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Author Topic: Arthrofibrosis in the UK  (Read 611 times)

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Offline Betematty

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Arthrofibrosis in the UK
« on: June 09, 2018, 09:43:28 AM »
Does anyone know of any consultants in the UK that specialise in Arthrofibrosis?  I had ACL recon a few years ago and havenít been able to gain full extension and walk with a fixed knee.  In March is this year the consultant went back in and discovered scar tissue had grown into my notch, scarred down my fat pad and in other areas  so did a removal got my leg straight although with difficulty but it has now gone back to being bent.  He has stated he does not believe there is anything else he can do.  Being left in this position will have a massive impact on my job so I need to find someone who specialises in it as from reading the posts there appears to be more that can be done just maybe not with this consultant

Online Vickster

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Re: Arthrofibrosis in the UK
« Reply #1 on: June 09, 2018, 10:07:04 AM »
Tim Spalding has experience with a friend of mineís knee. Itís not really something surgeons specialise in as itís more a complication than an injury. You need an ACL expert and a super specialised knee surgeon

There is a list here but only Glyn Evans in U.K.

http://www.kneeguru.co.uk/KNEEnotes/primers/whos-who-knee-surgery/whos-who-arthrofibrosis-surgery

Private only, London Bridge hospital

http://www.londonbridgehospital.com/LBH/consultant-det/mr-glyn-evans/
« Last Edit: June 09, 2018, 10:10:42 AM by Vickster »
Came off bike onto concrete 9/9/09
LK arthroscopy 8/2/10
2nd scope on 16/12/10
RK arthroscopy on 5/2/15
Lateral meniscus trim, excision of hoffa's fat pad, chondral stabilisation
More tears and wear, scope planned in Jan 2019 to tidy up

Offline Betematty

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Re: Arthrofibrosis in the UK
« Reply #2 on: June 10, 2018, 09:57:01 PM »
Thanks I will have a look.  Itís a nightmare trying to find someone that understands.

Online Vickster

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Re: Arthrofibrosis in the UK
« Reply #3 on: June 10, 2018, 10:06:52 PM »
Good luck

Where are you in the U.K.?
Came off bike onto concrete 9/9/09
LK arthroscopy 8/2/10
2nd scope on 16/12/10
RK arthroscopy on 5/2/15
Lateral meniscus trim, excision of hoffa's fat pad, chondral stabilisation
More tears and wear, scope planned in Jan 2019 to tidy up

Offline limpylynn

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Re: Arthrofibrosis in the UK
« Reply #4 on: October 31, 2018, 02:59:01 PM »
Hi I am in the same position had ACL recon with repairs to both meniscus in Feb this year, left with little to none movement so in April had a manipulation under a general anesthetic, and debridement of scar tissue. I still can't straighten my knee without pushing it straight and can bend to 120 degrees but it is very stiff and clunkie and painful. I have been told I have arthrofibrosis and that the surgeon wants to see me in 5 months time to consider more surgery to remove scar tissue - BUT I'm worried that maybe I need to see someone who understands athrofibrosis a little more. Has anyone ever recovered fully from this. I am/was a keen sports person who ran every day and now can only dream of even the smallest jog  :'( any help and advise would be gratefully received before I go round the twist

Online Vickster

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Re: Arthrofibrosis in the UK
« Reply #5 on: October 31, 2018, 03:07:40 PM »
Thereís a list of surgeons here with an interest in arthrofibrosis. Just one in the U.K. in London. Now only practices privately I think

http://www.kneeguru.co.uk/KNEEnotes/primers/whos-who-knee-surgery

Might be worth paying for a second opinion

Good luck
Came off bike onto concrete 9/9/09
LK arthroscopy 8/2/10
2nd scope on 16/12/10
RK arthroscopy on 5/2/15
Lateral meniscus trim, excision of hoffa's fat pad, chondral stabilisation
More tears and wear, scope planned in Jan 2019 to tidy up

Offline limpylynn

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Re: Arthrofibrosis in the UK
« Reply #6 on: November 03, 2018, 10:50:20 PM »
Thank you very much I will take a look as desperate to get some help

Online Vickster

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Re: Arthrofibrosis in the UK
« Reply #7 on: November 04, 2018, 09:33:29 AM »
Hereís his profile and contact details. Secretary will be able to provide whatís needed for referral etc :)
http://www.londonbridgehospital.com/LBH/consultant-det/mr-glyn-evans/
Came off bike onto concrete 9/9/09
LK arthroscopy 8/2/10
2nd scope on 16/12/10
RK arthroscopy on 5/2/15
Lateral meniscus trim, excision of hoffa's fat pad, chondral stabilisation
More tears and wear, scope planned in Jan 2019 to tidy up

Offline limpylynn

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Re: Arthrofibrosis in the UK
« Reply #8 on: November 04, 2018, 09:36:47 AM »
Has anyone seen Glyn Evans and has success? Keen to go down this route but after being given a name of someone in Bristol who turned out less than good, I'm keen not to waste time and money travelling to London etc if he doesn't have real interest or experience in AF? Thanks for any help

Online Vickster

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Re: Arthrofibrosis in the UK
« Reply #9 on: November 04, 2018, 10:04:47 AM »
Again, ask his secrerary if you can have details of his experience in treating. 

All his bios state arthrofibrosis as an interest, so Iíd assume he has experience, bearing in mind itís a fairly rare complication so itís unlikely to be a sole focus :)
Came off bike onto concrete 9/9/09
LK arthroscopy 8/2/10
2nd scope on 16/12/10
RK arthroscopy on 5/2/15
Lateral meniscus trim, excision of hoffa's fat pad, chondral stabilisation
More tears and wear, scope planned in Jan 2019 to tidy up















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