Advertisement


Advertisement


Advertisement


Author Topic: Severe Night Pain  (Read 4639 times)

Offline Heather M.

  • SuperKNEEgeek
  • *****
  • Posts: 4010
  • Liked: 0
    • Check out my photography!
Re: Severe Night Pain
« Reply #15 on: October 30, 2005, 09:07:07 PM »
Bridget,

I really urge you not to be afraid of amytriptylline (or any other medication out there) just because you've heard that it might have side effects.  Of course you should read about the drug, but understand the nature of clinical trials.  If someone is taking a new drug and they get the sniffles, they have to report it and it will be recorded as a possible side effect of the drug!!  So imagine, if a trial goes on during cold and flu season, one of the side effects would likely be listed as 'flu symptoms.'  Okay, maybe I'm oversimplifying, but not by much!

I know how you feel, though, as I have a brand new bottle of a new script for muscle spasms (the bane of my existence, caused by scar tissue wrapped around muscle insertion points and even entire ligaments/tendons and muscle groups).  I'm kind of afraid to try it because I'm worried it will make me loopy or something.  So I deal with the spasms instead...but not tonight.  Tonight when I get home from dinner I will break one of the pills in half and give it a try.  Maybe even a quarter.  So that way you can control the side effects.

Anyway, I took the amytriptylline (called Elavil here) for over a year at a low dose, and the MOST IMPORTANT side effect was that it made me sleepy enough to get at least 5-6 hours of sleep through the night.  That's not a negative thing at all!  I just had to take it at night, after dinner.  And I had to stop taking my primary anti-histimine because it was combining with the Elavil and creating daytime drowsiness, but that was easily dealt with and went away when I switched allergy products.

Give the medications a chance in small, controlled doses in situations where you don't have to study/work/drive.  See how they affect you, and don't be afraid to ask for something different!  I'm on my FOURTH type of muscle relaxant because I had an allergic reaction to one and two others did nothing for me.  It is the duty of your GP to help you--they took an oath to do this, I can't imagine why, with your surgical history, your GP would refuse to give you some kind of medication to help your obvious pain.  You may well need a new GP, one who wants to help a patient's quality of life....

Heather
« Last Edit: October 31, 2005, 10:01:00 AM by Heather M. »
Scope #1: LR, part. menisectomy w/cyst, chondroplasty
#2-#5: Lysis of adhesions/scar tissue, AIR, patellar tendon debridement, infections, MUA, insufflation
#6: IT band release / Z-Plasty, synovectomy, LOA/AIR, chondroplasty
2006 Arthrofibrosis, patella baja
http://www.flickr.com/photos/hmaxwell

Offline lcampos

  • MICROgeek (<20 posts)
  • *
  • Posts: 2
  • Liked: 0
Re: Severe Night Pain
« Reply #16 on: October 30, 2005, 10:38:55 PM »
Have you tried TENS? I have got pain relief with this electrical device.
See some information at http://www.painreliefadvisor.com



I was wondering if anyone had any advice. I'm pain-free through most of the day, and as some of u know I have a lot of scar tissue which has encased my siatic nerve, so I have siatic like symptoms, but they are really bad at night. I'm taking tramadol, tylex and paracetamol which isn't making a blind bit of difference.

Today my PT told me to stop taking them as the pain is still there. I haven;t had a full nights sleep since the op 8 weeks ago, mainly using the meds to knock me out. The shooting pain and the pins and needles are far worse when my leg is flexed. I wake up and physically have to pull it into extension to sort things out.

All I want to do is sleep.

Any advice.

M
x

Offline BridgetJones_uk

  • Forum Faithful
  • ****
  • Posts: 365
  • Liked: 0
  • Love me love my knees!
Re: Severe Night Pain
« Reply #17 on: October 30, 2005, 10:52:30 PM »
I tried TENS before, but it didn't work, I'm in at 8:30 tomorrow, so I'll keep u updated with it. I know its so silly but I really don't want to take an antidepressant, even if it is low dose. I tried explaining this to my mum and she really didn't get it. She just kept saying you don't need that your not depressed and the pain can't be that bad. Do u see if I can't explain this to my family and have them understand, its pointless. Also I'm scared about still being drowsy during the day.

Stupid haematoma and scar tissue and nerve and leg.
M
xxxx
Trauma - Dislocation '96
Chondromalacia, PFS '01
Shallow trochlear groove, Patella Alta & tight ITB dx '03
Right Modified Galeazzi, LR and scope 2004
Left Modified Galeazzi, LR  2005
Redo Modified Galeazzi, LR and scope and medial reefing 2007
Dislocation since last surgery ZERO - FIXED at last!

Offline SarahJane

  • Forum Faithful
  • ****
  • *
  • Posts: 192
  • Liked: 0
Re: Severe Night Pain
« Reply #18 on: October 30, 2005, 11:23:32 PM »
I'm saying this in the nicest possibly way hun ...

You Mum doesn't really need to know what tablets you are taking  (does she know about other private things ... like Contraception, what brand of Tampons you use etc.). 

Plus . . . no one but you knows the level of pain that you are in.   
And you shouldn't feel that you are weak or letting anyone down by admitting that you are in pain and seeking help for it!

My Nortriptyline came labelled as something completely different.   If you don't explain what the tablets are - how  would your family know??? (mine wouldn't)

just tell your family that the Doc has prescribed something a little stronger for you ....   that's all they need to know isn't it?

(and at the low doses that Ami/Nor-triptyline is prescribed for pain - it ISN'T classed as an Anti-depressant. It's a Pain Reliever)

You need to sleep ....

S
Jan 05: Avulsed Patella Tendon (YUK)
Wired together Feb 05
Constant pain after Cast removed
2nd Op Nov05 to remove a 2cm piece of Bone from my Patella Tendon!!!
2 months later STOP physio due to Pain & Crepitus
Feb 06: Ultrasound shows NO Patella Tendon!
No plans for the future! :-/

Offline Ronxski

  • SuperKNEEgeek
  • *****
  • Posts: 753
  • Liked: 0
  • User's Text
Re: Severe Night Pain
« Reply #19 on: October 30, 2005, 11:32:04 PM »
M , there's plenty of meds out there that have several other uses than what they were designed for. I feel for the guys that actually took Minoxadyl (SP?) for what it was made for, high blood pressure . And found the side effect was hair growth!
How about women too? If someone saw their pills and started looking at their scalps wondering if they were going bald?

So Sarah Jane is right. No one has to know what your meds are for. Get the help you need. One of my older friends is taking an antidressant so she can sleep and it works great for that.  Hope this makes you feel better now, Ron
partial meniscus removal, posterior horn of medial meniscus tear,horizontal cleavage type. Dec. O4
Age 55
back to cross country skiing and biking.

Offline BridgetJones_uk

  • Forum Faithful
  • ****
  • Posts: 365
  • Liked: 0
  • Love me love my knees!
Re: Severe Night Pain
« Reply #20 on: October 31, 2005, 04:04:42 PM »
Well, what a bizarrely odd day. The GP has decided that I shouldn't be taking drugs, when the scar tissue and haematoma can be removed surgerically.....er......hello, I am definitely going to talk to the OS and PT, because this is nuts. Also the GP doesn't think 4 weeks is long enough, I need to give it longer - like they're not slept for 4 weeks more than an hr and half each night. I know Its going to go away, I just need to sleep ie. to keep me ticking over, I'm not going to be on drugs for ever.

At moment I should be at work, but I did actually start to see things this afternoon and forgot to counter weight the centrifuge, so covered most things in biohazardous material (just cost the NHS a couple of thousand!) - hence the change of heart, and my supervisor who is an absolutely sweetie is finishing off for me, but ironically sent me home to get some sleep.....hah ha ha ha, its either laugh or cry.............

bridge
xxxxxxxx
Trauma - Dislocation '96
Chondromalacia, PFS '01
Shallow trochlear groove, Patella Alta & tight ITB dx '03
Right Modified Galeazzi, LR and scope 2004
Left Modified Galeazzi, LR  2005
Redo Modified Galeazzi, LR and scope and medial reefing 2007
Dislocation since last surgery ZERO - FIXED at last!

Offline stgiles16

  • SuperKNEEgeek
  • *****
  • Posts: 2326
  • Liked: 0
    • My photo album
Re: Severe Night Pain
« Reply #21 on: October 31, 2005, 10:22:07 PM »
Bridget, chronic pain lowers the serotonin levels in your brain. Some anti depressants raise the serotonin levels in your brain, making you not percieve pain so strongly. This is not a bad thing. I take zoloft everyday. My new pt asked me today if I take it for depression, nope, I take it for pain management. There is no shame in taking a med to help ease the pain,no matter what other uses the drug has.

You need a new Gp. good luck
missy
2 ligament recons right ankle
2 arthroscopic,
5 open knee procedures
2 Plica removals
bone spur removal
2 microfractures
4 debridements
2 open LOAs all on left knee
Arthritis,both knees, ankles, shoulders, elbows, hands,spine
Fibromyalgia
Arthrofibrosis
LOA & PKR 2/15/06
RA
in pain mgmt
TKR JAN 2012

Offline BridgetJones_uk

  • Forum Faithful
  • ****
  • Posts: 365
  • Liked: 0
  • Love me love my knees!
Re: Severe Night Pain
« Reply #22 on: October 31, 2005, 11:31:01 PM »
I think I'm gonna hold the record for the number of GP's changed. 3 within 3 weeks......(just to clarify...moved house and then new GP went on maternity leave) Can't see the PT until later on in the week. Gonna see if she can work on my OS. I'll keep u updated.

M
xxxx

« Last Edit: October 31, 2005, 11:53:51 PM by BridgetJones_uk »
Trauma - Dislocation '96
Chondromalacia, PFS '01
Shallow trochlear groove, Patella Alta & tight ITB dx '03
Right Modified Galeazzi, LR and scope 2004
Left Modified Galeazzi, LR  2005
Redo Modified Galeazzi, LR and scope and medial reefing 2007
Dislocation since last surgery ZERO - FIXED at last!

Offline Heather M.

  • SuperKNEEgeek
  • *****
  • Posts: 4010
  • Liked: 0
    • Check out my photography!
Re: Severe Night Pain
« Reply #23 on: November 01, 2005, 07:36:32 AM »
Bridget,

I know what the sleep deprivation cycle is like.  It's just awful.  I used to have occasional trouble sleeping, when I was really stressed.  And I'd go a couple of nights with little to no sleep, then crash and burn--collapsing and sleeping for 12 hours minimum.  I love to sleep.  I've always needed lots of it, too, possibly because I have chronic allergy issues, so I'm generally either a little bit run down from the allergy symptoms or tired from antihistimines.  So anyway, prior to my knee injury in May of 2001, I used to sleep a minimum of 9 hours a night.  I worked at home for myself and could do a flexible schedule.  I'd go to sleep about 10 or 11, then get up at 4:30am to take my dog to the park (we had to do it before 6am because I lived in Phoenix, where summer daytime highs regularly hit 115F/46C, with my all time record being 118F/48C; by 7am the temp was usually over 100F/38C in the summer, because the nighttime lows would be around 88-92F/31-33C--GAH!).  After spending an hour or so at the park with the other dog-owning vampires, I'd slink off before the sun got too bright and go back to bed by about 6am, sleeping until 9am or so.  Nine hours of sleep every night--for the first time in my life I was getting enough sleep.  Until the knee injury.  And the resulting surgeries.  Since September of 2001, I haven't slept more than 7 hours in a single night.  And that is usually interrupted.  Oh, and 7 hours is a GOOD night.  For the past 6 months, I've really been sleep deprived.

I keep waiting for that night when I crash and burn, when I can drop into bed and sleep for 12 hours.  So far, it hasn't happened.  And I wonder to myself, "How long can this go on?"  What is the record for sleep deprivation or inadequate sleep?  I'm even taking sleeping pills, which I finally gave in and started using again about a month ago.  I'd had to use them for almost three straight months following my last surgery, because I was in a CPM machine every night, strapped in and stuck flat on my back.  Not a position conducive to sleep....

Anyway, what I'm saying is that I understand what sleep deprivation can do to you!  It's one of the reasons I'm not able to work much at all right now.  It can impact every aspect of your life, and truly magnify your pain in ways that you just can't imagine.  You've got to get the sleep under control, then get the pain under control.  I don't understand why your OS can't give you pain medication, especially when you are unable to sleep or function because of being in unbearable agony!!  Don't you work with any doctors with a concept of what pain can do to a person?  Do you work with robots...?

Hang in there.  If reading this post hasn't put you to sleep...well, I have no idea what might.  Good and soothing music helps me.  Breathing exercises.  A really boring book (usually something educational, nothing like fiction or an interesting memoir).

Heather

PS And definitely fire your GP.  She just registered a negative score on the Compassion Meter and should be stripped of her license to practice medicine.  What, does she think you're having surgery for fun??  That you enjoy insomnia and eye-crossing exhaustion.  Moron.
« Last Edit: November 01, 2005, 07:38:54 AM by Heather M. »
Scope #1: LR, part. menisectomy w/cyst, chondroplasty
#2-#5: Lysis of adhesions/scar tissue, AIR, patellar tendon debridement, infections, MUA, insufflation
#6: IT band release / Z-Plasty, synovectomy, LOA/AIR, chondroplasty
2006 Arthrofibrosis, patella baja
http://www.flickr.com/photos/hmaxwell

Offline BridgetJones_uk

  • Forum Faithful
  • ****
  • Posts: 365
  • Liked: 0
  • Love me love my knees!
Re: Severe Night Pain
« Reply #24 on: November 01, 2005, 11:17:52 PM »
Heather M, I like you suggestions. I tried reading some really boring receptor papers the other night - All about orphaned receptors as they don't have partners Aw......Anyways I'm thinking if I'm gonna go and curl up as much as u can with a leg brace and dissappear into a world with Mr Darcy, and the after that I over 6 hrs of Mr darcy on DVD which will take me round to my horrific PT appointment, (as I can't go into the lab tomorrow :'() which is gonna be scar tissue brack down tastic, which wednesday PT always is, and I'm sure she'll try and skin my GP alive too!

Lots of Mr darcy love

M
xxxxx
Trauma - Dislocation '96
Chondromalacia, PFS '01
Shallow trochlear groove, Patella Alta & tight ITB dx '03
Right Modified Galeazzi, LR and scope 2004
Left Modified Galeazzi, LR  2005
Redo Modified Galeazzi, LR and scope and medial reefing 2007
Dislocation since last surgery ZERO - FIXED at last!

Offline lmarteney

  • MINIgeek (20-50 posts)
  • **
  • Posts: 36
  • Liked: 0
Re: Severe Night Pain
« Reply #25 on: November 01, 2005, 11:49:07 PM »
I am so sorry you are having this frustration.  I am pain free too during the day and I take a half of a tramadol at night but wake up in pain - 10 week post patella surgery - I take a half of another pill and am okay.  After surgery my doctor prescribed what he called a coclktail - the pain pill plus an a strong antihistimine to be taken together to ensure a full nights sleep.  Best wishes on getting better -Loire

Offline BridgetJones_uk

  • Forum Faithful
  • ****
  • Posts: 365
  • Liked: 0
  • Love me love my knees!
Re: Severe Night Pain
« Reply #26 on: November 04, 2005, 05:02:53 PM »
Went back to PT as my toes are numb and I've got really bad pins and needles. She mapped out all the sensory bits and then asked me to dorsiflex my foot against resistance, and it didn't happen. I haven't developed a full blown foot drop, but its a bit flappy! So she stalked my OS and explained that I had Pins and needles, weakness and loss/altered senstation over L4,L5, S1. She saw me last night.............My brace is off, but hes not happy as my quads are so atrophied and my leg keeps collapsing, so I have to still wear it to walk distance and in the lab....he surprised as its 8 weeks and I still can't SLR. The OS is concerned about the haematoma, and  apologiesed! - firstly for giving me one and secondly for dismissing the pain I had post op behind my knee! So we dicussed things and she agrees to keep with the PT and if it doesn't resolve she'll operate with the neurosurgeons to remove it. Also have some wierd amytriptiline and gabapentin combo, which I'm going to try tonight.

Thanks for all your help.
Bridge
xxxx
Trauma - Dislocation '96
Chondromalacia, PFS '01
Shallow trochlear groove, Patella Alta & tight ITB dx '03
Right Modified Galeazzi, LR and scope 2004
Left Modified Galeazzi, LR  2005
Redo Modified Galeazzi, LR and scope and medial reefing 2007
Dislocation since last surgery ZERO - FIXED at last!

 














support