Centeno-Schultz clinic visit

[Scooter72]

Thanks Scooter,

It looks like things are working out really well for you.

Sounds like you've found success already, so I'd suggest that you go for another SD treatment as soon as you can...

Thanks WP.  But as I said before, I need to know that this will hold up.  So at the 6 month mark, I'll see.

[Nature Lover]

I had my first treatment there over a month ago. I think the staff was mostly like you'd find in any medical office in America. The doctors, however, were most impressive with their knowledge and skilll, and generous with their time.

When you fly out to a place like that, that you've researched and thought a lot about for a while, you make it into a big deal. However, for the people working there, it is just another day, and not special in the way it is for you. So when you're confronted with the mundane it's kind of a let down in a way. Talking with the docs though you can get a sense of excitment about what is going on there.

For me the injection into my ACL was pretty painless as was the bone marrow draw. I've had injections into my knee nefore so I knew it would hurt, but I have to say that was one of the more painful things I've experienced. I had to get help in the aiport to get around. It took about a month for most of the pain to go away. Granted that is just me and my circumstance. Pain comes and goes and little things can set it off for me and it takes a while for flare ups to subside.

I gree totally. The doctors are so impressive but I was not impressed at all with the office staff.

[manville]

I thought it was odd that they locked the other forum right after the owner of regenexx chimed in with a response to my negative review of the company.  I dont think its right for the kneegeeks moderator to come in and be a dictator of the forum comments, especially if adding to the discussion. 

I dont feel that a member commenting about his or her experience with the company regenexx and their stem celll procedures is something that is out of the norm for such a forum of sharing experience and ideas.  It is actually adding to the discussion, and allowing others to entertain constructive comments and allowing owners to answer to these consumers comments. 

If the owners are so involved in commenting on these forums, they sure would be just as involved in answering the consumers questions.  So that raises a very ethical question, are kneegeeks moderators in bed with regenexx?  Why are moderators not facilitation discussion about regenexx or other providers, but only locking down forums?

[Kaputt_Knee]

Manville,

you are not a "member" of this forum, you are a contributor. Actually, I would actually call you an agitator.

You joined this forum specifically to stir up dissent and doubt about this treatment. You joined on the 26.1.2012 and have posted exclusively on the Regenexx threads. In your first post you implied improper conduct on the part of the Centaro-Schulz Clinic. A post made within minutes of you joining, by the way. In your comments you have "hinted" at malpractice and other illegal claims. All veiled comments, all aimed at undermining not only people's reputations, but also patient's confidence in their surgeons. This is indicative of a smear campaign, typical of tabloid journalism of the worst kind.

Why not be open and really tell the community here what your real job is and why you are out to besmirch the name and reputation of a particular institution and its doctors?

This is a privately owned site and the Knee Guru is well within their rights to lock any threads that could lead to litigation. Your smear campaign is typical of such a reason to cause a topic to be closed. If I were the Moderator, I would have deleted your comments immediately and banned you as a member, but then I found your posts offensive from the start and lack the tolerance that the Knee Guru showed. You are not "adding to the discussion", you are deliberately trying to provoke a negative reaction from the focus of your nasty innuendo campaign. When you did not get the reaction you had hoped for, you tried to get a reaction by being deliberately rude and aggressive. Better agitators and nay-sayers than you have tried to provoke angry reactions from Dr. Centaro and his associates, but they are professional enough to refrain from resorting to the kind of mud-slinging exercise you are trying to engage in.

[WestPoint]

Thanks Kaputt Knee.

Had I listened to the likes of Manville, I wouldn't be walking around with almost no pain in my knee.

I'm happy to say that following my three Regenexx C treatments last year, I am much much better now. That mushy painful feeling of having a torn meniscus is no longer there, and I really feel that if I go for another treatment or two, that I'll be back to normal. If I'm not able to, I'll be fine with my knee the way it is now.

At the end of the day, isn't that what counts?

Never mind the noise!

[The KNEEguru]

I thought it was odd that they locked the other forum right after the owner of regenexx chimed in with a response to my negative review of the company.  I dont think its right for the kneegeeks moderator to come in and be a dictator of the forum comments, especially if adding to the discussion. 

I dont feel that a member commenting about his or her experience with the company regenexx and their stem celll procedures is something that is out of the norm for such a forum of sharing experience and ideas.  It is actually adding to the discussion, and allowing others to entertain constructive comments and allowing owners to answer to these consumers comments. 

If the owners are so involved in commenting on these forums, they sure would be just as involved in answering the consumers questions.  So that raises a very ethical question, are kneegeeks moderators in bed with regenexx?  Why are moderators not facilitation discussion about regenexx or other providers, but only locking down forums?

Hi manville
I am not just a 'moderator' but the owner of the website. I have let that thread run for 26 pages, and it is my own judgement that there has been enough dialogue of pros and cons of this particular technique. Let the dialogue continue elsewhere - not here. No, I have no commercial interest in this clinic, or any stem cell clinic, I have never met any of the doctors who work there, and it is wrong of you to make such an assumption. Clearly, you have had an unhappy experience. I am sorry about that. Do not take it out on the kNEEguru website, please.
Dr Sheila Strover (KNEEguru owner)

[rob wilson]

I have had mutliple Regenexx C, Regenexx SD, and Regenexx SCP injections for various body parts such as knees, shoulders, low back, and neck.  I can tell you that Regenexx can work. It might cost you $$ and take multiple injections.  Anyone that wants details can message me and I will give out my cell number. AND NO I HAVE NO AFFILIATION WITH REGENEXX. I am just a guy with a lot of orthopedic issues looking for some pain relief.

Manville - you are welcome to contact me. Don't be so closed minded. At the end of the day nothing is guaranteed with any therapy or surgery. Always best to try the non invasive first as I almost died in a surgery for artificial discs for my back.

[manville]

Manville,

you are not a "member" of this forum, you are a contributor. Actually, I would actually call you an agitator.

You joined this forum specifically to stir up dissent and doubt about this treatment. You joined on the 26.1.2012 and have posted exclusively on the Regenexx threads. In your first post you implied improper conduct on the part of the Centaro-Schulz Clinic. A post made within minutes of you joining, by the way. In your comments you have "hinted" at malpractice and other illegal claims. All veiled comments, all aimed at undermining not only people's reputations, but also patient's confidence in their surgeons. This is indicative of a smear campaign, typical of tabloid journalism of the worst kind.

Why not be open and really tell the community here what your real job is and why you are out to besmirch the name and reputation of a particular institution and its doctors?

This is a privately owned site and the Knee Guru is well within their rights to lock any threads that could lead to litigation. Your smear campaign is typical of such a reason to cause a topic to be closed. If I were the Moderator, I would have deleted your comments immediately and banned you as a member, but then I found your posts offensive from the start and lack the tolerance that the Knee Guru showed. You are not "adding to the discussion", you are deliberately trying to provoke a negative reaction from the focus of your nasty innuendo campaign. When you did not get the reaction you had hoped for, you tried to get a reaction by being deliberately rude and aggressive. Better agitators and nay-sayers than you have tried to provoke angry reactions from Dr. Centaro and his associates, but they are professional enough to refrain from resorting to the kind of mud-slinging exercise you are trying to engage in.

I dont have a problem in defending my comments.  And nothing I say or am said to, I take personally.  I found this forum by searching for stem cell in google.  It comes up high in the search. If you can look through my IP addresses, most of which are static from home, you can see I lurked in the forum for about 1 month.  I also read many other posts by Regenexx and also schedule to have an appointment with them for a problem I have.

I dont think speaking honestly and factually has any similarity to a "smear campaign".  And there are no legal ramifications of anything I have said, as it is factual ant truthful and would attest to them in a court of law.  The problem that you seem to have here is you feel I have a bias against Regenexx, and obviously based on all the factual information, you feel that bias is unjustified.  That is your opinion.  Apparently the moderators of the board also share that opinion.  So in my contributing to this forum and board, I am actually helping promote your board despite my apparently "wrong" opinion and "smear Campaign" of the board with multiple posts and seo backlinks.  Also, it appears I offended the board by suggesting that locking a thread full of useful feedback on a company and its policies is suspectable for a "lawsuit" or any negative connotation.  So if that is the case then lock me and I will create my own blog, promote it with high ranking backlink SEO terms, and then I can explain my self in terms of my experience with regenexx and in terms of kneegeeks.  I didnt think it would come down to that point, and we could have a reasonable discussion here.

That being said, you can believe what you want to believe.  I feel any reasoning individual can take the information that your forum provides, along with the information that I provide, and make a reasonable and justifiable decision on who is right, who is wrong, and what information they feel they want to believe.  And in that, if someone chooses to take my word and disregard it, then I am ok with that.  It is the right to express my opinion that I am concerned with, not the privilege.  Apparently at this board, it is a privileged to post here, and not a right, which is at the full discretion of the board operator, but does also discredit the validity of the board by limiting my ability to post what I feel is fair and justified, and legally acceptable.

Furthermore, my issues with regenexx were fully stated in the previous threat and, when the CEO had a chance to respond to those comments, he did not.  He continued to promote his product, show more studies, while glaring past the real concerns that I have.  I have not stated that this procedure did not work for anyone, I just stated facts about the process, some of which other members have collaborated.

And continuing...
"You joined this forum specifically to stir up dissent and doubt about this treatment. You joined on the 26.1.2012 and have posted exclusively on the Regenexx threads. In your first post you implied improper conduct on the part of the Centaro-Schulz Clinic. A post made within minutes of you joining, by the way. In your comments you have "hinted" at malpractice and other illegal claims. All veiled comments, all aimed at undermining not only people's reputations, but also patient's confidence in their surgeons. This is indicative of a smear campaign, typical of tabloid journalism of the worst kind."

It is correct, I joined the board just to comment on Regenexx, but as my history of using the internet, usually that is how people start posting on boards.  One topic interests them, they sign up and post.  Then if they like the board, they continue to post on other topics.  This seems to be a non issue other then you creating judgement on it. 

Second, to suggest that I  have "hinted" at medical malpractice is laughable.  I have done no such thing and it really leads me to believe the board is less credible by throwing around these sorts of allegations. 

Third, these comments are not meant to undermined anyone.  They are meant to express and opinion and show a chain of events fact line.  If a doctors or clinics reputation is bruised in the process, that is something that needs to be addressed.

And finally.  If the doctor would have just come out and addressed my concerns of overcharging, hiding fees, and all of the other issues in the previous form, that I would have posted a reply to that.  But he didnt, and you locked the forum.  People that use their brains here, and have read my previous post, would find that odd.

[manville]

I have had mutliple Regenexx C, Regenexx SD, and Regenexx SCP injections for various body parts such as knees, shoulders, low back, and neck.  I can tell you that Regenexx can work. It might cost you $$ and take multiple injections.  Anyone that wants details can message me and I will give out my cell number. AND NO I HAVE NO AFFILIATION WITH REGENEXX. I am just a guy with a lot of orthopedic issues looking for some pain relief.

Manville - you are welcome to contact me. Don't be so closed minded. At the end of the day nothing is guaranteed with any therapy or surgery. Always best to try the non invasive first as I almost died in a surgery for artificial discs for my back.

Rob, I think you are missing the point of my previous posts.  They have nothing to do with being closed minded, or the success or failure of the Regenexx product.

[manville]

I thought it was odd that they locked the other forum right after the owner of regenexx chimed in with a response to my negative review of the company.  I dont think its right for the kneegeeks moderator to come in and be a dictator of the forum comments, especially if adding to the discussion. 

I dont feel that a member commenting about his or her experience with the company regenexx and their stem celll procedures is something that is out of the norm for such a forum of sharing experience and ideas.  It is actually adding to the discussion, and allowing others to entertain constructive comments and allowing owners to answer to these consumers comments. 

If the owners are so involved in commenting on these forums, they sure would be just as involved in answering the consumers questions.  So that raises a very ethical question, are kneegeeks moderators in bed with regenexx?  Why are moderators not facilitation discussion about regenexx or other providers, but only locking down forums?

Hi manville
I am not just a 'moderator' but the owner of the website. I have let that thread run for 26 pages, and it is my own judgement that there has been enough dialogue of pros and cons of this particular technique. Let the dialogue continue elsewhere - not here. No, I have no commercial interest in this clinic, or any stem cell clinic, I have never met any of the doctors who work there, and it is wrong of you to make such an assumption. Clearly, you have had an unhappy experience. I am sorry about that. Do not take it out on the kNEEguru website, please.
Dr Sheila Strover (KNEEguru owner)

Thank you for clearing that up.

[manville]

Thanks Kaputt Knee.

Had I listened to the likes of Manville, I wouldn't be walking around with almost no pain in my knee.

I'm happy to say that following my three Regenexx C treatments last year, I am much much better now. That mushy painful feeling of having a torn meniscus is no longer there, and I really feel that if I go for another treatment or two, that I'll be back to normal. If I'm not able to, I'll be fine with my knee the way it is now.

At the end of the day, isn't that what counts?

Never mind the noise!

Im very happy for you.  That being said, again you are missing the point of the previous posts and thread.  Please refer to my complaints in the other thread that was locked regarding a whole different set of issues.

[Kaputt_Knee]

Manville,

you object to the pricing policies - yes it is expensive. Many of us cannot even begin to think about it and the current blocking action of the FDA does not help either. I work in Regulatory Affairs in the medical devices industry here in Germany, believe me the actions of the FDA are not always as altruistic as they would have us believe.

However, you do imply improper science, improper practices, cast doubt on the processes because of the doctors concerned are not orthopaedic specialists, etc. You are impugning their reputation intentionally. Your posts show that you choose your words carefully, you are very erudite. One would also hazard a guess at some legal background as you go very close to the edge of libellous utterances, but do not cross that particular boundary.

You are not contributing to the discussions about the pros and cons of the treatment per se, you are attempting to influence people against a particular treatment, offered by a particular clinic and its doctors.

Answer this question honestly, would you be as strident against this treatment by this clinic if it were being given away for free?

[The KNEEguru]

With the permission of the original poster, I am moving this thread to the diary section.
KNEEguru

[mccartjt]

Manville

Am I right in making the assumption that you are moaning about $200? Is that the amount you're upset about? You had an evaluation that cost $200 and then during that eval discovered that the procedure was going to be more expensive that you'd originally planned?

Please let us all know the actual amount of money you feel you are out of pocket by? Then we can all understand the financial grief you are suffering from?

Thanks.

[Scooter72]

Good grief, why is this crap being discussed in my diary thread? Lol.. I must be a magnet for crazy people (who are POSSIBLY pharma/industry paid shills with some degree of legal expertise). 

Manville, you remind me of a couple of other shills that were invading my threads a few months ago, and share a trait with them: You all have a bit of scientific knowledge, that to the casual reader, comes off as "well-read" or "expert".  It's a common tactic, I have noticed, for those morons who also like to tout the absolute beneficence of the FDA, and by definition, it's regulations.

Please start your own thread, and whine about the extra few-hundred dollars you had to pay for a procedure that is minumum, $5000.  Yes, they forget to include all costs in the initial correspondence, and yes it irritated me (and others), but unfortunately, it's something that will only be rectified by complaining TO REGENEXX. 

Of course, that was only a platform for you to launch into more dubious criticisms of the Regenexx procedure.  It's obvious that your knowledge of stem cells is deficient, or you are just flat-out misrepresenting the truth to serve some other agenda.