OMG -- I've been looking for someone who is in a similar situation to me! I have both chronic knee and hip pain -- very high levels. I knew I had excessive femoral anteversion but had no idea I had excessive external tibial torsion as well until today I know that normal femoral anteversion is 10-15. Version is considered excessive if its over 30. Do you know what you'rs is...? Mine is 50!!! I don't know anything about torsion as I have just discovered it.
What surgeons have you seen so far...?
Sorry I didn't reply earlier...part of it had to do with my accidentally posting this question in the wrong forum.
My pain problems are about 90% knee (mostly left, but the right knee is starting to get irritated) and 10% right hip. I don't have anything other than a "qualitative" diagnosis at this stage regarding my femoral neck anteversion (FNA). I have been told that I have excess femoral neck anteversion and excess external tibial torsion. It is possible that I might have a condition called "coxa valga" which is an excessively-high femoral neck-shaft angle. It is also possible that I have slight hip dysplasia - one surgeon says "yes", one surgeon says "no". And I'm a bit bow-legged, too. And one surgeon believed that I might have high Q-angles, too.
To-date I've only had X-rays: AP Hip, Frog-Leg Hip, Faux-View Hip, and AP & Lateral Knee views. As far as I know, none of these can really "quantity" any deformities - maybe apart from the Center-Edge angle that is used to assess certain hip dysplasia cases.
I've met with two surgeons. Both appointments were beneficial in the sense that they raised the possibility that I had substantial deformities...but there was significant
disagreement as to severity or whether surgical correction was a possibility. The first surgeon suggested my deformities were severe...and nothing could be done to correct them. The second surgeon admitted that there were surgical correction procedures (i.e. osteotomies) that could be done...but suggested that the degree of my deformities was not severe enough to warrant them. Neither ordered any follow-up imaging tests.
I will be meeting with a third surgeon in February. He is a "hip expert", rather than a "knee expert". He acknowledges that my issues are predominantly knee-related, but he has done many femoral derotational osteotomies and is aware that excess FNA is often accompanied by excess external tibial torsion. And he is very much a "'deformity correction" surgeon - this is not a guy who's going to offer to scope my knees and then prescribe me ten useless sessions of PT...
Hopefully it's a start.