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Author Topic: Kneecap feels like it's floating on jello??  (Read 7914 times)

Offline Kidnurse911

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Kneecap feels like it's floating on jello??
« on: August 08, 2005, 07:05:42 PM »
Hey guys,

It's me again...i'm not getting to much of a response from my therapist and I'm getting really frustrated.  I don't think he realizes what an active person I am!  It's been 3 weeks since my scope, which they tell me they did nothing, and my leg is worse than it was before the scope.  The best way I can describe this is that it feels like my kneecap is floating on a bowl of jello and could pop out at anytime!  I'm scared to walk normal because my kneecap locks when my leg is straight and it's very painful (use to be uncomfortable) to unlock!  It locks down at the bottom and when I unlock it, the kneecap pops up toward my quad?  I have shown my therapist this and all they say is eww...that's not suppose to do that!  I'm a fastpitch softball pitcher and I need my push off leg to work right.  I'm very upset at this point since it's been 20 weeks with no good results.  My quad is, of course, much smaller on the right since the scope and now I'm getting shooting pains through my groin area when I walk or move my leg.  I don't know what could be causing this because there is no way that I would have been able to injure my groin since I do nothing but sit around and ice my leg all day and night.  I woke up with this pay and I'm not a wild sleeper!  I'm so confused and my therapist aren't really helping any.  I go to see the doc tomorrow!  I can't relieve my stress like I use to (go out and pitch or hit a ball into the tarp!)  I'm very frustrated at this point.  Does anyone out there know of anything that they could try.  They have tried taping it....I had to rip in off because it hurt too bad.  They tried pulling the patella up and they stopped that because that hurt to bad and they said that it shouldn't hurt!  I'm in regular and water therapy and nothing seems to be helping just hurting it more!  Any advice would be appreciated!

Jen  :'(

Offline Nettan

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Re: Kneecap feels like it's floating on jello??
« Reply #1 on: August 08, 2005, 07:24:40 PM »
Jen !!

Even if they didn't find anything wrong in your knee, your doc though must admit that your kneecap isn't were it should be. What caused everything from beginning did you hurt yourself or got a pain coming from nowhere getting just worse and worse ? A second opinion should be a good thing for you. But though be aware of the muscles you miss now is very important to get back. This with jello is this a thing which has appeared after the scope, if so it's the swelling you get after a scope you feel. You always get worse after a scope even if they don't do any surgery in the knee. They have move around in your knee and that can cause irritation and also inflammation. Are you on any antiinflammatory meds ?
Wish I had more to say....hope you get better soon.

Hugs nettan  8)
Surgery 6 times left knee torn meniscus, RSDS,chondromalacia, nervdamage cause constant nervpain,chronic inflamm.
Spinaldamage wheeler 100%.
Right knee damaged aug-06, use brace surgery 4/9-07.LCL tear.

Offline Kidnurse911

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Re: Kneecap feels like it's floating on jello??
« Reply #2 on: August 08, 2005, 07:31:00 PM »
The original injury happened in 99...I was pitching and a batter hit a line drive back at me ( i was about 30 ft away) and it hit my kneecap and dislocated it...when I fell it popped back into place.  I had a scope done in 2000 with a LR and it didn't get any better.  I have had the "jello feeling" since then and it's just getting worse.  I can be standing on my leg and if I make a quick move my knee pops out.  It goes right back into place though....just very painful.  I actually am on my 3rd doc.  My first one said he didn't know and send me to the second one and the second one did the scope and said he didn't know what was wrong and then left the practice.  I'm not with one of his partners which I work with so I'm pretty sure that he will be more willing to find out what is wrong and fix it.  It just aggrivates me that the pt can't seem to tell me why i'm not getting any better....in fact I'm getting worse!  I'm on Voltaren for my anti-inflammatory.  Been taking it for 3 weeks now twice a day and I'm constantly icing it.  I have on of those ice machines that works very nicely!  I'm just to the point that I think everyone thinks that I'm faking this and i'm not.  I can show them that my knee locks and pops out funny, but they just think that's normal!   :-\

Offline Nettan

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Re: Kneecap feels like it's floating on jello??
« Reply #3 on: August 08, 2005, 07:57:12 PM »
Jen !!

Don't you ever give up on this. I know there are people here who has had failed LR and done other surgeries later on and got better. My advice to you is to keep on fighting until you find a surgeon who is willing to make surgery on you.
Maybe you also should switch pt if you aren't satisfied. I have tricky knees especially the left so I understand your frustration.Maybe others out here with failed LR can help you. Remember that you aren't alone out there.
Sending hugs and a hope that you find the right surgeon soon.

Nettan  8)
Surgery 6 times left knee torn meniscus, RSDS,chondromalacia, nervdamage cause constant nervpain,chronic inflamm.
Spinaldamage wheeler 100%.
Right knee damaged aug-06, use brace surgery 4/9-07.LCL tear.

Offline blackbeltgirl

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Re: Kneecap feels like it's floating on jello??
« Reply #4 on: August 08, 2005, 09:02:47 PM »
You may also want to get a copy of the surgical report and a copy of your medical records.  If you'rein the US, you will probably need to submit a written request.  I find, frustrating though it is, that many doctors only tell us part of the story.  So he may have told you he did "nothing", and actually performed some sort of procedure/treatment.  He just considers it to be "nothing", or "nothing to worry about".  There may be additional info in the records that will help you seek appropriate treatment.

Good luck!
Jess
ACI was supposed to be 2/21/06.  On 6/29/06 Insurance co said have another scope, and if it still looks good, they'll ok the ACI.
Microfracture Dec 7, 2004
   3cm x 6cm lesion, LFC; 3cm x 1cm lesion, trochlear groove; lateral tibial plateau lesion
2nd degree black belt, tae kwon do (had to stop)

Offline Kidnurse911

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Re: Kneecap feels like it's floating on jello??
« Reply #5 on: August 09, 2005, 01:02:50 AM »
I was talking to my parents today...good thing I still live with them or I couldn't affored to be off, and I told them that I was just going to tell the doc to send me back to work!  I have been planning of switching jobs more towards what I want to work it and I will just find a good doc when I get there.  My mom and dad think that I'm nuts since I can't walk right now and I work 12 hr shifts as a nurse...so I'm constently moving, but I figure it they aren't figuring out what is wrong they will just send me back to work anyway!  I'm just so tired of all of this.  I went through all of this before I started college and now I'm going through it again!  What it would be like to be little again...not a care in the world!

Jen :'(

Offline blackbeltgirl

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Re: Kneecap feels like it's floating on jello??
« Reply #6 on: August 09, 2005, 03:07:53 AM »
Jen -

Don't give up.  DOn't give up on your knee, or your career choice.  If you want to make a change, that's ok.  But try not let the knee decide for you.  If you work as a nurse, you probably have decent insurance.  If you have a PPO, ask around and find a new knee doctor.  If you have an HMO, go visit your GP.  Explain the sitatuation and the LACK of treatment you've had so far.  And ask him to refer you to a different orthopedits.  You need to be a very strong self-advocate.  But if you have insurance in the US, and this isn't a workman's comp case, things are in your favor.  You can choose your doctors.  You can choose who will treat you.  And you can decide what is acceptable treatment.

So request the records, and find out what really happened.  Search for a couple of OS's on your insurance plan with good reputations for treating knees.  And start battling.  It's a lot of work, but worth it in the end.

Jess
ACI was supposed to be 2/21/06.  On 6/29/06 Insurance co said have another scope, and if it still looks good, they'll ok the ACI.
Microfracture Dec 7, 2004
   3cm x 6cm lesion, LFC; 3cm x 1cm lesion, trochlear groove; lateral tibial plateau lesion
2nd degree black belt, tae kwon do (had to stop)

Offline Nettan

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Re: Kneecap feels like it's floating on jello??
« Reply #7 on: August 09, 2005, 07:22:00 AM »
Jen,

you just can't give it up. I understand this is really tough on you right now and that you don't see an end of it. Even if you haven't got anything positive out from the docs and you start to doubt if they belive you there's no way you can accept this. I had this problem myself when the docs told me you can't have this severe pain, but still this awful pain were there, and how do you tell yourself there is no pain if you even scream if you just a bite ?
Well, I couldn't so I continued fighting and in the end I got it confirmed, I weren't crazy.
You just have to find the right surgeon who can help you. Maybe someone here can come up with a good doc.
You have parents supporting you, take their help and give this a chance. You need this leg for many years not for some months or so. Better fight to fix it now then wait and get more problems. I have been there several times in my life with my left knee and struggled and it wasn't funny but what choice do you have ?If you need support remember that you have us here.

Hugs nettan  8)
Surgery 6 times left knee torn meniscus, RSDS,chondromalacia, nervdamage cause constant nervpain,chronic inflamm.
Spinaldamage wheeler 100%.
Right knee damaged aug-06, use brace surgery 4/9-07.LCL tear.

Offline Kidnurse911

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Re: Kneecap feels like it's floating on jello??
« Reply #8 on: August 10, 2005, 12:08:11 AM »
Hey guys,

I went to the OS today and he is still uncertain of what is causing my knee to feel like jello besides the fact that there still is som swelling.  He isn't sure what's causing the pain either!  He is recommending that I stop physical therapy since it's just making it worse and keep with the hydrotherapy and see where we are in 2 weeks!  I don't like this waiting game!  He also is suggesting that I get the synvisc shots (a series of 3) and see if that helps.  Anyone had them, if so did it help?  I don't know what else to do.  I'm going to call my insurance to see if they will cover it and then I guess I'm going to try it so I can't say that I haven't tried everything that he recommends!  My aunt had them and she said that her knee is now worse than before.  I'm kinda nervous that it will make it worse, but then again that might make them try harder!  Still frustrated!

Jen   >:(

Offline dimples3887

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Re: Kneecap feels like it's floating on jello??
« Reply #9 on: August 10, 2005, 02:13:34 AM »
Kidnurse911,
I apologize if this has nothing to do with your post, but every time I see your post title "Kneecap feels like it's floating on jello??" it reminds me of a certain day at PT.  They were re-evaluating me and my therapist decided to check my patella mobility.  In doing so she concluded that when she pushed up on the kneecap, it "feels like jello."  So now everytime I see your post, it reminds me of the weird yet hilarious face my therapist was making while say that.  I'm really sorry that this probably doesn't help you in anyway but it makes me giggle, so maybe it will do the same for you!
Best wishes of good knee days ahead- Dimples
21 yrs. old
LK: 6/02-LR(fail)
     9/05-MRI shows patella bone bruise
     12/15/05-Medial reefing, LR, patella debridement (fail)
     TTT to be scheduled after RK TTT rehab is done...
Pain, clicking, and crepitus in both knees now...
RK: 11/19/08 - TTT

Offline nobbleknees

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Re: Kneecap feels like it's floating on jello??
« Reply #10 on: August 10, 2005, 12:54:11 PM »
Hi all,

i have just came across this site today, my knee is at me with years it just swelled up one day like a balloon and i went to A&E. i had to go to A&E several times before i was referred to a orthopaedic surgeon. he sent me for xrays and physio. it did not improve so i went back after a few months then i was sent for an mri scan and told to do more physio i still went back and had a camera put in for a look, then i was referred for insoles, my knee got more painful i went back again and i am now booked for surgery September 7th to remove tissues to give the muscles in my knee a chance to tightn with more physio. i have patellar tracking disorder which means my knee cap is out of place, my knee cracks i can move my knee cap over and back and most of all i have pain!!!! i will be left with a really ugly scar but i dont care if it means i wont suffer with my knee again, dont give up its not right for your knee cap to be like that, my surgeon told me i need surgery because its going on too long and it wont fix itself good luck!! look up patellar tracking disorder and ceck out the symptoms,

Offline Patty0513

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Re: Kneecap feels like it's floating on jello??
« Reply #11 on: August 10, 2005, 04:31:46 PM »
Hi Jen,
   Sorry you are still struggling with your knee.  I have had the Synvisc injections.  They didn' thelp at all, but they didn't make it worse.  Some people get a lot of relief from them and if your insurance will cover them, it is probably worth a try.  The injections weren't painful, but they did make my knee feel tight for a while afterwards.  Good luck!

Patty

Offline Kidnurse911

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Re: Kneecap feels like it's floating on jello??
« Reply #12 on: August 11, 2005, 04:45:46 AM »
Well, I called my insurance about the synvisc shots and it's going to take about 3 weeks for them to get it approved so I'm actually going to go see my original OS that did the first surgery!  I'm going to him to see what his opinion is!  I'm tired of waiting and I really want to get back to normal....I can't stand being off work!  I have to be doing something and I can't with all of this pain!  I actually play softball on a slow pitch team full of physical therapist (well not now I don't) they all looked at my knee tonight and said that my kneecap is very unstable and all of the felt that they could dislocate it no problem.  They also said that there is a chunk of something floating around in my knee.  I knew I was feeling something, but I didn't know what and obviously they don't know either, but they know it's not suppose to be there.  They were also talking about my ligaments being stretched and compressing my kneecap which causing a lot of pain.  I don't have any idea what all of that means, but I'm pretty sure it means something is wrong inside there!  One week and then I see the other doc so hopefully he can tell me something.  The other therapist agree with me on the pain issue though.  They said that they need to find the underlying problem and that should stop the pain....that's what i've been saying all along!!!  Maybe I should just become a Dr. instead of a nurse!  ha!
Jen ???

Offline blackbeltgirl

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Re: Kneecap feels like it's floating on jello??
« Reply #13 on: August 11, 2005, 02:14:38 PM »
Jen -

Can't any of these physical therapists recommend a good OS?  That's who I'd ask if I needed a referral to the right specialist.  Either way, good luck!

Jess
ACI was supposed to be 2/21/06.  On 6/29/06 Insurance co said have another scope, and if it still looks good, they'll ok the ACI.
Microfracture Dec 7, 2004
   3cm x 6cm lesion, LFC; 3cm x 1cm lesion, trochlear groove; lateral tibial plateau lesion
2nd degree black belt, tae kwon do (had to stop)

Offline Kidnurse911

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Re: Kneecap feels like it's floating on jello??
« Reply #14 on: August 11, 2005, 03:41:43 PM »
All of the Physical therapist that are on my team actually said that the new doc that I'm going to go see next thurs is great.  He is one of the best in IL!  I'm hoping they are right.  I've seen him before for my knee awhile ago and he seems to see with his hands.  He told me last time that I had cartilage damage by just feeling my leg and he did the surgery so I'm hoping he can do that again!   ;)

Jen

 















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