KNEEtalk

DIARIES => Post op diaries (>300 posts) => Topic started by: brianne on February 08, 2008, 12:30:56 AM

Title: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on February 08, 2008, 12:30:56 AM
Well, its official, I have two knees that will no longer be able to do what they want.  They will have to behave for me.   ;D

So, the fun really started yesterday because I had to figure out how to get to Detroit in a blizzard with my mom stuck in Northern Michigan.  Gosh I love winter!   :P  So a friend of my mom agreed to drive me to D-town last night.  It was fun, we drove 30-40 mph the whole way and it took 6 hours instead of 3.  But we made it at 1am. 

I woke up this morning and headed to the hospital.   My mom was enroute but travel was slowed because of black ice.  My ride could not stay and so I flew solo for this one.  My mom was hoping to make it before I went in, but she encountered some closed highway due to a major accident.

In the pre-op I was turned into a human pincushion.  they could not find a vein to start the IV.  It took 5 tries and they had to use a vein on my right hand as the tried all the veins on my left with no luck.  I had a spinal like I did last time.  I much prefer it.  They gave me sedtion so I was out of it in the surgery.  General makes me sick, but I have not been at all sick with this one.  Plus it helps with pain right out of surgery.  So, my mom was still 30 miles away when I went into surgery.  Bummer, but I am used to the whole surgery routine so I was fine without her.  I talked to my OS before surgery and he told me what he was planning on doing.  I told him that he fixed my right knee so he could do whatever he wanted to my left knee just as long as it was fixed.

I woke up just as they were taking me out of the OR.  I felt no pain, it was weird...I was like, did you do the surgery.  Haha.  My MPFL was completely shredded (ya think, with as many dislocations as I have?) and my TTT needed to be revised due to patella alta.  But once it was all done the patella was in the right spot and it looked good.  My OS said that in a few months I will be a very happy person.  I told him that he will be my hero if he is right.  :)  My mom finally got to come back into recovery.  She said that my OS told her that he fixed it all and that he was the coolest OS in the country because he fixed it. 

I made it to my room by 5pm.  Between the spinal and a femoral nerve block, I am feeling great.  I have almost no pain.  I am in a CPM which is set from 0 to 80 right now.  They will turn it up to 90 tomorrow.

That is all for now.

Brianne

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on February 08, 2008, 07:56:58 AM
Hi Brianne,

Glad to hear that your surgeries are over now.

I wish you a speedy recovery !!  :D
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on February 08, 2008, 09:11:02 AM
Hi Brianne,
Thats wonderful, Im so happy for you!! So now all you have to look forward to is 2 GOOD knees!!!! wow!!
Sorry to hear about all the blizzard conditions and closed highways etc but hey - you made it!!!

Dr T will also be MY hero so you can let him know he is being worshipped from afar also :)

I hope you have a speedy recovery, perhaps now you can put some serious thought into your book, as you wont have to spend any time worrying about your knees anymore!!

My right knee awaits a postcard from both your good knees - but of course I expect they wont be mailing anyone til theyve had a little recovery time!!

Looking forward to following this thread!
xx
Tanya
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on February 08, 2008, 01:47:07 PM
kjwilkin,

Thanks for the well wishes again.  Not too much longer til your OS appointment, I wish you the best of luck.

Tanya,

Expect a postcard from my knees in about six weeks.  Haha, they should both be used to behaving by then.  I certainly hope so!


So I am just waiting for the epidural to wear off so I can use my right leg to get around.  After that I am going to prove that I can move around and then I am out of here.  Yay.

So there is always much debate about post-op protocols and how they vary so much.  My post-op protocol is even different with my left then my right.  I was WBAT with my right and encouraged to get off crutches as soon as I could.  This time I am toe-touch for at least 2 weeks and possibly more than that.  I'll see my local OS at 2 weeks PO and he will decide if I can put more weight on it.  I asked my OS why the different weight bearing protocol and he told me that my right knee was in better shape then my left and so my left needs more time to heal up.

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: cat on February 08, 2008, 03:25:39 PM
Morning Brianne,
Has that epidural worn off or are you still enjoying the intimacies of a bedpan? ;)
I was looking at your posts. If your surgery was at 9 and you didn't get back to your room til 5, that's a LONG time. How long was your surgery or were you just partying most of the time?
 ;D ;D
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on February 08, 2008, 03:27:50 PM
Hi Brianne,
so now its official - 2 good knees!!!! well done to you and to Dr T!!

So I hope youre being treated well in hospital and not partying toooo much!!
xx
Tanya
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on February 08, 2008, 04:11:06 PM
Cat,

The surgery was at 10:30 am and it took 3.5 hours.  I was in recovery a little after 2pm.  They kept me there for about two hours.  I made it to my room by about 4:30 or shortly after.  No partying for me this time.  But I was pretty wasted in the recovery room and saying some funny things.  I leave the MIOSH in one hour.

Brianne

Tanya,

Haha, its no partying for me.

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on February 08, 2008, 04:20:27 PM
Plenty of time for partying when you get home - sure you will be dancing rings around everyone you know in a few weeks time!!

So glad to hear youre heading home, bit of pampering for a few days, telling your body you do love it really but bad knees need to be disciplined - and then the real road to recovery begins - all roads prior to this were just detours - this one takes you to your destination!!!

whooo hooo!!!

take care of you over the weekend, i hope you are pain free and comfy.
xx
tanya
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: *Margaret on February 08, 2008, 11:51:23 PM
hey chicka,

i am glad that surgery went well and you are on your way home or home. just think in a couple of months you well be able to do what ever you want to and your knees will have to listen. i think we should build that statue of Dr. T.  talk to you soon

margaret
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on February 09, 2008, 06:15:02 AM
Hi Brianne,

Must be disappointing about not being able to weight bear yet, but that will come with time. You are right, not long till my OS appointment. It's 1 week and 4 days. I see my sports physician on Monday for a debrief before I see my OS.

No partying for you this weekend. I'm certainly not doing any partying this weekend after I dislocated my kneecap in bed on Thursday night. Still very sore. I'm going to try and go to the gym tomorrow.

Let's hope this is the last of your operations and you have a speedy recovery !!!  ;)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on February 09, 2008, 04:27:13 PM
Day Two:

OUCH!  This one has been so much more painful than my other surgeries.  With my right op in december I was able to control pain with just ipufren by the second day.  This time I am taking two darvocets every 4 hours and it is not even touching the pain.  It hurts to even move an inch.  My entire leg is so swollen this time, its much more swollen then it has ever been.  This just goes to show that it really does vary from leg to leg.  I am glad that I had my right knee first if the left was going to be so painful, because I would have tried to talk myself out of it for sure if it had been the left first.

Otherwise I am just laying around for now.  I am at my mom's until Monday.  Then I will be on my own.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: fettucine1990 on February 09, 2008, 05:56:03 PM
Hi Brianne,
Take it easy and let your Mom take care of you as long as possible.  Conrats on making it through the surgery despite all the obstacles.
Happy Healing-
Carol
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on February 10, 2008, 09:06:28 AM
Hi Brianne,

Sorry to hear you're in a lot of pain.

Take it easy and let your Mum really look after you all.

All the best for a speedy recovery !  ;)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on February 10, 2008, 05:07:06 PM
Day 3:

I think its the rule whenever I have a left TTT done that it has to be snowy and super cold.  The high here today is 4 degrees.  My first left TTT was done on a Thursday and we had a major blizzard and cold front that first weekend.  Oh well, not like I am going much of anywhere.  It has been a very bad winter here and I have spent most of it recovering from knee surgery.  I guess its better to do it in the winter then in the summer when I would really want to be active.

So I slept well last night, but sleeping has never been an issue for me.  I still have a lot of numbness in my lower leg.  I am not sure if that is from the swelling or left over from the spinal/femoral nerve block.  Every now and then that area starts to feel warm and it also gets itchy and tingles.  I hope that means the nerves are waking up.  The pain is still pretty bad.  I find that most of the pain is felt in the MPFL recon area, I really do not even notice the TTT site pain all that much.  This is interesting because when I had the solo TTT's they were plenty painful. 

I have my first PT session tomorrow.  I am really not doing that much in the first few weeks.  I cannot do a SLR for 6 weeks as my OS wants the osteotomy site to heal and a SLR puts stress on the patellar tendon which will put stress on the osteotomy site.  So the first 6 weeks are mostly ROM, a few gentle quad exercises, and that is about it.  However, I am no where near done with the rehab on my right knee and so it will continue in a modified format while my left knee heals.

My first PO appointment will be Feb 18th.  All my PO appointments will be done with my local OS.  He will expect 90 ROM when I see him.  That has never been a problem, so I am not worried at all about that.

So, thats all for now.

Oh yeah, and I have decided that when I am all healed from these knee surgeries I am going to get another dog.  I have a 1 year old Cairn Terrier named Benny and I think he would be happier with a playmate.  I want a female West Highland White Terrier.  But, I cannot worry about a new puppy until after I am back on my feet.  But it gives me something to look forward to!

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on February 10, 2008, 05:47:36 PM
Brianne, I am glad you are healing okay.  It sounds like you are not in too much pain now.  That is great that you can get a full night's sleep.  I am almost 5 weeks PO and still can't seem to get a full night's sleep. 

Good luck with PT tomorrow. 

The goal of getting a new puppy sounds great!!!  That would be so fun.  Just don't get a jack russell if you live in an apartment!  Our's has been going crazy since it has been cold outside so he has been caged up a lot.  I can't exactly jump off the couch to discipline him when he is barking at the tv or his sister (other dog).   Anyway, good luck with everything. 

Farrah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on February 10, 2008, 06:01:00 PM
Farrah,

I am in a pretty good amount of pain, but sleeping has never been an issue for me.  I have never had trouble falling asleep after any surgery. 

I have a house with a fully fenced in back yard.  My mom has a Westie and so I know that I like the breed.  I like smaller sized dogs better than big ones because they are easier to handle.  Benny is a great dog, but he gets bored and I know he would be happier with a playmate.  So, it gives me a good goal to work towards.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on February 10, 2008, 08:49:29 PM
Brianne, it's too bad that you are in so much pain.  I didn't realize that.  Sorry.  Hopefully you will feel better soon.  I guess you are in more pain with this surgery since your left was so much worse than your right.  Sorry you have to go through that.  I am sure you are seeing the light at the end of the tunnel though....I guess it probably looks like a peep hole at the moment...soon it will be a larger light.  I am envious of you almost being done fixing both of your knees. 

Puppies are so fun, but tons of work.  I also like smaller breeds.  I am a short person (5' 1/2" tall) so large dogs practice knock me over.  When I used to go to the dog park a lot, they would not pay attention to the people standing around.  So while the dogs are playing hey are running into people.  When they run into me, I almost fall down every time.  Sometimes it hurts.  They have caused my knees to hyper-extend sometimes.  Who knew that a dog park would be hazardous!   Anyway, keep thinking about puppies :)  Something to look forward to.  I wish I could get another one.  I have a jack russell and a wire haired dachshund.  Here are some pics from when they were puppies all the way through now.  See the link below.  The blonde one is Aury and the other is Marshall.  One of the images is of me....bad one!!  One is of when Marshall had is cast on from breaking his leg.  Like dog, like owner!  :) 

http://spsu.facebook.com/album.php?aid=2003256&l=214ec&id=75400793

Farrah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on February 11, 2008, 03:36:12 PM
Day 5:

I could not fall asleep all last night.  Every time I would try to move it was a super sharp pain.  I could not get comfortable.  I had my leg propped up on two pillows and at some point during the night my leg twisted and came down off the pillows...that hurt so much.  Its interesting because darvocet has always managed my PO pain and this time its not doing a thing for the pain, but instead making me so dizzy that I can barely function.  Its frustrating.  This surgery has been the worst of all my surgeries.  All of my pain is in the MPFL area, I do not even notice the TTT area.  I would have thought that a TTT was more painful, but so far that has not been the case.  I am going to ask my PT to talk to my OS about something different for pain.  I am usually off all strong pain meds by this point after surgery, but this one has just been so much more painful. 

I am sick of surgery.  This is my fourth major surgery in 16 months.  Its crazy and I am probably crazy for putting myself through so many surgeries so close together.  But, its almost over and I will be able to enjoy my summer this year.   I also think that my infection so close to my second surgery was a huge emotional stress and I did not realize how much it would be. 

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on February 11, 2008, 03:51:36 PM
Brianne - may you never need another surgery again!!

Im so sorry to hear you have so much pain - guess that left side is screaming aloud now that its realised it has to do what its told from now on. Its just havin a temper tantrum.

Given that your pain tolerance must be incredibly high also I know if you say youre hurting - you must be HURTING!!!

Definitely enquire about more pain meds. This is only a temporary thing, you will sail past this bit - but you need to get the pain meds to help you sail.


I shall up the quantity and quality of the good vibes coming from me and try to aim them directly at the source of your pain to give you some relief. I found a prayer beside my car (im not remotely religious) and curious i picked it up - it as called 'prayer for freedom from curses' - what a coincidence I thought, Id only just been moaning about my knee - and its been feeling much better since so I shall read it aloud this evening and put your name into it and we'll see can we get this curse of pain to leave you - Ill be home in 2 hours or so - Ill do it immediately (so speaks the heathen - but hey if it might work theres no harm in trying eh??)
xx
Tanya
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on February 11, 2008, 11:09:51 PM
Tanya,

Thanks for the encouraging words.  It really helps to know that I have so many people supporting me through all of this.

I went to PT today and she agreed that I am incredibly swollen.  I did get something stronger for pain, but all pain meds seem to make me dizzy, so its kind of a lesser of two evils situation for me.  My Pt did think that much of my pain is being caused by my swelling.  So right now the goal is to get the swelling down and hopefully that will get rid of much of my pain.  I certainly hope so.  I am elevating it as much as I can and icing every hour for 15 minutes.  Since much of my swelling is in my lower leg then I have an additional ace bandage wrapped around my lower leg to help push some of the swelling out. 

The good news from PT today is that I got 93 degrees ROM with very little effort.  But I get ROM easy, so that is not a surprise to me. 

To encourage myself I went ahead and ordered my new hiking boots for this summer when I am going to be hiking all over Lake Superior.  I figure I can put them in front of me and use them as inspiration to push through all of this.

http://www.asolo.com/photo/OM3603_356.jpg

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on February 11, 2008, 11:48:39 PM
Hi Brianne, I just wanted to offer you a little feeling that you are not alone. I had my LR reconstruction on the day after yours. Im out of town staying at a hotel and feel like crap too. I started PT today. I got about the same ROM as you...but with great effort. They said if I didnt get to at least 90 by day 5 they would do a MUA...no way. I have to keep 90 through tomorrow.  It is so hard when you want your knee to bend but it just cant. My husband came with me for support to PT. he was watchiing me try to bend it. Im sure it must be tempting to just want to reach out and BEND IT.  Anyway, Im on Darvocet too l ike you. Im needing it every 4 hours. With my last surgery I was off pain meds by now...and thsi time Im watching the clock until I can have it again.  I feel good for about 30 minutes, then swirly dizzy...then tired and sleep...then I wake up groggy...then pain....then the cycle starts again. It sucks.  I just cant wait until these initial weeks pass and I can get to working on real stuff. My back is killing me too from having to sit with my leg in the air in an immobilizer. I dont remember if you aer in one too?   Anyway. If you are lonely or bored. Im stuck here on line hunting for relief and entertainment too.....  Laura
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: sailchic on February 12, 2008, 01:17:15 AM
oooohhh those boots look great.  I have a pair of asolo low sided trail shoes and absolutely love them!  Comfortable enough that I've been wearing them every day it's snowed this winter.  Great traction.  They've saved my knees more than once.

So are you hiking with a group?  Planned trip?  I'm hoping to do a few trips up in Vermont this summer.  My uncle moved up there last year and aparently his house is basically right in the middle of the presidential range.  He offered me and a few friends the back yard... my kind of camping... the kind where a shower and bathroom are within easy walking distance ;-)

If you're looking for ways to distract yourself online from the fact that you're leg is on strike, I'll fess up and share the fact that I recently got hooked on internet poker. (I know, totally embarassing)  My bf plays for real money online (like 2 cents a hand) and he talked about it so much that I tried it.  They have these practice rooms where you can play with fake money and it's actually pretty fun.  Particularly because you can play multiple hands at once.  Its my secret goal to play through all this crap and end up a poker shark in the end :)  I'll make my knees pay me for something damn it!

I'm sorry this go round is tough.  If the swelling stays bad you could always ask your doc for a few days of worth of celebrex? 

Stay warm!  It's cold here and I heard it's like a million times worse where you are!

Liz
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on February 12, 2008, 08:39:58 AM
Hi Brianne,

Sorry to hear you are in a lot of pain and really struggling. It can only get better.

The operations are now over and can focus on your rehab.

Like you I've had a lot of operations over the last couple of years. I actually counted the other day that I've had 5 operations in a little over 2 years. It's quite a scary thought and don't realise how stressful it can be.

I hope you start feeling better soon and the pain meds start to kick in.

Keep your chin up !!  :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on February 13, 2008, 09:19:53 PM
Day 6:

I am still in tons of pain and the swelling is not going down.  Its frustrating.  I knew this surgery was going to be worse, but I am just so sick of surgery.  I did not realize that I would be and so this has kind of caught me by surprise.

I do not have much else to say today.  I am kind of bummed, but not all that much because of my knee.  A good family friend is dying.  She was awaiting a liver transplant but her body has detiorated too much and so her Dr's say she is too far gone to attempt a transplant.  She is going home and will be on Hospice.

But, I keep reminding myself that the light at the end of this tunnel is that I will have two functioning knees and will be able to do a lot of things I have been unable to do.  Its just that the light right now is not so easy to see.  It will get better.  It always does.  :)

Brianne

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: GemmaLeigh on February 13, 2008, 09:35:21 PM
Hi Brianne,

I'm so sorry to hear about your family friend. It's terrible to lose someone. I lost my cousin just over a week before my surgery and the funeral ended up being on the day of my surgery so i couldn't even go. It felt like everything was against me and I am also experiencing a lot of pain.

The thing getting me through it is the thought of having a summer where i can go out with my friends and walk along the beach for hours :)

It seems bad now but it will get better. I hope you feel better soon.

Gemma  x
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: cat on February 13, 2008, 09:47:52 PM
Hey Brianne,
Cheer up, "honey". I think you've had too many cold dreary days and are in need of some sunshine. So I'm sending some your way.

(http://www.friendhugs.com/images/friendship-pages/bringing-sunshine/3049033.jpg)

 ;D cat  ;D
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on February 13, 2008, 10:34:50 PM
Brianne...if it makes you feel better...I am 5 or 6 days out now too. I feel the same way. I had no idea it would be so bad this time. My knee and ankle are swollen and my back is killing me...even the ice machine hurts. It is hard to see the light at the end of the tunnel...I just watch the clock and know that soon the dreaded night time will be here....and that is the worst. YUCK.  You are not abnormal. This part is the pits. I wish I could remember how long it took to turn the corner...but I cant remember........sgh.  I know that doesnt help you...but you are not alone.   Im sorry about your family friend too. That is very sad. 
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: smkelly4kds on February 14, 2008, 01:22:38 AM
Sorry to hear about your friend.  That is hard.  You will be in my prayers.
How is your pain today?  Gotten any better? Maybe you should ask your OS for something different to help with the pain.  Hope you will get some rest tonight!
melissa
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on February 14, 2008, 02:04:13 AM
Brianne,

I am so sorry about what you are going through.  Like you posted after one of my painful weeks...keep your chin up and it will all get better.  Sorry about your friend.  I really want to say something so positive and inspiring, but I am horrible at that.  Just know that I am thinking about you and I understand your emotions about your friend.  It makes me want to cry b/c I think back to when my good friend died in a horrific car accident a little over a year ago.  Jan 14th was 1 year.  I don't mean to compare, but I am so sorry about everything.  Losing a friend is bad enough, but to see one go through what yours is, that is very very difficult.  Keep taking care of yourself!!!

Farrah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on February 14, 2008, 09:05:04 AM
Hey Brianne,
so sorry to hear about your family friend. Its so sad. I guess we are lucky its only knees that bother us.

There is plenty of light at the end of the tunnel, youre gonna be tap dancing in no time - just gotta get through this horrible part first!!!

Ive been saying that prayer I found for you - I hope it works soon.
xx
Tanya
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on February 14, 2008, 08:58:19 PM
Thank you everyone so much for the encouragement.  It really means a lot and really helps.

Today is still the same in terms of pain.  I do think that a lot of the swelling is going down.  This has brought way to a new and very annoying kind of pain.  My lower leg is numb and the suspected culprit is too much swelling that is compressing on the nerve.  As the swelling is going down I think that the nerve is trying to wake back up.  Every now and then I will get this horrible electric sensation throughout my entire lower leg.  It will wake me up if I am sleeping.  Its pretty intense.  I am assuming that this has to do with the nerve trying to fire again.

My friend is still hanging in there, but its only a matter of days.  I made it out to visit her earlier (which was quite the accomplishment right now) but I do not think she really reconized me or anyone.  She is pretty incoherent. 

So, thats all for now.  I hope everyone is doing well today.  Happy singles day!
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on February 14, 2008, 09:43:10 PM
Brianne...I had that nerve thing after my last surgery too....I had a LR and I had a TON of swelling afterward. My leg was HUGE ...shiney skin...pitting edema....my skin hurt to touch it like a bad bruise......then I started having that nerve pain. My would shoot down the outside of my calf.  It would happen every single time I did a quad set.  Like an electic shock. Mainly it affected the middle third of the outside of my calf.

anyway...hope it gets better for you. I know it was really frustrating for me.   They had me lay on the ground with my foot in the air and do foot pumps.....wrap it up tight wth a bandage...then I ended up with swirly circle bruises down my leg from where the ace wrap was.....so odd.

Im sorry about your friend. I lost my aunt to breast cancer. We went to see her in the end too and I know that she didnt really know we were there. It is hard. You just have to be there for her family too. Be there to feel her spirit.... if you can tell her how you feel so you never regret it even if you dont think she can hear you....then just remember her the way she was when she was well.  It is never easy....I think it never should be.....
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on February 15, 2008, 02:49:37 AM
Laura,

Yeah, I have the pitting edema.  My numbness is from the middle of my knee down to my ankle, with the numbness mostly on the inside portion of my calf.  I get the electric shocks whenever and when they come its so painful.  If I am sleeping and I get an electric like sensation I usually wake up in pain.  I keep my leg super elevated for most of the day.  I keep it wrapped with an ace bandage all day. 

My friend Ann is not the first person I have lost.  Actually, I lost my sister when I was 20 and I think that watching Ann die kind of brings up the emotions of losing Nicole.   Thanks for the encouragement.  And it never is easy...

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: fettucine1990 on February 15, 2008, 02:57:43 AM
Hi Brianne
It is the pits  that this recovery is so tough, after all you have been through you are owed a freebie. 
I am also sorry for what you are going through with losing your friend.  It sure is a lot to handle at one time.  Emotions are so close to the surface during surgery recovery in the base case so you are really getting  a tough load.  I have read many of your posts from your last surgery and always thought you to be very strong, optimistic and determined-I hope those qualities are able to help you through all this.
Carol
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on February 15, 2008, 02:59:00 AM
Brianne, I will be thinking about you.  I am so so so sorry you are going through such a hard time.  I have a friend of mine battling her 2nd round of breast cancer and it is very difficult for me to complain to her about anything knowing she is going through that.  So I will not complain to you about any of my knee stuff until you are feeling better with your sad and painful emotions.  I will only post positive thoughts after this post.  I will go to bed and cry now b/c I am going through so many emotions right now...I think it's the meds....all of my complaints will be on my diary if you want to feel more sad!  :)  J/K!  My last few posts have been a little more positive as I hope yours become that way soon.  I wish there was something that I could do for you.  I have never met you, but I feel like I know you!  Anybody going through knee surgery pain and watching a friend struggle through a terminal illness at the same time is a really strong person!  I know you are and I wish I was as strong as you.  You will get through all of this.  Just take care of yourself in the meantime!! 

Hey!  I think that was my best most inspiring post yet...at least the end of it!  Good luck Brianne!  I wish you the best! 

Farrah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on February 15, 2008, 03:41:52 AM
Brianne...I know what you mean about the painful nerve. Mine would feel like I stuck my finger in the light socket. They would tell me if I could keep doing quad sets to just keep doing them.....I said...how many times can you stick your finger in the light socket before you cry uncle??  It HURTS.....Mine was the superficial peroneal nerve....Im not sure which yours is....yours is on the other side.....OUCH.  I hear you on the swelling. You know this surgery I took lots of alternative medicines along with the surgery. I took a medicine called Sinnecch   http://www.alpinepharm.com/   and also I took a combination medication called proinflazyme http://www.vitamins4you.biz/product-detail.asp?name=n3500&desc=PRO-INFLA-ZYME.  Both of these were recommended to me by my local pharmacist to help me not bruise and swell this time. I can say...I only have one tiny bruise and swelling only at the knee this time.  I am very happy about it.....you might see if any of these will work for you too.   

about your friend...I hear you...I lost my dad and step mother at age 15..the next year..the aunt of breast cancer....in college a good friend in a car accident..then my grandfather, then an uncle...then another friend in grad school..then my grandmother..then my uncle. In that order....from age 15-35.  Too many. None get easier.  Makes me appreciate people more. Made me decrease my work hours.  But...it doesnt take away the loss.....and knowing that that person is dying does not take away your knee pain....so dont feel bad about complaining about your pain. You dont have to be tough for us. :)

hang in there.
Laura
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on February 15, 2008, 09:17:47 AM
Hi Brianne,

Sorry to hear about your friend and pain levels. I lost my grandmother when she was quite young and also almost lost my brother to a brain tumour. Fortunately, my brother is ok now. I know how it feels to be in so much pain. It is mentally tough to deal with all of this at once. You are doing very well.

In the last week I have had over 50 or 60 subluxations and dislocations and have been in a lot of pain. Just felt screaming yesterday. My sports physician suggested I take anti-inflammatories solidly for a week and also take Panadeine 15 which is inbetween Panadol and Panadeine Forte as well as icing a couple of times a day.

My sports physician and knee physio are now wondering whether I may have torn the MPFL that I had reconstructured. How did you find out that it needed doing ? I will ask my OS on Wednesday. My OS appointment seemed ages away, but I have it in 5 days and will be just glad to know what I am dealing with. My friend saw him on Wednesday and said that my kneecap dislocates just looking at it. I think he was joking, but kind of serious.

Chin up, things can only get better. Thinking of you.  :D

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on February 15, 2008, 09:56:09 AM
Brianne,
I wish to make a complaint - if you would just direct me to the relevant office I will happily fill out the paperwork - the nature of my complaint is that YOU SHOULD NOT BE HAVING SUCH A HARD TIME!!!! Its not fair and I would like to shake whoever is in charge of these things and ask them to lay off and give you a break. Im unconcerned about having to fill out the paperwork in triplicate or waiting in a long queue - I really have to get it off my chest that I am NOT impressed with how things have gone for you with this most recent surgery. However I will be commending the fact that your last surgery was relatively easy by comparison cos if this was what it was like last time you wouldnt have gone for the next one. I will also note that you should not have had to fight an infection last time and that this electric shock nerve pain is quite simply not on.
However if the answer to all of this is that you have 2 good knees I will forever remain jealous and wish to be you :)
xxx
Tanya
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: cat on February 15, 2008, 01:10:49 PM
Hey Brianne,
Check this out. It's so cute and maybe will bring a little smile your way.

http://www.dailymotion.com/related/7348610/video/x31o8b_jean-dit-simon-says_animals

 ;D ;D
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on February 15, 2008, 06:02:32 PM
Thanks again everyone!  The encouragement means a lot.  I am sure it will all get better, but its just so frustrating right now.  My body has been through a lot the past 8 weeks...2 major surgeries and an infection in between.  I am sick of it all.  I am also sick of the fact that I am home, sick...as in out of work and yet my dumb co-workers keep calling me and telling people who call wanting to volunteer to call me.  I am out, I am using my 2008 vacation days on a knee surgery.  Last time I checked, being in horrible pain after surgery in the middle of the freaking winter does not count as a very good vacation.  I do not bother my co-workers when they go on vacation.  All I want is to not have to worry about my stupid job and not have people calling me every five minutes and then having them call me back five minutes after that because they want to know why I did not answer my phone.  GAHHHHHH!!!!!  I hate all of this.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on February 15, 2008, 06:17:22 PM
How funny that they are doing that.  Yes, work doesn't understand.  My boss must have told me 8 times to call her when I got out of surgery.....over and over...she kept saying...call us so we know you are ok....I thought......1. Im not calling YOU when I get out of surgery. 2. Im not calling ANYONE when I get out of surgery......3.  My husband will call when he feels like it.

I have selectively emailed some co workers...but not replying to any work emails.  Like you...IM OUT......so frustrating........and, yes..people always treat surgery like it is a vacation.   A vacation to the worst part of the world. 

Hey..I havent read your posts from between these surgeries...but how soon did you know you had an infection the first time?  MY doctor put me on antibiotics yesteday b/c my  knee is red and hot.  The sutures all look fine....no drainage ever...just a spot on the knee that is red and hot?  Just curious.

Two major surgeries in 8 weeks.  I dont think Im strong enough to have done that. I mean.....that must be really really hard. Your emotional endurance only has so much reserve before you cave in. You must be strong.  I hope I can be as strong as you

Hang in there.
Laura
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on February 15, 2008, 07:04:50 PM
Laura,

Yes, co-workers sometimes do not understand.  Some of them seem to think that I somehow enjoy having knee surgery.  They also seem to disrespect the fact that I am off of work.  My boss has been very supportive throughout all of this.  If it wasn't for my boss being so supportive I think I would walk in to my office and start taking out my frustration from all of this by screaming at everyone.  But, there will be an end to all of this.

Gah, this has been a stressful 8 weeks.  I do not feel so strong sometimes.  I feel like screaming most of the time.  But, I keep telling myself that it will get better.  My infection popped up at 5 weeks Post-Op.  It started with a little drainage from a tiny pinhole sized opening on my tibia scar.  Then, the scar started to open, just the size of an eraser head.  Then, by a week later I had three holes the size of eraser heads and a huge red spot on my shin that was hot.  I also had a lot of pus coming from the holes.  I know that infections can present themselves in all sorts of interesting ways.  My OS said that my infection was one of the most interesting ones he had ever seen.  But, it cleared up pretty well and now is completely gone.  I am watching my left knee like a hawk. 

So, I am looking forward to summer.  I will have two working knees and I have lost 38 pounds in the past five months.  I have about 15 more to lose before summer, but I am not worried about that.  So I plan on hitting the beach and enjoying myself.  I am going to buy my first bikini ever!  YAY.   That is what is keeping me going!

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on February 15, 2008, 07:22:57 PM
How are you losing weight???  I have lost about 5 lbs since jan 8th's surgery. I am the lightest I have been since being a gymnast.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on February 15, 2008, 07:33:29 PM
Farrah,

I have really changed my diet around.  I used to have a very unhealthy diet and now I am completely changing all of that.  I eliminated processed foods, high calorie foods, and I stick to a pretty strict diet.  Actually, I do not consider it a diet, because I intend to keep eating healthy.  I also do pilates when I have not just had knee surgery.   I had put on quite a few pounds, and I am finally taking the steps to be healthier.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on February 15, 2008, 10:06:41 PM
wow...that is great on the weight loss. I have lost all muscle tone, all cardio endurance...and gotten very flabby this year. I have gone the opposite direction. I used to have a clear pattern. I ate well, I drank tons of water...I had certain meals, etc before specific workouts.....now..Im addicted to coffee, diet coke...and my diet isnt that great.  I think that I just lost all purpose when I couldnt do any of my sports I liked...then when they took my other exercises away at the gym I just gave up.  This new knee is going to be a new start I hope.  It makes you feel like crap to eat bad. I know that for sure......

Good for you...you will be my motivation!  :-)  I thought I would lose weight being post op and out of town...but since nothing I eat is LEAVING my body...I guess Im gaining.  ???

Your infection does sound creepy..and interesting. I will keep an eye out for any pin hole things that start draining. I have been looking at it alot watching it closely.  I know my mom flew in yesterday. I was stretching my knee on the floor...she came in and put her hand on my knee...I yelled out.....OH NO!!...AIRPLANE GERMS>>>>>> ha ha...she said she had already cloroxed her hand after the airplane. ha ha.....  I dont want ANY funny germs in my knee......

 ;D
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on February 16, 2008, 01:42:22 AM
Cat,

That video was so cute.  That dog was hilarious!  Thanks for the smile.

Tanya,

I am ready to file a complaint with this surgery myself.  I know that things went well and that the outcome will be good, but I am frustrated.  OUCH!!!!!  My first PO appointment is on Monday...but it is with my local OS so I guess I cannot complain to him.

Laura,

Yes, my infection was very odd.  I am just glad it cleared up quickly.

Okay, so does anyone know anything about this.  I have been having the electric shocks of pain from the nerves, which is painful.  But a few hours ago I was working on ROM, nothing pushing it, just doing gentle ROM to keep my leg from getting too stiff.  Well I started getting intense pains all the way down my tibia.  Now I have very intense pain just below the osteotomy site and there is definate swelling.  I think my tibia is going on strike because its been attacked with a bone saw too many times!  I just do not know.  I was spoiled with my first three TTT's because they went realtively easy.  (well there was the infection with #3, but that was 5 weeks later.)  I just feel like I cannot do anything with this one.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on February 16, 2008, 02:33:29 AM
Hmmm.... I have no idea on that one.......That might be worth a whole new post under TTT to see if anyone else has had that happen. YIKES.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on February 16, 2008, 12:11:41 PM
Hi Brianne,

Keep up the good work. You are doing extremely well.

Let us know how your OS appointment goes on Monday. Mine is 2 days after that.

Good luck with your recovery !!  :D
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on February 16, 2008, 02:38:45 PM
Hi Brianne,
Sorry to hear you are having new pain. I have had so many different aches and pains that its difficult to know what causes what. I do get tibia pain occasionally even now but it generally just goes away by itself. Say it to your OS on Monday. Ill be very interested to hear how the appointment goes.

Im sure that its just because it was an extensive job to repair damage and get your alignment right that this surgery seems so difficult. It may also be a bit of your mind set - you have accepted now that this is the last surgery so you only have it to focus on - before your mind would be occupied with upcoming events to some degree!! One way or the other, this one is harder, but then thats it!!! NO MORE surgery!!

I hope youre feeling better soon, Ill let you know if I receive an answer to my complaint.

xx
Tanya
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: lilrosie06 on February 16, 2008, 04:43:56 PM
Brianne....Just checking in to see how you are feeling...and to let you know I am thinking about you.

Donna
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on February 17, 2008, 06:24:33 PM
Not too much new to report today.  Still having the tibia pain, but I think that is probably from the fact that my tibia has been cut twice in a years time.  The nerves are continuing to try to refire, which is actually sometimes more painful than the surgery area.  I am excited tomorrow about my post-op appointment and finding out how the surgery went.  All of my PO appointments for this surgery will be done locally as my OS will be out for 2 months. 

My right knee is holding up surprisingly well after the surgery.  It gets a little sore by the end of the day and I have a little bit of trouble standing up if I am on the floor because my right knee is still recovering.  But, it does not hurt and it is looking great.  I have full ROM in all directions and its never stiff.  On Wednesday in PT we are going to resume working on my right knee.  We took the past two weeks off to allow my left knee to heal.  We will be doing modified things that do not stress my left knee. 

The weather forecast for my area next week is freezing rain, ice, and lots of snow.  It looks like I will not be getting out at all.  I do not want to risk that anything happens because of the ice and snow.  I am so ready for this winter to be over. 
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on February 17, 2008, 07:07:26 PM
yikes on the weather. I hear you on being careful....after reading what happened to fawn...Im going to be SO careful.  I feel like  can walk with my brace on without the crutches but Im not taking any chances on a fall.  That is good that you are feeling better.  Im praying that I dont get those nerve sensations back. I had them from day one after my first surgery and they never really went totally away..they faded...this surgery I had them for the first 3 days...but none in the calf since. Last night I had a tiny nerve pain pinging the top of the patella...but it went away when I put the brace back on. Who knows.

Glad to hear you have good local Post op...too bad your os is gone for so long...wow..two months!
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on February 18, 2008, 02:51:19 PM
OUCH!  That is the word for this morning.  Last night I got a nerve refiring sensation that was so painful it caused me to wake up screaming in pain.  The pain lasted about 10 minutes.  I seriously wanted to rip my leg off last night.  The nerve pain has been at times more painful then any of the surgery pain.  I am going to make sure I ask about it at my PO this afternoon.  I am excited about getting my stitches out and finding out more about the surgery today.

Let's hope this nerve pain goes away soon!

Laura,

My local OS did my original TTT's and he has been very supportive throughout this entire ordeal.  He referred me to my OS is Detroit.  I have been very lucky because I have a great local OS so I can do most of my PO stuff in town.  His office is literally just down the road from my house.  Sure makes it easy!  As for my OS is D-Town...he is having surgery so he will be out for awhile.  My left knee surgery wasn't supposed to be until March, but they had to move it up because of my OS's surgery.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on February 18, 2008, 03:13:15 PM
Well. that is great........you know..I saw lots of OS in Texas. The doctor that found the procedure to fix my knee. He told me all about it and gave me the research study on the procedure. I was nervous..I continued to seek other opinions but kept going back to him.....kept up PT etc.  Finally.....I read his literature and found that this doctor in Georgia helped do the study.  I contacted this doctor in Georgia...but didnt hear back. I thought that he didnt do the surgery anymore...or just didnt want me to come......so I scheduled the surgery in Austin.  The Austin doctor had told me he had only done two of them before but he was confident he could fix me.   The DAY I scheduled the surgery in Austin, Dr. Flandry in Georgia called me back. He told me to NOT have it done in Austin if they hadn't done many b/c it is tricky to get an extensor mechanism reconstruction correct.  So.....I scheduled here.  I wrote a really nice note.....said how much I respected the doctors opinion in Austin, his time and thanked him for all he had done. I told him that I was having surgery here wth the man that did the research study and when  I came back to Austin I would like to still follow up with him..........so..you know what MY local OS did???  He had his nurse call me and say that I was not welcome to come back to their office after my surgery.  So....I had to find a NEW local OS the week before I came to Georgia.  My docs I work with pulled in a favor and I met the new OS.  He met me and said it is odd to meet someone the week before they go have surgery with someone else and plan to follow me up...but they agreed.    I am still SOO mad at the guy that dumped me.  Talk about an ego thing.    Sigh.....so, you are lucky that your doctor helped you get your surgery elsewhere and that he is man enough to follow you afterwards.  Im still stewing up a reply letter to my local doctor....the ass.   And...I REALLY liked him.  sigh.



Im really sorry you continue to have that nerve pain. I TOTALLY know what you are feeling. I had that after my last surgery too. No one seemed to understand it.  I hope that it is just still swelling for you and that it goes away.  Where is the nerve pain located?? Is it ON the knee or in the calf or shin or behnd the knee?  My current PT says that she thinks lots of my nerve pain is actually coming from my back.....interesting b/c when they worked on my back last week..she could push on a place that made my knee nerve hurt. OUCH.


Good luck today.
Laura
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on February 18, 2008, 03:51:05 PM
Laura,

That OS sounds like a jerk.  You would think that he would be more interested in making sure that your knee gets fixed properly and put his huge ego aside.  Apparently not.  I would be so mad about that!  Its good that you got a good OS to fix your knee.  That is kind of why my OS sent my to the OS in D-Town.  He said he had done several successful MPFL recons and TTT revisions.  However, the OS in D-Town is much more experienced in dealing with Patella issues and my local OS said that he would feel more confident about it if someone with more experience did the surgery.  I totally respect him for that.  He has really been looking out for me through this whole thing.  Even though my OS in D-Town actually fixed my knee, I totally credit my local OS for making it happen because I would not have thought to go to the OS in D-Town if my local OS had not referred me.

My nerve pain is on my shin and then down into my ankle.  Its so intense at times.  Hmmm, I think I might call my chiropractor and see if she has any ideas about what could be causing it.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: smkelly4kds on February 18, 2008, 04:56:39 PM
Brianne
   i had that nerve deal too.  It lasted about a week to 10 days.  It hurt terrible bad!  Mine would jerk the leg which made it hurt more.  It slowly subsided but I still get a firing every so often and Iam at 4 wks PO today.  I hope it gets better for you.  That pain really sucks cause it come out of now where and you dont have a chance to even prepair mentally for it.
   Good luck with your OS today! I go tomorrow and hoping I will be released to PWB or FWB and get to start ROM  that would be great!
Melissa
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on February 18, 2008, 06:08:23 PM
Good luck today Briann!  Thanks for your positive note on my diary! 
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on February 18, 2008, 08:10:47 PM
Brianne...Mine used to do that too. Mine was more lateral on the shin. I would describe mine as being the middle third of the lateral part of my shin where the shin and calf connect on the side of the leg. It was a real zinger...seriously like I was getting electrocuted. Afterward it would feel bruised and itchy......it was so odd.  After this post op I had it again...but only a few days...I was SOOO afraid it would stick around...but so far so good....but then again...the PT manual therapist has been doing some work on my back...I have NO idea. I was SOOOO sure that when they did this surgery my peroneal nerve was entraped. That is the nerve that is in the region that I hurt...but, the doctor said my scars were no where near that nerve...so they did nothing about the nerve pain. I hope he is right.......crossing all fingers.

:-) hope it gets better for you too
I get to go home tomorrow. yipee.
Laura
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on February 18, 2008, 08:34:57 PM
well I am back from my PO appointment.  I got through there in record time.  I was in and out including x-rays and all that fun in 25 minutes.  The weather is lousy today and they had a lot of cancellations.  I have never been out of there in less than 1 and a half hours.  It was a record today.  So I got the stitches out so I can put my leg in water...hmmm, I may have to go visit my dad soon because he has a hot tub. :)

Overall my OS was pleased.  He said that the x-rays look amazing, my patella looks to be in good position.  He was pleased with my 90 degrees ROM.  As for the tibia pain, he said that it is likely just aching because my tibia has been cut twice in a years time.  He said that should go away.  As for the numbness...he thinks that the numbness is caused by some surface nerves being cut during surgery.  He said that the medial side of the knee where my incision is has a very large number of surface nerves.  The fact that I have so much pain is a good sign because it means they are trying to fire.  It is possible that the area will remain numb forever, or for a very long time.  Although, my OS pointed out that if that is the only side effect I have after all these surgeries then I am doing pretty good.  So, I see my OS again on March 12th, he expects full ROM by then. 

As for now, and am just supposed to work on ROM and keep taking it easy to get the swelling down.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on February 18, 2008, 08:54:26 PM
That is GREAT!!! Does it feel great to have your stitches out?? I get mine out tomorrow.  I cant WAIT.  Well...that is great news about the nerves etc.  I  know that my last doctor said I would need at least 18 months after my first surgery to say that the nerves would not come back...so that is a long time.  You just might get sensation back.  From my lateral release..I had lots of numbness for several months on the knee and at the incision. (different than the nerve pain).....One PT told me to rub it and lightly massage the skin...said it helps it wake up. I think it did help some.  I think I would take numb over pain anyday.....be careful shaving though!!! I shaved my knee a little last night (easy b/c it is big and round..haha) and it was odd b/c I couldnt really feel the razor!

Im at 90 too.  They told me to get to 110 degrees by 6 weeks post op....so we are on the same course..........

Does it feel better to have the stitches out? How many did you have?

Congrats on all of the good news!
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: cat on February 19, 2008, 12:02:14 AM
Hey Brianne,
The hot tub sounds wonderful. We've been having alot of snowy, cloudy, cold days here-( but probably not as much as you.) And a soak til the skin is pruney sounds very therapuetic.

Hope the nerve pain resolves soon. Even if the pain is a "good sign" doesn't mean it's fun in the wee hours of hte night. I'm glad I've never had that particular pleasure.

Take care, "honey"
 ;D ;D
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on February 19, 2008, 02:34:29 AM
Cat..."Honey",

yes, I will be visiting a hot tub real soon. :)  I cannot wait!

Yes, its not really helping at 3am that the painful nerve firing is normal.  But, I agree with my OS...if I walk out of all of this with this as my only side effect, then I am doing pretty good.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on February 19, 2008, 03:06:37 AM
Brianne, I hope you are doing well tonight.  Your posts have seemed a little more upbeat even though you are still in pain.  Sorry to hear that!  I hope it goes away.  I am sure you are excited that your OS apt went so well!!  I hope you continue to recover well and the nerve pain goes away.  I agree about shaving over the numb parts!!  It is so weird!  I have numbness on the outside of my knee all along the the long incision.  I don't know if this is related, but my PT taught me to rub my scars today.  Not sure why, maybe someone can inform me on that.  It felt really weird doing it.  Anyway I hope you are doing well mentally and physically!! 

Farrah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on February 19, 2008, 06:05:35 AM
Hi Brianne,

Glad to hear that your local OS appointment went so well. That's great news. Do hope the pain settles down soon.

It's only 1 day till my OS appointment. Can't wait to hear what he has to say. I'll keep you posted.  :D
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on February 19, 2008, 10:17:48 AM
Hi Brianne - well well well, perhaps my complaint got sent to the 'upbeat' dept of affairs cos you certainly sound much better!!!! i will however write another one about the pain!!
sounds like you are doin great!!! when  are we gonna play the 'wheres my quads' game????
i had numb bits for years after my TTT - literally years. then one day i realised i wasnt numb anymore - surface nerves do knit back over time.

so I had the dreaded PT appointment yesterday. I didnt show much of a difference on the isokinetic test. but she was well happy with my level of control on the squats and lunges. then she just took the wind out of my sails completely by telling me that she figured now that im just on my way back to a good knee and that she reckons we will say goodbyee to each other this summer but that ive another 6 months very hard work, less hard work for a year and then exercises 3 times a week for life. i was like 'huh???' - she said when she first saw me she thought there was no hope, then she realised that i hadnt getting proper treatment and the last physio place hadnt shown me how to do the exercises properly and she'd never seen a leg so atrophied. now she says she has seen loads of legs as mine is today and they have all come back good with some work. most of my questions were dismissed (not in a bad way) with 'yeah thatll just come back in time' and the big thing i was wondering about why it felt easier to do a leg extension with resistance as opposed to with no resistance she said that at the moment i still need more stimulus to fire the quads on the right knee but that ive gotta start doing extensions with no weights and the neuromuscular connections will just rebuild themselves.
the whole thing felt like she was just going 'ok youre done....next...'
she wants me to see the OS in June for a review and other than that said that I dont need to pay her 100 euro every 4-6 weeks cos I have the techniques right on all the exercises so she isnt teaching me anything anymore and i really only need to come in if there is something specific i cant do or develop pain with or something.

i should be delighted! but i feel a bit deflated, i always feel like they discharge you before youre fully better!!!

so thats my news.
xx
Tanya
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on February 20, 2008, 02:46:17 AM
Tanya,

I agree that they always discharge from physio too soon.  This time my OS and my PT and I all agree that I am going to stay in PT for a while to get both of my knees back to full strength.  My right knee, although doing amazing, is definately super weak.  I have also decided to meet with my mom's friend who is a personal trainer for a few sessions.  She is willing to give me a good rate.

I have come to realize that i will probably have to always work on keeping my knees strong.  I guess thats a small price to pay for good knees.

Good day today.  Pain was the least today that it has been in a long time.  My friend came over and we went to Subway and then chatted about shoes and purses.  those two topics always make me happy. :)

Kirsty,

Good luck tomorrow at your appointment!

Farrah,

Yes, shaving the numb areas is super weird.  Rubbing and massaging the scar is supposed to help break up scar tissue around the scar.  If you do not break up the scar tissue then it will be super tight and hard.

Brianne

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on February 20, 2008, 02:52:28 AM
Brianne, I am happy that your pain is lower today!!  Hopefully it will just get better from here.  That's great that you can keep working on both knees in therapy at the same time.  I imagine sometimes it is difficult to work the better leg with the other being new from surgery.  Are you allowed FWB on your left??  I don't remember.  Anyway, I will keep massaging my scars. 

Farrah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on February 20, 2008, 03:04:50 AM
Farrah,

Yes, I hope the pain stays down.  It would be nice.  I was told WBAT at the hospital.  However, after my OS appointment he said he wanted me to use the crutches at least PWB until I see him again on March 12th.  So...I am not ready to FWB yet anyway, so I will keep using the crutches for a while.  Its kind of confusing having two separate OS's...but I trust them both and so I am not worried.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on February 20, 2008, 03:29:25 AM
You are a pro at this!  You know who to take seriously or how to choose a happy medium between two requests.  I guess take the more conservative requests seriously.  Better safe than sorry :)  I hope you are feeling better about your friend!

Farrah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on February 20, 2008, 07:02:17 AM
Hi Brianne,

I just thought I'd let you know how I got on with my OS today.

He was in a good mood and very understanding about how I'm feeling frustrated with no progress. My knee surgeon has suggested I have a trocheaplasty, which is a deepening of the groove of my patella. He said it should address both my medial instability and lateral instability issues. As this was exacerbated  by my car accident he has to write to the insurance company to get approval. That will probably take a couple of weeks. Then, I can go ahead and book the surgery. I'm hoping I can have the surgery in April sometime after I've had a two week holiday in Japan.

My knee surgeon is also writing a referral for a more supportive knee brace. He is going to write a referral to my orthotist to get a hinged brace. Today I spoke with my orthotist and am going to get a Breg brace, probably a winter weight and a summer weight one.

Keep up the good work in rehab !!!  :D
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on February 20, 2008, 09:23:16 AM
Ah Brianne, youre pain is finally abating to some degree - is it my prayers or my letters of complaint i wonder????? hmmmmmm...better keep both up!!!
I think you are on your way now - this thread is going to turn into positive progress reports only!

I agree with the small price to pay for good knees scenario - exercises for life, but only 3 times a week - shucks thats nothing for the likes of us!!!

As for me - Im having a good knee day so Im going to wallow in it and enjoy!

Kirsty - YIPPEE!!!!!! lets use this thread to all wave goodbye to our instability!!! byyyeeeee....

Farah - how are you doing since your injury?
xx
Tanya
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on February 20, 2008, 01:01:26 PM
Tanya, I am doing well now. My pain still sucks, but I am getting through it.  I have posted a ton on my diary if you want more detail.  Thanks for asking!

Farrah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on February 20, 2008, 01:12:26 PM
I went over and had a look on your diary Farah - I will post to you over there.

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on February 20, 2008, 11:11:04 PM
Farrah,

Sometimes conservative is not always best.  With my first TTT at my 6 weeks PO appointment I was still on crutches and in a brace and my OS told me to ditch both immediately and just walk.  I wanted to kill him at first because I hurt and was so weak, but with in a week I was walking really good.  Strength is the key to getting back walking.  Its hard because it hurts to walk, but not walking makes the leg weaker.  So, its a tricky balance.  But at this point I understand my body and I know whats okay pain and whats not.  This is my fourth TTT.

Kirsty,

YAY, you have a plan.  More surgery is never fun, but hopefully this will be the end of it once and for all.  Too bad you have to deal with all the insurance garbage.  Good luck with everything as you get ready for your surgery.

Tanya,

I have had two awesome days in a row.  I know there will be more hard ones to come, but it feels nice to feel back to semi-normal.  Yes, I shall soon be doing the "my knees don't dislocate anymore dance."  It will be nice!  I cannot wait.


I had PT today.  We are focusing on both knees, but that is tricky because my left is still healing.  So my PT and I did a lot of modified activities to work on strengthening for me right knee while protecting my left knee.  I used the total gym on my right leg only, but I had to hold my left leg out and my PT held on it so it would not get in the way.  I also did a lot of balance things on my right.  I started work on hip flexors and abductors.  Its so much fun!  :P

As for my left knee, its still mostly ROM.  I have until March 12 to have full ROM, that is what my OS expects.  I am not worried because ROM has never been hard for me.  I got to 105 degrees today after warming up and stretching my Hamstrings.  So I only have 30 more degrees to go.  However, the MPFL graft gets so stiff and so my OS wants to see if not stiff and the ROM to be full without having to warm up.  I am doing good, but I have a ways to go with the ROM if its Full without warming up first.  My OS is super obessed with ROM.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on February 20, 2008, 11:54:17 PM
Brianne, good luck with your PT!  Sounds like it is hard work for your therapist too...having to hold your leg out :)  J/k!  At least your PT is taking the time to make sure you get what you need on both legs.  I can't wait to have my other one fixed!!!!  I have yet to talk to my OS about it since before surgery.  He probably thinks it is okay!!  BUT IT IS NOT!  I had to do an exercise today while standing, I had to balance and bend my left knee while pushing my right leg behind me while keeping it straight.  The theraband was connected to my left ankle while pushing my right leg back. During this motion, I bent my left knee while I pushed my right leg back behind me.  My left knee crunched and hurt.  I just left it alone.  I had to do something to get stronger.  I figured I could let my left one get worse while I make the right one better.  I can handle it.  Anyway, I am happy for you about having 2 good days!!  Good luck with all of it!! 

Farrah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on February 21, 2008, 09:21:49 AM
Hi Brianne,
whats this???? the 'my knees do not dislocate' dance????. Ive forgotten the steps to that one :) Perhaps you could film it and put it on YouTube for us all in a few months time? Is this a sign you will be playing out the Riverdance outcome?????

I can only imagine that PT is gonna be mega awkward for you for a while but you know at least you wont compensate cos both sides need the work so thats a big plus - sometimes I think my left leg just takes over and my brain forgets Ive a right let at all - perhaps I should wear a marble in my left shoe to stop me walking on it!!!

Im still struggling away with the PT, I guess the years of disuse take a long time to get over. My biggest problem now is getting my brain to talk to my leg, when that eventually comes round walking should be much easier.
xx
Tanya
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on February 21, 2008, 02:37:18 PM
Hi Tanya!  That is crazy that you have to hold up your "good" leg to work your "bad leg". OUCH.  Well......that one leg will get stronger helping the new one heal for sure. Your arms are going to be SO strong...at least thats a bonus!  :-)  The one thing I can say about where you are in therapy.....at least they cant ignore you when you need so much help!  I always want the full attention of my PT and it is not always possible. 

I cant wait to get to do the total gym. My PT yesterday said...normally she would test the leg on the TG at the first appt but since I cant do anything....we just talked about the plan of care after I did my few exercises.  I have a total gym at home...whenever I get cleared I plan to have my husband bring it downstairs so I can start getting strong.  Funny.....I had thought that I could continue to work my good right leg after surgery....but...like you..I have no control of my bad leg so it just gets in the way. ha ha.....

Keep up the good work. 
Laura
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on February 21, 2008, 10:06:26 PM
I get 100% attention while at PT.  I love it!  At my old place I was given exercises and sent off to do them and he would check on me once in a while.  At my new place, I have the PT or the assistant always with me unless I am on the bike or on the water treadmill or something like that.  So I have plenty of opportunities to complain about anything!  It all moves so fast.  I don't ever have an opportunity to just sit and wait.  I am always busy.  Brianne, I hope you are doing well today!

Farrah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on February 22, 2008, 01:08:43 AM
Tanya,

I am not sure how the "my knees don't dislocate anymore dance" goes.  I guess I will make it up on the spot.  hehe!

I agree that its nice to have a PT with 100% attention.  I think its important, not only for proper form, but also for encouragement because some of that stuff really hurts!

So I went back to work today for the first time since my surgery.  I had 95 e-mails to sort through.  It took like 25 minutes for all those e-mails to download.  I am very sore from going into work, but its nice to start working again. 

My nerves are refiring in over time today.  I am guessing thats still a good thing, but man does it hurt.  I got no sleep last night because of the nerve pain.  I am so tired today! 

I have PT tomorrow and if I did not over do it today then I will go back into work for a bit tomorrow.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on February 22, 2008, 08:39:34 AM
Hi Brianne,

That's great you made it back to work today.

I am still trying to get my head around my upcoming surgery. It all seems soooo scary right now.

Last night I saw my sports physician and got really scared after what he said. I totally freaked out last night and went into a spin. I spoke to my psychologist today and said to not worry about it too much. I am going back to see my OS on the 12th of March to go through the surgery again so I understand what it all means. My knee surgeon will be furious that my sports physician has rattled me.

Today I got a call from my Orthotist rooms to say they have the referral from my OS. So, hopefully it won't be too long before I can get the new knee braces. I only saw my OS on Wednesday so that's pretty speedy that he's already done my referral.

Chat soon.  :D
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on February 22, 2008, 09:19:05 AM
Brianne,
you ARE Superwoman. Back to work already!!! Most of us cant even deal with one surgery without talking months and months off work and here you are, 4th TTT, and back already!!! I certainly hope your place of work appreciates your committment!!!


You so need a good physio - I generally like when they have a slight Nazi side to them too to push you hard. My current PT is a little lady and she is like steel wrapped in velvet, very polite, nice disposition, and then she practically flays you to get you doing stuff :) But she never pushes so hard thsat you think youre doing damage, she accepts limits but she pushes you up to the edge of the limit. She is no longer too interested in me cos she thinks now that Im just gonna stabilise and all will be well in the world.


Its good about your nerves, but yes, its sore. But it shouldnt last too long.

Kirsty - great to hear about the 12th march OS visit - give you a chance to have your mind put at ease by having questions answered.

Im having a sore day, I somehow grated something inside my knee yesterday (I was actually poking around with my finger seeing if anywhere was tender - typical, if i have a sore spot i just gotta keep pressing on it!!!), so Ive a small flare up, not affecting physio exercises though.

All prayers and good vibes to be directed at my brain to not need so much stimulus to fire the quads please :)
xx
tanya


Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: GemmaLeigh on February 22, 2008, 01:17:57 PM
Wow Brianne you're a trooper. I wish i could go to work, i'm going crazy here!!
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on February 22, 2008, 10:28:44 PM
The word for the day is OUCH.  I went into work for a few hours today to continue to play catch-up.  I also had PT today.  This morning my tibia was a little achy but not bad.  By PT it was a little more achy and so my PT and I took it easy on my left knee today.  By about 4pm I was having trouble putting much weight on my leg.  Now its 5:30pm and I cannot put any weight on my leg and my tibia feels like it is on fire and is throbbing so hard.  OUCH.  It even hurts to flex my foot forward.  The area that hurts on my shin is very swollen.  Hmmm  I have no clue what is causing this.  I plan on taking it easy this whole weekend...movies, couch, and lots of ice.  I do have to go into work for a few hours tomorrow, but otherwise...I am doing nothing all weekend.

Brianne

 
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on February 22, 2008, 11:33:58 PM
OUCH.  so scary when new pain shows up. I was just telling my PT today how hard it is to judge bad pain vs good pain.  ALL pain scares me right now.......I hope the weekend of movies helps.  I go back to work Monday too....I will be on board with the post work complaints Im sure.

Hope you feel better!!
Laura
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on February 23, 2008, 03:07:42 AM
Laura,

It is hard to judge good pain versus bad pain.  I am bad at this.  In my first two rehabs from TTT's I tore my hammys because I pushed too hard for ROM and my hammys were too tight so they tore.  I thought it was good pain. 

This pain in my shin is really intense.  I am hoping its just the combo of being back at work and needing to slow it down some.  I'll take it easy all weekend and see how I feel on Monday.  I do not see my PT again until Wednesday, but I will call my OS's office if it still hurts this bad on Monday.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on February 23, 2008, 03:57:17 AM
Brianne, you are the pro, but my OS warned me that after my Fulkerson TTT that my shin would feel like someone hit me hard in the shin with a baseball bat....not sure if that helps :)   I am sorry you are feeling it though!!  Hopefully it will go away soon.  I have started to feel a little pain in my shin today, but I am sure it is just a fluke...no big deal.  The pain my knee cap is the worst!!  I just want it to go away already...I am at almost 7 weeks PO and was suppose to be off crutches about 3 weeks ago!!  UGH!

Farrah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on February 23, 2008, 04:12:30 AM
Yikes...you tore your own hamstrings???/ Man..you are tough. No way I could push through that.....  I didnt know I was a wimp until this surgery....but, guess I am!  :-)   Shin pain must be the worst.  Are you very swollen?  Ouch...Im sorry......hang in there!!! ice ice ice...
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: sailchic on February 23, 2008, 04:10:09 PM
Ok, so this is not a particularly helpful reply as my experience with extra shin pain hasn't worked out so well.... but this time around I had a huge amount of shin pain for the first two weeks post op.  I was popping pain pills like there was no tomorrow.  But I literally hit day like 13 or 14 post op and just turned a corner.  All of a sudden it moved from being really sharp  to more of a dull ache that might have periods of being bad.  Maybe it's just due to us having revisions rather than 1st go around TTT's?  I definetly didn't have that type of pain the first time around. 

I'd definetly bring it up at your post op appointment (not like you wouldn't anyway) but mine kind of blew me off saying "well yes, it's going to hurt" even when I knew it hurt differently than in the past.  You're the best expert on you :)

Now go rent a bunch of movies and relax!  :)

Liz
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on February 23, 2008, 04:29:40 PM
Liz,

I had a little bit of shin pain and so I mentioned it at my PO appointment last Monday.  My OS did think that a lot of the pain had to do with this being a revision.  But now its getting so much worse.  It would not surprise me if it was still just from the fact that this is the second time my tibia has been cut.  We'll see what happens.  I plan on being lazy today and I am hoping that will help.  How is your recovery going?  How long do you have to use the bone growth stimulator?

Laura,

Yes, I tore my own hamstrings.  My PT said that she had never seen anything like that before.  I do push myself really hard...too hard sometimes!  My right hamstring was much worse than my left.  In fact I still have bouts of bruising and soreness from tearing it back in October 06.  I have been extra careful this second time around...making sure not to tear anything.  My PT would kill me if I did!

Farrah,

You will be off crutches soon.  Its slow in the beginning, but as you build up strength you will be able to use the crutches less and less.  I found it helps to push it a little bit to help with strength.  But don't push it too much or you will be hurting.  My right TTT revision and MPFL recon was on December 17th and I still get sharp pains every now and then.  Its normal to an extent.

Kirsty,

I walked around like a zombie for the first few days when I learned that I was not only needing one knee fixed, but a TTT revision and MPFL recon on both knees.  Its hard to grasp the concept of more major surgery when you have had so many already.  But, think of the outcome!  That is what has kept me going!

Tanya,

Thats right...I is SUPERWOMEN!  Hehe!  Now that I am back at work I am having so many people ask me what happened to my leg.  I started telling people that one of my co-workers pushed me off the roof because I would not give him a cookie!  HAHA.

My PT kicks my butt.  However, she also knows that sometimes I need her to be the one to tell me to stop.  I will just keep going until it hurts too much if no one everstops me.  My PT has been the same PT through all of these surgeries and she is wonderful.  It helps a lot.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on February 23, 2008, 04:50:53 PM
Start telling people you had breast augmentation and that's why you are on crutches with a big brace on your leg!!!!! 
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on February 23, 2008, 04:53:54 PM
Farrah,

HAHAHA.  I laughed so hard from that one!

Seriously, I am so sick of telling people what happened to me.  I even get random strangers asking me.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on February 23, 2008, 06:41:48 PM
Glad you likede it!  I have great news...see my diary!! 
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: GemmaLeigh on February 24, 2008, 01:13:06 AM
I can relate to this. I just got back from my grandads birthday dinner with about 30 old people and every single one of them asked me what i'd done... at different times of the night, so i had to tell the story over and over. I drank lots of champagne to try and forget that i'd already told the story 25 times :)

My partner thinks that deep down i love telling everone about it!! the cheek!
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on February 24, 2008, 01:34:57 AM
Hey Brianne,

I'm glad to hear you felt like a bit of a zombie for a couple of days after you found out. That's exactly how I felt. Today is the first day I haven't felt too stressed about it. I know that I have to do it to have a chance of more stability. Just often worse thinking about it sometimes.

That's great you've had the same physio throughout your surgeries. I've had a couple of different ones and the same physio for the last 2 surgeries. He's sensitive, but has a good sense of humour too.

You are a champ for going back to work so soon.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on February 24, 2008, 03:02:10 AM
Here's to ladies that had breast augmentation and now are stuck on crutches with big knee braces!!!!  One day we will all be without crutches and will have nothing to explain!!!!   

Farrah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on February 25, 2008, 03:37:57 AM
Well I took it easy all day today and my tibia is still screaming at me.  I spent most of the day sleeping and watching movies.  I did drive up to my dad's house which is 25 minutes away for dinner.  But he has a hot tub and so that was very relaxing.  Plus I was able to convince him to take my puppy for a walk to help him wear off all that puppy energy.  That part worked because my puppy is sleeping now.  :)

As long as I keep my weight bearing at a minimum then my tibia does not feel too bad, but as soon as I put more then a fraction of my weight on it then it starts screaming at me.  So....hmmmm, I do remember having some sharp tibia pains with my very first TTT and backing off on the WB helped a lot.  So I will do this for a few more days and see how it feels.  I have PT on Wednesday.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on February 25, 2008, 09:27:21 AM
Hi Brianne,
the tibia pain sucks - you poor thing, superwoman does not need extra pain!!!
Definitely back off the wieight bearing and see does it make any difference, even just 2 or 3 days - wont make any difference to recovery to not weight bear for a few days to see whats happening.
Whens your next OS appointment?
Im like the walking wounded today, usual sore knee, have aggravated the usual tendon in ym hip and didnt I go and pull a muscle in my back getting dressed this morning!!! So no matter what direction I move Im like 'ouch, oww.....'. All minor irritations.
Went for an hours walk on saturday - thats my longest walk in months. My legs felt so heavy by the end of it. Still feel a bit unstable sometimes, but not on every step anymore.
Improvement is slooooooooow.....
xx
Tanya
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on February 25, 2008, 11:45:11 PM
Well Superwoman is having a bad day.  I hurt so bad today, my shin is SO swollen, and I got all sorts of crap from my co-workers today.  My friend is within days of dying and that is not helping matters at all. 

My shin keeps hurting so bad.  Its obviously swollen over the area that hurts.  My next OS appointment is March 12th. I am continuing to take it as easy as I can, but that is causing crap from some of my co-workers.  They want to know why I have not been out on the construction site as much as I normally am.  Hello?  Construction site?  Yeah, thats where I should be right now.  Then they start making assumptions about things that they have no clue on to begin with.  Its frustrating and I am sick of it.  I am so tired all the time still and my body feels like it got the snot beat out of it.  These guys do not seem to understand that.  I try to say that I do not let stuff like that bother me, but right now I feel so emotional and run down that I am finding myself upset by every little thing. 


Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on February 26, 2008, 01:54:41 AM
Brianne, just keep taking it easy.  I hope your tibia pain subsides soon!  I can relate to not being able to go on construction sites!!  I am in the middle of a project being built on a site near my office.  Well I had to draw a bridge connecting two buildings together.  The bridge was installed, but incorrectly.  So I have been needing to get a measurement of the existing installation to figure out how to center a door on the incorrectly in placed bridge.  The doors are no longer centered on it based on our drawings of what has been installed vs what still needs to be built.  So we need some exact dimensions...which means climbing a 30 ft ladder and crossing over lots of scaffolding....in other words...can't do it!  So we are handing the task over to the contractors which take forever to give us info that we need!!  UGH!!  Anyway, I failed at walking crutch free...big time!  Have a great night!

Farrah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: trish85 on February 26, 2008, 03:46:17 AM
Hi Brianne
I just got caught up with your diary today.  I'm sorry that you are getting so much grief from your coworkers unless you've been there no one understands what it's like.  I had really bad shin pain after my TTT revision and when I saw my doctor he said it was because the bone hadn't healed enough yet and I continued progressing with PT and everything else. He gave me a bone growth stimulater that helped.  The pain I felt was like my tibia was spilting in half I don't know if thats anything like you are feeling now.   

Even superwoman has her bad days. Just take it easy.
Trish
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on February 26, 2008, 09:08:09 AM
Hi Brianne,

Don't worry about your co-workers. They just don't understand.

Getting my head around the surgery more now. Was just so scared when I saw my sports physician last week.

I feel like I am getting something. Feeling so tired.

Will keep you posted on when my surgery will be.  8)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on February 26, 2008, 09:58:41 AM
Brianne (or Superwoman),
Take absolutely no notice of your co-workers, perhaps if you smashed the legs off a couple of them with a baseball bat and then asked them to go to the construction site theyd understand a fraction of what you feel. You are the only person who knows what its like to walk in your shoes so take no notice of hollow noises coming from empty vessels.

Man that tibia pain really sucks. Is there anything that can help relieve it? At least your appointment is not too far away. Though it probably seems like an age right now.


Its totally natural that you feel like youve had the snot beaten out of you and you know why??? because you have!!! I dont know how you dont have post traumatic stress disorder at this stage!!! maybe you could write a book on strength of character and teach us all a thing or two.

We are all cheering for you Brianne, keep your chin up (i.e., stop looking at your legs :) and believe me - this too shall pass!!!
xx
Tanya
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on February 26, 2008, 06:29:20 PM
Hi Brianne

Im sorry you are in pain. Pain sucks.  Im also very sorry about your friend. It is the worst...I hope you get to visit her as much as you can and you are at peace in your heart with that.   The stress of an injury makes you depressed..and tired...the healing of an injury makes you tired.......loser co workers do not help.  I know that even if you are a strong person you can only take so much. Im not a cryer and I have cried more this surgery than I cried ever before. Not always for pain....sometimes just fear or frustration.....the "what ifs" of all of it.

I dont have a TTT. I know nothing about it.  BUT...I too have tibia pain. They didnt even do any work anywhere near where my tibia hurts but my PT says it all refers around in there and it is hard to say where is is coming from. She said even just the work of learning to contract my quad again might be causing inflammation that is causing me tibia pain.  So.....hopefully it has nothing to do with your TTT site.  Does ice help it?  Not sure the rules on Ice with your recovery.

Working after injury is the pits.  People sorta understand...but...probably really for about a week.   I look at my schedule at work and have blocked all these spots off.....everyone knows why...but still....the jerks over booked a patient into one of my no patient spots.  Thanks alot....they dont care as schedulers..they sit on their butt all day.....AHH...to have that luxury.   Anyway......you cant make them understand.......who cares what they think. If they have forgotten your injury this fast....they will forget that you were taking it easy also.

Have you called your OS about the swelling at the tibia site??

Laura
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on February 26, 2008, 06:52:51 PM
My friend passed away this morning.   :'(  I went to visit her last night, but she was incoherent and unaware of her surroundings.  I am okay with this because it was something that everyone knew was coming.  Ann was just such a great person and the type of person that if you only met her for a moment you would remember her for life.  I am trying to function at work today, but its not going so well.

The pain is a little less today and the swelling is going down.  I have PT tomorrow and so I will ask my PT about it.  My OS's office is in the same building and so if its a problem then I can see my OS right away.

I hate winter.  We got a whole bunch of wet and slippery snow last night.  And this morning my car was stuck in the driveway.  That was fun trying to shovel out while on crutches.  Then as I finally got my car un-burried I was trying to go put the shovel away and I slipped in the snow.  I was fine from the fall, but with the emotions of having just lost my friend and the frustrations of being stuck I just started bawling right in my driveway.  I am glad that my neighbors were not around because I am sure I looked strange.  So after bawling in the driveway for 5 minutes I had to go in and change because my pants were soaked.  Then, I slipped again...also okay...but by that time I was so fed up with it all!  I HATE WINTER!!!

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: KW on February 26, 2008, 07:16:13 PM
Brianne,  I'm so sorry about your friend.  Please know that i am here if you need anything.

Karen
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on February 26, 2008, 08:05:27 PM
Im sorry Biranne.  You will never forget your friend. I can say I lost some amazing people in life and never have forgotten them. You will always be better for having known her and Im glad you got to see her last night.  It is probably just as well you had the falls this morning to help you get some of your tears out.    that is so hard.  I cant imagine going to work in the snow..ha ha..I cant even manage the dry dirt in texas.  I hope that you get some answers tomorrow. Im glad that your pain is less today.

hang in there.
Laura
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on February 27, 2008, 02:35:11 AM
Brianne, sorry about your friend!!  I hope your knees are feeling okay today!!

Farrah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on February 27, 2008, 09:16:58 AM
Brianne,

Sorry you've lost your friend.

I do hope your pain settles down soon.

I feel a lot better about having the surgery. Taken me about a week to get it around my head.

Keep up the good work with your rehab !!!  :D
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on February 27, 2008, 09:38:08 AM
Hi Brianne,
Im so sorry to hear about your friend, its good that you got to see her before she went off on her journey.
I know that theres not much can be said to relieve the sadness of losing a friend but just be glad that you knew her and that she brought joy into your life and know that you were a good friend to her up until the very end. She will look down on you from wherever she is and help your knees to heal.
xx
Tanya
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: GemmaLeigh on February 27, 2008, 06:29:31 PM
Brianne,

I am so sorry for your loss. I lost my cousin just over a month ago and i couldn't even go to the fineral as it was the day of my op! after the initial grief you start to remember all of the good things and the memories. I realised that rick would not want me to be miserable for him, but to celebrate his life.

My thoughts are with you and I hope that your knee isn't causing too much pain, you could do without that on top of everything else!

Gemma
xxx
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: trish85 on February 27, 2008, 09:56:50 PM
Brianne
I am so sorry for your loss but just keep thinking about the good times
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on February 28, 2008, 01:53:38 PM
Thanks everyone for the encouragement.  Ann;s funeral is tomorrow and I know it will be a great celebration of her life and probably a very emotional event as well.  She was loved by so many people and touched so many lives that there will be so many people there to say good bye.

As for my knee, its not doing so good.  Its very swollen in the knee area and over my shin.  At PT yesterday I could not get my knee to do much of anything, it was all too painful.  My PT decided to just work my right knee and let my left knee rest.  She was a bit concerned about the increase in swelling and said that she wants my OS to look at it if its not getting better by next Monday.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on February 28, 2008, 03:20:15 PM
hmmmm....can you pin point anything that might have happened to make the leg swell more?  Can you elevate it more during your day?  Are you icing still?  can you get a pair of compression hose?  I hated the idea...but I tell you...these suckers work!  Im sorry that your leg is acting up...that is very scary.

Dont push yourself too hard tomorrow.  I know it will be hard.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on February 28, 2008, 03:32:15 PM
hey brianne,
hope the funeral goes ok for you - its a hard thing to go to but youll feel better for going and remembering your friend and the good times.

so sorry to hear your knee is still playing up - best to let it rest and like PT says, get it looked at if it doesnt improve.
xx
tanya
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on February 28, 2008, 07:16:35 PM
Laura,

The only thing I can think of that could have irratated my knee was my two falls in the snow on Tuesday morning.  They did not hurt, but my PT said that they might have made my knee flare up and swell.  Hmmm, who knows. 

The swelling actually looks really good right now.  I have been bending my leg all day from my office chair.  My PT suggested that this could help with swelling as it will get my circulation moving better.  So I have been gently bending all day and its helping a lot with the swelling and with the constant stiffness I have in the knee. 

So, we'll see how it looks on Monday.  I do see my OS next on March 12th, so that is coming up quickly anyway.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: cat on February 29, 2008, 12:25:13 AM
Good grief, you fell TWICE?? Are we gonna have to bubble wrap you? Glad to hear that the knee is looking a bit better today.
Sorry about your friend.
 ;D cat  ;D
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on February 29, 2008, 02:58:38 AM
Brianne.....that makes sense about the falls.  You know when I go to PT they measure my knee...it is generally at least 1cm smaller at the END of PT than when I started. I guess it is the same thing..the circulation.  I know with my last surgery they had me lay on the ground with my foot up on the wall and do foot pumps and quad sets....maybe that would help with this initial swelling too.  Im glad it is going down at work today!

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on February 29, 2008, 07:45:39 AM
Hi Brianne,

I am thinking of you through this trying time.

It is hard going to a funeral, but hopefully you will be able to remember all the good times you had with her and share with her friends and relatives.

Sorry to hear that you are still struggling with your knee. I do hope the pain starts to settle soon. It is major surgery you've had to both knees and can sometimes be a bit much for the body to cope with.

I have had a bit of a frustrating week. I've spoken to my insurance company this week and have received the request for the knee brace. So, hopefully I'll hear on the outcome of that soon. However, I found out that my OS rooms haven't submitted my surgery request and my OS is away for 2 weeks. Uggggghhh !!! I could have screamed. Anyway, the insurance company said they can accept the letter if it's signed by my surgeon's secretary. So, I'll ring them on Monday to let them know. I would really like to get my surgery done once I come back from holiday in early April.

Today I found out my contract is finishing next week, which is a bit of a downer too. Just so sick of struggling and being dealt with challenges all the time. I guess it will make me stronger though.

Have a good weekend !!!!  :D
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 01, 2008, 02:04:02 PM
Cat,

Yes, I fell twice.  I fall a lot.  But I am really good at falling so I almost never hurt myself!  :-D

I wonder how Dr T is doing?  His surgery was a few days ago.

Laura,

You are a genius!  I got out an old compression stocking from one of my surgeries and have been wearing it on my leg for the past two days.  Its helping with the swelling so much.  Of course its annoying and terribly itchy, but it works!  I hope that once this swelling subsides things will be better.  My PT said that a lot of pain can be associated with swelling.

Kirsty,

I know all the frustrations of dealing with things to get a surgery set.  After all the emotional work up to accept the surgery the hoops you have to jump through can sometimes be even more emotionally draining.  Good luck with all of that.


The funeral was nice.  There was a visitation first and then a Catholic Mass for Ann's funeral.  After the funeral there was a dinner at a really nice local restuarant.  The dinner was nice because it was more of Ann's close friends and family.  Ann's mom is the sweetest lady and it was nice to be able to talk to her.  Plus, I take a lot of pictures and without knowing they were my pictures Ann's family used all of my pictures for displaying around the room.  And the obituary photo was a picture that I took.  It was an honor to have my pictures used. 

The dinner was very nice.  I was a bad girl and decided to leave my crutches in the car because the knee was feeling pretty good.  I figured I would be sitting most of the time so who would know...right?  Well I got busted.  The restaurant has the two big steel doors at the entrance/exit.  I pulled the door open to walk out and just my luck...my local OS was walking in at the same time.  Busted. :-P  No, my OS is really nice and I told him that my knee was feeling good and he said he was glad to see me up and moving around. 

So, the knee feels okay today.  There is some pain still at the graft site, but the shin pain has settled down for now.  Although that pesky shin pain seems to flare up at odd times.  I see my OS for my next appointment on March 12th, so not much longer until the appointment.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on March 01, 2008, 02:34:56 PM
Brianne Im so glad you are feeling better.  You know I dont like the stockings either but they do offer some stability somehow to the knee and for sure they help my swelling.  Mine aren't iitchy though so thats good.  Maybe your pain in your shin is better b/c the swelling is down some?  It is great that you are doing better.

Im glad the funeral went well and that you spent time with her family. They will remember your kindess for sure.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on March 01, 2008, 03:32:19 PM
Hello Brianne.  I can't believe you are walking without crutches!!!!  That is amazing!  I am glad you are feeling better.  Do you take pain meds?  I am so glad that your friend's funeral went well and I hope you had some good closure from all of that.  When my friend died last year I felt so much better after the funeral.  She was the first and so far only person that I have been close to that died from anything.  So it was very difficult until after the funeral.  Now I just think how great she was and do what I can to remember her...I collect donations for March of Dimes in her name.  That is something I see myself doing for the next several years!  It feels great and her family realizes how great of a person their daughter was.  Unfortunately since her death, her father died of a heart attack.  He was very supportive of my march of dimes efforts for his daughter.  It was very sad when he died.  I couldn't go to his funeral though...all his services were where my friend's were, and I just couldn't handle it.  I always see people that remind me of the two of them.  Anyway, sorry to go on about that!!

I am so glad you are feeling better and I hope that shin pain doesn't come back!!  I just can't believe you are walking!  Do you walk normally?  Or with a limp?  Have a great weekend!

Farrah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: cat on March 01, 2008, 03:35:50 PM
Brianne,
Good thing it's not summer. I bet those compression hose look sensational with shorts. ;)

I haven't heard about the good doc. I'll call towards the end of hte month for a progress report and a yay or nay on my May apt. I'll know more then.

Is your shin pain right by your tibial tubercle? I have owies just medial to my TT. The more I do, the more it yaks at me.

It's a glorious day here. I'm gonna grab some of that sunshine.
 ;D ;D
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 01, 2008, 05:35:19 PM
Farrah,

I am walking without crutches, but I still have my brace on and locked when walking for another 2.5 weeks.  Hopefully after that I can ditch the brace.  So...I guess I walk like a peg leg!

That is awesome that you collected money in your friends honor for the March of Dimes.  My mom and I have kept an on-going fund in the memory of my sister that is used to help with Environmental causes.  My sister died when she was 23...5 years ago this June.  It is so hard to lose someone you love, but I have found that supporting a cause in their honor helps with the coping process.

Cat,

Yeah, no one can see the compression hose.  I am in sweats today!  :)  I'll be curious to hear how the Doc is doing after his surgery.

My shin pain is just below my TT to about halfway down my shin.  It will be really intense some days and then hardly noticable the next.  It seems to come and go with no reason.

Its cold here.  Its always cold here.  I hate winter.  But hey, I got invited to go on vacation in Cancun at the end of the year...and I am going!  YAY!

Laura,

I am making a photo video for Ann's family today.  I am actually getting ready to open my own business making electronic memory books and videos for special occassions.  Its been a hobby of mine, but so many people come to me asking for me to make them a video that I decided to finally make it a part time business and earn some money for my hobby!

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on March 01, 2008, 06:16:31 PM
Hey Brianne....that is so great that you are making that photo book.  You know..my wedding photographer made us one after our wedding and I STILL love to watch it.  They will love having it...  Here is a link if you want some inspiration: :-)

http://www.brettbuttersteinphotography.com/LauraBenWedding/

Cancun?  That is a GREAT thing to look forward to!!!   how great!

Sounds like you are doing well today. Im glad for you!

Laura
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on March 03, 2008, 01:24:00 AM
Brianne, can you PM me?  I have some questions...
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on March 03, 2008, 09:45:22 AM
Brianne, Peg Leg, Superwoman,
just dropping in to say hi - so glad your tibia pain is settling, cannot BELIEVE you are able to get about without crutches!!!
im glad your friends funeral went ok - i hope you are feeling better about it.
i had a partial sublux on friday but for the first time in years i didnt have to reduce it - it snapped back in in the the same motion - is this progress???? i hope so!!
xx
tanya
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 05, 2008, 02:57:32 PM
The swelling is continuing to come and go.  It was really bad yesterday but its really good today.  I am sure tomorrow will be a whole new surprise.  The pain is definately worse when my knee is more swollen.  The ROM is also worse when it is swollen.  My tibia has been hurting on and off the past few days, but not as bad as it was last week.

Only one more week until my next OS appointment.  I am excited to hopefully get rid of the brace.  He is expecting full ROM by that appointment, but I have my doubts about getting full by then.  It will help that I will be coming from PT and so my knee will be warmed up and not stiff.  Also my PT is going to mention in a progress note that I have been working on ROM and have made good strides.  This is different for me because I have always been at full ROM by 3 weeks Post-OP.  However, my PT said that with my flexibility, she is happy to see that my ROM is coming slower this time. 

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on March 05, 2008, 04:41:12 PM
That is interesting she said that...my PT said the same thing. I got my ROM back so fast last surgery. I am only at 112 flexion now. She said if it comes back too fast it means the repair might not have been good enough.  Im like you...I have to elevate and ice and then do my ROM to help it get less swollen first.  It is such a battle.  I hope you lose the brace next week!

:-)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 05, 2008, 08:32:16 PM
Laura,

Yes, my PT told me today that she is pleased with my ROM and that the stiffness means that the MPFL recon is holding.  She told me not to push it from here on out and just to "let it come."  I got to 116 degrees today. 

I hope I lose the brace.  My PT and I were talking about "long term" rehab for my legs.  She thinks it will take 3-4 weeks to get my left leg back up to speed with my right leg.  Then she wants me to have at least 6-8 weeks where I can rehab both legs together.  We never got to that point with my TTT's last year and my PT feels with all the trauma my legs have gone through that I need to continue on in PT for quite a while yet.  My insurance covers it and I have big plans for my future, so I am okay with that.  My PT said that she will make sure my OS writes a script for that.

With that said, my swelling is going down even more.  My left knee is almost the size of my right knee.  There is one area that concerns my PT and that is I have a lump of swelling just below where the TT was cut and its kind of tender.  We could not tell if there was a screw there or not.  I have three screws this time around and we are not sure where they all are.  I whacked my right screws two days ago and now my TT area has a lovely green bruise.  Screws are horrible.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: cat on March 05, 2008, 09:33:32 PM
Hey Brianne,
Just curious, but it seems my tt sticks out more than it did before. Does yours?
I'm keeping fingers crossed that you can ditch the brace soon.
 ;D ;D

PS
all hardware is horrible- especially plates
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on March 05, 2008, 10:16:13 PM
OUCH..that sounds awful!   Yes...I bet you are in for the long haul in rehab.  My PT told me the same thing.....at least 6 months...and up to a year to get myself back to "normal" whatever normal is now. We want to have a baby this year.....and...we debate how far in rehab I have to wait to try............

116 is great!   I cant wait until I get whatever degree I need to sleep comfortably on my side again........I hope you lose the brace.  Lucky dog.!  I cant wait to lose my big fluffy cotton full leg immobilizer. It is hot and annoying. bla.  I dont wear it at home...but do at work....yuck!

:-)
Glad your swelling is better. I cant beleive you are having both legs rehab at the same time. You are a machine!
Laura
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: GemmaLeigh on March 05, 2008, 10:32:31 PM
My OS told me from the start that the recovery would be 5-6 months and this is my first surgery!! I think it's good that they want to continue PT as it means that you are not taking any chances.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on March 05, 2008, 10:55:13 PM
My OS said 3 mos!!  Hahahahahahahaha!  Yeah right!  I am at 2mos right now and feel like I have a long way to go!

Farrah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 06, 2008, 12:56:25 AM
Cat,

My TT sticks out all weird too.  I think a lot of this is because my TT was actually moved distally and that has made a weird bump on my shin.  My tibias have been toutured a lot in the past year and a half.  Poor things.

And yes, all hardware sucks.  I would be trying to remove the plate right now if I had one. 

Laura,

I was only 7 weeks out from my right TTT revision and MPFL recon when I had my left knee done.  So we needed to keep rehabbing my right one so it would be strong enough to withstand the strain of being the "strong" leg after my left knee was done.  So hopefully after next Wednesday I will get the go ahead to start working my left knee.  My PT wants both knees close to equal before we start rehabbing both.

How exciting about wanting to have a baby this year.  I guess that will be good incentive to get that knee back to 'normal'.
Gemma,

With a TTT it can take up to a year to feel 100% again.  I would say that after 3-4 months you will feel pretty close to normal as long as everything goes right.

Farrah,

When you see your OS make sure they don't try to discharge you from PT too soon.  That can happen and then you will not have the chance to come back fully from the surgery.
 
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on March 06, 2008, 09:46:22 AM
Ive got Franken-leg - I was looking at the site of my TTT last night - Ive grown bone over the screw site in the past 20 years and now Ive got a misshapen bump over it. It seems to be getting bigger too!!! but that might just be my imagination!!! 
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on March 06, 2008, 10:17:39 AM
Hi Brianne,

Glad to hear you're making progress. You are just amazing in what you've been able to do.

I have been experiencing real frustrations with my knee surgeon's rooms. They promised to get the letter done on Monday and send it to the insurance company. I have been ringing the insurance company every day since Monday and still hadn't received it this morning. So, I rang my surgeon's rooms this morning. The girl I spoke to called A**** said his PA would call back in a couple of minutes. She didn't call back, so I called back mid afternon. When I called back I was put on hold then to a message bank. So, I called back and spoke to A**** again. I was put on hold for another 10 minutes and then she said his PA hadn't typed up the letter yet and that she would do it herself. She is going to try and get it done by the end of tomorrow, but I really doubt it. After I got off the phone I was in tears. It's just become too much. I am just so sick of rehab and operations.  Just want to get on with organising my operation and getting on with my rehab and having a normal life again.

Have a good weekend.  ;)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: cat on March 06, 2008, 01:01:53 PM
Brianne,LOL,
 
Quote
I would be trying to remove the plate right now if I had one

So were you attempting a little self surgery on those screws of yours? Is that why you're so sore? ;)

Tanya,
You've had your screws for 20 yrs? I can't imagine that. Were they countersunk? My screws certainly were not. They're practically waving at people.

 ;D ;D [/color] [/b]
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on March 06, 2008, 01:44:59 PM
Its only the one screw - I dont know if it was countersunk. I do remember the site was tender for years, then it sort of eased off and it must have been bone growth over it that caused it to 'raise' a little in the area - but recent x-rays have shown bone fully grown over it and you can see it when you look at my Franken-leg :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on March 07, 2008, 02:13:18 AM
KJ- Im sorry they are giving you such a hard time.  It is just crazy to wait like that.  There is another member in the UK with medial subluxations too....KarateKid......she was told to come back in a MONTH so they could get her old operative report.  I cant believe how long things get put off.  It is really hard to sit and wait.  I know that I waited three months one time to see this "specialist" in another city..when I drove all the way down...he was a total jerk to me...  I think waiting is the hardest thing ever.  You are right. Once you get someone in your knee to help you out at least you can start working in a FORWARD direction towards rehab.  I hope you nag them every day to get your letter.  Maybe try to call and cry some...!

Laura
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on March 07, 2008, 03:14:58 AM
I guess I was pretty lucky with scheduling my surgery.  I had my OS apt on December 13th and we discussed having the surgery on Jan 8th.  Well they said I'd get a call in a week about details, and I never did.  After waiting about the full week, I called the Friday before having to go out of town.  I didn't get a call back.  So I called back when I got back into town...still no call back.  I didn't hear back until the THursday before my Tuesday surgery!!  I was so angry and stressed out.  For all I knew, I wasn't even on the schedule for surgery and I was scheduling my life around something that wasn't going to happen....obviously it ended up happening, but the stress of it all was frustrating.  Keep bothering your OS's office KJ! I hope everyone else is doing well.  How is everything Laura??  Happy weekend to you! 

Farrah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on March 07, 2008, 08:22:56 AM
Hi Laura & Farrah,

Thanks for your kind words. I was just so frustrated yesterday and just wanted to scream. It just gets too much. The waiting is the worst thing. I just want my surgery over and done with.

I am feeling a lot better today and will tackle it once again next week. We have a long weekend here in Melbourne this weekend. So, I'll call the insurance company on Tuesday. Hopefully they will have received the request. If not, I will be having strong words with my knee surgeon on Wednesday and explain to him what has happened.

Have a good weekend !!!   :D

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: GemmaLeigh on March 07, 2008, 09:16:03 AM
Farrah that is really lucky to get seen that quickly. I had my OS appointment on April 1st (typical april fools day!!) and we decided on surgery and I had my surgery on January 31st 2008!!! Between this time i had dislocations or subluxions nearly everyday!!
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on March 07, 2008, 09:40:29 AM
Hi Brianne,

I have been thinking of you and wondering how you are doing. Is the pain beginning to decrease and are you able to do more ? I have been able to get my pain more under control now. As well as my knee I am really struggling with my shoulder and back. My shoulder physio thinks my knee is putting them out. So, another good reason to get the knee fixed. He's joked that my knee physio needs to sort my walking out.

Earlier this week I got a new knee brace which is making a real difference. I now have a Breg Road Runner brace and feel much more stable in it. Still find it difficult to stop suddenly and go up and down stairs. I am wondering whether I have done damage to other ligaments as well as I'm not able to walk at all and my knee just collapses. What do you think ?

Still waiting for my knee surgeon's rooms to send the surgery request through to the insurance company. So, very frustrating. Yesterday I was in tears and just felt like screaming. Luckily I have a friend under the same surgeon and understands how I feel.

Love to hear how things are going for you.  :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 07, 2008, 07:05:29 PM
Kirsty,

I am so sorry to hear about all your frustrations scheduling surgery.  Its really a shame that it has to be that way.  Making the decision to have surgery is emotionally stressing enough, but then to have to jump through 101 hoops to get things done...its maddening.  I hope that resolves itself for you soon.

As far as damage to your knee goes, it really just depends on how things line up in your knee.  My OS thought for sure that my knees were a mess because I had so much pain and so many dislocations.  But, he was surprised to see that my knees were almost completely undamaged.  My only problem was that my kneecaps would not do as they were told.  So, I hope the same is true for you.

I am doing pretty good these past few days.  The swelling continues to go down.  I was feeling a little painful yesterday and so I gave myself a break from exercises and just let the knee rest.  That seemed to work really well because today there was much less pain and even my ROM came easier.

Just a few more days now until my next OS appointment.  I am hoping to ditch the brace and move forward with PT.

As far as my surgery scheduling headaches, I had a long time to wait to finally get things set with my surgeries.  Mine was not insurance realted, rather I have an OS who is very hard to get into and takes forever to schedule surgery with.  I am glad that I waited and had my OS do the surgeries because I could not have been in better hands.

For me I feel like I am coming to the end of a very emotional rollar coster.  This whole crazy journey first began in Feb 2003 when I knew I needed a TTT on my knees.  I scheduled the surgery for June 2003 but my sister died 6 days before the surgery was scheduled.  I then lost my insurance.  I got new insurance in 2005 and had an appointment with an OS in October 2005.  He suggested the TTT but I did not like that OS and he was the ONLY guy my insurance would cover.  They would not let me go to anyone else in my area and they would not let me go out of area.  Then in August 2006 I had new insurance and I had my appointment with my current local OS.  I had my 1st right TTT in October 2006 and my first left TTT in Jan 2007.  Then there was the whole crazy deal with getting my OS to take my concerns seriously and then getting into my new OS who did the repeat surgeries.  For the first time in 5 years I feel like there is an end to this journey.  Anyway, I am done rambling. 

The good news for me is...size 8 jeans no longer fit me and I have to go buy my first size 6 pair of jeans in my life!   ;D ;D ;D ;D ;D   That feels good.  From size 12 last summer to size size this spring.  Oh yeah!

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on March 08, 2008, 02:24:21 AM
Brianne, I am happy for you that all your knee troubles are on the road to being fixed!!  I feel like I am at the beginning of all of that even though this is my 2nd surgery on the same knee.  The first one wasn't hardly anything though. I didn't even have to do PT after it.  I was off crutches after about 2 weeks or so.  It was so easy.  I wish this one was.  Anyway, I know you have warned me about all of my pain issues not being normal  and to be sure to talk to my OS.  I will.  Don't worry.  I actually did when I spoke with my PA on Tuesday or so.  He kept one with the story of muscle weakness.  Oh well...we'll see on Thursday at my 3rd OS PO apt.  I will be just over 9 weeks PO by then.  I can't believe it has already been that long almost.  Anyway, I am glad your knee seems to be getting better and the pain is going away slowly now and then.  Well good luck and still thanks for all of your recent advice.  I have been keeping a journal of all my experiences since I think Wednesday.  My pain level does not go under 4 ever.  On average during the day it is a 6-7.  I didn't realize it was like that most of the time!  I am recording it every 2-3 hrs.  I also write what my activities were every few hours...it is very informative.  Anyway, that's all about that.  Good luck!

Farrah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on March 09, 2008, 04:20:08 AM
Dear Brianne,

Thanks for your words of encouragement. I really appreciate it. Like you said, making the decision to have surgery is a stressful one let alone having to go  through these hurdles before it actually happens.

I found it interesting what your OS said about damage to your knee. On Wednesday seeing my OS again. So, hoping to find out more info then. Am also going to ask about a lateral patellotibial ligament reconstruction as I've heard that can address medial instability. When I do a lot of my exercises I have a flickering sensation on the left side of my knee. My physio said that it could be my ITB, but I'll ask my OS on Wednesday. I also have a grating sensation when I try lunges. Just not sure what that is either. Have you experienced that before ? I'm going to ask my sports physician and knee surgeon about it. I just want to make sure my OS does everything to my knee as required as I don't want to have to go under the knife again in a couple of months time. Just so sick of knee operations and the rehab afterwards.

Glad to hear that you are doing pretty well. It must be a relief after everything you've been through. You have been through so much as well as your knees, especially your sister dying 6 days before one of your surgeries. My brother was diagnosed with a brain tumour through my knee troubles which was really stressful. He had the first surgery which was successful. Unfortunately it came back and had it removed a month after my right shoulder operation last year. Hopefully this is it for my brother and I in terms of surgery.

Good luck with your OS appointment on Wednesday. I'll let you know how I get on with mine.   8)



Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on March 09, 2008, 04:36:26 PM
Kirsty..that is what they repaired in my knee. The lateral patellofemoral ligament thing.  I guess it is the same thing as the lateral retinaculum repair.  It said that on my op notes somewhere.  The IT band is part of that system.  Now that I am post op...and my IT is sorta angry b/c they cut part of it and used part of it for the repair.....I feel that lateral snapping sensation too.  My PT says it should calm down.  Is yours sorta to the lateral side but toward the back of the knee?  Thats where mine is...I feel it at extension mainly.   Just curious.   Maybe your IT band is tight from trying to hold your knee into place?

Brianne....Keep us posted on your great work. I cant believe you have gone from a size 12 to a 6!~  That is wonderful.  Im going in the opposite direction....before my knee stuff I WAS a 6...now Im a 10. sigh.    Cant wait to get to do some sort of exercise again!.  I think the frustration and depression of all of it just made me throw my healthy diet out the window.   I have terrible habits now. I need a kick in the rear for sure.....or..maybe just a LOOK at my rear. lol

:-)
Laura
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 10, 2008, 02:00:10 AM
Laura,

Even though I have lost a lot of weight, I feel so out of shape and flabby.  I have no muscle tone anywhere in my body.  This has got to be the most out of shape I have ever been.  I don't think I would have the stamina to walk around the block today.  I'd fall over because I would be out of breath! :)

Now that the knees are dealt with, the next step is to work on getting in shape.  I am rejoining the YMCA once I get the okay from my PT and OS.  I am also going to meet with my mom's friend who is a personal trainer in a few weeks.  Diana is amazing and she is totally willing to help me work on getting back in shape. 

So, I am excited about things.  I finally feel like I am on the otherside of all of this and now I can start getting back to where I want to be.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on March 10, 2008, 02:21:24 AM
That is wonderful. I look forward to those days too. I miss swimming..I miss yoga...I miss gardening...etc. Im hoping that since this is spring....maybe by summer or fall I can get back into some fun.  Today I painted a wall in my house.  (we are in the middle of a lot of renovations. Just one wall.  The knee felt fine....but I was exhausted.  I wanted to surprise my husband when he gets home from Dallas.... ha ha.....so..the out of shape thing is a joke!!!   I had to go upstairs to get something from a room.....so...I usually go up step by step with the good leg.  I was curious....so I tried a step with my bad leg. I couldnt believe it but i COULD step up. WOW.  I tried two more steps....it is weak..but no pain really....yippee.....I went the rest of the way up the way I am supposed to go up them..and yes...with the crutch...but it is a good mental thing to know it might be possible!

Im so glad to hear you are doing well.  I cant wait to follow in your footsteps.   Hopefully I will follow in your weight loss too!   :D

Have a great night! Keep up the good work!
Laura
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: GemmaLeigh on March 10, 2008, 09:16:41 AM
Brianne, going up to a size 10 is nothing!! I went from being a 10 to being a 14/16 in a year because of my knee :( It is a horrible feeling having no control over your weight though. I hope that we can all see results like you have! I can't wait to get back to swimming, it's the main activity that I love to do. I did go to the gym 4 times a weeks but never enjoyed it so i've quite enjoyed the break ;)

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on March 10, 2008, 09:45:28 AM
Hi Brianne,

That's exciting that your friend's Mum is going to help you get into shape again. I feel very limited in what I can do at the moment because of my knee and shoulder.

Tonight I did 25 minutes on the exercise bike in total which I was very excited about. I am worried about getting really unfit after my next surgery. My physio thinks that I won't be able to start physio for a couple of months after my surgery. I'll find out more when I see my OS on Wednesday.

Good luck with your OS appointment. Only 2 days to go !!!  :D

Laura,

Thanks for your continued support and words of encouragement.

The lateral release repair is different from the lateral patellotibial reconstruction. For the lateral release repair they close most of the lateral release, but for the reco they do the same thing as they'd do for a MPFL reco except on the lateral side.

One day we will all be really fit and surprise our friends. Can't wait for the day to come !!  :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on March 10, 2008, 01:47:33 PM
Hi guys,
I miss that completely out of breath sensation that you get from running and running til your heart and lungs feel like they are gonna burst. I can still get it on a bike, but I havent had it on my feet in many years.

I think my back muscles are weak from all the knee problems too - I often twinge different muscles in my back or have it stiffen up from lying funny on it.

Im off work sick today, out of nowhere last night I woke up with stomach cramps that went on for 2 hours and ended up with me on the loo a few times. I was actually getting weak and dizzy from the cramps. Dont know what caused it, my boyfriend ate the same food as me and he was fine. I ended up being awake from 1am thru to 4.30 or so so there was no way I could have gotten up at 7.15 for work. My stomach feels kind of crampy still - like Im bloated but Im much improved.

xx
Tanya
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on March 10, 2008, 10:46:10 PM
Yuck Tanya......hope you feel better soon!  yikes!
 
KJ...yes..I think a lateral release repair is supposed to be where they just put those two parts back together..but since I had scar tissue and it had been 14 months since my LR I didnt have much of the LR parts to put back together ...so for me they cut part of my IT band....and cut part of my patellar tendon...they flipped those two parts around beside each other and sewed them together and somehow attached them to my patella to hold my patella over to the lateral side...then on the medial side they cut my VMO and moved it down further and reattached it in a "better" place....yikes.   They called it an "extensor mechanism repair"   I guess I should change the title to my posts to that too..ha ha...  I think the idea of keeping whatever fitness you can up until surgery is very smart...it will help you mentally too!

Brianne....hope you continue to do well today!

Laura
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on March 11, 2008, 01:50:16 AM
Hi Laura,

Thanks for the info. Going to ask my OS whether I'd be a candidate for the extensor mechanism repair as well as the lateral patellotibial ligament reconstruction in addition to the trochleoplasty. Think my knee needs tightening up as it feels like jelly.

I'll let you know how I go with my OS tomorrow.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on March 11, 2008, 09:54:15 AM
And I will also be asking about extensor mechanism repair as thats my broken bit!!!
my knee feels jellyish too a lot of the time. My quad is starting to look ridiculous on my bad leg - the front of it (the showy part) is massive - sticking out way more than the other side - when I contract my leg it is so defined (like theres no fat deposits and you can only see the lines of the muscles) but still bloody not working properly!!!
Ive been investigating my leg a bit more as to what I can and cant do in a controlled manner and I still cant get that last bit of extension/flex mid air - I can do it but you can see the shaking of no control and it hurts and feels all 'wrong' but it has to be the neuro recruitment thing cos I can do it with the e-stim connected.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on March 11, 2008, 11:33:17 AM
I'm with you on this one, Tanya. I can contract my quads in extension. However, in flexion my quads just shut off. At the moment I can't walk without my brace. Just feel like a jelly fish.

Did you have this problem before surgery, Brianne ? What about you Laura ?
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 11, 2008, 03:54:39 PM
Kirsty,

Yes, I had problems with extension with my leg in mid air before my surgery.  Actually, with both of my knees when I tried to fully extend in mid air my patella would jump out laterally and start to sublux when I would go into full extension.  I kind of learned to not try to do that to avoid the subluxing. 

Tanya,

I really think that you would be a good canidate for an MPFL recon.  Even if yours is still in tact, it could be too stretched to do its job.  My right MPFL was stretched but still needed to be reconstructed.  My left MPFL was "shredded" according to my OS.  I am already feeling better after these surgeries.  Its good that you have worked so hard on PT, but I just don't think that is going to cut it for your knee.

Laura,

I am so excited!  I weighed myself yesterday and I am under 150 pounds for the first time basically in my life.  The last time I was under 150 pounds I was still growing!  I am 149 pounds.  SO EXCITED!  I am just 14 pounds away from my goal weight.  I am excited because soon I will start to get myself in shape and then I will really feel good.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on March 11, 2008, 04:17:12 PM
Hi Brianne,
Big congrats on the weight loss!!! well done - its so hard to stay in shape with problem knees!!

I will ask my OS next time I see him (June) - but judging by my last 2 visits he is not going to consider a surgery for me at all. Although he did say 'if you get the muscles big and strong and you are still dislocating ill do something' which i feel is unfair because i CANT get them as big and strong as Id like because I have no freedom of movement in everyday life!!!!

I dunno though - there is a big difference in what is easy for me and what isnt depending on whether or not Ive just warmed up or if e-stim is attached. When I talked to physio about that she said my brain had blocked off all signals but that the fact I find things easier after warming up or using e-stim indicates to her its all muscular dysfunction at this stage. And she also points out that with an MRI, x-rays, a physical exam by OS and some improvements in PT - she says that all the ingredients are there for it to work, but my brain doesnt want to talk to my leg after all this time.

Like you Brianne I have trained myself not to move certain ways - and according to PT I should be re-training now because for example, I couldnt do a leg extension with no weights before xmas - but I could with weights - because my brain is trained to work the leg with weights but my body is so used to trying not to extend that its like I lost the ability weightless. And now if I do it - I can do it - but I never attempt to do it because Im so well trained!!!

I really think my OS is gonna say 'more physio' - and if he does thats ok (there are still some areas that are visibly weak) but Im going to ask for a timescale because otherwise its always just me trying to build muscle and no end in sight.
xx
tanya
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 11, 2008, 04:28:47 PM
Tanya,

Yes, do ask for a timescale when you see your OS in June.  I mean, physio is great and can produce some good results, but there are limitations to what it can accomplish.  If I were you I would not be happy with anything but a timeline for where you are going with your knee.  If your OS says "lets just continue physio..." make him give you a time.  My local OS was going to try to go that route with my left knee last June.  He said, "well I think the best thing at this time is to continue PT and not do anything more surgically..."  I refused to accept that.  I told him that I could not function with my left knee in tin its current state and that he had to give me an answer that was more than "lets wait and see."  Thats why he referred me to Dr T, which was the best thing that could have ever happened to my knees.  Last June I was told I had no hope, and this June I have plans to hike a mountain.  So, demand answers.

I see my OS tomorrow.  Poor guy, I give him such a hard time.  I am hoping to be free of the brace.  Luckily, in the knick of time I have gained a lot of ROM.  the insane stiffness is gone and I can get to 120 degrees.  My PT said that is enough that my OS will be pleased...but he will warn me that the third time I see him I better have full ROM.  I also want to know what I can do it terms of working out at this stage in my recovery.  I have lost all of this weight, now I need to be able to work out and really get in shape. :)

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: sailchic on March 11, 2008, 05:24:01 PM
I'm totally impressed!  120 is still great at that stage in the game.  I'll keep my fingers crossed for you tomorrow.... It must be great knowing that you're almost gym ready :)

Liz
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 11, 2008, 05:36:01 PM
Liz,

I am excited about 120 degrees.  I am very excited about almost being gym ready.  Although I am not getting my hopes all the way up until after my appointment tomorrow.  I also have about a dozen home improvement projects that have been put on hold due to my knees.  I am looking forward to working on my house again.

I read in your diary that things are still not healing.  Sorry to hear that.  Hopefully things will start to heal and you can avoid more surgery.

Well, back to work.  Then I have to call an advisor for school...I am switching programs from Nursing to something else.  Then I have to go to class tonight...YUCK!  So, I don't have the time to tell everyone about my school plans now, but if everyone asks really nicely and I will tell everyone tonight! :)

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on March 11, 2008, 11:28:24 PM
Hey Brianne...that is great about your weight loss. Im crazy jealous.  And....great that you could even consider getting to do fun stuff at the gym. I KNOW I could easily get my butt in the gym and do lots of exercises that have nothing to do with the bad leg..but I just cant get motivated for some reason. Probably some deep underlying depression about losing my ability to do triathlons..I have lost my "goals"...just going to exercise isnt fun if Im not training toward something....bla.

I tried to get out of my immobilizer today. sigh..she said at least two more weeks. I hope you graduate out of your brace. I really KNEW I wasnt ready to come out of it...my knee buckles under all the time when I walk withtout the immobilizer but with the crutch at home.  Oh well.......at home I just lay on the couch to avoid wearing it. bla.

KJ...yes..I could NOT bend my leg and extend while in any sort of flexion before the surgery. Before the LR I could do anythying I wanted and I was Stupid and had the surgery to ruin my knee..ha ha..can you tell I have some regrets???   Anyway....NOW...I cant move the bottom part of my leg at all so I cant move it unless I start with my leg in 100% straight, lock the quad and then move it all as one big unit....it is very odd and annoying right now.  But...no...my patella doenst move an inch..it is in lock down. I hope it starts to move better over time.

:-)
Laura

Oh...yes...Brianne...what do you want to do instead of nursing?  Im a nurse....I would go back and be something like a landscape designer or something where my hours werent so set and I could work from home if I wanted to.......I have my Masters in Nursing...dont really want to go start over in life at this point...maybe when Im older I might decide to change to something else......
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 12, 2008, 03:06:47 AM
Laura,

Well, my PT is concerned that I will not be let out of my brace because my quad control is very poor.  She did not recommend that I be FWB without a brace.  Of course the final word will be with my OS.  My PT said that she thinks I will either be able to bend my brace or be FWB with crutches.  I am hoping to prove her wrong.  But either way, I will be moving forward. 

So, I am not doing nursing any more.  I have made the decision to...do pre-med and eventually go onto med school.  I am so excited.  I have wanted to do this, but I let my knees keep me from going for it.  So...I have decided to just go for it!

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on March 12, 2008, 09:03:32 AM
Hi Brianne,
Oh please please please go to med school, become an OS and fix my knee once and for all!!!!

How did you OS appointment go today - great you got a last minute reprieve on ROM, 120 is great for where you are at - how is the other leg doing? And is the tibia pain gone? I hope you get a good boost at your appointment today.

I hear you about a timescale. I am actually thinking of pulling my appointment back into May instead of June - just seems to me like Im on a waiting game a lot. I was trying the bend/extend in midair again, im doing it 20 times at the end of each exercise session. It seems to be a little easier as in I dont feel like its gonna sublux now - but it feels HARD like my leg just doesnt want to do it. Maybe it is just the brain talking to the muscles, I just dont know anymore!!! I just know Im sick of the instability.

Laura - you make me laugh - practically every day I read a post of yours that says you tried something that really you werent supposed to be trying yet - you are so gonna be a star pupil when you get into strength building physio!!!
xx
Tanya





Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on March 12, 2008, 10:40:25 AM
Hi Brianne,

That's fantastic about doing medicine. I'm also working towards that at the moment. It is something I have always wanted to do. I am doing some volunteer work at a big private hospital in Melbourne and also working as a sports trainer to help to work towards it. I am currently trying to complete my first anatomy module. Next semester I hope to do my second module and do a clinical pilates instructor course next year. Then, hopefully start medicine in 2010 or 2011.

Today I saw my OS and really put my mind at ease. He said my only option is a trochleoplasty as my kneecap is going out medially, but also showing signs of going laterally in my scans. Urrrggghh !!! It just makes it more difficult to treat. I have much more idea on my rehab which is great. It's not as bad as I thought, which is just fantastic.

I also got a reply from Dr T from an email I sent a while. So, it was a nice surprise.

Tanya, I think you've done the right thing bringing your appointment forward. I really wonder whether you should consider getting a second opinion. You really need some timeframes to work towards. That's often the hardest thing when you keep working at rehab and not knowing if there's an end it sight.

Good luck to everyone with their rehab !!!  :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on March 12, 2008, 01:38:23 PM
ha ha....well....at least when I do things Im not supposed to do I only do like 10 minutes of it before I realize it is stupid and I put myself back on the couch in the ice machine as my punishment. ha ha.... ;D

ah...all the doctors in the house...yes...good idea to do medicine. I was pre med in undergraduate work...have all the courses done....but...then decided I didnt want the long hours.....duh..I could have picked a speciality that didnt have the long hours.  I have a good balance as I am an advanced practice nurse...I get to see my own patients, set my own schedule...etc......>BUT.....I do the same work with 1/10th the pay. gzzzz...not so smart of a move now.  At least Im not on call I guess....and I always have backup brain to go ask......but.....that being said...if I were to rewind life I would have done the same. 

:-)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on March 13, 2008, 09:38:24 AM
Brianne - Im trying to prepare for my next OS visit - I want to be able to suggest in a knowledgeable fashion that perhaps my MPFL is too stretched or otherwise damaged to do its job. Can you tell me how Dr T. came to that diagnosis on your knees?
Also - how do you pronounce Dr T's name and where does he practice (I want to be able to say 'a friend of mine was treated by Dr T in Detroit? and he recommended and performed MPFL reconstructions along with TTT revisions for the instability' ). I dont think they would revise my TTT - its over 20 years old at this stage, but I am interested to know the function of MPFL (also its full name) and how the diagnosis came about cos my guy has done MRI, X-Rays and physical exam but perhaps that wouldnt show it up?

Thanks Brianne - about the pronounciation of Dr Ts name - can you spell it out phonetically for me please!!!

I subluxed again this morning so Im not in a good mood about my knee today - I pulled my appointment back to May 15th a couple of days ago so Im very glad I did that.
xx
Tanya
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on March 13, 2008, 10:31:24 AM
Hey Tanya,

You really need to get some CT scans done to get a good understanding of your anatomy and what's going on in your knee. For patella problems MRIs show jack all !! My OS made plans for me after reviewing my CT scans and plain x-rays, particularly the CT scans. It showed I had a very flat groove.

The MPFL is the medial patello-femoral ligament which helps to stabilise your patella.

Brianne,

How are you doing this week ? Been wondering how you are progressing and how your OS appointment went yesterday.  8)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on March 13, 2008, 11:03:47 AM
perhaps Im just being silly here but is there also an LPFL (lateral patello-femoral ligament) - and if so how does one know which one is not working properly?

I will ask about CT scans also. My insurance doesnt cover my knee as its a pre-existing problem but Im not going to mention that until decisions have been made - I pay my OS privately for appointments but I doubt I could afford a private surgery - but in Ireland you can be treated publically by your private consultant - but it might mean a longer wait. He thinks my insurance DOES cover it so Id rather not hit him with that yet as I dont want him to decide against helping me because the health insurance wont pay up!!!
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 13, 2008, 02:46:17 PM
Tanya,

The Lateral Retinaculum is also know as the Lateral Patella Tibial Ligament (LPTL).  This one is most often reconstructed when a previous LR is done too much.

A CT scan is a good thing for the knees.  My CT last fall showed much more than x-rays and even a previous scope. 

As for my appointment yesterday, I passed!  I am now with out the big ugly brace.  My OS does want me to wear a Breg PTO when I am out for about another month, but I did lose the big brace.  The x-rays looked great.  The bone cut was HUGE, which is probably why I have so much tibia pain.  The tibia is healing well.  My patella is also FINALLY in the right spot.

So now I have to work on getting my quads back.  Walking is going well for short distances, for longer distances I still need to wear the brace.  But I am gradually working my way up to full walking brace free.  I can already tell a difference just from yesterday to today.  The next 4 weeks of PT will be to get my left knee caught up to my right.  Then I will do about 8 weeks of PT to work both legs.  I see my OS again in 3 months and as long as everything is going well, I will be released to full activity at that time.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on March 13, 2008, 02:50:46 PM
well done Brianne - thats fantastic news!!
im so envious - but in a good way, i cant believe you are STABLE and HEALING!!!! yaaaaaayyy!!! youll be well able to build those quads now that you have stability.

can you look back a few posts about the questions I was asking bout Dr T and MPFL please?

My retinaculum is really loose and baggy - my PT even wrote it in her last report to my OS how baggy it is. I wonder if thats causing me problems?

Just miserable today with my most recent sublux and pain. Feel like my life is just wasting away and Im not able to do anything.

Im really really glad your OS visit went so well.
xx
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 13, 2008, 03:00:59 PM
Tanya,

Dr Teitge came to the conclusion that my right MPFL was too stretched based on the continued instability, my CT scans, and my history of dislocations.  He also could tell based on how much patella mobility I had.  For anyone who has had repeated dislocations, a insufficient MPFL is pretty much a given.  the MPFL is the medial patella femoral ligament, also known as the medial retinaculum.

His name is pronounced "tie" and "g".  The second t is Teitge is basically silent.  He is internationally known for his work with knee issues.

The MPFL recon has made a world of difference for my knees.  Dr T has given me back hope with these surgeries.  Its important to note that the MPFL recon is a tricky procedure and you want it to be done by someone with lots of experience.  If the graft is too tight then there will be medial instability and if it is too loose then it will not do its job.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on March 13, 2008, 03:07:51 PM
Brianne - youre an angel - thanks so much for all the info.

I just didnt want to sound like I was just spouting words without knowing what they meant.

Thanks so much pet!
xx
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: smkelly4kds on March 13, 2008, 04:40:12 PM
WOW!  Brianne I can't believe how fast your are moving forward.  I am 7 1/2 PO and still have to wear this lovely brace.  All I had was a TTT (Fulkerson).  It is amazing how much the docs differ on protocols.  I go to see my OS for the 2nd time next week.  I am hoping for PWB or FWB without the brace.  At this point even with would be fine.  Honestly I am doing more than my suggested 25% WB anyway.  It doesn't hurt.  My knee feels weird so stiff but as time goes on I am hoping that will improve.  Think the biggest problem I have is the numbness I get in my foot when laying on my right side on my sugery knee.  The whole thing goes numb but hurts.  Something I will definetly be asking the OS about.  I forgot to ask my PT about it.  PLus the swelling of my knee and foot has gotten worse since starting ROM.  Which I know maybe normal but if I am up on my feet alot it just gets worse through out the day.  You would think it would get better with movement. 
   Anyway, congrats on losing your brace and moving forward!
melissa
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on March 13, 2008, 04:48:42 PM
Congrats Brianne, I have my OS apt and PT apt today at 2pm.  I leave work in about 45 minutes.  I know you want me to bust their butts, but I don't think anything different is going to happen.  I will tell them about my problems, but nothing will come of it...I know it. 

I am so happy for you though.  I take it you are crutchless!!  I hope when I fix my left knee, I will heal as fast as you!

Farrah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Brittany0183 on March 13, 2008, 05:31:32 PM
Congratulations Brianne!!

I think we all wish we were in your shoes! (or brace!)  Good luck with building up muscle strength!!

So happy for you!

Brittany
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: GemmaLeigh on March 13, 2008, 05:36:13 PM
Hey Brianne,

Congrats on all the great news. You were right from the beginning that our recovery should be on about the same track and it pretty much is.  :)

It's fantastic that you are getting about short distances without the brace and you can gradually build up from that, don't run before you can walk and all that.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: trish85 on March 13, 2008, 06:18:23 PM
Congrats Brianne
Its great to hear a success story right now I am actually having a MPFL tomorrow and  I am beyond nervous.  But I have to say reading that someone is having a good recovery just really calmed me down (for now at least) and has helped me to breathe a little bit.
wishing you continued luck
Trish
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on March 14, 2008, 12:41:12 AM
Congrats Brianne!  You are the queen of the healers today. good for you!   Cant wait to catch up to you!  :-)

Laura
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 14, 2008, 02:34:51 AM
Melissa,

yes, the OS protocols vary a lot.  Both my local OS and my OS in Detriot have similar protocols so its always been what I am used to with my rehabs.  Hopefully you will be able to FWB soon.  I have to admit, your OS's protocol seems a tad too conservative.  But, if you have a good result in the end then it is worth it.

Farrah,

Good luck with everything.  Please remember to take it easy, your body will thank you for it in the end.  I do heal insanely fast.  One thing that I think has helped me a lot is going to a chiropractor.  Its helped so much with all of these recoveries.  I started going to one last fall and its been a blessing.

Brittany,

How is your recovery going?  You are almost past the first week...it only gets better from here.   I have some major muscle to rebuild.  My legs have been through a lot the past 16 months and they are not liking me very much.  My OS told me to expect it to take upwards of a year to regain my muscles.

Gemma,

Congrats on your good progress.  I have recently lost 40 pounds.  PM me if you want and I will share some of my secrets with you.  I started my diet six months ago and I have been steady at working on it.  The biggest step is making the decision that you want to lose the weight and being ready to make that commitment no matter what.   It sounds like you are ready to go for it, so thats the hardest part.

Trish,

Good luck tomorrow.  The MPFL recon is a rough surgery, thats for sure.  But, its so worth it in the end.  I have found the MPFL recon to be way more painful then the TTT's.  I did not really expect that so it caught me by surprise.  Do not be surprised if your MPFL graft gets insanely stiff and ROM is hard...it happened with both of my surgeries.  PM me if you want some more advice.  You will do awesome tomorrow and hopefully this will do the trick for you!

Laura,

You will catch up to me in no time!  When is your next OS appointment?

And...CAT!  Where are you my friend? :-D

Brianne

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 14, 2008, 02:39:44 AM
Oh, and Tanya...you might want to threaten your OS that you have a friend with two good knees now who will cross the pond to come and kick his rear end if he doesn't fix your knees!  ;D

Seriously, if you need any more info on the MPFL recon to strengthen your case, let me know!

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on March 14, 2008, 03:13:55 AM
:-) thats one happy post :-) 

My OS told me to come back at 8 weeks post op. I am 5 weeks tomorrow. I havent made the f/up appt yet b/c Im struggling to figure out what day to take off work and I dont want to pay for the flight...grrrrr.... He doesnt see patients on Mondays or Fridays. I work Mon-Thurs...so..figuring out what to do with my patients to get back and forth to Georgia and not kill my leg will be tricky. I need to call his office tomorrow and beg for an exception and see if he will see me on  Friday after his surgeries since Im coming from out of town.  I doubt it..but I sure wish he would.  I dont want to stay the night. I want to fly there, see him, fly home in one day.   

I had a melt down at PT today. I guess it is just one of those moments when I want soooo bad to be better and Im not. So..I tried to take less Advil yesterday and didnt take any Benadryl last night. I woke up feeling like crap and was so grumpy. So...at PT I was quiet...so she came over and sat down and asked me what was up....of course..I started crying.  We went through all the normal stuff....Im scared, im frustrated, Im tired, Im sick of pain...I want to be normal...etc.  She listened and was nice.  She had me tell her ALL the things that were repaired in my knee......(she knows what they are)....and then she said.  THATS ALOT...and it is only 5 weeks. So.  I know that.  I just didnt know it would be this long and this bad.  It is not terrible....but...it still sucks and is annoying.........So. here I am...on the couch. On the ice machine.  Im so sick of being cold. ha ha ha...... My husband said tomorrow he will go to home depot and he will buy flowers/plants. I can sit on the back porch and put them in my pots that are all empty. I can sit and do it...and I will be outside....so hopefully that will make me not sad. He also took off work next Friday so I can go see my family for Easter...that will be good to so we can get out of this house and off of this couch and at least onto my moms couch.

anyway......I sure look forward to feeling like you.......   You have to keep posting your good stuff so we can all see someone progressing normally.....

:-)
Laura
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on March 14, 2008, 03:27:12 AM
Hi Brianne,

Great to hear that you're doing so well. That's awesome !!! I forgot to ask my OS about my MPFL rec about being stretched. Will ask him before I go into surgery and make sure he checks it. The info you provided to Tanya has been really useful for me too.

My sports physician got a telling off by my OS yesterday for scaring me off and telling me unnecessary things. So, I'm relieved about that.

Laura,

Sorry to hear you had a bit of a melt down. Don't worry it can only get back. It's only early days yet.

Off to Syndey tonight for a wedding tomorrow. Should be heaps of fun. Also staying with a cousin I haven't seen in ages. Have a good weekend everyone !  :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on March 14, 2008, 08:43:31 AM
Hi All,
Brianne I will definitely tell my OS that I have a friend who Dr T fixed who has good legs to kick him with now!!!
I emailed Dr T's offices yesterday to ask what the procedure is about arranging a consultation from a different country, I want to arm myself with info and then be able to tell my OS 'well if you cant help will you refer me to Dr T - I have the info here' _ i really dont know if I could afford to go to America to get fixed but my boyfriend is telling me we'd find the money somehow. I am also going to look into London and Belfast - Belfast used to be a world centre of excellence at knee surgeries in the 70s due to so many people being kneecapped when the political situation was bad so its worth checking out, I can remember when my original surgery was done doctors used to say 'if there are complications we can send you to Belfast' so its worth investigating.

I guess you guys can tell Ive had enough. Ive huge muscles and no stability. I cant accept any more conservative treatment - I know you know how I feel. I had to call in sick to work today because I cant walk - the after effects of this sublux are bad, my knee is very swollen and VERY unstable.

Kirsty - Im not in work so I wont see my work emails today - if youre emailling me use pm here or my vodafone email address.

Laura - so sorry you had a meltdown - sometimes its good to get it out of your system though. Im really glad your PT was nice to you about it - it helps when you get some empathy from the professionals. I hope you manage to organise your OS appointment the way you need to.
It IS only 5 weeks - thats still early days after the type of reconstruction work you had done. I know its the pits right now but it WILL improve. Do you feel more stable :)

Brianne - its so good to hear your success stories - you DO give hope to us chronic dislocaters!!!
xx
tanya
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: cat on March 14, 2008, 12:51:49 PM
"honey", did you not get the IM I sent?
All is well here, not all better but pretty good considering. The knee yaks and complains but my muscles are stronger. I expect to see a big improvement in femoral pain when hte hardware goes bye byes. Until then the days are getting longer and the daffodils are starting to pop out.  ;D  I'll check base with Miss K about my next apt after Easter. Will you see Dr T again?

I had my last therapy session. Now I have to kick my own b*tt 3 days a week. I should have asked when I get to graduate from having to do that.

I hear you're down to the Breg brace now. You'll be bare legged before long, just in time for shorts weather. You'll have a whole new body to show off with all the weight you've lost. Congrats! Way to go, girl!

Looks like rain today. Best walk the beasties before it's too late,
 ;D ;D
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Brittany0183 on March 14, 2008, 07:35:40 PM
Brianne,
yes, I'm officially 1 week PO now!!  I'm looking forward to my appointment with the OS on Tuesday.  I'm just hoping to get some of the bandages taken off.  I'm so itchy!

Brittany
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 15, 2008, 12:22:38 AM
Honey,

I got your PM, I just wanted to say hi on the diary!  Unless there is a problem I do not have to see Dr T, but I am leaning toward calling for an appointment anyway, just to make sure everything is good.

Tanya,

Looking back I would have sold my house, my car, and gone into debt for life to get my knees fixed by Dr T.  He is really a top notch OS.  If it came to you coming to the US to meet with him, it would be well worth any costs you would have to pay.  He really is an amzing OS.

Laura,

Wow, I thought going to D-town was a pain after my first surgery.  That must be a real pain trying to arrange a flight to GA.  Good luck with that and I will continue to post with my good news.

Brittany,

YAY, you made it past one week.  Is the pain still managable?  And yes, all those bandages itch like crazy.  I was lucky in that my two most recent surgeries I got them taken off before leaving the hospital the next day.

Kirsty,

I hope that things go well from here on out with your scheduling of surgery.  You have had a hard enough time as it was.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 15, 2008, 12:32:49 AM
And for my own knee update.  Just for you Laura...its a happy one.  The knee is feeling really good with the walking.  I went the whole day with out my post-op brace.  It only tried to buckle once.  I am not really limping, but have to walk very slow because I am still weak and very stiff.  I spent the whole day driving to a meeting and then at the meeting and I feel pretty good still. 

The stiffness is going away very quickly because I can bend it all the time.  The swelling is also subsiding a lot which is probably due to being able to move the leg more.  I am not looking forward to PT on Monday because my PT is going to kick my butt.  I was able to manage four SLR's this morning, but it took a long time to do each one of them and after four my leg was ready to quit.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 15, 2008, 02:11:38 AM
Well, I hate to be the bearer of bad news...but...

This is actually about my right knee.  For those of you who remember the fun of my infection 7 weeks ago, my incision has reopened again.  I just got out of the shower and after drying off I looked down at my leg and saw that it was covered in blood.  I did not shave tonight so I knew it was not that.  I cleaned off my leg and saw that the blood was coming from my right tibia incision, in the exact same place that started giving me trouble with the infection.  The opening is very small, but there was a ton of blood coming from it.  At this point there should not be this problem.  I am not sure what to do because I went to my OS in D-town for the infection and he was the one that treated it, but he is out til May.  The infection stemmed from my hardware but when it looked like things had cleared up my OS decided to not remove the bad hardware.  Hmmm...

I am kind of concerned because there should be no reason for my incision to pop open at this point.  Its been closed for 6 weeks since the infection and its been 12 weeks since surgery.

Hopefully this is just a fluke.

The left knee is still great!  :)

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on March 15, 2008, 02:26:24 AM
I wanted to ask what makes your SLR's so hard.  Is it your muscle weakness?  Is that it?  Or is there pain somewhere else? 

I am so sorry to hear about your right incision opening again some.  I hope to goodness you are okay.  Keep us posted. 

Farrah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on March 15, 2008, 04:25:34 AM
Brianne....That is really freaky about that incision opening up.  What do you mean by bad hardware in there?  I would be concerned for sure and call someone at the office that treated you before. Have them pull your records to read about it.......yikes.  Did they culture the infection before??   It really shouldnt open up like that for no reason.....are you sure you didnt hit it on anything????
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: lilrosie06 on March 15, 2008, 05:03:01 AM
Brianne...I think Id go get it checked out at the E.R.?? Good luck...

DONNA
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on March 15, 2008, 12:10:17 PM
Brianne,
go get that incision checked out at ER - it should not be opening this far along. Have you any swelling or pain under the incision? You need to get it looked at, you cant have an open incision - it could get infected again?
Im really glad your lefty is progressing well.

Thanks for the Dr T advice, Ill see what my own OS has to say in May and then start making some decisions.
xx
tanya
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 15, 2008, 12:13:37 PM
As far as I know I did not hit it on anything.  I was just getting out of the shower and looked down and bam, there was a ton of blood.  I had not shaved so I know its not a razor knick.  My OS in D-town treated the infection 6 weeks ago which he said stems from one of my screws.  He has mentioned removing the screw if the infection did not go away or it came back.  That OS is out of his office until May.  Hmmm....  His nurse is still in the office so if I need to I will call and talk to her.  She could probably fax something to my local OS if needed.  I am hoping it will clear up on its own or that the opening was a fluke.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on March 15, 2008, 12:21:09 PM
Call the nurse and report it. Even if its nothing youre best to tell someone so that if it does turn out to be something they are prepared.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 15, 2008, 12:27:41 PM
Tanya,

Thats what I am thinking.  I am better to call Dr T's nurse and make sure she knows about it then to wait until its a bigger problem.

The opening is very small, but at this point there should be no openings and so anything is going to be a concern to me.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on March 15, 2008, 01:11:44 PM
Sometimes people have infections and they go away on the surface..but they are still there underneath.......eventually..the infection grows and wants out....so....try NOT to close that wound up.....I would keep it clean...but wouldnt encourage closure...dont cover it up with any antibiotic cream or anything.....whatever is in there needs OUT......so...you probably need some oral antibiotics...I would for sure call your local doc on call this weekend and let them know about your infection before.......SERIOUSLY....so it doesnt get in the joint capsule etc.....you might want to start some extra Vitamin C to help your body fight off in case it is infection.......doesnt have to have pus or anything at first...........ok...thats my nurse lecture.......dont freak out....catching something early is good.....

ANY warmth to the knee???   Call the on call doctor today!!!

do you know what organism was growing in the knee before??

Laura
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on March 15, 2008, 02:38:56 PM
Brianne,
I agree with Laura, you cant just hope itll go away, the reason there was a ton of blood is that it wanted out.
Can you go to a local doctor even just to get anti biotics?
xx
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 15, 2008, 06:46:49 PM
If it gets suddenly worse before Monday then I will call my OS's on-call service or go to an ER, but so far it doesn't look any worse than last night.  If it were not so complicated with the OS who treated the infection being out of his office then this would be a little easier.

Even if it looks better on Monday I am still going to call Dr T's office...just be be on the safe side.

Laura,

They took a culture last time and they could tell that it was positive for an infection, but we never got conclusive results on what the infection was.  The second antibiotic seemed to make it clear up last time.  The part that opened is the exact same area that opened last time, though not as big as last time.  So...we'll just see how it looks tomorrow.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on March 16, 2008, 04:52:56 AM
I hope your infection gets better quickly!  At least you don't have to worry about it happening before a surgery like last time.   Although with your OS's absence, it is still complex situation.  Good luck!

Farrah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on March 16, 2008, 11:05:20 AM
Hi Brianne,

I'd definitely contact Dr T's nurse. They should be able to advise on the best thing to do.

Had a lovely weekend in Sydney. I went up for a friend's wedding and stayed with my cousin. She has a two and a half year old boy and is absolutely gorgeous.

I heard back from the insurance company and should have a decision about my surgery after the 3rd of April. That is just before I get back from holiday. So, hopefully I'll be able to book the surgery once I am back from holidays.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on March 16, 2008, 03:02:51 PM
That is great news on hearing from the insurance company.

Brianne.....hope you are well. Dont forget to call them in the morning even if your hole closes up. :-)
freaky!

:-)
Laura
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 17, 2008, 01:33:52 AM
And then there were two.  I now have two holes.  They are not as big or deep as the first time, but they are there and they should not be.   I  have a little bit of redness and what kind of looks like skin irration on the sides of my leg.  There is not any heat...or very little, I cannot tell.  There was some drainage today, but again not much.

I will be making some phone calls first thing tomorrow.

Now I wonder if it is possible for an infection to lie dormant for 7 weeks and then pop back up?  I had an infection seven weeks ago but it looked like it had cleared up and was not longer an issue.

This is just weird.  I am sick of it too.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: *Margaret on March 17, 2008, 01:46:55 AM
hang in there buddy. you will get the figured out. let me know tomorrow whats going on.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on March 17, 2008, 02:20:19 AM
Yes....Infections can lay dormant.  Trust me.......It happens.....hope they really listen to you......make sure they know about the hole last time...Im sure they will......good luck. let us know.  I would ask them to culture it for you again....if you have a resistent strain of bacteria then you might need a better/ longer antibiotic.

Laura
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on March 17, 2008, 11:53:11 AM
yes infections can stay hidden then decide to pop back up again when you least expect.

that redness is definitely infection. can you phone today? you need to get this looked at - that wound wont heal properly unless you get that infection cleared, laura is right, get them to culture it and fight it with the best anti biotic they got.

hey though - its a bummer and an irritation, but they can deal with infection, so dont worry too much - you just need to get it addressed before it starts being too painful for you.


Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 17, 2008, 08:32:18 PM
Oh wow, I have had a frustrating day.  It started by calling to leave a message to have my OS's nurse call me tomorrow about my incision reopening.  Then I went to PT and I figured I would get it taken care of there.  I requested that I wanted to have my local Os look at it.  Well she tried to tell me that it was nothing to worry about.  She did take a picture of it and go next door to show a nurse to see if my local OS should look at it.   She could not have been gone more than 30 seconds and she came back and said "okay, the nurse said its nothing to worry about, just keep it clean and put bandaids on it til it closes back up."  I was furious, because at 3 months after surgery there should be nothing happening to my incision!  So I walked out of PT.  I got my purse and coat and told them I was leaving.

I called my OS's office in Detroit again to see if there was anyone in the office who I could speak to about this.  My OS's nurse was in at the moment.  She agreed that there is cause for concern because by 3 months PO there should be nothing going on with the incision.  It turns out that although my OS had surgery about a month ago, he is coming in for a few hours a week to see paitents that he feels cannot wait until May.  So, I am driving over to Detroit tomorrow to have my OS look at it.

I am so frustrated about what happened at PT.  With the past infection I feel that this should be taken a little more seriously then my PT did.  Although I feel relieved that it will be looked at tomorrow by my OS.  I just don't think a PT and a nurse are qualified to make that kind of call about my incision when we know I have had an infection before.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on March 17, 2008, 09:41:29 PM
TOTALLY agree!!!!!!!!!!!!!!!

That is NUTS!  You know..I once called my OS and asked a question...the SECRETARY answered my queston...she didnt even get off the phone...so, Im thinking...well...Im a nurse...you are the secretary....I guess I will trust ME and not you..I was so pissed.

Your local OS would be pissed too Im sure.....does your PT know you were mad? took a picture and carried it over..that is crazy!!!!

glad you are going to Detroit to your doctor!

Laura
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 17, 2008, 09:59:19 PM
Laura,

yes, I think that was totally nuts.  I will make sure I let my OS know at some point.  I was just so mad because a PT and a nurse should not be the ones making that call about my incision.  I understand that they have a lot of paitents and such, but they need to do a better job of sorting through things.  My PT is aware that I was mad.  She said something to me on my way out about if it was not better by Wednesday then they would make sure my local OS saw me.  Normally that would be good enough for me, but not under these circumstances. 

A secretary, that is even worse than a nurse and a PT trying to make that judgement call.

I am very relieved to be seeing my OS tomorrow.  There are now two larger holes and I was looking at it under bright lights about an hour ago and all of the skin around the hole looks to be dead...like it would just peel off if I tried...which I obviously won't.

So, I'll let everyone know how tomorrow goes.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: cat on March 17, 2008, 10:24:20 PM
Quote
all of the skin around the hole looks to be dead
gross. Glad you're getting that puppy looked at. Drive safely!
 ;D ;D
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 17, 2008, 10:43:29 PM
Cat,

Yes, I am thinking it is kind of gross.  I am not looking forward to driving to Detroit again, but it will be worth it.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on March 18, 2008, 12:04:24 AM
Brianne....just for some perspective....I have a masters in nursing....I have a pregnant patient who is a MD  Dermatologist ....she has a funny thing growing on her skin....so...she and I  BOTH  STILL wanted another opinion...we called in the Maternal Fetal Medicine doctor to look at it.  It is CRAZY that with your 3 month post op status  and MOSTLY your history of infection they ignored it......I would be livid.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on March 18, 2008, 12:22:28 AM
Hi Brianne,

I can't believe you had to put up with that rubbish. You'd think that since you had an infection before that they'd be more cautious.

Fortunately when I had an infection with my last operation I saw one of my OSs colleagues as he was away and when he got back from holidays I saw him the next day.

Good luck in seeing you OS. I hope everything is ok.  :D
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on March 18, 2008, 02:22:18 AM
Good luck tomorrow!  I will be thinking about you.  Have a safe drive!

Farrah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on March 18, 2008, 09:17:40 AM
good luck brianne - so glad your getting it sorted - forget the PT and nurse, the OS needs to see it!
xx
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on March 18, 2008, 08:25:49 PM
Brianne!!!
ive already told you about getting addicted to surgery!!! just kidding :)
Great news its not an infection - thank god for that.
Not great news youve to get the screws out so soon. Is there union? I guess he wouldnt be taking them out if it wasnt the right thing to do. Dont worry about denting your rehab - sure you had lefty done much earlier than you expected so you got extra time there.

you poor thing, no wonder youve been tired - and no surprise you just thought it was from surgery - anyone would!

its a relief its not an infection and that they know exactly what it is though.

i got some good news today - rescheduled my OS appointment to April 4th, have physio appointment on March 31st - she is gonna send in report in time for the 4th. She even rang me this evening (never rang me before) and was SO nice and said she knows ive done all i can and that she will be telling my OS that she has done what she can with me and that ive been a 'good girl' (her words) and done all my exercises. So I seem to be a star pupil :) But the main thing is that the OS really respects her opinion so if she says physio isnt fixing me - he will listen. Im so glad she is getting behind me on this.
so im scared and excited at the same time about the next OS visit.
xx
tanya
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: GemmaLeigh on March 18, 2008, 08:31:54 PM
Brianne i'm so glad that they found out what was the problem. I felt so bad for you when it became apparent that you weren't getting any better. I mean you're a week ahead of me and i'm soon to have my brace off and i'm working and you're going in for more surgery!!! You really are a poor thing. Hopefully you'll really pick up after you have the screws out. It would be even better if you feel a lot brighter afterwards. If you're mood picks up I think it will help you progress.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on March 18, 2008, 09:27:27 PM
Good luck with all of it!

Farrah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on March 19, 2008, 01:16:57 AM
Oh Brianne....yikes. I have read about rejection of screws etc.  You know I had a surgery in my jaw when I was in graduate school. They used some donor bone material....well...about 3-4 weeks after my sugery I got a wierd bump in the roof of my mouth....so I was in Austn, my doctor 3 hours north in Dallas...so I just watched it.....about a week later the thing busted open...my body essentially formed a capsule around the donor material and just ejected it through my skin.....yikes.  I guess your body is doing the same thing but that screw is attached.....so...it will be good to get it out.   What did he say you will do then?  Will you need a brace for a long time or something to keep it stable?   Thank God your doctor was there.........what will you tell the silly PT and nurse with the photo of your knee??????   DUH......

Good for you for going to Detroit..I know you are exhausted.......Im sure you are sad and overwhelmed.....hang in there.

Laura
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 19, 2008, 03:06:31 AM
Gemma,

I think I am actually on a strange kind of cloud nine.  Yes I have had a few setbacks with this right knee and such, but its not an infection and they are going to be able to fix it!  Plus, ever since my first TTT I have been complaining about how much I hated my screws.   I was prepared to deal with the screws for 12 months because I thought I had no choice.  They drive me crazy and I am getting them out. 

Tanya,

Yes, I am addicted to surgery! lol  I swore I woulod have no more surgery ever again, but for these screws I will make an exception.

Awesome that you got your OS appointment moved up.  It sounds like you have a good plan to make sure that your problem gets fixed.  Good luck...its not too far away!

Laura,

Yes, basically my body is trying to eject the screws but since there is a tibia attached to them my body isn't having much luck.  So...I am excited to get these darn things out. 

We'll probably take my left screws out soon as well so that my body can be free of the metal that it apparently does not like.  We'll see how things go with the right knee.

Yeah, and for the silly PT and nurse with the photo...I will be nice. 

In a strange way I am happy.  I have not been crazy all this time as I was beginning to think that maybe I was.  I am not looking forward to the screw removal because it is surgery...albeit small surgery...but it is surgery none the less.  I am sick of surgery!

Brianne


 
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on March 19, 2008, 07:08:29 AM
Brianne, I am so glad that you have such a positive attitude with all of this.  I wish I could have some of it!!  It is 3am here, and I woke up knowing I wouldn't be able to fall back asleep.  So I came on the computer thinking maybe this would make me tired.  It could be time for more meds, but I don't want to max out my 4000mg of tylenol with the 500mg of acetometophene in the hydrocodone.  I take exactly that much every day.  So I will wait for 9am like always.  Usually the hydrocodone at night helps through the next morning anyway.  Anyway, my attitude has been very sucky and I wish I could find enough positives to make it change.  My PT keeps telling me think of the positives, but I just seriously can't think of any except that at least I have control over my muscles and I can move my leg if my brain tells it to no matter how bad it hurts.  My PT exercises that used to not hurt are now hurting...so how I am suppose to think positive.  The ones she knows don't hurt are the ones that I don't get much of a burn out of.  So how I am I suppose to get stronger?  Anyway, I told her I am frustrated on Monday, but she just said I am doing fine being only at 10 weeks, but I keep thinking that if I was doing so well, why am I taking so much medication and having to use my TENS all the time now?  And why am I still on 2 crutches when my protocol said to get off at about 6 weeks!  Anyway sorry to go off, my body is tired right now, but my eyes won't shut!  I will go back to bed and try again.  Have a great day and keep us posted as to when your next surgery is.  Is it one that is pretty easy to recovery from??  Like a 1-2 weeks on crutches?  or what?  Did your OS tell you?  Will the surgery be with your OS? 

Farrah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on March 19, 2008, 09:08:56 AM
Hi guys,
Brianne - that is such a great attitude you have there, any chance you could bottle it and sell it on ebay? Id like an advance order of 50 bottles of good attitude please!
Thats crazy about the screws - and even crazier that you werent being crazy!!! you KNOW when something isnt right - its your body. I wouldnt imagine the screw removal op is too drastic? At least they arent gonna mess around with ligaments and tendons - just get those screws out of the bone and let it heal up itself - thank god the body likes growing bone!!! Id offer some of my extra freakish bone but I dunno if your body would accept that either!!
Any news on the date of removal yet?

Farrah - its so normal to get down and not be able to see the positives when youre dealing with pain and weary of having to do the exercises that hurt and feel like youre getting nowhere - totally normal!! You said some really good stuff in your last post there, that you now have control over muscles and your brain is doing its job and talking to the muscles - even if it hurts. Probably the exercises that didnt hurt that hurt now are because your brain IS talking now so the muscles are doing their job while before they were asleep. You are doing fine for 10 weeks. I was on crutches for months after my old surgery, and I thought I was getting nowhere for a long time too but you do get places, its just that progress is too slow to be measured in days or weeks even, you gotta measure it by the month sometimes. Protocols are going on an average - not an individual and we all heal differently. Try not to worry, you are doing fine, and you will make more improvement - it just takes time.

Im mixed parts dread/nerves/excitement about my next OS appointment - just so want him to decide to intervene surgically - even though i hate the thoughts of another surgery - i hate the thoughts of always dislocating so easily worse so its the lesser of two evils to have it repaired!!
xx
Tanya

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on March 19, 2008, 11:28:37 AM
Hi Brianne,

I am so relieved for you that you know what's wrong now. I bet the nurse and your PT will feel bad. Wait till your local OS finds out about it.

Today I got a date for my surgery. It will be the 22nd of May. My OS is away for most of April and I wanted to have the same anaesthetist last time and my own sports physician assisting. It will only be about 6 weeks when I come back from holidays.

I have been feeling pretty sick in the last day or so due to all the anti inflammatories and pain killers I've been taking. Waiting on a message back from my knee surgeon's PA. Hopefully they'll ring tomorrow. My sports physician is away this week, so can't ask him.

Have a great Easter !!!!  :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on March 19, 2008, 12:10:09 PM
Tanya, thanks so much for the positive comments!!  Sometimes I really need that!! 
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on March 19, 2008, 12:51:23 PM
no worries Farrah - I understand how emotionally difficult it is - the frustration has you thinking youd be better off hacking off your leg!!!
but i promise you - one of two things happens - you either get better or you dont - and if you dont they docs get involved until you do!!!
so either way you get fixed!
It can take literally years to get over a knee surgery - Ive posted here before that it took me more than 2 years last time, and the first 6 months was the most difficult - after that it was more of a nuisance than anything. In the initial period youre expecting so much progress and its a big shock that its so slow. When you do make progress it tends to come in little leaps and bounds - then a plateau for ages again.
The important thing is that you ARe making improvement - even if its slow - its in the right direction!!
xx
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 19, 2008, 02:58:59 PM
Okay, I cannot type long...gotta get back to work!  But my screw removal is going to be Monday the 24th of March in Detroit.

Fun!  I am getting unscrewed!

 ;D
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on March 19, 2008, 03:10:22 PM
ohmygod!!! thats like next monday!!!

is it better to get screwed or unscrewed????? sorry sorry i shouldnt be making dirty jokes at a time like this!!!

will talk to you loooong before that Brianne - glad its been scheduled so quick.
xx
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: sailchic on March 19, 2008, 03:49:03 PM
On the plus side it's two more screws to add to your sculpture :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 19, 2008, 03:52:43 PM
Actually, its three!  I'll be up to 7 screws out and only three more left to remove.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on March 19, 2008, 04:14:29 PM
Brianne...that is wonderful news!   Great to get them out so fast and glad that he isnt that worried about the union right now......Yippeee.....at least you get to celebrate Easter first.... Monday will be here before you know it...then you get to keep moving forward!

Congrats!
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 19, 2008, 05:55:42 PM
Ugh, I am so sick of everyones opinions on my early screw removal.  My dad is freaking out about it, my mom is freaking out about it, my co-workers are freaking out about it, my PT was freaking out about it, and even my local OS said that he thinks its way to soon to remove the screws.  If my OS, who is the most knowledgable about this out of everyone, says its okay then I am going to trust him. 

Yes, 3 months seems very soon to take the screws out, but if my OS says its okay then I think he can be trusted.  Everyone else freaking out it making me start to get nervous and I know there is no reason to be nervous.

Done ranting!

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: sailchic on March 19, 2008, 06:02:08 PM
So here's something my OS said at my last appointment that might make you feel a a little better... you know that my graft site hasn't healed at all and we were talking about my screws... he said that most people who come in with broken screws, even really early don't know it because the graft holds itself in place pretty quickly.  He even said that even without screws in mine, which is way less healed than yours, the bone chunk would hold on because of the scar tissue that forms in between.

Like you said, your OS thinks it's the best thing... then do it.  So you might have to skip the gym for a little while but that's totally worth getting rid of what's been causing you so much grief.   

so screw everyone who's giving you problems  ;)

Liz
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on March 19, 2008, 06:22:35 PM
Brianne, I am happy you are getting fixed again!  I have one question...how did they know so quickly that it was from an allergic reaction rather than an infection?  Just curious...thanks!

Farrah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: KW on March 19, 2008, 07:33:51 PM
Brianne, 

As you know, I am a PRIME EXAMPLE that even with a graft that is completely unhealed (like it wiggled when my OS touched it before removing it at revision time) you will be fine without the screws and the graft WILL NOT GO ANYWHERE.  Actually, the way the bone is cut the graft sits against a small lip of bone at the top preventing the graft from sliding up when your quads contract.  I walked around with out my screws for weeks and was fine...graft stayed right where it should have. 

So don't listen to anyone but Dr. T....If he thinks it is best to have the screws taken out then go for it. 

Later Chick,
Karen
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 19, 2008, 07:40:09 PM
Karen,

I know I will be fine, but when EVERYONE is freaking out it starts to get to me.  Especially when my PT and all the other PT's freak out...its kind of un-nerving.  But Dr T is the expert and so I am trusting him on this one.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on March 19, 2008, 07:51:50 PM
Brianne....keep in mind that your PT who is freaking out didnt seem to know what the holes were in your knee and just took a picture of them......sooooo...I wouldnt use the PT as the best judge of what is right for you...I would use the surgeon...........He knows...trust that.  You know...we ALL know that our families have NOOOOOOOOOOOOOOOOOOOOO clue what is going on with our knees.........so, you just have to ignore them. Sometimes I actually just stop answering the phone until they leave me alone.......

screws rejecting in your body and eating a hole to try to get out???  OR.....trust your OS and take it easy.....I would take option number 2 any day!!!!

Hang in there.
Laura
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on March 19, 2008, 07:53:59 PM
Brianne, I am happy you are getting fixed again!  I have one question...how did they know so quickly that it was from an allergic reaction rather than an infection?  Just curious...thanks!

Farrah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: KW on March 19, 2008, 07:57:49 PM
Laura/Brianne,

I was just thinking about the whole PT not thinking anything was wrong thing too.......

Great Minds  ;D ;D
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on March 19, 2008, 08:05:23 PM
PTs know what muscles are and what they do and how to make them strong - they dont know jack about surgical incisions, infections, allergies etc....

well Brianne - at least youre not going screwy.......
xx
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 19, 2008, 08:34:05 PM
Farrah,

My Os determine this based on the return of the holes in my incision, the pain and tenderness around the screw site, and x-rays with a special dye that showed inflammation above the screws.

Laura/Karen/Tanya,

I am definately going to trust my OS over a PT when it comes to this.  I have just had a crappy day and all these people freaking out is not helping me one bit!  Grrrr...I do not want to go to class tonight but I have no choice! 

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on March 19, 2008, 09:02:00 PM
Thanks for answering my question.  Was last time this happened the same thing?  Or was it an infection that time?

Going to class will get your mind off things.  Have a good night!

Farrah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: trish85 on March 19, 2008, 10:52:22 PM
Hi
3 monthes does seem a little soon to be getting unscrewed.  but your right trust your OS over anyone else. 

and I never thought I would say this but I'm kinda jealous I wish I coulld go to class tonight and get my mind off of my knee.
 :)
trish
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 20, 2008, 03:07:39 AM


is it better to get screwed or unscrewed????? sorry sorry i shouldnt be making dirty jokes at a time like this!!!


HAHA, I think its better to get unscrewed!  I hate the screws so much!
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 20, 2008, 03:13:28 AM
Okay, so a quick update on my left knee...my right seems to be taking all of the attention these days!

It hurts to do any kind of straightening in PT.  I get this sharp pain at the base of my quads first and then just as I go to full extension I get super sharp pain in my MPFL area.  This is the same when I try to do SLR's.  I can deal with the pain, but it is quite annoying sometimes and the pain does get bothersome after a while.  My PT has suggested I take something for pain right before PT to make it less painful.  I hate pain meds and so I am still not sure about it.  We'll see how it goes the next time I go into PT.  The pain is nothing to be concerned about at this point, but my PT did say that taking pain meds would make PT less painful.  I am thinking no on the pain meds, but we'll see.

Brianne

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on March 20, 2008, 08:59:46 AM
Hi Brianne,
hope your right knee isnt hurting too much with the rejection going on - can you post a pic of how that looks for us?

Lefty and straightening - well the tissues are gonna be tender so when you contract the quads its gonna be thinking 'no no no I dont like that - send pain'. But it should settle down as healing continues? If your PT is unconcerned then thats a good thing. You could try out the pain meds for a couple of sessions and see how you go? Its not something Id be too keen on either but if it helps you get a start on things maybe its worth a shot?

Im just in that no mans land of waiting to see what the OS says - my brain has come to the acceptance that nothing i do stabilises my knee so Im just trying to get through the days til the appointment.
xx
tanya
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on March 20, 2008, 10:30:41 AM
Hi Brianne,

Don't worry about what other people think. Your OS knows what he's doing. Good luck with the removal of the screws. Hope it goes well. I'll be thinking of you.

Have a nice Easter break.

I got a call from my OSs rooms. He said to stop taking my anti-inflammatories as that's probably what's making me feel sick. I'll probably increase the other pain killers.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 21, 2008, 02:53:28 PM
Okay, here are two photos of what my right leg looks like: (I am making them links so if you are not into things like this you won't have to see it)

http://s56.photobucket.com/albums/g170/ennairb82/?action=view&current=DSC_0014.jpg  This was two days ago.

http://s56.photobucket.com/albums/g170/ennairb82/?action=view&current=DSC01124.jpg  This is the worst it looked in January.  its not as bad right now, but this was also after nearly two weeks.

Still having trouble fully extending my left leg for SLR's and short arc quads, but its getting a little bit better.  My left leg is actually feeling pretty good overall.  I took my dog for a walk yesterday and it felt good.  We went about a half mile, I could have gone longer but I did not want to push my luck.

Now today I am going to go out to lunch with my mom and spend the day running errands with her.  YAY for having good Friday off of work! :)   I also get Monday off work but I am getting unscrewed and so it won't be a very fun day.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on March 21, 2008, 03:31:03 PM
hey brianne,
thanks for those pics - maybe next pic put one of your face seeing as ive been following your posts so many months now and still dont even know what you look like!!!!

the way your leg looks now is not like an infection - i cant believe that its opening up to reject the screws - the body is weeeeeird!!!

im glad Lefty is improving a bit, just takes time to heal up and get improvement. im so so glad that you have two new knees.

ive had a horrible morning, another row with my boyfriend over my knee and my inability to walk at all. its kicking off between us because im so stressed out and upset so much. im also in such fear the the OS wont do anything for me. i think this is the lowest that ive ever been about it, im actually starting to wonder whats the point of going on at all because i dont get any better no matter what i do.

sorry for dumping my depression on you - im not even looking for kind words - i just want a way forward out of this mess.
xx
tanya
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: GemmaLeigh on March 21, 2008, 05:47:34 PM
Brianne... that looks really weird!!! But i was inspecting the picture and the scar from your TTT looks really good. Mine's very red and raised, yours looks a bit more settled, other than the opening from your screw obviously.

Tanya... I am really sorry you are so low. It's awful when you're in that frame of mind where you don't think it's ever going to get better and nobody can do anything for you. There really is no point fretting about it until you have actually seen your OS, you're just making yourself more miserable... I kno because i've done it!!! Try to talk to your boyfriend about your fears of not getting better and ask him to put himself in your shoes. It's not easy for anyone to understand and we all know that.

xxx
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on March 21, 2008, 06:52:34 PM
the scar DOES look really good except for the open parts. gemma you should post a pic of yours and we can all look at it too :)

yeah i know i shouldnt be fretting so much - im just totally in the pits of being sick of it. fergal is usually very good but lately ive been so down and his nan is in hospital and we just havent had anything good happen in ages cos i can never do anything fun and he must be bored, and sick of me not able to do anything. itd be hard to keep coming home to someone who is effectively disabled and in pain at the best of times, but when that person is crying and upset and lost in being depressed too it must be extra hard. he wanted me to  tell my GP so she could give me anti depressants but i was just going 'i wouldnt be like this if my knee was fixed'.

even today during all the upset i still did all my physio even though its not changing anything. so at least im still motivated in that direction.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: cat on March 21, 2008, 08:49:46 PM
I was thinking the same thing. Your TTT scar looks really good- better than mine and WAY better than my femoral osteotomy scar. That looks horrid.
Benny boy sure is a cutie pie. Who are his playmates/ sleepmates?
 ;D ;D

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on March 21, 2008, 09:24:05 PM
After looking at your scar pictures and your "holes", I saw your pet pictures.  You have cute pets!!  You mentioned a few weeks ago that you wanted a new puppy once your surgeries were all over.  Are you still thinking about that?  I wish I could get one!!  I also finally got to put a face with a name on here!  I am at home "sick" from coaching gymnastics.  I decided to take a rest night instead of coaching.  I have nothing to do all weekend except work on my March of Dimes jewelry (sitting at my dining table), working a few hours at the firm, and going to my parents house on Sunday night for a few hours to rest some more.  So I am finally resting.  I have taken every spare moment to rest recently...even at work I stopped getting out of my desk unless it was to use the bathroom or get water or go to lunch....rest, rest, rest....still pain, pain, pain.

Farrah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on March 21, 2008, 09:44:37 PM
Brianne...that is crazy how your reacton is happening.......so interesting.

Your animals are so freaking cute!  We have three cats and a dog ......two of our cats look like yours!   I have the same "gallery" of knee pics/ bruises etc too....very interesting to go back and look as the leg changes.

Hope you enjoy your weekend before your screws come out!
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on March 22, 2008, 01:03:38 PM
the animals are SOOOOOOOOOOO cute!!! i love them!! I hadnt realised that I could see other pics there - awww!!
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 23, 2008, 01:31:15 AM
Not all the animals are mine!  I have two cats and one dog. 

Luci: http://www.facebook.com/photo.php?pid=44134&l=d388e&id=513106360

Basil: http://www.facebook.com/photo.php?pid=44136&l=6f24e&id=513106360

Benny: http://www.facebook.com/photo.php?pid=739803&l=d5540&id=513106360

As for the pictures of me, I have lost 40 pounds since those pictures and so I look a lot better than I did in those photos! :)

Laura, It is the weirdest thing that is happening with my right leg.  Even my OS said he had never seen anything like it.  So I am glad to be having the screws out on Monday.  I am not nervous, its just a minor thing, but I am so sick of hospitals and surgeries of any kind that I am not looking forward to it at all.

Farrah, I am still interested in another dog, but until I am really past all of this knee stuff I do not want to have to worry about training a new dog.  Then I work 60+ hour weeks in the summer and so it would be hard to get a new dog then.  I am targeting this fall to get a new dog.  Of course if I find one before that...I cannot turn it down!  I read about your dog in your diary, so glad Marshall is okay.  Benny escaped during my surgery in December and my mom was freaking out about it while I was in surgery.  He was found just as I was in recovery which is good because my mom was dreading having to tell me that Benny got lost.  Then Benny escaped 5 days after that surgery and I was freaking out because I could not do anything to go find him!

Cat, My right tibia scar looks very faded because of all the other redness.  When there are not holes in it the scar is a lot more red looking.  Benny is a stinker!  His playmates are Ricki and Harri, also cuties.

Ricki: http://www.facebook.com/photo.php?pid=44146&l=107f2&id=513106360

Harri and Benny: http://www.facebook.com/photo.php?pid=267558&l=b219c&id=513106360

Ricki is a girl.  Ricki and Benny are Cairn Terriers and Harri is a West Highland White Terrier.  Both Ricki and Harri are my mom's dogs.

Tanya, I was a nervous wreck before my appointment with Dr T.  Its so natural to be nervous.  Good thing you got it moved up because there is no reason to wait any longer than you have to.  Hopefully your OS will have a plan and if not then its time to seek some more opinions.  it sounds like you have done your research about other Docs to see.  As far as stress, I think I felt my most depressed and stressed out in the two months I had to wait for my Dr T appointment.  The worst feeling is not knowing what is going on and wondering.  I broke up with my boyfriend because I just could not take the stress of my knees last summer.

Gemma, My MPFL scars are very red and raised and my tibia scars are not.  Its weird how scars heal!  I am going to have more scars from the screw removal because my OS is only going to open the skin right above the scar and not reopen the entire thing or at least that is the plan.  My knees are going to be so sexy when I am done with all of this.

Brianne 
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on March 23, 2008, 03:04:47 AM
Hey Brianne.....one of my patients right now is a cosmetic dermatologist...I asked her about my scar the other day...I have been putting Mederma and Vitamin E on it....she told me to get Scar Guard...she says it is what all the plastic surgeons used.....

http://www.scarguard.com/   I just got some yesterday.....anyway....we will see if it works.  My friends husband says big scars are sexy. ha ha......right!!!

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on March 23, 2008, 03:06:54 AM
awwww....your pets are so cute!!!!
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on March 23, 2008, 11:45:25 AM
Thanks Brianne, I feel a bit more normal now youve told me you were also a nervous wreck before your Dr T appointment. Im not having an easy time at all right now - im a nervous wreck all the time - im currently worrying about getting through the days til the appointment - let alone the appointment itself!!

About the scars - I never mind about scars on the knees, they make for good party pieces - ill show you mine if you show me yours type thing!!

its only just over a week for me now til the appointments start rolling, physio mon 31st, GP thur 3rd, OS fri 4th. The physio appointment is probably gonna be the easiest cos she has phoned me and knows the situation. Thats really gonna be more about her looking at my leg and talking to me about what she is gonna say to the OS. The GP appointment is gonna be relatively easy too, but my GP is so nice that I end up crying on her so Im a bit worried about that.

I havent been sleeping too well, just stress I guess.

Dont be nervous about getting the screws out - its only minor like you say, i know you are so sick of hospitals etc..but this is only a small job to help you get back on track with your recovery and rehab.
xx
Tanya
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on March 23, 2008, 05:36:31 PM
Brianne...Good luck tomorrow. Your body will be so happy to not have to fight those screws anymore....you will probably heal so much faster with your immunity able to rest some.   Let us know when you are home and safe!

Tanya...good luck to you too. I cry through a lot of appointments too......hard not too when you have so much on your mind....its ok. My patients cry to me ALL the time and I dont think ANYTHING of it...it is normal....I really hope that you get some good answers. You have done your BEST now let the doctors try to help you too. Im glad you are seeiing a good doctor!

Happy Easter to everyone!
Laura
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: GemmaLeigh on March 23, 2008, 05:55:38 PM
Good Luck Brianne, i'm sure you'll be fine and just think... you'll be able to start your proper healing when it's done.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on March 23, 2008, 06:01:32 PM
I cried hard over the phone with the Physicians assistant on Friday!!!  I felt horrible for doing it!!

Good luck tomorrow Brianne!

Tanya, you need to start a diary, so I don't have to go from post to post to read all about you.  :)  I know how you feel so nervous.  When my Sports Med doc sent me to my OS for potential surgery talk, I was nervous the entire 3 weeks that I had to wait!!  It went so well though b/c my OS spent about 1hr with me talking about what he found in my knee and told me all about the surgery.  He never made it clear to me that I could be on crutches for almost 11 weeks!!  I understood that it would be for at least 2 weeks.  Anyway, good luck with your apts!

Farrah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: trish85 on March 24, 2008, 03:40:50 AM
Best of luck tomorroe Brianne.  You'll do fine.

Are they knocking you out for it are just giving you somthing so you don't care and a local?

:) trish
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on March 24, 2008, 10:14:11 AM
Hi Brianne,

Good luck tomorrow. I'm sure you'll do great !!  8)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: cat on March 24, 2008, 12:03:27 PM
Wonder if you'll see the godfather?? Have fun,
 ;D ;D

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Brittany0183 on March 24, 2008, 03:12:55 PM
Godd luck Brianne!!  Hopefully you'll feel so much better once the screws are out and healing will go very quickly!!

Brittany
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 24, 2008, 07:39:21 PM
I am unscrewed.  That was really easy.  I was just given a local and I watched the whole thing on a monitor.  It was quick and the local took care of most of the pain.  There was a bit when the screws first started to come out, but not all that bad.  My Os also reopened the incision where the holes were and closed it up neater so the incision would heal better.  I have hardly any pain and since I only had a local I feel really good.

However, since I have gotten home I see that blood has soaked through all the dressing and onto my pants.  It seems to have stopped, but there is a ton of blood and so I called my OS's office just to be on the safe side.  I am waiting on a call back from his nurse.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: GemmaLeigh on March 24, 2008, 08:06:28 PM
I'm glad that it all went well Brianne, I hope that you start to heal better now :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: lilrosie06 on March 24, 2008, 08:52:28 PM
Glad it all went well, Brianne. See....there is light at the end of this long, ugly tunnel! ;D :D :)

Hang in there....

DONNA
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: cat on March 24, 2008, 11:24:08 PM
You got unscrewed w/ just a local? Whose idea was that? I remember someone telling me they did it that way and it was awful. Glad it went okay for you though. It would be pretty cool to watch. As for the blood, I hear that hardware removal can sometimes produce alot of bleeding. So it's probably nothing to worry about.
 ;D ;D

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: trish85 on March 25, 2008, 01:47:29 AM
I'm glad to hear your unscrewing went well.  during mylast one they just did a local. I wanted to watch but they didn't have a monitor for me. They didn't like it when I tried to sit up to watch.  They gave me happy meds so I wouldn't care.  I was bad when they were unscrewing but besides that I walked out an hour and a half later perfectly fine.  i've also been unscrewed under GA and hated that. I think it was kinda pointless.  All the extra stuff makes things worse.

I hope everything is alright with the bleeding.
:) trish
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on March 25, 2008, 02:13:19 AM
Thats great Brianne.  Hope the bleeding stopped!  Let us know how you are tomorrow!
Laura
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on March 25, 2008, 03:07:59 AM
Hi Brianne,

Glad to hear that it went well.

I wish you a speedy recovery !!!  :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: smkelly4kds on March 25, 2008, 04:17:38 AM
gald to hear you have been unscrewed.  How is the bleeding?  Hope that has stopped completely now.  Get some much needed rest!  Let us know how you are doing.
melissa ;)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on March 25, 2008, 09:16:29 AM
well done Brianne - so glad its done now - hope that bleeding has settled, let us know how youre doing.
xx
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 25, 2008, 02:10:57 PM
The bleeding has stopped for now.  I am very sore today, but its more of soreness around my incisions, probably from all of them ripping open at some point last night.  Fun.  But, the bleeding is stopped for now and so I think we are past that.  There is some soreness in my leg, but nothing I cannot handle.

Trish, I think local is the the way to go for removing TTT screws.  I don't handle medications all that well and the smaller the amount of medication the better.

And, my left incision has decided its time to join in the fun.  It started opening on Sunday night and now I have one hole in my left tibia incision.  Now that we know what is causing it...its not a big of a deal.  I am going to have my left screws removed in the next 6-8 weeks so that we can get rid of them once and for all.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on March 25, 2008, 02:16:45 PM
I just noticed the end of your signature Brianne - You DO need a new hobby!!!

bummer about Lefty opening up - but like you say, its not so scary when you know what the problem is. Do let the relevant people know that the incision is open though. Actually - did you show them that when you were being unscrewed?
xx
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 25, 2008, 02:26:00 PM
Tanya,

Haha, yes I am in need of a new hobby.  Everyone at the Hospital yesterday remembered me which is not a good sign at all.  ::)

Yes, my OS is aware of my left incision opening up and that is why he told me to call his office today to schedule the left screw removal in the next 6-8 weeks.  It sure will be nice to be totally free of screws.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on March 25, 2008, 02:28:30 PM
ah thats great! so just keep the incision covered up and then youll be 'screwless' soon enough!!

yeah its a bit worrying when all the medical people remember you - not quite the kind of celebrity we have in mind for you dear Brianne!!!!
xx
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on March 25, 2008, 05:02:05 PM
One year I got 3 injections in my back in just a few months time.  All the hospital staff remembered me...especially this one really nice nurse who felt horrible for me b/c I was so young to have that many injections for back pain. 
Anyway, you can design jewelry for a new hobby to get past having knee surgeries!!  That is so much fun!!

Farrah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on March 26, 2008, 01:08:31 AM
wow...well getting all the screws out will be great.  How did you open up your sutures last night???
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: trish85 on March 26, 2008, 01:14:54 AM
I just remembered that when I had my last screw removed I opened up my incision too.  But it was two days later and it was becasue I was playing basketball with my five year old cousin at the time.  Ya promise me you won't do that.
:) trish
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 26, 2008, 01:17:44 AM
Laura,

My incisions just started bleeding mass amounts again, I have no idea how or why.  I cleaned it up, apllied pressure, and taped myself back together again.  It made the bleeding stop.  This lower part of my incision where the holes are is just not going to give up without a fight.

Trish,

I promise I will not play any basketball tomorrow.  Apparently hardware removal can cause a bit of bleeding.  It seems under control now.

Brianne

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on March 26, 2008, 01:23:25 AM
Can you get it steri stripped closed?  They sell those strips at pharmacies...unless they want it to close from the inside out.

Are you on advil or aspirin? Will make you bleed lots.  I cut my leg shaving and I looked like I was bleedng to death..it was crazy....

hope it stops!!!! ???
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on March 26, 2008, 01:27:47 AM
THanks for your caring words on my post earlier today!!  Good luck with your screw removal! 

Farrah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 26, 2008, 02:53:42 AM
Laura,

No pharmacy in my area has steri strips.  I have it closed with regular tape which my OS's office said is okay for now.  I have PT tomorrow and so I am supposed to have my PT look at it and give her opinion on how it looks.  Hmmm, maybe if I am lucky she will take a picture of it.  I am keeping a very close eye on it and I will bang on my local OS's office door if it looks like it is giving me any trouble at all.


Exciting news: I am now officially a size 6.  My size 8 jeans are just too big now!  This makes me very happy!

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on March 26, 2008, 09:05:05 AM
Brianne,
If you can clean up the open incisions and tape them and control the bleeding dont worry too much - you have to remember that the sides of those open holes have been open for a while and arent ready to 'stick' together to close again too easily, but you will encourage it along by taping them closed. Sometimes also what looks like a lot of blood is really not that much.

In saying that - definitely get the physio to have a look - tell her to have camera at the ready :)

The only thing is - any local doc would be able to patch them up if you werent able to keep them closed - so at least theres that.

wow - youll have to post a new photo of yourself so we can all admire your new slender figure!!! Whats a size 6 in European sizes?

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 26, 2008, 01:13:16 PM
Tanya,

The incision is pretty much open and has been bleeding through all the tape this morning.  I have PT in about an hour so I will deal with it then.  I do not think it is actually all that much blood, but the tape I have is not the stickiest tape and so I think it looses its stick really easily.  Then again, two days later, I really wish that there was not any blood coming out of the incision.  It takes about a half hour until I have to change the tape.  My OS cut out the 'bad parts' of the incision where the holes were and so this skin should want to stick together.  I think steri strips will work better in terms of being sticky enough to keep the incision more closed.

I do not know what size 6 is in Euro sizes...but I am just super excited about it!

As for my left knee...  I still have a lot of quad pain when I try to contract to do a SLR, but its slowly getting better as the days go by.  My knee has buckled on me several times in the past few days.  Its not the same buckling that I get when I first start walking without a brace on, thats more of a hyperextending.  Its like my whole knee wants to go out and it causes me to almost fall or even sometimes actually fall.  It happens about 5 times a day.  I am guessing that my weak quads are still the culprit in this.  My patella is staying put, and so thats good.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on March 26, 2008, 01:59:32 PM
Brianne - thats weak quads FOR SURE!!!!!!!!!!!!!!!!!!! so dont stress it.

I was wondering if theyd cut out the bad parts actually - maybe you should go to a local doc of some sort and just get the wound closed up and sealed so that it lasts a few days? See what the physio says also.

I think size 6 american is like super sexy slim in european sizes - you werent even big in the pic i saw of you so if youve slimmed down from just that then you must be practically a super model!!!

About your pic - i showed my boyfriend and he said aloud something Id immediately thought 'doesnt she have lovely clear skin and american 'clean living' looks'??. You do - you have that lovely healthy glow.

Oh - and great knees!!
xx
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 26, 2008, 03:10:32 PM
Tanya,

I am sure that my weak quads are the culprit of my knee wanting to give out.  My quads have been doing some funky things with this left TTT revision and MPFL recon so it does not surprise me at all.

I am going to see what my PT says about my incision.  I know its only been two days, but it should al least be showing signs of 'sticking' together and it is just completely open.  Taping it does get it to stop bleeding, but there is just no sign of anything holding together.

The pic I sent you is a recent pic, although the clothes I was wearing that day were kind of baggy.  In US sizes they start at size 0, 2, 4, and 6.  Size 0 and 2 are just too small for anyone in my opinion!  Thanks for the compliments on my picture. 

And yes, I have great knees. :)  Now lets just get that incision closed.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Brittany0183 on March 26, 2008, 03:33:09 PM
Congrats Brianne on losing weight.  How did you do it?  I'm assuming you haven't been too active lately with all the knee issues.  Did you just watch your diet?  I need to lose about 30 lbs.  My brother is getting married in May and I need to fit into a bridesmaid's dress that is form fitting.

Good luck with the incision, maybe PT can help you with it.  I would think it would be trying to grow back together already.

Keep up the good work!  You must be getting tired of dealing with your knees!

Brittany
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on March 26, 2008, 03:37:22 PM
I wonder should they stitch the incision with the dissolvable stitches? You are right - it should be showing signs of 'sticking' by now.

I spent a summer in the US before and needed shorts and didnt have a clue about sizings, went to a large dept store and a lady shop assistant walked up to me and looked me up and down, and came back with shorts that were the PERFECT size for me!! So ever after I needed anything I went and stood around til a nice lady handed me my size - so i never learned the different system :)

Its amazing youve managed to get into such good shape despite all the knee trouble - well done to you - you do look fantastic.

Perhaps I should have added the SuperModel Outcome to the list of possible outcomes for you - Im still hanging on for the Jerry Springer Outcome though :)

About your knee giving out - so long as that patella is showing no signs of movement in the wrong direction dont worry at all - it just takes time to re-educate those quads.
xx


Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on March 26, 2008, 05:03:09 PM
Hey Brianne, I hope your incision heals quickly!  My knee gives out all the time...at least 5-6 times a day!  I would try to take a step with or without crutches and it would just push forward and my back would arch and my knee would hurt until I catch myself on something.  I figured that mine is just from weak quads since all my other problems seem to be from that!  My PT never seems too concerned!  Anyway...good luck!

Farrah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 26, 2008, 06:33:49 PM
Okay, so I am back from PT.  My PT thought that my incision might have been starting to close up...which it did look a little better than this morning.  So we cleaned it all up and put new steristrips on it to keep it closed.  No pictures.

My local OS is very concerned about the early departure of my screws.  He would not have removed them yet, but he understood that they needed to come out of my leg.  He has revised his PT orders for my PT to back off and let my right leg heal more before we push it.  Even though my OS in Detriot is the expert on these things, I do know that my local OS has a reason why he is being so cautious about my screws being removed.  My PT wants to take it easy on my right leg for a month or so.  My left leg needs to catch up anyway and so maybe its not a bad thing.

I mentioned my knee wanting to give way and buckle.  My PT thought that it did not sound like a "knee" thing and so she watched me walk along with two of the other PT's.  They said I am turning my hip in too much which is causing my foot to roll inward and that is making my steps wobbly.  Probably from weakness related to the surgery.  It could also be that my "new alignment" has caused enough of a change in the way my foot hits the floor that my orthotics need to be changed.  I knew it did not feel like the normal buckling I have had with quad weakness.  Next time the orthotics rep is in town they want me to have him take a look at them and see if they need to be changed.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on March 26, 2008, 08:21:13 PM
hey brianne,
well DR Ts office are the experts so despite losing the screws early they had to go right!

good news about the incision - just keep an eye on it, hopefully itll be fine. it IS a good thing to take it easy on Righty - Lefty will be pleased to catch up a little.

ah - the old hips rolling inwards eh?? happens to a lot of us knee people id imagine. i got specific exercises to help with it before. it takes time to get used to a new alignment - it will turn out fine though - the body is just adjusting. new orthotics may fix it. is it giving way inwards, or outwards?
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on March 27, 2008, 01:37:33 AM
my goodness...Im gone for one day and I mss like 15 posts!

Ok. so...sounds like I dont have to worry about the incisions bleeding now. I hope the PT took LOTS of action photos of your leg bleeding to show someone before she taped it up!!! ha ha.....I hope it gets better. You dont knee anything else scary happening.  Maybe your skin cant stick together b/c you dont have any FAT??? ha ha....kidding.....size 6 is TINY.   Good for you.  My work is starting a biggest loser contest tomorrow.  They bullied me into joining....Its teams of 3 people each...worrys me b/c I cant exercise like everyone else..hope I dont let my team down.....and..haha...if I get pregnant my team will really be pissed. ha ha...

I have that same buckling thing happening in my knee too....feels like weakness...my patella seems to be holding in place too.....think it will get better with strength!

hang in there!
Laura 8)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: GemmaLeigh on March 27, 2008, 08:17:02 AM
wow, i have alos missed loads!!!!

Good news that the wound is closing, so that's a worry off your mind. I have my knee giving way as well and I asked my OS and PT about it and they both said it was weakness, so just do what you can to get the strength up without pushing yourself too much.

Tanya - A size 6 in America would be a size 8 in the UK. We used to own a clothing shop stocking mostly american brands and people used to think we stocked too small, but it was because the sizes are different!!

I am very jealous of your ability to lose weight even with a knee injury Brianne!!! You are definately going to have to share some of your tips with me :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on March 27, 2008, 08:45:36 AM
a UK size 8!!!!!

Brianne - today you win the prize for determination and succcess in the face of adversity!
xx
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 27, 2008, 09:43:44 PM
OUCH, OUCH, OUCH!  That is the word for today.  My right leg was hurting a little bit this morning and so I have taken it easy at work all day focusing on catching up on e-mails and doing other sitting down jobs.  Well as the day hasd gone by I have been hurting more and more in my right leg.  Now I can barely walk and I am in so much pain.  My leg is swollen and very bruised.  Oh my, I am going to hang out on the couch all night and try not to walk.  This pain is horrible.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on March 28, 2008, 12:00:23 AM
Is that the one they just took the screws out of?  ouch. Im sorry.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 28, 2008, 12:08:28 AM
Laura,

Yes, my right knee just got unscrewed and it hurts!  I can barely walk tonight.  Yuck.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on March 28, 2008, 12:18:39 AM
Did they tell you to expect that?  Taking any anti inflammatories?

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 28, 2008, 12:21:09 AM
I was told that I might be sore, but not in any amount of pain.  I have been taking ibpufren which is not really helping with the pain at all.  I guess I just need to take it even easier then I have been for a while. 

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on March 28, 2008, 12:25:56 AM
gosh, I dont know.  I would call your out of town OS tomorrow to clarify your activities....none of us will really know.  It is so hard to judge what is acceptable activity........Im sorry you are in pain.  Acute bone pain is not fun....but....should get better.....I hope soon!  You can take 800 mg of IBU every 6 hours for a while.....that might help.....take it with food though....

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 28, 2008, 12:30:35 AM
All my out of town OS said in terms of restrictions was to let pain be a guide.  If it doesn't hurt I can do whatever I want and if it does hurt I am to not do it.  I called today for a clarification and that was all his nurse could tell me.  My local OS told my PT to take it way easy on my activity and to tell me to cut my activities back to almost nothing.  I think I will follow my local OS's advice for now.

I am taking 800 mg of IBU every 6 hours.  Luckily I need to spend the entire day tomorrow doing desk work and so I can keep my leg up for the entire day.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: cat on March 28, 2008, 12:38:21 AM
Hey Hon,
sorry to hear you have boo boos.  :'( :'( Hope your night goes well. Do you suppose it hurts more because the bone was not fully healed?
Tommorrow should be better for you.
 ;D ;D

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on March 28, 2008, 12:38:51 AM
Brianne that is great that you can rest.  I assume you are icing?
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 28, 2008, 12:44:03 AM
Cat,

I would guess that there is pain because the bone is still healing.  Either way, it hurts.

Laura,

Yes, I am icing.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on March 28, 2008, 12:45:15 AM
I hope you feel better soon!!! 

Farrah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on March 28, 2008, 12:56:40 AM
Ice Ice baby.........Im so sick of being cold under the ice machine....7 weeks of ice......I dont ever want ice again after this is up...and...I want my butt off this couch.   At least it helps my dog heal b/c Im stuck here next to her.


grrrrrr
sorry you are in pain!
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: cat on March 28, 2008, 01:12:09 AM
Laura,
I was going to ask about your dog but then I read through some posts and saw your album. Cute dog. Is it a lab? And wow, that's one big honkin scar. Hope you two get to feeling better soon.
 ;D ;D


Brianne,
sending you virtual feel better hugs,
 ;D ;D

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on March 28, 2008, 02:00:00 AM
Thanks Cat...yes...it is a lab. shes my soulmate. love her so much!
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on March 28, 2008, 09:02:54 AM
hey guys,
brianne - so sorry to hear youve such pain - guess unscrewing doesnt come so easy eh? try not to worry, it may just be your body trying to deal with the whole unscrewing episode - but if it doesnt improve with ice rest and pain killers get back onto the local OS and complain.

xx
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 28, 2008, 02:43:42 PM
I think that my pain is from me trying to do too much still.  When I woke up this morning I had almost no tibia pain and now after being up for nearly 5 hours my tibia is hurting so bad and I can barely walk again.  I will just continue to take it very easy.  I might use crutches for a few days to give my leg a rest.

I am doing desk work all day today so I have my leg up with ice and a cup of coffee. :)

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: chaos on March 28, 2008, 07:21:12 PM
Brianne,
I am glad it appeaers as if you are done having surgeries.  I wish your healing process was smoother.  you have been thru a lot.
Allison
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: GemmaLeigh on March 28, 2008, 07:29:22 PM
Brianne, good i dea on the crutches... It'll do your knee good to give it a break even if the sticks are a pain in the arse!!!

I hope your pain dies down soon.

x x x
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: trish85 on March 28, 2008, 09:26:42 PM
Hey Brianne
I'm glad your dong a bit better today.  Being unscrewed can be surprisingly sore sometimes.  I definetly agree that you should use crutches for a couple of days even if it is just one to let your knee chill out for a litttle bit. 
trish
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 29, 2008, 02:32:27 AM
There is still a very sharp pain in my tibia, but it is not as horrible las last night.  I did take it very easy all day.  One thing that has started happening today is about 5 or 6 times today when I took a step I had a super sharp pain in my tibia to the point where I could not even walk.  That pain seemed to subside within a few minutes.  I have more desk work tomorrow, so I can keep my leg up all day at work again.

My left knee is getting a lot less painful to do SLR's and to contract my quad which is a good thing.

Is it possible to become allergic to something even if you have used it a lot in the past?  I am supposed to wear a Breg PTO on my left knee as per the instructions of my local OS.  I have not worn in all week but thought that I should wear it today.  It felt itchy all day but the Neoprene always feels itchy.  When I took the Breg PTO off about 30 minutes ago my leg was broken out in a rash and I am itching my leg like crazy.  Hmmm, my body is not happy with things these days.  Is it possible to be allergic to neoprene?  Today was the longest consecutive amount of time I have worn the Breg PTO, but now I definately would not try to put it back on as my leg is way to itchy.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on March 29, 2008, 02:38:53 AM
I just realized that I have that brace!! That was my very first brace back in 2001 when my issues started!

Farrah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on March 29, 2008, 03:35:39 AM
Marshall didn't want to take his meds tonight!!  I even tried sugar free pudding to see if it would help.  It was even worse.  He took the tiny pain pill.....like mother like son I guess :)  He didn't take the anti-inflammatory or the antiobiotic.  UGH!  Anyway, sorry it took so long.  I want to continue that conversation tomorrow!

Farrah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Leentje on March 29, 2008, 12:00:56 PM
Brianne,

An allergy never comes with a first contact, as your body has to build up antigens . You'll get an allergy with a second or following contact, but an allergy is way worse than what you have, so it's a reaction.

Helena
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 29, 2008, 12:34:29 PM
Farrah,

I should be on AIM this evening.  Catch me next time you are online. 

My leg is still really itchy today so I am going without the Breg PTO.  My right leg is not hurting as bad today so I will just continue the taking it is which seems to be helping with the pain. 

I'll be glad when all this is over and I am screw free and totally healed.  :P

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on March 29, 2008, 04:29:00 PM
Brianne could it be a heat rash from being inside the brace? 
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on March 29, 2008, 04:43:39 PM
Brianne, I may be busy tonight since I have that SEC gymnastics meet to go watch.  I will check AIM when I get home to see if you are on, but it will probably be too late.  I may be spending the night at my parents anyway.   How about we continue tomorrow night for sure if we don't see each other on tonight!

As for my knee, icing right now b/c despite my 2-75.mgs I am in so much pain.  I am about to shower and get ready for the day once 20 minutes is up...Have a great Saturday!

Farrah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: trish85 on March 30, 2008, 04:21:07 AM
Brianne you can definetly develope allergies over time even with continuios use.  Try washing your brace well with just dish soap and water and get all the skin/oils off of it and try it then.  It could heat rash like Laura suggested.  Try putting benadryl cream on it to calm it down.  Also if you recently shaved your legs and put the brace on shortly after it it could cause the hair folicals to become irritated.

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: cat on March 30, 2008, 06:05:18 PM
Brianne,
I got an itchy rash when I wore my breg neoprene brace. I got some brace sox. Problem solved. I think you could adapt a pair of tights to work just as well.
 ;D ;D
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 30, 2008, 06:24:02 PM
Cat,

Thats actually what I did today.  I wanted to take my dog to the dog park and thought that I should have a little extra support for my knees.  So I took an old pair of tights and cut them up to make a cover over the nepoprene.  Viola, problem solved.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: smkelly4kds on March 30, 2008, 08:43:51 PM
glad to see you figure out a way to solve the rash problem.  I never had problems with my neoprene brace.  But I can imagine the rash.  I had a terrible razon burn after my surgery because i shaved and the nurse decided to shave my leg again with no water or anything.  bad very bad razon burn so I do understand the discomfort.

got a question for you...do all TTTs end up having the screws removed?  I havent discussed it with my OS...guess I should.

glad you are feeling a bit better
melissa
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 30, 2008, 09:19:07 PM
Melissa,

I think the general rule is if the screws do not bother you, then just leave them in.  Many people do get their screws removed after a TTT, I think most OS's like to wait until at least 6 months PO.  Mine came out very early because my body was rejecting them.  I will need to get my left ones removed as soon as they are ready to come out...at least another 6 weeks.

I would recommend that if your screws do not bother you, then why mess with another surgery.  If they do bother you then talk to your OS about it.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: cat on March 30, 2008, 10:32:03 PM
So how was that trip to the dog park?
 ;D ;D

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on March 31, 2008, 01:59:27 AM
How are you feeling today?  Still having the tibia pain?

Farrah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 31, 2008, 02:41:30 AM
Cat,

The trip to the dog park was very muddy.  Benny loved it, but then he did not love the bath I gave him when he got home.

Farrah,

The tibia is still sore, but as long as I do not do too much the pain does not get unbearable.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on March 31, 2008, 12:28:35 PM
Hi Brianne,
hows the knees?

havent been on the website much, my boyfriends sister in law passed away on thursday and while we were at her funeral on saturday his grandmother passed away also - so have been very busy visiting with family and generally trying to help out.

ive my physio appointment this evening - this is where we discuss what she will be saying in her report to my OS. Ive missed some physio sessions the past few days but im not bothered - im so close to the OS appointment I really only need to worry about maintenance - my lateral quads are still bigger on the bad side - so thats good.

xx
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on March 31, 2008, 05:21:01 PM
Tanya,

Sorry to hear about your families loss.  It is always difficult to lose a family member, but to lose two so close together makes it that much harder.

Good luck with your Physio today and with your OS appointment later in the week.  Make sure you get tough and refuse to leave until you have an answer.  You know, Dr T said that my instability had little to do with my muscles and that I could have the largest quads of anyone and I still would have dislocated.

I woke up several times last night with very sharp pain in my right tibia.  It hurts really bad today.  There is bruising from just below my kneecap all the way to the middle of my shin.  This is actually more shin brusing then I have ever had with any of my TTT's.  I have PT in just a few minutes.  I cannot wait to tourture my left leg.   ;D  At least I get to take it easy on my right leg for now!

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on March 31, 2008, 05:45:16 PM
Brianne, sorry you are still having tibia issues!  I hope PT goes well for your lefty today.  Are you taking any meds for your pain?  My pain is bad too, but not in my tibia.  I only had tibia pain the first few weeks after surgery.  Since then, I have had none!!  Thank goodness...the knee cap pain is enough for me.  I just got back from driving over to subway and back for lunch and my knee is killing me now!  I can't bear any weight!!  It sucks so bad!!!  A few weeks ago, I could at least bear some weight.  UGH!  Well I hope your day goes okay!

Farrah

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on March 31, 2008, 07:58:05 PM
Thanks Brianne.

My physio said exactly what Dr T said!!

Anyway she is telling my OS that physio is not the answer, he is not to send me back to her, no more physio until he does something and if he wont do something he is to refer me to someone who will. She was kinda annoyed about it saying tha my joint is shot to pieces at this stage and the grating is worse than before and that I need to be fixed!!!

So she is on my side anyway!!

Bummer about your tibia pain,is it new bone growing in to fill the screw holes?
xx
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on April 01, 2008, 09:25:17 AM
Hi Brianne,

Glad to hear you are still making progress, but sorry to hear that your tibia is still causing you problems.

I am currently in Japan on holidays but today my leg has just had enough. As well as having an unstable knee I've had problems with synovitis with my ankle on the same leg which I've had reconstructed twice. In a lot pain. So, going to take some more pain killers tonight and take it easy over the next couple of days. If it wasn't for my brace I wouldn't be able to get around as much.

Take care.  :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: smkelly4kds on April 01, 2008, 06:48:22 PM
Sorry to hear about the pain!  Hopefully that will subside soon for you. 
I assume you are icing it.  I know when I was having tibia pain that was the only
thing that helped was the ice.

hoping for a quick recovery
melissa
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on April 02, 2008, 02:10:48 PM
I had a good reminder and reassurance yesterday that my kneecaps are stable now.  I was in class and I got up during our break and tripped over someones backpack and twisted my left knee and then fell in my right leg flew out from underneath me.  Before my TTT revisions and MPFL recons my kneecaps would have subluxed or dislocated for sure.  They were fine and I just got up and kept on going.  It did not hurt my knees at all and I was glad to see that my kneecaps were stable.

My tibia is still sore and hurting, but a little less than the past few days.  My tripping in class did not hurt my tibia at all.  The lower half of my incision that was reopened for the screw removal is healing, albeit crooked and funny looking!   :P  I think I am going to have to schedule my left screw removal as soon as possible because my left incision broke opne last night and there was blood all over the place...just like the right!  My OS said I could have them removed at 3 months PO and so one more month to go...  I'd rather leave them in longer, but my body is saying it wants to get rid of them.

Tanya,

I saw in another diary that you mentioned your kneecap tries to dislocate every time you extend your leg.  Mine did that before my revisions and MPFL recons.  You could actually see my patella jumping off to the lateral side EVERY time I extended my knees.  It was horrible.  They do not do that any more, so there is hope for you.  Also, when you have your leg out straight and you contract your quads, does your patella pull to the outside?  Mine did this everytime I contracted my quads.  Sometimes I could even feel it jumping over the lateral condyle.  Yuck.  But it does not do that anymore either. 

Good luck on Friday.  Demand an answer or go find someone who will help you out.  Your knee acts the same way mine did before surgery and now mine is stable and fixed. 

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on April 02, 2008, 02:52:47 PM
wow - great news about your fall!!! (weird as that sounds!!).
thats fantastic!!

i dont like the sounds of your opening incision but at least you know what its about this time so less cause for worry.

no - if my leg is out straight and I contract it doesnt jump laterally - only when its in the motion of extending, starting from straight is ok. lately ive been feeling some 'rubbing' below my kneecap - almost like its hanging too low, my retinaculum looks so loose and baggy medially and below the kneecap, wouldnt be surprised if something is rubbing where it shouldnt.

i will definitely be demanding answers on friday!!!

my boyfriend has hijacked my GP appointment so he is coming with me to get a pain in his chest checked out (it might be from overdoing weights in the gym) so no doubt if i try to down play my anxiety he will butt in and tell it how it is - we have the same GP coincidently.
xx
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on April 02, 2008, 05:06:42 PM
Dont let him take your GP appt!  NO WAY. Doc will get overwhelmed and you wont get what you need. That is not fair!!! Dont give up your spot!!!

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on April 02, 2008, 05:52:10 PM
its ok - we have been given the same time slot but its last app of the day so thats why - im going in first by myself so ill take whatever time i need. he didnt intentionally hijack it - the secretary just said she would put his name down for the same time as mine knowing we'd be arriving together and its the last slot of the day. im only having a routine smear (hence definitely going in on my own!!!) and a chat about the knee so i wont be long in there anyway.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on April 03, 2008, 02:33:38 PM
Tanya,

Tomorrow is the day!  Yippy!  I really hope that you can get some answers and walk (or would that be limp:)) out of your appointment a little closer to a solution!  I will be eagerly checking the boards tomorrow to find out how it all went.  GOOD LUCK!


I am almost 2 months PO on my left and almost 3.5 months PO on my right.  I have had a few annoyances come up along the way, but I am feeling really good.  My patellas seem to be in the right spot and not moving around very much.  The actual recovery does seem to be going slower than with my TTT's.  This does not concern me because first my surgeries were more extensive this time and second my legs have been through a lot of trama with two major surgeries in a years time.  I know I am moving forward and that is good enough for me.

My right tibia is feeling a little better.  I still get really sharp pain if I try to do certain movements, but that is starting to go away.  The constant ache is getting a little bit better as well.  The key is just resting as much as I can.  We are also holding way back in PT for a few weeks.  My PT is going to talk to my OS on monday and see if he will let her progress further with my exercises.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on April 03, 2008, 02:50:52 PM
yippeee - only one more sleep then appointment time!!!
i woke out of a dream this morning and immediately my whole body went 'scrunch'!!! into a big ball of tenseness cos for a second i thought today was the day!!! then i was like 'ahhh....its only thursday!!!'.

Brianne - that is such good news about your patellas!! And yes, you have been through extensive work on both of those legs so I dont expect you to be auditioning for Dancing On Ice just yet. Maybe next month :)

I think theres a lot to be said for rest and just some maintenance on the quads to prevent them wasting - but not muscle bulk building. It takes time for bones and soft tissues to heal and stop aching.

Ill be sure to let you know how I go tomorrow!!
xx

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on April 03, 2008, 07:17:47 PM
well good news with my GP appointment, she got the name of a knee surgeon for me that she recommends if the OS appointment comes to nothing, she also said that if tomorrow he is reluctant to do anything that im to ask for my file on the way out and make an apointment with the new guy immediately. Also that maybe itd be a good idea to see the new guy for a second opinion ANYWAY as he is younger than my current OS and maybe more up on the more recent techniques.
She also gave me a letter complaining i was stressed and depressed :)

so Im all set for tomorrow now!
xx
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on April 04, 2008, 03:58:49 AM
congrats tanya and brianne!  That is wonderful news from both of you!  Let us know tanya how you are doing....funny to have to chase you around to others posts about your knee...you DO need a pre op diary!  ha ha
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: GemmaLeigh on April 04, 2008, 08:27:15 AM
Brianne,

I'm really glad that your pain is subsiding and you can start reaping the benefits of recovering!!!  I will catch up with you later. I'm off to work! I have worked 12 out of the last 14 days and i'm absolutely knackered! I need a weekend off Ithink but i've only been getting one day a week as i am covering somebodys sick leave aswell :(

Gemma
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on April 04, 2008, 12:41:55 PM
Brianne,

Glad you are doing well. That's great you have stable patellas. Just can't wait to have my left knee fixed.

The insurance company now want more info from my sports physician and knee surgeon since I've had multiple surgeries. It's so annoying as they had a letter from my sports physician saying how I was from the accident and how I am now. Urrgggghhhh !!!!!

My right knee is really killing me. Just don't know what it is. Will probably need a lot of treatment when I get back to Melbourne next week.

Tanya,

How did you get on ?
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on April 04, 2008, 02:33:05 PM
Hi guys,
my appointment today was awful. total disaster.
the physiotherapist sold me out - she wrote a letter that did NOT reflect what she told me she was going to write. In it she said that I had had a marked reduction of dislocations up to February, then because of a number of dislocations during Feb/March I had not been as diligent about my exercises - which was pure BS - the OS jumped right onto that bit and basically said 'well clearly you havent been as diligent because youre probably fed up with it or bored or whatever, and sure thats the problem, that explains why youve had more dislocations' - which was totally untrue. When I argued it he just kept waving the BS letter and saying 'its here in black and white'. Then I told him she had said I wasnt to go back to her and he pulled out the letter again and read the last line of it which said 'please feel free to refer tanya back to me' - which is NOT what she told me at all and I looked totally shocked and said that she had not said that to me and he dismissed me with 'well thats what she is telling me'.
Meanwhile he continued to go on about how physio was the answer - if only I would work hard at my exercises. I honestly felt like hitting him with something, because I KNOW I have worked as hard as possible.
THEN - after shredding anything I had to say and being totally dismissive with me he decided to have a look at my knee and when he saw my quads he looked visibly surprised and said 'oh i see - i must compliment you - you have clearly put in some good work'. and then proceeded to get me to contract and lock down hard and while my leg was straight and locked down tried to wiggle my kneecap - of course it didnt move, its fine dead straight, and he then dismissed any notion that I had instability and began to lecture me on how pain is my problem. He KEPT going on about pain and everytime I said 'i dont have any pain' he dismissed it and told me I have chondromalcia and that psychologically Im not allowing my quads to contract fully so basically between pain and it all being in my head and me not doing my exercises that there was no way he would consider surgery at all. My boyfriend jumped in a few times and tried to support me but the OS just kept going on about pain and physio. I told him that the physiotherapist has told me that physio is not going to stabilise this joint and he said that 'she is only a physio - IM the expert'. I asked why I had felt no improvement in stability and he said 'you did get improvement - says so in the letter' - and dismissed it.
He flexed and extended my leg with his hand on the kneecap - I was visibly apprehensive and then said 'well clinically i cant find any instability'. and that was him done on examination.
After much argument and confrontation from me he changed tack and said a surgery now would lead to terrible anterior pain and Id be in a much worse state so there was no way he would - and THEN said 'well i might be wrong i suppose but i wont operate on it and you wont find anyone who will' so i asked what was i supposed to do now and he said 'go see someone else'.
He then went back to the quad strength issue and told me that unless I could get them 100% strong no one in the world would operate. I asked how long thatd take and he said '1 year'. I said 'thats what you said 8 months ago' and he said 'oh well i dont know'.
eventually, after being treated like i was telling lies, dismissed, argued with, treated like a child and basically made to feel like it was all in my head i just said 'ok then' and stood up, he then opened the door and called his next patient - i didnt even try to shake hands with him, he wrote no letter back to GP or physio and I was left standing in the office with tears streaming down my face sort of lost and in disbelief. So I asked his secretary for a copy of the file and she ran it through the photocopier for me and I took it and left.

So now Im home, feel totally let down. And Im trying to figure out what to do now.
xx
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on April 04, 2008, 02:43:51 PM
Tanya,

I am so sorry your OS was such a butt hole.  Even if your problem is pain and lack of quad strength, he should not have treated you like that.  As for your physio, she better be glad that she is on the other side of the Atlantic Ocean from me or she would have someone with two stable kneecaps trying to hunt her down.  So, where to now, find another OS.  Be done with this OS.  Even if he had said, okay, I will fix your knee...do you really want someone like that cutting your leg open?  So, do some research, find a good Patella Femoral OS and go from there.  It sounds like you have some leads already.  And hey, if all else fails, I know an amazing OS over here in Detroit, MI in the USA.  :) 

Sorry it did not go better.  Don't let one jerk of an OS be the final word on your knee.  He is only one person and he clearly has no interest in helping you.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on April 04, 2008, 02:52:36 PM
Thanks Brianne,
I just feel terrible about it all right now. I phoned PTs office and left a stinker message. Im gonna rip her apart if she calls back.
I have spent a couple of hours trying to make appointments with 2 different OSs but one's office is closed til Monday and the other one is on permanent voicemail and I left a message but no call back.

The thing is - I dont have any pain. He even squished down on my kneecap and when I winced said 'there - see, pain' and I unwinced and said 'oh that didnt hurt - I just thought you were gonna pull it laterally so I was prepared for a dislocation'. So he did it again and I didnt wince, and this time he said 'yes it IS hurting' and I was like 'it isnt!'. but no - he didnt want to listen to me.

I knew from the moment I walked in the door that he had a negative attitude. And physio is telling me I do have quad strength but I cant engage all of it because of inhibition from fear of dislocation!!!!

The letter she wrote was terrible - I read it and just thought 'oh god - this makes it look like I havent been doing my exercises' and then he read it and said the same - when I left the stinker message her secretary said 'oh no no, these letters are written for professionals to read, not lay people' - eh we all speak english!!!

I just feel so let down. Ive zero quality of life because I always feel unstable and Im just being brushed aside and treated like $hit when I complain about it.

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: smkelly4kds on April 04, 2008, 03:09:20 PM
Tanyap
Oh my gosh I can't believe you were treated like a lying child.  That is just unprofessionaland completely no need for that behavoir on his part.  As for your physio.  I agree with Brianne good thing she is over there and we are here.  I definately would call her on it.  Do you have a copy of the letter too?  If so I would take it with you and ask her to explain what why she wrote what she did and told you something different.  You should demand and explaination.  If she felt that way she should have at least have you a heads up!   Could there be any of it true?  Just wondering.

Brianne,

    How are you doing?  How is the healing going with both legs.  Hope you are doing well!

Melissa
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on April 04, 2008, 03:41:52 PM
Hi,
I know - im was glad my boyfriend came in with me cos he also thought the treatment was really bad form. So at least I didnt just feel persceuted on my own.

About the letter - it was really long, 2.5 A4 pages and there WAS some good stuff in it but the OS just concentrated on that one paragraph that said I hadnt been so diligent - which is completely untrue. The PTs secretary said 'oh that didnt mean you werent doing your exercises, just that with the number of dislocations you have been forced to rest and not do them so often' - unfortunately that is NOT how it reads - to me or to the OS. Lots of other stuff in it was true, but there was an implication that with the levels of apprehension I have that I havent been walking as much as I could - I told her last time that I do try but because I feel so dislocatey that its pretty difficult - and she agreed with me in person, but it reads like I havent been trying!!

Ive just made an appointment with another OS,he is only 36 years old and is based in a Sports Surgery Clinic here, I told his secretary that Id just come from my own OS and he didnt know what to do so he said I was to go to one of the young guys in this place (he did say that when he was claiming that he could be wrong but he didnt think so but if i wanted a second opinion to go to this place) - so she said 'oh this guy is nice and he specialises in knees and is up to date with all the latest techniques'. So thats 2nd opinion 1 in place, I am also making an appointment with the OS that my GP recommended but his office is closed today so I cant make that appointment til Monday.
So Ive an appointment May 12th for starters.

I have also thought more about what the horrible OS said - and I do wish it was true - I wish physiotherapy WAS the answer, I will still keep up my home physio program regardless and maybe a miracle will happen - its just with all the different physios telling me that its not the answer and my own experience of how my knee feels - I just dont believe the horrible OS.
xx
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on April 04, 2008, 06:11:31 PM
Tanya. what an a$$,  Im so sorry. I had the exact same thing happen to me with a doctor that i waited months to see. he was sooooo rude to me and didnt really listen to anything i said.  He blew me off as if i hadnt done my PT too.....and....he called this huge hole of scar tissue in my leg a "cosmetic defect" said that i needed to get it out of my head that it is causing pain.....I posted my pre op picture on my post before and you can see the huge hole i had......im not a vane woman..it wasnt for cosmetic reasons....i cried through the entire visit and i was truely dumbfounded by the treatment i received...i was in shock. when i left, i was like you...all i could get out of my mouth was that  i wanted my MRI film back and i cried for 1 and half hour drive home as if someone had died.   total jerks. they dont understand and they dont listen.   when someone listens to you it will be like they are god........you dont deserve that and if someone is that narrow minded and that big of a jerk you dont WANT then doing surgery on you anyway.  total jerks.  really...you need to have quads to do surgery???  i had ZERO quad strength and they did my surgery..........now i have quads....hmm...funny how that works sometimes.   total jerks. im glad you got the new OS appt.  your PT totally sucks for writting that letter.  dont go back to her ever!   

 :-[  so sorry. be MAD dont be SAD. they are wrong. you know your hard work. they are WRONG and dont let them get into your head. stupid people dont deserve time in your brain......kick them out and move on. jerks!

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on April 04, 2008, 06:16:45 PM
Tanya,

Yes, I had NO quad strength in my legs and Dr T said that it had very little to do with it.  So I had surgery on both of my knees even without strong quads. Actually, sometimes you cannot get your quads very strong because of what is wrong inside.

So...that OS is whacko for saying that you just need stronger quads.  Maybe he needs a bigger brain?  ::)

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on April 04, 2008, 06:56:07 PM
My physiotherapist phoned me and she went BALLISTIC on the phone and reread her letter aloud and pointed out that the paragraph about not being diligent says BECAUSE of the dislocations - and that he should have recognised that - also that she has sent him letters before for patients and her wording when someone is not doing their exercises is different. She said she will never take one of his patients again, that he is a psychopathic egomaniac(she actually called him that) and that she cannot believe that her words were taken so out of context. She apologised about it but then said 'look at the rest of the letter' (which is true - it was just that one small bit he focussed on). The she said I should go to a solicitor and sue him?!?!?!? So she is very annoyed. She even said that in her professional life she rarely gets emotionally involved with a patient cos its unprofessional - but that this time she is genuinely upset.

So despite her letter and that one paragraph i appreciated her call. It was just the one paragraph that looked bad. She told me I can come back to her if I want or continue my exercises at home, or just ring her if i want to talk to her and that she recommends I forget physio for a few days, relax, research the best knee people in the country and keep looking for answers.

Oh she also said that its the OS's ego is getting in the way cos its his botched surgery from 20 years ago causing these problems and he doesnt want to admit that and she has experience of another patient of his who had a botched surgery and he kept insisting nothing was wrong then the patient went to another OS and got fixed and the new OS TOLD her it was a botched previous surgery!
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on April 04, 2008, 07:28:51 PM
Tanya,

Its good to hear that your Physio did not mean for it to sound like she thought you were slacking off on things.

I had not realized that your current OS did your original surgery.  It all makes sense now, he is trying to protect his ego and cannot admit that he was unable to fix your leg.  I would not go as far as to say he botched your surgery.  I had TTT's done over a year ago and my knees were not fixed, but I would not say that my local OS botched my surgery, he just did not fix the problem.  At least my local OS was man enough to admit that he was in over his head and that I needed to see someone with more experience.  It seems like too many OS's won't lose their ego.  Either way, your OS is an @$$ and you are done with him.

Good luck finding a new OS, sounds like you are well on your way.

Just remember, last year beginning in May my knees were horrible and I could barely walk, but now my knees are doing really well.  So there is hope.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on April 04, 2008, 07:36:55 PM
i was just quoting my PT - actually I think the original surgery held up pretty well for a long time, but there have been recurrent dislocations for many years so I think something else should have been done long ago.

but anyway - yeah he is an a$$ :)
it does kinda make sense doesnt it? sure he was giving his diagnosis today without even looking at my leg - thenhe looked surprised when he saw it but wouldnt back down.
my boyfriend phrased it very well - he said he was completely dogmatic and fixated on what HE thought was a problem - and just could not hear anything I was saying.

Brianne - Im so sorry for hijacking your thread so much!!! I started my own Pre Op diary (optisim lives he?)in the general section so I wont keep hijacking yours - but I knew everyone would check in on yours so it seemed like the best place to post news!!!
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on April 04, 2008, 07:57:43 PM
Tanya,

I do not mind the hijacking.  I figure it serves as a good resource to people dealing with problems similar to ours.  Its all good! :)

Maybe the new title of my thread could be "Brianne's left MPFL reconstruction and TTT revision/Tanya's PRE-OP diary"?  Hows that for sharing my thread!  ;D

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on April 04, 2008, 08:25:58 PM
aw Brianne youre a sweetie!!! You know it was your posts originally that made me get off my butt and go look for an OS at all!!!
so keep up the good encouraging work!!

My boyfriend and I have been discussing next steps - he says I have to completely disregard todays OS (who from now on shall be known as the A$$) and seek 2 or 3 more opinions.

He also pointed out a number of contradictions in what happened today that I was so upset i hadnt even noticed!!!

The more I think about it the more Im soooo glad I made that appointment so early and didnt wait around to be abused later. Now at least I can get on with looking for someone who listens without wasting more time.

Ill be looking forward to your posts on my optimistic new thread!!
xx
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on April 04, 2008, 11:07:47 PM
what a jerk.  Im glad your PT was honest with you.  You know.....my first OS that did my surgery......he kept saying i was fine....eventually the PT in HIS office told me i was screwed up and suggested i seek a second opinion..she even helped me get my medical records. she could have gotten fired.  i would have never known for a long time how screwed up i was.  im glad that PT told you the truth now.   grrrrrrr...im mad for you.   
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on April 05, 2008, 01:39:51 AM
Well, I had hoped to keep my left screws for a little bit longer than I kept my right ones, but my incision has now broken open in two places with another two spots that look like they could break open.  One of the holes has been there for about a week but looked like it was getting better.  It was also never very deep.  The other hole that just opened is already really deep, just like my right holes were.  I definately have to get my screws removed on my left as soon as they can come out.  I will plan on calling Dr T's nurse on Monday and letting her know that I want to schedule the screw removal for as soon as they are safe to come out of my tibia.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on April 05, 2008, 01:44:12 AM
wow.....that is so interesting. I hope that they get to come out soon. Wonder if they can put you on any meds to help you not reject them until you can get them out safely......im sorry..how scary
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: lilrosie06 on April 05, 2008, 03:02:55 AM
My goodness, Brianne, you sure have had a time of it girl!! Definitely call on Monday. Lord knows you dont need an infection or further complications!!

Good luck!!

Donna
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on April 05, 2008, 04:06:27 AM
Hey Tanya,

I'm so sorry that things didn't go well with your appointment. I felt for a while that something wasn't right. Glad your physio supports you. That's a good start.

On Thursday I'm seeing my sports physician and will ask whether he knows anyone good in London as he worked and studied there for a while. I'll also ring my surgeon's rooms when I get back and get a good recommendation for you.

I hope you can have some fun on the weekend.

Your old OS shouldn't have treated you that way. I hope you are ok. Glad you have your boyfriend's support.  8)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on April 05, 2008, 04:46:25 PM
Thanks Kirsty - will email you monday from work.

Brianne - thats so annoying bout your screws!!! Hope you get that scheduled sooner rather than later.

Ive a question for you Brianne - I dislocated in bed last night - just woke up and knew it was out. Usually to reduce it myself I straighten leg out, relax quads, and push down on lower thigh - this results in a 'cccrrrrack' and its back in place. Last night for probably the first time ever I actually felt my kneecap before reducing it - and i could wiggle it. Then I did the 'cccrrrack' and it almost felt as though the crack happens deeper than the kneecap - like the lower leg is subluxed with relation to the upper leg - mind you i didnt have my hand on my kneecap when i did it so i dont know if that was just my subjective experience you know? Did you ever feel like the relocation was happening deeper than the kneecap? I find it hard to tell whats happening cos usually it either pops in and out in one motion or anytime ive ever reduced it myself ive never actually felt the kneecap, ive just panicked and straightened up for the 'cccrack'.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on April 05, 2008, 05:53:22 PM
Tanya,

From my experience, the more subluxed the kneecap is the more it will feel like things are moving around when you go to put it back in place.  Keep in mind that a dislocation is when the kneecap completely goes over the femoral condyle and stays that way...not a pretty site.  But you can sublux in varying degrees.  I had this one subluxation many years ago that when my patella went back in place it felt like someone had ripped my entire leg off...along with a loud crack.  Most of my subluxes were very minor and they went back in place as quickly as they went out of place. 

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on April 05, 2008, 06:00:09 PM
Thanks Brianne, I always use the word dislocation (just cos I always did) but actually you are quite correct - I am in fact experiencing subluxes of varying degrees. I never ever jump the lateral condyle - never have, and my trochlear groove is not shallow.

The OSs here tend to interchange the words dislocation/sublux - maybe its a cultural thing?

Anyway - yes you are probably right, I think itd be more obvious and serious if my lower leg was subluxing in relation to my upper leg right? Plus - my completely gone VMO would indicate it was always a patella problem. And mostly I FEEL it slipping laterally - just occasionally I feel like its deeper than that.

I am seeing an OS on tuesday at a top sports physio place - i phoned them for info on best knee OSs and they invited me to come see their guy who does in fact specialise in patella dislocations, i gave a short history on the phone and they said come along and even if he cant help personally he will send me to someone who will.
xx

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on April 05, 2008, 06:15:01 PM
Tanya,

I think a lot of people use the words dislocate and sublux interchangably.  I read a lot of posts where people say that the dislocated something like 12 times in one day.  That probably would not happen because after the first full dislocation you pretty much cannot move and odds are you had to go to the ER to get it reduced.

I have had very few full dislocations on each of my knees, with the first ones on each being the worst.  My very first one I was just walking down the hall at school and pop, the next thing i knew my patella was literally on the side of my knee.  My leg was horribly mis-shaped.  To make things worse, the ER I went to was clueless and they left me with a fully dislocated patella for nearly 6 hours until they got around to reducing it.  They did not give me a thing for pain.  They did try to take x-rays, the worst experience of my life in terms of pain.  My most recent dislocation was when Dr T dislocated my left kneecap in the OR before surgery because he was seeing just how loose my kneecaps were...one tiny push and bam, it was out of place.  Horrible.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on April 05, 2008, 06:36:29 PM
Hi Brianne,
Before I had surgery (all those many years ago!!) I never ever had to reduce a sublux OR dislocation - there would always be a sort of double BAM, BAM out, BAM back in (meanwhile Id have dropped to the floor in agony) so doctors were never able to see mine out of position but they diagnosed based on swelling and my description of the double BAM. All my surgery notes refer to dislocations, but like I say, no one ever saw it dislocated.

Initially after surgery they re-started with the double BAM, then they got progressively less extreme, and thats when I started having to reduce them myself. So ive never experienced the kneecap out of place round the side of the leg - yuck!!

Were you awake for DR T doing that???? ouch!!! at least when they put it back in it stops hurting so much - I cant believe your 6 hour experience!!

My old surgery notes state in a number of places underlined 'Trochlear Groove NOT shallow' - but other than that just say Id patella alta and recurrent patellar dislocations.

One thing I forgot to mention was that yesterday the Horrible A$$ DID agree my MPFL was way stretched but claimed any fixing procedure would result in the kneecap being bedded down too tight and cause worse problems with pain and arthritis as a result of it, which would lead to a TKR - which in his esteemed opinion would lead to TKR failure - nice to be seen by a fortune teller eh?
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on April 05, 2008, 06:45:58 PM
Tanya,

I'd like to translate for the @$$ if I could.  When he said that anything to fix your MPFL would lead to worse problems, he really meant, "I am not good at doing the MPFL recon and so I would screw your knee up worse.  So instead of doing that I am going to tell you to strengthen those quads."

The MPFL recon is tricky and if done wrong you will end up with worse problems then before because the kneecap will be pulling too far medially.  So that is why the MPFL recon needs to be done by an expert.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on April 05, 2008, 07:06:17 PM
hehehehehe - im liking the translation.

you know if he had just said 'goodness me you poor thing, what an awful time youre having, and now i have more bad news, im not qualified to fix you, anything i can do might make things worse for you so please go and see someone else - here is who id recommend, and best of luck with it'. It would have been the same net result, Id have left and gone to find someone else but I would have respected him and at least felt he had some empathy.

did i ever tell you that in my first visit to him last June he looked at my typewritten history of my knee and barked 'what changed in 2000 for you' and I said 'eh, i got a car' and he barked 'ah thats your problem, not using your leg as much as you should be' and I said 'but I cycled 10 miles twice a week just for exercise and also have always gone walking for exercise' - but no, he didnt hear that, starting to drive was my downfall apparently.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on April 05, 2008, 07:29:49 PM
Hello Tanya and Brianne, I hope you guys are feeling okay today.  As for subluxing or dislocating, I always had subluxations...still do in my left knee.  I can't see it, but I can feel it big time.  My OS knew I had that problem from x-rays, examining it, and then proved it in surgery since he could see it move out of place and back in again.  I still get the same feeling in my surgery leg, but only when I use my muscles to bend and straighten (active extension).  It used to do it if I grabbed my foot and bent it and straightened it myself (passively).  So that is why I know my weak muscles are part of the problem.  My knee still grinds and hurts while it does it.  SUCKS.  My OS did say after surgery that my trochlear groove is almost flat.  He said he hopes he doesn't have to fix that problem....it looks like he won't have to fix it anyway.  I just know it's like that in there.  Meanwhile, my left is getting worse and worse in the subluxing department.  The pain and grinding has gotten so bad.  When I get my cortisone on Monday, I am going to finally hopefully "remember" to ask him about my left. Anyway, Tanya, I hope you feel better about all of this after Tuesday's visit.  I will check your diary to find out how it goes.  Have a good weekend you guys.

Farrah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on April 06, 2008, 02:07:55 PM
Hey Tanya,

I have been thinking about you all weekend and how rude your OS was. Can't believe it. There was no need to behave that way.

Glad you are feeling better mentally. I reckon your OS should apologise to you after the way he treated. It was just appalling. Can't believe someone would behave that way.

I am pleased to hear you are getting some more opinions. I would discourage you from getting too many opinions though as you may get very confused. Last year I got a second opinion and was going to get a third opinion but decided against that. My knee OS has known me a long time and knows what works and what doesn't. In the end he's done what's best for me by waiting to see if physio would help. It hasn't so he's decided on more surgery. What makes me feel really confident about my OS is that his one of the top in his field worldwide and knows what the latest techniques are.

One thing I'd really encourage you to do is go and see a good sports physician. It's great that you have a good physio and GP, but GPs often don't understand these problems that well. A sports physician may be able to come up with some other ideas such as clinical pilates. I found that with my normal rehab I wasn't getting very far, but with clinical pilates it has made a huge difference. Just some food for thought. My sports physician has a very good relationship with my knee surgeon and when I've had problems he's been able to let my knee surgeon know and find out what is best for me. It has made a huge difference. I guess now that I don't do as much hands on physio that has been pretty important.

Brianne,

How are you getting on ? Often think of you and wonder how things are.

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on April 06, 2008, 04:51:05 PM
Brianne, how are your lefty's incisions doing?  I hope that you have been able to control the messiness :)  I hope the tibia pain is gone by now in righty!

Farrah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on April 06, 2008, 04:52:38 PM
Thanks Kirsty,
I was totally blown away by the whole confrontational attitude - from the minute i walked in it was 'well this letter says you havent been doing your exercises so what do you expect huh???' and the letter did not say that in isolation, it said that due to dislocations i had not been as diligent as prior to dislocations. I actually felt like I was in court being judged. And there was a bit of a turn around when he actually deigned to LOOK at my leg (which didnt happen for the first 20 minutes - he had his mind made up long before even seeing it) - but then he started going with the 'i dont know' routine.

One thing Im really interested in trying is a good orthopediac brace - just for outdoor walking - it seems so difficult to get them in ireland - the physio doesnt know where i should go, the OS last time i asked just dismissed the idea - this time round he said 'maybe you could tape your patella' - and then went on to insist it wasnt maltracking.

Theres no way he will be apologising - sure he acted like i had mental problems!!

The guy Im seeing on Tuesday is in the top physio sports clinic in Ireland, I will ask them about a sports physician (i dont know if we have specific sports physicians over here), and also about pilates etc...

xx
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on April 06, 2008, 07:06:36 PM
Hey all!  I am in heaven and enjoying every minute of it.  The high is a glorious 70 degrees today and super sunny....so I am out and about and loving it!  My knees are feeling good.   My right tibia pain is nearly gone.  My left incision is still acting all funky, so I will call my OS's nurse tomorrow.  In the mean time I went for a three mile walk today with my dog.  As long as I am on level surfaces with no inclines...as in sidewalks...I can walk really well.  I have the worst cabin fever ever and so I am not going to stay on too long...off to take my dog to the local State Park so he can chase the wild animals and I can enjoy being outside!

I'll catch up more later!

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: trish85 on April 06, 2008, 08:10:51 PM
Its so refreshing to hear someone happy with their knees.  Although your still having problems with the incision it will get better.

Oh and I'm totally jealous of the 70 and sunny thing its 41 and cloudy here.

Have a great day at the park with your doggie :)
continues luck
Trish
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: KW on April 06, 2008, 08:15:27 PM
Good for you Brianne!!!

I hope to be out working in my back yard by early summer!!!!  8) 8) 8)

Karen
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on April 06, 2008, 09:55:17 PM
Brianne, I am so happy for you that everything is going so well!  Our weather is nice and warm in the 70s as well!  I went out to watch tennis today and took Marshall (jack russell).  I left the other dog home to sleep b/c I can't handle two dogs on crutches.  Well I am home now and he is exhausted from one of the kids playing ball with him.  He can do that all day!  My other dog is wired from being caged.  Oh well, I am sitting here icing and watching tv now.  My knee is just killing me and it is time for more meds.  I sat during the entire time I was out, so it frustrates me that rest isn't making the pain go away.  I didn't even drive...I was picked up and dropped off.  UGH!  Well I hope the rest of your day goes well!! 

Farrah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on April 07, 2008, 02:41:11 AM
I AM SO HAPPY!  Today was the best day EVER.  I walked 6 miles today.  After walking for 3 miles I walked for another 3 at the State Park.  The State Park has miles of flat and paved trails and so I was able to just keep walking.  I told myself I would turn around the second I hab a bit of pain, but I never had any pain.  It has literally been years since I have walked that far, period.  Going up inclines and uneven ground is still hard for me, but I am so thrilled that I was able to walk for 6 miles.

For the first time in so long I feel like I am coming to the end of my knee saga.  I feel like there is an end in sight and that I really do have hope for all of this to turn out well.  I really hope that others of you can find the success that I have found with my knees.  Certainly a year ago I was without any hope and now, I think its all going to be okay.

Now to pull myself back to reality.  My left incison looks horrid and so I am going to have to call my OS first thing tomorrow and see when I can schedule my screw removal.  It should be about another month before they can come out.

Nah, not even the incision can bring me back to reality.  I seriously have not felt this happy in years!   ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D

Its time to errect a statue in my OS's honor because he is my hero!  :)

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: cat on April 07, 2008, 02:54:14 AM
6 miles? Wow, that's awesome. Not sure I'm up for that just yet but happy to hear you had such a wonderful day. It started out cloudy w/ sprinkles here but then cleared up and turned into a fine day to mow, and work the hives. Too bad the hives were full of dead bees and general grossness but I've got  pkgs coming in 2 weeks so had to get the 'girls' accommodations in order.
Let us know the unscrewing date,
 ;D ;D

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on April 07, 2008, 02:58:13 AM
Cat,

Wanna help me make a statue in Dr T's honor?

 ;D

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: *Margaret on April 07, 2008, 03:19:45 AM
i'll help brianne.

i am glad you are so happy with your knees.

margaret
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on April 07, 2008, 03:25:23 AM
that is wonderful good for you!!!
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: GemmaLeigh on April 07, 2008, 08:01:03 AM
Well done Brianne, I had a long walk yesterday but I am really paying for it now!!! And lucky you with the whether, we had a freak snow storm here, it didn't settle or anything but it snowed nearly all day.... It never, ever snows in Devon so it was a bit of a shock... and it was very cold.

I'm really glad you're feeling so great and I hope the problems with your left incision don't cause you too much trouble.

Gemma

xxx
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on April 07, 2008, 09:22:24 AM
Now - if I just sit and direct operations of the placement of the statue does that count as help? Ill get a long pointy stick!

Thats amazing news Brianne - 6 miles!!! I dont know if was able to walk 6 miles ever!!! hahahahaha!!!

Would you believe despite my last dislocation on Friday my knee feels great with the rest from physio (physios orders, week off exercise to allow body to rest), and I actually feel much better on it that I have in a while.

New OS appointment tomorrow - I will be asking for the surgery that allows me walk 6 miles :)
xx
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: cat on April 07, 2008, 01:00:16 PM
Sure, Brianne,
Tell me when and where and I'll bring my legos.
 ;) ;D

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on April 08, 2008, 12:49:34 AM
Cat,

Haha, legos!  I was thinking maybe titanium screws?  HEHE.


So I went for a 2.5 mile walk today.  My legs were a bit sore from all the walking I did yesterday.  Still feels good.  My PT was impressed and said that as long as I stick to level ground and stop when it hurts that it will be good for my knees to walk.  Good thing, my dog loves getting out and going on walks.   

My left incision has gone balistic.  I have four holes in my left incision and one of them is HUGE.  I did not get ahold of my OS's nurse today and so I will call them tomorrow.  My PT was concerned about the incision because I have to wait another month and it looks aweful.  She did not take any pictures of it today! :)  I'll see what they say tomorrow and then go from there.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on April 08, 2008, 01:12:36 AM
I am so happy for you Brianne about walking and not having to pay for it today!  Soreness is good, but pain is not...ya know?  That is so great!  I am struggling after my cortisone injection today.  I am sore, and the numbness continues to wear off very slowly and get my pain back.  I can still walk without much pain at all, but my usual other movements that hurt so bad are hurting just as bad now.  I am icing for the 5th or 6th time today.  It feels so good with the ice on it.  Meanwhile, my back is still killing me if you read my diary.  Anyway, I have been relaxing all day long.  Hopefully the soreness will be better tomorrow, but I have a feeling it will be worse.  My office is prepared for my absence tomorrow, so we'll see how it goes.  I am pray that this cortisone helps and I was suppose to feel my pain again today before the steroids kick in!  I really really hope I am suppose to feel the way I am.  I can't handle another failed plan.  I am getting depressed just thinking about it. What would be so nice, if I woke up tomorrow morning and still could walk at least!!   That pain with walking that I told you about on AIM is gone today!!  It is there just a tiny tiny bit, but not enough to limp or anything!!  I LOVE IT!  I just wish all this other continuous pain and soreness in my knees and my back would go away.  Sorry to complain on here...I just am hoping this "Plan B" helps!!  Sorry about all the openings of your incision in lefty!!  I hope you get ahold of your OS's ASAP!

Farrah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on April 08, 2008, 09:26:42 AM
Hi Brianne,
so glad you are mechanically sound!!!! But dont like the sounds of the open incisions. Can you take a pic and email it to your OS's office? A month might be too long to wait - unless they can somehow keep them closed and sterile in between? Your body has obviously recognised the foreign bodies more strongly this time and is shouting EJECT EJECT!!!!
Try not to worry though - its relatively minor compared to all you have been through!!
xx
tanya
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on April 08, 2008, 12:38:20 PM
Hi Brianne,

It is wonderful to hear that you are doing so well. Congratulations. It has been worth all the hard work.

I have really enjoyed my holiday in Japan but paying for it now. My knee feels horrible, but don't regret it for one moment. I really needed a holiday badly. Now I feel on the top of the world and ready to face my surgery. Before I was just so scared and freaked out.

Hopefully you can speak to your OSs rooms today about the screw removal.

Good luck with your walking.  :D
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: smkelly4kds on April 08, 2008, 05:37:24 PM
 ;D Congrats on your long walk!  ;D

 I cant wait to be able to walk like that again.  My kids want to go to the zoo and to amusement parks this summer....I just want to be able to do those things with them and not be in terrible pain by the end of the night!  Right now I am good to just walk Wal mart!  Guess I need to realize that its been 3 weeks of FWB and I still have another knee that has problems!  PLus the arthritis I am dealing with...

Anyway Congrats glad you are doing so well after all you have endured!
melissa
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on April 09, 2008, 04:04:58 AM
My left leg is trying to get rid of these screws in overtime.  Its so disgusting.  This left incision is opening up so much faster and so much worse then the right one ever did.  I have four holes, although two have combined into one giant hole.  The skin all around my incision is peeling off like crazy and the incision bleeds all the time.  Its really very gross.

I have not had the time to connect with my OS's nurse because I have been too busy at work and by the time I think to call its after 5pm.  I am making it a point to call first thing tomorrow.  This incision is crazy.  I cannot get the time off work right now to drive to Detroit, but I think it might be a good idea to get in with my local OS.  Even though we know that the incision opening up is caused by my body trying to reject the screws, I am concerned about an infection.  The incision smells horrible.  Its one of the worst smells I have ever smelled in my life.  :-X

Sorry for the overly graphic post.  This is so weird and so frustrating.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Sore knee on April 09, 2008, 08:46:05 AM
Brianne

Thank you so much for your help and advice - it is so appreciated.

I'm so sorry to hear about your wound, its hard juggling it all and I am so impressed youa re able to work. I hope you manage to get into see your local OS, that can't be comfortable. Let su know how you get on.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on April 09, 2008, 09:20:00 AM
Brianne, if the incision holes smell bad then dont delay getting onto the OS. Thats infection - infection is smelly smelly smelly!!! You dont need your body having to fight that and also its not gonna let those holes improve if there is infection in there. I know its early - they may not want to take the screws out yet but they can surely clean out the incision holes and dry out the area and cover it up with sterile bandages or something just to keep the area clean until the time comes for screw removal.

Please ring them today!!!
xx
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on April 09, 2008, 10:00:09 AM
Hi Brianne,

I totally agree with Tanya. Get on to it as soon as you can.

Let us know how you get on.  :D
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Sore knee on April 09, 2008, 02:48:43 PM
Hope she did get in to see the OS.

Poor Brianne that can't be nice. (((hugs)))
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on April 09, 2008, 07:33:50 PM
I still have not connected with my OS's nurse.  I really need to by the end of the day.  I am in so much pain and my whole leg is getting incredibly swollen.  I can still walk okay, the pain is not because my knee is not working, but it is because my incision hurts.  I called several hours ago and I still have not gotten a call back.  I will wait another 30 minutes but then i need to call back.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: KW on April 09, 2008, 07:46:50 PM
I would not wait to call...Just call now and leave a URGENT message that she needs to call you back NOW.  Otherwise I think you will need to call Dr E.  Sounds like someone needs to address this today!

Take care!
Karen
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on April 09, 2008, 08:01:06 PM
I have relented I am am going to Detroit on Friday to get this dealt with.  I go over there way too much!  :P
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: cat on April 09, 2008, 10:58:55 PM
Brianne,
You silly gal. Why wait til Friday? Maybe you should have that looked at right away? Though it would be nice to have that waiting room party....
 ;D ;D

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: cat on April 09, 2008, 11:07:02 PM
Okay, saw the PM so you can ignore the previous message. The party is on! ;D ;D
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: *Margaret on April 09, 2008, 11:17:41 PM
I want to come. Can I?   ;D
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: cat on April 09, 2008, 11:49:18 PM
do you have any legos? ;)
 ;D ;D
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: *Margaret on April 09, 2008, 11:52:41 PM
YES!! i do have some lego's. do you want me to bring them?

cat, i told brianne, i can picture you two in the waiting room playing with lego's
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: cat on April 10, 2008, 12:53:40 AM
Definitely. We want our statue to be the biggest, bestest, most gigantic one in the world- or at least in the office. ;D ;D
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: *Margaret on April 10, 2008, 12:58:05 AM
haha ok. you two do that on Friday and think of me while you are there.

Cat, how are you doing with your recovery?
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: cat on April 10, 2008, 01:13:09 AM
I'm guessing that Dr T will say the recovery is going as expected. Thanx for asking.
 ;D ;D

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: *Margaret on April 10, 2008, 01:16:36 AM
that is good.

what else should i bring besides my legos?
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: cat on April 10, 2008, 01:34:15 AM
I dunno. What do you think, Brianne? Something sparkly perhaps?
 ;D ;D

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: *Margaret on April 10, 2008, 01:46:28 AM
Brianne is at class but i can bring something sparkly. how about glitter? ;D
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: trish85 on April 10, 2008, 01:56:25 AM
With all this talk of building Dr T a statue if this surgery doesn't work for me I am totally going out there to see him.  but of course that will never happen (trying to stay positive)

 ;D
Trish
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: cat on April 10, 2008, 01:59:28 AM
In class? That gal is busy!

Glitter sounds lovely. American Idol is on,
ta ta!

 ;D ;D
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: *Margaret on April 10, 2008, 02:11:34 AM
yes in class and yes she is a busy gal.

i will bring a whole lot of glitter and maybe some glue.
 ;D

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on April 10, 2008, 03:24:14 AM
Okay Cat, I am bringing glitter.  I have these really cool glitter glue sticks that I use for my Sunday School kids...super fun!  ;D

This will be fun on friday.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: *Margaret on April 10, 2008, 03:43:08 AM
I defentally want to come now!
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on April 10, 2008, 03:50:51 AM
Dr T's office on Friday afternoon will be the cool place to be.   ;D
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: *Margaret on April 10, 2008, 04:02:14 AM
Yes, it will be    :D
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on April 10, 2008, 09:06:43 AM
I have legos AND sparkles - can I come too? I can do a happy one legged shimmy while we are there!!!
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Sore knee on April 10, 2008, 11:07:35 AM
I am laughing with the vision of it all, especially your one legged lego sparkly shimmer Tanya.

Don't have lego but could offer stickle bricks if required :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on April 10, 2008, 03:25:03 PM
Hey Brianne,

Glad you have an appointment with Dr T tomorrow. Let us know how you go.

I would love to be there too. Will be there in spirit.

Feel really good after my holiday. My sports physician is really pleased with my progress even though I am still having issues with my left knee which is going to be operated on next month. He said not to worry too much about my right knee as it is probably compensating as a result of my left knee. So, all very positive !!! 

Today I saw my knee physio and is very happy with my quad strength although my knee still buckles when I walk. He wants me to push it hard with my rehab in the next 4 weeks. I have to do about 25 minutes on the bike in the gym each time. After 2 weeks I can do some bike riding on my mountain bike. He said the stronger I am before surgery the better. He also reckons I'll be able to do some sort of sport, keep fit and do some jogging after my surgery. He's a bit more optimistic than my surgeon, but I'm cool with that. Just happy I have a plan and my sports physician, knee physio and knee surgeon are all supportive. It makes such a huge difference. It took a while to get the right team, but I am there now. Just can't wait for the day I can walk unaided !!!!  8)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on April 10, 2008, 07:26:28 PM
My boss sent me this picture today.  This is from November, 2006 after my first TTT on my right knee.  I had no idea how many more TTT's were to come! :-P

http://www.facebook.com/photo.php?pid=794400&l=da02e&id=513106360

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on April 10, 2008, 07:53:56 PM
hehehehehe  -great pic - and the happy face on you :)

Well you got through it all didnt you!!! Well done!

cmon - lets go dance in Dr Ts office!!

hey wouldnt it be funnyif loads of us DID turn up there, Dr T would be looking over his list for the day and his receptionist would be like 'eh theres 50 people out in the office - and the weird thing is, they ALL have bad knees!!!'. He'd be like 'whoooaaa - gotta leave Detroit!!!'.
xx
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on April 10, 2008, 08:50:54 PM
Tanya,

Haha, except for that Dr T's Waiting Room is incredibly small.  It could not even fit 50 people in it! 

I am packing my glitter glue tonight.  Cat, got the legos?

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: *Margaret on April 10, 2008, 08:52:29 PM
oh, what am i bringing???

well sometime we will all have to meet up

margaret
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on April 11, 2008, 01:39:58 PM
I hope Cat remembers her legos!  I have the glitter glue packed!

PARTY in Warren, MI today!  ;D
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on April 11, 2008, 01:41:55 PM
good luck with it Brianne - will check in tonight and see if theres an update!
xx
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Sore knee on April 11, 2008, 01:48:03 PM
Hope it went well. You look happy in that photo, at least it makes me think the aftermath of that op is ok if you can get out and look happy at all.

I am such a wuss
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: KW on April 11, 2008, 01:54:45 PM
I feel so left out!!... :(

Here I am..In Philly...In my office (going for a personal record 2 days in one week)...Getting ready for a meeting with the Tax Department. Fun Fun Fun  ??? ??? ???

Good luck today Brianne.  Hope Dr T can get things to settle down for a little until the hardware can come out!
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: *Margaret on April 11, 2008, 06:35:16 PM
karen, you are not left out, just imagine you are there with brianne and all the rest of us.  ;)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on April 12, 2008, 02:54:05 PM
The waiting room party was way too much fun.  Seriously, I have never had such a good time during Doctors appointment.  It was awesome to meet Lyndsey and Cat.  Now I want to meet more Knee Geeks!   ;D  They must think we are crazy after that appointment.  But wait a minute, Cat...aren't we already crazy?  hehe

So, the verdict is my tibia is healed enough to take the screws out now.  It is insanely early and I will have to really take it easy for a while.  Seeing as how my job right now requires me to be on a construction site 8 hours a day, I will be VERY careful.  Dr T said he has never seen anything like this happen with someones incisions.  Makes me feel special.  :P  I am allergic to some type of metal which I will now investigate. 

Since I was over there I asked Dr T about the pain I have while extending my leg and doing SLR's.  He said it looks like a little bit of scar tissue and what not, which should break up on its own in the next few months as I become more active. 

The good news...my alignment is good.  Dr T was pleased with my x-rays and gave two thumbs up with the alignment.  So, I am starting to feel more hopeful that things really will be fixed this time.  I have a few other issues in my legs, but Dr T is hoping that things are fixed enough to not have to deal with those issues.  I am looking forward to getting more active and resuming more normal activities.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on April 12, 2008, 02:56:52 PM
Thats great Brianne!   thats interesting about the scar tissue. i have that same pain wiht quad sets and extension...i see my doc next friday..will be interesting to hear what he says!
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: cat on April 12, 2008, 03:07:44 PM
Yup, the "party" was a blast and being crazy is what makes life interesting and fun.
Glad you got home safely,
 ;D ;D

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on April 12, 2008, 03:48:42 PM
Hello Brianne, glad your apt went well!  Glad you get to have those screws taken out!!  Hopefully your knee issues are over after that!!!  Have fun investigating that metal type!!! 

Farrah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on April 12, 2008, 04:04:11 PM
Hey Brianne,

Glad you had so much fun and got to meet Lyndsey and Cat. What did you get up to ? Makes me feel jealous not being there.

Wonderful news re your alignment and getting the screws out. When is it scheduled for ?

Enjoy the rest of your weekend !!  :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on April 12, 2008, 08:11:35 PM
Great news Brianne - so sorry I missed the waiting room party!!!

when are you getting the screws out? Great he is pleased with your alignment!
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on April 12, 2008, 11:15:13 PM
The waiting room party was fun.

I'll know next week about the unscrewing.

AWESOME day.  Its raining and crappy, but I had a good day at work.  Then I met my friend at Kohl's and got shoes, a purse, and free make-up.  Then, the awesome part I bought my first size FOUR jeans ever.  Happy day.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: cat on April 12, 2008, 11:41:39 PM
Quote
I bought my first size FOUR jeans ever
Even after last night's desert? :o
   ;D ;D
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on April 13, 2008, 01:34:21 AM
Cat,

Hehe, yes...even after last nights dessert!

I am going to keep the tag to the pants.  Seriously, a 12 6 months ago and now I have bought a size four...awesome.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on April 13, 2008, 02:45:19 AM
Brianne that is great!!!   I want to tell you that you have motivated me.  we started a biggest loser contest at work and we have teams...no one wanted me on their team b/c of my knee....so we drew names....anyway.....i lost 5 pounds in the first week!!!!  everyone is pissed and thinks I cheated somehow...haha....well..the only way I cheated was by eating like crap the week before and now eating perfectly and drinking tons and tons of water.   I know i cant exercise like i used to.....but...I can count calories!!!!   yipeee.....now...I have never been a size 4...i would be happy with a size 8 or 6......im a 10ish now.    you rock!!!!
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on April 14, 2008, 03:26:04 AM
Laura,

AWESOME!!!  Way to kick butt and lose 5 pounds even with a bad knee.  It can be done.  Exercise is only one part of the puzzle, diet is the other and weight loss can happen without a lot of exercise.  Keep kicking butt and show everyone how its done! :)


This weekend has marked the beginning of dealing with some pretty big family issues.  They have been around for years, but they were not getting dealt with.  Now that I have began to deal with them things have gotten really ugly real fast.  Today was such an emotional day and I know that I have many more emtional weeks and months to go.  Out of respect for my family I will not discuss them here in great detail.  I do not know how much I will be around for the next few weeks and months as a result of these issues, but I will try to be around because everyone here is such a great source of support.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: *Margaret on April 14, 2008, 03:45:15 AM
brianne,

hang in there and i know you will get through this. i am here for what ever you kneed. remember i am just a phone call away at anytime of the day.

big hugs

margaret
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on April 14, 2008, 09:00:23 AM
Hey Brianne,
sorry to hear you have family stuff to go through. Ive been through some very rough family stuff myself - Im only a pm away if you ever need to get stuff off your chest.
xx
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on April 14, 2008, 11:54:06 AM
Hey Brianne,

Sorry to hear about the family stuff you are going through. If you ever need anything, just send me a PM or message via facebook.

Take care of yourself. You've definitely been through a rough year or so.

Keep your chin up !!!  :D
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on April 14, 2008, 05:51:47 PM
Brianne, I hope you are okay and everything works out with your personal problems!  We will all miss you if you aren't around, but will definitely be thinking about you!!  I will miss our late night AIM conversations!  :)  Who am I going to talk to when I have questions now???  You are the biggest pro TTTer here!  Haha!  Well I hope everything works out!

Farrah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on April 15, 2008, 02:40:21 AM
Ditto on what everyone else here says.  family stuff is hard......hang in there. dont forget to take care of yourself. no sleep and no nutrition will slow your healing for your knee......esp when you get those screws out.

hang in there!

laura
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on April 15, 2008, 02:52:30 AM
Hey guys, thank you so much for the support from everyone.  It means so much.  Although things are crazy for me right now I realized that I need the support from Knee Geeks as I continue to deal with the knee issues.  So, I'll be around.  I get so much encouragement from this board. 

Exciting news!  I got a new car today.  I mean, a new new car.  Its a 2009 Toyota Carolla.  I have been looking at it for a while and when I woke up this morning gas was $3.60 a gallon.  My old car was a 6 cylindar sports car that got 20 mpg on the highway.  I drive so much for school and so I needed something with better milage.  The Carolla gets up to 41 mpg on the highway with an average of 36.  This will help a lot.  Plus, my dream car has always been a red car and now I have one.  Its so pretty!v  ;D

Question for everyone, especially Laura since I know you have had this problem before.  My lower leg is numb from my surgery.  Everything from above my knee cap to my foot on the inside half is totally numb.  So far both my OS's have said this is normal.  Except for there is so much pain coming from my skin.  I wore shorts all day today even though the high was 42 degrees because the material from my jeans caused horrible pain.  It feels like my leg is on fire all the time.  Last night I was driving home from visiting my dad and every time i hit a pothole I got an aweful electric sensation up my leg.  Its horrible.  When I sleep I have to leave my left leg outside the covers because it hurts too much to have my covers rub on my leg.  Does this sound normal to everyone?  I don't think so, but I also don't know.  If it is normal, it is still horrible and so is there any way to make this lessen?  At least it will be 65 degrees tomorrow so my legs won't get so cold while I am wearing shorts.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on April 15, 2008, 03:06:19 AM
Brianne....congrats on the car.....wooohooo....i need one sooo bad...i have a toyota 4 runner with 170k miles on it....gas guzzler.......yikkes....cost tooo much to get to work.

Ok.  glad you are here still even with your family stuff.  I have had LOTs and lots of incredible family strife in my life if you need any insight PM me and i can tell you that you are normal.


the knee pain/ numbness.  Lets see.   The pain....I have the same topical knee skin pain. I have to this day not worn my jeans b/c when i sit tehy bend on my knee and it hurts a lot. i live in my jog pants or shorts at home and loose dress pants at work.   Lots of things cause me to feel like I have tiny shards of glass under my skin on my knee when they touch them.  At night i often sleep flat on my back b/c it still hurts for the two knees to touch.  My husband will rest his hand on my knee nad I always move it....just the weight or the heat bothers it.  the blankets bother my knee too.....I actually untucked them all from the bed so they arent pulling that tight....

I have the topical pain/numb feeling from about 1 inch about my knee cap to abot 1 inch below it.  It is a dull numbness..not inside...but feels like it is numb about a cm deep......it is creapy and annoying but i had it last surgery so Im not that worried. I think if I can remember correctly my doctor at one point said surface nerves can take up to 18 months to heal up totally...dont think they will hurt that much for that long though.

The shooting nerve pain. i have that on my lateral side of my calf. it feels as if it originates from the fibular head....shoots down the calf at certain positions and with carrying weight....not sure if your nerve pain is all the time down to your foot or just occasional.

if you dont have foot drop or difficulty moving any parts of the foot or toes I woudlnt worry that much yet.  you probably have lots of inflammation from those screw reactions.....

hope that helps. you are not alone. i hope it goes away.......
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on April 15, 2008, 09:25:02 AM
Hey Brianne,
Great news on the car!!
About the numbness, after my TTT I was numb from mid way up my thigh to the ankle - mostly at the front and inside of my leg. I got the pins and needles sensations, it DOES go away - it was only nerves knitting back together. Very annoying, but it doesnt last. I honestly cant remember how long it went on for but not too long before all the sensations went back to normal - i was still numb but without the electric shooting stuff, but over time the numbness went away too and even 5 or 6 years later it was still coming back around my scar area - today 20 years on only the scar itself is numb.
xx
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on April 15, 2008, 11:10:11 AM
Hi Brianne,

That is awesome news about your car. I had always wanted to have a royal blue car after seeing the Mazda 6. Last year I got an ex-demo Mazda 6 Hatch royal blue car and just love it. So much easier to drive than my old Peugeot 306 XT which was like a truck to drive !

Sorry, can't comment on the numbness as I only experienced it around my scar.

Keep enjoying your new car !!  :D
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on April 15, 2008, 12:50:07 PM
Brianne, glad you are sticking around here!  Congrats on the new car!!  Don't let your dog in it :)  J/K  Well sorry about your numbness and pain.  I have numbness, but no pain.  It is just uncomfortable if I touch it.  Jeans are okay on it.  It is a patch on the outside of my scar that's about 3 inches by 4 inches.  I hate it!  It has gotten a lot better since surgery though.  I hope yours gets better for you!  Did you get date for your next screw removal yet?  I hope things get better for you!

Farrah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: trish85 on April 16, 2008, 01:27:13 AM
Hey Brianne

Congrats on the new car.  I'm jealous I need one.

I'm glad to hear that you are still going to be around on here.  We all go through stuff and we all need a support system.  if you ever want to talk or vent you can IM (my SN is on my facebook) me or PM me here.

As for the numbness I have it on L knee (the one just operated on).  Basically my whole knee is numb but it extends done my leg on the lateral side of my tibia I also have been getting pain done my tibia as well (never put those two togeather before)  The pain and electris shock feeling you have I had that on my R knee after my TTT.  It was on the lateral side of the scar and extended down my leg.  I don't remember how long it took to go away but it did.  Now I just have a patch of numbness next to my scar.

I hope all is well
trish
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: cat on April 16, 2008, 04:33:22 AM
The numbness you can live with but the feeling that your leg is on fire does not sound good. I had a brief spell where clothing brushing against a certain area on my leg was very irritating. Felt like sandpaper rubbing against me and so,like you, I wore shorts.  It was decided that I had some sort of neuropathy. I used lidocaine patches and took some sort of medication. (Can't remember what it was.) And the problem eventually cleared up. Maybe you should have that looked at. Your leg isn't changing color or looking shiny, is it?

Enjoy that new toy but be safe,
 ;D ;D

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on April 16, 2008, 04:43:17 AM
The nerve being effected is the saphenous nerve.  Its purely a sensory nerve, so mucles are not being effected.  I have the numb patches around all of my scars, but this is basically my entire lower leg from above my knee to my foot.  I am not so concerned about the numbness, but the burning sensation is horribly painful.  The other thing that concerns me is that I have a lot of swelling that is isolated to the numb area.  I will see if I can find some thing for relief from the burning pain, because it really is getting horrible. 

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: smkelly4kds on April 16, 2008, 03:05:13 PM
Laura - The discription of broken glass was great!  I have had that feeling.  It's terrible!

Brianne - Just got caught up on your diary...wow I really missed a party apparently.  Sounds like you all had lots of fun!  A night out with the girls sounds fun period!  Miss that!  I have had the whole leg numb thing from the knee down, the fire feeling, the shooting nerve pain, and the swelling in the numb areas as well.  My OS just keeps saying its normal.  What is strange is that I lay on my surgery side the whole leg (knee down) goes numb and feels like fire so I end up switching positions.  Which since I am having somuch problem with my other knee now I end up on my stomach or back.  I was told to keep a log of when it goes completely numb and the discription of pain.  I was told there is a nerve in the crease of your knee that can be pinched or can be affected by swelling.   Not sure what the name of the nerve is.  I also had about 4 weeks where I basically was in shorts all the time everything was irritating it.   The fire and broken glass feeling has subsided.  Still numb about 6 inches one way and 3 the other on the outside of my knee (just below).  I have numbing fire pain when I lay on that side still but I have noticed it has gotten a little better the last few days.  Hopefully yours will get better quick.
   With your body rejecting the screws I am sure its compounded things.  You didn't post whether you have the starting of infection or not.  I hope your family situation settles down and you can concentrate solely on healing from that and from you knee surgeries!

melissa
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on April 17, 2008, 03:52:33 AM
I learned today just how much smaller my new car is then my old car.  I went to get into my car and I whacked my left leg on the dash under the steering wheel.  OUCH I was screaming for quite some time over that one!  I guess I will be more careful about entering my car from now on!   :P  Otherwise I am enjoying the new toy a lot.

I WANT THESE SCREWS OUT!!!!!  My leg hurts a lot and I am sure its because my body is trying to get rid of the screws.  I was trying to convince the construction guys at work to take the screws out for me.  lol  No word on the date of the removal yet, but I hope its soon.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on April 17, 2008, 09:29:29 AM
Ouch, Brianne. That must have hurt like hell !!! It's funny because I have the opposite problem with my car. My new car is much bigger than my old one. It took me a while to get used to parking it. OK now though.

I really hope you get a date for your screw removal soon. That's one thing I'm scared of happening. My Dad's screws started coming through his skin when he had has hand operated on and ended up taking them out as his body was rejecting them.

A few people have offered to fix my knee. I said I'd rather a professional do it.  :D
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: cat on April 17, 2008, 12:51:02 PM
LOL, my guy has offered to take my hardware out as well. But I tell him he has to catch me first.
 ;D ;D

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Sore knee on April 17, 2008, 02:12:03 PM
Ouch Brianne, hope you are enjoying the new car (but watching the legs !)

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Sore knee on April 17, 2008, 02:17:27 PM
Brianne

Can I ask you a question, is this link you posted you with an immobiliser brace on ?

http://www.facebook.com/photo.php?pid=794400&l=da02e&id=513106360


If so...forgive me asking but did you always wear it over clothes ?
Whn you wake up from surgery is it on ?
I take it you took it off to shower and wash, could you weight bear straight away ?
My OS told me he did not wish my leg bending at all in the beginning so I am concerned if I take it off that I will bend my leg. So I just wondered how you got your jeans on without bending your leg or did you have help ?


Sorry for what must seem like daft questions....first big op looming and wondering about the practicalities if it all.

I have 2 young children so if you can tell me even the most obvious of things so I know how much help I wil need I would be very grateful as I have no help during the day organised and if its even things like getting dressed I am wondering about. Sorry for jumping on here to ask
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on April 17, 2008, 02:24:14 PM
Joanne,

I pretty much always wore the immobilizer over clothes.  When I had my first TTT's it was on when I woke up but with the revisions and MPFL recons it was not.  My OS uses CPM right out of surgery and so I was without the brace at first.  If you bend your leg a little it is fine, afterall my OS had me bending my leg straght out of surgery.  I will try to answer your other questions later on when I have more time...I best be back to work!

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on April 17, 2008, 05:01:10 PM
I have to share a realization I just had.  Today is four months PO on my right knee.  I was walking across our jobsite today and for the first time ever I realized that my right knee DID NOT HURT!  OMG, it feels amazing and I am so excited.  Now, I am going to still be cautious and not call it a success yet because of how things went last time, but things are certainly pointing in the right direction with my right knee.  My left is definately progressing slower than my right did, but it will get there too.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on April 17, 2008, 05:16:46 PM
yaaaaaaaaaaaay!!!!!!! well done Brianne - come on Lefty - catch up!!
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Sore knee on April 17, 2008, 05:57:59 PM
Brianne
That is great news I am so pleased for you. It makes it worthwhile to have a day like that :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on April 18, 2008, 02:52:20 PM
That is great news. Keep up the good work !!!

I'm counting down the weeks till my surgery. Only 4 weeks to go now.  :D
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on April 19, 2008, 03:41:53 AM
My left knee is retarded.  My knee has hyperextended at least 20-30 times today alone.  Each time my whole knee gives way and I feel like something is moving around.  Its not my patella moving around which I am grateful for, but this left knee is really getting annoying.  I'll just be walking and it will be like my knee will just stop working, it will hyperextend and I will fall over..  A few times this has happened with my leg bent, but it still feels like it is going out on me.  It is very swollen and bruised.  This does not feel like weak quads, I don't know what this feels like.  So the question is, how do I get my left knee to get with the program and stop giving out on me.

Hey, at least my left patella is staying put and my right knee feels fantastic. 

Brianne

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Sore knee on April 19, 2008, 04:26:11 PM
Sorry the lefty is giving you problems. Wish I could offer insight. Have you told your PT ?
The bonus is your right knee feels great so I hope the left catches up soon.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on April 19, 2008, 07:50:22 PM
Joanne,

I see my PT on Monday and I will express my concerns.  It just seems like there is definately something happening in my knee.  There are a lot of little things that are seemingly unrealted and all I have been told to "not worry about."  There is the whole screw thing, my lower leg is numb, I have very sharp pain when I full extend or try a SLR, my knee buckles all the time, and my knee is hugely swollen.  Thats just too many things going on at once.  I will see what my PT says and go from there.  The pain is very bad today, I am having trouble walking and its buckled about 10 times.  I plan to spend the rest of the day sitting and icing.  Maybe I'll take a nap and watch some movies.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on April 20, 2008, 01:51:26 AM
Hello Brianne, sorry your left knee is giving you so many problems!  I have the sharp pain with extension and SLRs too.  My knee buckles about 20 times a day, but doesn't hyperextend.  My knee also gets swollen, but not hugely like you said yours does.  I hope your PT can answer your concerns!  I am sorry your pain is so bad today.  I hope by now it is better.  The gymnastics meet and my knee pain sucked badly today!  I should have been on crutches!  The pain was so bad that during part of the meet, I found a place and laid down on my side to get the stress off my knees.  If I sat with my leg stretched out, it still hurt and put a lot of stress on where the pain was.  Then I had an issue with a floor routine and had to "run" to get something really fast and couldn't do it.  So I hopped on my "good" leg as fast as I could and then that one killed.  Right now I am finally sitting at home and about to start icing for the 4th time today.  My left knee hurts as bad as my right.  Sorry to go on about my issues...I meant to give you some support!!!

Farrah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on April 20, 2008, 11:14:31 AM
Hi Brianne,

Sorry to hear you are having a lot of issues with your left knee. I hope your PT has some answers for you tomorrow.

This week I have done 4 sessions in the gym and one session at clinical pilates and felt really good. Today a friend's husband said "you can't develop muscles doing that many workouts". I felt like hitting him. Think I should know by now as to what works. I have been seeing my OS for over 13 years now and we know what works. Sorry, just needed to vent.

Enjoy the rest of your weekend.

Farrah, sorry to hear that you're in a lot of pain. Hope it settles down.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on April 21, 2008, 06:23:03 PM
I am back from PT.  My PT agreed that my left knee is retarded.  She was concerned about the swelling, pain, buckling, and all that other fun stuff.  We have been increasing my exercises little by little over the past few weeks.  She wants to stop all exercises that cause pain in my knee (which is all of them) for the next week to see if that gets some of the inflammation down in my knee.  If that does not work then she wants me to see my local OS sooner then the planned June appointment.  My right knee continues to feel amazing.  We have named my legs: the right is Seabisquit and the left is Oscar the Grouch. :)  So for the next week I am pretty much going to take it real easy and spend a lot of time sitting, icing, and elevating.  Still no word on my left screw removal date.  My PT does wonder how much of the pain might be because of the screws. 

So if only my left knee could take a few cues from my right.  Seriously, I did not think my right could feel this good.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: KW on April 21, 2008, 06:38:10 PM
Sounds like Dr T's office dropped the ball on your date the have the screws taken out.  Might be worth a call to check in and make sure they did not forget about you  ;)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on April 21, 2008, 06:44:33 PM
Hi brianne,
sorry to hear Lefty has been bothering you. What did PT say about it hyperextending?
xx
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on April 22, 2008, 12:27:13 AM
Hi Brianne,

Sorry to hear that about your left knee. Sometimes we need to take steps back before moving forward again. I would definitely give Dr T's rooms a ring again and remind them of your left knee screw removal.

I am getting very frustrated as my knee surgery still hasn't been approved. It has been a couple of months since I saw my OS when surgery was decided and still no decision yet. I just want it over.

Hope you get a date for your screw removal soon.  :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: lilrosie06 on April 22, 2008, 04:01:50 AM
Brianne....Sorry your knees dont want to get on the same page. That has to be so frustrating. Hopefully things will improve, and you will be ready to go come June!

Donna
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: cat on April 22, 2008, 05:59:11 PM
Maybe Oscar doesn't care for that titanium (or is it steel) diet?  ;) Hopefully you'll get things resolved soon.  ;)
 ;D ;D

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Sore knee on April 22, 2008, 06:40:44 PM
I wish lefty would behave for you and catch up. Fingers crossed a week of rest may improve your situation
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on April 22, 2008, 07:57:05 PM
I finally got a call.  I am getting unscrewed on April 28th.  I also mentioned to Dr T's nurse the fact that I have extreme pain on my medial side.  Its worse today then it was yesterday.  She said that she will make note of it and be sure to have Dr T look at it on Monday.  Oscar is not happy with me today.

I hope that removing the screws will clear up these issues.  The medial pain has just been getting progressively worse as time goes on and I am getting annoyed by it.

Donna,

Good luck with your surgery.  I hope this is the end of it for you.

Brianne



Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on April 22, 2008, 08:03:00 PM
Brianne thats great!!! Less than a week away! I bet youre right - your body just doesnt like the screws, god knows what kind of inflammations they set off and im sure lots of issues will magically clear up once they come out!!

Wow - we get to have another screwy set of posts!!!
xx
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on April 23, 2008, 03:57:58 AM
I do not have to get my screw removed for things to be screwy with this messed up knee.  It buckled again tonight leaving class and I felt my very entire knee shift, not my patella but the whole thing made a loud cracking.  It was so painful and now I can hardly walk and my knee is swollen.  My OS is aware of these problems and will look at them Monday, but this is horribly painful now and I have to get through the next five days with this much pain.  I am going to see about getting in with my local OS because something feels horribly wrong in my knee and I want to get to the bottom of it.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on April 23, 2008, 08:56:10 AM
Hi Brianne,

Great that you have a day for the screw removal. Sorry your left knee is really playing up. I home you get into see your local OS before Monday. Hopefully the screw removal will help solve some of your other issues. Great your right knee is doing wonderful.

I'm still playing the waiting game with the insurance company. What fun ?? Not !!! I spoke to my OS's rooms today as I had a few questions like how much time I'll have to take off gym and pilates. My OS said it depends how my knee responds to the surgery, but said maybe 3 months. I am going to go mental in that time if that's the case !!! My left knee is driving me insane. It keeps coming out medially and also came out laterally when I was in the supermarket today. Just want my operation over and done with.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on April 23, 2008, 05:45:08 PM
Brianne, I hope your pain is better today!  I hope you were able to get an apt with your OS!  Congrats on getting your date finally! 
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on April 23, 2008, 06:11:43 PM
My left knee is not in good shape.  My local OS wants me to wear my PO brace locked until we figure out what is going on with my knee.  My knee is buckling and I fall almost everytime.  We'll start with the screw removal and see if that helps things at all.  I am going to see my local OS after my screw removal.  I am frustrated about all of this, but I am so not ready to give up.  I knew my left knee was going to be a lot harder than my right knee and its definately proving to be true.  So...I will just keep on working at it and hope that this gets resolved soon.  Interestly, when I walk with my brace on and locked I have no pain in my medial side.  When I walk without the brace I have so much pain i can barely put one foot in front of the other.  Hmmm...

Right is great.  That is what keeps me going.

Kirsty,

I am so sorry you are still having trouble with insurance and other things to get all set for your surgery.  As I said before, the process of deciding to have the surgery is emotional enough...insurance companies should not give us as hard of a time as they do.

Brianne 
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: KW on April 23, 2008, 06:24:34 PM
Welcome to my world of feeling like "Forrest Gump"
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on April 23, 2008, 06:30:39 PM
Yeah, being Forrest Gump is awesome.  :P
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Sore knee on April 23, 2008, 07:58:17 PM
 :-* wish I could help you guys more

Hang in there, fingers crossed the screw removal helps you out.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on April 24, 2008, 01:44:28 PM
Hi Brianne,

You have such a positive attitude !!! That is fantastic.

Thanks for your support. I saw my sports physician today and decided that I will have the surgery on the 22nd of May regardless of whether TAC, the insurance company pay or not. It is just starting to affect me too much. I rang the TAC and said that I can have the surgery and will reimburse me if the surgery is approved after my surgery date. So, all a relief right now. Just can't take it much longer.

By the way, I was offered a role with Shell today. So very excited. I start on the 5th of May. It is only 10 minutes from home, which is fantastic !!!

Have a good weekend !!!!  :D :D :D :D :D
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Sore knee on April 24, 2008, 01:54:57 PM
Hope today is good one Brianne and :and that the waking etc is easier on your lefty.


Glad you got your surgery sorted out and congrats on your new job with Shell kjwilkin   :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: smkelly4kds on April 25, 2008, 08:04:45 PM
Brianne

   Sorry to hear you are having so muc touble with your knee but glad to hear the screws are coming out! You have gone through so many surgeries I am amazed you have a positive attitude.  I would be pretty upset with it all.  I hope you get some relief and the doc can figure out why its give out so much! 
   Have a good weekend of rest, ice and relaxation!
melissa
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: chaos on April 25, 2008, 09:45:05 PM
sorry to hear you are having so many problems with lefty.  i am relieved that the right knee feels good.  you are being strong girl.  you have been thru a lot and just keep pushing on.  that is real courage.  good luck with lefts and congrats on right boy.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on April 28, 2008, 10:03:16 PM
BLAH!  I drove all the way over to Detriot this morning, leaving at 5am only to be 10 minutes away and recieve a call that the surgery was cancelled.  I can only assume Basketball is to blame.  I am so frustrated because I think that there should be a better system in place if this is something that has a potential to happen.  I do not know when it will be now, but I can assure everyone that I am an unhappy person right now.

Aside from all of that my knee is horrible and I can barely walk.  I am going to have to make an appointment with my local OS to find out more of what is going on or at least get some relief from all of this pain.  Its just getting worse and worse no matter what I do.

 >:(
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: cat on April 29, 2008, 12:27:58 AM
What? ??? That's awful.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: trish85 on April 29, 2008, 02:32:37 AM
Brianne

I just caught up on everything that is going on with you. I haven't been around for a couple of weeks.  I'm sorry you've had soo much trouble with your left knee. 

I can't believe they canceled the surgery on you so close to the time of it.  Thats really ridiclous.

I'm sending you a big hug it really sounds like you need it right now.

Trish
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on April 29, 2008, 03:25:56 AM
I'm so sorry to hear that your screw removal was cancelled. That is appalling that they left it soooo late to tell you !!

I hope your local OS can help you in some way.  :D :D :D
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on April 29, 2008, 09:07:57 AM
Brianne - that sucks that you were only told so late it was cancelled!!!! ARRRRGGGGGGHHHHHH!!!!!!!!!!!!

whats happening with the screw removal now?
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on April 29, 2008, 03:01:02 PM
Yesterday was a situation beyond my OS's control so I forgive him.  I am rescheduled for tomorrow.  It kind of stinks to be driving back over there, but I need these screws out and I am in a lot of pain and I need an answer.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: smkelly4kds on April 29, 2008, 03:42:16 PM
Glad to hear you will be getting those screws out tomorrow and not having to wait till next week!  Sorry to hear you have so much pain again.  Will be watching to learn what is causing you so much pain!  Hope you start feeling better as soon as the screws are removed!
melissa
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on April 29, 2008, 04:02:40 PM
Good luck tomorrow Brianne - I will be most interested to hear Dr T's thoughts on the subject!
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Sore knee on April 29, 2008, 07:29:17 PM
good luck with the screws and hope it helps you a load :)

Thinking of you
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: trish85 on April 30, 2008, 12:48:24 AM
Best of luck getting your screws out tomorrow.  I hope a that they find the answer to why you are having so much paon.

:)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on April 30, 2008, 12:50:37 AM
Good luck with the screw removal ! I hope you get an apology about it having to be re-scheduled.

Hopefully the screw removal will solve a lot of your problems.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on April 30, 2008, 01:42:00 AM
good luck
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on April 30, 2008, 09:49:13 AM
Good Luck Brianne!!

I hope the screw removal goes well and you get some answers on why Lefty has been playing up so much.
xx
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: cled on April 30, 2008, 09:19:44 PM
Hello all,

I am new to this website and am having mpfl reconstruction and TTT (actually tibial tubercle osteotomy, but same thing i guess) on monday may 5th (left knee).  I have read this thread from the beginning and wish you the best of luck on your screw removal Brianne.  This has been very helpful to read and is the best source of actual recovery information that i have found.  I have had one prior knee surgery in 2001 that included a VMO advancement and lateral release.  My knee was always worse after it.

Anyway, I was wondering if anyone had any input on long flights post surgery.  I am supposed to travel from PA to Brazil 7.5 weeks PO.  Its ~ 10 hour flight.  Any comments or suggestions are appreciated. Since this website was so helpful to me, I also think that I will start a post surgery diary.

Thanks!
Candice
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: KW on April 30, 2008, 10:25:50 PM
Hi Candice,

I can give you some tips on traveling post op TTT (I did not have the MPFL Recon).  I flew from PA to CA at 8 weeks PO then started my normal business travel which puts me away several weeks a month.

1) About 2 weeks before you leave for your trip call the airline and let them know you will need a wheelchair at the airport.  When you check-in they will have one ready to take you to your gate…This should also get you express service through security.  When you get to your destination there should also be a wheelchair waiting to take you to baggage claim…though I can’t say this for sure with International flights

2) If you choose to not get the wheelchair ask where the handicap entrance is for security.  By law there is a Handicap entrance at all security checkpoints…they are just not marked well.  If you ask the TSA person will just tell you to skip the line.  Beats waiting…Esp here in Philly where I am located.

3) Wear shorts or a skirt so your brace is visible (yes you will probably still be in a brace).  Security is going to check your brace very closely.  It is going to be easier if they can clearly see the brace.

4) Take zip loc bags.  The flight attendants will give you ice on the flight if you have something to put it in.  I found that my foot swells badly on the flights.

5) You are not allowed a seat in the emergency access row if you are injured.  I personally do not like the 1st row on most flights.  Most of the time the 1st row has a wall separating business and economy that will prevent you from being able to stretch.  I always take a aisle seat with my surgical leg on the inside.

That’s what I can think of right now…I’m sure I will come up with more.

Best of luck,
Karen
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on May 01, 2008, 01:36:32 AM
Brianne, I hope your screw removal went well today!  I hope they found what your problems have been and are able to fix them!  I hope you are okay!

Farrah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: lb573 on May 01, 2008, 03:42:41 AM
Hey Brianne,

I hope that all went well with your screw removal today!!

Leah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on May 02, 2008, 01:03:51 AM
Candice,

Good luck with your surgery.  At 7.5 weeks after my right MPFL and TTT revision I was having my left MPFL and TTT revision.  My right knee went amazingly well and aside from the screws (fluke) I have had no problems with my right knee recovery.  My left knee has been a bit of a different story.

So its possible that you will feel pretty good and won't have any problems traveling to Brazil after surgery aside from the expected stiffness and soreness.  Or its possible that you will have quite a few problems.  I was out of my brace at 5 weeks PO with the right and 7 weeks PO with the left.  If you are still in a brace or just not moving very well at all I think Karen's suggestions are very good.  It is possible that you will be out of the brace by then. 

From my experiences, the MPFL recon and TTT are a difficult surgery to recover from, but its not impossible.  Expect that ROM will be very difficult in the beginning.  This is normal and nothing to worry about.  Just keep working it and eventually it will get there.


As for my screw removal.  It did happen!  YAY.  My OS also looked at some of the issues I have been having and did a bit of a manipulation because he felt a lot of scar tissue breaking up in the medial area.  He felt and heard some pops which was the scar tissue breaking apart.  I was sedated for this screw removal...not by choice!  He thinks that this could have been causing much if not all of my problems.  As for the numbness I have been having, it is greatly decreased.  My numb area is a whole lot less today which is cool.  My whole leg actually hurts less then it has been.  So here is hoping that the problems have been resolved and I can get on with this recovery.

I am going to hold back in PT for three or so weeks to allow my left knee to heal from the unscrewing.  Then I am going to finally be able to push forward with the bi-lateral rehab.  I never got to this point last year.

My OS noted that my patella is in a good place and its not too mobile.  He did suggest that I do McConnell taping for the next few weeks to give my patella a little support as my VMO is non-existant.  With tape on my knee hurts a lot less.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: cat on May 02, 2008, 01:49:37 AM
Feeling better already? That's fabulous news, Brianne. ;D Did you know you were getting the manipulation? The sedation was probably a good idea for that.

Gotta go. Doing the wizard of oz thing (another tornado watch) and one of my 'Totos' doesn't want to go downstairs. :P
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on May 02, 2008, 02:38:00 AM
Brianne, glad you are already feeling better!!

Farrah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on May 02, 2008, 08:09:42 AM
Brianne,

Glad you are already starting to feel better. Good idea to hold off on physio for a couple of weeks. It will probably do you the world of good to have a break from it.

It is 2 weeks and 6 days till my surgery. I started to freak out how it was all going to work out. Start a new job on Monday with Shell and just want it to work out badly. My kneecap has been coming out laterally and medially. Left a message for my OS about it. Just scared I may have torn my MPFL reco.

Have a good weekend !!!  :D
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on May 02, 2008, 09:01:25 AM
Hi Brianne,
thats fantastic news, so glad the unscrewing went well, and brilliant that the pops and cracks are just scar tissue - i bet youre relieved about that.
So cool that you feel better already - nice to know that you get a bit of a rest from physio before hitting both those legs together!!
well done Brianne, youre an inspiration to all of us on here.
xx
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: lb573 on May 02, 2008, 07:39:20 PM
Hi Brianne! That is great to hear that all went with the unscrewing and your other problems can be attributed to the scar tissue! Glad to hear that you are feeling better,

Leah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: cled on May 05, 2008, 01:36:46 AM
Brianne, 

Glad to hear you're feeling better.  Thanks for the advice too.  Its much appreciated and I must agree with tanyap that you're story is very inspirational.  (I look forward to reading your book when you write it!)  My surgery is tomorrow and I'll start my own post op diary then.   

Karen,

Thanks so much for your advice as well.  I would have never thought to bring some empty baggies!  They are great tips and I plan on using all of them!

Candice
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on May 05, 2008, 04:38:34 AM
Well, mixed knee results.  My left is somewhat feeling better, but not nearly all the way.  My left knee is still buckling, it happened four times in a row today.  I was walking around my yard picking up sticks so my friend can mow it for me tomorrow and it buckled four times in a row.  The really intense pain is gone, but I still have a lot of medial pain and I cannot even attempt a SLR.  So, I will keep waiting, but I am beginning to wonder.

Plus, my left incision is reopening.  AND today my right incision decided to have some fun and reopen.  What the heck!  There are no screws in my legs.  My legs are covered in bandaids and steristrips right now.  They are super sexy looking!  ;D

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on May 05, 2008, 11:38:26 AM
Hey Brianne,

Sorry to hear you're having problems. I really hope your knees settle down soon.

My left knee has a mind of its own too. Counting down the weeks and days till my surgery. Can't wait for it to be over !

Take care.  ;) ;) ;)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on May 07, 2008, 08:33:14 PM
Kirsty,

Its getting really close now!  Are you finally all squared away with insurance and all the other troubles you have been experiencing?  I bet you are looking forward to finally getting this taken care of once and for all.  I know I was glad to finally get my knees done after waiting so long. 


Ugh, frustrating day at PT.  My regular PT was gone due to a family emergency.  So I was supposed to be working with a new guy for the day.  Except he spent the entire time working with another paitent and never once came and talked to me besides for 30 seconds when I was on the bike.  In fact he was in an exam room with the door closed so he could not even see what I was doing.  I finally just told the receptionist that I was leaving.  It was pointless for me to be there if I wasn't even going to be working with anyone.  In understand that things were probably thrown into a little bit of chaos because my PT was gone unexpectedly.  I told the receptionist that I would have gladly rescheduled my appointment if they were too busy at that time.  I found it appaling that I was there but the PT who was supposed to be working with my was gone the entire time.  They better not try to bill my insurance for that appointment, because no one actually did anything to earn any money.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: cled on May 07, 2008, 09:43:33 PM
Hey Brianne,

Sorry to hear about your bad PT experience.  I was in PT for 6 weeks post op and I only showed up to use the equipment at the PT office.  If anyone was watching me to make sure that i was doing the exercises correctly, it was a tech, not a PT.  It totally sucked and I hope that I have a better experience post op.  I also have two friends that are PT's and they both say that they are "encouraged" (read: forced) to take several patients per hour to maximize the profits for the hospital or company that they work for.  Its a crappy way to make a couple bucks and its the patients that suffer.  I hope you do call your insurance company..the more patients that speak up, the better the chance there will be change.  Good luck!

Candice
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on May 09, 2008, 10:28:36 AM
Hi Brianne,

No the insurance crap is still going on. My knee surgeon and sports physician have sent in the letters and been received by the insurance company. My case manager is now saying that the letters can't be reviewed by the consultant till the 30th of May, which is a week after my surgery. This is absolute CRAP !!! I was told by my case manager that they would be reviewed immediately, but they lied to me. So annoyed by all. Just so over it. Almost don't care anymore.

Yes, it's getting closer now. I am wondering whether I will need to get my MPFL reco revised like you. Been experiencing lateral instability as well as medial instability. My knee physio said my OS will look at that when I'm under anaesthesia. Been in a lot of pain. Went to physio yesterday and again tonight after work. In addition to my knee also have a problem with a subluxing peroneal tendon on my left ankle. Together they have been putting my back out cause of the way I am walking. Just want this op over now !!! Sorry for whinging, but just in a lot of pain right now and totally exhausted by this whole thing.

Still haven't got the forms for my operation yet. Don't know what to do. Spoken to my surgeon's rooms and said they'd send them 2 weeks ago. I will be speaking to my sports physician hopefully on Monday and will tell him on Monday. He will probably tell my OS and things will then happen. So, not a very happy chappy right now.

That is absolute crap about your PT session. I reckon you deserve for it to be re-scheduled. Make sure your insurance company doesn't have to pay for it.

Have a good weekend !!!  ;)

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on May 13, 2008, 01:36:54 AM
*knocks on wood*  I almost hate to post this because I'll probably jinx myself.  My left knee is doing really well.  I have very little pain in my shin from my screw removal, the medial pain is really going away, and I have not had my knee buckle for three days.  I hope this is a good sign.  Maybe the three stooges really were causing all my trouble. 

My numb area of skin is driving me crazy, but I am told that this is a good thing.  All day today it felt like someone was electricuting my lower leg...ouch.  But I am told that this means that the skin is waking up.  I hope this is true.

I am holding back in PT for two more weeks to let my left knee settle down.  Then I have an OS appointment and then I will have about 6 more weeks of PT to really work both of my legs.  My hope is to be done with PT by July. 

I certainly hope the end is in sight.  Its about time!
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: cat on May 13, 2008, 03:46:11 AM

Glad to hear you're doing so much better now. Almost makes me want to go ahead and schedule my screw removal....Naw. Think I'll wait and get all the hardware out at one time- one stop shopping.

Take care,
 ;D ;D

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on May 13, 2008, 09:46:18 AM
sssssshhhhhh Brianne - we wont say anything out too loud - just hang in there and let the healing happen :)
great news!!
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on May 13, 2008, 12:52:22 PM
Hi Brianne,

Glad your left knee is doing much better.

I got my forms last night and dropped them off at the hospital tonight.

Feel exhausted as I've had a chest infection I can't get rid of. Saw my doctor today and has put me on some other anti-biotics. He thinks I should be ok for my op next week.

1 week and 2 days to go !!!  :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on May 14, 2008, 12:38:43 AM
I found a new hobby.   :P

I closed my index finger in the car window today, and instinctively I pulled my finger out and dislocated two of the joints.  OUCH.  My finger is so swollen and I cannot bend it or straighten it.   I am fairly certain i broke one of the joints, based on being super swollen and super bruised.

So, now that dislocating my patellas is no longer an option I figured I would dislocated a new joint.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on May 14, 2008, 09:34:44 AM
Brianne!!!!!

I thought we'd agreed you were not allowed to move onto other body parts once your knees were fixed!!!!

You poor thing, have you had them reduced? Did you go to hospital?
Which 2 fingers is it?

We really need to get you a totally different TYPE of hobby!!!!
xx
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on May 14, 2008, 11:01:09 AM
Hi Brianne,

Sorry to hear you injured yourself again !!! You sound like me.

Take care.  :D
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: smkelly4kds on May 14, 2008, 03:37:42 PM
Congrats on your screew removal!   OUCH onthe finger.  I have done that and man it hurts!  I definately think that you need a new hobby that doesnt involve your body  parts!
 :D Melissa
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on May 14, 2008, 07:12:15 PM
Ouch on my finger is right.  Its the right index finger, I popped out the joint at the base and the middle one.  The middle on is the one thats all swollen and bruised.

I thought I put it back in place last night, but I was looking at my finger a few minutes ago and I realized that my finger is twisted and crooked still.  If I hold my hands palm down and my fingers straight ahead my right index finger faces to the side and not upright.  Ouch, ouch, ouch.  I will go to the local Walk-In when I get off work.

As for my new hobby, yeah...I think it needs to involve no body parts.  So maybe I will get back into Photography.  Might be a bit less painful.

For some knee news: I did 10 SLR's with little to no pain at PT today.  I did 30 Short Arc Quads with no pain.  This is a first...and good progress.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: *Margaret on May 14, 2008, 07:24:15 PM
WAY TO GO BRIANNE!!!!!

yes i think the walk in clinic is a good idea, even though i know you do not want more, x-rays beams that you need.
 ;D

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on May 15, 2008, 09:36:37 AM
Brianne!!!
Thats GREAT news about your knees!!!

Not so good about your finger!!! Do go and get that fixed up - last thing you need is yet another joint not behaving itself!
xx
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on May 15, 2008, 10:38:40 AM
Hey Brianne,

Great you are doing well with your knees. Not good about your finger. Definitely get it checked out. I dislocated my finger playing basketball when I was in high school and never been the same since.

Photography sounds like a good hobby.

Tanya and I are on our 1 week countdown today !!  :D
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on May 19, 2008, 03:54:24 PM
Saturday was 5 months PO on my right knee and my right knee feels amazing.  Honestly my right knee feels like a brand new knee. 

My left knee is feeling pretty good, progressing at a snails pace compared to the right, but getting there.  There is a ton of inflammation in my left knee which I am trying to get calmed down.  My PT has been taping my left knee which helps a lot.  My skin hates the tape and is getting pretty chewed up and is breaking out, so we cannot tape it much longer.  We order a Donjoy Tru Pull light brace.  It should be here on Wednesday.  I have the Breg PTO but my skin hates the neoprene. 

I see my local OS in three weeks, June 9th, to evaluate how things are going.  Hopefully I will not have to make another trip to D-town, gas at $4 a gallon is killing me!  I know that my OS is going to want x-rays to see how my screwless tibias are healing.  I hope to get the okay to start to really push it in rehab on June 9th.

I am getting impaitent and starting to do stupid things at work.  I was a bad girl on Saturday at work and did some things that if I told everyone here I would get yelled at for having done!  :P  I did not injure anything and I feel good.  I did try to throw my Breg PTO in the trash, but someone fished it out of the trash...darn!  ;D

I am presenting a scholarship to someone at their Senior Awards Night at a local High School tonight.  I am going to attempt to wear heels for the first time in YEARS.  They are only 1.5 inch heals and they are not bad at all. 

That is all for now...back to work! :)

Brianne

P.S.  I want to create a poll for what my new hobby should be...since knee surgery is no longer an option.  Here are the choices:

a.) Photography
b.) Bike Riding
c.) Rock Climbing
d.) Knitting and crocheting
e.) Scrap booking
f.) Web Design

I am personally leaning toward choice c, but I think some of you might not think that is such a good choice.  ;D  lol

Please vote for what my new hobby should be. :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on May 19, 2008, 04:16:56 PM
I vote Writing,
and come on!!! tell us what bold stuff you were up to!!!!!
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on May 19, 2008, 10:31:36 PM
I'll tell as long as you promise not to get mad at me.  ;D
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on May 20, 2008, 09:16:17 AM
Come ON!!!!!!!!!!
No judgement - I promise!!!

Of course I wont get mad - Im too wrapped up in nerves about my scope on Thursday to get mad at anyone, if you told me you did a bit of parachuting over the weekend Id be like 'wow - wish i could do that!!!'
xx
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on May 20, 2008, 01:00:13 PM
Hi Brianne,

I reckon you should try for scrap booking. It is heaps of fun and so diverse.

Counting down the days till Tanya and I have our ops. 2 days to go.

Great your knees are doing so well. I pray my left knee will respond well to the surgery.  :D
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on May 20, 2008, 05:56:51 PM
Tanya and Kirsty,

Good luck with your Ops on Thursday.  I am sure you are both ready to move on from all these knee issues.

As for my bad actions...I worked on the construction site on Saturday at work.  I helped to lift trusses, I climbed to the top of a ladder, and I crawled around in the rafters of a house.  I wore the dreaded Breg PTO the whole time, but I still got yelled at when I was in the rafters.

I know it was all insane, but I was just feeling so stir crazy.  I love to build things and I have not been able to do any of that for two years.  I went slow and I did not push myself too much.  It was just so nice to be able to be out there building things and constructing houses.

I also tried to throw my Breg PTO in the trash during lunch on Saturday, but someone fished it out of the trash.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: *Margaret on May 20, 2008, 06:12:13 PM
I know who fished it out of the garbage!  ;D
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on May 20, 2008, 06:24:40 PM
Yes you do.  That would be a secret spy for my OS who threatens to rat me out all the time.  :P
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on May 20, 2008, 07:58:07 PM
Brianne!!!!
Youre so funny!!! Climbing ladders!!! Building houses!!! So at what point will I progress to those physio exercises??????
Well at least you were able to do that stuff, I think its a sign - a sign that youre wandering along the far end of Recovery Road eh?
Well done on getting past the dodgy knees!!!
xx
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on May 21, 2008, 09:54:41 AM
Brianne, thanks for the good luck wishes.

Just be careful with your climbing and work on the construction site !!  :D
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on May 22, 2008, 08:01:27 PM
Kirsty,

I hope all went well today...or is it tomorrow over in Australia by now?  Anyway, I hope you are recovering well.

Tanya,

I also hope things well well today for you.  I hope your OS was able to identify your problem and get it fixed.


As for me, I am continuing to misbehave.  I babysat on Tuesday night and I played frisbee with the kids and a little bit of soccer.  We just kicked the ball back and forth, but it felt good to be able to do that.  It feels so amazing to discover things that I can do every day.  I carried a heavy box across the jobsite today...that was an accomplishment.

My left knee still has a ways to go.  SLR's are still a struggle and my VMO is non-existant.  However, my patella is stable and I know I am moving in the right direction....just maybe not as fast as I would like.  I am wearing a Donjoy Tru Pull Light on my left knee.  Its good because it does not need too much support, but just enough to help keep things stable.  Its also not neoprene and it does not bother my skin at all.  I can wear it all day and not be bothered by it, so I am happy.

My assistant for the summer started today and so I am happy.  I am so over loaded at work and the help will be wonderful to have.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: smkelly4kds on May 23, 2008, 04:09:43 AM
so did you get your finger looked at?  It sounds painful. WOW glad to hear you are doing so well this time around with you knees!  Wish I could  say the same!  My rt knee is having problems well not th eknee but the muscle on the outside of the shin below the knee, aches all the time.
   My lft knee is in need of repair like beyond last year and I just keep injuing it.  Just 2 more weeks ! Then I stat the summer healing agin.   Hoping I will be back up to par bythe end of July have a vacation to TN to look forward to, taking the kids tubing downa river....at least I hope to get to do that!  It sounds like so much fun!
melissa
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on May 23, 2008, 10:16:10 AM
Hi Brianne,
both me and Kirsty survived and are doing well - I posted over on my pre op diary some details and a pic of the massive bit of cartilage he removed that was flapping about!!!

sounds like you are practically running marathons!!! Hey dont worry about that VMO - remember mine was so bad they thought it was paralysd and it came back!! Its just a hard one to get going, but you will get there!!

xx
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on May 25, 2008, 11:58:03 AM
so brianne - hows the construction work coming along? Been building any houses the past few days? VERY bold!!!! But so long as youre having fun..... :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on May 26, 2008, 10:12:31 AM
Hi Brianne,

My surgery went well. Started my own post-op diary.

How's your lefty coming along ?
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: austinknee on May 31, 2008, 02:06:12 AM
 ;D  Brianne Im so excited to hear how well you are doing.   I havent been on the site much anymore b/c it became a little overwhelming for me to worry about myself and doubt my knee every minute of the day and also to read everyone elses post I started to think I had what everyone else has.......i was going crazy.  Anyway......back to you...sounds like you are doing very well.  I still have weak quads too.....funny how long it takes to get them back....Im like you...ever day a new thing feels slightly better.  I swam laps today....kicking and everything..havent been able to do that in two years.....now...I have lost ALL cardiovascular fitness and my stroke is awful...but....the knee wasnt totally flopping around everywhere.....yippeee.

Will keep checking in periodically on you!

Laura
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on June 02, 2008, 03:25:54 AM
So its been a while since I have updated.  Things are getting super busy at work.  Its hectic and a little taxing on my knees, but its a lot of fun.  I love the summer time at my job.

My left knee is slowly showing signs of improvement.  I can so SLR's with much less pain then I have had since the surgery.  Its still a bit painful to do SLR's, but this is finally improving.  My numbness is starting to get downright painful.  About 10-15 times a day I will get the sharpest pain ever in my mid-shin and I will usually scream because it hurts so bad.  Its from the nerves trying to fire as it feels like someone electrucuted my leg.  The pain lasts no longer than 2-5 minutes.  I am still assuming that this is normal, but its downright annoying.  this pain happened on Thursday during a meeting I was having with one of our sponsors.  It is kind of embarassing to just be sitting there in a meeting and all of a sudden scream.   :P  Otherwise with my left knee my PT has noted that my patellar tendon is swollen and really tender.  She is wondering if that might be patellar tendonitis.  I see my local OS on June 9th, so I will find out then.  Overall I am pleased with my left knees progress, albeit slow.

In other news, I am getting a hot tub and I am so beyond stoked.  Once my hot tub gets here and is up and running I will pretty much never be on Knee Geeks.   ;D  Haha.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on June 04, 2008, 04:13:01 AM
Hi Brianne,

Glad to hear you are progressing well, albeit a few issues with your left knee. Hopefully they sort themselves out soon.

Most of my swelling has gone, but still on crutches for another 2 weeks.

Go back to see my OS for my post-op appointment next week on Friday.

Have you got your bath yet ? I am getting a basset hound pup in late August, which I can't wait for.  :D
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on June 18, 2008, 09:05:56 PM
Hey, I have not been on a lot recently!  I thought I would pop in and update.

I had an OS appointment on June 9th and things look great.  Both patellas are tracking perfectly and my tibias are healing well without the screws.  Overall my OS was incredibly pleased with the progress.  I have been cleared to do whatever I want...within reason.  So I won't be running any marathons any time soon.   :)  I don't see my OS again for another 6 months.  At that time I hope its the last time we ever have to talk about my knees!  I was on my feet for 2 twelve hour days last week and at the end of the second day my biggest complaint was that my feet were covered in blisters and very sore.  I am done with PT at the end of next week.

My left knee is still lagging behind somewhat, but it is slowly getting there.  I still have some pain when doing SLR's, but that is coming along.  I still have some progress to make, but for the first time I see a light at the end of this very long tunnel.  Will my knees ever be perfect, no, but I do not expect them to be perfect. 

So, I guess my absence is due to the fact that I have been out enjoying life!  I go for at least a 8 mile bike ride every day and a 2 mile walk.  I also go to the beach every evening with my dog.  I did yard work for the first time in years last night.  I am going on a hiking trip to Northern Michigan this weekend.  I am more active then I have been in years!

So...I hope everyone else is doing well.  I also hope that everyone else can find some answers.  A year ago I was told that I had no options and that my knees were just bad.  Now, a year later after finding the right OS for my problem, I am more active then I have ever been.

I'll pop in after my trip and share some pictures from the hike!

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: smkelly4kds on June 18, 2008, 09:09:54 PM
COngrats Brianne!  Sounds like things are going well for you!  Enjoy the hike!  I would love to go...looks like I have a long road ahead of me too.  Hoping for the best but facing the reality.  Hope you take lots of pics!
melissa  ;D
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on June 19, 2008, 12:45:50 AM
Brianne, enjoying life is a good reason to not be around KG!  I am ready for that! Well, not physically ready I guess.  The hike sounds great!  I know you have been planning it for a long time now and it's finally come around and you are physically ready!  You deserve it. 

My company's yearly event is being planned.  It is a canoe trip on July 12!  I at first responded "yes", but then my boss told me there is a portion where you have to get out of the water and carry your canoe around a water fall and then get back in the water.  He said that hike while carrying your canoe is difficult. So he pretty much told me that I can't go!!!!!!  I told him I would ask my PT and OS, but he said no!  UGH!  I know he just cares. 

Well have a good one!

Farrah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on June 19, 2008, 09:15:11 AM
Hi Brianne,
Great update!!! You sound like youre doing soooo well - Im so pleased for you!! Your left leg will catch up, these things can just take time. Such good news about everything tracking so well!! Im delighted to hear that you are able to do so much!! And a hiking trip!!! WOW!!!!!!!!!!!!!!!!! So the 'Dancing on Broadway' audition will be next year right??? hahahahahaha - my right knee will never be perfect either but hey if all we cant do is run marathons then thats not so bad!!

Im hoping to play catchup with you, my scope was 4 weeks ago and I started formal PT 2 weeks ago. Yesterday I went out for a 15 minutes walk on my own - which was a pretty big deal mentally for me but physically it felt fine. My leg still feels slow and weak but STABLE!!!!!!! Cant believe all my problems were just a bad meniscus tear.

Do drop in with hiking trip pics!!!
xx
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on July 03, 2008, 06:28:52 PM
Here is what I hope to be the last update on my diary.

My hiking trip went wonderfully.  I hiked all day on Saturday Jubne 21, including 7 miles up and down a mountain.  It was AWESOME.  My knees are not perfect, but compared to where they were a year ago, they are great.  I still have quad weakness in my left knee and my left leg twists inward.  BUT, compared to where I have been I am thrilled...NO COMPLAINTS from me.

I rejoined the gym.  On a typical day I go for a 2-3 mile walk, a 4-6 mile bike ride, a do the eliptical for 2 miles at the gym, I lift weights, and I take Yoga and Pilates three days a week.  I never sit still these days.  I have lost 50 pounds since last September and I feel amazing...plus my knees feel a lot better not carrying that extra weight around.

ANd...the best news of ALL...I met a guy. :) :) :)  He is super cute and so nice.  We like each other a lot and last night he even made me dinner.  I think he is a keeper! :)

Here are links to my hiking trip.

I am at work, so maybe I'll give more details tonight. 

http://www.facebook.com/album.php?aid=41852&l=acdf7&id=513106360

http://www.facebook.com/album.php?aid=41851&l=28b18&id=513106360

I hope everyone else is doing well.  I also hope that everyone else can find the solutions to their knee problems that I have found.  Its amazing what a difference a year can make. (For those of you who are newer, look at the Diary entitled "Brianne's Left TTT" and you'll know just how far I have come.)  :)

Dr T is my hero.  He gave me my life back.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: lb573 on July 03, 2008, 11:29:26 PM
Hi Brianne,

That is an awesome report!! I can't believe how well you are doing, and how far you have truly come in your knee battle! My hopes are that one day (hopefully sooner than later!) i will be posting such a great message on my post-op diary; my L knee is thus far a complete success, and the R knee we are still working on. I wish you all the very best with everything, and i hope you don't forget about all of us here!!

Leah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on July 16, 2008, 03:14:15 AM
I am unfortunately back.  My knees feel good for the most part, but some strange things have been happening.  Last year I had to get orthotics because I pronated.  Now I supinate quite a bit.  I wore out the outsides of the soles to a new pair of shoes in three weeks.  I have mentioned before that my left leg is starting to turn inwards.  This has happened very quickly and its become very obvious. 

Being active is my goal.  I do not want to lose it now that I can be active once again.  I do so much every day and I love every minute of it and I don't want to risk losing it.  So I am going to go see Dr T once again just to be on the safe side with my knees.  Its really more of a precautionary thing to make sure I can keep being active.  I would hate to run into more problems down the road where they could have been avoided if dealt with sooner.

So, here is an album of my twisted left leg.

http://s56.photobucket.com/albums/g170/ennairb82/twisted/

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on July 18, 2008, 08:57:09 PM
Hey Brianne,
Sorry youre back!!!!
Had a look at those pics - yes lefty is definitely twisted looking. Is there any chance stronger glutes could pull your femur back into position? I am a TINY bit twisted on my right leg - nothing like in your pics. The shoes really tell the tale too.
When are you off to see Dr T?

How fast did it happen?
xx
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Thekaratekid on August 02, 2008, 10:32:36 PM
Hi Brianne,

Thanks for posting on my diary, its good to hear your experiences. I will definatley have a read through yours when I get a little more time.

In the meantime I just had a look at you photos, blimey, Its the first time I have ever seen someone else's knees/legs like mine! My knees seem to sit on the inside of my legs, I used to be flat footed which is what they say caused it  so I wore insoles for almost 2 years I think. It did help for a while and I'm not flatfooted anymore but my knees are still twisted. My left one got much worse after my failed LR but I am hoping the latest op will straighten it a little more. I think its too swollen to tell at the mo.

Did yours look like this before your surgerys or has it only been happening after?

Trace

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on August 07, 2008, 06:45:01 AM
I realized today that I have gained success in my knee battles.  I walked 2 miles and did 4 miles on the eliptical at the gym.  Then when I was at the beach with a group of teens volunteering for Habitat one of the teens fell and broke her ankle.  She had to be carried off the beach a nd it was quite a distance.  I was the one who ended up carrying her (with the help of one other guy) and my knees held up just fine.  A year ago I could not even walk in sand, let alone carry someone through the sand.  So regardless of the small issues I am still dealing with, my knees are a huge improvement over a year ago.  Whatever happens from here is just a bonus.

Today is 6 months PO on my left knee.  I have come a long way and I am happy with the results.

Oh yeah, and I did something really bad today.  I went for a run.  HOLY COW.  I have not ran for YEARS.  I only ran for 1/2 mile and it was in sand, but OH MY, it feel amazing.  I felt like I was running in slow motion with Chariots of Fire in the Background.  HAHA  Seriously, I was quite emotional about having gone for a run.  I do not know what inspired me to do this.  I was out for a walk at the state park and i just decided to run.  Anyhow, it was the most amazing thing.  I have not been "cleared" to run yet and i know it was totally crazy to run...but I just had to do it. :) But before anyone starts to lecture me...it did not hurt at all. :)  I'll wait until I am okay to run to really start to run seriously.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on August 07, 2008, 09:19:58 AM
Brianne - I laughed so much about the chariots of fire music and you running - so funny!!!
Thats fantastic, I am so pleased for you that your knees are doing so well and holding together - stability rocks eh???

Whats happening about your knees turning inwards? Did you go back to see Dr T?

You'll be pleased to hear my knee is doing very well too. I am now walking 1.6 miles a day (i measured it in the car) as part of physio, also still doing my exercises. Havent subluxed once since the scope, still feel a bit weak and wobbly and it feels like my leg doesnt react as fast as the other side (nowhere near running), but it is improving week by week and Ive now managed to even wear different shoes than the same old brown boots and 1 pair of trainers I could tolerate before - a big achievement for me!!!
I did a hike in the mountains last week for 1.5 hours, that was hard work but really good feeling to do it.
xx
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on August 07, 2008, 11:55:03 AM
Running in sand?  Carrying a girl across sand???  You are nuts!

Farrah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on August 07, 2008, 12:16:27 PM
Hi Brianne,

That is so wonderful you've made such good progress with your knees and been such a success.

Just be careful with that running though. I know it's tempting. Mind you I have tried to run crossing a road and was mega painful, so won't try that one again any time soon. Can't believe you carried the girl either.

It is wonderful you are doing so well after all the troubles with your knees.

I am happy to report that my left knee is so much more stable than before my surgery. Can sleep without it coming out and also walk almost unaided without it coming out. My other knee is failing me and may have to undergo yet more surgery. Could scream !!!! Maybe they just need evening up. Seeing my OS for my 3 month post-op review on the 18th of August and then on the 5th of September to review my right knee situation.

Keep up the good work !!
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on August 07, 2008, 03:35:09 PM
Tanya,

Yes, stability rocks.  Thats awesome that your knee seems to be more stable now.  As far as my leg turning inwards, yes I went back to see Dr T.  My femur does twist inwards, but we already knew that.  My hips and glutes are weakened which has caused the twist to be more obvious.  So I am working hard to get my muscles back.  As for now I do not have much pain because of the twisted leg and so I am not concerned about it anymore. 

Farrah,

Yes, I am crazy.  A year ago I could not even walk across the sand, let alone carry someone!  It was seriously not hard for me at all.

I hope everything goes well with your nerve block today.

Kirsty,

Okay, Okay, Okay...I won't make this running thing a regular event until I get the okay from my OS.  But seriously, I did it and it did not hurt.  That was just amazing to me.

Good news about your left knee.  Sorry to hear that your right knee is causing issues.  Sometimes it seems as if you just cannot win, doesn't it?  I know I felt like that many times.


So in all seriousness, it is possible to recover from knee injuries.  I have no doubt in my mind that I will get to where I want to be.  I still have bad days and when those happened I get pretty ticked at my knee.  But, the good days far outweigh the bad days and that is something to be grateful for.

My activity plans for today: 4 miles on the elliptical, pilates, and weight lifting.  Hopefully I won't have to carry anyone across the beach.  :P

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Thekaratekid on August 07, 2008, 08:18:24 PM
Wow Brianne!! that is so cool that you can do all that exercise!

I'm so pleased that your knee has improved so much and you are able to do everything that you would like too. It just goes to show that there is a light at the end of the tunnel in the end, you will the inspiration for many of us!

You have come so far and I really hope things continue to improve for you.

Trace  :)



Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on August 07, 2008, 09:25:44 PM
Hi Brianne,
Im so pleased that Dr T thinks you will be ok with hip/bum strengthening stuff!!! Thats cool.

You are so right to not worry about it - a lot of this stuff resolves itself over time if your body comes back into balance - which yours will so do with all this gym work!!! The last pics I saw of you you looked amazing, now you must be amazing AND toned!!! Yippee!!!!

xx
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on August 08, 2008, 11:10:20 AM
Hi Brianne,

So glad things are going well and Dr T thinks with glute and hip strengthening that it will be ok. Fingers crossed for you.

I really happy about my left knee. So, hoping if I need surgery on the right it will just be as successful.

Enjoy your weekend.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Sore knee on August 19, 2008, 06:14:54 PM
Wow !!! Brianne I am so pleased for you, another success story. Thats amazing and shows how things can worjk out ! I look forward to reading about your future runs :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: TeitgeORPrincess on August 19, 2008, 08:59:20 PM
HEY girlie!
I'm gonna start reading your post op diary but I wanted to say I'm glad you're doing well :) I LOVED your pix you posted in my post op diary; so cute :)

I'm adding you as a friend on facebook so be sure to check!

Lots of love and best healing-

Amb
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: MartinsGirl on August 21, 2008, 03:39:05 AM
Hello Brianne!

I'm going to be like Amberle and try to follow your journal. It has a lot of pages, so perhaps you can summarize for me what happened? You had surgery on BOTH knees?? How did you injure them?? It's hard to go through all of the posts but I want to be up-to-date on it, lol.

Thanks for the Facebook add :) As of now I have 5 KG friends on Facebook (weeeeee!!!!).

Okay, time to go, but I'll stop by to follow your progress on here :)

Your new friend,
~Nevella :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on August 21, 2008, 03:51:46 AM
Nevella,

The short version of my story is that my kneecaps dislocated and were constantly subluxing.  I had a Lateral Release on my right in 12/2002 and it did not help.  So I had a TTT on my right in 10/2006 and on my left in 1/2007 and those did not help either.  By last summer I was unable to walk more than a block or two at a time and I was in constant pain.  So, I went to the most amazing Dr Teitge and he did a TTT revision and MPFL recon on my right knee in 12/2007 and on my left in 2/2008.  Thats a lot of surgery!  Anyhow...I am doing awesome now.  Thats the 30 second version of my knees.

I went to the gym tonight and I did 6.5 miles on the elliptical.  This is actually less then I normally do.  I have been doing 7.5 miles.  I also lifted weights.  Tomorrow I will do about 6 on the elliptical and pilates. 

I am glad we are FB friends.

Talk to you later!

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: MartinsGirl on August 21, 2008, 04:57:09 AM
Hi Brianne,

wow, I need to take lessons from you on being concise, lol. I tend to be longwinded and find it hard to condense things. One question (sorry, I'm clueless), what is "subluxing"?? Obviously it's not good. I guess it means they were moving around on their own?? All these knee acronyms confuse me, lol. TTT, MPFL  ??? I'll try to look them up :) But wow, that's a lot of knee surgeries. So Dr. Teitge was your knee saviour too (just like Amberle). I'm so glad you guys found such an amazing doctor!!

Wow, 6.4 miles is great. I'm too lazy right now to figure out how many kms that is, lol (I'm in canada, so when you guys talk about miles or fahrenheit, I have no idea what you're talking about, lol :)). I love the elliptical machine! I haven't been a member of a gym in a long time. And right now I don't have tons of extra money to spend on a gym membership when I know i'll end up NOT going, lol. I have to stop being so lazy. Now that i'm able to exercise and do pretty much anything, I should get out there and DO stuff!!! I think it's a matter of having the summer off (I'm a teacher---french and phys. ed) so i'm in veg mode, lol. I have to snap out of it b/c i go back to work in 1.5 weeks (yay!!!!)

I think it's awesome all the work you do to help others (I was looking at some of your FB albums). I've done some volunteer stuff through my church, but nothing like going on a mission or working for Habitat for Humanity. You're awesome!!

ok, bed time. TTYS!!!
~Nevella :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on August 21, 2008, 12:27:27 PM
Hi Brianne,

Just want to say how wonderful it is that you're doing so well and able to do so much exercise now !!! Can't believe that !

I have an awesome knee surgeon in Melbourne, Julian Feller. He's been my saviour !!! I never be able to thank him enough.

Keep up the good work in the gym. I hope to start back in the gym in about 3 weeks.  Just not sure how my knee will react after the trochleoplasty. 8)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on August 21, 2008, 07:20:27 PM
Nevella,

A TTT is short for Tibial Tubercle Transfer.  The Tibial Tubercle is the bump on the tibia where the patellar tendon attaches.  The surgery involves cutting the tibial tubercle and most often moving it to a more medial position.  The the case of my revision it was to move the tubercke downward in order to correct my patella alta.  An MPFL is the Medial Patella Femoral Ligament.  It is on the inside of the knee and it helps hold the patella in its place.  Mine was torn due to full dislocations.

A dislocation is when the patella comes completely out of the groove and remains there.  Its a horribly painful thing.  More common is a subluxation which is where the patella partially moves out of the groove.  People often use these terms interchangably...although they are different.

So I hope this helps to clarify some terms for you.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on August 22, 2008, 12:14:32 AM
Nevella, a TTT is the same thing that I had...a Fulkerson Osteotomy.  There are so many surgeries for a knee that it's hard to keep them all straight!  I hope your OS appt went well today Nevella. 

Hi Brianne.  I hope your exercise is still making you feel so great!  I had my 3rd nerve block today and can't wait to forget the events after it! 

Farrah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: MartinsGirl on August 22, 2008, 01:30:57 AM
Thanks Brianne and Farrah (for explaining)!

Farrah, you seem to be on a lot of threads, lol. Popular girl :P yes it it confusing with all the knee lingo, and also following a few threads so I have to try and keep track of who is going through what (but I love doing it.....trying to help encourage people, make new friends, etc).

Brianne, how are you feeling today??? I'm impressed by all of your daily exercises. i need to get off my sorry butt and exercise too. :)

have a good night :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on August 22, 2008, 01:38:55 AM
Nevella,

I hit it hard at the gym again today.  It just feels so good to be able to work out.  Today I did 7 miles on the elliptical in 53 minutes.  Whew!  My legs are going to be sore.  Thats 11.26 KM for the rest of the world.  I also did a 55 minute pilates class. 

I keep thinking that I am doing too much and I should back off, but so far things just keep feeling better and better.  So...no backing off for me at this point.  I actually had my assistant today comment on how my quads looked much more defined now then they did even two months ago.  I have so much muscle to regain.

Working out is hard to motivate yourself to do.  Once I got to the point where I was ready, it was a lot easier.  I work out 6 days a week and I think about it all the time.  I look forward to working out every day.

How are you doing today?

Brianne

P.S.  Farrah, I read your diary.  Glad the pain is reduced.  Sorry that everything else happened.  We'll chat sometime soon on AIM.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: MartinsGirl on August 22, 2008, 01:48:36 AM
Hey Brianne,

Wow, I'm thinking i should get AIM.  Seems a lot of you guys have it. I have MSN Messenger, but I only go on it to chat with Farrah, lol.

I'm so encouraged by how active you are. I have no excuse not to do anything. I don't have a gym membership, but I can still ride my bike (my exercise bike or mountain bike) or go on my trampoline, or even just dance for an hour, lol. I don't think you're pushing too hard or doing too much. Your body (knees) would tell you if you were. And i'm sure you were given the A-okay to exercise again. 

I need to regain my quad strength (it atrophied while I was on crutches for 6 weeks back on October/november and i hate doing my boring leg exercises to strengthen it, so progress is slow). It's getting better as I go for walks and I go on my trampoline, etc.

What exactly do you do in pilates?? I get so confused b/c there's Tai Chi, yoga, etc. Does pilates involve lots of bending of the knee?? I still can't bend heel-to-butt (and likely never will get that last 5 degrees or so of flexion), so i don't want to sign up for a class that would be too hard on my flexion. I might join an exercise class at my local gym this fall. Do you do swimming too??

I'm doing okay today. I had my OS visit to get the results of my follow-up MRI. But after waiting over an hour i had to leave (my fiance Martin had an appointment across town, so we had to go). But this MRI wasn't really needed. I've been "healed" for a couple of months, but my OS is just an extra cautious guy (very caring) who wanted to do one more MRI just "to see", ya know? So i called his offfice tonight and asked them to simply phone me to let me know if i need to come back and see him (i.e. if my MRI showed anything). But i doubt it would since even with my initial injury, the MRi didn't show very much (except for my microfracture. but it didn't show my meniscus tear, which was my main issue). So yeah, I had a fun day in Toronto with Martin :)

so when's your next project? By that I mean all those projects you seem to do (from your Facebook albums) like Habitat for Humanity, etc. I'd like to try that some day.

Have a great night!!!! :)
~Nevella :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on August 25, 2008, 08:17:41 PM
Nevella,

Pilates has many variations.  I mostly do pilates mat work.  Its not too hard on my knees.  The only things I cannot do are kneeling for too long.  My Tuesday class instructor actually makes the class more arobic then pilates which is kind of annoying because my knees are still not a big fan of that.  My Thursday instructor and my Monday instructor are great.  On Thursdays we also do a lot of balancing work which has been great for building up leg muscles.  I have much better balance after only two months of working on it.  The nice thing about going to a Gym to do Pilates and other workout things is that the instructor can help to modify the activities that are not so knee friendly.  Yoga is also great for building core strength.  Yoga is also a lot of balancing work.

I am going to do 6 miles on the elliptical today as well as Pilates.  I am kind of being lazy right now and cannot seem to get myself to go to the gym.  Haha.   Its my days off and I do not want to do anything! lol

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: MartinsGirl on August 25, 2008, 11:06:00 PM
Hi Brianne!

Thanks for explaining! Today I begin a new at-home exercise routine (my fiance helped me design a program). 25 mins on my exercise bike to warm up and then get a bit of a work out. Followed by 20 mins on my exercise ball and on my mat doing strenghtening exercises and stuff like ab work (sit ups, leg ups, etc). Then ending off with 15 mins on my mini trampoline. I hope I can stick to it! I need to find motivation, lol. Hopefully working out while Judge Judy is on will give me that motivation, lol. I love that show!! have a great evening :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Sore knee on September 11, 2008, 07:25:00 PM
Brianne

I am so pleased for you, your news is just better and better and I am so pleased when I read your gym results. It gives me hope !!!!

Way to go and I look forward to comparing "ben" notes
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on September 12, 2008, 10:20:19 AM
Hi Brianne,

Wonderful that you are doing so well and doing so much activity. That is where I would like to go to one day.

I am still pretty limited in what I can do. My bone pain still hasn't settled down, so my OS doesn't want me going to the gym yet. My other knee is absolute killing me. I see my OS in mid November so will be interesting to see what he says. Just don't know how much of my bone pain is connected to my early arthritis.

Nevalla, not sure if you have access to it where you are but clinical pilates is a fantastic thing to do if you are limited in what you can do. With a clinical pilates program you are usually assessed by a PT and they develop a program specifically for you depending on your strengths and weaknesses. My clinical pilates sessions are taken by a physiotherapist and makes a big difference to me. I am pretty limited in what I can do due to knee, ankle, shoulder and back problems.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on September 13, 2008, 05:43:20 AM
Joanne,

My "Ben" is a Cairn Terrorist and his new name is "Osama Benny Laden".  The dog is too stinking smart for his own good.   I got a trashcan with a lid for the bathroom because he was always pulling kleenexes out of the trash.  The trash can has a foot lever that you step on to open it.  Well the little terrorist figured out how to step on the lever and open the lid.  He does that and then sticks his head inside and pulls out the kleenex.  GAH.  The dog is too smart and it drive me nuts.  HAHA.  I love the little guy.

Kirsty,

I really wish that everyone could have the same results that I have experienced.  I really feel blessed and so very lucky to have recovered the way I have.  I still have a few issues to deal with, but on the whole I have nothing to complain about.

Yesterday I did 7 miles in 49 minutes on the elliptical.  I wish I could be running right now, but until then I will be happy doing the elliptical.  I also did pilates/yoga for an hour.  My balance is really improving although yesterday I was just off all together.  I skipped the gym today because my friends called and asked me to go out with them right as I was on my way to the gym.  I would have preferred to go to the gym but I know that I cannot have a social life if I spend all my friday nights on an elliptical machine and lifting weights.  So I went out and had a great time.  I normally take Sunday off from working out and so now I won't.  Its all good.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on September 27, 2008, 09:02:17 PM
I have reached another milestone in my recovery.  I went roller blading for the first time in 3 years today!!!!!  The last time I went roller blading in 2005 my left patella dislocated.  Not today!  It felt amazing and I am going to go again in a few minutes.  I was slow and cautious at first but my confidence quickly grew and it was wonderful.  I used to live for roller blading but after too many patella dislocations I had to hang up my blades three years ago.  It feels amazing to be back at it again!

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Thekaratekid on September 28, 2008, 12:59:00 PM
Hi ya Brianne,

Thats fantastic news!!!!!!!! ;D ;D ;D

I'm so pleased for ya, its great that you can do something that you love again. Looks like you've found your new hobby  ;).

Trace
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Davori on September 29, 2008, 04:45:02 PM
WOW bri... you almost have me convinced to work out... you have so much enegry!!! Im very happy for you on your milestone... rollerblading????  Im impressed! Not just for the physical part of it...but overcoming the fear to even attempt it!!! You Go Girl... keep imspiring us with your stories....

Nevella... sexapalooza isnt motivation enough?????

Lori
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on September 30, 2008, 05:56:26 PM
Lori...you can do it...working out is so wonderful and so fulfilling.  I feel amazing after I work out.  Yesterday I swam a mile and did the elliptical for 5 miles.  I feel amazing when I am done.  I also lifted weights a bit.  My energy is through the roof these days. 

Roller Blading is so much fun.  I am starting slow...like I figure for the first week or two I will stay in my neighborhood which is not really any cars and no hills.  Once I feel good with that I will venture to something more challenging.  But yeah...to even be able to roller blade is amazing enough for me.

I hope that others can read my diary and read about all the things I have been doing and be encouraged.  It is possible to be active again after TTT's and MPFL recons.  But, its not without a ton of hard work and determination.  My knees will never be perfect and will never be 100%, but they are better which is enough for me.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Davori on October 02, 2008, 05:01:19 PM
Bri I posted a question on my thread but thought perhaps you of all could give me insight.... tyler is at 16 days post op and is beginning to wb... only a little... but its a start... Do you think he could possibly have 2nd surgery done in 2 weeks??? Many reasons for proceding so soon  mostly financial...and educational... but I guess if he has to be out.... might as well do it up.. and get it over with sooner than later.... what are your thoughts????? His pain is tollerable. even without meds .. and only issue is discomfort trying to sleep....  My biggest problem is helping him up and to the potty the 1st 2 weeks.....??????? So confused...   Lori
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on October 02, 2008, 05:54:55 PM
Lori,

My opinion would be wait.  Tyler needs more time to recover.  The past two weeks have clearly been very hard on him both emotionally and physically.  Not to mention they have been hard for you and the rest of the family.  Tyler struggled to even get himself off the couch to go to the bathroom.  I did mine 7 weeks apart, but I am older and I think being older makes it easier to handle it emotionally.  If Tyler has his other knee done in just two weeks he will be very much unable to care for himself at all.  His first knee will not be anywhere near ready to handle to weight bearing burden.

There might be financial gains or benefits for having the surgery sooner, but do not let this be a deciding factor.  When it comes to a major surgery such as a TTT do not be rushed into it because of money.  I could have rushed some of my surgeries and it would have saved me thousands of dollars, but when it comes to something as important as knees, pay what you have to pay to get them done right.

Additionally, its still early to tell if the first surgery has made a difference for Tyler.  He is still rehabbing and it will be a while until you know if there will be any improvements.  You would not want to jump into the second surgery and then discover that neither one was benefical for Tyler.  Waiting even another 4-6 weeks from now will give you a better idea.

I do not say this next part to be mean or anything...Tyler is young and incredibly strong for a 13 year old boy.  With that said, I read on your diary about the early days and how much Tyler was unwilling to even get off the couch to go to the bathroom because of the pain.  This seems a bit extreme to me, I was up and moving around on my own by the day after surgery.  I was in pain, but I did it.  What is going to happen when he is in too much pain to even want to get up at all after his second surgery?  This also seems to have been really emotionally difficult for him.  I do not think he will be ready to handle this surgery all over again in just two weeks.  I had mine 7 weeks apart at the age of 25 and it was hard on me.  I could not have done it at 13 years old. 

My opinion is wait.  He might want to get back to Basketball as soon as he can, but he is young and knees are too important to rush.  Do not let his OS make you feel like you HAVE to have this second surgery in only two more weeks.  You have to make a decision that will be best for Tyler's physical and emotional well being.  If it means he needs to wait then that it what should be done.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on October 20, 2008, 03:28:36 AM
I have big and excited news!  I am not twisted any more...at least not my legs. :)  I saw Dr T in July and he told me to work on building up my hips and glutes to help my legs stay "straighter".  Well, today at the gym I noticed that my left leg (the twisted one) looked really straight.  I think my nearly four months of hard work have paid off.  This is an encouragement for me.

Before(June):
(http://i56.photobucket.com/albums/g170/ennairb82/DSC_0289.jpg)

After (October):
(http://i56.photobucket.com/albums/g170/ennairb82/twisted/DSC_0584.jpg)


Its nice to know that I am a little less twisted.  ;D
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: arkitect06 on October 21, 2008, 08:35:27 PM
Hey Brianne...less twisted and a lot stronger!

Good job!

Farrah
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on October 21, 2008, 10:04:57 PM
wow Brianne - thats amazing!!!

could you post your 'de-twisting' exercises please? Ive a little twist, its there years with no change but id be interested in working on it!
x
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Thekaratekid on October 22, 2008, 05:52:47 PM
Hi Brianne,

Thats fantastic, well done, your hard work has defo paid off!!

I second Tanya please can you tell us what you exercises were? I have been trying to sort my twist out for years and never really got anywhere.

You are my inspiration at the moment, you are doing so well and reading your thread has really cheered me up.  ;D

Trace
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on October 22, 2008, 07:19:54 PM
I am so glad that my thread can be an insipiration.  There is life after knee surgery and its possible to have problems fixed. (And in the case of my "twistedness" I am thrilled that it did not involve surgery.)

Building muscle goes a long long way.  The biggest thing I have discovered is that just building your muscles in PT does not nearly get them built back up the way they need to be.  I left PT in June and I was told my muscles were nice and strong.  Four months later I look back at pictures and my legs look pathetic because I had no muscle.  My legs a pretty cool looking now.  I find myself admiring my rock solid legs in the mirror whenever I am getting ready for work.  hehe!

Here is my daily workout/activity:

Monday: 4 mile walk with Benny.  5 miles on the elliptical.  Weight lifting, lower body and core emphasis.  20 minutes of pilates, lower body emphasis.

Tuesday: 4 mile walk with Benny.  5 miles on the elliptical.  1.5 mile swim.  Weight lifting, upper body emphasis.  1 hour of pilates/yoga.

Wednesday: 4 mile walk with Benny.  8 miles on the elliptical.  Weight lifting, lower body and core emphasis.  20 minutes of yoga.

Thursday: 4 mile walk with Benny.  5 miles on elliptical.  1.5 mile swim.  Weight lifting, upper body emphasis.  1 hour of pilates/yoga.

Friday: 5 mile walk with Benny.  3 miles on elliptical (This is done for speed, my current best time is 18:20, my goal is to break 18 minutes  :)) weight lifting, upper body emphasis. 20 minutes of Yoga.

Saturday: MY EASY DAY!!!!! :)  5 mile walk with Benny.

Sunday: 5 mile walk with Benny.  8 miles on elliptical.  weight lifting, total body.  1 hour of yoga or pilates.

Whew, I am tired just listing it all.  I have also tailored my diet to really maximize my high energy levels.  Focusing on my diet really helps.

This will be different for everyone, but this works for me.  I do not have pain and I rarely get sore.  I really focus on my quads, hips, and glutes whenever I am at the gym.  I am finding that surgery does not just cause your legs to get weak, but your whole body.  So the more I can get my whole body strong again, the better everything feels.  I also make a point of stretching every day to work on muscle flexibility.

I am so tickled that building my leg muscles really did help to overcome my twist.  I just cannot stress how much better I feel.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Thekaratekid on October 22, 2008, 08:58:16 PM
Hi ya Brianne,

Thanks for that, wow I'm amazed at how much you are able to do in one day now! Good for you sticking to it as well.

How did you build up to doing all that?

I am 13 weeks post MPFL recon and am finding I can only walk about a mile at the mo as long as I haven't driven before. I find my knee swells and gets sore and unstable unless I have a rest with my legs straight for a while after that. Can you remember what you were doing at 13 weeks post op? Did you find your knee improved generally once you got your bend fully back?

I agree diet seems to make a big difference with recovery, I am finding my body is craving quite a bit or protein right now, are you similar?

Sorry for all the questions, I hope you don't mind.

I'm so happy for you that you have come on so well, and that you are feeling so much better. You have given me hope and I'm sure many others on this board too.

Trace
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Davori on October 22, 2008, 11:32:19 PM
weeeeet wheeeeeew..... thats my attempt at an online whistle.... ;) :D great job at getting legs back.... and yes    you are an inspiration to us all...... It just goes to show what some hard work can do.!! If I could just get Tyler to do as much.... in his defensetho I must say he has come along pretty well... the 1st 2 weeks were not fun at all... but progress every day.     We did have to go ahead and sched the 2nd surgery.... his other knee gave us a time  and its starting to give... so rather than dislocate again the OS wants to git r done!   eeeeesh... Im confident that we will get thu this.... and with the support of all the KGs I will be a little more grey...but fine in the end....... possitive thoughts...... we are only 12 hour away from the next phase... and we will soon have legs like yours... :) :D  just a boy version... lol
                                                      Hugs  Lori
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on October 23, 2008, 03:40:32 AM
Trace,

I find that I need to eat a lot of protein.  My body does a lot better when I have lots of protein in my diet.  I try to stick with lean protein such as tuna, turkey, or chicken.  I also eat cottage cheese which is a good source of protein.  The other thing I make sure I have enough of in my diet is calcium.

As far as my ROM after my surgery went, it is hard after the MPFL recon.  You might want to try this...I was supposed to have full ROM as per my local OS by my 6 week PO visit and two days before I could barely make 90-95 degrees.  I backed off as my knee was feeling irratated and did not try any ROM for a full day.  Then the morning of my PO visit I woke up and was able to make it to 120 with little effort.  It seems my knee just needed a bit of a break.

As for walking at 13 weeks PO...I was walking okay.  I still had a ton of buckling at 13 weeks PO...even fell a few times. 

Lori,

Best wishes to Tyler tomorrow.  I hope everything goes well and he makes it through with no problems.


As for me...I stated earlier that my goal was to do 3 miles on the elliptical in under 18 minutes.  Well, I did 3 miles in 17:58 tonight!!!  BUT, I did not stop there (anyone who knows me will know that I never know when to stop)  I thought to myself "hmmm, lets see how much longer I can keep up this six minute mile pace..." so I keep going along at that pace.  I did not stop until I reached 9 miles in 53:57!!!!  Oh my gosh.  I cannot believe I did that.  I would have gone for 10 in 60 minutes but I had the worlds worst side cramp that would not go away.  But still, thats amazing.  I have big hopes for when I can run again.

Brianne 
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Davori on October 23, 2008, 04:04:51 AM
bri....
I am so proud of you.....Good JOB!!!! YAY!!!!  Im glad you quit while you were ahead though.. You met your goal, and pushed a little beyond that... thats enough....for now. we dont need you pushing too hard and having a setback.!! I really wish I had your tenacity.... for working out. Its easier for me to push Tyler... but I know that if it were me....I would do only the min. amount... just enough to get better. The rest of my excercises would come from everyday activities..... lol  I just dont have the disaplin to follow a sched. like you....  :D :D :D    Have a good night.... ill post sometime tomorrow after we get back from surgical center.......... Hugs    Lori
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Thekaratekid on October 23, 2008, 05:36:30 PM
Thanks for that Brianne,

Maybe I will give my knee a break for a day and see if it makes the bend easier. I feel reassured that you will still getting buckling then too, I have fell on my bum quite a few times now lol,  normally at the end of the day when my knee is tired.

Well done on your 6 minute miles!!!!!!!!! That is so fantastic, there are not many healthy normal adults that could do that! :)

Good to hear your still making so much progress.

Trace
 
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on October 28, 2008, 01:54:50 PM
I love that everything is always so good with my knees these days.  However...today is a bit different.  I am hoping this is going to turn out to be nothing.  We have recieved about 2-3 inches of wet and heavy snow...as in slippery snow...in the past 12 hours.  I slipped in the snow this morning and lost my balance.  It really did not hurt, but my left osteotomy site has swollen up pretty huge and is starting to bruise a lot.
It hurts now when I walk, like a sharp stabbing pain.  Blah.  But Hey, at least my actual knees feel good.

I'll skip the gym tonight.  YES, read that, I am going to skip the gym tonight.  I need some new work pants as all of mine do not fit anymore so I am going to go shopping for some tonight.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on October 29, 2008, 10:03:22 AM
Hi Brianne,

You are an inspiration to us all. I hope to reach your level one day.

I've had a bit of a setback. Last week I had to see an independent OS as part of the TAC. He was very rough with my knees and has caused injuries to both knees. Ended up in hospital on Sunday night. I've got the rest of the week off to get the pain under control. Feeling a lot better mentally.

Chat soon.  :D
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Thekaratekid on October 29, 2008, 08:16:18 PM
Hi ya Brianne,

Sorry to hear that you slipped in the snow. How is your leg now has the swelling gone down?

Very sensible to skip the gym when your hurt, shopping is fun, did you manage to get what you wanted?

Trace

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Davori on October 30, 2008, 03:54:52 PM
Hi Bri... I just wanted to check in and see how you are doing.... How is the knee after your fall ? Take care and keep us posted... Hoping your not feeling pain...... Lori
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: brianne on October 30, 2008, 05:36:49 PM
The swelling is down and the bruising is down.  My leg feels a lot better.  I skipped the gym Tuesday and did the bike and swam a bit yesterday.  Tonight I think I am going to do Yoga and bike.  I want to give myself a few days of feeling better before I go 100% in the gym again.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: tanyap on November 19, 2008, 08:18:08 PM
Has Brianne left KG?
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: *Margaret on November 20, 2008, 05:22:21 AM
yes she has
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: fraud_ninja on July 28, 2009, 11:02:46 PM
For those of you who do not know or have not noticed...the Fraud_Ninja is Brianne! 

I thought it would be fun to actually update on how I am doing...to share my huge success story...to hopefully encourage others....or something like that.

Its 19 months Post-Op on my right knee and 17 months PO on my left.  Although there were a few minor bumps along the way, things are going amazingly well.  My knees pretty much give me no problems or pain anymore.  They might get a tad sore if I do too much, but it takes a lot to do that.  I can do anything I want...water ski, dance, run, play sports (including twisting sports such as basketball and soccer.)  I have recently taken up biking (although it is easier on the knees, thats not why I took it up...I took it up to be hard core and race through the woods and such).  I run 6 miles every other day.  I take Yoga, Pilates, areobics, latin dance, do the elliptical for hours at a time, lift weights, do plyometrics, and go hiking as much as I can. 

The best part of it all?  I have recently begun training for a half ironman triathalon.  I AM SO EXCITED.  A half ironman is 1.2 miles swimming, 56 miles biking, and 13.1 miles running.  The race actually is not until next year.  I have a 24 week training plan that will officially start in the end of January.  In the six months until then I am working on building up endurance, doing some practice races as shorter distances, and just staying in shape.  I'll keep everyone posted of my progress on that one.

Its amazing the difference my surgery has made.  My OS is officially my hero. 
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Clarkey on August 08, 2009, 10:30:10 AM
Hi Brianne,

I am so pleased for you that surgery was a success for you and can now do things you could not do before. I know you were in a similar situation to me that you could not run anymore and could not compete in sports activities because of your knee but had a few scopes and can now run again. I love to be able to run again some day as I use to enjoy going for a jog around my district and only last night had a dream that I could run again and felt great during my dream that I was running once again and hope that dream comes true and will be able to run again with the help of Mr Green my OS.

We mostly hear negative comments about knee surgery on KG so nice to hear some positive outcomes of knee surgery. Good luck in competing for the triathalon its good to have a goal to aim for and I am sure you will do well in the triathalon.

Take care.

Nick :) {2009} :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: fraud_ninja on August 24, 2009, 08:02:31 PM
Whoops, spoke too soon.   >:(  The knees are continuing to be amazing, but I am laid up with a new problem, or more specifically the return of an old injury.

When I was 16 years old I severely sprained my right ankle.  It never felt right after that and although I saw at least three OS's they all said the same thing that it was just in my head...the ankle was healed and I needed to get back out there.  I never really did because then my knees became an issue and kept me from doing too much.  Well fast forward 10 years and now that my knees feel perfect I am as active as ever and the ankle problem has resurfaced. 

It turns out that I have peroneal tendon subluxation.  I sprained my ankle pretty badly about three weeks ago and this is the result.  I have an MRI on Thursday to check for other damage.  I follow-up with my OS on Wednesday next week and have been told that surgery is really the only option...so I expect to schedule surgery next week. 

I figure the knees out and now the ankle comes back to haunt me.  I guess 7 knee surgeries was not enough.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Clarkey on August 25, 2009, 07:50:44 PM
Hi Brianne,

Sorry to hear your ankle is now giving you problems and must be so annoying for you now your knees are more and less back to normal. Cant be a nice feeling knowing you may need more surgery after all you knee surgeries. Its funny how some people are unlucky and have lots of surgeries while others never have any throughout most of thier lives.

Good luck with follow up appoitment next week Wednesday.

Nick :) {2009} :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: crankerchick on August 26, 2009, 06:27:15 PM
Brianne,

Sorry to hear about your ankle injury, but so happy to read about your successes with your knee. I have been "lurking" just reading up on old diaries to help me prepare for my surgery in October and yours is one that I have been reading lately. Thanks for your tips you posted in my threads and I wish you a speedy recovery with your ankle.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on August 27, 2009, 11:12:07 AM
Hi Brianne,

Don't worry, things will sort themselves out.

As you know I have had peroneal tendon subluxation and is very painful. Not a lot you can do conservatively.

I had my ankle reconstructed about 3 years ago and peroneal tendon was re-attached to the bone. Had the surgery about 3 years ago and is so stable now. It has made a huge difference to my life.

Good luck with your MRI and seeing your OS next week.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: fraud_ninja on August 27, 2009, 03:41:02 PM
Thanks for the support.  I have to say I am freaking out about this upcoming surgery more then I ever did about my knees.  I am not scared of the actual process of the surgery...I am very familiar with that...rather I am freaking out about the fact that I am having more surgery to begin with.  I dread the pain, the rehab, the not being able to be active.  I think I accepted that my knees were bad and dealt with the surgeries accordingly.  I never expected that I would have a new joint require surgery.  I do have a really great OS who is very much on top of the situation and very much looking out for me, so I am going to try not to worry so much.  My MRI is in 2 hours.

Kirsty, I have found the peroneal tendon subluxation to be far more painful than my unstable kneecaps were.  So many people keep asking me why I am willing to have more surgery and have asked me if maybe this is something that will sort itself out over time.  I am trying to explain to people that peroneal tendon subluxation pretty much always requires surgery.  I certainly wish that was not the case, but it is.

Anyhow, thanks again for the support.  I will keep everyone posted.

I am determined to still compete in the triathalon I was beginning to train for.  Its still 11 months away, so I am hoping I can get rehabbed in time.  I will not push myself too much, but it will give me a goal to train towards.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: cat on August 27, 2009, 04:49:05 PM
Make sure you smile purdy for your pics today,
  ;) cat  ;)

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Clarkey on August 27, 2009, 05:54:16 PM
Hi Brianne,

I am sure your ankle will be ok again once you had surgery and will be able to go jogging again, my brother in law had ankle surgery and he fine now and can compete physical activities again. Dont listen to others telling you why are you going for surgery had this happened to me when I told people will have a scope on my right knee, told me why do you want it done. One person told me they operating on your knee just to satisfy me but in the UK they would not doing surgery unless they think it would be helpful.

Nick :) {2009} :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: fraud_ninja on September 02, 2009, 04:11:16 PM
I just had my follow-up appointment for my MRI results.  The retinaculum that helps hold the peroneal tendon in place is torn.  However, there is a bigger underlying problem.  There is a groove in the back of the fibula that the peroneals are supposed to rest in.  Some people have a shallow or flatten groove.  I actually have a convex groove.  So instead of there being a groove for the tendon to rest in there is a convex surface that basically always pushes the tendon out of place.  My local OS has never seen a convex groove before.  So he wants to send me to an ankle specialist.  Surgery in the future to repair the retinaculum and construct a groove.

Sounds a little familiar to my knees.  My femoral groove is shallow...but hey, at least its there!  All of this does not mix well with my new found passion for running and other high impact sports.  However, I did not go through with 7 knee surgeries to give up just yet.  So, I was actually already planning ahead and thought there was a chance my local OS would send me to a specialist.  I have an appointment tomorrow.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: crankerchick on September 02, 2009, 05:47:15 PM
good thinking brianne! good luck with the ankle specialist. love your positive attitude and spirit :-)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Clarkey on September 03, 2009, 07:30:13 PM
Hi Brianne,

Sorry to hear about your MRI results and ankle problem is more complicated to fix rather then a routine procedure. Its good that your are being referred to an ankle specialist as he more likely to be able to sort this convex groove problem out. Its annoying for you having another surgery after so many on your knee and cant be much fun, but at least you are in good hands and will get it sorted out.

How did your appointment go today, hope it went ok for you.

Nick :) {2009} :)

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: fraud_ninja on September 04, 2009, 03:26:30 AM
I am so glad that I made that specialist appointment three weeks ago because it cut down my wait time.  I had my appointment today and it went wonderfully.  This OS is definately an ankle specialist and he knows what he is talking about.  He reminded me a lot of Dr Teitge and we all know how much of a fan I am of Teitge.

The OS today confirmed what my local OS already told me.  He also thinks I have a tear or at least degeneration of my peroneal tendon.  So I am having the retinaculum repaired, the tendon repaired, and the groove reconstructed and deepened.  He'll also fix whatever else he finds when he goes in there.  The surgery is scheduled for Sept 21st.  I will be in a cast and NWB for 3 weeks.  Then I will be in a walking boot and begin with PWB and work up to FWB for 6-8 weeks.  After that then the fun will begin, rehabbing it all!

Of course I am not exactly thrilled about more surgery, but I have not been able to run, bike, swim, lift weights, dance, yoga, or pilates in a month and its driving me nuts.  The OS today said that he gives me a 90% chance of running again with the surgery...but he reminded me that the chance of running again without the surgery is 0%.  I'll run again, I know I will.  I overcame my knees and beat the odds there...I will recover once again.

In the meantime I am going to visit my cousin in Dallas this weekend and so I am excited about that! YAY

Brianne

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on September 04, 2009, 10:33:12 AM
Hi Brianne,

So glad to hear your appointment went well.

I know it is no fun going through more surgery, but at least it will be much better when you have had the operation and are fully rehabilitated.

Had similiar surgery and seriously don't think it is nearly as bad as the knee surgeries I've had.

Have fun in Dallas. :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: crankerchick on September 04, 2009, 01:51:04 PM
great to hear brianne! I keep wanting to type brianna because that is my neice's name, so excuse me if a brianna slips in from time to time. enjoy dallas and keep up the positive spirit. i wish i could muster half the positivity that you have.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Clarkey on September 04, 2009, 02:38:12 PM
Hi Brianne,

Good news with your consultation as he there to help you out and the % is high when your have your ankle surgery to be able to do the things you enjoy doing once again. Your surgery date is very soon and lucky to get fitted in in such a short space of time. In the UK we we have to wait months for surgery if you are using the NHS rather then using private medical cover.

Have a fab time in Dallas.

Nick :) {2009} :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: agresknee on September 11, 2009, 07:00:38 PM
Good luck with your surgery

keep us posted

your determined I know you WILL RUN AGAIN

you can make it through fulkerson you will be fine
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: fraud_ninja on September 11, 2009, 08:25:36 PM
Thanks for the encouragement.  I am ready to get this ankle fixed as its been over a month since I injured it and there has been no improvement.  I cannot walk at all without crutches or one of those annoying walking boots.  So it will be nice to have this problem fixed and behind me.

I have no doubt that I will run again.  I was given no chance of ever running again when I had my first TTT's. 

My OS has told me its fine if I want to do a little bit of swimming next week before the surgery.  I won't really kick all that much and won't do flip turns.  I am used to working out for 2 hours a day 6 days a week and so to go from that to this...its been hard.  It will feel good to actually be able to do something.  I might also try to do some upper body machines that I can sit on and not use my legs for.  I normally detest machines because they isolate muscle groups too much and they are not natural movements, but in this case I am desparate to do something and the machines are better than nothing.

Its weird, I have had plenty of surgery, but its always been on my knees.  I have to admit I am a tad nervous about having ankle surgery.  It will all turn out well, I am not worried about that.  Maybe its just mostly dread because I know what its like after a surgery.

Surgery is 9 days away.  I never thought I would say that again, but sometimes life just surprises us.

I will keep everyone posted on how it all goes.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Silkncardcrafts on September 11, 2009, 10:43:42 PM
Hey Brianne,

It is only natural to feel nervous. Before you know it the operation day will be here and over before you know it.

I reckon you will find the ankle surgery a breeze after your knee surgeries. It is a much easier rehab compared to knees. I've had two ankle recos and both been so much easier than any of my knee surgery. You shouldn't require as much PT either.

Not long to go now.

Life does surprise us sometimes. I thought after my trochleoplasty I would never have problems, but looks like I was wrong. My knee is incredibly stable but having a few issues with the chrondral damage. My sports physician said it is important to get the swelling down and then start exercising again. I am going to ask him more about it next time and what it really means. Just scared of getting patella arthritis, which I suspect I have the start of.

Hope you have a good weekend.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Clarkey on September 12, 2009, 11:26:49 AM
Hi Brianne,

Not long now until your surgery on your ankle and sure recovery wont be as bad as your knee surgeries. Its normal to feel nervouse about surgery its a natural to be like this as I am going to be when I get my surgery date. I am also certain you will be able to run again as you was able to once you had your knees sorted so should be able to once you get you ankle sorted.

I know what its like not being able to do things you want to do because of your ankle as I cannot do use certain machines at the gym and really miss runnning which I use to enjoy doing until stupid fall back in October 2007.

Enjoy the weekend.

Nick :) {2009} :)

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: agresknee on September 13, 2009, 01:09:28 AM
Good luck on the surgery and we will be thinking of you post as soon as you feel up to it and let us all know how you are doing.

After watching my daughter with the TTT fulkerson i have to think your ankle will feel minor compared to that surgery.

They arent doing any bone work like the fulkerson correct just soft tissue. No metal either I hope

All our best and we both will be thinking of you.

Hope to hear happy results soon

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: fraud_ninja on September 13, 2009, 11:26:02 PM
Suzanne,

Thanks for the message.  My surgery is not until the 21st...so one more week.  There will be both soft tissue and bone work.  I think its hard to speculate which will or would be worse, the TTT or ankle surgery.  Its probably an apples to oranges comparison in a lot of ways.

I have spent the weekend getting ready.  Since I will be staying at my mom's house for a week after surgery I am going to use the opportunity to have my floors refinished.  Woohoo! :)  I have lovely hard wood floors but they are totally unfinished and look pretty beat up.  That will be a nice thing to come home to after surgery, pretty floors! :)

I went to the gym today and swam one mile using only my upper body.  Whew, that is a work out for sure. 

This next week is going to be a busy one at work as I am going to try to get ahead on stuff in preparation for being out for a week.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: agresknee on September 13, 2009, 11:59:27 PM
Nice that you made lemonade out of lemons with the hardwood floors that should be exciting,  Mine need it so bad but i have two golden retrievers and three kids. How long with the ankle are you on crutches and no driving is it as long as the TTT.

Sorry to hear the ankle is so extensive I was hoping for no bone work. Great that you have someone to take care of you. That is huge help.

One week will be over before you know it the waiting is tough We will be thinking of you on the 21st and hope the recovery is better faster and easier than the TTT. 

Look forward to your posts after surgery.

Best of luck suzanne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: fraud_ninja on September 16, 2009, 12:03:04 AM
I pre-registered with the surgery center yesterday.  I booked a hotel over in the Detroit area for the night after surgery.  Then today I spoke on the phone with the OS who is doing a fellowship with my ankle OS.  I had some last minute questions for my OS.  I am taking one week off work and had hoped to try and go in at least a little bit after that but the fellow was adamant that I have to take at least three weeks off work.  I have never taken that much off, even after my knee surgeries.  But, I want this to work so I will follow all the instructions given to me.  My boss did okay me working from home for a few weeks.  I guess I will plan to work from home weeks 2 and 3.

My first post-op appointment will be at 3-4 weeks after surgery.  They will take the cast off then and I will have another lovely walking boot.  I will be on crutches NWB for 3-4 weeks and then probably on crutches for 2-3 after that at PWB.  I'll start PT after the first PO visit.  I will see my OS again another 5-6 weeks after the first PO.  At that point I should be able to stop wearing the boot and start wearing shoes again.  I hardly know what it feels like to wear a shoe on my right foot. lol

The initial recovery will be longer than with my knee surgeries.  I used a PO brace for anywhere from 4-6 weeks after surgery and crutches from 2-4 weeks.  This will be a bit longer.  But, its all minor details.  I am just going to do what I need to do to get this fixed once and for all.

I have been swimming the past few days...just using my upper body.  Feels so good to do something even if it is less than I am used to.  I am heading off to the gym in a bit to swim again.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: fraud_ninja on September 16, 2009, 04:29:15 AM
I will post updates here, but since this is a knee message board and this is ankle surgery, I will keep a blog to track my progress.  Here is the link to my blog in case anyone is interested in following it.

http://learningtoflyaway.blogspot.com/

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: fraud_ninja on September 18, 2009, 08:52:13 PM
I have to be at the Surgery Center at noon on Monday.  Normally I would not want such a late surgery time, but since I am coming from 3 hours away, this works a lot better for my mom and I.  We each have two dogs and trying to coordinate dog sitters is difficult.  So we were hoping to not have to go over the night before.

I have my list of things to pick up over the weekend: pilllows, baggy pants, a pair of loose shorts, and Grey's Anatomy Season 5.  lol  I am spending the weekend cleaning and preparing my house since I won't be able to do any of that after surgery. 

Gosh, I am a pro at this getting ready for surgery thing, but I had hoped that it was a skill I would never have to use again.  hehe

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: agresknee on September 19, 2009, 10:48:49 PM
Good luck and we will be thinking of you post when you can so we can keep up with your recovery.

Hopefully you wont require the pre surgery skill every again

go get your groove back ................lol

all my best suzanne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: crankerchick on September 19, 2009, 11:21:12 PM
good luck brianne. to be fair, since you don't have a groove to get back, maybe your saying could be "get your groove on" LOL. that way its unique too.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: crankerchick on September 21, 2009, 01:37:55 PM
well today is the day. wishing you well brianne :-)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: jumpi5d on September 21, 2009, 10:33:40 PM
Update from Brianne... 

"Out of surgery. Feeling pretty good. Just waiting to get discharged and then we are heading to a hotel tonight."
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: fraud_ninja on September 22, 2009, 01:40:32 AM
I made it through.  The surgery was today at 1pm.  It was supposed to last one hour but there was more inside than expected and so it took two hours.  My OS reshaped my fibula, repaired the retinaculum (which was in tact but incredibly stretched and therefore unless), fixed the peroneal tendon, and removed extra muscle growing along the tendon.  The extra muscle growth is in reponse to injury and serves as the bodies way of trying to 'fix' itself after this particular kind of injury.  The extra muscle becomes an irratant and causes problems with the tendon.  I had two extra pieces of muscle. 

Normally my OS puts a cast on people.  He was concerned that I would have a lot of swelling.  So he put my walking boot back on because it can be adjust to accomodate the swelling.  I am to treat it like a cast and not remove it until i see him in about 3-4 weeks.  Then I will get a new walking boot and will wear that for about 6 weeks.  I am NWB for now, but will be able to WBAT after 3 weeks.

The pain is bad.  Ankle surgery is a lot different than knee surgery.  Its really hard to compare the two.  As long as I do not move the pain is tolerable, but as soon as I move it becomes really bad.  It feels like somebody whacked the outside of my ankle with a sledgehammer.  I am on Norco which helps a bit with the pain, but not nearly all of it or even really that much...but I'll take whatever relief I can get.

My mom and I got a hotel in Detroit tonight.  We'll head home in the morning.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: crankerchick on September 22, 2009, 01:50:53 AM
Brianne, glad you made it through the surgery fine and your OS was able to fix everything. The prognosis sounds good, and once the weeks go by, you'll be back on your feet with all of this behind you. Hang in there and try to get some rest for your drive home tomorrow. Hope you can find some relief from the pain. Your good attitude is such a blessing for some of us on here! Keep up the good work so you can get back to doing miles on the elliptical!
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Clarkey on September 22, 2009, 07:26:55 PM
Hi Brianne,

Sorry I did not wish you luck for your ankle surgery on Monday but not been able to use the internet for a week as I have been away on holiday in Yorkshire which is the north west part of England. Your surgery is over and done with and can now start the recovery process. Its good that your OS took an extra hour and could see more problems to deal with and fix it for you.

I do hope the pain decreases in the next couple of days and can start to do more things again and meds are not making you too sleepy.

Nick :) {2009} :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: agresknee on September 23, 2009, 12:55:58 AM
I am so happy everything was a success, now you can concentrate on recovery and have a totally healed leg ankle and knee YIPPEE good luck with recovery will be looking for your posts to keep tabs on your recovery.

Sorry so much pain but I hope by the time you read this your on an upswing from the pain.

Good luck and looking forward to future positive updates.

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: fraud_ninja on September 23, 2009, 08:42:51 PM
I have now been home for a full 24 hours.  Its been rough going this surgery.  Honestly, I thought that after 4 TTT's that I would be prepared for anything that came my way.  That has not been the case.  This ankle surgery has been much more painful than any of my TTT's.  Even the slightest movement is the sharpest pain in my ankle. 

Of course this is a 10 year old injury and so I guess a certain degree of pain is to be expected in the recovery process.  I have spent most of my time sleeping since I got home.  I see my OS on October 15th to get the stitches out and finally see the ankle.  Thats going to drive me nuts.  I want to know what my ankle looks like. lol  I think I could guess right now what it looks like...swollen, gross, and bruised!

Okay, time for another nap!

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: crankerchick on September 23, 2009, 09:28:52 PM
Brianne, I'm glad you are at least able to sleep, even if its just little naps. Sleeping at least passes the time and of course replenishes you so you can heal. Hopefully the pain will ease up soon. Hang in there.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Clarkey on September 24, 2009, 07:14:39 PM
Hi Brianne,

Sorry you are in more pain with your ankle surgery then you where when you had your TTT's and hope pain eases for you during the next coming days. Must be annoying that you cant see what your ankle looks like after surgery but will look alot better in a few weeks time when stitches are removed.

Nick :) {2009} :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: fraud_ninja on September 24, 2009, 09:47:54 PM
I am having a rough day both physically and emotionally.  Still have not had much improvement with the pain, but I am trying to think about other things.  The Greys Anatomy premiere is tonight and so I am excited about that.  :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: agresknee on September 25, 2009, 02:43:44 PM
Sorry about the pain and YIKES YIKES i cant imagine anything more painful then what i watched my daughter do from the TTT on day three so I feel so bad for you i hope GREYS was able to distract you, We bought Monk and Psych and watched all the past seasons to distract her from pain in the early days.  Did you watch Flashforward before greys was great if you missed it maybe another show to pass more time.   

Question to my TTT expert who by the way i am forever grateful for all your help, Do you know if from the MPFL graft do you take that button metal out that holds the graft like you take out the screws from the TTT.

I hope today is a better day for you and sending you wishes for a speedy recovery and less pain

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: fraud_ninja on September 26, 2009, 03:49:25 AM
Worst. Night. EVER.  My pain is through the roof.  I am probably going to go to the ER if the pain does not level off.

Something horrible happened tonight.  I do not want to talk about it on a public message board because there are pending charges that I will be filing against a particular individual.  But it was one of the most horrible things that I could ever imagine happening.

I am okay for now.  I am safe.  I'll see if I need to go to the ER about my pain.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Clarkey on September 26, 2009, 11:32:06 AM
Hi Brainne,

Sorry to hear you are having complications and hope that if you do end up in ER they can help you out and stop or reduce the pain level.

Nick  :) {2009} :)

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: fraud_ninja on September 26, 2009, 02:48:21 PM
Pain is better today. Emotionally I am a train wreck.  My ankle surgery is really the least of my concerns right now. I had something happen last night that will change my life forever. I have a long road ahead of me.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: agresknee on September 26, 2009, 02:57:09 PM
I am so sorry you are struggling with pain and emotions,  I hope you have someone to talk to help you recover from this situation.  Your a strong person from reading your posts and you have  had many surgeries and recovered, I hope you can find that same strength to deal with your current situation

Always willing to listen   you are in my prayers. suzanne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Clarkey on September 26, 2009, 03:30:52 PM
Hi Brianne,

At least you have one consulation and pain is not as bad today, hope you can manage the best you can after what happened last night and can remain as positive if thats possible!

Nick :) {2009} :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: fraud_ninja on September 29, 2009, 01:46:51 AM
Things are getting a little bit better. The pain is still increased and I may see my OS before my post op in two weeks but were taking it day by day.  There are going to be a lot of legal issues coming up in the coming weeks because of what happened to me on Friday night.  I will just take it day by day and get through it.  I am going to find a councelor to help me with some of the emotional things that I am and will deal with due to the events of Friday night.

I am very blessed to have an amazing dad who is helping me get through this. I also have the best boss in the world who is so supportive.  My friends are great and my church is wonderful.  I have a great support system to help me get through.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: agresknee on September 29, 2009, 12:17:40 PM
Thanks for posting I have been thinking about you and I am glad you have a strong support group.

Hope the ankle is better soon I would go see the OS as soon as you can, I would think by now you should be on an upswing from the pain.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Clarkey on September 29, 2009, 07:24:54 PM
Hi Brianne,

I agree with agresknee and should see your OS about your ankle sooner rather then lator, its great that your Dad is so helpful and understanding and also have support from your church, friends and understanding Boss.

I wish I had an understanding Boss who understands that I do have a knee problem as he thinks I dont have a knee problem and its in my head.

Nick :) {2009} :) 
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: agresknee on October 01, 2009, 12:00:58 PM
How are you feeling did you go see the OS about the pain

just checking in
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: fraud_ninja on October 01, 2009, 08:04:20 PM
The pain is finally feeling a bit better.  Its still bad at times, but overall a lot better.  Since my OS is 3 hours away its not all that easy to just head over to Detroit to see him.  I will stick with my Oct 13th post-op appointment for now.

I have a lot of other stuff happening in my life.  There are a lot of serious issues happening in my family right now and thats kind of taken priority over my ankle.  Might be a good thing, its a distraction from the pain. 

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: agresknee on October 03, 2009, 01:33:12 AM
Remember your a strong person you can handle all of it.  Also Remember to take advantage of all the support that you have available

kate goes to the doc on oct 12 the day before you. Wow three hours that is rough if you have complications.

Wish you best in all areas that you need to heal.

update when you can look forwad to post after the os visit
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Clarkey on October 03, 2009, 01:38:08 PM
Hi Brianne,

Good to hear that the pain in your ankle is easing a little and might as well wait till the 13th October for your post-op appointment as its a long drive 3 hours.

Enjoy the weekend.

Nick :) {2009} :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: fraud_ninja on October 10, 2009, 01:47:49 AM
Not much to report in the past week.  I have been back at work full time this week.  I think its probably been too much for me as by the end of the week I am exhausted and not feeling very good.  Honestly, the other issues in my life from the past two weeks were so consuming that I simply 'forgot' that I had ankle surgery.  Thats all good except that my body does need to rest because I did have surgery.  My ankle looks really good, the pain is minimal.  I see my OS next tuesday to get the stitches out.  Then the fun will begin because I have not been allowed to move my ankle at all since surgery.

I have been able to settle the issues with the family member involved in the incident from two weeks ago.  We were in court this week and I am happy with the outcome.  Its still going to be a hard road, but the worst of it is over. 

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Clarkey on October 10, 2009, 10:34:15 AM
Hi Brianne,

Seems like you are making some good progress with your ankle and pain reduced as I remember you where in alot of pain with your ankle after your surgery. Its not nice going back to work again full time after a long period off but as you said it drains your energy level. I am pleased that family issues you been having has been sorted and now have less of a worry.

Enjoy the weekend.

Nick :) {2009} :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: agresknee on October 13, 2009, 12:35:41 AM
Was really happy to read your post seems like things are looking up in all areas good luck doc visit

ours went really well and i feel better about it now was hoping for more then we got but a 16 year old girl  I met on knee guru put it the correct view point.........talk soon good luck os and report to us after you see doc
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: fraud_ninja on October 14, 2009, 12:44:49 AM
I am now on my way home from my OS appointment.  Everything looks good so far.  Stitches out, still wearing the boot for 5 more weeks.  My next appointment is November 17th.  At that appointment I will graduate from the boot to a lace up style brace.  No PT until the next appointment.  At home I can work on getting full flexion back in my ankle, but nothing side to side.

I can go back to the gym and do upper body, yoga if it doesn't involve standing on my ankle, and I can swim in about two weeks.  No bike for five, which surprised me.  So I am excited to be able to get back into some sort of workout routine.   

Stopped at DSW shoes on the way out and my dad bought me three good pairs of shoes.  It's always a good day when new shoes are involved. 
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: agresknee on October 14, 2009, 01:55:36 AM
Congrats , how is the pain going you didnt mention any so I hope it is all gone

good luck
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: fraud_ninja on October 14, 2009, 06:06:02 PM
The tendon pain is pretty much gone.  They did have to really work and dig to get the stitches out yesterday.  The incision is not happy about that and has been bleeding on and off today. (Nothing major, just a tiny bit here and there.)  Overall the incision looks like crap and will not heal to be a nice looking incision.  Its not red and there is no discharge, so I know its okay from infection and such, but its just pulled apart in a few places where the stiches did not want to come out.  My OS said to keep it covered until it looks a little better healed.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: crankerchick on October 14, 2009, 08:17:20 PM
Yikes stiches removal. I was thinking about this yesterday. My local GP says he can take them out, so that was a relief (over finding a ortho to do it, especially after having gotten an opinion from them and then having surgery with someone different). I'm getting a little worried now about letting my GP do it though. Maybe I need an ortho? In the back of my mind, I haven't ruled out flying back out to TX to have my OS remove them.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: fraud_ninja on October 14, 2009, 08:32:07 PM
Most OS's seem to use dissolvable stitches.  My OS used regular stitches that my skin so nicely grew around.

Any decent OS should realize that the decision to have surgery done by one doc over another is nothing more than doing what is best for you.  My local OS was amazingly helpful when I had surgery by Dr Teitge.  Whatever the case, stitches are not hard to remove, sometimes a bit painful, but not hard.  My opinion would be to save the plane ticket and get a local OS or your GP to take them out.  (important to note: all of my knee surgery stitches were removed by a nurse.)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: crankerchick on October 14, 2009, 08:40:07 PM
Cool, thanks for the vote of confidence. I've never actually had stitches before in my life, so I know its just another "fear of the unknown" getting to me. I really would like to save the $$$ on the plane ticket, that is for sure. My OS said I would need to have the sutures removed at 4 weeks and that I could use a local doc. So I asked my GP at my pre-op about a referral to someone I hadn't seen already, and he said he could take them out no problem. I don't know why I would think I need an OS to do it; I guess I'm just afraid of it hurting, LOL and there is some comfort in feeling like a surgeon is doing it. Haha, all that and I probably would go to an OS and his nurse would remove them (and probably remove them with less pain too)!
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: fraud_ninja on October 14, 2009, 11:01:39 PM
Stitch removal is pretty painless for the most part.  Even yesterday, compared to all the other pain my ankle has been through...the stitches were minor.  And yes, I have found that in general a nurse does a better job of removing stitches.  With one of my post-ops there was a blizzard the morning of my appointment.  I expected my OS's office to be closed, but it was not.  It was just open to see a minimum number of paitents such as post-op people.  It was just my OS and one nurse in the office that day and so he removed the stitches that time...and it hurt like no other.  He even said, I guess this is something my nurses are better at than me. lol

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Clarkey on October 15, 2009, 07:16:48 PM
Hi Branne,

It most feel better once the stitches have been removed and would have thought it would be the nurses job to remove them rather then your OS when she was also in his office.

Nick :) {2009} :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: fraud_ninja on October 16, 2009, 05:19:16 AM
I feel on top of the world tonight.  I went to Yoga for the first time since July.  Granted I wore my lovely boot and I had to make some creative modifications...but I did the entire class. My instructor is so sweet and she modified a lot of it for the class tonight so that I could do it easier.  At the end of the class everyone in the class clapped because they were impressed that I did so well.  And now a few hours later I am happy to report that the ankle feels fabulous. 

I lifted upper body last night and did yoga tonight.  Small steps but it feels wonderful to be back into working out.  For those of you who are newer, I live to workout.  Not doing anything for 2.5 months was tourture.  I can finally see the light at the end of the tunnel. 

And yes, I am the Queen of Overdoing It. 

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: agresknee on October 16, 2009, 11:57:03 AM
great post glad things are improving so nicely for you.

keep up the good work
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Clarkey on October 17, 2009, 02:22:15 PM
Hi Brianne,

Pleased things are looking up for you and can do things again that you enjoy such as yoga, its great the your ankle is feeling alot better now. I also known to overdo it at the gym but cant help the way I am.

Nick :) {2009} :)

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: fraud_ninja on October 18, 2009, 08:11:56 PM
I own two small terriers, a Cairn and a Westie.  They are such trouble makers and they have been especially bored the past two months.   Well today my Cairn dug his way out of the yard and my Westie came to let me know that he got out of the yard.  I live on a busy road so absolute panic set in and I took off to go find him.  I put treats in my pocket and took his favorite toy.  I ran down the road screaming his name.  Yes, running was a bad idea, but adreneline kicked in and all that. Luckily when I went into my neighbors yard he came running up to me.  I grabbed him and walked home quite shaken up, but relieved that he was okay. 

I do not intend to do any more running for quite some time. 
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: agresknee on October 19, 2009, 03:17:48 AM
hope your ankle is okay after the running.

keep up the good work on your recovery, thanks for the tips for kate
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: fraud_ninja on October 20, 2009, 04:18:04 PM
The Queen of Overdoing it is in FULL SWING!  My ankle feels so wonderful, it really does not hurt at all and the swelling is all gone.  I have to keep reminding myself that I had surgery one month ago.  The pain from this surgery was far more intense in the beginning that my knee surgeries were, and I had a set back four days after surgery, but ever since two weeks after surgery, everything has felt magnificent.  I am sure there are painful days ahead as I start to work on more ROM (I am only doing dorsi and plantar flexion right now...not inversion or eversion yet) and as I learn to walk without a boot.  But for now, everything feels fantastic.

This is what I did yesterday:
* My neighborhood is a .5 mile loop.  I walked my dogs the around the neighborhood three times yesterday. (not all at once...but once in the morning, once at noon, and once before dinner)
* I went to the gym and lifted upper body and did some light ab work
* I walked a half mile around the track.

I feel great.  Everything looks good, no swelling and just the tiniest bit of bruising at the bottom of my ankle.  I ran into my local OS again and he is very impressed on how things are going. (although he already knew things were going well because I am friends with one of his daughters.)  I am going to do Yoga tonight at the gym.

I see my OS on November 17th.  Thats when I ditch the boot and real fun begins. :)

SCARY THING HAPPENED LAST NIGHT!  There was a domestic dispute a half mile from my house and someone ended up getting shot and killed.  Scary.  Stupid.  I guess the reality is that the world is a dangerous place. 

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Clarkey on October 20, 2009, 07:24:13 PM
Hi Brianne,

Its good that you are able to do more activities again a month after your ankle surgery and there is nothing wrong in keeping active as it can only do good excercise rather then doing nothing which can slow down the recovery, best to keep active as you are doing.

Be nice when you see your OS next month and no longer have to keep wearing your annoying boot. I can imagine it was scary when someone in your neighbourhood gets shot and killed.

I think the law in the states should be changed and cant own your own gun without a licence. In the UK you need a licence to own a gun, even a stun gun and mace spray is illegal, which are all under the firearms act.

Nick :) {2009} :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: agresknee on October 22, 2009, 01:15:35 PM
Great News on the ankle you sound on the mend happy to hear

keep up the good work. we are slow but steady with kate
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: fraud_ninja on October 24, 2009, 04:53:33 AM
Some pain today.  I have pretty sharp and substaintial pain in the outside of my foot.  There is very little to no pain in my ankle.  Whenever I flex my toes or specifically move my little toe I have extremely sharp pain in the outside of my foot about halfway between my toes and heels.  This came up out of nowhere today.  Hopefully it will settle down.  It could be because I am overdoing it, but it does not feel like that kind of pain.   I am taking it very easy this weekend.  Again, I have no pain in my ankle. 
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Clarkey on October 24, 2009, 09:42:36 AM
Hi Brianne,

Sorry you getting pain in the foot and have to agree with you that you may be overdoing it just a little. Take it easy during the weekend and relax and chill out as you are going to do and your foot should become less sore.

Nick  :) {2009} :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: crankerchick on October 25, 2009, 10:04:35 PM
Hey Brianne, I'm finally getting around to posting on other's people's threads. Sorry to hear you were having some pain yesterday, hopefully it is better today and taking it easy like you said you were planning to. It's so frustrating when new pains come up, but thankfully most of them are just residual or referred pain or the result of us altering our gait somehow and they clear up with time. I hope the same for your foot.

Otherwise, glad things are going better for you both with your physical/medical life and your personal life. Healing and recovery is definitely a lot easier when other things fall into place.

Well take care and best wishes.

I'm on the cryo-cuff with nothing but air under my knee and hating every minute of it :-(
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: fraud_ninja on October 26, 2009, 01:58:41 AM
Crankerchick,

Glad to hear you are doing relatively well.  I would hate elevating the way you have to elevate.  If I were a paitient of Dr Sanders, I would give him crap about that.  I hope your flight to Atlanta goes relatively well and that you do not have too much pain.

I think my aircast boot is irratating my foot and ankle.  I have an aircast boot that I wore before surgery which is a size small.  I had to get a different one after surgery because the aircast boot was not big enough to accomodate the swelling and bandages.  So I also have a Donjoy MaxTrax which is a medium.  Well now that the swelling is 95% gone and I do not have any bandages, the Donjoy is way too big.  So I went back to wearing the Aircast and it seems that as soon as I went back to the aircast boot my pain got a lot worse.  I ended up wrapping my ankle in an ace today to 'bulk' it up and wore the Donjoy and the pain seems to have settled down a lot.  I have 23 more days wearing a boot so this could get frustrating.

This is the Aircast: http://www.aircast.com/index.asp/fuseaction/products.detail/cat/2/id/76

This is the Donjoy: http://www.donjoy.com/index.asp/fuseaction/products.detail/cat/6/id/164

Here is a picture for everyone's enjoyment.  My Westie, Sally, thinks that she is supposed to protect my ankle.  She lays next to my ankle all the time.  She might be the cutest dog ever... http://www.facebook.com/photo.php?pid=3372598&l=e87289762a&id=513106360

Or at least Sally is one of the two cutest dogs ever.  This is my Cairn Terrier Benny.  I love Benny so much.  He is the best dog ever.  http://www.facebook.com/photo.php?pid=3283656&l=5bba747384&id=513106360

Having my dogs has helped me get through all of the emotions of the past month.  I do not know what I would do without them.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Clarkey on October 29, 2009, 07:48:11 PM
Hi Brianne,

Looked at your links and look like a part of RoboCop the aircast boot you have to wear and those white dressed men in Star Wars with white masks.

Nick :) {2009} :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: fraud_ninja on October 31, 2009, 01:03:47 PM
Nick,

Yeah, the Aircast one looks like robocop or something.  I got it wet last night so now its drying.

The pain in my foot is gone and I still do not have pain in my ankle.  Things feel really good for the most part.  I just cannot wait until I see my OS next so that I can get out of the boot altogether.  Monday is 6 weeks since surgery.  Its been a pretty radical 6 weeks with a lot of big changes in my life. 

I see my OS on November 17th, so just over two weeks away.  My college roommate lives near my OS's office and so I am going to go over the day before and then spend the day with her before my appointment.  I am excited about that because she and I were always very close and now that we are on separate sides of the state we hardly get to see each other.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Clarkey on October 31, 2009, 03:08:25 PM
Hi Brianne,

So you killed off your robocop Aircast lol and bet you gald you done it, 6 weeks its been already time seems to be flying by. You see your OS 1 day after my scope or on the same day if you go and see him on the 16th November.

Nick :) {2009} :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: fraud_ninja on November 07, 2009, 02:19:35 PM
Nick,

The Robocop Aircast has come back to life.  It will never be killed off, once it dried it good again.

Just 9 more days until my post-op appointment.  I am so ready for this.  I babysit for a doctor from my Church and I told her last week that I was going to get a pedicure as soon as I did not have to wear this walking boot.  She is so sweet because she got me a gift certificate for a pedicure.  I am excited about it! My appointment is the 17th and I am going to call and get a pedicure on the 18th.

Ankle surgery is hard.  Honestly, I think that this surgery has been harder than my knee surgeries.  Just comparing where I was at 7 weeks post-op from my knee surgeries and where I am at 7 weeks post-op from my ankle surgery...I was much farther after my knee surgeries.  In comparison:

* By 7 weeks after all of my knee surgeries the swelling was virtually gone.  My ankle still gets incredibly swollen.  For my ankle it comes and goes, but swelling is still very common.
* I had more bruising intially with my knee surgeries, but the bruising has lasted longer with my ankle.
* By 7 weeks with all my knee surgeries I had full ROM.  I am not even allowed to fully move my ankle yet.  I can flex and point my toes.  My ankle stiffens up really fast, but it also gets moving pretty fast. 
* By 2 months after my knee surgeries I felt good, walking was no problem.  I will be 2 months from my ankle surgery in 2 weeks and I know I will be now where near that point.

Granted this is a bit of an apples to oranges comparison because knees and ankles are different joints, the surgeries had different purposes, and they were done by different surgeons.  I honestly thought that my knee surgeries were as bad as I could experience and did not expect my ankle surgery to be so difficult.  By 2 months after my knee surgeries I felt pretty good and felt like I was nearing the end of the road for the rehab.  At 2 months post-op from my ankle surgery I will feel like I am really only just beginning.

My OS does not require Physical Therapy.  He likes to leave it up to the paitent and the particular surgery.  I always did PT after my knee surgeries and so the idea of mot doing PT after my ankle surgery seems foreign to me.  I trust that my OS knows what he is talking about.  I will see what he thinks when I see him on the 17th.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Clarkey on November 10, 2009, 07:20:21 PM
Hi Brianne,

Its now only a week till your post up and fallen a day after my scope on my right knee Monday 16th November and can look forward to your pedicure the same week, which you deserve after what you been through.

Its sounds like hard work getting your ankle back to normal with all the pain youhave been getting after your surgery. The swelling may take some time to go down along with the bruising but should improve in time.

Nick :) {2009} :) 
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: fraud_ninja on November 11, 2009, 11:55:41 PM
Something interesting I noticed today.  My femurs are twisted something like 35 degrees.  I have never been and never will be derotated, but in wearing the walking boot I have noticed just how obvious the rotation can be.  When I point my toes forward and then bend my knee, my knee points inward about 0-40 degrees.  To get my knee to point straight when I bend it I have to point my toes out about 30-40 degrees.  Having the boot on makes it really obvious...more so than its ever been.

Anyhow, just something interesting I noticed today.  It is amazing how everything is connected in the body.  What happens in my ankles in not separate from my knees.

Less than a week until I see my OS...very excited.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Clarkey on November 12, 2009, 07:50:32 PM
Hi Brianne,

Good its now less then a week till you see your OS again and bet it cant come soon enough a day after my knee surgery. The body is amazing and how it works and lucky we have doctors that can fix us up when things go wrong with our bodies.

Nick :) {2009} :)

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: fraud_ninja on November 15, 2009, 07:42:23 PM
Two more days until I see my OS.  I have to say that I am freaing out about this appointment.  If anyone is a believer in prayer, I would appreciate them at this time.

Many of you remember I posted about something happening to me 4 days post-op.  Thhe pain was greatly increased for about 1-2 weeks after that.  What happened on that night was that I was physically assulted by a member of my immediate family.  This person knocked me over and was wrestling me on the floor.  I got hit, kicked, and bit a few times.  My OS and I thought that everything was okay, but in the past two weeks the pain has been increasing and the snapping is back in my tendon.  In talking to my OS on the phone he said it sounds like there is a possibility that the tendon got retorn when I was attacked.

If it is true that my tendon is retorn then I would have to have the surgery repeated to repair the tendon again.  I am trying not to worry about it too much until I know what is going on for sure.  Whatever it is, its beyond my control and I just have to accept whatever that means.

Please pray that my tendon is okay and that surgery does not need to be repeated.  I have had more than my share of surgery and given the circumstances of this...it would just be such a blow for my original ankle surgery to have failed because someone who knew better came over to my house and attacked me.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: crankerchick on November 15, 2009, 07:48:25 PM
Wow Brianne, I'm really sorry to hear that. I will definitely be keeping you in my prayers. Best wishes for good news at your visit to the OS. You are right, it would suck to have something out of your control cause your surgery to fail, but you are right, you can't think about that, just have to be positive. You will endure through whatever comes--you've got the spirit!

I hope you were able to file charges against the family member! You are better than me, because I probably would have set my older brother on them. Actually I probably wouldn't have even had to sick him on the person, he would take the initiative himself, LOL.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: ORNURSE on November 16, 2009, 09:20:49 AM
Brianne,
I am so sorry you had to go through that.  My prayers are with you.
Good luck at the OS.  I wasn't going to come back on here until after my surgery to post, just trying to keep my nerves down but I will come back and check on you after your os visit on Tuesday.

Kim
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: fraud_ninja on November 16, 2009, 05:45:20 PM
Latise,

Thanks for the message of support.  I sent you a PM with more details.  I hope everything is going well for you in your recovery.

Kim,

Good luck with your surgery.


I feel pretty good about everything today.  I can tell that there is something going on in my ankle, just what I do not know.  I feel at peace that I can handle whatever it is.  I certainly pray that I do not need more surgery, but if it does happen it won't be the end of the world.  I will get through it just like I have gotten through all my other surgeries.

Its been a hard fall, a lot of learning, a lot of tears, and a lot of frustration.  But, its been a good growing process and I feel that I will be a better and stronger person because of all of this.

As for the family member that was involved...thats the real sad part here.  I miss that person, but I am glad to have some peace and quiet as they are not allowed to contact me.  Its a really hard situation all the way around.  Even though I am not mentioning who that person is in my family...please pray for them.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: fraud_ninja on November 18, 2009, 02:03:07 AM
HAPPY DAY!!!!

I saw my surgeon and my ankle is doing okay.  There are a few minor issues that are causing snapping like feelings, but the tendon is fine and everything will resolve itself with time.

I am boot free for the first time in 3 months.  I am so over joyed to be wearing 2 shoes.  Its the best feeling ever.

YAY!

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: crankerchick on November 18, 2009, 02:49:19 PM
Yes!!! Happy Day indeed!
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Clarkey on November 18, 2009, 05:18:07 PM
Hi Brianne,

Thats fantastic news that you have been given the all clear and your ankle more and less back to normal so just shows that surgery can help people out after hearing such negative stories about surgery. Its nice for you to be boot free again and was glad to take off my bandage today and have a shower for the 1st time since Monday morning. My skin itched under the bandage so felt great to remove it at lunch time today.

Nick :) {2009} :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: fraud_ninja on November 19, 2009, 03:36:55 AM
Nick,

I am so glad they found your problem and fixed it.  I think that surgery can provide great results.  My knees were completely fixed because of the surgeries Dr Teitge did for my knees.  My ankle surgery seems to be well on the way to success, but there is still a long road ahead of me.  At least for me, my skepticism of surgery comes when people jump into a surgery uniformed and without finding the most qualified surgeon.  I think many of us know what can happen with a poorly decided upon surgery.  A surgery performed by the right surgeon and for the right reason can yield wonderful results.


I am just realizing today how much work I have ahead of me.  My leg is so atrophied...even my quads, hamstrings, hips, and glutes.  Of course my lower leg muscles are shot.  I hit the gym an hour after getting home yesterday.  I was at the gym today as well.  My OS says I can rehab on my own.  I think I am certainly driven enough for it.  My trouble will be that I can push myself too much.  My OS gave me my list of don'ts and otherwise set me free to get stronger.

So this is what I did today:
1.) walked for 15 minutes on the treadmill at 2.8 MPH
2.) leg presses with both legs, and then indivdually
3.) balancing on my right leg
4.) stepping up a six in step
5.) dips from a four inch step
6.) stretching and ROM

I see improvement from yesterday to today.  I am encouraged.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Clarkey on November 19, 2009, 11:30:26 AM
Hi Brianne,

Glad to hear that your ankle is improving day by day and its important to be operated on by one of the top OS's in our region. I dont think Mr Green did my scope it was another OS but he was watching what he was doing in the theate and may have done some of the surgery himself and can ask him about it on the 29th December when I see him again.

Its good you already keeping on top of your PT and pushing yourself well done.

Nick :) {2009} :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: crankerchick on November 19, 2009, 05:49:58 PM
Brianne, way to go on starting the rehab. You are the Queen of overdoing it so just try and remember to keep that balance and not overdo it.

I think once I'm cleared to walk, I will do formal pt for as long as it takes for me to be comfortable walking, but then I will also rehab on my own too. I'm focused enough and regimented enough and I think with just direction from my doctor, I'll be fine too.

Good luck with the rehab and definitely keep us posted.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: fraud_ninja on November 24, 2009, 08:27:11 PM
Its been one week without the boot.  I am thrilled to be wearing two shoes once again.  There are definate improvements in the past week, but there are also new frustrations...so I guess they kind of cancel each other out in a way.

The improvements are in overall muscle.  I can see that my quads and calf muscles are beginning to come back.  Still a long way to go, but showing signs of improvement.

The new frustrations are stiffness and pain in my foot.  My ankle gets insanely stiff if I do not move it.  The stiffness is bad enough that i set my alarm and wake up at 2am so I can get to walk around and move my ankle around.  It helps if I do that.  The other frustration is that my foot muscles get insanely sore and painful if I walk too much.  It hurts to push off when I walk in both my toes and my arch.  My OS has assured me that this is just because those muscles have gotten a free ride for 3.5 months and now they have to do their share of the work.  Its getting better, slowly, but its improving.  If I wear fairly stiff soled shoes then it helps a lot.

I have changed my routine at the gym somewhat.  Walking is still so painful if I do more than 1/2 mile.  So I am focusing on upper body, doing the leg press, pilates twice a week and swimming 5 days a week.  I love being in the pool because I can finally get a decent cardio workout without worrying about the tendon being cranky.  After I swim a mile I walk back and forth quite a bit.  I do just regular walking, I walk on my toes, and I do side steps.  I stretch constantly as the ankle loses all ROM if its not move every minute of the day.

I am asking Santa for a new peroneal tendon for Christmas.  No seriously, things are going well, just slowly.  And we all know that I am not exactly the best at being paitent with my body.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Clarkey on November 25, 2009, 10:50:48 PM
H Brianne,

Must be nice to be walking once again with 2 shoes on rather then having to wear that robocop boot which must be annoying to wear for so many weeks. Its good your quads are starting to improve and if it helps your ankle getting up at 2am then carry on doing it and hope the foot muscles improve in time. My quad muscles are sore and swollen from my scope and it hurts when I am doing PT so should improve over the next week or two. Good you are keeping physically active by going swimming, pilates and the gym rather then being stuck at home bored.

Thanks for messages on facebook when I could not sleep because of my knee pain, the last 2 nights have been better but knee still painful and had to take pain meds at 3am and did not really get rid of the pain so kept on waking up alot. Noticed I have got bruising behind the knee while I was doing some PT, I suppose its normal after a scope bruising behind the knee.

Nick :) {2009} :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: fraud_ninja on November 30, 2009, 03:38:24 AM
GREAT DAY!  I feel closer to normal today then I have at any day along this 4 month journey.  Its hard to believe that I injured my ankle four months ago.  The whole experience just seems so surreal, but I am just relieved that I can finally feel like I see an end to all the pain and frustration.

I went to the gym today and walked one mile on the treadmill at 3.5 miles per hour.  I did ab work (I nearly had a six pack before the injury...not so much any more).  I was able to do most of the ab work although my balance is horrible and I was falling on my face multiple times...but WHO CARES...I was able to do it!!!!   ;D   ;D   ;D  I then went to the pool and swam one mile in 28 minutes.  I do not know what good times are with swimming, but I was out of breath after that.  My ankle feels great and my foot has minimal pain today.

Actually the whole weekend has felt pretty good.  I went black friday shopping with no problems.  Did not buy much, but I am broke.  My friend Sharon and I have gone every year for 7 years and its a tradition.  Then I played Wii Bowling at my Church and was actually able to get into it.  I have never played a Wii before...but that was fun!

I am excited that my family (dad, two aunts, three cousins, plus husbands and children) is going on vacation to Key West for Christmas!  I hope to be able to do a lot when I am there (granted I will still be recovering somewhat).  No surfing while I am there! :)  I am taking my mountain bike and hope to get lots of use out of it.  Hey, I need to get that six pack back before I go on vacation! lol

I know there are still a lot of hard days ahead and that I am still early in my recovery.  But, I needed a day like today to help boost my spirits and make me feel like all of this will end some day soon.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Clarkey on November 30, 2009, 10:58:17 AM
Hi Brianne,

Great to hear you are feeling a lot better after your ankle surgery and are able to do stuff at the gym again and go swimming. Good you have a holiday to look forward to with your family its nice to be able to meet up in one place.

Nick :) {2009} :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: agresknee on December 02, 2009, 02:51:34 AM
Really happy to read your posts on how far you have come that is really awesome that everything is working at this well

keep up the good work
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: fraud_ninja on December 11, 2009, 07:11:40 PM
I am a bad girl.   ;D  I am the Queen of Overdoing it and the Queen is back in full swing.  ;D

The first two weeks without the boot were so frustrating.  I had constant pain in my foot and toes specifically.  Walking was the most painful thing ever.  Honestly, I was so frustrated that I wanted to give up on the whole thing.  I worked extra hard those two weeks doing Yoga, swimming, and walking in the pool.  I have been boot free for almost 4 weeks and the progress the second two weeks has been incredible.  There is almost no pain and I see improvement everyday.  I can rise up onto my toes again. (This is a big thing for anyone who has ever had a boot or cast on for an extended period of time.)  The only thing that is still slow in coming back in ROM, but its progressing.

So, to the overdoing it part.  Yesterday I did 35 minutes on the elliptical at the gym.  I also did an hour long Yoga/Pilates class.  Then, as if I had not already done too much...I lifted weights for a half hour.  Yes, I know its probably too much...but anyone that knows me at this point expects it from me.  My ankle is no more painful or swollen today, so all is well.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Clarkey on December 12, 2009, 09:48:14 AM
Hi Brianne,

There nothing wrong in over doing it as I would be the same if knee was not so swollen and painful and really missing the gym. If you enjoy going to the gym as I do and are not in too much pain then carry on doing it but stop if you are feeling too much pain.

Nick :) {2009} :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: fraud_ninja on January 05, 2010, 03:26:05 PM
Well I am back from a great vacation to the Florida Keys.  I had a wonderful time and my ankle did just fine through everything.  I played a lot. :)  I did a ton of biking, but very hard core and rough biking...20-30 miles a day.  I played beach ball on the beach.  I went on an all day deep sea fishing trip.  I went to the batting cages and hit quite a few fast pitch baseballs.  Ankle did fine through all of it.  My ankle was a tiny bit sore after the fishing trip, but it felt fine the next day.

I see my OS on January 19th and I fully expect him to release me to do whatever I want.  I hope to be able to run in a few weeks.  My cross country skis are sitting in my guest bedroom just begging to be used.  I am going to learn how to snow board at the end of January!!!  So I am happy to say that my ankle has recovered wonderfully. 

The only thing that is still lacking is my muscle strength.  Its coming back a lot, but I was in the best shape of my life when the injury happened and so it will take a bit of time to get back to that point.  Its been 5 months since the injury.  I hope to be back to full speed in another few months.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: crankerchick on January 05, 2010, 03:40:01 PM
Sounds like you had an awesome vacation! So jealous of you being where it was nice and warm. MD has been freezing cold and snow off and on for the last 3 weeks. We aren't the vacationing type, but this weather has even me considering a trip somewhere warm next year, LOL.

Glad the recovery is going so well. After your scare, it's great to see that it didn't affect your recovery at all. Enjoy being fixed!
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Clarkey on January 07, 2010, 09:42:27 AM
Hi Brianne,

Glad your ankle surgery has be a success and can do physical activities again and could enjoy your Holiday in the warmth. We having arctic weather condition in the UK at the moment and set to stay all week.

Nick  {2009}
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: fraud_ninja on January 12, 2010, 03:51:18 PM
I'm a bad girl.  But we already knew that.  I ran at the gym last night...only a half mile...but I am not technically "supposed" to run yet.  My OS said I could rehab on my own, but he apparently did not realize that I get into all sorts of trouble when left on my own.

Ankle feels great.  I am going to run again tonight.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Clarkey on January 12, 2010, 06:27:43 PM
Hi Brianne,

Its good you are able to run again and no you could not for a long time until you had your knee surgeries. I also going to do all I can to be able to run again and hope my scope is a success and can run in a few months time and would go through another surgery until i can finally run but do not think it will come to that and my scope I had done 8 weeks ago helps me to run again.

I intend to do the London Marathon one year and my knee will not stop me from doing it. Pleased your ankle still feels ok and surgery worked for you.

Nick   :) {2010} :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: fraud_ninja on January 12, 2010, 07:06:37 PM
Nick,

I have no ambitions of ever doing a Marathon.  Although I love running and being active, running 26 miles is just insane.  Running distances that far is hard on even good joints.  I am really getting more into the idea of competing in triathalons.  It allows me to be real active, but its less running as there is also swimming and biking.

My advice, don't try to run the London Marathon.  I would recommend that to someone who has never had bad knees.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Clarkey on January 14, 2010, 01:46:28 PM
Hi Brianne,

I have to agree with your about running a marathon, 26 miles is far too much if you have knee problems like we both do. My Physio advised me not to do too much running with my maltracking as I would only make my knees worse. I had no knee pain when I was runing before my fall back in October 2007 but always get pain on and off in my left knee that maltracks more then my right.

Its a good idea to do what you will be doing, competing in triathalons but I am a weak swimmer but a good biker and runner if I can ever run again?

Nick :) {2010} :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: fraud_ninja on January 22, 2010, 07:52:56 PM
I have seen my OS about my ankle for the last time.  I am four months post-op and I have been fully cleared to do whatever I want.  I have zero activity restrictions.  I have resumed running and I am going snowboarding Jan 29-31.  Functionally, my ankle feels wonderful.  There is a little bit of stiffness when I first wake up in the morning, but that resolves itself quickly.  Myy calf muscles are still somewhat atrophied, but they are coming back. 

Many of my friends have asked me how having ankle surgery affected my knees.  There are concerns for the knees due to walking boots, changes in gait, and added stress for carrying the load for a bum ankle.  When my ankle injury occured I was very scared that my knees would go downhill following the injury.  In fact, when the injury first occured my local OS was very reluctant to put me in a walking boot because he was concerned about the stress that would put on my knees.  About four week after my injury my knees were feeling a bit cranky and I was scared that they were not going to hold up to the stress.  Luckily, after that point they settled down and my knees were uneventful the rest of the time I was in the boot. (14 weeks total)

Now my quads lost a bit of muscle...probably due to my overall inactivity.  The quads came back in no time at all once I was able to work on them at the gym.  My right VMO was particularly atrophied after the ankle injury, but has fully bounced back.  I am up to running 2 miles a night at the gym and my knees are fairing well.  My patellar tendons were a little angry the first time I ran after a 5 month running hiatus, but have settled back down.

Overall, everything seems to be well in my legs.  My knees do not seem to be affected by the ankle injury.  My ankle has fully recovered. 

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Clarkey on January 23, 2010, 10:42:23 AM
Hi Brianne,

Great news about your ankle surgery being a success and can now go back to physical activities you enjoy doing which is a great start to the New Year for you. You will soon build up your quads at the gym and may feel the odd pain in your knee an ankle while running which is normal after so many surgerys.

I hope to be more physically active again and start to jog again as it something I enjoy doing and missing it a lot and hope my surgery was a success and can run again in a few months time.

Nick :) {2010} :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: agresknee on February 05, 2010, 08:45:05 PM
Great to catch up on your post and see that you are doing AWESOME  what a great post to read keep up the good work and good luck
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: fraud_ninja on February 18, 2010, 08:21:19 PM
I am so pleased that my progress has been positive.  I am coming up on 5 months since my ankle surgery and things are fantastic.  I have spent the past month trying to get back up to speed with running and general conditioning.  I am set to launch "official" training for running and triathalons on March 1st.  I ran a mile in 7 minutes and 20 seconds last night at the gym, which is a good time for me at this stage in the game.  Here is my tentative race schedule for 2010:

May 1- 5k run
May 15- 5K run
June 3- 10K run
June 2010- Olympic Distance triathalon
July 3rd- half Olympic triathalon
August 2010- Olympic Distance Triathalon
September 25- 5K run

I want to do longer distances but coming off of ankle surgery and really knee surgery (its been two years since my knee surgery) I want to take it somewhat slow.  If 2010 goes well I will try for some longer distances in 2011.

As for the snowboarding, the snow has been lousy the past few weeks and so I have not been out.  I am dying to go again...so I hope for one last blast of winter in the next week or so.  After that, its time for Spring!

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Clarkey on February 20, 2010, 02:32:01 PM
Hi Brianne,

Have got a good schedule during the Spring and Summer months and glad you are able to run again and ankle and knee are doing ok. I am not giving up just yet on not being able to run again as I intend to do all I can to be able to run again some day. Hope you have a good weekend.

Nick :) {2010} :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: agresknee on June 23, 2010, 06:12:58 PM
you sound awesome I am so glad it is all going so well for you forever greatful for your help with kate she will hit the one year since surgery this week and hard to believe it went this fast.  last year this time i was a wreck

all my best and continue to post on all your accomplishments how was the TRI i would like to try one did a half marathon in march but at 49 a tri may be to much not much of a swimmer

keep up the good work.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: fraud_ninja on June 25, 2010, 03:33:23 AM
Suzanne,

Thanks for the message.  Wow, its hard to believe that Kate had her surgery a year ago.  I am happy to hear that things are going really well for her.  Is she back to playing basketball full speed?

As for me, its going well.  I am holding off on the triathalons and 1/2 marathons until 2011.  I just feel that I need to give my ankle and my knees as well more time to build back up strength and to get used to the pounding.  I increased my milage pretty steadily all spring until I hit about 7-8 mile runs.  At that point my ankle started to get a bit cranky and so I backed off to no more than 6 mile runs.  That seems to be a good amount for now.  I'll work at increasing my milage in the fall.

My life is very busy these days.  My dream since I was in High School has been to go to Medical School and become a Doctor.  I have a Bachelors in English and I have been doing pre-med requirements on and off for 4 years.  I have finally made the decision to go for it and finish my pre-med requirements.  I am moving to Texas in 7 weeks and will be starting class in 9 weeks.  I'm very excited, and a little nervous.  I don't know what I want to specialize in just yet.  I am considering either Sports Medicine as that is an obvious with my experiences.  I am also considering something nutrition related as I also have Celiac Disease.  I figure I have a lot of time to decide.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Clarkey on June 25, 2010, 03:40:32 PM
Hi Brianne,

Nice to hear about a success story on KG for a change rather then negative postings about surgery thats gone wrong or not helped solve the knee problem. Its best to build up slowly and hold back doing triathalons and 1/2 marathons until next year, is a sensible thing to do.

Its always nice to fulfill a dream and would be great to work in medicine if its something you always wanted to do .You are use to studying with your Bachelors in English and should find the course you are going to be doing no problem, good luck in whatever you decide to choose.

Nick :) {2010} :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Ruth M. on June 30, 2010, 03:49:35 AM
Brianne - I am just lurking around on kg this evening and came across this post - go for it! Always remember that gentle OS in Michigan that never gives up and be a doc (whatever field you chose) just like him. I saw him today and we have a date for a revision on 7/29 (exact anniversary of the first one). I always leave the office feeling like things are under control and he has a plan - he is amazing. don't let anyone stand in your way of going after your dreams.

Ruth
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: fraud_ninja on June 30, 2010, 04:01:56 AM
Ruth,

Good luck with your surgery on July 29th.  Yes, you are right...Dr T always has a plan and you leave his office feeling confident and at ease with the situation.

I will forever be grateful for Dr T.  He has given me more than he could ever realize.  My dream was to run again and so many OS's said that it was impossible and that I should give up on running and take up knitting.  He told me it was possible and that I could do everything I wanted to do. 

More than that gift Dr T gave me, he showed me what a real Doctor should be.  He is so humble, gentle, kind, creative, and intelligent.  He never gives up on a patient.  He is a rare talent in the field of medicine.  He is exactly the kind of Doctor I aspire to be.

41 more days until I move to Texas and 52 more days until I start classes.  Excited, nervous, anxious, scared, pumped...all at the same time.  Its going to be a hard and long journey, but in life its as much about the journey as it is the destination.

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: agresknee on July 03, 2010, 08:58:42 PM
What a postive post was so excited to read it,,,,,,,,,,,,,,Good luck in TEXAS and with all your surgeries you would be a great doctor so glad your following your dream.  Kate had a bad fall at team camp but doc said just brusiing and she can go back to play next week with a volleyball pad on the knee she landed directly on the screw which made all the tissue swell but he was pleased with how it held up she is back full time on the court and knee is great and her body I would say is Half way back we are starting her with a Personal Trainer and nutritionist on monday. She seems excited  9months took a big hit on her body but it is slowly bouncining back.

I think eventually we will take out that last screw and then hire plastic surgeon to redo the scar it spread very wide it is not a thin line like most peoples, But we are all in a good place she is looking at colleges and will be a senior this year

Have a great summer and move    I agree with waiting on the tri and half but make sure you post it is always so awesome to read of the success stories.

all my best and great success suzanne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: fraud_ninja on April 13, 2011, 03:36:27 AM
Wow, I have not been onto Knee Geeks in nearly a year.  Where does the time go???  I guess it is true that once the knee problems are settled then there is no need to visit a message board like this anymore.  I have been happily enjoying my pain free knees for over two years now.  There is NO ACTIVITY that is off limits to me physically anymore.  If I want to do something, I do it.

Almost a year ago I moved to Texas.  What an amazing adventure that has been.  Fast forward to today and so much has changed in my life over the past year, its hard to believe.  Although I moved to Dallas to pursue a career in medicine, my life had other plans.  I said all along that I was moving to Texas to pursue my dreams.  I just did not realize that I had already reached my dreams.  So now I am working as a tutor (while I wait for the Education System to improve down here.)  I have a degree in teaching that I am finally putting to use.  I love every minute of it.  I am also married now and living in the Houston area.  I did not meet my husband until after I moved to Texas, but we are both older and knew what we wanted.

The wild and crazy physical activities are a wonderful perk of the knee surgeries that I had.  They are proof that there is a light at the end of the very long and painful tunnel.  Dr Teitge truely gave me a wonderful gift.  However, the most important part of that gift is what he is allowing me to do pain free right now.  I am 5 months pregnant with my first child.  I can go through the pregnancy with total confidence that my knees will not be a bother for me.  Thats worth more than any race I could ever run.  The pregnancy is a total surprise, but my husband and I are both thrilled.  We find out the gender on May 2nd. 

Brianne
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: agresknee on April 14, 2011, 03:27:25 AM
Great Post I havent been out here in 6 months and in the early days this was my lifeline to survival.


What a great post see ya on facebook!!!!!
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Clarkey on April 16, 2011, 11:22:10 AM
Hi Brianne,

Really pleased for you that you are doing really well after having had knee problems for so many years and gives hope to other people out there that you can get your knee fixed and return to full physical activities again. I myself want to be able to go out jogging and after reading your post it may come true and will be able to run again some day.

It is great that you now love living in Texas and looks like a beautiful place when I have seen it on TV. You are right there is light at the end of the tunnel and I know it took a few years for you to come out of it.

Nick :) {2011} :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Hooligan on July 10, 2011, 10:41:40 PM
Brianne -
This was a great post to read! So inspirational.

I had a TTT on my left knee one year ago. Getting my strength back has been one heck of a struggle - I have gained so much muscle but have a long ways to go to even out all the imbalances.

Can you tell me this though - how did you get over the fear of reinjury? I am SO terrified, that it's holding me back in my rehab - getting in to the final range of extension in walking and in other exercises (to target the VMO) still freaks me out!

Again, thanks for the inspirational post!

Hooligan

Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Clarkey on July 16, 2011, 12:18:53 PM
Hi Brianne,

I am now in the same situation as you are in and my right knee is more and less back to how it was before my fall and can run, jog, kneel and squat pain free. I wanted to know how long was it until you could jog longer distance as my physio and sports physician tell me no to jog too long distance. I can easily run 3 miles 3 times a week and feel I could jog further as I do not feel any pain in my right knee apart from the odd twinge of pain that I can accept as it goes away as quickly as it comes.

Did you gradually increase the miles while jogging over a period of months and did your knee flare up at all if you did too many miles at once that happened to me by running over 5 miles in one go. I not had a flare up for over 6 weeks now so think my knee ready to take on more miles.

Nick :) {2011} :)
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Cschwartz on August 07, 2017, 05:37:22 PM
Brianna, I too have had 5 surgeries on the left name, the most recently done about 5 weeks ago. I've been through a hellacious time. And truly need an os that has experience with the subluxed patellas. Do you mind sharing the surgeon that you said finally made you have a successful life with your knees? I feel like I've been to some of the best butt I'm clearly nowhere that I need to Be. In one surgery I had the mpfl reconstruction with hamstring and the tibial tubercle osteotomy and nothing has been really correct since then :(
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Cschwartz on August 07, 2017, 06:02:19 PM
[


Briannas surgeon sounds like one of the great ones! Can anyone tell me who she went to? I keep seeing  a Dr T but thats all?  I have had the big mpfl and tto surgery and so on... no success yet. !!


quote author=brianne link=topic=40953.msg348219#msg348219 date=1202663226]
Day 3:

I think its the rule whenever I have a left TTT done that it has to be snowy and super cold.  The high here today is 4 degrees.  My first left TTT was done on a Thursday and we had a major blizzard and cold front that first weekend.  Oh well, not like I am going much of anywhere.  It has been a very bad winter here and I have spent most of it recovering from knee surgery.  I guess its better to do it in the winter then in the summer when I would really want to be active.

So I slept well last night, but sleeping has never been an issue for me.  I still have a lot of numbness in my lower leg.  I am not sure if that is from the swelling or left over from the spinal/femoral nerve block.  Every now and then that area starts to feel warm and it also gets itchy and tingles.  I hope that means the nerves are waking up.  The pain is still pretty bad.  I find that most of the pain is felt in the MPFL recon area, I really do not even notice the TTT site pain all that much.  This is interesting because when I had the solo TTT's they were plenty painful. 

I have my first PT session tomorrow.  I am really not doing that much in the first few weeks.  I cannot do a SLR for 6 weeks as my OS wants the osteotomy site to heal and a SLR puts stress on the patellar tendon which will put stress on the osteotomy site.  So the first 6 weeks are mostly ROM, a few gentle quad exercises, and that is about it.  However, I am no where near done with the rehab on my right knee and so it will continue in a modified format while my left knee heals.

My first PO appointment will be Feb 18th.  All my PO appointments will be done with my local OS.  He will expect 90 ROM when I see him.  That has never been a problem, so I am not worried at all about that.

So, thats all for now.

Oh yeah, and I have decided that when I am all healed from these knee surgeries I am going to get another dog.  I have a 1 year old Cairn Terrier named Benny and I think he would be happier with a playmate.  I want a female West Highland White Terrier.  But, I cannot worry about a new puppy until after I am back on my feet.  But it gives me something to look forward to!

Brianne
[/quote]
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Vickster on August 07, 2017, 06:27:45 PM
On here, Dr T usually refers to a US surgeon called Dr Teitge , if you do a search on the forum. It is possible he has retired / ceased practising though based on the most recent postings

http://www.kneeguru.co.uk/KNEEnotes/knee-surgeon/dr-robert-bob-allan-teitge
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Cschwartz on August 07, 2017, 06:36:40 PM
Thank u so much! ☺☺☺ but it sounds pretty sad if he has retired because it sure is hard to find a surgeon that seems to specialize in these patella dislocations and subluxing issues.. I have had two very well decorated orthopedic surgeons both primarily in sports medicine but I think I feel worse now than I did before I had all of this "fixed"   how are u doing "vickster"?
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Vickster on August 07, 2017, 06:41:48 PM
Another surgeon who has been favourably reviewed is a Mark Sanders in Texas, but there have also been poor reports...he seems like an acquired taste or 'marmite' as we would say here in the UK. Use the search function

http://www.kneeguru.co.uk/KNEEnotes/knee-surgeon/dr-mark-sanders

Another who gets consistently positive feedback on here for patella issues is Dr Arendt

http://www.kneeguru.co.uk/KNEEnotes/knee-surgeon/dr-elizabeth-arendt

https://www.ortho.umn.edu/bio/orthopaedic-surgery/elizabeth-arendt

From your language, I'm assuming you are in the US, otherwise this is all a bit irrelevant!


I'm doing ok, thanks for asking
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Cschwartz on August 07, 2017, 06:55:42 PM
Haha yes, Im in usa. Am I on a forum that is out of the country? Lol . I have read so many different forms and trying to get different perspectives of these humongous surgeries we've all went through and this one stood out to me because of the previous post from Brianna of her failed attempts of surgery and then finding this doctor that gave her life back and now running and in marathons.  Are you a fellow need dislocator as well? And have you went through all the big mpfl and TPO osteotomies or what? It's amazing what we put our bodies through just so that we can get back to having an active fulfilling life! 🙄🙄🙄
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Vickster on August 07, 2017, 06:56:36 PM
Yes, the site owner is in the UK

No, no dislocations here. Just good old arthritis and degenerate meniscus. No major surgeries, just a couple of arthroscopies

Just saw your post in the recent list, you responded to a thread that's been dormant for about 6 years, so unlikely to get any response otherwise
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Cschwartz on August 07, 2017, 07:03:48 PM
I actually live the state of Tennessee, it sure would be nice if I could find someone within driving distance but it seems like all of the good ones are in bigger cities and metropolitan areas :/
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Vickster on August 07, 2017, 07:07:30 PM
There are probably only a handful of true patella experts across the world, probably will need to travel. Plenty of planes flying around the US :)

Good luck
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Cschwartz on August 07, 2017, 08:08:12 PM
Haha, yes. The big surgery i had was at University of Virginia and the last two I have had in Pensacola Florida... so I am one that doesn't mind travel if it's an expert , but also have to consider surgery,  traveling and if I have a local physician that can assist if needed... like u said, so few have a patella specialty.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: iborodin on December 05, 2017, 06:09:50 PM
Hello, I noticed that you wrote that you had the surgery at University of Virginia.  I am having surgery there as well next week and would like a little of your feedback of how the surgery went.

I am getting MPFL reconstruction with TTT.
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Cschwartz on December 11, 2017, 04:06:56 PM
Hi! Im so sorry for the delay in this response, I just happened to stumble upon an email showing me that you had posed a question. I have went through about five procedures on this knee and I would have a load of advice for you, but advice is only as good as you feel led to either listen or not if that makes sense??  My life has never been the same since I had my mpfl with t t o!!  And I can tell you that I have been very active and healthy and worked out for many years and this surgery was really in my opinion overdone from everything I have learned now?  most Orthopedics say the tibial tubercle osteotomy alone is enough for what was going on for me which my diagnosis was subluxed kneecap,  and it was days away from probably being dislocated.  The surgery that I had done is one thing that I can say if I could turn back the hands of time I would have not.  I didn't have a choice because my knee cap was popping out but I would not have allowed both type procedures to be done because it was done so well ... that my kneecap settled in a place that was pulling medially so I've had a lot of reconstruction since! Uva is top notch, and my surgeon ws too. Hes on medial pattela boards and well decorated..imo, being a univ hospital, they love these complex surgeries as its a teaching hospital .. vs needing to be more conservative w surgery types. Make sense?
Title: Re: Brianne's Left MPFL reconstruction and TTT revision
Post by: Cschwartz on December 11, 2017, 04:10:01 PM
You didn't mention why that you were having the same type of surgery which it sounds like that I had 3 years ago, so it is hard for us to advise one or the other until we really know what all that you tried to do before this? I have stumbled upon an absolute excellent group in Indianapolis that I went to called OrthoIndy, they own their own Hospital Systems they have like over 70 types of Orthopedics and several of them thrive on complex injuries and revisions the blew me away and very much has impressed me! Like I said, the type of surgery I've had done and it sounds like that you will have done isn't in a high-volume because the recovery is very lengthy and very painful and the statistics are not very high on success rates