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Author Topic: Bit late in the day to start this, but thought I would share anyway  (Read 492 times)

Offline cornish_girl

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Issues with my left knee started when I was 14.  The first time it subluxed I was on a trampoline and landed awkawardly.  The second time I was running through the classroom, it came out and pulled everything so far round that they chipped the bottom of my femur.  Before this happened no one believed me when I said the knee cap came out.

Anyway 14 years on I started getting new pains, approx beginning of this year, no idea what it was, but it felt like something was trapping like a nerve.  Still dont know what it is.  Went to my GP who opened up the whole case again.
This was Feb of this year and I was given options of where and who I wanted I see of the NHS 'Choose and Book' system.  My mid March I was seeing the consultant in a private hospital which was being funded by the NHS.
I was x-rayed, an MRI scan followed and I was booked in for a knee athroscopy for exploratory reasons, on the 21st May.  This was just to verify what he already thought which was i have no groove and its slightly domed also my ligament is ruptured.
The day came, I hadnt eaten since 6 the night before and I wasnt in surgery until midday (approx).  Twenty mins later I was in recovery.  Back to my room for a few hours and I still hadnt eaten.  The physio came in too talk to me about basic exercises and crutches.  Had a practice on the crutches going up and downstairs and nearly passed out due to no food, an anesthetic, and strong painkillers.
Left the hospital, got home and had to go straight back as my shoe had filled with blood so the dressings had to be changed.

First week or so was fine, then one night about midnight, I stretched my leg in bed and that trapping sensation returned but didnt stop.  The pain was immense, I was gripping my bed so tightly in the hope it would stop but it didnt.  I had to shout for my rents who stayed up till two with me and the pain still hadnt gone.  Every tiny movement caused great pain.  My mum got me some codiene and I told them to go to bed as there wasnt anything they could.  The pain lasted all night.  I tried to keep myself awake as when I fell asleep my leg would spasm. Six o clock rolled around and it still had not gone, too make matters worse I needed the loo and I couldnt move.  Even debated getting a tray underneath me to go but I couldnt prop myself up.  In the end I had to very slowly edge myself to the end of the bed and put my foot to the floor, as soon as it was on the floor it stopped.  The next day I was doped up on painkillers and could hardly talk.  To this day I dont know what that was but I pray to god I never get that again, touch wood I dont.

This really put me back as I was afraid to do anything.  Eventually i started to walk up and down the garden more and then the pain started in my calf.  I thought it was muscle atrophy at first as I couldnt put my foot on the floor and the pain was terrible.  Off to the doctors on a Thursday, he told me to carry on with exercises and stretching to help the muscle.  It just got worse and worse, back to the doctors on the Monday, he sent me to the DVT clinic to rule it out, I thought and he thought it cant be DVT as I dont fit the criteria.
I was scanned and low and behold, DVT, even the nurse in the clinic thought it couldnt be that as again I dont fit the criteria.  Seven days of injections and warfarin for three months.  Again this set my walking and exercises back.

Its two months on Saturday since a basic knee arthroscopy, well actually it turns out he removed some loose cartalidge under the knee cap, which i was not told about until about four weeks later! And not by the consultant!  Two months! and im still on one crutch.  Mentally unstable doesnt come close.  The quad muscle is non exsistent, I am working on exercises which is difficult when the knee swells due to the DVT.  In the morning I try not to use the crutch as thats when its at its strongest but I hobble badly, by the afternoon the leg starts to buckle.

I need further surgery but I have great doubts now.  I dont know whether to go for it as I have come this far or just put up with the subluxing for the rest of my life.  The DVT really worries me now also.

Anyway, thats my story so far, if I have further surgery I can add to this or I can document my current recovery.

Apologies for being such a long story and if this is in the wrong place!

Offline Hiker girl

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Re: Bit late in the day to start this, but thought I would share anyway
« Reply #1 on: July 19, 2012, 08:09:45 PM »
I am so sorry you are going through this experience.  But glad you reached out to share.  At some point in our knee pain experience it just seems too much and others don't quite get it. 

I am constantly having setbacks whether I work too hard at home pt or whether they work me too hard at PT.  The result is my knee swells the size of a cantaloupe making even passive rom difficult.  I still take my crutches to work b/c at the end of the day I am unsteady and weak in the knee. 

Hang in there,

Debbie
Rt. knee pain while hiking 08/10
Rt. knee giving out jogging 10/10
Rt. knee unable to move 12/10
Twisted rt knee 02/11
Saw GP 04/11
PT 05/11  failed
MRI  clean 06/11
1st OS, nothing wrong, fired him.
2nd OS, cortisone shot 12/11 
Scope 05/12, fat pad impingement, cleaned and reshaped.

Offline crankerchick

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Re: Bit late in the day to start this, but thought I would share anyway
« Reply #2 on: July 19, 2012, 09:40:28 PM »
What further surgery is needed? It sounds like you have gone through all of this and nothing useful was even done during the  arthroscopy to address your problems. While the fear of another DVT is valid, the fear of another useless surgery should also be in your mind.
Mar '07 - plica excision
Oct '09 - femoral + tibial derotational osteotomy & TTT
Aug '10 - hardware removal
"You control your leg. Don't let it control you." -Smart trainer
"Get your a$$ in gear and go for it! Nothing will happen until you make it!" -Smart doctor

Offline cornish_girl

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Re: Bit late in the day to start this, but thought I would share anyway
« Reply #3 on: July 20, 2012, 05:41:01 AM »
Thank you both for the comments.  My biggest issue at the minute is I just cant walk properly without hobbling badly and
gripping my toes to the floor.  Just this morning I am trying my new thigh high compression stockings.  Ive had them on for
half an hour and I can say I hate them.  I was wearing knee high for the first few days which were fine.  I hate having anything this tight
over the knee it just feels like the tights are going to push the kneecap out and because I think that the walking is affected even more,
i know its probably all pyhscological but I really dont like it.

The knee arthroscopy was purely for exploratory reasons, he wasnt going to do anything except verify his thoughts.  But while he was in there he apparently took out loose cartalidge from under the knee cap.

As for further surgery I think its a hamstring graft that he wants to do, I think, he just said he wants to reinforce the ligament with pieces of the
hamstring

 














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