When is it OK to give up?

[Cynthia1982]

Hi Laura,

Thanks for your advise as always it's helpful.
I would just like to say that the help you and bella have given me over the last few weeks has been very helpful. It's very much appreciated.
I'm sorry if i have annoyed certain people by posting on this thread but this  was not my intention.

Luckygrandma6-  I do have my own thread and have had some replies, some of it was good advise. I was reading trough this thread and  thought seen as laura has been through so much that i thought i would ask her for advise. She was kind enough to give me some advise along with another poster. If you have a problem with this thread being so long why do you keep posting on it. I think you are a little bit jealous that  laura has had such a response to her thread and is being asked for advise. As for the thread you mentioned ye are just doing the same thing starting another long thread, and anyway i though this site was to help people with problems the thread you have mentioned has nothing to do with knee problems, it's just a small number of people griping over a thread. If people don't want to read this thread nobody is asking them to and as for those who have and have posted in it they don't seem to have a problem with it.

Laura
 Don't worry about other people having a problem with your thread the majority of people who posted on it actually do care or they wouldn't have posted.

Thanks for all your help Laura and Bella,

Take Care
Cynthia

[UK Girl !]

Laura !

Keep your thread going ! If you started a new one I would prob miss it !

[TIBBAR]

Gee, I wonder why L. Grandma is so negative. Makes you wonder if she is related to Jimmie .
I have been following this thread for a very long time and personally I enjoy see how Laura is doing. If she wants to post her heart out it is her string to do that and if she wants to give advice to others again it is her string to do that also.
If you don't like what she has to say, seems to me it is a no brainer, just don't read this string. Why do ppl have to attack others. I just can't figure that out

[Gary064]

Laura, you keep on going girl.... we need threads like this and Luckygrandma6 should stop moaning and join in....or... get a life!!

[Doc79316]

HI All,

Thanks for your support. I've had a message form Sheila regarding this thread and have responded to her message.

Cynthia - don't you dare stop posting. If you want to post here, then you carry on and do so. Don't worry about what other people think - I don't!

I will always give help and advice where I can but so long as people realise that I'm not medically qualified and that my advice is always based partly on personal opinion (unles I have to be objective) and my own experiences with my knee (usually negative).

I will always respond to people who ask me for help, regardless fo where they post. Anyone with a problem with that, jsut don't read 'em!

 will not get involved in the sh1t stirring and griping that has gone on regardnig long threads. For those of y who do not know, have already wondered this point or dont;' know me - there was a particular post that mentioned me going on long walks with my dogs. This is true - I do. Unfortunately I failed to mention that on the longest walks I have used a mobility scooter or a wheelchair. Apparently I should've made this clear so as not to upset those who have a problem with my thread (simple answer is don't read it and don't respond to it).

Also I am not in the habit of insulting or making derrogatory comments abuot people. It serves no purpose and doesn't help anyone. However, I have to mention this ad I'm going to say it only this once......

One of the people making the most noise about long threads was also the person who trawled through literally dozens of pages of thread (supposedly) to find mine in order to respond to it so I would "resurface" (cos I disappeared for a while). Well, Firstly I only wish I'd saved a screenshot of the message I received when this person admitted this to me in writing so I could post it here. Secondly, surelt this person could have done a simple search to find the thread rather than have to go through every page?!
That's it - I've said what I needed to say about it and I will not mention it again.

Thanks for all the support guys. And for those who do not wish to offer support, at least keep off the thread rather than say anything negative. That's hardly helpful to anyone, now is it??!!

Take care,

Laura xx

[Cynthia1982]

Well said Laura,
 

Always a supporter of your thread.
Take care,

Cynthia

[Doc79316]

Hi Cynthia,

Many thanx for the support.

I'm honoured - mine is the first thread to be moved!! Ssshhhh - don't tell anyone. Someone may complain about it!

Laura xx

[Cynthia1982]

Hey Laura,

You still have a great sense of humour even after all you've been through.
By the way how is your knee these days?

Hope your well
Take care,

Cynthia

[Doc79316]

Hi Cynthai,

(Oops - must whisper in case some of those nasty individuals are listening!!) LOL - I make myself laugh sometimes - how sad!

I'm OK thanx. My knee is screwed but I knew that anyway. I have a date (24th. November) for my MRI scan on my knee. I thought I'd have to wait about 6-8 weeks so I'm quite impressed with the NHS this time - only a few weeks to wait since my last OS appointment to my scan. Then he's going to tell me what he intends to do anout it. I'll justhave to wait and see.

Hope you're well.

Laura xx

[arkitect06]

Laura, I am so sorry about the crazy complaining that some KG people have started (or person).  When I began to read that thread yesterday from the beginning, I became sad that anyone would complain about this issue.  I have probably one of the longest threads on these boards and took it personally when "long threads" were complained about.  I have never been on yours before...well not in a while.  It definitely has a catchy title.  I have found myself caught up in so many post op diaries that I no longer visited the general questions area.  I can't even keep up with the diaries that I have been following for months.  I don't know about your story b/c I haven't taken the time to read it...and I apologize.  I just wanted to show my support and sympathy for your feelings towards this KG complaint.  If it was directly me they were talking about, I would have been devastated which wouldn't have improved my depressed state of mind thanks to my knee issues also.  I have a 150page post op diary all about it if you are interested...  NO...don't go!!!!  Haha!  I'm sure you can relate, but it's full of sadness, frustration, pain, angriness, etc.  I have ended up with RSD, but just started a new treatment to help it.  I would never wish RSD/CRPS on anyone!!!!!  I have been through so many failed procedures until now.  The failures kept bringing my depression farther and farther down.  KG kept me going though.  That's why it upsets me so much that anyone would complain about people asking for help here no matter how long the thread is or how long the recovery has been.  I am so sorry that you have taken long walks with your dog in a wheel chair! 

I am glad you are getting an MRI soon and hope that it gives you some results and a new plan.  Like I said, I honestly don't know what's going on with your story, but maybe soon I can read some of your thread to find out.  I just want you to know that I support your thread, your stories, your frustrations, and your helpfulness to other KG people.  The very first two posts I read was Cynthia asking for help and you giving it to her.  I try to do the same thing for others since I have been through so much in the past 10 mos.  I know it doesn't sound like a long time, but it feels like years.  For people who have experienced a lot, I feel that it's very helpful to share our stories with others going through similar issues.  There aren't many threads here about RSD, so I try to keep mine updated with all of my experiences daily...lots of things happen daily. 

Anyway, I hope you aren't upset about this KG complainer! 

Farrah

[Doc79316]

HI Farrah,

Many thanx for your support and you have my support also. I had a failed Fulkerson TTT in August 2003, and went on a few years later after more surgery to develop RSD which is still untreated. So I know that you know how I feel, and vice versa to a certain extent - although I know it' susually different from one person to the next.
I notice you're up at 0330am writing/typing a response. That says it all for me.

I've come to the conclusion that Tommy/Jimmy is one and the same person ad this second/third accounthas been created and is being used by someone who posts here under yet a differnet name again. I won't bother to mention the name - I'm sure everyone has guessed who it is. Aside form that, naming and shaming people is hardly productive - tempting though it is!

What is the name of your post please? I would like to read it but don't believe I have been through it yet. The fact that people kept responding ty my long thread, pareticularly the person who "dug it up" xo to speak and is now moaning about it, means that it is helpful to some but in no way takes anything away from the new thread. And more importantly - how on earth am I supposed to be in competition with anyone over a thread? This annoys me and I feel that certain comments are a personal attack on me by someone who until recently, used to chat with me on MSN. Clearly this person is completely untrustworthy. I found out earlier that trhis same person has previouslybeen thrown off another "Knee" board. maybe for this very reason.

Also, I don't know if you've noticed, but one of the main complainers/instigators of the unpleasant posts has managed to answer many posts. The advice given isn't very useful in my opinion and this has been done purely to try to prove a point. I believe this can actually be harmful, dependingon the advice given, to newbies who don't know how the board works, or are gettign advice from someone who has no knowledge of their problem.

Anyway, I'll stop ranting now. And no, I'm not upset by any comments you make - only upset by comments made by others that are unnecesarily hurtful.

take care,

Laura xx

[KiddtheKatt]

Hi Laura;
    I am also sorry that some people have to gripe and moan. I've been a regular reader of this thread, even when I got that horrible private message and I left KGs for a while. It is sad that some people have to make it hard on everyone else. I have many times just wanted to give up, but dangit!! that word isn't in my vocabulary. I swapped my knee problems for another problem and this one is here to stay. Don't give in to a few moaners kiddo, keep it going, this thread has helped me so much.


gentle hugs
Angel

[Clarkey]

Hi Laura,

I never posted on this topic but read with interest the bother you been getting about having a long thread. There nothing wrong with having a long thread and can see you not going to give in to certain Members on this bulletin board.

I see you will have an MRI scan on the 24th November I hope they can see what the Problems are inside your knee. As you know live in Brum and been going to the Royal Orthopaedic Hospital on the Bristol Road in Northfied and they been really nice to me the Staff can fault them. I had my MRI scan within 5 weeks of seeing My PT and got the results 2 weeks lator.

I also got moaned at by a certain Member when I posted some jokes along with John42 and other Members a few months ago. Sheila removed my posting as a certain Member got annoyed with me when I said jokes are good for people with knee problems and if they dont like it dont read the thread its a simple as that. Shelia had to remove my posting but was not too annoyed about it.

Laura might be able to advise me I saw Paul my PT over 3 weeks ago and he reffered me to the ROH and said I should be getting a letter to see the PT at the knee triage clinic but so far no letter. I had plenty of appointments in the past and only had to wait 2 weeks for the letter but for some reason its taking longer this time.

Paul did say can take up to 4 weeks and to phone him if it takes longer which would be 4 weeks next wednesday. Shall I wait a little longer as it could come anytime or phone Paul on Monday if letter not come by then. I really cant afford to waste time now as this is the best time to get treatment as we are less busy on the Golf Course.

Maybe too impatient but like to see an OS before Christmas but think it will be the new year.

Keep posting here ignore what some members think you have the right to post here.

Nick {2008}

[Doc79316]

HI Nick,

I think if your appt was going to arrive within th 4 weeks it would have by then. it may be worth a phone call to the appointments manager to see if you ahve an appointment. After all, your PT can't see whether your appointment is pending or not and he'll only know about it when you tell him about it yourself.

Sometimes these appointments can take longer if they're considered an in-house referral. Makes ure first that this isn't the case with you otherwise you could end up waiting a whole lot longer than a month.

Thanx for your support about the long thread. I refuse to drrag myself down to the level of petty arguments with someone who has attempted to cause problems for me. Fortunately, this is cuurently backfiring on the person responsible - and this person doesn't even know it yet!

Take care an dlet me know how you get on with your appointment.

Laura xx

[arkitect06]

Laura, this person has also hurt me in the past and probably doesn't even remember it.  I had a thread in the spirituality area and she ripped on me and it hurt me more than I already was.  That's all I will say about that. 

My diary is in the post op >100 section.  It's called Farrah's Fulkerson TTT Jan 8, '08 now RSD/CRPS.  It's long, so you don't need to ever go back to the beginning.  I basically told you my quick story anyway.  To add to it, I have had a cortisone shot, Euflexxa injections (Synvisc type), 3 lumbar sympathetic nerve blocks, radiofrequency lesioning, and now the spinal cord stimulator implant....all stemmed from my FUlkerson procedure in Jan!  I feel that I will slowly get my life back now though.  The SCS has been a life saver so far, but I just had it a week ago today.  So the PO stuff is driving me nuts and will take until mid-December to get back to normal.  I found out today that I have about a 5" long incision on my back all with staples.  I touched it during a dressing change today.  It was gross! 

Anyway, I am glad to know that you are trying not to get too bothered by this crazy situation here.  We will keep in touch. 

Farrah