Rheumatoid Arthritis (and its variants) :

R A - - Posted by ORCA (ORCA), 4 August 2004

hi new member to this site.well lets see i'm a mother of two girls,14 and 12 years old.married for nearly 18 years and was comfirmed as having R.A 3 years ago and been on 6 different medications, to which i have been ill on all. The last one was the new T.N.F (EMBREL) which u inject twice a week.Well the side affects have been hair falling out,BIG BALD SPOTS, bad throat,last but not least Tubercolosis for which i am now taking tablets for the next 6 months. My doctors say that i'm one in a million!
Anyone else out there thats one in a million? getting quite lonely

Posted by Ron22 (Ron22), 4 August 2004

hi orca...pls don't feel alone...we're all in the same leaky boat...take a look at my stats below....i think i've had a good deal from the knee menu.....take a look in the spiritual section...i have been having a rough couple of weeks with no sleep and a lot of pain...needles to say with my first surgery at 19....i was "the first kid on my block" to wear a nice big ugly brace when playing ball...i know how yu feel when you say you're one in a million...i used to get that since i had and have such a nice grab bag of flaws in my knee and hip...in fact a couple of dr's used to call in colleagues..'you ever see such advanced arthritis and mal tracking on such a young active guy?'...i used to want to bite them on the ankle if i could've hobbled over...there's always hope and this site is a great place to share and obtain encouragment from folks who are going thru many of the same things you are.....take a look at the spritual section...lots of good stuff to re-charge and empathize with....let me know how you're doing.....we're all here and we do care....

i hope you are feeling a little better, but don't feel alone..you're not...on my sleepless nights i feel so much better knowing all of the knee geeks are here to help and to listen w/out judgment if you need to vent or have a lil pity party...or share your feelings and know everyone understands..unlike the non knee folks who can somtimes be quite insensitive..

be good to yourself and take care....

cheers,

ron
Posted by ORCA (ORCA), 5 August 2004

hi everyone,hi ron thanku for your message it cheered me up no end.its nice to know i'm not alone. .
i agree that the docs tend to treat u in robort form.my tend to run away when they see me coming.
seems that u ave had your fair share of probs, and from such a young age. i will look through this site in more detail when i can keep my girls off the p.c long enough.

hope u r getting sorted out,hope to hear from u soon.

         from not such a lonely whale,
                   ORCA

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