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KNEE ARTHRITIS - Articular cartilage repair
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CARTILAGE REPAIR - Juvenile cell tissue transplantation (Denovo ET and Denovo NT)
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Denovo RT Surgery/Recovery
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Topic: Denovo RT Surgery/Recovery (Read 2188 times)
gijon
MICROgeek (<20 posts)
Posts: 10
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Denovo RT Surgery/Recovery
«
on:
April 10, 2012, 06:13:54 PM »
I know these posts should go in the Rehab part of the board but I really just want to share my story with others who are facing a DeNovo surgery or have gone through it and to also answer any questions anybody may have about the procedure, which so far, is a resounding success. First off a little background:
I am 29 years old, I am a police officer and a National Guard soldier with two deployments to Iraq and Afghanistan. After those two deployments and the increased weight you carry with the body armor, my right knee began to falter and give me pain. My journey started on August 10th, 2011. I underwent a microfracture to repair a defected cartilage site of 1.4x1.9 cm. I had a tough recovery as the swelling on my knee was of gargantuan proportions. Even then, it felt like there was something wrong over the surgery site. There was just this odd, unexplainable pain that would never go away. I just chalked it up to the surgery and did not think anything of it. When I finally started weight bearing (nearly 2 months after surgery), I immediately felt like something was really wrong. My OS kept trying to assure me that it was just the immature cartilage still developing and that it will get better over time. It did seem to get better but it still hurt and my gait was God awful. Something just never felt right in the knee. Every time I made a step, when the right leg would go from flexing to extending, there was a dull stabbing pain where the surgery site was. On March 6th, 2012, I underwent another surgery to determine how well the cartilage settled. My OS told me that when he got in there, just looking at the previous surgery site, everything looked fine. Then, he said, he barely touched the formed cartilage and all of it just broke apart like a house of cards and flaked away. OS immediately cut open the knee and performed a DeNovo implant.
Immediately after surgery, I was placed in a full leg brace and my leg was completely wrapped from thigh to foot which was extremely annoying. It took a week to get that wrap off. My recovery has been pretty remarkable thus far. When I first got my CPM, I could not go over 25 degrees. Then I went to my physical therapist and after she worked on it for an hour, I went back to the machine and I could get it up to 90 degrees. Over the next 2 days, I maxed the machine out at 120 degrees. By the end of the first week after I had gotten the CPM (and only 12 days after surgery), I had achieved 135 degrees flexion. After 18 days, I got it to 142 degrees, nearly full flexion. Right now, my biggest issue is quad muscle atrophy. My quad had atrophied after the microfracture and it had just gotten back to about near 100% (after 3-4 months of working on it) before the DeNovo and now it is back to where it was after the microfracture. My PT tried doing the e-stim but it could not grab the muscle. She tried every different setting and every different position and still nothing. My PT thought my muscle had gotten so weak that the e-stim had nothing it could grab but we kept trying it every session and since ROM was no longer and issue, focused solely on quad/calf muscle strengthening. Finally, yesterday, when she put the e-stim on it, I felt it grab the quad and man it took me by surprise so it is improving. My PT and OS both think the quad muscle atrophy will not be a problem 3-4 months because of how well I was able to get that strength back last time.
So far, the DeNovo is night and day better than the microfracture. I had some swelling with the DeNovo but nothing like the microfracture. I now have no swelling, even after therapy. I take no pain pills because there just isn't any pain. I know when I move onto weight bearing status that I can expect the swelling and pain to return but until then I have just been enjoying no pain and the feeling of just wanting to throw my crutches to the ground and start running. A feeling I never had for the 6 months after microfracture.
My only question to those who have been through a DeNovo is to those who had very minimal issues in recovery. How long did it take just to get back to running? I'm not looking ever to get back to running 2-3 miles in the next 6-12 months but as a cop, I have to be able to sprint about 200 meters as most foot chases are less than 200 meters, anything more than that and we are told to consider the advantages/disadvantages of continuing the chase and more often than not, terminating the foot chase. (I can tell you that I've been a cop for 5 years and have only been involved in 3 foot chases and they were all less than 100m so it does not happen very often.) There's really no time limit I have to reach. They just want to be able to see if you can put out a 100% and run without stopping so I just want to know how long it would take to be able to reach that goal.
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gijon
MICROgeek (<20 posts)
Posts: 10
Liked: 0
Re: Denovo RT Surgery/Recovery
«
Reply #1 on:
April 10, 2012, 06:23:45 PM »
I guess I should have stated where the surgery was. It was on the medial femoral condyle.
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markld
Regular Poster
Posts: 99
Liked: 0
Re: Denovo RT Surgery/Recovery
«
Reply #2 on:
April 11, 2012, 05:35:00 PM »
There is no guarantee that you will ever be able to run again. At least that is the case with many folks after going through this procedure.
I am one year out from Denovo and still nowhere near being able to run, neither are any of the folks that I know who have gone through this procedure. The ones that are running that I know usually weren't able to do such until the 2 year point.
I have heard of folks running before a year but they are few and far between.
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April 2008 microfracture left knee trochlea
Jan 2009 ACI harvest from right knee
Mar 2009 ACI right knee trochlea
July 2009 Aci left knee
Nov 2009 left knee scope to check graft
gijon
MICROgeek (<20 posts)
Posts: 10
Liked: 0
Re: Denovo RT Surgery/Recovery
«
Reply #3 on:
April 12, 2012, 07:00:28 PM »
Well, I hope I am one of the few and far between. My OS said there were no other issues with my knee and thinks that since the defect was pretty rigid (before microfracture) and relatively small for my body size and the fact that I was a particularly healthy, active young person that he thinks I could heal pretty fast from this but of course, he doesn't want to try to get my hopes up by giving me a date that he thinks I'll be able to run by. It will all depend on the recovery. My OS did tell me that the fastest he has seen a patient recover to be able to run a short jog was 8 months but that his defect was even smaller than mine and that he would not perform a DeNovo on a defect that was smaller than that guy's. Basically, he said recovery depends on how large the defect/lesion is. If it's smaller, you can expect a shorter recovery but if it's larger, over 2-3cm, that it is a very long recovery.
I know it's going to be a long while, I just hope my police employer doesn't decide that I need to change jobs while I recover. Right now, I am doing light duty desk work but that is supposed to be only a short term temporary position. Sometimes, they make officers who have serious health issues resign and they will find another place in the county for them to work. That means a serious pay cut which I cannot afford. My injury did not happen on duty (even though my doctor thinks just doing daily cop routines played a hand in it) so I have zero protection. Right now, they have been very patient with me throughout the microfracture and DeNovo. I just hope that patience can continue for another 9-12 months.
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gijon
MICROgeek (<20 posts)
Posts: 10
Liked: 0
Re: Denovo RT Surgery/Recovery
«
Reply #4 on:
April 16, 2012, 01:48:42 PM »
The #1 issue I am dealing with at the moment is quad muscle atrophy. I had a terrible PT the first three months after my microfracture who didn't really focus on quad strengthining exercises or an e-stim. By the time I changed PT's, my quad was in complete atrophy. It took about four months but before the DeNovo procedure, I had gotten my quad back to about 80% strength. My OS would have preferred my quad to be back to 100% but I couldn't waste more time waiting for it to get to 100%. My OS continued with the DeNovo, leaving my quad in the hands of my current PT.
It's been 6 weeks since DeNovo and my PT ordered something that would strengthen my quad. I have been using a Kneehab XP e-stim and man, the results have been pretty good so far. I can now see all four quadrants of the quad muscle contracting and I feel like I am a few days away from being able to do a straight leg raise. Quad muscle atrophy sucks but I know it'll get better with time. I have this e-stim rented for a month so hopefully the quad will get a good bit of strength back before the end of the rental.
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Himself
MINIgeek (20-50 posts)
Posts: 28
Liked: 0
Re: Denovo RT Surgery/Recovery
«
Reply #5 on:
May 15, 2012, 03:25:53 PM »
I started running again at 7 months post-op. It certainly wasn't pain free at first and it was more more of a run-limp, but I was doing it. I am now at 9 months and running short distances doesn't bother my knee anymore. I haven't tried going further than 1-mile, mostly because I hate running. I am now doing more light to medium plyometrics to try to get some explosiveness and tone back. I am going to start barbell squatting again soon. It can be done........
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8/2000: ACL Patellar Autograft/ Meniscectomy
8/2010: Meniscectomy
12/2010: ACL Patellar Allograft
7/2011: Allograft Articular Cartilage Transplant (Denovo NT)
gijon
MICROgeek (<20 posts)
Posts: 10
Liked: 0
Re: Denovo RT Surgery/Recovery
«
Reply #6 on:
May 18, 2012, 02:55:29 PM »
Thanks for the replies.
2 1/2 months since surgery... That KneeHab XP E-Stim is a miracle worker! My quad has returned to about 90% strength. I can do straight leg raises with weights and everything now. I have just started full weight bearing and now use the e-stim when doing standing terminal knee extensions in hopes of it getting back to full strength.
I am ready to get rid of the crutches but unfortunately I am going to at least need one of them for another week or two before I start using a cane but I've taken about 3 steps at a time without crutches or a cane and I can tell just by the movement and the way the weight shifts through the knee that this surgery has fixed my issues... My steps/walk through motion is better than right before I had this surgery. I can only tolerate about 3 full steps before my knee exhausts itself...Still need to work on the weight bearing muscles and ligaments. I have had a minor issue with scar tissue that just won't go away with all the vitamin E and massage done by the physical therapist.
Has anybody had success with getting a massage from a licensed massage provider that has experience in massages of the knee after surgery? If so, did it help in your recovery?
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gijon
MICROgeek (<20 posts)
Posts: 10
Liked: 0
Re: Denovo RT Surgery/Recovery
«
Reply #7 on:
June 13, 2012, 02:12:00 PM »
It's been 97 days since my surgery and things are progressing. I am using a cane to walk with at the moment. My knee and quads have been getting stronger and I have zero issues with the surgery site and feel like that is strong. My main, and really, only issue right now is scar tissue buildup. It is getting really bad and is causing me a lot of grief. I feel like if I can crunch out that the scar tissue, I will no longer need the cane and will finally feel comfortably walking. I am just hoping that I will not need to go under a scope to clean it up. While I know that is a very minor procedure, it is one I just do not want to deal with. The good news is that at my last doctors visit, my OS told me that the surgery area feels real strong and there is no malaignment present and that if I can continue to try and get rid of the scar tissue that I should have an excellent and quicker recovery compared to others.
I have been in the pool virtually everyday for an hour or so and I am on my stationary bike for about 30 minutes a day, doing both of those has really helped me and would encourage anybody who has this surgery to do this if it is available to you.
Hopefully, in the next month or so, I will be pretty much pain free when I walk and continue to build up to running in the next 6-9 or so months.
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gijon
MICROgeek (<20 posts)
Posts: 10
Liked: 0
Re: Denovo RT Surgery/Recovery
«
Reply #8 on:
August 03, 2012, 03:09:28 PM »
It's been nearly 20 weeks since my surgery and things are still progressing. I seem to have plateaued a little bit. Where I was making great progress before, I seem to have slowed down a ton on recovery. The knee and the surrounding joints of the knee are nice and strong according to my PT and OS. It's the muscle weakness in other areas of my right leg. The back side of the knee, the tissue had become extremely soft and it took a lot of deep, agonizing "massage" (elbow digging into the back of the knee) from the PT to strengthen the tissue up. My calf and achilles kept locking up on me. Ever since I could put weight on it, I have been doing heel raises galore and gobs of stretching but despite all that, it still would lock up. The only way to cure it has been trigger point needling which is always fun.
The lower abductor (or the gracilis muscle in sophisticated terms) have been giving me issues. I am getting this wrap around pain at the top of my patella but more so on the medial side of the upper patella. The cure to this has been trigger point needling as well in the abductor. Once the needles hits the spot in the abductor, I feel an immediate release and the pain goes away around the patella (after about 20 minutes of my abductor feeling like someone took a bat to it).
By far, my number one issue at the moment is my right hip. I am not sure what happened because I have been doing exercises for my hip but it was not a number one concern considering my issues with the quad, calf, abductor and achilles. Last week my PT could not understand why it looked like I was dropping my knee when I walked. She did a strength test (made me lay completely on my left side and raise my right leg, then she tried pushing down on my knee) and I had zero strength to keep her from pushing down on it. That has been a major issue now because she believes this is the source of my knee dropping and causing a very slight limp.
Hoping that everything goes well and I can actually look like a normal person when I walk. We shall see.
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jameson312
MICROgeek (<20 posts)
Posts: 4
Liked: 0
Re: Denovo RT Surgery/Recovery
«
Reply #9 on:
August 14, 2012, 07:35:05 PM »
I am very glad to see that someone has been able to obtain this knee surgery in 2012. I am also 29 years old and have been needing this surgery for quite sometime, I have tried micro fracture in 2011 and all the injections and nothing worked. I have a deficiency of 19cm2, that's not a typo, nineteen square centimeters... I have a complete tear to my ACL, no meniscus and arthritis through all bones as well as a deteriorating kneecap. My surgeon said I need a full knee replacement (if i was of the right age) which I obviously don't want, nor would insurance or any surgeon perform that surgery.
A very long story short I have been battling my insurance company since January of this year and they just flat out refuse to cover the surgery. I am wondering how you were able to get your surgery covered, or anyone else for that matter? Is it because you are still in active duty?
I am reaching my boiling point with this as I am barely able to get up and down stairs. I used to be a soccer player and coach and was also training for a marathon.
Any advice from anyone would be greatly appreciated. Theses stories and experiences that i have read certainly give me hope that one day I will be able to be somewhat active again.
Thanks
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Flyinglion
MINIgeek (20-50 posts)
Posts: 27
Liked: 0
Re: Denovo RT Surgery/Recovery
«
Reply #10 on:
September 13, 2012, 06:42:39 PM »
Gijon,
I have the exact same issue with a dull wrap around ache on the top side of my patella. I am 15 weeks post
denovo for kissing defects in patella + trochela. I need to ask my PT about trigger point needling. Right now she has me using a foam roller across the thigh muscle. It hurts like crazy but it does seem to help reduce the pain for a few hours but by the next morning it is back again.
The dull ache started around 10 weeks post-op and continues. It affects how I walk and makes me limp more and it is driving me crazy.
Has the needling procedure eliminated your pain?
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February 2011 - Injured right knee playing indoor soccer
April 2011 - MRI showed patella & trochlea grade 4 kissing defects
June 2011 - Right Knee Scope/ACI Biopsy
November 2011 - Synvisc Injections
May 31, 2012 - Denovo NT Patella & Trochela, Lateral Release/TTO/MPFL Reconstruction
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KNEEgeeks
»
The OSTEOARTHRITIS DEPARTMENT
»
KNEE ARTHRITIS - Articular cartilage repair
»
CARTILAGE REPAIR - Juvenile cell tissue transplantation (Denovo ET and Denovo NT)
(Moderators:
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,
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) »
Denovo RT Surgery/Recovery
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