KNEEtalk

DIARIES => Post op diaries (>300 posts) => Topic started by: Beda on May 06, 2008, 11:27:21 PM

Title: Bedas Pre-Op diary
Post by: Beda on May 06, 2008, 11:27:21 PM
My name is Beda, and I have a very longstanding problem with a history of 16 knee surgries, 6 of which have been TKR's and all of them failed. I am due for an OS consult on the 13th May at Rigshospital, Copenhagen, Denmark, with the view of an arthrodesis of my knee joint, rendering the knee stiff, permanently.
My history to date started in 1979.
1979, summer, trauma with left knee, open fracture where knee cap luxated out the side of my knee, through an open wound. I got to a hospital in Germany, where the accident happened, and the hospital in Germany reduced the fracture, sewed me up and gave me bed rest for 2 weeks. No PT or anything, returned to england after 2 weeks to make a slow and problem filled recovery.
1979 autumn returned to Denmark where I had constant luxations of my L. patella. Was operated at Rigshospital for luxating patella, plus debridement and removal of scar tissue. 2 months later after that surgery, OA began to show on x-rays. From then on OA provocated by injury galloped.
1981 had operation to move tendons around in my knee to stop the repeated patella luxations, in POP cast for 4 weeks after surgery, very painful recovery. had lots of physio, including hydrotherapy for a period of 1 year. Knee never recovered and OA was very serious at this point.
1984 was diagnosed with OCD. Had several scopes and arthrectomys, to remove 'floaters' in my knee. Torn meniscus found. repaired using a scope op.
1984 Arthrectomy and osteotomy done. 9mm of bone medially removed, clamped together with staples and put in POP cast for 4 weeks. terribly painful recovery dues to excessive swelling after arthrectomy that was carried out same time as ostoeotmy. OS didnt want to know about pain managemnet, suffered a great deal. POP cast got too big as swelling subisede and had to have it changed 2x. POP is heavy and I coudlnt walk without use of crutches.
2 years of ostoetomy, OA galloping still, bone on bone.
1986 My first PKR. halv St George alloplastik in medial joint chamber. this implant loosened after 2 years and was replaced in
1989 with TOWNLEY knee alloplastik TKR which loosend and casued great pains uncontrolled by strong painkillers in
1992 where implant waas changed out for an implant IBtype 2 posterior stabilizing. TKR This implant stayed in with much pain until it loosened in
1993 where the implant was changed out with en endorotations knee. TKR This loosened in
1994 with much pain to be changed with a new femur part TKR
1999 I had an exploration of TKR with change of polyethylene component spacer
2003 because of extreem aseptic loosening, so bad the implants could be removed digitally by the OS, new TKR again.
2006 b/c of looseness, extreem once again, implants changed for new using bone transplants. By this time I have paper thin bones dues to the fact that each time they take an implant out, they have to remove bone tissue
2008 am waiting to go into hospital to have all metal removed from my leg and an arthrodesis (fusion) of my knee performed. This arthrodese is to be fixed internally, using extensive bone grafts and rods and screws. I have been seen by several OS's now who all come to the same conclusion that they can no longer put new TKR's in my leg because it just wont 'take' and sit permanently. I have massive bone loss, and will require massiv bone transplants. I have not stopped taking pain meds for the past 2 years. Am on 3 kinds of combi-treatement. panodil 4x daily, relifex (nsaid)2x daily and oxycontin( potent artifical morphine) depot 2 x daily. I can no longer walk any distance, have to walk with crutches, and can do precious little but lying on the sofa or in bed. have stairs in my house to wc so am moving house the 16th may to a house which is in one plane, has no stairs.
have been tossed about in the health care system for the past 5 months from one OS to the other like a hot potato because no body wants to touch my knee. Finally I have a consult at the best hospital Denmark has, in copenhagen, for the 13th may where I have been called in as an acute patient, so I dont think it will be long before I get my op. I hope not.
I have had tons of experience with different knee ops, so if theres anyone out there thats looking for advice about some of the procedures, especially scopes and TKR & PKR's I'd be glad to answer questions about pre and post op care, piain meds and management etc. PT has aslo been a big part of my life.
I start this diary here; 6th may 2008; unbearable pains, no movement possible - WAITING!!
Will write again tomorrow, its late and I'm falling asleep!!
Love Beda
Title: Re: Bedas Pre-Op diary
Post by: KW on May 06, 2008, 11:54:22 PM
Beda,  I wish you all the best...after all you have been through you truely deserve relief.  My heart goes out to you!  I'll be sure to follow and see how things go!

Take care,
Karen
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 07, 2008, 05:46:32 AM
Thanks Karen.  I sure do feel the need  for support right now, the appointment is going to be very decisive as to when I get my surgery - hopefully here wont go a very long time until they operate. Menawhie l went to the cinema yesterday, had trouble sitting still with my leg at more or less right angles in the stalls. have to take the seats at the edge from now on!! That will also be an issue when I get operated, the fact that I will have a stiff leg, where I will 'fit' in!!!
Love Beda
Title: Re: Bedas Pre-Op diary
Post by: tanyap on May 07, 2008, 09:11:01 AM
Hi Beda!
Well done on starting a Pre Op diary - it is a wonderful source of information for all of us on here!!
I never saw your history all in one place like that. Its certainly very comprehensive, I cannot believe you have endured so much surgery on one leg. You must be extremely brave.
How did you have your original injury in 1979? Was it an accident?
I see you mention several scopes - did you actually gain any relief from any of those?

I am so looking forward to hearing about your appointment. Dont worry a bit about things like theatres and cinemas - there will always be edge seats - wont the fact you have no pain make life so much easier!!!

Do you have any issues with your left hip after all these problems with your knee? My hip hurts a lot, but its from me straining my quads trying not to let my knee slip out of place, the joint itself doesnt get sore, its more like tendonitis.

Again Beda - fantastic idea to start a Pre Op Diary - they help people so much as its here we can learn about different symptoms and what led to what procedure and what kind of complications ensue. And that you are such a wonderful positive person makes knee surgeries that much less scary for the rest of us!!
So thank you for sharing your story, Im sure you will be kept busy answering questions here, you are fantastic!
xx
Tanya
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 07, 2008, 09:41:34 AM
My original injury was when I slipped on some greasy washing up water that was spilling out of a machine at work (Iwas a chef) and got an open fracture of the knee. The patella came out of the gash in the knee.
As far as the scopes are concerned, I always had debridements due to OCD and the only diagnostic one I had where they didnt do anything but look was one when they looked to see the status of my OA before my first PKR. I recovered quite quickly from the scopes, but the knee feel sore for several days after. If you have scope surgery, meaning they do more than just look,, it will be more painfull and the swelling will be more. Remember that a lot of swelling after a scope is due to the saline solution they pump in there to enable them to look around. They pump it out again best they can, but theres always some left and the knee will feel tight afterwards, especially I found in the back of the knee where I had trouble bending it.

I've never had problems so far with my hip, but have had serious back problems in my lower back, due to favouring my right side. I was scanned and it showed I have serious degenerative changes in my lower spine, but until now no OA in my hip - thank god for small mercies! I also lack 2 cm in the length of my left leg, due to all the surgeries, but when I've had the arthrodesis I will have a difference of around 5 cm. That makes my back ache too. I have been warned by someone i have spoken to whos had an arthrodesis that I will develope hip problems with time, but we'll cross that hurdle when we come to it!
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: Plumb on May 07, 2008, 12:37:58 PM
Less than a week away until your appointment.   Best wishes I hope they are able to save the leg.
Title: Re: Bedas Pre-Op diary
Post by: Sore knee on May 07, 2008, 06:07:02 PM
Beda

Good luck with the coming apt and surgery. I hope it helps and you will be able to help so many here and I hope we can offer you support back.

Actually I face surgery on the 16th and it makes me appreciate the issues I have are hopefully redeemable and it humbles me to read what you have been through.

I really hope you can get something to ease your pain and wish you the best of luck. I look forward to hearing how you get on.

Joanne
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 07, 2008, 06:34:58 PM
Thank you so much for your kind words and support. yes, I am counting the days for this OS appointment. I hope your surgery goes well for you. Today I have actually had less pain than normal for some unknown reason. I have to wonder if its the weather?? the weather has turned from being cold and wet to being dry and warm and sunny, and I am running around in shorts and a T shirt. I definitly have it better with warmth on my leg. In the winter i use a heating pad a LOT, and heated my bed before i get in it at night with an electric blanket. I would never have survived the winter this year without my heating blanket. This winter I had it so bad some nights I went to bed at 5 in the afternoon just to get in the warmth and to get in a good position with my leg. I need to support my whole leg  all the way down in bed on pillows to be comfortable. I just have had SO MUCH pain, with movement and at rest, its been unrelenting. Looking forward to some Pain Relief!!!!!!!!!
catch you later.
Love beda
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 08, 2008, 07:52:34 AM
A new day. Countdown only 5 more days before my OS appointment. Went on Righsopitals website last night, and found out a whole bunch of info about the hospital, the department I'm going to be in, and about being a patient in the hospital, and about how the stay is likely to form itself. Rigshospital is a very big University Hospital, and takes patients from international destinations as well as ONLY special problem patients from Denmark. In the brochure for doctors, (yes I read that bit too!!) it stated that most of their ops on knees are for people who've had TKRs that have gotten loose or failed for some reason like infektion etc. so sounds like Ive arrived at the right place! The outpatient dept for the orthopædic dept sees about 150 people daily, so theres a lot of doctors there! the physical conditions at the hospital are state-of-the-art. Theres tv at every bed, telephone and internet, all of which are free if used normally. I will be taking my laptop so i can keep you guys on the Knee Geeks informed as to how I'm doing when I get my op. I was also reading about anæsthetics used, because once I had the experience that they put me asleep, or thought they did, but I wasnt asleep and they started messing with me and I tried to say that i wasnt asleep so they shouldnt start operating, but I couldnt react at all. I tired to say something but couldnt, tried to lift my arm but couldnt. This was very scarry, and something that only 1 out of 10,000 experience these days, but it DOES happen. However, I told the OS the next day after the op, and he apologized profusely and said it would not happen again, they obviously hadnt given me enough to put me to sleep. At Rigshopital they are aware that this phenomena happens, and take extra precautions when putting you under by using an EEG machine whic measures your brain activity so they can see if your asleep or not.
Today I have a LOT of pain. My morning meds havent kicked in yet, but when they do I should get some relief. I am not doing anything today like packing down boxes, for those who dont know, I'm moving house on the 16th to a place where theres no stairs, just in time it seems to be!! HURAHHH!!! If you just knew how I HATE those stairs, well, yes, lets leave it at that!! its a bit of a shame because my house is a nice house, in a nice area with nice neighbours, the only fault is has is that the toilet it up on 1st floor, so is my bedroom,and, its not big enough for my mom and I, who are going to now live together. This is because firstly we get on fantastically, mom is getting older and needs my moral support, and I need her physical support in the time of recovery I have ahead of me. The doctors say I can be up to 2 years getting over an arthrodesis, and that fusion can take from anything  from 6 months to 2 years. I will be in some form for immobilizer afterwards, hopefully not POP because that is just SO heavy and makes you ache because you have to carry the weight of the cast around. It will be internally fixed, meaning that the procedure will be that they take all hardwear out, put bonegrafts in with a long intramedullary nail that goes from my tibia to femur, and screws and plates to hold that in place. My only concern is, what if the internal fixation works itself loose?? I obviously cant have metal in my leg for long periods of time, that is tried and tested, so I do hope they have a plan B!!Well their their the experts in there, so i am sure they will do their best for me.
Catch you later
Love Beda xx

Please do give FARRAH all the support she needs, shes going through a rough patch at the moment, see her posts on Tanyas pre-op diary.
Have a good day everyone
Love Beda XX
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 09, 2008, 06:06:13 AM
Friday. Just 3 more full days before my OS appointment. I'm counting down now!! yet another beuatiful spring day, with temps promising to come up to 25 today, that reasonable hot for me!! had the ventilator fan on me all night long last nght, gets terribly hot upstairs because I have room right under a slanting roof, and the insulation isnt that good, so the sun bakes down and it get real hot up there. Forgot to get Boris in last night (my cat) so hes spent a night on the tiles, hope he enjoyed himself!! he came in this mórning, very cold and very hungry - poor pussy!!!

Pain is wicked today - again. I have pain radiating into my foot and going up to my groin. I have very diifuse pains through my leg, actually the knee itself doesnt give me too much bother, its the pains the knee makes down and up the leg, because the implants are loose all the way down the stems of them. I have 7 inch stems going up in my femur and down in my tibia, and there is osteolysis present there all the way around the implants, making them very sore, because of the fact they move slightly all the time, so you can imagine that hurts. Every step I take makes that darn prothese move, and shoots pain up and down my leg. AND yesterday my R. knee began to really hurt as well. I know I have issues with that, but I cant afford to have both fo my knees operated on, that would be just too much!!
Catch ya later Beda xx
Title: Re: Bedas Pre-Op diary
Post by: tanyap on May 09, 2008, 09:42:31 AM
3 more days!!!!!! yippee!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 10, 2008, 09:44:42 AM
Saturday - just 2 more days til OS appointment. Am considering writing a list of all the questions I want to ask him, though they have a pretty clear idea by now what needs to be done and how to do it. Unless Rigshospital comes up with soemthing completely new, nothing will be a surprize :-\

Just wanted to say if anyone is curious as to what my art is, (i'm an artist) you can look on www.bedasatelier.dk (ftp://www.bedasatelier.dk), there you can see a little bit of what I used to do when I could stand up at an easle! I cant paint at the moment for several reasons, 1. because I cant stand up for any length of time without crutches, and standing is my favourite painting position. 2. were moving and my paints are packed down and the house is in a mess.
I did want to paint yesterday, I have it really good painting, but couldnt, so felt frustrated. By the way, I was an artist BEFORE i trained as a chef, chef training was becuase I needed a ceative and permanent income to support my gallery. Food making is very artistic and creative. Any questions about food prep, I'm willing to answer too!!

Pain is killing me today, have taken pain meds with little result. Just one of thse days. have to knuckle down now to 'direct' mom into packing some boxes!!
catch ya later, hope all those who are in pain get some relief today!
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: Silkncardcrafts on May 10, 2008, 10:22:15 AM
Hi Beda,

Sorry you have been in so much pain. I have too, but it is much better today after the physio I had last night and pilates I did this morning.

Good luck with your appointment. Not long to go now.

It is 1 week and 5 days till Tanya and I have our ops.

Good luck !!!  ;)
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 10, 2008, 04:31:16 PM
Just spent half an hour composing a list of 28 questions I have for the OS on Tuesday!! I'm pretty clear in my head what hes going to say, but exactly what hes going to DO is another matter. Of course I've never had an arthrodesis done, no one much has had these days, its something of times gone by, when they used to fuse knees for serious OA, but these days they dont do it any more because of the arrival of TKR's. BUT it still DOES happen as I am a witness to, and the only goal and ambition I have is to be pain free; i cant go on like this, my life is in ruins because of this stupid knee. ( usually refer to it as my leg, because its the whole of my leg thats giving me problems.) Tomorrow will be sunday, then bank holiday monday, then!!!!!!!!!!! ??? ??? ??? :D :D :D
Hope folks keep their fingers (and toes but NOT knees!!!) crossed for me on tuesday! ;D ;D
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 11, 2008, 08:24:34 AM
Sunday - only 1 more day til OS appointment!! I'm not nervous yet, that will only happen when I have to get up at 4.00am to travel to the hospital on Tuesday!!
Have gotten the most of my house packed up in removal boxes now. I've been doing the stuff I can sitting down, otherwise directing my mom in packing down, throwing out and giving to the flea market! By now, it MUST have made a difference in all the stuff that needs to be transported!! removal men coming on friday at 8.00am. ;D ;D
Have heard the new place is to be newly painted 100% everywhere,  so its going to be really nice for us when we move in! good we dont have to start painting the place. You get 2 types of arrangements over here with rental properties. the one is, that its newly painted when you move in, and when you move out it has to be left newly painted, and, 2, you do the painting yourself when you move in and you dont have to have the place painted when you move out. I cant even begin to think of the problems of movng out yet, we havnt even moved in yet, and we definitly intend to live there for a LONG time!!
Well, hope that all of you that have pain today gets some relief, take your meds, ice and rest - its sunday!!Tomorrows a Bank holiday here in Denmark, is it over where you are??
catch ya later Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: kathat on May 11, 2008, 08:37:48 AM
Hi Beda,

We don't have a bank holiday tomorrow. Today is Mother's Day though, so we spent the day with my Mum and family.

I have a huge list of questions for my OS when I see him on Tuesday. I just hope I get around to asking them all. I mostly want to know about the surgery he wants to perform (more about chances of success etc, than the actual procedure) and I also want to ask about what he sees for my future (ie. if this doesn't work then what's next and what are my options). I hate OS appointments. I always seem to turn into a vacant idiot with no mind of my own, and I forget to ask at least half of the questions I want because they don't seem relevant or some such rubbish.

I hope your appointment goes well and that you get all your questins answered to your satisfaction. Best of luck.

Kathy
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 11, 2008, 10:34:49 AM
Kathy - I know what you mean about turning vacant when your in there with the OS. Isnt this all because we tend to think the're some kind of superior GOD thats got ALL the answers?? there just people like you and me, though sometimes they dont act so. I have found great arrogance by doctors, young and old alike, but one thing I have leanrt, dont be afraid of them!
I'll look forward to hearing about your appt. dont forget to post me about it. i do hope they can do something for you. I know for me they HAVE to, they dont have any option, But I'm a bit worried about the outcome of the op, because what if that fails? then they have to amputate my leg :'( :'(.
Look forward to hearing from you again
Love Beda XX
Title: Re: Bedas Pre-Op diary
Post by: Silkncardcrafts on May 11, 2008, 10:39:53 AM
Kathy,

Don't worry. I do that as well. Just don't like to ask stupid questions. Last time before my appointment I asked my sports physician about the questions I was going to ask. He was able to answer some of them for me. Have you thought about seeing a sports physician ? They may also have some other ideas. Good luck with your appointment and let us know how you go.

Beda, good luck with your appointment too. I hope it turns out the way you hope.

Counting down the days till my op. 1 week and 4 days to go !

Enjoy the rest of your weekend !!  :)
Title: Re: Bedas Pre-Op diary
Post by: kathat on May 11, 2008, 12:53:44 PM
Beda,

I know it's small comfort, but I have worked on an orthopaedic and amputee ward, and I was very surprised at how well people managed following amputations. Often it was a relief for them to be rid of the pain of unhealed or gangrenous wounds and be able to have a functional limb again (even though it was artificial). I know where you are coming from though. It would be awful to have to consider losing a part of my body - it's bad enough to consider that if I eventually have a replacement that I'll lose a chunk of my knee joint, never to get it back again.

It's funny, I work with doctors and have learnt that they are just people and have had to start at the beginning like all of us, but it's still no comfort when you are sitting there in their surgery waiting for them to pass verdict on your health problems. I can argue with them when it's not my health I am dealing with, and I can ask lots of questions and don't care how dumb I sound. Weird hey?! I have pushed doctors for certain treatment, and have argued with the best of them if I happen to disagree with them. I have also had doctors ask me all sorts of weird questions in my job as a nurse, but it still is hard when I am the patient having to ask questions. I don't even know if it's a fear factor or something else that turns me into a gibbering idiot when I present for an appointment. Each time I hope it's different and that I'll get up the guts to ask what I REALLY want to ask. I think that as I get to know a doctor it gets easier. I certainly don't have too many problems with my GP now. And when it's my kids I seem to do okay - like at my daughter's orthodontist appoinement earlier in the week I asked lots of questions and had no problems. Maybe it's the personality of the doctor - mine hasn't got much of a personality! He's nice enough, and was great in the OR before I was put under anaesthetic, but he's not a good conversationalist.

Anyway, enough of that. I hope I get the worst of my questions out of the way this time! They seem to keep building up!! I'll let you know when it's all over with - maybe I'll have to start my own pre-op diary, if things go the way they looked like they might at the last appointment. Take care all.

Kathy
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 12, 2008, 08:15:00 AM
0 More days to the OS appointment TOMORROW is THE day!! :o :o ;D ;D I just cant believe that the time has finally come, now its MY turn! :o :D After months of battling in an futile Battle to get seen by someone, tomorrow its happening!! I need to get up at 4am to be driven to the coach at 5 am where i will be driven up in luxury: Its a 4 hour drive, and well probably hit traffic on the motorway. Mom is coming with me. We need to be 4 ears to hear what I have to hear! the decisions to be be made are life-changing decisions, and I have a list of 28 questions for the OS, I hope he'll bear with me. But in the introduction papers to this department I'm going to, they encourage making a list of questions for them to answer, so I have taken them by word!! :) ???

Only 4 more days till the move! :o :o Just in time seems to be. Now I doubt there gong to schedule surgery for the day after tomorrow,  ???but I do hope for a not to long waiting time. Mom was so good, she just said, well, if you have to have surgery soon I'll just have to unpack the house myself!! (Shes 76) She said definitly dont put it off, and I wont, not for anything, but moving house IS a big deal!; specially when your 76. ;)

Kathy, thanks for the encouragement. I can understand people being freed from pain and loosing a limb, believe me, I'm ready for it, anything willl be better than this constant unrelenting pain. :'(

So everyone, I'm off tomorrow, hope each and every one will wish me luck, I'll be needing it ;D :D
Hope all who are in pain can get some relief today, remember, ICE IT!! :o
Love Beda xx :-* :-*
Title: Re: Bedas Pre-Op diary
Post by: tanyap on May 12, 2008, 09:02:10 AM
Beda!!
TOMORROW is the day!!!!!! yippeee!!!!!!
Im so happy for you, I have been thinking of the 'appointment countdown' over the weekend! All you have to do is have a good day today and then at 4am you begin your journey!
28 questions? Thats fine! Its much much better that you ask all your questions - its stops you from worrying afterwards that you have forgotten something - I always make a list too.
I hope you can get to post very soon after your appointment as we will all be dying to hear what happened!!!
Good luck Beda - you have been so patient and now the big day is finally here!!!
xxx
Title: Re: Bedas Pre-Op diary
Post by: Silkncardcrafts on May 12, 2008, 09:14:48 AM
Beda,

Just wanted to wish you luck tomorrow.

I would think about reducing your questions. What are they ? Another suggestion would to email them to him if he can't answer them all during your consultation or give him a copy.

Good luck !!  :D
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 12, 2008, 10:18:54 AM
OK!! I can cut the list down to the following more pertinent points:
1. How will you fixate my leg - internally or externally?(they can do it with in intramedullary nail or an outside frame with pins)
2. Will I be painfree afterwardss eventually?
3. How much length of leg will I loose?
4. where will you take the bone transplants from?
5. How long do I have to be hospitalized?
6. WHEN can I have the operation?
7. What will you do about pain management?
8. status of current pain treatment
9. What type of anæsthetic do you use?
10. what abot post op pain management?
11. What do you do about sickness after the op? (A BIG problem for me)
12. What about post op PT, when does it begin?
13. How long time is estimated before my leg will obtain fusion?
14. Am I to be in some form of immobiliser?
15. Can I have FWB immediatly?
16. Do you set the leg with some degree of bend?
17. Why is my leg CONSTANTLY warm?
18. How long is the surgery?

Of course there many other questions, but I know when I get in there I probably wont ask half the questions I want to, just out of the awe of being there! Still, I do know the answer to most of the questions, but its always good to hear them refreshed, and also, HOW they do things at RIGSHOSPITAL!! RIGSHOSPITAL is the States hospital of research and treatment of very special rare sicknesses and difficult operations that other places cant tackle - sounds like I got to the right place at last! Translation: RIG means The Kingdoms State - Hospital, self explanatory.

Anyone think of any other good questions I can ask, fire away!!
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: tanyap on May 12, 2008, 10:26:01 AM
Hi Beda,
I think ask all your questions. Its gonna be a long consult no matter what way you look at it so you might as well - you have waited long enough to ask!!!
You might combine some like :
9. What type of anæsthetic do you use?
11. What do you do about sickness after the op? (A BIG problem for me)
into:
What type of anaesthetic do you use because ive experienced sickness after anaesthetics before?

I think you pretty much need all those questions!!!
I cant think of new ones, youve got it very well covered!!
xx
Title: Re: Bedas Pre-Op diary
Post by: Silkncardcrafts on May 12, 2008, 10:49:36 AM
Hi Beda,

I think they are all good questions. Hopefully most of the questions will be answered by him explaining the surgery and recovery.

You may also want to ask the following :

- How long will I be on crutches for ?
- How much time will I need off work (if you are still working) ?
- How long is the recovery ?

Sorry, didn't mean to make the list longer !!

Good luck. I will be thinking of you tomorrow.  :)
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 12, 2008, 10:59:29 AM
I AM of course, on crutches already, but it would be interesting to know how long they think I will need them for :o

I got disability 32 years ago when my leg problems started and came to stay. I have been working from home as an artist in my own time, but havnt been able to do any painting recently becuase I cant stand up at an easle. I dont hva to worry about time off work.

Recovery comes under how long do you think my leg will tke to fuse? When its healed, then I should be well on the road to recovery. Of course I'm going to need PT to learn to walk with a stiff leg, and I will need special shoes to compensate for the 4 inches or so difference in length of leg


xx

Title: Re: Bedas Pre-Op diary
Post by: tanyap on May 12, 2008, 11:28:39 AM
Beda - I could be well wrong but from what Ive read here and elsewhere I think fusion is relatively quick - its like a big fracture healing, so 6 to 8 weeks perhaps? I would imagine the main part of it would happen in that time anyway.
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 12, 2008, 12:06:19 PM
Tanya: I thought so too, but after doing some research on the internet, apparently after theres been implants in and a state of inflammation, and not to speak of osteolysis, the fusion can be delayed to several months, even up to a couple of years. The most common time frame though, is in for about 6 months. I even found an operation report on the internet, its a huge op, lasting several hours. But I need to ask THEM at Rigshospital, maybe they just whip the old implant out, debride and stuff the new bits in and Bobs your Uncle!! :o ;D No, i really dont know, but I do know that some people have a hard time gaining fusion. osteolysis really messes up the quality of bone you have.
Beda XX
Title: Re: Bedas Pre-Op diary
Post by: tanyap on May 12, 2008, 12:33:55 PM
oh....that was me talking off the cuff, with no research or inside knowledge!
i didnt realise it could be delayed so long.
youre dead right - you need to ask them in Rigshospital - it may be shorter than you think. Even if it didnt fully fuse once it starts you will at least not have the pain of the implant moving around and that will be wonderful for you.
can they put plates along the outside of the bone to encourage it to all stick together and heal?
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 12, 2008, 12:53:32 PM
When you have aspetic loosening like me, without the presence of pus, they like to set it internally by using an intramedullary nail and plates and screws. The nail is about 18inches long. Another option is, using a frame that goes outside around your leg, and has pins going inside thats attatched to the bone and grafts and hold them in place as if in traction. But they dont have so much success with fusion by doing it externally, and they like to save the external method for those who have the presence of pus, where they have to keep an eye on whats coming out. The most likely for me will be the internal method I have been told by the surgeon from Nykøbing who referred me to Rigshospital, and it is the internal method that demands the greatest operative expertize, therefore they couldnt do it at Nykøbing, because they've only ever done external at Nykøbing. They havnt seen an internal fusion for 20 years in Nykøbing, its that rare. The external method is a very old-fashioned way of arthrodesis and not practiced IF they can possibly do an internal fusion. Fusion is not the chosen method of treating knee problems these days, it used to be when they couldnt do anything else when OA became unbearable.

Beda xx
Title: Re: Bedas Pre-Op diary
Post by: kathat on May 12, 2008, 01:42:25 PM
Tanya,

They do use some form of fixation (either internal or external) to immobilise the joint to keep it still while it fuses, but it doesn't actually increase the speed of fusion as such (just stops it moving around and slowing fusion as a result, the same way a brace or plaster does for a fracture). You still need reasonably close contact between the bones to get them to fuse - too big a gap and it won't fuse over. That's where the bone grafts come in - they help pack the gap so they don't have to shorten the leg by too much. Healing in such a case is much slower than for a fracture as the bone grafts have to "heal" too. If there wasn't a bone graft then fusion may take place in around 16 weeks, but could possibly still take up to a year.

Beda - You have a good list of questions. Make sure you write them down in order of importance, so the most important ones get asked first. You might find that the anaesthetic questions need to wait until you meet the anaesthetist, as they are the one who will be deciding on what drugs are used. I also had to fill in my anaesthetic history on a form - if you have to do this then write you have had problems with nausea/vomiting in the past. They can vary what drugs they use to see if they can avoid the one that makes you sick. It's worth informing your OS about your history with anaesthetics, but it's not a vital question to ask if you run out of time, as it can be addressed closer to surgery and is usually part of an anaesthetic checklist that's done prior to surgery.

Work just rang me to find out why I wasn't there - someone hadn't passed the message on that I was not coming in!! I even double checked with someone else that I had been marked off as on leave tonight but it still got messed up somewhere along the way. They were not happy, but could see my side, as I had done the right thing and informed someone and then confirmed it a few days later. If I hadn't just dosed up on strong painkillers then I would have offered to come in tonight and have tomorrow night off instead (I can't sleep tomorrow due to appointments, so can't work both tonight and tomorrow night). Oh well, they'll just have to lump it. These things happen. They have coped before and they'll cope tonight. I am not going to stress over it.

Good luck with your appointment tomorrow Beda. I hope it goes well.

Kathy
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 12, 2008, 02:02:05 PM
Thanks for the precise info Kathy, I knew it was something like that, but you put it so it could be understood. I DO hope they choose an internal fixation for me, as the sucess rate of fusion is so much better.  :-\I've done my homework on the internet and seen just about every available report about fusions for failed TKR's. Theres extensive info out there, but common for them all, they all say internal fixation gives the best and fastest fusion. I am looking for a fast and problem free fusion, one that will heal within the 6 months would be fine for me. Dont you think that as soon as it begins to grow together some of the pain would disappear?? I do HOPE so, as this unrelenting pain I cant keep on living with.I will cut out the anæsthesia questins until I get to see the anæsthetic doc.

Thanks again for the info Kathy, I hope your not in too much pain, glad to hear you'd taken the evening off, just let them get on with it at work, they are after all professionals and should be able to relate with your problems.
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: tanyap on May 12, 2008, 02:18:56 PM
Hi,
I just realised how some of my posts get lost!!! I had one typed and as I hit 'post' it told me someone had just posted and did I want to review my post. So I just hit 'post' again - and realised that sometimes I dont notice and just go back off elsewhere without checking if my post really posted!!!

Anyway - was just saying thanks to kathy for that explanation - very interesting.
Beda I would imagine you will have a reduction in pain quite quickly - one of the reasons you have so much pain is everything is moving about. If you were to be immobilised while waiting for fusion to happen then I would think that you will not have so much pain at all (obviously immediately after surgery yes, but I mean a little while after). If the area is immobilised and cant move about then you should feel much better as now every movement jars an already sensitive area.

xx
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 12, 2008, 02:38:07 PM
Tanya, would imagine your right in that thought. I too think the reason why its hurting so much is 'cos its all loose in there, and causing a cetain ammount of friction. But my pains have been a lot more tolerable, but still bad, on OXYCONTIN Mixed with paracetamol and Relifex (an NSAID), and OXYNORM (another artificial morphine product) as a supplement twice  a day if it gets too bad. This oxycontin was the most recent drug the dr. came up with after referring my case with someone from the pain clinic, an anæthetist whos in charge of the Chronic Pain Section. Oxycontin works better than CONTALGIN which is pure morphine sulphate. Oxycontin is an artificially produced synthetic morphine type, more potent than morphine sulphate. Its some terrible stuff to be in use of, but unfortnatly necessary at the moment. It took the doc. 2 years to get to this result. i dont envy him dealing wih me,i must be very difficult, because my dosage goes up and up all the time to reach max. effect. Am now on nearly as high as one can go.

Love B xx
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 12, 2008, 05:38:58 PM
Kathy Hope you see this in time, but good luck with your appt. tomorrow. i will be thinking of you. What is your hospital called?? Just curious, as you know by now for me its Rigshospital, being a very special hospital. Am glad you took the evening off, before the 'big' day!! Wish I could take the evening 'off' I feel like I've been 'on' for months fighting for this appointment. The red tape I have met has been incredible, youd never believe it. One day I'll write it all down as a memory for myself never to take ANYTHING in this hospital system we have over here for granted, AND I dont have a date for surgery yet!
Look after yourself and as we say in Denmark pøy-pøy!! (good luck)!!

Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: tanyap on May 12, 2008, 06:04:54 PM
pøy-pøy to you for tomorrow Beda!!! I will be sending many good thoughts your way! xx
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Title: Re: Bedas Pre-Op diary
Post by: Plumb on May 12, 2008, 10:37:35 PM
Just thinking my evening is your nighttime and you must be asleep or just about on your way..   Best of luck.
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 13, 2008, 04:33:18 AM
Its 5.30am and I'm on my way in a couple of mins. The suspense is killing me, though when I get there I know I'll be cool because I always am when faced on the final day. I'm just a bit worried about the journey up!! Got my best togs on today, thought I'd shine myself up for the OS. Dont know who he is or maybe its a she, and what he/she looks like! Will write full report this evening when I get back home.
Kathy;  have a good appt. Hope they can do something for you
Love Beda XX
Title: Re: Bedas Pre-Op diary
Post by: kathat on May 13, 2008, 04:38:39 AM
Phew! It's all over, for today at least. I have just got home after doing all the appointment stuff, so I am glad I decided to take last night off as I don't know when I would have had time to sleep between shifts (I am working tonight too). I am booked in for surgery on the 18th June. I'll start a diary with all the info.

Beda - I hope your appointment goes okay. The time difference always gets me. I think you must be coming into your day about now, or be in the morning sometime, though I'm not real sure. It's 1pm in the afternoon here. GOOD LUCK!!!!

Kathy
Title: Re: Bedas Pre-Op diary
Post by: tanyap on May 13, 2008, 09:43:52 AM
Beda - can you feel the Happy Thoughts!!!!
I am thinking of you today - you may even be seeing a doctor as I type this!!! I will look forward to reading your update this evening or tomorrow.
xx
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 13, 2008, 06:38:19 PM
PHEW HAH!!! ITS OVER!!! i had my appointment. I arrived an hour late, and the OS had written me off as not coming. But he saw me anyway, and took all the time I needed. I was in there for an hour!!
It started with i had some blood work done. Then I went in to see the doctor. He was a middle aged good looking man, and he had authority over him without being snobbish or 'proud'. He listened to my story, read my journal from the other hospitals. he had the most recent x-rays from Nykøbing Hospital in the computer. He started by saying that at rigshospital they specialized in putting implants in people of which their protheses have failed miserably - often for the 5-6th times. He said that there was a faint hope that he could save my leg, but would have to examine me first. He had me lie on the examining bench, and he wanted to bend and straighten my leg, but this was impossible. Then he asked me to try to lift my leg using my quads. I couldnt. He asked if i had been operated in my groin because I have so much pain there, and I have for 2 years ago I had some lymphomas removed in connection to the last TKR I had done. He said they had damaged my femoral nerve when they operated on me,causing paralysis of the femoral muscles, so my quads no longer work properly, actually theres no messages going to my brain because the nerve has been severed. This was very unfortunate, and made all possibilities of saving my knee impossible as it would just not function even if he did put a new TKR in. He also was of great doubt that a new TKR would sit in my leg for more than 1 year, actually my chances were 98% of failure. he said that the implants I had had put in were much too big and they had taken much too much bone away, and the only thing he could do for me was to perform an arthrodesis. I will have all hardwear removed from my leg, extensive bone grafts put in to substitute the loss of bone, and then they would make an incision in my hip at the head of the femur, whereby they will pass and fit a rod that will go all the way through my femur, through the knee joint and down into the ankle, ending 2 cms from my heel. Then this will be secured usng screws to make sure it doesnt move.I will loose abut 7cm of length of leg, plus the 2 cm I lack already, making a loss of 9 cms. about 6½ inches.
The next line of action is they have to take x-rays of the full length of my leg, they are special films and have to be taken at Rigshospital, whereby they will measure the length of the rod they need to use, and to work out how thick and long the rod has to be according to height, weight and bone mass. When all this info is gathered, if the rod they need to use is 'in stock' the operation will happen very soon, as soon as the nurses stop striking. If the rod isnt 'in stock' and for some reason needs to be made specially to fit me, it may be have to be made in germany or the US so there can go up to 6-8 weeks delivery time. I will have FWB from the beginning, and i will spend about 7 days in the hospital. Fusion will take anything up to a year, but I have as high as a 25% chance that it wont fuse. If after a year it hasnt fused, i will be opened up again and fresh bone grafts will be used to try to encourage healing. its a big and difficult operation, requiring great expertize, oh, and the rod the fit will have a bend of 10 degrees. I will be fitted with a special shoe immediatly, and special permanent footwear will be made for me whilst i am at the hospital.I will be monitered carefully all the time at Rigshospital, and they wont slip me until i reach a state of fusion and 100% healing. PT will be at my home hospital. My leg will be permantly stiff, with a slight bend so that i clear the ground when i walk. I SHOULD be rendered pain free.

So thats about it! Surgery will be as soon as possible when they can arrange it after i've had all the preliminary test/ measurments and when they have the hardwear home to be able to operate me. So there will be no such thing as waiting lists etc!! I am to be called in ASAP! I got ALL my questions answered, the OS gave me all the time I needed and wanted.One BAD thing: He thinks I have a low-grade staph infection going on which will require anti-biotics for 3 months. never mind, he thinks its controllable, he siad it wouldnt make a difference to the surgery as son as I begin the anitbiotics.

Nobody know how much a relief this is all for me. At last someone  is doing something for me instead of tossing me around from one place to the next. dear friends, thank you ALL for being so supportive and patient with me.
KATHY Glad to hear your surgery is finally scheduled. What exactly are they going to do to you???

Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: tanyap on May 13, 2008, 08:13:39 PM
Beda!!!!

That is WONDERFUL news!!! I am so pleased for you! Im so sorry that they had damaged your femoral nerve and used implants that were too big before, but I am so glad that this OS has explained everything so clearly to you and this surgery sounds like it will give you back your life.
Its fantastic that you will be weight bearing immediately - will you have to wear a brace during the first few weeks after surgery?
I really hope they have a rod in stock for you - are you particularly tall or short or average height?
When is it likely the nurses will stop striking?
7 days in hospital is very little - thats great!
you do have a 75% chance it WILL fuse and at least if it doesnt they can still do the second operation so it is not the end immediately if it doesnt - but we must believe it will fuse!!
Pain Free!!! Wonderful!!
If the only bad thing is a low grade infection that the doctor thinks is controllable anyway then thats so small - dont worry about it!

How do you feel about it all? You are probably still overwhelmed that something so positive is happening?
Did you ask about any restrictions you will have with a fused knee - is there anything unexpected?

I am so happy for you - I think this is the beginning of a fantastic new life for you - to be pain free will be wonderful!
xxx
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 14, 2008, 08:33:49 AM
Tanya. I will be FWB immmediatly but he said that if he feels that there is the slightest instability whatsoever, he will use  a POP cast just to be on the safe side, better a bit more plaster and more stability than not enough, he says. So I wont know if I will be outwardly immobilized until I wake up after surgery.
I am a very short person, measure only 5'1 so they are going to have to find a short rod for me! Lets hope they have it in stock!!
The nurses soon have to go back to work, their funds for striking are not bottomless, and many are returning to work because their consciences are bothering them!!! Yesterday at Rigshospital, there were LOTS of people, and I came to think, 'are all these people really seriously ill' and the answer was yes! At Rigshospital they ONLY cater for seriously ill patients or very difficult problems. Its a HUGE hospital and has 1,500 beds. which is  alot for DK.
Yes, theres 75% chance for fusion, so we must pray for that!! I do hope it wont be a difficult recovery.
Its a shame my quads ae paralized, i wondered why thay had disappeared over the past 2 years, I never had THAT before, but it was the op for the lymphomas that did it.
MMMM!! Low grade infecion, that should be cleared up or well n the way by the time i get my surgery, I started antibiotics yesterday. have to have them for 3 months.
YES!!!! Pain free, its sounds like music to my ears, and it WILL be a new life, but theres a long way to go yet, it all hasnt begun yet, so I am looking forward to hear further from Rigshospital!!
So my pre-op diary will continue for a whle until it can become a POST-op diary! I will be taking my laptop to the hospital with me where i will be online when I'm feeling up to it to give a report for how its going!

Only today and tomorrow and then I move! Its fantastic that we found this house that has no stairs, I just couldnt imagine life after Ive had surgery with stairs, it just wouldnt work!! God works in wnderful ways for us sometimes!!
Catch ya later Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: tanyap on May 14, 2008, 09:09:34 AM
Hi Beda,
wow - you are only 5'1? That is absolutely fantastic for fusion! Brilliant - just think if someone was over 6 feet tall they would have much more problems travelling in cars or for public transport.

How will you manage stairs afterwards - I assume you will go up with your good leg, then bring the fused one up, then go down fused leg fisrt and let the bend happen in the good side? It will be fine - after my surgery 20 years ago I had a POP cast for 6 weeks and by the time I went back to get it removed I could weight bear through it and that was how I did stairs - and that was with my leg the same length - so if that was possible (and easy) it will be no problem for you.

When I was in the bath last night I imagined how it was going to be for you to put your socks and shoes on, so I held my leg straight and reached down towards my foot - it was easy, if your leg is shorter you will reach the end of it very easily.

I hope the nurses strike ends very soon - Im sure it will, it has been going on a while now.

Beda I think that all of this is really really great news for you - I have no doubt you will face some challenges getting used to your new improved fused pain free leg but there is nothing insurmountable, and you being the height you are makes things so much easier, lets face it you could not have continued as you are now. I do remember talking to someone on here who was quite short who had it done and they said it was fantastic and they got around easily and had no problems with public transport and could walk fast - so that was a brilliant outcome.

I will now send my good thoughts to Rigshospital to call you back in very very very soon!!

And your new house will be a wonderful experience also! Its all good Beda!!
xx
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 14, 2008, 09:15:11 AM
Yeps! Everything is GOOD. But really, dont you think it was about TIME something good happened after all I've been through to get this far!!!!!!!!!!!!!!!!????????????? ::) ::) ;D ;D
xx
Title: Re: Bedas Pre-Op diary
Post by: tanyap on May 14, 2008, 09:29:33 AM
Yippeeee!!!! Beda is getting fixed soon!!!!!
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Title: Re: Bedas Pre-Op diary
Post by: Silkncardcrafts on May 14, 2008, 10:26:25 AM
Beda,

That is fantastic news !!! I bet you are very relieved.

Hopefully you will be pain free after this operation.

Good luck !!!  ;)
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 14, 2008, 11:39:29 AM
Yes, I'm VERY relieved!! i am just SOOO sore today afer the OS trying to manipulate my leg yesterday. Its really set all  sore points off again, My quads are aching in my groin from straining to try to lift my leg, but I just couldnt because of the severed nerve. Having a severed neve doesnt mean that you cant experience pain there, theres lots of OTHER underlying muscles that have nerves that have been straining too. it feels like I've pulled something out of joint! Actually apart from where I have no feeling at all, it feels a lot like a fibre injury. Maybe we went a bit over the top yesterday with the old movements!!!??
Beda xx
Title: Re: Bedas Pre-Op diary
Post by: kathat on May 14, 2008, 01:53:46 PM
Your new OS sounds fantastic. To spend so much time with you and answer all your questions so well was terrific of him. Being short will definitely be of benefit, as Tanya said - you won't be trying to fit a long stiff leg into a small space when you sit at a theatre or such. What a pity about the severed nerve. I am glad that you have a chance to be pain free before long. I hope it all happens quickly for you. Rest up and I hope your extra pain settles soon.

Kathy  :D
Title: Re: Bedas Pre-Op diary
Post by: tanyap on May 14, 2008, 02:08:08 PM
Beda I was telling my boyfriend about you last night and he said 'oh my god - id never be able to do that!' - he is 6'4 :)
But as I pointed out to him - he already has trouble fitting into places with his extra lanky legs even with a bending knee!!!
A little shortie like you will have no problems whatsoever!!
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 14, 2008, 03:09:06 PM
Yeah well, being short sure has had its disadvantages in life, ::)  but now I think the time has come to rejoice that I'm not more than 5'3 I measured myself. I thought I was 5'1 but I'm 5'3 so still I thank god for small mercies ;D ;D i still cant get in bus seats and cinema seats, I've tried it all for size. My leg is quite stiff already due to very limited ROM and the fact that it hurts to bend it, I tend to just let it do its own thing and stick out! If i force it into a bend, it locks and I cant walk properly, well, lets say in the fashion I walk now, which sure isnt 'properly' or 'normal'!! :D ;) If I am to get into danish bus seats I'm going to have to perch my bum on the edge of he seat and slide my leg under the seat in front, so in fact I'm sort of lying down!! :-\ :o :D
Still, there will be a ten degree bend, so it wont be 100% straight :-\

Love B xx
Title: Re: Bedas Pre-Op diary
Post by: tanyap on May 14, 2008, 03:27:27 PM
Dont forget Beda that you when you dont have any pain you will find ways to do things that are impossible now anyway, you may actually enjoy being physically able to stand pain free for a bus journey - something that would not be possible now!!
For cinema seats you could either use those ones at the back row that run the whole length of the wall so you could get a middle one with nothing in front, or one of the very front row with nothing in front, or one of the ones that they usually have sticking out a little at the sides that has nothing in front.
These are all small concerns anyway, you will find ways around these things - the more important thing is that you will be able to DO so much more!
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 14, 2008, 03:34:50 PM
so right so right
b xx
Title: Re: Bedas Pre-Op diary
Post by: Plumb on May 14, 2008, 11:22:56 PM
I remember reading your update but for the life of me I can't recall what day your surgery will start? 

I see a few soliders are using segways to get around now.  Power wheels for those who want to stand and do not want to be wheelchair bound. not that your there yet..

Title: Re: Bedas Pre-Op diary
Post by: Beda on May 15, 2008, 06:25:18 AM
Hi! I dont as yet have a date for surgery- The OS needs to take some measurements first and order the hardwear he's going to use. As soon as he has the necessary tools, I will be called in for operation. This involves the taking of some special x-rays that will be pictures of the full length of my leg so that he can measure how long the rod he needs to put in will be. If he has this rod 'in stock', then I will be called in quite soon, but if it needs to be ordered or custom built specially for me, it may need to come from Germany or the US, then it will have a delivery time of 6-8 weeks. So under all circumstances I'm going to have to wait for a bit yet, but at least I know the ball is rolling now. Another factor is, the nurses and radiologists are striking, and that strike needs to be over before they can go ahead with anything. But I dont think the nurses strike can go on for a lot longer - there running out of money fast!!! The nurses strike includes other health care workers like Radiologists,Blood technicians, porters etc.
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: lis1 on May 15, 2008, 10:51:06 AM
beda

I ahve been following this thread with great interest and feel that i should join in with those saying 'finally' not only is someone listening to you but they are going to do something about it too.  It sounds horrid what you are going to have to go through but will improve your quality of life no end. 

I also read with interest the stuff about cartilage transfer because that is what will be happening to me - and is now rapidly approaching.  When i delayed it in March because of the charity work i was not have symtoms and it seemed like a long way off.  Now i am having symptoms - almost daily - and with Zambia being only 3 weeks isn't much longer to wait.

You remain so positive and upbeat - you are amazing.

Good luck with the move i hope it goes smoothly and i look forward to follwoing more news as it happens.

Much Love

Lisa
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on May 15, 2008, 11:09:58 AM
Beda, I wanted to say that I am so happy for you that you are going to be pain free some time soon!!  I am glad that your OS is so great and is willing to take care of you!  That is so great after alll that you have been through!  I also wanted to say thanks so much for all of your support and encouragement for my situation.  My anti-depressents are starting to help some.  I have been feeling more relaxed about things in the last 1-2 days.  Still have my sad feelings, but my appetite is finally starting to come back some.  So hopefully it improves more over the next 1-2 more weeks.  I have been taking it for one week so far.  I don't know if you have kept up with my diary, but I am still awaiting approval for my Euflexxa injections.  Should happen next week.  This process is taking forever!!  Anyway, good luck with everything!!  I will keep up with your future post op diary and offer all the support I can!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 15, 2008, 12:48:26 PM
LIS thank you so much for yor encouragement and kind words., Yes, It really IS about time, and I am so glad I have found an OS who understands my position and is willing to act. i felt like quite a 'special' person by the time he was finished, not like some os's make you feel, like special 'problems' not people.

Farrah - I am SO GLAD your begining to feel brighter. By the time there's gone a couple more weeks you should be on top of things, and you'll have more inward strength to cope with the horrible problems your knee is giving you. I make it no secret that for 5 years ago I got horribly depressed about my situation, with the continuous operations and their failure and the pain. I took some anti depressants and they didnt work and i did get quite sick, and I ended up having ECT (electro shock treatment) because the depression got to me so bad. That helped enormously, but the side effects were horrific. I lost my memory and couldnt remember my telefone no. or my bank pin codes or my dogs name or anything! NEVER again will I alllow myself to get SO depressed., So; youve done the RIGHT thing and gotten yourself treated before things got out of hand. One of the effects of the antidepressants is that when it works it gives you an appetiete. Dont be too concerend if you put on a bit of wieght, because that happens as the medicine alters your metabolism, and you dont burn as much energy as you did before, and the fact that you HAVE more appetite makes you maybe eat a tiny bit more than you would have done normally.
Once again thank you for all your heart felt support.

Love beda xx
Title: Re: Bedas Pre-Op diary
Post by: rozzzie on May 15, 2008, 01:30:24 PM
Beda,

I want to wish you the very best with your surgery.  I know you want to be free of the pain, but still the surgery is scary.  I know that with you spirit you will do fine.

After I smashed  my ankle and arthritis set in I waited 7 years in increasingly debilitating pain. I had an ankle fusion 8 years ago, and it took about over a year before I was really pain free, but it was better soon.  I was NWB for 8 weeks and then PWB for 12 weeks, and still needed crutches part time for another 3 weeks or so.  The were able to use all the arthritis and the bone sections they had to remove to act as paste to help the fusion.  All these sections were but through a bone mill (grinder) that made a paste that was but around the ankle after the rod was inserted and the position was deemed good.

I am praying that this procedure will bring you the relief you deserve.

HUGs
Rozzzie
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 19, 2008, 07:10:51 PM
Rozzie. Nice to hear fro someone thats actually experienced an arthrodesis of a joint! It makes it feel more like its the right decision I have taken. It was not taken lightly, after a gerat deal of thinking and research, and the chances of me having a 'normal' life again was practically none, so this was next to best.
For those of you have wondered where I've been, well, friday I moved house! I have moved to a house on ground floor plane, so that I dont have any rotten stairs to cope with any more, and I am just SOOO pleased!! I've moved in with my mum, or righter, my mum has moved in with me, and we are sharing a 2 bedroomed house, which is plenty big for us two, we have a HUGE living room, mom has the biggest bedroom and I have the smaller one. I have packed everything I had in my bigger beroom down into the smaller one, and its a tight sqeeze, but we'll fit!! its all a matter of downsizing. I was spoilt where I lived before because I had a 2 bedroomed house of my own with no one to share it with, but it had stairs up to the loo, which was n good for me. Because of pain I have had to literally crawl upstairs several times a day jus t to use the bathroom. Not good. Now theres no stairs and I'm happy. the move went very well. the removal men were fantastic. everything was packed down in boxes as far as possible and they dismantled all the big furniture to get it out of the house, and put it all together again when we got to the new place, so it couldnt have been better. they had me packed up and moved in 6 hours whcich I thought was vey good. i really didnt move much myself at all, i cant do a whole lot of any kind of manual work, as the pain in my leg and knee is quite excrutiating.I havnt hear d from rigshospital yet, and dont expect to until this stupid strike is ove r with, as this is standing in the way as they cant operate on so many paitents because the anæsthetic nurses ae striking. I need to have my measurements taken first, so I dont think I'll hear when I will have a date for the op before that is done.
Thank you for everyone whoes been supporting me and giving me encouragement the past few days, sorry I havnt been online but the modem broke and I couldnt get online until I got a fastnet tlf. connection. I'm working on a mobile modem at the mometn, but its not very stabile, so if I go offline again, you'll know why!!
Pain is very bad today, so I'll go now to put my feet up, moving had taken its toll on me, I cant do much, so what I can do makes me hurt,so <i'll go now
love <beda xx
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 20, 2008, 06:23:56 AM
Hej dear people. here I am again today. working on a mobile phone connection, which has to go to the shop for repairs, so I will be going offline a bit later and will not be able to get online again until friday when I get my fast-net telephone conected. This modem problem is not with the stationary computer, but with my laptop, and I have to get it fixed because I want to take it in to hospital with me when I go so I can keep up date and on line about my progress post op.
Tanya Only2 days now, isnt it on thursday or what? You dont need to get too worried about the scope, its really not a big deal, but can offer you all the answers your looking for, I wish you all the best and hope that you DO wake up to find hes fixed your luxating knee cap He sounds like a good os and I am sure that if he can fix you in that scope he will. also the fact that he can investigate your knees movements under anæsthetic is VERY good because he can do things to you that you just wouldnt be able to let him do for good reasons. Under anæsthetic, you will be completely relaxed and it should be easy for him to luxate your knee cap if thats whats been happening with it. I KNOW you are going to benefit from being 'cleaned out' in there, youll be surpirzed how much of that 'crunching' will disappear when thats been done. I had good results fom all of my scopes. BUT if they find something too big for the scope to cope with, he may want to do open surgery, of which I doubt he'll do straight away, he'll propbably schedule a new surgery with you, AND he has to have you permission to graft your bum to your leg!! No, but really, a lt of surgeries that I have had done for 30 years back could have been managed with a scope today if they had had one in thoses days. I've got an incision scar fomwhere they have just removed scar tissue in one place, I thought that was a bit drastic, but wayback then in the dark ages thats what they did, they had no other option. Today there are so many possibilities with scope surgery, and so many new procedures that they didnt even dream of doing 30 years back. But everyone who has knee surgery, their primary comcern should always be, the question,'DOES THIS PROCEDURE CONTRIBUTE TO THE PRESERVATION AND/OR THE LENGTH OF LIFE OF MY KNEE JOINT' If you cant say that it does, then you probably shouldnt want to have it done. You working knee is just so precious, keep it for as LONG as you can,as long as is posssible without putting yourself through unbearable pain.
Tanya, I hope you havnt worn away too much cartilage in there, thats a bummer if you have. Please keep me posted as to how it goes, By thursday or friday O should get my modem back, but if all else fails, I should be online with the normal telephone on friday.
Rozzie that was incredible you had to go 7 years witha smashed ankle before atrthrodesis, but arthrodesis for you must also have been thel ast way out. I am glad to hear that it had given you a pain free life, and I really look forward to my life being pain free, but I dont expect anything until after theres gone about a year. Thats what the OS told me at least. My biggest dream is to be able to quit morphine products. I know I am dependant on them now, being on increasing larger doasages for 3 years now, and have been taking opiate products on and off for the last 7 years, so its not good. I feel it every morning, when there gone about 40 minutes after taking the meds the pain does subside, but I feel wierd in my head, and I think sometimes my speach is slow and slurred. I hate it when people can 'hear' I've taken my pain medication. These days I am even having to take extra because with the strain of the extra things I have had to do with moving etc. the pain has been aggrovated.

Well, today the TV company is coming to put a sattelite dish up. the reception is really bad here, we can only take one channel, so mom decided that we needed a dish and is paying for a sat box to put up in my room as well for when I come out of hospital and need to be in my bed for obvious reasons. We'll have 54 channels to chooses from after today, so that should keep me occupied!

Hope all those who are in pain get relief today, and those of you who are awaiting surgery, can I only say 'PØY-PØY!!!'
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: tanyap on May 20, 2008, 09:02:49 AM
Hi Beda!
I hope your technological issues are resolved quickly!!! Nothing worse than a computer that wont comply with orders to work online!

Very very wise words about my scope - one of the things he said in the appointment was about preserving the functionality of the joint by cleaning it out. I have to go into the hospital at 7.30am on Thursday and will be able to leave between 12 and 2pm that day. My boyfriend is on hand to drop me off and collect me.
The real question is what is he going to find in there - will he be able to repair enough to give me back a functioning knee or will he have to pull out and go for an open surgery later on or will he not know whats going on!!! That would be the worst - thank god he is actually intellectually interested in my case. He said exactly what you said there Beda about how he will be able to move my leg around under anasthethic in ways that he couldnt do while Im awake. I dont think it will be too difficult for him to see what is happening - its not like its difficult to sublux it!!
I am nervous now but not in a negative way - I have that feeling as though I have to sit an exam Ive actually know the answers for - sort of mingled excitement and wanting it to be over.

Thanks for all your kind words Beda - I am excitedly awaiting you to get news from Rigshospital, that is going to be fantastic for you!!
See you online on Friday!
xx
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 22, 2008, 05:35:05 PM
Hi tanya. By the time you get this you will have had your surgery and will know all the results - I hope FOR YOU!!! I have been forced off line for 3 days since tuesday and havnt been able to support you and all the other wonderful people that have been supporting me through these times. I cant wait t hear from Rigshospital, but unfortunatly the nurses strikes goes on, and there doesnt seem to be any chances of a resolution, so once again I am an offer to the health system thats sicker than all the people they treat alltogether! MMMMMmmm I wonder what they found in that scope?????????? I'll log in to your pre-op diary and see if I can see anything there.

As for me, the pain is pretty awful these days. with the strain of moving i seemed to have aggrovated every muscle I have and everything hurts now. The pain in my groin has spread, and my femure half way down where the prothese joins the bone is very sore. This is because with every move I make there comes micro-movement,and that hurts like hell. its like having a boken bone without having it set. Now I'm going to try to see if my friend tanya has posted her answers!
Love Bedaxx
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 22, 2008, 07:47:03 PM
Theres nothing quite like replying to your own posts, but a horrible thought has just struck me today. I am not getting maximum pain relief any more from my morphine, which means the trip has to go to my doc who manages my pain meds, and I KNOW what hes going to say, but I dont WANT it, bust somehow I'm going to have to survive the last few weeks before my surgery. I know hes going to put my morphine dosage even furher up. But this is the B side of the record when your on opiates, your body gets used to them, and you no longer get the relief you need with what dosage you are using. Dont take me wrong, I dont crave after it, I jst dont get pain relief sufficiently so that I can walk comfortably without being in excrutiating pain. The pain in my groin is the worse, this is where I have lost the use of my quads, so weaker muscles must take over and they arent trained up fr the task. i was wondering if pre-op physiotherapy would be a good idea, but then theres not much use in me to try to build up a muscle that has no nerve supply, and its not as if I'm going to be using my muscles in that leg 'normally' again. I think the muscles in my right leg are pretty good because they compensate all the time and take my weight when walking and standing. I cannot lift my leg up at all, due to the lacerated femoral nerve. This happened during a banale operation for some lymphomas I had in connection with the infection with my last TKR 2½ years ago. A surgery that lasted 10 minutes and had such drastic consequences. I'll never trust our local hospital again, its not the first they they have had bad luck with,  with me.

Well, thats enough complaining, hope that all of you that have pain gets some relief tonight, specially you kathy and tanya, and farrah.

Love beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on May 22, 2008, 11:00:12 PM
Hi Beda, I am sorry your meds aren't helping much anymore!  I have been taking my hydrocodone again.  The pain has just beeen outrageous...especially since my "OS" apt today.  I can't imagine what you have been going through for years!! 

I am sorry the strike persists!  That must be frustrating that your pain is dependent on nurses being happy.  I hope it gets resolved soon. 

It seems our friend Tanya got things figured out today!!  I am so happy for her! 

I hope you are able to get to your pain doctor to get those meds adjusted.  Good luck!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 24, 2008, 10:01:11 PM
Hej Farrah,, ja it seems like its monday before I can get to see the doc, so I have to hang in there. i dont WANT a new dosage, but it seems inevitable, I have to survive in the time before my surgery. I'm so sorry to hear your still in so much pain. There must really be something wrong I just cant imagine why you have so much pain. What did the OS say to you in your appt.?? I know it often hurts more proceeding a OS appt. due to the fact they move your leg in all directions you dont or cant move it in. I ached like hell after my last os appt.
Please keep the contact up, hope the depression is getting better now,
Love beda XX
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on May 24, 2008, 11:40:56 PM
Hello Beda,

My OS apt was kind of weird.  First I had the isokinetic testing to prove or not prove that muscle weakness is my problem.  Well it proved that it was the problem!  I don't really believe this test was accurate b/c he pain was so bad that I couldn't really react correctly.  So it measured my muscle strength based on my reaction and it wasn't good.  So it showed that my muscles are so weak and causing all the shifting and catching and pain.  So they are blaming this for a lot of my pain.  Well I also started my first Euflexxa injection at the apt.  After doing all the muscle testing and then the injection, the pain was so bad on Thursday after my apt.  it is a bit better today, but I have put myself back on darvocet instead of hydrocodone so I can stay awake.  It doesn't help much, but it takes the edge off.  Anyway, the idea is that the Euflexxa injections will help take some of the cartilage damage pain away so I can get through PT to get stronger again.  We'll see how that goes!!  I start PT again on Friday for the first time in 6 weeks.  I am very very scared of being in constant #7/8 pain from PT again.  I also have an inection that day.  Well I hope you get some info on your upcoming surgery.  Keep me posted! 

Farrah

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 25, 2008, 10:30:32 AM
Hej Farrah. I am so sorry to hear you are in so much pain. I would very much like to know what the dfferent meds are yur on, because there called something else over here n europe, what is DARVOCET and what is HYDROCODONE? And the injections, EUFLEXXA, is that a kind of steroid??? or muscle relaxant?? I know PT can make you really ache. I hope for you in a way that the problems are due to muscle weakness, because if they are, then theres a chance if you train up, something can be done. But I still cant get away from the thought that the OS doesnt know exactly HOW much PAIN you really in?? I mean that for the time after your surgery, the pains should be beginning to subside by now. I know I had a LOT of pain after my osteotomi, but it did subside with time, it didnt get worse! Do you use crutches or  a cane? I think crutches may help you right now, it sounds like your knee doesnt like to be walked on. But I do know also that it must be weight bearing, because otherwise your leg will never get used to its new position. I know youve had a second opinion already, but how about a completely new 3rd?? I would be pulling my hair out with frustration if I were you, and I have been in a similar situation to you, as my ops didnt work either. I do hope and pray for you that something positive will happen for you if you try to build up muscle power, but I know its hard when it hurts so much. My heartfelt sympathies are with ou
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: tanyap on May 25, 2008, 11:48:45 AM
Hi Beda,
I have been neglecting posting on other peoples diaries for the past few days as I got sore sitting at the computer, but now that has eased so I am back to post again!

Im so sorry to hear about your pain and the meds not working, I know that the body gets used to that type of medication though, hopefully you will not need such strong pain meds for too much longer. I dont think you will have too much trouble getting off those meds either, its only people who take them when they DONT have pain have a hard time getting off them - for you you will be so high at being pain free that you will be happy to come off them.

It may be worth asking your OS is there any useful pre op physio you can do - it might be that you dont need to or have too much pain to but it is a question worth asking. I do wish the nurses strike would hurry up and end - its such a dreadful profession to strike, people dont stop needing medical attention and so many people will be getting worse while they wait for it to end. It cannot go on much longer!

Farrah - something Beda said in her last post made me think, perhaps your OS doesnt really know how much pain you are in. Would it be worth making a pain diary and using a scale from 'Unbearable' to 'No pain' and marking it each day to show to and discuss with him? Pain is subjective and its possible he think 'yes it hurts' but doesnt understand how much?
I cant get away from the thought that something is 'wrong' as opposed to it all being blamed on muscle weakness. Muscle weakness DOES cause pain, but not the type of unrelenting pain you have been having, when my muscle weakness was at its worst I could still gain relief from rest and when I woke up it wasnt so bad - it became worse through the day. You might also ask them about bio-feedback, this shows whether or not the messages are actually making it through to the muscles - the isokinetic only shows the force you can exert - if the messages are not getting through then you will not be able to exert much force and pain can stop those messages getting through.

Beda - I am sending those good thoughts to Rigshospital!!!
xxx
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 25, 2008, 04:12:33 PM
Tanya - thanks for the good thoughts about Rigshospitalet, but I'm afraid I'm not going to hear fro them immediatly. The OS did say BEFORE the summer holidays, but here in denmark the summer holidays begin in the middle of june through to mid july (industry holidays) adn if I havent heard from them before then, then I wont hear from them until after. Here in Denmark EVERYTHING closes during the summer holidays. Including the working situation in the hosptals, and now they are ALSO on strike which isnt going to make things better. there doesnt seem to be any signs of them coming to agreement, so I really dont know when I'll be 'done'. I have to first have the measurements taken before they can do any operation, just hope I'm a standard size and 'in stock!!' But when you get legs as short as mine, you bet theyll have to cut a 'normal' one i half!!! (thinking of your boyfriend Fergal!!) Never mind, my time will come, and in the meantime my doc has promised to make me as comfortable as possible. I think your right about kicking the habit of these awful drugs I'm on, it wont be a problem, because when I realise I dont need to kill so much pain, i automatically wont look for them. But i do know that by now my body has a physical 'need' for them, but my doc has promised me he's see me through it, and he's true to his word and I trust in him. My GP is a cripple, was crippled by Polio when he was very young, so his legs are like bent crooked sideways at the knees, and he has a lot of pain issues himself I'm sure, though never lets on to his patients that he suffers, but has said to me on occasions about it being 'rheumy' weather etc. Goodness, now its past 5 and I've done nothing yet today, so I'd better hang a picture up or two so i can say I've done something today. Mom is busy rattling around in the kitchen, with nice smells, so it sounds (and smells) promising.
catch ya later Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: tanyap on May 25, 2008, 05:48:53 PM
Hi Beda,
well I will pray that you get called for measurements before mid june - you may well be, last time the appointment was close after the call itself so fingers crossed eh?
God - Fergal would have to get two normal ones stuck together!!!
The key about you coming off the meds is that you will be able to go to lower and lower dosages over time, and you know it might take a while - but the important thing is that you will slowly be lessening and lessening the amount and once the pain is gone you wont mind that at all. They have alternative things to prevent you being driven mad with 'need' also - you will do it Beda - Im sure of it. Thats going to be something that will take care of itself, you will be so busy being pain free that you will forget about meds!!

I went for a little walk outside - it was quite nervewracking, I wandered the perimeter of the carpark outside the apartments - around 600 metres, then a little later Fergal drove me to the local shops and I went across that carpark, into the shop and strolled around it (not very big) and had to queue behind people and then we came back and I had to cross the carpark again to come in. My knee was a little tired but overall ok.

I must go cook dinner - so little discomfort today - its truly wonderful! I cant believe Ive spent 3 years completely unstable and one little scope has me feeling so much better! Even if i never got any better than today it would be better than how it was!!!
xxx
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 25, 2008, 08:31:32 PM
Ja, it's amazing what  a good clean out can do! i wonder what he found out about your movements under anæsthetic?? Could he sublux it? was it unstable? i bet things were fine after he removed that MONSTER of a menisc, its no wonder you were having trouble bending your knee with that stick in it! He must have been pretty impressed himself in that he kept it for you to see, not all OS's do that, one bit of cartilage is very much like the other to them :-\  ;)
The trip goes to the doc tomorrow mornng, I need to talk about pain meds, but I'm a bit worried about it because I dont feel like I can tolerate more morphine. I get terrible nausea from it in higher dosages, and need to take anti-emetic medication. I take anti-emetic medication now as it is, so I just dont know what it will be like with more. I suppose thats one for the doc to work out though, he usually has a plan. As it is I sleep fairly good at the moment, so, i suppose it would only be ne dosage he would have to raise. i find if I can keep off my leg as much as possible it doesnt hurt so much, but these days with the move and everything, its all been a tad too much I'm afraid ::) :( :-\ ;D never mind, it will all get better in the future, thats something I need to keep my eyes on :D ;D
I am sooo relieved i no longer have stairs I need to go up and down, its made my life completely turn around! I had no idea that the stairs were THAT big a problem, but they were!
tanya, look after that leg and dont do too much on it! :D
Love Beda xx :-*
Title: Re: Bedas Pre-Op diary
Post by: kathat on May 26, 2008, 02:22:27 AM
Hi Beda,

So you have finally made the move!! What a relief it's all over with and you don't have to face those stairs any longer  ;D I wonder if your doctor could add a different pain killer to your meds instead of increasing your morphine. It might just do the trick without causing as much nausea. At least you have an end in sight. Don't worry about coming off the morphine afterwards. If you slowly decrease the dosage then you'll do fine. You are on it for severe pain, so it's not like you have an addiction to the way it makes you feel etc - you just have the chemical dependance not the mental one. I have seen many people successfully decrease their opioid dosage without too much trouble. I hope you get some action on the surgery front soon, even if it's just for the pre-op preparation they need to do.

Good luck at the doctor. Take care.

Kathy
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on May 26, 2008, 05:48:32 AM
Hello Beda,

If you ever are interested, I have a post op diary in that section...here is the website if you want to see it:

http://www.kneeguru.co.uk/KNEEtalk/index.php?topic=40413.new;topicseen#new

I update this almost daily.  So for the medications I am on for my knee:

Ultram ER:  Pain medicine for 24 hrs extended release (this was prescribed by my back doctor and loved by my knee doctor)
Indocin:  Anti-inflammatory...I take this once a night.
Hydrocodone: is a semi-synthetic opioid derived from two of the naturally occurring opiates, codeine and thebaine. Hydrocodone is an orally active narcotic analgesic and antitussive.  (thanks Wikepedia for the definition) AKA vicodin.  I take 2 pills 4-6 hrs a day when needed.  As needed is usually at night.
Darvocet: is in a group of drugs called narcotic pain relievers.  acetaminophen is also a part of this drug.  I take 2 pills instead of hydrocodone every 4-6 hrs as needed. 

I take Ultram ER and indocin daily no matter what.  Then I take either darvocet or hydrocodone throughout the day when needed.  Darvocet doesn't seem to do anything for me.  Darvocet is more mild than the Hydrocodone.  I have two doses of hydrocodone, but usually only take the higher doses.  I may start trying the lower dose during the day instead of darvocet and the higher one at night.  I need something!  I am so nervous about PT this week!  If the meds can't help me walk correctly with the cane or without, then I can't get through PT very well.  I currently walk with crutches.  I told the OS how I had to walk with the cane and he told me to go back to crutches.  I was pushing down so hard on the cane that my hand was cramping up and I was still unable to walk correctly at all.  So it made no sense to keep me in that much pain when I can go back to crutches. 

Now for Euflexxa injections.  These are like the Synvisc injections that lubricate and cushion the joint.  My OS thinks that most of my pain is coming from the damaged cartilage and these injections are suppose to smooth out that area and help with pain.  So for now, the idea is to get rid of my pain with the 3 injections so I can tolerate PT to get stronger.  I have only had 1/3 so far, and will not know for a few weeks after the injections are over if they helped.  I hope it works out!! 

Well I hope your knee settles a bit for you!  I wish we didn't have stairs in our house!!!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 26, 2008, 09:08:57 AM
Farrah - first - I just dont know HOW you manage with a bad leg and stairs, I had it terrible with it, but I do know how it is. You dont reallly have  a choice. Do you live to rent or do you own your home? if you live to rent then its maybe a bit easier to do something about it, if you own, then you have to make major decisions.
I wondered about your pain meds. I was told at the specialist hospital that I can increase the effect of the stronger opiates if I take something like paracetamol 4 x a day at the same time as I take the stronger pain meds. This should reduce the need for the stronger pain meds by 30-40% so they say, menaing that paracetamol taken with the other stuff your on makes them stronger. maybe its worth a try. i dont know what paracetamol is called in the US but I do know you can get it. But you have to take it reguarly, otherwise it doesnt work. I too get an anti-inflammatory drug, an NSAID called Relifex. i dont know what the active stuff in it is called. i did call my doc this morning, and got an appointment  for him, but it cant be before next week, because he doesnt have any openings in his calendar before then. its not an acute thiing, so I dont mind waiting, but if it were really acute he could take me immediatly. I'm not that keen on the outcome of that appt. but know its inevitable. he did say he would make me as comfortable as possible before my surgery, (and afterwards) so thats a comfort.
Farrah - look after yourself. I DO HOPE that soon your unrelenting pain will subside soon. Lets hope the shots work. To be honest i think your os is messing around with you, I think you need to see another less bias OS, someone that has NOTHING to do with your present one. it  sounds very mystical that you should still have so much pain to me, without having a decent explanation for it?? ??? ??? ::) ::) :o :o
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: tanyap on May 26, 2008, 11:08:52 AM
Hi Beda,
I dont know if he subluxed it during surgery - forgot to ask him but it doesnt 'feel' like he did. Perhaps when he saw that piece of meniscus flapping about he just knew what was up? I like that he is sort of quietly confident - he said to me before surgery 'i will have a look inside but i might not be able to help - but I will try and surely there is something can be done'. After surgery he said 'I think you will feel a lot better but we will see how you go' - and even walking out of the hospital I felt better!!! Im looking forward to seeing him next week. Ive still held on to my second (third really!) opinion at the end of June - old habits die hard, Ill leave that appointment alone for a couple of weeks :)

Aw stairs - I havent lived with stairs for years - not because of my knee though!! Just the way life worked out, I rented a ground floor apartment, then I bought one. I was very glad of no stairs the past couple of years though. Tomorrow in work is the first day I will see stairs since my surgery. I think it will be ok - going up will be fine for sure - actually we have an elevator if I need it - its a little further than the stairs but manageable.

Kathy is right - the doc will have a plan for the pain meds. I like how she described the difference between psychological addiction and chemical addiction - you certainly only have the chemical dependance and that can be much more easily weaned down.

You have been doing a lot recently with your move and even the travelling to Rigshospital would have taken its toll, time now for you to settle in and await your wonderful next appointment (which will hopefully be VERY soon!!!).
xx
Tanya
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 26, 2008, 11:46:38 AM
Tanya, your optimism is admirable!!!
xx
Title: Re: Bedas Pre-Op diary
Post by: tanyap on May 26, 2008, 01:00:45 PM
I think the brain is the hardest part to retrain - I keep thinking its going to feel like its about to sublux, then Im surprised it doesnt. I dont know how long that will last for!!
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on May 26, 2008, 02:13:39 PM
Hopefully it will last forever!!! 

Beda, I have two other opinions schedule for the end of June.  This will give the injections enough time to work or not work.  June 23rd and June 27th.  They both knee specialists, but not necessarily patello femoral specialists.  They both deal with problems in the joint.  So we'll see how that goes.  If the injections help and I start making progress, then I will cancel one or both of these apts.  My OS did mention a potential scope if nothing else works out.  I am almost tempted to go with that if I am still not better after the next few weeks. 

I own my house and have no choice with the stairs.  I use my nonsurgery leg to lead me up the stairs and I just go one at a time.  I never use my surgery leg except to balance on.  Unfortunately my nonsurgery knee is really bad too, so the stairs still kill me.  At this point, I don't know what I am ever going to do with that left leg.  I am waiting for my right leg to get better before I ever even think about my left!!! 

Anyway, I hope your Monday goes well!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 26, 2008, 02:33:23 PM
when you write on your own page that you felt it quiver,, in your quads, this is weakness. I remember way back to my TKR's and getting the feel of getting hold of those quads again, it tremmors in small jerks at first. But you have good quads as a rule I think??Dont you??  ;)Through all your excercises. I'm very inquisitive as to hear what the OS says to you when you go back in  a weeks time, he may have been able to subluxate your knee under anæsthetic, if so, I'm sure he'll have some answers to the problem. But if your not feeling sub - luxy any more, then lets hope your problems were due to that enorous menisc they took out. It really was a very big piece as far as bits of menisc goes!!!! ;D :D
Have just been in town to buy some cat food for Boris. He has to have some special stuff because he has a problem with bladder stones, so his food is medicine to prevent him from making stones. It costs the earth, but keeps him fighting fit. The cats are very happy in this new house, Boris has just been up here on the computer table before me giving me wet kisses, so he sends his love as well!
Catch ya later Beda xx
Farrah! Just got your message before sending this one off. Too bad about the stairs. I too have the other leg bad , so the stairs were killing me. I had a road traffic accident last summer which severed a patella tendon, which has never been repaired. I will not have anything done as I have enough to cope with with the problems I have now. I know what you mean about coping with the other leg. I am also glad to hear you have 2nd and 3rd opinions scheduled. You NEED them. SOMETHING is wrong in your kneee, you shouldnt be waking up in the night with pains at this stage in the game, you should feel an improvement for each day that goes, and you dont, so somethings   up. A scope sounds like a WONDERFUL idea! I would go for it, just imagine if theres a bit of cartilage or something thats got lodges in your osteotomy wound, then it wouldnt heal the way it should. What do the x-rays say, and have you had an MRI scan?? Maybe you have the beginnings of arthritis bogught on by trauma thats causing all the pain. And dont scoff at this either. I had visible OA when I was 21 after injury, brought on by trauma. The whole of my youth with my knee got eaten up by bad OA and trauma, and masses of surgery. But one thing Farrah is, no matter what it turns out is wrong, the main concern for you is to get a pain-free functioning joint. You may not ever get full function again like if you wanted to excecise sports, but I'm afraid that will be your lot. And another thing to rememeber is, theres only SO much the OA can do for you. Not that I think youve reached that point yet, 'cos you havnt, but there will come a time when your going to have to decide, 'is this what I have got to live with, and am I prepared to do so under the circumstances'. I personally think youve got a long way to go yet before you have to resign yourself, but dont resign yourself to the pain your in. I think you should tell the OS that you have gotten to the point where it has been depressing you so bad you have to be medicated for it. Thats not acceptable. I BET he doesnt know that??
Well, Farrah, I hope you get a little bit of relief today, I so sorry your in so much pain - join the club!
LOve Bedaxx
Title: Re: Bedas Pre-Op diary
Post by: tanyap on May 26, 2008, 04:05:03 PM
Hi Beda, aw, send Boris wet kisses from me too!!

Yep - quads are good, they are only trembling at the end of the day, in the morning they are ok  its just muscle fatigue, inflammation etc... all sets in in the course of the day.
I will give a full report after I next see my OS!!

Very good point for Farrah - Farrah, does your OS know you have been put onto anti depressants? He should know that!
xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on May 27, 2008, 03:08:16 AM
Hello Beda and Tanya!

Beda, I have not had an MRI since about 3 years ago.  Supposedly I can't have one now b/c of the screws in my knee.  The x-rays show that I still have a patella tilt, but they think that is still from muscle weakness.  It also shows patella alta, but I guess that isn't a big deal.  I do have OA, and that is what the Euflexxa injections are for.  The OA is from my patella subluxing and causing grinding and crunching for so many years.  I am so afraid that will be something that can cause me to be out of sports forever!!  That will be something very difficult to deal with if this comes to that!  Of course, for now I am more concerned with walking!  As for the anti-depressants, I haven't told my OS about that!  I know I should, but I just don't want them to think I am just asking for health problems and more medications.  I know that shouldn't matter...I will tell them some time soon.  Maybe I will at least tell my PT at Friday's apt. 

Well I hope you are doing okay!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 27, 2008, 07:29:14 AM
Farrah - you know your OA could well be the root of all your evils. OA can be really be bad when its worse, and make you an invalid. My big worry is that the OS will jump the gun with you and say that you need a TKR to solve your problems. If he says this, then you really DO NEED your 2nd & 3rd opinions. I read on tanyas post that your worse off now than you were when you began. thats how it went for me too. After i had had my fist surgery, my knee was never right again. Now they did do open surgery for OCD with me, today they wouldnt do that but use a scope. I think the idea of a scope for you is an excellent one. You could well have OCD and that causes small 'bits' to come off the cartilage, and these bits get stuck in the joint and makes movement impossible and very painfull. Every road is worth travelling down to get to the bottom of your problem. OCD is the starvation of the blood supply to bits of bone and cartilage in the knee, these bits that dont have a blood supply die and chip off, in Denmark we call these bits 'mice' thay say here in DK you have a 'mouse' in your knee, when you have OCD. it can also be a hereditary thing, if anyone in your family has had knee problems like this, you too could have inherited the problem. I feel for you and understand that you want to be able to do some light sports etc again and help your pupils in the gym. it wuld be a shame if yu couldnt do that again. But I can understand it doesnt go with coming to work on crutches. That to me shows how much pain your in, I know that crutches is the last thing for me. i cried when my doc told me I HAD to use crutches 24/7 again, that was before i knew what was wrong, I just thought I had a 'bad' leg and it had got worse, i didnt know at that point there was a good reason for my pains. And there is a good reason for yours too, we just have to find it!
Hope you have  a good tuesday
LOVE BEDAxx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on May 27, 2008, 11:06:16 AM
Hello Beda, crutches SUCK!  I am tired of them!  Unfortunately that is the only way I can walk right now.  I put hardly any weight down on that leg, but I keep trying.  I know that can cause more muscle weakness, but I can't help it.  Walking normally hurts so much!  It is an unbearable pain...especially after driving.  Oh my gosh!  After driving, I can't even move my leg whether it is with walking or anything.  This lasts for a few hours!  I am tired of that.  So I am going to try to wear my shield brace today while driving in to work to see if that helps it.  I don't know why I didn't think of that before.  I don't know if you have seen my diary, but today I am trying out my brace some and also some taping of my knee cap.  I just want to see what helps with pain and doesn't help.  Last night I could take some really small steps with the brace on and without crutches!  I can't go a day like that though, so I have to stick with the sticks for now.  I do hate them b/c I can't carry things very well and I am tired of people opening doors for me and asking what happened and such.  I hate explaining that I had surgery 5 months ago!! Then they ask what type of surgery...UGH!  I don't know much about OCD, but I guess it could be possible.  I have an injection this week and next week and then a short waiting period to see if they helped at all.  That will bring me to the end of June when I have my other two opinions.  I had a 2nd opinion a few weeks ago that went horribly wrong!  They said I had too extensive of a surgery "only" 4 months ago.  Nobody in their office would touch me.  I just have to wait it out and continue to see my current OS.  I was so upset with that!  I told myself I wouldn't see another OS until 6 months PO which is now in one month as I am 5 months PO today.  Well gotta get ready for work.  Have a good day!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 27, 2008, 04:33:27 PM
Farrah - OCD stands for Osteo Condritis Dissecans which basically is failure of blood supply to parts of bone in the knee, and when this fails, the bone dies and bits break off because there dead and brittle and they cause little bits floating around in the joint. It isnt as common these days than it was before they had scopes, because nowadyas its a very scope-treatable thing, but is an annoying disease because its reoccurring all the time. You could well have that due to a different position that your knee now is in, if its not an optimal position for you, it can provocate this complaint. You would know you had it because of the pain and locking of the joint, or pain on  stress related movemnts, like walking and standing. when I had it, they had to do open knee surgery to remove the pieces that broke off. Only later did I have a couple of scopes to have pieces removed, and very successfully. So, if you have it, it would be a very treatable thing, and if this is whats up, then theres good chances of recovery.

I am sorry you have SOOO much pain. I sympathize 100%. walking with crutches sucks, I have to do it all the time. I find though the pain gets worse if i make a tiny little strain over on the bad leg, like if I trip over something really small, it hurts sooo bad. the pain shoots up through the whole of my leg and raidiates down to my toes and up to my groin. My femur half way down is in  a bad shape. Thats the joint where theres the implant meeting with the bone. I have osteolysis in there, which is degeneration of the bone around the edges where the implants meet with my bone. so the longer I have it in there, the worse the degenration is and the more bone they are going to have to replace by boney grafting. Our health system sucks over here now, everyones on strike and I'm not hearing anything.
I think the plan to be seen 6 mo. post op is a good one. i do know I was very bone sore for a long time after my osteotomy.

Hope you get some relief tonight. Try take a good long hot bath, that can help if you have a tub.
Love beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on May 28, 2008, 01:37:33 AM
Hello Beda, I got the opposite of relief tonight!!!  I tried wearing my brace today.  It helped with driving and the walking after driving.  It took away about 20% of the pain in general.  Unfortunately after having the brace on for about 4 hrs or so, the pain around the usual painful area was sooooo bad!  I guess it put too much pressure around the other usual less painful areas of my knee.  I took the brace off for a while and the pain got so much worse in the usual painful area as well as the other areas.  So I put it back on and it got a little better again.  Well on my way home I had to take it off during driving b/c the pain was so much worse by then.  I shouldn't have worn it for so long all in one day!  The outside of my knee is throbbing right now.  I iced a few times throughout the day as well as took hydrocodone.  The hydrocodone didn't even touch the pain.  I just finished icing and am just not happy.  It is too much today.  I know I made a mistake by doing that.  Tomorrow I am going to try taping my knee cap for just a few hours to see if the brace is what caused all the issues today. 

I appreciate the info on the OCD.  I don't know what the deal is with my knee.  I think there could be a meniscus tear in there with some of my symptoms of catching, locking, pain/tenderness on the outside of my knee, and the pain in general. I don't know what the deal is and I can go on all day about what it could be.  I don't like to diagnose myself b/c I don't know anything!!  Well I appreciate your support and hope you hear from your OS or somebody soon!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Silkncardcrafts on May 28, 2008, 10:25:37 AM
Hi Beda,

That's great your cats are settling well into your new place. Any updates on when your surgery will be ? It must be frustrating playing the waiting game.

Farrah, you really need to tell your OS about being on these meds for depression. If he knows what impact it's having on you in that way he may try and do something sooner. Glad you've got those appointments scheduled for late June.
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 28, 2008, 02:30:09 PM
No - the  mail man came today without a letter from Rigshospital, so there goes one more day without hearing anything. maybe I ought to try to call them if I dont hear soon, but I know its difficult for them with the strikes going on etc. I will be just told I have to wait until the strikes are over!!
Farrah - sorry to hear about your day yesterday - hope today goes a little better. i can understand your frustration, driving kills me too - I had to give up a long time ago, along with the many other things I've had to stop doing in the past 6 months. I had to stop painting, that does me in too, here in the new place I see no place for my easle as yet, but maybe when we get more into place  a spot will come up. I feel very frustrated when i cant paint, as I'm a tempremental artisty type and miss being able to express myself on canvas.
yes, the cats are doing just great. i dont know if its just because theyre great cats or because we have the new Feronomers going, which is, according to te vets, the secret to happy cats!!! I hope so, 'cos they were expensive!!
Have got an appt. at my GP next week to discuss pain management AGAIN. It seems like the only thing we ever talk about, but he's good to me.
I too am an incurable web- shopper!! Its good for soul but bad on the bank account. Thank God for plastic!
catch ya later Love B xx
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 28, 2008, 06:03:12 PM
Looks like I'm getting into trouble now! Am developing a nasty pain answering to the symptoms of tendonitis in my right underarm and wrist. This is due to clutching so desparatly onto those rotten crutches. Have to give my arm a rest now, and I' typing this with my left hand it hurts so much, its a real bummer. Anyone got a good idea what to do for this except rest??
xx B
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on May 28, 2008, 06:18:46 PM
Cut it off!!  That's what I want to do with my knee!! 

Tape helped about 20% of my pain today, but irritated my skin so much I had to remove it after 3hrs.

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 28, 2008, 07:20:25 PM
Ja, sounds like a good idea. I'm slowly fallng apart due to this rotten knee, I'd do it only I'd look a bit weird with the left leg cut off and right arm, so then I'd never get anywhere! I'm going nowhere very fast as it is, I dont need further delays. ??? :o :D
love beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on May 29, 2008, 02:12:04 AM
Beda, how old are you?  Am I allowed to ask that?  You don't have to answer if you don't want.  You have just been through so much!! 

I have a question for you.  Being someone that takes pain meds, I can trust your response.  I am deathly afraid/nervous about PT on Friday.  This will be the first time in 6 weeks.  The pain could be very bad since nothing has really changed since my last visit.  So I have been trying to test out all my pain medications to see if any of them help with my sharp sharp walking pain.  I figured if I could find something that works for that, then it would work for pain before or after PT.  Well none of them work.  Should I call my OS to get something stronger just for PT??  I hate to take meds like this, but I also don't want to suffer.  I am just preparing for the worst just in case.  THanks for your advice!!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 29, 2008, 08:06:23 AM
Farrah - I'm the whole of 52, but everyone says I dont look a day over 40!! I'm a very young version.! ;D

Now about you question. You have obviously tried every concievable concoction of your current pain meds without a good satisfactory result, so I would definitly call your OS OR your Primary care doc. and get a prescription for something stronger. You really do need it, and as long as you take pain meds because you NEED them and not because you WANT them, and I know for you its because you NEED them , then dont worry about them or addiction or anything like that. Maybe the OS will discover exactly HOW MUCH pain your in if you tell him you require and need extra pain meds just to do PT. So yes, dont hold back there. the only thing with getting stronger pain meds is, you may feel a bit 'drunk' with them, so watch it if your driving or something that requires your 100% attention. The ones I'm on definitly do slow me down. they tend to slurr my speach too if I've just taken them at the start of a rise in dosage. another side effect could be naausea, but you can successfully take anti-emetics for this, so get your doc to give you some of those as well. i find somthing called 'primperan' is good for that (metoclopramid. hydrochlorid.) it takes the nausea away well.
Hope it goes well for you, and oh, try the new pain meds a while before you actually intend to use them just to try to find out how you react with them, this way you'll know what to expect and wont be taken by surprize.
Love beda xx
Title: Re: Bedas Pre-Op diary
Post by: tanyap on May 29, 2008, 11:08:54 AM
Hi Beda,
no cutting things off!!!

I used to get dreadful tendonitis at the front of the hip from dragging my leg round with me - I found heat the best thing for it, I would put a hot water bottle into the hip area and let the heat help me. I also used topical anti inflammatories.

52 IS young!!! Ive a very good friend who is 76 - and he recently joined his local gym and started out swimming 12 lengths each time he went - and was annoyed because he couldnt do 20 immediately!!!

Beda - you mentioned somewhere should you phone Rigshospital - I think yes, why not? They may only tell you that because of strike they have no information, but they may have something useful to say? The worst that can happen is they know nothing - but its worth checking?

xx


Title: Re: Bedas Pre-Op diary
Post by: Silkncardcrafts on May 29, 2008, 11:18:15 AM
Hi Beda,

I'm with Tanya, do not cut anything off !!!

Definitely give the hospital a call. It wouldn't it. That's for sure.

Good luck !!!  :)
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 29, 2008, 12:13:46 PM
Called Rigshospital 10 mins ago. Got an appt. for the 13th June for x-rays to be used for measurements. So, it was worth ringing, they hadnt contacted me before, but have now sent me a letter today. The strike was the reason why they hadnt contacted me. All according to what they find out with measuring me, I will soon know more or less when to expect my surgery! WOW!! This doesnt seem real. Moms just gone off to Greece for a week, must say I envy her that one, but I will be busy at home here. the only thing is, what with my leg and the pain in my arm I'm getting nowhere fast! the district nurse and occupational therapist will be in to see me next week. the occupational therapist does stuff like taking me shopping etc. stuff I cant do without help.Well, thanks ofr the encouragement to call Riget!!!
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on May 29, 2008, 01:28:55 PM
I am glad you got that apt!!  I hope it goes well.

I decided to go to PT tomorrow with what meds I have.  If it is a problem, I will contact my PA/OS next week. 

Farrah
Title: Re: Bedas Pre-Op diary
Post by: tanyap on May 29, 2008, 01:38:47 PM
Beda!!!!
13th JUNE!!!!!!!!!!! Thats only 2 weeks away!!! Oh what wonderful news!!! You must be soooooo thrilled!!!! Yet another step on the journey behind you!! And once they have you measured the operation will not be too far away at all!! I am now directing my good vibes to the rod people to hope they have your size in stock or very quickly made for you!

Im so glad you phoned them!! That is just wonderful news. Do you think you and I will be sharing pain free and stable leg stories soon!!!!

Beda I am truly over the moon for you - you have been so patient and so upbeat about it all and now things are happening and its just amazing!!!!

Well done to you and well done to Rigshospital for hurrying up with the appointment!!!
xxx

Title: Re: Bedas Pre-Op diary
Post by: Beda on May 29, 2008, 01:50:55 PM
Farrah - I guess thas one way of showing your PT how MUCH pain your really in if you dont hide behind pain-killers. But really, dont suffer in silence, its not worth it, and i dont think your over-complaining or wanting to get attention or wanting to be sick or whatever youve dreamed up in the last few posts. Your REALLY in SERIOUS pain, and your NOT imagining it, so dont belittle it, its not going to make anything better that way. Dont imagine that your Imagining it all, 'cos your not. I know pain from an osteotomy is serious pain, I've tried it, and when I had it all they had to offer was paracetamol!! I cried inwardly from morning to evening, and the time I was in a cast was unbearable. I never got a break, but Farrah, in the end, after several months, it DID get better - we can but hope cant we?? :D ;) ???
xx
tanya, just got your post whilst i wrote this answer - Yup!!Maybe we will be sharing 'good-leg' stories soon. But I'm afraid my recovery is going to be a long and tedious one I have been told not expect to be pain free for at least for the first 6 months or so!! ??? ??? But I have to be optimsitic, its you thats teaching me that, thank you!!!!!!! ;D :D whatever, I'm on the road to recovery now, and everything from now on is a step in the right direction - I just wish I could say that for ALL of our fellow knee sufferers, but gladly mostly the posts on this board are after all posted because people have taken some step or other to make their condition be better, not worse!! So we'er all on the road to recovery in one way or the other, at one stage or the other, otherwise we wouldnt be here!!!
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on May 29, 2008, 05:45:47 PM
Beda, you are amazingly optimistic!  I wish I could be as much as you and Tanya are!  Tanya now has a great reason to be since only a week after her surgery she can already tell a difference!  Beda, you deserve to be pain free ASAP!  I am glad you have something scheduled for your upcoming surgery.  I hope that it doesn't have to be rescheduled for any reason!  I hope this is the answer for you, and I guess without a knee, it should get rid of the pain if that is what is causing it.

I am 26 going on 52!!! So I guess we are the same age!!  :)  Supposedly my knees are 50 year old knees and they'd be doing a TKR if I was that age!  Well have a good one!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: tanyap on May 29, 2008, 06:15:18 PM
Hi Beda,
6 months? You and I laugh in the face of 6 month recovery times - its nothing!!! Not after a long time suffering right!!
You have to be optimistic!!! If we werent optimistic we'd all end up not having the energy to post here and that would be a baaaaad thing!!
Its just as important to seek answers as it is to actually get them. I dont know if I would have continued to persue my own case after 2 OSs had told me all I needed was physio if it wasnt for this site. And one of those was the top knee man in this country!! Surely the fact my quads had disappeared should have indicated something was wrong!!! Oh well......

Farrah - your answer is also out there, I am convinced of it. You are having a rough road right now but you will turn a corner and all will come good soon.

Beda - kisses to Boris.
xx

Title: Re: Bedas Pre-Op diary
Post by: Beda on May 29, 2008, 06:53:21 PM
Tanya, your right, 6 months is nothing with the history we two have!! I have about 27 years of suffering with knee problems behind me, so I guess I can manage another 6-12 months with a breeze!!! Just hope it all turns out as it should, I hate to be pessimistic, but I'm afraid that it wont fuse etc. but when you have the track record I have, I've got good grounds to be pessimistic! But you are the born optimist, and one of the true pillars of the Knee Guru society, well done, you too deserve a break! ;D
 :-* :-*Beda & Boris
P:S. Boris is being SO cute and loving this evening, just lying here in the sofa with me and sleeping in my arms, hes in 7th heaven!
Title: Re: Bedas Pre-Op diary
Post by: tanyap on May 30, 2008, 09:14:53 AM
Hi Beda,
awwwwww!!!! Boris sounds so CUTE!!!!!!!! Id love a little furry guy to snuggle up with!!

It will fuse Beda - you should also make sure you drink plenty of milk and eat cheese during recovery - may as well give your body plenty of calcium in case it helps with the bone growth eh??? I always try to assist my body, Im planning on starting on cod liver oil and glucosamine to help my knee out soon :)

You see your past surgeries were not working because of bad surgery, this time round you have a doctor who knows whats going on. I am sure they wouldnt try it if they didnt think it would work. And when there is no joint involved to rehab things should be much easier for you.

I was speaking to a guy in work yesterday whose son (son is only 27) was having some weakness in his knees, he went to OS, was sent to neuro surgeon, turns out there is some degenerative problem in his spine whereby they cannot prevent slow paralysis happening to him, he is just now gone to a rehab centre to be placed in a wheelchair and taught how to use it and his family home has to be modified to use it. When you hear stories like that you realise that although knee problems are awful, there are worse things out there eh?

I was thinking of reading the Christopher Reeve book also - should be inspirational.
xx


Title: Re: Bedas Pre-Op diary
Post by: Beda on May 30, 2008, 09:50:41 AM
HeJ!!! Well, another day, and today brought the letter that rigshospital sent to me yesterday. it is a CT scanning I'm going to have, not x-rays. They have written it will take 2 hours! I didnt realize that CT scans take such a long time. i also didnt realize that there would be contrast injected, I've never had a CT scan, only had scintigraphys' done. but i'm not in the slightest bit anxious in any way about it, if you knew how much i'd been poked and prodded in over the past years, well, this is just a drop in the ocean.
There was a telefone number for reservation of transport up there, and that happens in a big luxury coach that come to pick me up and takes me back home again. First i called, i got put through to the wrong place, then I got cut off, then I finally got through, and now its all arranged, and they will call me a bit closer to the time to tell me when I have to be ready. The appt. is for 11.00am so I wont have to get up at 4.00am like I did last time, it takes 3-4 hours to get in there,  all according to how much traffic there is, But its a Friday, so rush hour traffic should be over by the time we get into Copenhagen area, and on the way back everyone knocks off at 1.00pm Fridays, so maybe I'll dodge the rush hour traffic there as well if the scan takes 2 hours. Theres a bus that goes back at 2 pm. so maybe we'll be able to use that one. if not we'll get taken back in a private taxi, but its the council that pays for the bill, so we dont have to worry about the cost of transport.
Otherwise today I'm just going to polish off some china and glasses, put them in a cupboard and listen to Woodstock! :D I have to take the chance whilst mums away to paly LOUD music as she doesnt appreciate my loud music, which I can understand, because it IS special!!
catch ya later
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: tanyap on May 30, 2008, 10:17:01 AM
Hi Beda!!
Thats great!!! So much info!!! And CT scans!!! Cool!
I like that they arrange transport for you also - thats so important, at least you dont have to stress about how to get there and back.

wow - 2 hours worth of CT scans - they are going to examine you in DETAIL!!!!!!!!!!!!

Thats all wonderful - everything is moving along, 2 weeks from today!

hehehe - your mum and my fergal could live happily together - i wait for him to be out to play loud music!!! he listens to heavy metal through headphones, i caught him doing the hoovering recently and the hoover had become unplugged and there he was merrily hoovering away, music blasting through his headphones, had no clue that nothing was being sucked up into the hoover :)

Im thrilled for you Beda - what a great couple of days of news and optimism you are having!!

Oh I looked around your website - you do not look like a lady with knee problems at all!!!
and Boris!!! soooo cute!!! such lovely markings, the partially feral cat I befriended was marked a little like that. I like that Boris looks cheeky in some pics!! Sandi was a beautiful dog, what an amazing coat. Did she like being a show dog? They always seem to enjoy the attention.

Your art is beautiful also - and your photography - such talent all packed into your little body eh??? I would like just a fraction of any talent but alas I am not talented in any area - oh Im a good cook I suppose. But not a chef of course!!
xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on May 30, 2008, 11:10:00 AM
I want to see too!!!!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 30, 2008, 12:19:48 PM
tanya - thank you for your your compliments, you make me blush!!! i have worked hard to accomplish the things I have, make no mistake!! I'm glad you like the pics of Boris and Sandi. Yes, Sandi loved the attention and she showed herself fantastically, always seeming to know when to 'show' her ears etc. to the judge, WHEN he was looking at HER!!! Very important. i miss her to this day, and even if i sit down and begin to think of my life with her, i begin to get water in my eyes, becuase theres something about dogs, its their all-embracing UNCONDITIONAL love and faithfulness, its really something special, someday maybe you will experience that. Boris came to me at 5 weeks of age, unable to drink milk himself and abandoned by his mother. i took him in and fed him with a bottle and a syringe, and he grew up to be enormous!! Right now Joe Cocker is giving it his all in 'with a little help from my friends' from the woodstock collection. its good. And its LOUD!!! Rigshospital called about the time of my journey. I have to be ready at 8.10 they said, so thats not too bad. I dont think theyre reckoning on traffic!! ja, I guess I'm lucky having a whole 2 hours worth of CT scanning, wonder what conclusion they'll come to, wonder if the 'rod' is 'in stock'?? ??? Hope it is, then I get my operation real soon.
xx B
P:S: HOW exacty does  someone with knee problems look???????????
Title: Re: Bedas Pre-Op diary
Post by: tanyap on May 30, 2008, 12:43:53 PM
P:S: HOW exacty does  someone with knee problems look???????????

TIRED!!!!!!!!!!!!!!

which you dont!!!

Ive had dogs when I was younger, and most recently my best friends family dog - who i had a great relationship with - began her journey to Rainbow Bridge - but its a long time and I do hope to have another one someday.
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on May 30, 2008, 01:06:55 PM
Hey Beda, my pain sucks today...of course b/c today is my first day back to PT!  I did take the Ultram ER for pain last night, but it isn't helping.  Walking pain is #8...resting pain is #5!  The ambien helped me sleep last night.  I only had to wake up once.  Unfortunately it gave me a headache this morning.  It is slowly going away though.  I couldn't access the link of your pictures!  So missed pics of you and your dog!!  I know how you can love dogs so much!  I have two that I couldn't live without.  Have a good day!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 30, 2008, 02:02:58 PM
Farrah. Here goes again   www.bedasatelier.dk (http://www.bedasatelier.dk)   OR    www.sandibeda.com (http://www.sandibeda.com)
If you cant access them through this link, try to punch the address in the http:/www. line.
What dogs do you have??
Too bad about your pain. I'm so sorry for you. having a #5 on resting isnt good enough. You definitly need to see a PAIN MANAGEMENT doc. Have you contacts to someone, I cant give you any ideas 'cos I dont know anything about the docs in US, but there MUST be a better way of managing you pain.
xx Beda
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 30, 2008, 02:37:13 PM
Farrah, for some reason there is delay in the server to process info. I didnt get the red writing Tanya had written until 3rd time round, so maybe my links will work a bit later - they work on my computer. try later
xxB
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on May 30, 2008, 02:44:23 PM
It worked!!  Cute dog!  I don't have time go through the whole thing right now as I am leaving for PT in 45 minutes.  I have a jack russell and a wire haired dachshund. 
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 30, 2008, 03:48:16 PM
How cute! I love daxys, i used to look after my neighbours dachshound when they went on holiday, and my mom had a minature daxy around the same time I had Sandi. Moms daxy died of diabetes and glaucoma as a following sickness - she went completely blind but lived with these complaints well for 2 years. Hope you look at sandis web site too! :D ;)
 :-* Beda
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 30, 2008, 04:29:23 PM
Tanya, it has just occured to me why they are ordering so extensive investigations WITH contrast etc. It's because of the damage to my femoral nerve I bet! The OS did say to me he wanted to see the extent of the damage there, and i suppose they can also see how much osteolysis my bones have,as this is very important for the insertion of the 'rod'. Yeah, well, I suppose there SO MUCH they can see on a CT scan with contrast, lets hope they see what they want to see!! :D ;) ???
My knee is wicked today. have taken extra morphine twice today all ready, cant take any more.  :'(
Farrah - how did the PT go?? Hope they saw how much pain you are in and are willing to ACT on your behalf. :-X
XX Beda
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on May 30, 2008, 07:01:06 PM
Hey Beda, the pain was just awful!  I took 2 hydrocodone 10mgs before PT knowing that it could be bad.  My PT told me no more easy stuff and now on to the weight bearing stuff.  I was so pissed.  She said it will hurt, but I need to get through it.  So I did.  The pain was at #10 at times!!  The step ups and the leg presses were the absolute worst!!!  The pain was so awful.  I told her about the pain, but she didn't really think anything of it b/c she knows I have to get my quads strong no matter what.  She did give ma new brace to help with a little bit of the pain though.  This brace does what taping does and doesn't slide like my other brace.  It helps about 15% of the pain, but that's better than nothing.  Anyway, I am sick of this crap!  I don't know how you get through your days!!!!!  I called my PA and left a message on my way home and told him how much pain I was in during PT and asked him to call me back.  I also told him that the pain didn't just go away and that I was still in it.  The pain is about a #7 resting right now!!!  It sucks!!  I also had my 2nd Euflexxa injection, but that isn't why the pain is so bad.  I can tell a difference in the location of that pain vs the regular pain.  Anyway, I just took 2 hydrocodone again to hopefully get some type of relief.  I doubt I will though...I guess I will just suffer until my PA calls me back! 

Farrah
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on May 30, 2008, 07:05:41 PM
Here are my babies that make me happy when I feel like I do right now.  Aury is the dachshund and Marshall is the jack russell.  I love my babies!
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 30, 2008, 07:22:44 PM
Farrah - your babies are so cute!!!!!!!!!!!!! I hear you had a rough time at PT! I think you need to illuminate a bit there, I think it really hurt you, didnt it?? What bits were hard?? Just PAIN in general?? :'( :'( ??? ???
Tell me about it
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on May 30, 2008, 07:25:18 PM
I explained on an above post a little bit ago.  You must have missed it!  :)  Here it is again...

Hey Beda, the pain was just awful!  I took 2 hydrocodone 10mgs before PT knowing that it could be bad.  My PT told me no more easy stuff and now on to the weight bearing stuff.  I was so pissed.  She said it will hurt, but I need to get through it.  So I did.  The pain was at #10 at times!!  The step ups and the leg presses were the absolute worst!!!  The pain was so awful.  I told her about the pain, but she didn't really think anything of it b/c she knows I have to get my quads strong no matter what.  She did give ma new brace to help with a little bit of the pain though.  This brace does what taping does and doesn't slide like my other brace.  It helps about 15% of the pain, but that's better than nothing.  Anyway, I am sick of this crap!  I don't know how you get through your days!!!!!  I called my PA and left a message on my way home and told him how much pain I was in during PT and asked him to call me back.  I also told him that the pain didn't just go away and that I was still in it.  The pain is about a #7 resting right now!!!  It sucks!!  I also had my 2nd Euflexxa injection, but that isn't why the pain is so bad.  I can tell a difference in the location of that pain vs the regular pain.  Anyway, I just took 2 hydrocodone again to hopefully get some type of relief.  I doubt I will though...I guess I will just suffer until my PA calls me back!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 30, 2008, 08:25:51 PM
Farrah - ja, I missed that post, it must have come in as I wrote my last one. At least you got  a new brace. maybe by tomorrow when the pain has hopefully subsided a bit, it will help. wasnt the PT just a little bit sympathetic?? I think theyre all being very hard on you,  glad you called your doc. its about time you got some proper pain relief. I am not 100% clear over the strength of a hydrocodone. is that something like codiene?? Or a mixture of something and codiene?? Sometimes when you get into a screw with severe pain, you get in it so bad you cant get out of it again. maybe you need to get some sronger pain meds, get them home, and take a couple of days off and take the pain meds and rest - keep off your feet and give your leg a chance to get into a relieved state, and THEN start over again when youve got relief. This is to break the viscious circle your in. Your in a circle, you have pain, it gets worse standing, you need to stand/walk to go to work, your not suffieciently pain medicated and you provocate the pain each time you take a step. maaybe you need TOTAL rest, and a good strong pain medication to work, just for a couple of days, just to start from a given point again, start over from a pain free condition. if you can achieve that condition. i find sometimes I have to over-medicate to achieve a pain free condition just for a couple of hours, its worth it. But dont make yourself sick. watch it like  a hawk all the time, if you feel nauseous or light-headed, then youve taken too much.

Hope you get some relief tonight Love beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on May 30, 2008, 08:41:20 PM
http://en.wikipedia.org/wiki/Hydrocodone

This is a definition of hydrocodone...not sure if this will allow you to understand what kind of medication and strength it is.  I am just not good at explaining it.  It has codeine mixed with thebaine (whatever that is).  It is the strongest narcotic my OS/PA has prescribed me besides percocet after surgery.  Do you know percocet (oxycodone)?  I may take one tonight as I have 3 left from surgery.  I save them for emergency pain issues.  I took the hydrocodone 2 hrs ago and still am in lots of pain.  I am currently icing for the 2nd time since PT.  I plan on sitting on my butt tonight and tomorrow.  I called my PT a little bit ago just to retell her what type of pain I was in.  She has no sympathy at all.  She did tell me to call my OS/PA though...which I did leave a message for them.  She said I do need something to help get through the pain.  She has nothing left to say to me b/c we have been through it all already.  She is probably so sick of me and I would rather see this other PT at the same clinic, but I don't want to make her upset about that.  I don't know if he would be any better or not.  When I spoke with her, she did ask how I was feeling...and I told her the truth...crappy!  She said that's too bad, but it will get better.  UGH!  She said every visit will get easier and easier...I said I hope so b/c I am in too much pain.  Anyway, I hope my resting today and tomorrow will allow me to "start over" again. Hopefully I get some relief.  I don't think I will get a call back from my doctor today b/c he wasn't in the office.  I may go ahead and leave a message at his office anyway so I can be guaranteed a phone call on Monday.  Well time to get back to laying down with my babies. 

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 30, 2008, 09:10:12 PM
Farrah- i have looked up the drugs- yes, I know now what your on. i would definitly advise you to take your oxycodone tonight. it should help you. I am on a combination of 3 analgesics, oxycodone, paracetamol & a NSAID drug which i dont know what is called in the states, plus extra oxynorm ( a generic oxycodone type) when it becomes necessary. I would strongly reccomend that you take tonight the oxycodone, 2 paracetamol and something like a iprobrufen if you have it. This cocktail should render your pain considerably less and give you a good nights sleep. Then see how you go tomorrow. take the day off, and if necessary medicate again with the oxycodone once, plus the paracetamol and iprobrufen. But DONT take your other medications whilst your taking this concoction. It SHOULD bring you some relief. Its what my pain doc has come up with for me, but i still do have breakthroughs with pain every day, but it makes it a bit more bearable. Oxycodone is very addictive, thats why they dont want to prescribe it, but it is, after all, sometimes very necessary. i saw it was a controlled substance in the states, and they sound a bit hysterical about it. god knows how I'm going to get out of taking it, but I think that when i dont need to take it becasue I dont have so much pain, it will come naturallly. My doc says he will help me through it, and even though it will take a year to get out of it again, theres no hurry, my pains wont dissappear overnight.
Hope this helps
Love beda
P:S Then youve done EVERYTHING you can do
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on May 30, 2008, 09:16:56 PM
Beda, thanks for your advice, I will try it.  I will take 1 oxycodone, 2 tylenol (paracetamol), and 1 indocin (NSAID).  I will do that after dinner to get some relief....that should be about the time that the hydrocodone gets out of my system.  I really appreciate your help and support!  I hate to say it, but you are the expert around here!  Thanks again! 

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 30, 2008, 09:23:54 PM
Your most welcome, if i can help by sharing my experience, then its all been worth while!!
Love Bedaxx :-* :-*
Sleep tight
Title: Re: Bedas Pre-Op diary
Post by: lis1 on May 31, 2008, 08:39:54 AM
Beda - i have just looked at your photos etc from the link you put onto Tanya's diary - WOW you are one talented lady!!  Boris is soooooooo cute.

We have a lifeguard that is very into photography and has a web page if you like looking at pics too.  His is www.leedanielsphotography.com check it out!!

lISA
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 31, 2008, 09:44:41 AM
 :o WOW!!!  :oThats some stunning pictures there, I'll take a good look a bit later on, but the bits i looked in are great. You know, it would be great if you had a digital camera to take some pics of Zambia so we could share them, I for one would love to see whats going on down there, and why you sacrifice your knee for these wonderful people!!
Love Beda :-* :-*
Title: Re: Bedas Pre-Op diary
Post by: lis1 on May 31, 2008, 10:07:21 AM
I will i do have a basic digital camera - but i am quite old fashioned - i actually prefer my SLR but don't take that so i will share my pics when i come back!! (as long as i get some help with how to put them somewhere so they can be shared)

I loved some of you flower shots - if only i didnt have a one bedroomed flat that is already covered with pics then i would have to have some of yours!!

Hope you are having a good day Beda - won't be too long for you now.

Lisa x
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on May 31, 2008, 02:42:50 PM
Those pictures were just amazing!!  I also prefer SLR cameras, but mine is still a 35 mm!!!  So I hate using it b/c it takes forever to get the pictures developed as I hate dark rooms!  I can't stand in a dark room long enough to make good photos.  I took a photography class in college and I loved the taking pictures part...hated the dark room part!! 

Beda, I didn't take that combination of medication last night b/c I was kind of afraid of mixing them.  I did take a percocet (oxycodone) before bed though b/c the pain was just going to keep me up all night.  The oxycodone did help me!  I woke up in the middle of the night and moved my leg around and realized that it wasn't hurting as bad!!  It was great...then I woke up this morning with the same pain again :(  I haven't taken anything b/c I am saving the percocets and the hydrocodone doesn't work.  There is no point in taking the hydrocodone if all it does is make me sleepy and itchy.  I will call my OS/PA on Monday and tell them how much the percocet helps!  I know they will not want to give it to me, but it was so nice to have some pain relief!!  It wasn't 100%, but it helped me relax enough!  Today I will be sitting all day either at home or by the pool.  My PT wanted me to try swimming, but I tried last week and couldn't even walk in the pool.  I hope you have a great day!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on May 31, 2008, 03:05:16 PM
Farrah - glad to hear the meds helped - thought it probably would. Trust me though, if you had taken the combination it would have been even better. Its quite safe, Here is a translation from the Rigshospitals website from their orthopædic dept. about pain relief after surgery:

'IF ONE COMBINES MORPHINE TREATMENT WITH ORDINARY HEADACHE PILLS, CAN THE NEED FOR MORPHNE BE REDUCED BY UP TO 30-40% WITH FEWER SIDE-EFFECTS'

end of quote. This is from an article where someone has complained about unbearable pains after a hip-replacement op. And the NSAID reduces the swelling and inflammation that is there. So dont be afraid, your NOT going to die fom an overdose. This applies for your other pain meds as well. The hydrocodone will work better with paracetamol and a NSAID added. As long as the interval you take the meds is correct, that is to say the paracetamol should be taken every 4 hours and the NSAID as directed, (mines only 2 x daily) and the hydrocodone as directed, then you should get better reilef. This is TRIED and TESTED, so dont be afraid. One thing is though if the hydrocodone already has paracetamol added to it, then dont up on the paracetamol but take ordinary aspirin.
So thats 3 things youve got to remember. Morphine derivative + paracetamol (or aspirin) + nsaid = better pain relief.
I have had seroius pain constantly in so many years Farrah, I know what meds work and what dont. I know now I dont get optimal pain control, but thats due to a dosage change of the oxycodone. Unfortunatly,as with all opiate and opiate derivatives, you frequently need more and more of the same drug to achieve the same effect. But your problems shouldnt be so long-standing to experience this.
Good your not doing anything today. Rest up and take those meds, and lets see what it's like come Monday morning. I dont think you should think of taking extra shifts right now!!
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on May 31, 2008, 03:12:56 PM
Beda, you are right, I should completely trust you...sorry  :-\  I will try it again tonight if the pain is still unbearable.  The hydrocodone does have the paracetamol in it already.  I have always taken the hydrocodone with the NSAID, but still don't get much relief.  I will definitely try it with the percocet tonight if I still need it.  I just don't want to use it all just in case my OS doesn't want to give me anymore. 

Don't worry, I don't plan on working this weekend.  I do have to go sit and watch some tennis matches tomorrow though.  It is the first wekeend of the new season!  Since I can't play, I have to go watch to support my team.  I will be sitting the whole time, so no big deal.  I will also get some sun!  Anyway, have a good one!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 01, 2008, 10:14:50 AM
Hi Everyone! Well, today its Eric Clapton on the turntable, it just makes me weep when he sings 'Would you still know me in heaven' - thats written by him after his 3 year old son fell down off a balcony of a high rise block of apartments and died whilst Eric Clapton and his wife were otherwise engaged, and he feels just SO guilty about this, and wrote this song. Eric Clapton is a singer and guitarist in world class, I'm just sad I dont have more of him, but I can go to the library and borrow some cd's and record them - no - no one heard or saw that remark!!OOPS!! Eric Clapton has otherwise made LOADS of cd's and records, and is still going strong. I like his blues best.
Farrah - My friend, hows the pain today?? Did you take the percocet last night, and have you started taking aspirin + NSAIDs with yur meds - it'll boost the strength of them. I hope you enjoy yourself at the tennis matches today, I know how you feel about not being able to participate. I had it that way when i used to take Sandi to dog shows. There you have to run around in a ring with them to show the dogs gait, and I just COULD'NT do it, and had to let my best friend do it for me. I NEVER got to run with Sandi, always had to get others to it, but I did groom her and prepare her, so the grroming part of I could take an active part in, and she really did look beautifull, she had such a wonderful fur coat, and truely blue-grey as it should be. she won a throphy for being the most correct coloured Blue-merle dog in all shows consistenly over 5 years. How I miss my sweet heart  :'( :'(
Hope someone posts today, being Sunday people are otherwise off doing their different recreations with their families - so not so much computer time - me, well I've got some pipes to paint out in the bathroom, so I'll be off now, catch ya later
Love beda xx

Title: Re: Bedas Pre-Op diary
Post by: kathat on June 01, 2008, 11:56:37 AM
Hi Beda,

It's the end of Sunday here, so I am not far off going to bed - especially as I had an exhausting weekend at a campcraft course. I was up at 6am both mornings and we had a busy timetable. I got back to find that the kids had been cooking and the kitchen was a mess :o I filled up the dishwasher and still had dishes left over  :P

I loved your pictures. Photography is a hobby of mine, but I don't seem to find much time to do it. I generally like anything that's crafty/arty in nature. I also like nature based activities - camping, hiking, boating. I have a digital SLR, which took me ages to save up for. I have a lot to learn about it, but I enjoy it heaps. I'd love to get out and take some nature photos, but I seem to be best at candid shots of kids. I love the photos I take at the kids' sports days and when they are playing on the playground - times when they don't know I am photographing them.

My father-in-law loves Eric Clapton. I know the song you mean - it's beautiful. I am sure my FIL has tonnes of Eric Clapton CDs and DVDs. I wish I could email you copies  ;D

Anyway, it's time to chuck the kids into bed. Neither of them are feeling the best at the moment. They are prone to stomach aches, which is what they both have now. Bed is the best place for them right now. I hope you find something to keep you occupied today.

Kathy
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 01, 2008, 12:46:33 PM
Hi Kathy. thaks for the feedback about my pics. I could do a lot better, but have had to stop crawling up trees and lying on the ground for macro-shots, becuase of my knee. I too have a digital SLR camera, its truely amazing. What I've taken to lately because it doesnt involve climbing and such is, taking underwater pics of my tropical fish. I brred tropical fish, and have 3 aquariums. they are beautiful to look at, and very calming for the nerves to watch as they slowly swim aorund. Then each of them have their own little characters and idiosyncrasies, and its fun to watch them when there building nests and mating, and then the tiny young that either get born, (live-bearers) or hatch out (egg layers). I have submitted a few pictures to the Practical fishkeeping magaizine I keep, and they have been accepted as official pics to describe the different breeds as being 'typical' examples of well-fed fish. My only problem is, whos going to look after my fish when I have to have my op? As it is now I can half do it myslelf with help from mum, water-changes etc. But when I'm completely disabled, i cant expect mom to manage. maybe I am going to have to engage some pensioner or someone that wants to earn a shilling or two. I have to change out 1/3rd of the water every 2 weeks, and the one aquarium is 250L. the other 2 are only for breeding, so there only 64L ones, so thats no problem. There will be lots of stuff i need to get hold of for when I have to have my op. But not in the style you have to, I have, in spite of all, no kids and no husband to worry about, so my problems are automatically smaller than yours!!
Today I'm watching the dvd of the Woodstock Festival now, I ran out of Eric Clapton unfortunatly, and as theres no one home to protest, I put the dvd on!! Might as well make the most of it whilst I can!!
Hope you sleep well and the kids stomach aches go away.I always got a stomach aches as a kid if I got over-excited or angry about something!!
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 01, 2008, 01:22:48 PM
Hello Beda, the pain is still worse today than usual.  I woke up several times last night with pain.  I am definitely tired of it.  I didn't take a percocet last night b/c i wanted to save them for my next PT session day in case my OS doesn't want to prescribe me more.  I didn't take any hydrocodone yesterday b/c it just doesn't help anymore and makes me sleepy instead.  It looks like a gloomy day outside so maybe tennis will not happen today :(  I hope it turns out to be a sunny day!  I hope you have fun with eric clapton dvds and music.  I like his stuff too!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 01, 2008, 02:15:18 PM
Farrah - I know your meds make you sleepy, but its better to take SOME meds and get a little relief than none at all. You say yourself the pain is worse today. I would definitly say you are a candidate for a specialist pain-management doctor, try to seek one out if you can. You really need to get that pain under control. I know that you can be wary of what I say because I am not, after all a medical person. But I have a lot of experience treating unrelenting pains, so I know what your talking about and where your coming from. I also understand you wanting to save the Percocet for your PT sessions, but really, this is ridiculous. You SHOULD'NT be in SO much pain at this stage, neither should your PT push you into having so much pain. I think its about time they tried to find out WHY you have so much pain, apart from the fact you've had major surgery 6 months ago. I do hope you explain to the OS that you only take Percocet when it gets unbearable, and that it's not a regular thing. I KNOW you dont mis-use them, if you did, you wouldnt have any left from your surgery for 6 months ago! I get them 2 a day, they are time- release pills and last for 12 hours. As long as I dont go under time I'm fine with it, because the doc KNOWS its not going to be a permanent situation. And when the time comes to wean off them, then your pain management doc should see you through that as well. Then I get them as 2 extra pills I can take during the day, which are'nt time release capsules, when the pain really gets to me. So IF your OS is holding back, then I would strongly recommend a pain doc. There must be some of them in the States where you live. Where do you live by the way??!!
Have changed Eric Clapton out with Janis Joplin. Thats probably a bit before your time, but real rock!!
Have a continued good day - if you can
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: lis1 on June 01, 2008, 02:23:13 PM
Hi Beda

Hope you are doing okay today and that the pipes have been well and truly painted out!!

Love all rock Janis Joplin - good choice and the Eric Clapton song you were listening to earlier is an all time great!!  I have been recently having a bit of an 80's remininscence for some bizare strange reason.

Bought all sorts of stuff for trip today - gel for if (when) it gets sore, heat pads that last 8 hours, dressings in case we cut ourselves you know general shopping. Hee hee

Now at work - have had to come in early to cover as the manager had to work today to cover the morning.  I refused to do a double shift as 1 didnt want to miss church and 2 knee doesn't like sit stand sit stand stairs stand etc repeatedly for 13 hours.

Enjoy the rest of your sunday

Lovce Lisa x
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 01, 2008, 02:43:19 PM
Hello Beda,

I will explain to my OS/PA that I would only take the oxycodone for severe unbearable pain.  I take ultram ER daily no matter what, so when I don't take the hydrocodone, the ultram is helping some.  The hydrocodone literally does nothing!  So I just don't see the point in taking it.  I tried going back to other more mild meds, but those don't help either.  I guess my body is used to the hydrocodone now.  My body seems to get used to drugs quickly.  It only took 2-3 weeks for me to get used to the darvocet...then it stopped working.  It has take 1-2 months to get used to the hydrocodone. 

The PT really pissed me off on Friday.  She had an early PO patient to deal with so she only watched me begin some new exercises, then passed me to the technician for him to watch me.  She knew I was in pain.  Well during the step ups, I only had to do 10 of them, but it was just so bad.  I had to step up on this 4" platform, bring my feet together, then step back down backwards leaving my surgery leg on the platform.  Stepping down was the most painful part!  I used my toes to prevent me from stepping down so far.  Well I was really taking my time going to the next rep b/c it hurt so bad.  My eyes were tearing up, but I kept going.  The technician came over and asked if it was hurting and I said very much, but the PT told me to get through it.  So he went and talked to the PT and she told him that I have to get my quads stronger.  What really pissed me off is that my left leg muscles were sore yesterday and the right (surgery) muscles weren't at all.  I know that muscles can't get stronger through pain...so what the hell are they doing to me??  Does she not believe how bad it is?  Does she think I am making it up and that I will get stronger b/c the pain isn't as bad as I say it is??  WHATEVER!  Sorry I vented on your thread!  It is just bothering me.  I know I shouldn't be at this stage 5 months out!  I am going to see if I can bump up one of my opinions to this week instead of the end of the month.  That PT is just unbearable and not fair!  Nobody else at PT has pain during exercises.  I even heard my PT tell another patient that if it started to hurt him, to stop.  UGH!  I think I am going to talk to my PA about this when I ask for more pain pills!  I just don't think it is right for me to be in that much pain during PT!  I hate my PT!!  I wish I could change!  She is a good PT though and is suppose to know what she is doing.  She has dealt with way worse injuries than mine.  So I know she knows what she's doing. 

Farrah
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 01, 2008, 02:52:01 PM
I forgot to tell you that I hurt my wrist yesterday pushing myself off the couch!!  It hurts to use my crutches.  If it wasn't for that, then I wouldn't care.  If it still hurts tomorrow, I may do something about it.  The pain is very sharp and radiates up to my hand. 

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 01, 2008, 04:03:18 PM
Farrah - oh dear, your in about as much mess as I'm in at the moment! My arm hurts so I've been trying to manage with one crutch, its mighty difficult. But my arm is tendonitis, due to the excess use of my right hand and arm on the crutch. Its bound to come. I can only agree with what you write above, and know exactly where your coming from with all the issues. Does your husband know how much pain your in? You need moral supprt as WELL AS the physical support at the moment. Just the fact that your on anti-depressives about this problem indicates to me your not venting enough! Let it out girl, on my site, if you like, I dont mind. You can even p.m. me if you dont want anyone else to see or hear what youve got to say. I can bear it, I've been dealing with SERIOUS pain for ages now, I know how depressing it can be. Way back last september when i didnt know what was wrong with me and I just thought I had lots of pain without knowing the reason, my doctor just said to that now the time had come in life to always use crutches!! I just couldnt accept it! I'm only 52 for gods sake, (51 then) and should be in the prime of life. I thought my life had come to an end. I cried for days and days about tht decision, and got very depressed. But when I found out later the REAL REASON for me having so much pain, I could accept it more, and say to myself, OK, there IS a way out of this mess, its not going to be for ever, so now I look forward. I know I have a lot of pain now, but I do know too that one day it WILL stop, and youve just got to have faith in that. One day your pains WILL stop. Your body will heal and you will find a way to get through it. Have a bit of faith in that, I now its hard at the moment. If you knew how I've been in tears in frustration about how I have tried to get even SEEN by an OS SOMEWHERE in DK in this past year, I cant even beigin to think of the frustration I was in. I kept on getting refused by  OS's because I was a 'difficult case', refused by another Hospital, got bad news from a third that the waiting list was at least 6 months jst to get an appt. to be SEEN, BEFORE they decided to do any kind of TREATMENT!!! This recent treatment I've been getting from RIGSHOSPITAL is like lightning happening in comparison to what I have been lead to believe by many a nurse/secretary/OS/Hospital. So, have faith is the only comfort I can give you, you WILL get through it.
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: Plumb on June 01, 2008, 07:33:16 PM
I can bear it, I've been dealing with SERIOUS pain for ages now, I know how depressing it can be. Way back last september when i didnt know what was wrong with me and I just thought I had lots of pain without knowing the reason, my doctor just said to that now the time had come in life to always use crutches!! I just couldnt accept it! I'm only 52 for gods sake, (51 then) and should be in the prime of life. I thought my life had come to an end. I cried for days and days about tht decision, and got very depressed. But when I found out later the REAL REASON for me having so much pain, I could accept it more, and say to myself, OK, there IS a way out of this mess, its not going to be for ever, so now I look forward. I know I have a lot of pain now, but I do know too that one day it WILL stop, and youve just got to have faith in that. One day your pains WILL stop. Your body will heal and you will find a way to get through it. Have a bit of faith in that,


Back in 2006 at one OS appointment I was expecting to hear. You should be off of crutches by now by the OS after my first ever surgery. Instead he told me that I should use crutches as much as possible. I knew he told me right after the surgery I would need a knee replacement eventually.  I guess I was never fully prepared to hear that a doctor second guessing my will to get back to work and I bascially could not comprehend that my one journey to being back to me.  A person who could just walk normally again. Would take a long year to correct.  At times I would cry at night that the days were so hard. However, I would peep talk myself right after a crying session.   One day I would be healed and i'd find a way to get threw it.
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 01, 2008, 08:59:22 PM
Had a long and busy day on the computer, so I'll put it to bed now - goodnight everyone, see you tomorrow!!
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 01, 2008, 11:20:13 PM
Hello Beda, I watched tennis today.  It was hot outside!  The matches were fun to watch though.  I haven't been with those ladies since my depression started and I didn't really want to be there long.  I stayed for about 1.5 hrs or so.  Normally I stay for 3-4hrs.  I didn't even talk to them much.  I pretty much kept to myself and watched the other ladies's matches.  The way it works is that we have two tennis courts and 5 matches.  So the first 2 matches start and each of the other matches begin once a court is available after the others are over.  So the other teammates are sitting and watching the first two matches.  So I was around many of my teammates.  They all asked about my knee and for once, I just didn't want to talk about it at all.  I just kept telling them long story.  Well that answer didn't satisfy anyone, so I got tons of other questions.  They just don't understand it.  I wish there was an easier explanation. 

Well when I left the matches my husband and I drove up to the neighborhood pool to go for a swim and sit in the sun.  Well I got in the water and attempted to swim, but I couldn't use my surgery leg very well.  I could walk in the pool only on my toes (legs straight)...so I pretty much sat in an innertube and floated around while very lightly kicking my feet to get those muscles moving.  My knee is very sore now :(  Anyway, I know you will not get this until tomorrow, but I am ready to try out my new brace while at work tomorrow.  Nobody will see it b/c it will be under my work clothes, but I just want to see how I get through the day with this added pain from Friday's PT and my new brace.  I am also ready to talk to my OS/PA about pain meds and how horrible PT was last week.  I hope you are sleeping okay.  My husband is making us some shrimp and garlic bread dinner :)  My favorite!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 02, 2008, 03:37:45 AM
Farrah - glad to hear your doing some 'recreational' activities. I'm sure the bit in the water did you good. its 4.30am and I have woken up in a lot of pain, went to bed with 2 ice packs last night, but still have pain. Its too ealry for my oxycontin, but have taken oxynorm which is he same but not time release and not such a large dosage. I hope I get some relief soon. That shrimp dinner sounds just great - wish I had someone too make me some food!! Mom has gone on holiday so I am on my own this week. Speaking of food, i need some now. Getting up early makes me hungry afer a while.
have a nice evening, Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 02, 2008, 03:39:55 AM
I read on Kathy's diary that you are in pain and unable to sleep!!  I hate to hear that!!  I hope it gets better for you!!  When I can't sleep sometimes I read stories on KG that I haven't ever read and it usually makes me tired enough to try to sleep.  Have you ever taken a sleeping pill?   I don't plan on taking ambien tonight b/c I am very tired from all the sun today.  I hope the pain doesn't wake me up tonight like it did the last two nights!  I have a long week of 10.5 hr work days ahead of me! We get off at 12pm on Fridays and since I have PT/injection on Friday, I have to leave at 10:30am.  So I have to work 30 minutes extra 3 mornings to make up that time.  We usually are at work from 8am-6pm, but I will be 7:30am-6pm.  LONG DAYS!!  Oh well...Fridays are nice!  I am glad my PT/injections are on Fridays though b/c then I don't have to go back to work afterwards and can sit at home and cry like last week!  :(  I can't wait for tomorrow so I can call my OS/PA about pain meds and PT crap!  I will never forget how bad it was!  It gives me nightmares!  I can just picture my PTs face and verbal expressions during it all...just didn't care about me.  I think she is just frustrated and knows that this is the only way I can get stronger.  Sorry to go off again...it is time for me to go to bed now!  I have to wake up around 5:00am or 5:30am...it is 10:40pm right now.  Later!

Farrah

I clicked Post then saw your post!!!!  Have a good morning!  Sorry about your pain!  Relax this morning.  What do you generally do all day anyway?  I know you struggle getting around.  Well have a good one. 
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 02, 2008, 09:08:16 AM
Well, Farrah - you've guessed, I dont really do a lot of anything at the moment, I am pretty handicapped, but I do do small jobs around the house, like with this move there has been stuff like putting porcelain away into cupboards and emptying boxes. I can do most of that sitting down, or standing up providing I dont have to move position. Today I feel like s**t. I got up way to early and had way too much pain to cope with, and by the time it got to 8.00am this morning and time to take my oxycontin, there had gone so much time that I had managed to get into a right state pain wise. I just hurt in every step I take, and the pain radiates up into my groin and out to my toes. have just taken my meds in the hope they'll kick in in abut 3/4 hour so have to stick it out till then. Yes, otherwise unfortunatly the day goes sitting in the sofa, being on the computer and lying on my bed. I watch a lot of day time tv like Animal Planet and National Geographic, they are informative and  amusing. I HATE soaps and the such, find it such a waste of time, and the stuff that happens in them is never anything that would ever happen to REAL people in REAL life!! Then I look after my cats, play with them, talk with them and pet them. They are a couple of lovely cats. Wish I had a dog, my wish would be to have a little minature daschound, but were not allowed to keep dogs here, we had to have special permission to have our cats here.
I have hay fever on top of everything else, and my nose and eyes are streaming. I take Zyrtec for it, but its annoying 'cos I dont like taking zyrtec because of all the other meds i get, I think it isnt good for my body to process all that junk. I also do get a minor tranquiliser, which helps me relax during the day. Thats mainly left over from the time when I was in the middle of searching for SOMEONE to listen to my problems and to act. I really got very tense there, and found it a help to relax. Maybe I dont need them so much now, but I have it OK with the meds I've been on for the past ½ year so I dont want to change anything for fear of symtoms of anxiety coming back. I would more say agitation more than actual anxiety. I got really agitated at all the people who refused to see me or hear me. It actually wasnt until I went to a politician and the newspaper with my story that things began to go forward. The politican got pushed things in the right direction, she just couldnt believe how badly I had been treated in the health system in DK today which is supposed to be one of the best in the world! Ha! i dont believe THAT for one minute, its just something the politicians convince themselves it is. I still have some water pipes out in the bathroom I need to paint, so I think I'll do that today. I can do that sitting down, so its no problem, but I have just showered so I have to wait untill its all dried up out there. There was some pretty ugly exposed pipes when we moved in here, they really do need attention. I have some spray primer that stops damp from coming through. The pipes are old and had mildew on the cold ones that get condensation on them. I have sprayed them with the primer, they look just fine, now i just need the overcoat on them. they'll be just fine by the time I'm done with them, if theres one thing I do know about, thats painting!!!
WEll, Farrah I hope you have a good one today. I do hope that you explain IN FULL to your OS about the pain  and the meds. I was reading up on Percocet last night. They should have paracetamol added to them already, so all you have to do is to take a NSAID with them , then youve done just about everything you can do. I do hope he gives you some more, but i did also read that there are VERY strict rules about prescriptions for them They are a class II controlled substance, and amongst those drugs that have the strictest rules about prescribing them. But he SHOULD give you some, its not as if your a mis-user. If you were a drug abuser you wouldnt have percocet lying in your possesion left over from your surgery 5 months ago - you would have used them AGES ago if you were in an abuse. that must be some indication for him. if he doesnt do it then I think he is plain old dumb!!
By the way. I dont think the way through PT is by having SO MUCH pain. There must be some more gentle excercises you can do that dont generate so much pain. You'll never get anywhere whilst your suffering like that. Hows your pain threshold do you think?? I think mines pretty high by now, but I cant honsetly say because I get SO much all the time.
Love beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 02, 2008, 10:51:45 AM
Good morning Beda,
Sorry you didn't get much sleep last night and are in a lot of pain!  I think my sitting around most of the weekend finally helped me last night.  I was still in pain before bed, but it's weird b/c I woke up feeling a little better.  Unfortunately that will slowly get worse as I get ready for work and have to drive my 1hr to get there.  Hopefully my new brace will help that though.  Today will be the first work day since that nightmare Friday!  My dogs are playing tug of war with the rope this morning!!  My husband is still sleeping so they may wake him up!  They like to growl very loudly while playing.  Well I guess I should go get ready for work now!  UGH!  Long day ahead of me!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: tanyap on June 02, 2008, 11:04:37 AM
Hi Beda,
Im sorry to hear you have been having so much pain recently, its not nice when you cant get a good nights sleep. At least your appointment is coming closer and closer, less than 2 weeks now - thats great!
I havent read over on Kathys diary yet. I hope you are managing ok on your own at home and just trying to keep the pain at bay as much as you can. I like Animal Planet and National Geographic too - I especially like the programs they do about great apes, Ive seen some good ones recently. I also like to watch the Animal Cops programs and see them rescuing dogs and cats and other creatures from bad situations, the best bit is when they find them new loving homes but Im always sad if it turns out the animal cannot be re-homed due to tempermant or seriousness of injury. We are big documentary lovers here, no soaps at all.
I hope you have a good day.
xx
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 02, 2008, 12:40:39 PM
Hi Tanya. have just got home again after a futile visit to town. I had to go pick up some meds in the pharmacy that the Nurse should have telephoned in last week, and they werent there!! So now I had to come home empty handed and begin to call the doc so i can get these meds TODAY as I run out of them this afternoon!! they are pain meds so it is very important. What a drag when the system doesnt work!! I Suppose the nurse is only human and can forget, but its certainly put a lot of people through wasted time today, and now they'll have to come out with it to me, so thats another extra journey. It wasnt quite true that i came home empty handed, I had to buy a little mouse for my laptop. On friday evening my other one decided to quit, so I've been using the 'big' mouse from my other computer in the other room, but its all a bit big for this laptop. I found one in the computer store for 49.95 thats £5.00 on offer, so it didnt break the bank and it works now just fine!
I too am a fervent watcher of documentaries. I was watching with great interest last night one about the puzzle of Stonehenge, and how they have found a stoneage community 2.5km away from the site of Stonehenge, and now they seem to be closer to discovering exacty what this bizzare monument actually is, they reckon its  a burial ground fo the chiefs of the communities and offerings to their gods. They always thoght it has something special to do with the summer solstice, but are coming more away from that theory now after they have found such a huge town close by. Its all supposed to have been very sacred to the stoneage people. Just the fact that they moved those giagantic stones there into position and they hadnt even discovered the wheel yet! Its mind boggling!!

Its really summer outside today,at least 25 degrees in the shade, so I've got all the fans going. Mum is probably enjoying herslef by the beach on Krete, wish it were me, but then its not a lot of fun going to the beach when you walk on crutches. have you ever tried to walk on crutches in sand? Its a killer. Just walking in the sand is challenging at the best of times. Good to build up quads I would think! I hear there are some beautiful beaches in ireland. My sister goes on riding holidays to Ireland, she rides horses on the beaches. I would LOVE to go to Ireland, its supposed to be so green and beautifull.
Tanya, glad to hear your still doing well and that the soreness is minimal. thats the way to go. Wish my pains would stop today. looks like its going to be  a tough one.
catch ya later
xx Beda
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 02, 2008, 12:57:30 PM
Beda, I don't know if you saw my message before Tanya's, if so...


So false alarm on feeling better :(  After I got out of the shower, the pain got a lot worse.  I am now at work and the constant pain is about #5 and walking is #7! :(  Not feeling so well. 

Sorry about your "wasted" trip to pick up pain meds!!  I hope you get it resolved ASAP!  I hope your pain gets better too! 

Farrah
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 02, 2008, 01:44:30 PM
I rescheduled one of my new OS apts for tomorrow at 10am eastern USA time.  I am nervous! 

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 02, 2008, 02:06:37 PM
Well done - lets hope its fruitfull and you get some answers, if not answers, then some decent pain meds!!
xxB
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 02, 2008, 02:43:51 PM
Farrah - have just discovered what the name is of the NSAID drug I use, its trade name is Relifex, but its chemical name is NABUMETON. Its just one of the regular NSAIDS but does me well. I have found it works best for my type of pain in combination with the Oxycontin and the paracetamol. When I've taken this concoction, I know i cant do a lot more, and just have to ice/heat whatever works best on the day.
xx B
Title: Re: Bedas Pre-Op diary
Post by: debbiedo on June 02, 2008, 03:25:02 PM
hi sorry for all u have been through and sorry because compared with you my prob is only trivial but i am due to have an mua on wednesday and am worried sick about what to expect after reading alot on here any advice.  I havent had any prior surgery or problems it was just a dislocated knee after a fall that has led to only 20 degree movement

thanks and best of wishes for the future
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 02, 2008, 03:42:46 PM
Hej debbie. Your going to have a manipulation under anæsthetic. Well, you wont feel a thing under anæsthetic, but afterwards your going to be feeling sore but relieved. Your probably going to be in some  kind of immobilisation to prevent the joint jumping out again, and the brace or cast will allow your muscles and tendons to heal after they've been pulled very brutally around. i hope you havent actually torn any ligamnets, if you have, maybe later on they will need repairing. But if they havent told you already that youve torn something, then the chances are youve gotten away with serious stretching, and youll be sore and bruised. I expect youll be on crutches for a while, but it depends on how severe your injury is, and what damage you have had done. Its no big thing, but important you have it done to reduce the dislocation and allow healing.
Hope all goes well for you.
beda
Title: Re: Bedas Pre-Op diary
Post by: debbiedo on June 02, 2008, 03:51:55 PM
hi beda i had the dislocation mannipulated back in feb the mua is due to scar tissue forming as a result of the fall. Will this make a difference to your reply as i have done the cast and crutches it is just now i cant get past 20 degree movement with 7 weekas of physio

cheers
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 02, 2008, 04:39:17 PM
OK Sorry, didnt realize youd had the reduction done. Well, if youve got scar tissue youve obviously torn some ligaments. Arnt they going to remove some of the scar tissue? Or do they feel that manipulation is enough? Sometimes after a TKR the swelling and devlopement of scar tissue at an early stage prevents the joint from moving as much as it should. Then you need MUA but there doesnt actually happen anything else than it just gets moved and the ligaments and tendons get stretched again. I do know yours isnt a TKR and I do hope you dont have too much scarring, otherwise you may have to have some removed, but i am not an OS niether do i know the extent of your soft tissue damage. It could just be you need the extra help to get moving again. it will feel better afer MUA, and should give you some more ROM.
XX Beda
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 02, 2008, 09:15:28 PM
Hello Beda, I hope your pain has improved over the day!  When does your mom return from her trip?  That's nice that she helps you so much!  My husband helps me a lot!  Lately he has been extra helpful b/c he knows how much pain I am in.  He is so sweet!! 

My pain hasn't improved today.  The brace has helped a bit though.  Did you see my post about moving my 3rd opinion to tomorrow morning??  Any advice??  Talk to you later!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 03, 2008, 07:56:37 AM
Farrah- glad to hear Hubby helps you so much, that really means a lot. As to your new appt. I would suggest that you stress you feel no steps forward in the right direction, and that PT is so painful for you you cant bear to do it. I think if you husband could go with you it would be a good idea. For some reason the bedside manor always improves when they need to speak to more than one person, and then he is forced to (the OS) give you some kind of explanation for the terrible pain your in. You should also tell him about your pain meds and how they just dont cut it. Otherwise i dont think you can say or do much more than that. Expect the OS to try to examine your leg by moving it around, and that will hurt. i was SOOO sore after my last OS appt. for days afterwards., but its necessary for him to give an accurate diagnosis. The main thing is, is to stress the ammount of pain your in, and the fact that your having to take medication for the depression it has given you. THAT is of the utmost of importance, because it shows the fact that your whole life has been affeced by the bad outcome of this op. Tell him also about how you had hoped to excercise sport again, that it is in your interest that you GET BETTER, that you definitly have no reason whatsoever to want to hold onto the pains. If he dicides to scope you, then go along with it. I think there are some answers in that joint of yours that has been overlooked by the first OS. Just the  fact tht you have OA is bad enough to give you undescribable pains, so if they scope you they can see if your bone on bone or not. If you are bone on bone anywhere, well thats probably why your hurting so much, ON TOP OF the operation.
Farrah - I hope this appt. goes well for you, keep me posted
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 03, 2008, 10:58:16 AM
Beda, thanks so much for the advice!  I will keep you posted.  I hope you are feeling better than you were yesterday!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 03, 2008, 12:59:13 PM
Well, actually I'm not feeling too great today. have decided my quads have packed in completley, thus he pain in my groin from trying to use my hip muscles to swing my leg forward when walking with crtuches. My OS said i should try to go through the motions of a walk even though I cant do it properly, so I have been trying. I have SUCH pain, in my groin. i swing my leg through from the hip i have discovered, not using my quads 'cos i dont have any nerve contact with the quads. Its a bummer :-[ Well, just one more good reason to get this op over and done with ASAP. Hope your right Tanya about my CT scan not being cancelled. I really do NEED to get some push in all the things that have to happen to me. ??? ??? :o >:(
Well, had the cats out for first time today in this house. Weve been here 4 weeks on friday, so I figured there had been enough time so they could get their barings. I sprinkled some used cat litter around and they had some of their own scent to go after. Boris was the brave one and went out of sight immediatly, whereas Pusswuss stayed around the house. After an hour Boris came wondering across the grass, I called them in and gave them both a nice meal of their favourite food, and they were as happy as sandboys. They'll stay in now until tomorrow, I'll let them out again tomorrow and let them go around again. At least they didnt get lost. I am relieved it went well. I just dont want them to go around the front of the house, theres a bit of traffic there. but they both stayed nicely around the right side of the house, so its good. ;)
Well, i want to read my book now, so catch ya later :D
Love Beda xx :-*
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 03, 2008, 04:58:08 PM
Hey Beda...don't have time to post right now, but here is what I wrote on my diary...

First, before I left, my current OS's PA called me returning my call, I talked to her about all my concerns.  I told her that the hydrocodone wasn't helping.  I took 2 before last Friday's PT and 2 shortly after with no relief.  So she thinks taking 2 before PT isn't very therapeutic and to start taking 2 every 4hrs starting today.  That way it will get in my system enough to hopefully benefit with PT.  She wants me to call her or the other PA back after PT on Friday.  Okay...so that's one thing!

For my new OS apt...I did what all was suggested by all KG buddies!  I gave them the x-rays and the operative report and didn't mention anything about what my current OS has said.  I had a nice chat with the PA before the OS came in.  I told him about the depression and problems sleeping as well as all the pain meds. The OS examined me, then asked if I ever had any injections.  I told him cortisone and Euflexxa, with no relief.  I didn't tell him that i was in the middle of them.  So he ordered more x-rays.  He came back, said the Osteotomy has healed and the problem is probably nerve damage.  He said after surgery sometimes people can develop this problem in their nerves that just produces a lot of pain.  I don't remember the name of the problem. He said needs to be treated so that I can get through PT and get stronger.  He also thinks some of the problem is muscle weakness.  So he recommends going to a pain specialist and getting injections in my back that I guess help with these nerves.  So his office spent about 15minutes trying to figure out how to refer someone...they haven't done it in a while :) 

So here is where I need the advice...do I go with what my current OS is trying and eventually go to pain specialist?  Or do I stop after the last Euflexxa injection and go do these injections to help with pain with my new OS's pain specialist?  My new OS's office is calling me in a few days to schedule it!  Or do I get this block thing and just continue with my current OS?? 

Beda, thanks for all your help!!  Sorry you aren't feel better!  Your story about your cats is cool...I am glad they are adapting to their new home!!  I moved when I was younger with my cat.  When we got to the new home, not knowing any better, we let her outside right when we arrived and she ran away and we never saw her again :(  Now I am allergic to cats!!  Well I hope your enjoying your day some!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 03, 2008, 06:29:22 PM
Farrah - I speak personally what I would do if I was in your shoes. I would stop the euflexxa injections and go with the new OS and his injections, and the pain specialist. I have said it before to you, that your pain needs specialist treatment, and a pain specialist seems to be the right doctor of choice. I am not completely sure by what you say if the new OS wants to give you some kind of block in your spine??? It seems the best choice by far. If the osteotomy has healed, then theres no point in prolonging the pains iwth your old OS. He has given you nerve damage, and that is often a produce of clumsy surgery. I wouldnt trust him with my body any more. No, it sounds to me like the new OS knows what he's talking about and is possibly on the right track. Why otherwise would you have so much pain? If it wasnt nerve damage, and the osteotomy has healed, then what else could it be? Its not the OA cos the eufflexxa injections and the steroids ar'nt helping. It smells strongly of nerve damage and i would definitly go with the new OS if i were you. That is my personal thoughts about it all. If you can get a nerve block and the pain goes away, then it proves a point. A pain specialist will treat you for NERVE pain, thats a whole different ball game than anything else. You're on the right track here Farrah, dont throw it away in a moment of doubt. I wouldnt have any sentiments over for your old OS. He's done his now, now its time for someone else to take over. Go Girl go!!!
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: Sore knee on June 03, 2008, 07:25:26 PM
beda

I hope the groin pain has eased for you. The only good thing for you is you are such an expert now with knees and all the related pain at least you know what all the pains are. I know its no consolation for you but at least you dont panic. I do hope your pain has eased though.

farrah, I hope you have managed to find some solace in your new OS and that the decision comes easy to you. I will pop in your diary to see how you are  :-*
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 04, 2008, 02:34:16 AM
Hello Beda, I posted this on my diary earlier this evening...This is my plan so far, but I am going to sleep on it tonight. 

So I am going to go to my last Euflexxa injection and my nightmare PT appointment on Friday.  Starting at 7pm tonight (almost an hr ago), I started taking the 10mgs of hydrocodone every 4-6 hrs until PT as recommended by my current OS's PA.  I am suppose to call the PA back on Friday after PT to let her know how it worked out.  It would be nice to get some relief for a few days if it helps!  I definitely wouldn't want to live on that for long though!!

So while sticking with that...I am going to wait for my new OS to call me this week. Then I am going to ask them what the future would be with this OS.  Does he plan on seeing me and taking control of PT and whatever?  Or does he just want to pass me along to this pain specialist?  If he doesn't plan on continuously seeing me, then I don't think that is the best option.  If he does plan on seeing me occassionally, then I will seriously consider it.  I will also ask more about these injections and what it means for the future of my knee.  So when my new OS calls to give me the number for pain management, I will call them and schedule an apt for 2 weeks from now.  This will allow the Euflexxa to work or not work for sure by then.  During those 2 weeks, I will continue with my once a week PT sessions (maybe..only if the pain meds help enough to not make it miserable) and talk to the current PA and OS about this other opinion and pain management and the nerve block (back injections) and such.

So that's that so far.  Don't tell me it is a bad plan outright, but give me some suggestions if you want to.  I can't just stop seeing my current OS right now b/c I have been with them for 3 years.  I plan to go to a pain specialist though!  Anyway, we'll see how it all turns out. 

Lots of pain tonight...have been posting more than I thought around the boards despite the pain.  The hydrocodone has made me itch and I need to go take an allergy pill!  Well I hope I get some relief from taking the hydrocodone since it makes me so sleepy during the day!  It will not be worth the sleepiness if it doesn't do anything.  Well I hope you are sleeping well right now...talk to you tomorrow!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 04, 2008, 09:40:28 AM
Farrah - I do hope for you AND the new OS that he has intentions of seeing you through with this. it would be most unlikely that he would order a course of treatment and not be willing to see you through it. i do understand, however, about your reluctance to give up the old OS after 3 years. It took me 15 years to give up an OS who I discovered EVENTUALLY that he wasnt treating me right, but I felt comfortable with him funnily enough, but he NEVER explained to me what he would be doing and why, I just took it all blindly. So, yes, it can be hard to give up on an OS specially if you have had good experiences amongst the bad, but remember, he's given you nerve damage, and you never had that before, and its a product of bad surgery. but you MUST go with what you feel most comfortable with, but whatever OS you decide to go with, I think it is of utmost impertance you see a PAIN SPECIALIST. The itching with the hydrocodone means your probably allergic to it. It doesnt work as it should when your allerigic to it, so this can be part of the reason that it hasnt been helping you. i was under the impression you were already on hydrocodone 4-6 hours already?? I would have suggested that long ago IF i knew you were only taking it sporadically. Its of utmost importance with all pain meds that are prescibed for chronic pain, that you take them reguarly, and keep yourself covered. Once you get into a spiral of pain, its hard to break it. Dont forget to take an NSAID at the same time, then the effect will be even better - if you dare, I know your wary!!
have to go now, have a DR's appt. so catch ya later
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: lis1 on June 04, 2008, 09:56:04 AM
Beda

Hi and i hope that you are having a good day!!

Well - what can i say.  I have been reading through some of the posts, ones that you have sent and others. What a lot you and your mum have had to go through and i am not talking about knee stuff here, even though that in itself would be enough to go through without everything else, and yet as i have said before you are always there to support and advise others - WOW you are great.

I hope you mum has had a great holiday - like you i sure think that she deserved it.  

I understand even more now what you said on the PM and why and let me reassure you again that the information you provided is precious and will not be passed on it's great that i am trusted and i will use it very wisely!!

It sounds like good news that the strike seems to be nearing its conclusion so that you can be sorted out ASAP.  It doesn't seem fair that i feel sorry for myself about not being able to drive for 8-10 weeks or so and that i am going to have to rely on others to take me anywhere when you can't even get out without help...but things are going to change for you and life is going to get better.  I do wish i could wave a magic wand for you Farrah and that then all the pain would just be gone........however my fairy dust ran out a long time ago.........sorry.

Often the best experts are people who have experienced stuff and by stuff i mean what life throws at us.  I knew when reading through stuff on here that you know what you are talking about, and if you don't/haven't experienced it you look it up.  For this reason i was really reassured when you said that i was making the right decision about the way forward with my knee because it was something that has really been playing on my mind.....but no more!!

I will be thinking of you while i am miles away especially on the 13th June - Friday.  Will be our last day of work that week and only a couple of days until my age creeps up by 1 - will have to start 40 therapy soon in preparation for next year.

Beda have a great couple of weeks - enjoy the cats and the garden and the new place without stairs.  

Lots of love Lisa x
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 04, 2008, 10:46:20 AM
Hi Beda, I was taking the hydrocodone as needed b/c I am taking the ultram ER 200mg daily on a schedule.  My OS wanted me to take less of the hydrocodone b/c of worries of becoming dependent on it.  So they only wanted me to take it "as needed".  So that's what I did.  My OS did make me aware that having to take an antihistamine with the meds causes it to not work quite as well.  So maybe that is part of the problem of it not helping.  I hate the hydrocodone b/c it makes me sleepy and feel weird.  Do your medications do that to you?  I am taking the NSAID with all this stuff, so don't worry about that :)  The hydrocodone has the tylenol in it too...so I am doing exactly what you prescribed :)  So I am going to do my best in leaving my current OS and moving on to a new one.  My new one mentioned that the nerve damage can just creep up over some time after a surgery.  He asked if it happened after my first surgery and I said no...b/c it didn't.  Do you know the formal name for this problem?  I will ask his PA or whoever calls me in a few days.  He called it something.  If I could find that out, then I can research about it and find out if it is from a clumsy surgery or just from a problem that has crept up.  Well I will be on later.  Have a good day!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 04, 2008, 11:51:23 AM
Ja, my meds make me sleepy and feel weird, but they do take the pain, so I would rather ba a bit sleepy since I CAN sleep. But i can see the problem for you, you dont need to be sleepy when youve got a job of work to do!!I dont know if I know what Ultram is, I tried to look it up, but couldnt find any references to it. Whats the active ingredient?? Dont worry about issues of dependency. You are obviously not the type to become dependent on them, you would have been for a long time ago if you were. Your pain doc. will see you through any dependency you may develope WHEN the time comes. Thats why its important to go see a pain specialist, they deal with problems of chronic severe nerve pains, and have drugs to treat you with the best possible effect. Nobodys interested in making you dependent on narcotics. Least of all pain docs.
have just been to the doc. have had my oxycontin raised by 10mg in the morning. that makes now 50mgs morning and 40mgs night. thats time release pills. I'm not looking forward to it 'cos i think its going to make me feel sick. But I have some anti-nausea pills on hand for side effects.
Glad to hear your getting things clarified.
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 04, 2008, 12:52:36 PM
http://www.ultram-er.com/ultram-er/index.html

Here is some info on Ultram ER.  You are good at noticing what the meds are made of...I just take them :)  I know it is an extended release version of tramadol if you know what that is. It doesn't do much for my knees, but it helps my back.  Without it, I can't hardly get out of bed b/c of back pain. 

For a while, I was against pain management, but since two OSs have mentioned it now, I am more interested if they can make my pain go away. 

Are the new adjustments to your pain meds helping you?  I hope you don't feel sick from them. 

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 04, 2008, 01:51:51 PM
OK ; Now i know what Ultram ER is. Its like tramadol. i stopped using tramadol ages ago because it couldnt take my pains. I feel weird after taking the extra oxycontin, not exactly sick, 'cos I took a nausea pill with it, but I dont quite feel 'out of this world' the doc said that feeling would subside after a while. But the pain is BETTER!! So what the worse of 2 evils?? At least I can rest when i need to, so its not too bad. I wouldnt like to take it if I had a job to do. I definitly wouldnt be able to drive safely. Thats something your going to have to serously watch when your taking your pain meds every 4-6 hours, thats your driving. I know you drive to work, so be careful. Here in DK if the meds are come marked with a red warning triangle on them, your not supposed to drive or operate machinery whilst using them. Tramadol has a warning triangel on it over here, so does oxycontin and hydrocodone. But its individual, you have to use your judgement very much. Sorry to hear you have back trouble as well, so do I. I think it goes with the territory of bad legs.
Hpe your day is going better than the other days.
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 04, 2008, 02:27:06 PM
Beda, I am careful with my meds.  I schedule the doses around driving.  So I usually drive 2 + hrs after taking it.  Usually I am mainly tired during the first hour. Then it improves.

As for my back, I have had the problem since 1998.  Started with sponylolysis and spondylolisthesis as a gymnast.  The fracture healed within about 3 months, but the pain never went away.  I have had a bone scan, CT, 2 MRIs, tons of therapy with tons of therapists, 2 epidurals, 1 facet joint injection with no relief.  So my back doctor is also a pain specialist and put me on long term meds...ultram ER and indocin.  I get blood tests every 1 yr to make sure everything works properly from the meds.  So I had that before the knees started being stupid 5 years later.
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 04, 2008, 03:56:13 PM
You poor thing, life has really dealt you a rough hand, hasnt it?
xxB
Title: Re: Bedas Pre-Op diary
Post by: KW on June 04, 2008, 04:02:19 PM
Farrah,  Don't be shocked if the new Pain Spec looks for a connection btwn the back pain and the knee pain.  It would not be uncommon for the two to be connected.

Karen
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 04, 2008, 04:13:20 PM
karen and Beda,

My new OS yesterday did ask about my back.  I told him I had a bad back for 10 years and was taking the Ultram ER and indocin b/c that's what my back doctor prescribed.  So he asked what the problem is, so I explained it.  I was kind of shocked that he asked about it...my current OS never has!  He knows about it, but hasn't ever asked a single question. 

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 04, 2008, 05:35:48 PM
So the plot thickens!!Aahh!! Now we are beginning to shed some light onto WHY you have som much pain. The pains in your leg could well be tied up with your back. I was told that after my surgery i would nearly have a 100% chance of getting back and hip problems because I will begin to walk in another way. I already have back issues, and if you already have serious back issues, on top of having issues now with your knee, then your BOUND to be a candidate for more pain in one place or the other. The two are undoubtably linked together. I think you will find that when you get treated for the right KIND of pain, like NERVE pain, then your back will automatically get to be easier, and if your back gets easier, your KNEE will get easier. I would be open to the old OS, maybe he didnt do sloppy surgery, but he HASNT taken your back into consideration if he has never even asked you about it before. At least my old OS had the decency to tell me I had serious degenerative changes on my scintigraphy scanning (bone scan)I had way back in january. So I know now that my back pain isnt going to get better whilst I'm running around like I am, and nor is my leg pain going to get better as long as I have back pains.
Tonight i feel like C**P. i dont feel like i can FEEL anything, meaning the pain has gone away, but has left me with a feeling of local anæstheisia in the whole of my body, I actually feel numb. I suppose this is better than feeling pain, but the bits that hurt before feel weird and 'heavy', and as if they dont belong to me. This weird out-of-body feeling is strange, i've never experienced it before, but is not doubt the result of the rise in Oxycontin dosage. I was told if the dosage was to go up any more i would have to be in a controlled environment, meaning of course hospital. I dont want to spend my days before my operation in hospital, so I will put up with whatever pains I get now until I get my operation, which hopefully wont be that long now. I also do not feel quite 'with it', feeling myself to be slowed and tired. Even going out to the kitchen to get a glass of water seems like climbing mountains, but I need to drink, its of utmost importance when i get so much medicine. so please excuse me if i make too many mistakes in my postings, I'm feeling quite strange!!!
So, I'll see you all later,
Love beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 04, 2008, 06:16:36 PM
Beda, sorry you are feeling so weird from your meds today!!  I hope your body gets used to it and those side effects subside soon. 

As for my back, I always thought the two were related...now I have a doctor who will actually investigate it.  We'll see how it all works out. 

Today is the first day of taking the hydrocodone all day and it is driving me nuts!!  Nothing like your side effects though.  I am hot and sweaty, irritable, itchy, and tired!!  It is driving me crazy!!!!!  I am so uncomfortable!!  It has helped the pain a little though, so that's good.  I still can't walk right or anything, but it has helped some. 

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 04, 2008, 07:05:44 PM
Farrah - it is a very common side effect from morphine derivitaves to get itching and irritation. it shows you are reacting to that particular one your taking. You need to talk with your doc.'cos theres plenty more other meds you can take that have the same pain relief effect that you probably wont react like that with. I get the same form pethidine and ketogan, both of which are morfica but artificial derivitaves. As is hydrocodone. You could try something else, but you need to go see a doctor. Do you have a GP?? It would be the doc. of choice before you get set up with a special pain doc. you cant continue like you are.
XX Beda
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 04, 2008, 07:12:10 PM
Well for now, I am just going to cut back to one pill every 6 hrs instead of two.  It seems when I take less of it, I have less of a reaction.  I have been taking it at night for a while now and always take an allergy pill and it always helps.  Well the allergy pill is 24 hrs, so maybe it is wearing off too early or something?  I don't have anymore time to go see another doctor right now...so I will see how cutting back a little goes first.  I appreciate your help with all of this.  We both seem to be having rough medicating days!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 05, 2008, 04:47:53 AM
Beda, I was so frustrated with my medication that I called my OS's PA on his cell phone on my way home from work.  He actually answered, but was in the middle of dinner so he said he'd call back in 30 minutes.  I am sure you can assume I didn't get a stinking phone call from this jerk!  I really like this guy, but I am pretty sure he is avoiding me.  I am still debating back and forth on leaving this OS to go to a new one.  Until I make this decision I am going to treat my OS/PA like I am not leaving...so I will be calling tomorrow morning and leaving a message saying that the hydrocodone is making me feel horrible, I am not sleeping b/c of it, I am itching, etc.  I will also throw in that I am depressed (finally) and not sleeping on a regular night without taking so much hydrocodone.  If he offers pain management, I will probably take it, but don't hold me to that b/c I am still thinking.  I have made a list of about 8 questions to ask the new OS's office when they call me tomorrow or Friday.  If I don't hear back from them by tomorrow, I will call tomorrow evening and hope they call me on Friday.  I can't go to a new OS that also does a crappy job of returning calls!  Anyway, my list consists of questions about the nerve block, the future of my knee, and whether this OS plans on taking over from my current OS and monitoring me through everything now.  I have several other questions too...like how quickly do they return phone calls, and who calls back?  Does he do it personally?  Or the PA?  Anyway, meanwhlie, still pretending I never saw a new OS and making sure my current OS responds to me!  This is BS that my PA didn't call me back tonight!!!!  After we hung up the phone, I thought and made a mental list of what exactly to say to him.  I was going to complain about PT on Friday and lots of things!!!  I was ready and prepared!!!  So I will be ready and prepared tomorrow!!!  If he is avoiding me, that is a sure sign of getting the hell out of that place!!!  I e-mailed my old PT that works with my current PT.  He was my PT a few years ago before he started at the current clinic.  Anyway, I can trust him and I told him all that was going on (except the new OS apt) and told him how much I dislike my current PT and how my PA is avoiding me.  I also asked him if my current PT should be pushing me through this intense pain that I am having during the sessions.  So we'll see if he responds.  I gave him my phone number to call me.  I told him I was desperate to get some good advice.  I will call my first PO PT tomorrow as well...we have kept in touch since I left him.  He is anxious to see how all of this goes for me...he has been very supportive and given me great advice through the last few months.  Anyway, time to try to get some sleep now!  I am still itchy, wide awake, and irritable!! It's weird b/c during the day the meds make me tired, but at night they make me wide awake.  Well gotta go to bed now!  Talk to you tomorrow morning! I hope your pain meds are helping with the pain and I hope you are sleeping well right now!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 05, 2008, 10:10:26 AM
Farrah - thanks for the very illuminating post, it gives a good idea where your coming from. I know its hard to say goodbye to the old OS 'cos at least youve got SOME kind of contact going there. But I do feel sure the new OS will help you further, you just need to lay down the laws of the land. It is, after all, YOU who semploying him therefore it would be of common curtisy that the new OS returns your calls. Now we dont have this system of returning calls over here, over here you can never get directly into contact with your OS UNLESS he has given you his private no. And its the fewest that do, but if you ask, you can get through to his private secretary, who can answer the most of the questions, but nto prescribe meds of course. I DID actually get the OS to return my call personally ONCE, thats because I had been rejected at the hospital he had referred me to, and he couldnt understand why and needed to know HOW I was and which hospital he should make the next referral to. As it was, there WAS no choice, and this is what he had to inform me, so it was in his interest as well, but when it comes to pain meds, its never him that gives the prescriptions out. he can make a suggestion, then you take that suggestion to your GP and HE writes the scripts out. In your case it would be the PAIN SPECIALIST when you get that far. it sounds like the new OS is willing to go a long way with you when you told that they spent 20mins in his office after the consult. just to find you the right doc. A lot would have just sent you away and promised to get into contact and never do it. i would DEFINITLY give them a call on Friday if you havent heard anything. You know, you can always ASK for further appts. if you feel unsure about stuff, the new OS sounds like a reasonable caring guy, not like your old one that obviously doesnt give 2 hoots as to what happens. I think your old OS just doesnt UNDERSTAND that your in so much pain, and isnt willing to take things further. its time you got shot of him Farrah, he's not working for YOUR best interests..
Today I'm feeling just as weird as yesterday, only with less pain. its nice not to experience so much pain, I can nearly walk with only 1 crutch today, out of sheer necessity I may add 'cos my arm is killing me still. Its ok if I dont use it, but as soon as I begin to use it, it hurts like mad. its funny how some pains arnt to be shot of, no matter HOW MUCH pain meds you get. i do suppose it would be  a lot worse if i didnt have all those pain meds in my system . Well, Farrah, heres to hoping you make the right decisions, only YOU know whats RIGHT for YOU!! Hope today goes better than yesterday. And by the way, you'r allergic to hydrocodone, so you'll have to seek another doc. to give you a prescription for something else, do it NOW rather than later, before the allergy gets worse.
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 05, 2008, 11:05:51 AM
Beda, I am so glad that the pain meds are helping with the pain!  Sorry it is making you feel so weird.  I have not experienced that before, so I don't know what to tell you about it.  :-\  No matter what, I am investigating both OS's to figure out what they think my future holds continuously seeing them.  Hopefully the new OS will call today, but I am ready to make the call if not.  Here, in the USA, pain meds are prescribed by any of your doctors.  My back doctor prescribes me some, my knee doctor, and my GP prescribe me whatever drugs I need.  My GP has given me the anti-depression meds (cymbalta) and the sleeping pill (ambien).  Anyway, it's time to get ready for a long day at work since I didn't sleep but maybe 4 hrs last night :(  So I will be tired on top of my pain med sleepiness!!!!  LONG DAY AHEAD OF ME  >:(

I will let you know if my PA calls back and what he says.  It really pisses me off that he didn't call me back last night after saying he would!!  I will be leaving him a message at his office and then calling his cell later.  Have a good morning!

Farrah

PS, I added something interesting to my diary today!
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 05, 2008, 04:27:04 PM
Farrah - have read your diary, too bad the appt. with the PT fell through. Hope the new OS calls back, if not MAKE THE CALL!!! I think its poistiv that the other PT is willing to cut in on his collegue, shows some strength of character.
Am feeling pretty out of it today, not 'real' is the best description. But very little real pain as long as I'm lying still. As soon as I walk its there again, but I'll have to put up with it, i dont want to end up in hospital.
The cats are doing great, have been out twice tday and came back safely both times on calling them, so it looks like theyve gotten the idea of what their 'territory' is! I offer them a bowl of their favourite food every time they come back, so, they combine coming back with something nice! Good on them, I'd hate to loose them. But there has happened something strange. yesterday Pusswuss came back with one side all wet, and today Boris did the same! i wasnt aware they'd find any water, I wonder what they've been up to? Cats dont like water usually!!
catch ya later Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 05, 2008, 04:41:42 PM
I scheduled that PT apt with Casey for Wednesday morning.  My current PT, Katheryn, isn't there at that time!  So unless he tells her, she will not even know it.  It doesn't matter though. 

Let me ask you a question...does nerve pain hurt the same as any knee injury?  I am asking this b/c when I wear my knee brace that moves my patella over medially, the pain subsides a little.  The brace helps more than the meds do.  Would that still be nerve pain?  It seems that my patella is rubbing on something and causing the pain and that's why when I move it over and fasten my brace very tightly, then it helps!  Let me know what your thoughts are on that.  Thanks!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 05, 2008, 05:33:48 PM
From what you describe, I would have thought the possibility of a trapped nerve is there. that would explain the relief when your patella is moved, I dont know, but yes, I would think so. I am not an expert on nerve pain, all I know that with my nerve damage I've lost the sensation in my muscles, but thats a direct cut, not a 'bruising' or partial destruction. I would imagine any damage to a nerve would be enough to create terrible pains, just think what its like when you get toothache, thats because the nerve is exposed or being 'touched' by something. I would dare to bet you have nerve damage.
xxB
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 05, 2008, 05:48:15 PM
Hello Beda, I am sure you are right.  I just can't find enough research about this type of nerve pain to believe it yet.  I have found info on tingling and numb nerves, but no intense pain like this.  I don't want to settle for this as the problem if there is a chance it could be something else, ya know?  I am sure having those nerve blocks or whatever wouldn't hurt to try.  They will either work if it is nerve pain or not work if it isn't, right?  I still have that 4th opinion scheduled for the end of June.  I am keeping hold of that apt just in case!  Well I hope you are laying down and not moving too much so you can get some relief :) 

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 05, 2008, 08:11:09 PM
Farrah - I havnt been doing anything today OTHER than lying down, 'cos  just CANT!! I've been looking at the computer at intervals, but do feel a bit brighter this evening. I took some medicine against the side effects, and it really has worked, so I think I can get over it all. I have it worse about an hour after i've taken my morning dosage, which is the highest dosage of the day. i can just see that by the time i go to bed this evening I've brightened up sufficiently to keep awake all night long, but that wont do as I need to have a 'normal' day tomorrow as well. Today was a bank holiday, it was the day where they celebrate that the ground laws of the country was laid down, so its a holiday. the danes take every advantage to have a day off. The next holiday will be summer holidays, where the different industries will hold closed, This last from mid june to mid july, where NOTHING happens anywhere. Even the doctors close for summer holidays. Theres a rota for emergencies, but normal consultation is closed. I had hoped my operation would happen before the summer hols, but I dont think theres much chance of that. AND the strike isnt over YET!! Now I need to rise from the sofa and take a shower, it feels like climbing mountains, but I need to do it, so I'll catch you later,
Love beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 05, 2008, 08:27:37 PM
Hi Beda, sorryou that the simple task of going from one side of the house to the other so difficult for you!  I can't imagine being in your shoes!!  I really wish I could do something for you to make you feel better and to make the strike end!!!  Just so you know, I am always thinking about you.  You are so great and helpful to me and I wish I could do the same for you. 

So as for me, still feeling the side effects of my meds too!  Still no help with pain.  My PA hasn't called back about another option yet.  I continue to take it just so they have no excuse for me not "feeling" better.  I follow their recomendations to a "T" just in case they use it against me. 

So I just called my new OS's office to get some info out of them...had to leave a message and will probably get a call back later this evening.  They said calls before 4pm are returned the next day!!!  That excites me greatly!!  So chances are that both my new PA and old PA will call at the same time!!!  Wouldn't that be my luck??  Anyway, on my message to the new OS, I told him I hadn't heard back about the referral to the Pain Specialist.  I said, but the main reason I am calling is to ask 8 more questions about the nerve problem and other things.  So I specifically asked them to call me back with the name of the diagnosis.

Get some sleep tonight! Will keep you updated as info comes in!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 06, 2008, 08:21:53 AM
Farrah - I think its good you have these questions you want to ask the new OS/PA I dont really know the full functions of a PA because over here we dont have them, either its the OS or nothing. The NURSE can answer some questions, and does, but as far as prescribing etc it has to be the OS. Now I did post on your diary, I do NOT mean to offend you at all, I just have to wonder why you feel so much loyalty to an OS that hasnt attempted to help you out of this mess for 5 months now. To be honest Farrah, he may be one of the best OS's around, but as far as his work is done, he's finished. Your osteotomy has healed, and that is what he set out to do for you. Now you probably have potential nerve damage, and that probably did come creepng up on you, specially since you have had problems with your back for so long and the two are undoubtably tied together. i think it would be foolish to dismiss the new OS at this point in favour of the old OS. Now you had issues with the PA. These have been resolved hopefully, so you have a better working relationship there, thats goes. You are allerigic to oxycodone, so you need something else. maybe the fact that you were allergic to them meant you didnt get their full pain relieving qualities?? I'm guessing here, but it could be possible. I know that I am allerigic, (VERY) to one type of synthetic morphine called Pethidine. If I get pethidine I get so sick, and it DOESNT have ANY effect on pain, it just gives me loads of other horrible symptoms I CANT and wont live with. maybe its the same for you with oxycodone. At least you PA can now prescribe you something different know he knows the problems your having. Since your OLD OS never mentioned anything about your back probs. then I think that is another plus to the new OS, at least hes willing to see the BIG PICTURE which is of all importance here. My thoughts are, that whatever OS you decide to hold to, maybe BOTH of them, then you need to get to a PAIN specialist. It doesnt matter which OS you decide to go with, get them to give you a referral.  cant tell you what to do, and you shouldnt listen to what I have to say and think that I think that only what i say is right, 'cos I dont think that at all. I just think that its time now for you to move on. hell girl, I've been there before myself. I had the same OS for 15 years and he KEPT ON making mistakes on me, and I, blindly, out of a false sense of security b/c I had been with him for so long, went along with everything he said and did, Now i find out, 15 years too late, that he WASNT doing what he should have done. he should have admitted defeat after the second TKR went wrong, not the 6th. He wouldnt admit defeat, and neither will your old OS, its not in doctors natures to admit when their beaten. But maybe theres been nothing wrong with what your Old OS did for you, but you have a NEW and DIFFERENT problem now, which HE cant help you with, so just MAYBE its time to do a change. I would hate to see you go the path of destruction 'cos you felt you had to be loyal to you OS. Maybe you can get these two OS's to work together, who knows?? Do keep your 4th opinion appt... open. I think its well worth the try, then attempt to get more answers.
Remember, its NOT that I think its only me thats right, I just have learnt a LOT through mistakes, and i would hate to see you go down the same path as i went down - it ends up with TKR and your TOO YOUNG for that, and under no circumstances should land THERE.
Hope you have some telephone calls today!!
lots of love, Thinking of you,
Beda xx
Title: Re: Bedas Pre-Op diary
Post by: tanyap on June 06, 2008, 09:03:36 AM
Hi Beda,
Well this morning I thought - only 1 week til Bedas appointment for measurements!!! wow!!! Im so glad it is coming along quickly now - I know you have waited such a long time for this, but the past is the past and now the ball is rolling and that is the important thing.
Are you going with your mum to this appointment? When is she back from her holiday? I hope someone goes with you - it can be hard to go to these things alone, much easier to have a friendly face with you. One nice thing is that you know exactle whats happening on next Friday, I always think appointments are worse when you dont know what will be said or where they will want to go with you or if they will really listen to you and take on board what you say. But you have a clear path now so none of that worry about 'what if' for you, this measurement part is just another step on the journey, you can be patient and serene and just let them get on with the things they need to do, no more having to convince a doctor that you really need help!!! So the hard part is over - except for the waiting, and then when you have the surgery I believe you will be SO relieved that the prosthetic is gone and not hurting with every breath you take that although there will be post op pain it will be so minimal and easy to control compared to what you have now that you will think its fine!!
The other nice thing about post op is that you actually see improvement all the time, it hurts today, it hurts less tomorrow and so on, there is none of this chronic unrelenting pain that gets worse and worse the longer it is left alone. I know I have been neglecting your diary a little of late as Ive had a lot to share of my own but now my problem has been banished to the mists of the past (hopefully) and I am on the road back to 'normality' of sorts. I have still been sending good thoughts to Rigshospital, yesterday when I was in the hospital I sent extra ones thinking that the medical building around me would re-inforce them for you!!
Its only one more week Beda til the next part is behind you!!! Yippeee!!!!
xx
Tanya
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 06, 2008, 10:50:12 AM
Tanya - thank you for your never failing optimism!! ;D yes, only 1 week today and i'll be off to Rigshospital to get the CT scan which should reveal all!! ;)  I really do hope that they have that rod 'in stock', but I doubt that the op will be before the summer holidays now, its geting too close, and what with the strikes etc. yes, the strikes ar'nt over with yet. :'(  The government say its a legal strike and wont intervene, but I think its about time the government DID something, because the longer they let things stand still, the longer the waiting lists grow. As it is, one of the regioins in Jutland have reported that it will take them up to 1½ years to get on top of the waiting lists that have piled up during this strik >:( - I just feel sorry for the people who are waiting for routine operations like TKR and other non-urgent stuff. Not that a TKR cant be urgent, because it can. someone waiting for a TKR or THR may be in TERRIBLE pain whilst they wait their turn. Then the government wonder why there has been an increase in the use of the private health system, which is beginning to take up more and more room in our health services here in DK. ??? We have this 'treatment guarantee' which I think I've told you about before. if you dont get seen in for 3 months in the normal regime, then you can go private at the cost to the public health service. Then they wonder why they are having to pay out so much to the private health system. ??? Its because the public one DOESNT WORK!! It's not exactly rocket science to figure out that one is it?? ::) ::) i have an outstanding case with the public health system. I had a bleed the other week after 2 years of not bleeding, and the doctor has a suspicion of something 'nasty' going on. I am to be seen ASAP in view of the seriousness of it. I went to the doc on wednesday, so I'll be interested to see just how long I'm going to have to wait for that 'acute serious' problem to be resolved. They say that if theres a suspicion of cancer, it goes very quickly as they're not allowed to put this kind of thing off. Let's see!! ??? :-\

Yes, i do have  a clear path of what my treatment involves now, so theres no more guessing games. I know what they are working towards, and I know what I'm going to have done, so I'm not anxious. I WILL be nervous when it gets up to the date of operation, I do get very nervous even if I know whats going to happen.  :o :oEach time I had a TKR I thought I knew the ropes, but got just as nervous each time. :o i have always been afraid of loosing my mobility. Now I know what I'm going to loose, so there will be no surprises, but i will be facing a whole new life, hopefully with less and less pain. I dont really know what life is going to be like with a stiff leg, but will be pleased by just the fact i wont have any pains. It will be  a long time before i am rendered pain free, but i will be looking forward to it, and getting off of all this morphine stuff. ;) :D

Talking of which, I dont have so much pain today, so the pain meds are working, ;D but I still do feel a little 'out of it', spaced out, somewhere between here and space. But as long as I sit still, i can be in little pain, but as soon as I try to move its there again, strong as ever. I have even tried walking with one crutch, i can just about manage to hobble along. One thing I'm over the moon about is, NO STAIRS!!!!!!!!!!! ;D ;D ;D :D ::)
Well, bless you Tanya for all your positive thoughts, catch ya later
Love Beda xx :-* :D
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 07, 2008, 04:34:06 AM
Beda, I am so happy for you that the pain meds are helping if you don't move!!!  That's better than nothing, right?  I am sorry I wasn't around much today, been a very busy day.  When I came home from the doctor, my laptop was messed up and I was so tired, so I took a 3 hr nap.  Then I got up around 5 or so and used my desktop computer to get on KG for a short period of time b/c it hurts to sit there for long.  Usually I have my legs up on the couch with the laptop on my lap.  So I never was able to get on many threads today.  So I am at my mom and dad's lake house right now using my mom's laptop.  It works.  I have lots to report on my diary.  Just too much to type out again. 

I am on a new pain med that is supposedly stronger than darvocet...we'll see.  Since I was allergic to the hydrocodone, they didn't want to give me oxycodone...we'll see about that!  They better give me something if this new pain medicine doesn't work...it's called tylenol #3.  I just took one a short bit a go and it's too early to notice a difference.  I will be taking it every 6 hrs starting tomorrow though.  Anyway, it's 11:30pm here and everyone is already in bed...my turn now :)  I hope you have a great day tomorrow!  I will probably be on in the morning again.  Have a good one!! 

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 07, 2008, 07:43:13 AM
Farrah - Glad to hear that you seen to be more settled now about your future . Thats half the battle having a plan, I remember when I had no outlooks to any type of pain relief or treatment simply because I couldn get an OS or a hospital to take me, i cried day and night out of pains and frustration of my situation. As soon as the ball got rolling with rigshospital, it made everything better to be able to tolerate. Not that he pains got any less, 'cos they dont get miraculously better on their own - but .... when everything else is in place where you know where your going, it helps a good bit along the way. i am glad you are with your mom..... arnt you?? Then maybe you dont need to get up and run around after everything yourself. My mom came back from greece last night, so I am happier now, she can help me a bit more. Yes, the pain is getting better, I am not quite getting as many side effects with my meds any more now as long as I take them with food. I am alright as long as I'm still. so I guess I'll have to stay still for a while, at least with mom back now I dont have to get up for everything to do myself. I am sorry to hear of the diagnosis RSD. But with a good pain management doctor he CAN help you get through this. I am so glad to hear you havnt ditched the new OS and glad to hear that you are going t the 4th opinion, and most of all not burning all your bridges, until youve investigated and been down EVERY road. I think you are being very sensible and wise. Well done. Good to hear your not going to have that torture of PT, at least not yet. No PT should be THAT painful, so thats good too. I hope the new meds work well on you. Remember to take it regularly every 4-6 hours so you get coverage all the time.
Well, today i will be going to the store with mom, we need to get some groceries, and then mom has talked about she wanted to go to the beach, but I'm not very keen because its very hard walking on crutches in the sand. But the weather is fantastic, so we ought to enjoy the summer weather whilst weve got it, you never know here in DK how long youve got summer for. Hopefully for a long time yet. We had record temps in May, there hadnt been measured so much sunshine since 1929 when the first records of weather began to be written down. And it hasnt been so HOT since then either. Weve been having some really freak weather situations, they say its due to global warming??? Whos to know, maybe there some truth in it all???well, have a good saturday, you dont have to work do you??
Love Bedaxx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 07, 2008, 03:12:00 PM
Hello Beda, thanks so much for your support!!  I was getting worried that everyone was thinking I was making bad decisions.  I am not suppose to worry about what other people think, but I don't want people to think that I am purposely giving myself pain by not accepting what this other OS says.  So your support means a lot to me since you are probably the biggest pro here!!  :)  I really trust your judgement.  Anyway, i took the new meds again almost an hour ago and they definitely make me kind of dizzy and tired, but I don't have to work today, so that's okay.  I am going to be sitting all weekend long!!  I will be either sitting in a recliner chair or sitting on the dock by the lake or laying out in the sun by the lake.  The new pain meds help a little bit, but I haven't been up much to really test it out.  I didn't sleep much last night despite taking 1 of the pills before bed.  The pain was so bad all night long.  I e-mailed Casey (my old PT that works with my current PT).  I told him about the new opinion and the RSD.  I confide in him greatly, so hopefully he doesn't take it badly.  I trust that he will not say anything about it to anyone.  I am still awaiting a response.  He will give me some good advice on how to bring it up with my PA or OS.  I seriously don't think I haev RSD after doing some research on it, but it wouldn't hurt to go see this pain specialist anyway to help with pain.  So no matter if they agree with the new OS or not, they can help me.  So that's good.  I doubt this last Euflexxa injection will do the trick as my PA is hoping it would.  Oh well...it was worth a try, ya know??  The injection yesterday didn't hurt at all and I was only a little bit sore.  That proved that last Friday's horrible excrutiating pain was from PT 100%.  I thought maybe it was so bad from PT and the injection, but from how little injection additional pain I had yesterday, it proved that last Friday's pain was all PT.  What's funny is that my PA told me on Thursday not to go to PT on Friday and that he would tell my PT.  Well when I arrived at my apt for the injection, the receptionist asked me if I was suppose to have PT today.  I asked why she was asking and it was b/c my PT was looking all over for me!  I kind of thought that she deserved it!!  :)  I am seriously not too keen on her anymore.  I am very excited with my apt with Casey b/c he will have time to talk to me and see where the pain is and adjust my exercises some.  I love the fact that if it doesn't work out, then I can cancel all my PT until my next OS apt.  I may just talk to Casey about making him my permanent PT.  I am sure Katheryn wouldn't care b/c she is so frustrated with me anyway.  Lately everytime I see her, she doesn't have a lot of time for me.  That's part of the frustrations beside the pain. 

I am glad your mom is back to help you out!  I am at my parent's lake house and my mom and brother and husband are here too.  I don't have to lift a finger when everyone is here.  I can just sit around and everyone gets things for me. :)  I normally don't like that, but when I am in pain, I do!  So did your mom enjoy her trip?  I can't imagine going to the beach with crutches!  I can't even go down our little hill at the lake house with crutches...and that is just dirt.  I just hobble down slowly with my leg straight.  I can't walk with a bent leg at all...too painful!!!  That's why I have to stick wtih the crutches.  OH!  My new OS didn't want me doing therapy for several weeks! I think I like this new OS!!  The other good thing about them is that they call me back and answer all the questions that I have!  I called them THursday and got a call from them Friday morning.  Then I called them back and left a message with some of my questions and the lady called me back with answers to those and wanted to write down any other questions that I had.  So she then called me again during my injection apt and left a message with the other answers for me!  I like that!!  She also said if I have any other questions to call anytime.  So that's great that I have some communication with them.  We'll see where I end up in a few weeks.  I hope if you end up going to the beach that you have a good time.  I am sure it will be nice to have a change of scenery.  I just don't know how you do it staying home all the time!  I would just go stir crazy!  During my 2 weeks off from surgery, I was going nuts by the end of the first week.  I was in tears nightly just b/c I wanted to go out.  So my husband always helped me get in the car and we'd go for short rides here and there.  So that was nice.  Anyway, they are wanting me to get down to the lake with them, so I had better get going before it gets too hot!  It's suppose to get to 90 degrees farenheit today!! I will check back later!!  Have a great day!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 07, 2008, 04:28:47 PM
Well, Farrah - so glad that finally your getting on. It really sounds positive everything you say about PT and your new OS etc. I am so glad for you, that now you for the first time I've known you SOUND genuinely positive and decided. I think you are making the right decision asking all the questions youve got and harvesting the results, and making a mental note of EVERYTHING that happens arround you. Yes, its great when theres others around to help, I have it much better now mom has come back, we didnt go to the beach 'cos its just too hard to walk in the sand with crutches. But maybe its going to get so hot here that I just MUST dive in the water no matter what!! I have been trying to figure out how to post some pictures of my cat (the other one, not Boris) but so far it hasnt worked for me. Do you know what the golden trick is? its not how I usually do with clip and paste. I took some real cute pics of pusswuss today, and I wanted to show you what hes like 'cos hes kind a special 'cos hes a bit wild. hes AGOUTI colour, and blends in very well with the background of the nature. Never mind, Ill discover it in the end.
Hope you have the rest of the weekend in relativ peace and quiet and not too much pain! Glad the pain meds are working. As for the diagnosis RSD i really dont know that much about it to pass a qualified idea about it, so I'd rather not say anything at this point in time. I'll do some research myself and see what i come up with. i suppose ANYTHING can be a possibility when the most 'normal' things have been exhausted. So if I were you I wouldnt worry too much about it  this weekend, take a weekend FREE!!
Lots of love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 07, 2008, 07:30:39 PM
OK still hasnt been a sucess with putting my pics in, think I must be doing something wrong, anyone got any suggestions?? Otherwise I'll post them on my website.
Loe beda xx
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 07, 2008, 08:29:42 PM
Farrah _ have been doing some reading up -study on RSD. I think this is a very serious diagnosis to come to, all in the run of one OS appt. I think you need to, if this OS suspects RSD, needs to do a LOT MORE investigations and tests to support his THEORY, and you have to ask yourself honestly, do you have the symptoms?? Only YOU will know from your OWN experience what the pain is like, is the skin hot/cold, is there other outward signs of change, and many of the other symptoms there are to make a positive diagnosis. Now you say to me you dont think it is RSD. Then you must base this on some facs, only YOU know what YOU experience. I too would be very reluctant to engage this line of thought, there are other types of nerve damage, and a nerve block would be a good idea to see if it helps. Hell, I have NERVE DAMAGE, but I DONT have RSD. Not everyone with nerve damage has RSD. But one thing is sure, you have the pain, and you can be treated with pain meds, and maybe you need to be on pain meds for a long time, but there is a possibility that if a nerve block works, and takes away your pain, they can make it permanent by doing a small op and removing and blocking the nerve thats causing the pain. So dont get all worked up about RSD at this point in the game, theres a LOT more ground to be covered BEFORE ANYONE can come up with that diagnosis. take it easy and take a good long deep breath, and consider carefully what youve got and what you havnt got.
Hope this helps some
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 08, 2008, 01:38:04 AM
Hello Beda, as for posting pictures...first, they can't be too large of a file.  If it is, you can only post one at a time.  If you post to large of a file, then your message in your post and the attachment get deleted.  So to attach a file, you can only do it during the reply part of posting.  So you have to first press "reply", then click on additional options under the text box.  Click on the browse button and find your picture and press okay.  Then once your message is complete press post.  Sorry I didn't tell you this earlier. 

I don't think I have RSD b/c it seems to me the only symptoms I would have is severe pain in the surgery area, tenderness all around the joint, and hot knee (I assume it is inflammation), and a large tingly area (probably due to surgery).  I think that the hot knee and tingly areas are normal.  We'll see.  Obviously this OS didn't just make up this diagnosis.  He had to notice something to say it.  So we'll see.  The new pain med is working pretty well!  I have been very busy today and not in too much more pain!  So that's good!  Well I hope you had a good day and we'll talk tomorrow!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 08, 2008, 09:22:49 AM
Farrah - I think my picture files are too big, so I have tried to downsize them and did what you said, but it still didnt work, so I'm going to post the pictures I took of Pusswuss on my web site. At least here you can see them better, and I can open a new chapter in my website called 'Pusswuss' Hes such a pretty cat, agouti in colour and hes seen a bit of street life, but hes a sweetie and VERY loving. And VERY hungry! Both the cats are doing real well, they are coming home just fine after being out for some hours, they know where they live, AND where their FOOD comes from!!! Both my cats are VERY hungry ALWAYS. Boris needs to go on a diet now, hes such a little piglet!
Well, Farrah, I'm glad to hear that your pains are easing, and that you dont think you have RSD. You know, my leg has a temperature change, its ALWAYS warmer than the other, and is VERY sensitive on the scar, and its been 2½ years since my last surgery. I have a lot of the symptoms of RSD, but know I dont have it, 'cos i wouldnt be like I am today if I had got RSD for years ago. so you have a long way to go before they can make THAT diagnosis. I hope for you you DONT have it, of course, and we must be open for all posibilities.

It good to hear youve been swimming and having fun wth your dogs, isnt it just great in the water?? is the water cold? I hope your doggy stops throwing up, the best thing you can do is to starve him until he stops throwing up, and then give him BOILED water to drink, and make sure the water isnt icy cold because its cold water that makes them throw up. He may also get a bad stomach (diarreah) 'cos of the impurities in the lake water. If he does, give him chicken and rice for a few days until his tummy settles. i would never let Sandi drink the lake or sea water because of the same reason, but its VERY hard to stop them because some dogs lap it in atomatically as soon as they get in the water. but at least the dogs have enjoyed themselves, thats the main thing. I miss my Sandi SOOOOOOOOOO much, its been 2 years since she died, and i still cry about her!
well, off to ea bacon sarnies for beakfast, so catch ya later
love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: kathat on June 08, 2008, 10:23:55 AM
Hi Beda,

I have to crop my photos pretty severely in order to get them small enough in bytes to post. A standard photo from my Nikon SLR is over 2Mb. They have to be only 128Kb (or thereabouts) to be able to post here. I find a photo taken from a distance and then crop lots to make it a close up!!

Farrah - You are taking the same thing I have been given before, except we call it Panadeine Forte instead of Tylenol #3. You can take it as often as every 4 hours, but you can't exceed 4g of Acetaminophen (Paracetamol) in 24 hours, so keep track of how much you are taking. Ours contains 500mg acetaminophen per tablet, which is 8 tablets max per day, but yours only contains 300mg, according to my research, so you can take more doses if needed. But not too often, as the codeine has it's own yucky side effects (so keep the bran handy  ;D ). The fact that the pain meds are working is good. If you have a nerve problem the pain would be quite resistive to opioid pain killers. A different class of drugs is usually used for relief of nerve based pain. I sort of agree with you that RSD doesn't sound like it matches your symptoms, though it should be considered rather than ignored, as early treatment has the best effect. I hope the next opinion (#4 is it?) offers some more insight. Good luck.

Kathy
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 09, 2008, 12:35:19 AM
Hello Kathy and Beda,

Beda, I can't wait to see these images of your cat!  I will have to go find that website again since I didn't save it from before.  I am sorry you miss your dog!  I can't imagine losing mine.  They are what keep me happy always!  Today they have been so tired from playing all day yesterday that they have been sleeping on me or near me!  I bathed them both today for the first time since surgery.  I can't squat next to the tub, so I had to hunch over and kill my back :(  At least they are clean!  Aury would go in the water and when she'd get out, she would litterally roll around in the dirt to dry herself off!!  What a mess!  Marshall doesn't do that, so he was a little cleaner.  He was so much better this morning.  No more illness!  :)  I was very worried about him yesterday.  He was so pitiful too!  He was literally peeing lake water...perfectly clear pee! GROSS!  He peed on my husband then later on me!  YUCK!  Oh well...he is my baby.  My parents don't let the dogs in their lake house, but since my dad is in China, my mom let us hold Marshall in our lap to comfort him.  He slept the whole time except when he peed on Matt (my husband).  Haha!  Luckily it only soaked into the towel and not anywhere in the house. 

Anyway, I hope you had a good day.  I am sure life is a little better now that your mom is back.  Has she told you any exciting stories yet?  Do you ever travel?  Do you have a wheel chair you could go places in?  I know you say you use crutches, but I can't imagine that is comfortable for long periods of time.  I still haven't heard back from my PT about what I told him with the 3rd opinion and all.  I am going to call insurance tomorrow and see what I can do about going to see the pain specialist earlier than planned.  I just don't want them to say they won't cover things since I am overlapping so many doctors with same injury.  I will let you know what they say.  If I do have RSD, it does need to be treated early.  If I don't, some real pain relief would be nice.  The ice makes my knee feels worse, so I haven't been using it as much lately.  When I am desperate for some type of pain relief, I will use it, but then I regret it.  I iced earlier today and then had to lay around for 2 hours to allow the pain to ease up :(  Tired of it.  The pain meds are still helping better than anything I have taken yet.  I have taken them ever 6 hours as my doctor directed.  I can't imagine not taking them now since I have been a little more active b/c of them.  I am still worried about PT on Wednesday.  I know it will be a little easier than usual since it is more of an evaluation than a normal PT session.  I love my old PT!  He is nice and understanding!  I hope I hear back from him before Wednesday!  Anyway, time to cuddle with my babies again!  I have been sitting around all day long and it has been such a great weekend!  Floating in the water for 3 hours yesterday was like heaven!  It was so cool when Aury (my dachshund) floated around next to me on top of a life jacket.  She was so scared at first until she realized she was sitting on something. One time yesterday, she was too close to the edge of the dock and fell in!  Luckily I was right there to allow her to swim to me, otherwise she wouldn't have known what to do.  It was her first day in the water and she was so scared!  Anyway, I'm getting off now :)  Talk to you tomorrow!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 09, 2008, 09:41:22 AM
Farrah!! - At last you sound HAPPY!! I'm so glad the pain meds are kicking in and that your getting some relief. its wonderful when it works, isnt it? I am getting more used to my pain meds now and dont have such gross side effects. I'm getting more 'with it' again, and cant feel that numbness any more, but they take my pains nicely to some degree. anyway, its better than it was before. Now on friday I have this appt. for the CT scan, I just hope it doent get cancelled because of the strikes etc. That would hardly be to bear if it got cancelled, I need my op ASAP, and I cant get it before they take the measurements. I think their going to look at the physical shape of my nerves in that leg, due to the damage I have to my femoral nerve. This is why I am having a CT scan with contrast.
I dont have  wheelchair, as our house is not very wheelchair friendly, theres things like doorsteps etc. that get in the way, and 'cos its an older house, some of the doors arent that wide. I dont go out a lot, which sometimes drives me CRAZY, but thats my lot and I have to suffice in where I can go with mom in the car. I dont know what its going to be lke in the car when my leg is stiff, I dont know if there will be enough room in the front seat to accomodate me, but if not then I'll have to slide in onto the back seat and sit across!

WE had guests last night and by the time they had gone home and we had cleared up the kitchen, it was 1.00am so I didnt get to bed before 2 so I am a tad tired now, so I think I will have a nap! So catch ya later
Love beda xx
Title: Re: Bedas Pre-Op diary
Post by: Sore knee on June 09, 2008, 03:30:04 PM
Beda

been off for a few days and thought I'd pop in to say hi and see how you are doing ? Hope last night was good fun, sounds like it.

Farrah, I am going to catch up on your diary but this sounds positive, if the pain meds help at least you can have a better quality of life. I am so pleased.

Hi Kathy, will come and find your posts too.

Love to all  :-*
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 09, 2008, 04:33:59 PM
Hi Guys! Have had  a busy day today doing stuff with mom. We didnt go to the beach today b/c the weather isnt so great as it has been, but its still warm but they are warning rain. We bought some capillary boxes to grow our tomatoes in  and then we bought some MORE pots for plants for our yard. its really nice out there now, with lots of coloured flowers, and we have 12 different herbs growing, so that makes making food fun! Last night I stuffed a duck with orange, cinnamon, fresh sage from a pot outside and garlic, and cooked it slowly in a roasting bag, it tasted heavenly!! The meat was soft and well cooked, and you could detect the whole cinnamon in it. Most people associate cinnamon with sweet things, but it does nicely in savouries as well. We got some delicious sauce out of the offal from it, and made some salad with apples, oranges, lettuce, onions, walnuts, maize and peas with pine nuts, it tasted really good. them we made some Tzatziki. For dessert I made fresh strawberries dipped in chocolate,mmm heavenly!! that was or menu for our guests. I love entertaining and making food, so mum does all the running around in the kitchen and I did the actual cooking, so it worked well. I have an office chair in the kitchen which is on wheels and can pump up and down so I can sit by the stove or sink or worktops at the right height.
Farrah - good to hear your doing better. I havnt posted the pics on my website yet of Pusswuss, will do it tonight. I'll let you know when I've done it so you can have a look.
Have a good day fr all,
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 09, 2008, 04:56:52 PM
Hello Beda, your meal sounded delicious!!!  I have never had duck before!  Chocolate covered strawberries are one of my favorite desserts!

As for my day...good so far.  The day has flown by since I have been so busy at work!  Still have all the same pain.  The pain meds don't seem to help as much during the work day.  They help a little bit, but not much.  Oh well.  A little is better than no help I guess.  I can't wear my brace right now b/c it caused a heat rash and I am trying to get it to heal before I put it back on.  The weather has been sooooo hot lately that it is so difficult to wear my hot brace.  I wear it for short periods though.  I still need to call insurance to see what I can do about going to pain specialist earlier.  A proper diagnosis would make me feel better about this RSD stuff.  I still haven't heard from my PT yet..I will call him in a bit I think. 

Farrah
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 09, 2008, 05:10:32 PM
Here are some pictures of the one of our trips to the lake house!  So fun!!!  I wish I was there now!

Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 09, 2008, 05:12:12 PM
Two more pics....
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 09, 2008, 07:19:16 PM
Joanne, thanks, I'm doing OK considering everything. I have gotten used to the rise in dosage of my pain killers and no longer feel spaced out - so much at least!! :D Thank you for showing concern, its always nice to hear peoples support.

Farrah - looks like you have a LOT of fun up at the lake House. I wish I could have a bit more fun, but I must have that as a rain check I think!! Tonight weve planted the capillary boxes and the other pots, so the yard is looking good now, and  we sat watching the bees, and saw that one particular bee kept on going up the bottom of one plant pot, carrying leaves! So we were afraid they were building nests, so we didnt want that, so we dug the plant up and looked down the bottom of the pot. Down there layed the most perfect 'cigars' rolled of all perfectly shaped and sized leaves, with eggs laid inside of them! We of course had to get rid of it, but felt very mean to spoil this perfect work of art in nature, the small rolls of leaves were just SO perfect, a person couldnt have cut them out more precisely. But we didnt want a bees nest in the yard, it wouldnt be wise when it gets later on in the season. They wernt true bees, but insects that look a lot like them. i dont think they sting.
So the sun goes down. I dont think that tomorrow will be such good weather, the forecast is rain, and we need it. it hasnt rained for about 3 weeks now, so everything is very dry. I have to go to the docs tomorrow, just to check about my cholesterol that was up last time. it sucks to get on a bit in age, God knows why my cholesterol was up, I dont overdo the fats I mustnt eat, know all the rules of the game. Being a chef I have learnt a lot about dietics, so I know what I need to avoid. i have even worked as dietician in a hospital before, so its not as if I'm not aware of the cholesterol problem, what the heck!!

Hope everyone has a good afternoon and night,
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 09, 2008, 07:26:44 PM
My cholesterol is super high too....thanks to genetics...my dad's is high and my grandmother on my mom's side too.  I am suppose to be dieting, but with all this crap, it has been too hard.

Glad you discovered those bees!!  Also glad you are feeling better!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: tanyap on June 09, 2008, 07:45:34 PM
Beda - only 4 more sleeps before your appointment!!!

Im glad you are used to your painkillers now - at least you know the dosage will be coming down some day in the future instead of always going up eh?

Very wise to get rid of the bees - they will find somewhere else.

genetics is the worst for cholesterol!!! mine is ok (i think) but there are other nasty things through my gene pool - like bad knees!!!

Farrah I love the pics!!
xx
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 09, 2008, 07:57:43 PM
OK Guys - my docs says the thing with my cholesterol is genetics too. My dad died young of heart disease, my little brother had a heart attack at 40 and has had a stent put in, so its in the genes - unfortunatly.
Since I cant seem to get the picture function to work properly for me, I have posted the pics of Pusswuss on my webiste . under the chapter called . guess!    PUSSWUSS!!! hes a lovely cat, very special in his colours, and  you cant see him when hes out in the garden - he blends in with the dirt so hes well camouflaged. But hes lovely, very loving and always wanting to cuddle. hes won a special place in my heart, So heres the web site address again for those who missed it:

www.bedasatelier.dk (http://www.bedasatelier.dk)

Hope it works.
Love beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 10, 2008, 12:47:27 AM
Hello Beda, your images of your cats are soooo cute!!!  I forgot to tell you that I rescued two dogs in 2 days over the weekend!!  Here are the stories:

Dog 1:  I went a pet store to buy my dogs some food, and some high school students walked out holding the cutest little puppy!!  I asked about it and they offered her to me.  They said they found it wandering on the side of the road.  I said I couldn't have her b/c of my two dogs and my husband would kill me!  So they told me they were taking it to a particular animal control place where they kill dogs if they aren't adopted in a short period of time.  SO I didn't want this puppy to get killed, so I went against my husband and took the puppy!  I knew I couldn't keep it but figured I could help find it a loving home.  This puppy was adorable.  I put her in my lap while driving and she just laid down and put her head on my chest and looked up at me.  Anyway, I had to get rid of her ASAP!!  So I took her home so I could change into some cooler clothes to take her to the dog park to find her a home.  She followed me all around the house!  I put my dogs outside otherwise Marshall  would have killed her.  So I took the puppy to the dog park and saw one family and told them about the predicament and they took her.  They said if they couldn't keep her they would find a home for her.  So I told them not to take her to that animal shelter and only take her to this other one where they don't kill the dogs.  So that's one dog that I saved!!

Dog 2:  We were at the lake house and our next door neighbor was there too.  They let their dog off the leash and he ran off.  He wouldn't turn back! So they said he will eventually be found by someone.  Well while we were all playing in the water, I heard some splashes nearby.  I looked over there and it was their dog!!  So I swam over there and called his name and he swam over to me.  So I grabbed him and swam towards the neighbors.  Then my sister came over in the kayak and took him in with her and kayaked over to the owners.  That was so funny!! 

Anyway, so my pain meds didn't help much today!  My knee brace helped though once I put it on.  I used it during the last 30 minutes of work and then the whole drive home.  It helps!!  I wish I could wear it 100% of the time, but the material irritates my skin from the heat I guess.  My skin starts to itch shortly after wearing it.  The material is just not breathable.  Horrible for our summer heat!!  It has been in the mid-90s farenheit!  Usually it doesn't get that hot for another month or so!!  GROSS!!  It is also very humid!  I am a horrible sweater and now that I am on 5 meds a day, I sweat even worse!  So I can pretty much just stand outside for about 5 minutes and be pouring sweat!  So disgusting!  Crutches make it worse.  Anyway, I am going to go ice my knee now since I haven't had a chance all day.  My work day was extremely busy!  It helps the day fly by!  Every 6 hours, I took my medicine and it made me so tired and groggy for about 30 minutes!  Those 30 minutes were difficult...to stay awake, I munched on stuff until the fatigue went away.  Well I hope you are still feeling okay!  Have a good day tomorrow!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 10, 2008, 08:51:30 AM
Hej farrah!!!!(and others of course). Ja, Pusswuss is a cutie, I love him very much, hes such a fragile little soul, very loving, and very worried that hes not going to be let into the house again after living a life of being an outdoor cat for 7 years. I took him in from my mums house and wormed him and de-fleaed him, he got castrated and now hes on the same status as Mr. Boris, a luxury cat having all the luxuries of food whenever he wants it, a nice place to sleep, Ja, he thinks hes died and gone to heaven. its quite clear hes enjoying being an indoor cat now, he never goes far away from the house when the cats go out, and always comes just when you call him. So that the CAT I saved, I havnt saved any dogs as yet. Over here people have a very different attitude to dogs than they do in the states, you never see an dog kept in a yard over here in a dog house, they are ALWAYS in the house with their owners, and you never see strays over here. There are internates, but theres not a LOT of dogs there, and if you want to get a rescue dog, it costs a LOT of money, so over here keeping a dog is a well considered decision. Qute the opposite with cats. Theres a very large population of wild cats, and there are some people who take it on themselves to feed the wild cats. Every so often the cat catcher comes and catches them, this is a bit rough, but I know the spay the females and castrate the males, and put them out again. Then they cant former themselves, so it keeps the flocks nos. down. They dont ever put them to sleep unless they are sick. Pusswuss came from SOMEWHERE, we dont know where, but he must have been used to people because hes very tame and very glad for being petted.
As for me, the pain has returned this morning in full strength and the pain meds havent done their bit yet. I'm sitting here hoping theire going to kick in soon. Then I have to go to the doc, then I dont know what I'm going to do today, probably sit outside in the yard and hope I can get a bit sun-burnt. I hope you dont have too much pain farrah, I know you can get some thin cotton tubigrip maybe you could get some and put that on your leg first under the brace to stop the sweating. At least it would be something to absorb the sweat and discourage heat rash
Have to run now,ha!Thats a good one! RUN!!!!
catch ya later
Love Beda
Title: Re: Bedas Pre-Op diary
Post by: tanyap on June 10, 2008, 09:13:01 AM
Hi Beda,
Im sorry your pain attacked you this morning, I hope your pain meds kicked in and helped you.
Beda - thats such a sweet story about saving PussWuss - in the last place I lived I rented and I befriended a feral cat, she was lovely, I tried to encourage her to come with me when I moved but she wouldnt get into the car. I think she had kittens of her own by then because she was one day fat and a couple of days later not!! She let me pet her but only tolerated it, once she had some food she left, she never became comfortable indoors.
We dont really have stray dogs in Ireland either, sometimes in less desirable areas but mostly its like you describe, dogs are house dogs.

Farrah I love the dog rescue stories!!! Poor little puppy - I hope he finds a good home. I hate those braces too - I always sweat in them, the material is awful, I get sticky and sweaty and then get a rash too. Bedas idea about the tubigrip is good - its much more breathable.

So today I have my first formal PT session, at 4.30pm, I am half looking forward to it, half dreading it!!! I hope she goes easy on me for my first day back!!

So Beda, only 3 more sleeps til your appointment!!! You must be very excited about it now!! I wonder how quickly they will be able to tell you your surgery date after you have been measured? I hope its very soon.
xx
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 10, 2008, 12:49:36 PM
Well, Tanya, I really think you should seriously consider having a cat!! You obviously are a animal-lover, so you could have an indoors cat if you live in an area where its too built up to have one that goes out. Cats can thrive perfectly being only indoors, if you get one from being an kitten, it will never know the outdoors, and not miss it. Thats if Fergal is game! they bring you so much joy and its wonderful company when Fergal's not at home. They are also fine to be left on their own during the day if you go to work, cats do their own thing you know, its not so dependent on you as a dog is, you have to look after a dog a lot more, go walks etc where as long as the cat has a clean tray, he/she will look after themselves. It is of course advised to have them either spayed or castrated so they dont get 'urges' so to speak. If you do that when their kittens, then they dont miss anything and become very dependent on your love, and they give a lot of love in return. I had Boris AND Pusswuss on the end of my bed last night, there wasnt a lot of room for me! Whatever, anything for the cats!!I hate to disturb a sleeping animal!

The pain did eventually get under contol, but I think theres a weather change in the air, 'cos its hurting more than usual, probably the old OA I've got. I noticed my fingers were very sore this morning, the joints are very riddled with OA.otherwise have to wait till later for the results of my bloodtests, I have to go in and have a D&C done because of  a bleed after I hadnt had a bleed for 2½ years. The doc is afraid there might be something 'nasty' going on in my womb, hope not but its always a possibility. just ONE MORE thing wrong, its not a joke when they say when you ge to be 50 you get to the age of 'repairs'. I've NEVER had so many health issues than I have had this year. At least apart from suffering from my bad knee, the rest of me has kept itself quite healthy, thankfully. but I suppose I've had my share of stuff with my leg, that HAS filled a lot of space. I just feel its about time I got a break. Now today I heard in the news there is a minister that is advising that the government intervenes in the nurses strike now, its gone on long enough, people are really begnning to suffer. I have to think of thoses thats waiting for hip and knee replacements, they are on a waiting list anyway, and now with nothing happening through the 8 weeks theres been a strike, well the list will be even longer now, and those people that need that kind of op are in serious pain. I have heard that because of the national shortage of nurses in general, they are beinning to employ nurses for foreign countires to come and work here in DK, its that bad. My mom went to her docs the other week and there was a foreign doc working there doing a locum for her own doc, and mom couldnt understand what he was saying to her, and he couldnt understand what she said either! What a state to get into!! He even wrote wrongly on the form her had to fill out, and sat cutting out little squares of paper to glue on the mistakes so he could write the correct thing that needed to be written! He did that 5 times mom said! I would have walked out on him if that was me, I dont have that kind of patience. They should be able to speak Danish in Denmark, or at least English failing that.
Well, been up on my soapbox, so I'll sign off for now,
Love to you all, Beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 10, 2008, 01:02:00 PM
Beda, glad your pain has eased some.  I took a sleeping pill last night to help get a full night's sleep...i'm still tired!!  When I got out of bed, my knee felt horrible!!  Oh well.  I am getting used to pain.  I have my PT apt first thing in the morning tomorrow.  I am anxious to see how it goes.  Well gotta get to work now. 

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 10, 2008, 02:53:22 PM
Dear Farrah - good you had a good nights sleep, means a lot.
Have had the results of my blood tests. Good news, cholesterol has gone down a bit t 6.7 instead of 7, but I will probably not get it any lower than this with diet alone, so I am to have cholesterol sinking medicine. BAD news, Blood-sugar is UP on 5.9 when at 6.00 they say you have diabetes type II. This is very alarming and I have been recommended to cut down on all sugars, cut down on veggies like potaotes, sweet potatoes etc. and cut down on pasta and choleserol high fats. So I am going to be loosing some weight now I can see, 'cos I DONT want diabetes II. I am not  a lot overweight, but have gained a couple of kilos since my leg has caused that i cant excercise so much as I used to. iused to swim twice a week, but cant do that anymore, I guess short of weight lifting, I cant do a whole lot of excercise. But I think lifting some weights would help with walking around on crutches so much, but I think I have good stregth in my upper body alreay due to the fact I have had to use crutches for so long. i could understand if my lifestyle was 'sweet', which it isnt, I hardly ever indulge in cakes etc and never use sugar in tea or coffee, i eat a lot of veggies and salads and fruits, I just dont know where I've gone wrong. I will be the first in my family histoary if I do protract diabetes type II.
It never rains , it POURS!!!
Catch you all later, I've got a lot on my mind right now, and need to rest and think.
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 10, 2008, 05:37:34 PM
Hello Beda, sorry about all your blood test results!  I need to take care of myself better, but it's too hard with all the stress of my knee and finances right now.  I am eating peanut butter and jelly for lunch b/c we can't spend money this week b/c I have two PT visits.  It sucks having to be so tight!  Oh well...we will manage.  We are selling my car to get rid of a car payment.  My husband's grandfather is selling us a great car for a very inexpensive price!  This way we will not have car payments anymore!  That will save a lot of money!  We will buy the car off the profit that we make from selling mine.  Mine is a hybrid car, so with gas prices as they are, it's very valuable right now. 

So as for me...I have had the worst pain today!  It isn't easing up and it is constant right now!  I have been taking all my pain meds and wearing my brace now and then, but can't get any relief!  I haven't done anything to deserve this...I just sit around all the time. 

I don't know what I have told you, but Casey, my old PT, is going to do some research today so we can talk about what to do about talking to my OS and PA about the RSD stuff.  I trust him greatly to give me good advice. 

Earlier today, I spoke with my first PO PT, Paul, who advised that I stick with my current OS and tell them about the diagnosis from the other OS.  He said to let my current OS diagnose this and send me to their pain specialist.  He told me that I should call my OS if my pain gets too much worse between now and the end of the 3 weeks before my next OS apt.  Paul did say that the new OS is a great doctor!  So that made me feel good. 

So have lots of opinons from medical professionals!  I will get it figured out.  Meanwhile, I need pain relief!!!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 10, 2008, 07:48:10 PM
Farrah - you and I can have a pity-party today, 'cos I have unbearable pain in my leg today, specially going up to my groin making any attempt to move my leg excrutiating. its a #10 on movement at the moment, and an 8 lying still. i dont know what happened to the pain meds, but I sure havnt felt as if I've taken anything today, but my head says I have, so I have to watch I dont give myself an overdose!! i take fault with the time, couldnt undersand why it was hurting SO much and discovered it was much later in the day than I had thought, so lucky for me time to take a new dose. i really cant take any oxynorm extra at the moment 'cos I get SO MUCH other stuff,(oxynorm is the meds i take xtra, its not as potent as oxycontin) I have to hold  my eyes open with matchsticks these days, sounds a bit like you. Still, something positive will be done on friday, so I'm looking forward to that event, at least it brings me one more step to be pain free, IF it all works out as planned. I just dont understand WHY I have SO much pain tonight. beats me, but theres not a whole lot I can do other than what I've done today. I have had a lazy day, apart from the Dr.'s appt. I've done NOTHING, so it shouldnt play up like it is. Stop moaning Beda.
have to lie down now, see you later,
Love beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 10, 2008, 07:57:06 PM
Beda, I am in so much pain too, but still not as much as you.  My resting pain is #7 right now :(  For some reason I am having pain start at my hip and go down to my bad knee.  It's making my knee hurt so much...weight bearing pain is #10!  I want to go home, but I have too much work to do and b/c I have PT tomorrow morning, I will be getting to work late.  So I have to stick it out today.  I hope it improves.  Just took my 3rd dose of my new medicine, so hopefully it will help some. 

Sorry you aren't feeling well.  I can't wait for that apt on Friday to come around.  Hopefully you will get a better idea of when your surgery will be.  Time for me to get back to work!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 10, 2008, 09:05:09 PM
Farrah - the pain in your hip is referred pain from walking with not using your knee properly. I'm afraid that that is a knee-sufferers lot, hip pain. I have been told more or less outright that I will eventually need a hip replacement after i've been going with a stiff leg for some years, 'cos theres 'bound' to come OA. I really dont know if i DARE go in for another joint replacement, look how bad its gone for me -always!! But I'll cross that bridge when I come to it. Sorry to hear you still have so much pain. I have even taken the extra oxycontin now, and it still hasnt made a difference. i think I'll have to take a sleeping pill tonight otherwise I can see that this is going to hold me awake all night. it's almost like post-op pain, its awfull. I'll go take a hot shower and hope that helps some. I think its my nerve damage thats hurting so much, 'cos the pain is right there where they cut into the nerve in my groin and raidiates all the way down the femoral nerve path.
Hope you make it through the day farrah, Thinking of you with love,
Beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 10, 2008, 10:12:39 PM
Beda, I hope that warm showers works for you!  I have another hour of work left!! Then I have PT first tomorrow.  My husband I hope you get some sleep tonight!  I plan on taking a sleeping pill tonight too!!  I don't take them every night, just the ones when I am not tired when it is bed time.  So tonight I will probably have a lot on my mind since I have PT tomorrow morning...so I will probably be wide awake at bed time.  I hope you feel better tomorrow!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 11, 2008, 06:40:25 AM
Hi farrah, a new day has dawned, i DID take a sleeping pill last night but still didnt get a full nights rest b/c of pain. This morning I am no better of than last night, I just DONT understand it. I have #10 on walking and about a #8 on resting. its crazy I cant get it under control with the new meds. I think I'm worse off than I was before. its mostly in my groin and raidiating down my femur and into the tibia at the front. I just have to wonder if one of the loose components has made a move again. That really hurts when that happens, and hurst BAD for days and weeks after its shifted. I am goin to be sofa- bound today with my laptop I'm afraid. Yesterday I picked up a whole load of music cd's at the library and I am listening to them now on my walkman, i cant listen to them out loud 'cos right now I'd wake mom up which she wouldnt appreciate, and later I know she doesnt  appreciate too much of my music playing loud!! thank god for personal walkmans. I am going to record the most of this music on my computer and later put it over onto myMP3 player.
frrah, you really should keep on looking after yourself, its only through healthy eating that we get the nescessay nutrients to heal properly. i dont know about you, but I've put on 2 kilos since all this has happened with my leg, not good. I'm not very tall and cant tolerate to put on too much more weight. now because of this diabetes scare, I'm going to be on a forced diet, so i expect I'll be saying goodbye to sweets, candy and biscuits etc. I only had 2 potaotes with my supper last night, and they werent that big, just the small new potaotes. I'm really hungry this morning and dont know what I wil eat as yet, probably some water-melon i cut up yesterday, at least thats NATURAL sugar, so is not so dangerous. Hope you have a better day today Farrah, and for anyone else thats here, hope your days go well and you have the minmum of pain, and /or get relief from your pain meds
With Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: tanyap on June 11, 2008, 09:39:47 AM
Hi Beda and Farrah,
Beda, myself and Fergal love all animals but we are more dog people than cat people, although we pet and feed any cat who shows up at the window or back door!!! But we hope to get a dog or even 2 dogs sometime in the future when we move to a bigger place so for now - no pets. However we are friendly with all the neighbours who have pets and we get to express our love to their animals whenever we see them!!

Im so sorry to hear you are in so much pain. All I can say to comfort you is that when you go to get measured on Friday tell them you have been in so much more pain these last few days and hopefully they might hurry up with your operation appointment.
You may not need a hip replacement at all in years to come, thats a bridge that can be crossed later in life, for now you need to get to the Pain Free Place!!! And it will come soon - it has to!!! So today is wednesday and on friday you will be measured up - time is moving along!!! Only 2 more sleeps to the next step.
I hope you get some pain relief and comfort today.

Farrah - Im sorry to hear youre in a lot of pain too!!! I hope PT goes ok for you. I think you and your husband are so right to seel the car for a cheaper one, fuel is so expensive these days and there is no need to be driving an expensive vehicle. When I rented I often needed cheap lunches so I would load up on tuna and crackers - cheap and tasty. Also for dinners I would make a large batch of something easy and cheap like spagetti bolognese and then eat that day and freeze the rest for other days. Worded out good. There are a lot of ways to economise with groceries, cook a whole chicken instead of just 2 breasts or buy the vegetables that are going cheap because they are about to go off and cook them immediately and freeze them.
It will be ok, tightening the finances happens all of us at some point.
xx
Title: Re: Bedas Pre-Op diary
Post by: Sore knee on June 11, 2008, 10:57:46 AM
Beda

I hope your pain has eased a bit, its so unfair  :(
My Mum has type II diabetes and it did come as a shock to her when she was diagnosed. It effects her most with healing so make sure your OS knows about this being a possibility. Where do you live Beda, the thought of sitting outside in sun sounds lovely :)You are so brave  :-*

Farrah I am so sad to read of your pian again. I just wish I could do something to take it away. It just seems so unfair that you have such a bad time. I so hope you find a way with your PT and OS to get you a quality of life again.

I am thinking of you both !!!

Tanya, have you ever thought of being a life coach ??? You are always up and positive and I think you would be great
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 11, 2008, 11:01:15 AM
Good morning...still feel worse than better today.  I have PT first thing this morning and will let you know how it goes. 

Beda, I have not gained any weight since my surgery, but have actually lost some!  It's weird! I do need to watch my diet though, but I am the pickiest eater you would ever know!  I eat only certain veggies in certain ways...like I love raw carrots and celery, cooked corn, raw cucumbers with salt, etc.  I generally don't like any vegetables mixed with my food.  I also like mostly raw veggies...which is healthier anyway.  Well it's time for me to get ready for PT.  Have a good day everyone!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 11, 2008, 03:39:36 PM
Too much to type again...I had PT this morning...check out my diary :)

I hope you are feeling okay!
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 11, 2008, 06:29:11 PM
Farrah - I checked out your diary, and am exstatic for you. Now you have a PLAN and now the people around you seem to be working WITH you and not against you. I must say I agree with the idea that you DONT have RSD, as you lack many a symptom, but, definitly as your PT says, nerve damage of one type or the other. I think its good in your decision to stay with the current OS because if he is willing to listen to what the 3rd opinion says, and can get you to a pain doctor faster than the other one, well way to go!! i think that as long as they communicate with each other,thats the alpha and omega, then everything will turn out just fine - hopefully you pain doc will be able to get your pain under control, and you will soon be full weight bearing and walking again. I hope your remembering to take your pain meds reguarly, arnt you??!! I wish that my pain meds would kick in, I've been waiting for them to work all day long, and NOTHING has happened. I too am super- sevsitive in certain areas of my knee, and in other areas am totally numb. This is due to nerve damage, and the fact that I've been cut open so many times, the nerve endings cant find each other again when they sew you together. Things like retractors and other instruments they use to move nerves and ligaments out of the way whilst they operate can cause no end of damage. I have a place in my knee joint that ALWAYS has very sharp and intense pain, and I have been treated with everything under the sun to try to remove that pain, but NOTHING works on it. They have told me its nerve and soft tissue injury, and he OS cant do anything about it.
I have just been in the library and borrowed a whole bunch of cd's and now today I've been sitting here with my laptop 'ripping' cd's and copying them. But you didnt see what Ive just written, did you??!! Now I've got a lot of really good new 'old' music, music from the 80's I like a lot, it brings back fond memories of working before i fell and broke my knee, it was a really good time then, I earnt a good wage and always had exciting work and challenges. Now I still dream of getting back to work again. I really enjoyed my work as a chef, and miss it greatly. Its kind of a thing that haunts me that I will never be able to work a days work again. I havnt done for ages, but i still miss my work and dream of a big come-back!! i will just have to suffice with making food at home and having guests. Today I spoke further with my doc about the diabetes thing. He said I am SO close to having diabetes, and whatsmore he said I have been for the last 6 months, he said he had told me about it, but I dont recall EVER that he has mentioned I was in the danger zone! he said that I should actually do and eat like diabetics, because I will eventually have diabetes type II with age. Honestly, I've never had so many health issues before than now, and i feel like i am falling apart! I personally blame all those meds I'm on for everything, but my doc says its not!! But the way it makes me feel so weird for me it is the root of all my evils, something has to be the scapegoat!! I am counting the hours to my CT scan on friday, that means I'm just one bit closer to an operation day. I will call the OS at the hospital at the end of next week to see if he's had time to work the measurements out, and to see if I have to wait for the rod to be delivered or if its in stock. Keep your fingers and toes crossed for me if you can, every positive vibe can go a long way!!
Well, due to my new-found fragile state of health, i have to go eat something in a minute for the blood sugars. I have to eat 5-6 times a day small mealtimes, stuff like fruits and veggies of the right kind. I had some feta cheese for my lunch witha tomato and some cucumber. if I keep this new way of eating up, I'm bound to loose weight,anyhow, i cant eat more food than 5 times a day as it is!! Tonight were having chicken, which is a low-fat meat and corn on the cob, new potaoes and strawberries. Not a bad mealtime, just make sure i dont take large portions. Good you havnt put on weight, its otherwise a very common thing for those who have problems with mobility to put on weight.
I have to go lie down again because the whole room is spinning around, and I'm hot and uncomfortable, and the pain is just SOO intense. Will catch you later guys
Love B.
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 11, 2008, 06:45:07 PM
Hello Beda, I take my pain meds ever 6 hrs as prescribed.  I am now on 6 prescription meds daily!!  Too much!  Right now the room is spinning and I am seeing cloudy!  I feel like something is in my head preventing me from seeing clearly...it's a weird feeling.  I am sure it is from the newly prescribed lyrica...one of the side effects.  The research I did says that lyrica can take up to a week to notice a difference in the nerve pain.  So we'll see how it works.  Right now I need some relief!!!  I am on 5 medications for pain, but I still have intense pain with sitting/moving right now!!!  What the hell is going on?? The pain sucks! 

Sorry about your new diet!  I couldn't imagine eating 5-6 times a day!  I eat 3 regular meals plus 1 snack.  Well sorry you feel like you are falling apart!  You will get through it...it seems you have gotten through so much more before!  Sorry your pain meds aren't helping.  Have you mentioned it to your doctor?  I do have all fingers and toes crossed so you will get through all your stuff quickly!!  I definitely think about it every day for you!!!  Well gotta get back to work! It's hard to concentrate with this new med! 

Farrah
Title: Re: Bedas Pre-Op diary
Post by: tanyap on June 12, 2008, 10:00:14 AM
Hi Beda,
Well a lot of people manage to get along with diabetes, there is a guy in my office with it but he has to do injections regularly - cant control it with diet alone. A friend who is pregnant has just developed gestational diabetes. Its quite common really. I wouldnt mind eating 5 times a day at all :) Little and often, thats actually the healithiest way to eat. I am sure you know all the correct stuff to eat Beda from your days as a chef?

So tomorrow is the Big Day (well really its the Little Big Day as the operation day is the Big Day). So one more step in the journey eh? I am sure you will be glad to have it all behind you. Good idea about phoning next week, you never know he may phone you before you phone him!!!

We are voting on the Lisbon Treaty in Ireland today. Did you get to vote on that Beda or was it just passed with no population vote?
xx
Title: Re: Bedas Pre-Op diary
Post by: Silkncardcrafts on June 12, 2008, 10:08:09 AM
Hi Beda,

Good luck with the CT tomorrow. I hope it goes well. Remember my last CT scan. I had a lovely Irish lady which made it much easier.

I am progressing quite well. Going back to see my knee surgeon tomorrow.

Look forward to hearing the next update.  :D
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 12, 2008, 10:25:19 AM
Hi Guys!! ja, this new diet sucks. i dont know how I am going to be able to eat 5 times a day, but must for the blood sugar levels. Other tht that, i just dont understand why my pain killers ar'nt working! I have taken 4 kinds of pain meds this morning, and I still have a #8 on resting and #10 on walking, my leg is aching in the femur, and throbbing. No pain killers has been able to touch it. farrah - I know where your coming from about your pains, I just dont know how you can do a days work like that, it drives me to distraction. Have just put my heating pad on, hopefully that will help matters.
Tomorrow is CT scan day!! hurahhhhh!!!! i sure hope that famous 'rod' is 'in stock' so they can 'do' me soon, I am really getting desparate. if I have just as muuch pain tomorrow as I have today, I just dont know if I will be able to sit in a coach for 3hours for the journey to Rigshospital. Also every little bump in the road hurts me, so I am going to have to take extra meds with me. have just taken an extra oxynorm, see if that can help. whats going to happen is, I'm going to fall in a restless drug-induced sleep. Must go now, pain has just turned to a #10 on sitting here in the sofa, Something has just gone very wrong, so I HAVE to stop here
Love Beda xTanya & Co your posts came in as I was writing this. thanks for the support!! have to go,
xx Beda
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 12, 2008, 10:30:56 AM
Beda, so sorry you are still struggling with that pain so much!  Can you contact your doctor about it?? What's weird is that we both started taking our new pain meds around the same time.  We both had relief for a day or two with it and now we are both struggling again!!  What's that about??  My new pain meds aren't helping anymore at all!  I will get through today and see how I feel again before I call my OS/PA to get something better maybe.  It is difficult to get through work with this pain! 

I am really excited for you that you get your CT scan tomorrow!!  That is just one step closer to relief, right?  I know it will be a long way until you are actually pain free, but now it's coming closer.  If you are having this much problem with your pain meds now, what will happen when you have surgery?  I hope you don't have to suffer through surgery pain!!!!!  Well, I am sure I will talk to you later, but Good luck tomorrow!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 12, 2008, 11:31:26 AM
Farrah - dont know what the deal with our pain meds is. Right now its a tad better 'cos I just took an extra oxynorm and some anti-nausea medicine, and fell into a restless sleep for about 20mins. I also have my heating pad on, which does help some. I will try my TENS next. I am DESPERATE for some relief now, I cant take much more. I called my GP, couldnt talk to him directly, and I have to call tomorrow morning between 8-9.00am to get to talk to him. Its only him that can adjust my medication, but I dont think he will give me more, i cant physically tolerate any more. I'll be out for he count if I get more. He did say last time that if I needed more pain medication it had to be in a controlled environment which means in hospital 'cos I'm bordering on maximum dosage to be given with safety. Anything more and all kinds of horrible stuff can happen, which I'm not interested in. it sounds like your pretty maxed out as well in the analgesia dept. Were a right pair, ar'nt we! At least we can suffer together, I know I'm not the only one with tons of pain, and nor are you!! But I know it doesnt change the fact that it dam hurts. At least I am not quite as tired as I did get 20mins in, only a little, but everything helps. these narcotics makes you SO tired, as you knw only too well. it really slows me down, and I'm sure if I heard a recording of my voice, it would be slurred. I got a text from Lisa from Zambia. Shes doing well and the knee is not too bad for her. I bet her time over there will fly by for her. Good she can do all this charity work. She must have geat tenacity for doing it all IN SPITE of a really bad knee, its an encouragement to all of us whos in pain.
 speak to you later
Love B xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 12, 2008, 01:02:52 PM
Hello Beda, I am glad Lisa is doing so well.  That's great that she is keeping in touch!!  As for pain...I used my TENS last night, and as long as it was on, I didn't feel pain!  I could almost walk even!  Still couldn't do PT pain free though...I tried one exercise with the TENS on.  Well when I took it off...all the pain came back immediately!! I wish I could keep it on all the time!!  I will talk to my PT about that.  I also used heat last night, and that felt great!  I will have to ice throughout the day though b/c that's all I have at work.

I hope you are able to get some pain relief soon...I hope you are able to talk to your GP tomorrow morning!!  Keep me posted on that.  Have a good day!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 12, 2008, 01:51:47 PM
Farrah - I find that heat helps best for me too. Right after I wrote the last post I went to bed. I have so much pain its giving me tears in my eyes. I have now laid with heat on for the last hour, which does bring a bit of relief. I too have a TENS but I dont get the kind of relief you get. Actually in certain settings it actually brings on pain instead of blocks it. I will stay in my room and in bed fo rthe rest of the day today, I'm not good company for mom when I have so much pain. Mom is expecting some of her stuff out of store to come today, I know she was reckoning on me helping her with it, but I just CANT!! I have taken extra oxynorm today on top of everything else, and it just pearls off. I did call the Drs. secretary. She was doubtful that the doc would put up the dosage of pain meds, theres not a lot anyone can do right now, I NEED my SURGERY before it's going to get better. At least after the surgery it should go forward, less and less pain with each day -oh, I know its going to tkae ages before I can feel the difference, but at least I have  fighting chance to get better. As it is today, it only just keeps getting worse and worse. Its a #10 on rest at this present moment. Luckily I have satelite tv in my bedroom, and a dvd and a sound system, so I can try to keep my mind off of it all. But it's VERY distracting when it hurts so bad.
Have to lie down.
Love Beda
P.S. tanya, I'm not worried about be able to cope with diabetes, its just cramming that much food down that bothers me!!
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 12, 2008, 02:36:01 PM
My constant pain today is only #4! Walking pain is only #6!!  So that's better!  I brought my TENS to work wtih me.  I may use it later since it helps with pain so much while it's on!  I hope to hear about MRI and PM referral today.  We'll see. 

I am sooooooooooo sorry for you!!  I wish I could do something for you to feel better!  I hope your surgery comes quick!  Get those foreign nurses to help! Well I am thinking about you!  I wish I was at home laying down too!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 13, 2008, 12:14:56 AM
Hello Beda, my pain got worse throughout the day :(  I used my TENS some while at work at it helped while it was on.  I would have it on a certain setting for about 15-20 minutes, then I would notice the pain start again, so I would crank it up about double the amount, then the pain would come back again I would just keep cranking it up!  I had it on for about 3 hrs today I guess.  My PT called me today and did say that my doctor wants to do an MRI and give me a referral to pain specialist.  My PA was suppose to call me this evening, but no call yet.  Sometimes he calls pretty late, but I will not hold my breath.  I will keep you posted on that. 

My knee pain is really crappy right now...resting is about a #6 and walking is pretty much out of the picture right now.  :( I am about to go hook back up to my TENS and get some heat on and hopefully feel better tomorrow. 

I know you haven't been feeling well either.  I hope your apt goes well tomorrow.  Post when you get home from the hospital!!  Good luck!!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 13, 2008, 02:28:15 AM
Farrah- I'm awake no 'cos of pain. It s 3 am and I cant sleep any more. Last night I went to bed real early, and I took 2 ice pads with me, and them I had to call my mom to come in wth my extra oxynorm because I couldnt move for pain, It was a #10 going upwards and I was just lying in my bed. I do hope it gets better tomorrow morning 'cos otherwise I dont know how I'm going to spend 3 hours in  a coach going to Riget. Saw you were on line, meybe e can chat  a bit if your not on your way to bed!!
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 13, 2008, 02:30:31 AM
Hey Beda, sure we can chat, I don't know how though....
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 13, 2008, 02:37:16 AM
Do you have messenger downloaded?
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 13, 2008, 02:38:36 AM
Yeah, I have AOL instand messenger...arkitect04 is my name...
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 13, 2008, 02:39:31 AM
Try clicking on the chat button in KG...I am in a chat room there, but I don't know how it works?
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 13, 2008, 02:41:01 AM
I dont have AOL messenger downloaded, I have microsoft instant messenger, too bad, well have to chat thru this OK I'll go to KG chatroom
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 13, 2008, 03:51:57 AM
http://www.stoppain.org/pain_medicine/content/chronicpain/crps.asp

Hello Beda, here is another great website I found after we chatted tonight (this morning for you).  Too much of this sounded familiar to me.  Look under treatments and "other treatments"...they talk about a TENS unit as sometimes a good treatment!  It does wonders for me...so who knows.  I still hope that RSD isnt' what I have, but I will keep my options open until I am told I do not have it by a pain doctor. 

GOOD LUCK TOMORROW!!  I HOPE THE CAR RIDE ISN'T TOO PAINFUL!  I will be thinking about you tomorrow morning when I wake up and will be waiting for a post on how it all went.  I know you will not have results, but you can still let us know about the experience with foreign nurses :) 

Farrah
Title: Re: Bedas Pre-Op diary
Post by: tanyap on June 13, 2008, 09:42:11 AM
Hi Beda,
Hope today goes well for you and you dont have too much pain travelling!
xx
Title: Re: Bedas Pre-Op diary
Post by: Silkncardcrafts on June 13, 2008, 12:18:58 PM
Hi Beda,

I hope you are not in too much pain. There's nothing worse.

All the best for the scans today.  :D
Title: Re: Bedas Pre-Op diary
Post by: rozzzie on June 13, 2008, 01:21:14 PM
Hi, Beda,

Hope everything is going well and that they find that they DO have the rod in stock!

(http://img.ranchoweb.com/images/muffin/for_you_bear_hug.gif)

Rozzzie
Title: Re: Bedas Pre-Op diary
Post by: Sore knee on June 13, 2008, 03:04:31 PM
Beda

Thinking of you and hope the journey is ok and you the scans go well.

((hugs)))
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 13, 2008, 04:27:55 PM
Hi guys! thanks for all the support here on KG. The journey up was pretty grueling, and i was in a lot of pain, and the scan inteself I got into immediatly on arrival at the hospital. I DID get some results,' cos I explained that I had an unexplainable excaberation of pain these past days, so they got an OS to look at the scan as it was made. it shows that he thinks I have a very fine hair line fracture of my femur, where the implant goes up and hits the femur, its splitting it. Thats why its hurting so bad. I was told absolutely NWB and to keep myself as still as possible. They said theres not much they can do about it at this moment, because it needs to have time to calicify and heal before i have the surgery. No casts or braces, its not that big that I need that kind of immobilization, just keep off it. That comes very easily as I CANT put any weight down on it at all. Right now i have my TENS going on it, but I can only have it on certain positions on my leg as it hurts it too much on some settings. The nerve damage I have can certainly be felt with the tens machine. Otherwise I dont know the size of the rod, or if they have it in stock, it all has to be mathematically worked out as to which size it has to be, so i will call them next week to hear the results. The scan only took about ½ hour all in all but they scanned my leg several times up and down, so they have LOTS of pics of it. I am to get a copy of the pics on a disk from the department next time I go there!! i am in a great deal of pain still, and am sitting here trying to get rid of it. I heat, I ice, I TENS, I dont know what else to do. My leg is also very swollen.
anyway, hope everyone else has had a good day, once again thanks for the good thoughts,
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 13, 2008, 06:44:15 PM
Beda, sorry about the fracture and the NWB!  I know you are used to it all, but I am sorry for you.  At least you found out where your pain is coming from!  Did they give you anymore pain meds to help?  Do you have another OS apt with the one doing your surgery before you have the surgery? Are you going to tell your OS about this?  How do you feel about all of this now?  Any ideas about when surgery may be?

I am not feeling so good right now...had my TENS on all morning until the batteries ran out...it allowed me to bear a little more weight, but now it is killing me.  I have a replacement battery, but needed to allow my skin to breathe for a bit. The TENS helps, but not 100%, ya know?  Does yours help you?  I have a slow weekend ahead of me...sounds like we both will be sitting around for the weekend!  I have tennis that I can go watch tomorrow morning and again on Sunday morning.  I doubt I will go to Sunday's, but maybe tomorrow's.  Tomorrow is my mixed doubles team.  I hate going on my crutches b/c they all ask what happened and I can no longer say that I "just" had knee surgery.  It's almost been 6 months!!!  Anyway, I left a message for my PA to call me this afternoon...hopefully he will!  I will call his cell around 6 or 6:30pm my time if he doesn't.  We both had sleepless nights last night.  You were up at 3:45am, and I was up every hour starting around 1am!  I even got up before my alarm went off which is normally at 5:20am.  I woke up at 5am!  I couldn't take a sleeping pill last night b/c I was up too late and wouldn't have gotten 7-8hrs of sleep.  I would never have woken up!  Anyway, that's it for now.  I hope you are okay with everything.  Sorry the car ride was so difficult!  I think about you all the time and wishing that you felt better!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 13, 2008, 07:29:25 PM
Hi farrah! i expect I'll see the OS thats going to do my surgery nearer the time of surgery, I have no other actual OS appts. but can call and get an appointment at a moments notice if I'm worried about anything, otherwise its pretty much 'see you when you get here!!' i know I will be seen by the surgeon whos in charge at least once more before I get called in, I just dont know when it wil be, apart from that, all pre-op investigations, routine blood test etc will be done twice, once by my GP and one more time by Rigshospital.
 No, i didnt get any other pain meds apart from what I've got already. My TENS unit hurts me in certain positions, otherwise it helps a bit i feel very much like 'i told you so' with the fracture happening. it was an accident waiting to happen; bound to due to stress. i was not surprized when he told me, on the other hand, I knew sort of that something more was up, the pain is a #10 on resting now, so you can imagine I dont know what to do with myself, i'm literally cringing with pains.
I have no clue as to when my surgery will be. First the operating OS needs to look at the images taken today, then he needs to measure up. Now we are running into industrial holidays whereby all the Danes close the businesses down and go on holiday for 3 weeks, some more. So nothing thats not acute happens at the hospital during this time. I was lucky in  that my CT scan wasnt cancelled, 'cos the nurses are still striking, but because this case threats my ability to move around, it gets prioritary.
I'm sorry your not feeling good. i didnt go back to sleep either after we chatted, i had to get up at 6.00 so it was hardly worth sleeping, but i couldnt even if I wanted to b/c of pain. My leg is grossly swolen at the moment as well.
Well, hope this answers some of yur questions, I have to put my leg up now, so I'll talk to you later
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 13, 2008, 07:35:13 PM
I was just about to go lay down when I noticed your post!  SO sorry for your pain!  I can't imagine going through that.  Mine is only a #6/7 compared to yours!  I hate sitting at my computer now that my laptop is broken!!  My leg doesn't like sitting here bent for so long.  At work, I have something under my desk to straighten it out to help with the pain.

I am glad you are a priority in the hospital!!  I hope your OS gets a move on those measurements!! 

So did you have some foreign nurses today??  Well I am going to go lay down for a few hours.  I hope you have a good night!!  I will check on the computer later on tonight to see if you post again. 

Take care of yourself.  Cuddle with your cats!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Silkncardcrafts on June 13, 2008, 11:42:59 PM
Hi Beda,

Glad you've had the scan and they've pinpointed why you are in so much pain. Do rest up and hope you are feeling a bit better.

I woke up 5am with my knee in pain. Took some more pain killers and went back to sleep.

Cuddle up with those cats and have a good weekend !
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 14, 2008, 12:41:28 AM
Beda, my PA called me this evening.  I know you are probably in bed trying to sleep by now, but I figured I'd let you know.  I have lots of details on my diary. It's good stuff I think.  He is finally doing something about this.  I talked to him about my depression, the pain, and the 3rd opinion diagnosis.  I have a PT apt on Tuesday early morning and my PA wants my PT to get him out of surgery to come examine my knee.  We'll see how that goes.  Anyway, I hope you are getting some relief soon!  I'm thinking about you!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 14, 2008, 09:00:08 AM
Farrah - I read your post in your diary. Everything sounds VERY good now I must say. I guess that your OS is OK after all, although youve had quite a battle to get where you are today and it never should have been allowed to get this far before they did something for you. I am not agreeing with him about your meds and addiction. You need those meds now, and you are NOT a misuser, so it would be easy to taper you off the drugs even if you do get dependent. Its NOW you need the pain relief, and its no good if the pain meds your taking dont cut it. But thats what a pain specialist is all about. He knows what drugs are best for the type of pain you have. I just have to think of myself, I'm on Oxycontin and have been for the last 3 months, and that is very addictive, and whats more I'm on a rising dosage all the time. I am most certainly dependent on it now. I have been on opiates for years now, and am dependent on them, so after my op when my post op pains begin to wear off, I will have the job of coming off of morphine-like drugs. My doc. said theres no problems, he said we would do it slowly over a year, theres no rush 'cos I'm not going to be pain free over night, so will need it but in decreasing dosages, so it will be very natural as I wont need them so much. I have absolutely NO craving for them at all. They just treat my pain, period.
As for me, I had a reasonable night last might. I took EXTRA EXTRA pain pills and went to bed at 8.00pm and slept til 3.00am and then i woke up in pain. I took some more pain meds and then could settle down with ice and slept until 8.30 so that was good. I was REALLY tired yesterday, after having been up in the night and making the trip to Copenhagen, i tried to sleep in the coach, but it was impossible 'cos I had so much pain. Today the pain's slightly better, being a #8 on resting. I havnt done a lot of walking, as it is NWB and is difficult. I came to think, are your crutches elbow crutches or under the armpit? If you dont have elbow crutches, i would highly recommend them,as they dont hurt your arms and shoulders so much, and you have much better control, and the strain goes on your underarm, and they're more handy, less clumsy. I found I couldnt walk with the underarm crutches at all after I had tried the elbow ones.
Well, hope this post inds you in less pain, at least you know now that something is being done about it, that must be a comfort at last.By the way, the stirke end on sunday!!
Title: Re: Bedas Pre-Op diary
Post by: tanyap on June 14, 2008, 10:20:06 AM
Hi Beda,
Im so glad you managed to get through your tests and that the strike is over on sunday!!!!
Thats bad news about the fracture, at least you know why you have had so much pain - small comfort to know why but it does explain why its been so bad. I am really hoping they have your size rod in stock or easy to get quickly.
You need to rest a lot and allow that fracture to heal as best it can, I am so sorry you are in so much pain, I hope your pain meds and TENS bring you some relief.
You have come a very long way since I met you here, from no appointment, hospitals pushing you back and forth to each other and now you have taken some steps toward the final part of the journey - all that remains is the rod to be ready and some more tests to be done.
Youve been very brave throughout it all Beda, Ive told you before that you are an inspiration to everyone on here, no one deserves some relief more than you, you have suffered for a long time.
Not much longer, it seems like an age Im sure but we will all be here to support you in between now and your surgery, and then of course afterwards. I am still sending the good vibes to Rigshospital, they seem to have helped so far so I will be continuing!!!
I hope your pain is not too awful today.
xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 14, 2008, 01:56:43 PM
Hello Beda, I am so glad you were able to get a decent amount of sleep last night.  I got at least 8-9hrs myself without waking up thanks to my sleeping pill.  I have tried the night before to not take it, but then I woke up all night long!  So I guess for now, if I want sleep, then Ambien it is!  I hope that is okay!  The GP said take sparingly, but I have taken it about 4-5 times this week!  Hopefully they will give me more if I need it later.  I wonder if a body can get used to falling asleep with the help of the drug.  Then when I don't take it, if i will have a hard time no matter what?  Do you have any idea?

Well I am glad you got a little relief so far out of your pain meds...#8 still sucks, but better than #10!  As for me, my constant pain is minimal and my walking pain is #6.  If I rest all day, that can stay that way...so far that is the plan!  I have a cook out to go to tonight though, but I am sure I can sit there a lot.  If I wear my TENS, I will do fine. 

Well it's time to do my morning session of PT exercises and pain meds. 

Farrah
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 14, 2008, 02:38:08 PM
Beda, I forgot to touch on some other things you mentioned in your last post.  I have the armpit crutches.  I have been on them for almost 6 months and don't even get tired at all.  I am completely used to them.  I have looked into those funky looking ones that loop around the back, but they are very expensive.  I have not seen the elbow ones, but know what you are talking about. Because I don't know how much longer I will be on crutches, I would be hesitant to spend money on new ones.  As for pain management, it sounds like my OS/PA will only refer me if they see that RSD is a possibility...otherwise it seemed like we were just going to get the MRI.  Well depending on what is said, I think I should go anyway since they don't want to prescribe me those "level 1" drugs as they call them. Going to PM could also minimize the amounts of drugs I am taking hopefully!  It's too much!  It works out fine though, but still too much.  Marshall just jumped in my lap, curled up and put his nose between my arm and my chest!  He is sleeping!  So cute!  Anyway, I will talk to my OS/PA about sending me to pain specialist anyway just to get my pain under control while we try to figure what it is that is wrong.  If I do end up getting an MRI, I hope there is something there that they can see is wrong so they know how to fix it!  I would hate to have to deal with this much longer without them knowing!  I am definitely happy though that everyone at my current clinic is finally listening!  Casey always did, but since he wasn't directly responsible for me, he could never do anything about it.  So I am in good hands for sure...I also liked that my PA talked to me for about 20 minutes on the phone.  He asked me lots of questions while I answered them and added more to that.  I wish that the OS #3 and my current OS would communicate since they know each other!  OS #3 could tell my current one what made him think RSD.  I am starting to think that maybe OS#3 was just trying to get rid of me by sending me to the pain specialist??  I don't like to think that, but you never know.  Generally, it makes me feel good that my Current OS now knows about everything...including the depression and the 3rd opinion.  It also makes me feel good that they are not going to dismiss the RSD diganosis and actually look into it on Tuesday.  So on Tuesday, my PT will get my PA and maybe OS to examine me all together.  My PT will tell my Pa/OS what he found to help out the situation.  So I am in good hands :)  It is definitely a load off my mind now! 

I am so glad those nurses are no longer on strike!  I am sure that makes you feel better to know that if your rod is in stock, then your surgery can happen earlier!!  That's great!  I am glad you are a priority with this OS and this hospital!  I can't wait for you to get some relief and get fixed!  You definitely deserve it! 

Well have a good Saturday!!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 14, 2008, 08:34:16 PM
Farrah - thats great all your health care workers are working together now. But i would be concerned that the OS doesnt automatically send you to a pain management specialist, you need  a pain specialist right now, it doenst matter what your diagnosis ends up being. As to your question about the sleeping pills. They are very habit forming, and you dont have to take them for many nights before you find you cant do without them. I would say if you use them 3 nights a week, thats safe. i dont know what yours are, but if they are a benzodiazepam drug, then they are VERY habit forming and hard to kick them away. I think its best to have tranquilizers instead of decided sleeping pills, they're safer and there are some sedatives that have pain relieving qualities. I get one called NOZINAN which is a heavy sedative with a pain relieving quality. They generally give me good nights, but i dont  take them all the time. They are NOT habit forming.
Today I've not sone anything but drive with mom to the farm produce shop out in the country to buy fresh strawberries and potatoes, some summer cabbage too. its all very fresh, they literally pick the produce whilst your there, so it is SO fresh!! then I've been 'ripping' cd's I borrowed from the library, but my leg here this evening is a #10 again resting. it doesnt like to be 'down'., its best when I have my leg up. My TENS hurts me, it seems to provocate the nerve damage I have, I get terrible pains in my groin, shooting nerve pains that follow the path of the femoral nerve, so something is very wrong there. I hope they can fix me when they do the surgery. I need them to block that nerve permanently, they can do it.

Now I am beginning to speculate about  monday. i have a Drs. appt,a gynæcological examination. I'm NOT looking forward to it, and want the whole business behind me so i dont need to worry about THAT as well.

One of moms friend has just called and has been invited to afternoon coffee, so I am going to try to make a strawberry cake sitting on my chair out in the kitchen. It will be a challenge, but worth doing 'cos I get so much satisfaction cooking. Our new kitchen is just great, lots of space for messing around!!
Well, hope everyone has a good night,
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 14, 2008, 08:53:54 PM
Hi Beda, sorry your pain spiked up again!  Stop doing stuff :)  I know easier said than done.  I am sure it drives you crazy being at the house all day everyday!  I have been home all day today, but I had to clean a little bit of the house b/c it was starting to drive me crazy.  I just picked a part of the house, and focused on that for a few hours.  It did involve a lot of standing and walking around!  I had my TENS on the whole time, but it just didn't help so much.  I crank up my TENS about every 30 minutes or so b/c it seems that I get used to it or something and the pain gets really bad.  So even sitting here at my computer reading your post, the pain got horrible, so I cranked it up higher and now I can tolerate it.  I love my TENS.  I am afraid though, that with it on, I do too much then regret it once I take it off.  I just can't wear it all day.  It gets irritating and it definitely irritates that large tingly, sensitive area on and around my scar.  I have to keep that electrode at a slightly lower level.  My PT said that the TENS helps desensitize that area, so he loves that I am using and getting some relief out of it.  My home PT exercises still hurt just as bad as the first time on Wednesday :(  Hopefully it will get better for me.  I am still not able to bear extra weight as my PT recommended trying each time.  Oh well...I guess I will get there some time soon.  I am still taking my pain meds...I stopped for half a day and did notice a difference.  So I figured better have a little relief than none!  I am just sick of taking them. 

So about Pain Management, I will definitely ask about it on Tuesday no matter what my PT/OS/PA find or notice.  I think that leaving me with this pain that I have is not fair.  The pain isn't always really bad, but when it is, I need relief otherwise I just suffer.  I don't know if you understand how my pain works...I don't always have constant pain.  If I sit in a chair for 15 minutes or stand for a few minutes, then I have constant pain for a few hours.  If I drive, I have constant pain for several hours!!!  I always have pain with driving and walking no matter what.  The intensity of that pain never gets better, but often gets worse depending on the day and the activities I do.  Usually after PT exercises, I can't bear much weight at all.  I always have pain at night that wakes me up.  I could probably write a book on my pain by now.  I always make observations so that I can understand what I can or can't do or what would happen if I do a certain activity.I have a tall mound of clean clothes thrown on top of other clothes b/c it is painful for me to carry them up and stand at my bed and fold them or hang them up.  Simple daily house chores are very difficult and usually cause constant pain...like today.  Well I don't know why I wanted to spell out my pain for you, but there it is :)  I hope you are able to get some sleep tonight.  I am not going to take an Ambien tonight (sleeping pill) b/c I am so afraid my body will get used to it....although it is so nice to be guaranteed a full nights sleep when I do take it :(  Oh well...tonight will not be a full night's sleep and will have pain that prevents it.  Well have a good night!

Farrah 

Title: Re: Bedas Pre-Op diary
Post by: Beda on June 14, 2008, 09:25:48 PM
Farrah - its just fine you describe your pain for me, I think I know how you have it. I have been through every stage of pain possible, and recognize much of what you say. I must say that living on ground floor with no steps is a luxury I cant do without now!! I would wish it for you. I had another text from Lisa. She slipped o n a wet floor and bashed her knee pretty bad and now its very swollen. I do hope she makes it through the full 3 weeks. Thats really sacrifice for you!!
Oh well, its getting to be my bedtime, I've taken my night dosage, so I hoe for a reasonable sleep tonight. If only the pain would let up! I dont feel the pain killers at all at the moment.
sleep tight
Love beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 14, 2008, 10:11:45 PM
Beda, I hope you sleep well tonight!! 

As for Lisa, that is so bad that she slipped and hurt her bad knee more!!  I wonder if she was wearing her knee brace? She is an amazing woman and deserves a prize or an award for her selfless act of traveling to another country and helping people in need all the while she has a painful knee and has made it worse while being there.  If only we could all be as amazing as her, then the world would be a great place to live!!  I hope she didn't mess anything else up in that knee.  I hope she has access to some ice too!  Next time you communicate with her, please tell her I said hello and that I am thinking about her.  I can't wait til she gets back and can tell us her stories.  Thanks for the update on Lisa!  How do you communicate by the way?  By cell phone text messaging?  I don't even know where she is originally from...

As for me, my TENS is on the highest number I have ever had it right now!  I don't know if that means anything though.  I also realized that I am running out of pain meds...probably will be out by Monday!  I told my PA that they don't really do much, but they do help a little, just not enough to feel a huge difference.  Is that reason enough to ask for a refill?  Does that make sense?  I just need/want a medication that can make a big difference in my pain levels!  Without any drugs, my constant pain gets up to #6/7 or more sometimes and my walking pain is a solid #10!  With the new pain meds, the constant pain gets up to #5/6 on average and walking pain is about #7/8 on average.  So is that enough of a difference to ask for a refill?  Or should I just deal with it?  I wish I had something that made a bigger difference!!!!!  My TENS unit with the new pain meds get the walking pain to about #5/6!  If I am not doing much, I don't have much constant pain with the TENS on....it feels like it hides the pain with the tingly feeling it gives off.  Anyway, just asking for your advice on that :) 

I do wish we had a house without stairs.  When we were shopping for one, we fell in love with this one that was stairless, but it had bad pipes and the owner wanted to make too large of a profit off a house she only owned for 1yr!  So we couldn't really afford it.  So then we saw this one and couldn't say no.  We love this house, but hate the stairs!  My husband secured the hand rails though so I can depend on them more.  My crutches help me to not have to use my surgery leg on them.  When I walk around the house without crutches and have to use the stairs, I do one step at a time on my "good" leg and never bend the other one.  As long as my surgery leg is locked straight, I can do anything :)  Unfortunately, that causes other problems with my "good" knee, my back, and my hip.  So that's not a long-term solution for walking.  Anyway, sorry to go off again!!  I love talking to you b/c you understand more than anybody about pain!  I know there are others here struggling with pain, but you have experienced so much.  I hate that for you, but it makes you very knowledgeable and helpful when you share your experiences!  Sleep well and we will keep in touch again tomorrow!  I may go watch tennis tomorrow if it doesn't rain!

Farrah

Title: Re: Bedas Pre-Op diary
Post by: Beda on June 15, 2008, 02:43:11 AM
Hi Farrah - I too have noticed I have to crank the tens unit up more and  more, you get used to it. I dont think its a bad thing, think its just your level of sensitivty vs your pain. If you have a lot of pain your bound to be able to take more to take it away. But I have found something very strange with my tens, and thats when I put it on the inner side of my leg, it really HURTS it. Its like it goes in that nerve bane, the one thats been damaged and I cant stand it. Its like being at the dentist only down in my leg. I have noticed too that I start on a low setting and crank it up as time goes by. it was a godsend the other day when I had so much pain. Now I'm up again, and its 3.30am and I have pain, so I'm sitting here at my computer in the bedroom, doing this. I need to go get some ice for my leg in a minute . wish you were on line so we could chat! I text sms with Lisa on her mobile, she sends me messages when shes got a quiet moment. Ja, I agree with you, the world would be a better place if we were all like her, selfless and giving. Got to get ice now
Love Beda xx                                                                                           
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 15, 2008, 03:52:03 AM
Hello Beda, sorry you can't sleep again!!  When I first checked my diary, I saw you are online, then you were off!!  We could have had a chat!!  After I send this message, I will check other's and then go watch some tv before bed.  Sorry I missed you!!! 

Farrah
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 15, 2008, 02:52:27 PM
Hello Beda, I guess it is afternoon there already!  How are you doing today?  Did you end up getting any sleep?  I went to bed around 12am or 1am this morning and actually slept continuously through 7:45am!!!  That's almost 8hrs without the sleeping pill!  I think I was just exhausted.  My pain is minimal today! I hope it stays that way.  Yesterday I took very good care of my knee...kept my TENS on, used my brace when I wasn't on the TENS, etc.  I iced and heated yesterday.  The ice makes it worse though...do you know anything about that?  My PT once told me that ice makes you feel temporarily worse once it's off.  I tried researching about that, but couldn't find anything.  She even explained it to me in PT terms, but I don't remember what she said.  Let me know if you know anything about that. 

Anyway, I have no plans today...another lazy day.  Yesterday I actually cleaned a portion of my house and made my knee very angry!  I cleaned only for about an hour, then had pain for about 6hrs!  I can't wait to be able to do household chores again....NOT!!  :)  Seriously, I do need to start being more helpful around the house, but it's too hard to be on my feet for any period of time!  Anyway, I hope you are okay today!!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 15, 2008, 05:34:49 PM
Beda...want to chat?? I see that you are on right now!

I will log in and see if you get on!

Title: Re: Bedas Pre-Op diary
Post by: Beda on June 15, 2008, 05:47:42 PM
Hi Farrah - Too bad we missed each other, ya, we could have chatted. Anyway, today my pains have had to give way to my cat, who has got sick. I noticed when I get up in the night that he kept on going to his litter tray and trying to pee. He couldnt pee at all, there just came blood out, so when it got to this morning I called the duty vet and she said to come with him immediatly. It proves to be he has kidney stones, and the stones are now in his baldder blocking his urether making it impossible for him to pass urine. he was in agony my poor darling, so now hes in the animal hospital and has to be there until tomorrow whilst he has a catheter put in to help him pee and they're going to run tests on him tomorrow. Maybe if the tests are not too bad he can come home tomorrow afternoon. So, I do NOT have it good at the moment, its awful when animals suffer, they do it in silence and its up to us to notice that their sick, and the vet told me that if I hadnt noticed it, he could have died if his bladder bursted.
Apart from that, pains there as bold as ever. a #10 on walking, #8 on resting, I suppose a slight improvement, but I really havnt been doing anything. I did manage to sit down out in the kitchne and bake a strawberry pie, that got eaten today with great gusto. My TENS unit isnt really helping me at the moment, its hurting me more than taking the pain away.
As for the ice, I dont know exactly what your PT was talking about, but when you apply ice, your blood vessels constrict (get smaller) and the blood supply to the injured or painful part is diminished, causing hopefully a reduction in pain, 'cos theres not such a good blood supply to the nerves, the nerves get numb. heat does the opposite, the blood vessels expand and you get a better blood supply to the wound/injury and it should have a pain relieving effect if the pain is due to lack of blood supply, which it sometimes is. Thats why you seldom use heat and ice together as they work opposites. I did have one PT though who DID. He started with icing my leg,,then he warmed me up, then he did the excersise. I think he didnt know what he was doing and was just covering his back. You PT probably has a very complicated and correct explanation. For me, sometimes its heat that works, sometimes its ice. When I have CRAZY pain I find ice works best. When the pain is more of a deep ache, heat is best. I think you have to try it out to find out what works best for you. For OA it is typical that heat works best. For newly operated its typical that ice works best.
Well, its beginning to thunder outside now so I wan tto get off the computer. I've already lost one hard drive to a power surge, so I'm closing down now until it goes over. So, catch you later,
Love Beda xx
OK LETS CHAT!! I*LL TAKE THE RISK!!
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 15, 2008, 06:20:25 PM
COme back to chat!!  Sorry that I got out of it by accident!!!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 15, 2008, 07:38:12 PM
Hello Beda, I know we just chatted for a long while, but I wanted to respond here anyway.  I am so sorry about your cat!  I know you said in chat that he is probably going to be fine since you responded quickly!  I will look for updates!  I hate to see my babies sick!  I wish they could communicate with us! 

Sorry about your #10 pain with walking and #8 with resting.  My walking pain right now is #7 and resting pain is about #5.  It has gone up a bit as the day has progressed.  I will be leaving for the pool shortly!  I deserve a day in the sun :)  Next weekend we will probably be going to the lake house again.  I can't wait!  My dad comes back from China on Tuesday, so we will be celebrating Father's Day next weekend.  Do you guys have Father's day and Mother's Day?  I have to go buy my dad a gift.  I think I will buy him this new automatic adjustable wrench.  He is a woodworker as a hobby.  He sucks at it, but loves it!  He always offers to make me things, and I say no!  He made me a dresser once and it is the only thing he has ever made that I have liked.  I can't even describe how ugly him and my mom make his furniture!!  I will not get into it...I feel bad for my dad b/c he shows it off to his friends and I know they don't like it either.   :o

Anyway, off to the pool...I hope there aren't too many kids today!!!  They splash and scream too much..no matter how much I love kids, that drives me nuts when I want to relax. 

Well have a good evening!!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 16, 2008, 08:43:44 AM
Farrah- ja, that was a nice chat, I have now downloaded AIM but find it a bit overwhelming as its a huge place in comparison to windows messenger!! My screen name is [email protected] so I hope when your online again we can chat and you'll have to instruct me as to how I should use the many functions!! This is on my laptop, but windows messenger is on my stationary comp. So according to which comp. I'm on, we can use either AIM or messenger.
have to run, will catch you later
xx beda
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 16, 2008, 11:15:35 AM
Hello Beda!  What is the screen name that you chose on AIM?  Is it Beda?  On AIM, I always have that window just sitting on my computer open so that whether I am there or not, I can get IMs or whatever.  There is a an "away message" feature you can use while you are not at the computer.  Only people you give out your screen name to can see you on their lists and IM you.  I will not be able to communicate much during my work day today, but I am always available in the mornings.  DO you want to chat either with windows messenger or AIM tomorrow morning at 5:30am my time?  Right now it is almost 6:15am...I am sure you know what the time difference is.  Let me know...

meanwhile..not so good today :(  I hope you are doing okay though!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 16, 2008, 01:43:07 PM
OK Second time round. My screen name on AIM is [email protected] Someone else had beda believe it or not. AIM suggested this, so I took it.  about 1pm my time is fine for me, thats about 5-30-6.00am for you. I have just been picking up Boris from the vets. Hes getting better, but has to be on antibiotics for 2 weeks. Just think he had to have the catheter SEWN in poor baby!! hes come home now anyway, had a meal and gone to bed. I dont think slept much whilst at the vets, he was lying in a cage next to a big dog, so, I think he was a bit wary. The vet was ever so nice and has let me pay off the bill in installments. I have a sickness insurance for him, so when I've paid the bill off, I'll get quite a lot refunded.Well, as for me I had to do the gynæcologist bit today. he took a bipsy of my womb which hurt like crazy, he said he found a thicker part of my womb that he said was 3 layers thick and shouldnt have been. I dont know what its all about, but they are going to phone me when they get the biopsy results back and then we go from there. he thinks I may have a polyp that needs taking care of. A polyp is a little growth.oh well, why not, theres so much else wrong!!
My leg is the same, no, a little better today. its still a #10 on walking, but about a # 7 on resting, so there is change to be traced. I think the pain killers are starting to do their work again. the doc told me it may take some getting used to, and I thought I'd gotten that bit behind me, but it doesnt make me feel wierd any more, just now I think it does help a bit with the pain. Little is better than nothing!
Have to go now, catch you later
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: Sore knee on June 16, 2008, 02:40:02 PM
Beda

Glad the pain meds are helping you. I hope your test resulys come back ok, and polyps would be easily fixed I'm sure.

Hope Boris is ok now and thanks for all your help and advice. I have to go see OS tonight
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 16, 2008, 06:30:47 PM
Hello Beda, glad the meds are helping some!  It's definitely better than nothing.  I am also happy about Boris!!  I am so glad he is okay and hopefully not in so much pain.  Hopefully you can "cuddle" with Boris some today!  When my babies are sick, cuddling is usually the best medicine. 

Well when I get home tonight, I will post your AIM name on my buddy list.  Then tomorrow around 5:30am my time, we can chat.  I will have to get off around 6:15am or so to get ready for PT tomorrow and pack my work clothes.  Since I have PT tomorrow, I do not have to leave home until 7pm!!  Normally I leave around 6:40am or earlier. 

My walking pain sucks today!  My constant pain is reasonable.  I didn't bring enough pain meds to work today, so I have had to talk half the dose I usually take (1 pill instead of 2) :(  Oh well.  My big PT apt is tomorrow.  I am excited to get some answers!!!!  It will also get them thinking!  My PT home stuff hasn't gotten easier yet!!  It still sucks!!!! 

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Peg Leg on June 17, 2008, 01:33:52 AM
Hey Beda,

It's me, Peg Leg, sorry I couldn't get up with you to chat the other night!  I could not get into the chat room---I am challenged by the computer!! haha!  I hope that you are feeling better, today, and i'm glad to hear that your cat is better, too!  Hey to you, too, Farrah!  Take care, girls!

Peg
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 17, 2008, 06:07:01 PM
Thank you for the kind words peg, too bad we couldnt chat the other night. All you have to do is click on the chat button at the top, never mind, try it one time, look at it, and who knows, maybe well chat another time.
Frrah my friend. - I see you tried to get hold of me with IM at lunch time. unfortunatly i was ways from my computer, and didt manage to get back before you went off line again - maybe tonight??
I have just fallen over my feet and crutches and made myself very very sore, i feel like I am newly operated, just when i thought this morning the pain was a bit more tolerable. it will go over again I'm sure, but these things REALLY hurt when they happen. Somehow I had to change direction and the crutches didnt follow my feet - so i tripped. not the first time and probably not the last.

Well, I have made the decision to have  a sale of my store of paintings. I have so many paintings in storage as I havent booked any exhibitions here this year because it is impossible for me to hang pictures the way I have it at the moment. I will sell them all at VERY reduced prices, so that hopefully the majority of pictures go. I want to start a fresh collection when I'm all better, and have a new 'peroid' to paint for. The collection I have is 2006/2007. I hope to be able to paint when I get better again, i WILL find a way to stand at my easle again, I LOVE painting and only really relax when I'm doing it, it frees my soul to paint. i also have a big store of paints which shouldnt go to waste. I have to buy some polystyrene boxes for the winter for my paints, because they spoil if they freeze, and it is always frosty in the winter in DK. For those who dont know what i paint, you can see my paintings on
www.bedasatelier.dk (http://www.bedasatelier.dk)

Just in case anyone wants to buy one!! (joke) They are being sold at VERY favourable prices so that everyone can afford an original in their homes!!

So, tomorrow I will be hanging my paintings on exhibition in the local swimming pool, (indoors) where a LOT of people come. last time I exhibited there, I sold 4 paintings at full price, so, theres hope!! Mom will help me hang the pictures, she will be my feet. Shes great, she always helps me, and acts a a driver at the moment whilst i cant drive. After I have my op I will be eligable for an invalid car, with no foot pedals, so i'm looking forward to that!!
Well, catch you all later
XX Beda
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 17, 2008, 06:33:01 PM
Beda, I'm not feeling so good at the moment!  Not only in pain, but very out of it from doubling the lyrica.  I feel drunk!  I hate it! 

Good luck with selling your paintings...I'd buy one, but we can't even afford my OS or PT apts at the moment. 

i will be available to chat in about 5.5hrs.  Did you see my apt post on my diary?  I am not happy! 

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Sore knee on June 18, 2008, 09:15:03 AM
Beda

WOW  ;D Your paintings are fab, I love the clown one and the flower especially. You are a very talented lady !!!! It was nice to see Boris too  ;D

I hope you are easier after your fall, I am worried about you. Let me know how you are.
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 18, 2008, 10:55:25 AM
Hello Beda, I hope you are feeling better after falling down!!!!  I have realized why I am in so much pain...my knee is very swollen...I guess from PT yesterday?  You can't even tell where my knee cap is! 

Well let me know how you are doing...we keep missing each other on messenger!! 

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 18, 2008, 01:37:59 PM
Hi farrah - I knew you were trying to get in contact with me, but when you came through I was in the middle of something with the nurse. Then I had to go out to hang my pictures on exhibition at the swimming pool (indoors), and Ive just gotten home now! I am doing ok, sore but what can you expect when you fall over your own feet! Sorry to hear your so swollen, thats not good. Tell Casey about it. Ice if it helps and kep you feet UP as much as possible. thats the best cure for swollen legs. I was on in the night, but you didnt see me, we missed each other again. Better luck tonight. I have by choice gotten one of the sedatives taken away at the night time because I feel SO tired in the day, so, I probably will have some sleepless nights, but what the heck, I'll live, its not as if I cant crash in the day if I feel tired. I will probabl be online tonight, so hopefully catch you then. Hope you dont have too much pain
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 18, 2008, 05:50:11 PM
Hello Beda, how did your exhibition go??  I hope very well!!!  I hope your pain has eased some too! My swelling has gone down a bit..I still have some around my knee cap though.  I think the swelling was from my TENS unit.  I had it on all afternoon yesterday and then noticed the swelling when I got home, but thought it would go away by today.  I haven't had it on all morning today and the swelling has improved a lot. So I don't know.  I still can't do much weight bearing, but I keep trying.  My PT said yesterday that he thinks my not weight bearing is part of the problem.  I don't understand what that means, but it sounds like wants me off the crutches no matter what?   I am about to e-mail him and hopefully get some good answers about that type of thing. How is Boris?  I will be on tonight to chat again.  I will be on in about 6 hours.  I am trying to cut back some b/c I have found myself on the computer for 2-3 hours while my husband is home!  Not good for me to do that to him.  Most of that time is chatting.  Well let me know how you are doing.  Have a good one!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 18, 2008, 08:42:16 PM
Joanne, Thank you for your kind concern, I am ok so far, I have a lot of pain, but that is quite normal for me these days. I have a #9 on standing and a #8 lying still. I am not supposed to be FWB because of the fracture I have in my femur. I cooked dinner tonight, it turned out great and I didnt stand up once!! I have an office chair thats on wheels, goes up and down and rotates, so its very useful to get around the kitchen.

farrah - I dont think it would be your tens giving you the swelling, more likely be due to something like youve had your leg more 'down' instead of up. i dont know, but if you cant see your knee then theres some serious swelling aand you need to show it to casey. I doubt he will want you to be WB if it causes so much swelling. I wish they would give you an MRI or a CT scan or do a scope, theres something in your knee that shouldnt be there, I feel sure of that! I'll try catch you tonight on messenger.
Love beda
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 19, 2008, 01:36:41 AM
Hello Beda, my Messenger said you were online when I got home, but I IMed you and no response...it's okay...hopefully you were sleeping.  Unfortunately, if you wake up in the middle of the night, I will probably not be on b/c I am not feeling well and just want to lay down.  I have already spent an hour on the computer and can't handle the pain anymore with sitting.  So we will have to miss each other again...I will be on again tomorrow at 5:30am my time though!  My swelling has mostly gone away as the day progressed.  There is a little bit there, but not much.  I e-mailed Casey a lot of questions and hopefully will get a response in a day or two.  He sometimes gets intimidated by my long e-mails and doesn't respond, so we'll see.  My PA has talked about getting me to do an MRI and possibly a scope.  I guess we will talk more about it next week at my apt.  I hope to get more answers talking directly to my OS for a formal apt next week.  Do you think that I should change my 4th opinion to Monday instead of the day before my current OS apt?  That way I can think about what my OS says going into the 4th opinion.  I don't know if that will matter, but that's my thinking. 

Well my constant pain is about #7 right now with walking pain about #9....I am very uncomfortable.  The pain seems to get worse as the day goes on.  Well I am going to go lay down now for the rest of the night.  I hope you don't wake up tonight b/c that would mean you are getting almost a full nights sleep!

We'll talk tomorrow.  I am trying not to use KG a lot during work, so I read posts, but don't always respond until I get home or during my lunch break.  BTW, I can meet on AIM around 12:15pm my time tomorrow (6:15pm your time I think).  I will log on and we will either see each other or not.  That is my lunch hour...so I can do whatever I want online during that time.  Well have a good one!  How was your exhibition??  Did you sell anything?? I hope so b/c your stuff is great!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Sore knee on June 19, 2008, 08:48:22 AM
Excellent way to cook I would think. I of course dont have the same level of pain as you but I find it hard enough so I am amazed and inspired at how well you cope all thinsg considering.

I hope you had  a reasonable night sleep and today is bearable if nothing else.
Title: Re: Bedas Pre-Op diary
Post by: kathat on June 19, 2008, 09:15:26 AM
Hi Beda,

I would have loved to buy one of your paintings. They are great!! My favourites were all sold, so someone else has the same taste as me! I look forward to seeing your new batch of art, when you can stand at that easel again. I think your joy will flow over into your paintings and they will be absolutely awesome!

Any more news on the surgery front? How frustrating it must be for you, just waiting and waiting.

My surgery is over and done with at long last, and I have started a post-op diary in the post-op diary section. I am sore and bored!! Not a good combination. I keep looking over at my sewing machine and want to do some sewing  :( And I finally have the time free to tidy the house, and I can't do anything!! I don't know how you cope, being in this sort of pain daily. You are one strong woman!

I hope you have some good news soon. Take care.

Kathy
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 19, 2008, 06:02:43 PM
Beda!!!   How are you today?  I haven't heard from you all day and that is very unusual!!  I hope you are feeling okay!!  Has the pain from your fall gone away yet?  I hope so.  As for me, still worse than usual, but okay.  The pain comes and goes.  It comes after I have walked somewhere and tried to bear just a tiny bit of weight.  It also comes from sitting for more than 5 minutes without switching positions.  It gets even worse after sitting for an hour no matter how many times I have switches positions.  I am starting to understand all my new pain that stems from PT.  It sucks!  The swelling in my knee has increased a bit and I can't make out part of my knee cap.  It is the lateral side that hurts and is swollen.  Then I also have swelling just above my knee cap.  I just don't know what it's from.  I am not doing anything differently except doing PT exercisies at home.  My constant pain is manageable right now, but the walking pain is not!  It needs to get under control if they want me to try to bear more weight!!!!!  I still try!  Anyway, sorry to go off about my stuff.  I e-mailed Casey yesterday, but haven't heard back yet.  I called him today and he's suppose to call me within the next hour.  I plan to talk to him about the drunken feeling I get with my meds and talk to him about my swelling and pain with the PT exercises.  I am sure nothing will come out of that conversation, but it will ease my mind some.  I will let you know when I talk to him. 

I hope you are okay, Beda!!!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 19, 2008, 06:48:49 PM
Kathy, too bad your favourite paintings were sold, never mind, if you ever come to DK I'll paint for you personally, ad then you can tell me what you like and i can paint it!

farrah!! I'm still here, I have been to 2 CT scans today. One for my sinuses and one for my leg. the leg was an afterthought whilst i was there at the hospital. it was to see if there was any calcification of the fracture. theres not yet, but its still early days. After spending the most of the day in the hospital, i finally got back and just felt too tired and painfull to be on the computer, thus the delay in reporting back, But even I can have a bad day, you bet!! I have a #9 on resting and 10+ on WB. I just cant tolerate so much pain all the time, its driving me crazy.
 BUT I have heard something positive today, and that is there is a very strong possibility that I get sent to Spain to a rehab clinic for people who have had serious operations on knees, hips, backs etc and need to learn to walk again. i have been offered 3 weeks in a little spanish town on the Costa del Sol, all expenses paid by Rigshospital!! i'll sure be needing it by the time that I'm through with all this! I am just afraid that I'm not going to fuse as well as I should, theres something going on in my bones that rejects the metal they put in. I hope my leg doesnt want to expel the rod they want to 'fix' me with. No metal has ever sat permanently in me for more than 3 years at a time. I just HOPE it works. i called the out patients (ortho) at rigshospital yesterday and they said it would take them 2 weeks to see what size rod they need to use. But that was a nurse i spoke to, and she didnt know what i was talking about properly, so i wouldnt be surprized if the OS calls me before that.
So maybe we get to chat tonight. I am very tired though, and hope that i can sleep tonight. If only the pain would stop!! then you know all about that, dont you!!
So maybe catch you later
Love beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 19, 2008, 08:19:42 PM
Hello Beda, glad you are getting good treatment with your knee!  THe trip to Costa del Sol for rehab sounds great!  You definitely deserve first class rehab!  As for your metal reactions, I hope the rod works out!!!  Have you talked to the OS about that possibility of your body rejecting it?  I never thought about that!

Are your pain meds helping at all?  I know you are tired of pain...just think about your surgery that will hopefully be soon.  When are those holidays when the hospital will be closed? 

As for me...I spoke with my PT today...details on my diary.  Since then, my knee locked up and popped and is hurting very badly!!!  Currently my resting pain is now #8...I am icing right now to see if that will help the swelling and pain....still can't see part of my knee cap.  Well gotta go!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 19, 2008, 08:47:42 PM
Farrah - the hospital wont close exactly, but all scheduled surgery will be going at a very low pace, and the OS will be going on holiday too. i suppose even he needs a break sometimes. I only have one OS to deal with me, i dont want him giving my case over to a more junior surgeon - who KNOWS what he could do wrong!!

I have to keep the prospect that I will be a step more towards being pain free when I get this op in sight. I have to have faith and hold on to it, because this constant pain is driving me round the twist. i have a #10 tonight and am sitting here with TENS and ice. i dont think the ice really helps a whole lot, but it makes me feel more comfortable as it is very warm tonight. My pain meds are NOT working very well. i dont know why. I take them as I should, and before have gotten some relief, but now they're just not cutting it.

Tomorrow I hope mom can pick a couple of kilos strawerries so we can make some preserves. I have been saving jam jars so that we can do it. I love canning and jamming, its geat fun and tastes so good. i shall do it by sitting on my chair out in the kitchen.
maybe catch you tonight if i cant sleep.
Love beda xx
Title: Re: Bedas Pre-Op diary
Post by: Sore knee on June 20, 2008, 10:01:23 AM
Beda

Wow. now you so deserve a lovely rehab in Spain. I wosh it would be all fun for you, but at least if you can see and feel visible progress the surroundings will be a bonus. Good luck with the jam making today - good for you.

If you have 2 minutes I thought I would ask your advice. In my diary I have explained whats been happening and someone said I should get checked for bursitis. Do you know what that is ?

Thanks Beda :-*
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 20, 2008, 11:04:04 AM
Hello Beda, I hope your pain is a little less today.  You never mentioned how your exhibition went.  I hope you sold tons of your paintings so you can have a fresh start once you can stand again!!  I hope you have time to relax today! 

As for me, going to my 4hr Friday work day.  I will be done working at 12pm and will come straight home.  Maybe we can chat then...we'll keep in touch.  Gotta get ready for work now!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: tanyap on June 20, 2008, 11:18:51 AM
Hi Beda!

wow!!! rehab in the Costa del Sol!!! I love it!!! That would be so cool!! Things must be moving along in the hospital if they even know about where you will be doing rehab already. Thats fantastic.
Im sorry your fracture hasnt started to heal - Im sure it will.
I hope you dont have too much pain today Beda. And have fun making jam!!
xx
Title: Re: Bedas Pre-Op diary
Post by: Silkncardcrafts on June 20, 2008, 12:13:18 PM
Hi Beda,

Thanks for posting on my diary. Really struggling right now with the pain. Just hard as I'm so limited in what I can take for pain.

It would be awesome if you could go to Spain for your rehab. I reckon it would do wonders for you mentally having good scenery around you.

I hope you can sleep and the pain doesn't get out of control.

Have a good weekend.  :D
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 20, 2008, 07:45:06 PM
BBBBBBBBEEEEEEEDDDDDDDDDDDDDAAAAAAAAAaa!!!  I know you are busy today!  I hope you are feeling okay with changing out those fish tanks with your Mom!  Today is the worst day of pain that I have had in a few weeks!!!  My constant pain started at #8, went down to #6 shortly after taking the 1 lyrica pill, and now is creeping back up to #7 and hopefully will not go higher than that...walking pain has been a solid #10 today!!  I guess I kind of feel like you do almost everyday!!  That isn't a good thing!!!  I hope that you are feeling okay today!  I hope we get to chat some time.  I am going to lay on the couch now for a few hours.  If you "nudge" me, I may or may not hear it.  I will turn the volume up though.  Have a good one Beda!!  I am waiting to hear back from my PA about the meds!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: kathat on June 21, 2008, 06:36:46 AM
Wow, Beda, Spain would be an interesting place to rehab!! It's great that they are considering your wellbeing in the post-op period already. I hope it is a top notch rehab facility they are wanting to send you to. Have you researched it at all? While it is nice to think about going to another country to rehab, realistically you won't be out and aboout much to enjoy the "vacation" and the facilities and reputation of the rehab place you go to would be much more important than the location, so I hope they've thought about that before suggesting the place in Spain. It better be good!!!! You deserve it!!

Strawberry jam sounds yummy right now!! Homemade is always the best type of anything, just because of the love and care that goes into making it.

Things are going okay here. My leg hurts, but that's to be expected. I have had a low grade temperature on and off, which I had in hospital too, so I think I might take my dressing off so I can check the wound for infection. It doesn't feel infected, so I am not particularly worried. I think my body is run down due to what it has been through (surgery, lack of sleep, medications, pain etc) and it is trying it's best to make sure it doesn't get ill (gastro, throat infection, wound infection, or whatever) and so it raises my temperature periodically to ward off anything that it might have been exposed to. If my temperature goes any higher than what it has been, or it persists for longer, then I will be straight on the phone to my OS.

I hope you have a good weekend and that the pain calms down a bit for you.

Kathy
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 21, 2008, 12:53:41 PM
GUYS!! Thanks for all the nice greetings and concern - have just finished making jam, it looks great, is setting well and tastes just heavenly!! As for the exhibition, I dont know if I've sold anything yet, the pictures will be on exhibiition for  a whole month, so theres plenty of time.
Joanne, Bursitis is inflammation of the bursa. The Bursa is the sheath that the tendon is covered in, and when that gets inflamed it can become pretty bad, causing a lot of pain. Bursitis is caused by lake of synoivial fluid making the bursa nad the tendon glide smoothly. A sign of bursitis is pain on movement and occasionally heat locally. heat ing pads can help remendously, it eases nicely with heat, but some people do find that ice helps as well, Immobilisation is the best treatment. A support bandage and keeping the affected area warm by using crépe bandaging or thicker types of tubigrip. I suffer from this too, and treat it with heat. a TENS unit too works wonders.

Kathy. I am a bit worried about your low-grade fever. Keep it in check wont you? I know you will 'cos your a nurse, so theres no use telling you what you need to look for, but i can tell you that for me it is not uncommon that I get a fever after surgery, and theres no infections anywhere, its just the bodys reaction to the surgery, which is a big insult on our bodily funcions!! i wish I could send you a jar of my homemade strawberry jam - its still hot!! But I dont think it would travel well to Australia. You must have strawberries down under surely? But I know your in the winter season now, so probably no decent berries available right now. How cold is it where you are now, and where are you situated?

Well, jam making finsihed, next preserving job will be maybe some peaches. I'm thinking of making some peach jam for a change, thats not so common. I love messing in the kitchen, even though now I have to do things sitting down, I still get them done simply 'cos I'm stubborn and I dont want this stupid leg of mine to dictate to me EVERYTHING that I cant or can do. Wish I could send you all a slice of homemade bread with new strawberry jam on it mmmm!
catch ya later
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: Silkncardcrafts on June 21, 2008, 01:45:24 PM
Hi Beda,

Just checking in to say hi.

Sounds like you had heaps of fun making the jam. Great to do things like that.

Chat soon. By the way, thanks for all your suggestions you put on my diary.  :D
Title: Re: Bedas Pre-Op diary
Post by: Sore knee on June 21, 2008, 04:49:25 PM
Beda

Well done you on the jams !!!  Yummy !!!!

How are you today, hope the pain isn't too bad today and you are coping ok. You do tremendously well, when you paint do you do it sitting ? Where do you get your ideas for your paintings ? Oh and how is Boris ?

Sorry all these questions, I am thinking of you.

(Thanks fore the bursitis stuff, my knee is swollen, and very hard below the wound and out to the medial side and down towards the patellar tendon. Above is swollen but puffy - in other words you can press in on it and the skin is able to push in. Where it is hard you can;t...it feels solid underneath and its of course sore. SOmeone had said bursitis and so I wondered. It is hot and red in those areas but as I have limited movement its really hard to tell if its more painful on movement  as I maybe only have 20 degrees max and those are painful anyway.)

Have a good weekend :)
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 21, 2008, 09:10:14 PM
Joanne - it sure doesnt sound like Bursitis you have. i would be worried that you have a sinus in there and theres some more fluid that needs to come out, thus the tightness and swelling. You really need to see the doc. Even though youve had anitbiotics, its not a certainty that all infection is cleared up. You could well have an infection that the particular anitbiotic youve been on is resistent to. This means that you need another type of antibiotic. i think its strange that its hard. Can you make an inprint of your finger in your swelling? if you can, then its fluid and you need to have a diuretic drug to help you get rid of the excess water. If you cant make an impression in it,,and its red, hard and hot, i would be suspicious that theres still infection there. But the only way your truely going to find out is by seeing an OS or other medical doctor. We here on KG can only guess as to whats up, we cant see it or feel it. and were not pros.!!!I think its too dangerous to guess at what can be up when the risk of infection is there. Infection after an orthopædic operation CAN be a serious thing, and can take ages to heal. it could also be innocent, thats what we hope for, but get it checked out!!

I cant paint at the moment because my favourite position for painting is standing up, and i cant sand up without using crutches. All the picutres on sale now are painted last year and before that. I havnt painted anything this year. I am inspired for my paintings by the lights effects on nature, sunsets, sunrises, spectacular light phenomenas. No 2 sunsets are the same, i take pictures of them and paint after the pictures, with my fantasy as the artists licens!!
Boris is doing fine. he's still on antibiotics and shall be for about 6 days still, but he is his old self again now. Pusswuss caught a woodpecker this morning, it was so bad because its such a beautiful bird. He delivered it on our back doorstep. It took  a while before I liked him again, but cats will be cats, thats what cats do. At least he didnt eat it.

Joanne, on reading your post above again, I have the feeling its a build up of fluid since you can make an impression in it. But i just dont know.
Hope everything gets better soon for everyone
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: Sore knee on June 21, 2008, 09:23:40 PM
Hi Beda

Thanks for the reply. I always find it interesting to hear how artists get their inspiration - you are very good !
Boris was adventurous then, I have 2 cats and know how they can be full of mischief...but thats just them !

Thanks for the input. Where its hard its the reddest and I cant press in really at all, I put my finger there to blanch the redness but it fills with red colour again within a second. the other puffy areas when I press in (and although very swollen)  I can push in, I blanch the redness and it takes several seconds to fill again. It is very painful to try and bend at all. Its when I stand up its thw eorst, it feels like its the pressure inside building up or falling downwards in the knee patella area I just cant quite explain it. I have elevated etc all day and hope tomorrow is better.
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 21, 2008, 10:02:55 PM
Hello Beda,

I hope you enjoyed making your jam today!!  It sounded very very tasty and made me crave some bread and jam!!  I see you online now and I know it's getting late over there, so I gave you a nudge.  I ended up going to my brother-in-law's pool party, but sat inside with my mother-in-law and her friend.  My husband later joined us.  My knee was hurting so badly that I had to go home.  My husband promised that if I went we could leave in an hour, well I knew what would happen with that and still agreed.  So I went while I already felt a huge amount of pain just from getting ready to go.  So we got there, said hi to everyone, then went inside, and an hour later I was beyond ready to go b/c of pain.  It's just that you can't lay down at someone else's house no matter who's it is (unless it's my parents).  So I was not in a position to make my knee comfortable.  So I was ready to go and guess who wasn't!!!  He started complaining that we never see his family...so I made him get a ride home with his friend while I left earlier.  So I am home now and not feeling like sitting at the computer too long.  I will turn the volume up in case you "nudge" me and maybe we can chat for a few minutes if you are interested.  It will be up to you. 

So in other words, still not feeling well.  My constant pain is #7 and walking pain is still #10!  Too many people questioned my crutches at the party...I was so irritated!  That's another reason I don't like doing social things anymore...I hate explaining it.  People are always very curious. 

I hope after your busy day that you are not in a lot more pain than usual...well I wish you weren't in any pain really!!  Have a good night if we don't see each online!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 22, 2008, 01:23:15 PM
Farrah - At least you TRIED to be sociable for hubbys sake, so dont feel bad you had to go. I went to a christmas dinner round about christmas time last year, and I lasted 1/4 hour! Then I had to ask for a ride home in the middle of everything. I didnt even then know why my leg was hurting so much, it was just unreal! I first found out the reason for it being so bad after christmas just after the new year. i got an acute appt. at the hospital with an OS I didnt know, but he took some x-rays and told me then that it was crazily loose, thus I had so much pain. At that point I didnt have so good pain meds, so I was practically going to bed at 5.00pm every night just to get comfortable in bed and because I had to take the oddyssy up the stairs to go to bed and use the bathroom, so I just stayed upstairs. I fixed myself something to eat around about 4pm and then went to bed. I had it REALLY bad then, and could only go upstairs by sitting on each step and heaving my body up with my arms. Now the pain meds are much better, and I can have better relief when I just take them. I get up in the mornings, crawl out inot the living room where I have a glass of water from the night before, and take my meds. Then I lie on the sofa for an hour to let the meds kick in, THEN i can start crawling around.If I didnt have oxycontin I would be driven to distraction all the time. At least with oxycontin + Oxynorm + panodil + relifex I can get a degree of relief. Except these days since the fracture its been real bad again. But today I think that I have a little less pain than the previous few days, so who knows, perhaps the fracture is healing?? I Hope????!!!!!I have a #7 on resting, so there is  a bit of improvement. I dont walk unless 100% nescessary.

Joanne - hope your knee is a bit better today. I do hope some of the swelling is going down, you really ought to get seen to by a doc. Can you go to A&E if its too bad?? Or do they only take accidents etc. Here in denmark any illness or accident thats over 24 hours old, they wont look at you. We have a doctors watch service, where you can call a doctor and talk to one, and get advice, and if he/she thinks you need to be seen then you have to meet up at the local hospital. and see  a GP who sits there and sees emergencies. It is very seldom they come out to you these days, you have to be in a very serious condition for them to pay a visit, and if they think its THAT serious they call an ambulance and you get automatically seen at the hospital. So IF your going to have a heart attack, best not to do it in the evenings or weekends!!!It's crazy!! There is at regular intervals shock reports in the news where seriously ill people either die or get refused treatment even though their on their deathbeds with the system we have today.

The jam is doing very nicely. We opened a trial glass of it, and we had guests and it nearly got eaten all up! If I had had some yeast in thehouse I would have mede fresh bread to go with it, but we had to suffice with bought bread!

Am listening to 'Puff the magic dragon' by Peter, Paul and mary, a relic from my young days, its just SOOO cute!!

XX Beda
Title: Re: Bedas Pre-Op diary
Post by: tanyap on June 23, 2008, 09:58:33 AM
Hi Beda,
the jam sounds yummy!!!
your system in Denmark is similiar to Ireland with A&E except people can go with stuff older than 24 hours, but they did a big drive to get people to go to their GP instead of A&E - which is a GREAT idea except if you become ill on a friday evening of a bank holiday weekend and your GP wont be available til tuesday!!! So no one listens to the big drives because it just isnt practical and people show up in A&E frequently, you can spend many unhappy hours there waiting for something simple.
I hope your fracture is healing - sounds positive that you have had less pain?
Any news from Rigshospital? I do hope they have your rod size in stock soon!!
xx

Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 23, 2008, 10:52:09 AM
Good Morning Beda, I woke up a bit late this morning and didn't get on Messenger.  I think I was out too much yesterday and definitely am paying for it today.  I think yesterday was the most I have been out in months without being able to put my leg up some how.  Even when I was coaching, I had my leg up.  Yesterday I had to sit regular too much!  I am sure you understand that problem!!!  My pain right now is so bad...walking is #10 and resting is #8.  It could get worse as the day progresses since I haven't even driven in to work yet!  I wish I just had pain meds that work!  Then I wouldn't have to worry about how my day will be pain wise! 

Well I hope you have a restful day!  I know it is difficult without a set schedule everyday to keep your mind off the pain or just keep you busy.  I am sure it makes it a long day sometimes!  Bye for now!  If I feel up to it, I may be on Messenger tonight.

Farrah
Title: Re: Bedas Pre-Op diary
Post by: kathat on June 23, 2008, 01:25:50 PM
Hi Guys,

Our system is similar also, but the Emergency departments have numbers for the 24 hour medical clinics and encourage non-urgent cases to go to one of them. Recently there have been some 24 hour clinics that have installed x-ray facilities and more specialist services, and many bulk bill, so it has had a positive effect on the Emergency departments, I am sure. I mean, who in their right mind would want to wait for hours and hours when you could be seen much quicker by popping over the road (or not too far away) to a medical clinic.

Beda - I love the sound of fresh made bread and homemade jam!! I used to make my own bread, but we all put on so much weight that I stopped  ;D I should start again while I am recovering. I am suffering the usual weight loss that I have after surgery. I just don't feel like eating, but I am sure fresh baked bread would tempt me. When I have made it before, we would all sit there smelling the baking bread and longing for it to be ready. I wish your pain would come under control. It's positive that you had less pain than usual - I just hope it continues for you. And I hope you get a surgery date soon!!

Kathy
Title: Re: Bedas Pre-Op diary
Post by: Sore knee on June 23, 2008, 01:48:57 PM
Beda

I have been thinking of your jam all morning  :P ;D

How is your pain  today ? Its funny all the different health care systems we have. I have not great news but dont wish to hijack Beda's diary so will pst on mine.

However Beda you have been a wealth of information and I cant thank you enough. All  the KG here offer immense support and you a :-*re the best
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 24, 2008, 09:17:39 AM
Joanne, I read on your diary what has happened and I have also posted on your diary. I know you are going to go through a very tough time right now, but believe me, IV antibiotics is the BEST POSSIBLE solution, and I know whilst your in the hospital they will take cultures to find out what bug it is youve caught, and which medicine is the directly most effective for your bacteria. hang in there and know that you ae in my thoughts always, I have been in your place before, so I know what you are going through.  The debridement should also help hugely, so dont be too afraid, it will make you more comfortable and help combat the infection quickly.I hope the pain isnt too much to bear, take it really easy in the hospital. be prepared for a longer stay, unfortunatly, but its for the best.
All my love,
Beda xxx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 24, 2008, 05:38:02 PM
Hello Beda, I guess you have been busy today.  I am at work despite being sick this morning and still not feeling very well.  I just don't have any sick days.  If I will be having another surgery this year, I have to save my unpaid days for that.  So I am at work feeling dizzy, queasy, and just really light headed. 

How has your pain been?  Is the fracture pain feeling better at all?  I can't wait until you get some more knews about your surgery!! 

My pain is still relentless and not improving despite stopping PT since Friday (doctors orders)!  I have to make lots of jewelry tonight, so I may not be on the computer much tonight. 

I hope your day is going well!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 24, 2008, 05:58:27 PM
Farrah sorry your feeling so bad, its probably the lyrica thats doing it, your just getting too many meds all at once. Are you eating reguarly? You should never take your pills on an emprty stomach unless directed to do so. That is especially true for morphine derivitates, otherwise it goes straight to your head and makes you sick to your stomach. Just at least take a glass of milk or a bit of yoghurt if you like that. Hope you have fun making jewelry tonight, I think I'll be up if your not too tired. I have been busy today when you logged on, the district nurse was here dosing my meds for me. so I couldnt go.
Hope you feel better as the day goes on! Your not pregnant are you????!!!!!!!!!!!!!!!!!!!!!!!!!! ??? ??? ;) ;D
Love Beda xxx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 24, 2008, 06:11:28 PM
Hello Beda,

I take my meds with food always and a full glass of water.  I don't eat much dinner though.  I just haven't had much of an appetite lately...I have to force myself to eat.  I am definitely taking too many meds at once! 

I shouldn't be pregnant b/c I am on birth control.  It's always a possibility, but I just had my "time" last week for 2 days.  So I doubt it.  It would be very bad for many reasons if I was. 

I shouldn't be at work.  I am not feeling well at all!  At least I am not getting more negative sick time!!  I have been sick for 2 weeks for surgery and another 2 weeks worth of sick time since then. So being here no matter how I feel is important!

I hope you are okay.  If I have time or feel up to getting on the computer tonight, I will log on.  I hate waking you up though!!!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 25, 2008, 01:04:27 AM
Hi again, Beda.  I don't remember if I already told you this, but my PA called.  Not much came out of it, but there are some details on my diary. 

I hope you are sleeping right now!!!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: lis1 on June 25, 2008, 07:32:17 AM
Beda

It's taken me some time to catch up on what has been going on etc but now i have so here i am!!

I sure hope that you get sorted out soon and that the rod you need gets done ASAP.  You will need to keep me informed whilst i am off.  I don't have internet access at home so the  other contact method will be used, and i will let you know how i am doing to.  Pain wise i am so much better off than you and Farrah.  Sometimes having such a high pain threshold (abnormal according to my physio) is an advantage, other times not so.  Try explaing to a stupid GP that you know something is wrong if you're not writhing in agony - it was difficult!! 

Therehab place sounds good - sounds as though finally someone is looking out for you and making sure that you will have the best possible care.  It's just a bind that you have so much pain to put up with while you wait.  Have you heard anymore yet?

Well i suppose i had better do some work instead of chatting.  I hope you have a great day.

Love Lisa x
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 25, 2008, 09:32:04 AM
Hi Lisa! thank you for your kind concern, it really means a lot when you know others are sending their positive vibes as well!!

Great news!! I have sold THREE paintings!! It shows to be just the right time of year to put paintings on sale, they are at give away prices, but I still make about 80% profit!! its just falling in a very dry patch at the moment, mom and I have just got SO many bills after moving house, what with one thing and the other, its incredible. just about all my pension that I'm getting here to the first, I am having to pay bills with, and then we will have to live off of moms pension. I pay all the big bills that are common for us both, mom pays me her half. But this month its so much that we just say my pension goes to bills, and we live off of moms pension.

As for my pains and my fracture. I think something positive is happening, becasue I no longer have the terrible toothachey intense pain on treading down, not that I'm doing a lot of that because I have been NWB since I got diagnosed. But just that my pain killers at last seems to give me some relief, I only have a #7 on resting now, and a #9 on weight bearing. Its still a lot, but when youve had so much pain for so long, even the slightest difference helps!!

Today were going to pick more strawberries and make some more jam! We might as well take advantage of them when its strawberry season, its such a short season, but a bumper crop this year. Then I thought I'd buy some peaches and make peach jelly, that will be nice 'cos peaches are really cheap at the moment. I'll keep myself busy no matter what, otherwise I go crazy just lying down doing nothing.
catch you all later,
Love Beda xx

Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 25, 2008, 11:09:17 AM
Have fun picking strawberries with your Mom!  I hope you get those peaches too!  It's nice to have two different flavors of jam to choose from.  I am glad your pain has eased up even just a little!  Resting pain of #7 is much better!  My resting pain right now, is only #4 since I haven't done anything yet.  My walking pain is #8 right now.  It will all get worse as I move through the day.  Well I hope you have a lot of fun today!!!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Silkncardcrafts on June 25, 2008, 12:13:09 PM
Hi Beda,

Sorry I have been MIA for a while. Just haven't been feeling great.

Thanks for all your support and good suggestions. I have posted another update on my diary.

Great news about selling the paintings. You must be so pleased.

Pleased to hear that your pain isn't as bad now. Hopefully your fracture is well on its way to being healed.

I hope you have fun picking strawberries. Making the jam sounds like heaps of fun.  8)
Title: Re: Bedas Pre-Op diary
Post by: Sore knee on June 26, 2008, 04:21:48 AM
beds
you are amazing and spot on on everything. I just wanted to say thanks. Can't do a long post as heavily medicated. Thanks for all your help you have been correct all the way and I canyt say ty enough.

Hugs
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 26, 2008, 08:18:07 PM
BEDA!  I posted my results from my 4th opinion today.  Not happy, but not sad.  I am anxious for tomorrow's apt!

Meanwhile, I am in so much pain and have to get through 3 more hours of work!!!  UGH!!!!   I have my TENS on, but that doesn't help my "good" knee.  Both are killing me....my usual one is a lot worse though.

Farrah
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 27, 2008, 01:00:13 AM
Beda, I hope you are okay...I missed chatting or hearing from you today.  Off to the couch again!  :(  Everything hurts today! 

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 27, 2008, 09:45:35 AM
Farrah - I had to take a break from KG yesterday 'cos i had so much pain, and i had to do several things, and just didnt have the strength at the end of the day to log in. I had to take extra pain meds and took a sleeper for 2 nights in a row, so I havent heard you if you logged on in the night. I posted on your diary, so look there for comments about your OS apt.
Today I am going to paint a picture. I have foto'ed a beautiful sunset last night, and it has inspired me, so as i need the money, I'm going to try to paint sitting down. My easle is adjustabel, so it will be ok I think. I made more strawberry jam yesterday, it turned out well, and the elderflower cordial is doing fine, I have it in a strategic position out in the kitchen and stir it every time i go past!

Well, I do hope you have luck with you at your OS appt. Tell him how bad the pain is, that your on anti-depressants, and tell him the meds make you sick to your stomach. Also ask to see a PAIN SPECIALIST, and get them to either do a scope or an MRI. DONT be passive, be assertive and tell them that you dont want this terrible pain any more, and that SOMETHING has to happen NOW.
Hope it goes well, have to go get dressed now and find my paints and canvas.
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: Silkncardcrafts on June 27, 2008, 11:09:27 AM
Hi Beda,

That's great you are going to try painting a picture. I'm sure it will be very theraputic. I am looking forward to being able to stand up for longer periods so I can do my silk painting. Just hard to do it sitting down.

I am feeling much better mentally today. Going back to work in the office has been a big plus for me.

Have a good weekend.  :D
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 27, 2008, 12:52:59 PM
Hello Beda, sorry you felt so badly the last few days!  I am glad you got sleep though!!  I hope your painting goes well today!!!  I hope find that it works out for you and then maybe you can start again!!  Well I will be on Messenger later on...maybe around 6:30pm your time...then I will have to go my OS apt shortly after.  So maybe we can chat later. 

Well have to work now! 

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 29, 2008, 12:35:22 AM
Farrah - We can chat on KG now if you want, I'll log on now!!
XX Beda
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 29, 2008, 12:36:45 AM
I am on!!!! 
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 29, 2008, 04:25:00 PM
So, after a long night of burning the midnight oil and working, I managed to complete my painting, and the result was good. So good that my mom declares its the best I've ever done and that she didnt want me to sell it, so now its up on our wall in the living room!! I have posted it on my website     www.bedasatelier.dk (http://www.bedasatelier.dk)     for anyone that wants to take a look. its the last painting shown in the pictures for sale section. Its NOT for sale!! i would be selling myself short if I let this one go for a song because its taken me in working hours the best part of 24 hours directly painting, plus all the time inbetween when I need to wait for layers of paint to dry!! i did it all sitting down, which I must say is NOT my favourite position for painting, and it was with great pains as well. i did a stupid thing yesterday whereby I was standing at a table at my friends, and turned to go and forgot that I am NWB and boy!! Did it HURT!! I put my full weight down, and I just cant tolerate it yet. So that fracture is still causing me pain plenty, but in between my pain meds are now working well.
Farrah - good speaking with you in the night on IM, hope you had a real nice stay at your familys'. i dont know if I'll be on messenger tonight as I am very tired cos i worked through the night last night, so I need to get some sleep, if I dont have too much pain. Hope that your headache is getting better, it will go when you get more used to the morphine. I used to get headaches with morphine, and found that a good cure is to just take some simple old aspirin, that takes it away and doesnt harm you in any way. They actually gave me that tip in the hospital. it sounds strange taking pain pills for the pain that pain killers give you, but thats how it is unfortunatly!!
Well, going to take a nap now, so catch ya all later...
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: maryc on June 30, 2008, 12:28:00 AM
Beda - I just took a look at your pictures - WOW they are great - especially that last one - you really have talent.
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 30, 2008, 01:59:04 AM
Hello Beda, my headache is finally gone after 24hrs!!  I think it was related to the Ambien for sleeping.  Since I have been in so much pain and taking Ambien nightly now, I wake up when the pain meds wear off and the Ambien is usually still in my system.  Since my body wants to sleep, but my mind can't, I guess I get a headache!  Don't know...I should have skipped a night on taking that medication.  Since I have to work tomorrow, I need my sleep, so I can't experiment with skipping tonight or any of the next 3 nights after that.   The one dilaudid ever 4-6 hrs still isn't helping much!  I will keep with it for a few more days.  This weekend is our Independence Day, so we have Friday off to celebrate.  That was the day of the 10k Road Race that I registered for back in March!  I was thinking if I can't run it, I should for sure be able to walk in it!  Oh well.  I will be selling my race number this week!  :(  My name will still be on the list of runners that they print on a huge poster after the race. 

Anyway, I had a very busy Sunday!  The busiest I have been in a while...my knee hated it, but I had to do it all.  First, this morning, we had our 3 hr drive home!  Then, you know I watched tennis for a short while, then I came home and cleaned up my closet some and folded some clothes.  That took a few hours until our power went out for some reason.  Then I paid some bills until the power came back on 30 minutes later.  Then I remember that tomorrow is breast cancer fundraising "hat day".  We can pay $10 to wear a hat to work.  Well I decided to make one, so I had to go to a crafts store to buy materials.  When I came back, Matt wanted to go out to dinner!  UGH!  So we did.  It was delicious.  I came home and then made my funky looking pink and white hat (colors of breast cancer awareness).  Now I am back on the computer wishing you were here, but glad you are hopefully sleeping for once!!!  Your painting was just beautiful!!  I wish I could afford to buy any of them from you!  It would be so cool to say I got this painting from a friend in Denmark.  If we are friends for long enough, then maybe I will have more money later on!  :)  I know you spend a lot of time on your paintings and deserve to make the "moolah" :)  Oh!  Thanks for teaching me a new slang word today...The "L" word...not sure if it is appropriate in public, so I'd rather not spell it out. 

Well I hope your pain from painting eases up for you tomorrow!!  I also hope those other results come out okay on Wednesday!  I know we will talk before then!

Oh!!  If you hear from Lisa some time after her surgery, please keep me posted.  I hate that she doesn't have internet b/c I want to make sure she comes out all okay and in one piece!  Sorry to type so much!!  Have a good Monday!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 30, 2008, 11:05:52 AM
Farrah, nice to chat with you this morning! I dont mind your posts are long, its good!!

Today the pain is less, and i am enjoying it!! I had a really good nights sleep for a change, went to bed at 8.45 and slept til 7.15 so it was really a very needed sleep. its been ages since i did that, so painting pictures at night is therapeutic in more than one way!
have just called rigshpaital, who said that exactly right now the doctor is looking at my case, and I will hear from them really soon! So roll on that day I hear from them!! I expect though I'm going to have to wait until the holidays are over even if the rod they need to use is in stock. he has to have his holiday aas well, so hell go at some point for 3 weeks. But the hospital doesnt close, and there may be another surgeon who is just as capable of working on me, they are ONLY specialists in that hospital, and ONLY deal with difficult cases. We live in hope.

have got to go and bottle up my elderflower cordial, which is ready today, so must go and sterilize the bottles, so catch you all later
Love beda xx
Title: Re: Bedas Pre-Op diary
Post by: Silkncardcrafts on June 30, 2008, 11:12:50 AM
Hi Beda,

That's great you finished the painting. What a great achievement !

I really hope you hear from the hospital soon. Must be awful just waiting.

What does the elderflower cordial taste like ? Sounds interesting.
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 30, 2008, 01:41:18 PM
Beda, that is so great that you called the hospital and your doctor is working on it now!!  Maybe you will get a call today???  Keep us posted on that!!!  I am so glad you got some sleep last night.  I take my sleeping pill and still wake up at 4am!  That's when the pain meds wear off.  Then I can't get back to sleep.  I took a nice 30 min nap this morning after we talked.  I woke up refreshed, but still in pain and sleepy.  Well keep us posted about Lisa and also your hospital stuff!!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 30, 2008, 06:08:44 PM
Well, thank you so much everyone thats seen my pictures and like it!! that gives me encouragement to continue, and i called the exhibition place today where I have my paintings, and they've sold 1 more!! So i took 4 really small pics over, and they got recieved with open arms! things are going really well for me on the painting front, and tonight I will paint again, but I wont be staying up all night doing it - actually i dont feel as well this afternoon as I did this morning. i have more pain, and this evening, inspite of taking my meds to time. i feel like insead of them working on my knee they've gone directly to my head. i feel drunk and the room is spinning. it'll go over I know, but I'd rather have the pain relieving effect of the meds instead of the side-effects.
well, I'm off to the drawing board now and am going to paint some pics, so until later.
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on June 30, 2008, 06:13:01 PM
Beda!!!!!  I am still having so much pain!!  Should I keep taking 1 dilaudid every 4-6hrs??  Should I call my OS?

HELP!

Congrats on that 4th painting!!  That is so awesome!!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on June 30, 2008, 10:23:13 PM
Farrah - I 'd call the os if I were you, I think he'll ok you taking 2 pills, but just check in case he wants you to  wait for a bit yet. I'm really worn out tonight and have a lot of pain, which is driving me mad, so I'm off t bed in a munute. i dont think I'll be available in he night as I want to take a sleeper, I can hardly write this my eyes are closing, so I'll go now,
Love beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on July 01, 2008, 10:59:19 AM
Hello Beda, Have you heard from Lisa??? I Hope your surgery went well and that she isn't in too much pain right now!! 

As for my pain, I Know there isn't much that can be said anymore but it feels good to vent sometimes about it.  Nobody else understands.  Yesterday, at work, we had a gathering towards the end of the day when my pain was at it's worst.  Well I walked in and this lady said, boy Farrah you look tired.  I said, No, I am in a ton of pain.  Then she felt very badly.  I still sat there and joined in on the discussion. 

Anyway, time for me to get ready for work.  I hope you got some sleep last night!!!  Maybe tody you will hear from the hospital!!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on July 01, 2008, 11:16:54 AM
Hej farrah - The nurse has dosed my meds now and has gone, so I am available. yes, I got a text from Lisa. She said the OS did a lot more than he had intended to do, and she had quite a lot of pain. Shes seeing the PT this morning and may be going home this afternoon. I will definitly greet her from you. Today I am going to paint again, so I'll be busy, but I am incredibley tired. My meds make me tired, and when i work I find I dont have the energy to give it my all, the pain is so distracting. I know now how you feel at work, i could NEVER do a day of work right now on these meds, I dont know how you do it, you must be superwoman or somethiing!! I really hope for you that taking your meds 2 pills every 6 hours works better for you. You need to get some relief soon. Well, back to work!!!
catch you later, Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: Silkncardcrafts on July 01, 2008, 11:20:54 AM
Hi Beda,

Great to hear you are going to do some more painting. Did I tell you I do silk painting ? Well, I am starting some more classes at the end of July. Can't wait !! I find it sooo relaxing. Would you like me to post some pictures of my previous paintings ?

Please pass on my regards to Lisa when you hear from her next. I hope she is not in too much pain.

I am on quite a few meds at the moment and not sure how I work, but get through some how.

Would love to see the finished product of the next painting. Can't wait to see it !!!
Title: Re: Bedas Pre-Op diary
Post by: Beda on July 01, 2008, 11:42:47 AM
Kirsty, I have posted my new picture on my website  www.bedasatelier.dk (http://www.bedasatelier.dk)   its the last painting on the page of 'paintings for sale' i would love to see some of your silk paintings, I have always admired that, so please do post some. yes, i have just sold one more picture, so things are going just fine at the moment, its what I wanted as i wanted to get all my old stock out because i have storage problems.

Lisa sends her regards to everyone. Shes had her surgery and the OS did a lot more than he said he was going to do, and shes hurting. Today she has to see the PT and then maybe this afternoon shes going home. i told he to make sure she gets sufficient post-op pain meds with her from the hospital. A couple of aspirins just doesnt cut it.

Kirsty, I know how you feel being on a lot of meds. I get some 36 pills every day, nearly all of the for my knee. I have just had the district nurse here dosing my meds up in dosage boxes for the next week, this is so that I dont forget when I've taken them and IF I ve taken them!! then she is going on holiday for 3 weeks and had to order meds from the doctors for 6 weeks so i suggested we hired a trailer to pick them up from the chemist!!So I seriously know what you mean by being on a lot of meds, but the main thing is, I hope theri WORKING!!!???

Well, going to paint some more now, have got up late today cos I had to take extra pain meds early this morning then I went back to bed, so must get someting done,
Will look in later,
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: Silkncardcrafts on July 01, 2008, 12:19:23 PM
Hi Beda,

I love the painting !!! It is absolutely brilliant. You are sooooo talented !!! I will post some of my silk paintings in the next couple of days.

You are so right regarding the pain meds. It's so important to get it under control. Nothing worse than pain that's not under control. I experienced that last week and was horrible !!!

I can't believe how many meds you are on. Luckily I aren't on that many, but too many for my liking.

Have fun painting ! Can't wait to see the next one. 8)
Title: Re: Bedas Pre-Op diary
Post by: Beda on July 01, 2008, 07:29:31 PM
Have painted all day and produced 7 small pictures, all which are  a bit 'modern' but its what people want, and they are selling, so I use the paints up I have on my pallet so nothing goes to waste!! the pictures are no bigger than 20x20cm and 30x30cm so they sell off at a hundred kroner a piece for the small ones, and 150 kr for the bigger ones. I hate doing this as I dont consider it to be art, But at the moment they have an incredibly cheap thing going on with blank canvasses in the store, so its really cheap for me to produce ............ BUT!!!!!!!! I get such leg ache from sitting down at a table. I have a table easle, which is good, but i cant really bend my knee properly and when theres no supprt under he knee itself, then it really hurts. But i have to make some money somehow to get through the month, this move has left me with some enormous bills which makes my ready cash flow a problem. At least the money I get from the pictures is not taxed because I dont earn enough to pay tax from it.

Its a beautiful summer evening here, we have just eaten dinner outside in the yard, and have just been sitting enjoying the weather. i have hopes for a nice sunset, though there probably wont be too much as theres no clouds in the sky, and its clouds that make the dramatic sunsets. I've been fotographing moms flowers, hope they will turn out well. I just love taking pictures, and tomorrow is supposed to be a brilliant hot summer day, so we are going to drive out into the country,( well I live in the country, but another place,) and i will take some pictures, maybe with the view to paint. I find myself painting too many when the idea is to keep my stock down!!! I have sold 19 paintings last year, so thats not too bad, at least theres interest in my work.

Kirsty, i'm glad you liked my painting, i am looking forward to seeing your silk paintings, they can be remarkably beautifull. have you got a web site??

Well, guys, the day is nearly over for me, and tonight I will enjoy the rest of the day outside, it doesnt get dark before 11.00 so its great!! Will post again soon, hope everyne doesnt get into too many difficulties with pain - remember, take your pain meds regualry every 4-6 hours unlesss otherwise directed - that gives the BEST results!!!
Love to all, Beda xx
Title: Re: Bedas Pre-Op diary
Post by: tanyap on July 01, 2008, 09:58:39 PM
Hi Beda,
I am still following your diary all the time but have been very busy in work, training in new staff member and have not had much time to post - but I am here in the background sending those good vibes to Rigshospital for you!!
All is well with me, I can confirm that I have a LIFE again, just last night i was at a table quiz - me, out after 5pm eh? Now thats a turn up for the books!!! I am still slow and limpy but feel much better both mentally and physically.
This is what I want for you after your op - to have the peace of mind that I have had recently - I know there still hard work and many months of rehab ahead of me as there will be for you but its the knowledge that slow progress is being made and instead of going backwards its good to go forwards!!!
I visited the animal shelter on Sunday and besides doggie love I also went to into the cattery for cat love too - some real sweeties in there, and even one who reminded me of Boris in colouring!!
Well just wanted to drop in and let you know Im still about, I just have not had much chances to post!
xx
Title: Re: Bedas Pre-Op diary
Post by: Beda on July 02, 2008, 10:04:27 AM
Hej Tanya!! Sweet of you to drop by! Well, for me things are going slowly at the moment. i called Rigshospital the other day, and the nurse I spoke with said to me that right at the moment I called, the OS was sitting working on my papers, so, i should hear something really soon! I do hope I dont have to have more tests, x-rays etc but if I havnt heard anything by the end of this week, I shall call again next Monday. its a case of keeping these guys on their toes, though I have the impression that they work as quickly as they can, it is, after all, a very specialized thing.
Right now I'm sitting here for a tlf call from the gyny doc from the hospital about my biopsy results. Correction. I had just decided to call them and did, the doctor i need to talk to is operating at the moment, so he'll call later! so much for making an appointment with me!! he was supposed to call at 9.00am and now it is 11.00am. AND theres gone over 2 weeks since they took the dammed biopsy so they SHOULD have the results by now!1 i seem to spend my life waiting for the Danish health system to function!!! And YOU KNOW what I mean!!!
Well, suppose I'd better go get some clothes on, today is a beautiful summer day, so it wont be a LOT of clothes!! Am going to the beach today I think, not that I can do much 'cos I cant walk with crutches in the sand, but i will sunbathe on the grass. The water is about 19 degrees now and cystal clear!! Im also going to take my camera and take some pictures of the danish country side so I can post them on my website so you guys can se what its like where i live!! did you like my new painting???
Well, have to 'run' now,
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on July 02, 2008, 10:39:24 AM
Hello Beda, I hope you get those results soon.  It is a big set of results that they are giving you which hopefully will end up being nothing, but they should call you on time!  They should realize that you are waiting for them to call!  I know how all that is....my OS/PA's office never calls when they say they will!  It frustrates me to no end! 

I would love to see pictures of the country side and the beach!!!  It sounds just beautiful!  I hope you do end up going to the beach and laying in the sun.  I am sure that is nice and relaxing.  I wish I could do that right now instead of working!  Oh well...gotta make my money :( 

Not feeling so well thanks to my PA I guess...did take 2 dilaudid before bed though.

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on July 03, 2008, 09:30:47 AM
Hi folks!Well yesterday was a summer day, and mom and i decided to play 'summer holidays' and we took a trip out in the countryside and to the beach. i will try to post some of the picture of the countryside in Denmark on my website, but I had an accident with them last night whilst doing it, so now I have to do it all over. Farrah, i'll send you some by e-mail. When we finally made it to the east coast, there was a strong sea breeze, which made the water not so inviting, it was quite cool, AND there was a swarm of giant hornets flying around, and they seemed to attack our car, our car is red, so maybe thats why. So we didnt get out onto the beach, but drove up onto the cliffs and went to an ice cream place and had an ice cream. I took lots of pictures, I just love to take pictures!! As for my knee, it behaved itslef, so I think the stress fracture is finally healing, though I'm still NWB but I do get relief from the pain meds now. Its about time too, cos I had them raised in dosage not long ago, so they should be working, I get about the strongest of morphine types there is on the market, barring heroine which is dihydromorphine, and so terribly addictive, doctors only use it for cancer patients that are going to die and have no hope of recovery.Dont quote me on that its called dihydomorphine, I THINK so, but am not sure, anyway, its stuff you dont want to touch. I get a combination treatment of 2 tpes of morpine, plus other pain meds, so i am well and truely booked up in the pain department. yesterday the gynæcological doctor called me with my biopsy results. There was nothing dangerous going on there, but he said he wants to put a gestagen IUD up, and he gave me an appt. for next friday, and even he TOLD me to take some pain killers before i came to the appointmnet cos it will hurt! And when the doc himself says its gonna hurt, you bet it'll hurt!!! This should stop any bleeding I have. i just dont need all this extra trouble at the moment, it never rains but pours!!!
Today I hope that we will be going to another beach in a bit more sheltered place, and hopefully without hornets, Its going to be hot today around 28 degrees so, the water should be warm. But I cant walk with crutches on the sand, so we need to find a beach with dunes and grass. Whatever, playing summer holidays is sure a fun thng to do, and denmark really is beautiful in its summer attire.
I really hope for everyone that your pains wont be too much to bear today, and that pain meds WORK!!!!
will look in again later, Love,
Beda xx
Title: Re: Bedas Pre-Op diary
Post by: Silkncardcrafts on July 03, 2008, 09:44:01 AM
Hi Beda,

It sounds like you had a nice adventure yesterday. Nice to do those sorts of things. I would love to see some of your pictures.

Glad your biopsy results didn't show anything bad. It sounds painful what you need done, but worth it if it stops the bleeding.

My pain has been up and down. My shoulder surgeon is going to put me on Lyrica. Do you know of that medication ?

Have a good day out. I find it funny that 28 degrees is hot to you. In Australia a hot day would be 35 to 40 degrees. Guess our climates are very different.  8)
Title: Re: Bedas Pre-Op diary
Post by: Beda on July 03, 2008, 11:27:48 PM
Ja, well, our climates are VERY different, and I couldnt imagine 35-40 degrees!! You cant be outside in that weather, at least when youve got 28 it is to be tolerated to sit out in the yard in the shade, or if your fanatical, in the sun to get   a suntan!! Today I went to the library and borrowed some fun books about cats. I have decided that Pusswuss definitly has some abyssinian in him, hes got the colours, the markings in his face, the build and the temperament. hes quite different from Boris, who is an ordinary house cat, but a very handsome one!!!
I havent been on line today because I have had so much pain and couldnt sit by the computer for long enough to answer posts. I'm not going to answer anymore tonight, I'm just SOOOO tired all the time, I think I have chronic fatigue syndrom or something! No, not really, its my meds that make me so sleepy. Its past 12.00 now and I ought to have been in bed long ago, so I will wish you all well, and hope that I can fall asleep if I dont get held awake from the pain.
So catch ya all tomorrow
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on July 04, 2008, 04:48:13 AM
Hello Beda, I just got home from the fireworks...they were nice, just too far away from home.  I also got my nerve gel in the mail today....it's from a custom medication pharmacy and is called Neuroderm.  I used it tonight and it's not feeling so good at the moment.  I think I massaged the area too hard b/c that sensitive area is throbbing right now.  Oh well.  We'll see how it does over time.  I am suppose to use it 3-4 times daily!  That's a lot for me.  It takes 2 minutes to apply it, then I have to let it dry before allowing my pants to fall back over it!  I don't know how I will be able to do that at work 1-2 times during the day.  The directions said that the gel could cause a cool sensation...but it's been probably 30 minutes, and I haven't felt it....just the throbbing in that area.  I rubbed it on and around the knee cap pain too just in case it would help that as well.  Hopefully tomorrow morning will be a miracle b/c I don't know how much longer I can take of all of this!  The constant pain used to be off and on through out the day for about 50% of the day...now it is about 80% of the day and a lot worse feeling!  The Dilaudid isn't really helping much, but I do notice that for about 2hrs during the 6hrs between doses that it isn't quite as bad.  That's why I wish I could take it every 4hrs!  To anybody but you, this pain is completely unexplainable and unbearable...I have stopped explaining why I have been on crutches for 6 months.  I just tell people that I have had complications...and if they continue to ask questions I just tell him it's a long story.  Well it's late here...so about to finally get to bed!  I will chat or e-mail or post back and forth again tomorrow....bye now

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on July 04, 2008, 09:56:45 AM
Farrah- Glad to hear you got your gel. I know it hurts to massage, but with time it should de-sensitise the area and it should help. How about wearing a skirt or summer dress to work? then you wont have to worry about rolling up your trousers or taking them off. thats if you are a 'dress' girl, I know some girls dont like going with dresses and some dont even own one!!
Sorry I wasnt online last night, but I had my computer shut down b/c I have been is so much pain I havnt been able to sit by the computer, not even my laptop was an option. I did open my desktop briefly just to check mail and the most imprtant KG posts but I was only on for about 5 minutes. Another thing is, that since my doc increased my dosage of oxycontin and oxynorm, I have just been SOOOOOOOOOOOOO tired! i sleep inbetweeen times all the time, and cant wait to get into bed in the evenings. I dont usually go to bed so early, as you know, but the past few days the fatigue has been very marked. i think being outside in the fresh air so much also makes you tired, yesterday I lay on my sunbed all day long, except for a bief visit to the library. I borrowed a cat book, it was fun reading up all about cats. its really interesting reading up about genetics and the bit about their colour markings, It made me have some idea whats behind Boris and Pusswuss. last night Boris was funny, he loves to get up in high places and he climbed up onto the roof of the outhouse. Puswuss followed him, and there they were, both of them staring down at us as if to say 'here you cant get us' and they were viewing the big wide world from that angle. I'm sure they felt they were the kings of the castle up there, and when they were done, they were amazing, they just jumped down, at least 3 meters!! cats are amazing like that, they are so agile, its wonderful to watch a cat move around. Then last night Boris climbed up to me in the sofa and we both lay there, Boris in my arms, on his back with all fours sticking up and his belly blotted, and we both fell asleep like that and we slept for an hour! Boris was in 7th heaven!! hes such a cuddly  cat, I was just about to write 'little' cat, but hes not very little at all!!! Hes actually a very BIG cat!!
Well, I suppose that the day has to begin, My pain meds are about to kick in now so I can go get dressed. i will have to see if I can drag myself through another day, I really hope I hear from Rigshospital soon, I tried to call the yesterday but the phones were closed, due to holidays. they'll be open today.
Have just called Riget. have got the news that the rod they need to use has been ordered from Germany, and as soon as they get it, I will be called in for operation the moment they get it in hand!! So that will be in about 5 weeks time or so!!! So now at least I know what the next thing is that is going to happen, it will be THE OPERATION!!! I actually have a realistic vision into being made pain free!!! hows that!!!!I am over the moon, because at last I have something realistic to look forward to! So now all I have to do is enjoy the rest of the summer as best i can, and not worry about the future, the futures going to take care of itself automatically. I can prepare myself for my time in hospital, and begin to make arrangements for how I'm going to cope afterwards, I am very curious as to how I'm going to be able to walk after Ive lost 9cm in the length of one leg!! i wanted to buy new sandals, but thats out of the question now, as my L. shoe is goiing to have to be built up, but all that the hospital says they are going to take care of.Then I will need certain requisites like a high toilet seat and a bath bench, all of which i can get from the helping aids central here in Nykøbing where I live. yes, things are looking up, it almost makes my pains bearable to think that it will soon be the beginning of the end!!!
well, happily I leave you folks here, will look in later,
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on July 04, 2008, 02:00:15 PM
Beda!!  I am so happy for you that you almost have a date set!!!  I am sure you are just so excited now to think that in about 5 weeks you will be on your way to a pain free life!!!  YOu deserve it!  I am sure these next 5 weeks will be slow ones since you will probably be anxiously awaiting that call for surgery!  I am so happy for you!  I hope it comes in earlier than 5 weeks...that would be great.  Just start preparing :) like you said you are.  How long will you be in the hospital recovering?  Do you know that yet?  Will you be seeing your surgeon again before the surgery?  I hope any other "suspicions" get discussed before the surgery.   :-X ;)

Well I hope you continue to get your obviously much needed rest.  I was watching the Peacthree Road Race on TV just to see what I missed this morning :(  It was difficult to watch, but I wanted to see the new finish line.  Last year the finish was in a huge park, but now they are worried about the grass there, so they changed it.  Now, after you finish, you have to walk 1/2 a mile to get to the T-shirt bins.  The t-shirts are the reason why many people run the race!  It is like winning a trophy for running in it!  I have only one so far and had hoped to get another this year :(  Oh well.  Maybe next year.  I proudly wear my 2007 shirt whenever I can!!!  I wore it to my last OS apt to show what I am missing this year!  I have pasted a website link to show what the race is all about. 

http://www.ajc.com/sports/content/sports/peachtree/peachtree-road-race.html

Well it's time for me to get ready for the lake house trip.  Have a good day...I will be on again later.

Farrah
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on July 04, 2008, 11:27:40 PM
Hello Beda, nice chatting today...the gel is called Neuro Derm...it's made by custom pharmacy solutions in a neighboring state.  The ingredients include Ketamine, Gabapentin, Clonidine, and Lidocaine.  I know what Lidocaine is and have started looking up Gabapentin.  Anyway, Have a great sleep!!!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on July 05, 2008, 03:19:22 PM
Farrah - have looked up the drugs above. they are all used for either anæsthsia or pain relief where the pain is caused by nerves. Its strong stuff, and if you have nerve pain, theres every reason to believe that with time these drugs will help you. So keep on applying it at the regular prescribed intervals, and you should get relief. I think it is a very good combination of drugs, its certinly better than the one theyve given me! It should desensitze the tinglig you have, and help against the feeling of intense pain with anything touching it.Ketamine is an anæstetic and gabapentin is a nerve drug, clonodine is also a drug that effects the CNS And Lidocains is a local anæsthetic. A good combination.
As for me I had it really bad last night and I even called the night watch doc because the pain was completely out of conrol again. He said take the extra pills I have every 4 hours ON TOP OF my regular pain meds. I usually only can take 2 extra ones a day, now I'm up on 4. I dont know why it has flared up like this, but it has and I'm hurting. At least I now have an operation in sight to keep me going for the last lap of this terrible journey to pain- freedom. I tried my tens and even though I gave it full power it didnt help. All this medication has resulted in at last I fell asleep and finally at around 6.00am I took my pain meds for the day, and then it eased up and I fell asleep again and slept till 12.00. Oh well, its Saturday!!
So, today saturday I am doing nothing , 'cos I cant 'cos Im too drugged up to do anything. Right now I'm watching BBC Food channel, theres some australian cooks making pasta, tonight I will try to make food for mum and me, I  need to do something to get my mind off pain. I shall greet you all form Lisa. Shes doing OK She says as long as she doesnt move the pains not too bad!! I think we all recognise that after surgery!! so I will catch you all later
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on July 05, 2008, 04:27:04 PM
Hello Beda,

I am so sorry you had such a rough night!!!  I hope you get some rest throughout the evening after making the curry you told me about.  Thanks so much for researching those medications in my nerve gel.  It really helped me understand it more.  When I researched it, I couldn't put it all together like you did.  So far it hasn't helped, but I know I have to be patient with it. 

Well take care of yourself and I hope the extra meds help you!!!  I am thinking about you and hope that we can chat either later or tomorrow some time.

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on July 06, 2008, 10:21:14 PM
Have discovered a huge red and purple patch on my thigh, dont know what it is but it hurts. Am really tired now, so am going to bed now, so, catch you later, Love
beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on July 07, 2008, 03:18:37 AM
Beda, I hope that red and purple patch is only temporary!  I hope it doesn't hurt worse than the pain you already experience daily!!!  Sorry you are having that scare right now.  At least you have an idea of when it will all be an up hill positive journey for you!  It's storming here and I am home alone!!  I am afraid of storms b/c of my past tornado experience.  My dogs are sleeping in the room with me until my husband gets home.  I left the lake early b/c I ran out of pain pills and left the bottle at home!!  So my sister is bringing him home and they didn't leave until really late.  It turns out that my parents bought two jet skis tonight and they all had to test them out before leaving.  So he is far away still!!  Oh well...just took a sleeping pill and hope that it works tonight if these storms last! 

Pain sucked today b/c I spent half of it with only one pain pill!!!  My nightly lyrica pill doubled tonight!!  So we'll see how that helps or doesn't help.  I will just go back to the 75mg at night again if the 150mg is a problem.  Since I can tell that the lyrica is helping that sensitive area some, maybe taking the larger dose will help more!!  I still hate using that nerve gel though!!!!!!!  NOt only does it feel and smell bad, but it hurts to massage that area for 2 minutes!!  Oh well...I will get over it :(  Gotta get to bed now.  I hope you have a better week this week now that you know that things are being taken care of for your upcoming surgery!!!! 

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on July 07, 2008, 09:18:58 AM
Hi Farrah!!!I hope that you didnt get too spooked being home on your own during the storm, it can be pretty spooky to be inside when the wind is howling around you, I have tried it, but we dont have the same kinds of storms that you have, yours are MUCH more serious. We have maybe 2 hurricans a year, and they never last for more that a few hours at a time.
Well, the mark on my leg is still very pronounced, its turned darker today, its as iff the blood vessels just under the skin have broken. I think this is because I was very strained sitting painting Saturday night, It really hurt having my leg 'down' in a sitting position, I am sure that thats the reason it has happened. It is sore and hurts when I move it, I hate to think whats going on underneath that red/purple mark! I have the feeling that I am bruised from the loose prothese hitting something in there, remember the night  had to call the doc? well, its come after that, so somethings happened in there.
Today the pain is a #8 on resting and #10 on walking. I have tried not to BW but I cant but keep on trying to bear a little weight because I get so tired in my arms heaving myslef along with crutches. My legs a dead weight, I really want to bear weight, but it hurts like crazy!! Oh, I dont know, the whole thing is a mess, and as if it couldnt be true, my R. leg is playing up. My thigh on my R.leg has gone numb and the leg hurts under the patella, I do know I have a partially severed patella ligament there, due to an accident I had last summer, where I fell of a bike and hit my knee right down onto the curb of the raod. My PT says I should get operated and ge that ligament joined again, but no ones going to touch be with a 10 foot pole on that leg whilst I can still use it. the last thing I need is 2 bad legs!! But I cant go to my doctor as hes on holiday, so I'd have to see a complete stranger, and he doesnt know me and whats wrong with me etc. so thas no good. Well, I'm sure that whatever is wrong will get put right when they do the op, so, roll on surgery date!!
farrah -I hope that your nerve cream will soon help you, no matter how gross it is, you NEED to USE it, so dont forget to take it to work with you!! I know rubbing it hurts, but that will ease up the more you use it, theres a lot of good stuff in that gel.
will look in later
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: kathat on July 07, 2008, 03:14:08 PM
Hey Beda,

Congratulations!!! The waiting is almost over! So happy to hear that you have a better indication of a time frame for the surgery, even if it's not an exact date yet. I haven't been around lots due to laptop problems. Sometimes it works and other times the whole thing crashes and spends the day going through endless "repair" operations. I think it's a Vista compatability issue  :P I have now worked out how to interrupt the start up process and get the safe mode happening, so at least I can get on and start backing up files, just in case things crash permanently. Grrrr!! I didn't want to spend my time problem solving computer issues  >:( On a better note - I have my first PT session since surgery tomorrow (not counting the PT session I had in hospital, which was just to make sure I was mobilising safely). I am looking forward to seeing my PT again  ;D I hope that mark of yours isn't a sign of anything serious and that it fades soon. My brother fell on his butt and it turned purple - he had to have it drained because of the amount of blood that had accumulated in the tissues!! It made for interesting photos ;D

Kathy
Title: Re: Bedas Pre-Op diary
Post by: Beda on July 07, 2008, 03:48:12 PM
Kathy - Laptop computer problems sounds terribly well known to me. When we moved house I had no permanent internet conection and relyed on a portable one, and of course, the day I NEEDED to use it, it broke, so leaving me without conection on line for some of the most important days of our move. Still, thankfully I have an external hard drive and I have everything backed up on that from both of my computers. I too hope the purple area diminishes during the day. I just took a look at it 5 mins ago and from being duller this morning, it looks like its getting bright purple again. I have no idea whats up, just that it hurts like crazy. I am supposed to be NWB but have tried a little bit of weight bearing, and I just cant. It feels as if my tibia is being driven hard up into my femur. The knee itself hurts real bad, but how can that be when everything I have in there is metal??!! I suppose its the surrounding soft tissues that are involved i making the joint. But WB is definitly out, and theres no sneaking off on one crutch, I have tried to hop, but I dont get very far!!
I have decided to sell my small piaintings at the roadside. Everyone does that over here, if youve got something to sell you just set up a stand at the front of your house out to the road, and there you display what you have to sell and people hopefully stop by and take a look, and hopefully like and buy! I'm only asking for 100kr pr. picture, its a give away, I'll take a picture of it all when its set up. Mom is helping me of course, shes being my legs. The things I lure my mom into doing, she sure doesnt get time to get old when shes living with me!!Its great she is on to most of what we find out we want to do, so we dont get bored!

Well, soon I have to go help make food, and we need to clean up the kitchen. I have an office chair out in the kitchen that I can raise up and down all according to where I am in the kitchen, and it scoots across the floor just great, so I get around in the kitchen.. The 2 cats are sitting here tellig me that it is now 4.45 and time to have something to eat! So I will go feed the cats!
Look in later,
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on July 07, 2008, 06:10:12 PM
Beda, that's so great that your mom helps you so much!!!  How old is she?  That's so weird about all your different areas of pain and now the purple area.  I am so glad you will be "fixed" soon.  You are the strongest person that I know, Beda and I wish I could be as strong as you are!!!!!!!  I admire you greatly and really appreciate all your help and support that you give me.  I wish I could do more for you with all of your pain!  I really hope the PO pain is minimal for you even though I know you can handle anything!!! 

As for me, I am having an okay day today.  Still can't walk of course, but my constant pain is minimal as long as I don't do anything.  Of course I am telling you this during the "good" part of the 6hrs between doses of medication!  Hopefully it doesn't change!  The nerve gel is getting easier to apply...not hurting quite as much!   I met a friend for lunch today..hadn't seen her since before my surgery.  It was nice to catch up!  It was also nice to talk to someone other than my coworkers and husband!  Anyway, back to work for me!!!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on July 07, 2008, 06:43:09 PM
Hi Farrah - am in a LOT of pain tonight, I think I will have to call the doctor again, as I just dont know what to do! I am not that strong Farrah - just used to coping a long time with a LOT of pain! You know, you never get used to pain, it is just as imposing as ever when it gets real bad. I am sitting here writing this, and my pain is a #10 on resting, its throbbing and the sensitivity is enormous. I had to take my pants off because I cant stand my trouser leg brushing up against it. Its strange, 'cos I thought the purple patch was going away, but now its back, all purple and sore. I dont know whats going on with me, all I know is, theres something going on in that knee that wasnt going on yesterday, and its causing terrible pain. just to get relief would be wonderful, but I know how you feel too, you feel the same. I think pretty much we two could sail in the same sea!!!
To top it all, my R.leg is playing up as well. maybe I'll be forced to get that fixed some time. But it wont be right now, and I dont think theres one OS who would touch me right now - at least of them that have half a brain!
We've just eaten and and now its time to relax a bit, if I can. i find that I get relief if I lie on my side with a cushion betwen my legs. Then my knees dont knock together, and its a bit more comfortable. Maybe I ought to try my TENS unit, but unfortunatly it seems to have the reverse effects on me sometimes, it causes pain instead of eases. But its worth a try. My pain is of  a different character today, and much more intense around the actual knee joint. Sorry I ramble on, but this thing has perplexed me greatly!On Friday I have to go to the hospital and get the gestagen IUD fitted, hopefully that will stop the bleeding. the doc said it would, so I'll wait and see. Unfortunatly I cant do anything about my pain meds officially cos my docs on holiday, BUT, I can do what the duty doctor says and take my extra meds every 4 hours. But I get soooo tired, and I know my voice gets affected, it gets slurred as if I'm slightly drunk. thats having 2 types of synthetic morphine at one time. I really cant do any more pain meds than what I'm on now. Come to think of it, if I call the duty doc, the only thing he will say is to up the meds, and I cant do that anymore, I've reached the 'end of the road' so to speak. From now on I have to grin and bear it, though I do feel more like crying.Still, I only have another few weeks to get through, so I suppose that I gone through the worse and now soon I'll be coming out on the other side!!
Have to go now, cant stand sitting here any longer -
Love Beda xx

Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on July 07, 2008, 07:19:38 PM
The only way I can get comfortable is also laying on my side with a pillow between my legs.  I learned that position b/c of my bad back, but it helps with my knees too!! 

Since writing up my last e-mail the constant pain became crappy again.  I just took my next dose of Dilaudid...so hopefully in an hour, it will be tolerable again for 2-3 hrs.  I think you have a lot more pain than I have for sure!!  The DIlaudid seems to control mine a little better.  It's about time I feel that my pain is somewhat controlled!  Took long enough!  It doesn't mean it's gone, but I finally get patches of time that are tolerable with sitting and doing nothing.  It all changes if I try to bear weight or hobble around. It's about time to apply more Nuero Derm. I have made a game of it.  I apply it, then look forward to washing my hands and then using my new lotion on my hands afterwards...it smells so good!!  It is apple scented.  It gives me something to look forward to!

I think you need to get admitted to a hospital and get IV pain meds!!  You can't grin and bear it, Beda!!!  I hate that you are in so much pain!!!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Silkncardcrafts on July 08, 2008, 12:15:20 PM
Hi Beda,

That is great news that the hospital have ordered the rod !!! It will be great when you have a date.

I had knee physio today. Got a new program to start. My physio wants me to do it 4 or 5 times a week. It's hard to see progress at the moment, so hopefully it helps. My physio said he'll personally hit my knee surgeon if he doesn't let me start back in the gym when I see him next. It's just 5 weeks away now. Boy, I miss the gym so much !!!

Tonight I did my anatomy exam and went ok. I start the next module in a couple of weeks. Next year I am planning to do a clinical pilates course.

Hope your pain isn't too bad.  :D
Title: Re: Bedas Pre-Op diary
Post by: Beda on July 08, 2008, 12:47:00 PM
Hi Farrah and Kirsty and anyone else out there!! Well, today sees me with just as much pain, though the purple bit has turned more like a bruise, and thats what i think it is. Its from having my leg 'down' for so many hours whilst I was painting saturday night. So its been so stressed that its bruised me. Oh well, one more experience.
Today I got a letter from Rigshospital. Due to the fact that the rod they need to use for my surgery has to be custom made in Germany, and that the order for it hit the germans industrial holidays, and the fact that they need 6-8 weeks for delivery, my operation date has been set for 27th October. I have to be admitted to the hospital on the 24th and be operated on the 27th. So finally I have a date. Now I can enjoy the rest of the summer as best I can, and say goodbye to my old life as I know it now. I will not be sorry to see the back of these terrible pains I have been in, and am in now.
Rigshospital sent me a whole bunch of info about the department I am going to be on, its a state-of-the- art hospital, catering for people from all over the world. Theres a free internet connection on the department, and theres a library where you can borrow books and music and go on the internet, there's kiosks there with literature in all different languages, theres restaurants and coffee shops, theres everything! I am going to be up on the 16th floor, with a panorama view over Copenhagen. I have been told I will be there for 7 days. I do not know anything yet about the rehab in Spain, but that comes much later on, I have to get over the initial post-op pains first. I know I'm not in for a quick-fix, and that its going to take the best part of 2 years to recover fully from this, but at least the date is set, and nothing should stand in its way!!!
So now I need to enjoy the rest of summer. I need to enjoy the fact that at least as I have it now, I have a certain degree of bending, but when I have my surgery my leg will be fixed with a 10 degree bend. BUT i am looking FORWARD to the operation, because it means that I have a chance of getting free from all this horrible morphine and other pain meds, hopefully I will not have these pains after the initial post-op pains are over with, then I can gradually get out of morphine.My doc who manages my pain meds said he wont leave me high and dry, that he'll see me through getting off morphine. But I dont see it as a problem because I most certainly never ever have taken morphine for the hell of it, I've only used it as pain medication. I dislike the euphoria you get from morphine, I would make for a very bad drug addict!!

Hope that everyone else has a tolerable day, and that those of us that has pain meds, well, that they WORK!!!
Will look in later
XX Beda
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on July 08, 2008, 01:07:44 PM
Beda, so happy for you about your date finally!!  I am glad you are so positive about it all.  I can't wait for you to have Post Op pain rather than this other stuff you have!  Hopefully your knee pain will subside right away after surgery!!!  Well...I guess a few weeks after, right?  I am sure you will have swelling and pain there since they are removing your fake parts.  Hopefully it is all tolerable for you. I am sure you will be able to handle it all. 

Not doing so well here...woke up in more pain than usual!  :(  Hopefully it will improve as the day goes by.  Gotta work now. 

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Silkncardcrafts on July 09, 2008, 10:43:21 AM
Hi  Beda,

Fantastic news that you now have a date for your operation ! You must be so pleased about that.

I am in a lot of pain with my back and shoulder, but my doctor is away for the rest of the week. Will struggle on until I see him next week.

Feeling absolutely exhausted tonight. Think I will get an early night.

Definitely enjoy the rest of summer.

Tonight I saw my psychologist and has given me a few more ideas regarding my parents. If things don't work out I will have a joint session with my psychologist. We'll see how things go.
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on July 09, 2008, 10:55:13 AM
Beda, you'll have to see my diary, but the pain yesterday definitely did not improve!!!!!  In fact it progressed over the course of the day!  UGH!  I have woken up on Wednesday now and still have the pain...it's constant and doesn't allow me to bear weight or even hobble around my house.  So I am using the crutches around the house to prevent added pain :( 

I hope you are doing okay today.  I didn't see you online this morning, so I hope you are out having a good time and enjoying your summer.  I hope your knee is doing okay today.  IS that purple spot gone by now?  Or has it faded at least?  I hope so.  You had me scared about it!  I wish you could see your OS before your surgery!  I don't know if you ever want to.  Anyway, it's time for me to get ready for another long day at work.  Have a good one, Beda!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on July 09, 2008, 08:15:12 PM
Hi farrah - have been sooo tired today I had to go to bed this afternoon and slept for 2 hours middle of the day! have a lot of pain, but my head is doing me in. I feel drunk and out of contact with reality, this medication is making me feel very weird. I have a good mind to stop it, as I'm getting worse like this, not better. I would rather have more pain than this wierd spaced out feeling, not that i like the pain, but at least with the pain I'm feeling I'm still alive and of this world! Now the pain hasnt really subsided and i feel drunk and woosy, my speech is slurred, and I want to sleep all the time. This is not acceptable to be like this, but its a matter of choosing the worse of two evils. havnt been online today cos I'm too tired and in too much pain, wont be on tonight either, need to sleep. have to go lie down now,
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on July 09, 2008, 08:43:17 PM
Hello Beda, sorry about your pain levels despite the extra meds!  Sorry it makes you feel "drunk".  I know the feeling...the doubled doses of Lyrica that I tried once made me feel that way too. It seems that you and I are one in the same in that we both have worse pain than usual.  Mine is out of control and none of my medications are helping.  Yesterday I had a #9 constant pain almost all day.  Today it has been about #7-8 all day.  My walking pain is #10 and there is no way to bear weight right now.  I have had to stand at the layout design table at work a few times today and haven't been able to tolerate it...so I let them have their meeting while I sat down to listen.  :( This is not the life that I want.  I still haven't heard from anyone about the bone scan and pain specialist apt.  I will be calling my OS's office in about 20 minutes.  I am anxious to get this stuff taken care of b/c the pain is unbearable most of the days now!  So I know how you feel except I have to go to stupid work!  :( :( :(  :'( :'( 

Well I hope you feel better in all ways...I feel so badly for you and am thinking about you.  I have missed you during the past few days while you haven't been online much b/c of pain.  So get better!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on July 10, 2008, 02:11:36 AM
its now 2.45 am and I am up, wishing you were here. I had to go to bed at 8.00pm last night. I am depressed at all this pain, and its getting to me mentally. I dont think I will be going on anti depressants though, as I tried to take some meds my doc gave me for bad humour and they had a terrible effect! I felt even more sleepy and down, it didnt have an uplifting or gentle calmness feeling, it made everything downright unable to be tolerated. I forget stuff, I cant even remember this evening that I did the dishes, and an hour after I'd done them I was wondering if I had done them or not!! I am soooo sleepy and out of it. I called my contact district nurse on her hotline yesterday, and she said she would talk to the duty doctor about this tiredness I have, and to see if they can find another form for pain meds for me that doesnt give the saem e side effects. I have no idea what they will come up with, probably nothing, they will just say dont take the tranquilizer, but its easy for them, IM the one suffering here and I dont wat to feel like I'm feeeling. I feel like I'm goin g out of my  mind. I HATE this pain, and oct 24th seems a long way away.
I took my 10 pics to the swimming pool yesterday, théy look good on display, hope I'll sell some! Thats about the ontly thing I did do yesterday, other than that I sat just staring out into the air all day long and has a sleep for 2 hours in  the afternoon. If only it would stop being so hot as well would make life a littel more tolerable. its no fun lying in bed when its so hot.
well, your obviously not online tonight, so I'll leave you here, Sorry to be so blue, but even I get my times
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: Beda on July 10, 2008, 10:15:58 AM
Farrah - it crossed my mind thinking of all this pain we are both in. I have used acupuncture as a means of releif. It works well for a while, and maybe it would work on you cos yours is direct nerve pain, and with acupuncture they stimulate the natural nerve paths, thus causing you to release the natural  analgesic endorphiner you have in your body. Either it works or it doesnt, but its certainly worth a try for you. But I do know you have economical issues, so maybe it just isnt possible for you to see an acupunture therapist at the moment. But think about it, it could well give you relief. I once had carpel tunnel syndrom in my left hand at one point, took some acupuncture on it, and it stopped me from having surgery!!Otherwise I was supposed to have surgery to release the trapped nerve, but acupuncture cured it. The needles they use dont hurt one bit, so theres no need to be afraid there. Acupuncture is an ancient chinese art of healing, and the chinese even perform major surgery on people JUST using acupuncture as an anæsthetic.

Today I have refused to take the meds that are making me feel so tired. So now I fully expect that the pain is NOT going to get better, but really I cannot live a life in a daze of medicine. I will just have to make sure I dont do anything to provocate the pain, like walking or other stuff. I have begun to put a slight bit of weight down onto my L leg, I dont know if its time for that, but I want to kind of try it out so I can measure exactly where I'm at pain wise. At the moment I'm sitting here with my laptop and the pain is a #8. Still too much to be in the 'background' but as long as I keep on sitting here, the chances are that it wont get worse. I am waiting to hear from the nurse after she has taken my case up to conference today. Hopefully they will come up with a solution, I need something for my bad frame of mind.
Farrah - I did see you were on line in the night when I was up, but obviously not on messenger - I'm sorry I missed you - maybe today??

Will look in later
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: Beda on July 11, 2008, 05:13:40 PM
Today I had an apt. with the gynæcologist at the hospital, where I was supposed to have a gestagen IUD fitted. It hurts soooo bad, and having my legs up in those stirrups didnt help either, but anyway, the doc could NOT fit the IUD and decided I am to have a GA to have it done. So I am scheduled to go into hospital as a day patient on Tuesday, this coming tues. Then I will sleep and be happily unaware of what they do to me. Today it hurt so much I nearly spewed up all over the nurse, and I had even taken extra pain meds from home as directed, and plus all the pain meds I'm on now, well, theres nothing more to be done other than have a GA. The doc said he shouldnt have put me through today, that he should have booked me in for surgery immediatly instead of thinking he could do it whilst i was awake. Hindsight is great isnt it!!?? ???
The new meds are helping on the humour bit of it, and the pain is a bit more manageable, but I'm still up on a #8 on resting which isnt good enough. Just if I could have half of the pain I have now, i would be able to hold out. The new meds are making me feel dizzy and light headed, and to be quite honest the room takes a spin every once in  while!

Farrah - hows today gone after you took a free day  yesterday?? i know you only had a 4 hour day at work today, so I hope for you that you have saved up a bit of extra energy to manage today.

I really do hope for those that have pain, that it gets a bit more tolerable, and please guys, remember to take your meds to time!!!
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on July 11, 2008, 10:13:42 PM
Hello Beda, sorry about all you had to go through today with the Gynecologist!!  I can't imagine having to go through that....you just can't get a break with pain, can you?  I hope you are feeling much better with that part by now.  I know your knee is probably killing you!  Sorry about those new meds too...sounds like the "out of this world" feeling isn't quite as bad now, but I could be wrong. 

As for me, yesterday was helpful in allowing me to have less pain today.  The meds have all helped better today than they have in a long time.  I still can't walk or be without pain, but it's better than the last few days.  My GP doubled my dose of Cymbalta (anti-depressant).  She hopes that it not only helps with depression, but with pain. She said it is used for Fibromyalgia pain sometimes.  SHe actually remembered me!  I was surprised b/c I know those doctors see a ton of patients compared to my OS!  Anyway, since I talked to her nurse on the phone yesterday while I was in a huge amount of tears, my GP didn't even question anything b/c she read the nurse's note from yesterday.  So it was a nice quick apt!  I like those types!  Anyway, I hope you have a good weekend if we miss each other online!  I hope that "other" pain is better by now!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on July 11, 2008, 10:55:37 PM
Beda, new update on my diary...talk to my stupid PA this evening....he gave me "great" advice :( :( :( :( :( :(

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Silkncardcrafts on July 12, 2008, 09:51:01 AM
Hi Beda,

So sorry to hear you had to go through that with your gynaecologist. Hope all goes well on Tuesday.

Still got a lot of pain in my shoulder and back. I did pilates this morning which seemed to help. I go back to my physio on Tuesday and then see my doctor on Friday. Do hope he can come up with something else.

Enjoy your weekend !!!  :D
Title: Re: Bedas Pre-Op diary
Post by: Beda on July 12, 2008, 12:01:13 PM
Farrah - please see your diary for my comments about your situation, I dont think I should repeat it all here, its so long!!! But otherwise I know exactly where your coming from, and know that your PA's comments were useless for you, but nevertheless they are the truth which is even worse! I am putting my trust in that symbalta will help your nerve pains, serious depression can lead to serious pain. I once knew  a woman who had so much pain, she couldnt bear to have clothes on! She had nerve pain, and they gave her some kind of antidepressant and it took her pains away, so it could well do it for you. If it doesnt theres loads of antidepressants out there on the market worth trying. I am sure your PS will go down that path as well.
well, look at your diary for a fuller reprt, Hoping that your pains will ease, love Beda xx

P:S: The spaced out feeling is subsiding now and I am beginning to get more pain relief, but this is due to the nerve medicine the doc gave me, the stuff to make me come in a better frame of mind!!! Yeah, me too!! I also get down there sometimes, its not very funny, thats how I KNOW what your experiencing Farrah, more than you think I think!!
Title: Re: Bedas Pre-Op diary
Post by: tanyap on July 12, 2008, 05:39:20 PM
Hi Beda,
Well Im on the catch up after being away for a week (lovely time) and I see there is GREAT news here - a date!!! I know it seems far away, but really, a date is a date and now at least there is something to look forward to. It is just a matter of trying to get through the time between now and then as comfortably as possible. And in many ways, although physical pain is bad, mental anguish about not knowing when or what will happen can be just as bad. I know I was quite desperate last April, then I was told Id have a scope in May and my mood immediately improved - even though my symptoms did not change.
Im sorry you had so much trouble with the gyny IUD situation, I hope it goes well on Tuesday.
Well just wanted to drop in to send you the good vibes!!!!
xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on July 12, 2008, 06:40:29 PM
Hello Beda, thanks for the note on my diary.  I know it's all just the truth that there is not much more that can be done right now except wait for my PS date.  My OS e-mailed me today and is going to see what he can do about getting me an earlier date.  So we'll see how that goes.  There is more information about that on my diary.  My GP did double my CYmbalta daily dose and mentioned that this is often used for Fibromyalgia pain and hopes that it can help me too...note only with depression, but pain.  So we'll see how that goes.  I just started taking it last night.  Right now I am anxious for relief.  As I sit here, my pain feels worse and worse and so is that nerve area.  I e-mailed my OS back and hope to get another response from him...I am so lucky to have direct contact with him now and can bypass the stupid PA.  I know you have given me as much advice as you can!  There isn't much more to be said except to wait or just keep bothering people to get help earlier.  Well I am going to rest my butt on the couch now and hope that my meds that I took about 2 hours and 40 minutes ago will start helping!  I hope you are doing okay.  I have been on messenger for a few hours, but I guess you are probably out or not feeling well...or taking a nap.  I am glad the nerve meds are giving you some relief finally!  I guess it takes a few days!!!!  I am also glad you are starting to feel like you are back on earth!!  I am thinking about you!!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on July 12, 2008, 09:32:07 PM
Farrah - thats great your OS responds to personal e-mails. I doubt theres too many of that type of OS around, if so, maybe we wouldnt be in this mess were in now! No, but really its great. Lets hope he can pull a few strings for you and get you seen to before the 24th.(?? correct date?)

I have slept nearly all day today, i have been very tired,, and feel my new meds are helping me now. This new stuff the doc gave me, this nerve medicine is doing the trick and I am beginning to feel less affected by everything and more able to cope. Believe me I thought a couple of days ago that I was loosing it. have a pain thats like a period pain in my stomach, but thats nothing compared to the pain I'm experiencing in my leg!! i am just surprized that I feel pain sensations at all when I'm on so much pain medication. But its obviously break-through pains, and they cant be hit on the head by anything. I think that I will never be in a 100% pain free state, its too much to ask after 16 surgeries.

farrah - i doubt I'll be online tonite cos I need to sleep all I can, but if i do wake up I'l eave my computer on so i hear your 'nudges'.
PLEASE everyone look after yourselves, thinking of you all, Love, Beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on July 13, 2008, 02:15:32 AM
Hi Beda, you are close on that PS date...it is the 25th, but yes, the OS said he will try to get it moved up for me!  I hope he is successful in doing that since there isn't much more that can be done for my pain until then.  Even on the day of my apt, I will not get instant relief!  I hope they do have a better solution ASAP though. 

I am glad you got rest today and have some relief with your new meds. I am also glad you are able to cope with it better.  I am so sorry about your stomach pain...I guess it's thanks to your doctor's procedure last week....or your ongoing problems?  It does amaze me that you can have so much pain despite so much pain medication!  I feel the same way, but am not taking as much as you are (yet).  I don't think I will every be 100% pain free either in my entire life.  That will not stop me from eventually getting back to the tennis court though.  I just completed my 4th missed tennis season...I think tomorrow is the last set of matches.  I may go watch them if it isn't too hot out and doesn't rain.  I enjoy being around my tennis buddies, but the problem is they always talk about my knee problem and I definitely get sick of talking about it outside of KG and my KG friends.  I just want to have a normal conversation with my friends, but that's also difficult for me b/c my life has been going to work and coming home lately...nothing else. 

My sister and her fiance are coming over in a little while to help Matt go buy this car so that I don't have to ride 1hr there and drive 1 hr back!!  I have been in too much pain today.  Well we'll talk more tomorrow!!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on July 13, 2008, 10:35:53 AM
Hi Farrah; Tanya, good to see you back. Hope you had a fanstastic time, I must say I envy you, and envy is an ugly thing, but I just cant help it!!!! How I would love to go take a week off in some hot country being served on by waiters at the pool etc. thats if you had a holiday like that, i dont know???
Farrah - I hope you are feeling a tiny bit better today. I guess the weekends for you are pretty much building the strength up to start again Monday on a new note, hopefully you can get rid of a tiny bit of pain by not using you leg. Did you go watch tennis?? I think its good you keep goals like getting back on the tennis court as a target. You might not be able to, but its always good to aim high!!
Once again I have taken my morning pills, and there has gone 2 hours and I feel sooooooooooo sleepy all over again. I am in a better frame of mind though, which helps against the pain. I think that if you have a delicate psyke you expereince the pain a lot more than you would otherwise. All I want to do is to sleep, and after I've had some breakfast and shower, thats probably what I'm going to do. I just have it so bad to think that I'm going to have to be like this until october. But THEN things will happen, and I will actually have my surgery!! God knows why I have to go to the hospital 3 days befoe I am to be operated on. I know they have to agree on what kind of anæsthetic to use, and they need to check me out, but I think there must be some more tests they have to run that takes 2 days. I am to be admitted to the department at 8.00am the 24th October and surgery is scheduled for the 27th at 8.00am. Whatever it is, it doesnt matter, because i will be getting closer to my goal,and any step towards that is worth while doing!!So all in all, I'll be in the hospital for 10 days, which isnt too bad. I'm very curious as to the internet connection. I dont think I will be allowed to take my mobile modem with me cos there no mobile tlfs allowed on that department but they have a limited free internet acess, but its only for certain web sites., like the hospitals own and other health sites. I  dont know if KG is one of the allowed web sites, probably not cos its british. But when I am well enough I can go down to the hospital library and go on their computers, or take my laptop to a part of the hospital where mobile are allowed. Mobiles are allowed on the ground floor plane, I'm going to be up on the 16th floor!! But I have read something about you can pay for an internet connection, so I'll do that if I can. If not, folks, youll have to be patient until I get home and can report all the happenings!!

I have been texting with Lisa. She has it reasonably well, not in too much pain as long as she keeps still! i have to greet you all from her, she sends her love. It must be awful being without an internet connection when your sick and have to stay at home, I know for me the internet makes the world a little bit smaller, and I have really met wonderful friends here on KG's. Thank you to all who are supporting me!
Have just had bacon sarnies for breakfast, and now need to go shower, so catch ya later
Love Beda xx

Title: Re: Bedas Pre-Op diary
Post by: Silkncardcrafts on July 13, 2008, 11:11:58 AM
Hi Beda,

I know exactly how you feel with your pain and just wanting to sleep.

Today I woke up in agony, so got up and had some breakfast, took some painkillers and then went back to bed for another an hour and a half.

I have been to the hydro pool tonight and seemed to have helped a bit. Can't wait to see my doctor on Friday to see if there's something else I can do for the pain. It's been unbearable the last couple of days.

Enjoy the rest of your weekend !  :D
Title: Re: Bedas Pre-Op diary
Post by: Beda on July 13, 2008, 12:25:06 PM
Have now showered and eaten breakfast, and due to the fact I got some nourishment on board, I feel a lot better, I'm not so tired. I think I was so tired because I'd not had any food, and you cant run on an empty tank!! Mom has gone swimming, I contemplated joining her in the hot tub, but decided against it as I have it ok now, and want to keep it that way. If I were to go in the hot tub I'd have to travel there in the car, and to be quite honest my energy doesnt stretch that far. So instead I'm listening to really LOUD music, this time Simon & Garfunkel, one of my all-time-favourites, never go out of style.
I have discovered that today my left leg is very swollen. I can put a finger in it and it leaves a hole where the finger has been on release. This is fluid in the leg, not very good, so I need to keep my leg up as much as possible and do vien-pump excersises, but I know I cant get rid of it all like that. I get 2 diuretics to take extra stored fluid in my legs, but its not really taking it 100%. It can be ver tiring to have so much fluid because it is tight and adds an extra ache to the picture. I get worn out by all these small things that follow with this sickness. i just wish everything would miraculously go away, just for an hour or so, just to feel 'normal' again would be wonderful.
Tanya, I am so pleased you had such a good holiday, and that your knee behaved itself!! that was very decent of it, I must say, it must be wonderful for you to go uphill all the time and acheive more and more for each day that goes by, I'm so happy for you!! You have been through so much to get where you are now, so I think you deserve this outcome of your scope. I 've never had a scope that was SO succesfull!! CONGRATULATIONS!!!!!

well now all I'm going to do is to finish reading a book I have in swing, and tomorrow I have an apt. with my nurse who is going to take me to the music library in town. This nurse is not really a nurse, shes an occupational therapist and she comes each week to help me do stuff that i cant do on my own, and stuff like going to the library and the stores are one of the things that comes under her help. its a really great service, and shes such a nice person too. This is simply because if I didnt have the possibility to do things separate from my mom, I'd go nuts!! I need to have a life as well, even though my life is rather limited, at least stuff like going to the music library is fun, and I get lots of new cds to burn!!
Catch ya all later
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on July 13, 2008, 05:34:13 PM
Hi Beda, Simon and Garfunkel are great!  I listen to them now and then.  I once named two kittens that I had, Simon and Garfunkel...they ran away!  This was when I lived with my parents...can't have cats now b/c my husband and I are both allergic to them.  :(  That's nice that you can go places with another person now and then!  Does she come no matter what?  Or do you call her to tell her what you want to do on whichever day?  Is this a service that you have to pay for?  Sorry for all the questions, just curious.  That sucks that your left leg is so swollen.  What are diuretics? 

I know the feeling of things miraculously going away!  I feel the same way of course!  It would be nice to have a normal life!  One where we can come and go wherever we want for however long we want to whenever we want without worrying about pain!  Hopefully your surgery will help you do that after your very long recovery!!!!!  Is there a type of PT that you have to do afterwards? If your leg will be locked at 10degrees permanently, then what can you do to rehab it?  Another curiousity!  Sorry for so many questions today!  I just like to understand things sometimes.  Well I am going to go now since I have been on the computer for too long today!!! 

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on July 13, 2008, 07:55:20 PM
Hi farrah - to answer your questions, yes, the occupational therapist comes whatever the circumstances, always and regulary each week, not necessarily the same day in the week, but she is the one who doses my meds up in dosage boxes. I have to have my meds dosed because sometimes I cant remember if I've taken them or not, so it is security from taking an overdose! or sometimes I cant understand why I have so much pain, then I look and find out I havnt taken my meds!! she also orders all my meds and makes sure I have a current supply in the house, and she picks it up from the pharmacy as well. Apart from doing my meds she is a friend and takes me anywhere i want to go if I want to go anywhere. Its nice that I'm not 100% dependant on mom. I plan to get one of those electric motor scooters when Ive had my op so I can be more independant and be able to go out for a 'walk' sometimes. This occupational therapist is 100% free, which will say that i pay for it through my taxes, of course, cos nothing is free. But I dont need to have any money up front and i never recieve a bill.
DIURETICS are medicines that makes the excess fluid come out of your body. I have no idea to what PT I will have, I know I'm going to have to learn to walk on a stiff leg, but whatever, there will be some, and I also have to learn to walk with a built up shoe as I'm going to loose about 9cm in the length of my leg. not looking forward to that bit of it.

Am feeling nice and relaxed this evening, pain is not quite as furious as it has been, and mentally I'm in a lot better frame of mind. I have done nothing that I didnt want to do today, Ive been underwater gardening in my fish aquariums, and scraping alger from the glasses, have decided that I want to do a big clean up befoe I have my surgery cos I sure wont be able to do it afterwards!! other than that have done nothing to physically challenge me, i have also messed around on my computer downloading music on my MP3 player. I couldnt remember how to do it at first, its just such a long time since I have downloaded music that way, but, if all else fails, read the instructions!! Which I so did and it WORKED!!!!!

Farrah - too bad your allergic to cats!! they are so cute and each one has their own personality. My 2 are just such good friends. if one is in and the other out, I just ask them to find each other and they do! then they have an insatiable appetite, bottomless stomachs, and every time i make a move towards the kitchen, they rush to their posts and think its food time!! they sure do have an inner clock as they know in the mornings that the first thing that happens is, that I feed them. they wait for me to get up in the morning, and even both come and sleep on my bed from 5.00am because they know I'm first up!!
Have just a text from Lisa, she says to send all her love. Shes had a rough day today, she doesnt know the reason. I think she may be getting online again sometime soon.
Have a peaceful night, Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on July 14, 2008, 01:38:46 PM
Hi Beda, I hope you have fun going out today!!!  Just be careful since you are feeling a tiny bit better.  As for forgetting meds or knowing how many to take and when...I have found help with that. I use a container that has Monday AM slot and a Monday PM slot for each day of the week it has AM and PM.  So every Sunday night, I fill them up for the week with the right meds for the right times.  It works great until you run out of meds...then it drives me crazy to ge them filled and find which slot to start filling again.  I ran out of 3 medications yesterday...only filled today and tomorrow and part of Wednesday!  So I called my PA this morning and will be stopping by there either later today or sometime tomorrow to pick up the prescriptions!  My OS has to sign for the DIlaudid, so hopefully that will trigger his memory about helping me with the PS apt.  Well gotta work now.  I hope your day goes smoothly!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on July 15, 2008, 03:10:19 AM
Have to go to the hospital today for GA. will write more when its over and done with, its a bummer as now its 4.00am and I cant sleep, and I cant take anything to eat or drink either!!!So until I come out the other side,
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: luckygrandma6 on July 15, 2008, 10:55:23 AM
Hi beda, missed you. As I said in my  thread my Internet Provider was down for a couple days and it drove me crazy. I'm also busy helping my daughter move so after this week things should calm down.
We were discussing someone posting for you after your surgery if you are not able to use your laptop. How about breaking in your mother. It will drive us all nuts wondering about you and having no way to fine out.
It's 5:30 am and can't sleep so thought I'd check in.
Title: Re: Bedas Pre-Op diary
Post by: Silkncardcrafts on July 15, 2008, 12:19:34 PM
Beda,

All the best of luck today ! I hope it goes well.

Chat on the other side.
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on July 15, 2008, 01:04:45 PM
Beda, Good luck today!!!  I am thinking about you!!!!!!!!!!!   I hope it all works out okay!  Definitely post again when you are back home or are at least done!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on July 15, 2008, 09:19:14 PM
OK. Went to the hosptial taking care to get there in the said arranged time, to find I had to put on some strange operation clothes and get into a very big bed, ready to be driven down to the operating room at 10.15. I dont know why they said come at 9.00 when I had to wait 1½ hours for something to happen. Anyway, got so far as the anæthetist, who complained that I wasnt breathing properly and asked me if I had taken morphine, (which supresses the breathing) and if theyd looked in my file they could have seen I am on massive dosages of morphine. Anyway, went to sleep just fine to awake some 20 mins after with a stomach ache and a nasla cathertar with oxygen which I had to have for 2 hours cos I had very poor blood sats of O2, due to the oxycontin. Other than that, things went well, mom waited for me at the department, and I was out of there by 12.15, (as soon as I coupld possibly go) and got home and went straight to bed where I stayed untill 3.00pm and slept like a brick. Three of the people who treated me were foreigners, it hows that the hospital system are doing their best to employ foreign nurses and doctors now because there arent enough danish ones. All in all it was no big deal, but they managed to make my leg hurt like crazy because they had to put them up. Thus I have a lot more pain this evening than I had before, and am not pleased about it.
Title: Re: Bedas Pre-Op diary
Post by: Beda on July 15, 2008, 09:23:02 PM
above message got aborted half way, but just to say that I am all done in the gynæy dept now, and though will have to put up with some discomfort for a few weeks, all should be well soon again. I'm not posting on too many posts tonit as I feel washed out and tired, and just as if Ive had a GA!!! So catch you all tomorrow
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on July 16, 2008, 11:08:03 AM
Beda, I hope you are feeling okay today...I imagine you would be tired today from the GA.  I hope you aren't in pain though from the procedure.  I also hope that your meds for your knee are still helping some.  I miss you yesterday!!!!  I was thinking about you through the day though. 

The lidoderm patch (lidocaine 5%) helped that nerve sensitive area through out the day, so that was good. Peeling it off after the 12 hours killed!  Then had pain from that for a while and it slowly faded back to numbed up.  Then 3 hours later I decided to touch it to see how it felt compared to when the patch was on and it hurt so bad...every pain imaginable is what I experienced at that moment!!!  Then it hurt for the rest of the night :( I couldn't get to sleep...so no more touching it :(

I hope you are doing okay!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Silkncardcrafts on July 16, 2008, 11:11:45 AM
Hi Beda,

Pleased to hear that things went ok. I hope you are not it too much pain.

Rest up and look after yourself.

Chat soon.
Title: Re: Bedas Pre-Op diary
Post by: Beda on July 16, 2008, 07:08:53 PM
Hi everyone! Am back today, my same usual self, though feel a bit tired and would you believe it still nauseous after the anæsthetic! But I was assured all this is very normal, so I'm not worrying. Today I have no stomach ache and no bleeding, so if it continues like this, its a cure!!!
As for my leg, they wernt careful with it whilst I was under GA as today have a pain in it that I never had before. It hurts on the lateral side of my knee, it feels like it has been twisted out of shape. I bet they forced it to get it up in those wonderful gyny positions on the operating table. I am not a happy camper at the moment, but what could I expect? I have an awful lot of catching up to do, so I will try to answer a few posts, but am still a bit slow. Otherwise I think that the fracture must be healing, 'cos I did a tiny weeny bit of WB and it didnt hurt near so much as it has been. But theres still a long way to go from being normal, which will not happen until after I've had my surgery. My pain is now a #7on resting, a #9 on walking or just being standing up without supporting on it. Its as if when I get in the standing up position with my leg down, its like all the blood rushes to it and it begins to throb like mad, I cant stand it for very long at a time, I just have to have my leg 'up'.
Please have patience with me if I havnt reacted to some posts, it has been difficult to keep up on top of things these days.
Thinking of you all,
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: Beda on July 18, 2008, 05:14:01 PM
dear friends. Due to too much pain and discomfort I'm not posting right now, I cant sit at the computer, so please all get better soon and  dont have too much pain -everyone!!!
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on July 18, 2008, 10:00:29 PM
I hope you feel better quickly Beta!!! 

Farrah
Title: Re: Bedas Pre-Op diary
Post by: tanyap on July 19, 2008, 10:46:16 AM
Hi Beda,
I hope you are ok, I have been catching up with your diary, Im so glad your gyny procedure is over with, and that all is ok in that area.
xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on July 19, 2008, 06:31:01 PM
Beda, I really miss you and really hope that you feel better soon!!  I know you may not get this message for a while, but I felt the need to type it anyway.  I am so sorry that the GA caused the medical people to "toss" your legs around and make you feel awful! I wish there was a way to adjust your meds again to get you at least some relief.  This is not right for you...or anyone!  You definitely don't deserve this pain b/c you are such a great and caring person!  You help all those that need your help on KG.  You also give great advice to me and everybody.  I just want you to know that I really care about you and wish there was something I could do for you to make it all better.  I wish your surgery date would come up quicker.  I will be watching for any new responses which hopefully will mean you are feeling a little better to be on the computer for a little while.  I miss our chats and can't wait to do those again!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on July 20, 2008, 04:19:34 PM
Farrah - Thank you for your sweet words. I too wish my surgery date could be sooner, but it is as soon as it possibly can be, b/c these people who custom make the rod that has to go in my leg work very slowly, they want 8 weeks delivery time, so after their summer holidays, well, were in october. I wish for you that this bone scan can help to make a final diagnosis for you, and that the PS appt. goes just fine, as I know it will.I know this PS is THE only way out for you, youve tried everything else possible, and when the morphine doesnt work everything points to nerve pain. Nerve pain is some of the worst pain there is to deal with, but the PS has special medicine to tackle nerve pains, so hopefully he'll start you up on something.
I have been sick with pain. I havnt been able to do anything but lay on the couch all day yesterday, which makes it difficult for me to fall asleep in the evenings cos I dont use up any energy. My meds arnt working really well, I dot know whats up, but failing being admitted to the hospital for IV pain killers, nothing can be done. I just have to learn to live with it until october. The only thing thats keeping me going is the fact that I have a surgery date!
I wish I could take all of your pains away, everyone who reads this, as I know pain sucks like hell, but somehow we all have to do what we have to do to keep pain at bay, and my strategy has been the past couple of days not to post or be on the computer, so please forgive me if I havnt responded to some postings. SORRY!!! I' m only human!
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: tanyap on July 20, 2008, 07:45:14 PM
Hi Beda,
I read on another thread that you thought you were complaining a lot on KG about your problems, so I just wanted to tell you that you are NOT AT ALL!!! In fact, you probably complain least of anyone who is dealing with so much pain and wait times for your operation etc... So never feel that!!!! Anyway, I come here to moan sometimes, we all do - its allowed!!! Now how would I have ever seen pics of the wonderful Boris, or all your lovely art work if all you did here was complain eh??? You have always been such a great inspiration to me and others, and you have really helped so many people here!!
I havent been on so much myself recently, what with being on holidays and then not in work for the last week either, its been lovely being off work for 2 weeks, and also nice to have a break from being on a computer so much!!! I have still checked in to read but not to post sometimes though!!
Im so sorry that youve been in so much pain, this is the last stretch for you Beda - I know your surgery date seems a long way off now but you will get there!!! Do anything you need to do to give yourself some pain relief!!! You will make it, we will all be here to support you and try to make the next few weeks pass quickly!
xx
Title: Re: Bedas Pre-Op diary
Post by: uufan on July 20, 2008, 09:23:10 PM
Beda, can docs do nerve block, or something like that.  I was supper lucky to damege nerve that responsible for pain, so i am almost pain free most of time.  4 advils are my pain meds of choose. 
Title: Re: Bedas Pre-Op diary
Post by: luckygrandma6 on July 21, 2008, 01:55:32 AM
beda, everything everyone else has said here goes for me too. I think about you all the time  and I just wish I could sit by your side and hold your hand and give you the words of comfort that you have given me.
How is the bone healing. Are you staying off it like the doctor told you. Could a lot of your pain be from that. It has not been nearly long enough for a bone to heal.
Do you use heat and ice. When my knee was hurting so bad I would go to bed at night with a heating pad wrapped around it and what a difference. Do you take hot baths and relax in the tub. Have you ever heard of Biofreeze or other things you can rub on your knee that will penetrate and help the pain. How about hot moist compresses. I have found that a lot of external treatments have helped as much as the pills at times.
I got my appointment with a Pain Specialist for July 29. Probably all they will do is keep me on pain pills as I can't have injections in my back now because of the operation.
Take care beda and just know that you have a lot of friends on KG who care about you. You have been there for us and we will be there for you.
Title: Re: Bedas Pre-Op diary
Post by: Beda on July 22, 2008, 12:17:27 AM
Dear Friends. Thank you all, each and every one for your love and support. Today has been one of those days which started out with the nurse coming to dose my meds, and then mom and I went to the store to pick up a few things. I dont know what it is, but I always manage to spend more than intended, we went to a new supermarket that has recently undergone remoddelling and is HUGE and the sortiment was great! Anyway, by the time we got back from there, i was tired and aching, and I havnt been feeling well as I still have got a returned stomach ache, but expect that in the first bit of time after the gyny procedure. Other than that, no complaints further in that department. Now we are in the 3rd week of July, and before we know it it'll be August, then sept. then october!! I think time goes past quickly, and theres several more 'office' like chores that need to be done, but I just havnt had the strength to sit by the computer cos of the pain invloved. So I am doing this now whilst things are a bit better.

Farrah - I think you will find that your bone scans are conclusive, cos if you showed up more in your one side, the operated side, then the bone scan is positive. This lightened up area is a sign that theres some kind of activity going on down there, over and above normality. But I am no OS, Ive just had several of these bone scans and know what they show and mean b/c I have tried it so many times.

I hope tomorrow will be a better day, I hope the rain will stop and the sun will shine. I hope my pain will be less, but thats a wish I know is not going to be granted. I havnt seriously tried WB yet, its not 6 weeks since the diagnosis. I will try it in a couple of weeks time, but I have new pains today in my tibia, it burns and aches a deep achiing pain, I dont know how to describe it, but it definitly doesnt feel 'right'. I have after all, this loose implant moving around in there, and I know that that is the cause of all my trials and tribulations.

I had a small win in the lottery on the 18th! I won 1200.00kr which is about 300$ so I can pay some more bills with that. the house moving has taken it out of us economically, but were beginning to see the light at the end of the tunnel now. On the 9th August I'm going over to some friends house to stay for a week because they are going on holiday and I'm going to dog sit. They have a tiny dachshund, and  a cat, so I'm goin g to look after them. its no big deal, the dog just goes out in their big garden, and the cat looks after himself. This couple helped mom and I move house, so we owe them one, and I just LOVE dogs, so its a fine task for me!!

well, now I'm getting sleepy, hope that those who are in pain gets relief,
Lot s of love, beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on July 22, 2008, 01:24:10 AM
Hi Beda, I am glad to see a nice long post from you.  You are the only one I am posting to tonight b/c of my stupid pain.  I did get the results of my bone scan...kind of.  My diary as more to say about that.  My OS said that the bone scan didn't look as bad as he usually sees it to call it RSD, but there is more about that to see on my diary. 

I hope tomorrow does bring you a less painful day! 

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Silkncardcrafts on July 22, 2008, 10:11:15 AM
Hi Beda,

Sorry to hear you have been in so much pain. I do hope you are feeling ok with in yourself.

My pain has improved this week, but still is quite bad. Working less hours has definitely helped together with trying dry needling.

Think of you often.

Title: Re: Bedas Pre-Op diary
Post by: Beda on July 23, 2008, 06:47:32 PM
Hi Friends!, Ja, I havnt been posting on others posts, I'm sorry but I'm really not feeling very well these days, both mentally and physically. I have an enormous ammount of pain - and I apologise for keep bringing it up, but it is driving me round the bend, insane! I never realised one could put up with sooooo much pain for soooooooo loooong.Today mom and I took a drive along the coast, just to get me out of the house and thinking of something different, and it worked. I managed to take quite a lot of really nice pictures of the Danish coastline, which is very beautifull at this time of year. So that succeeded in helping my humour. I am really suffering mentally as well as physically with all this pain. I am couting the days to october, I never thought I'd wish my life away, but I wish the next 3 months will just disappear. Today mom spoke with one of her friends who works as a nurse in the hospital near me, not the hospital I'm going to be treated in, but she told mom that if i wanted to use the offer of PT in Spain, then I have to start applying already NOW!! I have a date for surgey, so I'll know more or less when I should be able to travel. I have a contact with a patient counsellor in the hospital, so, tomorrow I will call her and get the wheels in motion, so to speak!! Right now I just would sooo love to be in spain enjoying the sun and warmth, and getting the treatment that I sorely need. I'm so sorry if it sounds egocentric, but at the moment I have to look after no.1, no one else is going to do it for me just yet!! Oh, Make no mistake, my mom is a genius, and she really helps me a lot, but just going through life with a permanent handicap I hadnt reckoned on - not just yet at least. I knew when I had my last TKR done, I said to myself, I wonder what I'm going to be like when I retire at 65, and the answer is, I'm going to be a invalid, but the handicap CAN be overcome, I will NOT let this thing beat me. Its taking its toll on me, yesterday I took extra meds and slept from 2.30pm to 6.45 pm. I just couldnt stay awake, this is No LIFE! Roll on October is all I can say.
Well, I do hope that those of you who have pains, gets some relief tonight, even if its only temporally. I am going to try to WB next week I have decided. I dont know if its wise or not, but somewhere I have to start.
Today my pain has been tough, around a # 8 on resting and no 10 on walking. Although I dont WB it still hurts just to get in the uprised position, standing up with feet down and head up like we all should be, well, my leg just wont have any of it!! but I know I'm in for a lot worse before this gets better. At least having so much preparation time before the surgery, I can get myself organized in the way of finding out how I'm going to tackle having  a stiff leg.
Once again folks, sorry for only complaining, but i cant write anything more positive at the moment. So, until next time,
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on July 24, 2008, 03:12:07 AM
Beda, so sorry for all that you are going through.  I definitely admire your strength in getting through all of this.  I understand how hard it is even though I get moments of relief now and again....it's not a lot of relief, but a little and it's better than nothing.  I don't remember what I told you last, but I spoke with my OS's office and they now want me to get an MRI.  More details of my bone scan report are on my diary post.  Maybe you can do an even better job of explaining it!!  Anyway, my MRI is on July 30 @10:30am my time.  Well the herbal sleep drug is starting to work...going to bed now.  Good night!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on July 25, 2008, 08:06:56 PM
Dear friends. Just a little update to this diary. Today has been a good day, I havnt had so much pain and I tried a bit of PWB and it went well. But I dont think its ever going to get any better than it is now, cos my implants are loose, and its that that hurts me, these things moving around in there. I was very carefull, and tried just a tiny bit. it hurt, but not as much as it has been hurting, so I do think the fracture is mending. I get stabbing pains in it when I am just lying on the couch or something, doing nothing, and then it shoots in me like I'm being stabbed. I feel a difinite feeling that something moves out of joint so to speak, and thats whats causing the pain.

This morning I went to the swimming pool and went in the hot tub. I also managed to swim 250m with just letting my leg lay still in the water and doing crawl, propelling myself along with my arms. it was really good to get moving, and I have decided that I need to loose 5 kg in weight, so this is all for the Good Cause. it was really good to get moving, and to have a natural tiredness because I've excercised and not just through drug inducement. It was great in the pool, hardly any people, everyones on holiday, everyone goes to the beach in these days of industrial holiday. Am glad time is going fast, bringing on august which is that much nearer october!! It really feels sinful to wish the time away, but when you have a bad quality of life, anything that is towards the better cant happen fast enough.

Farrah - hope the appt at the PS went well. maybe we can chat tonite, i cant promise anything, but will try to be awake.

Everyone, look after yourselves and do what you have to do to be in as little pain as possible, I'm thinking of all of you, each and every one. Pain sucks, be good to yourselves.
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on July 27, 2008, 12:45:29 AM
Hi Beda, I am so glad you have figured out a solution to your meds and controlling your pain some.  The pool sounds great!  I bet it felt so good to be able to get some exercise finally.  I hate swimming so much!  Floating is nice though.  The weather is rainy right now, otherwise it would have been a good evening to go to the pool up the street.  How far away is the pool you went to?  Is it a gym facility?  Or is it just an independent aquatic center?  Do you have to pay for it or is it public?  Just curious how it works there. 

Well I hope your weekend is going well and that you are getting sleep and some pain relief even if it's just a little.  My meds are helping me better now...still have lots of pain doing anything, but the constant pain is finally becoming controllable at times.  Well, maybe we'll see each other online tomorrow. 

Farrah
Title: Re: Bedas Pre-Op diary
Post by: tanyap on July 27, 2008, 11:56:12 AM
Hi Beda,
I am sorry you have to put up with so much pain, it will soon be over, your operation date is getting closer each day, it is almost august already - we will keep you entertained with posts here and try to help you while away the time!
I am so glad you went to the pool, brilliant you were able to swim with your upper body only, that will be so good for your general health, and also doing it might help you to 'forget' your leg a little while you are in the pool. I bet another nice part is that you are no different to anyone else when you are in water eh? Last year on my holidays a man in a wheelchair was going into the pool and swimming lots with just his arms, he looked like he really loved it.
How do you get into and out of the pool?
Its ok to wish away time when you are waiting to get rid of your pain and start living again, you will have a lot of things you can do after your operation that are impossible now so you will be very busy then - now its ok to wish the time away!!! I was the same waiting for my scope. Its the way we all feel when we have pain that is going to be fixed.
I hope you have as good a weekend as possible!
xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on July 28, 2008, 05:39:19 PM
Hi Beda, I hope you are doing okay today!  You deserve a nice relaxing pain free day at some point in your life...I know it may not ever come, but one could wish for you :)

My constant pain has been minimal lately, but the walking pain is horrible!  I have also had a lot of popping from bending and straightening and standing up.  Sometimes the pops hurt, other times they don't.  I know it's probably scar tissue breaking up.  I also know that it's thanks to my weak muscles that my knee cap is shifting around so much.

Well I am thinking about you and hopefully we will be online tonight. 

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on July 28, 2008, 09:30:04 PM
Freinds, thank you all, each and every one who follows this journal, it means a lot to have some support in this o so dificlut time.
Well, today I have been PWB and it is ok. Its as good as its ever going to get, b/c it wasnt better than this before the stress fracture, so I think the fracture has healed, and I just have my ''usual' pains! I dont think I'm going to be able to be FWB as I havnt been for near on 3 years, so nows a bit late in the game to wish for that, BUT at least I have the prospect of surgery getting closer for every day, so that must be a point on the horizon I am aiming at.
Today I've failed to hold my diet and ate ice cream!!! It just got so hot here indoors, and outdoors was worse, so I HAD to have some ice cream, you can understand that guys, cant you???!!! Tomorrow I will once more be very strict with myself and cut out unecessary sugars and fats, and up on the proteins.
I have just sold 3 more pictures, so I promised mom I'd take her to see Mamma Mia, so one of these fine days I will order tickets and we will go watch it! I love going to the cinema, but have to sit in the ailse as I need the extra leg space.

Today I have been doing underwater gardening in my 250liters tropical aquarium, every so often the plants need pruning and  I plant some more, cos the fish eat them, and it looks really good. I did have some plastic plants i there, but my conscience didnt have it good because I want a living aqaurium, one thats got REAL plants and natural decorations in it. Now its looking really good, and I hope the plants will take and grow big. So you see, I cant do the gardening outside in our yard, but I can do it inside, so I DO do something with my time!!
To get back to my pain, its not been too bad today. I have noticed that the hotter the weather, the better I have it. So, If I can get rehab in Spain, I really think I will benefit from it. But I have had  a period of a couple of hours today whereby I was just lying in the sofa and my leg just hurt sooo bad for some reason, not WB or anything. I guess I'm just going to stop wishing it will get better, cos its NOT going to get better before it gets worse, so I can just prepare myself.

Please, those of you who I have posted, forgive me for not posting, but I have had it so weird these days, days of pain really messes with my head and my powers of judgement. I dont think I'm 'nice' when I have so much pain so I wont burdon anyone!!!! I want to have a positive input on my posts, were here to support each other, and that support from all you guys I am feeling strongly, so a big THANKYOU!!!

Farrah - maybe I'll catch you tonight....

Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: Beda on July 30, 2008, 11:14:20 AM
Because of too much pain, once again posting will be sparesome, so forgive me folks.I wish I could gather up the strength, but these pain meds seriously mess with my head, and I need to keep myself sane. So, please dont think Ive forgotten you all, am also having a hard time accepting all this 'time' has to go by before I get my surgery. I dont want to rush it through when they dont have the spare parts they need, but on the other hand 3 months feels like a long time to wait. Oh well, I'll have to hang in here, and if I dont post for a while, youll know why.
Love beda xx
Title: Re: Bedas Pre-Op diary
Post by: luckygrandma6 on July 30, 2008, 01:36:37 PM
beda, you are on my mind all the time and if you need to come here to vent please do. You have earned it and we'll all understand. I don't thank you have a cruel bone in your body pain or not.
No one should be in that much pain and if I had the problems you do I would have made the same decsion you dd.
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on August 02, 2008, 02:59:09 AM
Beda, don't give up!  We miss you around here!!!!  You don't have to post all over these boards, but we are interested in your story.  Since you are in pain, we understand why you don't take the time to read and write on everyone's diaries.  We care too much about you to worry about that!  You have been such a good friend to me and I hate knowing you horribly you feel mentally and physically.  People care a lot about you and keep up with your stories.  So don't forget to give us updates now and again about how you are feeling.  Lately it seemed like for a few days you were doing a little better.  I guess it all went down hill again.  Well I missed you today.  It's the first time in a long time that we didn't talk in a 12 hour period even with our time differences of 6hrs! 

I have some news on my diary today.  There is a lot there, but should make for interesting and quick reading.  Mainly, I didn't get anything out of the MRI if I haven't already told you that.  The other thing is that my OS called me directly from his cell phone to talk about my list of questions!!!!  Monday, I will make an appt with him for the end of the month and also order a new knee brace! 

Well I'm thinking about you and hope you have a restful and painless weekend!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on August 02, 2008, 06:51:08 AM
Farrah - thank you for your kind sweet words, I will never forget you all. I have been in a significant amount of pain these days, which has been messing with my head, so I need to hold low profile. Now we have turned into August, so theres only 2 more month til ocktober, so the time is going slowly by. Its terrible to want for that time should go past, usualy I find that time goes all too quickly by, and I get older all the time!! But now I am wishing time away, which I shouldnt be doing. I must really find something really useful to fill out the waiting times with.
Yesterday I went swimming and sat in the huge hot tub they have at the pool, and then the sauna, but I couldnt stay there for long cos the weather outside has been so hot and humid, it makes any additional heat unbearable. The weather has broken now, and today is overcast, though it is still 28 degrees in my bedroom.
Today I need to clean the gravel in one of my aquariums, so that will keep me busy for the day. I enjoy messing with my fish, and the other day I bought some new water plants for my big 250l aquarium and it looks really good now with fresh greenery. I have to do underwater gardening every so often to prune the plants I have and keep the aquarium tidy.I have gotten rid of all plastic plants, feeling that its cheating and I want a 100% live aquarium, which I now have. For those of you who dont know, I breed tropical fish and have 3 aquariums. I bread live-bearers, which means they are fish that give birth to tiny live fry, instead of laying eggs like most fish do. At the moment I have LOADS of young Platys, all different colours, and am looking for a new strain by introducing some new fish for breeding that I did the other day. I bought 2 females and 1 male the ther day. But thats just what I get up to that doesnt need a lot of knee power, so its god to have a hobby that I can enjoy without straining too much. Mom helps me with the water changes, carrying the water, so its not too bad.
Asides from messing with my fish, Ive not done a whole lot of anything else, because I cant. All around me here at home the harvest is in full swing, theres fields on 3 sides of my house that needs harvesting. Its an early harvest this year, and a bumper crop. Ita a lovely time of year, theres something wonderful about the fact that all the crops we have watched grow over all these months now can be safely taken in house and used for making food for us, yes, we have a lot to be thankful for. You dont quite realize this when you live  the town so much, but when you live in the country its right on your doorstep, so you cant help noticing it.
well, now Ive told you what Ive been up to, sorry I'm not posting anywhere else, bt it is only just possible to post here. I feel so sleepy from my meds the screen is going all weird, and I dont feel good, so I will leave you here
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on August 02, 2008, 08:06:19 AM
Beda, thanks for the update.  I am also happy we were able to chat this morning for even a short amount of time.  Your support is so appreciated and I wish I could do more for you.  Sorry about your pain. 

Your aquariums sound like they are becoming more and more beautiful!  I didn't know there were aquarium fish that can give birth.  I bet that's fun to watch when it's time to.  Do you generally know when that is and are able to watch?  Or how does that work out?  When you have live plants, does that make the aquarium life healthier and easier to clean?  Or do you still have to do just as much work?  Do you have to feed the plants a certain food?  Or do they just live in the water?  I know with saltwater, you have to feed choral and many other living things that look like they don't move or aren't alive...like sea anenomy (sp?) or our sea urchin (which moves so slowly you have to really watch).  It's one of those poisonous spiked urchins.  Every time I look in our tank, he's in a different place.  If I look close, I can see his tenticles moving around.  We also have a very large shrimp in there...well large for my thoughts.  He's probably 2.5" long and maybe 1.5" tall from the sand.  He hides most of the time, so out of the 7 months that we have owned the tank, we have only seen him 2-3 times!  We look and look and just can't find him.  It's so cool knowing how many little creatures we have in that tank that sometimes poke their heads out.  The shrimp and the hermit crabs are often hiding.  The hermit crabs are so fun to watch.  We have two different types which are two different colors.  One type is bright bright red...more like a red/orange color.  It's so pretty.  The other one is a bright blue color.  They are both tropical type colors (bright) and so fun to watch.  They climb right over the rocks and when you think they are going to fall off, they cling on and climb down sideways.  They eat the algae.  Do you guys have Beda fish there in Denmark?  Those fish are so beautiful and very popular here b/c they are very low maintenance since they can live in a fish bowl.  Here, it has become popular to have a Beda fish in a vase type bowl with a plant covering it.  Supposedly you only have to feed the fish this way and don't ever have to clean it b/c it's self sufficient with the plant?  If it was that easy everyone would be doing it, right? I will have to do some more research on that and maybe I will get one for work.  At my previous architecture job, I had a small 1 or 2 gallon tank with a beda in it and a dwarf frog (I think that's what it's called).  Well it was a pain to clean out the tank at work or take the tank home to clean out.  So eventually I just brought it home...well that was a few years ago and long gone now.  I have a bamboo plant at work now!  I have had the same plant for 2yrs now and it's still as healthy as ever.  I take pretty good care of it, but it's easy...just water it. 

Anyway, sorry to go on about that, but I also love my little saltwater fish tank!  It's low maintenance and has beautiful tropical aquarium life.  So sorry about your pain.  How are your paintings being sold?  Are they still set up at that pool facility?  I hope it's doing well since you worked so hard on painting those extra paintings. 

The harvesting sounds great.  When I lived in a small town in Texas, there were miles and miles of corn fields and cotton fields.  It was so amazing and I miss that small town atmosphere.  We used to have a family friend that owned a farm.  So they would tell us a lot of stories about their animals and their crops.  There is a program in Texas (and other states except here in Georgia) called 4h.  It's mainly for young kids through probably high school age (up to 18yrs).  Well it's a program for farmer kids or kids who enjoy being around farm animals or anything to do with a farm.  Well at the yearly festival, they always showed off their farm animal or something they have grown or a project that they have done.  It was a cool program that I always wished I could do, but didn't have any access to a farm type of project and really had no interest at the time.  Thinking back, I wish I would have participated in it since it's not something I see around here too often.  Anyway, that's good that you have some crops for food now.  What types of crops are they? 

Well sorry for your pain and I understand when you get sleepy that the screen starts looking weird.  The other day, I had taken an Ambien and then got on here and the letters looked like they kept switching places.  I'm sure I typed up some weird sounding posts that night too!  Well I hope you have a good weekend despite your pain.  Have fun with your aquariums! 

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Silkncardcrafts on August 02, 2008, 01:14:25 PM
Hi Beda,

Sorry I haven't posted on your diary for a while. Been in so much pain and just been in survival mode.

Do hope you get some relief from your pain soon.

Pleased to hear you have been playing with your fish and their aquarium. Sounds great. Looking forward to getting my puppy in a few weeks. Just trying to find a place to live right now.
Title: Re: Bedas Pre-Op diary
Post by: Beda on August 03, 2008, 02:35:41 AM
hej dear fellow posters - farrah - to answer some of your questions - Ja, you can as a rule see when a fish is about to give birth, the procedure is that just a day or so before its going to drop you gather it up in a birthing tank which is a floatable tank that goes in the main aquarium and the fish gives birth in there. The fry drop to the bottom of the birthing tank through a gitter into a small compartment so the mamma fish cant get to them. If she gets to them she may eat them!! Then when its over you relase the mamma fish and the babies get release 2 days later when theyve grown big enough to hide themselves in the floatng weeds that I have specially for that purpose. Here the fry live until they are big enough to fend for themsleves. I get usually a batch of about 50 fry, but if your lucky you get 7-8 adult fish out of it. But because I have so many fish I let them give birth without putting them in birthing tanks and let them disappear naturally as otherwise i would be over run with baby fish and have way too many fish in my aquarium- I get about 5 adults out of each batch like this. its the fittest that survives, and they give birth around every 6-8weeks, so thats why I dont do anything about them, let them go naturally and I give away the survivors when it comes to that time. Sometimes if I have specially many I sell them to the local fish store. As for the plants, they need CO2 injection into the water to be healthy and survive and grow, and I've just got my co2 tank up and running again after  a while without it. I did have artificial plants, some at least, which have now been replaced with live ones, and they are growing like no tomorrow b/c of the CO2 injection. They need feeding with fertilizer every 14 days. Alger is unwished, though there is a natural forecomst of it in any tank. I have fish that graze on this alger. It makes the environment better for the fish if you have live plants, as some fish eat some of the plants, though I do feed them lettuce and cucumber and melon when I have it. As i have 3 aquariums, I only have the 2 smallest to breeding tanks, the big aquarium is for big fish. Occasionally Ive had a fish give birth in the big tank, but the young dont as a rule survive for very long. I am going to get some more swordtails for my big aquarium so they can breed in it to bring some young life to it. At the moment I have 3 angel fish in it which are directly predators aand eat any smaller fish, so it wont do right now, though I do have a lot of floating weeds that would protect the young.

Kirsty - I didnt know you didnt have a place to live - thats a bummer, especially if your going to have a puppy in a few weeks. Are you looking to rent or what? I once had a rough collie, that I used to show at shows and she became champion, she was a beauty. You can see her on 
  www.sandibeda.com  (http://www.sandibeda.com)  or on my website  www.bedasatelier.dk (http://www.bedasatelier.dk)    so I appreciate the work there is with a puppy. I had sandi from 8 weeks, and got her for my birthday one year in 1995. She lived to be 11 and died of a stroke. I wish she had lived longer, as her family all have lived to be very old, and indeed her father is still living, hes somewhat of a record hes 15 years and 8 months now, so I really feel cheated, but it wasnt to be, so I lost her, but she was my one and all and i would go to the moon and back for her. Now I have 2 cats, the relationship is somewhat different with them, as cats never bond like dogs do.

Well, guys, I have on prupose not spoken of my pains which are terrible, but somehow its not getting better talking about them. I just fill this post with whats going on for me at the moment, so hope you bear with me. i guess its better hearing about live-bearing fish than it is about someone complaining all the time. My time will come when I get my surgery then I promise everyone al the gory details!! I intend to take my laptop with me to the hospital, and theres internet access at the hospital, and IF I go to spain, theres an internet café there at the rehab center, so I'll be in touch. Tonite I am more awake cos I havent taken some of the meds that usually knock my head off in the evenings, and I'm wide awake, but it doesnt matter. Better this than sleeping all day long like before. The pills were doing my head in, and thats no good dealing with a bad psyche as WELL as a bad leg.
Wishing everyone less pain, Kirsty, hope the househunting goes well for you,
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: Beda on August 04, 2008, 01:45:14 AM
Have spent the entire day lying on the sofa cos of pain. Neverthless have read ½ a book and watched some serious TV!! No fishing for me today!!!! Its now 2.40am and I am wide awake cos I havnt got the sleeping meds that I usually get. This is by choice as they messed with my life so much that I was sleeping all day and all night. Now i didnt sleep at all yesterday and have slept 2 hours so far tonite. A natural tiredness will overman me at some point, so I'm not worried!
Farrah - hows that pain doing?

Kirsty - hope you soon find a place to live - moving can be very expensive, so I hope you got you purse lined!!!
Everyone out there, this is the only post I'm doing so I think of you all,
Love beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on August 04, 2008, 02:23:40 AM
Hello Beda, sorry about your pain, but relaxing, reading 1/2 a book, and watching some serious TV sounds like an okay day despite the pain.  Sorry about your lack of sleep, but hopefully it will give you a full sleep another night.  Usually that's how it works out with me.  I will lose sleep for days, then finally have about 4-5hrs at one time.  Usually the nights that I take Ambien are full nights of sleep...about 7-8hrs.  I usually save the Ambien for the weeknights or at least nights that I know I will have an active mind through or when I am in a ton of pain at bed time.  I do my best to decrease the pain with all methods as much as possible before bed, but it doesn't always work out, ya know?  If only there was a magic wand or magic pill that we only had to have one of to make it all better. 

Your fish information was very interesting!!!  I like how you explained how the babies are born and then hide in the floating weeds for protection until they are big enough to take care of themselves.  You know a lot about it and it sounds like an interesting and difficult hobby.  How do you take care of your new plants?  Do you have to stick your entire arm in the tank to do whatever you need to?  Like to fertilize them or anything?  I hate fish tank water...grosses me out!  It is my husband's responsibility to take care of our saltwater tank since I do most of the dog's responsibilities....except exercise them :(  I used to take them to the dog park and for walks.  They miss it and I miss it.  I still take Aury for car rides now and then, but Marshall sheds and I can't have that in my borrowed car for now.  I am suppose to get my "new" car in two weeks!  So then I will allow both dogs in again. 

Thanks for asking about my pain tonight...it's about normal.  It is definitely feeling worse and worse more and more consistently by the week.  I used to be able to bear weight now and again with minimal pain, but not anymore.  Every time I try, it hurts.  Driving is getting more and more painful as well.  Just hitting the break is a nightmare.  I am getting used to dealing with it all and hope that my 2nd nerve block on Thursday does the trick.  My wrist isn't so good either :( 

I hope that you have a better week than night!  Thinking about you!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Silkncardcrafts on August 04, 2008, 08:40:06 AM
Don't worry, Beda. We know what it's like being in that much pain. The weekend that's just gone is the first time I haven't slept most of the day due to pain. Hopefully, it improves from here.

I saw a house at lunch time today and was just terrible. Tomorrow lunch time I am going to look at another place. Hopefully it's better than the one I saw today. Been living with my parents and want to move out ASAP. Also seeing another place on Wednesday.
Title: Re: Bedas Pre-Op diary
Post by: luckygrandma6 on August 04, 2008, 01:52:15 PM
For all of you in so much pain, have you suggested to your doctor to try a TENS machine.This is not like what I had at therapy as I thought. My Pain Management set it up so it gives a gental massage. You put the electode pads around the pain and turn on the machine yourelf, which is battery operated, and it gives a nice massage where the pain is. It keeps the pain from entering your brain and that is what controls the pain. I use it on my back and knee and I can't believe the difference. You can leave it on as long as you want. My Insurance covers this and also replaces the battery and gives me new pads once a month if I need them. Sometimes external treatment is better then taking medicine, in fact I was told it could even replace pain pills. You could even leave it on so you can get some sleep beda. It is very relaxing.
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on August 04, 2008, 02:01:06 PM
Thanks G,

I have a TENS and it's the only way I can get rid of some of my pain sometimes.  I get a skin irritation when I wear it too much or too many days in a row (for about 5-6hrs a day).  I know Beda has one and uses hers every now and then.  I think it only helps her every now and then.  Thanks again!

I hope your day is okay today Beda!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: rozzzie on August 04, 2008, 02:11:29 PM
Beda,

I often read your diary and I'm sending you lots of HUGs and good wishes.  I know how hard it is to wait when you're in so much pain.  You are a strong person and you'll make it.

Your aquariums sound lovely.

HUGs
Rozzzie
Title: Re: Bedas Pre-Op diary
Post by: Beda on August 04, 2008, 09:42:37 PM
Rozzie - tahnk you for your knd words - it means a lot when people show their supprt, it carries one through difficult times.

WELL!! Today I have seem Mamma Mia, its GREAT!! I can thoroughly advise it for anyone whos feeling a bit down in the dumps, its a travel iback n time to better times and an experience that mustnt be missed. Mom and I enjoyed it throroughly. Meryl Streep and co do a fantastic job in this amusing and  stunning performance. Well recommended.
Well, thats it for today, pains still there so thats nothing new, will be looking after one of my friends dogs next week. i will be house sitting and dog sitting. All I have to do is to let the dog out in the garden and feed it and the cat, for a wek, so it wont be difficult. Will at least be a change of scenery.
catch you all another time
beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on August 07, 2008, 04:11:06 AM
Hello Beda, I hope that your pain is doing okay lately.  I just wanted to pop in and say hello.  Seems like we haven't had our usual chats lately.  I guess we keep missing each other.  I have also been off the computer more lately so that I can spend time with my husband since this is our anniversary week.  It's not just b/c it's that week, but I should spend more time with him anyway.  It's been nice lately.  Well tomorrow is nerve block #2 and I hope to get some relief out of it. 

I have posted some stuff on my diary regarding some communication from my OS and another OS and the knee brace people.  I found out that my two new knee braces that my OS has prescribed for me are 100% covered by insurance.  You know how bad we are with money right now, so that information made my day.  There are other interesting things on my diary as well.  I hope you get a chance to read some.  I will probably be online tomorrow afternoon if you want to chat.  It will probably be between 8-10pm your time.  So we'll see if we catch each other. 

Well have a good day!!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on August 07, 2008, 04:18:35 AM
Farrah - are you there? I can see your on line, so maybe we can chat??
Love Beda
Title: Re: Bedas Pre-Op diary
Post by: Beda on August 08, 2008, 06:19:05 AM
Hi Friends!!!! Well, thought I would just update to keep the flame burning so to speak! Not because so much has happened for me the past wek or so, the level of pain is the same, and this morning I woke up with TERRI BLE pain. I usually sleep with a pillow under my kne as I havnt got a completely straight leg, but somehow cos it was so hot in the night I'd pushed my pillow away and lay with an over-stretched knee, and boy! Did it hurt!! So here at 5.00am I was up taking my morning meds to try to get rid f the pain. So after I did that, I jst went to bed again but couldnt sleep cos its soooo hot!!!!! I have the ventilator blowing on me with full power, and the temp in y room was still 27 degrees. I cant have the widow open cos its hotter out there, and will be letting the heat in if I do that. This is all a bit of freak weather, we usually only go up to about 15 degrees tops here in DK, but in the recent years the summers have got hotter nand hotter and the winters too have been milder. Normally we have constantly under freezing temps in the winter, but last winter the days we actually had frost were numbered, and it didnt snow, which is most unusual. it's supposed to be the 'greenhouse effect' and I think that that IS what it is.
Title: Re: Bedas Pre-Op diary
Post by: Beda on August 08, 2008, 06:25:25 AM
I lost the thread to syberspace there, so I continue here! Well, next week I have an spt with my doc about rehab in Spain, I have to talk with him cos its he that has to apply for a stay there. I dot really know when I will be able to travel, it very much depends on how long my stay in hospital is, and my progress post op. I could imagine that I'm going to be pretty bone sore.
Title: Re: Bedas Pre-Op diary
Post by: Beda on August 08, 2008, 07:37:29 AM
I dont know whats up with this, it doesnt usually do this, but I lost the thread to cyberspace again, never mind, I'll continue here.As I said, I wont know when I can travel to spain, but I have heard that in November its not that warm down there never mind, I'll get extensie training t learn how to walk on a stiff leg.
Hopefully today will be cooler today, and that we will be able to walk around without dying of eat stroke!! Hope that everyone who is suffering, that for you, things will ease up.
Sending all my love to you
XX Beda.

                                       
Title: Re: Bedas Pre-Op diary
Post by: luckygrandma6 on August 08, 2008, 02:12:54 PM
Hey beda, I'll take your not so straight leg
Title: Re: Bedas Pre-Op diary
Post by: Beda on August 09, 2008, 10:40:25 AM
To keep the post up to date, I sit here writing this, not on my own computer but on my friends of whome I am house and dog sitting this coming week. they have just gone and driven off, and now things are very still. i am looking after a minature dachshound, hes so cute, and very attention seeking, has just been up on my lap and licking me all over, I had to put him down cos I couldnt do anything with him on my lap!! As far as the pain is concerned, not too bad today, but have had an increase in dosage of meds which has made me feel sooooo sleepy again. I seem to be fighting a never ending battle of not falling asleep at every oppertunity. I was taking 200mgs of this pain meds and found out I should be taking 600mgs so that is why I have been so out of it the last week or so. But now he pain is better cos I'm getting more meds, but the fatigue is killing me off. If its not one thing its the other. I am sharing a computer this week so there will be no e-mails for those of you who e-mail me, I have got my own laptop with me, but dont think I will set it up unless I need to get on to the bank.
Its really hot and humid over here, with temps in the 80's and I feel like I am going to suffer from heat stroke soon if I dont get some relief soon. At least this house I'm staying in isnt as hot as my own, its a wooden house, and has big rooms and lots of shadey places, with a big garden that the dog can just run out in. I dont need to walk the dog, (which I couldnt do under any circumstances) as he has the garden and he is only a tiny dog. it makes for a difference between my last dog which was a big rough collie (a lassie dog) personally I prefer bigger dogs, but Tiggy (this dog) is really very sweet. he loves me to death, and the feeling is mutual as i have been without a dog for 2½ years now. I have 2 cats instead now as we arnt allowed to keep dogs on our property which is a rental.
I have just had a project with my tropical fish, I have taken all the plastic plants out of the tank and planted real ones, and with CO2 injection to fertilize, it looks very good and the plants have taken and are growing. i have a lot of brightly coloured fish, but its not a seawater tank, but freshwater mixed tropical. I breed Livebearers for fun and one of my mamma fish has just had babies and I have loads of tiny pin-prick fry swimming around in the floating water weeds. they will stay there under cover until they are big enough to not be food for the bigger fish. When a fish gives birth, it gives birth to around 50 but I'm lucky if I end up with 6-8 adult fish out of a batch. mostly when theyre this small, they get eaten by other fish who see them a a very welcome addition to thier diet!! I dont know who it was i read on knee geeks that they liked anything with aquariums, but i do too, i have 3!!! One big 250l and 2 smaller 54 liters.
well now I have written my bit, as said, pains not too bad, only 10 more weeks to go to my surgery, but as yet I'm not counting off the time as its too far away to do that! On wednesday I'm going to my doc who is going to apply for the rehab in Spain for me, have to get the ball rolling soon, as theres long waiting times to get to Spain. At least I will get thorough rehab if I go down there. the rehab possibilites and facitlies suck here where I live. I am having the surgery done in Copenhagen which is the other end of the island I'm living on, actually another island altogether, and its too far to travel to that hospital every day for rehab so the rehab has to be done locally. i am going to have to learn to walk all over again, with balancing etc on a straight leg- At the moment I have a terrible sense of balance, and fall over for the slightest thing that pushes me off-center-
I have to go now cos the dog is yapping like crazy, somethings going on out there and i need to take a look, so, until next time, Love to you all, Beda xx
Title: Re: Bedas Pre-Op diary
Post by: Beda on August 10, 2008, 11:25:37 AM
A new day - after a good nights sleep i woke with a royal back ache cos the matress I've been sleeping on is way too soft and mine at home is quite a bit harder. I do have degenerative changes in my back, which hurts at the best of times, but this soft bed has mabe it worse. THEN this morning I got up to discover the dog had peed and pooped on the carpet! he refused to go out last night, so i got up in the night to let him out and he still did it! i was not amused. Good job its not my dog. I dont think he has ever been properly house trained as i can see a lot of stains on the carpets EVERYWHERE which are tell-tale. They also have a little yorkshire terrier, but they took that with them. As for the house, its a nice house and the kitchen is 100% new and making food last night was a breeze! Mom is coming over today and we'll make food together, so i wont get lonely. We live 10 minutes drive from here, so its no big deal.
As far as knee pain is concerned, not too bad today cos of the increase of pain med dosage, but I'm still feeling very washed out and tired. I feel like I never get on top of my sleep needs. last night i went to bed at 9.00pm and apart from getting up in the night to let the dog out, i slept untill 9.30am.
I have more time to write on my diary and maybe some more posts these days, so I'll be a bit around. Sorry if I'm not up-to-date on some of your postings, but ive really been through a horrible time.
Hope to catch you all later
Love beda xx
Title: Re: Bedas Pre-Op diary
Post by: Peg Leg on August 11, 2008, 03:23:43 AM
Beda,

Glad to hear that the pain is less these last couple of days.  I 'm sure the change in scenery and routine is nice, too., even if you're cleaning up after the naughty fellow!!  Thanks for your comment on my thread.  I've been a bit down lately, but I'm sure I'll perk up again soon!  Your surgery sounds really scary and you're so brave about it; I really admire you for that and for all that you suffer every day. You are a real inspiration!!  Good luck with the little fellow and his naughty ways!

Peg
Title: Re: Bedas Pre-Op diary
Post by: Beda on August 13, 2008, 06:05:20 PM
Dear Friends. just a note to say that I am once again experiencing considerable ammounts of pain when I am just lyng in the sofa, and moving around makes it worse, so went to the doc today as planned, and he can do nothing more'cos if I am to have more pain killers it needs to be in a controlled environment, which means a hospital, and no way am I going ot spend the 10 weeks before I have surgery in the hospital. I am just going to have to grin and bear it, do what i need to do to keep the pain load at a minimum. I feel very groggy after all the meds I'm on, so I dont feel like writing many posts, so please forgive me if i do not reply to one of you dear peoples posts. For anyone who know Lisa, i send you her warmest greetings. She seems to be doing fine and soon can drive her car again. (lisa is the person who went to zambia to do charity work)
Greetings to you all, Love,
Beda xx
Title: Re: Bedas Pre-Op diary
Post by: Sore knee on August 13, 2008, 08:34:45 PM
Beda

I wanted to come by now that I ahve internet access again and see how you are. I am sorry to hear you are still in pain, but as ever you are the caring optimistic lovable BEda still out there for everyone else.

I so hope that you get a pain free knee eventually and that your rehab in Spain brings you relief. ANyword on that yet ?

I have been thinking of you  :-*
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on August 14, 2008, 02:34:37 AM
Beda, so sorry about your pain!  What else did the doctor say to you about everything??  SOrry about the pain med situation and having to go to a hospital for pain relief...that sucks.  Maybe you should consider when your surgery comes closer!  It would be nice to have a short amount of relief before surgery, ya know??  If you wanted to do it could you just tell your doctor?  I mean does he give you a choice?  Or is it more like a threat?  Well I hope he helped you with the SPain application stuff!  I really hope that works out in your favor! 

How is dogsitting going?  I am sure it has been difficult since you are practically training a dog!!!! 

Well I hope you feel a bit better tomorrow!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on August 14, 2008, 10:50:52 AM
Farrah - thanks for your post - yes, I would consider going in to hospital maybe 3 weeks before surgery just to get into a more pain free state, but am afraid I would end up just lying in a hospital bed with an IV and being semi-conscious, which is no life whatsoever. Dog sitting is getting better. The dog seems to be responding to my training, and we havent had an accident for 2 days. But the dog is bone IDLE. he never wants to go out and play or go out and run, he just waddles down the garden path, sniffs around and thats it! Good its not my dog, i want a dog to be spunkey and full of life, ready for a game etc. My Sandi was ready for a game right up to the day she got sick terminally. I think this dog is missing his freind who lives with him. He lives together witha little yorkshire terrier who is very active, and Tiggy follows her around. Today I have bathed him and trimmed him, now hes looking nice. but because hes so sluggish hes overweight. ive had him on a diet since I've been looking after him. It makes me cringe to kow hes only 3 years old, whats the rest of his life going to be like? he needs some serious activating.

have heard from mom today that our landlord has given us a brand new cooker!! the other one was broken and he didnt seem to be motivated to get it fixed, but today a brand new stove arrived!! Now that will make making food more fun! (I'm a trained chef, so i appreciate these things!) Only 2 more days of dog sitting and then i can relax again and go home!! pains in my leg havnt eased up, but as to Spain and rehab, everything will be done to get me there, my doctor assured me.

Farrah, we'll probably be able to chat on sunday again. Saturday night i think I'll be sleeping in my own bed, cos I'm not sleeping well here, its too hot and humid, and because this house is made of wood, it holds the heat. the only relief i have is when Ive got a fan blowing full power onto me. have been watching the olympics as much as pos. wish I'd seem more gymnastics, but they were on when i was sleeping.

Only 9 more weeks to surgery!! i said to myself i wouldnt count down the days yet, but find myself unconsciously doing so, I am just SO fed up with not being able to get around anywhere and having pain. Hope my surgery doesnt make everything 100 times worse, but it will get worse before it gets better.

Please, everyone whos in pain, ice and take your meds, and I wish you all the very best in recovering from your ailments!!! Think of all of you,
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: Silkncardcrafts on August 14, 2008, 11:10:06 AM
Hi Beda,

Sorry to hear you are still in a lot of pain. I do hope it eases up soon.

My pain is getting better, but my right knee is a pain in the rear end. Can't wait to see what my OS says about it. Just don't want to get to the point where I can't walk. The pain and instability is just horrible. Hopefully I will know in early September.

Glad you liked Mamma Mia. I loved that movie. May see it again.
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on August 14, 2008, 11:17:22 AM
Hi Beda, semi-conscious would not be very good while having a good amount of pain relief in a hospital.  I guess you could always go for a while and then change your mind if it ends up like that?  Sometimes, if I had a choice, I would choose to go to a hospital for pain relief.  My PS didn't want to change my Dilaudid dose b/c he needs me to feel pain for the next nerve block...otherwise we wouldn't know if it helps or not.  Oh well :(  Hopefully after it's over they can help me more with pain.  The last nerve block has helped that sensitive area next to my scar.  I have noticed that it has also taken maybe 5% of my knee pain away in general.  It doesn't always feel like that, but I have noticed it sometimes and that's a start.  So hopefully the next one will take away more of the pain for a longer time period. 

I guess that thing that we may have in common wasn't mentioned at your appt yesterday?  That's too bad if it wasn't. I can't wait to chat on Sunday!  I get my "new" car this weekend, so we will be driving a lot to go pick it up.  In case you have forgotten, it is a white 2000 Toyota Solara.  It will be a nice car for me.  I definitely miss the space that my Ford Escape Hybrid had.  Oh well...saving money is important right now, so getting rid of that car payment has been great! 

I am so happy for you that your doctor has assured you that you will be going to Spain for your therapy after surgery!  I will miss you during that time!!!!  Would your mom go with you?  I wonder how it all works b/c I imagine you will be staying in a facility there, right?  Do you know how it may work? 

I posted some on my diary yesterday and today.  I received my new knee braces yesterday.  They are kind of comfortable, but will take some getting used to.  I will try wearing the one on my surgery leg today for some hours here and there.  I can't continuously wear it yet b/c I know it will hurt more if I did right now.  Okay, time for work!  I hope that the next 2 days with the sluggish dog are smooth for you.  I can't imagine doing what you are right now.  That would kill me having to take a dog out every 2hrs and watch him go "potty" as we call it here.  Are you going to talk to the owners about how lazy and not trained he is?  Alright, bye now!

Farrah

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on August 14, 2008, 11:23:40 AM
Farrah - you bet I'm going to talk with the owners about how sluggish he is, its just not right for a 3 year old dog!! Theres quite a few issues there they're going to have to listen to, I can tell you, but I kinda think they know it, just didnt want to tell me lest I opted out! Oh well, hes not my dog and not my problem, i will just know what to expect if I have to do it again! This week has been the longest week ever!!
cath ya later
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: Sore knee on August 14, 2008, 06:18:27 PM
9 weeks Beda until surgery, wow I hope it changes your life and gives you a much more painfree or reduced pain life. We will be willing you on !

Where do you have your surgery, where you are or in Spain ?

I hope you are ok today and am thinking of you.
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on August 15, 2008, 06:38:21 AM
Hi Beda!  If you were staying at your house right now, we'd chat for a few minutes!  Gymnastics individual All-arounds just ended...US took first and second!!!  They were the only two competing for my country.  They kicked some Chinese, Russian, and Romanian butt!!  The other countries weren't competition for them.  It was very close with China and Russia though. 

Tell Lisa that I said a special Hello!  I hope she gets a computer and internet set up really soon!  We miss her and her stories of Zambia!  She never showed us her pictures!!!  I hope she is walking around and such by now.  I don't know a typical TKR recovery though.  It seems they have a more aggressive protocol than a TTT one.  So I don't know where she'd be in recovery about now.  I think you said she is doing pretty well?  Does that mean little to no pain?  Please tell her I am thinking about her.  I wish it wasn't so difficult to speak over the phone across the world!  Difficult meaning expensive :) 

I hope your pain is doing okay compared to yesterday!  I know it has been tough, but 9 weeks is nothing!  Soon you will be on your way to a pain free life!  I can't wait until you are home again b/c this no chat thing is killing me!  You can use www.aimexpress.com to get on AIM though!  That's what I do during my lunch break.  I guess I could have told you that earlier.  You don't have to download anything at all.  You can probably use it on your laptop as well.  I will probably not be on tomorrow before work, but will check e-mail at least.  So hopefully I see that you have responded on your diary when I get to work in the morning.  I have to get to bed now since I will only get about 4-4.5hrs of sleep IF I get right to sleep in a few minutes!  We'll talk tomorrow!  Bye now!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on August 15, 2008, 09:03:47 AM
Hi guys - so this is the last day of dog/house sitting, thank god for that! I think the little guy is getting the message as far as house training is going on, but I have been lead to believe this problem is very much a dachshound problem, they are difficult to house train. But the owners are going to find out how bad it is cos hes peed and pooped on their new carpet, (which has several stains from previous times). Ive had 3 days now where I've managed to get him do it all outside, and now he even goes outside some more and chases the birds, so I expect a lot of it was the fact that he had been abandoned (so he thought) by his owners and had separation angst and was worried that i would leave him too, so he dared not go out in the garden. But, as always with this dog,(Ive looked after him before) when the week comes to an end, he's got used to me and is behaving more like a dog and not a little human being. I think that that is one of the main dangers in dogkeeping, you get so nuts about them you tend to treat them like little people, and they really dont need or understand this. hes a DOG and should do doggy things. its a bit like hes got the habit of, when I'm sitting down to eat he hops up on the spare chair and rests his head on the table. I have seen his owners accept this and even feed him this way! he forgets he's a dog, and expects to have all the luxuries humans have. Anyway, as I said I've given him a bath, (hes long haired) and trimmed him so now he looks really good, hope the owners appreciate this. I spent 2 hours working on him yesterday and an hour today. he hasnt been trimmed for AGES and needed his feet done and everything. Luckily he sits very still when I'm soignering him, he really likes it!!!
The old knee has been playing up in the night last night, i couldnt put any weight at all on it. i had begun to try to bear weight bit by bit, I think the fracture has healed cos I no longer have the intense pain of something REALLY drastically wrong, just the usual pains, so it makes me feel that somethings got a bit better in there. But its very much up and down. Some days I am inclined to think its gotten better, other days no way.
At least the weather has cooled down, so i am no longer suffering from near heat-stroke. Tonight mom will be coming to pick me up and we will eat food at home as i want to clean the kitchen up here b/c they're coming home tomorrow. The dog is at least able to be left alone for a while, he doesnt make any noise and up to now he's not been unclean whilst I have left him. I just make sure he goes out and does his business before i go out, then hes got no excuse. I am really looking forward to getting home again, I miss my bed and my own TV!!! then I miss mom, we are so used to being together now, she is missing me and she has been around every day this week, she missing me!! My moms the best, i think its such a shame when I read of others of you that have bad relationships with your parents. it can be so different, my mom is my best friend and confident, and she really helps me a lot cos thers so many things I physically cant do, so she does a lot of stuff for me.
Farrah, Lisa didnt have a TKR she had some cartilage grafting done. I cant remember what its called, but is doing well. She still isnt allowed FWB but is getting on. Shes got the OK for driving now. She said she was going nuts not having any company and having no internet. I just couldnt imagine having had major surgery and no KG or other internet connections so i could get into contact with the world!! It would be disaterous!!!
Well hope you all are feeling a tad better today, sorry for those of you who have pain, I know it SUCKS bigtime, all I can say is, Join the club!!
Thinking of everyone, Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: Beda on August 16, 2008, 10:33:23 AM
Am waiting for dog owners to return, it will be in a couple of hours HURAHHHHH!!!!! Went home last night for supper so I could get this place straight for when they come back, I came back again last night. Today I have REAL BAD knee pains, like someones digging a knife in me and turning it around. Dont know what the cause of this is, but I do have these days. Am just sitting here by this computer and it hurts, and have been lying on the sofa, and that hurts even more - it sucks bigtime. Glad to read in others posts that on the whole things seems to be going slowly forwards. Oh well, 9 more weeks to my surgery today, then I'll be able to boast progress and not regression. I read others are mystified at their knees - me too, I never seem to be able to understand how such a body part can be the cause of SO MUCH pain. But the knee joint is the most complex joint we have in our bodies, so is it a wonder stuff goes wrong occasionally??
Doesnt seem to be so humid today - I have discovered this wooden house I'm staying in is HOT!!!! its not like the temps at home in our brick house, thats a lot cooler. have been watching the olympics today, trampoline jumping, very impressive, but looks like the chinese will run with the medals. USA did well as well. Next time i post I'll be back home, so Farrah, I can be on messenger and aim possibly, but your going away for the weekend arnt you?? or what??maybe I misunderstood that bit, dont know but we'll find out about something. Farrah, i think that diagnosis for me that will not be publically named is definite, am somewhat worried about my upcoming surgery and the excaberation of pain in my other leg, which isnt behaving itself lately. It is on the surface numb, but slightly deeper extreemly sore, and if I rub it up against something then I'm up under the roof. have sticking pains in it as well which are untouched by any painkillers-
well, guys, have a good saturday and I'll try to look in later if I'm not in too much pain.
so, until next time, Love,
Beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on August 16, 2008, 01:36:00 PM
Hello Beda,

Yeah, I am leaving in a bit for the weekend, but I will be back tomorrow evening.  You will probably (hopefully) be sleeping by the time I get back.  So we probably will not be able to chat. 

Beda, I think you should mention that other possible diagnosis to your OS before surgery.  You know you have a lot of issues with your TKR hardware so surgery has gotta happen anyway.  I definitely think that diagnosis is worth looking in to.  We can chat about it soon. 

9 weeks isn't so long until your surgery date!!!  It's slowly coming and you are handling it well lately.  Dogsitting got rid of an entire week!  Haha!  Hopefully you can find other things to get your mind off of the pain and off of thinking about how many weeks until surgery.  Have you tried swimming again?  You seemed to have done very well with it. 

Well, it's time for me to get ready for our short trip.  I hope that pain you mentioned gets better!!!!  Try all your pain relief methods...ice, TENS, heat, etc.  I know you know how to deal with it.  Have a good weekend!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on August 20, 2008, 11:37:51 AM
Farrah - hope you saw the olympics gymnasts in the night. I saw them again this morning, ja, USA really did very well. I wont comment on anything else for fear of spoiling it for you!!
Ja, only 9 weeks now to surgery, I think its going to go past pretty quickly. I dont consciously go round counting the days, but every friday I think of how many more fridays. I'm being admitted to hospital on a friday for some reason unknown to me. The surgery wont happen until the following monday the 27th.
Now the danish men are playing handball and are fighting for a place in the semi-finals. The danes won Gold in EM this winter, so they are a good strong team and can kick butts. I dont know about this game against Croatia though, Croatia have a very strong team.
I have had it with heat waves and alternativily feeling boiling hot with sweat running down my back and then freezing. My thermostat is shot, and I know its all to do with hormones and the menopause, so next week my doc is starting me up on some hormones to try to get some normality in it all again. Thank God for electric fans is all I can say!!! I have never had it so bad since they put this hormone I.U.D. in me, its a real bummer and not really helping a whole lot, but they say it takes 6 months to regulate the things it should regulate, but I cant wait 6 months like this. Blelieve me, unless youve had hot flushes from the menopause, youve no idea how uncomfortable it can be. I always thought when people complained about it that they were just over-reacting, but now I know what its like for real, and believe me, its nasty!!!
I couldnt walk on my bad leg this morning when I got up, meanig I couldnt put any weight at all down on it. I have days like this, but you guys know all about it, cos I complain enough!!!
Had guests last night, had a lamb roast which was very delicious. Then I made a huge dessert with cream frais and marangs and cream and choc sce. so it was delicious too, but I made too much of it!! I love to make food and can sit out in my kitchen on an office chair with wheels on to make the food.so I dont need to stand up. A good thing as i couldnt do anything without it. I have to stat thinking of stuff I might need when Ive had my surgery, so I can get everything in house beforehand. Luckily the health service will supply the most of my needs, but I have to inform them when i will be needing the different things.
Now the danish handball team has evened the score out, so its getting interesting now, so I'm going to go and watch it. Catch ya later
Beda xx
Title: Re: Bedas Pre-Op diary
Post by: Beda on August 22, 2008, 03:10:35 AM
Well folks! What with one thing and the other, an another week has gone by, and now the weeks are beginning todisappear fast before I am to have my surgery!!!
Joanne!!! I live n Denmark and will have my surgery in the capital which is copenhagen, on another island from where I live. I wont go to spain until I'm well over the op and well on the road to recovery.
Yesterday I had sweet relief! I got my hair cut!! Which was a very much needed thing!! I then went to town and bought 5 guppies, 2 males and 3 females in the hope that they will breed. On transferring the fish over from the plastic bag to the aquarium one of the little boy fishes decided to hop and jumped clean out of the aquaium and onto the floor.!! so I quickly collected him up from the floor to put him in again, and low and behold he did it once more! So hes been on the floor twice, and last night he wasnt behaving as if he was all there! Just think thats like the same as one of us being thrown of the roof of out houses onto the asphalt below. I think he probably got a concuassion and hes very still. I hope hell recover, but wont be surprised if he doesnt. Its never ever happened for me before, this fish hopping, but now I know that guppies are very boistrous fish and need handling with the gretest of care,as do all fish, but this was out of this world!!!
Now it is 4.00am and I ought to try to sleep some more. Pains are keeping me up, but thats nothing new, just wondering about all you others who are lying awake having pain, we should make a 'night club' for kne sufferers. the chat room here is always open, and then theres messenger and aim and yahoo so theres no excuse!!!
Anyway, now I'll try to sleep. so to all of you, goodnight!
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on August 22, 2008, 07:23:11 PM
Hello Beda, it's 7:30pm your time and you may be eating dinner, but you aren't at your computer right now I guess.  I tried messaging you :)  I hope you got some sleep last night after going back to bed at 4am.  I did the same thing this morning.  I got up at 2:30am and was thrilled that I could still walk from the nerve block!  I was thinking that I was going to be able to wake up in the morning and go to work without crutches!!!  I was wrong :(  Most of the pain came back over the last few hours before waking up again.  My back is so sore too.  Just in lots of pain today. 

I hope you are feeling at least a slight bit better!  Surgery is only 8 weeks away now??  That's no time at all.  That's a normal wait time for people in Europe, right?  You are doing great with taking up time.  I hope you take some pictures of your new guppies and your new underwater garden :)  I wish I had time to do that stuff...and money.  Are those plants expensive?  How do you know which plants are okay for the fish?  Do the plants help wtih the algae at all?  Or what is the point of them usually?

Well it's time for me to eat some lunch and do some laundry and take a nap to get ready for the lake house weekend trip this weekend.  Have a good weekend!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Sore knee on August 25, 2008, 07:32:53 PM
Beda

I just wanted to pop by and say I have been thinking of you. I hope you are ok, the weeks are rolling by now to your surgery.

Thinking of you and hope you are ok
Title: Re: Bedas Pre-Op diary
Post by: Beda on August 26, 2008, 11:56:08 AM
Guys - sorry for not being here so much, but I have been having a tough time and dont feel like posting when I feel bad. Farrah , ja, only 8 weeks now, its really going fast!! I never thought i would count the weeks, but I find myself frequently looking at the calendar and counting weeks. before long I'll be counting days, it just doesnt seem real after waiting for SOOOOO long, I have to wonder if it ever will really be true! But by now they must be mid in the waiting time for the metal rod that has to be custom made for me, so in a few weeks they should have that home, and then its no turning back.

My boistrous Guppy didnt recover. Hes disappeared and I cant see him anywhere and have found no body, so hes been eaten up by his brothers and sisters!! What a meal to have eh?!!! But fish are scavengers, mostly, not all, some are vegetarians, but most fish wont say no to a nice bit of fresh fish meat. I bought a new boy guppy to replace the lost one, and hes swimming very happily around showing no signs of ill-helath and eating normlly, so in a few weeks there should be lots of baby guppies. thats if the babies cat get into the floating weeds quick enough after birth, becuase they need to be protected from their mother who will eat them literally as they are born if they can get away from it. its therefore they give birth to so many in one batch, because out of a batch of about 50 only about 7-9 reach adulthood. I dont isolate the mother in breeding boxes as many do, as I find it stresses them out and they can often die from the stress of being confined in a breeding box. I have so many fish that it doesnt matter that they have a natural decline. I have a special breeding tank which is only for small fry, I have 3 aquariums as to date. Would like some more, but dont know where to put them!!!

Tomorrow am going to the doc to talk about hormone treatment for the menopause. I have terrible night sweats and daily hot flushes, its most uncomfortable and now enough is enough! I have enough to cope with with the pain from my leg and other scavankers so my mom told me that a hormone substitute helped her through this time, I always said I didnt want to take hormones, but really there does come a time when its inevitable. I cant live like this all the time, and badly need some relief.

yesterday I made some 5 corns bread which is basically a bread recipe with 5 different types of corns in it to give it taste and texture, it turned out really well, and were eating bread more than ever now!!! I love making bread, its one of my pet pastimes, and I love trying out different flour sorts etc. so its interesting. My homemade bread tastes great with my homemade jam on it! Soon the blackberries and apples will become ripe, then I will be making jelly out of them. We have a whole load of blackberries in the garden, plus a very large cooking apple tree. We also have 3 different sorts of plumbs, and elderberries, so we have enough to keep our cooking and preserving lusts occupied.We have just got a brand new cooker, which maybe I wrote about, but anyhow, its tried and tested now, and has a very quick oven on it, the baking only takes about half the time that it would otherwise take in a traditional oven. It makes food making a pleasure, which it always is for me anyway. I got robbed of a very good and promising career as a chef when I fell and broke my knee at work, and I have never worked since, that was in 1979. Thats how long this thing has been going on with my knee. So believe me, I suffer with all of you who have issues at work whilst you are struggling to get back on the working market again, I feel for you and know how frustrating it is to have  aknee that just wont do what you want it to!

Well, have to get going. We are having a sleeping guest for 2 nights and mum has just gone to pick her up, so I must get ready and tidy up a bit, so, sorry i cant answer all your posts, but will try to get back to you all real soon
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: Sore knee on August 26, 2008, 08:52:08 PM
Wow Beda you make multi-talented an understatement.

Jams, breads, cooking, amazing artist, good with animals.......;....I am so impressed.

Hope you enjoy your visitors :)
Title: Re: Bedas Pre-Op diary
Post by: Beda on August 28, 2008, 12:06:16 PM
Joanne - you make me blush! Its all just stuff i like to do!!! And thats half the battle in life - to enjoy what you do.
Today has brought me to a new sunny day after 2 very darks rainey days, our sleeping guest has gone home, thank god for that because she talked her butt off and niether mum or me are used to talking so much. She was here for 2 nights and it felt like 2 weeks!!! Anyway, now weve got our home back to normal, I made steak pie last night which tasted really good, that was because it was the last night for our guest so have to show our true colours!!!
Farrah - good to chat with you in the night. Hope your PS apt. went well, please keep me updated about that! ja, well, tomorrow will be 7 weeks to my surgery, time is really going fast now. I dont think its a reality until i get closer to the day.
i am sorry to hear and read of others pains and problems with thier knees.I wish I had the strength to answer all of your posts, so please take it from me here, i think of all you guys very much, and when I'm feeeling better i will write to each and every one in person.
Until next time, Love, Beda xx
Title: Re: Bedas Pre-Op diary
Post by: Beda on September 02, 2008, 11:44:31 AM
SO!!!! 7 weeks til surgery - it doesnt feel real yet, I dont think I will believe it untill I actually check in a t the hospital!! Not much to reprt other than I am experiencing terrible back pains, obviously cos of the crookedness I'm walking at. Am PWB, fracture seems to be healed as far as I can feel, i dont get the smae excrutiating pain on WB but still cant WB very much at all. Today I have to go to the docs for a pre-op blood test, theres cholesterol to think of and diabetes. Hope everything is OK but need to check up before anæsthetic etc.


Sometime later..... Got interupted as it was time to go to tthe docs, bloodtest taken without further ado. Went to aquarium shop and bought 5 more water plants and one more female guppy - with a blue tail, so if she will breed in my aquarium we should be getting some interesting examples out of it as my males are orange and blue striped, and one is purple!! You never know what your going to get out of a mating as guppies can hold sperm for up to a year inside them, so they dont necessarily give birth to young from the males you have in stock if they were impregnated by another male fish before you put yours together. I wont mind some blue guppies, they are very sellable and its fun watching them grow up. I bought some water plants that actually had flowers on them - very rare to see that - dont know how long they wil last, depends on how the fish like them, f.eks. if they like to eat them or will leave them alone. My underwater garden is nearly complete now, and I will take some pictures and put them on my web site when done.

Well that about wraps it up for today. Leg is the same as usual -a pain, but its not very exciting speaking about it 'cos it never changes, and wont change until I get my surgery. Hope all of you out there who have pain gets some relief today, remember ice ice ice and take your pain meds if poss.
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: luckygrandma6 on September 02, 2008, 01:03:43 PM
beda, I am so glad you have something like your fish to give you pleasure out of life while you are going through a traumatic experience. You sure have educated us on raising guppies.
Personally my interest is singing. I sing Karaoke, mostly country, oldies music and gospel. While I was growing up I sang in the church choir, chorus at school, special singing groups and even entered some talent shows. Singing relaxes me and I don't feel any pain as it puts me in a different place.I tell everyone that this is one thing i can do that doesn't hurt. My grandchildren love to hear me sing and I'm breaking my 2 1/2 year old grandson in right. It is amazing what he picks up and he will hold the microphone and sing with me.
I took dancing lessons, tap and ballet for many years and I can no longer dance but I can sing so everything wasn't for nothing. At least I was able to dance at my children's wedding before my problems started, especially the mother and son dance. Keep up the good work and keep your shin up as positive thinking will be your road to recovery.
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on September 03, 2008, 06:42:24 AM
Hi Beda!  I hope those blood test results come out negative!!!!  That's good that things like that are being taken care of so early just in case there is a problem.  I am about to go back to bed as you can see it's about 1;30am here.  My pain woke me up as always now.  I plan to get back to bed in a few minutes.  Your new guppies sound pretty and same with your flower water plant!!  I just can't wait to see pics of your aquarium when you are done.  Are all the guppies in the same tank?  Have you breed that type of fish before?  Do you know their style of giving birth and such?  Do they go into those floating weeds to grow up they are old enough to fend for themselves like your other fish types?  Just curious.  You have taught me a lot about aquarium life. 

I am so happy for you that you think that fracture has healed and you are walking!!!  That's so great.  When we met on here, you were in too much pain to walk...so you are already making some progress.  I can't wait for the bulk of your pain to go away for you.  I can't wait to start reading your post op diary!!  I am very anxious to see how it goes for you.  I am sure you are anxious too.  Okay, I'm falling asleep writing this, so back to bed for me.  I may be up before getting to work, but we'll see.  Good morning to you!!!!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on September 03, 2008, 11:16:57 AM
Grandma, I think your interest in singng must be wonderful!! I admire anyone thats got the gift to sing, it is just so beautiful to listen to singing. Also that you can share it with your grandchildren is great!
As far as guppies are concerned, they are really quite straightforward! They look after themselves pretty much, apart from when they give birth if the fry dont make it to protection the mums will eat them!! My little blue girl is doing fine today, is feeding and being chased by the male who wants to get into her panties!! So the chances that shes a first time mater is high, so I'll get some really colourfull specimens out of that mating, if any survive to adulthood.
Farrah, I know the blood tests wont come out negativ, but what it is supposed to show is the need for medication for cholesterol/diabetes. If I'm borderline this time, I'll slip from having to eat more pills. If I'm over the top, then its medication. Ja, it is good they are taking care of these things well beforetime. I dont want to be messing around with other health issues when I have to have my surgery - it just complicates matters.
My guppies are divided into 2 tanks. One I have 2 males and 2 females and the other I have 1 male and 1 female. I am not sure in the one with 2 females because I cant see the one female and havnt seen her for a couple of days. I thought I saw her the day I changed the water, but I think she might have died and the others have eaten her carcass. They are small cannibles really!!! Yes, farrah, I have bred these fish before, but never taken the bother to separate the mothers from the fry cos of cannibeliism. This time round maybe I will separte the mothers when they begin to give birth. But I dont really need 50 small fry going!!!! They go up into the floating weeds for cover until they get big enough to not be considered as food by the bigger fish. Ja, aquarium life is truely fascinating!! I will TRY to take some pics,but its hard to photograph fish.

Got an increase in pan meds yesterday, making me feel very very sleepy. Its 12.15 and I feel like a nap, so catch ya all later,
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: Beda on September 08, 2008, 07:06:59 PM
Fellow knee sufferers!!! I am sorry for been MIA but I have been very busy trying to paint some pictures to raise a bit of cash, and I got an order for a painting of a landscape of Tuscany, and having never been in Tuscany myself, i hd to search the internet to look at pictures and fotos of the tuscany landscape so i could make a convincing painting. Well, it has proved harder than I expected, i usually take my own pictures and have first on live views of what I want to paint for inspiration, and there were so many things the person who ordered the painting did and didnt want in it!!! She just doesnt realise that I'm not an automatic camera and cant spit out realistic pictures instantly or at a moments notice. This is going to be one expensive painting, as I have worked on it all day saturday, some of sunday and all night sunday night. I went to bed at 4.00am this morning cos it needed drying time before I could continue, and I fell asleep and awoke at 11.00am and had a pupil at 12.00. I teach individualy, have been offered a teaching post at the counties evening school, but I cant take it because of all this with my leg. I get SO MUCH pain sitting at my easel, and have to take several small breaks to stretch out and move my leg into another position as it gets so painful in one position all the time. Actually painting really gives me a lot of pain, bt I NEED the money and wont be able to earn anything extra after I've had my surgery for some months. I may still be able to give individual classes, if i dont need to sit at my easel. Luckily my student is very good at it, she got perpective right first time, and is a very keen learner. That makes it easier for me, cos theres nothing harder than keeping the morale up for a pupil who really hasnt got a clue as to what your trying to tell her, and trying to see the good in EVERYTHING that gets created!!!! But my picture is going on fine, but it really would have been a better idea if the person who wants it just orered a print for $10 in a poster shop!!! But of course theres nothing like a really original painting on your walls. This painting is not really my style, and I'm not enjoying doing it, but the money is attractive, so I just have to eat the sour apple and do it.
As for my knee, i have aggravated pains in my knee dues to the bad working position, and cant do anything about it, just take my pain meds and not try to move around too much. theres a bit under 7 weeks to my surgery now, and will be getting nervous more towards the time I think. Right now it still doesnt feel as if its true someone will fix my leg for me, I have gone nearly 3 years by the time I have this surgery from my last TKR which failed. its enough time to forget a bit how bad the post op pain is, but my doctor whome I am going to see tomorrow said to me that i will most likely be keeping on the present pain killers for at least 2 more years as the pain after this surgery is going to be greatly increased to what I have now, and now I have like a #10 on WB and an #8 on resting. Sometimes when i wake up in the night i can be in a position that I have been in for a long time, and it is SOOOOOO painfull to move it again. I have a box of extra pain meds by the side of my bed with a glass of water so that when I wake up first thing, i can take pain meds and it doesnt get too bad for me when I have to get out of bed. Its not much fun, but that is just the way I have it at the moment and I have to expect the worse and accept it.
Tomorrow I have a doctors appt which will be my pre-op physical before the surgery from my general health point of view. I will be getting the results of the latest blood tests and hope for that all is well. It is mostly for a status of my blood sugar which was too high and my cholesterol which was too high as well. these two things have to be adressed and treated before the surgery, so that everything will go as smoothly as possible.
Well, so now you all know what Ive been getting up to, hope everyone else is managing as best they can with their pains and that each and every one will get some pain relief soon, I wish it for myself and everyone who is in pain. Pain sucks, theres no 2 ways about it, and we all need relief, we deserve a better life than one in pain.
I just have one good sugestion for anyone whos in pain, try to find something you REALLY like doing and DO it. The gratification of doing something positive can move mountains, and the pain seems to get more bearable when your doing fun things. Now I do know that some peoples most enjoyed things involve using their knees, but try to find something that doesnt involve you knee, and ENJOY!!! Get a positive attitude in life, and things will go so much better for you.
Thinking of every one of you whos in pain, with all my love,
Beda xx
Title: Re: Bedas Pre-Op diary
Post by: eeniee on September 08, 2008, 08:39:10 PM
Hi,  Beda ....... I am one of your fellow knee sufferers. It`s been quiet a while since i have posted.  I was reading your post`s about you`re loosened and failed Tkr`s. I am getting ready for my third revision on my right knee. What kind of pain and where at on your knee did you have pain. My second revision the conponet had loosened up. this time my pain is below my knee cap and down the front of my leg. Sometimes it feels like its locked up and i cannot straighten it out. I was just wondering what kind of pain you had. My os has done blood work and ruled out infection and has also done a bone scan which came back normal, but i still have this pain all the time. I am a little confused at what may be causing it. Any input you can give is much appreciated.   THANK YOU
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on September 09, 2008, 01:45:23 AM
So no tennis, Beda...ugh!  Next time remind me of that!!  Haha!

I'm glad you are doing things you enjoy.  I hope you make tons of money on that painting.  Sorry about your pain.  it was soooooooo nice chatting the other day!!!!  I hope to do it again soon. 

I got my OS's note from last week's appt.  I will post some stuff about it on my diary when I'm not in so much pain to spend time doing it.  It's always interesting reading about what your OS says about your exam and such.  It was all accurate thankfully b/c he wants me to share it with my PS tomorrow when he calls me.  I have PT tomorrow :(  UGH!!

I hope you got some sleep tonight!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on September 09, 2008, 08:23:55 AM
Eeniee - I read your post with much interest, and sympathize with you 100% because its no fun having revision after revision and the components just keep on loosening. As for the pain youve got, thats exactly where I had pain to begin with, from my knee down the front of my leg. If the bone scan came out normal, you are lucky, mine didnt come out normal, but showed extreme looseness of components. I think your main prioritary should be to get to an OS who deals ONLY with revisions. there are special doctors out there, I gather your in the states, correct me if I'm wrong. But your implant wil not grow back into place, it will keep on getting more and more loose until you have it replaced. It is quite likely that the OS will want to put a bigger hinged implant in your knee, this offers more stability and has less chances of losening again. I know its a pain, but keep your spirits up. When are you scheduled for surgery?? I am having my final arthrodesis done on the 24th october, and I am travelling a long way from my home especially to get to the doctor that deals ONLY with revisions. Dont accept just a new smaller prothese, because it is obvious since its your third time round you need something that offers a bit more stability. the chances are that they use both cement and bone transplants on you is high. Dont worry about this as it gives you optimal security and the protese will kind of 'grow' into your existing bones. You dont mention about the shape of your own bone, how is the quality of this? have you got normal bone tissues, or do you have thin bones? It is very important that you get to a revision specialist, otherwise the likelyhood of this loosening repeating itself is quite high, as the 'normal' OS's just change out the component with anoher component the same as the first one, but ths is no good.
I wish you all the luck in the world, and hope for you that your next operation will be a good outcome and result, and you will get a new knee that will last for many years to come. By the way, my knee locks up as well now, but I do have a VERY loose component in there, both in the upper part and the lower part. You dont say if it is both the upper and lower parts that are loose or if its just one part. If its just one part the OS may opt for only changing the loosened part, but it is best if they take everything out and give you a bigger more stabile hinged joint. remember, its YOUR knee and you are the one thats calling the shots now, you dont want to follow down the road I went and have 6 loose implants all on the same leg. How old are you? I was 29 when I got my first PKR which 2 years later was revised to make a TKR and then I have had all in all 16 operations on that knee. I have nothing in my R. knee though it has got tendon damage due to a motor accident I had a couple of years back, but i dont want anyone touching my R. Knee. I know what I've got now, but dont know what I can get!

Farrah, ja well, ja, no tennis!!! But I guess you have knid a resigned to that by now. But maybe in a couple of years time when everything has found a resting place and they have found out how to control your pains best. Ja, we had a real good chat, I really appreciate the contact and friendship, We feel for each other and sure know what we are talking about when were talking knee pain!!! I just wish that you lived closer, it would be so neat if we could meet, but alas my funds dont reach to a trip to the states, but one day when i sell a picure for 10,000 maybe the possibility would forecome. I have family in California, but we dont see each other for years in between each other simply cos it is SOOO expensive to travel. I too would not fancy my chances on a plane with a stiff knee for 10 hours!! let alone trying to get out to the gate in a wheelchair. I just can imagine this impossible leg stritting out in front of me with no support under it. I know the airlines have a service to get you out to the gate, but to be honest I have so much pain now i just cant imagine that it will ever get much better. BUT it WILL - so the 'clever' people say, and then I have my little problem I need to have treated as well. Who knows when I come out of it all I will have it great!! We must live in hope in the face of a hopeless situation!! I admire your tenacity, and your ability to go to work every day and whatsmore to DO a days work in your condition. I was forced to give up my career because it involved a lot of walking and lifting heavy stuff, and not ever sitting down all day long. I still dream of going back to work. I could have an admin job where I planned menues and who does what in the kitchen, and checking that it gets done. But I am too old now to do that, no one wants to employ someone in my age with a handicap. So I have to make the best out of my painting, and enjoy the fact that I have the license to take good prices for my work. By the way, I've finsished my picture of the Tuscany landscape. I felt more like I was painting a foto at the end of it, and it wasnt MY type of art, I didnt enjoy it and I'm glad its finished. The only light point is recieving the cheque for payment for it!!!
I forgot to take my night medication last night so I awoke at 4.00am and couldnt sleep any more and was in need of medicine. it was too near the mroning to take the night meds, if I took them i wouldnt be able to get up today, and I have to go to the GP today to get the results of my blood tests. keep your fingers and toes crossed for me that the blood  tests arnt that bad.
Hope to chat today, Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: luckygrandma6 on September 09, 2008, 03:26:29 PM
beda, I answered your post on my thread so don't have much to say but to let you know I do check on your thread to see how you are doing. I wrote that it is nice we have an activity that doesn't cause pain and then I read that painting is painfl for you. SORRY! I guess I figured you were sitting down and the weight would be off your leg.

Title: Re: Bedas Pre-Op diary
Post by: Beda on September 10, 2008, 09:29:23 PM
Hi Guys. Finished the painting, turned out well, but when I called the person who ordered it, she told me it was TOO BIG!! SHREEEEK!!! all that work for nothing, and now I have ordered a canvas 20x60cm specially for her, and I have to start all over again. I will be charging her for the first painting, she should have told me of her special size problem. The picture is to go between 2 windows. She doesnt have any more room anywhere else, if you ask me she has too many pictures on her walls!!!!! So all that day and night working for nothing.All that extra knee pains for nothing. Sometimes it isnt easy trying to please others, specially when they take things for granted. ordering a painiting is not like ordering an extra copy of a photo youve just taken, its a hand made work of art, and I take pride in my work and never deliver bad stuff - well for some its easy come easy go, but believe me this is NOT the case here. Now I have  apainting of Tuscany landscape that no one wants, because it is so special and means something special only to the person who has ordered it.

Pains as per usual. Seems to be worse now. I need to have some rest and not do any painting and sitting at an easel for a while. Good job the canvas takes a week to get here.

Going to do my laundry now and then going to bed. Rotten day.
hope everyone gets better soon, hang in there!!Take those pain meds regualry.
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: Sore knee on September 10, 2008, 10:10:42 PM
Beda

Sorry to hear about the customer who messed you about with the painting. Its so hard doing all that work with the additional strain on your knee.

7 weeks til surgery, its frightening how time can go so quick at times and drag at other times. When is your exact date ?

I as ever am so impressed at your attitude and how much you do :)

Hope the pain isn't too bad today Beda. :-*
Title: Re: Bedas Pre-Op diary
Post by: Beda on September 11, 2008, 08:01:25 AM
Hi Joanne!!! thanks for the encouraging words. Ja, that was a tough one with the painting, good job the customer wasnt here by me in real life, I might have done her an injury!!Tomorrow Will be 6 weeks to surgery, its moving in fast now, the date is the 24th october.The painting is to go to Norway, so my work gets around!!!Thats if it ever gets off the ground again, I may loose the spirit cos I worked so hard on the 1st one!1 Maybe be i ought to be more business like at look at the $ sign at the end of it all!!!!Thats after all what motivates a lot of artists,,the big bucks!!!!
A #9 on walking this morning, not good, but i wont be doing any walking today. Going to the cnema this evening, am a memeber of a cinema clu whereby you pay a small entry fee and get in to see 7 selected films for ½ price. have to make the most of going to the cinema now whilst i can bend my leg a bit, wont be able to do that after teh surgery.
Hope everyone has a good one,
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: Silkncardcrafts on September 11, 2008, 09:54:30 AM
Hi Beda,

Thanks for your posting on my post-op diary. Not long till your surgery now. I remember counting the weeks down till my op. Now wondering what my OS is going to say when I see him in November about my right knee. I was going to leave it till next year but it's so painful and horrible.

Maybe things will settle once I have moved.

Sorry to hear about your unhappy customer and painting for nothing. Have you thought of advertising it ?

Hope your pain is not too bad.
Title: Re: Bedas Pre-Op diary
Post by: luckygrandma6 on September 13, 2008, 03:18:50 PM
Hi beda, I got AIM downloaded and your name comes up on it as bedapeterson, is that the screen name you use. I don't know what the time difference is between you and me, but would love to catch you online sometime and chat. My screen name is tjzcin. They are the first initials of my grandchildrens names. I'm not sure how to use it yet, do we have to do something to accept each otehr or is it automatic. 
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on September 14, 2008, 03:12:31 PM
Beda!!  I hope you are doing okay this weekend.  I have continuously checked our chat programs looking for you and no such luck :(  Today is usually our chat day it seems, so hopefully I will see you on later. 

My procedure from Thursday hasn't worked yet, but I am impatiently waiting.  Let us know how you are doing!  Only 6 weeks left, right??

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on September 14, 2008, 03:56:10 PM
hi G. no my screen name on aim is [email protected] i did have bedapetersen but it didnt work properly - ever, so if you use the e-mail address all will be well. i will be online this evening my time. it is now 17.00pm here sunday.
farrah - maybe we'll catch each other later today. i've had the computer closed this weekend up till now.
love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: tanyap on September 14, 2008, 06:29:18 PM
Hi Beda,
Thank you for such a lovely post on my diary. I am constantly amazed that such a small thing was wrong in my knee, such a simple surgery and such a difference in my life. I have been up and down in my rehab, up that I feel so much better, down at the amount of work ahead to make my leg as strong as it should be - the 3 years of not being able to use it have really taken their toll on my poor skinny leg!!
My sinus infection seems to be gone completely now thank god, I am a little prone to sinus problems, I often get minor ear/nose/throat problems. I had some anti biotic nose drops and they seemed to fix it - but a lot of pain before it went away!!!
So not long now to your operation is it? The time is moving along and although you have had such a long wait it will all be worth it in the end. I am so happy it is nearer and nearer, just over 1 month to go. Bed I hope that this surgery takes away all of your pain and lets you get back to enjoying life.
A normal cinema seat is sometimes too small even for those of us who can bend!! You can always use front row or side seats in places like cinemas or theatres - there is always an option. I was at a wonderful play in the theatre the week before last 'The Woman in Black' - it was a ghost story, I deliberately booked front row seats for comfort as Fergals legs are too long for regular seats (he has difficulty in airplanes and cinemas too with his long legs), plus I wanted to be able to stretch myself.
So today I am relaxing after being away whale watching over the weekend- it was such good fun, I didnt think I would enjoy it so much (I was a little scared about being on a boat and the floor being slippy or the motion making it too hard for me to move about) but it was fine, and I was even able to climb up and down the rickety ladder ok!!
I have been very busy in work lately, I notice how much more easily I can move about in work - its fantastic.
A long road ahead for me though with the rehab but at least I get to do nice things now!!
I must get back to stirring my spagetti bolognese - I usually do a sunday roast but was back from the weekend too late to pick up meat at the butchers!
Stay well Beda, I still read your diary even though I havent been posting much recently!!!
xxx
Title: Re: Bedas Pre-Op diary
Post by: Beda on September 15, 2008, 09:32:38 AM
Hej!!! ja, so now only a bit under 6 weeks to surgery! Time is going very fast now and before i know it I will be installed in a hospital bed for the preparations to this mega surgery. I must admit I am feeling relieved that time is going so fast, cos my leg is really being a pain in the most illustrative of ways. On Saturday evening I went to the cinema again and saw Mamma Mia for 2nd time!! I love that film, and when it comes on DVD I WILL be buying it!! I am considering buying the cd of the music, cos I like the way the artists in the film do the songs. All of ABBA cd's are almost impossible to get hold of in the library, but after a few attempts I did manage to get a double cd of ABBAS called the definitive ABBA collection, and theres about 35 songs on that, so that kind of fills my ABBA need at the moment until I can afford to buy the cd.Needless to say I have 'ripped' it and burnt it. I think that this film has been one of the most lengthy time any film has gone in the cenema, usually films over here run only for about 3-4 weeks, but this has been going on for 2 months!!!

Tanya, thank you for you sweet note on my post. I hope now that all is well for you. That whale trip you made sounds really excting, I too would LOVE to do that but I would never make it on and off the boat, I'd have to be airlifted!!!! Glad to hear your leg is holding out, you are bound to feel some weakness after having a 'bad' knee for such a long time. It is amazing how our bodies begin to sompensate for faults in our walking etc when something is either wrong or lacking. My femoral nerve problem has now begun also in the right leg, I am numb on the femur muscle and deep pain sensation is really weird. it is strange that this problem has travelled, but I think its a result of me compensating so much and favouring my right leg so much. last year I had to have a steroid injection into that muscle, but it didnt really do anything, even though the doctor just kept on saying I had to wait for the effect, no effect ever came. So now I have 2 bad legs and dont know which one to put forward first!! Farrah, just so you know, this is my 'little problem' travelling.

It pains me to read that so many of others are in a lot of pain. i wish there was something we could do for all knee sufferers. I have tried to post on 'Health Boards' to try to see if there is anyone there who has had an arthrodesis done, and there doesnt seem to be anyone. But surely I cant be the only one in the world thats had a fusion done, I KNOW for a fact that it is done these days still, not so much for failed TKR's but for other problems, so I wish someone would answer my posts and actually tell me what its going to be like and what i should expect post op. I find that the closer I am getting to the date, the more I am wondering what its going to be like, and the more frightened I am getting for post op pains. I know that post op pains of a TKR is gross, and this is supposed to be a bigger deal, so God knows what I can expect, no one will give me a straight answer. Thats no one i  the medical regime anyway.

Boris has gotten house arrest. hes been out catching brds and mice, and I just am not interested in having his catch in the house, he alwasy comes to show me what and how clever he has been. On saturday it was a beautifull little brown mouse witha black stripe down his back. I know for sure he doesnt want to et them but play with them till they die, and i dont think its fair. So hes not been allowed out since saturday, he doesnt of course understand why, but maybe he needs to 'cool off' a bit. I doubt it will help, but at least i know where i have him when hes inside. Pusswuss doesnt seem to be interested in catching birds and mice, he just lies on top of the roof of the wood shed and sleeps. he wasnt even interested when i got the mouse from Boris the other day and put it next door. He could otherwise easily have gotten hold of it.

I'm sorry for those who have been posting and I havnt responded. I am not really spending a lot of time at the computer lately. I have other fish to fry. (so to speak, I would NEVER fry my fish!!!) Speaking of which one of my big female fish has just dropped a litter of fry, so I have some very tiny fish to feed. there about ½ a mm long but grow very fast if they otherwise survive the bigger fish who see them as food.

well, time to get organised. I have a painting student coming today, that brings in a bit of cash, and I have to set up for her. I am going to try to find something interesting for her to paint that  uses perspective in 3d as an excersise. I dont know what it will be yet, but I'll find out of something.
So, catch ya all later
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on September 16, 2008, 03:18:28 AM
Beda, I know you are in pain, but that was the most upbeat post I think I have ever seen you have!!!!!  I am so happy for you...I guess you are just getting excited to have relief soon.  As far as anyone in the world having an Arthrodesis done, I know someone indirectly!  One of my tennis buddy's mother-in-law's has had one and is so happy.  It was her right leg and she drives and walks always and is pain free!!!  She also had several failed TKRs, so she is very similar to you.  If you want, I can give her your e-mail address so she can contact you about any questions you may have?  Just let me know if you are interested and I can see what I can do.  OH!  I don't think she does e-mail!!!!!!!!!  Maybe skype??  If I had a microphone, I would do skype with you!  My parents use it all the time when my dad is in China. 

Congrats on your baby fish!!!  That is so cool!!! 

As for Mamma Mia, my friend has only seen the performance live and is now in love with Abba!!  She had her radio DJ friend put a couple of hundred songs on her IPOD and I think most were Abba if possible! 

I am so sorry about that nerve pain spreading and not having any pain relief!!!!  You'll feel better when your very bad leg gets some pain relief! 

I can't believe how Boris just kills rodents :)  He's a cat I guess.  That's funny that your other cat just kind of watches. 

I hope that your student did well with the 3d perspective painting that you taught her today.  You did say she had a natural talent for painting, so I am sure you did a great job teaching her!  How did your expensive painting turn out?  I never saw a picture of it!  Did your customer like it after all of your hard work?  What did she say about the price?  :)  Just curiuos.  Well my husband is waiting for me in bed and my dogs are starting to get hyper waiting for bed, so I guess it's bed time.  I hope you have a great sleep or are having a great sleep tonight.  It was nice chatting for a short while during my lunch break today! 

Bye for now!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on September 16, 2008, 01:50:05 PM
Hi Farrah! thanks for your post, so optimistic and lovely! Thank you, it made me feel better. ja, you know what I mean by now after our talk yesterday. i am struggling to be 'upbeat' and really trying my utmost to draw all the good cards out of the hat. About the painting, I finished it, the result was good. I phoned the person who had ordered it, and found out it turns out to be too big!!!! All that work for nothing, Apparently she only has a small space between 2 windows to hang a painting, and it is not more than 25cm wide. My picture was 30cm wide. Needless to say I was very angry that she hadnt told me this on ordering the picture. I always do a good job, i dont turn out rubbish, so now I have a painting of a tuscany landscape that no one wants because who wants a tuscany landscape in Denmark? So she is going to have to pay for 2 pictures, and it wont be cheap. Now I've ordered a new canvas 20cm x 60cm and next week I will paint on it.
so thats the saga about the painting.
I have very bad pains today in my leg, so will only be online for 'live' sessions, and cant answer too many posts, so, until next time,
Love to all, Beda xx
Title: Re: Bedas Pre-Op diary
Post by: Silkncardcrafts on September 16, 2008, 02:08:32 PM
Hi Beda,

Sorry to hear you are still in a lot of pain. I am sure the next 6 weeks will go quickly.

It is great you are getting out and about and still doing things. I bought the music to Mamma Mia and just love it. Could play it over 1,000 times.

I am hoping to start more of my silk painting when I move house. Next Friday, 26th of September I will get Rusty. Can't wait to get him now.

Heading off to bed now.
Title: Re: Bedas Pre-Op diary
Post by: tanyap on September 18, 2008, 10:01:52 AM
Hi Beda,
I found a site before where there were people who had had fusion done - I will look for it again and give you a link if I find it.
You are really optimistic and upbeat these days - its great!!
I saw Mamma Mia live but did not manage to see it in the cinema - I will definitely get the dvd when it comes out!!
I am sorry to hear you have pain but I am happy there is only 6 weeks left before its starting to recover!!! I dont think it will be an awful operation to recover from, its harder to recover when joints are involved because all movement hurts deep inside the joint, but with the joint fused you wont have that pain at all.
xxx
Title: Re: Bedas Pre-Op diary
Post by: Beda on September 19, 2008, 09:10:57 AM
Tanya, well, as far as the post op pain is concerned, I suppose your right about the joint bits, but you must'nt forget i am going to have masses of boney material chiseled away, and new bone grafts put in and a rod that gets passed through the whole of my leg from hip to heel!! I cant imaging that that will go quietly, and I have it as a guarantee from my doc that my pains are going to get a lot worse before they get better!! So I am just mentally trying to adjust here. But THEN!!!!! When all the surgery pains are done with, I should be on the road to recovery and it should go downhill from there. My GP reckons I'm going to be on opiates at least for 2 more years, but what the heck, when ive been going on for nearly 30 years, 2 more is a breeze!! You know when you get to my age, somehow the years go past all too quickly. But you know too well what Ive been through to get this far .... yeah!! Today it is exactly 5 more weeks to the day I will be admitted to hospital. When I think way back to how desparate i was this last spring, well then I didnt even have an OS let alone a surgery date!! thank God for all your positive vibes you sent Tanya, someone somewhere heard them. There has been shed many a tear about this situation I had in spring where no one would touch me and i was a both physical and political hot-potatoe, where I got tossed from the one hospital to the other, not to speak of strikes and waiting lists and everything that COULD go wrong, DID go wrong!!!! Heres a tip for anyone that feels squashed in the system - go to the press or a politician, it sure does give results. If theres anything hopspitals and surgeons in special dont like, thats negative attention of the press. When I went to the politician, I found her own private e-mail, I sent her a resumé of my experiences through the system and my medical journal, and when she got that, I had 2 different people calling me on the same day giving me appt. at Rigshospital asap..........it worked magic!!Luckily this spring we also had an election, and one of the points all the politicans made very clear was the current state of the health System we have here in DK. So there was a lot of talk and little action. Now they are saying its going to take them 2 years to get rid of the waiting lists that accumulated during the health-care workers strike. BUT I came in as an emergency, think if it wasnt considered as an emergency where i would be now?????!!!!!
Anyhow, on a lighter tone. I didnt even open my computer yesterday cos I had it so crappy I felt i couldnt convey anything positive so I felt best leave it alone! I wish I had some more positive things to say to you guys who write on my posts, but I do feel rather 'burnt out' so to speak. i expect this feeling will change as i get nearer to my surgery date, when everything seems to be more realistic. At the moment its a date in the future I'm looking towards.
Of course to make things worse, one of my air pumps in one of my aquariums packed in last night and I had a tank full of gasping fish and have had to make a 2 hourly rotation of air pumps from one aquarium to the other so that all got air. This pump is a new pump, so today I will be returning it to the shop and hopefully getting a new once in replacement. Otherwise I have now got the blank canvasses that I ordered for the woman who wanted a narrow picture of Tuscany, and next week whilst mom is away on holiday I will have the whole place to myself and will change it to a studio and work both day and night, listen to loud music and paint when I want to paint. i dont like doing it so often when moms at home because it does rather make the place looks messy.I need  a studio but we dont have room for one in this house. I have slowly begun to work on a collection of paintings that will be ready for show to next autumn, so its long-time planning, but I cant see that it can get done any quicker because of obvious reasons. I have something in my head for a new picture when I've got this awful Tuscany project out of my hair, it will be some water and a low boathouse with beautiful plants growing around it and everything reflecting in the water. I have seen it in england last summer when i was there.
Well, today my pains are a #9 on movement and about a#6 on resting, so you can reckon what i wont be doing a lot of today!!!!
On Wednesday I had a talk with a psychologist cos I felt like everything was getting on top of me, and the feeling that the surgery will never come! it was a good talk and a session is an hour, so I talked the most part of an hour and she listened. I questioned her at her lack of comments, and she said it was good to be a listener sometimes, specially for the first time so that next time we speak together she can come with some creative comments. that made sense, so I have another appt. next wednesday but can call her at any time if need be. I have her office and private nos. so i wont be left in the lurch if it really burns.
No more to be said today, hope all are having a good day, if not I sympathize 101% but we all need to keep in mind, our problems WILL end at some point. Things seldom go on and on and on for ages without some kind of intervention, even though it may seem so at this time, so hold on in faith everyone, all my love to all, Beda xx
Title: Re: Bedas Pre-Op diary
Post by: eeniee on September 20, 2008, 02:45:16 AM
Hi  Beda , this is eeniee sorry  it has taken me so long to answer your post. I have been out of town and busy with family. I am from Kentucky and we had some electrical outages due to the last hurrican. A lot of wind and electrical poles blew down or damaged. I was lucky mine was only off 8 hours, my parents 6 days so they moved in with us those 6 days and returned home yesterday. You were asking my age in your last post i am 55 years ( young ha ha ) I  feel older. I go back to my new OS ( he specializes in revisions ) September 26 and he will probably set my surgery maybe the first week of Oct. You were asking about my bones my scan came back normal but i still have the pain most of the time. My knee feels real tight inside and as i told you my pain is at the bottom of my knee cap and goes down the front of my leg. Some times it hurts real bad and i can`t even bend it. I see your surgery is in  about in 5 weeks. I wish you all the luck because reading your post you really deserve it !   This will be my second visit to this OS. I saw him last in May. He would have done the surgery in May but i put it off thinking i might get better , but as it turns out things only got worse. I will be having a right total knee revisions. putting in a total new knee conponet. I wish you all the best with your surgery keep in touch and we will see how each of us do.  Thanks again for answering my post.  The last couple times i posted i had no replys and got a little discourage. Thank God for people like you. I will be looking forward to hearing from you again. Take Care ...........................eeniee
Title: Re: Bedas Pre-Op diary
Post by: Sore knee on September 20, 2008, 08:28:35 PM
Beda

The weeks are rolling by and what can I say - you know that me along with  so many others just will this op to give you a resolve and an end to the pain. You have climbed the highest mountain in terms of your knee and I am thinking of you and praying this is the countdown to a whole new chapter in your life.

I am always inspired when I come read your posts at how positive you are and how fulfilled you keep your life. I dont have half of the knee history or problems you have and you achieve and do so much. I always finish your post and think well if Beda can achieve that I will try harder tomorrow. SO although we may miss each other Beda you have touched my life and inspire me.

So I wish you well and hope the countdown to your surgery goes smoothly. Keep strong !
Title: Re: Bedas Pre-Op diary
Post by: Beda on September 20, 2008, 11:31:08 PM
Dear eeniee and joanne. Thank you SO MUCH for your lovely messages, it touches me deep down that you have so much faith in me. WEll, tonight I'm sitting here with one MEGA sore and swollen knee. I just dont know what I have done to cause this, but its a LOT more painfull than it usually is. I have just taken 2 more morphine pills in the hope it will quell the pain. Its really over the top. I went to be with the usual pain, and have just woken up with terible more pain. It feels tight and swollen, and hot. I am afraid theres some infection going on i there, and hoping there isnt cos they wont open me u even if I have a setrile infection. I will have to go to the doctors on Monday if it persists. So I too am no super person, I feel my mortality unfortunatly all too well, but am concerned about this new development.
I wish I could answer some of your posts, but at this moment I have a #10 on resting, so I'm going offline in a miute.
Hope to catch you all tomorrow
Love Bedaxx
Title: Re: Bedas Pre-Op diary
Post by: Beda on September 21, 2008, 10:39:42 AM
eeniee, joanne and farrah!!! Thank you all for the encouragement you give me..... it means a lot that to know others are routing for you as well. Well, as far as my night pains are concerned, I iced and did manage to fall asleep out of sheer exhaustion, not because I became pain free. I could feel the pain through my interupted sleep, and when I got up this morning to shower, it was with the greatest of difficulties. My pains had not subsided, I'm on about a #10 just on rest, so walking or doing other stuff is out of the picture so far today. Speaking of which - pictures, I 'm supposed to be starting on a landscape of Tuscany for the woman who didnt tell me her measurements, but to be honest I'm not one bit inspired to paint, as it gives me increased pain, but I cannot put my paints away because I have a student tomorrow and I'd only have to get everything out again, unescessary work.......I dont feel like having the student over, but I get paid for it and need the cash, so i will be having her over. At least she seems to be well motivated for it, and has certain ideas of what she wants to achieve, so it isnt like I'm trying to teach someone that doesnt have a clue, which is very hard and you need oceans of patience with them. For me it all comes  naturally, and i've got to transport myself back to the times when i was a student so as not to get impatient. Tomorrow i will get my student to paint boxes on top of each other so she can see 3d perspective which is difficult if you dont have lessons, cos theres certain rules you need to know in theory before you can put it to practice. I showed her some perspective the first time she ever painted anything, and she managed very well, so lets see.................
I feel out of this world at the moment duue to all the narcotics i have whizzing around in me, to take the pain. I shall have to contact my doctor tomorrow, i cant go on like this. I know Ive only got 5 more weeks before surgery, but that doesnt mean I have to be more uncomfortable just because I'm going to have it fixed soon!!! And then when I do get fixed, there will be post - op pains to deal with, which, if TKR's are anything to go by, these pains are simply out of this world! I didnt hurt so much the first time i had a TKR as I did when I'd had my 6th. By the time I'd got to no. 6 I had experienced so much pain, Ive never before had such strong pains.
The problem is, this week i am all on m own and have to make food and do the housework, cos mom is on holiday for a week. She didnt want to leave me, but I told her it would be fine, so now I need to look after myself. I could have done with her help this week, but still, she needs a rest as well. Its going to be hard enough on her when I have my op and she has to look after me post op at home. I will be having a nurse coming in to help me with bathing and getting in and out of bed etc. but mom will have to do all the cooking and cleaning. I admire those of you who have young families and have to go through surgery and look after a family at the same time, that must be a really rough deal. At least I dont have a dog that needs excersise any more, the cats pretty much look after themselves.
Well, now I need to go to try pull the sheets off my bed as one of the cats was sick in my bed last night!! GROSS GROSS GROSS!!!!!!!! But I have fitted sheets so it shouldnt be that hard and i can easily get to all 4 corners of the bed, so if in ½ hour I come back posting that I'm caput, dont be surprized!! I dont really know how I'm going to do it without causing a lot of pain, so here goes folks, bye for now...
xx Beda
Title: Re: Bedas Pre-Op diary
Post by: Beda on September 22, 2008, 11:02:42 AM
Another day.... a few days less than friday, less than 5 weeks before my surgery. 4½ weeks. I feel like a nutcase looking forward so much to having surgery, but this is supposed to be the ONE that fixes 30 years of knee problems, so, if it really does that, then I'll be over the moon!!!!
Today I have called my doc about this increase in pain, and he has prescribed even more morphine, and says that ALL his patients who have arthritis - like pains are complaining in these days. Its gone really cold and damp, I can feel it in my fingers that are riddled with arthritis. they are all crooked in the nodules of the joints, and very painfull. If I inadvertibly bash one of these swellings it brings tears to my eyes, its that painfull. But arthrits seems to hibernate sometimes, cos its not always I'm bothered by it, its just when I get a flare-up.

For those of you who remember Lisa, the person who went on a missionary trip for charity in ZAMBIA AND HAD A MICRO-FRACTURE DONE, WELL SHE WAS FORCED OFF LINE COS OF COMPUTER PROBLEMS. I HAVE HELD THE CONTACT UP WITH HER, AND SHE HAS NOW GOT A BRAND NEW LAPTOP AND IS WAITING FOR AN INTERNET CONNECTION, THEN SHE'LL BE BACK.  Sorry about all that being in block letters, it was a mistake, but too much was written to rectify it!!!Ja, well, she'll be back on line telling us all about her post-op period, of which she is still off-sick for, and then she also has a lot of things from Zambia she can tell us about. A very generous loving selfless person, sacrificing her life for those less fortunate than ourselves, also working with a very bad knee giving her pain, a true example to us all.

WEll today is painting day, I have my student today, shell be here for 3 hours, its a long time, but necessary if something is going to be seen through to the end. Today will be imagination and fantasy day, I will tell her to compose a picture from her fantasy, and see what she comes up with. Until now shes always done something by looking at something. i specialize in imaginary pintings, as I always improvize on pictures I've taken with my camera. if i wanted to paint like a photo I could, but I dont want that effect so I improvize. The whole living room looks like an studio because moms not home and I can have all my gear out for as long as I like, but as for the Tuscany painting, I'm going to wait a bit for that. I'm still sufficiently angry enough at the woman to NOT do a good job, so I need to do something I WANT to do before I sit down and do an order. She doesnt want it before christmas now, or at least November, it has to go to Norway, so I have a bit of time. And IF it doesnt get done by the deadline, its just too bad. I'm an artist, not a machine, and cant spit out copies of pictures like a photocopier. I have to wait to be inspired.

Today I must say I dont feel 100% well. I have nausea caused by the extra morphine I have had to take again in the night. I have to take some anti-nausea pills. My pains are still considerable, about a #9 on resting, thank god for small mercies!!!!It was #10 yesterday.But its a #10 on walking (with crutches of course) Right now I'm listening to a real oldy, I doubt many of you younger people would remember them, Peter, Paul & Mary. Our music Library in the nearby biggest town to where I live is HUGE and it is the whole counties central department, and has just about everything you could imagine, including many oldies. Each week they put a selection of vinyl LP's for sale, and they only cost 10kr each, which is a bargain cos there all in pristine condition, and sometimes I can pick up real gems there.10kr is about $2.25 at the present rate of exchange. I love music, and I love LOUD music, so when moms not in, I give it all I've got! 'When the cats away, the mice play!!!!'

Well, need to go now and get ready for pupil, so bye for now,
xx Love Beda
Title: Re: Bedas Pre-Op diary
Post by: Beda on September 23, 2008, 10:05:07 AM
OK Guys - only 4½ weeks til surgery countdown!!! I'm a bit crazy wiping days off the slate so intensely, I'm literally wishing my life away - not good. Have begun a new painting, pains have subsided a bit from yesterday, is around a #8 sitting and a #9 walking. In a minute I'm going to go sit by my easel and continue with my painting. This is NOT the Tuscany one, thats gone into 'filing' for later, it no longer has top prioritary. She had her deadline, I kept to it and it wasnt good enough, so shes just going to have to wait until I get the 'urge' again. I am very motivated for the one I'm doing now, but this is a painting for my new collection. I hope to have a collection ready for Fall 2009. So far I only have 2  pictures for the new collection, but its a start.. On average when inspired I can paint one picture a week. On Farrahs diary I exlained that i did have a coach and manager, but they wanted me to turn out one picture each day, and theres no way I can do that, it doesnt come that fast to me, so I had to give the coach the sack. It was OK cos they also took 25% of all sales, which was a huge lump sum, and since its ME who does the painting, I see no reason why, because they dictated to me what I should paint, get 25% of all sales. its a 'get rich quick' scheme for them, minimum effort from their side, maximum effort from my side. Since then I am reguarly approached by the Chinese, wanting me to paint air-brush paintings on canvas for them, they would dictiate the motives and I would paint them using their materials, paints, brushes, air brushes and they would get a certain % of the sales, but I dont want to mass produce, it makes everything so impersonal. So I have chosen to work for myself, be self-employed, and i can earn the most money like this. I just have to watch the accounts and billing, cos I need to declare a certain % to the tax man if I exceed a certain ammount each year. So far I havnt exceeded this ammount, because my sales are spread out over the year so it doesnt look like a lot, and isnt really that much, but it helps pay off the overdraft etc.
Another grey drizzly day, was hoping for some sunlight. Hope mom is having better weather than we have here, but theres a good chance she is because shes at the other end of the country. Had my student over yesterday, it went well and we had a good time, it was nice to have someone to talk to again!! She just finished some paintings she had been doing from the first time she was out here, and then shes coming on Friday again and we will be doing pencil drawings. You have to be able to master pencil drawing before you can paint pictures, theres lots of 'rules & regulations' one has to learn, and she came herself and asked if we could draw, so we'll do that on friday. then I'm going to be packing all my paints away and make the place presentable for mom when she gets back from her trip.
It is quite likely that i will be planning quite a lot of paintings on my sketch block in this last month before I go to the hospital. then I'll have something to start with when I can paint again after my surgery.


Kirsty, you must be bursting at the seams with suspense of getting Rusty home with you!! I know that it sounds easy with just feeding and watering them, but believe you me, puppies are hard work, and if you dont lay down the groundstones of good behaviour when their in their first 6 months, well then you could end up with an impossible dog on your hands. I dont want to sound discouraging, but I KNOW how it is to have a tiny 8 week old puppy, and how to get them housetrained and obedience trained, well, I'm sure if your like me you will have been reading all the literature you can about bringing puppies up!! We always want to it best as we know how, and since you have chosen Rusty and been so patient about getting him so as you can give him the best youve got, well I'm sure it will succeed for you!! happy puppy days........ remember, puppies sleep a lot, thank goodness, so it gives you a chance inbetween to catch 40 winks!!! Are you going to crate-train???

well this is it for today, now for some serious work, if my painful leg will allow it, so, until next time,
Love Beda xx

Title: Re: Bedas Pre-Op diary
Post by: Beda on September 25, 2008, 08:16:23 AM
hi guys!!!! One more day and then there will only be 4 weeks to my surgery date!!Hurahhhhhh!!!!!!!!!! And Kirsty, only one more day and you pick Rusty UP!!! Happy puppy days!!!! I do hope that you moving into the new house doesnt upset him too much, cos your going to have to make sure he's safe somewhere where he cant run out onto the road if he gets scared by all the activities. But you have thought everything out I'm sure, you have been just waiting sooooo looong for this time, and now its come, ya, well, yu'll give it your best shot I'm sure.
As for me, Ive been painting like theres no tomorrow. yesterday I didnt have my computer open because I had too much work I needed to take care of on my painting, and even then didnt manage to do the half of what I had planned. I guess I keep on procrastinating, and thats no good if you want to finish a picture. I want to have it done by the time mom comes back, she hasnt even seen other than a blank canvas, so a finished picture would be a treat for her. This picture is no.2 in my new collection. I need about 25 for a complete collection, so I've got a lot of painting to be done. If I dont get the older ones I have in stock sold this year, they will be entered next year with the new painting to make up the numbers.
Wel, guys, I dont know where youve all got to, I dont like answering my own posts,, but I do know Ive had nothing but complaints lately, so it isnt very inspiring to answer such posts. Today I have taken time to read all the posts that have been there, though I too havnt been able to answer on them all, cos of the time factor. The other day I used the whole morning just answering posts and keeping ájour, so I cant do all that too many times otherwise I'd never get anything else done. Mom is coming back on sunday, so I need to clean up Saturday. Mom called the day before yesterday and I told her I was painting and I was reckoning on being done by the time she gets home again so the place would look better, and she just said not to worry about that, she didnt mind the mess!!! Now thats real support for me, her supporting me so she sacrifices her tidy living room for my hobby!! She could easily take a very different attitude. My mom is the best, she my best friend and condfidént and she supports me in almost anything I do.
As far as my pain is concerned,I think its better today than it has been for ages. I think by now the extra morphine has built up in my system, and giving me relief.
Farrah, I do hope that your trip goes well, and I sure dont know how your going to walk down that aisle, but good luck there and I hope you're at the bottom of you roller-coaster of pains. I am thinking of you all the time, and really hope that the wedding and reception goes just fine. Weddings are such a joyous occasion, and I hope for you by the time its gets to the reception you will be able to change into some loose pants and have your TENS machine working so you can block some of that pain. I'm sorry we havnt been able to chat lately, I just havnt been up to it or havnt had the time. I didnt open my computer yesterday because i nneded to rest cos of pain, and I also needed to paint, and of the two, I have to do the lesser of 2 evils, so painting got the attention, but I didnt manage anywhere near to what I wanted to do. I'm pretty bone sore today, but as long as I dont move around, its tolerable, about a#7 on resting which isnt too bad. Thank God for morphine!!!
Everyone, look after yourselves today, do what you have to do for pain, and take those meds otherwise you'll never get quits with them!! I'm thinking of all of you, and wish the best for all of you,
Lots of love, Beda xx
Title: Re: Bedas Pre-Op diary
Post by: Beda on September 26, 2008, 02:53:43 PM
The painting I have been working on is posted on my web site     www.bedasatelier.dk (http://www.bedasatelier.dk)  hope you enjoy it. its 'boat house on mill pond with rhoderdendrons' its been a long hard slog...
love beda xx
Title: Re: Bedas Pre-Op diary
Post by: eeniee on September 27, 2008, 02:52:52 AM
Hi  Beda
              It`s eeniee again reporting on my os visit today.  From the looks of todays xray`s it looks like i have trouble with the tibia bone and loosening of the conponet. There are spaces between my tibia and conponet on both sides of my knees. At lease this is what the xray is indicating. I have to go to my primary care Dr. Monday and if i check out ok health wise with her than they will be setting up my surgery the first week of Oct.  I will be having a total right knee revision. The os said it would be better to revise the whole knee. He believes this is whats causing my servere pain down the front of my knee. The os i am going to now specializes in revisions.  Your surgery is just about 4 weeks off i bet you are excited to get it over with. I saw your paintings on your web site, they are beautiful !!!! You are so lucky to have such a great talent. Keep up the great work. Its good to have a hobby that keeps you busy. I will post more on Monday after my Drs. visit. Hope your pain is better. Hang in there it won`t be much longer. Hopefully the pain will be gone.     
Title: Re: Bedas Pre-Op diary
Post by: Beda on September 27, 2008, 03:38:13 AM
Hi Eeniee. Well, your diagnosis was how I imagined, it is very tell-tale when you get pains down the front of your leg. I'm so glad you dont have to wait months and months for surgery. I have waited the best part of 9 months for my surgery, due to a lot of red-tape and a lot of negligence on the doctors side. I had to go to a politician and to the press before things got moving for me. I am also glad to hear that your OS is one who deals in revisions only. It is a very special thing, revisions, and mustnt be taken lightly. Unfortunatly I didnt get to a specialist or revisions untill my 6th time round, and when I saw him then, he said 'why havnt you been referred to me ages ago!' but unfortunatly with socialised medicine here in denmark we dont have much of  a say in who we see, but I screamed blue-murder and got seen, but it sure was a hard slog. I hope for you that your surgery goes well, and that it resolves the problems you have, which I am sure it will. Keep my fingers crossed for you, thinking of you, Love,
Beda xx
Title: Re: Bedas Pre-Op diary
Post by: MartinsGirl on September 27, 2008, 03:57:29 PM
Hi Beda,

Firstly, I'm so sorry you're in so much pain, and that you've had so many failed surgeries  :-\  I know I'm not the only one to be in shock about that.  I don't have the time to read through your entire journal, but will skim some recent pages.  Wow, you had to involve politicians and the press to get this upcoming surgery?? why all the red tape? i'm so sorry you had to deal with all of that. As if you needed that extra stress!  So your surgery is in November, right? and you've waited 9 months for it so far?? Is this another tkr? I don't understand how someone could have 6 failed tkrs  ???  I couldn't imagine going through ONE, let alone 6 or 7, and then your other surgeries. You are one tough cookie!

I checked out your website and WOW! you're so talented! Not only as an artist, but i saw some of your amateur photography. I love amateur photography. I am in a group on Facebook and some of the pics I submit get several votes (I haven't won yet, but i'm still trying, lol). I just love taking pics of nature (flowers, trees, rivers, etc) and also whatever catches my eye.  Are you on Facebook??  I also read about you being a chef and a teacher  (wow! you have had a life of adventure indeed!). I"m a teacher (i teach physical education to kids grades 1-3 and I teach French to those in grades 4 & 5).  I just love your paintings! My boyfriend has always been artistic (sketching, sculpting). I've never had that particular talent (painting, etc), but I admire those of you who do :D 

by the way, Boris is adorable! i love the pics of when he was a kitten!!!

i hope today is an okay day for you. I know you're always in pain. But i'm glad your surgery is just around the corner :D XOXO
~Nevella :)
Title: Re: Bedas Pre-Op diary
Post by: Tabitha on September 29, 2008, 07:09:48 AM
Beda,
      I got a chance to skim through your diary, I will give it more of a read in the morning. I just feel compelled to be on your thread, I feel so much for you as I have never met anyone who has suffered like you. It's horrible what your health care system has allowed you to go through, I hope that no one else will have to suffer like that. Your art work is amazing, you have really found an outlet for your pain, and it's beautiful. I love that your story has taken something so painful and awful and turned it into beautiful art. I think you must be a very vibrant person to be able to do that.

 Thank you for sharing your story and your artwork with me, you are a very talented and gifted person who has persevered thorugh many obstacles!

~Tabitha
Title: Re: Bedas Pre-Op diary
Post by: Beda on September 30, 2008, 09:22:02 AM
Hi Guys! Nevella, this is my 17th surgery, and I'm not having another TKR but having what they call an ARTHRODESIS done, which means they are going to fuse my leg stiff at the knee joint. I am having surgery on the 27th, going in on the 24th for prep (October) So its about 3weeks and 4 days before my surgery date, and time is running out so fast!!!! But I bet in the last week up to the surgery, time will go at snails pace. Never mind, I am making most of my last time, and want to complete at least 3 paintings in 3 weeks, thats a week for each, so should be possible. I am working on one now, but its a difficult painting and it is challenging if I can pull it off. Its very different from what I usually do.
Tabitha, wow! You went through my diary. Actually the first page is the only interesting page where it tells you how I got in this mess, and all the other posts are just keeping the diary up to date, Plus a great deal of moaning about the pain I'm in. Actually, the weather now has turned really quite chilly outside, and my legs are really hurting, yes I mean LEGS cos both of them really hurt. The bad leg, the L is very painfull, as always, but since this cold weather has come, its really been bugging me more than ever, about a #10 on walking, a #8 on resting. Then I have a dull constnt ache in my R leg, probably due to bearing weight on to for so long, and its probably OA that going on in there. I dont have OA in my hips as far as I know, but they sure are aching for being 'normal'. But my OA in my hands and fingers and back is realy bugging me as well, I'm a bit like a weather barometer, i can predict if its going to be cold and damp. For one of the first times this week, we've had to put the heating on in our living room, its just too cold to sit there watching TV or doing whatever you do in the living room. When the sun comes round it shines right in our 4 windows, and its gets really hot, as we have double glazing, but as soon as the sun goes down it gets cold again.

Well, today I have to take Pusswuss to the vets. he has an allergic skin reaction and is scratching like crazy and is loosing his fur in big patches. it IS'NT fleas, both cats are treated for fleas ALL the time. He ate some food the other day and there went 15 mins and he was scatching like theres no tomorrow. We strongly suspect him to have some kind of food allergy, or maybe even a dustmite allergy, of which we cant do a whole lot about. he is on steroids, which does help against the itching, but doesnt stop the reaction. I think he needs some anti-histamines, and some other stronger steroids to help cut out this terrible itching he has. Poor pussy, it must drive him CRAZY, it does me if i have anything that itches. i also dont think he feels 100% he doesnt want to go out and just sleeps all day, though he has a VERY good appetite!!! AK!! What does one not do for the dear animals!!

Hope everyone has not got it too bad today. I read in others posts that some are in pain, some are getting better, so I wish for all of you that you will soon get beter and not have so much pain. Unfortunatly theres not EVER any quick fix when it comes to knee operations. Unfortunatly the knee is the most complicated joint we have, and the joint that we use the most, so its bound to take time when they have been grossly disturbed like operations etc. So the best anyone can do is, take the meds, ice or heat as required and then do the PT if that is prescribed, and most of all give it a REST!!!!! last night i put my electric blanket on my bed for 1st time this fall, and boy was that good!! I get the most relief from heat, some get it from ice, its all a matter of trying out and experimenting which is personally best for you.
Thinking of you all, Love, Beda xx
Title: Re: Bedas Pre-Op diary
Post by: Beda on October 02, 2008, 07:28:56 AM
Hello all!! Well, after a couple of really bad days, here i am again. The weather has turned cold, and because of this my leg is hurting more than ever, and that doesnt take into consideration that I had a fall yesterday!. It was dark, cold and rainy outside yesterday, and I had to go to the store with mom. WEll, needless to say my crutches got wet on the rubber tips of them, and when i went into the store, and onto their vinyl floors, my crytches slipped from under me and caused me to fall onto the floor with a big jerk to my bad leg, and boy! Did that ever hurt. I havnt had peace in it since, and I sorely feel the urgent need now to get this operation done , and the sooner the better! Tomorow will bring me to 3 week s beofre surgery, exactly, and i am beginning to  gather stuff up that I may need for the hospital stay or for when I come home again. When we were in the store yesterday, mom and I, we found   a really handy grabbing aparatus, which is a long stick that has a handle which has a mechanism on it which makes like grabbers with rubber grips on the end to grab and let go. Its really neat and great for picking stuff up from the floor when you cant bend down yourself after surgery!!! And it was'nt expensive!!! In the previous years when I have been operated on, I had the oppertunity to borrow help-aids like this from a central place attatched to the hospital. But now theres stores that sell these things, and the grabber is of better use, the one you buy, than the one you can borrow. As I should be FWB right from the start, I shouldnt need a wheelchair, but if I do I'll borrow one from the hospital, I'll not be buying something I may only use for a few months!
Well, today doesnt feel as if its going to be a good day. I have a #10 on standing, and about a #9 on resting, at the moment. It looks cold and wet outside, and I feel sure that they have scheduled this surgery in october just so as I can feel how much I really need it!(lol) I HATE cold wet weather, it makes me ache all over, and needless to say in my bad leg the worse.
I dont know how in this world I'm going to manage it, but somehow I'm going to have to help my mom make rosehip jelly today. I will sit on my rolling office chair I have in the kitchen and whizz round on that so I dont need to stand up! 
I hope you all have a good day, and dont get too fazed out with pains etc. I know it sucks, but it WILL go over again, just hold on to that. Thinking of all of you with love,
Beda xx         
Title: Re: Bedas Pre-Op diary
Post by: MartinsGirl on October 03, 2008, 04:39:42 AM
Hi Beda,

I think about you a lot, but recently had a death in the family. So i'm flying out tomorrow across the country (Canada) and wont' be back until Wednesday. So i'll try to catch up and write something once i'm back.  I hope your knee doesn't give you too much trouble this weekend. Or at least I hope the pain eases, even if just a bit :).  Once again, great art work!! you're so talented!!!
~Nevella :)
Title: Re: Bedas Pre-Op diary
Post by: Beda on October 03, 2008, 01:36:10 PM
Hej Folks!! Just to drop in today to say that today is my exact day for 3 weeks pre-op day!!!! I feel like I'm going to get there at last now, but time is going pretty quick these days. I hope that it will continue to go just as fast,, as playing the waiting game can be tedious. Knee still very very sore, and I dont think I will be doing much of anything for the next few days. The fall really hurt me. As I've recently had a stress fracture, I hope to god this isnt what has happened again. But the OS said that if he found another stress fracture or one developed under surgery, he would just wire it and put a cast on it post-op. Better one immobilisation too many than not enough is his motto. hes just being extra careful, and I'm glad hes a consciencous surgeon. Today is dark and rainey one again, I wish the sun would come out and we'd get a bit more dry weather, this cold wet stuff is doing me in!
Hope everyone has a good day, and that pains dont get too bad. By the way, I live in Denmark and I dont know what VICODIN is??? A lot of people seem to be mentioning it, but I just dont know what it is. Is there someone that will enlighten me???
Farrah my friend, where have you got to these days???
Catch ya all later
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: eeniee on October 03, 2008, 05:20:19 PM
Hi , Beda this is eeniee my real name is Paula. I finally got my surgery date it will be on Monday November 3 . I go for my pre-op testing the 20 of Oct. I will be having a right total knee revision.  I bet you are excited about your surgery coming up in 3 weeks. I saw in your last post you were asking about what vicotin is. It`s a pain medication also know as hydrocodone. I take this for my pain. It works pretty well on me. I wish you the best on your up coming surgery. Be sure and keep in touch so i can know how you are coming along. It helps to have people to talk to who are experiencing some of the same problems we are. I hope you have a good day hope to hear from you soon.
                                                                                                                   Paula
Title: Re: Bedas Pre-Op diary
Post by: Beda on October 04, 2008, 06:48:35 PM
Hi Paula. Well, good to hear from you again, and good to hear you have a 100% clear diagnosis and plan of treatment. that you dont have to wait for more than a month for your surgery is great. i wish you all the luck in the world for this new knee your going to have revised, and hope that the result is good. You are going to be operated on exacty one week after me! maybe you should start a post op diary and if I start one we can follow each other. I have been through what your going to be going through 6 times, so I can offer you good advice if needed!!! But it sounds like you are in good hands. Look after yourself,and good luck on the 20th october when you will be having your pre-op investigations. I will be having mine on the 24th october, staying in hospital the 25th & 26th & surgery on the 27th.
Good luck through everything,
Love Beda
PS thanks for the info about vicodin!! Now I KNOW what it is, I've had it before myself!!!
Title: Re: Bedas Pre-Op diary
Post by: Beda on October 04, 2008, 07:45:53 PM
For those who want to, you can see me on Facebook!!! Send me an e-mail if you want to be my friend!!!!
Love Beda XX
Title: Re: Bedas Pre-Op diary
Post by: Sore knee on October 05, 2008, 04:36:30 PM
Beda I just wanted to come by as I go on holiday tomorrow. I wanted to wish you well for your surgery. I may only be home when you are about to go and I didnlt want to miss the opportunity  of wishing you well. I hope it brings a long term resolve to your situation and I so hope it gives you a better quality of life in less pain - you deserve it so much.

If you can pop in after it all and let us know how you are. You will be in my thoughts and prayers and I wish you a speedy recovery. Are you still going to Spain to recover ?

With best wishes
Title: Re: Bedas Pre-Op diary
Post by: Beda on October 06, 2008, 10:01:42 AM
Joanne, thank you for your sweet message, its so nice of you to think of me. I hope you have a really GREAT holiday!!
here at home things are going slowly. I had a weird dream last night that I went to the hospital and they wanted to do a 7th TKR!!!! And when I got there, there was a load of other people having it doe as well, but they all had their dogs with them, and the TKR's were being weirdly performed on thier dogs!! I think its all this talk about puppies on KG thats been affecting me, I soooo long for a dog for myself, but it cant be a reality as our landlord doesnt want dogs in this property we are renting, though it would be ideal for having a dog, we have a big back garden that would only need fencing in on one end, the rest is closely grown bushes with some wire mesh from another person a long time ago that had a dog before this particular land lord overtook the place. I have to live well on my precious memories of my beautifu, unfortunaly gone and lost Sandi!!!
Now its only 2 weeks and 4 days to my surgery, I never thought I could ever be so enthusiastic about being cut open, but I am soooo sick of this terrible pain I'm in, and if this means eventually an end to that, well I'm all for it!!!
Paula, hang in there, your surgery will come around before you know it, only one more week after mine!!!
The weather today has taken a turn for the good. Its bright, 'warm' and sunny, well, 'warm' is relative, But its better than it has been. BUT my OA in my fingers is playing up something fierce. Of all the pain meds I'm on, one wouldnt think it was POSSIBLE that anywhere hurt any more, but no, my leg and my little finger on the left hand is killing me. Just a tiny little finger that can cause so much pain is incredible. But I join forces with my mum about that, she also has OA in her hands, it runs in the family.
I am finding the wonders of facebook, so I'm there if you whoever you are want to be my friends!! I had 2 new friends in the night, it was fun!!I'm still finding out how it all works, its a neat web site!!!

Please everyone have a good day today, look after yourselves.
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: lmr1 on October 06, 2008, 10:29:26 PM
Beda my sweet and wonderful friend

I didnt deliberately post on this thread until i had caught up and read everything since going MIA in June.  You trully do not realise how inspriational you are to to all and how much you help people to cope with their problems.  You listen, you advise and you support.........and for all read and the crap you have to put up with you barely moan at all.  You have been there for me through all my rubbish and still are.  I never want to to disappear from my life you mean to much to me.

I joined this site for support and friendship.........living alone you can get very lonely at times, and even though i have had no computer you have remained in touch.......at expense to you i am sure.  I could go on and on about how supportive you have been not only to me but to others as well and i know that many people out there would second what i am saying.

I haven't posted pictures from Zambia yet, though i know you have seen them all............i wasn't aware that anyone else was interested until catching up on your thread and Farrah's but now i know that some would like to see them i may well do that tomorrow whilst sitting in waiting for that courtesy car to arrive and putting my knee up trying to get rid of the mystery swelling thats going on.

So it's getting late and the fact that i have this new toy still hasn't worn off in the lets play with it phase i still have to admit that sleep is required and think about doing just that.  It was great chatting with you earlier and thank you .................for everything.

Lotsa Lov LIsa xx
Title: Re: Bedas Pre-Op diary
Post by: Beda on October 07, 2008, 10:57:31 AM
Lisa - the pleasure is all mine!!! I am worried a bit about your mystery swelling. There must be a reason for it, and for it to come at such a late date. Do you have any increased pain or warmth in it??? if you do, RUN to the OS and let him look at it. But maybe this is just you, and the way your body is coping with problems. maybe its saying ..... 'hey you, take it easy on me, I'm only new-operated!!!' I dont know, but Ive always had the greatest of respect for swellings, they do, as a rule, mean that somethings not quite right. sorry to have to say it????!!!!! :'( :'( :-[ :-[
As for me, it is now 2 weeks and 2 days away from my admission to hospital. On Friday I need to arrange for transport to go to the hospital. I have to be there at 8.00am and its about 200km away.It takes the best part of 3 hours to get there with the transport they provide.So I'll probably have to get up at 4.00 in the morning that day!! O well, its all for a good cause, and at least I will have a bed to crash on when I get there!!
OK. Have to go now, catch you all later, Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: Beda on October 08, 2008, 08:58:56 AM
Dear Friends. One more day has gone, now only 2 weeks and 1 day to my admission to hospital!! My pains are great today (in a negative manner), I have about a #10 on walking, I try not to move as much as possible. i am sitting here in the sofa with my laptop, and  just waiting for the pain meds to kick in. Today the district nurse is coming to dose my meds in their dosage boxes for me. I have to have this done, cos otherwise I am in danger of either missing a dosage or taking 2 at once!! i sure feel it after theres gone some hours if I miss it, I get abstinenser, and if I take double up I get sick to my stomach and cant breathe properly, so both ways is bad and has to be avoided.

We have found out something great for the time when I am in the hospital. Rigshospital have a special Patient Hotel, where family of patients that are admitted to the hospital can have a nice bed and room and overnight for a good price. My mom is going to book herself in for  as long as it takes, and we can get it subsidized by the council, as it is an operation that can ONLY be done at Rigshospital, and my mom is my ONLY relative I have, being next of kin. So touch wood, we should get the bill partly paid for us, and mom doesnt need to travel back and forth from her friends to the hospital. We must remember that mom is now 76 and she gets quickly tired, though she is fantastic for her age, she has her moments, and this we need to sympathize with. So Mom is going to be there for me, she will be there the day before I have my surgery, the day I have my surgery and the following days as needed. I feel so happy about this, as I was worried of being in a hospital hundreds of kilometers away without having any visitors to come see me.

Lisa - sorry I missed you on Messenger yesterday. I saw when I went to bed you had been there, but I wasnt in that room all day long where the computer was on. Actually I only had my laptop on for a short while yesterday, its this with pain and sitting writing on the computer, the two dont seem to work together. Maybe we'll catch each other today.

 Will go now, hope eveyone has a great day, and pains that are diminishing all the time. Knee pain sucks, I feel for you who have pain, so innerly,
Lots of love, Beda xx
Title: Re: Bedas Pre-Op diary
Post by: lmr1 on October 08, 2008, 09:21:38 AM
Beda

Thats okay i know how much effort it is for you on the computer so i just love it when we do get to chat and dont worry when we dont.

I just started a post op............nothing held back diary and got kicked off after typing loads and lost it...........how annoying.  Will now do it later.  Am not going to hold anything back............so when i have done it and you are up for it enjoy reading.  I know that you know lots about me and the op etc but some of it will be new to you too........though i am sure that you wont believe some of it.  Gunna log of for a bit now and go to the gym for a bit of human company and then try typing it later.  Should be back around lunch time.

Lisa x
Title: Re: Bedas Pre-Op diary
Post by: Beda on October 10, 2008, 09:04:18 AM
On having had some very imposing e-mails sent to me about my upcoming operation, I have decided I am going to stop posting for a while until after my surgery, as I do not wish to get negative mail encouraging me to mutilate my body amongst other things. My e-mail address will be removed, and if anyone wants to contact me it has to go through another mail programme called
[email protected] this is not my regular mail rogram, but is looked at occasionally. I feel very hurt by some peoples ideas of what support is, and do not appreciate being told that amputation is better than arthrodesis. I do not wish anyone to mail me on my other private mail program, other than those who do so already and I have a relationship to. if you want contact this also can be done through my web site  www.bedasateier.dk   (http://www.bedasateier.dk )
sorry it has come to this, but I feel very sensitive at this point in  time.
Beda
Title: Re: Bedas Pre-Op diary
Post by: luckygrandma6 on October 10, 2008, 12:51:44 PM
beda, that is so sad. I'm with you on this 100% and I don't think it will ever come to that. You have made the right choice for you and for anyone to suggest you amputate your leg is very hurtful. These are probably people who wouldn't do it themselves. If they think amputating your leg solves the problem then they should go get their's amputated and see how they feel. I would walk with a straight leg the rest of my life rather then look down at my body and see nothing but some wooden tree hanging out of my limb. SICK! SICK! SICK! Whoever is doing this. Just remember, these people giving you this advice are not doctors and even the doctors have not not layed this out as an option for you. I don't think amputation should be done unless it is an option for saving your life, like cancer or something.


This is how I see the furture for you. The surgery is going to be successful, in a few months you will be free of pain and in a couple years you are going to come to the US and we are going to have a blast and celebrate our victory together. Hang in there friend. I'm pretty good at predicting things.
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on October 11, 2008, 04:31:46 AM
Beda, I am so sorry that I haven't shown my support on your thread in a while!!!!!  You definitely don't deserve having people talk negatively about something you are already nervous about!!!!!  You are doing the right thing and I support you 100%.  I agree with grandma that you will have a better life with your "stiff" leg.  I hate that people on KG can be so mean sometimes to people who have already experienced enough pain and problems!!!  I hope that those people feel bad for ever e-mailing you!!!  I wish you could post their names on here and make them embarassed for ever hiding behind an e-mail address making someone feel horrible for their decision of becoming pain free while having their own leg!  I would never want an amputation if there was a better solution!  Who the hec would want to get their leg cut off??  Did those people even give arthrodesis a chance before saying anything to you?  We will keep in touch and I hate that you want to stop posting on KG!!!  People still need to hear your story b/c as you know, not many discuss this type of surgery on here.  So you would not only be updating us on your health or status, but helping others that may be thinking about the same surgery.  I have learned that many KG people are afraid to post on diaries, but still read updates.  You may have some fans like that who aren't even e-mailing you.  It's of course up to you and we want you to be happy!!  If that means no more KG, then we support you!  I really hope that your spirits pick back up before your surgery.  Going into this more depressed will not benefit the outcome, right?  :)  I just care about you.  I wish we could chat more without having such a time difference.  It always ends up meaning you are not sleeping well if we chat during my evening time.  Well, I was thinking about getting a calling card to talk to you!  I don't have a lot of money, but it would be nice before you go under the knife and on the road to recovery and a life of no more pain.  Remember, I have a friend of a friend who had your surgery and is living a happy healthy life...she even drives with that leg!!!!  I'm thinking about you always, Beda. 

Farrah
Title: Re: Bedas Pre-Op diary
Post by: rozzzie on October 11, 2008, 05:40:40 AM
Beda,

I'm sorry that you have received emails that upset you.  You have been through more than most of those on KG, how can they try to give you specific advice, against your OS.

I don't post often, but do follow your progress, I remember how I felt before my ankle fusion, excited and scared to death.  It did prove to be very successful and I can now walk for several miles if I need to.

You are in my thoughts and prayers.

HUGs
Rozzzie
Title: Re: Bedas Pre-Op diary
Post by: Silkncardcrafts on October 11, 2008, 07:01:00 AM
Hi Beda,

I am just dropping in to say hi.

Am so sorry to hear that you have received some negative emails that have made you upset. They have no right to do that. You have been through a lot and sounds like you are getting the best advice and treatment. Some people can be so insensitive. As my OS and sports physician say everyone has different anatomy and what may be suitable for one person won't be for the next.

It is not long till your knee operation now. I am glad it's long to go for you now. The worst part is waiting and not knowing. It's wonderful that your Mum can stay at the hospital and not have to travel. That is definitely an added bonus.

I am really enjoying having Rusty. He has settled down nicely. He was de-sexed and micro-chipped on Thursday. My Dad has put a child's door at the bottom of the stairs of the verandah so he can't get up and scratch the door. He's tried very hard to get through but can't as his head is too big. When he sees his reflection in the glass he barks as he thinks it's another dog. I'll take some more pictures and post some for you.

Enjoy your weekend !!!!  :D :D :D
Title: Re: Bedas Pre-Op diary
Post by: MartinsGirl on October 11, 2008, 03:48:18 PM
Hi Beda,

I don't remember if I managed to inform you before I left, but I have been away pretty much since last Thursday (my fiance's brother committed suicide and so we flew to Saskatchewan for the funeral for a few days). Then i got home and had to catch up on work, so wasn't online much (and also found out my dog has to be euthanized). So, I just want you to know i HAVE been thinking about you, but just haven't had time to come on Knee Geeks really until today (all I've done is quickly posted a short update on the thread i share with my friend Lenore).

Im' very sorry you've been getting discouraging emails.  Good for you for changing your email and doing other things to help you stay focused. You should not be made to worry or doubt so soon before your surgery.  You're doing the rigiht thing with the arthrodesis.  I have to get going, but I will keep up to date with your journal, now that I'm back and online more often.

sending hugs :D
~Nevella xoxo
Title: Re: Bedas Pre-Op diary
Post by: JoniF on October 12, 2008, 12:55:29 AM
Hi Beda,

I know we have not communicated much, but I just wanted to express my thoughts, prayers and well wishes for your surgery.  I truly believe as others have posted prior to me that everyone is different and you need to do what is best for you.  In a virtual world it is easy to criticize and pass judgements on others for our own fears and insecurities as I have seen posted as ignorance on others threads.  When I first joined KGs, I posted quite regularly; however, as I saw how everyone became doctors, judge and jury on others decisions, I stopped posting as much.  I believe that you know your body best and what is the best plan of acction for you.  If that is Arthrodosis, then so be it.  I truly hope that it is the solution for you.  I too could not imagine amputation when theree are other possibilities.  Please know that even though we do not know eachother well, if you would like a sympathetic unjudging ear, please feel free to post me back or send me a message.  Best of luck on your upcoming surgery.  You sound like a very strong determined person and I know you'll do great.  That's awesome htat mom will be able to be close and that some of the expense will be taken care of.

Take care and wihing many pain free days,
Joni
Title: Re: Bedas Pre-Op diary
Post by: Beda on October 16, 2008, 06:50:49 AM
 :)  Dear Fellow friends and followers. I havnt been posting this week, as you all know why, but feel impelled to say thank you to all of you who have been so supportive of my decision not to post. This week has been partially busy, partially just lying in bed. I didnt get up for 3 days as my pains were so great. I have a #10 on just lying in bed. Then yesterday my cat got sick and I had to take him to the vets, Who had to do blood work, x-rays and anæthestize him, buy the time I was through it cost me 1600kr which is a LOT of money, but the vet was very kind, and as I have an account down there already, he put it onto the account and I'm paying off installments each month. When I've finished paying the vet, i can put the bills into the insurance company, and I will get an 80% refund. I actually managed to get Boris insured whilst he was in  a good stretch. he has a chronic problem with his urinary tract, he gets bladder and kidney stones, which happens at intervals. hes not a strog cat, and this last diagnosis was urinary tract infection and he has to have anti-biotics for it. he was really sick and didnt want to eat, and when hes like that I KNOW hes sick, cos he LOVES his food. Thank god it happened now whilst I was at home and not when someone is coming in to feed the cats whilst mum and I are gone. :-\ :-\
I thought I would just share with you guys exactly what has been going down. There has been a person, no actually 2 people, that have used my private e-mail to send me long descriptions of how great it is to have your leg amputated, and one jerk did it just because he wanted an amputaion, there was nothing wrong with his leg, he was just in love with the idea of living like with a handicap. Well, for him the outcome was they agreed to do an arthrodesis, but they refused to cut a healthy limb off as there were absolutely no clinical grounds to base this on. he came from GErmany. There is actually a sicknees which is a mental disorder whereby some people feel the need to have a handicap in life, and they cant fuction without a handicap so they mutilate their bodies to achieve this. i dont know what its called but its SICK. The other person who wrote to me several times was someone who had had an arthrodesis offered to him, but chose the amputation and is so proud of his something like 3-4 different prosthetics. He's writing to me telling me I wont be satisfied with arthrodesis cos theres so many things you cant do. Apparently he feels he can do the whole world now after his amputation, and urges me to do the same. that is the last thing I would do, looking down to my leg and seeing that its gone and that theres some wooden stump there instead.

Now I am feeling very fragile at this point in time. i am scared sstiff of thi upcoming surgery, I have  a lot of questions I need to ask the OS before he does the surgery, but one thing for sure is, i DONT NEED ANY NEGATIV feedback. I need for people to tell me I've come to the rigth decision about my leg, and I comfort myself with the fact that the OS would never even attempt this operation if he didnt think I had a reasonBLE CHANCE FOR BECOMING PAIN FREE.So if you can support me, i would love to hear from you, if you cant support my decisions, then dont write to me. i dont want to know.

I had a terrible time falling asleep last night, so I'm geting al tired again now, so I'll sign off here. Once more, THANK YOU if youve written to me and support me, please do write again!!
Lots of love from Beda xx

Title: Re: Bedas Pre-Op diary
Post by: MartinsGirl on October 16, 2008, 02:03:51 PM
Hi Beda,

Im' glad you posted just to let us know how you're doing. But I'm sorry to hear you're feeling so fragile and afraid, and you're in so much pain :(   

What whackos! I'm talking about the people who have been emailing. I know that because of them, you're now going to have a little bit of doubt in your mind. But just remember what the rest of us are saying....AND what your doc says.....your arthrodesis WILL work. It IS the best choice, okay?

sorry I have to get going, but I'm sending you BIG hugs from Canada!!  ;)
~Nevella
Title: Re: Bedas Pre-Op diary
Post by: Beda on October 18, 2008, 07:30:34 AM
Only 5 more days to go!!!!!!
xx Beda
Title: Re: Bedas Pre-Op diary
Post by: tanyap on October 18, 2008, 03:00:31 PM
Hi Beda,
You know my internet access has become limited so have not been around so much but I am always thinking of you and I am so so so so so happy that your long wait is almost over!!!

It is normal to be scared, worried, and feeling fragile about an upcoming surgery. Totally normal!! But we must look at the positives, there is a REAL chance here that you will become pain free - what a wonderful dream that would be for you!!! I have no doubt that this surgery is the best way forward for you. I also believe (especially given your height) that fusion is so much better than amputation. I have scoured the internet for posts from people who have had it done and I believe one of the reasons that there are not many people out there posting about it is because its largely problem free. Any posts I have seen are about people saying they have recovered their lives and have no pain - if there were a lot of bad side effects you would find a lot of message boards discussing this no?

I support you 110%!! I absolutely think you are making the right decision. I dont believe a doctor would bother with a surgery if he thought it would have a bad outcome. Sure, complications happens and surgeries fail, but none of them start from the position that its not going to have a positive result - otherwise it would never be suggested!!! The main thing is that you have to do what you feel is right in your heart. If you could not live with an amputation then an amputation would NEVER be a solution for you, people can heal physically but if they dont agree with something emotionally it could never be right for them. I can promise you Beda, if I were in your position (similiar height too), I would be making the same decisoon as you.

Just think, so much pain is coming from your prosthetic knee not being right and slipping about and setting off pain and inflammation in the whole leg all the time, once that is out of your body and the joint fused there will be nothing to move about and cause that kind of pain for you!!! I dont doubt you will have post op pain and some soreness, but in the longer term you will have such a better functioning leg, without the things inside to cause the pain for you!!!

I have searched and searched and tried to find more info about the arthodesis and I honestly have not found anything to suggest that there will be so much you cannot do - what can you do now!!!! Nothing!! But afterwards, you will walk, you will be able to relax pain free, you will be able to use a pool, go shopping, you will definitely be able to go to a cinema or theatre - you may need to arrange seats with extra leg space, but that is always available. You will be able to paint more easily. You will be able to go for a meal with friends, go up and down stairs!!! I am comparing all these things to what I could and couldnt do when I had a full plaster of paris cast on my leg - I could do everything I said (except swimming I guess cos the cast would have dissolved!!). The only activity that I could not do was cycle. Big deal!!!!
It will just be a matter of finding new ways to do things, and when there is no pain that will be so much easier, today you have pain preventing everything, after the op you will have a solid pain free limb, and if it means you have to shove it under a seat on a bus you will - because it wont hurt you to!!!!

Take no notice of the whackos - there are always freaks out there. I heard of that condition of people who want an amputation - it is bizarre!! These people are just crazy. You however my dear Beda - are NOT crazy, you are a strong woman who has been through far too much suffering, and now that that suffering is almost at an end it is only natural that you feel worried in case the change brings new problems. It may bring some problems, but nothing as serious as the problems you have today right? It will be so much easier to have a stiff pain free leg than a leg that gives so much pain that you cannot live your life!!!

I am full of encouragement for you, I would love to come to Denmark and dance about you and cheer you on every step of the way (might be a one legged dance on my own dodgy knee but who cares eh?). As it is I will send you virtual hugs and cheers all the way!!! I know in my heart that this is the best thing for you, and I also know that this journey has been long and difficult for you and that soon you will look back and think 'how wonderful and different my life is now'.

Go Beda Go Beda Go Beda!!!!!!!!
xxx
Title: Re: Bedas Pre-Op diary
Post by: rozzzie on October 18, 2008, 09:20:30 PM
Wishing you the BEST! ! !

Sending you lots of
HUGs!


Rozzzie
Title: Re: Bedas Pre-Op diary
Post by: Silkncardcrafts on October 19, 2008, 12:31:16 AM
Hi Beda,

Don't worry, I am sure the surgery will go just fine. I felt the same way before my last operation. Look at me now. I can do so much more and have a much better quality of life.
Title: Re: Bedas Pre-Op diary
Post by: JoniF on October 19, 2008, 02:43:21 AM
Hi Beda,

just wanted to wish you well and to let you know that my thoughts and prayers are with you for a successful operation and it brining you the outcome you are hoping for.

Take care and wishing you many painfree days,
Joni
Title: Re: Bedas Pre-Op diary
Post by: Beda on October 20, 2008, 03:53:41 AM
Oh All you dear loving people, where would I be without you all??
Tanya, your encouragement and faith is a lesson to me,
Nevella, thank you for your hearfelt encouragement too.
Joni, Kirsty, I know you are thinking of me. It has taken a lot of strength to post agiain, but I just feel now I'm only 3 days away fro being admitted to hospital, and now is the time when I have to reflect on this past 9 months. I have gone from desapration where I had no one that would take me on (doctors) as it was too big a challenge for them, no hospital, to eventually be a ball that has been thrown like a hot potato both physically and mentally, I have even gone to the press and a politician! And then, mid in my darkest hour in may, I received a letter from Rigshospital who wanted to see me ASAP. And Tanya, I do believe it was your positive vibes that were being felt. At that point you had more faith than I did, and you hung in there for me, and I thank you!! the fact that I had to wait til october for the surgery was simply because the rod they need to use on e had to be custom built, and I had to wait 2½ months for that! But now, on Friday, I will go to the hospital and lay myself i the good surgeons hands and let him work his magic. I also have had my fair share of wackos who are sick in the head contacting me, but on the whole I feel very much that KG has suported me.

I dont know yet if there would be interesting for anyone if I started a post-op diary. I may not be able to write in it the first immediate days after surgery, but as I get better i could, if anyone would want to read it, make a post-op diary and keep people á jour. Please if anyone who reads this thinks it would be a good idea, please write to me and tell me. I look forward to hearing from you .!!!
Once again THANK YOU everyone who has been supportive. You all mean so much to me. Meet me on Facebook if you like, and there you can se what mischief i get up to in my life!!
Love to you all,
Beda xx
Title: Re: Bedas Pre-Op diary
Post by: eeniee on October 20, 2008, 05:54:30 AM
Beda , Hi  ( eeniee )  Paula ,
                                         Im so happy for you that you only have 3 days left to wait.  I go to the hospital for my pre-op tomorrow morning.  My surgery will be 2 weeks from tomorrow which is Monday.  I  am so sorry to hear of the negative emails you have been receiving. People can be so cruel at times.  I just wanted to let you know i am behind you and pulling for you 100 % . I wish nothing but the best for you. I haven`t talk to you a lot but from what i have you seem to be a super person with a great personality. I know talking with you has helped me out a lot. People just don`t understand sometimes unless they are in the situation but i truly understand what you are going thru , even though our situations are a little different we have both had TKR  FAILURES. I will be thinking about you as you prepare to have your surgery. I think it would be great if you started a post-op diary. I want to know how you are getting along after your surgery. I hope in the days to come you are pain free.  Y OU TAKE GOOD CARE OF YOURSELF AND I HOPE TO HEAR FROM YOU BEFORE YOU LEAVE FOR YOUR SURGERY GOD BLESS YOU ....................... Paula  :)
Title: Re: Bedas Pre-Op diary
Post by: luckygrandma6 on October 20, 2008, 03:58:06 PM
Definately do a post op diary beda so the KG can pull you through your recovery every step of the way.
Title: Re: Bedas Pre-Op diary
Post by: tanyap on October 20, 2008, 09:05:48 PM
Hey Beda,
Hanging in here with you every step of the way!!!
I definitely think you should do a post op diary - you could make your last post in THIS diary a link to your post op diary - the success story continues!!!!
xx
Title: Re: Bedas Pre-Op diary
Post by: JoniF on October 20, 2008, 09:48:35 PM
Hi Beda,

I believe you should write a post op diary to not only track your progress for yourself, those that care about you and possibly even for those that might be contentplating gong through the same proceedure and can draw strength from your courage.  I to am on Face Book if you'd like to contact me.  You can find me under Joni Fox.  I would love to keep checking in on your progress and even offer some words of encouragement when needed.

Take care,
Joni
Title: Re: Bedas Pre-Op diary
Post by: Sore knee on October 20, 2008, 10:18:46 PM
Beda

Just home but wanted to come on and wish you well. Please do write a post op if you feel up for it and know I am wishing you every positive vibve possible and that after this it will all be worth it and the quality of life it will offer.

Be strong and know you are in my thoughts.

Love and hugs
Title: Re: Bedas Pre-Op diary
Post by: plantgeek58 on October 21, 2008, 12:47:36 AM
Hi Beda,
I definitely think you should do a post-op diary. There's so little information out there on arthrodesis. I'm sure other people who might be considering the procedure would be grateful for the information you could provide. All your friends here will want to know how you're doing, too.
Catch ya on Facebook! Hugs!
Terre
Title: Re: Bedas Pre-Op diary
Post by: agilk9 on October 21, 2008, 06:45:24 AM
Hello Beda,
You don't know me, I don't really know you, but your story.....no, your LIFE of courage has touched my heart and I wanted to stop by and wish you well.  As I sit here recuperating from my third knee surgery, I can't even begin to imagine the pain and ups and downs you must have felt, both physically and emotionally, through all your surgeries and subsequent recuperations. You have an incredible attitude that will carry you through this, the most emotional of surgeries.
My wish is for you to be pain free, so you can wake up in the morning and look forward to a full day.  Healing thoughts for you this coming thursday....


Title: Re: Bedas Pre-Op diary
Post by: Beda on October 22, 2008, 04:43:10 AM
Hi everyone! thank you all for your posts and for showing your interest and backing me up all the way! I only have 1 more day left to the big day, and then at 5.00am friday morning I will be picked up to be taken to Copenhagen in an ambulance and get installed at the hospital1 ! I am so happy that I will have a bed to crash on when I get there, its a 3 hour journey, I have to be there at 8.00am. I really really hope theres some kind of porter service at the hospital, cos no way can I carry my bags up to the department thats on the 16th floor when I walk with crutches and everything. My bag is VERY heavy, I dont think I've taken THAT much stuff with me, but I need to keep myself occupied for 10 days, so it does take a bit! Today I will be doing stuff liike cleaning out and changing the water in my tropical fish, which needs to be done every 2 weeks, and then I will get mom to change the sheets on my bed so their nice and clean for when I come home. Then I have to do some laundry and then tomorrow I have to get my hair cut in the morning, so time will just fly by.
Boy, I dont want to go sooo bad, as I know its going to bring on pains out of this world, but then I do want to go a lot, because it means the start of a journey that is going to make me well again!! I am going to have my ransportable modem with me in the hospital so I should have a free internet connection. I WILL start  a post op diary, but you guys are just going to have to be patient with me cos I dont think I'm ging to be up to much the first 2-3 days But, I will try my best!!!
Title: Re: Bedas Pre-Op diary
Post by: lmr1 on October 22, 2008, 09:11:19 AM
Beda as i write this we are chatting as well.

I know this is a big and scary journey for you, and it's one that we all wish you didnt have to do.  You know though that one day you will look back at this and know that this operation has been the start of a good period in your life.  We have become very good friends over the last few months and my thoughts and prayers will be with you over the next week or two and onwards.  You have been a great support to me.  You have never made me feel like i am stupid.  When i cried over nothing..........you reassured me that after major surgery that was normal...........when i needed kind words...........you said them.

If this site has done nothing else it has provided me with some very good new friends and that is awesome.

So hang on in there..........let people look after you for a change and be sure that you are loved and that many people will be sending you good thoughts and prayers as you journey through this.  It is not a journey that you are doing alone.

Lotsa luv

Lisa
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on October 22, 2008, 09:17:48 AM
Beda, I just wanted you to know that you have lots of KG friends supporting you through this and anxious with how your recovery will be.  I agree that you should start a post op diary to document your daily or hourly experiences!!  I definitely think it will help you, it will help us keep track of you, and it will help others contemplating the same surgery.  We will understand if you are slow at posting at first.  You will definitely be out of it for a while.  We will still be here for you during everything!!!!!!  This is the surgery to get rid of all your pain !!!!!!!!!!!  I know the journy will be long, but so has the one you have already taken to get this far.  So what's another journey to improvement??  You will do great!  Wishing you the best of luck!  Get those tasks around the house done and then rest!  SOrry your sleep med didn't help last night.  Obviously mine didn't either.  Gotta try to get 3 more hours of sleep now.

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on October 22, 2008, 05:03:25 PM
OK folks! Now there is only tomorrow and i go to the hospital. Today I have been making arrangements for who is going to look after my 2 cats whilst mum and I are away, it was really nice having guests and made the time go by quickly! I have packed my bag, everything but the kitchen sink, and the only thing I will be doing tomorrow is to take the sheets off my bed and wash them and put new on so that my bed is nice and clean for when I come home. Well, thats not entirely true, Mum will help me as I cant really do a whole lot myself, but I like to think I am helping!! I can hardly believe that I have waited for sooo long for this, and that the time has come, MY time. Through all the 10 months of posting on KG and meeting some very wonderful people, and getting to know those who are'nt so wonderful, and ignoring them is all part of the game!! As if it were a game! Unfortunatly its  deadly serious that I am about to have my life completely changed permanently, It is a very 'big' step I am about to take.
I will make a post op diary, so all of you who have encouraged me to, i have listened to you, I cant promise when it will start, but I will do my best.
So all that is left to be done is to get a decent nights sleep tonite and tomorrow night, I'm sure i wont be able to sleep thursday night, but for my American friends, I'll probably be online tonite around 3.00am my time. For those of you that live in the eastern part of the US I am 6 hours ahead of you, those on the w.coast I'm more like 9 hours ahead of you, so if we could chat in the night it would be nice.I am on my desktop computer and only have windows instant messenger on it, or theres the chat room on this web site, or on facebook. I have packed my laptop down, i had to do it early cos we were having these guests this afternoon and I couldnt take up the table space. But now its all packed down ready to go.
Please everyone whos in pain, look after yoursleves and I hope that that pain diminishes when you take your meds or ice or do whatever you have to do. I feel with you, all those who have pain, I know what youre going through, believe me, it WILL get better, have some faith and listen to the help you are offered. That is the only way I have kept sane through all this, is because I've had some very good people who have given me good advice and I've listened to them. thank you EVERYONE!! ;) ;) :D
Love Beda xx :-*
Title: Re: Bedas Pre-Op diary
Post by: JoniF on October 22, 2008, 05:14:53 PM
Hi Beda,

I'm happy to hear that you were able to get done just about everything you needed to.  It makes things a lot easier.  I am looking forward to your post op diary and in it where you mention that the pain is less and less and to read that your life is returning to somewhat normalcy.  Like Farrah said, this is the beginning of a new journey in your life and hopefully you are able to put the painful chapters behind you and cherrish the new friends you've made along the way.  I know with your strength and your spirit you will come through just fine :D.

Take care,
Joni
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on October 23, 2008, 03:15:01 AM
Beda!!!  It's almost time to say goodbye to your old life!!!!!!!  I have been thinking about you and have some new news from my PS on my diary.  Looks like we both may be on our way to a pain free life next week!!!!  Sorry I can't type more on here, but it's my bed time since I didn't sleep very well last night.  I hope you get sleep tonight!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: tanyap on October 23, 2008, 10:18:21 PM
Beda,
Goodbye old life and pain, hello new pain free fun filled times for you!!!

I will be regularly checking KG and Facebook all weekend and will begin the 'good vibe sending to the surgeon' immediately!!! You know I always send you the good ones!!

I am so looking forward to reading all your good news!

Very best of luck to you, dont be scared or nervous, it will all be fine!
xxx
Title: Re: Bedas Pre-Op diary
Post by: JoniF on October 23, 2008, 11:29:37 PM
Hi Beda,

Just wanted to stop by and wish you the best of luck on your surgery.  I know you're going to do great ;D.

Take care and much hugs,
Joni
Title: Re: Bedas Pre-Op diary
Post by: plantgeek58 on October 24, 2008, 01:51:43 AM
Beda,
much love and hugs to you as you begin your new journey. I will be thinking of you, praying for good results and anxiously awaiting news. As my chem professor said to me before my surgery, I wish you patience and fortitude for the difficult time ahead. It will all be worth it in the end.
Terre
Title: Re: Bedas Pre-Op diary
Post by: KW on October 24, 2008, 02:09:53 AM
Beda,

Big Hug...From Foster and I

You are going to do great and we are ALL going to be here to cheer you on  8)

XX
Karen
Title: Re: Bedas Pre-Op diary
Post by: Beda on October 24, 2008, 02:19:58 AM
EVERYONE!!!! Thank you thank you for all your heartfelt support, I am going to be on my way in 3/4 hour, so next time I post it will be from the hosptial!! Wishing each and every one of you a good painfree-as-possible day, with all my heartfelt love
Beda xx
Title: Re: Bedas Pre-Op diary
Post by: Beda on October 24, 2008, 05:45:52 PM
My dear friends. So I've got so far. i am in the hospital, have a bed and have had several investigations done already. Theres a thing wrong. Its my heart! they hear a murmur and my blood pressure was very high (165/110). I have been investigated by a cardiologist who wants to do more tests, and feels that it is something that is serious enough to warrent a big investigation which I will have after the surgery. So it looks like my stay in hospital maybe prolonged. I have also spoke with the anæthetist. i am to have 2 anæsthetics. An epidural and a general. this is because they are going to give me a morphine pump after the surgery, directly into a kanyl in my spine. Its a spinal block. The general is because the operation is so big and they have to move me around, so its not good for me to be awake.
Needless to say i am not amused about he developments with my heart. thats the very last thing I need. they have put me on heart medicine that makes me feel dizzy and gives me a headache.
i will write again tomorrow and update my progress. i dont expect anything other than an ultrasound of my heart is going to be done before monday.
My humour is rock bottom. i am very worried.
catch you all tomorrow, love beda
Title: Re: Bedas Pre-Op diary
Post by: MartinsGirl on October 25, 2008, 04:37:59 AM
Hi Beda,

I'll be thinking of you over the next week or so.  Sorry to hear about your heart murmur. But you're in great hands and you will come out of this even better than ever (less pain....yay!!!). I'll be checking in to see how you're doing.

lots of love!
~Nevella
:D
Title: Re: Bedas Pre-Op diary
Post by: Beda on October 25, 2008, 04:47:32 AM
Hi Folks! Well today , saturday, it is only 5.45 am and I cant sleep any more, and as i am in a room with only 1 other paient, I am allowed to have the lights on and use my computer, just making sure of cours that I have the earphones in. They gave me a sleeping pill last night. i awoke in the middle of the night with pain and had to have extra morphin then. Today I am supposed to be having an unltrsound investigation of my heart I cannot say at this point that i am very amused by everything thats happening. the medication they are giving me for my heart makes me feel all dizzy and sick.
Will try to get back later, Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: Silkncardcrafts on October 25, 2008, 08:06:39 AM
Hi Beda,

Sorry that you are unable to sleep. It's probably just nerves.

I hope there is nothing too wrong with your heart ? It doesn't sound good. Sometimes they can just give you medication. Hopefully that is the case and nothing more sinister.

Have been thinking of you a lot.

Rest up.


Title: Re: Bedas Pre-Op diary
Post by: rozzzie on October 25, 2008, 01:10:11 PM
Sorry to hear that you may have some type of heart problem.  I'm praying it's not bad enough to delay your surgery.

Thinking about you and sending HUGs and prayers your way.

Rozzzie
Title: Re: Bedas Pre-Op diary
Post by: Beda on October 25, 2008, 08:13:24 PM
Dear Friends. There has been a new development. The thing is now, they want to sqeeze me in to have an ultrasound investingation of my heart BEFORE Monday, as they will not operate before they know what this murmur is.If it does not get done by Monday, the surgery will have to be postponed until tuesday. i am really chocked up about this, but it is good they are beng so meticulous so that anything that may happen in surgery can be predicted. Please EVERYONE - keep your fingers and toes crossed that I may have this scan done tomorrow (sunday). I really dont need this now, as I need this operation. I am on heart medicine now and the heart medicine is making me feel tired and worn out, as it lowers my heart rate.It also lowers my blood pressure and I cant do anything much sitting upright. i am writing ths half lying down. i feel dizzy and sick.
catch you all tomorrow, Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: JoniF on October 26, 2008, 02:08:53 AM
Hi Beda,

So sorry to hear that you are having to deal with all of this drama prior to your surgery, but at least you can feel secure in the fact that are so meticulous in checking everything prior to doing your surgery.  From what I've learned from my dr. a majority of women have a heart murmur.  I was sent for an electrotrophyogram (sp) (color sonogram type x-ray) and it came back with slight hypertension.  Nerves and certain meds can raise your blood pressure as well.  When will you find out about your surgery? Plase know that you have many friends who are will you during this trying time and will be with you in spirit during your surgery as well waiting for you to come out on the other the other side.  Hope you were able to get some rest today.  Please also keep us updated :).

Sending hugs and best wishes for a speedy recovery.

Take care,
Joni
Title: Re: Bedas Pre-Op diary
Post by: Beda on October 26, 2008, 08:27:37 AM
My dear friends.Thank you all for all of your support in this trying time. I have woken up today after a good nights sleep, bu woke up in pain. I got my pain meds and my heart med, which I found out is called SELOZOK, and here I am again feeling very sleepy and dizzy again. Never mind, I've got nothing better to do than sleep! I have found out today that they are going to try to do the ultrasound today, but as my surgery is scheduled to 1.15 tomorrw they may do the heart ultrasound tomorrow morning if it fails today. but they are working towards that the surgery goes ahead tomorrow afternoon. Mom is coming today this afternoon, and she will be staying for 4-5 days. When I have recovered a bit from the operation they are going to try to fit me with a custom made pair of shoes where my L. leg will be about 9 cm shorter than the other.This will be set to work on that whilst i am here in the hospital.i must say a big 'THANK YOU' for all the support I am recieving. It wont be long now until this diary cahnges names and situation and is called 'Bedas POST-OP diary!!!'
See some of you on Facebook!!!
Love Beda xx
Title: Re: Bedas Pre-Op diary
Post by: MartinsGirl on October 26, 2008, 01:48:49 PM
hi Beda,

I'm glad they were able to fit you in for your heart ultrasound before your scheduled knee surgery.  I know everything will be fine. it's great they're being so cautious (even it if might mean you're in the hospital a day or two longer).

I'm keeping my fingers and toes crossed, and saying a prayer for you!! xoxoxo
~Nevella :D
Title: Re: Bedas Pre-Op diary
Post by: Sore knee on October 26, 2008, 02:30:17 PM
Beda

I am praying that they can get the US done and it alleviates your worry. Know that you are in my thoughts and prayers and better they find it now and deal with it for you. I hope the meds side effects get a little easier and I am sending you lots of hugs from tiny Ben and me.

I will try and find out from the others your facebook page so if I miss you here we can catch you there.

LOVE AND HUGS
Title: Re: Bedas Pre-Op diary
Post by: agilk9 on October 26, 2008, 06:17:25 PM
Thinking of you today, wishing you well -

m
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on October 28, 2008, 08:35:47 AM
BBBBBBBBEEEEEEEEEEEEEDDDDDDDDDDDDDDDDDDDDDAAAAAAAAAAAAAAAAAAAa  How are you doing????  E-mail me soon!!!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Silkncardcrafts on October 28, 2008, 11:03:22 AM
Hi Beda,

Thinking of you. How are you doing ?

Miss you on here.
Title: Re: Bedas Pre-Op diary
Post by: luckygrandma6 on October 28, 2008, 11:26:52 AM
I assume since beda has suddenly stopped posting that she had her surgery Monday. That is the only thing that would keep her away. I'm sure she is in a lot of pain and has been through a very traumatic experiene. I'm sure posting is the last thing on her mind right now. I know we are all going crazy wondering how she is doing, but we will just have tp be patient until she gets back to us.
Title: Re: Bedas Pre-Op diary
Post by: lmr1 on October 28, 2008, 02:45:57 PM
Hear Hear

I heard from Beda first thing monday morning and they were going to do an ecg and then go straight to surgery...........when she is well enough i am sure she will post.
Title: Re: Bedas Pre-Op diary
Post by: tanyap on October 29, 2008, 09:16:08 PM
good vibes Beda, good vibes Beda, good vibes.........
xx
Title: Re: Bedas Pre-Op diary
Post by: luckygrandma6 on October 29, 2008, 10:41:41 PM
Has anyone heard how beda's surgery went. I am really concerned about her. We were talking a lot on AIM everyday before her surgery, and then she suddenly said goodnight that she was very tired and that was last Sunday.  We have gotten very close over the past few months and she's even planning a trip to the states to see me, and so I find this odd since she knows how concerned I am. I picture her crying and in so much pain and I would like to be there to hold her hand.
Title: Re: Bedas Pre-Op diary
Post by: Silkncardcrafts on October 30, 2008, 11:38:22 AM
I'm quite concerned too. I was talking to her a lot of facebook before her operation then I was admitted to hospital on Sunday night to get my pain under control.

Really hope she's ok.
Title: Re: Bedas Pre-Op diary
Post by: tanyap on October 30, 2008, 03:09:02 PM
Does anyone have a phone number for her to text her on?
Title: Re: Bedas Pre-Op diary
Post by: lmr1 on October 30, 2008, 03:31:28 PM
okay Guys i have heard from Beda today, today being thursday.

She is over the worst- she still has 6 IV's and feels too weak to be posting anything yet so please bare with her on that one.  As soon as she feels able she will post and start a diary but until then patieince will be the key.

She is having 'pains' that you cant even imagine and there was some crisis/drama too, but that will be up to her to say.

But she is here and is over the worst, i am sure that it wont be long until she is able to post.

I do have a number so if anyone wishes me to pass on a specific message i am more than willing.........pm me and i will pass it on (t message that is not her number)

Lisa
Title: Re: Bedas Pre-Op diary
Post by: tanyap on October 30, 2008, 05:10:11 PM
Thanks Lisa,
Im glad to hear she is over the worst.

If you are passing specific messages tell her that Tanya said 'hang in there, you are doing great, i am still sending the good vibes!!! xx'


Title: Re: Bedas Pre-Op diary
Post by: luckygrandma6 on October 30, 2008, 06:11:00 PM
I have heard from beda also and will post her e-mail letter to me. She asked me to let everyone know.

I had surgery on mon aft. had to spend a day in tntesnsive care and have ben very very sick. am now a bit better but they want me to stay in bed with fluids, antibiotic iv and epidural til mon. have had the worse pains you can possibly imagine and a couple of episodes where i became unconciious and stopped breathing. am on the mend now though vey very weak.can only type         with 1 finger on one hand.tell everyone on knee geeks in my pre-op diary that the post op will be a while.bless you for caring about me love beda


At least we know and our beda will be back to us soon.
Title: Re: Bedas Pre-Op diary
Post by: lmr1 on October 30, 2008, 09:27:27 PM
Beda has just sent me a messag asking me to send her love to everyone and that she will see how she feels tomorrow as to whether she will post anything or not............so at 2126 UK time i am doing just that.  Beda appreciates your thoughts and sends love and greeting to you all.

LIsa
Title: Re: Bedas Pre-Op diary
Post by: arkitect06 on October 30, 2008, 09:57:59 PM
I am glad to know Beda is communicating with many of you.  She is with me too...here was what she wrote to me:

 "surgery was mon aft. have an epidural until mon. which will be a week no chance of coming home after 7 days!! hav to lie in bed with tons of tubes. not much fun had to stay in intensive for 24 hours. i hav had pains you cant even imagine and i thought i knew pain!!"


Good luck Beda and we are all thinking about you!!!!!!!!!!!!!

Farrah
Title: Re: Bedas Pre-Op diary
Post by: Beda on October 31, 2008, 04:47:46 AM
hi all you wonderfull people!! I CAN ONLY TYPE WITH ONE HAND BUT JUST BEAR WITH Here!! the uppercace will have to come later. pressed on acps locks back there. needledd to say the whole thing has been traumatic, but the 7 days in hospt. aint conna cut it!! iys friday morn. here its earlty and they want me to stay in bed on pain management til monday- that means i am numb for waist down.. i was supposed 2 be ging home moday, well,  everythinh is realativ!!
i cant go inoy 2 many details but promise thy will com. after a bit of drama - 2 cardiac arrests and being prt into a comatize säte and speniding a day at the intensive care, all is well now. so i sign off herwith and start off in 'post op' section and when i have more strenght i promise i will wrte--it been and ordel of a lifetine and I thought I knew pain! you know NOTHING till youve experienced this I promisse you!!! have got rid of 4 out of 6 IV's and have recieved 6 liters of blood.-that heaven for blood banks CATCH YOU ALL LATER SCUSE THE TPYE FAULTS!!!
love beda xxx
Title: Re: Bedas Pre-Op diary
Post by: Silkncardcrafts on October 31, 2008, 06:30:15 AM
Hi Beda,

I am sooooo pleased to hear from you. Many of us have been very worried.

That must have been an awful experience for you. I can't wait to hear more details soon.

Sorry I couldn't talk to you on facebook on Sunday night. I was in tears on Sunday night because of the pain and was admitted into hospital on Sunday night and released on Monday morning. They were going to keep me in hospital but there was one more drug they could try at a low dosage. It worked and have had the week off recovering and getting the pain under control. I am seeing my knee surgeon on Wednesday next week to see if I have any further damage.

Rest lots and look after yourself. Sending positive vibes to you. xxxx
Title: Re: Bedas Pre-Op diary
Post by: JoniF on October 31, 2008, 12:23:22 PM
Hi Beda,

Soo sorry to hear that you are in soo much pain.  Also sorry for all of terrible experiences you went through.  I truly hope this surgery is the answer to your pain:) and leaves you pain free at the end.  I know you are strong and you will get through this!!!  Sending you many hugs and well wishes.

Take care and feel better,
Joni
Title: Re: Bedas Pre-Op diary
Post by: Plumb on October 31, 2008, 09:33:23 PM
Beda,
Glad to see your spirits are up enough to post an update.   You will get stronger and stronger each day and soon you will be zooming around . :)
Title: Re: Bedas Pre-Op diary
Post by: luckygrandma6 on November 01, 2008, 11:56:32 AM
Hi All, I got two more letters from beda and although she is feeling a bit better she is still having a lot of pain. Now she thinks there is an infection in the wound. It would be so sad if they have to open her up again.  Anyway, things are even worse then she anticipated and she thought she was prepared for the worst. She thanks everyone oncee again for their suppport. I think that is what is pulling her through.
Title: Re: Bedas Pre-Op diary
Post by: Silkncardcrafts on November 01, 2008, 12:50:38 PM
Hi Beda,

So sorry to hear you may have an infection. Just hope they can control it and treat it with anti-biotics. I had one after one of my operations, but fortunately didn't need to go to theatre again.

Thinking of you and hope you start feeling better soon.
Title: Re: Bedas Pre-Op diary
Post by: luckygrandma6 on November 01, 2008, 06:53:35 PM
I heard from beda and I told her that I would keep you up to date as it is so hsrd for her to write. The following is the letter I received today:

thank you for your mail. things are going from bad to worse. havnt been able to keep any solids down for over a week now- so they have given me a nasal-gastric feeding tube. It is feeding me a 5mls every 10 mins and will do so for the next 2 days.am not feeling well. all my pains seem to be focused in the 'knee' that was. I bet if theres an infection then its there. But I dont know. fever was only 38.1 this morning the lowes for 3 days so maybe the IV antibiotics are kicking in.I had 39.4 yesterday afernoon.The doc was supposed to come but never turned up. Had infections blood tests done today. i wish you were here. Mom has gone back home now ad i wont see her until I go home. Have been ot of bed today briefly for a wash -felt marvelous!!!will send you an update tomorrow. <love <beda xx
Title: Re: Bedas Pre-Op diary
Post by: MartinsGirl on November 02, 2008, 12:26:34 AM
OMG Beda, I am so very very sorry to read about what you're going through.  I don't think any of us could have imagined all of the complications that you've encountered. This makes me very sad :(  I will pray for you and hope that the doctors can help you get home very soon.  I was in shock when I read that you suffered 2 cardiac arrests. Did you also type that you were put into a coma?? Sorry, I wasn't sure because of your typing. You are such a wonderful person and it saddens me so much to read of all of your complications.  You will be in my prayers, dear Beda. XOXO
Title: Re: Bedas Pre-Op diary
Post by: luckygrandma6 on November 02, 2008, 05:31:45 PM
I'm really worried abouit beda again. She siad she would update me today on her status and I haven't heard anything since she wrote me about the feeding tube, etc. Has anyone else heard.
Title: Re: Bedas Pre-Op diary
Post by: Sore knee on November 02, 2008, 08:10:25 PM
Oh poor Beda. I so hope she is ok and that she is resting. I got such a shock when I read her story but if anyone is speaking with her could you please wish her well from me and tell her she is in my prayers.

Wishing you well Beda xxxx
Title: Re: Bedas Pre-Op diary
Post by: luckygrandma6 on November 03, 2008, 02:42:07 PM
I just spoke to beda on IM and she is doing better but still on feeding tube as she can't keep anything down but down to one IV. She couldn't talk long as she is still having a lot of pain.
She said she started a postop diary but I'm still looking for it. She says it is in the postop section.
Title: Re: Bedas Pre-Op diary
Post by: Tabitha on November 19, 2008, 09:40:08 PM
Beda,
    I feel so awful. I don't know all the circumstances leading to your condition but I will pray for you to regain strength and get well. I don't know that I have the right words to say to someone going through what you are right now, but I don't believe that anyone should have to experience so much pain and discomfort. Especially a kind person like yourself.

I hope that you get better and we hear from you soon, put your recovery above all else. I hope you have family around to keep you sain, the hospital is no fun.

~Tabitha