with my mast accumulation of braces. It seems like it would be such a waste to toss them in the garbage. My sister had to wear a ROM brace similar to mine when she broke her leg, but I have no idea what she did with that. We still have her walker though (which was very handy post-op for me at times!)

When do you move into college? Seems like you'll be cutting it close so let's hope everything goes as planned. When will you start pt?

Glad the knee is still getting better every day. Let's hope this is your last surgery ever, especially of the orthopedic variety!

Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on May 24, 2012, 02:12:54 AM
Runner,

I'm not even going to try to cover up the brace. That thing is massive. Haha. Same with my braces. I just keep them under my bed. I have three immobilizers and one ROM brace. Today, my doctor's assistant (I think?) tried to give me a prescription for crutches...haha like I don't have a pair of them. I'll be donning my purple ones once again.

The move in date on my college's website is August 25th. However, we're supposed to have a freshmen week were there are only freshmen on campus so we're moving in sooner than everyone else. I guess we'll get the official dates at orientation, hopefully! And I totally forgot to ask about PT. My OS said last time that I would be in PT for at least four months...I think.

I like the positive thinking but I don't believe this will be my last surgery. My right knee is still all kinds of messed up but it'll get a break with this surgery! And, drum roll please, my right shoulder has been hurting constantly for the past three weeks. I can definitely feel a difference between that one and my left shoulder. It's bothered me on and off forever but as of late, it hasn't stopped hurting. I haven't been able to throw a ball in over six years because of it. In school, I'll hold onto the edge of a desk and lean back and my shoulder definitely feels like it comes out more than it should and it comes out more than my left does. I just don't know how to tell my OS about it. Hopefully it's nothing too serious though.

Oh the hypermobile life is such a joy!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Silkncardcrafts on May 29, 2012, 12:03:53 AM
Hi Kate,

I would suggest getting referred to a geneticist to see if you have EDS Hypermobility type. It can make all the difference getting a diagnosis,

Last year I was diagnosed with it and makes a lot of sense now. The key with EDS is to do gentle regular exercise and do no contact support.

Good luck with your hip surgery.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on May 29, 2012, 12:57:55 AM
Thanks, Silkncardcrafts.

I've been told a million times that I'm really hypermobile but no one will even look into EDS. Last October, my OS sent me to a Rheumatologist because of all the joint pain I was having and she didn't event think twice about saying I don't have EDS because according to the Beighton scale, I wouldn't. But according to the Brighton scale, which is what is more widely accepted now, I do have it without a doubt. I'll definitely ask my OS tomorrow!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on May 30, 2012, 12:53:41 AM
Post-op day 411 from MPFLr; Post-op day 343 from LOA & MUA.

I saw my knee OS for the last time for a while today. So sad. He's been a huge blessing. I wouldn't have gotten this far without him!

Nothing much really happened. He told me my MRI on my left (operative) knee came back clear and that my MPFL look greatÖwhich is fine because my knee has felt ten times better this past week. I have to continue to wear the knee brace on my right knee to keep my kneecap stable because thereís nothing he can do right now with my hip surgery coming up. And I brought up my shoulderÖhe examined it and felt definite looseness then said, ďweíll deal with it later.Ē Haha. Thereís always something going on. Iím thinking thereís an MRI arthrogram in my shoulderís future.

So Iím pretty much on my own with this stuff until Iím all healed from my hip surgery. I wonít be back to see him until Iím in college.


And I'm currently in the process of looking for a geneticist. Also, I totally forgot to ask about the metallic thing in my knee so I'll ask my hip OS if he can tell when I see him again. If not, I'll just call my knee OS.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Silkncardcrafts on May 30, 2012, 09:00:02 PM
Your GP should be able to refer to a geneticist. The fact that you are having issues with a lot of your joints is an indicator something isn't right.

By the way, MRIs don't show everything. Has your OS done any plan x-rays or CT scans? They are best for patella problems.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on May 30, 2012, 11:52:53 PM
Silk,

I was thinking of just finding one on my insurance's website because I have no idea when I'll be seeing my GP again but I didn't know there were different types of geneticists. There's medical, clinical, and cytogenetic. Any chance you know which I need to see? I want to get in over the summer, maybe even before my hip surgery but that's probably pushing it. The geneticist at the children's hospital my neurologist and gastroenterologist are at is listed clinical.

Yes, I've had everything done on my knee. The last MRI I had done was to check for an acute injury like ACL or meniscus tear, the normal things for once haha. I hyperextended my knee while on my senior trip and it swelled up a lot and I couldn't put pressure on it or bend it. We're thinking it was just a sprain.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Silkncardcrafts on June 01, 2012, 03:23:08 PM
You need to see a clinical geneticist I think. hope this helps.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on June 02, 2012, 12:55:05 AM
Thanks! I'll try to set that up as soon as my insurance gets reinstated.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on June 08, 2012, 06:34:44 AM
I'm officially a high school graduate! The night was filled with a lot of tears but it was amazing. I cannot believe I won't be sitting in that school next year. It still hasn't hit me yet. I'm looking forward to starting college but I'll always long to be back at my HS.

(http://i50.tinypic.com/25u5tvm.jpg)
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on June 08, 2012, 06:38:32 AM
I guess I'll post a bit of an update as well.

My left knee has been feeling WONDERFUL lately. I have the occasional achiness throughout the day but that's gonna always be there. I'm so so happy that it's finally better. These past five years have sucked with trying to fix it. My right knee is still the same. I'm happy it's not getting any worse. The brace helps while I wear it which is encouraging. My hip pre-op is on Tuesday. Surgery is 28 days away!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: TwoBadKneesUSA on June 08, 2012, 02:26:55 PM
Congrats!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on June 09, 2012, 05:32:02 PM
Congrats, Kate! Your graduation was so early! Are you done with school already? Do you have state exams?

Don't worry...although most people don't like to admit it, they will miss and do miss high school. I had a great time in high school, but I love college, too. it's weird for me to think that in a couple years I will be going through the whole application process again. Crazy!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Chellie1992 on June 10, 2012, 12:24:48 AM
Congrats Kate!  I love college and I have to say I do not miss high school, but I do miss seeing my friends every day.

I am going to have to sit through my younger brother's graduation 2 weeks post op   :-\
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on June 10, 2012, 05:17:18 AM
Thank you!!!

Runner,

I was done with finals on May 30th and classes on May 31st. I was actually reviewing the week before in all my classes so I had no work. The only state tests we take are junior year. The past week we had graduation practice for two days and a senior skit and BBQ the day before graduation. I'm sure I'll love college but I fee like I'm losing a piece of my family :(

Chellie,

I'm sure you'll be able to do it! I was in school at two weeks post-op sitting through all of my classes and crutching around. Although, I was supposed to be WBAT, I was NWB because of the pain. Just make sure you take your meds beforehand and with you.



I briefly mentioned that my shoulder has been bothering me a lot lately...well today, I discovered that I can subluxate it whenever I want.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: TwoBadKneesUSA on June 11, 2012, 09:38:29 PM
I briefly mentioned that my shoulder has been bothering me a lot lately...well today, I discovered that I can subluxate it whenever I want.

Um...that does not sound good!  Lax ligaments being bad again?  I would not make a habit of it or your shoulder may be next!

Take care.  Graduation is always bittersweet.  All turning points in life are.  You'll do great.

Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on June 11, 2012, 11:18:02 PM
Thank you, Milly!

I have to make an appointment with my PCP because my insurance says I haven't been there in a while so I'm gonna have him check out my shoulder and see if anything needs to be done. It's difficult not to subluxate it though because it happens every time I shrug. It's weird how quickly it's deteriorating compared to my other joints that have started hurting and eventually became unstable. And since I'll be seeing my PCP, I'm gonna ask for the referral to see a geneticist.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: TwoBadKneesUSA on June 12, 2012, 01:27:36 PM
Good idea!  Is that by any chance the side you sleep on?  That may be why it does that more.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on June 12, 2012, 11:53:40 PM
I have an appointment with my PCP for the 27th!

I think you're onto something with that, Milly. Although I don't sleep on that side because I sleep on my stomach, I do lean on my right arm the most.


And I was supposed to have my pre-op testing today but five minutes into my trip, my car got a flat. It's rescheduled for the 22nd.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on June 24, 2012, 04:01:39 AM
I missed updating at my one year post-op MUA/LOA so here it is:

My left knee is doing amazing. I really only have pain if I keep it bent more than 90 degrees for a while which isn't often. I still have some weakness but my muscle hasn't been the same since before the first surgery. I would declare this surgery a success if I hadn't before. I just wish I could play soccer again but I know I have to take care of the rest of my joints first. One day, I'll play again.

12 days till my hip scope...so not excited about it. In the meantime, I'm enjoying my summer. Maybe a little too much! My friends and I went to the beach on Tuesday for the day and I ended up with the worst sunburn of my life. I wound up in the ER last night because my eyes were really swollen. It turns out, I had an allergic reaction to the sunburn! I never burn but, apparently, my medications make me really sensitive to the sun so that explains it. Moral of the story: always wear sunscreen.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on June 27, 2012, 12:50:03 AM
I just got back from my college orientation a few hours ago. While it was fun, I'm super tired and happy to be home! I picked my class schedule and I don't have classes until 10:40 four days a week and only have one class on Wednesday which starts at 3pm! I have two classes Thursday and three MWF and don't get done class until 4:50 every day but hey, I like that schedule.

Anyway, my knee was a little bit sore when we began all the walking but eventually is subsided or maybe I stopped noticing it because my hip started to really bother me. Who knows! I feel like my knee can handle campus though.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Chellie1992 on June 27, 2012, 05:10:49 AM
That's great!  Next semester my first class is at 1pm, I have only 1 class on Tuesdays, and I have Fridays off.  I am peer-leading a First Year Experience class that meets 11:20-12:45 every day, but I don't have to be there on Fridays and if I need to, I don't have to be there on Mondays.  This leaves plenty of room for PT and for me to have 2 other jobs...one 3 mornings a week in the dining hall and one at home on weekends.  You are going to have a lot of fun with your classes and the whole college experience.  It sounds like you were smarter than me my first semester.  I took 20 credit hours with one of the courses being a writing course, worked 9 hours a week, was in Alpha Phi Omega and orchestra, operated the light board for one play, and assistant stage managed another play.  I was out of my room from 8am-11pm at the earliest every night and the nights before my final essay drafts were due,  I would be up until 3am finishing them.  Not making that mistake again.  ;)
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on June 27, 2012, 05:11:33 PM
How exciting! Are you feeling more prepared now for college? How many credits are you taking? I know you are pre-med, but does your school require you to declare a primary major? Mine does, most people pick like Biology like me.

I really enjoy not having to be in classes from 8-3 straight like in high school. I have 8 ams everyday (and they are my science courses, too, organic and a&p) except for Wednesday (which is 9:30). I am done though by 10:30 am on Wed and 10:50 on Friday! Both of those days I plan to volunteer at a hospital, which will involve about an hour of travel time unfortunately. Then, for money, I am TAing a section of general chem and grading lab reports. I think I will be very busy this year, but I actually think I work better under a tighter schedule.

How big is your campus? Mine is an urban campus and is only on about 2 city blocks with  joint-campus in another city nearby (although I never take classes there, but I can if I want).

Are the butterflies going for next week? Glad that you are all cleared for surgery!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on June 28, 2012, 02:05:24 AM
Chellie- Wow! 20 credits?? That's crazy. My school allows a max of 17. You can take more if you get approval but they don't recommend it. I'm gonna be participating in things but not to where I think I'll be stressed. I wanna be able to have fun and be involved while still being able to do school work without staying up ridiculously late.

Runner- I'm more excited now! I think I'm taking 15 credits. We have to take 12-17 credits a semester. I'm a Bio major because, like your school, we only have pre-tracks not actual majors for med. My campus is urban, as well. My school has roughly 35,000 students! But only 12,000 live on campus because they only guarantee housing for freshmen and, if you're lucky, sophomores. It's 105 acres. I love the campus. I'm thinking of getting a job on campus for money, but who knows! And I'm dreading my surgery. I don't really wanna do it but I know I need it.



I saw my PCP for my shoulder today and got diagnosed with instability! He wants me to get an MRI but my insurance denied it. I'm trying to get my knee Ortho to send me for one since I'm seeing him for an eval on July 18th and I want the MRI before I have my hip done. We'll see what happens.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Chellie1992 on June 28, 2012, 04:51:28 AM
I started with 16 credits, but then added orchestra for 2 credits and got 2 play production credits for assistant stage managing the play.  The director was desperately looking for an assistant stage manager and I have a very hard time saying no when someone needs help.  Next semester will be much easier, but because it is only 14 credits, I don't know what I'm going to do with all my free time.  I am hoping that I will be cleared to do the 2 jobs that require a lot of standing and walking.  If I'm not, then I may just go crazy as I hate not having anything to do.

I hope your ortho gets you the MRI for your shoulder before your hip surgery.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on July 03, 2012, 02:33:29 AM
Chellie,

Ah, I see! That makes a little more sense. I'm used to a bunch of free time, aka being bored, so it probably won't bother me that much and I need time for PT since I'm constantly falling apart. Plus, my best friend/roommate has basically the same schedule as me so we'll probably be doing things together!

Shoulder update: Definitely won't be getting that MRI before surgery which is a huge bummer. It'll be fun trying to get it afterwards though!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on July 05, 2012, 04:35:15 PM
Have you located a PT clinic yet for when you are in college? Both of us being Biology majors, my roommate and I had the same exact schedule except during the second semester, I was taking one class more than her. She is living off campus this year though so I have a new roommate. She is also a Bio major, but we actually will only have one class together.

Wow 35,000 students!? My school has less than 1000 undergraduates plus however many graduate students (PT, OT, NP, RD, mental health) there are on campus.

Good luck tomorrow!!! Even though this forum is for knees, keep us updated!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on July 06, 2012, 04:00:55 AM
I did find a PT place. It's one bus ride away. I don't know how many blocks it is though. Haha. It shouldn't be too far away. It's on the same street my school is on but WAY down.

35k total students, 28 undergrad which is still a lot. It doesn't feel like it though!

I'll definitely keep you guys updated! I have to be at the hospital by 5:45am tomorrow (SO EARLY!). I have a blog if anyone wants to check up on there for daily posts!

http://persistentlyinjured.tumblr.com/
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Chellie1992 on July 07, 2012, 02:16:54 AM
Hope your surgery went well.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on July 08, 2012, 04:14:24 AM
My surgery went great! It lasted about three hours, an hour longer than expected. I was in a lot of pain initially but haven't taken any pain meds since leaving the hospital. I'm kinda immobile thanks to the brace being locked at at 35 degrees. My left knee isn't even hurting which I'm surprised about since I'm NWB.

(http://i47.tinypic.com/vj6no.jpg)

(http://i45.tinypic.com/35k69z6.jpg)
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Chellie1992 on July 08, 2012, 09:29:36 PM
I'm glad your surgery went well and I hope that your left knee continues to give you no problems.  :)
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on July 08, 2012, 11:05:33 PM
Does your college id allow you to ride the bus for free? My college has a deal with our local bus line. Currently though, I am still trying to decide whether or not to bring my car to college this fall or wait.

Sounds like everything is going better than expected. My aunt had both knee and hip replacements (also a meniscus removal and a rotator cuff repair in her shoulder...you two are 2 peas in a pod). In her opinion, her hip surgeries were way easier than her knees. Have you taken any pain meds yet? What exactly was your hip surgery again?
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on July 09, 2012, 04:32:42 AM
Haha no, Runner. Never in a million years would the public transit system allow us to ride for free. They're always raising the prices and going on strike because 60k a year isn't enough to drive a bus! UGH. Anyway, it's not all that much so it shouldn't be too bad. But I'll probably have to transfer there because I start PT after my post-op on the 18th.

This surgery is WAY easier than I expected it to be! I'm taking meds at night. Although, I'm not really in pain. I'm actually in less pain than I was before surgery. However, my back and shoulder are killing me. I have to sit in a reclined position and my back hates it. The crutches are not helping my shoulder at all. And my OS repaired my labrum, which is kinda like the meniscus of the hip.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on July 11, 2012, 01:33:37 AM
Good luck at post-op! How long on crutches? Was it a scope?

Closest medical work I have done lately is giving blood three times this year. I gave blood again yesterday, but felt extremely weird as I walked over to the refreshment table. I couldn't hear well, and everything was fuzzy. They got me over to a table to lay down, put a wet towel on my head, made me cough repeatedly, and drink juice. It was kind of scary, but now that, I feel fine, I will probably donate as soon as I can again. Are you cleared to give blood or is your knee graft still an issue?

I'm excited to say that I put a down payment on my own first car (buying used) today. Thank goodness for left knee problems and automatic cars.

Hope your back, hip, and shoulder feel better. Do you have an ice machine for any of those joints? I imagine sitting (and sleeping) are a pain!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on July 14, 2012, 02:55:17 AM
Thanks, Runner!

My surgery was a scope. My hip OS said I'd be on crutches and in this brace for 4-6 weeks. I find out for sure at post-op. He said the crutches are more for walking with the brace after a certain amount of time so, if I'm allowed to ditch the crutches, I will because I need to save my shoulder.

Boo on feeling like that after giving blood. I've run three blood drives and we've had plenty of people feel like that. I'm allowed to donate again but with everything going on with me, I haven't gotten around to it.

Congrats on getting your first car! It must feel awesome to purchase it yourself.

I was given a multi purpose ice pad for my knee surgery so I can use it on any joint but the ice machine is just a hassle. I'm getting used to sleeping on my back but this brace is killing me! It has a strap that goes across my mid-back and it hurts to lay down on it for a while aka sleeping :(

Hopefully, I only need four weeks in this brace since I feel so great. I honestly don't even feel like I had surgery which is bad at times since I'm NWB.

I had my shoulder MRI yesterday. It was a weird experience because of my hip surgery. I wasn't allowed to have my brace on obviously so I had to have my legs strapped to the table and my feet taped together because my hip can't externally rotate. And the thing they use to focus the MRI on your shoulder is weird. I felt like I was in a cocoon.

My left knee feels great even though it is doing all the work! I'm very surprised. My right knee, even though I'm NWB, still continues to hurt which makes me sad.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on July 19, 2012, 01:40:11 AM
I saw both my OS today!

I got my stitches out and my hip OS unlocked the brace more! I'm 50% weight bearing now until I see him again in three weeks. He was baffled when I complained about not being in any pain, haha. But really, I'm feeling wonderful after this surgery.

My knee/shoulder OS diagnosed me with multidirectional instability in my right shoulder. There's nothing you can do about it until you get full dislocations.

I start PT for both my shoulder and hip as soon as I can get an appointment.

I was talking to my knee OS after my appointment and he was asking about college and stuff and we both couldn't believe that he been treating me for almost three years! Time flies! He is really pleased that my left knee is holding up with all the extra work it has to do right now. He joked that my right knee is never going to get fixed because my other joints keep becoming unstable. Hopefully, it does! Then he showed me off to his PA. Apparently, I'm like a celebrity in my two Orthos offices. He was telling his PA that I was the one who had the MPFLr then had to have the hip scope and how I didn't have to take pain meds. He tells me all the time that him and my hip OS talk about me.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on July 21, 2012, 11:15:38 PM
Wow busy ortho day! That's awesome that you are allowed to bear some weight now. How does it feel when you do that? Still no pain? My dad had tendon repair surgery for a severed tendon and rated his pain 1/10 pre-op. It hurts more now since they had to dig around to find the two ends.

I hope your shoulder heals. The waiting game is no fun.

I think it's great you got to have the same OS for so long! As soon as I found a good one, he does surgery then ups and moves! What the heck! What is more of a priority- your right knee or shoulder?

Must be around a month until you move in? So exciting! I can't wait to decorate and make my empty dorm room feel like home.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on July 22, 2012, 01:51:39 AM
I have absolutely no pain from weight bearing! I've even walked without my crutches a few times. Don't tell my OS! I keep telling myself that I cannot do that because my labrum still has to heal but I'm not in any pain. I have a little bit of pain at night and in the morning but nothing serious. I even went shopping all day today for dorm stuff and didn't have pain. I feel fantastic.

Bummer about your dad! I hope he feels better.

Unfortunately, my shoulder probably won't get better. I can strengthen the muscles around the ligaments but the ligaments are pretty stretched out. I'll just have to deal with it unless it gets bad enough to warrant surgery.

It's hard to decide which bothers me more. They both sublux and cause pain but my shoulder pops out way more than my kneecap does. I think my knee will hold me back from more than my shoulder will because of walking. My knee/shoulder OS said he wouldn't touch either of them any time soon though. He doesn't think my kneecap is unstable enough to get surgery.

I move into my dorm on August 22nd! I'm really excited to decorate it and everything!
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on July 26, 2012, 01:05:12 AM
That's great about the pain! I would be so tempted to walk, too. If there's no pain, it's very easy to forget that you just had surgery and that you need to take it easy.

Did you get a bunch of cute dorm stuff? I really like Bed, Bath, and Beyond, but since I got all that stuff I needed last year, I don't really have to buy any room items this year. It's funny though...my house for the summer has 3 microwaves (our original one and mine and my sister's from college in our basement). I love my dorm room this year...hardwood floors, closest big enough to walk in or put your dresser, and a fireplace with a mantle (no fires though). The one thing I will miss is that my freshman dorm room had a sink in it.

Now, sorry if this is repetitive or associated with uncertainty, but have you ever been diagnosed with a hypermobility syndrome?
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on July 26, 2012, 02:06:04 AM
I spoke a little too soon! I (stupidly) pivoted on my operative leg today and I'm freaking out that I re-tore my labrum. I was in so much pain earlier every time my hip internally or externally rotated slightly. I'm hoping I just irritated it. I've been laying in bed all day :/

I have gotten most of my stuff! A lot of it is from BBB. I just have to get some storage stuff and clothes then I'm done. I got a free fridge from the hospital my uncle works at. They were just throwing them out when they are perfectly good! We either have to rent a microfridge from my school or use the one on our floor so me and my roommate are just using the one on the floor. And I'm totally jealous of your dorm! Mine is super small.

I've been told I'm hypermobile. I don't know if any of my doctors have officially written in my chart that I have anything besides hypermobility. My PT told me yesterday that this is all genetic, which is true, so I guess it's assumed that I have hypermobility syndrome but I'm thinking I have something more.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on July 28, 2012, 01:55:29 PM
That's no good. How does it feel now? Did you have your brace on?

Free fridges are really nice. My roommate has one so we are sharing. I actually didn't use my microwave as much as I thought I would except for hot chocolate and popcorn. I rarely ate meals in my room.

I hope they can give you an official diagnosis although I am not sure if there is much they can do.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on July 29, 2012, 03:53:23 AM
My hip is feeling a little better now. Still hurts more than it was. I called my hip OS because I was concerned and he said since I had the brace on and didn't feel a pop that it was a good sign but I'm still worried. I see him on August 8th and I'm hoping I'll get even better by then.

I have tons of cup noodles for my dorm so I'll be making them in the microwave. I have a meal plan for ten meals a week so I'll have to buy or make food for the other two days I'm there if I stay the weekend.

There really isn't anything they can do with EDS or HMS but it helps to know you have it.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on August 07, 2012, 12:58:36 AM
Getting better each day, I hope! Good luck at your appt.

The only meal plan I could get is unlimited. If I could, I would choose one with a set number of meals per week. Do you plan on staying most weekends at school?

I can't remember if I have already asked this, but what classes are you taking this fall?

I almost went to my dad's post-op appt just for my pure interest in orthopedics, but I didn't. I won't be able to see his incision for a while though because he got his second cast put on (purple haha) and won't get it off until September when I am in school.

Oh, almost forgot to add that I was talking to someone I graduated from high school with the other day at work, and he said that he had to have hip surgery because he tore something due to the constant strain put on it from limping due to his knee problems! His first knee surgery was a LR so I immediately thought of you and your hip.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on August 07, 2012, 03:10:51 AM
I feel pretty good for the most part! I have achy pain a few times a day, mostly in the morning and I can't really get comfortable at night but, hopefully, I won't be wearing this brace much longer!

I think the longer at school, I'll probably stay there more often. I don't wanna miss out on anything!

I'm taking Chem lecture and lab and another class that I can't remember the name of, lol. It's with a smaller class so you can ask questions and stuff. I'm also taking English, math, and a class called Teen & Tweens that covers my gen ed requirement.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on August 10, 2012, 02:14:26 AM
I'm out of the hip brace and I get to wean off crutches aka use them when I leave the house. I asked if I was allowed to swim and start yoga when I move into school but I have to wait until I see my OS again. I'm a little disappointed! But I'm not allowed to move my stuff into my dorm either because he doesn't want my hip to get aggravated, haha.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on August 14, 2012, 04:56:12 AM
Awesome! It must feel great to be let out of a brace on time for once! When do you return to your OS?

Well, the day I moved in, the college had recruited a whole bunch of student athletes and upperclassmen to help us, and I didn't end up lifting a finger. Not this year, all on my own! Do you know what floor your dorm room is on?
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on August 15, 2012, 02:17:47 AM
It feels so weird saying I had surgery a month ago because, honestly, I don't feel like it. My hip is achy because of all the weakness but, man, this is weird. I've never had a fast recovery. I see my hip OS on September 5th.

I hope I can fit all of my stuff into my mom's car because, if not, I have no idea what I'm going to do! Haha. I have SO much stuff. But my dorm is on the sixth floor but we have elevators so it isn't a problem.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: TwoBadKneesUSA on August 15, 2012, 04:46:31 PM
Hey sounds like the hip surgery has gone well!  Been offline for a while.  I had back surgery the end of June to address a pinched nerve.  Doing well, just need to not over do and let it all heal up.  Nerve type pain seems MIA and am glad.

Good luck at school and don't aggrivate the hip with moving and such.  Glad you are doing well!

Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: Runner1993 on August 25, 2012, 02:25:04 AM
I'm moving back to college in the morning so I am guessing you are all moved in already, Kate! How's it going? Was moving in troublesome with your hip?
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on August 26, 2012, 06:16:54 AM
I'm all moved in and super busy. My roommate and I took a lazy day today. Tomorrow is our last day off because classes start on Monday. My hip feels pretty great most of the time. I did tweak it a little playing tug of war between our residence halls. My left (operative) knee is actually giving me the most problems. It's pretty much swollen all the time and achy. I'm not used to the walking so much so I'm just trying to ice and take pain meds to help it.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: TwoBadKneesUSA on August 27, 2012, 04:24:32 PM
Have you thought of putting a brace or wrap on at night while you are sitting around to help with swelling?  I find that sometimes the compression helps with the ice and elevation when I have been on my feet a long time.  Glad you are enjoying so far.

Milly
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on September 07, 2012, 12:47:20 AM
I've tried the compression and it didn't seem to make a difference on its own. I used an ice pack a few times but I don't have a freezer so I have to use one-time use ice packs and I don't have many of them so I use them sparingly.

I saw my hip OS yesterday and he said I'm doing great for being two months post-op! He cleared me to go to the gym and swim. He said to be careful with yoga because of my shoulders. I asked him about EDS and he said I probably do have it. He offered to send me to a geneticist but we decided to wait until next month (when I see him again) to see what to do. He's going to do some more research on EDS in the meantime.

Other than that, I'm just having fun at college. Not much to update. I'm in a lot of pain which is my normal (sadly)... I'm basically living off of ibuprofen.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on October 22, 2012, 03:39:50 AM
It's been a while since I updated...

I've been having problems with my operative knee lately. I brought it up with my hip Ortho and he brushed it off as muscle weakness but I don't understand how it would just randomly start affecting me. I'm gonna start going to the gym and I don't have my brace and I'm really worried about my kneecap mal-tracking. I can feel it when I'm walking so it's just gonna be worse when I workout. And I've also been diagnosed with hip flexor tendonitis and the pain is worse than actual surgery! Ughhh. I'm trying to work through it.
Title: Re: oohheykate's MPFL reconstruction on 4/14/2011 (LOA & MUA on 6/21/2011)
Post by: oohheykate on September 24, 2013, 03:10:31 AM
Wow, it's been over a year since I've posted on here.

My operative knee is doing as good as it could possibly be doing. Some weeks are better than others. I'm dealing with it. I feel good enough to get back into soccer at some point but that is probably going to be put on hold (AGAIN) when I just started looking into teams because I am 99% sure that I re-tore the cartilage in my hip a little over a year after that surgery. I really cannot catch a break. My knee Ortho moved 1000 miles away so I'm seeing my hip Ortho for everything now. I see him on October 30th for my hip but we all know I'll be talking about all of my other joints too. I just got a job that will require me to be on my feet all day so I'm hoping my knees and hip can take it.

I wonder who even is on this site anymore! I hope everyone is doing well.