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Author Topic: I'm so frustrated at w/c that I could scream!  (Read 9607 times)

Offline damknee

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Re: I'm so frustrated at w/c that I could scream!
« Reply #15 on: September 24, 2005, 02:59:22 AM »


Christina,

You do know that you were beemed up by aliens implanted with secet super duper alien trackig device, and they are controlling the device, ie "metal/shavings/plactic/staples/not-metal" (wink, wink) by a big magnet in space and every OS you go to they move them around just to make sure it goes undeted of exactly what it is and the men in black dont find you. Don't that sound much better?

I mean really how stupid do they think we really are? Last time I checked metal does not absorb into your body. And what the hell do the doctors gain by lying, it is't money out of their pockets. Shoot I would help because then I would know you would come to me all the time, then all the other messed up cases out there by word of mouth because I actually do something would come too. Okay that is my fantasy world I know.

From what I know when I was released from my job, if they can not accomadate your restrictions/disability and can not place in a postion available that will not possibly cause you further injury then they can release you or send you home. Like I knew any perm restrictions and I was fired. They tell you that from the beginning. You are right though that would explain why he was acting so funny. I wonder if maybe sometimes they feel like it all might get ugly and just dont want to be a part of it all. I know alot of doctors are getting out of the field or retiring because of all the insurance bull.....and it is the big money making fields anymore...I am not saying they dont do just fine....but my moms boss and personal family friend is a family practice dr and I used to do his books and insurance, his fees are by no means high and like a surgery he performed was $1000. They paid something like $123. It honestly did not cover the materials that he had to use, throw away, and buy more. My ex's open heart surgery was $264,000 final bill, everybody included, military insurance paid $23,600. That is a helluva diff.
Anywho.....I have learned they think the more running around in circles they make us go and do eventually we weill get fed up and just be done and settle, but the more they make us do, the worse we get and then, the more they will have to pay so why not just take care of us from the get go???????

OH I FORGOT, because that makes tooooo much sence. I wanna be in the TV show.....but who gets the best handicap parking spaces?

You are hilarious girl I agree sometimes an actual voice that you can laugh at the same crap going on does ya good sometimes. I told my friend today you would fit right in, in our circle of craziness.

I have no updates on me yet....just preparing for the battle....I am lion hear me be PISSED.

By all..........

Jennifer ;D

My only job in life is to serve as a warning to others!

1999 Iliotiibal band/plica band lateral release (nothing to do with patella)
Dec 13, 2004 Baker's cyst removal which went horribly wrong resulting in.....
April 4, 2005 Failed Distal Realignment TTT

Offline christinaz

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Re: I'm so frustrated at w/c that I could scream!
« Reply #16 on: September 24, 2005, 10:20:10 PM »
Hi all,

Just a little update for right now.  I called the neurologist again (main office) because the pain was really horrible all night.  After some looking, I came across RSDS and read through the signs and symptoms of it.  I have every single one and from what I read it looks like I am at stage 3.  I complained about all of these symptoms to the doc that did my surgeries and he pretty much ignored all of it.  I hope it isn't RSD because I didn't like what I read about it, but I showed it to my husband and he says that it sounds exactly like what I have been going through even with the progression of the stages.  So I told the neurologists office about this and they said to call first thing Monday morning to see if they could get me in right away because of the severity of my pain.

Then Nick told me that he stopped by scheduling on Friday because he works at the same casino and the girl in scheduling told him that she had been instructed to take me off the schedule indefinately.

I need to get all of this straightened out Monday, it should be a very busy day.

Talk to ya soon

Love,
Christina
3 scopes rt knee, acl recon pt graft rt knee,  rev acl recon allograft rt knee,  Hardware removal, lysis of scar tissue, ITBS, sublaxation, sensory peripheral neuropathy, DDD, arthritis, RSD, mystery hardware, flexion contracture, disuse atrophy, muscular wasting, constant fatigue, acl recon lt knee

Offline christinaz

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Re: I'm so frustrated at w/c that I could scream!
« Reply #17 on: September 26, 2005, 03:53:24 PM »
Hi all,

I called Dr Shelbourne's office this morning at 8:50 am and told them my story.  They want to see me TOMORROW morning at 11:30 am with my entire record and all of my films.  He will be taking more films of BOTH of my legs tomorrow and the appt will be 2 or 3 hours long.  I was in tears and still am that someone listened to me!!!  They could care less who operated on me, they just want to find out what is wrong.  They must think it's pretty important, because he's supposed to be one of the best in the world and they want to see me immediately.  I have never gotten in to see an OS without at least a 2 week wait.  It's a 3 hour drive, but I'm going to see if my neighbor is off and can go with me.  If not, I'll make the drive by myself.  I've already arranged for care for Fiona during the day and my mom is going to watch the rest of the girls for me after school.  I just can't believe that someone is listening and is going to help me.

I'll add more after my appt tomorrow, it'll probably be late, but I should know something for sure tomorrow.

Wish me luck! ;D

Love,

Christina
3 scopes rt knee, acl recon pt graft rt knee,  rev acl recon allograft rt knee,  Hardware removal, lysis of scar tissue, ITBS, sublaxation, sensory peripheral neuropathy, DDD, arthritis, RSD, mystery hardware, flexion contracture, disuse atrophy, muscular wasting, constant fatigue, acl recon lt knee

Offline kath

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Re: I'm so frustrated at w/c that I could scream!
« Reply #18 on: September 26, 2005, 08:05:18 PM »
Christina, is Dr S the neurologist?

kath
Bi-lateral unicompartmental Nov 2004

Offline rozzzie

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Re: I'm so frustrated at w/c that I could scream!
« Reply #19 on: September 26, 2005, 10:50:43 PM »
Christina,  I have heard that he is a great OS.  Good luck tomorrow, it's so nice to have someone care about you.

Drive carefully!

HUGs

Rozzzie
OA of knees since 85 
93 scrambled ankle - PE
98 PE
99 anlke fusion
04 hit by car broken leg, ribs AC joint seperation
RTKR  Dec 1 2005
LTKR. IM rod removal March 16, 2006

Offline christinaz

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Re: I'm so frustrated at w/c that I could scream!
« Reply #20 on: September 27, 2005, 01:16:46 AM »
Kath

No,  Dr S is a highly regarded OS.  I'm going to see the neurologist next week on Oct 4.

Rozzie, thanks so much for the support.  It's going to be a long day but it's going to be worth it.

I'll let you know more tomorrow night.

Christina

3 scopes rt knee, acl recon pt graft rt knee,  rev acl recon allograft rt knee,  Hardware removal, lysis of scar tissue, ITBS, sublaxation, sensory peripheral neuropathy, DDD, arthritis, RSD, mystery hardware, flexion contracture, disuse atrophy, muscular wasting, constant fatigue, acl recon lt knee

Offline christinaz

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Re: I'm so frustrated at w/c that I could scream!
« Reply #21 on: September 28, 2005, 03:54:28 PM »
Hi all,

I went to see Dr Shelbourne yesterday and he is phenomenal.  He took an extensive history and several views of BOTH knees along with ROM and strength testing of both legs.  He even asked which was my stronger leg before my accident, something no one had bothered to ask before.  He didn't want to see me walk, because he had already seen me walk down the hallway on crutches to get my xrays and my foot was already dragging.  He said he's not concerned at this point what is implanted in my tibia or about anything else other than the extension.  He said I am by far the worst case of a deconditioned knee that he had ever seen and that I have extensive atrophy throughout my entire leg now, not just the knee.  I have less than 10% function in my right leg compared to my left leg at this point and he said I have flexion contracture.  Anyway, he said that had my OS followed proper protocol pre and post op and paid attention to my care, that I would never have gotten to this point.  This is directly the fault of my OS and that pisses me off.  He said he's going to get me to walk again, but this is going to be a long and painful process.  I don't have any answers yet as to whether I'll be able to run or do sports but I'm taking this one step at a time.  I'm in an immobilizer and crutches to walk to try to force my leg into extension and minimize the buckling when I walk.  I am also using an elite extension seat which straps my leg in and forces it to hold extension and then every 2 minutes I crank it down further.  I am doing excercises with my ankles and quads and hamstrings along with my calves.  I am forcing myself to try to not compensate by lifting my hip to move my leg.  His therapist said that even if it takes 5 minutes to do it, I have to get my leg to move off the couch or bed or into the car by itself without giving up and moving it with my hands.  I'm trying to shift some weight onto it when standing. In general, I have to learn how to walk all over again. 

I was in so much pain driving home yesterday and had to pull over twice to get out because it was too much pain, but I made it.  So, today starts the long process of trying to get my leg and my life back.  I think it's going to be rough, but I am not ready to give up.  I've got to get better so I can go kick my OS's *ss so I can put a picture of it on Dr Shelboune's wall thanking him for giving me the ability to walk back.

I would definately recommend Dr S to anyone.  I've been to a lot of OS's and he's by far the very best I've come across and he gave me the one thing no one else did...HOPE!!!!!!!!!

Love, Christina

PS...I still go to see the neurologist next week to find out about nerve damage.

3 scopes rt knee, acl recon pt graft rt knee,  rev acl recon allograft rt knee,  Hardware removal, lysis of scar tissue, ITBS, sublaxation, sensory peripheral neuropathy, DDD, arthritis, RSD, mystery hardware, flexion contracture, disuse atrophy, muscular wasting, constant fatigue, acl recon lt knee

Offline Nettan

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Re: I'm so frustrated at w/c that I could scream!
« Reply #22 on: September 28, 2005, 04:01:24 PM »
Christina, your words make me smile !! So glad to hear that someone is taking you seriously and tries to help.
If the way is hard on you, don't be afraid of getting painmeds enough to conquer it.
The neurologhist can be a good help when it comes to painmeds.
HUGS TO YOU !!

NETTAN  8)
Surgery 6 times left knee torn meniscus, RSDS,chondromalacia, nervdamage cause constant nervpain,chronic inflamm.
Spinaldamage wheeler 100%.
Right knee damaged aug-06, use brace surgery 4/9-07.LCL tear.

Offline rozzzie

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Re: I'm so frustrated at w/c that I could scream!
« Reply #23 on: September 28, 2005, 09:54:54 PM »
Christina,

WOW!!     Getting HOPE back is the first step, work hard and like Nettan said and don't be afraid to use pain meds for the rehab if necessary.

GOOD LUCK!

Rozzzie
OA of knees since 85 
93 scrambled ankle - PE
98 PE
99 anlke fusion
04 hit by car broken leg, ribs AC joint seperation
RTKR  Dec 1 2005
LTKR. IM rod removal March 16, 2006

Offline damknee

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Re: I'm so frustrated at w/c that I could scream!
« Reply #24 on: September 29, 2005, 04:39:36 AM »
 ;D :) ;) :D :-* :'(, I am so happy for you Christina when I get bigger in a month I am going to be just like you.....going to the good Dr. S....yippee...next month. Have to get all the ducks in a row first ya know....

But I was so glad to hear the happiness in your voice when we spoke....hell I was happy and it wasn't me...with how down I was the first time you reached out to me Im just glad there is hope out there waiting for me to get. Seems both our OS failed to follow protocal. Mine as simple as NOT HAVING ME PUT WEIGHT ON MY LEG...... you best believe I will go after his butt now. My IME and 2nd opinion who is one of the same....(illegal might I add) States all through her report when I went for the second opinion how much of an athlete I was..on her physical exam I was VERY athletic, very muscular build. pleasant appearing female weighing 137. Now I am not athletic, not muscular build, as the weight I was lifiting had to be supported with the help of my leg....well duh...and I now weigh 118....of flubber and jiggly skin.  :-[ :-\ >:( :(.....but dang it . I will get there even if it is only one leg that looks good......I guess my left side will now be my good side....
well CONGRATS CHRISTINA.......we will have to meet and have a Christina can walk again party when it happens........Thanks for the smile....and the hope....

Jennifer
My only job in life is to serve as a warning to others!

1999 Iliotiibal band/plica band lateral release (nothing to do with patella)
Dec 13, 2004 Baker's cyst removal which went horribly wrong resulting in.....
April 4, 2005 Failed Distal Realignment TTT

Offline christinaz

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Re: I'm so frustrated at w/c that I could scream!
« Reply #25 on: September 29, 2005, 02:52:57 PM »
Wow,

Jen, I am so happy for you.  I hope you like Dr S as much as I did.  He will figure out how to fix you.

As for me, my OS's office says that they do not have my surgical record...only my operative report.  So they are saying there is no record of what is implanted in my leg.  I need this info to go to the neurologist next week because she wants my complete record.

What to do now???

Love,

Christina
3 scopes rt knee, acl recon pt graft rt knee,  rev acl recon allograft rt knee,  Hardware removal, lysis of scar tissue, ITBS, sublaxation, sensory peripheral neuropathy, DDD, arthritis, RSD, mystery hardware, flexion contracture, disuse atrophy, muscular wasting, constant fatigue, acl recon lt knee

Offline Nettan

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Re: I'm so frustrated at w/c that I could scream!
« Reply #26 on: September 29, 2005, 02:59:06 PM »
Where did you do the surgery ? Maybe it's still left there ?

HUGS NETTAN  8)
Surgery 6 times left knee torn meniscus, RSDS,chondromalacia, nervdamage cause constant nervpain,chronic inflamm.
Spinaldamage wheeler 100%.
Right knee damaged aug-06, use brace surgery 4/9-07.LCL tear.

Offline christinaz

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Re: I'm so frustrated at w/c that I could scream!
« Reply #27 on: September 29, 2005, 03:02:10 PM »
Nope, called them yesterday and they said that the doctor's office has it.


This is really weird

Christina
3 scopes rt knee, acl recon pt graft rt knee,  rev acl recon allograft rt knee,  Hardware removal, lysis of scar tissue, ITBS, sublaxation, sensory peripheral neuropathy, DDD, arthritis, RSD, mystery hardware, flexion contracture, disuse atrophy, muscular wasting, constant fatigue, acl recon lt knee

Offline Nettan

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Re: I'm so frustrated at w/c that I could scream!
« Reply #28 on: September 29, 2005, 03:07:46 PM »
Christina, you have to make them dig deeper to look after them.They must be somewhere.
What does the x-rays say, someone must know what you have inside.

NETTAN  8)
Surgery 6 times left knee torn meniscus, RSDS,chondromalacia, nervdamage cause constant nervpain,chronic inflamm.
Spinaldamage wheeler 100%.
Right knee damaged aug-06, use brace surgery 4/9-07.LCL tear.

Offline christinaz

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Re: I'm so frustrated at w/c that I could scream!
« Reply #29 on: September 29, 2005, 03:20:09 PM »
Nettan,

The xrays say that there is no metal hardware in my tibia and one large screw in my femur, however my MRI says that there are multiple screws in my tibia inserted horizontally and not vertically(as is done in both acl recon and rev acl recon) but that they are nonradiopaque (nonmetallic).  The OS's office called back and said that what the MRI is seeing is remnants of my METALLIC screw that was removed.  It dowsn't make any sense how a Metal screw when removed can change composition from metallic to non metallic, change posistion from vertical to horizontal, and then multiply.  Someone is LYING.  I need to get to the bottom of this.  I feel like Nancy Drew.

Love Christina
3 scopes rt knee, acl recon pt graft rt knee,  rev acl recon allograft rt knee,  Hardware removal, lysis of scar tissue, ITBS, sublaxation, sensory peripheral neuropathy, DDD, arthritis, RSD, mystery hardware, flexion contracture, disuse atrophy, muscular wasting, constant fatigue, acl recon lt knee

 















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