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KNEEgeeks
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The WAITING ROOM
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Spiritual help and encouragement
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Think I'm finally getting somewhere!
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Topic: Think I'm finally getting somewhere! (Read 1194 times)
csangel
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Think I'm finally getting somewhere!
«
on:
October 04, 2012, 08:40:34 AM »
Hi,
Not quite sure where to begin, but here goes! I've got a lot of history with my knee. Had pain since I was 11 and from then been back and forth and passed around to pretty much everyone, with nothing more than 'growing pains' or 'hormonal'. (history is a bit more complicated than that, but never really amounted to a diagnosis, so not really worth going through!). Was on this forum quite a bit around that time, asking for encoragement and appreciating the understanding that everyone has without having to explain myself.
In 2005 I had an arthroscopy, after a long battle to have an MRI showed possible cartilage tearing. This once again amounted to nothing, only a 'diagnosis' of chondromalacia patella' which was apparently hormonal and I would grow out of it. ( I was 16 at the time). I did the rehab after the op, then gave up and tried to get on with life as best as I could.
The last 18 months have been so up and down. I was a passenger in a bad car accident (involving a tree... never a good idea), my grandma died, I got married, and my knee got worse.... The pain has also spread to hips, back, shoulders, wrists, etc. - pretty much all over my body, and am now on painkillers full time after giving in to it and going back to the GP. I've been referred to the orthapedics again, but went back to see a different GP inbetween, and she thinks I have something called fibromyalgia.
So anyway, I went to the hospital yesterday and had what I can honestly say was the best consultation I've experienced so far (although my knee wasn't happy at all the trapsing about!). The consultant agreed there was something wrong with my knee (such a relief to hear!) and that we need to get a diagnosis sorted out! So she's sending me for an MRI and we'll go from there. She doesn't think it's mechanical, but I guess we will see!
I'm hoping it will all go smoothly from here (probably wishful thinking, knowing my knee!), it's the first time I've been optimistic about my knee in years, and just wanted to share the relief I feel in knowing someone is on my side. I've tried explaining it to some friends, but knew you guys would understand. There were days when I thought it was all in my head and I was going crazy... 12 years of pain and no diagnosis is a tough one, and Ican't believe how positive I feel for the first time in ages....
Sorry for the essay... just wanted to encourage everyone it is possible to get somewhere as long as you don't lose hope and keep fighting. Gentle hugs and good knee days for you all.
Lucy.
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LindaM
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Re: Think I'm finally getting somewhere!
«
Reply #1 on:
October 04, 2012, 04:53:55 PM »
Hi Lucy,
Glad to hear they are going to get to the bottom of this. As to the fibro-I have had it for years since I fell and trashed a disk. You might want to see about a referral to a rheumatologist who deals with soft tissue pain as well as joint pain. My rheumatologist has never had me on pain meds for the fibro, there are other things to try first. All over joint pain can also be the start of an inflammatory arthritis, so if your doctor hasn't run all the usual tests for arthritis you should really have them done and ideally by a rheumatologist. You do not want to be on pain meds long term, and you are really young to start that(even though you need them for the moment). All pain is worsened by stress, and you surely have had more than your share. Hopefully as you get answers to your knee issues the stress will lessen and your pain will diminish as a result.
Good luck and good healing
Linda
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>20 yrs. osteo and inflammatory arthritis, fibromyalgia
meniscus repair Sept. 2009
right PKR June 2010
left PKR Feb. 2012
LisaDX
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Posts: 165
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Re: Think I'm finally getting somewhere!
«
Reply #2 on:
October 05, 2012, 06:11:29 PM »
Your story sounds so familiar! My first non-diagnosis knee surgery was at 15. Finally after 2 more, the left knee was actually kind of cured. The right knee got into the act 7 years ago and again, after 2 failed diagnostic surgeries (even a LR), I'm scheduled for a PFJR. I'm 51, so I wouldn't expect you to go down that road. I would, however, counsel you to be very careful with diagnostic surgery. They do cause harm, even though we're told they're minor.
Linda's right about stress! It can cause so many things to go wrong. Learn to slow down, maybe take up yoga (there are adaptive varieties that don't hurt your knee). It will definitely make your life better! Good luck!
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1975 Left Knee arthrotomy, no diagnosis
1984 Left Knee arthroscopy, no diagnosis
1987 Left Knee Lateral Release, successful
2007 Right Knee Lat. Release, unsuccessful
2011 chondromalacia patella, PF OA
Arthroscopy, chondroplasty
2011 Diagnosed MS
csangel
Regular Poster
Posts: 97
Liked: 0
Re: Think I'm finally getting somewhere!
«
Reply #3 on:
October 08, 2012, 03:13:13 PM »
Thank you for your replies
Linda, the consultant did say she would refer me on to rheumatology if the MRI didn't show anything fixable, and I've not been passed there before so fingers crossed that brings some results. I've had extensive blood tests done by my GP which didn't show any issues with inflammation, etc.
Lisa, After the first arthroscopy didn't show anything, I will be very careful in the future about surgery
They were convinced I had torn cartilige, and I think I was keen to get fixed! But I'd rather not go through anything like that again unless it is really necesarry.
I've levelled out again after the excitement of having someone take me seriously, and am trying to cope with the pain again... it's getting to me but am trying really hard to stay positive. Any ideas of good distractions and ways of taking your mind off things? I'm doing better at talking to friends and family about it all, but sometimes feel I keep going on and on, and makes me a bit self concious about it all...
I've been accepting help from some friends - they offered to come and do some housework and they're so good at cheering me up and keeping me company. Even took me to their house and fed me the other night! It's very strange having to accept you can't do everything you used to, and think that is going to take a bit of getting used to but I think I'm getting there.
It helps to have advice from people that really understand! Thank you
Lucy
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Think I'm finally getting somewhere!