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Author Topic: Kinespring operation  (Read 12753 times)

Offline dietrichate

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Re: Kinespring operation
« Reply #135 on: May 03, 2013, 02:15:14 PM »
Well, I am coming up to the six month point (it feels more like a year!!) op 13 Nov 12

Looks as though all the reports are broadly similar to mine - a very slow healing process for the first three months, very little bend improvement during this time without intense physio to push it past the 100 degree point. After that a still slow but steady improvement, albeit not without setbacks when pushed too much!

I can now play 18 holes of golf without too much trouble, which is a vast improvement on what it was like pre-op, biking is good, and very little problem with gym work.

I still am nowhere near ready to return to the squash court. I have tried to play some light games, but always it is very sore for a few days afterwards. I will have to keep up strengthening for another two months before I try again. My new target has been revised from the original March to September - we shall see.

As of right now, I am just better off than 6 months ago, and if the improvement continues, it will have been worth it - otherwise I will ask for a refund!!

Dave

Offline Grumpy

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Re: Kinespring operation
« Reply #136 on: May 03, 2013, 03:13:51 PM »
I had this operation at Spire Cheshire in February this year. I am just coming up to my three month check. I have had no real problem with flexibility having full ROM with a few weeks but I am having real problems with pain in my lower leg ,from the lower implant site downwards and also down the front of the shin. It is now a constant ache .Any twisting of the knee results in acute pain ,again around the lower implant area. Has anyone else had this problem ? Unfortunately the knee is more painful now than before the operation, just a different ( more intense) pain. 

Offline bendzeknees

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Re: Kinespring operation
« Reply #137 on: May 04, 2013, 02:10:43 PM »
Well here we are nearly 6 months post op I back on what I`d say is a up phase, had a 10 day holiday in the UK did alot of walking tending to get tired after 21/2 hours but my other half kept my walking straight and correctly. I also did most of the drive with a journey of 500mile plus with only 1 hour for the ferry no problems.
I just started a new block of physio were we are working on a) walking corrrectly b) strength build up , so it on the treadmill and weights for me
hope that rest of the "spring owners club" are all okay. Today is a holiday in German tradition is bike ride so it will be a few miles today no doubt with a pint or two ;D.

Good to hear you have kept moving forward. Yes, the leg strengthening is important and if you can do it on a bike then even better.

Offline bendzeknees

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Re: Kinespring operation
« Reply #138 on: May 04, 2013, 02:13:51 PM »
Well, I am coming up to the six month point (it feels more like a year!!) op 13 Nov 12

I can now play 18 holes of golf without too much trouble, which is a vast improvement on what it was like pre-op, biking is good, and very little problem with gym work.

I still am nowhere near ready to return to the squash court. I have tried to play some light games, but always it is very sore for a few days afterwards. I will have to keep up strengthening for another two months before I try again. My new target has been revised from the original March to September - we shall see.

As of right now, I am just better off than 6 months ago, and if the improvement continues, it will have been worth it - otherwise I will ask for a refund!!

Dave

Good that you are back to sporting activities. That's the aim after all - getting back to where you were, without the pain.

Likewise, I find impact activities like jogging, tennis etc a problem area. Seems to be heading in the right direction though if you are back to golfing. I'm sure the next 6 months will see further improvements.

Offline bendzeknees

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Re: Kinespring operation
« Reply #139 on: May 04, 2013, 02:19:31 PM »
I had this operation at Spire Cheshire in February this year. I am just coming up to my three month check. I have had no real problem with flexibility having full ROM with a few weeks but I am having real problems with pain in my lower leg ,from the lower implant site downwards and also down the front of the shin. It is now a constant ache .Any twisting of the knee results in acute pain ,again around the lower implant area. Has anyone else had this problem ? Unfortunately the knee is more painful now than before the operation, just a different ( more intense) pain.

I had a lot of problem at the lower end of the scar on the tibia. A bit uncomfortable in the way you describe. Felt very tender and had 2 infections, treated by standard antibiotics. Thoughts were that it was just down to the sutures under the skin which can take up to a year to dissolve. Very thin part of the leg also unlike the upper end of the scar on the thigh.

The good news it did go away but probably 4-5 months before I stopped being aware of any tenderness. Overall it was a small irritation as all other expectations were met.

Was the post-op pain always there or has it increased as you are becoming more mobile?

Offline Grumpy

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Re: Kinespring operation
« Reply #140 on: May 04, 2013, 06:02:30 PM »
I think the pain has been there since the operation, dulled at first because of the painkillers but as soon as I come off the tablets it is back full force. I am used to knee operations having had ACL reconstructions and numerous minor ops but I have never had to take painkillers in the way I do now. It is there , even at rest with the leg up and iced or resting in bed. It is not a question of mobility, I can walk, use bike ,cross trainer and leg press. I have a full range of movement, its just a deep ache/pain from the lower incision down the front of the shin to above the ankle and the pain is very acute if I attempt to twist or put any pressure on the inside of the knee . I haven't had any infections and the actual site isn't really tender. I was expecting a better outcome by this stage.

Offline Apleyboy

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Re: Kinespring operation
« Reply #141 on: May 05, 2013, 08:14:32 AM »
hi Grumpy
I had "none " knee pains shins even my heals get sore if I do to much, you ve got to think a) the spring is the size of a pen pushed in under the muscle ligments b) these go all the way down to the feet.
I is a strange op and feeling and takes time, I was doing physio on friday and for my our fault went in the garden yesterday for 5 hour today is pay back time....

Itīs a rocky road but youīll see a improvement at about 8 10 weeks

Offline sk8ing mom

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Re: Kinespring operation
« Reply #142 on: May 09, 2013, 02:11:28 AM »
I just went to OHSU today with my husband to see whether he could qualify for the KineSpring study. His primary care doc had recommended it and written the referral. My husband is 45 with bad medial compartment OA in his R knee.

When I heard about KineSpring I went online and found out all about it to get ready for this appointment. I was getting really excited for my husband - finally another option other than waiting as long as possible for the eventual TKA. I tried to get my husband interested too, but he wouldn't even watch a whole video on YouTube. I guess his intuition to avoid getting his hopes up was right. Turns out his OA is too bad to qualify for the study - his is grade 4 and they are only including grades 2-3.

Right now KineSpring is not available in the US outside of a trial. As this current study is a phase 2 trial it probably won't be FDA approved and widely available in the US for another 5 years - at least according to the PA we spoke with. Given that timeline and the fact that we don't have the funds to pay cash for this elsewhere, my next question is just academic.  Nonetheless, I'm really curious - does anyone have experience or know of success with KineSpring for grade 4 OA?

Offline bendzeknees

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Re: Kinespring operation
« Reply #143 on: May 12, 2013, 09:35:08 AM »


Right now KineSpring is not available in the US outside of a trial. As this current study is a phase 2 trial it probably won't be FDA approved and widely available in the US for another 5 years - at least according to the PA we spoke with. Given that timeline and the fact that we don't have the funds to pay cash for this elsewhere, my next question is just academic.  Nonetheless, I'm really curious - does anyone have experience or know of success with KineSpring for grade 4 OA?

Hi - I have grade 3/4 medial OA and had the Kinespring fitted last year. It was a success and the pain has gone. It's also still in trial in the UK and as such I opted for this procedure knowing the study was not complete.

Is no-one offering it as a trial in the US? There are a few US people posting on here who have had it done.


Offline Grumpy

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Re: Kinespring operation
« Reply #144 on: May 12, 2013, 08:37:15 PM »
Not a good weekend, pain when walking, pain when standing , pain when sitting. I don't think this is working for me. I can do much less now than before the operation. At 12 weeks Im sure things should be better. I see the consultant this week and am seriously considering having the spring removed.  :-\

Offline sk8ing mom

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Re: Kinespring operation
« Reply #145 on: May 15, 2013, 06:21:42 PM »

Hi - I have grade 3/4 medial OA and had the Kinespring fitted last year. It was a success and the pain has gone. It's also still in trial in the UK and as such I opted for this procedure knowing the study was not complete.

Is no-one offering it as a trial in the US? There are a few US people posting on here who have had it done.

Hi bendzeknees,

That's what my husband tried to do - he tried to get into a trial. The current trial in the US is a phase 2 trial and is only in 2 places - Indiana and Portland, Oregon. Fortunately we live in Portland. Unfortunately the trial entry criteria are strict - only grade 2-3 OA and no significant OA outside of the medial compartment. My husband's OA is clearly grade 4 in the medial compartment (large osteophytes, severe joint space narrowing - bone on bone, marked sclerosis, and bone deformity), and he also has some milder medial patello-femoral OA. So there's no way they would let him join the trial. We asked if we could get it in the US outside of a trial and were told no.

Bendzeknees - do you have a picture of your 'before' XR online? I'm curious to compare it with my husband's and with the XR in the published case report from Australia. (The XR from Australia looks much more like my husband's good L knee than his bad R knee.)

Offline Grumpy

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Re: Kinespring operation
« Reply #146 on: May 17, 2013, 10:15:58 PM »
Saw the consultant again this week who is very happy with my knee and says the pain is soft tissue which can continue for up to six months. I'm back on the painkillers but the consultant says its all good and nothing occurring that is unexpected. Just a case of grin and bear it and it will all be worth it in the end. ;D

Offline Wobbley Chester

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Re: Kinespring operation
« Reply #147 on: May 20, 2013, 05:28:43 AM »
Five months post op...it gets worse (weeks 8-12) before it gets better.  It has been better.  Just enjoyed an easy 20+ mile bike ride on flat road:). I don't plan on pushing this but rather enjoying a much pain-less version of life.

Glad to hear most are improving.

WC

Offline Apleyboy

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Re: Kinespring operation
« Reply #148 on: May 20, 2013, 06:59:27 AM »
Yes it a very rocky road, I thought all was good doing some good work with the phsyio, running yes not done that for years, weights etc. than we added 5 kg to the "leg curl" and 8 to leg press . I m paying the price.. so it slow down for a week or so.
This opīs is very diffent to orther I ve had weird one step forward two step then 4 backwards. but I must say my main problem before the op was "rest" pain in bed and that was taking alot of my sleep. That as all gone so that a problem solved
 Their is a alot of mental nerve/ pressure on this operation, sometime hard to keep going but a few weeks later you think what was that about.
keep going it pays off later

Offline timm

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Re: Kinespring operation
« Reply #149 on: May 20, 2013, 03:02:32 PM »
Two weeks until my surgery.  I'm looking forward to not having pain every step I take.  I've been lucky enough to be able to work on strength and flexibility in the leg and I hope that will help with recovery.  Thanks again for all those who have posted their reports.


 














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