Degenerative Joint Disease???

[VRix1976]

I am pretty new to this board but love what I have learned on it so far. I have a question for anyone that might have an answer...My sister has EDS, and tells me that she believes I have it to. I talked to my doctor and he says that ALL of my joints are hypermobile because of my DJD (degenerative joint disease). I had Valley Fever at 13years old, and even now at 29 I still show as a level 2. I was hospitalized it was so bad but no antifungal treatments were ever done so he says that due to the fact that the spores are still in my joints growing and rupturing, my joints are being destroyed. I have chronic pain and ALL of my joints slip out of socket, and pop all day long. My sis says that I should push the doc into putting me on the meds for EDS. I am not sure that is the answer here though. If anyone has DJD and knows what can be done for it I would love to hear from them or if anyone has any suggestions I am open to anything. I am getting ready to go through my second TTT(Fulkerson) because of the first one failing, my left shoulder has to have surgery on it also for a torn disc, and they just keep adding to my surgeries. I am not sure that I want to keep having all this work done if the DJD is what is causing the surgeries to fail. Thanks Everyone and I hope that you are all doing as well as can be expected GL with all upcoming surgeries, and treatments. Thanks 

[csgrad]

Hello

There are other critera to EDS than just joint hypermobility.  You dont say which type your sister has but some of the types can actually be tested for through skin biopsy or urine testing.  Also, just for the record, there is no such thing as 'meds for EDS'.  It is a totally hit and miss approach that usually takes people years to figure out and what works for one, most likely wont work the same for another.  I do suggest though, that you get refered to a pain clinic as they should be able to help you manage the pain and might be able to give you some answers.

S.