Advertisement
Homepage
Information hub
Bulletin board
Forum archives
News:
To donate to the site -
http://www.kneeguru.co.uk/KNEEnotes/node/2124
To contact the helpdesk -
http://www.kneeguru.co.uk/helpdesk/
Home
Help
Search
Calendar
Login
Register
Advertisement
Advertisement
1 Hour
1 Day
1 Week
1 Month
Forever
Quick Login
Advertisement
KNEEgeeks
»
The WAITING ROOM
»
Spiritual help and encouragement
(Moderators:
The KNEEguru
,
ACIMod
) »
Really need some support
0
Likes
« previous
next »
Print
Pages: [
1
]
Go Down
Author
Topic: Really need some support (Read 765 times)
veganbee
Regular Poster
Posts: 88
Liked: 0
Really need some support
«
on:
August 16, 2012, 04:10:29 PM »
Hi all
I'm based in the uk.
I'm scheduled to have a trochleoplasty at the end of September and have now been informed that AXA, my work health insurance, won't cover it as they see it as 'experimental'. I feel like the wind has been sucked out of me
I won't be able to get it covered under another insurer as it is for an existing condition, and I cannot get the procedure done on the NHS.
I feel like the only option is to pay for it myself, but this just makes me feel sick. I'm 23, I've been in full time work for a year and although it does pay well for a graduate job (I'm training to be a lawyer) I have only just paid off my debts from being a student. I also need the surgery on both my knees, so would have to pay twice. I know the consultant's fees are £2,000, and I can't even imagine how much the rest (hospital stay etc, consultant wants me in 3 nights) will total. My brain is thinking of getting a loan but god knows.
I just feel hopeless. AXA told me this information this afternoon, which was a blow because I've been communicating with them about it for months and they sent me a letter last week saying the surgery would be covered. I have been sat at work trying to hold it together but just can't see any light at the end of the tunnel.
Logged
Lottiefox
SuperKNEEgeek
Posts: 2438
Liked: 3
Re: Really need some support
«
Reply #1 on:
August 16, 2012, 05:53:21 PM »
The joy of health insurance. You can fight this - insurers can change their minds. The other option is to see if your proposed surgeon has an NHS list that you can go on to. NHS do carry out trocheoplasties as far as I know - who has said they will not do it via NHS? . There is a member on here who had hers done in London a couple of years back - I can get her to check out this thread via facebook if you want me to as I am not sure how often she visits as her surgery has been pretty successful! I am pretty sure she was on the NHS but I cannot be 100% sure. have you spoken to your surgeon about this? He/She may need to put forward a case to AXA to justify why the procedure needs doing. If he can convince them that this is actually cost effective (e.g. it preserves your knee....a knee replacement will cost them much more in the long run.....) then they may reconsider.
Self funding is VERY costly. I self funded a relatively simple foot surgery with my surgeon's fees being a cheap £1200 but the hospital fees for only one night came to over £4,000 plus X-rays, scans etc etc. However, if it is the only way (it was for me - NHS might have done it but I was not convinced they'd do it right plus I wanted only one surgeon and he didn't do any NHS work....it paid for me as I had nasty complications and being able to call my surgeon's secm, have her text him in theatre and then see me within 2 hours of the call was worth every penny!). There are schemes to fund - mine was a BMI card with 6 months interest free and I just about coped with my Mum paying the surgeon's fee and then hubby helping with other bits!
Don't give up. There is a way if you fight for it. hang in there. We all understand on here, it sucks when plans get scuppered. Good luck and let me know if you want me to get the KGer to check in - think her KG name was anihine?
Lottie
Logged
Bilateral patella OA since 2009, no surgeries.
Euflexxa working well x3 to current
Right forefoot CRPS post fusion surgery 2011
Refusing to let the ailing parts stop me....
Lottiefox
SuperKNEEgeek
Posts: 2438
Liked: 3
Re: Really need some support
«
Reply #2 on:
August 16, 2012, 05:54:41 PM »
Also - just a thought, another member on here Vickster had issues with an insurer and may have words of wisdom - pretty sure she was also with AXA. Check out her posts and maybe drop her a PM as I know she is still active here.
Logged
Bilateral patella OA since 2009, no surgeries.
Euflexxa working well x3 to current
Right forefoot CRPS post fusion surgery 2011
Refusing to let the ailing parts stop me....
Vickster
SuperKNEEgeek
Posts: 1391
Liked: 5
Neelie knee!
Re: Really need some support
«
Reply #3 on:
August 16, 2012, 06:43:03 PM »
Hi guys - cheers Lottie - nope, not AXA but yes, lots of issues with another insurer. I did post on the other thread before seeing this one
The best thing is to talk to the surgeon's secretary, they deal with this all the time. I am not sure what a trocleoplasty is - is there anything needed other than the surgeon's time and a skill - i.e. cells growing, bits from cadavers? I would think a big open knee op with 3 days in hospital plus all the rehab etc, would run to 10k + if self funding (as I guess the insurers wouldn't pay for follow up or physio either)? Maybe try to get your HR department involved, sometimes they have certain powers especially around PHI contract renewal time
Logged
Came off bike onto concrete 9/9/09
LK arthroscopy 8/2/10
Partial meniscectomy, mfx not needed - smooth scar tissue over OC lesion, shaving of lateral aspect of patella - grade III defect
2nd scope on 16/12/10, chondroplasty & Durolane jab
Cartilage damage on femur & tibia
Knee being ignored ;-)
veganbee
Regular Poster
Posts: 88
Liked: 0
Re: Really need some support
«
Reply #4 on:
August 16, 2012, 07:34:38 PM »
Oh wow you guys, thank you for your replies! My surgeon used to do nhs work and he was the one who did anniehine's op in London. He has written to the insurers and it's on this basis they've refused :-( I spoke to someone again just now and he said it's because the op isn't nice approved and therefore not proven to work. But I have read half a dozen journals documenting the success... do you think it's still worth asking him to go back to them again?
Not sure about whether they'll pay for rehab physio as they're playing for my physio at the moment... ugh so annoying can do without this!
Essentially would love to hear whether, in these circumstances it's still likely I will convince them to cough up if my consultant can convince them it's not experimental?
Logged
Vickster
SuperKNEEgeek
Posts: 1391
Liked: 5
Neelie knee!
Re: Really need some support
«
Reply #5 on:
August 16, 2012, 07:58:21 PM »
I had the same issue getting approved for a MACI cartilage repair, same silliness with NICE. They said they would approve only as part of a trial, surgeon contacted them on this basis and they approved. My initial surgeon was going to do AMIC, wrote to them and they point blank refused as it wasn't approved by NICE, nor part of a trial - hence the referral to the other surgeon
Talk to the surgeon / his sec and see what they can do. Perhaps refer you to an NHS surgeon? Adrian Wilson in Basingstoke is a patella specialist and does NHS work, perhaps you could see him?
http://www.hampshireknee.co.uk/
Will mean a wait though I fear and a load of faff
Good luck
«
Last Edit: August 16, 2012, 08:03:11 PM by Vickster
»
Logged
Came off bike onto concrete 9/9/09
LK arthroscopy 8/2/10
Partial meniscectomy, mfx not needed - smooth scar tissue over OC lesion, shaving of lateral aspect of patella - grade III defect
2nd scope on 16/12/10, chondroplasty & Durolane jab
Cartilage damage on femur & tibia
Knee being ignored ;-)
veganbee
Regular Poster
Posts: 88
Liked: 0
Re: Really need some support
«
Reply #6 on:
August 20, 2012, 10:20:04 AM »
Thanks Vickster.
Unfortunately the procedure isn't currently done by any NHS surgeons, and there are only around 3 in the UK in total that are able to perform it - I'm not sure but I'm not aware that Adrian Wilson is one.
I really appreciate you taking the time to help me though, and I'm feeling much more hopeful now. I spoke to my surgeon and he is writing to the insurance company again, and my employer are hopefully going to put a bit of pressure on them as well (they pay for my health insurance) so its not over yet! Keeping fingers crossed they will pay for at least some of it, if not all.
Thanks again!
Bee
Logged
veganbee
Regular Poster
Posts: 88
Liked: 0
Re: Really need some support
«
Reply #7 on:
August 22, 2012, 07:14:25 PM »
Hi everyone. Wee update - my OS's secretary rang me yesterday to inform me my OS has requested a conference call with a senior staff member, so hopefully something will come of that! Been in lots of pain for the past 24 hours, so really counting down to my op at the moment!!
Logged
Vickster
SuperKNEEgeek
Posts: 1391
Liked: 5
Neelie knee!
Re: Really need some support
«
Reply #8 on:
August 22, 2012, 07:28:32 PM »
Fingers crossed for you. Good luck
Logged
Came off bike onto concrete 9/9/09
LK arthroscopy 8/2/10
Partial meniscectomy, mfx not needed - smooth scar tissue over OC lesion, shaving of lateral aspect of patella - grade III defect
2nd scope on 16/12/10, chondroplasty & Durolane jab
Cartilage damage on femur & tibia
Knee being ignored ;-)
Print
Pages: [
1
]
Go Up
« previous
next »
KNEEgeeks
»
The WAITING ROOM
»
Spiritual help and encouragement
(Moderators:
The KNEEguru
,
ACIMod
) »
Really need some support
support