Joint hypermobility disorders :

Reading materials - - Posted by Liz (Liz), 14 March 2003

Does anyone have suggestions for books with information on hypermobility, such as causes. symptoms, related issues, etc?  I did see the post below about the book "Hypermobility of Joints", but at $180.00 on Amazon, that one is a little steep for me right now.  Any other books that you guys have found helpful?

Thanks!
Liz
Posted by Pirate (pirate), 14 March 2003

Have you thought of asking your local library to obtain a copy, most libraries will do there best to get hold of books you request.
It's worth a try.
Posted by tazmanian_devil (tazmanian_devil), 15 March 2003

Our local hospital has 2 large medical libraries where anyone with a regular library card can check out anything they want. Maybe your hospital does too. Theresa
Posted by SL99 (SL99), 15 March 2003

My local library managed to get a copy if "Hyoermobility of the Joints" for me within about a week, so it might be worth checking your own library. I think it vosts about 30-40p to place an out of area order for a book, so it's a much better option than the Amazon asking price!  

Beyond that the various connective tissue/ hypermobility sites have some very reasonably priced books and leaflets about conditions and HMS. I've just bought a brilliant book on EDS from the Ehlers Danlos Support Group which is extremely informative and helpful. It misgh be worth checking some of the sites you regularly visit  (and maybe some you don't through a search engine) to see if they have any that will be useful for your specific problem.

Hope you find what you are looking for and that your library manage to locate the other book for you. Take care.

Love........Jo
xxx
Posted by Liz (Liz), 15 March 2003

Thanks - I am going to head to the local libraries and see if I can get them to order in a copy of "Hypermobility of Joints", but I was hoping there might be other books that are cheaper that I could buy for home.  Plus, my family is really interested in this, as my mother has had the same problems for years and years, and is now also putting together the pieces and realizing she may have a hypermobility disorder.  It'd be nice to order her a book so she learn a little more about it (her internet skills are lacking, heh).

I did notice on Amazon, there is a book coming out in May called "Hypermobility Syndrome: Recognition and Management for Therapists".  This looks promising.  

Thanks for the info,
Liz

Posted by Shazinoz (Shazinoz), 16 March 2003

liz,
there are other books and pamphlets and publications on HMS, Hypermobility, EDS and other connective tissue and collagen disorders (such as Marfan's and OI).
Some of these can be found on sites such as the following one which lists some publications and such on EDS.
http://www.ehlers-danlos.org/Publications/Publications.htm (this is a UK site but they will post the publications to anywhere for a small fee. I am about to send of for some for me (to be sent to OZ).
Also try amazon I did a quick search and came up with the following
* Hypermobility Syndrome: Recognition and Management for Therapists
by Rosemary Keer (Editor), Rodney Grahame (Editor)
(yet to be published so price unkown as of yet);
* The Official Patient's Sourcebook on Ehlers-Danlos Syndrome: A Revised and Updated Directory for the Internet Age
Edited by James N Parker MD & Philip M Parker PHD ($34.95)
* Ehlers-Danlos Syndrome: Medical and Practical Information
by Lindalee Massoud (Editor) ($5.50)
* The Official Patient's Sourcebook on Marfan Syndrome
by Icon Health Publications, James N. Parker (Editor), Philip M. Parker (Editor) ($24.95)
* The Official Patient's Sourcebook on Osteogenesis Imperfecta: A Revised and Updated Directory for the Internet Age
by Icon Health Publications, James N. Parker (Editor), Philip M. Parker (Editor) ($28.95)
* Third International Conference on Osteogenesis Imperfecta (Annals of the New York Academy of Sciences, Vol 543)
by Giuseppe Cetta, Francesco Ramirez, Petros Tsipouras (Editor) ($47.00)

These are publications from the above web site:

* The Management of Ehlers-Danlos Syndrome:
by Professor Howard Bird MD.FRCP and Valerie Burrows (₤4.50 UK, ₤6.00 Europe, ₤7.00 Rest of World)
* Ehlers-Danlos Syndrome:
by Professor Howard Bird MD.FRCP (Editor) (₤1.50 UK, ₤2.00 Europe, ₤2.50 Rest of World)
* Learning to be Different
by Valerie Armstrong (₤1.50 UK, ₤1.50 Europe, ₤2.00 Rest of World)
* Pregnancy & Childbirth in Ehlers-Danlos Syndrome:
by Dodo Merrild MD  (₤1.50 UK, ₤2.00 Europe, ₤2.50 Rest of World)
* Ehlers Danlos Syndrome: A Guide for Teachers
by Trustees of the Ehlers-Danlos Syndrome Support Group (₤1.00 UK, ₤1.50 Europe, ₤2.00 Rest of World)
* Difficulties in School & College for Young People with EDS
by the result of a survey (₤1.00 UK, ₤1.50 Europe, ₤2.00 Rest of World)
* So You Have EDS Too ?
by Valerie Armstrong (₤1.00 UK, ₤1.50 Europe, ₤2.00 Rest of World)
* Video on Ehlers-Danlos Syndrome
Introduced by Professor Peter Beighton MD, PHD. FRCP. DCH
Medical Aspects by Professor Howard Bird MD. FRCP
Occupational Therapist Jane Cathcpole Dip COT. SROT
Physiotherapists  Fiona Evard & Virginia Craig MCSP  (₤12.00 UK, ₤14.00 Europe, ₤16.00 Rest of World)


Hope this helps also try typing Hypermobility books and such into your search engine (I use Google) and you will come up with quite a lot.

Hope this helps you in your quest for information

Sharon (shazinoz)


Posted by Pirate (pirate), 16 March 2003

on 03/15/03 at 16:39:46, Liz wrote:

I did notice on Amazon, there is a book coming out in May called "Hypermobility Syndrome: Recognition and Management for Therapists".  This looks promising.

Hi everyone

I checked my local library for anythign to do with joint problems, what a joke! they have nothing.   I did check out the online catolgue for my schools library (its a university , well 3 connected libraries pretty much). I found it listed now just have to fiugre out how to get it!  Has anyone here actually read the book?  Is it benifical?  Im goin on wednesday to try to find it (i have a midterm tuesday that i have to get ready for).  Ill let you know how i make out.  Hey it might be worht it to photocopy it Dont know.  

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