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Author Topic: Feeling down.... with no light at the end of the tunnel yet!  (Read 159 times)

Offline leahjg-90

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Feeling down.... with no light at the end of the tunnel yet!
« on: February 27, 2018, 08:48:06 PM »
I had my 8th RK dislocation back on the 7 Oct 17 - had an MRI, consultation appointments and the got referred to a specialist hospital for surgery. They thought I needed a trochleoplasty, however think the MPFL reconstruction will be a good enough repair. So the referral wasn't needed after all.

I am currently 20 weeks post initial referral... I spoke to the specialist hospital I was referred to yesterday and they said my waiting time is only showing 9 weeks (not 20 weeks). Despite reassuring me that my referral time includes my wait from my local hospital... they are not counting it now!!
Cynically, I think this is because I am already in breach of the 18 week non-urgent referral target waiting time.  They also lost my referral - meaning I spent a lot of time chasing it up between the two hospitals - so adding 2 weeks to my wait time as well.

I have been told not to expect surgery until June - by which time I will be 34 weeks post referral.

I am just FED UP....
I still haven't fully returned to work (which I love) - long days on my feet at work cause lots of lower limb swelling and pain. I can't walk for very long without pain and just can't make any plans to really do much. Life is very much day by day.
If I had the money for private health care, I would pay it. I'm getting nowhere with anyone. I understand the NHS are massively strained and under pressure, but I just can't help feeling down and like my voice isn't being heard.

I know I can't really do much and I know others have it much worse. But I am just at the end of my tether..... and just needed a vent.

Offline Brandon123

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Re: Feeling down.... with no light at the end of the tunnel yet!
« Reply #1 on: March 01, 2018, 08:58:14 AM »
It is completely understandable that you are fed up and sick of it all. Long-term knee problems and consultations, waiting, surgeries, and uncertainty - not only about your knee, but also the impact on everyday life - just wears you down. Try to take it one day at a time and also try to remember that things will get better, despite the fact that the situation sucks right now.
RK sharp pain while running, diagnosis chondromalacia patellae 6/09
RK arthroscopic chondroplasty 9/09
RK rehab, recovery, 90% normal, started running again -> back to square one 5/15
RK diagnosis patellofemoral arthritis + LK diagnosis chondromalacia patellae 8/15 -> conservative treatment

Offline Celina1989

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Re: Feeling down.... with no light at the end of the tunnel yet!
« Reply #2 on: March 16, 2018, 05:09:24 AM »
Hi Leahjg, i feel sorry for you. Waiting is maybe as worse as the pain itself. You already waited a very long time and now even have to wait longer. It would fed me up as well! Not much we can do unfortunatly i think. Good luck with your surgery!