Author Topic: Any Peroneal Nerve recovery stories?  (Read 386568 times)

Offline willh

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Re: Any Peroneal Nerve recovery stories?
« Reply #1140 on: January 08, 2016, 11:58:33 PM »
Hi eveyone its been a while since i have been on here but here is my update. So after 6 months of no dorsiflexion and not being able to move my foot outward i elected to have the exploritory decompression surgey. I was originally told that the nerve was an traction injury but when he went on my leg he said i had alot of scar tissue but the nerve was intact and looked fine. Instantly after the surgery i had  some dorsiflexion and could move my foot outward. I didn't have alot of stregth when moving it but i could move it. Basically that tells me that they really dont know until the can see the state of the nerve. I highly recommend getting the decompression/exploritory surgery. I think if i wouldve got it earliet i would have alot more functuon back because im still not able to move my big toe up.

Offline nicolarico

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Re: Any Peroneal Nerve recovery stories?
« Reply #1141 on: February 29, 2016, 06:53:50 PM »
Hello I am new to this forum but I am suffering from foot drop myself and I am very frustrated withe the lack of nerve specialist or at least me finding a specialist. 

Here is my story on October 03, 2014 I was in a skydiving accident.  Yes my parachute fully opened (asked all the time) but I was coming in for a high performance landing (swoop) and impacted the ground.  Many things went wrong that day.  From the moment I left the house to boarding the plane I was about to jump out of.  I had about 1,000 jump at the time of the accident and I was getting a bit complacent.  I had forgotten to do a couple safety check with my audible (audio altimeter) that sits in my helmet and me what altitude I am at.  I have it set for 300ft where I initiate my swoop.  I usually jump near Seattle at a place that is near sea level but the time of my injury I had traveled to Lake Chelan that sits at 1200ft.  My audible must have automatically turned on, during our drive,  when i crossed Snoqualmie Pass (3500ft) thinking I was in a plane.  OK fast forward to jumping out of the plane... As far as I was told because I only remember glimpses of the day that I initiated my swoop at about 100ft (according to my friends) which is 200ft lower than I HAVE TO.  Rule # 1 broken never rely on my audible, #2 use your eyes as an audible when swooping, #3 don't swoop. 

All I know if I woke up in ICU in Harborview Hospital in Seattle.  Thank god I live in Seattle and had one of the best trauma hospitals in the world.  I work up with a chattered left pelvis, dislocated femur, broken pubic bone, internal bleeding, and had a bad concussion.  On top of all this my wife was 9 months pregnant. 

Fast forward to 17 months later.  Aside from the footdrop I have almost full y recovered.  I have been practicing yoga for the past year (once I was off crutches), bought a paddle board and had been on that all spring/ summer.  Now it's winter I bought a seasons pass to a local mountain and have been up 10 times already.  I have been surfing a few times.  I have jogged a mile a few months ago but that was hard on my body but I just wanted to see if I could.  All this with a internet bought AFO.  The big plastic ones really are terrible.  Most of all I can be a father and chase our ever so active 15month old around. 

My reason for this post:
I'm lost.  As you all know WE are our own advocates.  I have been in PT since my injury.  Acupuncture since my injury.  Yoga since for the past year.  I walk an average, according to my fitbit, of 2.5 miles a day.  I'm told by my PT that I am a text book recovery case after an accident like this.  I live in Seattle which is one of the medical places to be in the world.  I tend to hold onto this last thing that has not come back when I should focus on what did come back.  It's hard though.  I went from a professional skydiver/ professional snowboarder to having a tough time walking.  Mostly I am fine with shoes and my AFO but when I don't have that one, around the house, it's hard to get around.   I saw  a specialist for a tendon transfer but my muscles are too weak (at the moment) for that but I'm kinda questioning this surgery.  I read in this thread about nerve operations but I don't know who to talk about this in the Seattle area.  Can ya'll fill me in on this and possible point me in the direction to specialist (any where in the US but west coast would be best).  I look forward to hearing back!
-Nico

Second day back on the hill:
https://vimeo.com/147942731
Yoga since the injury:
https://vimeo.com/122061692
« Last Edit: March 03, 2016, 11:15:35 PM by nicolarico »

Offline Thamp23

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Re: Any Peroneal Nerve recovery stories?
« Reply #1142 on: March 03, 2016, 10:08:02 PM »
Hi, I am also new to this forum but wanted to give some input. 6 months ago I injured my knee playing football with friends. We were playing on a downslope (first mistake) and I landed wrong on my left leg after jumping for the ball and dislocated my knee - torn ACL/LCL/PCL and biceps femoris. Peroneal nerve was also stretched resulting in immediate foot drop. I had one surgery 5 months ago to reconstruct LCL & biceps femoris and another 2.5 months later to reconstruct/repair ACL & PCL. My knee feels great and is getting stronger everyday. I've had no eversion or dorsiflexion in my foot since the injury. According to my surgeon the nerve looked a little beat up but was intact. Last month I flew to St. Louis to see a nerve specialist (Dr. Susan Mackinnon - highly recommended) and had decompression surgery done to relieve stress on the nerve. She said there was a lot of fluid and some scar tissue putting unwanted stress on the nerve. I am 1 month out from the decompression surgery and still no changes with feeling or movement in my foot. The pathway is now clear so I just need to be patient and wait for the nerve to heal itself, which we all know is a slow process. For now, I'm dialed into rehabbing my knee and getting stronger.

Some good advice that I got from Dr. Mackinnon for positive outcome is to exercise (not necessarily just your injured extremity but exercise for the effect it has on your mental state) and to not be depressed! Stay positive and you will get a positive outcome.

nicolarico - I also live in the Seattle area and had a hard time finding a local specialist that could give me answers. I would highly recommend speaking with Dr. Mackinnon if you have the means. She is great and one of the leaders in peripheral nerve injuries - http://nerve.wustl.edu/physician_mackinnon.php?np=our_physicians
 

Offline nicolarico

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Re: Any Peroneal Nerve recovery stories?
« Reply #1143 on: March 03, 2016, 10:28:12 PM »
 :) thank you very much for the information.  I think it would be in my best interest to contact Dr Mackinnon.  I looked at her page but could not find her or her office's contact information.  By chance do you have this info or do I just call the general line?  Thanks again!! 

Offline Thamp23

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Re: Any Peroneal Nerve recovery stories?
« Reply #1144 on: March 03, 2016, 10:42:50 PM »
Not a problem! See the link below and/or call 314-362-4598 for general info. Good luck with your recovery!

http://nerve.wustl.edu/appointment.php?np=patient_care

Offline nicolarico

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Re: Any Peroneal Nerve recovery stories?
« Reply #1145 on: March 03, 2016, 11:07:20 PM »
Tramp23: How did the process go from when you first contacted Dr. Mackinnon living in Seattle and all.  Did you get to chat with her before you trekked out there?  Did you have to go out there before your surgery?  How many more times do you have to make it out there for future appts?  I assume they take insurance and I read they have a nice list of things sent to them. 

I am so happy you commented on this thread.  Even if things don't go my way and I can't see Dr. Mackinnon I really appreciate the info!  I feel health has not dollar amount so I would travel to St L. to see her. 
-Nico

Offline jw454

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Re: Any Peroneal Nerve recovery stories?
« Reply #1146 on: March 15, 2016, 12:20:58 AM »
Hi everyone,
I'm looking for some recovery stories for peroneal nerve decompression surgery. (No foot drop) Frankly, I feel down right scared and nervous that my pain is not going to go away and now I'm experiencing different pains down my leg. I just had PN surgery March 11th. I know I'm fresh out of surgery and it's too soon. Atleast I think it's to soon to feel relief!!! It's also very hard to find recovery stories about this type of surgery.
  a little history: my son and I had a jumping in place contest in March 2015. I had immediate knee pain and leg pain down my shin to my foot. After pt's, mri's, ct scan, leg brace, emg (showed slowing around the fibula head). Knee surgery for fat pad impigment August 2015. 7 weeks post op from knee surgery (oct 2015) I had nerve pain Down my shin to the top of my foot. I was not able to bare weight b/c of the nerve pain. I started gabapentin 1200mg, volteran, and elival and more pt for PN.
  Thanks for reading.

UPDATE: It's very hard to find recovery information about this issue. I am 7 weeks out from surgery and the different pains i was experiencing have subsided. Now the pain is the same I was having before the surgery and the same pain iv'e been having since Oct 2015. I still take all my meds. And I'm really struggling... Has anybody had pain this far out from decompression of Peroneal by fibula head surgery?
« Last Edit: April 26, 2016, 04:54:43 PM by jw454 »

Offline Sio

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Re: Deep Peroneal Nerve and foot drop
« Reply #1147 on: November 06, 2016, 07:41:53 PM »
Hi all,

I'm new here, obviously. I'm trying to see if anyone has had a nerve transfer to treat injury to the deep peroneal resulting in drop foot.

I was in a bicycle accident a year ago. I was struck from behind by a truck and fractured my L4 and L5 vertebrate and broke several transverse and spinous processes off. The worse was the full left side pelvic shear. I also sustained a torn ACL (left). I sustained a massive amount of stretch injury to the L5 nerve.

I had nerve decompression surgery to my deep peroneal about 9 months ago but there hasn't been much progress with the drop foot. I'm at the point of trying a nerve transfer or just moving on with my life. I can't do a tendon transfer as the tendon that would be used is attached to a muscle too weak to execute dorsi flexion.

Has anyone done this surgery? Does anyone have any insight or input to what I could expect. I'm trying to make a decision as soon as I can as time is of the essence.

Cheers,

Hi Itsjess do you have any updates? Hope it all
Worked out for you.

Offline Sio

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Re: Any Peroneal Nerve recovery stories?
« Reply #1148 on: November 06, 2016, 10:41:01 PM »
Hello I hope your operation went well. Can we have an update?

Offline Will.thomas

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Re: Any Peroneal Nerve recovery stories?
« Reply #1149 on: February 06, 2017, 12:53:48 AM »
Hey guys just thought I'd share my story and where I'm at...be nice to get a reply off someone in the same situation as me further down the line or less.

Was playing rugby on 3jan 2016 when I hyperextended my knee stretching out my ligaments and my perineal nerve.

For the most part of the year I just kept getting referd to the fracture clinic for some reason only was it then I actually met with the head of plastics. He took a look at my foot and I explained my situation that since the day of the rugby match where I hyperextended my knee I have not been able to lift my foot up at all. I also have had numb patches all over my foot and around my lower leg.

He then put me down to have a nerve exploration surgery. He did say when he did the surgery any work that needed doing would be done there and then. there was one of two things he would do the first was a smaller op basically just cutting away any scare tissue that would be compressing on the nerve. If that wasnt feasible then he would perform a nerve graft....

Anyways he only ended up doing the removing of scar tissue p. That was on December the 14th it's now February 2017 and although my foot kind of feels better nothing's changed......apparently according to my mother she think my toes are moving sideways a lot more than they were before but I'm not sure. So what I've done it film them and camp are in a month or so and see.

I'm scheduled to meet the doc again in March to see where I'm at.




Offline jw454

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Re: Any Peroneal Nerve recovery stories?
« Reply #1150 on: February 22, 2017, 09:56:02 PM »
Hi there will,
I just had my 2nd peroneal nerve decompression along with a 4 compartment Fasciotomy feb 13th.  I had my first peroneal nerve decompression March 2016. And it was not successful. I walked with a limp, I could not bear weight. I had a swollen anterior tib muscle  constantly along with swollen band around my ankle. I could not be on my feet for more than 10 minutes. Several EMGs were negative and in Virginia  podiatrist are  are not allowed to surgery  Close to the knee. For example by the fibula head.  Several EMGs were negative,  A bazillion rounds of PT, tons of MRIs gabapentin, Elavil, rest,  nothing worked. I kept complaining to my neurosurgeon that something was wrong and I could not bear weight.  He kept saying it was probably just inflamed and kept throwing Medrol dose pack at me.
 I decided to venture out And started getting second opinions from podiatrist and orthopedic surgeons.
 Fast forward to fall of 2016 I found a  Sports medicine foot and ankle  orthopedic doctor.  He suspected CEcs.  We tested for that and came back negative. He said he would do exploratory surgery on the common peroneal nerve deep peroneal nerve and superficial peroneal nerve. We did an MRI December 2016 which showed up positive for a small hernia in my anterior tib muscle. 

 So here I am one week out from my second surgery. And I'm already panicking because I am afraid that we missed it again.  I'm  not  Weight bearing yet. I am in a air boot. I go for my two week follow up this Friday, February 24, 2017. 

Offline Mcall08

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Re: Any Peroneal Nerve recovery stories?
« Reply #1151 on: March 18, 2017, 12:49:08 PM »
Hi there will,
I just had my 2nd peroneal nerve decompression along with a 4 compartment Fasciotomy feb 13th.  I had my first peroneal nerve decompression March 2016. And it wasollen anterior tib muscle  constantly along with swollen band around my ankle. I could not be on my feet for more than 10 minutes. Several EMGs were negative and in Virginia  podiatrist are  are not allowed to surgery  Close to the knee. For example by the fibula head.  Several EMGs were negative,  A bazillion rounds of PT, tons of MRIs gabapentin, Elavil, rest,  nothing worked. I kept complaining to my neurosurgeon that something was wrong and I could not bear weight.  He kept saying it was probably just inflamed and kept throwing Medrol dose pack at me.
 I decided to venture out And started getting second opinions from podiatrist and orthopedic surgeons.
 Fast forward to fall of 2016 I found a  Sports medicine foot and ankle  orthopedic doctor.  He suspected CEcs.  We tested for that and came back negative. He said he would do exploratory surgery on the common peroneal nerve deep peroneal nerve and superficial peroneal nerve. We did an MRI December 2016 which showed up positive for
 So here I am one week out from my second surgery. And I'm already panicking because I am afraid that we missed it again.  I'm  not  Weight bearing yet. I am in a air boot. I go for my two week follow up this Friday, February 24, 2017.

Offline Fraz27

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Re: Any Peroneal Nerve recovery stories?
« Reply #1152 on: March 23, 2017, 07:44:40 PM »
Hi ive been following a few posts with interest , didnt think i would post but now feel it would be worthwhile ...

I was playing football 7 a side on April 02nd 2016 when i tried to volley the ball the defender ran accross me and i dislocated my left knee destroying Acl , mcl and further damage , the pain and aftermath is another story but i could not move my foot and was admitted as emergency
Following Mri confirmed destruction of ligaments , complex knee injury CPN stretched immediate dropfoot !
Fibula head avulsion and hamstrung pulled off.

Surgery a dew days later , nerve examined and found stretched pretty bad reconstruction of knee except ACL as not req untill nerve repairs. Pretty gloomy at start advised might be permenant might be nuropraxia and cpn would recover within 12 weeks......
No such luck , nerve conduction test in July was zero but was informed still a chance of recovery mabye by xmas..

I was off work for 2 months and in truth returned far too early wearing a NHS AFO , which after a change to a stronger model has been fine.

I have been very strict with exercise / Stretching / gym and began cycling and gym 2-3 times per week as well as weekly physio (NHS )

By Aug/ Sep i could hit a golf ball and run on treadmill however no dorsiflexion at all , i was back driving without issue ( manual car )

New year came and went without dorsiflexion however regularly done tinnals test and by sep/oct i could track the nerve healing down outside of leg , some spasms and discomfort but always saw this as positive sign something was happening.

Daily routine
Work wearing AFO , evening hot bath then ems muscle stim for 15 mins aling with green band for stretching and taking b12 tablets

Fast fwd march 10 2017
Running 1.5 miles in 11 min 30 playing golf ( handicap reduced) still wearing AFO and nightbrace but used to it now not stopping me doing much

March 11 2017 like a switch going on during stretching tib ant firing and a little genuine dorsiflexion ( can see the ligiment firing on ankle where it meets foo )

Since then i can now dorsiflex about a cm at most and hold my foot up from dropping ( although very week )
I am so delighted as i was beginning to resign myself to a lifetime of AFO , still wearing it at moment and have a review scheduled  next month with consultant

I am amazed that nerve has taken more than 11 months to reconnect but it has! I know best case it will still take months to get rid of AFO if not a year but it is on the mend , i have followed jaylon smith of NFL who has similar injury which appears to be improving.

I am not a sportsman im 42 years old and i am recovering from this injury , happy to reply with any specifics as ive glossed overmost of the last year.

Fraz

Offline Fraz27

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Re: Any Peroneal Nerve recovery stories?
« Reply #1153 on: March 23, 2017, 07:56:20 PM »
Again this article encouraged me and was just about exactly same injury

https://www.hindawi.com/journals/crior/2015/306260/

Offline Fraz27

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Re: Any Peroneal Nerve recovery stories?
« Reply #1154 on: June 01, 2017, 06:10:52 PM »
Hi update as of Jun 1st 17
Review with orthotic dept I can now ditch the AFO !
15 months with AFO , now provided with an ankle support sportplastic it lifts foot slightly very comfy
Just back from a weeks rehab at treatment centre , amazing difference used the anti gravity treadmill everyday to run 5 k wiyhout brace , dorsiflexion has really improved and eversion , hydrotherapy really helped.
Got new exercises from physio this week.
Ran for 15 mins round park on Tuesday , all in all things are really positive.
When i went for rehab they looked at my exercises to strengthen my knee said i wasnt lifting or pressing nearly enough weight , changed to big weight and low reps again this seems to be working.
Hoping to be signed fully fit at work very soon !

Fraz

 

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