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Joint hypermobility disorders :

Hypermobility vs HMS and lots more ??'s - - Posted by Stacey (Stacey), 25 May 2003

Hi everyone

Well i went to a rheumy on friday and it was just a waste of time in my opinion.  He did a physical exam (very brief) and stated that everyone of my joints were hypermobile (wow i thought i only had a few but nop every single one Sad ). THen he said since it wasnt a mechanical (??) problem my OS will not be able to do anything for it and i pretty much just have to live with it.  Okay the questions:  
1)How can you tell the difference between hypermobility and HMS?  Is it that HMS has a lot of pain associated with it?  Cause if that is the only difference it is definatly HMS.
2) How do i go about getting a confirmed diagnosis?  Does anyone know any good doctor in the southern ontario region??  My GP doesnt think i have anything wrong with me
3) I know that i have figured for a whiel that that is what is wrong with me but hearing a doctor say it is totally different,  ever since I have felt really depressed (more so than normal)  How do you deal with that?  I mean i went out with friends and injured 2 fingers just trying to play a game of pool (billiards)!
my parents are still kinda just blowing it off, my dad jokingly calls me gimpy since i moved home.  I was driving home today and actually started crying when a certain song came on the radio (Matchbox 20's unwell is not a good song to listen to when you feel depressed).  Sorry this is rambling and not really asking much I just had to get it off my chest.  I am goign to call the other rheumy i have an appt wiht (in december) to ask if she deals with hypermobility becuase if she doesnt i am not going to waste my time going.  I am also goign to call my OS's office to get an appt to see what i am supposed to do now.  Thank you everyone!

Stacey

Posted by Shazinoz (Shazinoz), 26 May 2003

Hey Stacey Grin,
The main difference between Hypermobility and HMS is that Hypermobility is JUST the ability to have your joints move more than normal and doesn't usually cause pain unless you have a specific injury.
Where as HMS is Hypermobility + Symptoms (Especially Generalised Pain (for No real reason, or injury)) and also other things like Stomach problems and lots more.
Here is a link on HMS and also on the Brighton Score that tells you how to pick the difference.
http://www.hypermobility.org/diagnosis.shtml
http://www.hypermobility.org/index.shtml
You may also want to see a genetic councellor and Geneticist to see what they think and try to find a Rheumy who deals with Hypermobility issues and not just arthritis (ask on CEDA).
Hope this Helps
Sharon




Updated Thu Apr 29 2010

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