NOTES - Your success stories :

Success Stories on Arthrofibrosis? - - Posted by SarahSmile (SarahSmile), 25 January 2004

Hi everyone

I have severe arthrofibrosis and am going in for my 4th surgery this Weds... I am staying positive, however, I am desparately searching for success stories with scar tissue removal.. I know everyone is different and has had knee problems for different time periods, however, I want to hear about your successes in this regard!
Thank you so much!!!
Sarah
Posted by hmaxwell (Heather M.), 26 January 2004

Sarah,

The only one I know of posting here with a success story is Laurie.  She had her condition identified very quickly and sought help from one of the best surgeons in the country.  It took her about two years, but I believe she is back running and skiing.

I have the same doctor, but a different set of underlying conditions (patellar mal-tracking which is congenital, patella baja, and patellar osteoarthritis) and my story hasn't been as successful.  My pain levels are still very, very high and I don't have a lot of functional use of my knee for anything but the most basic of activities.

However, I'm much better than I was before my last surgery a year ago--it was a qualified success that helped me to walk without a limp, gain full extension and flexion, and helped reduce some of the chronic swelling.  I'm still dealing with mechanical problems that resulted from the scar tissue.

Find a really good doctor, preferrably one who has done a lot of research and publishing about arthrofibrosis.  Then find a PT who knows as much as the doctor does, because this is a condition that doesn't respond well to standard knee therapies...in fact, these can make things worse.

Best of luck.

Heather

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