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Author Topic: Update and your thoughts? (Long)  (Read 3901 times)

Offline RLE

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Re: Update and your thoughts? (Long)
« Reply #30 on: July 04, 2012, 09:47:27 PM »
Thanks for the advice. Now not sure what grafts are since I pretty much checked out every time they mentioned LR. If he did do my surgery I'd just turn myself over to him. I trust him. My little local OS who I like a lot and whose PT I see (and who gives me my tiny pain med dose monthly) said last week that I might be able to convince him not to do a LR if I keep making progress. Hey, one year later and I can put weight on my peg leg! The world is my oyster!

« Last Edit: July 11, 2012, 01:19:30 AM by RLE »
Accident 2011: permanent dislocation, hole under the patella, bone fragments/debris embedded, scar tissue, 3 torn ligaments, fracture, cartilage sheared off, contracture
2011 MUA
PT on-going
2012 MPFL reconstruction
        TTT
        Arthroscopy/clean out
God bless Dr. T.

Offline crankerchick

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Re: Update and your thoughts? (Long)
« Reply #31 on: July 05, 2012, 03:57:18 PM »
I would say that part of finding an OS since Dr. T is not an option is to get more familiar with what exactly he would do, specifically what the graft is for. You can request your records from his office which will detail his notes, and probably even phone the office and just ask the question of his nurse. Most doctors offices allow a patient to communicate questions for the doctor through a nurse or secretary, who will then phone the patient back with the answer.

You can't find a doctor to do what Dr. T would do without knowing what all he would do.

I'm a big believer in the patient knowing what is going on and having a good understanding of what is being suggested before proceeding. That's just how I roll, it's what helps me feel comfortable. In this case, it might help you better track down a surgeon that shares Dr. T's philosophy and approach.

Dr. T is great, but he's not the only PF specialist out there and he's not the only one that won't do a lateral release on you, even though it might not seem like that.
Mar '07 - plica excision
Oct '09 - femoral + tibial derotational osteotomy & TTT
Aug '10 - hardware removal
"You control your leg. Don't let it control you." -Smart trainer
"Get your a$$ in gear and go for it! Nothing will happen until you make it!" -Smart doctor

Offline RLE

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Re: Update and your thoughts? (Long)
« Reply #32 on: August 22, 2012, 04:15:02 PM »
I would say that part of finding an OS since Dr. T is not an option is to get more familiar with what exactly he would do, specifically what the graft is for. You can request your records from his office which will detail his notes, and probably even phone the office and just ask the question of his nurse. Most doctors offices allow a patient to communicate questions for the doctor through a nurse or secretary, who will then phone the patient back with the answer.

You can't find a doctor to do what Dr. T would do without knowing what all he would do.

I'm a big believer in the patient knowing what is going on and having a good understanding of what is being suggested before proceeding. That's just how I roll, it's what helps me feel comfortable. In this case, it might help you better track down a surgeon that shares Dr. T's philosophy and approach.

Dr. T is great, but he's not the only PF specialist out there and he's not the only one that won't do a lateral release on you, even though it might not seem like that.
I totally 100% agree with you about patients being educated and knowing what exactly is going on and what will be done. The problem is that I am not like you. I really struggle to understand the very basics while you seem to have a strong grasp of all these procedures not to mention, anatomy etc. So I didn't really understand what would be done. Plus what happened was as I suspected, there were all kinds of things going on in my knee that couldn't be seen on CT, x-rays or MRIs. After my surgery last week Dr. T sat down next to my mother and told her no wonder I was in unendurable pain for a year. Turned out that my knee was literally completely destroyed by the accident. I still don't understand-but there was a hole (where the cartilage was?) that my bone was falling into when I tried to walk (hence the unholy pain)

He said under my patella was completely filled with scar tissue. And I had virtually no cartilage left. None of this showed up on my tests. I could see when I spoke to him that he had thought deeply when I was under about what was the right thing to do. The surgery was 5 1/2 hours. He said that in the end he decided to try and "salvage" my knee even though the possiblity was great that I'll soon need a TKR. I know he used all his experience and knowledge and still wasn't sure. But until he went in he didn't know. He ended up cleaning me up, removing my scar tissue, loosening a ligament because I had a contracture, then doing a TTT (to help center the patella? which was permanently dislocated way to the side of my knee) and an MPFL. I won't lie-I thought I knew pain-but that was beyond my wildest imagination.
I think that my case was probably more extreme and complex than some on here. I probably should have had a TKR but I'm not sure with the extreme dislocation of my patella it would have worked(?) He said the TTT would help with a future knee replacement since my patella is now centered.
The truth is I was exhausted and out of doctors and couldn't work through the pain any more to even try and find anyone who'd understand all the stuff going on and put it together. I wish I didn't get so stressed out but as I said the pain limited everything about my life. Anyway, hopefully it will work out. Dr. T, Jessica and the nurses were wonderful. They all knew about Kneeguru.
« Last Edit: August 22, 2012, 04:18:43 PM by RLE »
Accident 2011: permanent dislocation, hole under the patella, bone fragments/debris embedded, scar tissue, 3 torn ligaments, fracture, cartilage sheared off, contracture
2011 MUA
PT on-going
2012 MPFL reconstruction
        TTT
        Arthroscopy/clean out
God bless Dr. T.

Offline knee2no

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Re: Update and your thoughts? (Long)
« Reply #33 on: August 23, 2012, 01:12:26 PM »
Quote
he surgery was 5 1/2 hours. He said that in the end he decided to try and "salvage" my knee even though the possiblity was great that I'll soon need a TKR. I know he used all his experience and knowledge and still wasn't sure. But until he went in he didn't know. He ended up cleaning me up, removing my scar tissue, loosening a ligament because I had a contracture, then doing a TTT (to help center the patella? which was permanently dislocated way to the side of my knee) and an MPFL. I won't lie-I thought I knew pain-but that was beyond my wildest imagination.
Quote

RLE Good for you but I thought Dr. T is a year long wait so how did you move to the head of the line?  Loosening a ligament sounds like you had a lateral release along with your TTT.
I will remember that there is art to medicine as well as science, and that warmth, sympathy, and understanding may outweigh the surgeon's knife or the chemist's drug.

I will not be ashamed to say "I know not", nor will I fail to call in my colleagues when the skills of another are needed.

Offline RLE

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Re: Update and your thoughts? (Long)
« Reply #34 on: August 23, 2012, 01:53:30 PM »
I was on the waiting list and since August is a pretty dead month someone cancelled and I got a call. Sometimes they have a cancellation and they go down the list and no one takes it. That's what I was told.
I had a contracture. It was very tight. A loosening is not a LR or even a lengthening. Nothing is cut. That's the difference.
Accident 2011: permanent dislocation, hole under the patella, bone fragments/debris embedded, scar tissue, 3 torn ligaments, fracture, cartilage sheared off, contracture
2011 MUA
PT on-going
2012 MPFL reconstruction
        TTT
        Arthroscopy/clean out
God bless Dr. T.

Offline allyd

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Re: Update and your thoughts? (Long)
« Reply #35 on: August 23, 2012, 04:54:54 PM »
I’d be interested to know what surgical method is used for “loosening” without taking a knife of some sort to the ligament/area? As on face value… it doesn’t makes sense?  Maybe entirely possible and we’re jumping to conclusions based on limited knowledge, which is why I’m curious.

Glad you got everything sorted out. Good luck on your recovery, and better days ahead…
04/09 RK - Dislocated Patella & Grade III MCL Tear
06/10 RK - Re-Dislocation Patella
09/11 RK - MPFLr + Lateral Lengthening

Offline knee2no

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Re: Update and your thoughts? (Long)
« Reply #36 on: August 23, 2012, 06:52:59 PM »
Maybe they renamed the lateral release the lateral loosening due to all the bad press  ::)
I will remember that there is art to medicine as well as science, and that warmth, sympathy, and understanding may outweigh the surgeon's knife or the chemist's drug.

I will not be ashamed to say "I know not", nor will I fail to call in my colleagues when the skills of another are needed.

Offline crankerchick

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Re: Update and your thoughts? (Long)
« Reply #37 on: August 24, 2012, 04:45:11 PM »
RLE, it could be tone is not conveyed well on the internet, but you sound pretty apologetic in your reply to me (which I'm just now seeing thanks to the notification emails that never seem to come for me...). I wasn't attacking you (and I hope it didn't come off that way), just trying to help give you some hope of finding a surgeon who could help you since Dr. T's wait was so long. Glad you were able to sneak in on the waiting list, that's awesome! Hope your recovery is as smooth as can be.
Mar '07 - plica excision
Oct '09 - femoral + tibial derotational osteotomy & TTT
Aug '10 - hardware removal
"You control your leg. Don't let it control you." -Smart trainer
"Get your a$$ in gear and go for it! Nothing will happen until you make it!" -Smart doctor

Offline RLE

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Re: Update and your thoughts? (Long)
« Reply #38 on: August 26, 2012, 12:32:18 AM »
RLE, it could be tone is not conveyed well on the internet, but you sound pretty apologetic in your reply to me (which I'm just now seeing thanks to the notification emails that never seem to come for me...). I wasn't attacking you (and I hope it didn't come off that way), just trying to help give you some hope of finding a surgeon who could help you since Dr. T's wait was so long. Glad you were able to sneak in on the waiting list, that's awesome! Hope your recovery is as smooth as can be.
I understand. We're all in a lot of pain and dealing with a lot of fear and anxiety and sometimes despair and hopelessness and I try and take it with a grain of salt. I know I've had physical pain this last year that I didn't know possible, at least without a morphine drip which for some reason is refused knee patients.
I'm sure there are good surgeons out there, I know some of the people who post here have found them. I also have hope because I saw that there are lots of residents being trained now to think differently which is desperately needed.
Accident 2011: permanent dislocation, hole under the patella, bone fragments/debris embedded, scar tissue, 3 torn ligaments, fracture, cartilage sheared off, contracture
2011 MUA
PT on-going
2012 MPFL reconstruction
        TTT
        Arthroscopy/clean out
God bless Dr. T.

Offline captainruss

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Re: Update and your thoughts? (Long)
« Reply #39 on: August 28, 2012, 01:58:19 AM »
I would sure like someone to tell me about a OS who could do something with my knee.

I am so tired of being told there is nothing they can do.  I have fallen twice now and caused more injury than I can stand.

My knee does not ever get better and despite eight failed TKR's...all I am told is just because I am crippled now and was not crippled prior to surgery, it is not malpractice.  A bad outcome is not grounds for malpractice.

Russ
80 Shattered patella 5 surg
09  TKR 
09  MUA
09  MUA
09  Knee infected??
10  TKR  Scar Tissue
10  2nd OS  Diagnosis Infection
10  TKR with antibiotic spacer, no joint
4/11  TKR
11  TKR PT
11  TKR
11  TKR  AF diagosis
12/11  HO diagnosed
2012  Intractable Pain
2012  OS split
amputation possible?

Offline RLE

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Re: Update and your thoughts? (Long)
« Reply #40 on: August 30, 2012, 02:00:24 AM »
You need a good PF specialist. You know who I like but there are others on here as well. I found that a good surgeon is worth his/her weight in gold. Few and far between but I know a good doctor can fix you.
Accident 2011: permanent dislocation, hole under the patella, bone fragments/debris embedded, scar tissue, 3 torn ligaments, fracture, cartilage sheared off, contracture
2011 MUA
PT on-going
2012 MPFL reconstruction
        TTT
        Arthroscopy/clean out
God bless Dr. T.