KNEEtalk

The WAITING ROOM => GENERAL KNEE QUESTIONS and comments (good for new threads) => Topic started by: johnmac1979 on March 03, 2007, 01:19:45 PM

Title: Pleased to be on board! Hopefully someone can help?
Post by: johnmac1979 on March 03, 2007, 01:19:45 PM
Hello all! I cam across this forum through a web search and hope that some of the members may be able to give a little advice?

A bit about me...... I'm 27, 6ft 4inches tall, 12 stone (or 80 odd kilo's in new money!) and i am a very fit and healthy person, with the exception of my right knee!  :(

I live in Scotland and my occupation is fish farming, which is quite a physical job involving heavy lifting (up to 40kilo's) often over the course of a whole day.

My long injury  :(  :(

Eight and a half years ago i was playing football (soccer! ;)) and when i tried to kick a ball with my right foot my knee over extended causing my foot to come up to my face!!  :'(  Severe pain!! and lots of it and terrible swelling with black bruises. Hospital next day, told that there was no problems on the x-rays just a bad twist/sprain.

On crutches for a few weeks, but no better so back again. Was decided that fluid would be drained from the knee, which involved a big syringe and no anaesthetic  :'(

Another two months on crutches but still no better.... so back to my G.P. were i was prescribed anti-inflammatories and pain killers..... swelling reduced over the next few months but still not much movement. Problems with locking then followed and crunching in the knee with a feeling of someting moving about, if i went on my kness then i could feel it and push it about with some pain! Back to doctor and reffered to hospital, two months later appointment came and i was back at hospital

Doctor put up original x-ray and even i could see that something was wrong with the knee  ::) More x-rays taken from different angles and two or three pieces of bone/cartillage were in there floating about. Apparently i'd fractured the bottom off my patella?

Operation (key hole surgery-athroscopy) two months late (the NHS doesn't move very fast!) and doctor presents me with a piece of bone! but only one??? Its all they could find and they think it was the same piece moving about between x-rays?

So..... over the next few years problems with moving pieces? or thats what it felt like... grinding...swelling....bruising and locking of the knee joint... all in all not good. Visited the doctors surgery on several occasions, but only got pain killers.

Two and a half years ago, things started feeling worse, something was on the move and getting in the wrong places! locking, bruising and swelling so back to a different surgery (i'd moved North) and the doctor didn't like what he saw. Told me i'd been let down by the NHS...blah blah blah and he'd make an emergency appointment for me at the hospital. A month passed... no news and then the inevitable happened... it locked, and it wouldn't unlock. Phoned the doctors surgey, turns out the doctor forgot to send off my referal to the hospital  >:(  >:( go straight to Accident and Emergency.

At the hospital got roughed up and abused but the knee didn't unlock, x-rays showed nothing and i was basically told it was all in my head. Sent home on crutches and phoned the next morning. "Is it still locked?" yes i replied, come in and we will operate. Knocked out again and another athroscopy with another piece recovered! yippeeee...i'm fixed... or so i thought! Six months later... back to the same old way... pain discomfort swelling bruising and some locking!

Back to the doctors surgery in September when it started to go downhill, got a letter two weeks later saying i'd be seen in the next six months in line with rules laid down by the Scottish Parliment! Yipeee!  :(

Beginning of November at work, step over a two foot high fence and my knee buckles with an all mighty crunch, instant bruising and sweeling to the left of the knee cap. Agony, pain.... just the usual! Three days off work ice, elevation and compression but still buggered! go to the Doctors surgery again, he takes one look at my case and is shocked!  :o Asks me how many times i've had physiotherapy? i reply never...he's disgusted! Have you had an MRI scan before?? no never i reply, just x-rays. They'll never find anything on x-rays it must be cartillage!

He phones the hospital and tells them i'm being sent there now for immediate help, so off i go! Get to hospital..... More x-rays!!! but no change from last time, but i do find out that i have a calcified piece attached to the inside left of my knee, but its in the same place it was in 2004... news to me!  >:(

Discharged and given an appointment for Orthopaedics Outpatients the following Tuesday. Turn up they have a look, say its probably a dislocation and send me for more x-rays! I'm going to glow in the dark!!! no change they say, i ask for an MRI and thinking i'll have to argue for it, he says no probs! as if he wasn't allowed to offer it, but i'd be given it if i asked??

three weeks later, MRI then another 2weeks for results, results indicate a dislocation and taping and physiotherapy are seen as the answer so off i go to physio a few weeks later. Lovely women, very helpfull but over the next three weeks of physio i suffer three dislocation and my physio refers me for a second opinion to the hospital the next morning.

So off i go, the hospital physio (another lovely woman!!) agrees that this needs urgent Orthopaedics attention and physio is pointless, she says i need a splint and probably put in plaster to keep the knee stable, she sends me to one of the wards, were i'm seen by the doctor, who sends me for x-rays! yipeeeee!!

The results, no different, and he hasn't even looked at my knee yet!! Goes away, comes back, we can see you Tuesday morning at Orthopaedics..... suppose i better look at your knee... hmm not so good, right see you Tuesday, "sorry i can't do any more just now, im really busy"

SUPERB!!!!

So in relation to my story does anyone have anything similar??? Same injury? same long term problems? same failings off parts of the NHS?? I'd love to hear from you all!!!

Sorry its such a long story! but this is the short version! :D

Title: Re: Pleased to be on board! Hopefully someone can help?
Post by: johnmac1979 on March 03, 2007, 01:47:39 PM
I've been trying to post a copy of my MRI results, but it keep coming up tiny??

http://s42.photobucket.com/albums/e340/johnmac1979/

here is a link to a copy on another site..... just click the first pic top left to view it!

Many thanks, i'll really appreciate and feed back!

Best wishes, John.
Title: Re: Pleased to be on board! Hopefully someone can help?
Post by: shortyclairebear on March 03, 2007, 06:07:04 PM
hi john im really sorry to hear of the total lack of care you have had from the nhs,it seems to becoming oh so frequent with them and i must admit i also feel they have let me down!
my story is alot different to yours but ......... i had an accident nearly 2 years ago where i landed directly on my patella after coming off my motorcycle.
the a and e department told me i had firstly,broke my leg,shattered my kneecap and sent me home potted to my middle!
the next day i had an appt with a specialist who told me that there was no break! took the pot off and advised that the a and e department had misread the x ray.
 i went on to have physio (this physiotherapist was good and actually told me id have been better off breaking my leg!)i also had further x rays and an mri scan all that brought back no break,but problems internally that were diagnosed as conditions such as tendonitis,(and words i cannot spell!) etc by specialists.
i was somewhat relieved there was no break but was confused as to what the problem was as it was so painful and did not look right.
i was told by x 2 specialist that there was nothing they could do for me and that i would basically have to live with it,i could not kneel,could not stand for long periods of time,exercise without my leg swelling to the size of a football ...........all this and i was only 27 at the time!
i got another opinion and eventually the specialist/surgeon that i have now decided the best cause of action would be an athroscopy he advised that this may be more as a exploritary op rather then a cure but if they could rectify them problem then they would but at least would know what they were dealing with.
i had this done and as soon as i came round from the drugs the surgeon came to see me and advised there was a lot of damage inside and i would need a further operation done.(this was nearly a year after the accident)
i was put on the waiting list for this 2nd op and in the meantime had more physio to try and help,the physio i had this time was a nightmare! he never actually gave me any exercises to do and spent the whole time measuring my knee and telling me how much more it was in inches then the other and telling me how many millimetres my patella was out of place! (i later found out id been put in the care of a trainee)
the next one i was given after the trainee moved on was brutal,he prodded and poked and to be perfectly honest i feel he made the situation worse.
i was eventually discharged from physio and told that id be best waiting for the op as i was in constant pain whenever i went!
i am now 5 and a half weeks post op after the second op, my surgeon, i have been told is exceptionally good and has a very good success rate, he seems to have a very conserative/laid back  approach (i feel) to recovery from this op (compared to some other "posters" on here).i am in a brace and have to be for 6 weeks from the op,i hope to have this taken off next week when i see my surgeon for the follow up appointment.
i was starting to fully weight bear round the house and only used my crutches if i went out,i had the brace set to 45 degrees ,2 weeks post op and was only achieving about 30 degrees ROM (range of motion)but was doing ok to say it was "early days" ..............and then disaster! i fell down our whole flight of stairs!
i landed in a very awkward angle and my knee was bent in my brace at 90 degrees,(the man in a and e said it had been set to 90 degrees but my day surgery department said it hadn't)so i don't know if the impact of the fall damaged it or what!!
so............i went straight to a and e - they had never heard of the procedures i have had but thought it best to set the brace back to the "straight" angle again so if i have damaged something inside it will not make it worse and told no weight bearing again.
i was made an emergency appointment for the next day with a specialist (not mine though as he only works in my city a few days a week) i waited about 2 and a half hours in a waiting room with over 60 people in it to see him.the first half hour i had to stand,then an old lady gave her seat up for me then we were move to another room where i managed to get another chair to rest my leg on,by this time it was purple and swollen like hell (im supposed to keep it elevated) .... the emergency "specialist" .........mr sattan (or should that be satan(!!) knew nothing of my op (what he specializes in i don't know-but definatley not my kind of op)he asked me what id had done (operation wise) and when i told him asked what that was and looked at the nurse quizzically who shrugged her shoulders.
i explained to him what it was i've done and he was looking at my x rays from yesterday and said "well there are no breaks!" (i knew that already!)
i voiced my concerns with the internal problems the fall may have caused and he said "well theres a strong chance of that"  and mumbled that as i was seeing my specialist next week , he'll leave it up to him to sort of the best course of action!
so here i am now laid up worried i may have damaged my knee and that i may be making it worse everytime i move etc! :'(
oh well theres nothing i can do now til tuesday!! sorry this is abit novelish!

take care, claire



Title: Re: Pleased to be on board! Hopefully someone can help?
Post by: shortyclairebear on March 03, 2007, 06:31:03 PM
sorry can't make out the mri rsults!
Title: Re: Pleased to be on board! Hopefully someone can help?
Post by: johnmac1979 on March 03, 2007, 06:44:26 PM
Hi Claire, thanks for the reply! and your story! I also have a motorbike, and i'm beginning to wonder how easy its going to be for me to ride unless my knee improves?? I may end up giving it up..... i'd hate to have an accident and further damage my knee!

As for your story and that of others on the site, there seem to be a lot of "sorry we can't do anything" stories from the people at Orthopaedics, i was kind of hoping to read other peoples stories and be re-assured that i've just been unlucky, but no such luck!!  :'(

I hope that all works out for you! and thanks for looking at my MRI scans! even if you couldn't figure them out! I think i'll need a medical dictionary to try and solve them, but apparently my patella is bleeding? or at least thats what the guy at hospital said?? "but it's okay...it'll stop in five or six months" lovely! and so much for his idea..... three dislocations in three weeks, plus several subflexes is far from healing!

I just cant believe that there is nothing that can be done?? they can put a man on the moon and drop a smart bomb on Baghdad from 100 miles away... but cant fix a knee? whats the world coming to? Maybe it's the "war on terror" stealing all the NHS funding?? shocking!

Thanks again Claire and let me know how you get on!  ;)

Anyone else got any input on my mistifying injury?

Many thanks, John.
Title: Re: Pleased to be on board! Hopefully someone can help?
Post by: shortyclairebear on March 03, 2007, 07:02:31 PM
hi john have you tried looking at the dictonary on the homepage??? (in the topics listed down the left side/section above where the forums are)
if there are any technical sounding terms in the mri results then alot of them are explained in there.
hopefully you may get some more positive responses from people on here aswell!! most the brits on here seem to have had pretty bad care though!
i can't believe (or should i say well it is the n.h.s!) that they said to you "it'll stop in five or six months!" thats terrible!
i personally have a car now and feel so much safer..............wondering if i'll ever drive it again at the moment though!  :'(
i don't think it is just the orthopedics departments either to be honest.......my mum had her gallbladder removed as an emergency op in november 05 and she has never been written to with her follow up appt.


take care and good luck with the other responses!

claire x
Title: Re: Pleased to be on board! Hopefully someone can help?
Post by: johnmac1979 on March 03, 2007, 07:10:22 PM
thanks for the info about the medical dictionary Claire! I shall have a lookie!! Ah bless the NHS... generally nice people, just totally over stretched, i can understand why i'm always forgotten about, people with broken bones take priority, it would just be nice to be noticed! I think with a bit of time and a lack of care i'll break something in the near future.... might be a blassing in disguise!  :-X
Title: Re: Pleased to be on board! Hopefully someone can help?
Post by: shortyclairebear on March 03, 2007, 07:12:48 PM
hi anything i couldn't find in the dictionary i just "googled" it on the net!!
Title: Re: Pleased to be on board! Hopefully someone can help?
Post by: Audice on March 03, 2007, 11:46:49 PM
John ~ Welcome to the board. Hopefully there are people here who can help you out. What I've found from reading your MRI reportthen using the Kneeguru dictionary accessible from this site is that the damage seems to be with the medial patello-femoral ligament


The dictionary says...

The medial patello-femoral ligament is a small but important ligament stretching from the inner aspect of the patella (knee cap) to the femur bone.

--------------------------------------------------------------------------------
It acts as a passive restraint, helping to keep the patella properly aligned. It has an anatomical relationship, too, with the important VMO muscle (part of the quadriceps), and tearing the medial patello-femoral ligament makes the VMO incompetent.

Is this of any help?...Ellie


Title: Re: Pleased to be on board! Hopefully someone can help?
Post by: johnmac1979 on March 03, 2007, 11:52:43 PM
thanks for the information Ellie! thats a big help! Basicallyi want to know as much as possible about my results so i can ask all the right questions on Tuesday! Eight and a half years is a hell of a long time for a 27yr old to have knee problems, which in effect prevent me from doing anything bar walking, as work uses all the strength my knee has to offer!

I basically need as much info as possible so i'm not baffled by their talk on Tuesday and so i can offer all the right questions!

Thanks for your help! and keep it coming! Also if anyone has or had similar injuries i'd like to hear from them!

Many thanks again Ellie!

John.
Title: Re: Pleased to be on board! Hopefully someone can help?
Post by: Audice on March 03, 2007, 11:59:58 PM
John ~ If your Google medial patello-femoral ligament you might find a whole lot of information...Ellie
Title: Re: Pleased to be on board! Hopefully someone can help?
Post by: shortyclairebear on March 04, 2007, 12:06:13 AM
hi john sorry you havent had many replies yet!!
i would ask them when you go for the technical names and the translations!! my os gave me all the info in "my language" but when i came on here its all the proper technical terms or abbreviations that are used so til i had my fall i never actually knew what the technical name of my procedures were!! its difficult for people to help aswell whaen you don't know yourself!!

i personally write down a list of questions before i go and start it a few days before so i remember when i get there.my os i think felt abit like i was interagating him but id had enough and though its my knee and i want to know what you are going to do to it!!
by ellies translation i will be interested to know what they will advise the course of action will be...........were she has mentioned the "vmo" and the "medial patello-femoral ligament" and how it works it sounds very similar to the op i have just had to correct my problem,mine wasn't torn though!
keep us posted.
claire x
Title: Re: Pleased to be on board! Hopefully someone can help?
Post by: johnmac1979 on March 04, 2007, 09:36:24 AM
Thanks again Claire and Ellie!! I shall have a read up on the medial patello-femoral ligament today and see what it says and what symptoms of pain you will get as my pain is very specific to the left side of the knee..... although when i dislocate, or sub-flex, it hurts all over!
 ;)

Thanks, and keep the info coming!!

All the best, John. ;D
Title: Re: Pleased to be on board! Hopefully someone can help?
Post by: johnmac1979 on March 05, 2007, 12:29:07 AM
Appointment Tuesday morning! lets see what happens?? Huge bruise about the size of an apple on inside left knee... crunching noise when i walk or flex.... sub-flex today..... and plenty of swelling!  .......................surely they must realise that something is wrong?? please god!!!!!!!!!

Another night lack of sleep beckons, so goodnight all... hope you get more sleep than i will!

John.  ;) (staying strong...but only just!  :'()
Title: Re: Pleased to be on board! Hopefully someone can help?
Post by: shortyclairebear on March 05, 2007, 10:04:01 AM
hi john good luck with the appt on tuesday morning!! thats judgement day for me too!!
Title: Re: Pleased to be on board! Hopefully someone can help?
Post by: garth on March 05, 2007, 08:31:42 PM
Hi John. Best of luck with the appointment tomorrow.
Having had knee problems for a similar period of time as you, I can understand how frustrated you must be getting.
  I've had similar problems with getting it properly looked in to. My GP always does the same 'tests', which don't cause me any extra pain and I get sent on my way. I saw a different doctor the other day, he examined my knee, looked at my history and, after getting some more info from me, decided it was time for me to see an OS.

Title: Re: Pleased to be on board! Hopefully someone can help?
Post by: johnmac1979 on March 05, 2007, 10:20:01 PM
good luck Claire, and to you to Garth! I've really had it with my knee........ border line depression!  :'(

Im 28 next week, and for eight and a half years i've been able to do nothing but walk and work. For the last two years the pain and problems have got worse and i'm now a broken man. Three disclocations in the last three weeks, umpteen almosts, a fall up the stairs on Saturday and a fall again tonight. My right knee is now twice the size of my left and a lovely combination of black, red and burning hot. I thought once i got my MRI and the results proved not one but several injuries i'd be okay, but the solution??? as decided by my OS...... you guessed it physio and taping??? In my three weeks of physio, three dislocations, almost all exactly a week apart resulting in my excellent physio ...and she really was great!!! totally commited to my care and rehab! phoning the hospital direct to arrange an emergency appointment at Orthopaedics... superb i thought balls rolling!! She gave me a detailed letter clearly stating i needed immediate attention and probable permanent cast to stabilise the knee with a view to surgery....... i turn up...more x-rays everything fine, and all before they looked at my leg!?!?!? then they finally do and agree its very badly swollen and bruised, but wait for it "sorry, we are really busy, can you come back in 5 days"  :(  :(  :'(  :'( no cast, no splint, no bandage?  ???

I've had it, i have the mobility of a 70year old! and at 28. I will be disgusted if i dont get offered surgery tomorrow or at least a return appointment with a view to solving my obvious serious problem.... god i wish i had a break... then they would have to fix it!

Good luck for tomorrow Claire!  ;)
Title: Re: Pleased to be on board! Hopefully someone can help?
Post by: shortyclairebear on March 05, 2007, 10:23:56 PM
you too john will check in to your post tommorrow to see how you got on!!  :-\
Title: Re: Pleased to be on board! Hopefully someone can help?
Post by: johnmac1979 on March 05, 2007, 10:33:22 PM
I live in hope Claire!!  :o :o :olets hope we both get good news! It would be a great shock!! but a most welcome one!  ;)
Title: Re: Pleased to be on board! Hopefully someone can help?
Post by: Audice on March 05, 2007, 11:04:20 PM
Hoping to hear good news, John...Ellie
Title: Re: Pleased to be on board! Hopefully someone can help?
Post by: garth on March 05, 2007, 11:06:17 PM
John. The most helpful person to me has been the physio too. It sound like our situations with only being able to walk and work are quite similar. Although my problem probably isn't half as bad as yours, I'm finding that after work and most weekends, I'm spending all of my free resting up for the next working day. I've got to admit this is hard to take living on a farm, especially with lambing just around the corner. Although I don't work on the farm (because of my legs) I do like to help when i can, especially at this time of year.

Hope everything goes well for you tomorrow. And you Claire.
Title: Re: Pleased to be on board! Hopefully someone can help?
Post by: shortyclairebear on March 05, 2007, 11:17:33 PM
THANKS GARTH!!

HOPE I GET A GOOD PHYSIO!!  ???
Title: Re: Pleased to be on board! Hopefully someone can help?
Post by: johnmac1979 on March 06, 2007, 07:18:31 PM
Well Claire, hope you faired better than me!

No luck really.... got a brace from just below the hip to the ankle...unhinged.... basically i've got to live with it, thats what the top man says. He says i have a knee trauma which will last my lifetime, just build up my muscles above and below the knee and get on with it.  :(

Was kind of hoping for a quick fix..... but no such luck, back again in three weeks, hopefully swelling will have gone down, they can have a quick look and then forward me to physio. dissapointed beyond belief.

I do have a loose body on the inside left of the knee but its outside the knee joint and doesn't need to be removed?? Cant argue with the man, he says its fine where it is, get on with life.... all be it in pain.

On the bright side, at least i got 19 years of having good knees, got to play football and run and cycle etc etc. Only another 60 years of having a bad one to go!  :(

lovely.
Title: Re: Pleased to be on board! Hopefully someone can help?
Post by: shortyclairebear on March 06, 2007, 07:28:50 PM
john thats terrible i can't see how they can make you live your life suffering? how many opinions did you get on this? i'd definatley get another if you can..........your'e far too young to carry on in this way..............i went to see x 3 different people and only the 3rd one really realised there was a problem and even them he did not seem too keen on performing the surgery but i insisited i was willing to go through with it even though he said it may not work............after that one was done the real problems were revealed which is what ive just had my second op for so it will hopefully correct it this tiime,
i posted my results from my specialists appointment today in the "rehab department" section under the heading.........."shortyclairebears specialist appointment" (after fall) or something like that!!
seems the os forgot to refer me for physio!!
Title: Re: Pleased to be on board! Hopefully someone can help?
Post by: garth on March 06, 2007, 07:33:46 PM
Sorry to hear about that John, it can't be a pleasant situation to be in. If they are saying the same in 3 weeks, would it be worth getting a second opinion? I've been shifted around myself and just about every doctor I've has had a different oppinion on the problem.

Title: Re: Pleased to be on board! Hopefully someone can help?
Post by: Audice on March 06, 2007, 08:04:25 PM
Bummer, John. Did the doctor suggest PT for you to build up the muscle? Is it worth going for another opinion? I can't believe you were just left with an immobilizing brace & told to get on with life. Surely there's more that can be done...Ellie
Title: Re: Pleased to be on board! Hopefully someone can help?
Post by: johnmac1979 on March 07, 2007, 12:27:09 AM
bummer is an understatement!  ;) I'm buggered!  ;D Everyone i've spoken to says the same.... surely they can do something?? but it appears not. s**t happens as they say...i'm kind of getting used to it already. I'll see how it is in three weeks then i'll get reffered back to physio (the very people who told me last week after six physio appointments that i needed an orthopaedic surgeon!!!  ???  ::) )  But hey thats life.

Lets face it..whats the worst that can happen? I'll probably need to give up my job...fish farming and bad knees don't mix!! ........with that goes my house as that comes with the job!...... Re-train because this is all i've done since finishing University so i need more cash for that.... then get another job and another house, only to find out i cant do that one either 'cos of my bad knee.... then hit 55years old.... knee replacement.... then death?

Sounds good to me?? Or am i just being cynical? I'll give it the three weeks... see what happens then speak to my physio as she had already suggested a second opinion....failing that i'll give BUPA a call.  :( more money down the drain!
Title: Re: Pleased to be on board! Hopefully someone can help?
Post by: shortyclairebear on March 07, 2007, 11:17:05 AM
hi john you definatly need that second opinion! as for the bupa thing it might be an option,i paid privatley for a consultation with a speacialist id been refferred to by the n.h.s for another matter,the waiting list was months away on the nh.s and i wanted reassurance sooner then a few months so paid private.(it was actually the me man i saw too!) i had the appt in the next two days and got referred for tests but had those done on the n.h.s so i didn't have to pay for those too.
it was over a hundred pounds to see him privtley but was well worth it as it was peace of mind and even though i had to wait for the tests on the n.h.s i got on those waiting lists earlier then i would have if id been refferred after the n.h.s' initial appointment with the 8 month waiting list.
if you do this and the private specialist gives you a more positive opinion he can refer you for treatment.
Title: Re: Pleased to be on board! Hopefully someone can help?
Post by: Audice on March 07, 2007, 12:20:31 PM
John ~ I don't know how your health system works but I am aware that it's nowhere near as easy to get help in a hurry as it is here in the states. But it would seem that if your life & livelihood are now at stake it'd be worth the investment to go private for that apparently needed second opinion. As Claire pointed out there may be loopholes in the system you can take advantage of so the cost isn't quite so prohibitive. Wishing you well...Ellie
Title: Re: Pleased to be on board! Hopefully someone can help?
Post by: johnmac1979 on March 07, 2007, 01:49:39 PM
Thanks for the advice Claire and Ellie, i think  a consultation with a private Orthopaedics surgeon would be a good option, I'll wait the three weeks and then take it from there. I shall keep you all informed.

All the best, John.
Title: Re: Pleased to be on board! Hopefully someone can help?
Post by: shortyclairebear on March 07, 2007, 03:25:58 PM
good luck with it john!!
Title: Re: Pleased to be on board! Hopefully someone can help?
Post by: Tussypat on March 10, 2007, 01:51:16 AM
Hi John

sorry to see you've been let down by the NHS. I'm in Scotland too, so if I do go and see this good knee guy thats been recommended I'll let you know what hes like! hes in Glasgow so I'm not sure how far you are from there? :)

The good physio you used, was that private or NHS?
Title: Re: Pleased to be on board! Hopefully someone can help?
Post by: shortyclairebear on March 10, 2007, 11:05:09 AM
hi john just wondering how you're getting on??
Title: Re: Pleased to be on board! Hopefully someone can help?
Post by: johnmac1979 on April 15, 2007, 11:37:27 PM
Hi Tussypat.... my physio i saw was on the NHS and i live in Perthshire, if you like i can PM you her details??

As for everyone else.... HELLO! I'm back after a month away from the forum! Miss me?

Thanls for all the advice and info, very helpful!

I had my appointment with my orthopaedics consultant last week. As you know i had been in my brace for three weeks, and then one week without it to get a bit of movement prior to my return trip last week. The last three weeks have been good, well better than recently! I have had no dislocations, but the pain is still constant, all be it varying from so so to quite bad. The bruising has almost gone (for the moment!) as has the swelling. Movement is as good as its been for a good while, but still no-where near being able to squat or kneel..... doubt i ever will be able to!

So to a certain extent the splint has helped, well at least its prevented it from giving way again. I still have no confidence in the knee and think that it is capable of giving way at any time!  ::)

My appointment as i mentioned was last week, and things went suprisingly well..... well kind of! Went in, saw the consultant as last time and i expected the same words as last time.... but no!  :o

Told him that i still have a loose body, probelms with locking, giving way, instabillity, pain, crunching and movement. Loose body? he said..... ah thats the one thats outside the knee joint? flicking through my records........i dont know where it is, but i can feel it from time to time and move it about with my finger...hmmm he says..... very strange. Well i get locking so something is moving about in my knee, he seems to agree???  :o whats going on?? this is the guy that told me 3 weeks ago to get on with it???

Anyway, a quick examination and a look at my MRI results and i say "apparently the MRI doesn't show any big problems" so if i get the loose body out then things will get better, he shows me the results and contrary to what i've been told by others he says that they aren't great and that there is a lot of rough cartilage and wearing withing the left of the knee joint.

Basically he says it looks like it needs an operation of some sorts and to come back in three months for more x-rays to see if the loose body outside the knee which has shown up on x-rays, is still in the same position.... which is where the last six months of x-rays have shown it to be, if its moved at all then thats a sign its causing problems, i say if it isnt that one then there must be another... he says it would have shown up on the MRI if there was?

So i've got 3 months to build my knee muscles up as best as i can, then its back to him for more x-rays and to get a final... final decision....hopefully

How can one mans opinion change so much in 3 weeks? and who's to say they wont have changed back next time i see him in 3 months??  Whatever he says i need something done!!! I have been able to manipulate the loose body a couple of times in the last week..... just hope its in a different place by the next x-ray!

Two nights ago i could have taken it out myself with a scalpal and a bottle of whisky (for anaesthetic and disinfection!) but now its disappeared back in somewhere again!

Oh well....... anyone else had this? Or have any suggestions?

Thanks all for the words and support!

John.  ;)
Title: Re: Pleased to be on board! Hopefully someone can help?
Post by: lady on April 16, 2007, 12:04:17 AM
Hey I just found this site and your post. I was in a brace from ankle to hip for 5 months. It was awful. I should have gotten a second opinion and didn't. It took me 9 years to finally find a new/better doctor. I had a doctor that said change my lifestyle and live with it. Thats when I decided change docs. I wasn't looking forward to it but I researched doctors and found a great one with great refrences. My primary care doc is the one that said enough was enough and gave me some leads. I was boarder line depressed too. I'm only 36 and some doc is telling me to retire from teaching preschool and to stop coaching. I think some docs are the ones that need to retire.
I've dislocated my knee and one of thepossible reasons is the lateral side of my knee 's muscles are stronger pulling the knee cap. I also didn't llisten to the warning signs and still played through the pain..bad idea. Anyways I had to make the medial side stronger. I think PT would be great for you. It really helped me.
Good Luck.
Title: Re: Pleased to be on board! Hopefully someone can help?
Post by: garth on April 16, 2007, 10:06:42 PM
Hi, John. Its good to hear that your last appt went better. I can where you are coming from with regards to the OS drastically changing his opinions though, it just causes confusion. S for building your muscles up, I'd think that your best bet would be to start getting PT sessions asap (something I'm stuggling with atm ::)). Did your OS manage to see anything useful on the X-rays? Mine said he couldn't find anything, so I'm now waiting for an MRI. I have an uncle who has had loads of knee ops and he has had a similar experience.

garth
Title: Re: Pleased to be on board! Hopefully someone can help?
Post by: johnmac1979 on July 03, 2007, 06:01:21 PM
hello all............ back after a longtime away.

I've been seeing a private physio in an attempt to get my muscles built up above and below the knee. On the first visit i was just over an inch thinner at the top of my right knee as apposed to my good left knee... but with some good help from my physio i'm now at half an inch, but its been a long slog!

Had my final orthopaedic appointment today at Perth, and i'm glad to say that i got what i wanted!!!!! yipeeeeeeeeeeeeeeee
 ;D  ;D   ;D  ;D  ;D   ;D  ;D   ;D  ;D  ;D

I am now on the waiting list for surgery and i'm delighted!!!!!!!!!!!!!!!!!!!!!!

I dont expect that my knee will be back to normal... but hopefully it will get better once the loose body is removed. I am going to get a combination of key hole surgery and the inside of the knee is going to be opened up, so they will take a good look around whilst they are in there!!!!!

I'm well chuffed!!!! I'm hoping for a date in the next six to ten weeks, and hopefully after a couple of days in hospital i'll be on the road to recovery!!!  :D  ;D  :D  ;D  :D  ;D

I'll keep you all up to date!

Hope all is well with everyone else, especially you Claire!!

xx thanx all!

John.  ;)
Title: Re: Pleased to be on board! Hopefully someone can help?
Post by: shortyclairebear on July 03, 2007, 06:16:47 PM
hi john!!

YIPPEE!!! ;D  :D ;) :) ;D

i'm so happy for you that you are finally getting somewhere!!  ;D

i hope the appointment for the surgery comes through soon.

 ;D you know all your knee geek friends are here for you once you have it done!!  ;D

i hope the anthroscepy sorts out the problems for you and sees you on the road to recovery!
please keep us posted how you are getting on!!

.............it was great to hear from you again and "hear" you sounding so positive!!

take care,

claire  ;D

Title: Re: Pleased to be on board! Hopefully someone can help?
Post by: garth on July 04, 2007, 10:38:26 PM
John,

Thats excellent news. I hope it improves it for you.

garth
Title: Re: Pleased to be on board! Hopefully someone can help?
Post by: johnmac1979 on August 11, 2007, 03:03:19 PM
still no appointment date through  ::)  ::)  :(  :(
Title: Re: Pleased to be on board! Hopefully someone can help?
Post by: shortyclairebear on August 12, 2007, 09:31:05 AM
hey john!
i'll keep my fingers crossed for you that the appointment comes through soon!
the N.H.S are so slow!
take care and i hope other then the knee problems you are doing okay!?
claire x
Title: Re: Pleased to be on board! Hopefully someone can help?
Post by: johnmac1979 on August 17, 2007, 06:31:27 PM
  :D  ;D  :D  ;D  :D  ;D  :D  ;D  :D

I have my appointment.......... Monday!! yipeeeeeee. I was fairly taken a back when i got the phone call, i thought it would have been at least a few more months, but it only 3 days away!!!

I'm well chuffed! Hopefully all will go way and i'll be back to my prime with a few months hard graft and physio!

 ;D  ;D  ;D  ;D  ;D

I'll keep you all posted! and thanks for the encouragement all!

Thanks,

John.  ;)

Title: Re: Pleased to be on board! Hopefully someone can help?
Post by: shortyclairebear on August 17, 2007, 07:57:38 PM
good luck on monday john!
im really pleased for you!
let me know how you get on!!
Title: Re: Pleased to be on board! Hopefully someone can help?
Post by: garth on August 19, 2007, 09:03:12 PM
Good luck for tomorrow John. I had a similar phone call a while back when I expected to be waiting at least another couple of months. Good aren't they?
garth
Title: Re: Pleased to be on board! Hopefully someone can help?
Post by: johnmac1979 on August 23, 2007, 03:56:04 PM
had my operation on Monday at lunch, got out on Tuesday night. To early to say how things have gone, as its severely swollen and bruised. Loose bodies were removed as was much of the cartilage behind the knee and on the inside. Basically it was shredded, and he had no option other than to remove it. On crutches for a week or so, stitches out in 5 days, then outpatients in two weeks so will have to wait until then to see what happened and what's planned next.

In any case i'll kepp you all informed.... i'm away back to bed...thank god for morphine and Tramadol.....  ;D  ;D
Title: Re: Pleased to be on board! Hopefully someone can help?
Post by: shortyclairebear on August 23, 2007, 08:13:39 PM
hi john!
glad you finally got the op done!
take good care of yourself and get plenty of rest!
keep us posted how you are when you feel up to it.
claire x
Title: Re: Pleased to be on board! Hopefully someone can help?
Post by: johnmac1979 on October 04, 2007, 09:01:40 PM
Hi all...me again, been busy busy busy, so just not had much time to get back online! Had five weeks off work, started back two weeks ago. The five weeks were hellish...stuck in the house for two then bored out my skull for the next three.

The knee... first weeks was hard going, very sore and very painful, but weeks three to last week were excellent....the best my knee has been since inital injury 9 years ago, and far better than its ever been after previous operations (3others)  ;D

The last week though has been a bit mixed...recurring swelling, a bit of grinding, pain and general discomfort. No where near as bad as it was.... dont get me wrong its ten times better... but i'm just worried that it will progressively get worse.

The key is to get my confidence back, and to get the muscle stronger. I see an NHS physio every 10days, and a private one every 2 weeks. So far so good but its hard work, especially after a long day farming! ::) but hey thats life!

I'm just over one inch less muscle above the right knee (op knee) as apposed to my good left one.... so lots of work required. Apparently my VMO (Vastus medialis, something???  :-X ) is non-exsistent, so i need to try and sort that out! I have Chondromalacia behind the knee cap and had to have a lot of cartilage removed, plus i had a nick out my cruciate. Not exactly major injuries compared with most on here... but a combination of poor previos treatment on the NHS, only getting physio for the first time last November....four athroscopies and nine years of limited movement, pain and constant grinding have taken their toll...not least to my confidence! And at 27 years old...i feel like an old man!  :'(

But, s**t happens as they say. Maybe i should book my knee replacement now, but i'm damn sure i'll need one eventually!

I have another appointment with my surgeon in December, so we will see how things go between now and then.

Thanks to all for their help and support!

Best wishes,

John.  ;)
Title: Re: Pleased to be on board! Hopefully someone can help?
Post by: garth on October 04, 2007, 09:26:33 PM
Hi John,

Its good to hear things are better for you now. Hopefully the grinding etc will clear up as your leg gets stronger.
I know what your on about with the exercises being a bit of a mission after work with things being tired etc. I've been working on the vmo myself recently. Mines definately there but the damn thing is a bit slow firing compared with the other muscles.

Good luck with the rest of the rehab.

garth
Title: Re: Pleased to be on board! Hopefully someone can help?
Post by: johnmac1979 on October 09, 2007, 10:54:28 PM
Oh well...too good to be true! Partial dislocation on Sunday night...... swollen like a balloon  :'(

Hopefully its just one of these little set-backs....knee feels okay other than the swelling.

Physio Wednesday morning...so here's hoping!

Even worse...how did i mange this new injury? running...cycling.......no!....rolling over in bed!  ::)
Title: Re: Pleased to be on board! Hopefully someone can help?
Post by: johnmac1979 on January 03, 2008, 12:26:45 AM
They tried to make me go to re-hab, and i said.....go go go!  ;D

Well thats me...new year, new knee! Well maybe not quite!  :D

I have now been discharged from my physio...well my NHS one at least. She is delighted with the progress as am i. Some slight niggles in the last few months but nothing major. My VMO is getting very strong, i'm well chuffed!  :)

I am going to see my private physio once more, so he can measure the muscle and give me an idea of how its going, post op it was one and a half inches smaller in girth than my good knee.

I'm cycling and swimming frequently, and whilst running and kneeling...and most sports are out the window, i'm glad that the fourth operation seems to have helped. Not much of a life for a 28yr old.... especially seeing as it's been like this since i was 19yrs old, but hey thats life!

So i now bid you all farewell, and thanks for all the support and help over the past year and more. I hope everyone else is on the mend, though i'm sure i'll drop back in every now and then to see what's new........ Also for all you youngsters, i expect a knee replacement, at around 55 to 60....if i live that long! So i might see some of you in about thirty years time!!!!  ;D  ;D  ;D

A happy new year to all!

Best wishes,

John.  ;)
Title: Re: Pleased to be on board! Hopefully someone can help?
Post by: garth on January 03, 2008, 12:35:48 AM
Good to hear you are well and truly on the mend John. Hopefully you aren't getting any more dislocations now.

garth