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Topic: Frustrated AFO user needs advice (Read 132 times)
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didedi
MICROgeek (<20 posts)
Offline
Posts: 3
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My foot drop and supination come from multiple sclerosis. Two years ago I decided to try an AFO for long periods of walking. Well the custom fixed plastic bulky brace dug into my arch and created a horrible spasm. I went into a Walk On carbon brace but soon became tired of its rigidity. I then bought a cheap "off the shelf" fixed plastic brace and hacked away at it with my power tools. That has gotten me by for a year now but my ankle begs to flex and my calves beg to rebuild. Therefore, I am in pursuit of a lightweight AFO that assists and articulates. Alas, I went to Hangar O&P and they wanted to fit little 120lb. me into another bulky plastic AFO. Please send me your recommendations for state of the art ideas and orthopedic contacts that would be willing to work with this frustrated lightweight. Thanks a bunch! Didedi
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dm
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I did a bit of quick research and found that since afo's are generally customized to your leg shape, you're most likely going to have to do some "legwork" pardon the pun, and call around to your local orthotics places and see if you can speak to the orthotists and find someone who understands what you want and would be willing to work with you to build to your request, not just stick you in something and shove you out the door like the H place. Given that you're petite, dealing with muscle atrophy, etc, I would start by making calls, and explain to the places that you don't want a standard afo, you already have that, that you need one that will allow you to rebuild the leg function so you won't lose the ability to walk effectively, and have hip and back problems develop that you don't have now. Look in nearby towns within driving distance if you need to, depending on the number of available providers in your area.
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multiple arthroscopies 2/00,3/01,6/01,1/03 and now 12/07. chondromalacia, severe medial joint space narrowing following 3 partial menisectomies, chronic pain problems, kneecap problems much worse
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didedi
MICROgeek (<20 posts)
Offline
Posts: 3
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Thanks DM. Since it's difficult to speak directly with the Orthotist without an appt, I was hoping some end users out there could share their experiences with state of the art AFOs vs the old technology. For instance, is the low profile Richie brace a good bet or? One frustrating thing about selecting an AFO is the inability of trying one out first so you are not commited $$$ wise...thus the importance of getting feedback from other AFO users. I don't know if this website is the way to go but haven't heard of a AFOgeek site yet...ha...so hopefully the kneegeeks can help! I am in the Denver area and am willing to fly or drive to get the right AFO.
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« Last Edit: November 07, 2009, 10:37:01 pm by didedi »
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dm
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Hmmm.... I wonder if you could pursue things from an electronic standpoint - use one of the advanced search engines to locate businesses that do articulating afos, since location isn't that important, and work up an email that you can send to them and ask for further information that would basically require that an orthotist answer your questions. Have some pictures ready, and mention that you can send images to clarify your issues. Sometimes people will answer emails when they don't have time to spend in person, since emails can be dealt with after hours. Perhaps even the local companies have web sites, and would be more likely to consider an "electronic consultation."
Then you can take the time to create your email offline, and have it ready to just copy and paste to send when you find a company you'd like to get more information from. I would specifically mention in the email that you have a challenging case, and that you are looking for an orthotist to work with who is willing to help you with an articulating afo specifically.
Just another idea to consider for how to get them to talk to you without an appointment and determining if they could help. Some people can't resist a challenge, and an email may be one way to get past the receptionist, since they often can't analyze medical/technical data properly.
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multiple arthroscopies 2/00,3/01,6/01,1/03 and now 12/07. chondromalacia, severe medial joint space narrowing following 3 partial menisectomies, chronic pain problems, kneecap problems much worse
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missmyknee
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4Fx Clsd red IMrod fib plate derotate osteotmy tibfib AF IPCS patbaja DeLeeOsteotmy,LOA,LR Zplasty,bongrf,chondrplty chondrplty,LOA,fatpad remvd TKR openLOA,neurectmy,ITB Zplasty,fabela PLC recon,revison,LOA,synovec MCL,revison LOA openLOA,prox Zplasty openLOA, 6 neuromas excised,synov ST Fusion
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didedi
MICROgeek (<20 posts)
Offline
Posts: 3
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Thanks again DM...the electronic way around receptionists is an excellent idea! I will send pics of what HASN'T worked for me along with a pic of my lower leg and specifics about the need for lightweight controlled articulation. I will let the knee geeks know about the outcome. Di
Pam...I was measured with the typical cast method. The 3D image sounds interesting. With my situation, however, it was the design type that was a failure. My ability to hack away with power tools got me to a less bulky design with the off-the-shelf brace. I won't be able to do that with an articulating brace though. Thanks, di
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