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Author Topic: hypermobility and joint replacements  (Read 2745 times)

Offline Lynn82

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hypermobility and joint replacements
« on: December 14, 2011, 02:49:42 AM »
Hi all,

I don't like to complain about things because I know it can be worse, but I am just sick of being in pain!  I have hyper mobility in so many joints but mainly knees, hips, shoulders, wrists...well my left knee was so bad from dislocating since I was a baby I had to have a partial knee replacement after multiple surgeries on it and that was 4 years ago.  The first 2 years after the surgery were horrible.  Come to find out due to my joints being so loose they were affecting my peripheral nerves...so they fixed that temporarily and I had about  2 good years with my knee.  I just find out today that they other compartments of my knee have failed and I am going to need a full total knee replacement at 29.  I also found out today that I tore the labrum in my hip again, I've done this before...and not to mention I also just got put on cymbalta for nerve pain since my joints have messed up my nerves.  I've had 14 surgeries on my joints and don't really want to have anymore and am so sick of feeling bad.  So has anybody else had replacements with hyper mobile joints?  Do they typically fail easier, or is it just me?  I am just mad because I thought I would have more years with my knee and now I realize I don't.  I don't know if the surgeon who did the surgery didn't do it right, or if having hyper mobile joints makes them fail quicker...just wondering...any thoughts? 

Thanks, ugh.  :-[

Offline lisa424

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Re: hypermobility and joint replacements
« Reply #1 on: December 18, 2011, 07:10:48 PM »
It's important to find a doctor who has experience in dealing with people who have hypermobility. Most of them don't.

Offline why2knees

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Re: hypermobility and joint replacements
« Reply #2 on: January 03, 2012, 02:32:27 AM »
I have hyper mobility, mainly affecting knees, elbows, ankles and wrists.  It takes so little to tweak my joint and irritate nerves.  But no dr have really offered a solution.  Now I am dealing with chronic nerve pain following two left knee surgeries in 2010.  2011 was a rough year for pain and 2012 is looking more of the same.  I don't have an answer to you PFR wearing out early due to laxity.  I sure hope not.  My surgeon spent a lot of time in surgery tightening up my knee and I feel stabble with it.  Only time will tell.  I am due for PFR on the right as soon as I can manage with the left.  I want the pain managed first...  Good luck
'82-86 many dislocations x2
'86 RK & LK LR
'96 RK clean
'04 RK dislocate, PT
'09 Rt tib stress frx
'09 bilat Synvisc
01 '10 LK dislocate fully - 1st since LR!
02 '10 LK MPFL, mensic, patel micrfx
10 '10 recommend dble PFR/TTT
11 '10 LK PFJR, AVON
RK PFJR in 2012?

Offline MandyF

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Re: hypermobility and joint replacements
« Reply #3 on: September 20, 2012, 11:21:09 AM »
Hi, from my own experience I would say that hypermobility in the joint requiring surgery can effect the outcome of the surgery, but I think it would also depend on what the surgery is for. In my case both my knees are hypermobile and my left ACL ruptured when I was 15 (25 years ago). I had my first ACL replacement at 17 which appeared to work but within 4 years the ligament had stretched again due to the laxness of my knee joint. I had the ACL replaced again but within weeks the ligament had stretched due to the muscles around the knee not being able to support it and the hypermoibility. I ended up in a knee brace for six months which did even further damage to the already weak muscles. I had a third ACL reconstruction in August 2001. This time the ligament held for a bit but slowly became stretched again. After a second opinion on the leg it was concluded that a partial knee replacement would not work as it was partially reliant on the muscles around the knee to support it in the early stages of recovery. I was offered a full knee replacement or fusion neither of which were routes I wanted to take as both carried there own risks and long-term effects. Since then I have had a child (now 4 years old) and expecting my 2nd now. The knee is very unstable and causes me pain but I think that for as long as I can cope with it, I will resist the urge to have more ops. On a seperate note my 4 yr old DD has also been diagnosed with hypermobility (passed down from me) and has just last week been diagnosed with a Patellar Subluxation (left knee). Waiting to hear from the Ortho Team on their opinion on how to treat this best. My gut reaction is to avoid any surgery so am just hoping we can build her muscles up without needing surgical intervention.

Every one's case is different but just wanted to share my story with you. Good luck  :)

 














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