Author Topic: Any Peroneal Nerve recovery stories?  (Read 396818 times)

Offline Mom2Rach

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Re: Any Peroneal Nerve recovery stories?
« Reply #1125 on: June 05, 2014, 03:57:23 AM »
Hello.  My 9 year old has a foot drop  and has undergone two surgeries in the past two years from it.  Wanted to see if you had any recovery or anything that helped your daughter?

Offline under651bridge

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Re: Any Peroneal Nerve recovery stories?
« Reply #1126 on: September 08, 2014, 04:41:06 PM »
Hello all.  I am a physically fit 32 year old male.  I tore my ACL and LCL in my left leg completely along with damaging my peroneal nerve back(hyper-extended almost 45 degrees) in June 19th, 2014 wrestling with my brother.  I had surgery to repair my ACL and LCL and nerve exploration on July 26th, 2014.  I am currently on my 4th week of doing physical therapy for my knee and I have seen some improvement already.  I am very sure my knee will recover and be back to 100 percent eventually.  My foot on the other hand, has yet to see any improvement.

Since the injury, I have been able to curl my toes downwards and push my foot downwards.  But I have not been able to lift my foot upwards or twinkle my toes.  The top portion of my foot and certain parts of the left side of my knee and calf are also numb.  Swelling in my knee and foot has subsided but has not fully gone away.

I did get in touch with an old friend and he had an injury very similar to mines.  He also injured his knee by hyper-extending it along with damaging his nerves causing foot drop while playing football.  He informed me that 6 months after his surgery, he was able to move his foot and toes again.  Because of what he told me, I am somewhat hopeful that I will recover in time.

It has been a very discouraging 2 1/2 months since my injury.  I know how frustrating it is to not be able to do the physical things I was very capable of doing prior to my injury (I just destroyed a Tough Mudder back in May!).  I also know what it's like to want answers and live testimonies from those who have had similar injuries and not have them readily available so I will continue to post my progress to keep others informed and inspire some hope.

Til next time, stay hopefull and get healthy.

Offline itsjess

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Deep Peroneal Nerve and foot drop
« Reply #1127 on: October 16, 2014, 11:48:46 AM »
Hi all,

I'm new here, obviously. I'm trying to see if anyone has had a nerve transfer to treat injury to the deep peroneal resulting in drop foot.

I was in a bicycle accident a year ago. I was struck from behind by a truck and fractured my L4 and L5 vertebrate and broke several transverse and spinous processes off. The worse was the full left side pelvic shear. I also sustained a torn ACL (left). I sustained a massive amount of stretch injury to the L5 nerve.

I had nerve decompression surgery to my deep peroneal about 9 months ago but there hasn't been much progress with the drop foot. I'm at the point of trying a nerve transfer or just moving on with my life. I can't do a tendon transfer as the tendon that would be used is attached to a muscle too weak to execute dorsi flexion.

Has anyone done this surgery? Does anyone have any insight or input to what I could expect. I'm trying to make a decision as soon as I can as time is of the essence.

Cheers,

Offline under651bridge

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Re: Any Peroneal Nerve recovery stories?
« Reply #1128 on: November 06, 2014, 03:01:28 PM »
Update on my condition:

I am currently around the 4 1/2 month mark since my injury and 3 1/2 month mark since my surgery.

Foot drop: Since then, I have regained my ability to invert my foot which the neuro surgeon told me IS NOT due to loss of motion caused by peroneal nerve palsy. The top of my foot is only numb in certain areas versus before where it felt like the entire top part of my foot was numb. I still can't wiggle my toes though I can curl them downwards. I still get extremely painful burning sensations through my lower leg and foot. I like the pain though because I have been told that it is a sign that the nerve is trying to heal itself.

ACL and LCL injury: My knee is doing a lot better. I had a manipulation procedure done 3 weeks ago which I had to be put under and was extremely painful when I came to. The procedure did wonders though. I was only able to bend up to 65 degrees at best then and can now bend up to 110/120 degrees. I did buy a CPM machine for 600 bucks off Ebay since my last post. That thing has proved to be extremely helpful and is definitely worth every penny.

Recent neuro surgeon visit: So I was referred by my ortho surgeon to see a neuro surgeon for my foot drop to get a second opinion. The things he told me were not encouraging at all. He basically told me I had 4 options available to me; all of which had extremely low chances of me regaining any dorsiflexion back in my foot. Option #1 was to take a nerve from my right leg and implant it in the damaged area of my left leg causing me to lose certain feeling in my right foot. Option #2 was to take it from the same leg. Option #3 was to use a cadaver nerve graft. Option #4 was to do nothing and wait to see if the nerve will regenerate on it's own. I was told by the surgeon that option #1 would be my best option. But I informed him that being in the Army, I need full feeling and use of my foot. So to me, option #4 seemed to be my best course of action. Keep in mind he never mentioned the tendon transplant option which I know is available and have been told is a very successful procedure for those with foot drop.

My overall gains and condition: I can walk slowly now without my AFO, leg brace, and crutches. It is a funny limp walk due to my foot drop. I definitely walk 10x better when wearing my AFO. Like I noted earlier, I regained my ability to invert my foot (moving foot inwards). I have started to go back to the gym and am doing some upper body work outs in moderation. I will be trying to incorporate some modified squats soon to enforce muscle regrowth in my legs. I have lost 12 lbs since my surgery. I currently weigh only 148 lbs at 68 inches and I am a fairly medium muscle build guy so losing 12 lbs is quite a bit of muscle mass. I will also begin walking exercises soon and will start biking once I can enforce my range of motion back in my knee.

Final thoughts: In the end, the road to recovery has been extremely tough. I consider myself a physically, mentally and emotionally strong person. There has been times so far that this injury has brought me to my knees. But I continue to get back up and push through. I hope and pray everyday that this injury of mines will recover. The 19th of December will mark my 6 month injury date just in time for Christmas. I pray the Lord gives my body the strength to heal my injuries by that time. For all those with the same or similar injury; never give up and keep fighting till your last breath. Rehab, rehab and rehab some more. Constantly tell your foot and toes to do what it's supposed to do.

I hope and pray for all your recoveries and I will continue to keep you posted on my progress. Take care.

Offline Pocket Witch

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Re: Any Peroneal Nerve recovery stories?
« Reply #1129 on: November 19, 2014, 05:05:37 PM »
Hi all,

I've been reading this thread on and off for a while now and figured it's about time I've shared my story.
It's going on 3 years since my intial injury, I fell piggybacking another player while at rugby practice and managed to break my left tibia plateau, dislocate my knee, tear my ACL and LCL, and stretch the peroneal nerve causing drop foot.

The first surgery was just to put my knee back together, but the orthopeadic surgeon noticed that the nerve was stretched, but not ruptured. He referred me on to a neurologist, he did an EMG and found that there was no nerve function. Cue going under the knife about 8 months post-intial injury for a nerve graft. The damage ran about 4 inches along the nerve, I was given about a 30% change that the graft would be successful.

The EMG done a year later still showed zero nerve function and I was getting pretty tired of walking around in an AFO, so I was referred on to a foot and ankle specialist to see about a tendon transfer. My Achilles had shortened quiet a bit over the 2 years, so the surgeon released the achilles at the same time as the tendon transfer. That recovery was brutal, I planned well enough to avoid using crutches in the snow but didn't realize how unpleasant a cast in the summertime would be.

Now I'm almost 3 years post-injury and 7 months post-tendon transfer and I finally have dorsiflexion and can walk without an AFO! I haven't been able to run just yet and rugby is probably out of the question now, but I can start to see some strength coming back. And the nerve pain and constant swelling in my foot went away after the tendon transfer, which was a nice surprise.

Recovery is tough, and some days are better than others. I wish each and every one of you the best of luck.

Offline DAZA

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Re: Any Peroneal Nerve recovery stories?
« Reply #1130 on: December 07, 2014, 06:13:52 PM »
Hi my name is Daza from Melbourne Australia

In September 2014 i dislocated my left knee in some fitness sporting activities i tore all the ligaments in my knee , i had to have a full knee reconstruction . it was discovered that i had broken the peroneal nerve that controls my foot up and down , another word for this is ( foot drop)
 
I have been very angry , depressed , sad  fearful etc
the surgeons said there is no guarantee that the nerve will regrow back
they said later on if the nerve did not take
they can do another thing called tendon transfer , cut and rearrange tendons in your foot to try to help
keep your foot from dropping

I don't want tendon transfer i want my nerve to fully regrow back.
i want full function of my foot , the way it was before this incident occurred

I have decided that the nerve is going to regrow back
and that i am going to have the full function of my foot back

I am applying strong belief , the power of faith
i do know that the mind is a very powerful tool, and incredible things can occur when you put the power of faith into it
i have decided i am going to have a 100 % recovery
its going to happen!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Offline under651bridge

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Re: Any Peroneal Nerve recovery stories?
« Reply #1131 on: December 12, 2014, 02:34:33 PM »
Hello DAZA and welcome to this thread. Thanks for sharing your story and I hope everything is going well on your road to recovery.

I too have a stretched nerve and have been told the same thing by my doctors. Right now, I am currently debating whether to have my nerve re-explored. I recently got a second opinion on the procedure and both neuro surgeons strongly agree that I should consider doing it in the near future as time is not on my side. Going back under the knife does not excite me at all and I am still debating whether I will go through with it or not. But if I do undergo the procedure, it will more than likely be some time around early January.

In the mean time, I am doing my best to stay positive. I want more than anything for my nerve to heal on its own. I believe I am doing everything possible. The 19th of this month will mark six months since my injury and the 26th will mark five months since my surgery. So I am hoping that I will get sensation back some time within this month.

I will continue to update my status on here. Until then, good luck on your recovery.

Offline Naganickel

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Re: Any Peroneal Nerve recovery stories?
« Reply #1132 on: December 13, 2014, 11:37:22 PM »
It's been a while since I posted on here. Quick summary of what's been happening in my case
 Knee dislocation + peroneal nerve damage just over 3 years ago. Ligament surgery 5 months after injury. Nerve decompression by nerve specialist one year after injury. After the decompression started to regain some  dorsiflrxion over the course of a year. Got to a point where I was walking without an afo (still awkwardly, but not terribly). A year after decompression still had many knee problemslast, had a scar tissue clean up. But it knocked my nerve recovery out. Been walking with  afo. Last week, 38 months after injury, had a tendon transfer. I have 6 weeks non weight bearing with a cast, so free time it is.

To under651bridge. I highly encourage you to have your nerve explored. It is the least invasive surgery in this case. You can usually walk the same day. No big recovery, crutches etc. Also, after knee surgery there is often scar tissue that forms around the nerve. As you have been told, time is of the essence. And nerve exploration offers the possibility of full recovery, unlike tendon transfer etc.

Offline under651bridge

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Re: Any Peroneal Nerve recovery stories?
« Reply #1133 on: January 05, 2015, 02:22:32 PM »
Naganickel:

I did a lot of thinking and consulting over the holidays and decided I will do the re-exploration of the peroneal nerve. I am currently scheduled to do my surgery on the 19th of January. I personally know someone who has recovered from foot drop and had an injury very similar to mines (his was actually a bit worse). He highly advised me to do the procedure as he told me he almost regained motion in his foot after his peroneal was explored the second time. Because of his recovery story, I am quite hopefull I will recover here soon in the near future.

Though I am still in good shape, I definitely look forward to the day I can get back to being active again. I will continue to update. Good luck to everyone on their road to recovery.

Offline laurentia

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Re: Any Peroneal Nerve recovery stories?
« Reply #1134 on: March 10, 2015, 10:22:53 AM »
hi all,
I have read quite a bit of this thread and learnt a lot. I have had foot drop for almost a year and I still dont have any dorsiflexion. im going to the same neurologist this friday for my 3rd EMG test and hope i get some answers.
wishing everyone recovery.

Lauren

Offline under651bridge

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Re: Any Peroneal Nerve recovery stories?
« Reply #1135 on: March 17, 2015, 01:27:02 PM »
Hello all.  Sorry I have been away for awhile but here is an update of where I am since I last posted.

I got a second peroneal nerve exploration surgery done on January 19th of this year.  Following the surgery, I had to keep the leg elevated quite a bit and lost some ROM on the knee but I was able to get that back in about 1 to 1.5 months.  My knee has been doing a whole lot better.  The muscle in my leg is coming back at fairly good rate now.  It is literally getting stronger each passing week.  I am very close to 120 degrees ROM now.  I am very close to 100% full extension.  As far as my foot goes; I still have the foot drop BUT color has come back to my foot.  My foot was discolored before and looked like it was dying.  I now have a flush skin color back in my foot.  You can also see the veins in my foot again.  Because of this, my neuro surgeon is optimistic that I will regain my foot back in due time.

My questions to those of you who got their foot back is:  Did your foot lose it's natural skin color when you had foot drop?  If so, did you notice the color come back near the point of you regaining your dorsiflexion?  If so, how long was it after your color coming back did you regain your dorsiflexion?

I would highly appreciate your answers.  And thanks to everyone's contribution so far and I wish everyone a speedy recovery.

Offline willh

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Re: Any Peroneal Nerve recovery stories?
« Reply #1136 on: April 08, 2015, 07:17:32 PM »
My injury is about 30 days old but i have been diagnosed with common peroneal nerve palsy. I have the drop foot. It came from a freak accident where i was sitting down and my leg went to sleep so i stood up and tried to take a step and my leg buckeled. The doctor said it was a calf tear but instantly there wasn't any dorsiflexison in my left foot.feom the xray they said all my ligaments in the knee was ok. I am scheduled for an emg test monday it has been about 30 days since the injury. Can anyone tell me what im up against and what to expect

Offline Real Talk

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Re: Any Peroneal Nerve recovery stories?
« Reply #1137 on: July 10, 2015, 05:03:13 PM »
Willh, sounds pretty similar to my case. I injured mine back in March in a freak accident (hit my knee wrong and pinched the nerve) Doctor also told my it was a calf tear and I got an xray and everything looked fine. Finally got my EMG this week and nothing too encouraging but DR said because I'm only 19 I have pretty good chances. Keep your hopes up!

Offline Never2late

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Re: Any Peroneal Nerve recovery stories?
« Reply #1138 on: July 18, 2015, 09:34:29 PM »
5 months ago I noticed that I couldn't lift my toes on my left leg.  The pain and swelling led me to a stat MRI at the Cleveland Clinic, which showed a huge sebaceous/synovial cyst compressing the peroneal nerve at the fibular head.  I had the cyst removed along with arthroplasty knee surgery but the neurologists now say that I will never regain use and feeling in my left lower leg, doral ankle, foot or toes without a nerve and tendon transplant.  Does anyone have any suggestions of any centers of excellence for this surgery and any idea of the post-op recovery process and time?  2 years ago, I was running and climbing mountains.  Now, I can barely walk.  Any input would be greatly appreciated.

Depressed.

Offline POMBAL

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Re: Any Peroneal Nerve recovery stories?
« Reply #1139 on: September 05, 2015, 01:41:27 PM »
Just read your story.  I had knee damage april 2013 - tibial plateau fracture and foot drop.  Apparently stretched 15cm after an exploratory.  Have tendon transfer Op booked for the end of Sept - any advice after the surgery?  What is the pain like?  How soon did you loose the cast?  I have an an AFO for the last 2 years and just limp and struggle with it all the time.

Hope to hear from you.

Regards

 

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