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Author Topic: I don't know what to believe?.?? Don't know what is wrong with me!  (Read 122 times)

Offline journey_never_ending_

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I am 16 years old and had pain for about 5 years with both of my knees. I had a Mri scan on the 23th October+ 24th October on both of my knees. My left knee has been locked since September. To this, it won't bend or straighten. I had my appointment on the 13th November where I was told that my Mri scan was normal and that there is nothing wrong with me even though a Mri came with chondromalicia in both of my knees along with a torn meniscus. He says my knee is locked because it is in my mind and the mind is a strong thing. He blamed it on my hamstrings even though they said that my muscles were fine. However, I still have popping and grinding and cracking in my knees as well as giving way. I also have creptis as well in both of my knees. My knees also go really discoloured such as looking bruised and red and sometimes they go purple. What can it be? He said that a lot of girls my age get chondromalicia and it goes away. To treat this, I have had physio for 18 months to try and get my muscles balanced. But, every time I had physio, I could not do pe at school because my knee has gone again or I would end up at a and e which was often by the physio. He said my structure of my knee is fine as well as well as my blood test.

So, my next step is to have my knee forcefully bend in surgery to prove the doctor's point that it is my hamstring. If it is, he will put me in a splint for a couple of weeks. If my knee does not bend, he will do keyhole sugery and have a look. If I still have pain, he is referring me to the adults (in a children's hospital) and they will do further tests. Anyone have any ideas?

Anyone had this sugery?


 

Offline Brandon123

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Re: I don't know what to believe?.?? Don't know what is wrong with me!
« Reply #1 on: November 14, 2017, 07:06:50 PM »
Good at least that your MRI scan was 'normal'. I haven't had any similar problems or surgery, so cannot really comment on that, but I do think @MrUlv had something similar done to his knee (as your doc wants to do).

You can read more in his latest post (also search for previous ones):

http://www.kneeguru.co.uk/KNEEtalk/index.php?topic=71386.0

 

Offline SuspectDevice

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Re: I don't know what to believe?.?? Don't know what is wrong with me!
« Reply #2 on: November 14, 2017, 08:58:08 PM »
Describe the pain - is it a burning/aching/stiffness which does not seem to be in one specific spot in your knees, but is mostly directly under the kneecap and the pain moves around a bit?

If so it could be what I had - chronic inflammation of the knees (synovitis).  No doctor diagnosed it, even though I explicitly asked one 'knee expert' if this was what I had.  And if you have this, surgery would be the last thing I'd try.

I fixed it 80-90% myself by reading/watching the research of Dr Scott Dye (orthopedic surgeon in the US), discussing this info to my local doctor, and following Dyes protocol of avoiding any activity which aggravated it, and 4-5mths on an anti-inflammatory (Celebrex) combined with a gradual return to leg/hip/glute/core strengthening as the inflammation subsided.  Regular stretching (hammies, lower back, psoas muscles, hip flexors) also helped me, BUT THE #1 PRIORITY WAS TO KNOCK OUT THE INFLAMMATION WITH CELEBREX. It was only after I got the inflammation under control that 5 years of misery started to resolve.

To add - I also got that red/purple discolouration you describe, and my kneecaps would get hot.  I had (still have) quite bad chondromalacia too (have had since about age 13 and I'm now 53), but that was not the source of my pain.

And further, in my experience the physiotherapists were ignorant and dangerous with their focus on muscle strengthening .  They make you do exercises which take your already compromised knees outside their envelope of function, and hence they get worse (see Dr Dyes videos on this).

Here is the link to two of Dr Dyes videos:

https://www.youtube.com/watch?v=fybd4MZe3jk

https://www.youtube.com/watch?v=jGLisqHx8sM

While these seem quite technical, the message is very simple - much modern treatment of, and surgery for knee pain is completely unnecessary, and in fact is like trying to put out a fire by throwing petrol on it.  If you truly have synovitis (= loss of tissue homeostasis as Dr Dye calls it), the treatment is quite simple, though it takes time and patience.

Feel free to print out my post and take it to your doctors if you wish - it sounds to me like they need to think again about this.  Saying it is 'Ūn your mind' concerns me.  If it is what I had, it is definitely not in your mind!

« Last Edit: November 14, 2017, 09:25:45 PM by SuspectDevice »
L Medial menisectomy May 2012
PFPS in both knees ever since
Pre-CRPS diagnosed 2014
Also looking into Dr Scott Dye's Tissue Homeostasis & Envelope of Function work
2017 - 80+% cured thanks to Dr Dye's research
2017 - first small triathlon in 5yrs
2017 - back to 30% of training volume - that'll do!

Offline journey_never_ending_

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Re: I don't know what to believe?.?? Don't know what is wrong with me!
« Reply #3 on: November 15, 2017, 04:32:45 PM »
My pain can vary. It aches and gets quite stiff. Sometimes it burns. I have the pain all over my knees. To add to what I said before, my right knee popped quite loud last night, which was not nice at all! I also have really frequent flare ups of my knees which are getting quite annoying as I can't seem to get them under control.

Offline SuspectDevice

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Re: I don't know what to believe?.?? Don't know what is wrong with me!
« Reply #4 on: November 15, 2017, 09:36:40 PM »
My pain can vary. It aches and gets quite stiff. Sometimes it burns. I have the pain all over my knees. To add to what I said before, my right knee popped quite loud last night, which was not nice at all! I also have really frequent flare ups of my knees which are getting quite annoying as I can't seem to get them under control.

Those symptoms sound a bit like Dr Dyes 'loss of tissue homeostasis' (chronic inflammation in the knee, probably of the synovial lining mostly).  My knees made horrible crunching/ripping sounds when they were at their worst.  Now they are almost silent.

The only way I could get mine under control was having 4-5 months on the anti-inflammatory Celebrex, and being very careful not to overdo things.  Some people have gut problems taking anti-inflammatories, but I had none, and it was the only way I got out of a 5 year hole.  It would be worth discussing with your Dr.  Even if you tried them for a month or so to see if you got improvement.  I felt some improvement within weeks, and while I had ups and downs over the 4-5 months, the overall trend was a definite reduction in pain and stiffness, which continued once I came off the Celebrex and was able to build up leg strength.

Just remember it may be a 6-12mth process.  If you have what I had, there is no quick fix, you have to be patient and careful not to overdo things once the knees start feeling better.
L Medial menisectomy May 2012
PFPS in both knees ever since
Pre-CRPS diagnosed 2014
Also looking into Dr Scott Dye's Tissue Homeostasis & Envelope of Function work
2017 - 80+% cured thanks to Dr Dye's research
2017 - first small triathlon in 5yrs
2017 - back to 30% of training volume - that'll do!

Offline Vickster

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Re: I don't know what to believe?.?? Don't know what is wrong with me!
« Reply #5 on: November 16, 2017, 12:22:57 PM »
I donít believe Celebrex is indicated in under 18s (or certainly not advised) and thus the OP is unlikely to be prescribed it in the UK (itís rarely prescribed anyhow, I generally have to wait for a pharmacy to order it in). Ibuprofen, then Naproxen are the prescribed NSAIDs but the OP needs to discuss pain and inflammation management with her specialist or GP
Came off bike onto concrete 9/9/09
LK arthroscopy 8/2/10
2nd scope on 16/12/10
LK New MRI shows lat & medial meniscus tear & other stuff
RK MRI lat meniscus tear
8/1/15 RK Steroid jab,
RK arthroscopy on 5/2/15
Lateral meniscus trim, excision of hoffa's fat pad, chondral stabilisation

 















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