KNEEtalk

The WAITING ROOM => GENERAL KNEE QUESTIONS and comments (good for new threads) => Topic started by: rhester on September 20, 2005, 03:36:37 PM

Title: Arthro Fibrosis along with total knee revision
Post by: rhester on September 20, 2005, 03:36:37 PM
Folks,
I reside South of Pittsburgh PA--in a town called 84 PA--home of 84 Lumber... :)
My problems started 40 years ago--impersonating an athlete in HS and College sports..
5 Knee surgery's including TOTAL reconstructive surgery prior to a TKR 31 Jan 2005..
March 2005 -- back in to remove the Arthro Fibrosis followed by an agressive PT program..
May 2005 back in for an MUA.. All unsuccessfull..

I wear a CDS (Controlled Dynamic Strech) brace and sport a cane..
I have a Negative 32 degree contraction that appears to be frozen solid.. My PT's have given up...

My OS has a strong background in TKR--but suggested his partner do the revision.. It's going to be a tenous process (im told)--
I'm back to work now, mentally trying to prepare for round #4.. My pain has been incredible. Im wondering if there are any good Arthro Fibrosis doctors who could operate on me-- prior to the revision.. I have my own business and cannont afford another 6 months off..
Does anyone know of a good doctor in the Pittsburgh PA area or in the surrounding metro area?
I'll look forward to some needed advise..
Thanks much/Bob
My email is [email protected]
Title: Re: Arthro Fibrosis along with total knee revision
Post by: rozzzie on September 20, 2005, 06:13:26 PM
Sorry you're having the problems with Arthofiibrosis with your TKR.  The cloeset OS that has some expertise in arthofibrosis would be Dr frank Noyes at http://www.cincinnatisportsmed.com/   (http://www.cincinnatisportsmed.com/ ) This link should take you there. 

You may want to check out the soft tissue healing problems below for information.  There are a number of knowledgeable people who post regularly. http://www.kneeguru.co.uk/KNEEtalk/index.php?board=9.0

Good luck!
Rozzzie
Title: Re: Arthro Fibrosis along with total knee revision
Post by: rhester on September 20, 2005, 06:19:54 PM
Rozzzie,

Hey thank you so much for your reply and referral...
Evidenced by my email--im getting pretty desperate..
This is wearing me down..
Thought I was a tough guy-- wow-- no more.. :'(
I have read other postings on this Doctor.. I will indeed talk to him..
Thanks again and all the best.. ;)

Bob
Title: Re: Arthro Fibrosis along with total knee revision
Post by: Janet on September 21, 2005, 01:05:52 AM
Bob:

There is a person posting in the Arthritis:TKR section named Jan L. who has been dealing with similar issues. She did a ton of research about revision vs. arthrofibrosis surgery along with revision. She has an OS at the University of Michigan who is helping her deal with her very difficult situation. I strongly suggest you pop down to that section of the board and post there, or send a private message to Jan L.

Janet

Title: Re: Arthro Fibrosis along with total knee revision
Post by: missmyknee on September 21, 2005, 03:33:16 AM
Bob

There is a knee replacement forum called delphi forums onourfeet/jointreplacement....type it in your search engine. When you get to that site , type in "revision list" in search. When you get to the list , at the bottom ,click on "full message" to view complete list. They have compiled a list of knee revision specialist around the country. There are some listed in Pennsylvania and New York. If you are needing a revison , you want a doc who specializes in revision and has done many. Check out the TKR forum it has been most helpful to me.

I do agree with Rozzie on Frank Noyes being an excellent athrofibrosis specialist located close to you. He did my TKR in January. I am having scar tissue problems  ( again) and he is doing a scope and open surgery in January to address that problem. I couldn't be more pleased with his care, but you sound like you need a revision specialist.

Pam