EDS Differntal Diagonsis?

[fawn2388]

So, I've been told by just about every doctor I have seen I'm hypermoible... the doctor is now suggesting Marfans or some other connective tissue disorder I don't ever remember... help... anyone?

[Silkncardcrafts]

Hi Fawn,

I'd try not to worry too much. Don't think it's going to make a difference to the treatment you have. Does your OS have a good understanding of hypermobility and loose ligaments ? Mine does, which does make a difference.

Been in a lot of pain because of the way I've been walking. Hopefully I'll feel better once I am walking properly after my next knee operation.

Good luck !!! 

[col3a1]

Regarding Ehlers Danlos Syndrome.  If you haven't already, go to the website for the Ehlers Danlos National Foundation (EDNF).  Many people i know who have EDs dont do well with common treatments for joint laxity.  There is also a member message board section of the website where you can see what others have shared that work for them.  Each person is different though so what happens to one EDS person isnt always going to happen to another.  www.ednf.org

Also note that its still difficult to find doctors that understand EDS enough to diagnosis it.  On the website for EDNF there is a diagnosising tool.  You need to register to have access though.

The other option to search information from others is to go to yahoogroups and type in EDS in the search.

I have a form of EDS, which is the vascular form,  but I still have some problems with my joints.  Such as the reason I am here now.  I just had a meniscectomy. 

Good luck on finding the answer to your connective tissue disorder.