KNEEtalk

The WAITING ROOM => GENERAL KNEE QUESTIONS and comments (good for new threads) => Topic started by: luckygrandma on January 10, 2007, 11:56:07 AM

Title: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on January 10, 2007, 11:56:07 AM
You wouldn't believe what I have been through the last few days. As you know
I got a call from my Doctor's office last Thursday telling me that my Spine
Specialist was called out of town on an emergency, and they would call me
next week or the week after and reschedule me for surgery.  Not that I
bought this for a minute as I had this happen once before and the doctor
never came back, but really had no control over the situation and had to
accept what they told me.

Monday my worst nightmare came true. I got a call from my Doctors office
asking me if I would mind seeing a Spine Specialist in Utica.  (80 miles from home) Being even
further from us I wondered why they were sending me to someone else and so
asked them when my Doctor would be back so I would know how much wait I had.
Guess what "the doctor has left our practice, he is no longer with us.  They
called and told me this the day I was scheduled for surgery. I had no choice
but to accept the alternative and it made me very nervous to switch doctors
in mid stream. Well, they say sometime things work out for the best and in
my case I think that's going to end up being true.

The frustrating part was filling out all the paper work again like a new
patient and the long waits, but when I finally got to see this doctor I was
very impressed. He was very thorough and talked to us for over an hour. he
explained things to me in a way that I could really understand them. For one
thing my back is a lot worse then I thought it was and the surgery will be
much more extensive to correct the problem properly. I think the other
doctor was going to do a Band-Aid fix that could have caused me to have more
surgery in the future.  He explained that in order to get the components to
fit properly he would have to enter through the stomach and back, and
therefore I will have a 6 inch incision in both my stomach and back.  The
surgery could take up to 8 hours. There are a lot more goury details but
this is the bulk of it. My surgery is scheduled at St. Elizabeth's Hospital
in Utica for February 28th. I have to redo all my preop testing etc. There
will be many trips there before that date.  When the nurse was scheduling my
surgery she told us it usually take two months to get into see this doctor.
This doctor put a day aside just to see this other guys patients which are
now his patients. I should say just surgical patients as everyone sent to
him was scheduled for surgery.


Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on January 10, 2007, 02:08:33 PM
Grandma,

Glad to hear that the doc turned out to be okay and that the surgery is scheduled. Maybe this was a blessing in disguise after all. Seems that he will be the one to patch things up better than the other doc. Good luck and keep us posted.

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: caren on January 11, 2007, 03:00:33 PM
Gramma I am with Peggy keep us posted and we will all send good vibes your way for a speedy recovery for you
Sorry you are going thru all of it again for the restesting and all the paperwork but maybe this one is the one you were ment to be seen by
Hugs to u
Caren
Title: Re: UPDATE ON MY NIGHTMARE
Post by: Kai on January 11, 2007, 03:06:57 PM
Nightmare describes it pretty well.. my heart goes out to you.  You are a very courageous woman to face this enormous surgery with so much grace.  Things happen for a reason.   This doc sounds like a caring and conscientous person just based on the way he reshuffled his schedule to take care of people he knew were reeling from losing their regular doc.  You will be in my thoughts. 
Title: Re: UPDATE ON MY NIGHTMARE
Post by: Doc79316 on January 12, 2007, 05:13:21 PM
Hey Becky,

I think that things happen for a reason, but it's a shame you've had to go through so much already just to get to this stage. Now maybe things are looking up for you and your surgery will completely fix your back problem for good.

How i syour daughter doing? I hope you and your family are well.

Take care,

Laura x
Title: Re: UPDATE ON MY NIGHTMARE
Post by: plantgeek58 on January 13, 2007, 02:17:14 AM
Lucky is a good word to describe this situation, Luckygrandma,
I know it's been a difficult journey, but it sounds like at the end, you wound up with a much better and more caring doctor. Hopefully you'll come out of this surgery in much better shape. I'll be praying for you.
Terre
Title: Re: UPDATE ON MY NIGHTMARE
Post by: knee deep in Goo on January 13, 2007, 02:25:09 AM
HI

I hope the time passes fast  and you have a quick and fast recovery.
I tried that biofreeze after my TKR and I am glad I bought it after your high recommendation.


Regards
Annie
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on January 13, 2007, 05:09:59 PM
Thanks everyone for your kind replies. You are all so wonderful.  After thinking my surgery would be over Monday it seems like it is forever away again, having to start all over is not easy. I know some people have had to wait for months to see a doctor and get a surgery date so for that I feel really lucky and I'm trying to look on the bright side. The problem is I am getting worse every day and the pain is unbearable. I feel shurt in as it is so hard for me to get areund that I don't even like to go out. Any suggestioons on how to pass the time and brighten my spirits.  I thought my knee was bad but it was nothing comopared to the pain I feel from this back and the leg pain it is causing from the pinched nerve. This is very extensive surgery and I feel nauseous thinking about it. Even with a TKR it is only about 2 hours and this could be 8 hours.
Title: Re: UPDATE ON MY NIGHTMARE
Post by: plantgeek58 on January 13, 2007, 05:24:06 PM
How about scrapbooking? You could start a book about your grandkids. You don't even have to go shopping for supplies. There are a lot of websites that offer free paper patterns and decorative elements that you can print out and use. Or pick one person and make them a scrap recipe book, with all your favorite recipes in it. I did that a few years ago for my oldest daughter and she loved it. She told me it's a good thing I used page protectors, because she's used it so much, the pages are already splattered with all kinds of stains.
Terre
Title: Re: UPDATE ON MY NIGHTMARE
Post by: DeborahinNC on January 13, 2007, 05:30:58 PM
Hi lucky,

It sounds like you are at least going to get the care that you need and may the fix will come in one surgery (granted very long) but one instead of a quick fix with more possible in the future.  It really may have been a blessing in disguise that the only doctor left the practice.  And before you know it the end of February will be here and you'll be on the recovery side of the surgery.  We all know it will not be easy but you sound like a very strong person and with your family and our help we'll all get you through both the wait and the surgery.  To me, this seems better than having had the surgery and then having this guy leave right after.  At least you'll have continual care from the same doctor. 

If you're really bored I have a lot of homework that I thought I would be able to sit and do after my knee this week.  Well, my knee is the size of a basketball and I can't seem to concentrate on school work.  So, I'm happy to farm it out!!  All you have to do is listen to lectures and take quizzes - this will take your mind off the back.  OK maybe not but let me know... just kidding. 

Let us know how you're doing and you will certainly be in my thoughts.  Deborah
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on January 14, 2007, 12:16:26 AM
Hello,

I started a hook rug and had lots of puzzle books that kept me busy for the 1st few months after my accident. I like Terre's idea of the Recipe Scrapbook, it sounds like a neat idea. I don't know about you but I am terrible at putting pictures in the albums and have so many pictures that really needed to be put away that I don't even know where to start now, oh well!

What about getting a jump start on next years' holiday gifts? Easter gifts, or decorations? What is your favorite show that you could collect on dvd? Pick up 1 or 2 seasons and sit back and enjoy.

Hope this helps. I am sure that we can come up with many more ideas.  What about it ladies?

Peggy
Title: Re: UPDATE ON MY NIGHTMARE
Post by: caren on January 14, 2007, 11:08:36 AM
Gramma sorry you are in so much pain will send good thoughts your way and maybe that will help
My kids bought me pocket electronic games like yahtzee jeopardy and slots it helped pass the time and I like to read alot plus caught up on all those projects that I could do sitting down like quilt blocks for needle work and baby bibs just an idea
Hope that you get resolution soon will be thinking good thoughts for you
Keep us posted on how you are doing
Hugs to you
Caren
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on January 14, 2007, 04:05:35 PM
Hi Everyone, Thanks so much for all yor kind words and suggestions. Please keep those letters coming as it passes the time just reading your letters. This will be my 4th operation in the past 2 years. As you know I had a knee arthroscopy and it was all down hill from there, then a Partiial Knee Replacemente, that shoud have never happened and then a TKR all in 9 months. It's been a year since my TKR and here I am again only this time the surgery is the worst I've ever had.  I can't beleive it has taken this long for the doctors to figure this out, that all my problems were not just my knee.  In fact I walk worse now then I did before and through out my other surgeries.  I think the other operations obviously made my back worse and my back just could not handle it.  I think my TKR was successful but I won't know until I get rid of this leg pain which radiates down my leg and into my knee.  There are loose disks in my back  that move around especialyy when I walk or stand which cause my knee to buckle under me.  This year has not started out good so I hope and pray it gets better.
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on January 14, 2007, 06:02:06 PM
Hi Grandma,

The new year has only just begun and with the surgery at the end of Feb., it may just turn out that this is your best year yet. I can't begin to understand the pain and frustration you are having but please know that you are in our thoughts and prayers.

Can you get out at all? Do you have a good support system at home? What do you do for fun when you are on 2 good legs? Tell us a little about yourself. Can you still cook dinner for yourself? Yes, I am trying to take your mind off of the problem, how am I doing :)

Looking forward to hearing from you.

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on January 14, 2007, 07:13:33 PM
Hi Grandma,

The new year has only just begun and with the surgery at the end of Feb., it may just turn out that this is your best year yet. I can't begin to understand the pain and frustration you are having but please know that you are in our thoughts and prayers.

Can you get out at all? Do you have a good support system at home? What do you do for fun when you are on 2 good legs? Tell us a little about yourself. Can you still cook dinner for yourself? Yes, I am trying to take your mind off of the problem, how am I doing :)

Looking forward to hearing from you.

Peggy


Thanks Peggy. I'd be glad to tell a little about myself. I just turned 60 and until about 2 years ago I was very active. I weigh 120 pounds. and am 5 ft 1" My last job was working in a Preschool with mentally and physically handicapped children, along with this job I also went out into the homes and worked with mentally and physicaly handicapped children and adults. I had to quit both jobs as the problem got worse. My Title was "Developmental Rehabilitation Aide"

I went to Pain Management for years for my back and I think that is what has kept me going for so long, but I got sick and tired living on pain pills and getting injections in my back every two months.  I finally found an Orthopedic Doctor who looked at the whole picture and not just my knee. I did have a knee problem but that wasn't all and he took x-rays of my back and ordered an MRI and then sent my to his Spine Specialist who worked in the same office. This is the Spine Surgeon who left his patients in a lurch and caused the nightmare. My Orthopedic Doctor said I was dealt a double whammy and we were finally getting to the bottom of the problem when all this happened. 

I've raised 4 children (2 girsl and 2 boys)and have 6 grandchildren ranging in ages from 14 -1 year.  My husband and children are wonderful and very supportive and take good care of me.  I have 2 daughters who are both in the medical field and two wonderful sons. All my children are very prosperous and have great jobs and careers. 
The Spine Surgeon wanted me to stop all pain management in preparation for the surgery and so that is why I feel the full force of pain now.  Around the house I have gotten so I need to use my walker all the time as my balance is so bad and I've fallen several times. I still do a lot of housework despite the pain, but my husband does the laundry as it is in the basement and I have trouble with stairs. He vacuums, mops the floors, and does any lifting that needs to be done. He also shops a lot. I don't know what I would do without him. He has been so patient through this whole thing. I also have great friends and suppport system with the church.  I drive but have trouble going out by myself right now as walking is so painful and I'm embarrassed to be seen this way.  My last evaluation and x-rays shows severe arthritis in L4 & L5 of my Spine, spinal stenosis, slipped disk and bulging disk. It has been increasingly getting worse the more I walk as when I stand or walk the disk moves around and piches on the nerves which is what is causing the pain. I was turning green as he talked to us about what the surgery would involve but my husband understood and has been explaining it to everyone. I guess I just figured he would be operating through the back, it never occured to me that he would be going through the back and stomach.
You asked what I did with two good legss. Things I can't do now. I hiked, camped, climbed, etc. My hobby for the most part now is singing. I love to sing and it helps me with the stress. I have my own Karaoke equipment and sing whenever we have friends over and have sung in public places a few times. I mostly do country and the Oldies songs, but if I like a modern song I'll do it. I like songs with meaning and that tell stories. The great thing about this is I can do it sitting down and is one thing I haven't had to give up.  I can crochet about anything but have done so much crocheting that I've run out of things to make. I gave over 50 afghans to the church, bed-dolls and many other items. The only thing I can't make is a mitten.  I like crafty things and have macromayed many lawn chiars but because of my back had to give that up as it is back breaking. I don't know what else to tell you but if there is anything else you want to know don't be afraid to ask. 
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on January 14, 2007, 07:17:48 PM
HI

I hope the time passes fast  and you have a quick and fast recovery.
I tried that biofreeze after my TKR and I am glad I bought it after your high recommendation.


Regards
Annie
I'm glad you liked the Biofreeze. Did you  know this is also good for Bee Stings and Burns. Makes sense.
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on January 14, 2007, 07:46:02 PM
Grandma,

WOW!!! You were and will be again one busy lady! It sounds as if you have a great family and I am happy to see that. My husband has been doing the bulk of things around here too. He'll wash and dry and I'll fold, although I have been getting braver and throwing some laundry in myself, our laundry room is on the main floor. I wish my bathroom with the tub was down here to but I guess you can't have everything. My husband also runs to the store, he hates grocery shopping but has been good about it, I try and go with him whenever I can. I can't drive yet, I broke my kneecap 6 1/2 months ago, while using the other leg to get around, I bruised the longer bone that goes from the knnecap down and wound up in a wheelchair, could not walk at all for the past couple of months. Therapy is getting me back on my feet but it is a slow process. I will have surgery sometime in April to have the hardware removed and then I should get back my range of motion although they are not promising 100%. So I still have a while to go yet. I am learning to walk using a walker and crutches which I hate. I do not trust them, I fell using them outside. I wouldn't be embarrassed to go out using the walker, people understand for the most part and for those who don't TOUGH!!! If you want to go out, go, it might do you some good, I know that when I go out, I.m like a little kid in a candy store:)

I am so sorry to hear about your back problems, there is nothing worse than that!! I can understand the pain a little bit as I have had sciatica and it seems to be flaring up again. But nothing like your pain.

God Bless you working with children who have special needs. I worked at Dupont Hospital for Children for about 5 months a few years back and I cried everyday, I had to quit I could not handle seeing all of those sick children, it broke my heart. My 2 year old grandson has just been diagnosed as Autistic, he has therapy once or twice a day for movement and speech. He seems to be doing real well with the therapy. Thank God!!

I have 4 grandchildren 2 years to almost 16. I raised the oldest one untill about a year ago, he went back with his Mother. I have 1 daughter and she has been a handful for most of her life, I guess that's why I could only have one, the good Lord knew what I was in for HA HA

Can you at least take some Tylenol or Aleve for the pain?


By the way, where are you from? I live in PA.

Keep ypur spirits up, we are rooting for you.

Talk to you soon.

Peggy


Title: Re: UPDATE ON MY NIGHTMARE
Post by: DeborahinNC on January 14, 2007, 08:40:04 PM
Hi Grandma,

I second Peggy's WOW you are a busy lady.  I love to sing but only do it alone in my car - request from people who have heard me.  The louder I can sing the better the release of stress.  I'm an oldies girl (not much on country) but love the old crooners.  I am keeping you in my thoughts and hope that the back becomes a pain of the past very soon for you.  You sound strong and vibrant and I am sure this will all return once you on the recovery side of the surgery.

I'm teaching my husband about laundry done (Deborah's way).  I a little bossy I've been told but he's a quick learner.  Hopefully I can take over soon again - ok I'm really very bossy and its easier if I do it - no fights that way.  You sound like you have great support and I hope you can ask them for what you need, its obvious you have given them a lot over the years.

You are in my thoughts - Deborah
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on January 14, 2007, 08:56:33 PM
Peggy where are you in PA. I am in the SouthernTier near Biinghamton, NY.  You poor dear you sound like you are in for quite the battle, but hang in there I believe you will have a full recovery. Do you have access to Hot water therapy. I didn't think I would ever get my full ROM back either and then I went to Hot water therapy and the one good thing that has come out of all this as they worked on my back and knee. The knee feels great but the back was hopeless without surgery.  

My 14 year old grandson was born with Down syndrome which is what got me into the feild of working with handicapped children. It is also why both my daughters are in the medical field. They are nurses in a group home for mentalally and physically challenged adults. My youngest daughter also does what I did and goes into the homes and work with children. I've done everything from owning my own Day Care Center, Medical Transcription, selling beauty products, school bus monitor and school aide, etc, etc. plus what I told you.

I have been taking Tylenol and Aleve but that has to stop 10 days before surgery. I had stopped taking everything for my otehr surgery date and then guess what.  Believe me the kind of pain I have doesn't feather too well on over the counter drugs. I do get relief with heat and relaxation and so would rather take that route for now. I don't go out much as it is not good to walk on it right now. The disk slipps in my back and causes my knee to buckle.  After seeing those x-rays I'm afraid to move now that I know what is happening in there.

My husband has shrunk a few clothes (bless his heart) but he tried hard. He carries the clothes upstairs for me to fold and helps me take care of them. He is a school bus driver and drives 8 hours a day, 4 runs a day.  One of his runs is a BOCES out of town and he has time to kill so he hangs out in a grocery store. If I don't give him a list he buys things anyway and usually what we don't need. He worked two jobs for over 30 years. He retired from his full time job and turned bus driving into full time. He is the senior driver so gets priority.  

I refuse to use crutches. I fell on them once and so I tell the doctors what they can do with his crutches. I tell them crutches are for kids.I like the walker the best. I feel safer and more stable inside and out.
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on January 15, 2007, 02:40:42 PM
Hi Grandma,

Between you and your husband, do you guys ever just sit still HA HA? I know alot of men that have retired and gone out and gotten another f/t job because of boredom. My husband wants to move into the mountains and hunt and fish every day when he retires. If he stayed home I would probably hunt him:)

We live in Southern Chester County, we were both originally from Philly. I lived in New England for 25 years, had my fill of the cold and snow!! Bill had never lived outside of PA until 1999 when he took a job in Maryland, we loved it there but his field (computers) is one where you never know what is going to happen, so when he was layed off his old boss offered him a job in PA and we moved back here. I'll tell you this wasn't where we wanted to be but....  I'm not sure exactly where you are, I'll have to look it up on the map. Are you in a snowy part of NY?

My husband can do laundry really well, he had to learn, he has 4 brothers and I guess his mother got tired of doing all of the laundry. He can clean and his cooking is okay, not mine but edible. We do alot of canning and have preserve contests, who's taste better?? He likes to do it all natural, I will add the pectin, I think mine is better. We also have a war going with who makes the better meatloaf, his is hard, mine moist, so I vote for mine, although I don't like to make or eat meatloaf often. One of his brothers is a gourmet chef and he teaches me alot of different things. Right before I got hurt he was going to start teaching me different Chinese dishes. Will have to wait for that lesson but I am anxious to learn how to make homemade egg rolls and pot stickers. Those are a favorite around here.

I am sorry to hear that your grandson has Downs syndrome, but I feel that with all of you that is one boy who is well taken care of.

No, I do not have access to hot water therapy, my therapy office soes not have a pool, I had to go to this one because the hours for the other therapy offices were not conducive to my husbands hours. I do try and get into my soaking tub at least once a week, it's a pain to get out of but feels so good just to soak and move my leg around in the warm water.
I use the heating pad alot, that also feels good.

I guess I would not go out either at this point, I agree with you I would be afraid of the knee giving out and falling. I hope and pray that after the surgery you get back to your lbusy lifestyle.  Noone should have to go through what you are going through right now.

How long will you be in the hospital? You need to teach your husband how to contact us, so that he can keep us posted until you get home and can get back on the computer. Boy, now I am asking toooooo much HUH??

The crutches are a pain in the ..... I use then at therapy and I walk around my kitchen island holding on with 1 hand to practice. I also use them to get upstairs. I don't like or trust them!! I agree, they are for kids, they use them like a toy.

Well I have to get going for now, will talk to you later.

Deborah, stop being so BOSSY!!! HA HA  I am like you, my husband always tells me that I am bossy, I tell him it's not bossy, it's that I like things done my way. Right now he tells me that if I want them done my way I have 6 more months to wait, then he'll take whatever piece of equipment I am using to get around and move it so I can't chase him/ He's
crazy!! Hope you are getter stronger every day.

Ladies, have a great day.

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on January 15, 2007, 09:17:11 PM
HA!! HA!! Peggy. My husband keep in touch with you. I'm not even sure he knows where the button is to turn on the computer.

My husband is not totally retired. He just retired from one full time job of 30 years and turned his part time job of 30 years as School Bus Driver into full time. He drives bus 8 hours a day. We have it worked out. He is in the basement most of the time when he is home watching his 52" screen TV and I'm upstairs watching my 10", of course after his chores are done. He comes up once in awhile and asks me if I want a drink of waater., usually during commercials.

I may be in the hosptpital up to a week, it depends on how I do. I will certainly write before I go and as soon as able I'll get in touch when I get home. I have been doing some research on my surgery and I really should stop doing that as it's making me a nervous wreck.

Binghamton, NY is the first Big City across the border into NY. We live in a little town called Smithville Flats, about 19 miles from there. Maybe we can meet one day.

A cane is much easier to go upstairs with then crutches if you have a railing. You hold onto the railing with one hand and use the cane for the other leg. No way!! No how so they get me on crutches. I tell them to use them for firewood.

We are usually in a snowy area but this year we have had about 5" of snow totally. My grandsons are really disappointed as I'm sure all kids are.  It is rainy and gloomy again today and I'm sick of this depressing weather. Yesterday the ground was lightly covered in snow and today it is all gone again. It's been like this all winter.  Catch you latter.

I want to thank everyone once again for your support. It is really helping to know others care and understand.
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on January 15, 2007, 09:40:19 PM
Grandma,

So your husband can't find the on button HUH?? Mine is soooo computer savy, after all that's what he does for a living. He is the Manager of a Global Network System and he is learning the security end of it now. He's really good at his job and so smart too. I wish I knew 1/4 of what he does concerning the computer. At least I know the internet and email, guess that's all that counts.

Meeting would be nice, we are about 2 1/2 hours from NYC going 1 way and if we go up thru the Pocono's I think, but son't hold me to it, about the same distance. I have absolutely no sense of direction or distance.

We have the big tv in the family room and since my accident, that's my domain. Bill brought down the guest room bed when I came home from the hospital, couldn't do stairs at all and since I am having the hardware removed in April, the bed will stay right where it is. Every now and then he will go upstairs to watch something that I won't watch. I guess I have dibs since I can't run upstairs. Usually I will run upstairs and turn on what I want to watch.

I should be graduating to a cane sometime in the next few weeks. Tried it a few weeks ago and just froze. I usually have therapy on Monday evenings, but tonight I had to cancel to go to the dentist. I am having major work done and can't be in 2 places at once. I'll go Wed. and Thurs. These are my scheduled days. I am getting tired of running out 3 days a week for pt. Apparantly, I will be going until June, the pt may discharge me next month or worse case change the amount of time, which won't hurt my feelings at all.

We haven't gotten any snow and that's okay with me. I will not drive in it, and since my knee I will not walk on it ever again, my greatest fear is falling on this leg again. My husband calls me Klutzy. I really don't watch where I wallk. Our weather man said we will get about 15 inches this winter, whenever that may be. I guess the kids are disappointed, but we cannot control Mother Nature!!

Well I have to go get dressed for the dental appointment. LUCKY ME!!! He's really good and doesn't hurt at all, I am just the biggest baby and worst dental patient there is.

Talk to you later.


Peggy


Title: Re: UPDATE ON MY NIGHTMARE
Post by: caren on January 15, 2007, 09:56:51 PM
Grandma
I run a house that has 3 mentally handicapped people that live there love the job but it takes it toll somedays they are great people my youngest son is Autistic and when I was in college before marriage the 1st time my major was emotionally disturbed spec ed
Sounds like you are having quite the ride with all the issues that you have going on so sorry to hear that one
I hate the dentist as well good luck with what it is you are having done
PT put me back on 1 crutch today swellling it to bad to go w/o them
We got about 4 inches of snow and lots of ice here in Ia
Deborah will wait for the video and buy it for Curt he just thinks that it all needs washed so it should all go together thank goodness for the son's gf she is helping make sure that the guys dont stuff the washer and use the wrong setting and making sure that they use fabric softner
Take care all going back to the ice pack
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on January 16, 2007, 07:55:52 AM
Grandma,

So your husband can't find the on button HUH?? Mine is soooo computer savy, after all that's what he does for a living. He is the Manager of a Global Network System and he is learning the security end of it now. He's really good at his job and so smart too. I wish I knew 1/4 of what he does concerning the computer. At least I know the internet and email, guess that's all that counts.

Meeting would be nice, we are about 2 1/2 hours from NYC going 1 way and if we go up thru the Pocono's I think, but son't hold me to it, about the same distance. I have absolutely no sense of direction or distance.

We have the big tv in the family room and since my accident, that's my domain. Bill brought down the guest room bed when I came home from the hospital, couldn't do stairs at all and since I am having the hardware removed in April, the bed will stay right where it is. Every now and then he will go upstairs to watch something that I won't watch. I guess I have dibs since I can't run upstairs. Usually I will run upstairs and turn on what I want to watch.

I should be graduating to a cane sometime in the next few weeks. Tried it a few weeks ago and just froze. I usually have therapy on Monday evenings, but tonight I had to cancel to go to the dentist. I am having major work done and can't be in 2 places at once. I'll go Wed. and Thurs. These are my scheduled days. I am getting tired of running out 3 days a week for pt. Apparantly, I will be going until June, the pt may discharge me next month or worse case change the amount of time, which won't hurt my feelings at all.

We haven't gotten any snow and that's okay with me. I will not drive in it, and since my knee I will not walk on it ever again, my greatest fear is falling on this leg again. My husband calls me Klutzy. I really don't watch where I wallk. Our weather man said we will get about 15 inches this winter, whenever that may be. I guess the kids are disappointed, but we cannot control Mother Nature!!

Well I have to go get dressed for the dental appointment. LUCKY ME!!! He's really good and doesn't hurt at all, I am just the biggest baby and worst dental patient there is.

Talk to you later.


Peggy



Maybe saying my husband doesn't know where the button on the computer is a little overstated. He can find it when he has too but really isn't interested. He's helped me when I've had computer problems that are small but he grumbles over it.  My son is a computer engineer and I hate to ask him even more. I learned most of what I know by trial and error and as a Medical Transcription working for National Companies. He's always asking me to research things.

We are about three hours from NYC and we too have to go through the Poconos to get there. 

When I say basement I mean family room as that is where our family room is. We have a Spiral Staircase that goes down to the basement. Our house is a log cabin that we built and has a full finished off basement and a full first floor over it.  If I had known I would have all these problems we would not have done the Spiral Staircase.  I think I would have had an elevator put in instead. HA!!

Stay with your walker as long as you can if that makes you feel safe. The therapist pushed me into using  a cane before I was ready and I fell a few times and it made the situation worse. When you feel confident you can do it and not before.

I'm with you on the snow. I don't mind not getting snow but I'm sick of this rain. We are on a hill and don't have to worry about it but some people we know got badly flooded. It is so depressing with it being so gloomy outside. I know the fear of falling. I fell  a few years ago and broke my hip and a few times since then. Falling has become quite an art as I can't fall on my left side because of my hip replacement. I can't fall on my right side because of my knee and I can't fall in then middle because of my back. The last time I fell I fell on my butt bone and ended up with quite a bruise but avoided all the important things. I think the Fosamax has really helped.

Hope you had fun att your dentist appoint. HA!! [/color]
Title: Re: UPDATE ON MY NIGHTMARE
Post by: knee deep in Goo on January 16, 2007, 07:59:53 AM
My great uncle used to have a farm in a town called Ninvea New York.   In my youth we would go up and smell the clean air and see all the stars in the sky.
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on January 16, 2007, 08:07:30 AM
Hi Grandma,

I second Peggy's WOW you are a busy lady.  I love to sing but only do it alone in my car - request from people who have heard me.  The louder I can sing the better the release of stress.  I'm an oldies girl (not much on country) but love the old crooners.  I am keeping you in my thoughts and hope that the back becomes a pain of the past very soon for you.  You sound strong and vibrant and I am sure this will all return once you on the recovery side of the surgery.

I'm teaching my husband about laundry done (Deborah's way).  I a little bossy I've been told but he's a quick learner.  Hopefully I can take over soon again - ok I'm really very bossy and its easier if I do it - no fights that way.  You sound like you have great support and I hope you can ask them for what you need, its obvious you have given them a lot over the years.

You are in my thoughts - Deborah
Thank you for your wonderful words of comfort. I don't know what I would do without my Karaoke and singing. I practice and sing my little heart out when no one is around. It's a great way to reduce stress. We have these friends over for dinner every couple weeks and they always compliment me so much that I turn red from embarrassement.

Laundry done Deborah's way is cute. My husband has been so good about doing the laundry that I hate to complain, but for Christmas he gave me this expensive sweat shirt. It said to tumble dry on low heat and he shrunk it and I asked him about this and he said. "I only had it on high heat for 20 minutes.  Oh well, what are you gonna do but love them.

The rehabilitation for this type of surgery is very long and that is the part that bothers me the most after going through it. It could take a year to fully recover.  I'm thinking of investing in one of those walkers that has a seat. I think it would help walking long distance. We want to go back to Nashville, TN this summer with some friends and it requires a lot of walking.  



Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on January 16, 2007, 08:10:06 AM
My great uncle used to have a farm in a town called Ninvea New York.   In my youth we would go up and smell the clean air and see all the stars in the sky.
Where exactly is this or what is this near. I've never heard of this town.
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on January 16, 2007, 08:20:04 AM
Grandma
I run a house that has 3 mentally handicapped people that live there love the job but it takes it toll somedays they are great people my youngest son is Autistic and when I was in college before marriage the 1st time my major was emotionally disturbed spec ed
Sounds like you are having quite the ride with all the issues that you have going on so sorry to hear that one
I hate the dentist as well good luck with what it is you are having done
PT put me back on 1 crutch today swellling it to bad to go w/o them
We got about 4 inches of snow and lots of ice here in Ia
Deborah will wait for the video and buy it for Curt he just thinks that it all needs washed so it should all go together thank goodness for the son's gf she is helping make sure that the guys dont stuff the washer and use the wrong setting and making sure that they use fabric softner
Take care all going back to the ice pack
In my line of work I worked with many autistic children and adults. It is so amazing how different they all are. The same with Down syndrome. My grandson doesn't have any Medical problems and is very high functioning.

Ride is an understatement. I'm getting  a little tired of starting each New Year with surgery. This would be the 3rd year in a row and hope it is the last. There isn't much left to fix. Over the years I've had 14 surgeries and about 10 have been bone related. I was adopted at 8 and very undernourished for the first 8 years and the doctors contribute a lot to that.

I'm not the one going to the dentist it is Peggy although I should go. Maybe since I have all this extra time I'll make an appointment. My husband and I have eye appointments nest week,
 might just as wel get everything else fixed.

Heat is my friend these days. I sleep with a heating pad under me. It's the only way I get any sleep. My hot tub also is a welcome more then ever.
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on January 16, 2007, 04:16:01 PM
Hi Grandma,

I am so jealous that you have a hot tub. Any problems getting in and out? I certainly hope not. I am so sorry to hear that you were treated so prooly as a child. I guess being undernourishes would cause bone problems in the long run. I hope you recoup fron this next surgery quicker than a year but if it takes that long I am sure you will find ways to get around. My knee is taking up to or longer than a year and it is frustrating thinking about how long a year really is, but it will work out, Stay positive!!!

Do you need to go thru the Pocono's to get to NYC?  I'm not clear on that. Well, it's another rainy, gloomy day here in Southern Chester County PA. No wonder my knee is so stiff this morning! I have deceided that today I will sit with the heating pad on the leg and watch all of the tapes I have been having my husband tape fpr me. Shows he doesn't get into I can watch all day!!!

Caren, sorry to hear that your leg keeps swelling up and that you need to use those horrible crutches. Please be careful

Have a wonderful, stiff free day

Peggy
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on January 16, 2007, 04:32:03 PM
Peggy you are welcome to join me in the hot tub. I tell you this is the best inveastment we ever made years ago.  I don't have any trouble getting in and out. I can swing my leg over the top but I just have to be careful not to twist as that is what causes the most pain and when I walk. I use my walker all the time now, I don't want another problem to be operated on.

I hope it is much sooner then a year also, but I figure if I expect the worse and don't get my expectations too high that if it goes better I will be even more encouraged. The first doc said three months but my son who had Back Surgery said "No way"  This other doc will not even comment. plus the surgery is more intense then we though. The first doc said three days in the hospita and this doc will not say.
Hey it snowed her today and is so pretty outside but the ground is only dusted and you can still see the grass. It has already stopped snowing and the sun is shining and so by the end of the day I'm sure it will be all gone. That has been the extenet of our winter. Oh!! Welll almost lunch and soap time.
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on January 16, 2007, 04:42:38 PM
Grandma,

I still haven't eaten breakfast, my mouth is a little sore. Nothing to write home about but still afraid to eat although I am getting hungry.

What soaps?

You call that dusting snow? I call it LUCK!!

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on January 16, 2007, 09:34:21 PM
Hey Peggy is your mouth less sore after breakfast. I find the novacaine wears off faster if I eat or drink even thiough it dribbles out the side of the mouth.

Guess what it is 4:30 and the snow is still on the ground. That's the longest it has stayed on trhe ground this year.

I just can't seem to get myself motivated these days. I got my surgery date but haven't gotten all the preop appointments in the mail yet. Until I do I won't feel this date is set in stone even though the receptionist said it is.  Until I'm on the operating table I won't believe it.
Title: Re: UPDATE ON MY NIGHTMARE
Post by: Doc79316 on January 16, 2007, 09:54:23 PM
Hi Becky,

I think most of us wait until we're lying on the operating table before really believing we're going to get our surgery there and then. Until that point, in my experience, they can change their minds and not give what we could consider a sensible reason for it.

Take care,

Laura x
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on January 16, 2007, 11:09:10 PM
Don't I know it Laura, after all that is what this thread is about.  I have had 14 surgeries and never had this happen before. I doubt if this doc will do this knowing what I've been through. He felt really bad for these people who were scheduled for surgery and the doctor skipped town.

You still amaze me Laura. Even with all you are going through you still take the time to help others, but I guess that is what this board is all about. We all have our problems or we wouldn't be here. RIGHT!!!
They shoud give a prize for the longest going thread. A lot of people are with you and care about you.
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on January 17, 2007, 02:43:04 AM
Grandma,

Ate breakfast and then dinner tonight with no problems at all. Can't wait until all this dental work is done ( sometime in March ). So the snow is still there, it's finally getting cold enough for it to stick around for awhile. What date did they give you? With everyone having surgeries coming up I think I am going to start writing them down so I can stay ahead of the game.

Talk to you later.

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: Doc79316 on January 17, 2007, 12:37:15 PM
Hey Becky,

I've not been to a dentist since 1987. The way I see it, my teeth don't hurt, they're white, I have no fillings, I don't have receding gums and I try to look after them properly. Therefore, I don't need to see a dentist who will charge me just for looking in my mouth!

I can always help people far easier than sorting out my own problems. Don't ask me why, that's just how I see it. With my own stumpy leg I just can't see the light at the end of the tunnel. If there ever was one, I think it went out a long time ago. But for others, I can quite easily see what options may be available to them so I just say what I think on the board to try to help. I don't always know what to say though.

Peggy - it's good to know you can eat something again. Yo must stay strong and therefore, have to eat. Did you feel better for it? I hop eyou are doing OK.

Take care,

Laura x
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on January 17, 2007, 02:46:22 PM
[
As far as the dentist. I wish I could say I have no fillings but you could tune a radio in my mouth. I lost several back teeth due to sinus infections and so have a partial plate to replace them.  I take good care of my teeth and it has been a long time since I've been to the dentis, and the only reason I need to see the dentist is because the plate is loose and needs adjusting.  Without the plate I bite my tongue and it puts pressure on my crown below it. I had quite the sweet tooth as a child and even though my parents took me to he dentist every six months I averaged a cavity a month. Back then they didn't just make a little hole but drilled out the whole tooth for a pin point cavity which weakened some of my teeth.  I have a lot more teeth then my husband. He didn't take care of his teeth and has full uper and bottom plates by the time he was 40. His family never took him to the dentist as a child and so he never learned good oral hygeine as far as his teeth.  You are 33 and I am 60, lit;s amazing how much things change in 30 years.

Boy it is amazing how these conversations can start as one thing and completely take a turn in another direction. Reminds me of the game GOSSIP.  [/color]
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on January 17, 2007, 04:26:18 PM
Hi Grandma and Laura,

Shame on both of you for not having regular checkups HA HA. I hate the dentist but because I am a diabetic my teeth starting to rot from the root up, the only way to save me from dentures ( which I could never tolerate ) he is capping all of my teeth. The top and bottom will be 1 piece each. It's a real different situation for me as I never had a full mouth of teeth and had a huge space between my 2 front teeth and spaces between others. Just never grew the teeth. Have no idea why????

Anyhow, my top has the full temporary in and the botton has seperate temps until he does the top impression again and sends them to the lab. I should have the permanents bu March. This has been an adventure, I started in October, just can't wait till it's done. People look at me and say "what's different" Being the buster that I am I will not tell them HA HA

Figure it out on your own. My husband loved my space and wanted me to have it ibcluded in the permanent caps. YEAH RIGHT!! Eating is no longer a problem except for my waistline")

Anyhow, that is my story. I figured my leg gave me so much pain that the dental work would be a piece of cake and so far so good.

Now to get the leg back!!!!

Becky, you need to calm down, just relax and think of this upcoming surgery in a positive manner. I know easier said than done, but this one should relieve alot of pain and hopefully will be it. Yes stress does play an important role in the surgery and healing process. You have to get the preop work done again as our blood changes every 7 days and 1 hospital will not accept results from another. Lawsuits, you know. So unfortunately you will have to be pin cushion once more. But look at it this way, better to be safe than sorry.

I am sorry to hear that your 1 daughter has cancer and that the other is having marital problems. This has got to be stressing you to the max. Hope all works out for both of them.

Will talk to you all a little later,

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on January 17, 2007, 07:06:36 PM
Hi Peggy, Thanks again for your support. The daughter that was diagnosed with Breast cancer a month after my TKR is doing quite well. Laura and I have talked a lot about it.  She was diagnosed with Stage 1,which has 100% survival rate. She went through Chemo and lost her hair but it has grown back and is black and very very curly.  It is beautiful and soft. As of now she is cancer free but once you have been diagnosed with cancer it could come back.  She has to take this medicine for 5 years and the doctor says if it doesn't come back in 5 years she is pretty safe. She is 37. W have been very lucky but it has been a stressful year.
This year has got to be better as it can't get much worse. I think this is the year to fix things.
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on January 17, 2007, 09:09:38 PM
Grandma,

I agree 100% this has got to be a better year!!! I'm glad to hear that daughters cancer was caught so early and that she is doing well. It is such a scary thing to go through. You have reminded me that I need to get a mammogram, don't know how the hell I.m gonna be able to do this one though. I am short and I actually get lifed off of the floor by the machine. I guess I might have to wait until the leg is a bit stronger.

Got to get ready for therapy, talk to you later,

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on January 17, 2007, 10:14:23 PM
I know what you mean Peggy. I even got an order from my doctor to call this imaging place that does the
them and I haven't been an=ble to get the courage. He wrote the order months ago and I'm not even sure where it is. It's like I don't want to know. I've had them before though and they havd been all right. A reminder to all women oaver 35. Get those mammograms. It's not just fior old people anymore. I'm only 5 feet myself.
Title: Re: UPDATE ON MY NIGHTMARE
Post by: DeborahinNC on January 18, 2007, 12:20:16 AM
Hi ladies,

Grandma, hopefully the 28th will be here quicker than you know.  Just vent to us about your apprehension.  This is no piece of cake you are facing and I don't blame you for being nervous about it.  Just hoping this gets you out of pain and then it can all be worth it.  And can I just say to all of you - bless you for being able to work so well with challenged children.  It really takes a special personality.  It again speaks of the strengths of each of you. 

And, I'm with all of you on the dentist thing.  When I went to interview the dentist I currently see (yes I have a pre visit interview) I burst in to tears in his office - not sitting in a dental chair just in his office.  He assured me he could work with me and so far has been very good to his word.  Sedation dentists didn't exist then and I'm not sure I'd do that anyway.  Maybe its our generation that has a problem.  My step-son will go without any prompting - I can tell you he didn't get this from me. 

My best to all for 2007 being an improved year and Grandma to your daughter.  She is a survivor. 

Have a good night all - Deborah
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on January 18, 2007, 04:33:17 PM
Hi Grandma,

Being short is definitely not a blessing!! My Dad use to tell me that I needed to call the city to have the curbs made higher so that I could get up them. HA HA He was soooooo funny, the fact is that all of my uncles and brothers are near or over 6 feet. My sisters are all taller than me and I have been tortured bt them all for being short. Oh well, my mother was short too. Good things come in small packages!

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: knee deep in Goo on January 18, 2007, 07:01:09 PM
Grandma,

My uncles farm was near east windsor.. the bingingtom area.   
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on January 19, 2007, 03:05:24 PM
Good Morning Grandma,

I can understand the anxiety you are having, it is okay to be nervous about the upcoming surgery but you shouldn't let it drive you completely batty!!! Anyone having surgery gets nervous and if they tell you different they are lying. Do you have a counselor you can talk to to calm you down a bit? We can root you on but we are not professionals. Are you a little shakey because you are not taking any meds?

What else are you doing to keep your mind off of the surgery? Any crafts? Any company? I'm glad we are a highlight of your day, it does make you feel better talking about all of this stuff.

My therapy was tough last night, he is increasing the exercises and today my legs hurt. I couldn't walk assisted with the 1 crutch as my foot is very sore and swollen again, this happens when I start walking again. It's a pain in the ,,,,,

My goal for this week-end is to put the wheelchair away and walk with the walker and crutches and try to get the swelling down. This should prove interesting. PT will try again next week. It's been a long haul and I am tired of the whole thing.

Today I am going to take a shower then prop my foot up and rest. Tonight my husband ususlly goes to the cigar shop with a friend and will pick up take out on his way home so I am not cooking.

Will talk to you later,

Have a good day and try to relax.

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on January 19, 2007, 05:24:35 PM
I think my anxietry is mostly from what I have already been through and afraid of it happenng again. Also I have had three knee surgeries thinking this would fix the problem and I kept getting worse. The doctor is encouraged and we did ask a lot of questions during the evaluation and he was great. It's almost hard to imagine that my problem will get better and I will get my life back.  I waited months for this surgery and three days before it was canceled and so two months more seems like forever. I guess the good news is we are in the middle of January so maybe the time will go faster now.

Last night I had this dream that I saw myself lying on the operating table and withnessed the whole surgery.  It's like I saw every detail of the operation, sort of one of those out of body things. I was there but I wasn't. I've never had this happen before.

I try to keep myself busy but it is hard when I have trouble walking as the pain is so bad to put pressure on it. I'm not really taking anything for pain but if I just get off the leg and even use heat it reduces the pauin greatly and so if I can stay off pain meds I would rather. I was on narcotics for the past couple years and felt so out of it all the time.  I had over 200 pills left and flushed them down the toilet.  MY OS doc did give me Darvocet if I need it as I have not had a problem with that but don't see the need to take that either since my pain is mostly when I ambulate. 

I will answer your e-mail soon Laura. I'm off to see my soap now. Becky
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on January 19, 2007, 05:29:36 PM
Grandma,

You really need to relax. I know it's easier said than done. Dreaming like that must have scared the **** out of you. I don't know how to take those thoughts or anxieties away and reading you posts makes me want to come up to NY and just hold your hand. I'm sorry I'm not in the position to do that but I hope you know that you are in our thoughts and prayers.

What soaps are you into?

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: caren on January 19, 2007, 07:11:07 PM
Grandma
So sorry about your deram that must be so scary to see that I wish that I was closer would love just to spend the day chatting or doing what ever the knees would tolerate
Like Deborah said sure that your daughter is a survivor and we will all keep her and you both in our prayers for sure as well as others that are here
Peggy must be the week for increased therapy mine was increased to day too and the PT told me not to wear my brace or use my crutches and the other one says do so I am so confused and frustrated wish that some one would just give me a straight answer go back to the OS next wed so we will see what he says
Grandma what soaps do you watch I didnt see any of the ones that I normally watch today spent some time on me and got  a perm in my hair maybe it will help the growing out phase of looking like a mop go faster
Have a good day all and will chck in later
Hugs to all
Caren
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on January 19, 2007, 07:19:39 PM
Hi Peggy and Caren, The only soaps I like to watch on a regular basis is Young and The Restless and Bold and The Beautiful. I've been watching these two soaps since they first aired on TV.  

I know I'll make it through this but I think I have had just too much time to think.  Before I had the holidays to keep me busy so really didn't think too much about it, plus the other surgeon didn't go into a lot of detail about the surgery and made it sound like it was nothing.  He told me three days in the hopsital, three months to heal etc. Now that has gone from doctor won't tell to we'll see. I'm going to Nashville this summer with some friends if I have to crawl so it will give me the incentive to get better. My daughter is a nurse and she just talked to someone who had this surgery and they said they were up walking the same day. I was walking with my TKR too but it hurt like heck.  The other sureon also told me I would be in pain for three days, my son who had major back surgery when he was in his early 20's siaid "Don't count on it"  I guess the best way to look at this is I'm already in pain but at least it should keep getting better and not worse.  Also my TKR has had a year to heal and going back to therapy got my full ROM back and so I have that to look forward to also.

Thanks for the offer of holding my hand but it isn't necessary for you to make the trip. I have a lot of people here holding my hand.  Becky
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on January 19, 2007, 08:09:25 PM
Grandma,

I guess you will just have to wait and find out more info before you drive yourself nuts. Another thing everybody heals differently. I went to therapy last night and couldn't walk with the 1 crutch, when I made it to the chair I just burst out crying. I said tp the pt that I should be walking now, he said not necessarily, everybody is different. The one bad thing I have going for me is that I am a diabetic, and dibetics heal slower. I think this stinks but I can't so anything about it. I am not in a good mood today, I am disgusted with going to pt 3 days a week, not being able to walk with the 1 crutch and my foot is swollen and it along with my bad knee hurts. I am just a tad bit cranky. My husband called to see how I was doing and he could tell by my voice that I am miserable. Just want to feel better, that's all. Guess I'm having a pity party, haven't had one in awhile and don't particularly like them either.

I used to watch those sopas too. Now I just read about The Guiding Light and AS the World Turns online.

Caren, which ones do you watch?

Peggy



Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on January 19, 2007, 10:55:44 PM
Peggy, I think you are the one who needs a little TLC today.  I have had those days at PT. Of course this last time while I was rehabilitating from my TKR I couldn't get it through their head that I had all this leg pain and couldn't bend my knee becasue it made it hurt worse. PT has been terrible about this.  Even this last PT I went to all they kept telling me was bend that knee, bend that knee. I got so sick of hearing this I could have hit them with my cane. As it turned out I wasn't crazy after all and there was a very good reason why I couldn't bend the knee. It wasn't because it wouldn't bend but because when I bent the knee it would pinch the nerve and so to avoid this I walk stiff legged.  When I sit I can bend my knee great. The neurosurgeon knew exactly why I wasn't bending. I have been to so many therapist over the years and I've never gone back to the same one twice as I found fault with all of them. The ony therapy I will consent to after my back surgery is to go back to where I was ding hot water therapy. Do you have a YMCA where you can get in a pool, they also have  a hot tub, or anyplace where they offer hot water therapy. You would be amazed at the difference water can make. 

I'm so sorry you are feeling bad today Peggy. You have been so supportive and here you are with all your problems thinking about coming here to hold my hand. Maybe we should hold each others.

Hey guys could you call me Becky, I feel old enough these days. 
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on January 20, 2007, 02:33:23 PM
Hi Becky,

I have to agree therapy SUCKS!!! My pt is really caring and even though he pushes, which I know is part of their job, he will back off when I tell him I can't do anymore. He is just concerned about getting me walking with a cane. Maybe I have a thing about this and think I can't do it?? I don't know, I want to walk but I want to walk on my own. It's really the foot that hurts and limits me at this point. It is not so swollen this morning so I will try walking around the house with my walker. Later I told my husband I need to go to the store and get new bed pillows and I need some PJ's, mine are falling off of me.

We have a Y not to far from me but I think their pool is an outside one and besides I can't drive yet so that won't work for me. I have a large soaking tub and I have sat in that for awhile and yes it does feel good and I can get the leg moving really well in it. I usually go in when my husband is home, tough getting out at this point.

I feel much better today and hope that everyone else is also. These problems are a royal pain for us all.

Have a great day and thanks for the support!!

Peggy


Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on January 20, 2007, 08:49:07 PM
Peggy, it never rains but it poors. Today I went for an eye exame since I haven't had my eyes examined since 2003. Thought I would really start this year out right and fix everything, new glasses, new back, new knee etc. I couldn't beleive it. On the initial exam the doc said he thinks I have cateracts in my left eye and wanted to examine further, so he ran some tests. My husband got his eyes examined at the same time. Well, $722 later I'm told I do have cateracts and will be needing eye surgery probably within a year as it will only get worse. I have had surgery every year for the past 4 years and I guess I've run out of bones so now they want to start on my eyes.  I hate getting old. 

I just finsihed writing you a long letter and hit the wrong button and lost it all so before that happens again I'll end it here and write another one for the rest.  Becky
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on January 20, 2007, 10:52:14 PM
Becky,

I am so sorry to hear about the cataracts. I hate getting old too. I hope you get this done soon, it is very important. It's not really like surgery these days, will they use a lasar? I know what you mean by pouring!!! I was hoping this year would be kinder to all of us. I can't believe it cost you so much, don't you have eye coverage? Will the medical pick up the tab for the cataracts? I have also had alot of different types of surgery, c-section, hysterectomy, sinus, carpal tunnel, another surgery on the ulna part of my arm ( can't remember the technical name), gallbladder, knee and another knee coming up in April. I've had enough too. I hope all goes well with the eyes, keep us posted and don't let it get you down.

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on January 21, 2007, 12:00:53 PM
Unfortuantely our insurance policy doesn't have eye coverage for glasses and checkups. They will cover tests that are medically related. The $724 doesn't even cover these tests . We have to pay this.They were over $300 more that is being submitted to the insurance company  I am taking my receipt back to them when I get our glasses and question this as we have never had it cost this much before.l  Is it no wonder we don't get our eyes checked every year.  They always give you new precscription which lead to new frames, etc etc. I can't even think about eye surgery right now as I have enough to deal with and I do not  feel my eyes are that bad now to warant it. This surgery has to be justified and a year will tell more.  It doesn't seem to matter how monor the surgery is you go through just as much crap to get there.  I will take care of it next year though.

Hey, Don't let those therapist rush you out of the walker any sooner then you want to go. This is a crappy time of year and you might better stick with it if it makes you feel safer. They did this to me and I ended up worse off and started twisiting my body. A cane doesn't give you much support from falling. The only reason they do this is because they dont feel they are doing their job and it will reflect on them if things aren't going to protocol.  I think this is the reason my back went downhill so fast after my TKR.  I tried to tell them about my back but they had a one track mind. I think the reason I think my last therapy was better is becasue I went for both my back and knee, which meant two doctors involved and two prescriptions. That way they had to bite off their noses to spite their face. If my back hurt doing knee exercises then that wasn't the right exercise. Therapist have made matters worse more then once. Becky
Title: Re: UPDATE ON MY NIGHTMARE
Post by: caren on January 21, 2007, 02:56:21 PM
Grandma I can sympathize with you on the cataract thing went to get my eyes chckd in Sept and found out that I had them too I had just had my eyes chckd in Jan I asked the dr ( the new one) why I was not told of this before and she told me that they just didnt look they were there and in plain sight so should have seen them so needless to say I am with you on the needing surgery for that one too  :o
they did tell me to try contact lenses to prolong the need for surgery and so far that has helped alot i just went for far vision with the contacts and wear a pair of readers from wally world so that might be something to consider for you sorry you dont have ins that will cover glasses are terribly spendy things
Hate the getting old part too geez if i would have known i was going to live this long would have done things different that is for sure lol
snowing here again to day so far about 6 inches so I wont be going out at all today and the way that the knee feels will spend the day with it iced and propped since I twisted it badly yday and couldnt even stand the blanket on it last night
hugs to all
caren
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on January 21, 2007, 05:22:55 PM
Hi Caren, Boy does it ever end for us.  As far as wearing contact lenses, I can't stand the thought of anything in my eyes.  Compared to the surgery I am facing this would be a piece of cake, but it still is the thought of it and frustration.  I see what he says next year and maybe even go someplace else for a second opinion.  I'm seeing a little blurry but haven't had my eyes checked in 4 years but my glasses are probably also scratched etc.  I was shocked at this becasue basically I don't feel I have that much trrouble seeing that it doesn't seem realistic to me.  Are you going to eventually have the surgery.

I agree Caren that we probably would have been kinder to our bodies if we had any idea they would wear out before we did.  My GP says I have the heart and lungs of a 20 year old but my framewrok is wearing out. I'm sure my singing helps a lot to keep my lungs strong.  He said I am a great cnsisate for surgery, Ciould they be using me for experimental reasons.

We finally got some snow, only about 3 inches though. My son lives in Vermont and they have 18 inches.  I guess winter finally got here. I'm calling the Spine Specialist office tomorrow and find out why I have not received my surgical packet for my preop testing etc. How soon did any of you get it before your surgery. I could swear in the past I've had it two months prior.

Title: Re: UPDATE ON MY NIGHTMARE
Post by: DeborahinNC on January 21, 2007, 07:09:19 PM
Hi all,

Becky - I'm sorry about your eyes.  Compared to what else you have been through when it comes time this will probably be a piece of cake.  See this is why people don't see doctors.  When I do pt. interviews and they say they have no medical history the next question is always how long has it been since you've seen a doctor.  Many are over 20 years.  Well no wonder you have no history.  I am starting to understand why though - if you don't know you don't worry.  I will tell you that my sister's partner has been through several catarac surgeries.  She had uncontrolled diabetes for years so has required multiple times but usually it is once.  I know you have to get through the back first and foremost.

Peggy - I agree with Becky.  Don't let PT take you off the walker to early.  It does offer much more stability than a cane and if its slippery outside the extra legs of the walker can only be a help.  You'll get to the cane when your ready.  Maybe you'll get to the cane in the house and still use the walker outside (winter especially).

I'm still hoping that 2007 will be better for all of us.  North Carolina is still pretty much winter free.  Cold here today and a little freezing rain but it is supposed to warm up so will just be rainy today.  Good napping day (or homework for me).  Have a good day all - Deborah
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on January 21, 2007, 07:46:52 PM
Becky and Deborah,

Hello, don't worry about them taking me off of using the walker. It is hard enough walking with that and the crutches, let alone a 1 legged piece of equipment. I guess he has to try per the continuation of the therapy but he is not rushing me. He knows about the pain in the one foot, the same side as the bad knee and he lets me go at my own pace. Don't know if this is a good thing or not but am not going to force the issue. The way I look at it, when these legs are ready I will know it and take off like a bat out of **** I am so afraid of the knee buckling and me falling that I think this fear is somehow taking over my brain and I do drag the better leg. I say better leg because this leg is the one with the deep bone bruise that has taken more than 3 months for the pain to subside but when I move it a certain way it lets me know that it is not completely healed and I am so afrain of reinjuring it again. This pain was as bad if not worse than the break. So slow and steady progress for me and the os seems satisfied with where I am at. My rom was 100 degrees last Thursday, so that is a plus!

Hope you are having a pain free Sunday.

Becky, hope the grandkids are enjoying the little bit of snow that you got.

Deborah, enjoy the warmer weather, it has finally started to get cold here in PA. YUCK!!!

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on January 22, 2007, 03:24:31 PM
Dear Diary HA!!. Today is starting out to be a better day. I called the office of the doctor doing the surgery, and asked when I would be getting information for my preop appointments.  The surgical nurse told me she was working on it now and I would be receiving it the first part of February.  Anyway, I guess I'm still having surgery, After what has happened to me I won't beleive it until I'm on the operating table but seeing 

I
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on January 22, 2007, 04:16:23 PM
Hi Becky,

Good for your daughter. Is she still with this guy? Is she leaving this guy? I agree with you emotional abuse is by far the worse. Noone deserves this. I hope she gets stronger each day and gives this jerk the boot. I also agree that I have seen it here on the posts and my heart goes out to these women.

Best of Luck handling this, glad you talked to the nurse, this is going to happen for you!!

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on January 22, 2007, 10:52:57 PM
Moving right along. Boy am I going to be busy about the 3rd week in February before my surgery.  I go another call from the nurse saying that this other doctor was trying to reach me who will be assisting in the surgery. They had me call his office and make an appointment for an evaluation with him. He wants to confirm that I am a good candidate for going through the stomach and back for this surgery. Also the same week I have to go for blood work, fitted for a back brace and meet with my surgeon again to talk about any last minute things and sign the consent forms and this doesn't even cover a medical clearance physical by my family doctor.  Each trip is 3 hours round trip.  I think we will xonsider staying in a motel for the appointments that are a day appart. I hate riding especially with this back and will be glad when it is over.  ++

Thanks to everyone who is givng me support here.
Title: Re: UPDATE ON MY NIGHTMARE
Post by: DeborahinNC on January 23, 2007, 03:07:15 AM
Becky - cudos (don't know if I spelled that right) to your daughter.  And, personally I don't mind a different topic and I'm glad you shared this.  You are so so right about emotional abuse.  It can be far more scaring that physical abuse.  It sounds like she is on the right track, it won't be easy and there may be times she will second guess herself but she is at least making the move.  Good for her.  No one, man or woman needs to put up with being someone elses doormat.  I hope she has access to a strong support group - perhaps there is a site similar to this where she can talk and be free to say what she needs to say.  You can tell you from me - you go girl!!!!


Wow, I thought I drove far for PT and doctors but not that far.  I would say - get a room.  A three hour drive with a bad back, this can not be a comfortable thing.  At least things are moving forward again for you.   I don't blame you not counting it done until your in the OR but at least it sounds like they know your coming and they have plans to get you there.

Hope today was a good one for all.  Deborah
 
Title: Re: UPDATE ON MY NIGHTMARE
Post by: caren on January 23, 2007, 01:16:36 PM
I would have to agree my ex husband was so totally mentally abusive and then the physical started thank God that his gf made him a better offer than the wife and kids but the funny thing was once she got him she didnt want him either so he is still single after 8 yrs his last finacee dumped him due to his mental abuse too he thinks now that he is the total victm of all the ladies in the world he still tries to talk to me and I keep telling him that I really have no reason to talk to him about his life it was his choice to be the way that he is and once Wes is out of the house I wont need to see him or talk to him at all
Ladies if you are in a relationship like this my advice echos all the others get out now and get out fast I was married to him for 17 yrs and still carry the emotional scars of what all he did mental is so far worse than physical
Gramma will be happy to email your daughter if you would like if she needs the extra support of some one who has been there and done that one and will agree with Deborah go girl go
Sounds like everything is coming along for your surgery good luck with that we all will be sending you alot of enery for that one for sure
Take care and keep the knees happy
Caren
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on January 23, 2007, 02:43:21 PM
Hello Ladies.

Becky, I will read your email and respond this afternoon. I am glad things are coming together for you. Sounds as if this office was the right move for you and I as=lso think that this was a Godsend that the other guy just "disappeared".  I agree with Deborah, you should stay there until you get all of the tests done and I am sure you will be a good candidate for the type of surgery they are planning. Best of Luck with all of it.

Deborah,

How are you? Hope your leg is healing nicely.

Caren,

How's the leg this morning and how did pt go?

Will talk to you later.

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on January 23, 2007, 07:14:02 PM
I'll make the surgery if I can stay healthy for it. Going back to the January 8th Surgery day. I went to my medical doctor a week before my medical clearance with a sinus infection. A week later I went to him for my medical clearance and was in pretty good shape. Guess what I got another sinus infection and was back to see him today.  Today is my GP's 50th Birthday too. Anyway, everyone in the office knew of my situation as  a FAX was sent to them about this doctor just leaving with no notice. The nurse told me that it was the strangest message she had ever seen come through the office.  MY GP said that in his 20 years of practice he has never heard of a doctor doing this.   He also said that when a person is all stressed out their immune system doesn't work as well and it is harder to get over things. He says I'm going through a  lot.  I've been to his office more in the past two months then I've been in 10 years.
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on January 23, 2007, 08:00:55 PM
Becky,

Listen to him about the stress factor. Anytime I get too stressed I wind up stick as a dog!!Positive thoughts only!!!! You will get this done, we are rooting for you and all be good. Just call me the local cheerleader for today. I just came down from a nice shower, I even collected all of the towels and threw them in the washer. Where is all this coming from??

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on January 23, 2007, 08:27:24 PM
Gee Peggy, give me a little of that energy. I can barely find the energy to do the dishes.  When it gets clower to my surgery you would be surprised the energy I can muster up, because my incentive is to come home to a clean house and know it will be awhile before I can do these things. 

How many posts do you have to write to become a Suoer Knee Geek. I've been Forum Faithful forever and I've noticed others with a couple hundred mosre posts then me that are still Forum Faithful.
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on January 23, 2007, 08:49:51 PM
Becky,

Don't know where the energy came from but it feels good. Just wish I could scrub the bathrooms and kitchen floor. It takes me awhile to get it together and the little things I do take alot out of me. And boy am I slow:) I don't know how many posts until graduation!! Maybe you could ask the "GURU"

Peggy
Title: Re: UPDATE ON MY NIGHTMARE
Post by: caren on January 24, 2007, 11:56:16 AM
Becky do you have some energy to spare think that I lost all of mine so if you have more after Peggy will take some too  ;)
Gramma I have wondered the same thing what it takes to get up the ladder but at least we are faithfuls that says something about us keep your self healthy that is for sure you dont need anymore delays to get all of your work done listen to the dr and dont stress I know that one is easier said than done we all go thru it that is for sure and if I get overly stressed I end up with bladder infection thanks to mother nature she is such a nice person
how is your daughter doing ?
I am off to the OS today hopefully will find out what I did to my knee this passed weekend not as swollen today but still not feeling good
will catch all later
hugs to all
Caren
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on January 24, 2007, 07:28:06 PM
Are you kidding me caren. I'm not the one with the energy Peggy is.  I feel lousy with this sinus cold and don't feel like doing anything. 

Keep us posted on your OS visit. Becky
Title: Re: UPDATE ON MY NIGHTMARE
Post by: caren on January 24, 2007, 07:35:30 PM
Sorry to get you confused with Peggy and I share your lack of energy
Went to the os this am he said nothing major so upped my pt and said that as long as I sit can go back to work that is the last thing that I expected go back in 7 weeks to be reevaluted so time will tell what is to happend here with the stupid knee
take care and let me know if I can help your daughter like I said will be happy to email her when she gets to the point that I can
Caren
Title: Re: UPDATE ON MY NIGHTMARE
Post by: DeborahinNC on January 24, 2007, 11:16:06 PM
Hi All,

Caren - glad it was nothing serious with the knee.  So upped the PT eh and did you say he cleared you to go back to work?  Don't you work on your feet?  I may be confused, its a pretty common state for me lately.

Becky - you should not be surprised at your daughters (both ladies) strength.  You strike me as a very strong person.  You have been through a lot and although I know your frustrated and your energy is low right now look how much you have done and how well you really are dealing with this cancelled surgery.  I am impressed at your resolve.  I can see where your girls got it. 

Challenged again today at PT - we again did very minor squatting.  I'm ok holding the position its the up and down.  But I'm actually feeling pretty good, kind of like I'm challenging the knee.  Small steps but I'll take them.

Hope everyone had a good day. Deborah
Title: Re: UPDATE ON MY NIGHTMARE
Post by: caren on January 25, 2007, 11:27:55 AM
Deborah I work as a DSA direct service associate basically I am a house mother to 3 mentally challenged people and that does require me to be on my feet how ever he let me go back to work as long as I sit so that means for the next 6-8 weeks I will be trapped in an office  >:( :'( not beng able to do the job that i was hired for would rather he just let me go back to my house there and get my clients back to trusting people again I am still getting phone calls that how is this done or htat done and so and so isnt doing what they are supposed to the co that i work for didnt hire a regular staff to replace me while i am out they are playing staff roulette meaning that they are putting other people that have never worked in my house in my house and making a total mess of the whole situation
Becky how are you today?
Hope all are well and will chck back with all of you later or in the am
Hugs to all
Caren
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on January 25, 2007, 02:34:34 PM
HI Deb and Caren, I feel a bit better today as far as my sinus infection. I guess the antibiotics are kicking in. I can't believe our heads make so much gunk.

As far as taking this thing about my surgery so well, I don't think I had much of a  choice, but thanks anyway.

Title: Re: UPDATE ON MY NIGHTMARE
Post by: Kai on January 25, 2007, 04:22:58 PM
I dealt with my rage physically.  I had to get it out of my body before it started to hurt me or others.  Suppressed anger is like a stopped up chimney.  Eventually it will leak out and poison the entire atmosphere.  Most women carry their anger in their shoulders and arms...  you can see women walking around with their shoulders up around their ears.  Washing windows is great... I personally am not into housework so I went out and dug a 5,000 gallon pond in my backyard with a shovel and wheelbarrow.  I then used the same shovel and wheelbarrow to mix up 7000 lbs of concrete and created a swim capable pond and waterfalls.    OK - I did go a little exteme but you get my drift.

I dont know if other posters have mentioned it or not but women are at most risk after they first leave their abusers.  I guess these guys realize that the sweet talking is not working and this is when they hurt or maim the women.  The leading cause for death of young women is murder by their significant other.   Please please please make sure that when your daughter does leave that she and her child are safe. 

PS.. thats often why women delay leaving.  Inside they know that it is a dangerous thing to do and they must wait until the time is right.  Please dont rush your daughter.  She is doing her very best to ensure the her safety and the safety of her child.
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on January 27, 2007, 11:44:24 AM
Hi Everyone, I'm doing much better. I think the antibiotic for ths sinus infection is finally kicking in.  The fall was due t the fact that my balance is so off that I turn the wrong way and I go flying and the more I try to catch myself the worse it gets. I guess the Fosamax is working because I haven't broken any bones since I've been taking it. 
I should have all my appointment dates by next week and then fun fun fun. I'm going to be living in my car that week HA!! The trip for each of these appointments is 3 hours round trip and there are 4 appointments. It they are within a day apart we are going to get a Motel room. The week should go pretty fast though as I'll be so busy.
Hope everyone else is doing fine. I'm counting the days now and just want to get this overwith. Take care. Becky
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on January 27, 2007, 02:32:51 PM
Hi Becky,

Glad to hear that you feel better and didn't hurt yourseflf when you fell. We'll all be counting the days with you. Just try to relax and not let anything get you upset. Remember that you need to get this done and over with and start healing before you can fix all the other problems.

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: caren on January 28, 2007, 12:08:07 AM
Becky glad that she made the decision sure that all will fall where it needs to and remember we are just a few key storkes away for you to help support you all we can
Wow only 4 wks for you time sure does fly
Send me a pm if I can write to her after she leaves OK
hugs to all
Caren
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on January 28, 2007, 03:17:51 PM
Becky,

I am so glad that you are feeling better. Now that she has definitely made up her mind, it should take some worry off of yours. Hoping that February flies by for you.

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on January 28, 2007, 04:00:24 PM
Becky,

Yes it's true about your immune system, stress is a major pain in the butt as far as the healing process goes, that is why you need to calm down and take it easy.

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: DeborahinNC on January 28, 2007, 05:30:13 PM
Hi all,

Becky I'm glad you daughter is taking steps.  Sitting where I am I wish she could just pack and get out but realistically I know this can not happen this way.  You asked what family thought.  I too had an emotionally abusive husband, actually to be quite honest he was addicted to porn and kept wanting me to be like the movies he was watching.  Luckly we had no children so my move was probably easier.  My sister knew all of what was going on.  Some friends did but the others were just told it wasn't working and I was moving out.  Some friends may have thought I was nuts but thats ok.  My family, all of them were really pretty supportive and I hope she is surprised when she tells her grandma.  You know, we are not the only ones who ever dealt with this crap.  We are just a generation that is more open about talking about it.  I don't know that she needs to tell her all but all she should have to say is that it is time for her and her son to be apart from this man.  Its not healthy and both will do much better on their own. 

On another note, you do have a busy February.  It should fly by and then on the road to recovery.  I'm glad the sinus infection is starting to get better, these are miserable enough when there is nothing else going on but with everything you have right now ...  When surgery time is here you need to promise us that you will concentrate on you.  You are going to need your energy for your healing and it will be ok to just put you first and get better.  Once that is done you can once again take your family under your wing and help them too.  So, just Becky for right now.

Please take care and as Caren said - remember we are just a few keystrokes away and very willing to listen and offer support.

Take care all - Deborah
Title: Re: UPDATE ON MY NIGHTMARE
Post by: lilly_kc on January 28, 2007, 06:25:24 PM
Becky I am going to jump into your thread here, hope that is ok. We havent chatted for awhile, since before my left TKR in October. You were trying to cope with back problems then - sounds like you still are. I didnt go back and read everything here. What is scheduled next month? Is it for the back pain, or are you finally getting to deal with the knee?

My second TKR is March 1st, have to have vena filter put in day before, which I dont think is major (outpatient) but still sort of scary. Then go home and come back next morning for TKR. Hmmmmm.

Hope all goes well, you have alot on your plate. Take c are, Kathi
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on January 28, 2007, 08:18:29 PM
Hi KATHI, You are more then welcome to jump right in.  I'm impressed that you remembered the back problems since I mostly posted about my RTKR.  It's been 13 months since my RTKR and I don't think the knee is  a problem anymore but the back has gotten worse.  I have spondylolythesis (sliped disk) spinal stenosis, bulging disk and arthrits in my L4 L5. I was scheduled for Spinal Surgery January 8 when 3 days before my surgery my surgeon (who was in with my OS) just left and didn't return with no explanation. If you get time to read the beginning of these posts and there is also one called I'M LIVING A TOTAL NIGHTMARE when this all started it will explain how I got to this point. I am now with a new surgeon and am scheduled for Spine Surgery February 28. The surgery is very serious major surgery. Everyone has been so supportive to help me get through this.  The reason I am at this point is because I had three knee operations in 9 months and still experienced serious leg pain and as time has gone on walking is a chore. I use my walker all the time as I fall a lot because this problem also causes your balance to be off because my back is unstable.  The problems are pressing on the nerve roots and causing severe pain, the operation will relieve the pressure and they will stabilize my back with screws and rods. Between the disk where the spinal stenosis is they will put spacers in to keep the bones from rubbing together.  It would have been interesting to know if they did my back first if I would have needed three knee surgeries but now I'll never know. All I know is with each surgery the pain got worse. I have great ROM sitting but when I stand I can't even bend my leg because the pain is so bad when I  bend. Everything moves around when I walk.  There is a lot of information on the Internet for this and I've learned a lot about the back and how it can cause many other problems. I really have to wonder how many other people that are still having trouble after a TKR might have back probleems too.
Come back again Lilly, it was great hearing from you.
Title: Re: UPDATE ON MY NIGHTMARE
Post by: knee deep in Goo on January 28, 2007, 09:37:42 PM
Hi Kathi

Was just reading you going in for your second tkr in March.   What is a verna filter  if you dont mind me asking?

Hope all is well .  Stay strong
Title: Re: UPDATE ON MY NIGHTMARE
Post by: lilly_kc on January 28, 2007, 11:00:40 PM
Dont mind AT ALL .... I have learned so much from all of you, and through this TKR process.
I had a (possible - mixed opinions from docs) pulmonary embolism - small blood clot in lung following first TKR . Have been on coumadin since (4 mos) but they do not want to chance it happening again, if it did.

The vena cava is the big artery that goes to heart/lungs (cant remmember exactly). They will go up through groin and put in little umbrella like filter to catch anything before it gets there. They make them both temp and permanent, my doc plans to leave it in. You have to lay still for 6 hrs, think they use local anesth. Very similar to the balloon surgery they do with heart patients.

All in all, I hear the second TKR is easier - usually the worst knee is replaced first, plus you know what to expect. Sounds right to me! Kathi
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on January 29, 2007, 10:14:33 AM
Hi Kathi, I want to apologize for calling you lilly, I didn't know your name was Kathi. I guess I should have paid attention to your signing your posts.  Where does the lilly come from in your screen name.
Title: Re: UPDATE ON MY NIGHTMARE
Post by: lilly_kc on January 29, 2007, 04:12:01 PM
Becky - dont mind at all what you call me. My middle name is Lillian, and my grandma's was Lillian Katherine.
Hope this week goes by quickly for you, without too much pain.
Have a nice monday. K
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on January 29, 2007, 04:58:10 PM
Kathi,

I think I called you Donna on the HH sorry about that.

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on January 30, 2007, 10:55:41 AM
Hi guys, I'm still here I think. As you know I've been fighting a sinus infection and a bad bad cough for awhile now. I've been on antibiotics since the end of December. Just when I think I'm getting better it starts all over again. I may have to call the doctor again today.  How to heck do I get my stress level down with worry about my daughter and this surgery.  Say something to cheer me up guys. HA!!
Title: Re: UPDATE ON MY NIGHTMARE
Post by: caren on January 30, 2007, 11:32:53 AM
I wish that I could say something that would take all the stress away but please know that all of us here and in the HH are behind you all the way
any time you want to vent just email me and I will listen to all that you have to say
Hugs to you
Take care
Caren
Title: Re: UPDATE ON MY NIGHTMARE
Post by: The KNEEguru on February 06, 2007, 09:03:34 AM
Hi
After discussion with luckygrandma who started this thread we agreed to split the thread, discard the latter part and take it up again at this point. Apologies to all of you who have had lost your posts.
KNEEguru
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on February 06, 2007, 12:04:23 PM
Thank you Sheila, just in time too. I'm having this terrible anxiety attack. Can any of you remember how soon before your surgery that you got your preop appointments in the mail. I called a couple weeks ago and the receptionist said the first week in February and here it is the 6th and I still don't have them.  I live 3 hours round trip and it wasn't exactly my plan to have my surgery cancelled three days before and switch to a Doctor so far away. The receptionist is a real piece of work. I've tried to explain this to her and she is a snot. There will be several appointments and I asked if she could make them the same day as they are all in the same building. Heck I don't care if I have to be there all day if I don't have to do all that traveling. Riding is very hard for me. She's young what would she know. Anyway, the distance is the reason I really need to find out these dates as arrangements will have to be made to get there plus if there are appointments one day after another we will stay in a Motel. I'm also afraid she'll put my GP appointment smack in the middle so it would be harder to stay in a Motel. My GP is 10 minutes from me and I can go to him anytime by myself.  I'm sure in the past I've known two months before so what gives with this. I was planning on sticking with this Doc for future follow-ups, but I don't want to deal with her anymore so I'll probably go back to my OS after he gets a new Spine Surgeon in June.  It would not be the first time I've changed docs becasue of the way the staff treats me. It does pay to talk to the doc as they don't know half of what goes on. I've gotten good results this way. It is their practice and they want to know this.  I guess I'm not in Kansas anymore, I was treated so well at my othre os's and they were accomodating in understanding my ravel distance.  I swear she is doing this so I don't have time to change an appointment.
I hope all that were supporting me and even more will feel free now, the thread was popular before we got off track.
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on February 06, 2007, 02:29:19 PM
Becky,

Call and ask that the doctor call you or ask for the office manager. You do not need any more aggravation.

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on February 06, 2007, 03:41:14 PM
Welcome back Peggy. I am going to have my husband call if I don't hear in the next couple days. This is rediculoous not to give me more notice then this.  She was going to call with the dates before she sent it out and that was two weeks ago and I haven't heard anything since. This girl will be reported. We pay her salary and she has no right treating patiens this way. 
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on February 06, 2007, 03:55:28 PM
Becky,

She should be reported. Don't let 1 person ruin the fact that this doc seems like a blessing. There's always 1 person in the group that is ignorant and the doctoer has to know that she's treated you with no repect.

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on February 06, 2007, 05:10:21 PM
I have to see my doctor before the surgery and I will definately talk to him about it. I'm going to tell him that she could have worked with me and respected the fact that I had to travel so far.  Every time I have asked her she was snippy to me.  I won't tolerate this. Like you said I'm under enough stress and don't need this. It's almost like she is ticked off because I wasn't a regular patient and this doctor took  over another doctors patients. She made a point of saying to me "you usually have to wait three months to see this doctor" It must have really ticked her off that I saw him the day after making the appointment.  This was an emergency situation and these patients had to be seen as they were all surgical patients. If she would look at it another way, her office is really benefiting money wise. They acquired a lot of patients in  a short time and all of them need surgery. On the other hand my OS's office lost money and the hospital I was going to go to lost money due to all the surgeries that were cancelled. 
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on February 06, 2007, 07:00:10 PM
Becky,

It doesn't matter how many patients the doc took over, she's a receptionist and shouldn't get mouthy with you or anyone else. The fact of the matter is she should be kinder as they are the first people seen and talked to by patients and can make or break an office.

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on February 06, 2007, 08:16:32 PM
I agree Peggy. She won't get away with it, I'm definately going to tell my doctor how disappointed I have been that I didn't get my preop appointments any sooner. That I feel two weeks before surgery is just not enough time to plan everything, especially when it is such a long trip. 

Title: Re: UPDATE ON MY NIGHTMARE
Post by: DeborahinNC on February 06, 2007, 10:01:06 PM
Hi all,

Becky, I sent you an e-mail regarding the poor service.  I think one of the things we forget is that we are customers.  It may be a medical issue but we are still buying the service.  In a nice way you can let them know that bad word of mouth is a very bad advertisement.

I know you're feeling very anxious about the upcoming surgery and the fact that you are not feeling like you are being treated well by the staff.  Know that we are here for you. 

I'm glad to see us back here.  I have lousy knees but strong shoulders - please lean as much as you need to.


Deborah
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on February 06, 2007, 10:01:48 PM
Becky,

Keep me posted on what happens when your husband calls.

Good luck!

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on February 06, 2007, 11:12:51 PM
Hi Deborah & Peggy,
I did get your e-mail Deb and I will answer it. Just my point we are buying a service and if it wasn't for us they wouldn't even have jobs. This whole thing has been so stressful and I swear until it is over I won't get any sleep.  It ticks me off that I am facing major surgery and this person could care less. It's only a job for her but it is my life and like Peggy says I don't need the added stress that she is causing me.  If we have to end up calling her again I won't be so nice this time. 
It's only three weeks until my surgery and I have all these appointments before. There are at least 4 she has told me about. I have more appointments this time then I did for my knee surgery and when the other doctor was going to do it I didn't have that many appointments. I don't understand why so many this time.
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on February 07, 2007, 02:14:22 PM
Becky,

This doc has to cover his ...... and do his own testing so be patient as far as that is concerned. It benefits you. You don't want him to make any hasty decisions. Another thing is that one office will not accept another offices results, one hospital will not accept another hospitals results. It has to do with legal ramifications etc... So that is probably the reason you have to go there a few times before the surgery.

Stay positive and do not let 1 person ruin your day.

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on February 07, 2007, 02:49:30 PM
I have a question. How do you put under you screen name the different surgeries you  have had. I haven't been able to figure out how to do this.  Becky
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on February 07, 2007, 03:30:11 PM
Becky,

You could have your gp's office call. That doc should be able to talk to the surgeon and find out what the holdup is. As far as posting surgeries, I have no idea.


Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on February 07, 2007, 04:11:25 PM
Becky,

Try my im--- [email protected] so I can see if it works.

Thanks
Peggy
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on February 07, 2007, 09:14:19 PM
Hi, I called my GP office today to find out if they had received a call yet for my preop physical, and they had not heard anything. That concerned me enough to call the office and find out what is going on and I talked to someone else.
She checked on it for me and it is being worked on now. I was told she would get to me by the end of the week or beginning of next, but I expressed my opinion and I should pretty much be able to have the appointments set up for when I want them.  I've never heard of waiting this long for appointments, there probably is no problem fitting me in and knowing what their schedule is but how do they know when my GP's schedule is and if I can get into see him on a dime.  I feel better about it but am so frustrated that I feel like I have had to beg and they didn't explain this to me when the surgery was scheduled.
I even called my OS office and talked to a receptionist there and let off steam. She told me if I did not hear by the end of the week to call them but I got impatient when my GP hadn't even been called. I thought at least if they heard from them that the ball is rolling.  That's my story and I'm stickin to it.
Title: Re: UPDATE ON MY NIGHTMARE
Post by: DeborahinNC on February 09, 2007, 12:17:27 AM
Hi Becky,

Sometimes you just have to take matters into your own hands.  Any word from anyone yet?  Your sugery is at the end of this month right?  You know every day is normal to the folks who set the schedules and appointments.  They don't realize that this is not so normal for us and especially with the surgery you are looking at its really not just another "normal" day.

I hope you have heard - at least something!!

I'm hanging - had OS appointment today.  Just 4 weeks post-op.  He has a new PA (they shift them around at the beginning of the year) who was very nice and spent about 15 minutes with me.  She said I was doing fine for 4 weeks and to just let it heal.  I then explained that I was out of work on short-term and being patient was not really one of my strong characteristics in any event and I'm normally a very bad patient.  I did feel better after I talked with her, we went over the photos and she explained everything that had been done and what I ended up with.  Then I actually had about a 10 minute visit with my OS - I think I must have the record for keeping him in the room.  He too said the knee looks like what he wanted for four weeks, he knew I was out of work and and the only bad news he had was I will not be going back to work on March 1st as I was hoping.  I knew that wasn't going to hold as my return date but one can always hope.  He said to count on 12 weeks - kind of what I expected.  I do feel better but still want to be done!!!

Let me know how you're doing.  I will be hoping you phone was ringing off the hook.  Take care - Deborah
Title: Re: UPDATE ON MY NIGHTMARE
Post by: knee deep in Goo on February 09, 2007, 01:48:05 AM
Deb  My OS kept telling me it was only a date on a piece of paper.  Your health is much more important.    What is the point of going back to sit in the office miserable and in pain and maybe doing more damage.
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on February 09, 2007, 09:41:17 PM
FINALLY, I got my preop dates. Boy I cannot believe how many appointments I have before this surgery.  They gave me an appointment of March 8 for my postop appointment and this one has me a bit confused as it is only a week after surgery, Unless I'm in the hospital up until that time, I will no longer get out and have this 3 hour round trip right after surgery, boy that should be a comfortable ride.  Maybe I can sleep tonight not worrying about this but I'll sure be gald when it is over.  Becky
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on February 10, 2007, 01:31:17 PM
Becky,

Glad you got the dates. Did they give them to you all in 1 week so you can stay there and get everything done?

Peggy
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on February 10, 2007, 01:43:12 PM
Yes, My appointments are all in one week and the lucky thing is my husband has that week off work and so he can take me to them. I have blood work and an x-ray on February 19th and my back brace fitted the same day but in a different part of town and so it is two different appointmens. February 21 I have an appointment with my GP for medical clearance the hospital is going to call to re-register me. On Februart 22 I have an appointment with my surgeosn assistant and February 23 I have an appointment with the General Surgeon who will be assisting him. We are going to get a motel for February 22, some friends are going with us and since our 39 Wedding anniversary is February 24, we are going to go out to dinner the night of February 22 and try to turn this into a little fun. The date that upasets me is March 8, I have no idea why a post op appointment would be set up one week after surgery when I'm in the hospital part of that week, I'll no more and get home and have to turn around and go back. That is not going to happen. I'll talk to the OS about this.  Anyway I have to make that trip twice that week.  I'll keep you posted. Becky
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on February 10, 2007, 01:49:21 PM
Don't worry about the appointment after the surgery. You have to remember that when these appointments are made they really don't take into consideration where you live. They probably don't even realise that you are 3 hours away. They will take care of that, the surgeon isn't going to have you travel that far after the kind of surgery you are having done.

Are you 10 feet under snow up theer?? I can't find the post with your town, tell me again where you are I want to see it on a map.

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on February 10, 2007, 06:58:25 PM
WOW!! I got my new glasses today and I can't beleive how much better I see. It's been 4 years since I had my eyes examined and it's amazing how they can change. Did you ever notice the older you get the print keeps getting smaller. She put a chart in front of me and I could see even the smallest print. At least I'll go into surgery in style, although I doubt they will let me wear them in the operating room. I should tell them I can't see without them. HA!!
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on February 10, 2007, 08:04:07 PM
so happy to see that new glasses got you GIDDY!

Peggy
Title: Re: UPDATE ON MY NIGHTMARE
Post by: DeborahinNC on February 10, 2007, 11:19:17 PM
Hi all,

Becky,  wow that is a number of appointments.  I agree with Peggy.  Just tell your doctor that the March 8th date is both too soon after being released from the hospital and its a three hour drive.  I'm sure they will work something out for you.  Its good to hear that you are on the way with dates, appointments etc.  39 years - congrats. I hope you have a great time (in between the appointments that is). 

I had to laugh at the glasses part, I'm glad you can see again and I think surgery in style is a great idea.  I was laughing at myself.  I was just thinking about the fact that I was sitting here earlier doing homework and I had my glasses on and then had to put a pair of readers over those to see the computer screen.  Think its time for an eye exam???  I guess I'll call them Monday and see when I can get in.  I can't really afford them right now but I guess so I don't look like a total dolt with two pair of glasses on I better get it done.

And, I said this on another post.  I did not, that is not do my snow dance  lol.  I do look at upper NY and still miss my snow but I don't really want that much snow.

Hope all remains moving forward.  Take care  Deborah
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on February 11, 2007, 12:45:12 AM
Becky,

Glad you like your new glasses. I really need to make an appointment but most places aren't open on Saturday's and my husband uses his vacation time for more important appointments I have,  like the upcoming surgery. I 'm sure he will take off a couple of days to stay home with me. So I guess the eye exam will have to wait until after I'm fully up and running.

Deborah, are you sure you didn't do that snow dance? Could you imagine NC with almost 10 feet of snow? I am so happy that we didn't get that here in PA. We are getting a snowstorm next Tuesday into Wednesday. They have not told us how much. At this point I really don't care. Just want the winter to go away. Glad to read earlier that you had time to ask all of your questions at the os appointment. Mine is pretty decent in that area. He hangs around until the conversation is over and he treats alot of patients in 1 big room ( where they take off the casts) and I can always walk in there to ask him something if I forgot.

Well girls, gotta run YEAH right ! Don't I wish. 

Dinner is done talk to you later,

Peggy
Title: Re: UPDATE ON MY NIGHTMARE
Post by: caren on February 11, 2007, 10:57:51 AM
becky glad that you got your glasses and glad that the print  got bigger for you when you got them I always wear my glasses in to the OR and then they give them to Curt so that he has them the kids joke I dont even hear w/o them lol
We are in another winter weather storm watch 6inches for here oh how nice I too would like winter to just go away hate that snow and having to navigate on it somehow we need it to just snow in the ditches not the roads
Deborah sure that your snow dance doesnt have long lasting effects?
Peggy do you want the extra snow that I dont want will gladly send it to you
Hugs ladies need to go and let the puppy back in
take care and have agreat day
Caren
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on February 11, 2007, 11:29:09 AM
WOW!! you guys have been busy. Welcome back Caren and Debbie.  Hey Caren--- Deb. Peggy and I talk on MSN Messenger, do you use that.  We could talk about the other subject of interest. 
You mean I actually got you guys to thinking about getting your eyes examined. We don't have eye insurance either but it got to the point it was either bite the bullet or wear a pair of Wal-mart reading glasses full time.  I can't beleive how expensive glasses have gotten. It was over $100 for each lense and so you figure together my husband and I have 4 eyes that alone was $400. The of course there is the eye examibe, frames, etc, etc. It's 6:00 am here so I'll catch you later after I've had my coffee. Becky
Title: Re: UPDATE ON MY NIGHTMARE
Post by: plantgeek58 on February 11, 2007, 05:21:16 PM
Hi ladies,
Me, too, for the eye doctor. I need to go back to get bifocals. I've been dragging my feet about it cuz it makes me feel so old, but now that I'm in school, I really need to. It's getting more and more difficult to go from looking at the blackboard to looking at my notes, without having to readjust my glasses. I hate this. And you're so right about how expensive it is, especially if you add on things like UV protection or you want the unbreakable frames. It's as bad as the dentist.
Terre
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on February 11, 2007, 05:46:00 PM
Hi terre, Hey you don't have to be old to have Bifocals. I've had Bifocals and Trifocals since I was 30.  My grandson has had Bifocals since he was one year old.  Still enjoying my new glasses girls, are you jelaous yet. HA!!  Man I didn't realized how much I was living in the dark.  They have this new machine that tells the doctor what your last prescriptioln was and so unless you tell him you want this or that changed they will fill it the same way. My husband had the photo lenses but hated them, he didn't ask for them this time and they gave them to him anyway.  That is $100 right there. We told them we didn't order this and it took another two weeks but they refilled the perscription without them.  If you get the lines it is cheaper then getting progressive (without)lines or Verilux (sp) so be careful when you go to make sure exactly what they are ordering. The Verilux is  a brand name, I thought it meant without lines) and they alone cost over $300 so be careful as you can keep the price down, but they will try to get away with it.
Title: Re: UPDATE ON MY NIGHTMARE
Post by: SuburbanLife on February 11, 2007, 06:22:03 PM
Hello, butting in here and obviously coming in very late in the game, but from what I gather you are going to have a spinal fusion? Or something down that line. You might find this bullentin board helpful:
http://www.healthboards.com/boards/forumdisplay.php?f=18
That board is for back issues. I also used this board when I had my knee replaced nearly 2 years ago, and found the other board after I had my spine fused in July. It is a great place to get direct answers. Hope this helps, and good luck!
Lisa
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on February 11, 2007, 07:31:07 PM
Hi All,

Well as far as being old because you need bifocals, color me old. I have been wearing the progressive ones for about 12 years now. Yes, they cost more but I get anyway!! I dread going to the eye doctors, they are going to have to change my script this year, I can't see the small print anymore either. So that will be another couple hundred dollars. I agree with Terre, they are as expensive as the dentist. I won't even tell you what I have spent on the dentist since October. I keep telling my husband that we should rob a bank HA HA

It is cold here and my poor hubby has to work on the brakes for his car. He's got the kerosene heater going in the garage and it is still cold out there. He'll be running in and out all day.

I have to call my os office tomorrow. I have another bump, this time it is on the top of my knee and it is so hard and hurts like crazy. We seem to think that it is part of the wire that is starting to push up now that my leg is finally shrinking down to normal. Hope that's all it is, who knows maybe they will take this hardware out before April, OH what a blessing this will be. I have not exercised all week end, trouble and pain with the leg.

Will let you know what his office says.

Later,

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: L. Thomas.net on February 11, 2007, 07:55:22 PM
BIFOCALS :o :o :o

How about cataracts?   Now don't get me wrong...they were not the "normal" cataracts...fast gorwing kind "Juvenile Cataracts"

I had what is called "prelex" lens implants...cosmetic surgery unless you are having cataract surgery.  I have a reading lens in one eye and a distance lens in the other.  I never have to wear reading glasses..perfect 20/20 but I did rub my distance eye too soon after surgery so I only have 20/25 in it.
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on February 11, 2007, 11:02:55 PM
Hello, butting in here and obviously coming in very late in the game, but from what I gather you are going to have a spinal fusion? Or something down that line. You might find this bullentin board helpful:
http://www.healthboards.com/boards/forumdisplay.php?f=18
That board is for back issues. I also used this board when I had my knee replaced nearly 2 years ago, and found the other board after I had my spine fused in July. It is a great place to get direct answers. Hope this helps, and good luck!
Lisa

Thanks Suburban Life. I certainly will check out that web site. I was supposed to have this Spine Surgery January 8 but the doctor just up and left without an explanation. He shared an office with my Orthopedic Doctor and they were devasted that this happened so I was sent to another Spine Specialist further away and had to start all over again.
There are multiple problems with my back. I have Spinal Stenosis so will have a Laminectomy, slipped disk and so three vertabra will be fused together and arthritis all in L4-L5.  They will be going in through the back and stomach to get the components to fit properly and have easier access whatever that means.
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on February 11, 2007, 11:05:41 PM
Hi All,

Well as far as being old because you need bifocals, color me old. I have been wearing the progressive ones for about 12 years now. Yes, they cost more but I get anyway!! I dread going to the eye doctors, they are going to have to change my script this year, I can't see the small print anymore either. So that will be another couple hundred dollars. I agree with Terre, they are as expensive as the dentist. I won't even tell you what I have spent on the dentist since October. I keep telling my husband that we should rob a bank HA HA

It is cold here and my poor hubby has to work on the brakes for his car. He's got the kerosene heater going in the garage and it is still cold out there. He'll be running in and out all day.

I have to call my os office tomorrow. I have another bump, this time it is on the top of my knee and it is so hard and hurts like crazy. We seem to think that it is part of the wire that is starting to push up now that my leg is finally shrinking down to normal. Hope that's all it is, who knows maybe they will take this hardware out before April, OH what a blessing this will be. I have not exercised all week end, trouble and pain with the leg.

Will let you know what his office says.

Later,

Peggy


I have the Progressive Bifocals Peggy and I don't think I'd be able to go back to the old style. At least with the Progressive noonw knows you have Bifocals. I know about the cold we are freezing here in NY too.
Let us know why you have that bump Peggy. Becky
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on February 11, 2007, 11:08:17 PM
BIFOCALS :o :o :o

How about cataracts?   Now don't get me wrong...they were not the "normal" cataracts...fast gorwing kind "Juvenile Cataracts"

I had what is called "prelex" lens implants...cosmetic surgery unless you are having cataract surgery.  I have a reading lens in one eye and a distance lens in the other.  I never have to wear reading glasses..perfect 20/20 but I did rub my distance eye too soon after surgery so I only have 20/25 in it.

I just had my eyes examined and he said on the initial exam he though I had cataracts so he did further tests and says I do. I don't notice anything yet and my new glasses work great so unless they get worse I've had enough surgery to last me a long time.
Title: Re: UPDATE ON MY NIGHTMARE
Post by: caren on February 11, 2007, 11:49:09 PM
Ladies please for my 21st birthday I got bifocals and now last fall I have cataracts so what fun it that  ::)
Looking for a new vehicle not new new just new to me boy people need to be honest for sure
I would love to add all of you to my messenger so just send me and invite to either my yahoo or my msn and will gladly take u in to talk to you
going thru a little melt down today and then found out the crappy weather is to last longer than expected hate winter for sure
thanks gals for all the support think the world of you all
hugs to all
Wes is happy to be back at his house Curt hooked up his vcr and dvd player in his room so Barney was on when we left him he made sure several times today to tell me he doesnt live at his fathers house that he lives at parkview cottage I reassured him tha that is where I would take him then he was fine took my huge stuffed moose off the bed to take with him to sleep with
again thanks ladies you are all so awesome sorry if i whine
take care will chck with all of you later
Caren
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on February 12, 2007, 12:17:02 PM
L. Thomas, can cataract surgry be corrected with glasses. I see a big improvement in my eyes since my new glasses and I tthought cartaracts meant you would lose your puriferal vision . I can see fine out the sides of my eyes. This doctor mentioned surgery but did say that it has to be justified.

Bad night last night girls and guys. Amongst other things I just couldn't find a focal point that wasn't stressful.  I need to fall asleep thinking about something pleasant and right now I'm having trouble finding that.

Suburban Life, thanks for the webite message board for Back problems. All I have to do is go there and read and it is so refreshing to find many many others who have the exact same problem I have and how they felt about the surgery. Even in the worse senario cases they said in the end they were glad they had it. Many said they went from literally not being able to walk to playing sports again. I'm sure glad you joined my thread and I'd welcome your inpute anytime, especially if you have back problems. I belong on both boards as I have had three knee operations in the past couple years that have led me to this point. Actually three in 9 months but it's been a year since my TKR. It will be so great to see just how my knee is doing without these other problems. I can't wait.
Title: Re: UPDATE ON MY NIGHTMARE
Post by: SuburbanLife on February 12, 2007, 02:12:51 PM
Well Lucky, glad I could help. Not knocking the Knee Geeks, but something a tad bit more specific doe help. Feel free to contact me directly if you would like more information. You will find a few things to be very common. Those with bad knees ending up having bad backs, and those with bad backs ending up having bad hips. I hate to say it's been a downward spiral for my body since I had my knee replaced in March of '05. Had my spine fused S1-L3 in July, I do have instrumentation, 2 rods and 6 screws. They only went in thru my back. I have/had Degenerative Disc Disease, Facet Disease and Degenerative Arthritis. Now dealing with the Degenerative Arthritis in both hips, my TKR side being worse, so I can definatly comiserate with you! Another gal from the knee boards also had the same surgery a couple months after me and we still talk regularly, so again, message me if you would like support, I'm here for you! Take care...Lisa
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on February 12, 2007, 07:08:50 PM
Well Lucky, glad I could help. Not knocking the Knee Geeks, but something a tad bit more specific doe help. Feel free to contact me directly if you would like more information. You will find a few things to be very common. Those with bad knees ending up having bad backs, and those with bad backs ending up having bad hips. I hate to say it's been a downward spiral for my body since I had my knee replaced in March of '05. Had my spine fused S1-L3 in July, I do have instrumentation, 2 rods and 6 screws. They only went in thru my back. I have/had Degenerative Disc Disease, Facet Disease and Degenerative Arthritis. Now dealing with the Degenerative Arthritis in both hips, my TKR side being worse, so I can definatly comiserate with you! Another gal from the knee boards also had the same surgery a couple months after me and we still talk regularly, so again, message me if you would like support, I'm here for you! Take care...Lisa

We certainly have a  lot in common. Your statement how one things leads to another like bad knees, bad back and so forth is why I started this thread. I've seen so many people still complain of leg pain and wonder why they are not getting better after a knee replacement. In 9 months I had three knee operations, arthroscopy, PKR and TKR and yet I continued to get worse because I think dealing with all teh rehabilitation for my knee stressed out my back even more.  I've had back problems for years but never like it is now and it seemed to happen so quicky.
They will be going in through my back and somach in the same operation. My Spine Specialist said in order to fix the problem right so I don't need mopre operations is to do it this way.  I'm confident in this surgeon. He really seems to know his stuff. Sometimes I wonder if they had done my back first if I would have needed so many knee operations. It took going the full nine yards to get to this point.  Becky
Title: Re: UPDATE ON MY NIGHTMARE
Post by: DeborahinNC on February 13, 2007, 03:36:03 AM
Hi all,

I agree - bifocals do not equal old.  I've been in them for some time and yes they cost a ton.  I too do the progressive but as I said I'm now adding a pair of readers on top of them.  I was supposed to call today to make an appointment and forgot until I started doing homework tonight and - yes double glasses.  So tomorrow I'll call.

Becky know you have a busy week or two coming up.  Keep your energy up, concentrate on yourself and keep yourself well. 

Peggy did you get hold of your OS?  What did they say, is the wire moving (or the knee shrinking)?  It would be great if that could be done before April.  I know you really want the hardware out.

Hey Caren - what does Wes like to watch?  I would be happy to send him some DVDs.  One good adoptions deserves another.

Becky - hope tonight is better rest for you. 

Deborah
Title: Re: UPDATE ON MY NIGHTMARE
Post by: caren on February 13, 2007, 11:29:21 AM
Good mornging ladies
Deborah Wes loves Barney Shrek and then the Wiggles he got a dvd and vcr combo this weekend for his room
thanks so much for the generous offer
I wear progressives and like them better than lined bifocals that is for sure I go to Walmart it is not as spendy there for glasses
Have a great day ladies
Hugs
caren
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on February 13, 2007, 01:33:12 PM
Deborah,

The os office said it is the wire that is starting to become too much since the knee is shrinking down to normal size. They will still not take the hardware out until April. They also told me to work through the pain. So I still have a couple more months to put up with this. Lucky me!!

How are you doing?

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on February 13, 2007, 03:32:08 PM
L. Thomas, can cataract surgry be corrected with glasses. I see a big improvement in my eyes since my new glasses and I tthought cartaracts meant you would lose your puriferal vision . I can see fine out the sides of my eyes. This doctor mentioned surgery but did say that it has to be justified.

Bad night last night girls and guys. Amongst other things I just couldn't find a focal point that wasn't stressful.  I need to fall asleep thinking about something pleasant and right now I'm having trouble finding that.

Suburban Life, thanks for the webite message board for Back problems. All I have to do is go there and read and it is so refreshing to find many many others who have the exact same problem I have and how they felt about the surgery. Even in the worse senario cases they said in the end they were glad they had it. Many said they went from literally not being able to walk to playing sports again. I'm sure glad you joined my thread and I'd welcome your inpute anytime, especially if you have back problems. I belong on both boards as I have had three knee operations in the past couple years that have led me to this point. Actually three in 9 months but it's been a year since my TKR. It will be so great to see just how my knee is doing without these other problems. I can't wait.

Have you been diagnosed with cataracts?  There are "floaters" that really do a job on you as far as clouding an area of vision.  They are a blur that move across your eye.  They will move across you eye opposite to the way you are looking.  That is different from cataracts.  Floaters can't be fixed but glasses will give you vision that is better.  With cataracts your eyesight will continue to worsen.  I think you will want to have the surgery when your OD suggest it.
No I don't have floating cataracts. Actually I can see quite fine since I got my new glasses.  The eye doc just said he wanted to see me in a year and see how they progressed. Why not I've been averaging one or two surgeries a year so what's another one. I might not know what to do with myself if I'm not palnning surgery. It doesn't seem to matter how minor the surgery is you still go through XXXX to get through it and have all this preop stuff.
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on February 13, 2007, 03:34:17 PM
Hey Peggy, Will be thinking about you and hopfully when you get the hardward out that will be the end of it and it's full speed ahead.
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on February 13, 2007, 04:25:53 PM
Hi Becky,

Won't that be nice?? No more hardware yippee!! I still have a couple months for that to happen. How's it going with you today? Is it snowing there? It is here YUCK!

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on February 13, 2007, 07:06:51 PM
Peggy we are expecting about 2 feet starting at 3:00 p.m. I see many of the PA schools are dismissing early has the snow started there yet.

The kids will be excited as we have not had a snow day this year. I think we will take our 4 wheel drive truck for my appointments next week as we are really heading into snow country.  I'll be glad when the next two weeks are over.

My hubby and I were going out to dinner for valentines but decided to stay in a thow a couple steaks on the grill and drink wine. and keep warm. And of course there is the hot tub. Becky
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on February 13, 2007, 07:21:09 PM
Becky,

It started this morning about 7 or so and it's still coming down. Not heavy but steady. Supposed to turn to rain, sleet and ice. What a mess this is going to be. We are under a storm watch until 7pm Wednesday night. Sounds like you and your husband are in for a fun time. ENJOY!!!

The next few weeks will fly by and it will be over for you. Have you thought about giving your husband one of our phone numbers to let us know how you made out? You can have mine if you want and I can post for the rest of the crew to see.

Let me know

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on February 13, 2007, 08:55:05 PM
I can tell you right now my husband wouldn't do it. He never touches the computer and although I feel I know you pretty well you are strangers to him and I don't think he would feel right.  You can give me your phone number though and maybe I can call you and you can post and let everyone know as I might not feel like sitting at the computer for awhile. I always have a phone by my bed.  You guys keep the thread going though so I'll have something to read, it will be fun catching up.  He also has quite a few calls he has to make and he will be doing good to do that.

I'm not looking forward to this snow. Can you believe it, a green Christmas and now this. Somebody goofed up as it is supposed to snow on Christmas and melt away for the rest of the year. Becky
Title: Re: UPDATE ON MY NIGHTMARE
Post by: lilly_kc on February 13, 2007, 09:00:29 PM
Becky - since I will be in hospital at same time, I wont be able to keep tabs on you, but we'll touch base as soon as we can. We can be scared, happy, and recuperate together.

Last TKR, my daughter sent an e-mail to one of the ladies. Do you think your daughter would do that?

Also last TKR, father in law died and my dad had several surgeries in week before. Hopefully, this time, family stuff will be calmer. With ;nine siblings, that might be asking too much!

Take care of YOU, Kathi
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on February 13, 2007, 09:36:06 PM
Becky,

I'll send my phone number by email. I agree with the snow stuff. It stopped here and has now come back with a vengence:(

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on February 13, 2007, 10:38:58 PM
Hi Lilly, That is really something that we will be in the hospital at the same time. You know my daughter will be here tomorrow and maybe i'll show her what I am doing and she can write and tell you all about how I am doing.  My surgery is Wednesday and she will be here Thursday and maybe she will have time. 

Lily do you use MSN Instant messenger. Many of us are keeping tabs that way also. We can really covr more ground at times and talk about whatever we want.

Peggy that would be great and as soon as I feel like it I'll call you. Who knows I might be amazed at how well I feel. I keep telling myself how could it get worse.  Becky
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on February 14, 2007, 11:21:16 AM
Hey Peggy are you snowed in yet. We are heading for two feet. I sure hope it gets it out of its system before next week. I don't know how I'm going to walk in this stuff. >:(

Remember me telling you how upset I was over not getting my preop dates sooner. This place I'm going now is huge and I can't believe how shabby they do things as far as paper work.  Remember she called me on the phone with dates and told me she also sent it in the mail. I expected a packet like I've always gotten with surgical instruction, like don't eat or drink after midnight,etc. Well yesterday I was shocked to get this handwritten piece of paper that I could hardly read with just the dates she already gave me. Maybe they tell me all this when I go into my preop appointment but they really push to the limit, is it no wonder my anxiety is out of control. I don't even have any idea what time my surgery is or what time I'm to be at the hospital, maybe the hospital tells me this when they call ????  This has been a guess by gosh game, I guess I'll remember this operation well.   
Title: Re: UPDATE ON MY NIGHTMARE
Post by: Doc79316 on February 14, 2007, 11:40:00 AM
Hi All,
Kathi & Peggy - I'm sure you'll both be fine. I know it's frustrating when you have to wait for something to be done. Even moreso when what needs to be done seems so simple to us and wouldn't take long at all. Bu thtese things are sent to try us - and they do that really well!

Becky - How are you holding up? I've been following your thread although I got sidetracked last week by being admitted to Hospital. Typical - nothing is ever simple is it?!
You should try not to get too anxious about the procedure (or lack of it) at the Hospital you're under. Believe it or not, I'm sure that they DO actually know what they're doing and you'l have all the necessary information well in advance.

How is your daughter doing? I hope she's doing well now in her recovery. Try not to get snowed in. I love the snow - it looks so pretty. So damn cold though and plays havoc with the knees when it freezes, no?!

Anyway, must go now because I'm at work.

Take care,

Laura x
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on February 14, 2007, 05:13:54 PM
Becky,

Stop agonising over what they did and did not send you. You will be able to ask all the questions you want in person and you are probably right about them giving you more info when you get there. You have enough to worry about so stop stressing!!!!!  We only got a few inches, more ice than snow!

Laura,

Patience is not one of my better qualities. So waiting is starting to get on my nerves!!

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: L. Thomas.net on February 14, 2007, 05:25:36 PM
No snow, but Ice is good.  We got about 1" of snow over about 2" of ice. :-*

You should have heard all the whooping and hollering at 5:00 this morning when the TV said "No School today"..and then the kids got up.

What a wonderful valentine present..full day of R&R ;D
Title: Re: UPDATE ON MY NIGHTMARE
Post by: DeborahinNC on February 14, 2007, 05:38:19 PM
Good morning ladies - well actually afternoon,

Becky was I surprised at the differences in surgical centers (I've only been to two so my knowledge is limited).  I'm sure you will have more to sign and read on the first few visits.  Maybe some places figure if they have you sign for the information it is off them if you read it or not.  If they just mail it they have no idea - ok that was my two cents worth.   I'll e-mail you my phone number and if you want to return your number to me I don't mind making the calls.  I have no long distance charges (small phone company).  

If your husband doesn't mind would just like to be able to check and see how you did with the surgery.  If you think it will be too much to get calls from strangers thats fine - that I fully understand.  I don't know that my husband would do that either.

OK so went swimming for the first time in a zillion years (yes really about a zillion).  It felt great but guess what... did you guess the answer.  I am an hour home and I think I want to cut off my leg!!!  All I can do is doink my forhead - I told myself before I went I would not overdo it.  Can't tell me anything.  So I'm going to get some lunch and ice my knee.  I have PT tomorrow and hopefully it will be ok for that.  Friday I'm going back to the pool again and this time I really will limit myself.  It was just that weightless free motion.

Have a great day ladies - hope you are all doing well.  Any snow you don't want send to me (my dad said he was going to box it up too).  Take care.

Deborah
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on February 14, 2007, 07:07:31 PM
Hi Deb, I'll give you my phone number when we IM. I will tell my husband he might get a strange phone call from a strange lady. HA!!  If he expects it he won't be shocked. It will depend too what time my surgery is as to what time he will get back home so I don't even know if you would get him until Thursday evening after 5:00 as he will be going to work that day. He has loads of people to call when he gets home Thursday and will be quite busy.  I do tell him about all of you and he knows I talk on IM with you.

I'm just the kind of person that likes to plan things and not knowing drives me nuts. I always read the instructions over many times to make sure I do everything right and don't forget anything.   I'm pretty convinced my TKR was a success because when I sit I have full ROM and any pain I have is not coming from my knee. It will be so great to finally use this new knee I went through so much trouble to get.

Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on February 16, 2007, 11:31:17 AM
 :)I'm counting the days now can you believe it a little while ago the date Februaru 28 wasn't even in sight. The hospital called yesterday to get the billing information so at least I've made contact. Next Wednesday they will call and give me the last minute details.
How much snow does everyone have. I think with this last snow storm we got 2 feet and it is still snowing. I kinda like just looking out my window at it, I have no real desire to go play in it. I hated winter when I was a child. My mother would push me out the door and I'd sit on the steps and cry.
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on February 16, 2007, 02:23:53 PM
Hi Becky,

We told you the time would fly. It'll be over before you know it. I don't like playing in the snow either. I don't like to be cold except on extremely hot days. Looking forward to spring!!

Peggy
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on February 16, 2007, 02:52:18 PM
You got it Peggy. It will be so nice to look forward to Spring this year and be able to work in my flower beds and plant a small garden without being in pain all the time and falling. We are going to Nashville in July with some friends and so that is my incentive for getting well.
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on February 16, 2007, 02:58:22 PM
Sounds like a good incentive to get better.

Peggy
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on February 16, 2007, 03:08:17 PM
Becky,

Sorry I missed you on IM. I hit the wrong button, thought I was sending messages and wasn't signed in. Boy do I need to wake up this morning.

Peggy
Title: Re: UPDATE ON MY NIGHTMARE
Post by: DeborahinNC on February 16, 2007, 11:20:03 PM
Hi all,

Becky when you told me Feb. 28th last night I could not believe how close that is.  It really did fly by.  From the cancelled date to now.  I know this was very frustrating for you but in the long run I think it will be a very good thing.  Next time we are on IM I'll get your phone number and give you my numbers.  You know you have a ton of support here.

Is this the week you are gong for appointments and celebration of 39 years?  If so hope its wonderful.

Swimming again today and took it much easier.  I was still sore and swollen but the exercise part feels so good and the swelling is gone after some icing.  My PT thought it was ok although he wasn't thrilled with the swelling.  I'll see how it does as I keep going this was only the 2nd time I've exercised this much except for PT.

Chris and I are about to go out for our valentine dinner so have to run.  Have a good evening all.  I'll check back over the weekend.

Be well  Deborah
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on February 17, 2007, 01:43:10 PM
I thought I answered your post once Deb but here goes again. I think mostly why it has seemed so long is because my surgery was scheduled last summer and then three days before was cancelled. That sent me into tail spin and thoughts of "what now". Now that I am reprogrammed to concentrate on the new date everything else is becoming a blurr.  The surgery will be more extensive then originally thought but I think he'll do a more permanent job.

I start my preop appointments February 19th. My husband and I have to make the three hour round trip that day but on Thursday friends of ours are going with us and we will stay overnight for the appointments on Thursday and Friday and party in between.  On Wednesday the hospital calls and I have my medical clearance with my GP.  Tuesday is the only day I have free.


I don't think I'n going to consider going back to PT right after my surgery. I've had therapist do more harm then good. I don't like the thoughts of getting in and out of the pool this time of year.  If they want me to have therapy someone can come to the house this time.

As far as that postop appointment one week from my surgery they are crazy. If it is to get staples removed I'm going to ask if my GP can do it.  My therapist took them out of my knee.

What kind of knee replacement does everyone have. I was just reading my OPERATIVE REPORT and I have a NexGen Zimmer whatever that means. A zimmer is supposed to be designed for women.  Becky
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on February 19, 2007, 11:15:13 PM
Well, I went for my first appointments today, lab work and to be fitted for back brace.  When I was walking back from the lab I saw this lady carrying a suit of armor and I said to her "Please tell me that's not the back brace" She said :it sure is"  Then I said holy cow it is big and she said when you're as fat as I am it will be big.  Okay so I go for my fitting and he measured me from my neck all the way down and  around my thighs. This thing is a darn body suit and I thought it would be like wearing a wide belt. Now I know how the tin man in the wizzard of oz felt. I guess I should have figured when he asked me my bra size. Anyway glad today is over with. Oh!! Did I forget to mention the brace will cost over $1300 and our insurance only pays 50% of it. I told them for that much money I should be able to get it in pink.
Title: Re: UPDATE ON MY NIGHTMARE
Post by: DeborahinNC on February 20, 2007, 12:07:31 AM
Hi All,

Becky just think of the dragons you can slay.  Don't mean to make light of it but its better to smile at the prospect.  In reality at least you know that you will be protected.  You are going to have muscles both front and back that need support so this should be good.  How was today?  Everything get done ok?

I'm so glad you are getting to the end of this and as I said, no worries about the thread while you are out we'll keep it going.  But this does mean you'll have a lot of reading to catch up.  That will be your homework!! 

I do hope all continues to go well for you.  I'll get you on IM before the 28th.

Be well.

Deborah
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on February 20, 2007, 12:18:49 PM
Good point Deb. Deb and I were on IM last night and tried to think of ways to make it more attractie and make a fashion statement. We came up with things like, let the grandkids fingerpaint it, hang lights from it, paint it flourescent so it glows in the dark, etc. Anyone have any other ideas. I have to pick it  up Friday so I get to try it out before I actually need it. Becky
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on February 20, 2007, 01:28:51 PM
Hi Becky,

We'd love a picture of you in that brace after the kids are done painting it:) Hope it's not too heavy or constricting for you. Are you completely over the sinus infection?

It's getting up to about 40 degrees here, a heat wave. Boy I can't wait for Spring!! Went to pt last night and today I am so sore, you would think I would be used to the exercises by now and the pain after wouldn't bother me.

Well talk to you later,

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: knee deep in Goo on February 20, 2007, 03:06:59 PM
The zimmer knee for women was only approved  in May of 2006.   Zimmer also makes a Unisex high flex knee that was released prior to the gender knee being released.
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on February 20, 2007, 04:09:11 PM
Hey Pegggy, How long do you have to go to PT. Is it helping you. I was told by a doctor once that you can actually get to a point where PT does more harm than good, that there is a stopping point. He siaid it can go from physical therapy to physical torture. That happened to me more then once. I was improving and then had a total set back where everything I had accomplished was gone. In fact the last three times I went to PT I actually told them when I didn't think I needed to come anymore. 

This brace is going to be embarrassing enough to wear, I think I'll have a professional paint it actually. HA!! Maybe a nice Spring scene to give me something to look forward to or even a picture of the Grand Ol Opry in Nashville where we are going this summer.  I wonder if anyones's had ever had their back brace autographed the way they do casts.
Thanks knee deep in goo for the information on the zimmer knee. You didn't emntionthe one I have. have you heard of it. I suppose I could look it up on the Internet. Becky
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on February 20, 2007, 07:57:40 PM
Hi Becky,

They are hoping to get me using a cane by the end of this month maybe 1st week of March and then I won't have to go back until after the hardware is removed. Won't that be a blessing!! NO therapy for close to 3 months. Gee I won't know what to do with myself HA HA

I canjust picture that brace painted like the Grand Ole Opry, that would certainly be a conversation piece. Maybe you could get Dolly Parton to sign it.

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on February 21, 2007, 12:23:54 AM
That sounds great Peggy, certainly something to look forward to. You can replace therapy with things you really want to do.  You could always take up Karaoke. I dreamed last night I took my Karaoke on the road.

As far as getting Dolly to autograph my back brace, gee I sure hope I'm not still wearing it in July to Opryland. They may put me in one of the free specticle shows. Becky
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on February 21, 2007, 02:27:35 PM
Hi Becky,

I can't wait to get back to doing things that I like to do!! I certainly hope the brace is off by summer. How's everything going today?

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on February 21, 2007, 07:14:31 PM
Well, I had my phone interview today and my preop appointment with my GP. Tomorrow I make the long trip again to meet with the surgeons assistant and I'm going to talk to him about the postop visit one week later.  My GP said he doubts it is for staple removal as it would be too soon. If it is to have a drainage tube removed he said they might better keep me in the hospital longer and remove it before I come home because if I have any problems I would be too far away.  No way do i want to come home with a drainage tube, how to heck am I going to wear that suit of armor with a drainage tube in.  Anyway, Friday I have to go back and have my brace fitted and meet with the General surgeon. That would be the end of all my appointments before surgery next week. The staples are usually removed 10 days to 2 weeks and if they think I'm making that long trip every few days they have another think coming.

We can all hope to have a pretty much complete recover by Spring so we can all have a wonderful summer.  Becky
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on February 21, 2007, 07:41:10 PM
Hi Becky,

Well it sounds like everything is falling into place. I am glad that it's almost over for you. Since you live so far away I can't see them making appointments that you won't be able to keep. Just tell them again and again that you live 3 hours away. It should start to sink in.

Have a safe trip tomorrow.

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on February 24, 2007, 12:49:48 PM
Hi Everyone, I'm back.  This has been an enlightening experience so far.

I think I have shook hands with everyone involved in my surgery and everyone I talked to added a little more information. The very last we talked to (General Surgeon) explained what he would be doing to get me ready for the Spine Specialist to do his job. He is also the one who opens and closes me up.  When we voiced our concerns about the travel since I have to travel so far and be at the hospital by 6:00 am on Wednesday he told us about a place across from the hospital where they put families up for any family member having surgery. We can go up the day before and my husband can keep the key to the room as long as he wishes. All we need to do is make a $25 donation.  My Spine Specialsit also told me that my family doctor can check me after the first few days I'm home and then they want to see me in two weeks for a follow up and take out the staples, after that I don't need to go back for 6 weeks.

More and more I know someone is watching out for me when the other guy skipped the country. There has also been talk that he was facing a malpractice suit and ran out on it.  I talked to these doctors about the procedure he was going to do and that they never fitted me for a backbrace and they were mortified and said this surgery I'm having is the only way to fix my problem and the backbrace is vital to my recovery, which I have to wear for at least two months. I'll also have some kind of implant that will stimulate bone growth, at the end of 26 weeks it is no longer affective and if it bothers they will take it out under general anestheisis or if it is not bothering it can be left in. What's one more foreign object in the body, RIGHT!! Taking all this into consideration the travel is the least of my worries. These guys are good and I know I will get good care. I have to wear this backbrace whenever I'm up moving about, even in the shower as they said the shower is the most likely place to fall. How can you shower with a brace that covers everything but your legs and arms. Imagine ladies not being able to make a bed or do anything that requires bending over. Good thing I have such a greast supporting, husband, family and friends who have all offered their help. 
Anyway it is hard to believe where I was two months ago and how much things can change in that length of time. At least I keep moving forward and feel sorry for those who aren't and feel they are stuck in one place with a lot of frustration. 
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on February 24, 2007, 02:22:41 PM
Hi Becky,

In your post you finally sound calm and ready for all of this to get done and over with. I am glad you met everyone and feel comfortable. Don't worry about making the beds, you are just going to crawl back into them anyway HA HA

I am sure you will have all the help you need.

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: caren on February 24, 2007, 02:38:01 PM
Glad that you got that done and now have peace of mind that makes all of us feel better as well too knowing that we dont have to pack up the chicken bus and make sure of that for you
luckily it wont be hot for you to wear the back brace
hugs to you all
Caren
Title: Re: UPDATE ON MY NIGHTMARE
Post by: DeborahinNC on February 24, 2007, 03:03:14 PM
Hi,

Becky I'm so glad that this is moving ahead.  I agree with Peggy.  You sound calm, sure and ready to have this done.  The brace will probably be hard but I'll bet those two months will fly by.  After all the waiting you have done this is really no time at all.  You know you will be in my thoughts on Wednesday as you have been throughout this. I'll catch you on IM this weekend. 

I'm not a firm believer in fate but from the sounds of it someone was watching over you when you had a sudden change in surgeons.  Be strong and know that many frends here will be holding you tightly throughout the healing process.

Be well

Deborah
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on February 24, 2007, 07:51:20 PM
Thanks so much Deb, I see you and Peggy are both online and so will try and get your attention.
Title: Re: UPDATE ON MY NIGHTMARE
Post by: lilly_kc on February 24, 2007, 08:36:18 PM
Becky you sound really really ready for this, and so does your team of helpers. Aren't we blessed to live in this time of medical knowledge, almost miracles really. The brace will truly be a pain, but two months, compared to what you've been through......

I have done all pre-op stuff too, all tests came out well, off coumadin and on lovinox for few days, then the time is here for us. Whew!

You are in my prayers - we'll talk about this in the past tense soon. Hugs..... Kathi
Title: Re: UPDATE ON MY NIGHTMARE
Post by: L. Thomas.net on February 24, 2007, 08:38:14 PM
Who on UPDATE ON MY NIGHTMARE  is also on HENHOUSE UNITE?
Title: Re: UPDATE ON MY NIGHTMARE
Post by: lilly_kc on February 24, 2007, 08:42:05 PM
I am LouAnn - Kathi from IL (other counselor)
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on February 25, 2007, 12:55:05 PM
Hi Everyone, I can't thank you enough for your support and friendship. How can I go wrong when I have such great support from family and friends.

Next week will be busy as last. We are going to make the trip the night before as 72 miles is a long ways to travel when you have to be at the hospital by 6:00.  I will be so stressed out by the time I get there and tired. I might better get a good nights sleep if that is possible the night before surgery.  I'm not looking forward to the long rehabilitation but am looking forward to getting better each day and not worse as I am now. I have great confidence inthese doctors and everyone in this group has been so great. Even the snooty secretary has come around and she was so much nicer then the first time I met her.  Who knows maybe I'm seeing things differently too.  It will also be great knowing my husband is across the street from me. I think it makes him feel better too.

I'm also interested in hearing how all of you are doing and so just because it is my thread don't be afraid to share that.  Becky

Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on February 25, 2007, 02:49:20 PM
Hi Becky,

I'm sure you feel better knowing hubby will be right across the street and I think it's a great idea that you go up the night before. I am so happy that you are calm and ready to get on with the rest of your life. You are in my thoughts and prayers.

Louann, I am on HH too.

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: L. Thomas.net on February 25, 2007, 03:36:41 PM
I'll be checking in and giving you all the support I can.  I've said it before and I'll say it again.  Nobody really understands Knees but knee people.  They try but they just don't get it. ::)

My post op is in my signature.  It is really long because I have up-dated it since 12-18-06.  I hope it will help.

I also had to go about 90 miles for my surgery.  We went the night before and had sort of a celebration, you know one if thoes chocolate  :) and Wendy's frosty nights.  ;D ;D ;D

Title: Re: UPDATE ON MY NIGHTMARE
Post by: plantgeek58 on February 25, 2007, 04:22:55 PM
Hi Becky,
I haven't posted much on your thread, but I've been reading along and will keep you in my thoughts and prayers, too. This place is wonderful for all the support and friendship you find.

Hi Louann,
I'm one of the hens, too. Cluck, cluck!

Terre
Title: Re: UPDATE ON MY NIGHTMARE
Post by: caren on February 25, 2007, 05:44:48 PM
I am in the HH too
 8)
hugs
Caren
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on February 25, 2007, 08:43:23 PM
Hi Everyone, L.Thomas we celebrated last Thursday and Friday when I had all the post op appointments. We took some friends along, stayed in a Motel, went out to dinner and then went back to our room and played cards and snacked. It was lots of fun. It made the time go faster and took a lot of stress away. Our friends even went to all the appointments with us and were very supportive.
When I got my back brace fitted they told me I had a very good attitude about alll this as I was joking and laughing.They said few people come in there laughing. I told them I have to laugh now as when I have to wear that brace I'll be lucky to be breathing.
He said the brace will be my best friend as it will help the pain a  lot. It should as I can't move. Imagine not being able to bend over for months.
Title: Re: UPDATE ON MY NIGHTMARE
Post by: knee deep in Goo on February 25, 2007, 09:17:45 PM
Soon you will be on your way to healing and all the past events will seem a distant memory.
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on February 25, 2007, 11:05:37 PM
Just want to let you know I'm sitting here at my computer with the backbrace on. HOLY COW!! I feel like a tin soldier. I'm trying to get an idea how to get around with this contraption on.  I guess God knew what he was doing when he made us bend at the waist.  Hey the good news is I am sitting at my computer, straight and tall but never-the-less I am here.  Had to try that out first.  I'm going to have to figure out a different way to dress as some things are very challenging. HA!!
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on February 25, 2007, 11:07:42 PM
Soon you will be on your way to healing and all the past events will seem a distant memory.
Boy Goo, I sure hope so. For years my knee was my life and now it's my back. Man there has got to be more to life then body parts.
Title: Re: UPDATE ON MY NIGHTMARE
Post by: caren on February 26, 2007, 10:57:17 AM
Becky the mental picture of you sitting there makes me smile and some how
the tin man from wizard of oz comes to mind
hope that that brace is not giving you to many fits hang it there
hope all is well
hugs to all
Caren
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on February 26, 2007, 12:03:50 PM
Thanks caren, I wore the brace for about an hour last night and then I decided to go sit on the bed and watch some TV. I got so mad as I couldn't sit up with the darn thing on. I yelled at my husband to come get this darn thing off me.  I can't do that after surgery and it bothers me. I can't even get in and out of it by myself.  Now I know why the tin man in the Wizzard of Oz stood for so long. I just hope I don't rust up. Should I keep a can of oil handy.  And if I lay down I can't get back up.  I was even told I have to shower in it, what's the point of that, the only thing that will get washed is my head, arms and legs.

Any suggestions I would appreciate it. Thank of yourself not being able to bend at the waist and only your arms and legs are functional and unless you sit straight up (on the edge of a chair)  or lay down the darn thing cuts off your oxygen and rides under your arm pits and under your chin. I am sure glad I can laugh with you guys. Becky
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on February 26, 2007, 02:11:44 PM
Becky,

How can you shower in it? can it get wet? what is it made of? Yes, lots of questions but getting it wet just makes me think you'll be sitting there for hours waiting for it to dry?? I am sure you will get used to it soon and just think once you are thru with it you can have a party and burn the damn thing.

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: Nettan on February 26, 2007, 03:02:46 PM
Becky, why not try to see someone who has been there and done this or talk with a phys before to get ideas how to move around ?
I live my daily life with brace on left knee and Immo on right knee and in wheeler due to spinal injury. Before my righty messed up I managed pretty good, but with 2 bad knees and a back not working I had to find new ways to move around.
I did find out a lot by myself and also did realise that I had to take this slow step by step and that worked. Maybe taking someone home to look around to see if you need any changes would be good.
When I had my spinal injury 6 years ago, I couldn't move myself in any direction in my bed and the pain I had was so bad that I had to change from laying on side to stomach every 5 minutes. I was like that for almost a month. So I know how you feel.

NETTAN  8)
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on February 26, 2007, 04:13:57 PM
Thanks Nattan and Peggy,. First of all Peggy to answer your question about showering in it. It is all plastic accept for the velcro. If I want to shower I have to  shower in it as if I was to fall forward I could snap my back.  It is supposed to dry very quickly but what is the point of showering in it when the only thing that will get wet is my arms, legs and head. Personally I think it would be just as easy to sit at the sink and sponge bathe and have someone wash my hair. I experiimented at the sink with it and by standing back aways I can keep my back straight and get my head over the sink but I doubt if I could wash it myself. As far as burning it I think I will either donate it or put it in the recycle bin. We don't burn plastic. This darn thing cost $1300 and in some ways it will be hard to dispose of it. In fact I would probably be smarter keeping it like I kept all my medical equipment  from 15 years ago when I had my hip replacement, who knows if I need spinal surgery in the future I'll be all set, although I must maintain the same weight.  For instance when I had to have the highrise tolilet seat I couldn't imagine then I would ever need it again and thought about giving it away and have used it many times since.

A friend of mine gave me an idea today. We have three recliners in our family room but it is in the basement down spiral staircase and that is a no no. I think I'll have my husband bring one upstairs to the living room. This was suggested as a way to sit myself up and get myself out of the chair and I could even sleep in it if it becomes necessary. I'll only be allowed to sleep on my back as I cannot move to twist and turn over. That ought to be fun with ioth incisions in my back and stomach.

Nattan I'm so sorry to hear about your situation, does using a recliner help you.  I'm sure they will show me all these things when I'm in the hospital and I'm worrying needlessly but that is what I do best.  Worrying is one thing we can do that doesn't hurt.

What I'm dreading is the first time I get in the car leaving the hospital and have to make that long trip home and then another 3 hours round trip to go back for follow-uo 2 weeks later. What will lifves challenges dish out for us next. Becky
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on February 26, 2007, 04:48:42 PM
Becky,

Well too bad you can't have a burn party!! I know what you mean about keeping the medical equipment. I was going to give all of mine away and the visiting nurse told me that insurance won't pay for another if I happened to need any of it within the next 5 years. So down the cellar when I'm done to collect dust.

Can you get a tub seat? I have an extended one, a part hangs over the tub and the rest of the seat is inside, that way, if you can sit on that with a handheld shower head you can bathe a little easier???  I wsn;t allowed to stand for so long that it was a lifesaver.

Another thing, do you have a car that you possibly lay down in, like a mini van? Does anyone have one that you could use for that long trip? The mini vans seats can come out, you could get one of those foam mattresses and you could probably get a seat belt around you too. Just an idea.

Anybody else have any suggestions to make Becky more comfy out there?

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on February 26, 2007, 09:44:27 PM
I was told Peggy that a social worker will come talk to me before I am discharged and see what medical equipment I need. I'm going to ask for a tub seat and also see if I can get one of those walkers with a seat and basket on it. That would be great for manuvering around the house, carry my phone, etc.  If my insurance won't cover it I am going to buy one.

I'm going to talk to my husband tonight about bringing a recliner up from the basement (family room) and putting it in the living room. I have a large living room and so there is plenty of room in it. I can even sleep in it if I have to. I have two TV's upstairs in the bedrooms and I can always sit a kitchen chair in there and watch TV. I prefer to lay down watching TV but may not have a choice.  I have a Portable DVD player also and could use that in the living room and watc movies on it if I wish to recline more. I'm sure everything will work out I'm not the first to go through this. Becky
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on February 26, 2007, 09:51:51 PM
Becky,

I am sure all will work out too. Your doc needs to write the presptions for the medical equipment though, so talk to him too. You are leaving tomorrow right? Well, you will be in my thoughts and prayers. Please post as soon as you can so we know how you are doing and we'll help keep you company while you recouperate. God Bless:)

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on February 27, 2007, 12:19:05 AM
You might hear sooner as Deborah plans to call my husband Thursday and ask him. She will give you an update.  I'm sure the first thing I'l want to do when I get home is check in with all my cyber friends. I know I can sit in my computer chair with the brace, that is the first thing I tested. Becky
Title: Re: UPDATE ON MY NIGHTMARE
Post by: L. Thomas.net on February 27, 2007, 04:50:23 AM
One if the best "gifts" I gave myself was a laptop and I put in a wireless modum.  I got them at WM and got the cheapest I could find.  Go anywhere any time in the house and be on.  I find myself just sitting in front of the TV and when those daed times are there I just surf away.  My hospital had wireless internet in all the rooms.
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on February 27, 2007, 08:30:07 AM
L. Thomas. I don't think the computer will be my problem as I can sit in a chair and I'm supposed to be moving around and not just laying around waiting for my body to heal. Movement is the goal to getting better so it is best if I have to go to different activites and not have them all in one place. Actually the computer is the least of my worries, I'm more worried about sleeping, going to the bathroom, getting dressed, etc. I do have a portable DVD player that can be put by the recliner we are putting in the living room and i can sit there and watch movies. 

I'm sure Ill figure everything out. When we have to we do don't we.  I remember even the knee was a challenge but at least I could bend.  Becky
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on February 27, 2007, 08:05:24 PM
Okay I'll be out of here in and hour, I was going to say good by but peggy told me just to say I'll see you next week. HA!!Sorry Peggy couldn't resisit.
I just want you to know I'm at peace with all this which is hard to beleive considering how my thread started HUH!!  I know the support I've had from all you, my family and friends is what has kept me going and made the time go faster. I beleie my surgeons are excellent and their hands will be guided by a higher power. Everyone should be so lucky. I have a wonderful supportive husband also who can't do enough for me, he spoils me rotten.
Well, like Peggy says I'll see you all next week. Becky
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on February 27, 2007, 08:07:44 PM
We will catch up with you next week. Good Luck and God Bless you!

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: DeborahinNC on February 27, 2007, 11:45:45 PM
Hi All,

I know we will be wishing Becky all the best on Wednesday.  She gave me her number and I'll call her husband, probably on Thursday to see how things went.  He will be tired and busy with making family phone calls on Wednesday.  Becky has told him I was going to call and she said he is shocked at the response of her friends here.  I think like many they don't understand what a bond we really make with each other.

As soon as I have info I will post.  She also has asked that we don't let this thread die and I promised that we would keep it going and that she would have a lot of reading to do when she got home.  That is in fact her homework.  She did say sitting at the computer will not be impossible, even with the brace she described.

I'm also going to put my IM address on my profile so if anyone here wants to get me on IM please feel free. 

So Becky - all the best tomorrow.  There will be many hugs coming your way.

Be well.
Deborah
Title: Re: UPDATE ON MY NIGHTMARE
Post by: L. Thomas.net on February 28, 2007, 03:26:38 AM
&&   :-*  &&   :-*  & &  :-*  &&   :-*   &&    :-*   & &   :-*

& IS A HUG
Title: Re: UPDATE ON MY NIGHTMARE
Post by: caren on February 28, 2007, 11:36:06 AM
Thanks Deborah for being the contact person for Becky that is so great that we dont have to wait for
her to get home
We wont let this thread die that is not a worry at all and you are right they dotn understand the bond that we all do have here  ;D  8)
Will chck back later for an update
Give Becky my best when you talk to her husband and tell her we are all praying for her
Hugs
Caren
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on February 28, 2007, 03:50:54 PM
Hi All,

Thinking of Becky right now, hope all is going well. Deb, what time was the surgery, I'm sure she said, just can't remember. I'll look for your Im and send you mine.

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: plantgeek58 on February 28, 2007, 07:22:57 PM
Hi Peggy,
add my prayers and good wishes to everyone else's. This is supposed to be a very long procedure, isn't it?
Terre
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on February 28, 2007, 07:43:14 PM
Hi Terre,

Yes it is, they are doing back surgery but they have to make incisions in both the back and stomach. Just want to know how she is doing.

Peggy
Title: Re: UPDATE ON MY NIGHTMARE
Post by: DeborahinNC on March 01, 2007, 12:37:53 PM
Hi all,

Will call Becky's husband tonight for word.  She asked me to wait until Thursday as he had many family phone calls to make.  Will post as soon as I have news.

I hope everyone has a good day.

Deborah
Title: Re: UPDATE ON MY NIGHTMARE
Post by: DeborahinNC on March 02, 2007, 12:39:18 AM
Hi Everyone,

OK I have good news but not much of it - lost connection with Becky's husband and he could not hear me when I called back.

Here is what I got and its good.

The surgery was shorter than expected - they were able to accomplish everything through the abdominal surgery and did not have to also go through her back.  He said she was doing well and then we lost the connection.

I'll try him again later tonight if he doesn't call me back - I left my number for him on the answering machine the first call.

I have Becky's address which she said I could share so I'm going to put my e-mail address on my profile - just e-mail and let me know if you want her address and I'll send it to you.

So a big hug to you Becky and hopefully this will make your recovery even easier than expected. 

OK Don just called me back so keep reading.  He had to come home for work so will go back tomorrow night.  He spoke with Becky around 4pm and she was groggy (no kidding) but had been up for therapy already and went up and down some stairs.  She told him her knee felt better already!!! 

YOU GO GIRL

She may be able to come home early next week - as Don said, need to get the internal stuff working - we know what that means.

Be well all.  Deborah


Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on March 02, 2007, 01:46:03 PM
Glad to hear that it wasn't as bad as they first said and they could get it done without going in the back too. WOW!! Knee feels better already. What a great thing for Becky.

Deborah, I'll email you for her address.

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: plantgeek58 on March 02, 2007, 03:09:19 PM
Great news, Deborah, and thanks for getting it to us so quickly.

Becky, if you're reading this, hope you continue to have a speedy recovery.

So, ladies, what's the topic of discussion for today? I personally don't have much news to report. It's sleeting and raining here, so I opted not to go in to work. It'll be a quiet day for me, starting my next lab report and working on a listing of new plants coming into my dept this year. What's everyone else up to?

Terre
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on March 02, 2007, 03:16:21 PM
Hi Terre.

Same weather here. Guess I will watch tv and I have to hem 2 pairs of PJ bottoms. wish I wasn't so short:) At least we are not getting snow. We are under flood watches here, but I don't live in a area that will happen to.

Have a great day!

Peggy
Title: Re: UPDATE ON MY NIGHTMARE
Post by: DeborahinNC on March 02, 2007, 05:31:11 PM
Hi Ladies,

I sent both of you Becky's address.  Let me know if you don't get it.  We obviously had a lot of rain last night but it didn't both me.  Creeks and roads were really flooded and I live on a gravel road that now is very rutted.  No snow and warm here today (sorry). 

It really sounds like Becky did well.  Her husband sounded tired and I'm sure he was after having to drive back home on Wednesday and work yesterday and today.  I probably won't call him again unless we don't hear from Becky by mid next week.  If she isn't back on I'll call and see whats up and make sure she is doing ok.

I've got to get some school stuff done today and this being of leave from work is not working so well.  I have a ton to do for them - I'm just an idiot giving them free time but I can't seem to stop.  Its hard when I supervise 6 people and feel the need to keep my finger on what is going on. 

Hope you have a great day.

Deborah
Title: Re: UPDATE ON MY NIGHTMARE
Post by: DeborahinNC on March 04, 2007, 03:24:10 PM
Hi,

Just wanted to see how everyone was doing.  Have not heard anything new from Becky but will check with her husband if she is has not posted or IM'd by Tuesday or Wednesday.

I'm still in my funk and my dad is still in the hospital.  I'll see my OS on Thursday and I'm sure I'll get the usual no answer.  But again I'm taking my rope and he better be careful.  I think my knee hurts more than it should and to be very honest it feels like a tear again!!! It better not be.  I'm almost to the point where they can just take it and give me a peg.

Oh well this too shall pass - just wanted to check in didn't mean to get started on the whining thing again.

Be well all,
Deborah
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on March 04, 2007, 04:20:14 PM
Deborah,

I got the address, thanks. Later my husband is taking me to the store and I'll pick up a get well card. I'm sorry your Dad isn't doing any better. Best wishes for him. Why do you think it's a tear? How would you have done that, I don't recall you reinjuring yourself. Only that you overdid it swimming.

I hope you get out of that funk soon.


HI BECKY!! Hope you are getting stronger every day!



Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on March 05, 2007, 10:42:12 PM
Hi Everyone,  I just finished reading what everyone wrote and I now have tears in my eyes. I do find it hard to type in this darn brace but I have to tell you that I'm sure glad I have it.  The pain is worse then anything anticipipateed and it sure does help. My husband got a bit worrried when the doctor came out of the OR after only three hours for a surgery he had scheduled 6 for, but then he said he startred walking toward him with a big smile on his face and he knew it was good news.
Yes! It is great that they were able to get the job done by just going in through my abdomen, although the incison iis pretty long.
The original pain I had in my right leg where I had all the knee surgeries is gone but the hip, leg and knee on the left side is jkillingme and I can hardly stand it, but the doctor explained that is becaue they had to stretch things out. 

I'll write more son, I'm on all kinds of medications and they are amking me groggy.
Deb, maybe I'll give you a call tomorrow.
Title: Re: UPDATE ON MY NIGHTMARE
Post by: DeborahinNC on March 05, 2007, 10:54:24 PM
Hi Becky,

WELCOME HOME!!!!  I was so glad when Don said that it was better than expected.  I know you are very sore right now but the end is in sight and hopefully the worst of the pain will pass quickly. 

Be good to yourself and rest. 

Be well.

Deborah
Title: Re: UPDATE ON MY NIGHTMARE
Post by: lilly_kc on March 06, 2007, 02:03:12 AM
Becky - welcome home!!!!! We missed you and it is awesome that the surgery went so well. Take care, pace yourself! Kathi
Title: Re: UPDATE ON MY NIGHTMARE
Post by: plantgeek58 on March 06, 2007, 02:20:31 AM
Hi Becky,
Glad to hear that you're doing alright. You sure do have the folks upstairs looking out for you. Take it easy, and hope the pain goes down soon.
Terre
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on March 06, 2007, 02:11:22 PM
Becky,

WELCOME HOME!!! Glad to hear that the surgery went well and that they could straighten things out without going through both the stomach and back. We know that you are uncomfortable, but that will pass and you just need to keep your mind on recouping and traveling this summer.

Rest, and let others help you out for now.

Take care,


Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on March 06, 2007, 10:36:13 PM
HI Everyone, I am not able to get around on my own so I wait until my husband gets home at night to stir me in the direction of my computer.

I did a  few laps around kitchen and back to the living room but boy what an efftort.  I'm supposed to not sit for more then 20 minutes at a time but that is not easy as someone has not been able to be with me 24/7, but at least today I could do it. Yesterday they were pushing me around the upstairs in my desk chair with wheels as I couldn't even stand up it hurt so bad.  What a sight that was.

I'm really quite comfy though. I have a nice lounge chair in the living room, a couple tables beside me to put anything I need and I got a new portable DVD player for Christmas and I have a basket of movies by my chair.  MY daughter got the second season  (28 shows) of the Waltons she loaned me and I have been enjoying them also. I have a heating pad behind my  back and a lap top electric blanket over me and I sleep there all night. 

Do you remember me telling you about all the narcotics that I became allergic to. I'm also allergic to a coupe antiobiotics and the gave me an antibiotic through an IV and as I was being wheeled into the emergency room and I broke out in front of their eyes. Anyway for pain meds they gave me a 1000 mg tablets of Tylenol and I can take two every 6 hours, Flexeril for the muscle cramps and spasms and steroids for the inflammation. Overall the pain is kept under control as much as possible. Maye it was because it is not a narcotic but they were very generous with the pain pills.   

I so appreciate all the support I have been getting here and so look forward to the end of the day checking out what my friends have written.

I keep missing you online Peggy. I see you on but try to read the thread before I get sidetracked and then you are gone. I'll catch you soon. Becky

You should see both my arms from the needles. I've never seen so much brusing. They apparently had trouble getting the IV's in me and I have so many little holes when they poked and both arms are black and blue from the top of my hand all the way inside my arm up to my elbow. 
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on March 06, 2007, 10:58:51 PM
Becky,

I'm as fast as the Energizer Bunny HA HA!! Poking people is my specialty, I should have come up and poked you a few times. Did phlebotomy for 30 years and started many iv's too. Glad to hear that the pain is under control. I should be getting discharged from pt next week, only have to report in once a week to make sure the rom is still around 110. I still can't walk with the crutch or cane unassisted but not going to worry about that until after my surgery sometime next month. I don't know if your insurance covers it but there are organizations where someone could come to your house and help you out a little, make lunch, vac etc... Just incase you need it, and they could be company and help you get around while hubby is at work. Just thought I'd tell you that.


Hope you have a good evening, will talk to you soon.

BTW, last week after we got done with the IM I sat here said a prayer for you and yes cried. See what you started!!:)



Peggy
Title: Re: UPDATE ON MY NIGHTMARE
Post by: DeborahinNC on March 07, 2007, 03:32:00 AM
Hi all,

Becky I missed you on IM the other day too.  We'll catch up soon there.  I'm so glad you are doing so well.  I like the visual of the office chair - any pictures????

I love the Walton's, I can cry at the drop of the hat on some of those.  Good to hear that your pain level is doing well.  I bet the doctors were surprised when you broke out into hives!!! 

I've got to get back to finishing a lecture for a class for Thursday so I'm going to run.  I'll be around tomorrow and over the weekend so will catch you sometime when you're on line.

For now - again welcome home and I'm so glad this went well.  Oh, how is the knee pain or did that go?

Take care,
Deborah
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on March 08, 2007, 11:55:50 PM
Hi Everyone, I wrote last night but somehow I hit the wrong button and lost it all and didn't have the energy to do it again.
I feel pretty good when sitting but when I walk I am in so much pain. I was told this would be very painful so I'm not surprised although to give you and idea how much pain I'm in, I haven't even had any desire to sit at the computer. It is a struggle to sit straight up very long. I feel preasure on my spine when I do, but have to come here at least once a day and say HI to my firiends and to let you know that I still think about you all the time. Maybe after I get through my pain and suffering we can chose another having a difficult time and make them our project and do for them what you have done for me.  Just know you are all in my thoughts andI know none of you would be here on this board if you were not facing difficult times also and that's what makes it so special that despite our own suffereings we can all take the time to help each other. When able you bet I'm going to devote my tuime to reading more posts and being there for thise who ask for our help.  That's my New Years resolution although a little late. Becky
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on March 09, 2007, 12:15:33 AM
Hi Becky,

Sorry to hear that you are in alot of pain. Did they give you any idea how long this will last? I think your idea to help another in a particularly bad place at the moment is great. Count me in!! I blew off therapy tonight. I have a dental appointment in the morning but had to go last night as I have alot of pain where they shaved down the 1 tooth and capped it ( temporary ) and to find out that this tooth had been crooked and when it was shaved down the nerve was a little exposed, to make a long story short...root canal before they can put the permanents in tomorrow. I hate dental work and this will finally be over tomorrow. I started in October and finally!!!!!! So since I am in minimal pain, I just thought I'd stay home and I am glad I did.

Anyhow, I hope the pain goes away soon and that you are resting and getting enough sleep.

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: L. Thomas.net on March 09, 2007, 01:41:13 AM
Hi Everyone, I wrote last night but somehow I hit the wrong button and lost it all and didn't have the energy to do it again.
 Becky

I have started putting my message in word on the computer and then cut and paste to message box.  I haven't lost a post as long as I do that.  I wonder which button I need to stay away from?  It gets mine too if I don't cut and paste.
Title: Re: UPDATE ON MY NIGHTMARE
Post by: plantgeek58 on March 10, 2007, 12:43:17 AM
Hi guys,
Helping other people is the best part of this website. I was scared to death before going in for my first surgery three years ago, and I sure wish I had known about this place then. Makes me feel great to be able to ease someone else's mind about their knee issues.

My two little black kittens decided to investigate the recently-emptied wastebasket in my bedroom this morning. First Smokey hopped in, then Inky. It was so funny to see their little furry faces peering up at me from inside the basket. One problem we have with them is that they're so hard to see in dark areas. Inky got himself locked in the utility closet tonight, because he popped in there when my daughter opened the door to get some paper towels, and she never saw him. No one knew he was in there until I heard him mewing and saw Smokey up on his hind legs against the door, trying to peek in through the keyhole. Guess he won't do that again!

I haven't seen The Waltons in ages, but I used to love that show, too. It almost made me want to go back in time and live in that era. Their lives seemed so simple and satisfying. Of course, I know it had to have been a lot harder than they made it look, and it sure wouldn't have been good to have knee problems back then!

Terre
Title: Re: UPDATE ON MY NIGHTMARE
Post by: L. Thomas.net on March 10, 2007, 01:24:45 AM
My grandma hated the Waltons.  Whenever it came on she said “CHANGE THAT CHANNEL!  That isn’t anything like what it was. I hate that show, change it NOW!”

I got a kick out of that so whenever I knew that it was on I would flip over just to get her going. ;D  After I turned off the TV  we would talk forever about what it was like for her growing up.. I wish I had written it down or taped it.  You just don’t think of things like that until you can’t talk to them any more. :'(
Title: Re: UPDATE ON MY NIGHTMARE
Post by: DeborahinNC on March 10, 2007, 02:55:36 AM
Hi everyone,

Terre I love your kitties!!!  I'm in kitty envy again - ah well.  I will vicariously enjoy them through you.

Becky, good to talk to you on IM tonight.  I'll call you next week during the day so we can yak - that way you can be in a comfortable position since it is hard for you to spend to much time on the computer.  I hope your pain is better.  

I'm going to post the same info below in another thread too so sorry for the repeat for those of you on multiple threads.

My dad is home from the hospital.  I thought he was going to go to a nursing home to get PT but the social worker at the hospital got a visiting nurse and PT three times a week at home.  So my mom said she would try him at home.  He is very stubborn and the dementia makes him very hard to work with.  Hopefully he will following instructions.  The problem is there is no association with doing this will mean he will get better.  But he is tired, still not feeling great but at least home.

Ok for me, I saw my OS yesterday.  I was his last patient of the day and I think I learned the secret to a good visit - I set my next appointment late in the afternoon too.  Anyway we had a good visit from the standpoint that he had some ideas and we talked a long time.  I told him that I was unhappy with the amount of pain and that it felt like I was grinding two pieces of raw meat in the joint - now mind you I have no idea what grinding raw meat would feel like but...   He said that with the arthritis and the medial side in the shape it was in it was just going to take more of what I was doing.  He liked the swimming and said that I needed to continue with PT.  Then I said there was a point of a lot of pain that you could touch and I wll yelp.  So I pointed it out - of course he had to push on it multiple times.  He then got a big smile on his face and said he thought he could fix that part of my pain.  He came back with a paper and said I have Pes Anserine Bursitis.  I do have to say I felt really old when he said Bursitis, that is sometime my mom should have not me.  Anyway he said he could inject it with a mix of anti-inflammatory and steroid and he thinks it will feel better.  The only problem I have with anti-inflammatory meds is they cause me to have horrible leg cramps.  What is wierd is that the worst of the cramps is always in my left ankle.  Not anywhere near where the injection is given but its consistent with oral meds too.  We did the injection yesterday and of course now it can take 5-9 days before I get any effect.  Right now its worse than what it was but that has happened before with injecitons so I'm not too worried.  He did not think I had another tear but he did say if the joing pain isn't better in another few weeks he may rethink that part.  The only bad news was about me going back to work.  I wanted to go back on April 6th (after my March date fell through).  He said we would shoot for April 15th but it may be May.  Then he asked if I had thought about an alternative if I could not go back.  Of course I have this has been two years of dealing with this stupid knee.  He said he thinks I should be able to go back but I then asked him to please tell me if he thought that I had to seriously look for another job.  I absolutely love what I do but I am not willing to lose the ability to walk or do what I can do now just to have a few more years as a medic.  He said we would talk again when I saw him in... you guessed it four weeks.  

I'm waiting for the knee injection to hit to see if that will help the pinpoint pain and I'll keep doing what I'm doing.  My plan is to go back to what I love to do but be assured I'll be ok - very sad - but ok if I can not.

I'll keep you posted on how its doing.

Be well everyone - talk to you tomorrow.

Deborah

Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on March 10, 2007, 02:08:33 PM
Hi everyone,

Terre I love your kitties!!!  I'm in kitty envy again - ah well.  I will vicariously enjoy them through you.

Becky, good to talk to you on IM tonight.  I'll call you next week during the day so we can yak - that way you can be in a comfortable position since it is hard for you to spend to much time on the computer.  I hope your pain is better.  

I'm going to post the same info below in another thread too so sorry for the repeat for those of you on multiple threads.

My dad is home from the hospital.  I thought he was going to go to a nursing home to get PT but the social worker at the hospital got a visiting nurse and PT three times a week at home.  So my mom said she would try him at home.  He is very stubborn and the dementia makes him very hard to work with.  Hopefully he will following instructions.  The problem is there is no association with doing this will mean he will get better.  But he is tired, still not feeling great but at least home.

Ok for me, I saw my OS yesterday.  I was his last patient of the day and I think I learned the secret to a good visit - I set my next appointment late in the afternoon too.  Anyway we had a good visit from the standpoint that he had some ideas and we talked a long time.  I told him that I was unhappy with the amount of pain and that it felt like I was grinding two pieces of raw meat in the joint - now mind you I have no idea what grinding raw meat would feel like but...   He said that with the arthritis and the medial side in the shape it was in it was just going to take more of what I was doing.  He liked the swimming and said that I needed to continue with PT.  Then I said there was a point of a lot of pain that you could touch and I wll yelp.  So I pointed it out - of course he had to push on it multiple times.  He then got a big smile on his face and said he thought he could fix that part of my pain.  He came back with a paper and said I have Pes Anserine Bursitis.  I do have to say I felt really old when he said Bursitis, that is sometime my mom should have not me.  Anyway he said he could inject it with a mix of anti-inflammatory and steroid and he thinks it will feel better.  The only problem I have with anti-inflammatory meds is they cause me to have horrible leg cramps.  What is wierd is that the worst of the cramps is always in my left ankle.  Not anywhere near where the injection is given but its consistent with oral meds too.  We did the injection yesterday and of course now it can take 5-9 days before I get any effect.  Right now its worse than what it was but that has happened before with injecitons so I'm not too worried.  He did not think I had another tear but he did say if the joing pain isn't better in another few weeks he may rethink that part.  The only bad news was about me going back to work.  I wanted to go back on April 6th (after my March date fell through).  He said we would shoot for April 15th but it may be May.  Then he asked if I had thought about an alternative if I could not go back.  Of course I have this has been two years of dealing with this stupid knee.  He said he thinks I should be able to go back but I then asked him to please tell me if he thought that I had to seriously look for another job.  I absolutely love what I do but I am not willing to lose the ability to walk or do what I can do now just to have a few more years as a medic.  He said we would talk again when I saw him in... you guessed it four weeks.  

I'm waiting for the knee injection to hit to see if that will help the pinpoint pain and I'll keep doing what I'm doing.  My plan is to go back to what I love to do but be assured I'll be ok - very sad - but ok if I can not.

I'll keep you posted on how its doing.

Be well everyone - talk to you tomorrow.

Deborah


Hey Deb, you said something in your post that may have helped me. You said anti-inflammatories give you leg cramps. I've been haivng terrible left leg pain especially in the knee (opposite knee that bothered me before the operation.)and I took the last steroid pill this morning so we'll see what happens. Monday I go back to the doctors and if I still have it then hopefully he tries something else. He told me it would go awy that it is because they stretched the area to get the wedges in so time MAYBE  IT WILL GO AWAY. Looking forward to you call. Becky
Title: Re: UPDATE ON MY NIGHTMARE
Post by: DeborahinNC on March 13, 2007, 02:07:39 AM
Hi Becky,

Hope today wasn't to bad.  I know it was a long ride and probably not very comfortable.  So what did you learn?  How are you healing? 

I'll give you a call this week and really look forward to hearing a voice.

Take care and hopw today was good.

Deborah
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on March 13, 2007, 02:51:21 PM
Hi Becky,

Thinking about you. Sorry I missed you on IM having problems with the connection still and it is driving me NUTS!! Hope you are starting to feel better.

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on March 13, 2007, 11:05:39 PM
I went to the Doctor's yesterday as you know, but certainly didn't expect what happened. Remember how I was saying that my left leg hurts more then the right now and the pain just kept getting worse.

Get this guys. by the time I got there from the long ride I could hardly walk at all and they had to get me a wheelchair. The Doctor sent my for an x-ray and the results were shocking. It seems the bone they put the screws in made my spine weaker and so the disk collapsed and is laying flat on the disk below it. Because of this a nerve is again being pinched making walking unbearable.To make a long stroy short I am now diagnosed with a compresssed fracture and so guess what I have to have more surgery. This probably would not have happened if he done what he planned in tell first place instead of trying to take a short cut. This time he will be going in through the back and put the rods in which he didn't do the first time. I will still end up with an incsiion in my stomach and back.

It's really uncomfortable sitting or standing but I wanted to let you know what was going on. Looking forward to taliking with you Deb. You may not get my regular voice because ever since the surgery my mouth is so dry that my speech has becomes blurred. It is probab;y the pain meds.

Now I'm just waiting for a call from the doctor's office to schedule the surgery. I'll keep you posted.
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on March 13, 2007, 11:45:24 PM
Becky,

So sorry to hear the bad news. We were all hoping that this last one would be it!!! We will be rooting you through this too. Keep us posted and please try not to get too upset, I know easier said than done.

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: DeborahinNC on March 14, 2007, 12:09:15 AM
Hi Becky,

Ok can I say that this is ... well I can't really think of words.  Except I ditto what Peggy said.  We will be here for you through this.   I know you have a real family that is very good to you but you also have another family that cares too.

I decided not to call today, was afraid you would be tired after having to travel so far in and long in one day.  Guess you could have used the call.

Big hugs from me to you.  Hang tough - as you usually seem to do.

Deborah
Title: Re: UPDATE ON MY NIGHTMARE
Post by: caren on March 14, 2007, 10:24:46 AM
Becky I am so sorry that your surgery didnt owrk and now you are going thru this
like Deborah said hang in there we are all here for you
let us know if we can help
hugs to you
Caren
Title: Re: UPDATE ON MY NIGHTMARE
Post by: plantgeek58 on March 14, 2007, 02:21:58 PM
Ugh! Becky, this really s**ks! Thank goodness they did x-rays right away and caught it. Hope the next surgery will be soon, so you won't be in pain too long. I would imagine they'd want to get this taken care of ASAP.
Terre
Title: Re: UPDATE ON MY NIGHTMARE
Post by: knee deep in Goo on March 14, 2007, 02:51:51 PM
oh Gosh..  what terrible news.
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on March 14, 2007, 10:01:11 PM
Well guys it's back to the drawing board. My next surgery date is March 20. I have to make that long trip again tomorrow for the preop(sign papers, blood work etc.) It's going to be interesting to see how the doctor explains this one since he didn't do what he origianly told us in the first place. He said that the only way to fix my problem was to go through the back and stomach and it would have been great if it worked out that way but now I have to go through everything again so he didn't do me any favors.  This will be the 5th surery to corres this problem and three of them have been becasue the doctor changed his mind at the last minute. I be he reinforces me good now. Becky


Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on March 15, 2007, 03:40:00 PM
Becky,

My computer is driving me nuts!!! I posted, lost the post. Reposted, it asked for a subject then I put Lucky Grandma and it started a new thread. I hope noone answers it because it was a message to you. What a MESS!!!

Anyhow, I said that at least you don't have to wait too long, and that I will be thinking of you and keep you in my prayers.

I hope I don't have a problem getting this out there:)

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on March 15, 2007, 09:48:08 PM
Another long trip today for preop stuff before my surgery. I think I'm either getting good at this or is just so routine I'm walking through with my eyes shut. It doesn't do much good to get mad as it won't help solve the problem or get me there any faster. They went over the surgical procedure with me again and basically they never did any fusion the first time and so by putting screws and wedges in only weakened my spine and caused it to break. This time the OS will be going in through the back  and putting rods and screws in to stabilize the back. and fusing all three bones together. They will also be inserting an electric stimulation gadget that willl promote bone healing. I'm up to surgery #5 to fix this problem. 

Deb I got your message and I plan on being home all evening and the next few days before my surgery. You can call anytime. I will be having company after 2:00 tomorrow so that isn't a good time. I was at the OS's doing preop testing today when you called.

We were able to locate a wheelchair today so maybe I can get aroound better and spend more time at my computer. Can you imagine, before the surgery I was using a walker and now I'm in a wheellchair. Great progress don't ou think> Becky
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on March 17, 2007, 03:16:26 PM
HI Everyone, just wanted to pop in and say Hi.  We borrowed a wheelchair and so things are working out better. I can't help thinking that with every surgery I've had has made me worse then I was before. First I had a knee arthroscopy, with repair and debridement, the pain got worse, then I got a PKR, which was a bust and didn't work, then a TKR which I think would have been great if I hadn't had a back probklem too and now Spinal surgery and they didn't do it right and the bone broke. I just wish the doctors would keep with their first evaluation and do what they say they are going to do instead of changing their mind in surgery. I'm not sure this was even legal as I was not informed of this beforehand. I was prepared for the surgery to be done the way he said. You sign a conent form for surgery and this is not what I signed for. I''m still not giving up home, I'm confident that they won't rush it this time and do everything humanly possible to streghthen the spine so it won't break again.

To make a long story short this will make my 5th operation for the same problem. I went from walking with a limp, walking with a walking stick, walking with a cane. walking with a walker, and last but mot least I'm in a wheelchiar,especially with the fracture. 

Thanks for calling Deb, I enjoyed talking with you and will look forward to your call Monday. I'm elegible for Meals On Wheels and so I'll be getting that after the surgery. The man is coming for me to fill out the paper work Monday at 10:30 so call either early or afternoon. Becky
Title: Re: UPDATE ON MY NIGHTMARE
Post by: DeborahinNC on March 19, 2007, 02:18:34 AM
Hi Becky,

I'll try you after swimming tomorrow morning.  If we miss for some reason I will be thinking of you on Tuesday and looking forward to you getting home again.

So, wishing you the very best and this is it!!! No more after this right???  Really, you'll do great and here is to hoping you are home really soon.

Deborah
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on March 19, 2007, 10:10:34 PM
Thanks Deb for your call today. WOW!  I hope the weather is better tomorrow for the trip for my surgery. It is snowing like mad right now. Weatheman was wrong again.  I had a CT scan done to confirm that I have a compressun fracture and it is pinching on the nerves. They say I have Osteoporosis and I thought the Fosamax I've taken for years would prevent that. I'm really wondering now about it.  At least they have narrowed the problem down and they say it can be fixed.  I will probably be in the hospital the rest of the week and so will check in next week. In the meantime Deb will keep you posted. Becky
Title: Re: UPDATE ON MY NIGHTMARE
Post by: knee deep in Goo on March 19, 2007, 10:41:23 PM
Becky

Wishing you Lots of luck with your surgery.   
Title: Re: UPDATE ON MY NIGHTMARE
Post by: caren on March 20, 2007, 11:14:39 AM
Good luck to you
Thanks Deborah for keeping us updated
hugs to all
Caren
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on March 20, 2007, 04:05:37 PM
Hi Becky,

Thinking and praying for a successful surgery and complete and quick recovery.

Peggy
Title: Re: UPDATE ON MY NIGHTMARE
Post by: DeborahinNC on March 23, 2007, 01:35:59 AM
Hi Everyone,

Peggy thanks for the e-mail.  Time had almost gotten away from me tonight.  I called Becky's husband.  He said she is sore but doing well.  The report from the surgeon was that he had to manipulate a lot to get her back put back together but Becky did say the pain in her leg is gone.  Her husband was not sure when she would be released he thought this time they may hold her longer to be sure there are not problems.

So keep your good wishes coming - I know Becky will appreciate them.

Becky hope all continues to go well - look forward to you getting home.

Be well.

Deborah
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on March 23, 2007, 11:49:36 AM
Deborah,

Thanks for the update. Good idea to keep her for a few days longer, that drive is a killer on the body!!!

Becky,

Thinking about you, hoping this time was the "charm" and that you are up and running in no time at all.

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: plantgeek58 on March 24, 2007, 02:26:47 PM
Becky,
Hope this morning finds you in less pain and you'll be able to come home soon. Hugs.
Terre
Title: Re: UPDATE ON MY NIGHTMARE
Post by: DeborahinNC on March 26, 2007, 05:36:18 PM
Hi Everyone,

I just got a call from Becky.  She is home - just came home today.  Sore as can be, said it was much worse than the pain with the abdominal part of this surgery but good news --- her legs don't hurt!!  She said just the surgery area and her back in general.  She had much wire and rods placed so that is no big surprise.

She hopes to be able to get to the computer sometime this week but it will depend on how well she can sit in her wheelchair and when her husband is home to help her.  She is getting meals on wheels which is a big help and in-house PT.  Her next doctors apt. I think is in a week - I just hung up and already don't remember.

She just wanted to say hi to everyone and thank you all for your good wishes.

I'll let you know if I hear anything else.  I told her if she is not posting by later this week I would call her to check on her.

Bel well all.

Deborah
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on March 26, 2007, 07:49:21 PM
Hi Deborah,

Thanks for the update.

Hi Becky,

So good to hear that you are home. I am not surprised that you are sore, this will fade in time and will be a distant memory!! I am so happy to hear that your legs don''t hurt. Just wait until you are up and running and can really check them out. Talk to you soon, take care.

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on March 27, 2007, 08:06:33 PM
Hi Everone this will be short as I can hardly move to type. Deb pretty much filed you in. It was a rough trip home and getting settled back in but I'm doing better today then yesterday. The County nurse was here for a couple hours today.  I dread the trip back to the OS next Monday April 2nd but if they take the darn staples out it will be worth it. I have 21 staples and an 18 inch incision. I hope eveeryone is doing well and I'll try tp get on soon. The more you see me on the computer the better you know I'll be feeling. I don't feel like paying any bills now as I'm whipped but my friends are  come before and stupid bill. I
ll write again soon.  Becky
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on March 27, 2007, 08:59:18 PM
Hi Becky,

Glad you posted:) Hope you are feeling stronger every day! I'm sure they will remove the staples. Gee, I think you get the prize for the longest scar so far. Will chat later,

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: caren on March 27, 2007, 11:46:20 PM
glad you are home hope you are feeling better soon
hugs to you
Caren
Title: Re: UPDATE ON MY NIGHTMARE
Post by: knee deep in Goo on March 28, 2007, 08:10:54 AM
Glad to see your doing better now and a speedy recovery and getting stronger and stronger each day.
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on March 28, 2007, 11:28:00 PM
Hi Everone, i finally made it to the computer this evening. I have been so tired and sore today. I actually can't wait until my Drs. appointment next week and get these darn staples out because as you all know they are a pain wherever you have them. It feels like I'm trying to stretch a very wide ruber band. Nothing feels natural about this. I can't wait until the day comes that I can say "Hey guys. I feel great today"

Thanks Peggy for the card. I got it today
I see caren just signed into IM so I'm going to try and flag her down. Becky
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on March 29, 2007, 01:35:58 PM
Becky,

Hope the card made you smile:) The day will come when we read that you are feeling better. It's just a matter of time. I know that feeling with the staples, I had 18 of them in my arm a few years ago and they do feel funny. Have a good day,

Peggy
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on March 29, 2007, 02:20:40 PM
I can't believe it. I'm itching terribly from the staples mixed with pain but it is so strange. Last night it felt like bolts of electricity going through my body which I know from past experience is the nerves knitting back together, I just about jumped out of the chair when it happened. this morning as my daughter took my arms to help me out of bed I didn't even grunt.  I really believe the turning point is going to be when I get these staplew out. Becky
Title: Re: UPDATE ON MY NIGHTMARE
Post by: DeborahinNC on March 29, 2007, 04:02:50 PM
Hi all

Becky - won't be long and you'll get those staples out.  I'm glad you have been able to get to the computer for the past couple days.  You are really making progress.  Legs still good?  How is in-home PT going? 

Doing alright here - having a little career issue depression.  I'm going to go back to work when ever they let me but I am thinking it is time to look for something else to do.  I'm not 100% yet but started putting out feelers with folks to see what is out there and what I might want to do.  Part of it is just frustration with my boss not understanding I'm not getting paid every time he asks me to do something.  Some of it I don't mind - like a community outreach program for our non English speaking folks.  But some of it is regular stuff and he keeps calling.  I think all I really want is a "thank you" but so far that hasn't come.  He will be on vacation the first week of April but be assured that he and I will have sit-down after he gets back.  So, kind of down and hoping is hormones mostly otherwise I'm starting to get depressed again - YUK

Hope everyone else is doing well.  I have to get some homework done so better get to it.

Be well,

Deborah
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on March 29, 2007, 06:32:17 PM
Deborah,

I'm sure you posated what you are taking classes for but could you refresh my memory please.  Don't get down, everyone deserves at least a Thank you when they go the extra mile, but there are some people who take advantage and your boss sounds like one of them. Start saying no, see what he does. I would just like to work per diem when this is over. I really like being at home and doing stuff around here. But there are times when I need outside contact, so I think that per diem would be the perfect thing for me. There is a company that does blood work for big organizations and vacation coverage that is interested in me after I get up and running. Hormones, YUCK!! I was just telling my husband that I think the hot flashes have finally gone away. It was 80 degrees here the other day and I was still chilled. A woman can HOPE!!

Take care and Smile:)

Peggy

Hi Becky,

Hope you are feeling better today. Nice to hear that you are getting around a little easier.

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on March 29, 2007, 11:16:43 PM
It never rains but it poors. Today I thought I was having a better day when I was sitting watching soap tapes when all of a sudden my crown fell off on my front tooth. Needless to say it was a quick  trip the Dentist but what a chore to get dressed and everything else we take for granite. I think night is the worse as I seem to be sorer at night..

As far as home PT I'm a bit disappointmed as our County doesn't have a PT that goes out in the homes as of now so I'm just plugging along. If I'm not satisfied with my progress by the time my staples come out andI don't have to wear this brace anymore I'll talk to the Dr. about going back to water aerobics.  This makes me so disappointmeted as my insurance covers it and will all my surgeries this is the first time I've requested it.
Hang in there Deb and do what isi right for you. If it doesn't make you happy then it is not the right thing to do. Becky
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on March 30, 2007, 01:14:56 AM
Becky,

We need to get you some really good glue to hold you all together :)

Sorry to hear that you can't get pt out there. When I first got hurt, the pt was part of the visiting nurse group that came out. Do you at least have a nurse coming out to the house to check your incision etc...?
If you don't try calling the local hospital they should be able to direct you to an organization that can help and they may even have the visiting nurses there.

Peggy


Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on April 03, 2007, 12:38:33 AM
Hi Everyone, Had my first postop Dr.s appointment today and it didn't go quite as smoothly as I'd hoped. I've been so  sore and lots of itching that is not pleasant itching. I just thought I ws having an allergic reaction to the tape. As it turns out I have an infection in the wound that he wasn't too pleased with the way it looked. The Dr. put me back on antibiotics, had some blood work and x-rays taken. The x-rays look good and he is hoping it is just a superficial infection but I have to go back in a week and if it gets any worse I'm to let him know so I'm going to have to depend on others as I kinda can't see there. The 3 hour round trip was terrible and I don't think it helped in ittitating it and rubbing on it so next week I'm going to try to figure out a more comfortable way to ride if possible. Infections in surgical wounds are nothing to joke about and so lets cross our fingers that it is not a setback. I think my body has just gone through so much in a short time. I'm going to take it easy this week and not push it and so hope to get back on track. H did take the staples out and put the steri strips over all byt the part of the wouns infected. I hope you all understand if I don't feel like chatting online tonight but I wanted to at least muster up enough energy to report the latest Becky
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on April 03, 2007, 01:18:40 AM
Becky,

So sorry to hear of this latest setback. I agree you need to rest and let those antibiotics start working. Glad the staples came out though. You have been through so much, I hope everything starts turning around for you.

Take care,

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: DeborahinNC on April 03, 2007, 01:45:02 AM
Hi all

Becky - I'm so sorry - you are right sometimes when it rains in pours.  We'll keep our fingers crossed that it is just a superficial infection but its good it was caught quickly and you are being treated for it before it gets to far.  Hope the tooth is ok, didn't need that trip did you.

I'm really frustrated.  I like the idea of saying know but its very complicated and since most of the stuff involved the people I directly supervise (when I'm actually there) I can't remove myself completely.  He knows he has me in a tough spot.  I can say no but then I miss issues with my shift.  I am seriously going to have a talk with him next week and I am really starting to put out feelers.  You're right Becky, if it doesn't feel right it is not.  I'm not going to run away from my job but I am going to look at my options.  Unfortunately I don't have the option of not working, which is really fine.  Like you Peggy, I need that outside contact but I have an idea for multiple pt. time things if I can talk some of the Chiefs from the squads in to it.  I have to write a proposal and see what that looks like.  Once I make this idea known my boss will know I'm really looking and I want to delay that a little.

Ok thanks again for listening - Becky, take care of yourself. I'll call you later this week.

Be well all,

Deborah
Title: Re: UPDATE ON MY NIGHTMARE
Post by: caren on April 05, 2007, 12:42:36 PM
I am so sorry about your set back
we will all get Hen power going and extra prayers too that you heal and get to feeling great soon
hugs and happy easter
Caren
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on April 06, 2007, 12:55:07 AM
I can finally say I've had a much better week. I still get a lot of itchig and get sore but I really have had some good days this week where with the help of the pain pills I've been totally pain free some days. I'm down to only using the pain pills a couple times a day.  The Visiting nurse saw my incision just yesterday ans she said in her opinion it looks great. It is not oozing and is healing well. She said the wound looks so good that I probably didn't even need the steri strips but they do this for reassurance and added protection to make sure you are healing properly. For the first time in three years I feel such hope that I'm going to get my life back. My legs feel wobbly when I stand but that is to be expected. I put ankle weights on when I'm in the wheelchair and practice leg lefts to strengthen them. I truly can't wait until I don't have to wear that brace as I can spread my wings and find out what I really can do. I'm sure all the love and support I've gotten from this board has made such a difference and I want to thank Peggy and Deborah for their phone calls. It was great hearing from you and I feel like I've known you forever. I see my OS Monday and will give you an updated report. Becky
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on April 07, 2007, 03:09:51 PM
Hi Becky,

I wasn't online yesterday, hubby had the day off and wound up working from home till 2:30 or so this morning. That place is going to drive him nuts! So glad to hear that you had a better week. I am also glad to hear that the itching had subsided, that must have driven you batty.

Maybe I'll call and we can do the leg lifts together, I'll sit in my wheelchair too. LOL.  I can't wait till I can get rid of the chair but at least for now we can get around, I have been practicing walking with 1 crutch, a good 30 feet or so from the living room to the den, my leg tires so easily and after doing 1 or 2 trips I have had it. I can't wait spread my wings too and see what I can do. Funny how we have forgotten what we used to do after going through all of this. I agree with the feeling that we know some of the people on these posts forever and it has been a great support system.

Have a Wonderful Easter and we'll chat next week.

Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on April 12, 2007, 05:34:55 PM
Hi All,

Hope everyone had a good holiday. Well I am scheduled for surgery on the 27th to finally get the hardware out. The os is not making any promises about my leg. And I will have to continue pt for who knows how long. Just wanted to update all of you.

Hi Becky, How are you feeling? Hopefully the itching is under control and you are a bit more comfortable.

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: plantgeek58 on April 19, 2007, 08:15:17 PM
Hey ladies,
How's everyone doing? Becky, hope things are OK, we haven't heard from you in awhile.

Saw my OS again last week and got officially discharged from PT. The strength in my right leg is pretty much back to what it was before surgery, but the knee still isn't feeling great, so I'm feeling a little down. My OS says it may just take more time, but right now it feels like the microfracture didn't take, and I've had to go back to wearing my unloader brace. Phooey!

Peggy, I bet you're counting down the days til surgery now. Did you get your tooth problem straightened out?

We have a new nickname for our kitten, Smokey, who fetches and follows us all over the house. We're calling him our "puppy-cat". Hee hee!

Well, I've got to go get ready for class. Only three more weeks left and I can't wait for it to be over and done with. Take care, everyone.
Terre
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on April 19, 2007, 11:18:26 PM
Hi Terre,

Nice to hear from you!! Glad to know that the class from hell is almost over. Hope you did well with what you had to work with. Cute name for Smokey, isn't it funny how they follow you everywhere? So sorry you have to wear the brace, but am glad that the strength came back in that leg.

Yes. looking forward to surgery, it's next Friday the 27th. Hopefully I'll be able to put pressure on the leg and start walking like normal after it's over. Teeth are done I hope, till September, then just a cleaning.

Hi Becky,

How are you doing and how did the doctor visit go?

Talk to all later,

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on April 20, 2007, 03:38:24 PM
Hi Everyone, I'm sorry I haven't been back in awhile but I've been through much frustration and wasn't sure what to say. I have not understood why my legs are so weak and I can't get them to do what I want them to. I think 5 surgries in 2 years and 2 surgeies in three weeks was more then my legs could stand.  I saw my GP the other day and he said I have nerve damage and that it could take months for the nerves to wake up, he said it will happen but it is a long slow process.  He said  the nerves were pinched badly when the bone especially collapsed onto the nerve.  I want to go to PT so badly as I think my progress will go faster in waking up the nerve and strenghthening my legs but I doube it my OS will approve it until after this silly brace comes off. Unless I'm going out or do any walking around the house I refuse to wear the brace. I excercise sitting down a lot. The brace is heavy and cumbersome and rubs on the incision. Everyone who wears them says this. 
You guys will like this one, and it could be why you get stupid answers from your OS. My GP said that these doctors who work in a specific field often know nothng about the rest of the body or whats going on. They fix the problem and feel that their job is done and the rest is up to you. He said they often have no knowledge when it comes to another problem they know nothing about such as nerve damamge as a result of an operation, then you need another doctor like a neurosurgeon, which if this problem goes on too long I will be seeing. Obviously he is not knowledgable of this or he would recognize why I'm still having trouble walking and why I still need the walker instead of saying to me he will see me in two weeks and hopes to see me without the walker. My husband is going with me to the appointment on Monday and have a little talk with him about this as his words really upset me and discouraged me. He has no idea how hard I am working at this or the frustration I'm feeling and he totally discoraged me and I've cried a lot over this.   My Gp said it could take months to walke up the nerve, but I'll be darn if he willl rush me into giving up the walker and causing me to fall again. It's my body and I know better then him when I am ready. I hate going to the doctors as it seems they are wonderful until your surgery is over and then they treat you like s**t, Doctors hate to admit thier method wasn't fool proof. My GP also said that anything that could have been done to my back has been done and he cannot compare me to someone who just had a disk removed and another one inserted. He was the one who put me back together it seems like he would certainly know this.
Well, I've rattled on enough, are you sorry you asked now. HA!! Becky
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on April 20, 2007, 03:49:48 PM
Hi Becky,

So sorry to hear that it may be some kind of nerve damage but I would give myself time to heal after what you have gone through. Believe it or not my husband and I were talking about how weak my legs are after going thru this for 10 months. It's just going to take time to get the strength back. I walk around the house with 1 crutch and I am exhausted. A person can only do so much. Please don't get frustrated and discouraged, give yourself the time.

I agree with your GP, specialist only know their specilaty. Granted, they know the anatomy of the whole body but they only concentrate on the one thing that they are good at, so don't hold that against your os. He would be aware of any nerve damage and if he isn't concerned at this point he must think you are on track.

How is everything else going? Daughter find a house yet?

I'll try and give you a call sometime next week. I have my surgery next Friday!!! Yeah, finally getting this hardware out.

Take care,

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: lilly_kc on April 20, 2007, 10:17:58 PM
Hi Becky and all - well, you have sure been to h*** and back since we were scheduled for our initial surery onthe same day, way back on March 1st. I think you feel weak, but reading your posts makes me think you are very very strong and directed. Hang in there my friend! You are way closer to the end than when you started all this!

I am one week out from my #2 TKR, have been home, mostly alone, this week. Hubby works pretty close and he comes home couple times a day to check on me, make lunch etc. He says today was a milestone because I carried my own cuppa coffee. LOL. Whatever.....

I got out for first time, which felt like bigger milestone. Gorgeous spring day here, and daughter took me in her big bubba truck to the chiropractor. Both fresh air and adjustment in one short half hour. WOW.

Still cant sit in once place for long, so need to say goodbye for now. Keep on taking care . . . Kathi

Title: Re: UPDATE ON MY NIGHTMARE
Post by: knee deep in Goo on April 20, 2007, 11:12:54 PM
Becky my thoughts are with you.  I hope for the best for you.  Give them hell...    You are a hard worker... You are the surgery queen of been there done it and done it again and again and again..  Take all the time to heal.. 

Lilly - wow a cuppa coffee carry.. very well done .. you are an overachiever..  :) It is a very big accomplishment that only someone who has been there .. can appreciate.   I had a put my own sneaker on moment once... :)
Title: Re: UPDATE ON MY NIGHTMARE
Post by: DeborahinNC on April 21, 2007, 03:43:42 PM
Hi all,

Becky sorry I've been MIA too.  I'm sorry you are still having this much trouble.  I'll try to call you this weekend or the beginning of next week.  You are strong and like me not a shy person about saying what you want or need to stick to it and give them a piece of your mind!!! 

I met with a new OS about two weeks ago - my current OS referred me to a colleague to discuss PKR since I'm no better from the last scope.  I was frustrated because I had a conversation in my head - he was going to come in, introduce himself, smile and say he could fix my knee and I'd be good as new.  I know stupid conversation but that is what I had going.  Instead he came in, did introduce himself and then said - you are too young and hate to do this surgery on someone my age - I'm very tired of hear that.  He said he wanted to try one more thing - an unloader brace and see if we could hold off for a while before having to do a replacement.  Part of me is good with the fact he wasn't just willing to do surgery without thinking but the other part.... well that just is not what I expected.  So, I just got (yesterday) the new unloader brace.  He thinks I'm hard to talk out of surgery.  I told him he was crazy and I was not hard to talk out of surgery just wanted to have something done to be done with this knee crap.  So, I'm in the brace, trying to have a positive attitude about the fact that it might work and waiting for that pain free moment to hit.  What is really funny about my being upset with him was I was gong tell him we needed to wait until July anyway because my company is changing insurance in July and I didn't want to start with one and then change.  So this really fits my timeline - I think I'm just such a control freak that it was his decision and not mine.  I've laughed at myself about this a few times.

So now I'm waiting to see if this will work.  If it does great - its not to bad and I could live with the brace.  If not we'll have to have another discussion.  I don't see him again until the end of May so have some time.

Let me know how your appointment goes and I am sorry that you are still not where you want to be.  On the flip side of that you really had a big insult to your body with both surgeries so close together.  Maybe this increases the healing time some.

Think about you often.

Deborah
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on April 23, 2007, 12:20:27 AM
Hi Everyone, I'll let you know how my Dr's appointment went tomorrow. Deb, I tried calling you but you were not home. I'll be gone most of tomorrow until tomorrow evening and then I should be home the rest of the week if you want to call. Becky
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on April 24, 2007, 12:41:14 PM
I saw my Spine Surgeon yesterday and it went better then the last visit. He took another x-ray and nothing has moved out of place We told him about my visit to my GP and he totally agreed that I have nerve damage and that it will take time. He said just keep working at it and he wants to see me in 4 weeks. Depending on how I'm doing then he will send me to water therapy. He wants me to be walking before I do this, probably for safety. I also need to have the brace off first as I can't go in the water without it. The brace is like wearing a cast. He cut out some of my vertabrae to crush up the bone to fuse the three vertabrae together and planted an electrical stimulator. He wants to make sure the bone has healed enough before I can shed the brace. Remember the bone broke so it's like waiting for he bone to heal before you can get rid of the cast, but at least he's not pushing me and has acknowledged that my problem is not the normal that he sees. At least I'm moving ahead and see improvements everyday. I wish everyone on this board could say that. I know I will walk again.
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on April 24, 2007, 02:04:28 PM
Hi Becky,

Glad to see some good news for you, even though you may have some nerve damage at least that will be the least of your worries. So he wants to have you do water therapy? I hear that makes it so much easier to move, I wish my pt office had a pool. I would have loved to get in there and move my leg more. How is everything else going?

I have my surgery this Friday, I can't wait, the pins psuhed enough the other day to cause my leg to start bleeding. Scary but  the pin didn't come all the way through. I'm glad that didn't happen!!

Talk to you later,

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: plantgeek58 on April 25, 2007, 01:37:04 PM
Hi Becky,
Glad to hear that you're healing OK. It's a slow process, but you'll get there eventually. Water therapy sounds great.

You and I both have sore backs right now, though mine is just from a muscle strain. I lifted one too many tables at work yesterday, and all of a sudden felt a sharp twinge. Owie!

I'm sad today. My kitty had to be put to sleep last night, because her kidney problems got worse. My son is very upset, because Crystal was really his cat. She usually slept in his room and would turn to him whenever she wanted to play or to be petted. He said last night that she was his best friend.  :'( This is the hard part of pet ownership. I wish they could live longer lives. Sigh! It does help to have the kittens, though. Inky cuddled up next to Josh for a while and made him feel a little better.

Well, I've got to get ready for work. Take it easy. Hope the brace isn't driving you too crazy. Have you painted it pink yet?

Terre
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on April 28, 2007, 06:28:23 PM
Hi9 Everybody,

Well it's over, YEAH!! He took everything out ( pins and wires ). Sent me gome with percs and I am taking 2 every 4 hours, that is when the pain starts. I have never in my life had pain like this and I went through 2 major operations before. I have been waking up sreaming at the top of my lungs. I scared my poor husband and the cat goes into hiding. My poor husband came running like never the house was on fire. I think I scared him pretty good. My leg also throbs and burns. Also I have bruises on the top of my legs, probably from being strapped down, but the one leg is really a mess, the bad one. I know this will pass and I will start feeling better in a few days. Right now I am in an immobilizer until Sunday when I can shower and change the dressing. Don'y think I will be able to get upstairs though. I can put full weight on the bad leg but it is too painful at this point.

Sorry to share such a story but this is how it's going and believe me when I broke the kneecap, I wasn't in this much pain. Hubby taking good care of me, hasn't left my side except to get the script and go up to bed. Funny thing, neither has the cat, he's been hanging all around me and sleeping with me.

I hope you all have a great pain free weekend.


Boy these percs certainly do make you loopy!!

Peggy


PS I posted this reply on other sites, cannot stay up much longer, will talk with you all later.
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on May 15, 2007, 01:03:48 PM
Hi All: Sorry I haven't been on in  a long time. Right now I'm playing  a waiting game and getting discouraged cause I can't make these legs move the way I want them to. I can stand and put weight on them and I try to keep them moving all the time, but the minute I try to take a step they just won't cooperate. I go back to my OS next Thursday and hopefully he will tell me I've healed enough to start therapy. I never was so anxious to go to therapy in my life. Does anyone here know anything about nerve damage and how long it takes to rejuvinate them. I've been through so many operations so I could walk pain free and now after the most major operation of my life I can't wallk without assistance. The original pain of the nerves being pinched has gone in both legs but I will have days where my legs ache so bad I can't get them comfortable. I sleep in a recliner and thought I'd try my bed last night and I ended up back in the recliner as I want to move around too much on the bed and that makes things worse. I haven't slep with my husaand for over three months. I know the surgery was only about 2 monhs ago but it seems like two years with all I've gone through.
Peggy how are you doing now since the hardware was taken out of your leg. On you last posting you sounded like you were still in a lot of pain.
Title: Re: UPDATE ON MY NIGHTMARE
Post by: peggy1 on May 15, 2007, 03:19:09 PM
Hi Becky,

Sorry to hear that you are still having problems moving the legs. I don't know how long it takes nerves to regenerate but I hope that it's real sson for you. PT will probably help you along tremendously!! I started pt last week and weights at home, my legs are pretty sore from the weights since I haven't used them for 3 weeks but that will pass. My knee feels great with all the hardware out!!  Keep me posted on how you are getting along.

I haven't slept with my husband in almost a year, I know I will keep him up since I move the leg all night long too. No wonder I am dead tired during the day.

Peggy

Title: Re: UPDATE ON MY NIGHTMARE
Post by: ataraktos on May 15, 2007, 11:04:16 PM
Sorry to jump in at the end of a long post ... I'm new to the board and just wanted to say "hang in there" ... I had nerve damage following a Post-op femoral nerve block (TTT surgery in 95) and I know exactly what you mean by your legs "not cooperating!" ... it basically took me two years to recovery from a surgery that was supposed to take, I can't quite remember the estimate now, 6 weeks or something ... it just takes time to heal ... just keep asking those nerves to fire, so they'll know they're still needed! :-) My original OS kept telling me that he had no idea what was wrong, I must not want to get better ... took quite a while, and visits to other doctors before I got a diagnosis and could put to rest any little nagging thoughts of "maybe my OS is right - do I *really* not want to walk?!?" It's quite strange when body parts don't really hurt but just don't work and you used to be able to make them work without any thought at all ... anyway, again - hang in there and keep at it - the baby steps (maybe, quite literally, baby steps - was for me!) will add up over time and down the road, you'll be able to look back at how far you've come!
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on May 16, 2007, 02:47:21 PM
Sorry to jump in at the end of a long post ... I'm new to the board and just wanted to say "hang in there" ... I had nerve damage following a Post-op femoral nerve block (TTT surgery in 95) and I know exactly what you mean by your legs "not cooperating!" ... it basically took me two years to recovery from a surgery that was supposed to take, I can't quite remember the estimate now, 6 weeks or something ... it just takes time to heal ... just keep asking those nerves to fire, so they'll know they're still needed! :-) My original OS kept telling me that he had no idea what was wrong, I must not want to get better ... took quite a while, and visits to other doctors before I got a diagnosis and could put to rest any little nagging thoughts of "maybe my OS is right - do I *really* not want to walk?!?" It's quite strange when body parts don't really hurt but just don't work and you used to be able to make them work without any thought at all ... anyway, again - hang in there and keep at it - the baby steps (maybe, quite literally, baby steps - was for me!) will add up over time and down the road, you'll be able to look back at how far you've come!
Thanks so much for jumping in here. Your letter was very encouraging. My OS never did tell me that nerve damage was the reason I was having trouble walking. He figured he fixed the problem and in a few weeks I should be able to walk without the assistance of anything even though I had two surgeries in three weeks because he screwed up.  I think that is when I got the nerve damage. The disk literally collapsed and landed on  a nerve. Picture a tree falling on your leg and you are trapped and can't move. That's what it felt like. I went to my GP and he is the one that explained the nerve damage to me and told me it could be months etc before I got the nerves working again. He said basically what you did. Keep moving the legs until they wake up and realize you still need them. When I went back to my OS and told him I saw my GP and this is what he told me, he didn't argue and treats me differently now and not just like a routine patient.  Anyway thanks for your input. My back and legs feels so much better since the surgery that I guess I can be patient and give my legs time to do what they have to do. Afteall I've walked with so much pain and pinched nerves for so long they have a right to be mad at me. [/color] How did you  now the nerves were waking up. What were the first signs.
Title: Re: UPDATE ON MY NIGHTMARE
Post by: DeborahinNC on May 16, 2007, 11:23:23 PM
Hi Everyone,

I'm still around.  Sorry Becky for not keeping up with you on a regular basis.  This back at work thing is really killing me.  I'm on my second 36 hour shift this week alone (had yesterday off and if the stars are aligned right should have Friday off).  We had to fire one person, suspend another and since we are only 22 strong this really puts the rest of us covering a lot of open time.  I keep telling myself the paychecks will be great if I live long enough.  Oh, well this too will pass - kind of like gas!!

Becky, I'm sorry you are still having nerve pain issues.  I was hoping these would clear up quickly.  It was good to hear from someone who has been through it and obviously it can take awhile.  So hang-in and know that even though it may be slow recovery should be coming your way.  How else are you doing?  How is your daughter doing?

I've been wearing this brace (not as bad as your brace) for almost a month.  The only thing I'm getting so far is that I am more sore when I'm not wearing it but still not pain free when its on.  I'm thinking that this was not what they expected - but then I'm not a doctor...lol.  I'll see my OS on Monday and see what he has to say but I bet I could write his comments before he even says it.  It will be something like - we need to give this more time to see if it will help.  I'll let you know if I'm right after I see him.

Anyway - you have been thought of often.

Take care,

Deborah
Title: Re: UPDATE ON MY NIGHTMARE
Post by: ataraktos on May 16, 2007, 11:59:20 PM
Hmm, first signs ... my situation, I'm guessing, was probably a lot different from yours, since my damage wasn't as "high up" as the spine ... so, initially, I could move my leg some(like sideways!) but the quads weren't very responsive.

And, keep in mind, I didn't know, for *ages* that I had nerve damage, so I wasn't paying attention for "nerve regrowth" type signs. My progress was just in super-slow motion. It took days (probably a couple weeks, looking back on it) for me to pick my leg up (straight leg lift) just a fraction ... and yes, it felt about like it was crushed under a tree! Actually, I had (still have) a rather large screw in there, and it felt more like a piece of re-bar had been driven through my leg, pinning it to the bed!

So, I went on with exercises for a while (and in the middle of all this, my patella tendon scarred down and that was quite a set-back, but that's a different story!)

But when it came to weight-bearing, things, again "just didn't work" ... some steps would be okay - all the first steps, mind you, were in an immobilizer - and with other steps, my leg would give away (without much that an onlooker could really see expect my frightened expression, because my leg was in an immobilizer!) So, in retrospect, I think my muscles, nerves really, just weren't up to the task of firing the way they needed to, to hold me up - walking is a lot more complicated than picking up 5-10lbs strapped around one's ankle! I think those early steps, the steps that were okay, I had managed to balance just so, by chance, mostly.

I ended up relearning to walk - with a walker and that immobilizer ... I walked miles back and forth in my living room and over a while, getting a little better, at a snail's pace. First, lessening the weight in my hands, on the walker, then, briefly not holding on to walker, talking slightly bigger steps, etc ... the immobilizer "shrunk" over time, to a smaller brace and the walker was replaced by making it between pieces of furniture, around the kitchen with the counter there to grab if needed, etc.

After I found a PT office that was content to let me hang out and exercise, I eventually gained the ability to do stairs and curbs again and got rid of the small brace altogether. It was just a really long process ... a lot of rehab, a lot of research ... a lot of learning about things that used to be involuntary so I could concentrate on them while taking a step.

I wish you the best!

take care,
-jill (sorry I forgot to "sign" before)
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on June 03, 2007, 04:46:10 PM
Hi Jill, I am so sorry that I haven't been back in so long. Your letters are very encouraging that I will continue to get better. So did they have you wear a brace. I'm thinking I might need to wear one for awhile to stabilize the knee that is giving me fits. Oh!! Deborah Caren, Peggy and anyone else who was in on the conversation about my daughters marital problems. I will not get into it on this thread again but a lot has happened an you will be very pleased about how it is going, if you give the word I'll talk to you about it on the chat board. Just let me know. Al I xcan say is we are very proud of her and how she is handling everything. Becky
Title: Re: UPDATE ON MY NIGHTMARE
Post by: DeborahinNC on June 03, 2007, 06:15:27 PM
Hey Becky,

Yes I'm still alive and around.  Work is kicking my butt and between work and school my time has become very limited.  I haven't been to the pool in over a week and haven't even been to work out in that long.  Now I do live by the credo that "exercise will kill you" but I did like my trainer.  I'm on hold with my knee until August/September and then PKR time.  Just need to wait for new insurance from work.  Then I am once again out for a period of time and hopefully back so that I can find another job sometime.

How are you doing Becky?  Improvement from the last time we talked - I know it was quite a while ago --- sorry.  And yes let me know by e-mail how your daughter is doing.  I have been wondering.

Peggy - hope you are doing well with the knee.  How is PT and ROM and pain?

OK I'm at work and have to run.  Just wanted to at least say hello and I'm alive and sort of well.

Take care,

Deborah
Title: Re: UPDATE ON MY NIGHTMARE
Post by: ataraktos on June 05, 2007, 04:03:52 AM
Hi,

I've been away from the board for a while, too ... just checked back in from getting a PM ...

By the time I was re-learning to walk, I don't know that I'd say anyone "had" me do anything, like wear a brace - by that point, quite a few drs didn't really know what was going on with me and I was at the point of "whatever works, do it" ... my leg was just so unstable and unpredictable that I had to wear  *something* while weight-bearing. At least, with the immobilizer, I knew that my leg wasn't really *going* anywhere when it gave out b/c it was like my leg was in a pipe! It was still scary, but I didn't have to also be scared of falling and/or seriously re-injuring my knee so it really helped a lot ... I think part of the difficulty with nerve damage is you have to find a way to make body parts attempt to do stuff the nerves aren't ready for, in order for the nerves to regain their lost function but since it's our nerves that "make body parts do stuff", it can be really tough!

Hope you're continuing to see improvements!

Take care,
-jill
Title: Re: UPDATE ON MY NIGHTMARE
Post by: luckygrandma on June 05, 2007, 12:35:02 PM
Hi Jill, I went to therapy for the 3rd time yesterday and yesterday was my first day in the pool. I can't believe how much function I've lost in what was once my good leg. They are talking brace also but for my knee replacement leg. The therapist thinks there is something wrong with my knee replacement that it over extends too much. The harder I try the knee just wants to fling out and then rebending it from a straight postion is mightly painful. I have that problem in the one leg and the other leg is so weak it won't hold me to stand solo.

I sure am sore today, back ,legs, you name it. I sure hope as I hopefully progress and I'm not hurting so much after therapy.  Was your nerve damage from a knee replacement, I didn't have this until after my back surgery and if the doctor hadn't goofed and done it right in the first place so I didn't need a second surgery things would be quite different right now.  Becky
Title: Re: UPDATE ON MY NIGHTMARE
Post by: ataraktos on June 08, 2007, 04:45:58 PM
Sorry to hear you're having such a rough go!!

My *first* thought would be to be hesitant to say there's something now wrong with the knee replacement that wasn't giving you trouble before back surgery. It might just be that you've lost a lot of strength in *both* legs since back surgery and now, that's showing up w/ the knee replacement? Of course, I'm not there (and definitely not a PT! :-) but  ... I went through a similar situation with my knee surgery:

-- elective knee surgery
-- knee/leg has problems working normally immediately following surgery
-- DRs wanting to say I had a back problem ???

I was like "no, that doesn't make any sense ... what was the most recent, traumatic event - the knee surgery, so it really stands to reason that *that* was most likely the cause of my operated-on leg not working correctly!" Remembering back- it was a slip of the tonuge by the EMG tech that let me in on the fact that I did, in fact, have nerve damage ... when I went back to the DR for my report, who was a colleague of my OS, he was like "nerves are fine" and I was like "wait, that's not what the tech was saying" ... and then they shifted to "you must have something wrong with your back" ... I finally got away from that area, for a decent second opinion!

Ironically, I do have something (as yet undertermined) wrong with my lower back but it wasn't/isn't affecting my knees. No one can figure out what my back issue is ... I should probably start with another round of trying to get it sorted out.

I had a tibial tubrecle transfer operation to combat chronic knee dislocations. Surgery ended with a post-op femoral nerve block which (non-permanently) damaged my femoral nerve.

When they have you trying to work out, since both legs are having issues, do you have access to handrails of any kind? That helped me, helped me not to be so scared, helped my good leg not to have to do all the work and helped my recovering leg be able to do what it could.

Good luck!!