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Author Topic: 4.5 years and eight surgeries on my TPF, anyone given up and gone for amputation  (Read 7360 times)

Offline KartBoy

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Very dissappointing consultation with peripheral nerve injury unit. The registrar and consultant were very good but basically Dr Sinisi's opinion is that pain is coming from within the joint, not from one of the major nerves. The cartilage might be satisfactory but he simply said that an injury as bad as mine was, followed by multiple surgeries would never heal fully. The registrar was also very honest, he could see the impact of the news on me but said messing around trying to isolate individual nerves responsible for the pain is simply not currently possible with risks far outweighing possible gains.

So for now think I need to get back to doctors and see if we can come up with a combination of pain medication that my body can cope with. I think I'm getting too used to the ones I'm on, which don't seem to keeping up but having real trouble on them so not really an option just too take more.

Its rough right now but just need to take things one day at a time while I figure out what to do next.

7th Mar 08 - Pedestrian hit by car
10th Mar 08 - TPF (Plate + 6 screws)
12th Mar 08 - TPF Revision
Feb 09: Hardware removed + scope
Jun 10: ACI Stage I
Aug 10: ACI II (Stanmore)
Oct  11 - MRI + Scope (In pain)
Aug 12 - MRI + Scope (In more pain)
Sep 12 - TKR ruled out :(

Offline environmentalist

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Hi again Kartboy, i read your last message and it made me really sad one more time. I think we are so unlucky to have that kind of fracture, it is very complicated and what doctors have said to me so far is not sufficient. The hospital is too crowded, there are so many patients so doctors don't have enough time to explain everything to the patients. That's why i am gonna see another doctor who is prof and i hope he will explain to me everything. unfortunately i have to pay a lot of money to see that prof doctor.
if i don't bother you, i wanna ask you something. i still don't know when the screws can be removed of the bones. To get MRI, screws must be removed and i guess i will need to get MRI to know injury's situation. One more question, is it a hard surgery to be removed screws? Can i will be let to bear weight after the operation? Sorry about my English by the way, i have just learnt medical words in english.
Best wishes :)
S. Yılmaz
Environmental Engineer

Offline Grandhoux

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Hi, everyone.

I don't visit the forum very much now as, basically, my knee has improved drastically. I'm due to have the last bit of hardware (plate and 4 screws) removed next month after the osteotomy and hopefully that's it. The 7th operation although a couple have just been minor screw removals.

No real pain, now, the surgeon says my left leg is still 1.5 cm shorter than the right which does affect walking and balance but not too drastic. I can walk a reasonable distance but have tended to avoid it ... that must change, I need to get fit again, but at 58 it's not as important as it would be at 28!

The insurance company are playing around and that's a worry. In the past 4.5 years my life has been turned around by this accident. We used to be 'comfortable' but now we're relatively poor as all our savings are spent and our French property, if we could sell it, drastically reduced in value! This has quite an effect on our way of life. TPF has such widespread and long-lasting effects. We insist on motor insurance for all parties to cover us for such eventualities and then get screwed!

Andy (Kartboy) I really feel for you, you've had the worst of it all and to be left with so much pain is just unthinkable. I wish there was something I could say or do to help; we've travelled quite a distance together since our respective accidents. If you're still contemplating amputation and it's available then my thinking is do it, you may get a good part of your life back. I know I thought about it at one time when the pain was bad and recovery seemed impossible; it wasn't such a bad option although I was never given it.

All the best,

Dave
 
Accident in France 1st December 08. TPF, plate and 7 screws
22 weeks later, now only 6 screws!
11 months, slipped and broke Femur. Plate and further 10 screws in femur
16 months now only 15 screws, another came out!
2 years hardware removed.
January 2012 High Tibial Osteotomy to straighten leg.
tkr?

 














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