DIARIES => Post-op diaries (<50 posts) => Topic started by: enuff81020 on August 10, 2003, 02:31:34 PM

Title: TKR post-op Day 27
Post by: enuff81020 on August 10, 2003, 02:31:34 PM

I will be 4 weeks post-op tomorrow.  With my other tkr, I was riding a bike the correct way, taking steps on my own, had over 100 degrees flexion, extension was great and had cut back on pain meds considerably.  

Not true with this one.  I got the pedals on the bike to go all of the way around in a backwards motion Friday after trying for over 10 minutes--and let out a blood curdling yelp as I felt all kinds of ugly in my knee as I forced the issue (with the urging and insistence of my pt).  I cannot take any steps without my crutches--wobble and have balance problems when I stand.  My flexion did make a nice gain to 92 this past week and I lost ground on my extension, now at -23.  I am still taking pain meds every 3 hours and continue to ice my knee and ankle for 20 minutes on and 20 minutes off round the clock.

This is giving me an emotional beating as well--playing phone tag with my os is stressful.  Having my 5 year old look at me yesterday when I was trying to fix him an egg for breakfast and say "But can you cook Mommy?" was a boatload of upset for me--I used to do allof the cooking here but have done little to none since the time of my first tkr because of this right knee.  I cannot walk and carry my own ice safely and have to get rides from others, which seems to be getting on their nerves.  I am having trouble to focus on much--pain meds I assume and pain--and so I'm not finishing anything.  My house needs my touch to it, but I'm the only one who cares about that.  And somebody I do not know is doing my job right now--and I am not even comfortable in my job because it is new to me this year.  There is a stranger who is creating a classroom climate for me and that takes me out of the picture there too.

I guess the going words for me now are--frustrated and hurting.  I'm expecting a shift this week.  If I don't get to talk to my ortho, I have an appointment on Thursday.  I only have two more pt sessions before then.  The tide MUST turn this week.

Title: Re: TKR post-op Day 27
Post by: ARC on August 10, 2003, 05:00:03 PM
The TIDE WILL TURN THIS WEEK.  Sylvia, I just wanted you to know that you continue to be in my thoughts and prayers, and I am so sorry you are having such a difficult time.  Please, remember I am here for you if I can be of any assistance or if you need a shoulder to cry on.
Title: Re: TKR post-op Day 27
Post by: enuff81020 on August 10, 2003, 05:57:35 PM
Thanks Kolleen,

I guess I'm back to one moment at a time...and I'm worried that this mood today will alienate everybody in my world.  I've cried more this past week than I can remember in my life when a death wasn't involved.  My frustration level is high and getting higher--and so is my pain.  I have been awake since 4--and tried to go back to sleep--2 pain pills later and after a lotof icing and elevating--I cannot find a position to be comfortable in.  I tried just walking for some movement and it didn't help--I stumbled a few times and got my hubby a bit irritated with me.  Then I picked an argument with everybody about doing their chores--and again, got caught trying to do some of it myself by my hubby so he is frustrated with me.

I'm sick of continuous, unrelenting pain--and then doing exercises which makes it worse with no payoff.  I haven't done any exercises yet because my ankle is yelling as loudly as my knee...Grr-rr.

I apprerciate the ongoing support and help that you send.  Thanks, Sylvia
Title: Re: TKR post-op Day 27
Post by: bc on August 11, 2003, 02:25:07 AM
I empathize with you.  I actually ended up on a Fentanyl patch at about 28 weeks.  Couldn't do the therapy well enough because of the pain.  

Tried the recumbent bike and stretched back so I only reached it on tiptoe.  It's one month later and with PT my knee goes to 120, probably less on my own.  And I do 30 minutes a day on the bike. Still do not completely extend.  And, still need pain meds in late aftenoon and evening.  Actually bought an ice machine from Sears that cranks out 50 lbs of miniature cubes so I always have ice.

We have been moving all summer, carrying things up and down stairs  everyday.  Though the exercise probably helps, it does tend to cause more swelling and pain.

I know your other knee went so much better.  Just hang in there.  I was so down at about 4 weeks, and had the manipulation expecting instant results (wrong).  But now it is all finally coming together, and was definitely worth it.  I still sleep every moment I get alone, but at least I can sleep a little better.   Take care, take it easy.  A lot of us are thinking of you and wishing you well
Title: Re: TKR post-op Day 27
Post by: enuff81020 on August 11, 2003, 05:15:45 AM
Hi bc...

How far post-op are you?  When were you finally able to get around without crutches?  I cannot do anything because I'm absolutely dependent on my crutches to walk--can't even sneak one step by right now.

Thanks for letting me know that things will get better--this is getting really old really fast...

Take care, Sylvia
Title: Re: TKR post-op Day 27
Post by: lizl on August 11, 2003, 08:10:32 AM

I know you were hoping to be in better shape for the start of school, but please remember that your knee has to come first. Your future in the classroom depends on your recovery, so you have to attend to that FIRST. We need you in the classroom, so give recovery your attention for now.

I hope the tide turns even as we speak, but (just in case it doesn't just yet), please know that we are rooting for ya!

Title: Re: TKR post-op Day 27
Post by: Jillian24 on August 11, 2003, 08:26:53 AM
  Hang in there! My OS told me that I was to sensitive to pain, when in all reality he had released my knee cap to far! But I had to wait like 8 months to get it fixed. When I finally did they had to do a medial release and not many people have had that done. Really it was like the OR staff asking me are you sure it's medial? I was like um yeah, should I be asking the questions here?
Anyways I was on crutches for 6 months, locked at zero for like 4 of those months. I was so depressed, and lonely. I couldn't drive and was so dependent on everyone. It was very hard. So, I know how you are feeling and I know that it will get better. I am planning a TTT next month and all I can think about is the loss of independence. Good luck to you sweetie and remember we are all sending happy thoughts your way....Jillian
Title: Re: TKR post-op Day 27
Post by: enuff81020 on August 11, 2003, 03:56:50 PM
Thanks Jillian and Liz,

I am recovering from a very pain-filled night.  I slept for maybe an hour and woke up with some kind of muscle pain in my thigh and my knee in excruciating pain.  That is not a good way to get started with a turning tide.  I was not happy--and for the first time in a while, I inadvertently woke my hubby up with the issues going on.  It is a good thing he is so patient with all of this.

I really do plan for things to improve this week and I'll share that as it happens :)

Take care, Sylvia

Title: Re: TKR post-op Day 27
Post by: ohiostatemel on August 11, 2003, 06:12:21 PM
I just wanted to write and let you know that I am thinking of you!  Hopefully things will turn around any moment.  
Title: Re: TKR post-op Day 27
Post by: lam651 on August 11, 2003, 06:43:32 PM
I was gone last week and I so hoped when I got back things would be better for you. I have been thinking of you and praying for you often.

I hope that you are better soon. I've gotten to where I pray silently quite often as I do things. I pray for my family and their problems, my knee geek friends and myself.

I want us all to find ourselves a place in this world where we can be happy and contribute. I know I'm a different person as s result of what I've been through. I don't like to speak for anyone else, but I would say it is a safe bet that we all are a kinder, more loving group of people than we were before we were hit with healyh problems. Pain makes you humble. Sorry to ramble Sylvia, but the world needs people like you to be able to contribute as much as you can. God bless you, Larry :)
Title: Re: TKR post-op Day 27
Post by: Happycructchchck on August 11, 2003, 06:51:56 PM

Just wanted to also let you know that you are in my thoughts and prayers.  The tide will turn, but it just doesn't turn when we want it to (fast enough).  I know that you are struggling with everything right now and we all have those moments.  It will get better.  It is times like these that we have to notice the tiniest thing and appreciate it like we've never appreciated anything before.  

Hang in there.  You are an inspirational member of this board and I know that it will all turn around for you soon.

Title: Re: TKR post-op Day 27
Post by: enuff81020 on August 11, 2003, 10:55:59 PM

You guys really make me feel better--I am so humbled by what youy have said to me.  I am so weary today after last night--and am trying to get with it with little luck today-  I'm so dreading pt and all the fun that I end up having there.    

It is my resolve to keep repeating that the tide is going to turn this week and I do believe it.  I am not happy that it may take until I see my os on Thursday, but I guess if that is the case, so be it...

Larry--thanks for those special words and I pray daily--sometimes multiple times--for my kneegeek friends too.  It does feel better than always asking for myself.  Thanks as wel Mel--hope that you are getting back on track and Paige for your sweet compliment as well.

You all will get me through this.  :D  Sylvia              
Title: Re: TKR post-op Day 27
Post by: Heather M. on August 12, 2003, 12:36:07 AM

PLEASE talk to your doctor--GP, OS, or therapist.  Sleeping is critical to getting better.  If you are unable to sleep because of pain, then you need to be on different and better pain meds.  Ambien is also a wonderful, gentle drug.  I was able to sleep 8 hours through the night, even stuck on my back with a CPM machine strapped to my post-op leg.

The reason you're not feeling better and are so overwhelmed is that you aren't getting the right amount of sleep, good food, and down time.  For short periods, especially after a major surgery like yours, you may need a mix of medications to get you back to your normal rhythms.  I thought it would never happen again, but I'm now sleeping THROUGH THE NIGHT again--last night I went for 9 straight hours.  It changes your outlook on life.

I don't know why no one has addressed your rampant pain and sleeplessness--are you telling the doctors about it?

Sylvia, please reach out for some of the help that you need.  You should not be suffering like this, and it could very well explain why you aren't bouncing back after this TKR like you did with the other.  Chronic pain and insomnia wear you down, so then you have no energy left to rehab.

I urge you to see a pain management clinic, there's no reason to go on like this.  I remember you saying you had a bad experience with one.  But that's just one doctor/clinic.  There are plenty of others out there.  Since your current doctors aren't concerned about the problem, once more you have to look out for number 1!  Please take care of yourself and get this matter seen to soon.  

Would you let one of your children suffer this way?  I don't think so, and there's no reason you should either.....please take care.  I really hope you begin to feel better soon.  We are all praying for you.


Title: Re: TKR post-op Day 27
Post by: enuff81020 on August 12, 2003, 03:43:51 AM

I just got back from pt--and I moaned and whined and fussed, but I didn't cry oir sob or vomit--but my extension was again worse.  It is now at -25 and my flexion was better.  It was 95.  My pt says that this happens sometimes--and that it is undesireable to have my extension get worse.  He thought I was pretty stiff today and commented on the limping I'm doing because of this ankle pain.  He again tried to call my os with no luck.  (I know he is in a different town on Mondays...)  I wasn't aboe to pedal the bike all the way around today though and I did that Friday.  I am in a boatload of pain.

Heather--I've been trying to tell my os that I'm suffering and he has told me to keep taking my pain meds.  My pt is more than aware of it and has documented that he thinks a  lot of my lack of progress is due to the fact that I'm having too much pain for him to be able to do a lot with me.  I could call my pcp tomorrow--I haven't done that because I didn't want to put her in a place to cross a professiopnal line.  I can at least find out what she has to say--I took ambien once before and it did help me.

thanks for your thoughts.  As always, I think you are right on target....

:)  ;)  Sylvia
Title: Re: TKR post-op Day 27
Post by: bc on August 12, 2003, 08:29:15 AM
Hi Sylvia,
As you  remember from your earlier experience, things will get better.  

I had pain management problems for at least 6 weeks and was offered an antianxiety medication when my progress was going slowly.  Though that is a legitimate addition to help some people, at the time the only thing I was depressed and or anxious about was that my knee hurt too much to make any progress.  I never did fill the prescription and the next week my ortho never mentioned it again, but changed my pain meds to much stronger medication.  Though at first I didn't think it helped, I finally slowly began making progress.  

This is my 10th week postop (6 post manipulation).  The pain is much more controllable, though I still need some pain medication daily.  My problem last week was extreme fatigue upon return to work.  Even though I kept walking to a minimum, even standing was quite exhausting.  You know yourself best.  But the longer you can stay home and concentrate on PT, the better the return may be.

Wishing you the best.  I give you a lot of credit for having both knees done.  I am very reluctant to have my other one done for a long time

Title: Re: TKR post-op Day 27
Post by: enuff81020 on August 12, 2003, 03:43:50 PM
Hi all,

I have a plan today....

I'm calling my os again this morning--need pain meds and coumadin and I am pretty sure I'll get a response to that.  since i had my INR yesterday they will need to talk to me about that before we reorder coumadin anyway.

however, if I haven't heard from him by 1, I'm going to either call my pcp or get a ride tot he er--I am not going to wait until Thursday's appointment struggling and spinning my wheels like this.  Grr-rr

bc, I didn;t have any of this grief with my first tkr--probably a good thing and the reason why I had this one--lol.

Take care--Sylvia
Title: Re: TKR post-op Day 27
Post by: Janet on August 12, 2003, 07:47:06 PM

I'm glad you've decided to do something about your pain and not wait until Thursday. I agree with Heather that a lot of your frustration could be due to lack of sleep. When I was in a pain management program, they told of a study where they took healthy people with no history of pain and deprived them of sleep. Within a couple of days, they all reported pain of some kind. So imagine if you already have pain and add sleeplessness into the mix! Good luck and I hope you have better pain control starting today!

Title: Re: TKR post-op Day 27
Post by: enuff81020 on August 12, 2003, 08:19:22 PM

Well I called at 8:45--no problem with ordering my meds and then I again asked about my real issues--and I guess we shall see....But after lunch, I'm doing something else.  I'm feeling a bit as if this is unimportant--as am I--and that is not right.  The nurse asked me where I was going to be and I told her home--all day--and then she muttered because we have "privacy manager" on our phone.  All that does is weed out anonymous telemarketers.  My docs office couldn't be using a phone like that could they?  I get other phone calls from them regularly--to remind me of appointments and from the billing office and the scheduling desk.  Hmm....

Oh well, this is about getting me better, no more no less--because I am important enough to deserve that.

Title: Re: TKR post-op Day 27
Post by: anasta5ia on August 12, 2003, 11:14:01 PM

You are definitely right.  You DO deserve that.  

Hang in there.  As hard as it is sometimes to believe, things WILL get better.

My thoughts are prayers are with you.

-Heather G.
Title: Re: TKR post-op Day 27
Post by: enuff81020 on August 13, 2003, 03:41:45 AM
Well--My hubby convinced me that I had to give them a chance to return my call--and since my doc didn't get into the office until 1--I am still waiting.  I'm thinking that since it is after 6:30, it is not going to happen--but they did call in my meds.

I'm so sore and blue--this seems so wrong, that I cannot get a phone call.  I'll call my pcp in the morning.  she will help me.

My back is killing me--on top of anything and everything else.  Grr-rr--Sylvia
Title: Re: TKR post-op Day 27
Post by: anasta5ia on August 13, 2003, 04:18:43 AM

I know your frustration in waiting for your OS to call.  After they called to reschedule my appt. I am now also waiting for a call back.  So, I guess we can wait together.

Hope you are finding some relief in your pain.

Hugs and happy knee thoughts.

-Heather G.
Title: Re: TKR post-op Day 27
Post by: enuff81020 on August 13, 2003, 07:54:03 AM
Well--my hubby was right.  My os called at 8:30 tonight and told me that he has been trying to cal me for several days but the privacy manager on our phone wouldn't let him through.  I hope he can forgive my thoughts.

He told me that he has reviewed all of the notes and paperwork and even with colleague support, he cannot  explain what has went on or why--but he has a plan for addressing it.  He is going to try to get me added to his surgical schedule on Thursday.  He wants me to get another epidural--one that works well and stays in place, and then to have what he called a "whiff of gas" and then he will work the manipulation of my knee.  He then wants to keep me in the hospital for a few days for effective pain management and some heavy duty physical therapy.

I told him yes--I need something different...I am praying this is the right track.  He is especially concerned because I am so far along post-op.  Sylvia
Title: Re: TKR post-op Day 27
Post by: lizl on August 13, 2003, 08:08:39 AM
WOW! :o

It does sound like you are being taken seriously at last. Sorry you have to go back to the hospital, but that's so much better than continuing to suffer.

Good luck! We will all be waiting to hear that you are much better.

Title: Re: TKR post-op Day 27
Post by: Sharon on August 13, 2003, 08:16:25 AM
Wow Sylvia!

I'm so sorry that you have to go back into the hospital but I am glad that this is going to be addressed and hopefully the manipluation will work well for you. This is going to be so much better for you than having to continue suffering. I was having thoughts of calling my OS to address my flexion issues because I just can't take the pain at PT anymore-we actually had to take it a little easier on Monday because I was fighting her back so much and couldn't take the pain. After hearing how your OS is dealing with this maybe I should consider a call in to him. Anyway, if I don't talk to you before then, good luck for Thursday and I really hope this makes things better for you-you deserve for it to be better!!!

Lots of (((HUGS)))
Title: Re: TKR post-op Day 27
Post by: Happycructchchck on August 13, 2003, 04:45:07 PM

I'm so glad that the OS was able to reach you at last and is taking you seriously now.  I know that the hospital is not a fun thought, but at least it is a step in the direction of trying to resolve your pain!

Good luck and you will be in my prayers!

Thinking good knee thoughts,
Title: Re: TKR post-op Day 27
Post by: enuff81020 on August 13, 2003, 06:42:50 PM
Thank you all for your honest thoughts and reassurances.  I'm waiting for the schedule and details--so that I can indeed move on with t6his and my life.

As always, having a plan makes dealing with the onslaught of pain from my knee--and ankle abnd wayward body seems a bit easier today.  boy, it hurts though.

I have both pt and a visit with my therapist who is helping me with depression today.  hopefully that will work to alleviate my anxiety and--well that darn pt had better not make me cry or scream or puke...

I am so lucky to have my kneegeek family!  Hugs, Sylvia

Title: Re: TKR post-op Day 27
Post by: Jam on August 13, 2003, 11:07:26 PM
Hiya Sylvia

My name is Julie and I have just found this site and it has made me feel 100% better about my problems I am having with my knee.  I have had severe problems with the knee dislocating for 14 years but have only had the Elmsie Trillat procedure done on it 3 weeks ago and when I read your post op diary it was like I was reading about myself.  I also have a 5 year old and a 1 year old and I am so frustrated and angry with everyone and everything.  People don't seem to understand why I am embarrased when I can't even get in and out of the shower on my own.  I have been on crutches and wheelchair bound since the 2nd of June and I am slowly reaching the end of my teather I feel like a child and can't wait until I can just get up of the settee and walk unaided.  Like you I am looking forward to getting back on my bike and exercising but the physio is not so keen to talk to me about the recovery time of my operation which is even more frustrating, but I keep telling myself it could be worse and am trying to stay positive but it is very hard indeed.

Well I think I have bored you enough but I just wanted you to know that I am here if you need to talk and hope you are feeling abit better.

What country are you from.

Title: Re: TKR post-op Day 27
Post by: Teresa on August 14, 2003, 12:36:37 AM
 ;D :Dhurrah sylvia,no I am not cheering you going into hospital again,but at the same time I am...someone has listened to you and done something at long last!they must sort your pain and sleep issues out for you and your familys sake.I think you may have gone in by the time you get is 9.30pm on wednesday evening here.I am praying for you like mad that you will come out of this a new woman..make sure you are not discharged until you are absolutely happy with all your meds.god bless
Title: Re: TKR post-op Day 27
Post by: enuff81020 on August 14, 2003, 04:36:29 AM

Julie--I am in Illinois (USA)  I am the mother of 8 from ages 5-21, all still at home and I'm a teacher--elemntary remedial reading--possibly third grade whenever I get back to work.  I so understand the frustration part of all of this--it is the real kick in the pants.

Teresa--I understand what you are saying--I am relieved to have been heard and to have a plan inplace.  I m exhausted with all of this and am looking forward to a shift in that tide :)

Thanks for your kindness--:)  :)  :)  :)  :)  Sylvia

Title: Re: TKR post-op Day 27
Post by: enuff81020 on August 14, 2003, 03:19:57 PM
HI There--

Here I am playing on the board--but I will take my shower in about 10 minutes and get ready to leave for the hospital.  I'll talk to you all soon...and be ready to share my IMPROVEMENT with you.

Please--take care of those knees and be kind to yourselves.

Hugs, Prayers and Love to you all--Sylvia
Title: Re: TKR post-op Day 27
Post by: bc on August 15, 2003, 08:01:59 AM
Haven't been online for a couple of days, work leaves me somewhat exhausted by the end of the day.  Tomorrow is a holiday, an extra day of rest!

By now you probably have had the "manipulation".  Hope it went well.  It did take me awhile to achieve the same success the surgeon had while doing the procedure.  But I am now back to the 120 he succeeded in getting in the OR.  

Take the pain meds this week.  I actually increased my meds the weeks following the manipulation in order to get my flexion back.  Didn't feel I needed them at first, thought I could taper off, but finally realized not taking them frequently was keeping me from progressing.  My thoughts are with you.  There is a light at the end of this for you!  And you have a lot of people thinking of you and wishing you the best!